Syllabus PCC05
Syllabus PCC05
Syllabus PCC05
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Should the donor’s family history be<br />
passed on to the DC family?<br />
Yes<br />
Unsure<br />
No<br />
Clinical ethics and law Southampton: www.soton.ac.uk/cels<br />
Should information only be passed on if it<br />
will affect the medical management of the<br />
DC child?<br />
1. Yes<br />
2. No<br />
3. Unsure<br />
Clinical ethics and law Southampton: www.soton.ac.uk/cels<br />
Case 4: mismatched expectations<br />
• Sperm donor<br />
• CF screen at time donation negative<br />
• Subsequently discovers has ‘rare’<br />
mutation<br />
• ACU tell donor family (children aged<br />
4 and 6) to ‘get children tested’<br />
• Fact of donation has not [yet] been<br />
disclosed to children. Parents<br />
request secret testing<br />
• Guidance on genetic testing of<br />
children suggests defer testing since<br />
results give information about<br />
reproductive risks<br />
Clinical ethics and law Southampton: www.soton.ac.uk/cels<br />
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