CURE Childhood Cancer Annual Report 2013-2014

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n a m e d f u n d s The Strong, Steady Support of Named Funds. Named Funds offer a way for friends, family members, neighbors, colleagues and others to commemorate a child who has battled cancer or an individual who has demonstrated a dedication to the field of childhood cancer. In 2013-2014, CURE’s Named Funds raised an astounding $632,610. Th e Ca r l o s S. A lva r a d o, M.D. P e d i at r ic Ca n c e r R e s e a rch F u n d This fund is named in honor of Dr. Carlos Alvarado, a dedicated pediatric oncologist who retired in 2009 after nearly three decades of service at Children’s Healthcare of Atlanta. Dr. Alvarado skillfully and compassionately cared for children with cancer while also contributing significantly to a search for a cure through his research efforts. The Carlos S. Alvarado, M.D. Pediatric Research Fund has continued his work into the future by funding lifesaving research at the Aflac Cancer and Blood Disorders Center of Children’s Healthcare of Atlanta. Th e Tr e n t o n W. K i n d r e d R e s e a rch F u n d This fund is named in honor of Trenton Kindred, diagnosed with stage IV neuroblastoma just after his first birthday. Trenton is a survivor, now 11, playing football and living life to the fullest, notwithstanding health challenges from the extensive treatment he received to save his life. Believing a cure for neuroblastoma is possible in our lifetime, the Kindred family is dedicated to furthering research for other children. In 2013-2014, the Trenton Kindred Research Fund raised more than $43,000 to support neuroblastoma research spearheaded by Dr. Kelly Goldsmith at the Aflac Cancer and Blood Disorders Center of Children’s Healthcare of Atlanta. P r e s s On To Cure Ch i l d h o o d Ca n c e r The Press On Fund was formed in June 2006, by Stephen and Erin Chance after their threeyear-old son, Patrick, was diagnosed with stage IV neuroblastoma. Three years later, the Simkins family — lifelong friends of the Chances — had their own run-in with childhood cancer, when Brennan Simkins was diagnosed with acute myeloid leukemia (AML) on the eve of his 7th birthday. While the source of Brennan’s AML is a chromosomal abnormality, Brennan is at high risk for developing treatment-related AML. With both boys battling cancer, the Simkins and Chance families banded together and expanded the mission of the Press On Fund to include research for AML. Tragically but heroically, Patrick Chance passed away on his 9th birthday — January 9, 2012. The Press On Fund provides grants to scientists conducting research aimed at developing novel, targeted therapies for neuroblastoma and AML. Through generous individual gifts and events, Press On raised $372,595 for novel neuroblastoma research at Memorial Sloan Kettering Cancer Center and St. Jude Children’s Research Hospital. 22
c u r e ch i l d h o o d ca n c e r 2013-2014 a n n ua l r e p o r t Th e S a m Robb F u n d The Sam Robb Fund was created in 2007 to honor the life and legacy of Sam Robb, who lost his valiant fight with cancer on June 25, 2007. The fund has raised more than $430,000 to train young pediatric oncologists through the funding of the Sam Robb Fellow at the Aflac Cancer and Blood Disorders Center of Children’s Healthcare of Atlanta and Emory University School of Medicine. Sam’s bravery, spirit and determination live on, and he continues to inspire other childhood cancer patients with his mantra, “Fightin Till the Last Breath.” Proceeds from The Sam Robb Fund were used to fund the Sam Robb Fellow at Emory University School of Medicine. The Fund also supports CURE’s Open Arms Program, which was very meaningful when Sam was battling cancer. The Sam Robb Fund hosted golf and basketball tournaments, fun runs and other events to raise more than $82,000. Th e Cat i e Wi l k i n s M e m or i a l F u n d The Catie Wilkins Memorial Fund continues in memory of Catie Wilkins, who was diagnosed on her first birthday with pediatric brain cancer. She fought courageously until a virus took her life at age four. The Fund’s primary purpose is to support clinical research which evaluates and treats the side effects of treatment for childhood cancers, as well as other research for more effective and less toxic treatments. The Catie Wilkins Fund raised money through two sold out “Sisters on a Journey” dinners held in remembrance of Catie’s loving spirit and determination. With the $98,000 raised, the Fund supported brain tumor research conducted at the Aflac Cancer and Blood Disorders Center of Children’s Healthcare of Atlanta. Th e M a d d i e Br i s c oe R e s e a rch F u n d In honor of Maddie Briscoe, this fund supports neuroblastoma research. In 2010, Maddie was diagnosed with stage IV, high-risk neuroblastoma, at age seven. Maddie’s fighting spirit and courage inspired her. Maddie’s fight rallied the Briscoe family to create this fund to raise money and hope for the many children and families who will encounter their own difficult journey with cancer. Hopefully inspired by Maddie’s determined survival. And the power of research. Th e Wi l l A be r n at h y M e m or i a l F u n d This fund honors the beautifully brave life of Will Abernathy, who lost his battle with stage IV neuroblastoma in July 2013, at age five. Will was two and one-half years when he was diagnosed. His playful, perfect little life was starkly interrupted by emergency trips around the country for grueling treatments to save his life. Through it all, it was Will’s beautiful spirit and winning attitude that could not be taken away by this disease. It is the spirit of Will, and his new fund, that will live on. Supporting the life-saving research that will help give futures to other children. 23
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CURE Childhood Cancer Annual Report 2013-2014

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