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<strong>SPINAL</strong> <strong>NETWORK</strong> <strong>NEWS</strong><br />

April 2009 Volume 12 No 1 ISSN 1175-4753<br />

Motorsport Talent Page 18<br />

JAI IN MEXICO<br />

Page 3<br />

STEM CELLS IN CHINA -<br />

TOMORROWS TREATMENT<br />

TODAY<br />

Page 5<br />

WEDDING BELLS,<br />

HELL, AND A GOOD<br />

TIME<br />

Page 8<br />

2008 AUSTRALIAN<br />

AND NZ <strong>SPINAL</strong> CORD<br />

SOCIETY ANNUAL<br />

SCIENTIFIC MEETING.<br />

Page 12


CONTENTS<br />

EDITORIAL TEAM<br />

2 Contents<br />

3 Jai in Mexico<br />

5 Stem Cells in China<br />

7 Have wheels, will travel<br />

8 Wedding bells<br />

10 NZST Charity Ball<br />

11 Council memos<br />

paul stafford<br />

claire mackie<br />

Hi everyone I must apologise for the late arrival of the<br />

first edition of SNN for 2009. It has been a busy start to the<br />

year for the NZ Spinal Trust with four new staff joining<br />

our team, three in Christchurch and a northern manager<br />

in Auckland. We have started a four page newsletter<br />

about the NZST’s activities which will be quarterly. NZST<br />

received tremendous support from Rebecca Hobbs and<br />

Aaron Gilmore of Dancing with the Stars, as her chosen<br />

charity. Those of you who didn’t make it to the NZST<br />

2009 Charity Ball, you missed a fantastic evening of fun<br />

and dancing. A big thank you to all our supporters for<br />

making the event a great success.<br />

Hi, my name is Claire Mackie and I am part of this<br />

fantastic team of fellow writers and researchers for<br />

the Spinal Network News. I moved to Christchurch<br />

from Wellington a couple of years ago due to a ‘too<br />

good to miss’ work opportunity. I am employed full<br />

time by the Canterbury District Health Board as a<br />

graphic designer, and I also work for the NZ Spinal<br />

Trust. I live with my husband Jon and babies Meesa,<br />

Lena and Georgie (dog and cats) and am passionate<br />

about people, painting, volunteer work as a Youthline<br />

counsellor, reading and writing.<br />

12 ANZCoS Conference<br />

15 Let Fly<br />

16 Up and Away on a DC3<br />

Hamish ramsden<br />

I was delighted when Paul asked me to be on the editorial<br />

committee for the Spinal Network News as I see it as a<br />

great information source plus a very important forum<br />

for people to discuss their issues. As a C5/C6 tetraplegic<br />

since 1994 I have been involved with many things but<br />

currently I am the facilitator of the patient education<br />

groups at the Burwood spinal unit, on a couple of<br />

committees, doing some volunteer admin work, a parttime<br />

writing course at Canterbury University and trying<br />

to keep up with my teenage daughter who looks at me<br />

blandly and says “Dad, you just don’t understand!”.<br />

17 Orthobionomy<br />

18 Motorsport talent<br />

CONTRIBUTING<br />

WRITERS<br />

John Bourke<br />

Hamish Ramsden<br />

Claire Mackie<br />

Robert Stubbs<br />

Karen Rickerby<br />

Karen Marshall<br />

Sinead Roe<br />

Marty Van der kley<br />

graham tapper<br />

john bourke<br />

Founding member of the NZ Spinal Trust with 43<br />

wheelchair years experience as an advocate for those<br />

with disabilities. Currently I am the Christchurch<br />

Total Mobility Chairperson, a member of the CCS<br />

Disability Advisory Group and a board member<br />

of the Hanmer Springs Forest Camp Trust. My<br />

interests include walkways, parks and reserves,<br />

accommodation issues and access to the Christchurch<br />

Tram, our buses and beaches. I would also like to see<br />

equality between MOH and ACC clients.<br />

I was really stoked when Paul asked me to join the<br />

team at the Spinal Network News - being the new kid<br />

its great to have this opportunity to contribute and be<br />

involved with the great bunch of people on the editorial<br />

team. I’m currently living in Nelson and studying<br />

extramurally through Massey University. I’m a C4/C5<br />

tetraplegic following a surfing accident in Indonesia in<br />

June 2005. Before my accident I spent my time mostly<br />

in Wellington planning various adventures, something<br />

I intend to keep doing - and writing stories about! In<br />

the future I am hoping to be involved with proactive<br />

research that deals with both the physical and emotional<br />

challenges that people with SCI have to face.<br />

2<br />

<strong>SPINAL</strong> <strong>NETWORK</strong> <strong>NEWS</strong> is published by the NZ Spinal Trust<br />

Send your contributions to: The Editor <strong>SPINAL</strong> <strong>NETWORK</strong> <strong>NEWS</strong><br />

c/- New Zealand Spinal Trust, Private Bag 4708, Christchurch 8140<br />

Tel: (03) 383 7540 , Fax: (03) 383 7500<br />

Email: paulstafford@burwood.org.nz or info@nzspinaltrust.org.nz<br />

Web: www.nzspinaltrust.org.nz<br />

DISCLAIMER: The views expressed in <strong>SPINAL</strong> <strong>NETWORK</strong> <strong>NEWS</strong> are<br />

those of its contributors. They do not necessarily represent the opinion<br />

of the members of the Editorial Committee or the policies of the New<br />

Zealand Spinal Trust.<br />

DESIGN & LAYOUT: Claire Freeman<br />

PRINTER: Purse Willis & Aiken Ltd.


JAI IN MEXICO<br />

I<br />

n Hawaii in September 2008, Jai Donnelly began an<br />

adventure that saw him travel through Canada, and<br />

then down America’s West Coast – visiting Oregon,<br />

Seattle, San Francisco, San Diego, and Las Vegas, –<br />

before travelling through Mexico. I was fortunate to catch<br />

up with Jai in February this year while he was at home in<br />

Sydney. He had returned home to visit family, and to be<br />

the Best Man at a friend’s wedding. This was the fourth<br />

time Jai had been asked to be a Best Man – people have<br />

respect and admiration for the lad, he is reliable and has a<br />

wonderful balance of empathy, humour, and appreciation<br />

for life.<br />

I was interested to find out how Jai’s disability had<br />

influenced his travels. After a snowboarding accident<br />

in Queenstown 2005 which fractured his L1, Jai is now<br />

paralysed in the back of his<br />

legs, his right leg and foot<br />

being the worst affected.<br />

Following the accident, Jai<br />

spent roughly the first four<br />

weeks using a wheelchair,<br />

with a further six weeks using<br />

crutches. Through determined<br />

rehabilitation, Jai can now walk<br />

independently with the aid of<br />

a foot splint on his right leg.<br />

Jai manages his bladder using<br />

self-administering catheters<br />

and requires stimulation for<br />

his bowel routine. Returning<br />

to Australia following his<br />

rehab at Burwood, Jai set<br />

about testing out life with the<br />

new challenges he now had<br />

to face. He travelled back to<br />

New Zealand twice, and even<br />

spent two months exploring<br />

through Argentina.<br />

After three years, Jai was<br />

ready to embark on this<br />

remarkable journey. It was the<br />

product of hard work on Jai’s<br />

behalf – planning, more rehabilitation, and saving (unable<br />

to return to work as a carpenter, Jai worked in building<br />

evaluation). Jai also employed a ‘Kendo’ attitude. This is<br />

Australian for ‘I can do’ it. Behind Jai’s humour is a simple<br />

and determined philosophy.<br />

“I think its an important aspect to my travels...coz I<br />

know, myself, and a lot of paraplegics can have that ‘lazy’<br />

attitude and never want to go out and do anything…...I<br />

made the decisive choice to go out there, not be lazy,<br />

challenge myself (with a kendo approach) and had some<br />

great experiences.”<br />

Jai’s main concerns before leaving on his trip were to do<br />

with aspects of bladder and bowel care. With travelling<br />

through various countries Jai was conscious of picking up<br />

bladder infections due to using so many different toilets.<br />

Another of Jai’s concerns was the possibility of being a<br />

target due to disability. As he is unable to run and has a<br />

visible limp, Jai is aware that in some situations, people<br />

may be inclined to attack or rob him, but during his trip he<br />

found this not to be the case.<br />

‘I was worried people may see me as an easy target, but<br />

people were generally the opposite, they were really<br />

willing to help out…it gives you a lot of confidence in the<br />

humanity of the world!<br />

Travelling with his friend Phil, the pair spent two weeks<br />

on the North Shore of Hawaii which Jai described as a<br />

very relaxed and colourful place, where you can find<br />

drum kits on the side of the road and use it to start a party.<br />

From the tropical wonders of the north Pacific, Jai was<br />

slightly reluctant to fly to Vancouver where he exchanged<br />

lazy days on the beach for scarves and jumpers. This is<br />

when the duo found a very interesting and unique (not to<br />

mention frugal) way to travel. It involved a contemporary<br />

mix of ingenuity, technology, and support. Simply put, Jai<br />

and Phil created an account on<br />

two different websites. The first<br />

was a couch surfing website<br />

that advertised people who<br />

listed their couches as available<br />

to travellers. Jai and Phil could<br />

email people in towns they were<br />

travelling to take up offers of<br />

free couches.<br />

‘Some people may offer a couch,<br />

or just a coffee and advice about<br />

the area. We made some great<br />

friends. We’ve slept on couches,<br />

floors, beds – we had some<br />

really good beds!’<br />

The second was a website<br />

that Jai described as ‘new-age<br />

hitchhiking’. Once again the<br />

pair created an account and<br />

would list their travel plans, the<br />

dates, origins and destinations.<br />

‘We’d post a note like; two 25 year<br />

old Australian males looking for<br />

a ride from A to B can pay for<br />

gas. Then we would get a few<br />

phone calls from American girls<br />

who would give us a ride – it<br />

was great!’<br />

As well as being a great way to meet the locals and save<br />

money, the travel techniques did not present too much<br />

trouble for Jai’s disability needs. Having Phil travelling<br />

with him helped a lot, in the sense of having somebody<br />

there who understood Jai’s condition. For example Phil<br />

could help with things like looking after luggage and<br />

holding the fort if Jai needed to use a toilet while they were<br />

on the road or had just arrived at a new house. Jai and Phil<br />

spent around five weeks travelling down America’s west<br />

coast catching rides with locals, staying on couches, and<br />

on one instance having the privilege of house sitting. A<br />

personal highlight of Jai’s was visiting the Grand Canyon<br />

and walking a 20km return trek.<br />

‘It was really really steep, mules were going up and down<br />

and they were struggling! It was seven km down to the<br />

camp site where we stayed the night, then three kms to<br />

a lookout. Coming back up the next morning was the<br />

worst, around half way up my legs were tired and killing<br />

3


NZST<br />

JAI IN MEXICO Continued<br />

me……I had to stop and rest, drink heaps of water and<br />

have some food. Getting to the top, I looked back down<br />

to what I’d just come up … I was just so satisfied coming<br />

from doctors initially telling me that I’d never walk again,<br />

to getting to the top of a mountain…it was like ‘Yeah, I<br />

conquered that’.<br />

Jai rates his time traveling through America. I was curious<br />

to know how he found the American people and if his<br />

disability was a topic of conversation.<br />

‘People generally wanted to talk about the election! When<br />

I met people briefly I wouldn’t talk about my disability – it<br />

felt pretty good. When I did talk about it I kept to the basics,<br />

how I had the injury and whereabouts I was paralysed,<br />

stuff like that….People were great, really friendly and<br />

keen to help…if people did take an interest in my injury<br />

then I’d open up to them..’<br />

While in America Jai began taking pro-biotics in an<br />

attempt to ward off any potential bladder inflections. At<br />

one point he felt the symptoms of an infection and learnt<br />

how expensive the American health system can be. Even<br />

with the help of a local nurse (Jai was house sitting her<br />

mother’s house) an appointment with a Doctor was going<br />

to be around US$200. Jai decided to carry on without<br />

antibiotics and luckily was ok. In late November, Jai and<br />

Phil entered Mexico. Jai was feeling good and his health<br />

was behaving. Their new environment was different –<br />

colour, music, people, and cheap antibiotics!<br />

‘When you cross the boarder, you straight away see all these<br />

restaurants followed by heaps of chemists – they all have<br />

big signs up with ‘Tramadol!’, ‘Valium’, or ‘Antibiotics!’ it<br />

was crazy!’<br />

With the smell of new adventures ahead, the lads spent<br />

two weeks traveling down the Baja peninsula, Jai and<br />

Phil used buses which would travel at night. Take note –<br />

cramped bus toilets and corners are not ideal conditions<br />

for using a catheter.<br />

Jai spent the following two months exploring Mexico,<br />

travelling with Phil but often by himself. Mainly travelling<br />

by bus, Jai stayed in hostels and even had a tent which he<br />

would use at some of the world’s most unbelievable beaches.<br />

One such beach was Zipolite, a place known for its relaxed<br />

lifestyle and undercover policemen. Another highlight<br />

was Michoacan, an inland state of Mexico and home of the<br />

ancient Tarascan people. These two locations illustrate the<br />

depth to Mexico’s beauty – from tropical beaches to thick<br />

highlands and stunning fresh water lakes.<br />

Jai explained that he fared well considering his spinal cord<br />

injury. He suffered pain in his hips and feet if he walked<br />

a long distance, and to avoid painkillers he would often<br />

rest for a day, writing or reading to give his legs a break.<br />

He also purchased a course of antibiotics that relieved a<br />

bladder infection. Despite having been on the road for<br />

over three months, Jai’s supplies were holding up well.<br />

Throughout America and Mexico, Jai found the chemists<br />

to have good supplies of gloves and lube if he was running<br />

short. And having around 50 catheters that he was using at<br />

one per week, Jai had well over half left.<br />

Jai is heading back to Mexico at the end of February ‘09 for<br />

more adventure; I asked how his accident in 2005 affects<br />

his outlook on life<br />

‘I look back and think wow, I should be in a wheelchair<br />

I shouldn’t be walking – I’m seeing the most incredible<br />

things and getting into the most amazing places…I have a<br />

really big appreciation cos I have friends (in wheelchairs)<br />

who couldn’t do half the things I’ve done…’<br />

And his future?<br />

‘Once you know you can do it, I now just want to go off the<br />

beaten track to push my limits’<br />

JOHN bourke<br />

4


STEM CELLS IN CHINA ~<br />

TOMORROW’S TREATMENT TODAY<br />

Four months after my spinal cord injury and finally<br />

arriving back home I still couldn’t accept or come to grips<br />

with everyone’s conclusion that this was life and I would<br />

be confined to a wheelchair for the rest of my life! Half way<br />

through my life at 35 and all of sudden I couldn’t walk, run,<br />

move around easily, control my bladder or bowels and do a<br />

lot of things we all take for granted.<br />

Somehow you have to accept what the doctors say that at<br />

the moment there is still no cure for spinal cord injuries.<br />

While in the hospital one of the physio’s often talked<br />

about the research on stem cells and their possibilities and<br />

how research had slowed down because the American<br />

government had stopped funding embryonic stem cell<br />

research. So when back at home recovering I decided to start<br />

doing some research on it over the internet.<br />

The first one I contacted was the Xcell centre in Germany. They<br />

offered stem cell injections using your own stem cells, but just<br />

the one treatment within a week and not much else.<br />

More research and the options included a doctor in India<br />

using embryonic cells, or China using stem cells from<br />

babies’ umbilical chords. China looked more attractive as<br />

their stem cells were adult cells from umbilical cords where<br />

they are at their youngest, the amount of injections are only<br />

limited to your budget. Along with the stem cell treatment<br />

the package included intensive physio, acupuncture, and<br />

electric wave therapy. Beike Biotech was the contact for<br />

China. Embryonic cells are still a little unknown in the fact<br />

that they may be uncontrollable given their younger state.<br />

So after a lot of thought and discussion with family and<br />

close friends Tanya and I decided China stem cells was<br />

the best option. On August 30th we flew to China for a<br />

six week treatment of stem cells. Three IV injections and<br />

six lumbar injections. Of course with all this research I<br />

couldn’t find any results of anyone getting up and walking<br />

but there were people who had had some improvements.<br />

My hope was to get some improvement in feeling or<br />

movement to give me something to work on every day<br />

instead of accepting my current state for the rest of my life.<br />

Or bladder and bowel control back, something that would<br />

vastly improve my quality of life.<br />

A very good friend of mine Darren Abrahams gave up<br />

his time to come along for the first two weeks to help with<br />

getting organised and settled.<br />

After a 12 hr flight to Shanghai and another hour and a half<br />

to Qingdao we were picked up at the airport by the staff<br />

of Biotech and delivered to the hospital in the Chengyang<br />

province. The people at the hospital were great and you were<br />

soon settled in. Patients were there from all over the world for<br />

different conditions but all with the same hope of some result<br />

which was not freely available in their own countries. Kids<br />

through to adults from cerebral palsy to spinal cord injuries.<br />

First the doctors poured over my medical notes and scans.<br />

Then they sent us off for an MRI scan. They also checked<br />

the flow up and down my spinal canal. In my case they<br />

were happy that the spinal canal was clear with little<br />

obstruction but were certain the spinal cord was broken<br />

(an answer I was unable to hear or maybe I had deaf ears<br />

to it). Due to this they did not see any point in doing open<br />

surgery as there was no obstruction to clear and of course<br />

at this stage there is no way of joining the spinal cord.<br />

With all that information they then decided to do three IV<br />

injections and six lumbar injections.<br />

Within two days I was getting my first IV injection. The<br />

stem cells are delivered once or twice a week depending<br />

on their program directly from their lab in Beijing and<br />

administered the same day. IV injections are the same as<br />

any IV injection and are no problem.<br />

The lumbar injections are however a bit more involved.<br />

No food or liquids three hours before the injection. You<br />

are then wheeled off in the bed to the operation room and<br />

then given an injection of valium to sedate you while they<br />

perform the lumbar injection. It is all over within thirty<br />

minutes and your back in your room. Then you have to lie<br />

flat on you are back for the next six hours without moving<br />

your head!<br />

I had no side effects from the injection, although maybe a<br />

little headache from the change in pressure in your spinal<br />

canal but nothing of great worry. The only other risk<br />

associated with the procedure that I know of, is infection<br />

in the spinal canal. Something I did get a little of but was<br />

soon cleared up with some antibiotics. Along with the<br />

injections once or twice a week the physio program is set<br />

up for you six days of the week. In my case it consisted<br />

of Acupuncture (good old Chinese medicine) first in the<br />

morning, the idea of that being to stimulate nerve endings<br />

below my break. Then electric wave therapy on my legs<br />

to stimulate muscles and to help keep some muscle tone.<br />

And then intensive physio working on muscles around<br />

your injury trying to help your mobility and functions,<br />

stretching of my legs along with some standing in a<br />

standing frame.<br />

Most of my afternoons were free (if I didn’t have injections)<br />

to go out and wander the streets and see the sights<br />

something we did regularly and thoroughly enjoyed.<br />

China and its people are just so interesting. I could go on<br />

about the sight we saw, China is a really must see place the<br />

people are lovely and it is all so interesting and foreign.<br />

After about the third injection I gained a little more feeling<br />

down my chest about two inches. But nothing more after<br />

that and this initial effect has since worn off as well. My<br />

doctor looking after me was very good and spoke good<br />

English so he was good to ask plenty of questions and did<br />

not hold back on anything I wanted to know.<br />

So of course the big question was what could I expect<br />

given the information they now had. Well given that<br />

my cord was broken he said not to expect motor neuron<br />

function back. But there maybe was the chance of some<br />

better feeling, easing of continual nerve pain, unlikely<br />

regained bladder or bowel function. Anything had to<br />

be a bonus though. I asked if I had a million dollars and<br />

continued with the stem cell injections would that work?<br />

His answer to that was the knowledge I needed to keep<br />

hoping. What he said was needed was for America to<br />

get back on course to continue with their research given<br />

they had the biggest access to money and resources. In<br />

his opinion doctors and scientists know that stem cells are<br />

the answer to regenerating and growing damaged tissue.<br />

What they need to do is understand a bit more about how<br />

they work and identify, and to be able to get them to grow<br />

in a uniform matter in a specified place. In the case of a<br />

spinal cord injury to be able to open you up to the point<br />

of injury, scrape back the dead scar tissue which forms at<br />

5


NZST<br />

STEM CELLS IN CHINA Continued<br />

the end of the break (one of the main reasons spinal cords<br />

don’t heal due to the scar tissue being allowed to form) then<br />

bridge the gap with a membrane and then fill that void with<br />

stem cells. Of course it is still unknown a little whether they<br />

will bridge the gap and then still perform the functions of<br />

the nervous system, but there is every belief they will and<br />

studies are slowly confirming that they will. Interestingly<br />

enough when I arrived back in New Zealand a week later<br />

I went and listened to Noela Vallis – Chairwoman from<br />

the Spinal Cord Society which has been wanting to fund<br />

research into stem cells. She has a team of doctors and<br />

scientists in Dunedin ready to start trials – pending ethics<br />

committee approval.<br />

Six weeks in China was a long way to be from home and<br />

family, we left behind two kids but it was well worth the<br />

trip and experience. I did not quite get the results I wished<br />

for of course but I was not expecting to get up and walk. I<br />

had to try something as there is nothing else to try at home<br />

in the hope of a cure just the option of accepting it and<br />

learning to live with it. Something nobody could imagine<br />

to understand who is not in this situation whereby your life<br />

has been turned upside down and ended up far from the<br />

way you planned it. I did however leave there with a sense<br />

of satisfaction and the physio work was very beneficial.<br />

They, unlike a lot of other countries, are willing to try<br />

something that I think is moving in the right direction with<br />

what seems minimal risk.<br />

Some kids there did gain back some of their eyesight.<br />

One young guy who had an incomplete break damaged<br />

through an operation did start to gain some feeling and<br />

movement back. I believe stem cells are the answer, along<br />

with some more work of course, but my question now is<br />

if there are no side effects or rejection given they are our<br />

own cells in some cases or stem cells from umbilical cords<br />

which is generally waste material and the cells are in an<br />

undifferentiated state not giving risk to rejection, why<br />

isn’t every spinal cord injury treated with stem cells at the<br />

time of the accident and given every chance of a recovery<br />

or some recovery. I think that the less time anyone is left<br />

bound to a wheel chair the better and I think that no one<br />

deserves to be confined to one when there is every chance<br />

they may not have to be.<br />

I also think that there is everything to be gained by using<br />

stem cells now on humans with very little risk, so why are<br />

we waiting and denying those of half a chance?!<br />

ROBERT stubbs<br />

If any of our members has a similar experience that they would like to<br />

share or have questions about any of the stories published, please don’t<br />

hesitate to email<br />

paulstafford@burwood.org.nz<br />

PS with further investigation we found out that the full cost of the<br />

trip came to approximately $60,000 NZ dollars.<br />

Ed<br />

6


HAVE WHEELS, WILL TRAVEL…<br />

Robert Borwick of Nelson, a C5/6 tetraplegic, has recently<br />

received a brand new Kia Carnival that he can drive himself.<br />

I asked him how he has found it so far.<br />

- How long have you had the car?<br />

About a month or so<br />

- How does it feel to be driving by yourself?<br />

Fantastic!<br />

It’s so great to have a massive form of independence<br />

again, driving was so important to me as I guess it is for<br />

anyone but it certainly has raised the smile on my face.<br />

And thank you so much to Vehicle Adaption Services<br />

- How was learning to drive with your arms?<br />

I was a little nervous when I first did my driving<br />

assessment - I thought about all of the what ifs, like<br />

could I break in time, could I steer around corners; or<br />

would I be wobbly while driving...<br />

But as with everything after you do it for the first time<br />

it gets better and better the more you do it. And now I<br />

have a lot more confidence in my driving.<br />

- Where have been driving so far?<br />

I really enjoy drives out in the country I have driven<br />

to Kaikoura, Blenheim, Motueka, Takaka, hopefully<br />

Christchurch soon…..<br />

john bourke<br />

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7


WEDDING BELLS, HELL, AND A GOOD TIME<br />

G<br />

etting married never made my ‘must do’ list as a<br />

young girl. I wanted a career, and coming from a<br />

female dominated family, men were somewhat<br />

superfluous to lifelong goals and aspirations.<br />

After I broke my neck at age 17, I thought I’d never get<br />

married, which didn’t bother me too much at the time.<br />

I was more upset at no longer being able to do obscene<br />

hand gestures at other motorists whilst driving (only in<br />

emergencies mind!).<br />

A year past, and once I learnt the art of applying eyeliner<br />

with both hands, boys were soon lining up to court me<br />

(initially to my surprise and suspicion … did they have a<br />

wheelchair fetish I wondered?).<br />

Prior to meeting my husband, I was engaged for four years<br />

- we never got around to the actual wedding part. I’m<br />

good at organising a dinner party but organising a wedding<br />

was simply too scary and there was too much hard work<br />

involved – I am a<br />

lazy social organiser<br />

and obviously don’t<br />

have the standard<br />

‘wedding’ gene<br />

that the majority of<br />

woman possess.<br />

Then Jon came<br />

along.<br />

Perhaps it was<br />

the fact that I had<br />

hit 30, perhaps it<br />

was because I was<br />

besotted and headover-heals<br />

in love<br />

with my fantastic<br />

catch, but suddenly<br />

a wedding didn’t<br />

seem like such a<br />

scary beast, and<br />

when Jon casually<br />

suggested we<br />

tie the knot over<br />

Christmas while<br />

my good friend<br />

from Calgary was<br />

in New Zealand, I agreed to do it. With a couple of months<br />

up our sleeves, we relaxed and figured there would be<br />

plenty of time to sort things out.<br />

I knew a white dress was out of the question due to my<br />

slap-happy masticating skills, so I decided on a dark green<br />

Indian dress. The dress was hunted down by a warm and<br />

gracious doctor, who informed me getting a green dress<br />

from India wasn’t the easiest of tasks due to green being<br />

a traditional Pakistan wedding colour (apparently there<br />

have been a few issues between India and Pakistan).<br />

A month before the wedding, I had my $300 authentic<br />

Indian dress with jewellery and as far as I was concerned,<br />

the rest would sort itself out. I was determined the wedding<br />

wouldn’t leave us entrenched in an ocean of debt, so we<br />

did everything on a tight budget. I even asked the guests<br />

to ‘bring a plate’ on the invitations.<br />

I also wanted to keep the guest list to a bare minimum.<br />

Although my family are close, we aren’t big breeders and<br />

weddings are not seen as important events. Jon being a Pom,<br />

meant many of his family were overseas and were also unable<br />

to make it. I breathed a sigh of relief. Probably my greatest fear<br />

of getting married was walking down the isle and having one<br />

hundred eyes transfixed on my constipated giraffe-looking<br />

walk. Luckily we had a guest list of approximately 50 people<br />

- this I could cope with… just.<br />

We had also decided to have the ceremony up north in<br />

Whangarei at Jon’s mum’s place. An avid gardener, Ruth<br />

(Jon’s mum) began planting lots of flowers in her two acre<br />

garden. She had also organised some work mates to help<br />

out with extra food, and had put us onto a celebrant who<br />

worked with her and could give us a good deal on ‘mates<br />

rates’. All that was needed was the marquee in case of rain<br />

and I figured everything was ready to go.<br />

We arrived up north with our precious child-dog, Meesa,<br />

and began finalising little details like what Jon was going<br />

to wear, and how I<br />

was going to get a<br />

spray tan without<br />

taking my clothes<br />

off. I conceded to<br />

wearing a paper<br />

g-string and was<br />

basted like a<br />

turkey – not the<br />

most dignified<br />

of experiences<br />

but the effect was<br />

worth it.<br />

What initially was<br />

assumed would be<br />

a leisurely week<br />

of sunbathing<br />

and sorting out<br />

wedding tit-bits,<br />

soon grew into an<br />

untamed beast.<br />

We had irate<br />

relatives barking<br />

out orders on<br />

where they would<br />

stay during the<br />

wedding… hadn’t we organised this for them?…oops. Then<br />

there was what the groom would wear, and with only one<br />

day to shop before everything closed for Christmas, frantic<br />

choices were made and a costume was thrown together<br />

haphazardly. Shoes became a nightmare and although I was<br />

keen on traipsing down the aisle in my socks, others were<br />

not so keen with the idea. Suddenly everyone was in panic<br />

stations. Tears were shed, arguments were exchanged, and<br />

sleep became a distant memory.<br />

But we made it to the day of the wedding all in one piece<br />

– minus a few brain cells.<br />

I had decided not to use the wheelchair at the wedding. The<br />

ceremony was outside on grass which made it impractical,<br />

and I wanted to make use of the wedding dress which bared<br />

my freshly tanned midriff.<br />

We had an evening ceremony which meant after the formal<br />

vows, everyone was able to trot off to the marquee which stood<br />

10 metres away, and gorge themselves on the feast prepared.<br />

8


WEDDING BELLS, HELL, AND A GOOD TIME Continued<br />

In terms of the ceremony itself, everything went smoothly,<br />

apart from my skirt which tripped me up down the aisle.<br />

As horrendous as that sounds, having Orbitals ‘Halcyon’<br />

saturating my ears meant I was more interested in grooving<br />

to the sweet beat, rather than focus on my tangled legs<br />

as I made my way down the aisle. As I sat down on our<br />

little ‘love seat’, we said our vows and had the traditional<br />

wedding kiss, although unfortunately my darling Jon had<br />

not brushed his teeth due to severe time constraints, so my<br />

thoughts lay in the bacteria count littered in his mouth and<br />

not ‘in the moment of the kiss’.<br />

At 2am, a very weary, drunk and newly married Claire hit<br />

the bed and promptly fell asleep. In terms of the whole<br />

wedding, we had underestimated how much work is<br />

involved in planning a wedding, and both of us were close<br />

to nervous break-downs up until the event. On the up side,<br />

it was a great test of the relationship and demonstrated<br />

how amazing and supportive Jon is when I come close to<br />

losing my marbles. I am determined never to go through<br />

it again though and for everyone who re-does their vows,<br />

I hope your families aren’t as monstrous as a few of mine<br />

were! For those contemplating a wedding, good luck or<br />

the best advice I can give is to elope.<br />

End note. I must admit, this die-hard feminist will conclude by<br />

saying that marriage does bring a sense of comfort, much like<br />

a warm fart nestled in your pants. We now share a close bond<br />

and our love for each other has grown and spread, ironing out<br />

the jagged little pieces that once snagged the relationship.<br />

However, let it be said, as much as I love and respect my<br />

husband Jon, he will never, ever see me going to the toilet.<br />

claire mackie<br />

Expenses<br />

Wedding clothes<br />

Dress $300<br />

Grooms outfit $100<br />

Food $300<br />

Alcohol $1000<br />

Hirage of tent, port-a-loo and chairs $800<br />

Invites $120<br />

Rings $2000<br />

Celebrant $200<br />

Airfares and dog travel $1000<br />

Total: $5820<br />

(How to have a wonderful day on a limited budget!)<br />

9


10<br />

NZST CHARITY BALL<br />

The 2009 NZST Charity Ball went off with a swirl and a<br />

roar. We were lucky enough to have Rebecca Hobbs and<br />

Aaron Gilmore as our guest celebrities for the night, and<br />

I’m sure the whole room was in awe of their incredible<br />

ballroom dancing skills. They even allowed us to auction<br />

off a dance with each of them. This was won by two lucky<br />

people who were spun around the great art gallery foyer<br />

with style and grace.<br />

Initially hoping for around 300 attendees, tickets peaked<br />

at 170 which plumped out the foyer nicely. Alchemy did a<br />

great job of providing people with delicious hors d’oeurves<br />

and drinks at the ready, and for the NZST staff who had<br />

put in so much time organising the event, it was agreed<br />

it was worth the effort, both in terms of money raised<br />

approximately $12,000 and the fun had by all.<br />

The art gallery proved to be a fantastic venue yet again, with<br />

it’s sweeping glass walls, and industrial chic style. Barock<br />

also provided not only brilliantly orchestrated music, but<br />

there was something for everyone, with splatters of jazz,<br />

folk, soft rock and some great classics. There weren’t many<br />

who didn’t dance the night away with a mish-mash of feet<br />

and wheelchairs hitting the dance floor.<br />

At least for one night, people were able to get glammed<br />

up and forget about the recession, which for charities in<br />

particular is starting to sting the purse strings. There will<br />

definitely be something to look forward to next year as<br />

the NZST Ball becomes a permanent fixture in the social<br />

calendar.<br />

CLAIRE mackie


CHRISTCHURCH CITY COUNCIL<br />

T h e<br />

Christchurch<br />

A c c e s s i b l e<br />

Map will be<br />

available in<br />

May from the<br />

Christchurch<br />

City Council.<br />

This map gives<br />

i n f o r m a t i o n<br />

about the<br />

a c c e s s i b l e<br />

Gloria Weeks, Karen Rickerby, Hemi Hema,<br />

t o i l e t s ,<br />

Doreen McCoard, Simon Atkinson, Anne<br />

mobility parks,<br />

Scott, Josje Lelijveld Front Row- Kerri<br />

b u i l d i n g s ,<br />

Bonner, Graham Tapper, Rachel Mullins<br />

attractions and<br />

accommodation. It will be available free from a number<br />

of Council outlets such as Service Centres and Libraries,<br />

Disability organisations and tourist information places.<br />

The Council has recently been consulting on a number<br />

of documents. The consultation currently is on the Long<br />

Term Council Community Plan, which guides Council<br />

projects and spending for next 10 years. The Council is<br />

keen to engage as many people as possible in the planning<br />

process, so your feedback is valuable.<br />

Another new service to be introduced in Christchurch<br />

recently is the three wheelie bin system. This is gradually<br />

starting up throughout the city. Some assistance is available<br />

for people who have mobility impairments that mean they<br />

can not get their bin to the kerb and have no assistance<br />

from elsewhere to take their bin out. To find out if you are<br />

eligible contact the Council Call Centre on 941-8666.<br />

The Council’s Disability Advisory Group continue to work<br />

on improving access in the city. They have been involved<br />

in projects such as the upgrade of the Council’s website,<br />

the Travel Demand Strategy, the new Wheelie Bin system,<br />

the Equity and Access Policy implementation project and<br />

the new Bus Interchange. They continue to work hard<br />

to represent what is required to remove barriers. Please<br />

contact Graham Tapper at Burwood if you have any<br />

comments you want to put through to this group. The<br />

group was also extremely proud of Kerri Bonner (who is<br />

our Youth Representative) who won the Attitude Award<br />

for Youth in December 2008. Congratulations to Kerri<br />

and it is wonderful to have her skills and leadership<br />

acknowledged.<br />

Finally, I’d like to congratulate the NZ Spinal Trust on the<br />

fantastic event it held on Saturday night with their Annual<br />

Ball. This was a wonderful occasion and the Art Gallery<br />

was an impressive venue. If you didn’t make it there this<br />

year then make sure you try and attend next time as it was<br />

an enjoyable evening.<br />

karen rickerby<br />

ABSOLUTELY POSITIVELY WELLINGTON<br />

Competition to make Council<br />

homes more user-friendly<br />

Wellington City architects have the opportunity to enter<br />

a design competition to make the Council’s housing units<br />

easier to live in.<br />

The competition, launched at today’s Accessible Wellington<br />

Forum on Housing and Accommodation at Te Papa, will<br />

run until 3 July.<br />

Entrants are required to design an upgrade to a typical<br />

Council housing complex consisting of four bed-sit units,<br />

with a focus on making them more practical for everyone,<br />

regardless of mobility or age, to live in. Several small<br />

complexes with similar plans are currently being upgraded<br />

as part of the Council’s Housing Upgrade Project.<br />

The Council’s Accessibility Advisor, Sinead Roe, says the<br />

competition will require entrants to think about design<br />

that is practical and looks good.<br />

“The challenge for entrants is to come up with a userfriendly<br />

design that is creative and affordable. There is<br />

a need for fresh, imaginative building design as many<br />

people need to modify their homes to suit their changing<br />

needs. This could be due to a loss of mobility or illness<br />

but shows there is a need for flexible living spaces which<br />

allow people to live comfortably.<br />

“Adapting existing buildings does pose significant issues<br />

and the Council encourages entries based on practical<br />

designs to kitchen, bathroom and storage layouts to meet<br />

tenants’ needs over time.”<br />

All entries must be completed by a registered architect<br />

or under the direction of a<br />

registered architect, and should<br />

be prepared to the preliminary<br />

design stage, including the cost<br />

of the design. Entries will be<br />

judged on the use of Universal<br />

Design Principles and the<br />

Lifetime Design Foundation’s<br />

Life Standards.<br />

The winner will be asked to enter<br />

negotiations with the Council’s<br />

Housing Upgrade Project to<br />

develop their proposal with a<br />

view to constructing the design.<br />

A total prize pool of $4000 is<br />

available. The prize for the<br />

selected finalist will be $2000,<br />

with additional prizes of $1000<br />

awarded to finalists placed in the<br />

top three.<br />

More information and<br />

competition guidelines can be<br />

found on the Council’s website<br />

www.Wellington.govt.nz/<br />

For further information, please<br />

contact:<br />

Sinead Roe, Accessibility<br />

Advisor, 803 8661<br />

Michelle Brooker, Council<br />

Communications, 801 3281 or<br />

mob 021 227 8170.<br />

Sinead roe<br />

11


2008 AUSTRALIAN AND NZ <strong>SPINAL</strong> CORD<br />

SOCIETY ANNUAL SCIENTIFIC MEETING.<br />

T<br />

he Burwood Spinal Unit (BSU) hosted the 2008<br />

Australian and New Zealand Spinal Cord Society<br />

Annual Scientific Meeting. Whilst this is an<br />

annual conference Christchurch last hosted our<br />

multidisciplinary colleagues from throughout Australasia in 1996.<br />

Principle sponsor was the Accident Compensation Corporation.<br />

There was a flurry of activity around the registration desk on<br />

the Wednesday morning as participants collected their Dysport<br />

sponsored conference satchel. Names were put to faces and the<br />

networking was already beginning. Mudipharma sponsored<br />

the lanyards, behind the name badge was a mini programme.<br />

No excuses for being late or lost!<br />

Pre conference sessions were held on the Wednesday morning<br />

and then it was time for the formalities to begin. Hector<br />

Matthews welcomed our visitors in the traditional Maori way<br />

with a Mihimihi. Christchurch Mayor Bob Parker opened the<br />

ceremony and expressed his delight in welcoming our nearly<br />

300 visitors to our magnificent city and the wider Canterbury<br />

region. He also left us with a lasting memory – that in the<br />

form of Shagger Acland. Picking up on the joke Bob shared<br />

re a hermit potentially lost in the snow, Rick picked up on this<br />

title and needless to say the photo memories we now have<br />

will haunt him for some time to come (that and the friendly<br />

plastic sheep he now owns!)<br />

A recent change by the ANZSCoS executive is to ensure<br />

that each year a different discipline is the keynote speaker.<br />

As a member of the nursing profession I was excited<br />

that in 2008 it was the year for nursing to undertake the<br />

keynote address. Dr Fintan Sheerin from Trinity College<br />

in Dublin, Ireland provided a thought provoking address<br />

about attitudes towards persons with disability. This<br />

differed from his original abstract of detailing the journey<br />

after acute spinal cord injury (SCI). At the beginning of his<br />

session he detailed a conversation with someone he met<br />

who had a SCI who told him as an able bodied person he did<br />

not have the right personal experiences to undertake such a<br />

talk. Although Dr Sheerin is an expert professional in the field<br />

of spinal cord nursing he listened to the advice he was given.<br />

Nevertheless his entertaining presentation should last in our<br />

memories and remind us to critique our attitudes towards all<br />

forms of disability both within the acute, rehabilitation and<br />

community environments.<br />

Stephanie Williams – CEO, ANZSCIN then provided<br />

an overview of the Australia New Zealand Spinal Cord<br />

Injury Network and their role in facilitating SCI research.<br />

Stephanie stressed that whilst their motto is communication,<br />

collaboration and cure they respect all fields of SCI research.<br />

Using cure is contentious for some but for sponsors/funders<br />

and those donating the word “cure” is more attractive. For<br />

further information about ANZSCIN go to their website<br />

www.anzscin.org.<br />

This year the Discipline Specific Meetings included<br />

Vocational Rehabilitation for the first time, a factor that the<br />

BSU can be very proud, of as Arron Perriam and the rest of his<br />

Kaleidoscope Team who are now also based at the Auckland<br />

Spinal Rehabilitation Unit play an extremely important role<br />

within the rehabilitation team. From the reports I heard each<br />

discipline had a very productive meeting.<br />

The Welcoming Ceremony saw us all pile into the trade<br />

hall to view all the sponsors that were enticing us with<br />

their products An entertaining performance from the<br />

Papanui High School’s Kapa Haka group was met with<br />

rapturous applause.<br />

Our theme was “Where to from Here?” Asking the<br />

questions was catergorised into four themes. “Can we<br />

fix it?”, “What is rehabilitation?”, “Can we stop ourselves<br />

from wearing out?” and “Use it or Lose it?” A priority of<br />

the Organising Committee which included Dr Rick Acland,<br />

Dr Leanne Parker, Julian Verkaaik, Jo Nunnerley, Jason<br />

Nicholls and myself was to increase the involvement of<br />

persons with SCI and therefore, the four keynote sessions<br />

was introduced by an individual with a SCI who had a close<br />

association with the question being asked. The DD & DF<br />

Heads Charitable Trust made this possible by providing<br />

eleven scholarships for persons with SCI to attend.<br />

The scientific content was put together by a group of<br />

multidisciplinary individuals from throughout the BSU<br />

as well as some assistance from representatives from the<br />

Burwood Academy of Independent Living and the New<br />

Zealand Spinal Trust to ensure the voice of the person<br />

with SCI was also heard. The scientific committee had an<br />

arduous task. Over 80 abstracts were received and these<br />

were assessed, catergorised, debated over and finally we<br />

made a decision on who would present orally and those<br />

who would be accepted as a poster.<br />

Over 50 poster presentations were perused throughout the<br />

three days of the conference during morning and afternoon<br />

tea and at lunchtimes – lots of networking achieved around<br />

several posters. The theme first up on Thursday morning<br />

was “Can we fix it?” and the invited speaker Dr Michael<br />

Fehlings was introduced by Hamish Ramsden on behalf of<br />

Catriona Williams and the Catwalk Trust who sponsored<br />

the session. (www.catwalk.org.nz)<br />

Dr Fehlings, a highly respected professor of neurosurgery<br />

and the Krembil Chari in Neural Repair and Regeneration<br />

provided insight into the significant advances in<br />

minimising the impact of secondary injury following SCI<br />

and promoting neural regeneration. He discussed several<br />

trials being conducted within this field thus providing<br />

meaningful data that attaining effective treatments for SCI<br />

will one day not be just a pipedream.<br />

After morning tea Rob Macdonald introduced Pat Dorsett<br />

to speak to the New Zealand Spinal Trust sponsored theme<br />

of “What is rehabilitation?”<br />

Using qualitative data Pat advised us that there are many<br />

personal factors and structural issues that affect “what is<br />

12


ehabilitation: Rehabilitation has changed over the last ten<br />

years”. Pat proposed a model of adjustment to SCI.<br />

The Alan Clarke Memorial Lecture is an annual event<br />

jointly held by the Burwood Academy of Independent<br />

Living and the University of Otago, Christchurch. This<br />

year it was held in conjunction with the conference. Julian<br />

Verkaaik representing BAIL and Justin Roake representing<br />

the UoO,C introduced Dr Robin Youngson who stated that<br />

he was honoured to be invited to present the Alan Clarke<br />

Memorial Lecture. He delivered a magnificent presentation<br />

on the need for compassion in the medical profession.<br />

Jennifer Dunn and Dr Alistair Rothwell provided an update<br />

on Hand Surgery in New Zealand at the Friday morning<br />

breakfast session.<br />

Richard Smaill secured sponsorship from the Health Research<br />

Council of NZ and the Canterbury Medical Research<br />

Foundation enabling us to invite Dr Susie Charlifue from<br />

Colorado, USA to present to us her experience of aging in<br />

SCI under the topic of Can we stop ourselves from wearing<br />

out? Paul Stafford with his 20 plus years of experience after<br />

SCI was an appropriate choice to introduce Susie. Susie, a<br />

psychologist by trade has a wealth of experience relating to<br />

the likely health and psychological complications that occur<br />

in the years following a SCI.<br />

She presented findings from a longitudinal study that has<br />

spanned over 15 years which evaluated physical, practical<br />

and emotional impact of the process of ageing with SCI.<br />

These included cardiovascular risk factors and bladder<br />

and bowel changes. Psychologically, participants reported<br />

on the changing patterns of life satisfaction, perceived<br />

stress, depressive symptomology, global quality of life and<br />

community participation.<br />

Our last invited speaker was introduced by Bill Gruar. The<br />

last keynote session was titled “Use or lose it?”. Professor<br />

Richard Faull is certainly an expert in his field as well as public<br />

speaking. He presented his work on regeneration in the<br />

brain at a level that everyone in the room could understand.<br />

Research has shown enhanced stem cell proliferation and<br />

neurogenesis in the diseased human brain which indicates<br />

that the brain has the capacity to repair itself through the<br />

production of new replacement neurons. A pathway for<br />

neurogenesis in the human brain has also been identified.<br />

This suggests that there is a possibility that stems cells in the<br />

adult human brain may provide a means for new treatment<br />

strategies for brain diseases. It was very captivating and<br />

hopefully one day this research in the brain will be able to<br />

be replicated in the spinal cord. In the afternoon Dr Xiong<br />

chaired a panel discussion regarding the timing of reduction of<br />

cervical spine dislocations, surgical fixation and appropriate<br />

use of investigations. Also, ethical dilemmas in relation to<br />

a patient’s choice to die and decision on not reclassifying a<br />

patient based on medical grounds.<br />

The last session to wrap up the conference before the<br />

evening entertainment began was kicked off by Rick Acland.<br />

Representatives from the Perth Spinal Unit provided a brief<br />

introduction to next year’s annual scientific meeting which<br />

will be held from 25-27 November 2009. Their theme follows<br />

on from ours – Are we there yet? Register your interest on<br />

www.anzscos2009.org.au.<br />

Fintan Sheerin also brought it all together. He stated he was<br />

honoured to be here and it was one of the best conferences<br />

he had attended. “ANZSCoS is also somewhat unique in<br />

that it is truly interdisciplinary, recognising and valuing the<br />

contributions from all participants in the team – persons with<br />

spinal compromise, professionals, researchers and carers. I<br />

don’t think that I have experienced such collegiality before.”<br />

He stressed the need to work collaboratively locally, nationally<br />

and internationally – across all disciplines and of course with<br />

persons with SCI. If you missed it the conference, the entire<br />

conference proceedings are on DVD.<br />

It was now time to put on the frocks and gladrags and network<br />

in the best way possible – the conference dinner.<br />

Shagger Acland was once again our MC. He started the evening<br />

by thanking our Conference Dinner Sponsor Medtronic. It was<br />

then down to thanking all our invited speakers and to present<br />

them with a little token of kiwiana. Finally it was time to thank<br />

the keynote speaker Fintan Sheerin who also had a gift for Rick.<br />

A shearer’s singlet with Shagger Acland on the front and toilet<br />

man on the back (I still don’t think he would know where to<br />

direct those in need to go, where to go!!) The shearer’s singlet<br />

was accompanied by some gumboots and a blow up sheep!!!<br />

All of a sudden the sound of riverdance was heard and the<br />

raucous laughter continued as Rick and Fintan danced across<br />

the stage.<br />

It was then time to eat, drink and dance the night away with<br />

Barock entertaining us all. But the surprises weren’t over yet as<br />

Julian Verkaaik showed what a talented man he is and thrilled<br />

us all with his rockstar performance. The dance floor was<br />

jammed! For the organising committee it was hard to believe<br />

it was all over. Two of the best decisions we made were firstly,<br />

to host the conference at the Christchurch Convention Centre.<br />

What a magnificent venue. Secondly, Conference Innovators –<br />

Fantastic – without the expert assistance of Helen Shrewsbury<br />

and Rachelle it would have not run so smoothly.<br />

karen marshall<br />

13


MY ANZSCoS CONFERENCE<br />

I was one of the fortunate recipients that received a<br />

scholarship from the DD Heads Trust to attend the ANZSCoS<br />

Conference held in Christchurch – November 2008. This<br />

being my first ANZSCoS Conference combined with<br />

knowing little about the area of SCI (spinal cord injury), I<br />

didn’t really know what kind of conference to expect, and<br />

what I would gain from this. After the first day, I soon<br />

realised that attending this conference was a great way<br />

to learn and extend my knowledge about the area of SCI,<br />

while also increasing my understanding around some of the<br />

key elements & aspects to a person’s spinal rehabilitation<br />

journey. It gave me a greater insight into the area of SCI<br />

and different aspects to the rehabilitation process. I had<br />

the opportunity to learn about some of the latest research<br />

trends and rehabilitation approaches overseas, and what’s<br />

effective and what’s not, in and around the area of SCI.<br />

Attending the ANZSCoS Conference also gave me the<br />

opportunity to network with both people who have spinal<br />

injuries themselves, as well as those who work both in NZ<br />

and also overseas in the area of SCI.<br />

Relating my ANZSCoS experience to some of my own<br />

difficult times which I’ve experienced in life so far, such<br />

as having a speech impediment, I believe that even if<br />

your role in a person’s rehabilitation journey isn’t always<br />

big and dramatic , it could be something as simple as<br />

just being there to encourage someone along the way<br />

during the rehabilitation process. You as one of their<br />

support avenues, in what ever role that maybe. It may<br />

not seem a big deal to you, but in the eyes of the person<br />

going through the rehabilitation process it might mean<br />

everything and a contributing factor to the final outcome<br />

in their rehabilitation. By attending conferences and<br />

other professional development events, even though<br />

they might not always be in the area where you know<br />

heaps about, it provides an opportunity for one to extend<br />

beyond your comfort zones and learn about areas which<br />

maybe totally new to you. Sometimes by learning about<br />

things which we might not be familiar with, we are then<br />

in a better position to educate others and the wider<br />

community.<br />

Marty Van der kley<br />

Ortho-Bionomy is a gentle, non-invasive form of body<br />

therapy. It is highly effective in working with pain associated<br />

14


LET FLY!<br />

Let Fly is about a passion for flying and a battle against bureaucracy.<br />

Barry Cardno had always wanted to be a pilot being<br />

inspired by his two boyhood heroes Sir Tim Wallis and<br />

his uncle Peter Plew. Right from a young age he was hellbent<br />

on getting his pilot’s licence as soon as possible after<br />

leaving school and did so after a short stint working at the<br />

Customs Department. Being keen to get his foot in the door<br />

for top-dressing flying he managed to get a job as a loader<br />

driver which was a common way that pilots did their<br />

“apprenticeship”, the low-level aerial man oeuvres of topdressing<br />

piloting appealed to him. He soon found however<br />

in his first two jobs that training and safety standards were<br />

severely compromised due to time constraints and efforts<br />

to maximize profits.<br />

On 8th of May 1995 as a naïve 21-year-old keen to impress<br />

his boss who was away for a few days he had an accident,<br />

his short life as a pilot was shattered. So serious were his<br />

injurie that he was kept in a coma for two weeks, suffering<br />

amongst other injuries, spinal (paraplegia) and a brain<br />

injuries. Investigations after the accident tended to indicate<br />

pilot error as the cause, causing great distress to Barry as<br />

he felt no consideration was given to aircraft maintenance,<br />

safety standards, training or time constraints.<br />

Rehabilitation was slow and arduous but Barry was keen to<br />

get back into life. After about a year he got a part-time job<br />

back at customs following this up with a stint in America<br />

learning to be a disabled flyer, then back in Wanaka he<br />

developed a passion for skiing. His desire to fly again was<br />

undiminished but due to the bureaucratic hoops he had<br />

to go through as a result of the accident he lost motivation<br />

until he came into contact with Sir Archibald McIndoe’s<br />

Guinea Pig Club, a club of pilots seriously injured and<br />

burnt during World War Two.<br />

After years of perseverance on the 6th of August 2006<br />

Barry got medical clearance and got his unrestricted pilots<br />

licence. Since his accident Barry’s battle has been with The Civil<br />

Aviation Authority and the Transport Accident Investigation<br />

Commission. He feels that the investigators into aerial top<br />

dressing accidents continue to ignore fatigue, excessive<br />

pressure to fly, lack of<br />

training and poorly<br />

maintained aircraft.<br />

The book deals well<br />

with Barry’s passion<br />

and obstinace to get<br />

back into the cockpit<br />

but the overriding<br />

theme is his<br />

impression, or lack<br />

thereof of standards<br />

in the aerial top<br />

dressing industry.<br />

Let Fly, written<br />

by Barry Cardno,<br />

published by<br />

Longacre Press 2009<br />

15


UP AND AWAY ON A DC3<br />

Last year at the CatWalk “Up and Away” Charity Auction<br />

and Dinner, a flight was purchased by James Flynn,<br />

owner of Coverstaff Recruitment. Coverstaff took only<br />

four seats and they arranged for Hamish Ramsby to<br />

make the remaining seats availiable to the staff at<br />

the Burwood Spinal Unit and the NZ Spinal Trust.<br />

Admittedly, I was at the Ball and thought to myself how<br />

marvelous it would be to go on the flight, so was delighted<br />

to learn that the Spinal Trust had also been gifted nine<br />

seats.<br />

Saturday rolled around and Christchurch awoke<br />

to a picture perfect day with blue skies and perfect<br />

temperatures. Everyone assembled in one of the hangers<br />

out at the airport and enjoyed a few delicious treats from<br />

Ma Maison before boarding the DC3.<br />

As we gobbled down our delicious treats, the star of the<br />

show arrived, buffed and quietly austere. Although not<br />

a great rugby fan, I had my photo taken with Mr Richie<br />

McCaw and politely questioned his flight capabilities. He<br />

seemed to know his stuff so I accepted him as a welcome<br />

member o f the group, after all, it’s always handy to have<br />

another pilot on board.<br />

There were five of us with spinal injuries who had signed<br />

up for the ride, and although we could all muster a few<br />

steps, four went up in the forklift while I sat by and<br />

waited for the steps to be brought over. It wasn’t because<br />

I preferred to walk up the steps with red carpet attached<br />

(although showing off my retro 1940’s coat was a bonus),<br />

it was more to do with blood pressure and being unable to<br />

stand still on the forklift for too long.<br />

After everyone was seated and emergency exits had been<br />

pointed out, the plane took off. The first thing I noticed<br />

was that the plane seemed to stay level as it took off, no<br />

steep inclines were felt, just a gentle glide up to the 1000<br />

feet mark.<br />

We circled around Christchurch city which was bathed in<br />

sunlight and then flew over to Banks Peninsula. Everything<br />

below us lay in miniature form and it was great to gain a<br />

better insight into distances and proportions which in a<br />

car can seem so different.<br />

After the half hour flight, we circled back towards the<br />

airport and landed perfectly. Richie then announced he was<br />

giving the five wheelchair passengers a rugby ball signed<br />

by him. As I accepted my ball, I thought to myself, should I<br />

take up rugby? I then felt a pang of guilt as I realised I was<br />

probably the most unenthusiastic rugby buff Christchurch<br />

had ever seen. I wondered whether Richie had been able<br />

to tell that I knew nothing about him apart from the fact<br />

he was a sports star, maybe cricket or rugby or something<br />

involving a ball? Blasphemous!<br />

Everyone piled out of the plane and wandered back into<br />

the hanger to have yet some more yummy munchies, a<br />

perfect end to a perfect outing.<br />

From everyone at the Spinal Trust and Burwood Spinal<br />

Unit, a big thank you goes out to James Flynn for giving<br />

us all such a magical memory I’m sure people won’t forget<br />

for a long time to come.<br />

CLAIRE mackie<br />

16


ORTHOBIONOMY<br />

with acute and chronic stress, injury and problems associated<br />

with postural and structural imbalances. It was developed by<br />

British osteopath Dr Arthur Lincoln Pauls. From his experiences<br />

as a Judo instructor and through his training as an osteopath,<br />

he developed ways of working with the body that honoured<br />

the bodys’ inherent wisdom and used its innate ability to self<br />

correct and self heal.<br />

Ortho-Bionomy supports the self-correction capacity of the<br />

person through the use of gentle movement and positioning<br />

of the body combined with light compression into the joints<br />

in order to facilitate the flow of energy and a deep sense of<br />

relaxation. The Practitioner works with the body to facilitate<br />

the change of stress and pain patterns.<br />

Long lasting changes are initiated<br />

by re-educating the clients body<br />

so that it can effectively maintain<br />

balance and optimal function on<br />

its own.<br />

A strong focus is placed on the<br />

comfort of the individual. No<br />

force or manipulations are used.<br />

The Practitioner may recommend<br />

exercises that can be done at<br />

home to facilitate the healing<br />

process initiated in the session.<br />

Ortho-Bionomy works by<br />

stimulating the body’s self<br />

correcting and self balancing<br />

reflexes by way of the appropriate<br />

nerve receptors located in<br />

our joints and muscles. The<br />

Practitioner uses movement<br />

and gentle compression to find<br />

positions of comfort that allow<br />

the body to release stress and pain<br />

patterns which are contributing<br />

to the discomfort.<br />

By slightly exaggerating these<br />

positions of comfort, the nervous system registers the<br />

feedback from the proprioceptors and stimulates a relaxation<br />

response which allows the body to re-align itself. In this<br />

way the Practitioner is able to release pain patterns without<br />

causing pain.<br />

Clients report experiencing pain relief, increased range<br />

of motion, greater ease of motion, structural realignment,<br />

increased relaxation, more efficient functioning on all<br />

levels, a greater sense of wellbeing, postural balance,<br />

energy systems balance, faster healing process, increased<br />

vitality, emotional balance, and an increased sense of<br />

wholeness.<br />

Because of the gentle and non-invasive nature of the work, an<br />

Ortho-Bionomy Practitioner can work with many different<br />

problems and conditions such as muscle and joint pain,<br />

injuries, chronic pain conditions, structural imbalances,<br />

autoimmune disturbances and general stress conditions.<br />

Common conditions Ortho-Bionomy can address include:<br />

Painful ankles and feet<br />

Joint pain and injuries<br />

Aches and pains<br />

Whiplash<br />

Repetitive strain injuries<br />

Chronic neck and back pain<br />

Post-surgery rehabilitation - joint replacements<br />

Scoliosis and kyphosis<br />

Fibromyalgia<br />

Trauma<br />

Headaches and migraines<br />

Sciatic pain<br />

MEIKA’S TESTIMONY.<br />

I have been a paraplegic for the past 17 years and have now been<br />

attending orthobionomy sessions with Sheryl on a regular basis<br />

for the past 2 years.<br />

Prior to finding out about orthobionomy,<br />

I had been having regular massage to help<br />

with back/shoulder and neck pain. I did<br />

find the massage good, however, the pain<br />

would return after only a few days and the<br />

problem never seemed to be fixed.<br />

My introduction to orthobionomy was<br />

through a friend who’d had good results<br />

and so I thought that I’d give it a try.<br />

After the first session, I found instant<br />

relief to my pain and on returning home<br />

had extremely relaxed arms and shoulders<br />

to the point that they felt floppy as I was<br />

so used to them being stiff. I also found<br />

that my balance was much improved and<br />

seemed to come more from within my<br />

internal core rather than by me trying<br />

to hold it with muscles. After a session,<br />

sleeping was bliss!<br />

Longer term, after regular sessions, I<br />

found that I could maintain this balance<br />

and also stay relatively pain free. I also<br />

found improvement with my circulation<br />

which aided in warmer legs and feet and<br />

also helped with skin and healing quite significantly. There was<br />

noticeable muscle tone improvement in the muscles below my<br />

level of injury that hadn’t worked in years; this included my butt<br />

which is great when sitting all day.<br />

Extending on from this, other improvements that have been<br />

noticeable and permanent for well over a year is my posture, with<br />

my scoliosis nearly gone.<br />

I now have a greater awareness of my body and where my legs are,<br />

and have started to have some stomach and lower back muscles<br />

return.<br />

I am now pregnant with my second baby and have been finding<br />

the sessions really helpful with the changing of my pelvis. This has<br />

really helped my upper body in terms of being more comfortable<br />

and with having room for the baby with sitting all day and helping<br />

with my breathing.<br />

Overall I have experienced some extremely good results and would<br />

recommend having regular orthobionomy sessions to anybody.<br />

claire mackie<br />

Sheryl Ladkin<br />

Registered Ortho-Bionomist<br />

Ph: (03) 980 4225 Cell: 021 165 7454 laughing_crow@hotmail.com<br />

17


A MOTORSPORT TALENT ~<br />

NEVER TO BE STUBBED OUT<br />

At the 2007 New Zealand Jetsprint Championship<br />

prizegiving I presented the Rookie of the year award to<br />

Robert Stubbs or Stubbsie to his friends. In his first season<br />

Jetsprinting Stubbsie drove to an impressive fourth place<br />

in the Group A Championship.<br />

Jetsprinting is an action packed thrilling motorsport on<br />

water. A jetsprint course consists of a series of channels<br />

3 to 5 metres in width, with a water depth up to 1 metre.<br />

Boats have a two-person crew, driver and navigator, and<br />

run individually against the clock through the channels<br />

in a predetermined order. Competitors are given a<br />

diagrammatic directional map which forms the correct<br />

racing rotation. The drivers and navigators study and<br />

memorise the layout that will have between 25 to 30<br />

directional changes in a run that takes 45 to 65 seconds<br />

to complete. The navigator indicates the next change in<br />

direction by hand signals, although some competitors<br />

are using intercom systems. Each competitor has<br />

three qualifying runs, with the fastest 16 in each class<br />

progressing to the elimination rounds that are raced on<br />

the “sudden-death” principle. The field is halved in each<br />

round, reducing from 16 to 8 to 4, down to the two crews<br />

that contest the Final.<br />

Whilst the Superboats have no engine restrictions the<br />

Group A class does. This popular international class<br />

attracts the largest competitor entries of the three classes.<br />

Racing is fiercely competitive and every year the standard<br />

of equipment and level of professionalism steps up, usually<br />

only fractions of a second separate each driver, action<br />

packed jetsprint racing at its best! Engines are restricted to<br />

412 cubic inch engines with iron block and cylinder heads<br />

and a maximum of 8 cylinders. Cylinder heads restricted<br />

to OEM 23 degree with two valves per cylinder, pushrod<br />

operated. Wet sump lubrication system. Induction via<br />

single 4-barrel carburetor. 100 octane Avgas fuel. Engines<br />

not exceeding 365 cubic inches maximum capacity may be<br />

fitted with aluminium cylinder heads conforming to the<br />

rules. Generally Chevrolet and Ford V8 engines share<br />

common rules, but specific components are listed by part<br />

number. The top motors produce up to 630 horsepower.<br />

After the success of his first season Stubbsie was hooked<br />

and a new boat was ordered in order to compete in the<br />

2008 season. However tragedy was to strike in August<br />

2007 when a motorcross event went horribly wrong.<br />

On the 5th August while competing in a local club race<br />

day he was involved in an accident with a number of bikes<br />

and fell heavily. After being concussed he came to with the<br />

realisation of everybody’s worst fear – he could not feel<br />

his legs!<br />

Stubbsie was airlifted to Auckland’s Middlemore Hospital<br />

that night with a dislocation of T3/4 vertebrae, three<br />

broken ribs, two broken bones in his left hand, and severe<br />

muscle and tissue damage to his left shoulder after falling<br />

and being hit by other bikes.<br />

He spent a month at Middlemore after being operated<br />

on and then the next three months at Auckland Spinal<br />

Rehabilitation Unit rehabilitating to the changes of life that<br />

come with a spinal cord injury. This was a tough time given<br />

how physically active he was with sport and directing his<br />

own logging business. Luckily he had strong support from<br />

Tanya his partner and kids Jalea and Regan, the rest of his<br />

family and very close friends he had surrounded himself<br />

with through his life.<br />

One thing about Stubbsie is that he is honest and up front.<br />

He openly admits he struggled with his injury and the<br />

impact it had on his life.<br />

After his Rookie success Stubbsie desperately wanted to be<br />

back racing. Rex Briant – the current New Zealand Group<br />

A champion and owner of the White Pointer boats was<br />

adamant that it could be done and together these mates<br />

were determined to see him back out on the water.<br />

They had the hull – Rex’s own champion raced White<br />

Pointer Stinger and the engine a 406 chev which puts out<br />

about 630hp. That was the easy part. At 6ft – getting him<br />

up over the side of the hull, past the roll cage without injury<br />

to himself or others meant devising a hoist system. The<br />

hoist is a White Pointer made gantry which is mounted on<br />

the boat trailer. It has a boat trailer super winch fitted to it.<br />

To avoid using a hoist sling some lifting straps have been<br />

sewn into Stubbsie’s overalls. A couple of karabiners are<br />

attached and he is winched into the driver’s seat.<br />

Safety is paramount in the jetsprinting sport, alongside<br />

flame proof overalls, neck braces, helmets, gloves<br />

and shoes, five point safety belts keep the drivers and<br />

navigators from being tossed around. To prevent his legs<br />

from moving and causing potential injuries to his lower<br />

limbs they are strapped down to the bottom of the boat<br />

through a couple of eyes. The strap is then hooked to the<br />

quick release on the safety belts. In case of emergency out<br />

on the track if the safety belts are released so are his legs.<br />

That way he can be assisted out of the boat in a hurry by<br />

the RSQKRU.<br />

Fire is a potential hazard and so an on board fire system<br />

was installed so either Stubbsie or his navigator can just<br />

turn the nozzle on the fire extinguisher and it will suppress<br />

any fire in the engine compartment. This sounds drastic<br />

18


ut a plan of action for worst case scenarios needed to be<br />

accommodated. A rollover that ends upside down in the<br />

water can also occur. In case of this emergency an aqua<br />

lung has been fitted underneath the driver’s seat. The<br />

mouth piece is velcroed to Stubbsie’s leg on his race suit.<br />

So when racing so he can grab it and carry on breathing<br />

until help arrives if he ends up upside down in the water–<br />

which has happened to others and help arrived within 8<br />

seconds!<br />

So with the safety side covered all that was left was to<br />

devise the controls to drive the boat. No brakes so that<br />

one was easy! Devising the throttle proved to be more of<br />

a challenge. After several attempts they settled on their<br />

design of a half steering wheel with motorbike twist grip<br />

slipped on it for throttle control. However, double the<br />

concentration is required to manoeuvre around the track<br />

when using a hand controlled throttle – speed is necessary<br />

to propel the boat forward and around the tight twisty<br />

track – buttoning off<br />

at the wrong time<br />

can have dramatic<br />

c o n s e q u e n c e s .<br />

Stubbsie has not only<br />

mastered this skill<br />

but has also proven<br />

to be competitive<br />

throughout the season.<br />

During 2007 Stubbsie<br />

double drove “Dirty<br />

Water” with mate<br />

Steve Lafferty. Steve<br />

had no hesitation in<br />

jumping into the silly<br />

seat to navigate for<br />

Stubbsie this season.<br />

Steve had previously<br />

navigated for Rex Briant who played a vital part in getting<br />

Stubbsie back on the water. When talking about Stubbsie<br />

returning to the sport there is evidence of emotion in Rex’s<br />

voice. He undoubtedly would do anything for his mate in<br />

order to see him racing competitively again. Glenn Mason<br />

(Rex’s navigator) is another key person in this crew. Rex,<br />

Glenn and Steve all competently transfer Stubbsie from<br />

Quad Bike/Wheelchair to Driver’s seat and vice versa via<br />

the winch and hoist system efficiently. This is because a<br />

quick crew change is vital in order to get back to the launch<br />

ramp for the second crew to complete their qualifying<br />

or elimination round. A Quad Bike makes it easier for<br />

Stubbsie to move around the pits and to check out the rest<br />

of the competitors from the viewing area of the track.<br />

Now the story would not be complete without the touchy<br />

feely stuff and the impact that participating in a sport that<br />

sends the adrenaline skyhigh has had. Stubbsie says “Being<br />

back in the boat has given me back the adrenalin rush I<br />

used to thrive on and never thought would experience<br />

again. One minute while racing where being paralysed is<br />

put to the back of your mind for a change and forgotten<br />

about even if it is just for a minute.”<br />

Stubbsie explains that jetsprinting has given him<br />

something to look forward to and be motivated for. He<br />

now has the opportunity to spend many enjoyable hours<br />

in the workshop with mates working on the boat. Not to<br />

mention getting out of town when racing and catching up<br />

with all the good people involved in jetsprinting who are<br />

all very supportive and encouraging. I guess that even<br />

meant me when I asked “are you hands painted on” when<br />

he wanted me to push his chair across the uneven ground<br />

to attend drivers briefing.<br />

Stubbsie reflects back to when he was in hospital. “All<br />

these things when you are sitting in the rehab unit go<br />

round and round in your head and you are left thinking<br />

it is all stuff you will never be able to do again, life will be<br />

boring and has pretty much ended for you!”<br />

“Sure it’s not the same and never will be – getting in and<br />

out of the boat, working on the boat etc, but my mates are<br />

happy to do all those bits for me while I sit there annoying<br />

them helping where I can. They are just happy to see the<br />

smile and enjoyment I get from having a good run and<br />

competing against able bodied people.”<br />

The 2009 New Zealand<br />

Jetsprinting Championship<br />

kicked off in Wanganui on<br />

January 27th. Getting time<br />

in the seat and improving<br />

at each meeting is the focus<br />

for the time being. This did<br />

not stop him from entering<br />

The Hire Company<br />

UIM World Jetsprinting<br />

Championship which was<br />

held on Jan 3rd and 4th at<br />

Meremere and Jan 10th and<br />

11th in Featherston. He is<br />

now ranked 16th in the<br />

world.<br />

However Stubbsie has<br />

already proven that he is<br />

competitive. Recently he competed in the second round<br />

of the NZ Championship racing to 7th place at his home<br />

track in Gisborne. The aim of this season is too improve his<br />

times and position as his confidence and technique grows.<br />

In his last run of the championship he ended a credible<br />

9th and finished the 2009 season in 8th place. Although<br />

he was hoping for a better result he has gained valuable<br />

track time and will be one to watch in the future and will<br />

be aiming for a podium spot when racing begins again at<br />

the end of the year.<br />

Live viewing of this season’s Jetsprinting championship<br />

is now complete. However coverage of the 2009 New<br />

Zealand Jetsprinting Championships and The 2009 Hire<br />

Company UIM World Championships will feature on Sky<br />

Sports and TV3 – which commenced early February. There<br />

is some action still available to watch on www.speedbox.<br />

tv. It is free to watch once you register. The UIM World<br />

Jetsprint Championship is being held again in Australia<br />

in November. All NZ crews are frantically trying to find<br />

sponsorship to head across the Tasman. This time there<br />

should be several American crews also taking up the<br />

World Challenge. Keep up to date with future events and<br />

of course with Stubbsie’s progress on www.jetsprint.co.nz<br />

and www.jetpro.co.nz.<br />

robert stubbs<br />

19


Photos of<br />

ball<br />

20<br />

2

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