Edna at the Palace! - Unique - The Rare Chromosome Disorder ...
Edna at the Palace! - Unique - The Rare Chromosome Disorder ...
Edna at the Palace! - Unique - The Rare Chromosome Disorder ...
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carers<br />
Caring with Confidence<br />
Caring with Confidence aims to help carers<br />
make a positive difference to <strong>the</strong>ir life and th<strong>at</strong><br />
of <strong>the</strong> person <strong>the</strong>y care for. Carers can mix<br />
and m<strong>at</strong>ch how <strong>the</strong>y fur<strong>the</strong>r develop <strong>the</strong>ir<br />
knowledge and skills – by taking part in one<br />
or more free, local group sessions, by using<br />
self-study workbooks or by accessing online<br />
sessions. Caring with Confidence enhances <strong>the</strong><br />
training already available and helps to provide<br />
learning opportunities for carers where <strong>the</strong>re<br />
is currently little available. It is not designed to<br />
replace existing provision. Caring with<br />
Confidence sessions will:<br />
■ help you build on your strengths as a carer<br />
■ give you <strong>the</strong> opportunity to share<br />
experiences and learn from o<strong>the</strong>rs in similar<br />
situ<strong>at</strong>ions<br />
■ give you useful inform<strong>at</strong>ion, ideas and tips<br />
about looking after someone<br />
■ help you decide wh<strong>at</strong> you might like to<br />
change about your caring role<br />
Each session lasts three hours and includes a<br />
refreshment break.<br />
Caring with Confidence<br />
Carrwood Park, Selby Road, Leeds LS15 4LG<br />
Tel: 0113 385 4491<br />
Email: cwc.info@caringwithconfidence.net<br />
www.caringwithconfidence.net/<br />
Home Dad<br />
An interactive web site for dads bringing up<br />
<strong>the</strong>ir children. Dads can meet up, offer advice<br />
and support and share <strong>the</strong>ir experiences of<br />
hands-on f<strong>at</strong>hering. <strong>The</strong> site has news, fe<strong>at</strong>ures<br />
and inform<strong>at</strong>ion, details on starting a playgroup<br />
and how to find o<strong>the</strong>r home dads. <strong>The</strong>re is a<br />
bulletin board for messages and regular ch<strong>at</strong><br />
room sessions.<br />
homedad.org.uk/<br />
New parenting site launched<br />
– One Space<br />
One Space is a new parenting site for single<br />
parents whe<strong>the</strong>r <strong>the</strong>y are pregnant, have<br />
toddlers or teenagers, are separ<strong>at</strong>ed, divorced,<br />
widowed or have chosen to go it alone.<br />
On <strong>the</strong> site, parents can get support from<br />
experienced parenting experts, encouraging<br />
<strong>the</strong>m to take part, share <strong>the</strong>ir views and build<br />
confidence in parenting alone successfully. You<br />
can join online groups, ch<strong>at</strong>, w<strong>at</strong>ch video clips<br />
and share <strong>the</strong> ups and downs of life, <strong>at</strong><br />
www.onespace.org.uk.<br />
A new website for<br />
parents of teens<br />
Parentline Plus is currently developing a social<br />
networking website for parents of teenagers<br />
entitled www.got<strong>at</strong>eenager.org.uk.<br />
Launched in September 2008, <strong>the</strong> site will<br />
be a space for parents of teens to share<br />
experiences, swap tips and support one<br />
ano<strong>the</strong>r through <strong>the</strong> challenges and successes.<br />
Aside from message boards, blogs and<br />
Q&As, a number of fe<strong>at</strong>ures are planned such<br />
as e-learning modules, Web TV Shows, an<br />
online comic strip and a ‘teen-speak’ jargon<br />
buster. For anyone with a teenager in <strong>the</strong>ir life.<br />
Join for parent-to-parent support, informal<br />
advice, useful inform<strong>at</strong>ion and a community of<br />
o<strong>the</strong>r parents dealing with <strong>the</strong> same issues as<br />
you.<br />
Online rel<strong>at</strong>ionship<br />
help launched<br />
One Plus One, <strong>the</strong> UK’s leading rel<strong>at</strong>ionship<br />
research organis<strong>at</strong>ion has launched<br />
a new online service for parents.<br />
<strong>the</strong>coupleconnection.net is targeted <strong>at</strong> all<br />
parents, but includes specific inform<strong>at</strong>ion for<br />
f<strong>at</strong>hers and parents of children with disabilities.<br />
<strong>The</strong> site provides a developing range of articles,<br />
self-assessment tools, activities and exercises to<br />
help you to improve your couple rel<strong>at</strong>ionship.<br />
Much of <strong>the</strong> site is interactive, with a forum<br />
which is visited regularly by trained rel<strong>at</strong>ionship<br />
supporters.<br />
<strong>the</strong>coupleconnection.net/<br />
USA families<br />
Find special needs and respite caregivers<br />
in your area, for both children and adults<br />
www.care.com/special-needs-p1162.html.<br />
Useful web links for siblings<br />
www.sibs.org.uk/<br />
Sibs is <strong>the</strong> UK charity for people who grow up<br />
with a disabled bro<strong>the</strong>r or sister.<br />
www.youngcarers.net/<br />
www.youngcarer.com/<br />
showPage.php?file=index.htm<br />
Australian sibling website<br />
siblingsaustralia.org.au/<br />
New Zealand sibling support<br />
www.parent2parent.org.nz/start.htm<br />
money m<strong>at</strong>ters<br />
Disabled children to benefit<br />
from record levels of<br />
investment in services<br />
Contact a Family is delighted with recent<br />
confirm<strong>at</strong>ion in <strong>the</strong> Child Health Str<strong>at</strong>egy of<br />
GB£340 million additional funding to improve<br />
health services for disabled children. Claire<br />
Pimm, Director of Policy and Communic<strong>at</strong>ions,<br />
said: “High standards of healthcare for disabled<br />
children are vital to improving not only <strong>the</strong>ir<br />
health, but <strong>the</strong> entire quality of life for <strong>the</strong>m<br />
and <strong>the</strong>ir family.<br />
“We are delighted th<strong>at</strong> <strong>the</strong> government has<br />
announced this substantial extra funding to<br />
improve <strong>the</strong> experience of disabled children<br />
and <strong>the</strong>ir families with health services. Due to<br />
<strong>the</strong> complexity of <strong>the</strong>ir health needs, disabled<br />
children and <strong>the</strong>ir families come into regular<br />
contact with health services and need<br />
confidence <strong>the</strong>y are of <strong>the</strong> highest quality<br />
and working to meet <strong>the</strong>ir needs.” <strong>The</strong> funding<br />
was announced in <strong>the</strong> public<strong>at</strong>ion of <strong>the</strong><br />
government str<strong>at</strong>egy Healthy lives, brighter<br />
future: <strong>the</strong> str<strong>at</strong>egy for children and young people’s<br />
health. <strong>The</strong> GB£340 million will enable local<br />
areas to work toge<strong>the</strong>r to support children<br />
with disabilities and <strong>the</strong>ir families and invest in<br />
palli<strong>at</strong>ive care and end of life services, short<br />
breaks, community equipment and wheelchair<br />
services through Community Children’s<br />
Nursing services. Ano<strong>the</strong>r measure in <strong>the</strong><br />
str<strong>at</strong>egy to benefit disabled children and <strong>the</strong>ir<br />
families is a commitment th<strong>at</strong> by 2010, all<br />
children with complex health needs will have<br />
an individual care plan.<br />
www.rarechromo.org<br />
Read <strong>the</strong> report in full <strong>at</strong><br />
www.dh.gov.uk/en/Public<strong>at</strong>ionsandst<strong>at</strong>istics/<br />
Public<strong>at</strong>ions/Public<strong>at</strong>ionsPolicyAndGuidance/<br />
DH_094400?IdcService=GET_FILE&dID=<br />
184218&Rendition=Web<br />
Source: Contact a Family e-Newsletter February 2009<br />
Free childcare<br />
scheme launched<br />
<strong>The</strong> Department for Children, Schools and<br />
Families has launched a £75million three-year<br />
free childcare scheme which will help 50,000<br />
low-income families in England. As part of <strong>the</strong><br />
scheme, childcare costs of up to £175 per<br />
week per child (or up to £205 per week per<br />
child in London) will be paid directly to <strong>the</strong><br />
childcare provider. This is to enable parents,<br />
where only one partner is working or in some<br />
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