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<strong>SPINAL</strong> <strong>NETWORK</strong> <strong>NEWS</strong><br />
April 2009 Volume 12 No 1 ISSN 1175-4753<br />
Motorsport Talent Page 18<br />
JAI IN MEXICO<br />
Page 3<br />
STEM CELLS IN CHINA -<br />
TOMORROWS TREATMENT<br />
TODAY<br />
Page 5<br />
WEDDING BELLS,<br />
HELL, AND A GOOD<br />
TIME<br />
Page 8<br />
2008 AUSTRALIAN<br />
AND NZ <strong>SPINAL</strong> CORD<br />
SOCIETY ANNUAL<br />
SCIENTIFIC MEETING.<br />
Page 12
CONTENTS<br />
EDITORIAL TEAM<br />
2 Contents<br />
3 Jai in Mexico<br />
5 Stem Cells in China<br />
7 Have wheels, will travel<br />
8 Wedding bells<br />
10 NZST Charity Ball<br />
11 Council memos<br />
paul stafford<br />
claire mackie<br />
Hi everyone I must apologise for the late arrival of the<br />
first edition of SNN for 2009. It has been a busy start to the<br />
year for the NZ Spinal Trust with four new staff joining<br />
our team, three in Christchurch and a northern manager<br />
in Auckland. We have started a four page newsletter<br />
about the NZST’s activities which will be quarterly. NZST<br />
received tremendous support from Rebecca Hobbs and<br />
Aaron Gilmore of Dancing with the Stars, as her chosen<br />
charity. Those of you who didn’t make it to the NZST<br />
2009 Charity Ball, you missed a fantastic evening of fun<br />
and dancing. A big thank you to all our supporters for<br />
making the event a great success.<br />
Hi, my name is Claire Mackie and I am part of this<br />
fantastic team of fellow writers and researchers for<br />
the Spinal Network News. I moved to Christchurch<br />
from Wellington a couple of years ago due to a ‘too<br />
good to miss’ work opportunity. I am employed full<br />
time by the Canterbury District Health Board as a<br />
graphic designer, and I also work for the NZ Spinal<br />
Trust. I live with my husband Jon and babies Meesa,<br />
Lena and Georgie (dog and cats) and am passionate<br />
about people, painting, volunteer work as a Youthline<br />
counsellor, reading and writing.<br />
12 ANZCoS Conference<br />
15 Let Fly<br />
16 Up and Away on a DC3<br />
Hamish ramsden<br />
I was delighted when Paul asked me to be on the editorial<br />
committee for the Spinal Network News as I see it as a<br />
great information source plus a very important forum<br />
for people to discuss their issues. As a C5/C6 tetraplegic<br />
since 1994 I have been involved with many things but<br />
currently I am the facilitator of the patient education<br />
groups at the Burwood spinal unit, on a couple of<br />
committees, doing some volunteer admin work, a parttime<br />
writing course at Canterbury University and trying<br />
to keep up with my teenage daughter who looks at me<br />
blandly and says “Dad, you just don’t understand!”.<br />
17 Orthobionomy<br />
18 Motorsport talent<br />
CONTRIBUTING<br />
WRITERS<br />
John Bourke<br />
Hamish Ramsden<br />
Claire Mackie<br />
Robert Stubbs<br />
Karen Rickerby<br />
Karen Marshall<br />
Sinead Roe<br />
Marty Van der kley<br />
graham tapper<br />
john bourke<br />
Founding member of the NZ Spinal Trust with 43<br />
wheelchair years experience as an advocate for those<br />
with disabilities. Currently I am the Christchurch<br />
Total Mobility Chairperson, a member of the CCS<br />
Disability Advisory Group and a board member<br />
of the Hanmer Springs Forest Camp Trust. My<br />
interests include walkways, parks and reserves,<br />
accommodation issues and access to the Christchurch<br />
Tram, our buses and beaches. I would also like to see<br />
equality between MOH and ACC clients.<br />
I was really stoked when Paul asked me to join the<br />
team at the Spinal Network News - being the new kid<br />
its great to have this opportunity to contribute and be<br />
involved with the great bunch of people on the editorial<br />
team. I’m currently living in Nelson and studying<br />
extramurally through Massey University. I’m a C4/C5<br />
tetraplegic following a surfing accident in Indonesia in<br />
June 2005. Before my accident I spent my time mostly<br />
in Wellington planning various adventures, something<br />
I intend to keep doing - and writing stories about! In<br />
the future I am hoping to be involved with proactive<br />
research that deals with both the physical and emotional<br />
challenges that people with SCI have to face.<br />
2<br />
<strong>SPINAL</strong> <strong>NETWORK</strong> <strong>NEWS</strong> is published by the NZ Spinal Trust<br />
Send your contributions to: The Editor <strong>SPINAL</strong> <strong>NETWORK</strong> <strong>NEWS</strong><br />
c/- New Zealand Spinal Trust, Private Bag 4708, Christchurch 8140<br />
Tel: (03) 383 7540 , Fax: (03) 383 7500<br />
Email: paulstafford@burwood.org.nz or info@nzspinaltrust.org.nz<br />
Web: www.nzspinaltrust.org.nz<br />
DISCLAIMER: The views expressed in <strong>SPINAL</strong> <strong>NETWORK</strong> <strong>NEWS</strong> are<br />
those of its contributors. They do not necessarily represent the opinion<br />
of the members of the Editorial Committee or the policies of the New<br />
Zealand Spinal Trust.<br />
DESIGN & LAYOUT: Claire Freeman<br />
PRINTER: Purse Willis & Aiken Ltd.
JAI IN MEXICO<br />
I<br />
n Hawaii in September 2008, Jai Donnelly began an<br />
adventure that saw him travel through Canada, and<br />
then down America’s West Coast – visiting Oregon,<br />
Seattle, San Francisco, San Diego, and Las Vegas, –<br />
before travelling through Mexico. I was fortunate to catch<br />
up with Jai in February this year while he was at home in<br />
Sydney. He had returned home to visit family, and to be<br />
the Best Man at a friend’s wedding. This was the fourth<br />
time Jai had been asked to be a Best Man – people have<br />
respect and admiration for the lad, he is reliable and has a<br />
wonderful balance of empathy, humour, and appreciation<br />
for life.<br />
I was interested to find out how Jai’s disability had<br />
influenced his travels. After a snowboarding accident<br />
in Queenstown 2005 which fractured his L1, Jai is now<br />
paralysed in the back of his<br />
legs, his right leg and foot<br />
being the worst affected.<br />
Following the accident, Jai<br />
spent roughly the first four<br />
weeks using a wheelchair,<br />
with a further six weeks using<br />
crutches. Through determined<br />
rehabilitation, Jai can now walk<br />
independently with the aid of<br />
a foot splint on his right leg.<br />
Jai manages his bladder using<br />
self-administering catheters<br />
and requires stimulation for<br />
his bowel routine. Returning<br />
to Australia following his<br />
rehab at Burwood, Jai set<br />
about testing out life with the<br />
new challenges he now had<br />
to face. He travelled back to<br />
New Zealand twice, and even<br />
spent two months exploring<br />
through Argentina.<br />
After three years, Jai was<br />
ready to embark on this<br />
remarkable journey. It was the<br />
product of hard work on Jai’s<br />
behalf – planning, more rehabilitation, and saving (unable<br />
to return to work as a carpenter, Jai worked in building<br />
evaluation). Jai also employed a ‘Kendo’ attitude. This is<br />
Australian for ‘I can do’ it. Behind Jai’s humour is a simple<br />
and determined philosophy.<br />
“I think its an important aspect to my travels...coz I<br />
know, myself, and a lot of paraplegics can have that ‘lazy’<br />
attitude and never want to go out and do anything…...I<br />
made the decisive choice to go out there, not be lazy,<br />
challenge myself (with a kendo approach) and had some<br />
great experiences.”<br />
Jai’s main concerns before leaving on his trip were to do<br />
with aspects of bladder and bowel care. With travelling<br />
through various countries Jai was conscious of picking up<br />
bladder infections due to using so many different toilets.<br />
Another of Jai’s concerns was the possibility of being a<br />
target due to disability. As he is unable to run and has a<br />
visible limp, Jai is aware that in some situations, people<br />
may be inclined to attack or rob him, but during his trip he<br />
found this not to be the case.<br />
‘I was worried people may see me as an easy target, but<br />
people were generally the opposite, they were really<br />
willing to help out…it gives you a lot of confidence in the<br />
humanity of the world!<br />
Travelling with his friend Phil, the pair spent two weeks<br />
on the North Shore of Hawaii which Jai described as a<br />
very relaxed and colourful place, where you can find<br />
drum kits on the side of the road and use it to start a party.<br />
From the tropical wonders of the north Pacific, Jai was<br />
slightly reluctant to fly to Vancouver where he exchanged<br />
lazy days on the beach for scarves and jumpers. This is<br />
when the duo found a very interesting and unique (not to<br />
mention frugal) way to travel. It involved a contemporary<br />
mix of ingenuity, technology, and support. Simply put, Jai<br />
and Phil created an account on<br />
two different websites. The first<br />
was a couch surfing website<br />
that advertised people who<br />
listed their couches as available<br />
to travellers. Jai and Phil could<br />
email people in towns they were<br />
travelling to take up offers of<br />
free couches.<br />
‘Some people may offer a couch,<br />
or just a coffee and advice about<br />
the area. We made some great<br />
friends. We’ve slept on couches,<br />
floors, beds – we had some<br />
really good beds!’<br />
The second was a website<br />
that Jai described as ‘new-age<br />
hitchhiking’. Once again the<br />
pair created an account and<br />
would list their travel plans, the<br />
dates, origins and destinations.<br />
‘We’d post a note like; two 25 year<br />
old Australian males looking for<br />
a ride from A to B can pay for<br />
gas. Then we would get a few<br />
phone calls from American girls<br />
who would give us a ride – it<br />
was great!’<br />
As well as being a great way to meet the locals and save<br />
money, the travel techniques did not present too much<br />
trouble for Jai’s disability needs. Having Phil travelling<br />
with him helped a lot, in the sense of having somebody<br />
there who understood Jai’s condition. For example Phil<br />
could help with things like looking after luggage and<br />
holding the fort if Jai needed to use a toilet while they were<br />
on the road or had just arrived at a new house. Jai and Phil<br />
spent around five weeks travelling down America’s west<br />
coast catching rides with locals, staying on couches, and<br />
on one instance having the privilege of house sitting. A<br />
personal highlight of Jai’s was visiting the Grand Canyon<br />
and walking a 20km return trek.<br />
‘It was really really steep, mules were going up and down<br />
and they were struggling! It was seven km down to the<br />
camp site where we stayed the night, then three kms to<br />
a lookout. Coming back up the next morning was the<br />
worst, around half way up my legs were tired and killing<br />
3
NZST<br />
JAI IN MEXICO Continued<br />
me……I had to stop and rest, drink heaps of water and<br />
have some food. Getting to the top, I looked back down<br />
to what I’d just come up … I was just so satisfied coming<br />
from doctors initially telling me that I’d never walk again,<br />
to getting to the top of a mountain…it was like ‘Yeah, I<br />
conquered that’.<br />
Jai rates his time traveling through America. I was curious<br />
to know how he found the American people and if his<br />
disability was a topic of conversation.<br />
‘People generally wanted to talk about the election! When<br />
I met people briefly I wouldn’t talk about my disability – it<br />
felt pretty good. When I did talk about it I kept to the basics,<br />
how I had the injury and whereabouts I was paralysed,<br />
stuff like that….People were great, really friendly and<br />
keen to help…if people did take an interest in my injury<br />
then I’d open up to them..’<br />
While in America Jai began taking pro-biotics in an<br />
attempt to ward off any potential bladder inflections. At<br />
one point he felt the symptoms of an infection and learnt<br />
how expensive the American health system can be. Even<br />
with the help of a local nurse (Jai was house sitting her<br />
mother’s house) an appointment with a Doctor was going<br />
to be around US$200. Jai decided to carry on without<br />
antibiotics and luckily was ok. In late November, Jai and<br />
Phil entered Mexico. Jai was feeling good and his health<br />
was behaving. Their new environment was different –<br />
colour, music, people, and cheap antibiotics!<br />
‘When you cross the boarder, you straight away see all these<br />
restaurants followed by heaps of chemists – they all have<br />
big signs up with ‘Tramadol!’, ‘Valium’, or ‘Antibiotics!’ it<br />
was crazy!’<br />
With the smell of new adventures ahead, the lads spent<br />
two weeks traveling down the Baja peninsula, Jai and<br />
Phil used buses which would travel at night. Take note –<br />
cramped bus toilets and corners are not ideal conditions<br />
for using a catheter.<br />
Jai spent the following two months exploring Mexico,<br />
travelling with Phil but often by himself. Mainly travelling<br />
by bus, Jai stayed in hostels and even had a tent which he<br />
would use at some of the world’s most unbelievable beaches.<br />
One such beach was Zipolite, a place known for its relaxed<br />
lifestyle and undercover policemen. Another highlight<br />
was Michoacan, an inland state of Mexico and home of the<br />
ancient Tarascan people. These two locations illustrate the<br />
depth to Mexico’s beauty – from tropical beaches to thick<br />
highlands and stunning fresh water lakes.<br />
Jai explained that he fared well considering his spinal cord<br />
injury. He suffered pain in his hips and feet if he walked<br />
a long distance, and to avoid painkillers he would often<br />
rest for a day, writing or reading to give his legs a break.<br />
He also purchased a course of antibiotics that relieved a<br />
bladder infection. Despite having been on the road for<br />
over three months, Jai’s supplies were holding up well.<br />
Throughout America and Mexico, Jai found the chemists<br />
to have good supplies of gloves and lube if he was running<br />
short. And having around 50 catheters that he was using at<br />
one per week, Jai had well over half left.<br />
Jai is heading back to Mexico at the end of February ‘09 for<br />
more adventure; I asked how his accident in 2005 affects<br />
his outlook on life<br />
‘I look back and think wow, I should be in a wheelchair<br />
I shouldn’t be walking – I’m seeing the most incredible<br />
things and getting into the most amazing places…I have a<br />
really big appreciation cos I have friends (in wheelchairs)<br />
who couldn’t do half the things I’ve done…’<br />
And his future?<br />
‘Once you know you can do it, I now just want to go off the<br />
beaten track to push my limits’<br />
JOHN bourke<br />
4
STEM CELLS IN CHINA ~<br />
TOMORROW’S TREATMENT TODAY<br />
Four months after my spinal cord injury and finally<br />
arriving back home I still couldn’t accept or come to grips<br />
with everyone’s conclusion that this was life and I would<br />
be confined to a wheelchair for the rest of my life! Half way<br />
through my life at 35 and all of sudden I couldn’t walk, run,<br />
move around easily, control my bladder or bowels and do a<br />
lot of things we all take for granted.<br />
Somehow you have to accept what the doctors say that at<br />
the moment there is still no cure for spinal cord injuries.<br />
While in the hospital one of the physio’s often talked<br />
about the research on stem cells and their possibilities and<br />
how research had slowed down because the American<br />
government had stopped funding embryonic stem cell<br />
research. So when back at home recovering I decided to start<br />
doing some research on it over the internet.<br />
The first one I contacted was the Xcell centre in Germany. They<br />
offered stem cell injections using your own stem cells, but just<br />
the one treatment within a week and not much else.<br />
More research and the options included a doctor in India<br />
using embryonic cells, or China using stem cells from<br />
babies’ umbilical chords. China looked more attractive as<br />
their stem cells were adult cells from umbilical cords where<br />
they are at their youngest, the amount of injections are only<br />
limited to your budget. Along with the stem cell treatment<br />
the package included intensive physio, acupuncture, and<br />
electric wave therapy. Beike Biotech was the contact for<br />
China. Embryonic cells are still a little unknown in the fact<br />
that they may be uncontrollable given their younger state.<br />
So after a lot of thought and discussion with family and<br />
close friends Tanya and I decided China stem cells was<br />
the best option. On August 30th we flew to China for a<br />
six week treatment of stem cells. Three IV injections and<br />
six lumbar injections. Of course with all this research I<br />
couldn’t find any results of anyone getting up and walking<br />
but there were people who had had some improvements.<br />
My hope was to get some improvement in feeling or<br />
movement to give me something to work on every day<br />
instead of accepting my current state for the rest of my life.<br />
Or bladder and bowel control back, something that would<br />
vastly improve my quality of life.<br />
A very good friend of mine Darren Abrahams gave up<br />
his time to come along for the first two weeks to help with<br />
getting organised and settled.<br />
After a 12 hr flight to Shanghai and another hour and a half<br />
to Qingdao we were picked up at the airport by the staff<br />
of Biotech and delivered to the hospital in the Chengyang<br />
province. The people at the hospital were great and you were<br />
soon settled in. Patients were there from all over the world for<br />
different conditions but all with the same hope of some result<br />
which was not freely available in their own countries. Kids<br />
through to adults from cerebral palsy to spinal cord injuries.<br />
First the doctors poured over my medical notes and scans.<br />
Then they sent us off for an MRI scan. They also checked<br />
the flow up and down my spinal canal. In my case they<br />
were happy that the spinal canal was clear with little<br />
obstruction but were certain the spinal cord was broken<br />
(an answer I was unable to hear or maybe I had deaf ears<br />
to it). Due to this they did not see any point in doing open<br />
surgery as there was no obstruction to clear and of course<br />
at this stage there is no way of joining the spinal cord.<br />
With all that information they then decided to do three IV<br />
injections and six lumbar injections.<br />
Within two days I was getting my first IV injection. The<br />
stem cells are delivered once or twice a week depending<br />
on their program directly from their lab in Beijing and<br />
administered the same day. IV injections are the same as<br />
any IV injection and are no problem.<br />
The lumbar injections are however a bit more involved.<br />
No food or liquids three hours before the injection. You<br />
are then wheeled off in the bed to the operation room and<br />
then given an injection of valium to sedate you while they<br />
perform the lumbar injection. It is all over within thirty<br />
minutes and your back in your room. Then you have to lie<br />
flat on you are back for the next six hours without moving<br />
your head!<br />
I had no side effects from the injection, although maybe a<br />
little headache from the change in pressure in your spinal<br />
canal but nothing of great worry. The only other risk<br />
associated with the procedure that I know of, is infection<br />
in the spinal canal. Something I did get a little of but was<br />
soon cleared up with some antibiotics. Along with the<br />
injections once or twice a week the physio program is set<br />
up for you six days of the week. In my case it consisted<br />
of Acupuncture (good old Chinese medicine) first in the<br />
morning, the idea of that being to stimulate nerve endings<br />
below my break. Then electric wave therapy on my legs<br />
to stimulate muscles and to help keep some muscle tone.<br />
And then intensive physio working on muscles around<br />
your injury trying to help your mobility and functions,<br />
stretching of my legs along with some standing in a<br />
standing frame.<br />
Most of my afternoons were free (if I didn’t have injections)<br />
to go out and wander the streets and see the sights<br />
something we did regularly and thoroughly enjoyed.<br />
China and its people are just so interesting. I could go on<br />
about the sight we saw, China is a really must see place the<br />
people are lovely and it is all so interesting and foreign.<br />
After about the third injection I gained a little more feeling<br />
down my chest about two inches. But nothing more after<br />
that and this initial effect has since worn off as well. My<br />
doctor looking after me was very good and spoke good<br />
English so he was good to ask plenty of questions and did<br />
not hold back on anything I wanted to know.<br />
So of course the big question was what could I expect<br />
given the information they now had. Well given that<br />
my cord was broken he said not to expect motor neuron<br />
function back. But there maybe was the chance of some<br />
better feeling, easing of continual nerve pain, unlikely<br />
regained bladder or bowel function. Anything had to<br />
be a bonus though. I asked if I had a million dollars and<br />
continued with the stem cell injections would that work?<br />
His answer to that was the knowledge I needed to keep<br />
hoping. What he said was needed was for America to<br />
get back on course to continue with their research given<br />
they had the biggest access to money and resources. In<br />
his opinion doctors and scientists know that stem cells are<br />
the answer to regenerating and growing damaged tissue.<br />
What they need to do is understand a bit more about how<br />
they work and identify, and to be able to get them to grow<br />
in a uniform matter in a specified place. In the case of a<br />
spinal cord injury to be able to open you up to the point<br />
of injury, scrape back the dead scar tissue which forms at<br />
5
NZST<br />
STEM CELLS IN CHINA Continued<br />
the end of the break (one of the main reasons spinal cords<br />
don’t heal due to the scar tissue being allowed to form) then<br />
bridge the gap with a membrane and then fill that void with<br />
stem cells. Of course it is still unknown a little whether they<br />
will bridge the gap and then still perform the functions of<br />
the nervous system, but there is every belief they will and<br />
studies are slowly confirming that they will. Interestingly<br />
enough when I arrived back in New Zealand a week later<br />
I went and listened to Noela Vallis – Chairwoman from<br />
the Spinal Cord Society which has been wanting to fund<br />
research into stem cells. She has a team of doctors and<br />
scientists in Dunedin ready to start trials – pending ethics<br />
committee approval.<br />
Six weeks in China was a long way to be from home and<br />
family, we left behind two kids but it was well worth the<br />
trip and experience. I did not quite get the results I wished<br />
for of course but I was not expecting to get up and walk. I<br />
had to try something as there is nothing else to try at home<br />
in the hope of a cure just the option of accepting it and<br />
learning to live with it. Something nobody could imagine<br />
to understand who is not in this situation whereby your life<br />
has been turned upside down and ended up far from the<br />
way you planned it. I did however leave there with a sense<br />
of satisfaction and the physio work was very beneficial.<br />
They, unlike a lot of other countries, are willing to try<br />
something that I think is moving in the right direction with<br />
what seems minimal risk.<br />
Some kids there did gain back some of their eyesight.<br />
One young guy who had an incomplete break damaged<br />
through an operation did start to gain some feeling and<br />
movement back. I believe stem cells are the answer, along<br />
with some more work of course, but my question now is<br />
if there are no side effects or rejection given they are our<br />
own cells in some cases or stem cells from umbilical cords<br />
which is generally waste material and the cells are in an<br />
undifferentiated state not giving risk to rejection, why<br />
isn’t every spinal cord injury treated with stem cells at the<br />
time of the accident and given every chance of a recovery<br />
or some recovery. I think that the less time anyone is left<br />
bound to a wheel chair the better and I think that no one<br />
deserves to be confined to one when there is every chance<br />
they may not have to be.<br />
I also think that there is everything to be gained by using<br />
stem cells now on humans with very little risk, so why are<br />
we waiting and denying those of half a chance?!<br />
ROBERT stubbs<br />
If any of our members has a similar experience that they would like to<br />
share or have questions about any of the stories published, please don’t<br />
hesitate to email<br />
paulstafford@burwood.org.nz<br />
PS with further investigation we found out that the full cost of the<br />
trip came to approximately $60,000 NZ dollars.<br />
Ed<br />
6
HAVE WHEELS, WILL TRAVEL…<br />
Robert Borwick of Nelson, a C5/6 tetraplegic, has recently<br />
received a brand new Kia Carnival that he can drive himself.<br />
I asked him how he has found it so far.<br />
- How long have you had the car?<br />
About a month or so<br />
- How does it feel to be driving by yourself?<br />
Fantastic!<br />
It’s so great to have a massive form of independence<br />
again, driving was so important to me as I guess it is for<br />
anyone but it certainly has raised the smile on my face.<br />
And thank you so much to Vehicle Adaption Services<br />
- How was learning to drive with your arms?<br />
I was a little nervous when I first did my driving<br />
assessment - I thought about all of the what ifs, like<br />
could I break in time, could I steer around corners; or<br />
would I be wobbly while driving...<br />
But as with everything after you do it for the first time<br />
it gets better and better the more you do it. And now I<br />
have a lot more confidence in my driving.<br />
- Where have been driving so far?<br />
I really enjoy drives out in the country I have driven<br />
to Kaikoura, Blenheim, Motueka, Takaka, hopefully<br />
Christchurch soon…..<br />
john bourke<br />
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7
WEDDING BELLS, HELL, AND A GOOD TIME<br />
G<br />
etting married never made my ‘must do’ list as a<br />
young girl. I wanted a career, and coming from a<br />
female dominated family, men were somewhat<br />
superfluous to lifelong goals and aspirations.<br />
After I broke my neck at age 17, I thought I’d never get<br />
married, which didn’t bother me too much at the time.<br />
I was more upset at no longer being able to do obscene<br />
hand gestures at other motorists whilst driving (only in<br />
emergencies mind!).<br />
A year past, and once I learnt the art of applying eyeliner<br />
with both hands, boys were soon lining up to court me<br />
(initially to my surprise and suspicion … did they have a<br />
wheelchair fetish I wondered?).<br />
Prior to meeting my husband, I was engaged for four years<br />
- we never got around to the actual wedding part. I’m<br />
good at organising a dinner party but organising a wedding<br />
was simply too scary and there was too much hard work<br />
involved – I am a<br />
lazy social organiser<br />
and obviously don’t<br />
have the standard<br />
‘wedding’ gene<br />
that the majority of<br />
woman possess.<br />
Then Jon came<br />
along.<br />
Perhaps it was<br />
the fact that I had<br />
hit 30, perhaps it<br />
was because I was<br />
besotted and headover-heals<br />
in love<br />
with my fantastic<br />
catch, but suddenly<br />
a wedding didn’t<br />
seem like such a<br />
scary beast, and<br />
when Jon casually<br />
suggested we<br />
tie the knot over<br />
Christmas while<br />
my good friend<br />
from Calgary was<br />
in New Zealand, I agreed to do it. With a couple of months<br />
up our sleeves, we relaxed and figured there would be<br />
plenty of time to sort things out.<br />
I knew a white dress was out of the question due to my<br />
slap-happy masticating skills, so I decided on a dark green<br />
Indian dress. The dress was hunted down by a warm and<br />
gracious doctor, who informed me getting a green dress<br />
from India wasn’t the easiest of tasks due to green being<br />
a traditional Pakistan wedding colour (apparently there<br />
have been a few issues between India and Pakistan).<br />
A month before the wedding, I had my $300 authentic<br />
Indian dress with jewellery and as far as I was concerned,<br />
the rest would sort itself out. I was determined the wedding<br />
wouldn’t leave us entrenched in an ocean of debt, so we<br />
did everything on a tight budget. I even asked the guests<br />
to ‘bring a plate’ on the invitations.<br />
I also wanted to keep the guest list to a bare minimum.<br />
Although my family are close, we aren’t big breeders and<br />
weddings are not seen as important events. Jon being a Pom,<br />
meant many of his family were overseas and were also unable<br />
to make it. I breathed a sigh of relief. Probably my greatest fear<br />
of getting married was walking down the isle and having one<br />
hundred eyes transfixed on my constipated giraffe-looking<br />
walk. Luckily we had a guest list of approximately 50 people<br />
- this I could cope with… just.<br />
We had also decided to have the ceremony up north in<br />
Whangarei at Jon’s mum’s place. An avid gardener, Ruth<br />
(Jon’s mum) began planting lots of flowers in her two acre<br />
garden. She had also organised some work mates to help<br />
out with extra food, and had put us onto a celebrant who<br />
worked with her and could give us a good deal on ‘mates<br />
rates’. All that was needed was the marquee in case of rain<br />
and I figured everything was ready to go.<br />
We arrived up north with our precious child-dog, Meesa,<br />
and began finalising little details like what Jon was going<br />
to wear, and how I<br />
was going to get a<br />
spray tan without<br />
taking my clothes<br />
off. I conceded to<br />
wearing a paper<br />
g-string and was<br />
basted like a<br />
turkey – not the<br />
most dignified<br />
of experiences<br />
but the effect was<br />
worth it.<br />
What initially was<br />
assumed would be<br />
a leisurely week<br />
of sunbathing<br />
and sorting out<br />
wedding tit-bits,<br />
soon grew into an<br />
untamed beast.<br />
We had irate<br />
relatives barking<br />
out orders on<br />
where they would<br />
stay during the<br />
wedding… hadn’t we organised this for them?…oops. Then<br />
there was what the groom would wear, and with only one<br />
day to shop before everything closed for Christmas, frantic<br />
choices were made and a costume was thrown together<br />
haphazardly. Shoes became a nightmare and although I was<br />
keen on traipsing down the aisle in my socks, others were<br />
not so keen with the idea. Suddenly everyone was in panic<br />
stations. Tears were shed, arguments were exchanged, and<br />
sleep became a distant memory.<br />
But we made it to the day of the wedding all in one piece<br />
– minus a few brain cells.<br />
I had decided not to use the wheelchair at the wedding. The<br />
ceremony was outside on grass which made it impractical,<br />
and I wanted to make use of the wedding dress which bared<br />
my freshly tanned midriff.<br />
We had an evening ceremony which meant after the formal<br />
vows, everyone was able to trot off to the marquee which stood<br />
10 metres away, and gorge themselves on the feast prepared.<br />
8
WEDDING BELLS, HELL, AND A GOOD TIME Continued<br />
In terms of the ceremony itself, everything went smoothly,<br />
apart from my skirt which tripped me up down the aisle.<br />
As horrendous as that sounds, having Orbitals ‘Halcyon’<br />
saturating my ears meant I was more interested in grooving<br />
to the sweet beat, rather than focus on my tangled legs<br />
as I made my way down the aisle. As I sat down on our<br />
little ‘love seat’, we said our vows and had the traditional<br />
wedding kiss, although unfortunately my darling Jon had<br />
not brushed his teeth due to severe time constraints, so my<br />
thoughts lay in the bacteria count littered in his mouth and<br />
not ‘in the moment of the kiss’.<br />
At 2am, a very weary, drunk and newly married Claire hit<br />
the bed and promptly fell asleep. In terms of the whole<br />
wedding, we had underestimated how much work is<br />
involved in planning a wedding, and both of us were close<br />
to nervous break-downs up until the event. On the up side,<br />
it was a great test of the relationship and demonstrated<br />
how amazing and supportive Jon is when I come close to<br />
losing my marbles. I am determined never to go through<br />
it again though and for everyone who re-does their vows,<br />
I hope your families aren’t as monstrous as a few of mine<br />
were! For those contemplating a wedding, good luck or<br />
the best advice I can give is to elope.<br />
End note. I must admit, this die-hard feminist will conclude by<br />
saying that marriage does bring a sense of comfort, much like<br />
a warm fart nestled in your pants. We now share a close bond<br />
and our love for each other has grown and spread, ironing out<br />
the jagged little pieces that once snagged the relationship.<br />
However, let it be said, as much as I love and respect my<br />
husband Jon, he will never, ever see me going to the toilet.<br />
claire mackie<br />
Expenses<br />
Wedding clothes<br />
Dress $300<br />
Grooms outfit $100<br />
Food $300<br />
Alcohol $1000<br />
Hirage of tent, port-a-loo and chairs $800<br />
Invites $120<br />
Rings $2000<br />
Celebrant $200<br />
Airfares and dog travel $1000<br />
Total: $5820<br />
(How to have a wonderful day on a limited budget!)<br />
9
10<br />
NZST CHARITY BALL<br />
The 2009 NZST Charity Ball went off with a swirl and a<br />
roar. We were lucky enough to have Rebecca Hobbs and<br />
Aaron Gilmore as our guest celebrities for the night, and<br />
I’m sure the whole room was in awe of their incredible<br />
ballroom dancing skills. They even allowed us to auction<br />
off a dance with each of them. This was won by two lucky<br />
people who were spun around the great art gallery foyer<br />
with style and grace.<br />
Initially hoping for around 300 attendees, tickets peaked<br />
at 170 which plumped out the foyer nicely. Alchemy did a<br />
great job of providing people with delicious hors d’oeurves<br />
and drinks at the ready, and for the NZST staff who had<br />
put in so much time organising the event, it was agreed<br />
it was worth the effort, both in terms of money raised<br />
approximately $12,000 and the fun had by all.<br />
The art gallery proved to be a fantastic venue yet again, with<br />
it’s sweeping glass walls, and industrial chic style. Barock<br />
also provided not only brilliantly orchestrated music, but<br />
there was something for everyone, with splatters of jazz,<br />
folk, soft rock and some great classics. There weren’t many<br />
who didn’t dance the night away with a mish-mash of feet<br />
and wheelchairs hitting the dance floor.<br />
At least for one night, people were able to get glammed<br />
up and forget about the recession, which for charities in<br />
particular is starting to sting the purse strings. There will<br />
definitely be something to look forward to next year as<br />
the NZST Ball becomes a permanent fixture in the social<br />
calendar.<br />
CLAIRE mackie
CHRISTCHURCH CITY COUNCIL<br />
T h e<br />
Christchurch<br />
A c c e s s i b l e<br />
Map will be<br />
available in<br />
May from the<br />
Christchurch<br />
City Council.<br />
This map gives<br />
i n f o r m a t i o n<br />
about the<br />
a c c e s s i b l e<br />
Gloria Weeks, Karen Rickerby, Hemi Hema,<br />
t o i l e t s ,<br />
Doreen McCoard, Simon Atkinson, Anne<br />
mobility parks,<br />
Scott, Josje Lelijveld Front Row- Kerri<br />
b u i l d i n g s ,<br />
Bonner, Graham Tapper, Rachel Mullins<br />
attractions and<br />
accommodation. It will be available free from a number<br />
of Council outlets such as Service Centres and Libraries,<br />
Disability organisations and tourist information places.<br />
The Council has recently been consulting on a number<br />
of documents. The consultation currently is on the Long<br />
Term Council Community Plan, which guides Council<br />
projects and spending for next 10 years. The Council is<br />
keen to engage as many people as possible in the planning<br />
process, so your feedback is valuable.<br />
Another new service to be introduced in Christchurch<br />
recently is the three wheelie bin system. This is gradually<br />
starting up throughout the city. Some assistance is available<br />
for people who have mobility impairments that mean they<br />
can not get their bin to the kerb and have no assistance<br />
from elsewhere to take their bin out. To find out if you are<br />
eligible contact the Council Call Centre on 941-8666.<br />
The Council’s Disability Advisory Group continue to work<br />
on improving access in the city. They have been involved<br />
in projects such as the upgrade of the Council’s website,<br />
the Travel Demand Strategy, the new Wheelie Bin system,<br />
the Equity and Access Policy implementation project and<br />
the new Bus Interchange. They continue to work hard<br />
to represent what is required to remove barriers. Please<br />
contact Graham Tapper at Burwood if you have any<br />
comments you want to put through to this group. The<br />
group was also extremely proud of Kerri Bonner (who is<br />
our Youth Representative) who won the Attitude Award<br />
for Youth in December 2008. Congratulations to Kerri<br />
and it is wonderful to have her skills and leadership<br />
acknowledged.<br />
Finally, I’d like to congratulate the NZ Spinal Trust on the<br />
fantastic event it held on Saturday night with their Annual<br />
Ball. This was a wonderful occasion and the Art Gallery<br />
was an impressive venue. If you didn’t make it there this<br />
year then make sure you try and attend next time as it was<br />
an enjoyable evening.<br />
karen rickerby<br />
ABSOLUTELY POSITIVELY WELLINGTON<br />
Competition to make Council<br />
homes more user-friendly<br />
Wellington City architects have the opportunity to enter<br />
a design competition to make the Council’s housing units<br />
easier to live in.<br />
The competition, launched at today’s Accessible Wellington<br />
Forum on Housing and Accommodation at Te Papa, will<br />
run until 3 July.<br />
Entrants are required to design an upgrade to a typical<br />
Council housing complex consisting of four bed-sit units,<br />
with a focus on making them more practical for everyone,<br />
regardless of mobility or age, to live in. Several small<br />
complexes with similar plans are currently being upgraded<br />
as part of the Council’s Housing Upgrade Project.<br />
The Council’s Accessibility Advisor, Sinead Roe, says the<br />
competition will require entrants to think about design<br />
that is practical and looks good.<br />
“The challenge for entrants is to come up with a userfriendly<br />
design that is creative and affordable. There is<br />
a need for fresh, imaginative building design as many<br />
people need to modify their homes to suit their changing<br />
needs. This could be due to a loss of mobility or illness<br />
but shows there is a need for flexible living spaces which<br />
allow people to live comfortably.<br />
“Adapting existing buildings does pose significant issues<br />
and the Council encourages entries based on practical<br />
designs to kitchen, bathroom and storage layouts to meet<br />
tenants’ needs over time.”<br />
All entries must be completed by a registered architect<br />
or under the direction of a<br />
registered architect, and should<br />
be prepared to the preliminary<br />
design stage, including the cost<br />
of the design. Entries will be<br />
judged on the use of Universal<br />
Design Principles and the<br />
Lifetime Design Foundation’s<br />
Life Standards.<br />
The winner will be asked to enter<br />
negotiations with the Council’s<br />
Housing Upgrade Project to<br />
develop their proposal with a<br />
view to constructing the design.<br />
A total prize pool of $4000 is<br />
available. The prize for the<br />
selected finalist will be $2000,<br />
with additional prizes of $1000<br />
awarded to finalists placed in the<br />
top three.<br />
More information and<br />
competition guidelines can be<br />
found on the Council’s website<br />
www.Wellington.govt.nz/<br />
For further information, please<br />
contact:<br />
Sinead Roe, Accessibility<br />
Advisor, 803 8661<br />
Michelle Brooker, Council<br />
Communications, 801 3281 or<br />
mob 021 227 8170.<br />
Sinead roe<br />
11
2008 AUSTRALIAN AND NZ <strong>SPINAL</strong> CORD<br />
SOCIETY ANNUAL SCIENTIFIC MEETING.<br />
T<br />
he Burwood Spinal Unit (BSU) hosted the 2008<br />
Australian and New Zealand Spinal Cord Society<br />
Annual Scientific Meeting. Whilst this is an<br />
annual conference Christchurch last hosted our<br />
multidisciplinary colleagues from throughout Australasia in 1996.<br />
Principle sponsor was the Accident Compensation Corporation.<br />
There was a flurry of activity around the registration desk on<br />
the Wednesday morning as participants collected their Dysport<br />
sponsored conference satchel. Names were put to faces and the<br />
networking was already beginning. Mudipharma sponsored<br />
the lanyards, behind the name badge was a mini programme.<br />
No excuses for being late or lost!<br />
Pre conference sessions were held on the Wednesday morning<br />
and then it was time for the formalities to begin. Hector<br />
Matthews welcomed our visitors in the traditional Maori way<br />
with a Mihimihi. Christchurch Mayor Bob Parker opened the<br />
ceremony and expressed his delight in welcoming our nearly<br />
300 visitors to our magnificent city and the wider Canterbury<br />
region. He also left us with a lasting memory – that in the<br />
form of Shagger Acland. Picking up on the joke Bob shared<br />
re a hermit potentially lost in the snow, Rick picked up on this<br />
title and needless to say the photo memories we now have<br />
will haunt him for some time to come (that and the friendly<br />
plastic sheep he now owns!)<br />
A recent change by the ANZSCoS executive is to ensure<br />
that each year a different discipline is the keynote speaker.<br />
As a member of the nursing profession I was excited<br />
that in 2008 it was the year for nursing to undertake the<br />
keynote address. Dr Fintan Sheerin from Trinity College<br />
in Dublin, Ireland provided a thought provoking address<br />
about attitudes towards persons with disability. This<br />
differed from his original abstract of detailing the journey<br />
after acute spinal cord injury (SCI). At the beginning of his<br />
session he detailed a conversation with someone he met<br />
who had a SCI who told him as an able bodied person he did<br />
not have the right personal experiences to undertake such a<br />
talk. Although Dr Sheerin is an expert professional in the field<br />
of spinal cord nursing he listened to the advice he was given.<br />
Nevertheless his entertaining presentation should last in our<br />
memories and remind us to critique our attitudes towards all<br />
forms of disability both within the acute, rehabilitation and<br />
community environments.<br />
Stephanie Williams – CEO, ANZSCIN then provided<br />
an overview of the Australia New Zealand Spinal Cord<br />
Injury Network and their role in facilitating SCI research.<br />
Stephanie stressed that whilst their motto is communication,<br />
collaboration and cure they respect all fields of SCI research.<br />
Using cure is contentious for some but for sponsors/funders<br />
and those donating the word “cure” is more attractive. For<br />
further information about ANZSCIN go to their website<br />
www.anzscin.org.<br />
This year the Discipline Specific Meetings included<br />
Vocational Rehabilitation for the first time, a factor that the<br />
BSU can be very proud, of as Arron Perriam and the rest of his<br />
Kaleidoscope Team who are now also based at the Auckland<br />
Spinal Rehabilitation Unit play an extremely important role<br />
within the rehabilitation team. From the reports I heard each<br />
discipline had a very productive meeting.<br />
The Welcoming Ceremony saw us all pile into the trade<br />
hall to view all the sponsors that were enticing us with<br />
their products An entertaining performance from the<br />
Papanui High School’s Kapa Haka group was met with<br />
rapturous applause.<br />
Our theme was “Where to from Here?” Asking the<br />
questions was catergorised into four themes. “Can we<br />
fix it?”, “What is rehabilitation?”, “Can we stop ourselves<br />
from wearing out?” and “Use it or Lose it?” A priority of<br />
the Organising Committee which included Dr Rick Acland,<br />
Dr Leanne Parker, Julian Verkaaik, Jo Nunnerley, Jason<br />
Nicholls and myself was to increase the involvement of<br />
persons with SCI and therefore, the four keynote sessions<br />
was introduced by an individual with a SCI who had a close<br />
association with the question being asked. The DD & DF<br />
Heads Charitable Trust made this possible by providing<br />
eleven scholarships for persons with SCI to attend.<br />
The scientific content was put together by a group of<br />
multidisciplinary individuals from throughout the BSU<br />
as well as some assistance from representatives from the<br />
Burwood Academy of Independent Living and the New<br />
Zealand Spinal Trust to ensure the voice of the person<br />
with SCI was also heard. The scientific committee had an<br />
arduous task. Over 80 abstracts were received and these<br />
were assessed, catergorised, debated over and finally we<br />
made a decision on who would present orally and those<br />
who would be accepted as a poster.<br />
Over 50 poster presentations were perused throughout the<br />
three days of the conference during morning and afternoon<br />
tea and at lunchtimes – lots of networking achieved around<br />
several posters. The theme first up on Thursday morning<br />
was “Can we fix it?” and the invited speaker Dr Michael<br />
Fehlings was introduced by Hamish Ramsden on behalf of<br />
Catriona Williams and the Catwalk Trust who sponsored<br />
the session. (www.catwalk.org.nz)<br />
Dr Fehlings, a highly respected professor of neurosurgery<br />
and the Krembil Chari in Neural Repair and Regeneration<br />
provided insight into the significant advances in<br />
minimising the impact of secondary injury following SCI<br />
and promoting neural regeneration. He discussed several<br />
trials being conducted within this field thus providing<br />
meaningful data that attaining effective treatments for SCI<br />
will one day not be just a pipedream.<br />
After morning tea Rob Macdonald introduced Pat Dorsett<br />
to speak to the New Zealand Spinal Trust sponsored theme<br />
of “What is rehabilitation?”<br />
Using qualitative data Pat advised us that there are many<br />
personal factors and structural issues that affect “what is<br />
12
ehabilitation: Rehabilitation has changed over the last ten<br />
years”. Pat proposed a model of adjustment to SCI.<br />
The Alan Clarke Memorial Lecture is an annual event<br />
jointly held by the Burwood Academy of Independent<br />
Living and the University of Otago, Christchurch. This<br />
year it was held in conjunction with the conference. Julian<br />
Verkaaik representing BAIL and Justin Roake representing<br />
the UoO,C introduced Dr Robin Youngson who stated that<br />
he was honoured to be invited to present the Alan Clarke<br />
Memorial Lecture. He delivered a magnificent presentation<br />
on the need for compassion in the medical profession.<br />
Jennifer Dunn and Dr Alistair Rothwell provided an update<br />
on Hand Surgery in New Zealand at the Friday morning<br />
breakfast session.<br />
Richard Smaill secured sponsorship from the Health Research<br />
Council of NZ and the Canterbury Medical Research<br />
Foundation enabling us to invite Dr Susie Charlifue from<br />
Colorado, USA to present to us her experience of aging in<br />
SCI under the topic of Can we stop ourselves from wearing<br />
out? Paul Stafford with his 20 plus years of experience after<br />
SCI was an appropriate choice to introduce Susie. Susie, a<br />
psychologist by trade has a wealth of experience relating to<br />
the likely health and psychological complications that occur<br />
in the years following a SCI.<br />
She presented findings from a longitudinal study that has<br />
spanned over 15 years which evaluated physical, practical<br />
and emotional impact of the process of ageing with SCI.<br />
These included cardiovascular risk factors and bladder<br />
and bowel changes. Psychologically, participants reported<br />
on the changing patterns of life satisfaction, perceived<br />
stress, depressive symptomology, global quality of life and<br />
community participation.<br />
Our last invited speaker was introduced by Bill Gruar. The<br />
last keynote session was titled “Use or lose it?”. Professor<br />
Richard Faull is certainly an expert in his field as well as public<br />
speaking. He presented his work on regeneration in the<br />
brain at a level that everyone in the room could understand.<br />
Research has shown enhanced stem cell proliferation and<br />
neurogenesis in the diseased human brain which indicates<br />
that the brain has the capacity to repair itself through the<br />
production of new replacement neurons. A pathway for<br />
neurogenesis in the human brain has also been identified.<br />
This suggests that there is a possibility that stems cells in the<br />
adult human brain may provide a means for new treatment<br />
strategies for brain diseases. It was very captivating and<br />
hopefully one day this research in the brain will be able to<br />
be replicated in the spinal cord. In the afternoon Dr Xiong<br />
chaired a panel discussion regarding the timing of reduction of<br />
cervical spine dislocations, surgical fixation and appropriate<br />
use of investigations. Also, ethical dilemmas in relation to<br />
a patient’s choice to die and decision on not reclassifying a<br />
patient based on medical grounds.<br />
The last session to wrap up the conference before the<br />
evening entertainment began was kicked off by Rick Acland.<br />
Representatives from the Perth Spinal Unit provided a brief<br />
introduction to next year’s annual scientific meeting which<br />
will be held from 25-27 November 2009. Their theme follows<br />
on from ours – Are we there yet? Register your interest on<br />
www.anzscos2009.org.au.<br />
Fintan Sheerin also brought it all together. He stated he was<br />
honoured to be here and it was one of the best conferences<br />
he had attended. “ANZSCoS is also somewhat unique in<br />
that it is truly interdisciplinary, recognising and valuing the<br />
contributions from all participants in the team – persons with<br />
spinal compromise, professionals, researchers and carers. I<br />
don’t think that I have experienced such collegiality before.”<br />
He stressed the need to work collaboratively locally, nationally<br />
and internationally – across all disciplines and of course with<br />
persons with SCI. If you missed it the conference, the entire<br />
conference proceedings are on DVD.<br />
It was now time to put on the frocks and gladrags and network<br />
in the best way possible – the conference dinner.<br />
Shagger Acland was once again our MC. He started the evening<br />
by thanking our Conference Dinner Sponsor Medtronic. It was<br />
then down to thanking all our invited speakers and to present<br />
them with a little token of kiwiana. Finally it was time to thank<br />
the keynote speaker Fintan Sheerin who also had a gift for Rick.<br />
A shearer’s singlet with Shagger Acland on the front and toilet<br />
man on the back (I still don’t think he would know where to<br />
direct those in need to go, where to go!!) The shearer’s singlet<br />
was accompanied by some gumboots and a blow up sheep!!!<br />
All of a sudden the sound of riverdance was heard and the<br />
raucous laughter continued as Rick and Fintan danced across<br />
the stage.<br />
It was then time to eat, drink and dance the night away with<br />
Barock entertaining us all. But the surprises weren’t over yet as<br />
Julian Verkaaik showed what a talented man he is and thrilled<br />
us all with his rockstar performance. The dance floor was<br />
jammed! For the organising committee it was hard to believe<br />
it was all over. Two of the best decisions we made were firstly,<br />
to host the conference at the Christchurch Convention Centre.<br />
What a magnificent venue. Secondly, Conference Innovators –<br />
Fantastic – without the expert assistance of Helen Shrewsbury<br />
and Rachelle it would have not run so smoothly.<br />
karen marshall<br />
13
MY ANZSCoS CONFERENCE<br />
I was one of the fortunate recipients that received a<br />
scholarship from the DD Heads Trust to attend the ANZSCoS<br />
Conference held in Christchurch – November 2008. This<br />
being my first ANZSCoS Conference combined with<br />
knowing little about the area of SCI (spinal cord injury), I<br />
didn’t really know what kind of conference to expect, and<br />
what I would gain from this. After the first day, I soon<br />
realised that attending this conference was a great way<br />
to learn and extend my knowledge about the area of SCI,<br />
while also increasing my understanding around some of the<br />
key elements & aspects to a person’s spinal rehabilitation<br />
journey. It gave me a greater insight into the area of SCI<br />
and different aspects to the rehabilitation process. I had<br />
the opportunity to learn about some of the latest research<br />
trends and rehabilitation approaches overseas, and what’s<br />
effective and what’s not, in and around the area of SCI.<br />
Attending the ANZSCoS Conference also gave me the<br />
opportunity to network with both people who have spinal<br />
injuries themselves, as well as those who work both in NZ<br />
and also overseas in the area of SCI.<br />
Relating my ANZSCoS experience to some of my own<br />
difficult times which I’ve experienced in life so far, such<br />
as having a speech impediment, I believe that even if<br />
your role in a person’s rehabilitation journey isn’t always<br />
big and dramatic , it could be something as simple as<br />
just being there to encourage someone along the way<br />
during the rehabilitation process. You as one of their<br />
support avenues, in what ever role that maybe. It may<br />
not seem a big deal to you, but in the eyes of the person<br />
going through the rehabilitation process it might mean<br />
everything and a contributing factor to the final outcome<br />
in their rehabilitation. By attending conferences and<br />
other professional development events, even though<br />
they might not always be in the area where you know<br />
heaps about, it provides an opportunity for one to extend<br />
beyond your comfort zones and learn about areas which<br />
maybe totally new to you. Sometimes by learning about<br />
things which we might not be familiar with, we are then<br />
in a better position to educate others and the wider<br />
community.<br />
Marty Van der kley<br />
Ortho-Bionomy is a gentle, non-invasive form of body<br />
therapy. It is highly effective in working with pain associated<br />
14
LET FLY!<br />
Let Fly is about a passion for flying and a battle against bureaucracy.<br />
Barry Cardno had always wanted to be a pilot being<br />
inspired by his two boyhood heroes Sir Tim Wallis and<br />
his uncle Peter Plew. Right from a young age he was hellbent<br />
on getting his pilot’s licence as soon as possible after<br />
leaving school and did so after a short stint working at the<br />
Customs Department. Being keen to get his foot in the door<br />
for top-dressing flying he managed to get a job as a loader<br />
driver which was a common way that pilots did their<br />
“apprenticeship”, the low-level aerial man oeuvres of topdressing<br />
piloting appealed to him. He soon found however<br />
in his first two jobs that training and safety standards were<br />
severely compromised due to time constraints and efforts<br />
to maximize profits.<br />
On 8th of May 1995 as a naïve 21-year-old keen to impress<br />
his boss who was away for a few days he had an accident,<br />
his short life as a pilot was shattered. So serious were his<br />
injurie that he was kept in a coma for two weeks, suffering<br />
amongst other injuries, spinal (paraplegia) and a brain<br />
injuries. Investigations after the accident tended to indicate<br />
pilot error as the cause, causing great distress to Barry as<br />
he felt no consideration was given to aircraft maintenance,<br />
safety standards, training or time constraints.<br />
Rehabilitation was slow and arduous but Barry was keen to<br />
get back into life. After about a year he got a part-time job<br />
back at customs following this up with a stint in America<br />
learning to be a disabled flyer, then back in Wanaka he<br />
developed a passion for skiing. His desire to fly again was<br />
undiminished but due to the bureaucratic hoops he had<br />
to go through as a result of the accident he lost motivation<br />
until he came into contact with Sir Archibald McIndoe’s<br />
Guinea Pig Club, a club of pilots seriously injured and<br />
burnt during World War Two.<br />
After years of perseverance on the 6th of August 2006<br />
Barry got medical clearance and got his unrestricted pilots<br />
licence. Since his accident Barry’s battle has been with The Civil<br />
Aviation Authority and the Transport Accident Investigation<br />
Commission. He feels that the investigators into aerial top<br />
dressing accidents continue to ignore fatigue, excessive<br />
pressure to fly, lack of<br />
training and poorly<br />
maintained aircraft.<br />
The book deals well<br />
with Barry’s passion<br />
and obstinace to get<br />
back into the cockpit<br />
but the overriding<br />
theme is his<br />
impression, or lack<br />
thereof of standards<br />
in the aerial top<br />
dressing industry.<br />
Let Fly, written<br />
by Barry Cardno,<br />
published by<br />
Longacre Press 2009<br />
15
UP AND AWAY ON A DC3<br />
Last year at the CatWalk “Up and Away” Charity Auction<br />
and Dinner, a flight was purchased by James Flynn,<br />
owner of Coverstaff Recruitment. Coverstaff took only<br />
four seats and they arranged for Hamish Ramsby to<br />
make the remaining seats availiable to the staff at<br />
the Burwood Spinal Unit and the NZ Spinal Trust.<br />
Admittedly, I was at the Ball and thought to myself how<br />
marvelous it would be to go on the flight, so was delighted<br />
to learn that the Spinal Trust had also been gifted nine<br />
seats.<br />
Saturday rolled around and Christchurch awoke<br />
to a picture perfect day with blue skies and perfect<br />
temperatures. Everyone assembled in one of the hangers<br />
out at the airport and enjoyed a few delicious treats from<br />
Ma Maison before boarding the DC3.<br />
As we gobbled down our delicious treats, the star of the<br />
show arrived, buffed and quietly austere. Although not<br />
a great rugby fan, I had my photo taken with Mr Richie<br />
McCaw and politely questioned his flight capabilities. He<br />
seemed to know his stuff so I accepted him as a welcome<br />
member o f the group, after all, it’s always handy to have<br />
another pilot on board.<br />
There were five of us with spinal injuries who had signed<br />
up for the ride, and although we could all muster a few<br />
steps, four went up in the forklift while I sat by and<br />
waited for the steps to be brought over. It wasn’t because<br />
I preferred to walk up the steps with red carpet attached<br />
(although showing off my retro 1940’s coat was a bonus),<br />
it was more to do with blood pressure and being unable to<br />
stand still on the forklift for too long.<br />
After everyone was seated and emergency exits had been<br />
pointed out, the plane took off. The first thing I noticed<br />
was that the plane seemed to stay level as it took off, no<br />
steep inclines were felt, just a gentle glide up to the 1000<br />
feet mark.<br />
We circled around Christchurch city which was bathed in<br />
sunlight and then flew over to Banks Peninsula. Everything<br />
below us lay in miniature form and it was great to gain a<br />
better insight into distances and proportions which in a<br />
car can seem so different.<br />
After the half hour flight, we circled back towards the<br />
airport and landed perfectly. Richie then announced he was<br />
giving the five wheelchair passengers a rugby ball signed<br />
by him. As I accepted my ball, I thought to myself, should I<br />
take up rugby? I then felt a pang of guilt as I realised I was<br />
probably the most unenthusiastic rugby buff Christchurch<br />
had ever seen. I wondered whether Richie had been able<br />
to tell that I knew nothing about him apart from the fact<br />
he was a sports star, maybe cricket or rugby or something<br />
involving a ball? Blasphemous!<br />
Everyone piled out of the plane and wandered back into<br />
the hanger to have yet some more yummy munchies, a<br />
perfect end to a perfect outing.<br />
From everyone at the Spinal Trust and Burwood Spinal<br />
Unit, a big thank you goes out to James Flynn for giving<br />
us all such a magical memory I’m sure people won’t forget<br />
for a long time to come.<br />
CLAIRE mackie<br />
16
ORTHOBIONOMY<br />
with acute and chronic stress, injury and problems associated<br />
with postural and structural imbalances. It was developed by<br />
British osteopath Dr Arthur Lincoln Pauls. From his experiences<br />
as a Judo instructor and through his training as an osteopath,<br />
he developed ways of working with the body that honoured<br />
the bodys’ inherent wisdom and used its innate ability to self<br />
correct and self heal.<br />
Ortho-Bionomy supports the self-correction capacity of the<br />
person through the use of gentle movement and positioning<br />
of the body combined with light compression into the joints<br />
in order to facilitate the flow of energy and a deep sense of<br />
relaxation. The Practitioner works with the body to facilitate<br />
the change of stress and pain patterns.<br />
Long lasting changes are initiated<br />
by re-educating the clients body<br />
so that it can effectively maintain<br />
balance and optimal function on<br />
its own.<br />
A strong focus is placed on the<br />
comfort of the individual. No<br />
force or manipulations are used.<br />
The Practitioner may recommend<br />
exercises that can be done at<br />
home to facilitate the healing<br />
process initiated in the session.<br />
Ortho-Bionomy works by<br />
stimulating the body’s self<br />
correcting and self balancing<br />
reflexes by way of the appropriate<br />
nerve receptors located in<br />
our joints and muscles. The<br />
Practitioner uses movement<br />
and gentle compression to find<br />
positions of comfort that allow<br />
the body to release stress and pain<br />
patterns which are contributing<br />
to the discomfort.<br />
By slightly exaggerating these<br />
positions of comfort, the nervous system registers the<br />
feedback from the proprioceptors and stimulates a relaxation<br />
response which allows the body to re-align itself. In this<br />
way the Practitioner is able to release pain patterns without<br />
causing pain.<br />
Clients report experiencing pain relief, increased range<br />
of motion, greater ease of motion, structural realignment,<br />
increased relaxation, more efficient functioning on all<br />
levels, a greater sense of wellbeing, postural balance,<br />
energy systems balance, faster healing process, increased<br />
vitality, emotional balance, and an increased sense of<br />
wholeness.<br />
Because of the gentle and non-invasive nature of the work, an<br />
Ortho-Bionomy Practitioner can work with many different<br />
problems and conditions such as muscle and joint pain,<br />
injuries, chronic pain conditions, structural imbalances,<br />
autoimmune disturbances and general stress conditions.<br />
Common conditions Ortho-Bionomy can address include:<br />
Painful ankles and feet<br />
Joint pain and injuries<br />
Aches and pains<br />
Whiplash<br />
Repetitive strain injuries<br />
Chronic neck and back pain<br />
Post-surgery rehabilitation - joint replacements<br />
Scoliosis and kyphosis<br />
Fibromyalgia<br />
Trauma<br />
Headaches and migraines<br />
Sciatic pain<br />
MEIKA’S TESTIMONY.<br />
I have been a paraplegic for the past 17 years and have now been<br />
attending orthobionomy sessions with Sheryl on a regular basis<br />
for the past 2 years.<br />
Prior to finding out about orthobionomy,<br />
I had been having regular massage to help<br />
with back/shoulder and neck pain. I did<br />
find the massage good, however, the pain<br />
would return after only a few days and the<br />
problem never seemed to be fixed.<br />
My introduction to orthobionomy was<br />
through a friend who’d had good results<br />
and so I thought that I’d give it a try.<br />
After the first session, I found instant<br />
relief to my pain and on returning home<br />
had extremely relaxed arms and shoulders<br />
to the point that they felt floppy as I was<br />
so used to them being stiff. I also found<br />
that my balance was much improved and<br />
seemed to come more from within my<br />
internal core rather than by me trying<br />
to hold it with muscles. After a session,<br />
sleeping was bliss!<br />
Longer term, after regular sessions, I<br />
found that I could maintain this balance<br />
and also stay relatively pain free. I also<br />
found improvement with my circulation<br />
which aided in warmer legs and feet and<br />
also helped with skin and healing quite significantly. There was<br />
noticeable muscle tone improvement in the muscles below my<br />
level of injury that hadn’t worked in years; this included my butt<br />
which is great when sitting all day.<br />
Extending on from this, other improvements that have been<br />
noticeable and permanent for well over a year is my posture, with<br />
my scoliosis nearly gone.<br />
I now have a greater awareness of my body and where my legs are,<br />
and have started to have some stomach and lower back muscles<br />
return.<br />
I am now pregnant with my second baby and have been finding<br />
the sessions really helpful with the changing of my pelvis. This has<br />
really helped my upper body in terms of being more comfortable<br />
and with having room for the baby with sitting all day and helping<br />
with my breathing.<br />
Overall I have experienced some extremely good results and would<br />
recommend having regular orthobionomy sessions to anybody.<br />
claire mackie<br />
Sheryl Ladkin<br />
Registered Ortho-Bionomist<br />
Ph: (03) 980 4225 Cell: 021 165 7454 laughing_crow@hotmail.com<br />
17
A MOTORSPORT TALENT ~<br />
NEVER TO BE STUBBED OUT<br />
At the 2007 New Zealand Jetsprint Championship<br />
prizegiving I presented the Rookie of the year award to<br />
Robert Stubbs or Stubbsie to his friends. In his first season<br />
Jetsprinting Stubbsie drove to an impressive fourth place<br />
in the Group A Championship.<br />
Jetsprinting is an action packed thrilling motorsport on<br />
water. A jetsprint course consists of a series of channels<br />
3 to 5 metres in width, with a water depth up to 1 metre.<br />
Boats have a two-person crew, driver and navigator, and<br />
run individually against the clock through the channels<br />
in a predetermined order. Competitors are given a<br />
diagrammatic directional map which forms the correct<br />
racing rotation. The drivers and navigators study and<br />
memorise the layout that will have between 25 to 30<br />
directional changes in a run that takes 45 to 65 seconds<br />
to complete. The navigator indicates the next change in<br />
direction by hand signals, although some competitors<br />
are using intercom systems. Each competitor has<br />
three qualifying runs, with the fastest 16 in each class<br />
progressing to the elimination rounds that are raced on<br />
the “sudden-death” principle. The field is halved in each<br />
round, reducing from 16 to 8 to 4, down to the two crews<br />
that contest the Final.<br />
Whilst the Superboats have no engine restrictions the<br />
Group A class does. This popular international class<br />
attracts the largest competitor entries of the three classes.<br />
Racing is fiercely competitive and every year the standard<br />
of equipment and level of professionalism steps up, usually<br />
only fractions of a second separate each driver, action<br />
packed jetsprint racing at its best! Engines are restricted to<br />
412 cubic inch engines with iron block and cylinder heads<br />
and a maximum of 8 cylinders. Cylinder heads restricted<br />
to OEM 23 degree with two valves per cylinder, pushrod<br />
operated. Wet sump lubrication system. Induction via<br />
single 4-barrel carburetor. 100 octane Avgas fuel. Engines<br />
not exceeding 365 cubic inches maximum capacity may be<br />
fitted with aluminium cylinder heads conforming to the<br />
rules. Generally Chevrolet and Ford V8 engines share<br />
common rules, but specific components are listed by part<br />
number. The top motors produce up to 630 horsepower.<br />
After the success of his first season Stubbsie was hooked<br />
and a new boat was ordered in order to compete in the<br />
2008 season. However tragedy was to strike in August<br />
2007 when a motorcross event went horribly wrong.<br />
On the 5th August while competing in a local club race<br />
day he was involved in an accident with a number of bikes<br />
and fell heavily. After being concussed he came to with the<br />
realisation of everybody’s worst fear – he could not feel<br />
his legs!<br />
Stubbsie was airlifted to Auckland’s Middlemore Hospital<br />
that night with a dislocation of T3/4 vertebrae, three<br />
broken ribs, two broken bones in his left hand, and severe<br />
muscle and tissue damage to his left shoulder after falling<br />
and being hit by other bikes.<br />
He spent a month at Middlemore after being operated<br />
on and then the next three months at Auckland Spinal<br />
Rehabilitation Unit rehabilitating to the changes of life that<br />
come with a spinal cord injury. This was a tough time given<br />
how physically active he was with sport and directing his<br />
own logging business. Luckily he had strong support from<br />
Tanya his partner and kids Jalea and Regan, the rest of his<br />
family and very close friends he had surrounded himself<br />
with through his life.<br />
One thing about Stubbsie is that he is honest and up front.<br />
He openly admits he struggled with his injury and the<br />
impact it had on his life.<br />
After his Rookie success Stubbsie desperately wanted to be<br />
back racing. Rex Briant – the current New Zealand Group<br />
A champion and owner of the White Pointer boats was<br />
adamant that it could be done and together these mates<br />
were determined to see him back out on the water.<br />
They had the hull – Rex’s own champion raced White<br />
Pointer Stinger and the engine a 406 chev which puts out<br />
about 630hp. That was the easy part. At 6ft – getting him<br />
up over the side of the hull, past the roll cage without injury<br />
to himself or others meant devising a hoist system. The<br />
hoist is a White Pointer made gantry which is mounted on<br />
the boat trailer. It has a boat trailer super winch fitted to it.<br />
To avoid using a hoist sling some lifting straps have been<br />
sewn into Stubbsie’s overalls. A couple of karabiners are<br />
attached and he is winched into the driver’s seat.<br />
Safety is paramount in the jetsprinting sport, alongside<br />
flame proof overalls, neck braces, helmets, gloves<br />
and shoes, five point safety belts keep the drivers and<br />
navigators from being tossed around. To prevent his legs<br />
from moving and causing potential injuries to his lower<br />
limbs they are strapped down to the bottom of the boat<br />
through a couple of eyes. The strap is then hooked to the<br />
quick release on the safety belts. In case of emergency out<br />
on the track if the safety belts are released so are his legs.<br />
That way he can be assisted out of the boat in a hurry by<br />
the RSQKRU.<br />
Fire is a potential hazard and so an on board fire system<br />
was installed so either Stubbsie or his navigator can just<br />
turn the nozzle on the fire extinguisher and it will suppress<br />
any fire in the engine compartment. This sounds drastic<br />
18
ut a plan of action for worst case scenarios needed to be<br />
accommodated. A rollover that ends upside down in the<br />
water can also occur. In case of this emergency an aqua<br />
lung has been fitted underneath the driver’s seat. The<br />
mouth piece is velcroed to Stubbsie’s leg on his race suit.<br />
So when racing so he can grab it and carry on breathing<br />
until help arrives if he ends up upside down in the water–<br />
which has happened to others and help arrived within 8<br />
seconds!<br />
So with the safety side covered all that was left was to<br />
devise the controls to drive the boat. No brakes so that<br />
one was easy! Devising the throttle proved to be more of<br />
a challenge. After several attempts they settled on their<br />
design of a half steering wheel with motorbike twist grip<br />
slipped on it for throttle control. However, double the<br />
concentration is required to manoeuvre around the track<br />
when using a hand controlled throttle – speed is necessary<br />
to propel the boat forward and around the tight twisty<br />
track – buttoning off<br />
at the wrong time<br />
can have dramatic<br />
c o n s e q u e n c e s .<br />
Stubbsie has not only<br />
mastered this skill<br />
but has also proven<br />
to be competitive<br />
throughout the season.<br />
During 2007 Stubbsie<br />
double drove “Dirty<br />
Water” with mate<br />
Steve Lafferty. Steve<br />
had no hesitation in<br />
jumping into the silly<br />
seat to navigate for<br />
Stubbsie this season.<br />
Steve had previously<br />
navigated for Rex Briant who played a vital part in getting<br />
Stubbsie back on the water. When talking about Stubbsie<br />
returning to the sport there is evidence of emotion in Rex’s<br />
voice. He undoubtedly would do anything for his mate in<br />
order to see him racing competitively again. Glenn Mason<br />
(Rex’s navigator) is another key person in this crew. Rex,<br />
Glenn and Steve all competently transfer Stubbsie from<br />
Quad Bike/Wheelchair to Driver’s seat and vice versa via<br />
the winch and hoist system efficiently. This is because a<br />
quick crew change is vital in order to get back to the launch<br />
ramp for the second crew to complete their qualifying<br />
or elimination round. A Quad Bike makes it easier for<br />
Stubbsie to move around the pits and to check out the rest<br />
of the competitors from the viewing area of the track.<br />
Now the story would not be complete without the touchy<br />
feely stuff and the impact that participating in a sport that<br />
sends the adrenaline skyhigh has had. Stubbsie says “Being<br />
back in the boat has given me back the adrenalin rush I<br />
used to thrive on and never thought would experience<br />
again. One minute while racing where being paralysed is<br />
put to the back of your mind for a change and forgotten<br />
about even if it is just for a minute.”<br />
Stubbsie explains that jetsprinting has given him<br />
something to look forward to and be motivated for. He<br />
now has the opportunity to spend many enjoyable hours<br />
in the workshop with mates working on the boat. Not to<br />
mention getting out of town when racing and catching up<br />
with all the good people involved in jetsprinting who are<br />
all very supportive and encouraging. I guess that even<br />
meant me when I asked “are you hands painted on” when<br />
he wanted me to push his chair across the uneven ground<br />
to attend drivers briefing.<br />
Stubbsie reflects back to when he was in hospital. “All<br />
these things when you are sitting in the rehab unit go<br />
round and round in your head and you are left thinking<br />
it is all stuff you will never be able to do again, life will be<br />
boring and has pretty much ended for you!”<br />
“Sure it’s not the same and never will be – getting in and<br />
out of the boat, working on the boat etc, but my mates are<br />
happy to do all those bits for me while I sit there annoying<br />
them helping where I can. They are just happy to see the<br />
smile and enjoyment I get from having a good run and<br />
competing against able bodied people.”<br />
The 2009 New Zealand<br />
Jetsprinting Championship<br />
kicked off in Wanganui on<br />
January 27th. Getting time<br />
in the seat and improving<br />
at each meeting is the focus<br />
for the time being. This did<br />
not stop him from entering<br />
The Hire Company<br />
UIM World Jetsprinting<br />
Championship which was<br />
held on Jan 3rd and 4th at<br />
Meremere and Jan 10th and<br />
11th in Featherston. He is<br />
now ranked 16th in the<br />
world.<br />
However Stubbsie has<br />
already proven that he is<br />
competitive. Recently he competed in the second round<br />
of the NZ Championship racing to 7th place at his home<br />
track in Gisborne. The aim of this season is too improve his<br />
times and position as his confidence and technique grows.<br />
In his last run of the championship he ended a credible<br />
9th and finished the 2009 season in 8th place. Although<br />
he was hoping for a better result he has gained valuable<br />
track time and will be one to watch in the future and will<br />
be aiming for a podium spot when racing begins again at<br />
the end of the year.<br />
Live viewing of this season’s Jetsprinting championship<br />
is now complete. However coverage of the 2009 New<br />
Zealand Jetsprinting Championships and The 2009 Hire<br />
Company UIM World Championships will feature on Sky<br />
Sports and TV3 – which commenced early February. There<br />
is some action still available to watch on www.speedbox.<br />
tv. It is free to watch once you register. The UIM World<br />
Jetsprint Championship is being held again in Australia<br />
in November. All NZ crews are frantically trying to find<br />
sponsorship to head across the Tasman. This time there<br />
should be several American crews also taking up the<br />
World Challenge. Keep up to date with future events and<br />
of course with Stubbsie’s progress on www.jetsprint.co.nz<br />
and www.jetpro.co.nz.<br />
robert stubbs<br />
19
Photos of<br />
ball<br />
20<br />
2