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iv poz mag.qxd - Positive Living BC

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issue 50.<strong>qxd</strong>:l<strong>iv</strong> <strong>poz</strong> <strong>mag</strong>.<strong>qxd</strong> 9/3/07 4:04 PM Page 22<br />

Feature Story<br />

Tips on how to stay on track with your meds<br />

Sometimes it might seem impossible to stick with your<br />

treatment regime. But if you’re proact<strong>iv</strong>e, it can lessen the<br />

chances that you’ll experience treatment fatigue. Here are<br />

a few handy tips:<br />

Keep a daily diary of your general health status. It<br />

doesn’t have to be complicated or lengthy. Note your feelings,<br />

list any side effects or symptoms you’re experiencing, and<br />

keep a log of when you take your medications. By tracking<br />

daily statistics before going to bed, on the rare occasion<br />

that you miss an evening dose, you can take it and merely<br />

note it as late. It’s also handy to review these diary notes<br />

before your regularly scheduled appointments with your<br />

doctor or pharmacist. Reporting side effects is important;<br />

in some cases, there may be simple remedies that can<br />

lessen the symptoms. If these symptoms continue over a<br />

long time and you neglect them, they can easily lead to<br />

treatment fatigue.<br />

Make your medication schedule work for you. The<br />

more easily you can incorporate your antiretrovirals (ARVs)<br />

into your life, the better. If it means adjusting your dosing<br />

schedule by an hour or two, do it. HIV and its medications<br />

affect all of us differently. What works for one person may<br />

not work for another. Be flexible and work with your<br />

healthcare providers. Depending on your regimen, you may<br />

find that switching certain medications from evening to<br />

morning and vice versa can reduce side effects. If you’re on<br />

once-daily medications, which is becoming more common,<br />

plan to take your medication when it’s most convenient<br />

and conduc<strong>iv</strong>e to your schedule.<br />

Keep some medication on hand at all times in case<br />

you’re delayed. If you travel on a regular basis, it’s wise to<br />

stash a dose or two in a secure location, or with a friend. It<br />

takes the pressure off having to go back home. Resentment<br />

can build if you feel that medications control your life.<br />

Pay attention to your medication schedule when you’re<br />

busy with act<strong>iv</strong>ities outside your normal routine. While<br />

you’re on vacation or participating in new act<strong>iv</strong>ities, it’s easy<br />

to get distracted and miss doses. Some people use alarms on<br />

their watches, pocket computers, or cell phones as a reminder<br />

to take medications.<br />

Manage side effects before they get out of hand. Half<br />

of HIV-posit<strong>iv</strong>e people on ARVs complain of acid reflux—<br />

when the contents from your stomach travel back up<br />

through your esophagus or swallowing tube. Sometimes<br />

you can address this by taking medications an hour or two<br />

earlier, or by elevating the head of your bed a few inches.<br />

If you start to experience body changes, such as lipodystrophy<br />

or lipoatrophy, make sure you inform your doctor and<br />

pharmacist. Sometimes dosages of particular medications<br />

can be altered, or other drugs can be substituted before major<br />

permanent da<strong>mag</strong>e occurs. The psychological effects of these<br />

body changes can have far deeper emotional consequences if<br />

left unattended.<br />

Keep track of the state of your mental health. We all<br />

have our ups and downs, but if you find that you’re in a<br />

constant downcast mood, seek help. The reality is that the<br />

majority of us l<strong>iv</strong>ing with HIV will at some point experience<br />

depression that will require treatment. Left untreated,<br />

depression can easily translate to missed doses of ARVs.<br />

HIV. But after l<strong>iv</strong>ing through the<br />

1980s and early ’90s, before effect<strong>iv</strong>e<br />

treatments were available, I don’t<br />

have to think too hard about whether<br />

or not it’s worth it to take the medications.<br />

Making an informed decision<br />

However, if you do choose to take a<br />

break from your HIV medications or<br />

decide to stop taking them altogether,<br />

you should maintain contact with your<br />

doctor and have regular blood work<br />

done. Depending on your particular<br />

combination of ARVs, it may be wise to<br />

consult your doctor or pharmacist about<br />

how to discontinue your drug regimen<br />

safely—without providing the HIV virus<br />

an opportunity to become resistant.<br />

<strong>BC</strong>PWA continues to hold the<br />

position that any HIV-posit<strong>iv</strong>e person<br />

has the right to refuse treatment, even<br />

if that places the person’s life at risk.<br />

There are going to be times when<br />

some people will disagree with another<br />

person’s decisions. However, the basis<br />

of our Society is empowerment, to<br />

increase the capacity of ind<strong>iv</strong>iduals<br />

to make choices that work for them<br />

and to transform those choices into<br />

desired actions and outcomes. That<br />

includes death. 5<br />

Glyn Townson is the<br />

vice-chair of <strong>BC</strong>PWA.<br />

22 l<strong>iv</strong>ing5 SeptemberqOctober 2007

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