Breakthrough - Osteogenesis Imperfecta Foundation
Breakthrough - Osteogenesis Imperfecta Foundation
Breakthrough - Osteogenesis Imperfecta Foundation
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Fundraising Briefs<br />
by Jeffrey Garrett<br />
OI Fdn. Development Director<br />
Corporate Sponsors Help<br />
Make Conference A Success<br />
The OI <strong>Foundation</strong> greatly appreciates<br />
the companies who are helping to<br />
support the 2004 National Conference,<br />
June 24-26, 2004 in Dallas,<br />
TX.<br />
These generous corporate partners<br />
assist the <strong>Foundation</strong> in providing the<br />
outstanding level of speakers, events,<br />
workshops and networking opportunities<br />
that participants have come to<br />
expect.<br />
As of the press date of this issue,<br />
the following companies signed on as<br />
conference sponsors:<br />
• Alliance for Better Bone Health (a<br />
partnership between Proctor &<br />
Gamble and Aventis Pharmaceuticals),<br />
• Children’s Hospital of Omaha,<br />
• GM Mobility,<br />
• Merck and Co., Inc.,<br />
• Novartis,<br />
• Permobil, and<br />
• Pega Medical.<br />
Roundtable Offers Learning<br />
Opportunities<br />
The National Conference offers<br />
many excellent learning opportunities,<br />
one of which is how to raise funds for<br />
the OI <strong>Foundation</strong>. If you want to<br />
learn more about fundraising, especially<br />
organizing special events, or are<br />
willing to share your expertise with<br />
others, plan to join the Fundraising<br />
Roundtable during Saturday’s lunch at<br />
the 2004 Conference.<br />
Volunteer Fundraisers Raise<br />
Critically Needed Funding<br />
Without the strong support of our<br />
volunteers, the OI <strong>Foundation</strong> simply<br />
could not do the work we do on<br />
behalf of people with OI. We are<br />
grateful for the support that these<br />
fundraisers provide:<br />
Roll-N-Stroll in Stillwater, OK,<br />
raised $3,635 for OI research.<br />
Allison Phillips organized this event on<br />
behalf of her brother, Matthew. Her<br />
parents are Laura and Mark Phillips.<br />
This year’s event was held April 24,<br />
2004.<br />
Bone Bowl held in Minneapolis,<br />
MN, raised $1,806 for general<br />
support in December 2003. Event<br />
organizer and <strong>Foundation</strong> board<br />
member Michael Johnston organized<br />
the event in honor of his daughter,<br />
Emma.<br />
The first annual Baylee Taylor<br />
Memorial Bowl-A-Thon, organized<br />
by Jennifer Taylor, on April 27, 2004<br />
in Roseburg, Oregon, raised more<br />
than $10,000. The event is in<br />
memory of her son, Baylee, who<br />
passed away in July 2003<br />
The 5th Annual Connecticut<br />
Walk-a-thon, organized by Paula<br />
Furber, on May 8, 2004 in Montville,<br />
CT, raised $18,000.<br />
On May 20th, the 4th Annual Fine<br />
Wines, Strong Bones wine and<br />
cheese party and silent auction in<br />
Washington, D.C., is expected to<br />
raise $15,000 to support the annual<br />
conference.<br />
Carol Goebel will be hosting a<br />
Walk-a-thon in Cinnaminson, NJ,<br />
June 6.<br />
Summer Magic - a wine tasting in<br />
Margate, NJ, will be hosted by<br />
Vaughan and Margie Reale and Jerry<br />
Johnston, June 25, 2004<br />
The annual Miracle Michael Golf<br />
Tournament, organized by John &<br />
Beth Shultz, to be held July 26, 2004<br />
in Naperville, IL. The event honors<br />
the memory of their son, Michael.<br />
They are pleased to announce that<br />
the event has been given a permanent<br />
date of the last Monday of July each<br />
year.<br />
Chery Sacchetti will host a seafood<br />
festival, Bash by the Bay, August 15<br />
in Margate, NJ.<br />
For more information, or to support<br />
any of these events, please contact<br />
the Development Department at the<br />
OI <strong>Foundation</strong> by calling (800) 981-<br />
2663 or emailing to jgarrett@oif.org.<br />
2003 Sweepstakes Winners<br />
Announced<br />
The winners of the OI <strong>Foundation</strong>’s<br />
2003 Sweepstakes grand prize — a<br />
seven day, six night vacation trip for<br />
two, including airfare and hotel stay—<br />
are Kerry and Erika Zemp.<br />
The Sweepstakes netted $19,481,<br />
the most raised since it began in<br />
2002.<br />
Special thanks go to John and Beth<br />
Shultz for providing the grand prize.<br />
We also thank everyone who participated<br />
and made it the most successful<br />
sweepstakes ever!<br />
Support Research<br />
The OI <strong>Foundation</strong> will shortly be<br />
sending out its annual appeal to<br />
support the research funding that the<br />
<strong>Foundation</strong> provides to continue<br />
working for a cure and better treatments<br />
for people with OI.<br />
Please watch your mailboxes for<br />
this important opportunity to support<br />
vital research!<br />
Leave A Legacy<br />
To learn how you can support the<br />
ongoing work of the OI <strong>Foundation</strong><br />
through estate planning, please<br />
contact Jeffrey Garrett, Director of<br />
Development at (301) 947-0083 or<br />
by email at: jgarrett@oif.org.<br />
<strong>Breakthrough</strong> Spring 2004 Page 4