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The Daily Collegian<br />

Tuesday, March 25, 1986<br />

Medical ethics:<br />

Probing whether to 'pull the plug or sustain life with technological advances<br />

By CHRISTINE KILGORE<br />

Collegian Science Writer<br />

"Ten years ago, my brother was hit by a<br />

car and went into a coma for about a month.<br />

Then he recovered (but that was) after the<br />

doctors said he had no brain waves. At that<br />

time, there was never any question (about<br />

removing him from the respirator). But, £/<br />

there had been, my parents never would have<br />

given up."<br />

his life-and-death situation, faced by a<br />

University student and her family,<br />

T exemplifies one of the most debatable<br />

bioethical issues in today's society: who<br />

should be maintained by medical technology?<br />

In an age of rapidly-growing medical technology,<br />

bioethical questions concerning pulling<br />

the plug on comatose patients like the<br />

young man described above, and an array of<br />

other dilemmas face doctors and society.<br />

The sky-rocketing costs of medical care,<br />

the allocation of resources, the role of state<br />

and federal governments, and the question of<br />

who should make life and death decisions, are<br />

some of the issues that have quickly come to<br />

the forefront.<br />

Sheldon R. Gelman, professor of social<br />

work and director of the Social Work Program<br />

at the University, said many students<br />

will confront bioethical issues sometimes in<br />

their lives.<br />

"Young people — and college students —<br />

tend to think they're immortal and invincible,"<br />

said Gelman. "But what happens if<br />

they're involved in an accident? Do they want<br />

to be hooked to machines? Do they want to be<br />

subject to new technology? Those kinds of<br />

things have to be thought about beforehand."<br />

Gelman pointed to the landmark case of<br />

Karen Ann Quinlan, who in 1975 lasped into a<br />

coma at the age of 21 after taking a combination<br />

of tranquilizers and alcohol. After laying<br />

comatose in a New Jersey hospital for ten<br />

years, she died last year, ending the case that<br />

sparked interest in bioethical decision-making.<br />

"That's probably the first case that got as<br />

widespread publicity, because it involved an<br />

attempt by her parents to make a decision to<br />

forego the use of the respirator to prolong the<br />

life of their daughter," Gelman said. "The<br />

unusual thing about Karen Ann Quinlan was<br />

that once the respirator was removed under<br />

court order, she continued to live, and live,<br />

and live."<br />

"There were many others like her who<br />

remained in a vegetative state with no real<br />

likelihood of ever coming back to possess<br />

those human qualities other people possess,"<br />

he said.<br />

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4BH||^HBnKaUjg^* © ,979 V0LK<br />

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• • ••<br />

9 A<br />

Dilemmas with technology<br />

Gelman said the Quinlan case, and the<br />

whole argument of bioethics, is related, in<br />

part, to "the expanded technology and the<br />

ability to prolong or maintain life almost<br />

indefinately."<br />

'(The Karen Ann Quinlan case is) probably the first case that<br />

got as widespread publicity, because it involved an attempt<br />

by her parents to make a decision to forego the use of the<br />

respirator to prolong the life of their daughter. The unusual<br />

thing about Karen Ann Quinlan was that once the respirator<br />

was removed under court order, she continued to live, and<br />

live, and live.'<br />

Sheldon R. Gelman, professor of social work and director of the<br />

University's Social Work Program<br />

Leonard J. Waks, University professor of<br />

science, technology and society, agreed that<br />

advancing technology is driving many of<br />

today's bioethical dilemmas.<br />

"It's a slow and changing evolution.<br />

Through all technology, there are unanticipated<br />

risks," Waks said. "Technology is<br />

going to, over time, have effects we can't<br />

assess."<br />

Robert A. Walker, professor of science,<br />

technonogy and society-health education,<br />

said the United States is presently in a stage<br />

of "half-way technology," where health-care<br />

is constantly being improved for the next<br />

generation.<br />

"We're in an adolescent period," Walker<br />

said.<br />

"Clearly, it is the role of the human being to<br />

take the risks associated with technological<br />

development," he said.<br />

Technology advances cause skyrocketing<br />

health care costs. This raises the question of<br />

who will receive expensive medical care,<br />

Gelman said.<br />

j;<br />

I<br />

"Someone eventually has to pay for (technology's)<br />

application," he said.<br />

Such long-term implications of medical<br />

technology are now being addressed with the<br />

artificial heart, as some critics claim the<br />

risks and costs are too high. Others say the<br />

heart is worth it.<br />

Danner Clouser, humanities professor at<br />

the University's Hershey Medical Center,<br />

said the main bioethical dilemma surrounding<br />

the artificial heart involves the cost and<br />

consequently, the allocation of resources.<br />

These resources, he explained, are limited<br />

public funds.<br />

"The question is, who should get (the<br />

artificial heart)? Of course, this dilemma is<br />

true of any new technology," Clouser said.<br />

Using the artificial heart "is just so incredibly<br />

expensive," he said. "I've been told that<br />

for the first artificial heart transplant, we<br />

could have given free pap tests to all the<br />

women in the country. This would have saved<br />

many lives."<br />

However, Gelman said artificial organs is<br />

just one of the issues linked to economics.<br />

"With limited funds, should we prolong the<br />

lives of severly handicapped children or an<br />

elderly person with minimal brain function,<br />

or should we reallocate these resources?"<br />

Gelman said.<br />

Waks said to find an answer, people must<br />

look at each situation and ask whether there<br />

is any value in prolonging life.<br />

"We have to look at the quality of life,"<br />

Waks said. "If a person is paralyzed and<br />

isolated and can't go on living the life they<br />

carved out for themselves, there's a serious<br />

question."<br />

"I don't have shallow views on life ... and<br />

I'm all for health care of the elderly," Waks<br />

explained. "I'm not talking about interventions<br />

that are useful — many are. What I'm<br />

not for is the death-extending process."<br />

One should ask whether respirators and<br />

other "life-sustaining" medical treatments<br />

are prolonging life or extending death, he<br />

said.<br />

o<br />

© 1979 VOLK<br />

The struggle for solutions<br />

Waks is one of many professors, physicians,<br />

clergy members, and families who are<br />

struggling for answers.<br />

According to a March 17 New York Times<br />

report, the American Medical Association<br />

recently ruled it is ethically appropriate for<br />

doctors to withhold "all means of life prolonging<br />

medical treatment" from patients in<br />

irreversible comas but not necessarily terminally<br />

ill.<br />

This policy, it was reported, will be of<br />

greatest concern to the estimated 10,000 people<br />

who are in irreversible comas in institutions<br />

throughout the country today.<br />

Gelman said the policy "may give courts<br />

some direction in terms of what the current<br />

medical thinking is," when they deal with<br />

life-and-death cases.<br />

"The courts don't have any medical expertise,"<br />

Gelman said, adding that they look for<br />

opinions among physicians.<br />

Gelman said although the United States has<br />

begun addressing bioethical issues, the costs<br />

and allocating resources is not "something<br />

we've formally dealt with in this country."<br />

"England, for example, has a policy that no<br />

one who develops kidney disese and is above<br />

the age of 55 can be provided access to kidney<br />

dialysis," he said. "People over 55 who can<br />

secure the costs themselves may certainly<br />

receive dialysis. We're talking about public<br />

funds, however."<br />

"It may seem like a coarse approach (to<br />

the federal government's) role, something<br />

we're not ready to deal with yet in this<br />

country," he said,<br />

"Bioethical dilemmas that have been faced<br />

for years were always handled by small<br />

numbers of people without much public scru-<br />

'(The study of ethics) can't be reduced to a formula. In the<br />

medical community, doctors have to penetrate to the heart<br />

of the lives before them. An ethics problem can't become<br />

like a physics problem.'<br />

—Leonard J. Waks, University professor of science, technology and<br />

society<br />

tiny as to either the process or the outcome,"<br />

Gelman said.<br />

"Today people are thinking about these<br />

things," he added.<br />

He pointed to the well publicized cases of<br />

Elizabeth Bouvia, the quadriplegic who<br />

asked for medical assistance in starving<br />

herself to death; Baby Fae, an infant who<br />

received a baboon s heart, and Baby Doe, a<br />

severely handicapped Indiana infant who<br />

was denied medical treatment by the parents<br />

and state courts.<br />

Just as the medical community is recognizing<br />

and dealing with biomedical ethics, the<br />

general public is becoming more aware of the<br />

bioethical dilemmas faced today, Gelman<br />

said.<br />

"Most people would prefer not to be aware,<br />

however. It's very difficult for any individual<br />

to make a decision that involves whether or<br />

not somebody lives or dies," he said.<br />

But Gelman explained there are no simple<br />

answers.<br />

Each day physicians, families and courts<br />

learn what may be the best ethical choice for<br />

one patient may be the worst for another.<br />

This is why bioethical decisions must be<br />

made on a case-by;case basis, remembering<br />

that life is a basic human right, he said.<br />

Gelman said exactly who makes life and<br />

death decisions is a leading issue. Some<br />

physicians are becoming more reluctant to<br />

make decisions that were traditionally theirs.<br />

"Some welcome the input of others, including<br />

the family," he said.<br />

Ethics committees form<br />

Gelman said one result of the Baby Doe<br />

case was a recommendation that hospitals<br />

develop intricate review, or ethics, committees<br />

to provide counsel and advice.<br />

"The notion of ethics committees has<br />

grown rather dramatically in the last three or<br />

four years," Gelman said. "They deliberate<br />

very difficult, tragic choice decisions."<br />

Gelman is one of about a dozen members of<br />

a recently established ethics committee at<br />

Centre Community Hospital, which includes<br />

health care professionals, social workers,<br />

and clergy members.<br />

"The group should serve as an adviser and<br />

consultant in difficult situations in which a<br />

physician or other health care provider really<br />

is torn between the directions they can go —<br />

between treating and not treating, between<br />

resuscitating and not resuscitating," Gelman<br />

said<br />

Jack Branigan, executive director of<br />

Centre Community Hospital, emphasizes that<br />

the committee is "strictly an advisory<br />

board."<br />

Brannigan said the non-medical perspective<br />

of the committee is extremely important.<br />

"The committee is a recognition on the part<br />

of our medical community that there is a<br />

need to consider ethical issues associated<br />

with life and death," he said.<br />

A similar ethics committee has been established<br />

at Hershey in response to new regulations<br />

following the Baby Doe case.<br />

Clouser said this group — the Infant Care<br />

Review Committee — meets to review cases<br />

when physicians are considering whether to<br />

withdraw life support.<br />

In response to the growing importance of<br />

bioethical decision-making, many medical<br />

schools are beginning to offer and even require<br />

courses in medical ethics, Gelman said.<br />

"Eventually, that kind of course will be an<br />

integral part of the medical education curriculum.<br />

There are courses now in ethics for<br />

nurses, engineers, and business people," he<br />

said. "What it does is inform people that the<br />

decisions that people in various professions<br />

make have implications for the broader society."<br />

Waks said, however, that the study of<br />

ethics, "can't be reduced to a formula."<br />

"In the medical community, doctors have<br />

to penetrate to the heart of the lives before<br />

them," he said. "An ethics problem can't<br />

become like a physics problem."<br />

"Ethics — if it's of any life — comes from<br />

compassion, not from logic," Waks said.<br />

"And this compassion comes from experience."<br />

"What might be more valuable (than an<br />

ethics course) would be to confine doctors to<br />

a hospital room," Waks said. "It would be<br />

like a criminology student going to jail for a<br />

day."<br />

Coleen Rickabaugh (freshmen-pre-medical)<br />

is pleased that an ethics course may be a<br />

required part of her future medical curriculum.<br />

"You can form opinions on your own, but<br />

you should be presented with options," she<br />

said.<br />

Gelman said, "Those who have made (life<br />

and death) decisions have made them after<br />

what they believe to be very careful consideration."<br />

Gelman reiterated that no matter what an<br />

individual decides, it has to be made on a<br />

case-by-case basis, with no set rules or regulations<br />

to follow.<br />

"They've got to be careful that they're not<br />

absolutely sure that they did the right thing,<br />

because the minute you're absolutely sure<br />

about anything, it makes it very easy the next<br />

time to reach the decision," he explained. "If<br />

it comes easy, you can lose sight of the<br />

individual case you're dealing with and start<br />

to fit people into categories — there always<br />

has to be a question."<br />

"You should always take the process very<br />

seriously, without any quick or snap judgements."

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