11.02.2014 Views

Edna at the Palace! - Unique - The Rare Chromosome Disorder ...

Edna at the Palace! - Unique - The Rare Chromosome Disorder ...

Edna at the Palace! - Unique - The Rare Chromosome Disorder ...

SHOW MORE
SHOW LESS

You also want an ePaper? Increase the reach of your titles

YUMPU automatically turns print PDFs into web optimized ePapers that Google loves.

carers<br />

Caring with Confidence<br />

Caring with Confidence aims to help carers<br />

make a positive difference to <strong>the</strong>ir life and th<strong>at</strong><br />

of <strong>the</strong> person <strong>the</strong>y care for. Carers can mix<br />

and m<strong>at</strong>ch how <strong>the</strong>y fur<strong>the</strong>r develop <strong>the</strong>ir<br />

knowledge and skills – by taking part in one<br />

or more free, local group sessions, by using<br />

self-study workbooks or by accessing online<br />

sessions. Caring with Confidence enhances <strong>the</strong><br />

training already available and helps to provide<br />

learning opportunities for carers where <strong>the</strong>re<br />

is currently little available. It is not designed to<br />

replace existing provision. Caring with<br />

Confidence sessions will:<br />

■ help you build on your strengths as a carer<br />

■ give you <strong>the</strong> opportunity to share<br />

experiences and learn from o<strong>the</strong>rs in similar<br />

situ<strong>at</strong>ions<br />

■ give you useful inform<strong>at</strong>ion, ideas and tips<br />

about looking after someone<br />

■ help you decide wh<strong>at</strong> you might like to<br />

change about your caring role<br />

Each session lasts three hours and includes a<br />

refreshment break.<br />

Caring with Confidence<br />

Carrwood Park, Selby Road, Leeds LS15 4LG<br />

Tel: 0113 385 4491<br />

Email: cwc.info@caringwithconfidence.net<br />

www.caringwithconfidence.net/<br />

Home Dad<br />

An interactive web site for dads bringing up<br />

<strong>the</strong>ir children. Dads can meet up, offer advice<br />

and support and share <strong>the</strong>ir experiences of<br />

hands-on f<strong>at</strong>hering. <strong>The</strong> site has news, fe<strong>at</strong>ures<br />

and inform<strong>at</strong>ion, details on starting a playgroup<br />

and how to find o<strong>the</strong>r home dads. <strong>The</strong>re is a<br />

bulletin board for messages and regular ch<strong>at</strong><br />

room sessions.<br />

homedad.org.uk/<br />

New parenting site launched<br />

– One Space<br />

One Space is a new parenting site for single<br />

parents whe<strong>the</strong>r <strong>the</strong>y are pregnant, have<br />

toddlers or teenagers, are separ<strong>at</strong>ed, divorced,<br />

widowed or have chosen to go it alone.<br />

On <strong>the</strong> site, parents can get support from<br />

experienced parenting experts, encouraging<br />

<strong>the</strong>m to take part, share <strong>the</strong>ir views and build<br />

confidence in parenting alone successfully. You<br />

can join online groups, ch<strong>at</strong>, w<strong>at</strong>ch video clips<br />

and share <strong>the</strong> ups and downs of life, <strong>at</strong><br />

www.onespace.org.uk.<br />

A new website for<br />

parents of teens<br />

Parentline Plus is currently developing a social<br />

networking website for parents of teenagers<br />

entitled www.got<strong>at</strong>eenager.org.uk.<br />

Launched in September 2008, <strong>the</strong> site will<br />

be a space for parents of teens to share<br />

experiences, swap tips and support one<br />

ano<strong>the</strong>r through <strong>the</strong> challenges and successes.<br />

Aside from message boards, blogs and<br />

Q&As, a number of fe<strong>at</strong>ures are planned such<br />

as e-learning modules, Web TV Shows, an<br />

online comic strip and a ‘teen-speak’ jargon<br />

buster. For anyone with a teenager in <strong>the</strong>ir life.<br />

Join for parent-to-parent support, informal<br />

advice, useful inform<strong>at</strong>ion and a community of<br />

o<strong>the</strong>r parents dealing with <strong>the</strong> same issues as<br />

you.<br />

Online rel<strong>at</strong>ionship<br />

help launched<br />

One Plus One, <strong>the</strong> UK’s leading rel<strong>at</strong>ionship<br />

research organis<strong>at</strong>ion has launched<br />

a new online service for parents.<br />

<strong>the</strong>coupleconnection.net is targeted <strong>at</strong> all<br />

parents, but includes specific inform<strong>at</strong>ion for<br />

f<strong>at</strong>hers and parents of children with disabilities.<br />

<strong>The</strong> site provides a developing range of articles,<br />

self-assessment tools, activities and exercises to<br />

help you to improve your couple rel<strong>at</strong>ionship.<br />

Much of <strong>the</strong> site is interactive, with a forum<br />

which is visited regularly by trained rel<strong>at</strong>ionship<br />

supporters.<br />

<strong>the</strong>coupleconnection.net/<br />

USA families<br />

Find special needs and respite caregivers<br />

in your area, for both children and adults<br />

www.care.com/special-needs-p1162.html.<br />

Useful web links for siblings<br />

www.sibs.org.uk/<br />

Sibs is <strong>the</strong> UK charity for people who grow up<br />

with a disabled bro<strong>the</strong>r or sister.<br />

www.youngcarers.net/<br />

www.youngcarer.com/<br />

showPage.php?file=index.htm<br />

Australian sibling website<br />

siblingsaustralia.org.au/<br />

New Zealand sibling support<br />

www.parent2parent.org.nz/start.htm<br />

money m<strong>at</strong>ters<br />

Disabled children to benefit<br />

from record levels of<br />

investment in services<br />

Contact a Family is delighted with recent<br />

confirm<strong>at</strong>ion in <strong>the</strong> Child Health Str<strong>at</strong>egy of<br />

GB£340 million additional funding to improve<br />

health services for disabled children. Claire<br />

Pimm, Director of Policy and Communic<strong>at</strong>ions,<br />

said: “High standards of healthcare for disabled<br />

children are vital to improving not only <strong>the</strong>ir<br />

health, but <strong>the</strong> entire quality of life for <strong>the</strong>m<br />

and <strong>the</strong>ir family.<br />

“We are delighted th<strong>at</strong> <strong>the</strong> government has<br />

announced this substantial extra funding to<br />

improve <strong>the</strong> experience of disabled children<br />

and <strong>the</strong>ir families with health services. Due to<br />

<strong>the</strong> complexity of <strong>the</strong>ir health needs, disabled<br />

children and <strong>the</strong>ir families come into regular<br />

contact with health services and need<br />

confidence <strong>the</strong>y are of <strong>the</strong> highest quality<br />

and working to meet <strong>the</strong>ir needs.” <strong>The</strong> funding<br />

was announced in <strong>the</strong> public<strong>at</strong>ion of <strong>the</strong><br />

government str<strong>at</strong>egy Healthy lives, brighter<br />

future: <strong>the</strong> str<strong>at</strong>egy for children and young people’s<br />

health. <strong>The</strong> GB£340 million will enable local<br />

areas to work toge<strong>the</strong>r to support children<br />

with disabilities and <strong>the</strong>ir families and invest in<br />

palli<strong>at</strong>ive care and end of life services, short<br />

breaks, community equipment and wheelchair<br />

services through Community Children’s<br />

Nursing services. Ano<strong>the</strong>r measure in <strong>the</strong><br />

str<strong>at</strong>egy to benefit disabled children and <strong>the</strong>ir<br />

families is a commitment th<strong>at</strong> by 2010, all<br />

children with complex health needs will have<br />

an individual care plan.<br />

www.rarechromo.org<br />

Read <strong>the</strong> report in full <strong>at</strong><br />

www.dh.gov.uk/en/Public<strong>at</strong>ionsandst<strong>at</strong>istics/<br />

Public<strong>at</strong>ions/Public<strong>at</strong>ionsPolicyAndGuidance/<br />

DH_094400?IdcService=GET_FILE&dID=<br />

184218&Rendition=Web<br />

Source: Contact a Family e-Newsletter February 2009<br />

Free childcare<br />

scheme launched<br />

<strong>The</strong> Department for Children, Schools and<br />

Families has launched a £75million three-year<br />

free childcare scheme which will help 50,000<br />

low-income families in England. As part of <strong>the</strong><br />

scheme, childcare costs of up to £175 per<br />

week per child (or up to £205 per week per<br />

child in London) will be paid directly to <strong>the</strong><br />

childcare provider. This is to enable parents,<br />

where only one partner is working or in some<br />

Page 23

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!