Medicare's "You Can Live: Your Guide For Living With Kidney Failure"

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Dear Reader,The Centers for Medicare & Medicaid Services is pleased to provide you with thisbooklet. Medicare wants to make sure that you get good care and the information youneed to make informed choices about the treatment of kidney failure. The informationin this booklet was reviewed by doctors, nurses, and patients and will help newkidney failure patients as they begin dialysis or prepare for transplantation.If you are a kidney patient, it’s important for you to learn as much as you canabout your illness and to take an active role in your care. If you are a family member orcaregiver, learning about kidney disease and its treatment will help both you and theperson with kidney failure. If you have questions, don’t be afraid to ask your healthcare team for help.Your local End Stage Renal Disease (ESRD) Network can help you if you have aproblem. Their phone number is on page 39. ESRD Networks assist patients needinginformation, help with care concerns, and with resolving complaints. ESRD Networksalso work on improving the quality of care in dialysis facilities and keep your facilityaware of important dialysis and transplant issues.We hope this booklet will be helpful to you as you start dialysis or prepare fora transplant.Best Regards,Centers for Medicare & Medicaid ServicesLook atwww.medicare.govon the web or call1-800-MEDICARE(1-800-633-4227)to get help withyour Medicarequestions.
Table of Contents2Living with Kidney Failure:You Are Not Alone3 What You May Be Feeling4Paying for Treatmentor Transplant5 Treating Kidney Failure5 When Kidneys Fail6 Your Treatment Options6 Hemodialysis10 Hemodialysis Checklist11 Questions to Ask YourHemodialysis Center Staff12 Peritoneal Dialysis15 Transplant17 The Choice to Stop Treatment17 Advance Directives18 You and Your Health Care Team21Tips for Making Treatment Better21 Changes in Mental Health22 Physical Changes22 Changes in Sexual Desire23 Talk with Your Doctors23 Take Your Medicine As Prescribed24 Beware of Over-the-CounterMedicine and Other Remedies25 Alternative Treatments26 Vaccinations26 Track Your Dialysis TreatmentProgress31Tips for Living with KidneyFailure31 Following Your Diet andFluid Intake Plan33 Make an Exercise Plan34 Going Back to Work35 Plan Ahead for Travel36 How to File a Complaint36 Your ESRD Network36 Your State Survey Agency37 Your Rights38 Your Responsibilities39Kidney Failure Resources39 ESRD Networks40 State Survey Agencies44 Additional Kidney FailureResources
Page 1: You Can Live:Your Guide for Livingw
Page 5 and 6: What You May Be FeelingKidney failu
Page 7 and 8: Treating Kidney Failure“Kidney fa
Page 9 and 10: Hemodialysis can’t do all the wor
Page 11 and 12: The dialysis machine controls how q
Page 13 and 14: Questions to Ask your Hemodialysis
Page 15 and 16: To determine what type of PD treatm
Page 17 and 18: To help stay healthy, keep your acc
Page 19 and 20: Cadaver donors are people who have
Page 21 and 22: Your Family or CaregiverWhen kidney
Page 23 and 24: Tips for Making Treatment BetterDia
Page 25 and 26: Talk with Your DoctorsBefore you se
Page 27 and 28: Medicines to Avoid• Baking soda o
Page 29 and 30: URRURR stands for “Urea Reduction
Page 31 and 32: PhosphorusPhosphorus is found in mo
Page 33 and 34: Tips for Living withKidney Failure
Page 35 and 36: Make an Exercise PlanExercise is on
Page 37 and 38: Plan Ahead for TravelKidney failure
Page 39 and 40: Your RightsAs a person with kidney
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Medicare's "You Can Live: Your Guide For Living With Kidney Failure"

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