Cross-Cultural Considerations in Promoting Advance Care Planning ...

Advanced Care Planning in Canada
Methodology
1.
2.
3.
4.
5.
referrals;
searching the Canadian Hospice and Palliative Care Association’s Directory of Hospice Palliative Care Services
(http://www.chpca.net/canadian_directory_of_services.htm) and the Researcher Registry (http://www.chpca.net/
initiatives/researcher_registry.htm);
contacting the presidents of the provincial palliative care associations;
contacting the regional palliative care offices and provincial/federal/territorial government health departments; and,
searching the Internet for researchers/policy makers or health care professionals and academics in Canada with
expertise in palliative care or with knowledge of a large and prevalent cultural group.
Table 2 shows the geographic distribution of the key informants. A total of 334 individuals were identified as
being potential key informants. Of these, 269 were contacted by telephone, fax or email and invited to participate in
an interview for the study. One hundred and twenty-five of the people contacted were interviewed for the study (see
Appendix B - Key Informant List). As necessary, interviews were conducted in French or with Punjabi, Mandarin, and
sign language interpreters.
Regarding their backgrounds, the majority of key informants (63%) described themselves as Caucasian (Canadian,
European descent). Eleven percent of our key informants were Aboriginal (First Nations, Métis, Inuit, Cree), 7%
Chinese, 6% South Asian, and the remainder 13% included Black, Deaf, Filipino, Francophone, Iranian, and Latin
American.
The Organizational interview schedule was used in 60 interviews, the HCP interview schedule was used in 48
interviews, and the Ethnic interview schedule was used in 29 interviews. Those informants who fit more than one
category may have been asked questions from a combination of schedules. Appendices J, K and L contain the three
types of schedules used.
Table 2– Geographic Distribution of Key Informants
Province/ Territory
Number of Key
Informants Interviewed
British Columbia 30
Alberta 6
Saskatchewan 10
Manitoba 6
Ontario 30
Quebec 10
New Brunswick 4
Nova Scotia 4
Prince Edward Island 4
Newfoundland and Labrador 3
Yukon Territory 8
Northwest Territories 3
Nunavut 7
Total Interviewed 125
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