Peritoneal Dialysis Nurse Resource Guide - American Nephrology ...
Peritoneal Dialysis Nurse Resource Guide - American Nephrology ...
Peritoneal Dialysis Nurse Resource Guide - American Nephrology ...
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Patient Education <strong>Resource</strong>s<br />
Name of <strong>Resource</strong> Brief Description Where to Obtain <strong>Resource</strong><br />
Kidney School Web site<br />
Author: Life Options and Rehabilitation<br />
Activities Committee<br />
<strong>American</strong> Association of Kidney<br />
Patients (AAKP) Patient Plan<br />
Author: AAKP<br />
Life Goes On . . . After Your Kidneys<br />
Stop Working<br />
Author: ESRD Network of Texas, Inc.<br />
(NW #14)<br />
Kidney Directions Web site<br />
Author: Baxter Healthcare Corporation<br />
Kidney Options Web site<br />
Author: Fresenius Medical Care North<br />
America<br />
United Network for Organ Sharing<br />
(UNOS)<br />
Web site<br />
Author: UNOS<br />
Life Options Web site<br />
Medicare Publications Catalog<br />
Content includes easy to read information<br />
about renal replacement therapy<br />
choices for patients. Interactive format<br />
divided into relevant chapters allows<br />
reader to control the pace. The Web<br />
site was designed by the Life Options<br />
and Rehabilitation Activities Committee.<br />
Content includes free, educational<br />
series in 4 phases from pre-ESRD<br />
through access placement and initiation<br />
and onto long-term self management<br />
(lab values, medicines, rehabilitation).<br />
Content includes a comprehensive<br />
patient education book written at a 6 th<br />
grade level, emphasizing healthy choices<br />
and decision-making on the part of<br />
the patient. Stresses the patient’s role<br />
as an active member of the healthcare<br />
team. Includes chapters on modality<br />
choices, how to stay healthy on PD,<br />
diet, medicines, exercising, work and<br />
advance directives.<br />
Content includes information for professionals<br />
and patients interested in renal<br />
care and kidney disease. Offers basic<br />
information about kidney disease.<br />
Content includes educational resources<br />
for professionals and people with kidney<br />
disease.<br />
Content includes excellent transplant<br />
education materials for patients wanting<br />
to know more about the option of kidney<br />
transplantation.<br />
Content includes many excellent<br />
resources and tools for patients to<br />
increase knowledge and self-management<br />
of chronic kidney disease. (Goal<br />
setting worksheet, Tried and true<br />
strategies for living with CKD, Catalog<br />
of free materials).<br />
Content includes free booklets about<br />
Medicare and related topics, covering:<br />
• Medicare Services<br />
• Costs and payment<br />
• Rights and protections<br />
• Where to call for help<br />
Many available in English, Spanish,<br />
large print, audiotape, and Braille.<br />
www.kidneyschool.org<br />
Download from:<br />
www.aakp/patient.htm<br />
Available as a free, downloadable PDF<br />
file on the ESRD Network of Texas, Inc.<br />
Web site: www.esrdnetwork.org<br />
Copy ready master available at cost:<br />
Call ESRD Network of Texas, Inc.<br />
972-503-3215.<br />
www.kidneydirections.com<br />
(Select Language, then Country and<br />
press “GO” arrow)<br />
www.kidneyoptions.com<br />
www.patients.unos.org<br />
www.lifeoptions.org/patient/index.shtml<br />
www.medicare.gov<br />
Select Publications<br />
U.S. Dept. of Health and Human<br />
Services<br />
Centers for Medicare and Medicaid<br />
Services<br />
7500 Security Boulevard<br />
Baltimore, MD 21244-1850<br />
NEPHROLOGY NURSING JOURNAL ■ October 2003 ■ Vol. 30, No. 5 561
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