Cystinosis Parent Handbook Final - Cystinosis Research Network

22. Children’s Memorial Hospital, surgery (general), Gastrostomy tubes and feedings: A parent’s guide, 2007,Available from: http://www.childrensmemorial.org/depts/pediatricsurgery/gastrostomy.aspx23. Gastrostomy Tube (G-tube), reviewed by: Kate M. Cronan, M. D. July 2009, Available from:http://kidshealth.org/parent/system/surgery/g_tube.html24. Kelchner, Luanne, Early Signs and Symptoms of Dehydration in Children, 2011, Available from:http://www.ehow.com/list_6904544_early_signs-symptoms-dehydration-children.html25. Lietz, Jessica, What are Symptoms of Dehydration in Children, Available from:http://www.ehow.com/facts_4969241_what-symptoms-dehydration-children.html26. RD 411.com, Cystinosis, reviewed Oct. 2010, Available from:http://www.rd411.com/tkcenter/article_printer.php?ID=K-062827. What Treats or Cures Incontinence? Available from: http://kidney.niddk.nih.gov/kudiseases/pub/uichildren28. Chapman, A., Erik Erikson’s Psychosocial Development Theory, reviewed 2011,Available from: http://www.businessballs.com/erik_erikson_psychosocaltheory.htm29. Trauner, D., et al, Specific Cognitive Deficits in Young Children with Cystinosis:Evidence for an Early Effect of the Cystinosin Gene on Neural Function, Journal of Pediatrics, Aug. 2007, p. 192-930. Wrightslaw, Early Intervention (Part C of IDEA), last updated 2010, Available from:http://www.wrightslaw.com/info/ei.index.htm31. Bridge to the Future, Building Bridges to the Future: A transition guide for teens and young adults withCystinosis and their families, 2011, produced by Cystinosis Research Network (CRN)32. Jean Piaget, http://www.simplypsychology.org/piaget.html by Saul McLeod published 2009, updated 201233. The Developmental Stages of Erik Erikson BY ARLENE F. HARDER, MA, MFT Copyright 2002, Revised 2012http://www.support4change.com/index.php?option=com_contentandview=articleandid=47andItemid=10834. Spilkin, A., A.O. Ballantyne, and D.A. Trauner, Visual and verbal learning in a genetic metabolic disorder.Neuropsychologia, 2009. 47(8-9): p. 1883-1892.35. Parenting Teens Online. Developmental Stages of Teens: iFOS Publishing, 2008.36. mychildsafety.net. What are the signs your child is being bullied? A Parent’s Guide to Child Safety 2008;Available from: http://www.mychildsafety.net/signs-your-child-is-being-bullied.html.37. Ianelli, V. Depression in Children and Adolescents: Recognizing the Symptoms of Depression and Getting Help.About.co: Pediatrics 2003 [cited 2011; Available from: http://pediatrics.about.com/cs/mentalhealth/a/depression.htm.38. University of Wisconsin Pediatric Pulmonary Center, Moving On: Transitioning from the Pediatric to theAdult Care Team (Cystic Fibrosis), 2010, Pediatric Pulmonary Center Training Grant, University of Wisconsin Madison,School of Medicine and Public Health.39. Chapman, A., Elisabeth Kubler-Ross-five stages of grief, reviewed 2009, Available from:http://www.businessblls.com.elisabeth_kubler_ross_five_stages_of_grief.htm40. DaVita.com, Tips for Parents of Children with Chronic Kidney Disease, Available from:http://www.davita.com/kidney-disease/overview/pediatric/tips-for-parents-of-children-with-chronic-kidneydisease/e/495853Cystinosis Parent Handbook