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Larry Lehman Receives John Kappers AIDS Community Service ...

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Peer Counseling<br />

Perspectives<br />

Mary Lynn<br />

Hemphill, LMSW<br />

——— mlhemphill@aidssurvivalproject.org<br />

<strong>AIDS</strong> Survival Project is fifteen years old.<br />

In that time, treatment of HIV has changed<br />

dramatically, the political climate has<br />

shifted several times and the “face of <strong>AIDS</strong>” has<br />

become more often that of a person of color. At<br />

ASP, the Treatment Resource Center has grown<br />

from a single file cabinet to an HIV-focused library<br />

containing over 450 volumes, plus Internet<br />

access. Operation Survive! has evolved into<br />

THRIVE! Weekend. Peer counselors routinely<br />

handle calls<br />

from people<br />

on disability<br />

who are trying<br />

to figure out<br />

how to go<br />

back to work<br />

after an <strong>AIDS</strong><br />

diagnosis instead<br />

of calls<br />

requesting referrals<br />

to hospice<br />

care. Through all the changes, ASP has<br />

maintained this mission:<br />

We are diverse people living with HIV,<br />

united to promote self-empowerment and enhanced<br />

quality of life for HIV-affected individuals<br />

through advocacy, education, peer support<br />

and treatment activism.<br />

Responsiveness to medical and social<br />

change has been timely because it has come directly<br />

from the people whose lives and needs<br />

were changing. Barriers to using services remain<br />

almost nonexistent. People from all walks of life<br />

learn to become expert partners in managing their<br />

health. The philosophy that has been so effective<br />

in allowing this agency to remain relevant,<br />

powerful and responsive is found in a manifesto<br />

drafted in 1983 called the Denver Principles. The<br />

Denver Principles were written by a group of<br />

<strong>AIDS</strong> activists early in the epidemic, at a time<br />

when little was known about HIV infection and<br />

physicians and researchers were not used to working<br />

with “patients” who demanded to be true<br />

partners in their medical care.<br />

In the struggle to fight discrimination and<br />

marginalization, the Denver Principles are still a<br />

guiding force. They inform what ASP does in<br />

every aspect of the organization, every program<br />

and every advocacy effort. They feel no less radical<br />

today than they did twenty years ago, which<br />

speaks to the unique social stigma that still inhibits<br />

testing, prevention, disclosure and access<br />

to treatment. On this fifteenth anniversary of<br />

ASP, adequate funding for HIV/<strong>AIDS</strong> care and<br />

prevention continues to be in jeopardy and HIV<br />

names reporting in Georgia is proposed to take<br />

effect on January 1, 2004. It’s worth being reminded<br />

of the principles that guided the people<br />

who founded <strong>AIDS</strong> Survival Project.<br />

6<br />

The Denver Principles<br />

Recommendations for All People<br />

We recommend that all people:<br />

1. Support us in our struggle against those who<br />

would fire us from our jobs, evict us from<br />

our homes, refuse to touch us or separate us<br />

from our loved ones, our community or our<br />

peers, since available evidence does not<br />

support the view that <strong>AIDS</strong> can be spread<br />

by casual, social contact. (Remember that<br />

HIV and the first proof that <strong>AIDS</strong> was an<br />

infectious disease would not be discovered<br />

for two more years.)<br />

2. Not scapegoat people with <strong>AIDS</strong>, blame us<br />

for the epidemic or generalize about our lifestyles.<br />

We recommend that people with <strong>AIDS</strong>:<br />

1. Form caucuses to choose their own representatives,<br />

to deal with the media, to choose<br />

their own agenda and to plan their own strategies.<br />

2. Be involved at every level of decision-making<br />

and specifically serve on the boards of<br />

directors of provider organizations.<br />

3. Be involved in all <strong>AIDS</strong> forums with equal<br />

credibility as other participants, to share<br />

The Foundation<br />

their own experiences and knowledge.<br />

4. Substitute low-risk sexual behaviors for<br />

those that could endanger themselves or<br />

their partners. We feel that people with<br />

<strong>AIDS</strong> have an ethical responsibility to inform<br />

their potential sexual partners of their<br />

health status.<br />

Rights of People with <strong>AIDS</strong><br />

People with <strong>AIDS</strong> have the right:<br />

1. To as full and satisfying sexual and emotional<br />

lives as anyone else.<br />

2. To quality medical treatment and quality social<br />

service provision without discrimination<br />

of any form based on sexual orientation,<br />

gender, diagnosis, economic status or<br />

race.<br />

3. To full explanations of all medical procedures<br />

and risks, to choose or refuse their<br />

treatment modalities, to refuse to participate<br />

in research without jeopardizing their treatment<br />

and to make informed decisions about<br />

their lives.<br />

4. To privacy, confidentiality of medical<br />

records, to human respect, and to choose<br />

whom their significant others are.<br />

5. To die and to LIVE in dignity.<br />

Come learn the basics of Peer Counseling at <strong>AIDS</strong> Survival Project’s<br />

Counseling Skills-Building Training<br />

We will be covering the following topics:<br />

• Verbal and nonverbal communication<br />

• Problem-solving<br />

• Information and referral techniques<br />

• Assessing callers’ needs<br />

• Active listening skills<br />

• And more!<br />

9:00 a.m. to 4:00 p.m., Saturday, November 22<br />

at 139 Ralph McGill Boulevard<br />

Continental breakfast and lunch will be served<br />

No charge, but participants must preregister.<br />

Registration deadline is November 20<br />

Please call (404) 874-7926 and sign up to attend.<br />

Funding for this program is provided by the Ryan White CARE ACT Title I under the<br />

guidance of the Board of Commissioners of Fulton County’s <strong>AIDS</strong> Grants Program<br />

SURVIVAL NEWS

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