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Spring/Summer - Cystinosis Research Network

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Page 20<br />

Development Update<br />

Tyler (9) and Megan<br />

(11-with cystinosis)<br />

Morrill<br />

-Michigan<br />

By Jill Morrill, Vice President,<br />

Development<br />

I hope this newsletter finds you all enjoying<br />

<strong>Spring</strong>, staying healthy, and<br />

thinking about fundraising for CRN.<br />

First, I must thank all of you who have<br />

raised money or contributed to an event<br />

for our organization. We directly depend<br />

on your generous donations and time to<br />

keep our researchers and doctors working<br />

hard and our cystinosis families as<br />

healthy as possible. Huge thanks to all<br />

of you.<br />

We have had seven successful fund<br />

raisers so far this year and if you look<br />

on the calendar, we have more to look<br />

forward to. However, we still need your<br />

help to fulfill our commitments. As the<br />

development coordinator, I am here to<br />

cheer you on and encourage you all to<br />

try raising money.<br />

Not all fundraisers have to be time consuming.<br />

Below are some great ideas:<br />

• Personal donation<br />

• Letter campaign (just ask)<br />

• Garage sales and lemonade<br />

stands<br />

• Girls/guys/couples night out<br />

(book club, card group, poker<br />

night, just a get together)<br />

• <strong>Spring</strong> fling<br />

• Home shows (jewelry, candles,<br />

cookware, home decor)<br />

• Shop at www.cafepress.com/<br />

cystinosis<br />

• Company matching gift programs<br />

• United Way, GoodSearch,<br />

Ebay<br />

• Block party or backyard<br />

barbecue<br />

• Refer to our fundraising calendar<br />

for more ideas such as Biking,<br />

Golfing, Carnivals, Hoedowns,<br />

Birthday Parties, etc...<br />

I also found that if you just Google an<br />

idea on the computer, loads of organized<br />

step by step "how to run your<br />

fund raiser" are right at your fingertips.<br />

Google "a-thon fundraisers" and<br />

a whole new world opens up. It is actually<br />

fun and inspirational to see how<br />

much can be achieved if we all pitch<br />

in and go for it. Any amount of money<br />

raised is wonderful. It all adds up.<br />

Remember, you can always contact<br />

me at jill.m.morrill@gmail.com I am<br />

here for all of you in any way possible.<br />

Make an Online Donation<br />

Through PayPal!<br />

Did you know that you can make a<br />

secure online credit card donation to<br />

the <strong>Cystinosis</strong> <strong>Research</strong> <strong>Network</strong><br />

through PayPal<br />

• You can dedicate a donation to<br />

someone specific. PayPal passes<br />

along your dedication to CRN.<br />

• You will receive a record of your<br />

contribution for tax purposes.<br />

• Go to www.cystinosis.org and<br />

click on the “Donate” link to<br />

begin!<br />

The <strong>Cystinosis</strong> Advocate

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