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Post-Elimination Surveillance<br />

Post-elimination surveillance –<br />

case studies on leprosy in India<br />

and onchocerciasis in Colombia<br />

Post-elimination surveillance of leprosy:<br />

Efforts to eliminate leprosy are close to being<br />

realised, but complacency among the aid<br />

community and poor quality, unreliable data risks<br />

derailing this progress. For people affected by<br />

leprosy, removing misconceptions and out-dated<br />

understanding and raising public awareness of the<br />

disease is critical to elimination efforts and also to<br />

counter social stigma and discrimination.<br />

Leprosy, once a major global public health<br />

problem, is now considered by the WHO<br />

as eliminated (less than 1 case per 10,000<br />

population) from all but one country. India<br />

achieved the target of leprosy elimination in 2005.<br />

However, India still accounts for more than half of<br />

the world’s disease burden (58%). India’s Leprosy<br />

Eradication Programme has been reporting an<br />

average increase of 5-7% in the Annual New Case<br />

Detection Rate over the last five years 2 , including<br />

a rise in the proportion of child cases. This is<br />

due to lack of an efficient surveillance system<br />

undertaken after elimination was declared to<br />

trace contact and find cases.<br />

This challenge underlines the need to ensure that<br />

national drives to attain elimination status do not<br />

rush or compromise leprosy prevalence surveys<br />

and that data on the disease is collected in a<br />

rigorous and robust way to ensure that hidden<br />

pockets of leprosy in underserved communities<br />

are not overlooked, and crucial leprosy elimination<br />

programmes are not stopped prematurely.<br />

The move to a post-elimination approach in<br />

India has brought about a number of significant<br />

challenges including low levels of political support<br />

and shortage of resources such as insufficient<br />

drugs and trained health workers in addition to<br />

the lack of an efficient surveillance system for<br />

relapse, drug resistance and treatment dropouts.<br />

Moreover, waning political attention to the issue of<br />

leprosy has meant that discriminatory laws, such as<br />

those that consider leprosy as grounds for divorce and<br />

those that prohibit leprosy sufferers from travelling on<br />

the Indian railways, have not yet been abolished.<br />

The evaluation report by the Global Alliance to<br />

Eliminate Leprosy recommended that the WHO<br />

should pass a resolution that makes it clear to the<br />

world that leprosy has not been eliminated 3 . The<br />

persistent advocacy efforts of the anti-leprosy<br />

organisations have resulted in the WHO and<br />

the Health Ministry of India re-evaluating the<br />

usefulness of national elimination targets in large<br />

diverse countries such as India, where some of<br />

poorest states have pockets of high endemicity.<br />

The National Leprosy Eradication Programme<br />

(NLEP) has therefore come up with a Special<br />

Activity Plan to target 209 highly endemic districts<br />

by posting well trained District Leprosy Officers,<br />

ensuring effective supervision and monitoring of<br />

the programme and active engagement with local<br />

NGOs to dispel stigma surrounding the disease.<br />

A model for onchocerciasis elimination:<br />

Colombia recently became the first country in the<br />

world granted elimination status for onchocerciasis<br />

by the World Health Organization. Led by the<br />

Ministry of Health with a number of NGDO<br />

and other partners, Colombia’s elimination<br />

efforts were based on a strategy of twice yearly<br />

community-wide administration of the medicine<br />

ivermectin to all people in the afflicted area.<br />

Credit: Lepra<br />

Participant at a social audit of a leprosy programme in Bihar, India.<br />

2<br />

http://www.nlep.nic.in/pdf/Progress%20report%2031st%20March%202012-13.pdf<br />

3<br />

Indian Journal of Medical Research 137, January 2013, pp 15-35<br />

9

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