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Breakthrough - Osteogenesis Imperfecta Foundation

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Fundraising Briefs<br />

by Jeffrey Garrett<br />

OI Fdn. Development Director<br />

Corporate Sponsors Help<br />

Make Conference A Success<br />

The OI <strong>Foundation</strong> greatly appreciates<br />

the companies who are helping to<br />

support the 2004 National Conference,<br />

June 24-26, 2004 in Dallas,<br />

TX.<br />

These generous corporate partners<br />

assist the <strong>Foundation</strong> in providing the<br />

outstanding level of speakers, events,<br />

workshops and networking opportunities<br />

that participants have come to<br />

expect.<br />

As of the press date of this issue,<br />

the following companies signed on as<br />

conference sponsors:<br />

• Alliance for Better Bone Health (a<br />

partnership between Proctor &<br />

Gamble and Aventis Pharmaceuticals),<br />

• Children’s Hospital of Omaha,<br />

• GM Mobility,<br />

• Merck and Co., Inc.,<br />

• Novartis,<br />

• Permobil, and<br />

• Pega Medical.<br />

Roundtable Offers Learning<br />

Opportunities<br />

The National Conference offers<br />

many excellent learning opportunities,<br />

one of which is how to raise funds for<br />

the OI <strong>Foundation</strong>. If you want to<br />

learn more about fundraising, especially<br />

organizing special events, or are<br />

willing to share your expertise with<br />

others, plan to join the Fundraising<br />

Roundtable during Saturday’s lunch at<br />

the 2004 Conference.<br />

Volunteer Fundraisers Raise<br />

Critically Needed Funding<br />

Without the strong support of our<br />

volunteers, the OI <strong>Foundation</strong> simply<br />

could not do the work we do on<br />

behalf of people with OI. We are<br />

grateful for the support that these<br />

fundraisers provide:<br />

Roll-N-Stroll in Stillwater, OK,<br />

raised $3,635 for OI research.<br />

Allison Phillips organized this event on<br />

behalf of her brother, Matthew. Her<br />

parents are Laura and Mark Phillips.<br />

This year’s event was held April 24,<br />

2004.<br />

Bone Bowl held in Minneapolis,<br />

MN, raised $1,806 for general<br />

support in December 2003. Event<br />

organizer and <strong>Foundation</strong> board<br />

member Michael Johnston organized<br />

the event in honor of his daughter,<br />

Emma.<br />

The first annual Baylee Taylor<br />

Memorial Bowl-A-Thon, organized<br />

by Jennifer Taylor, on April 27, 2004<br />

in Roseburg, Oregon, raised more<br />

than $10,000. The event is in<br />

memory of her son, Baylee, who<br />

passed away in July 2003<br />

The 5th Annual Connecticut<br />

Walk-a-thon, organized by Paula<br />

Furber, on May 8, 2004 in Montville,<br />

CT, raised $18,000.<br />

On May 20th, the 4th Annual Fine<br />

Wines, Strong Bones wine and<br />

cheese party and silent auction in<br />

Washington, D.C., is expected to<br />

raise $15,000 to support the annual<br />

conference.<br />

Carol Goebel will be hosting a<br />

Walk-a-thon in Cinnaminson, NJ,<br />

June 6.<br />

Summer Magic - a wine tasting in<br />

Margate, NJ, will be hosted by<br />

Vaughan and Margie Reale and Jerry<br />

Johnston, June 25, 2004<br />

The annual Miracle Michael Golf<br />

Tournament, organized by John &<br />

Beth Shultz, to be held July 26, 2004<br />

in Naperville, IL. The event honors<br />

the memory of their son, Michael.<br />

They are pleased to announce that<br />

the event has been given a permanent<br />

date of the last Monday of July each<br />

year.<br />

Chery Sacchetti will host a seafood<br />

festival, Bash by the Bay, August 15<br />

in Margate, NJ.<br />

For more information, or to support<br />

any of these events, please contact<br />

the Development Department at the<br />

OI <strong>Foundation</strong> by calling (800) 981-<br />

2663 or emailing to jgarrett@oif.org.<br />

2003 Sweepstakes Winners<br />

Announced<br />

The winners of the OI <strong>Foundation</strong>’s<br />

2003 Sweepstakes grand prize — a<br />

seven day, six night vacation trip for<br />

two, including airfare and hotel stay—<br />

are Kerry and Erika Zemp.<br />

The Sweepstakes netted $19,481,<br />

the most raised since it began in<br />

2002.<br />

Special thanks go to John and Beth<br />

Shultz for providing the grand prize.<br />

We also thank everyone who participated<br />

and made it the most successful<br />

sweepstakes ever!<br />

Support Research<br />

The OI <strong>Foundation</strong> will shortly be<br />

sending out its annual appeal to<br />

support the research funding that the<br />

<strong>Foundation</strong> provides to continue<br />

working for a cure and better treatments<br />

for people with OI.<br />

Please watch your mailboxes for<br />

this important opportunity to support<br />

vital research!<br />

Leave A Legacy<br />

To learn how you can support the<br />

ongoing work of the OI <strong>Foundation</strong><br />

through estate planning, please<br />

contact Jeffrey Garrett, Director of<br />

Development at (301) 947-0083 or<br />

by email at: jgarrett@oif.org.<br />

<strong>Breakthrough</strong> Spring 2004 Page 4

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