Velo-Cardio- Facial Syndrome - Unique - The Rare Chromosome ...

Support and information
Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
www.vcfsef.org
Max Appeal
Supporting families affected by DiGeorge syndrome, VCFS and 22q11.2
deletion
www.maxappeal.org.uk
22Crew
Funding research and providing social, educational and medical support for
all those affected by 22q Deletion Syndrome
www.22crew.org
In the UK, the NHS has produced a personal health record specifically for those affected by
22q11.2DS. The UK also has several specialist multidisciplinary clinics for people with
22q11.2DS . Your clinical geneticist can advise if there is a clinic in your region
Rare Chromosome Disorder Support Group,
PO Box 2189,
Caterham,
Surrey CR3 5GN,
UK
Tel/Fax: +44(0)1883 330766
info@rarechromo.org
www.rarechromo.org
Unique lists other organisations websites to help families looking for information.
This does not imply that we endorse their content or have responsibility for it.
This leaflet is not a substitute for personal medical advice. Families should consult a
medically qualified clinician in all matters relating to genetic diagnosis, management
and health. The information is believed to be the best available at the time of
publication. It was compiled by Unique and reviewed by Dr. Robert J. Shprintzen,
Velo-Cardio-Facial Syndrome International Center, Upstate Medical University,
USA, Dr Helen V Firth, Addenbrookes Hospital, UK and by Professor Maj Hultén
BSc PhD MD FRCPath, Professor of Reproductive Genetics, University of
Warwick, UK 2011. (SW)
Copyright © Unique 2011
Rare Chromosome Disorder Support Group Charity Number 1110661
Registered in England and Wales Company Number 5460413
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