CONSENT, ASSENT AND PARTICIPATION IN RESEARCH FOR ...

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CONCLUSION• There is theoretical acceptance ofpeople’s right to participate inresearch;• “Nothing about us without us seemsto have become muted whereresearch is concerned” (Marks, 2006);• Unresolved issues remain in regardto consent where the person doesnot have capacity20
IMPLICATIONS <strong>FOR</strong> FUTURE<strong>RESEARCH</strong>• Consent issues are only one issue• There are other barriers how substituteddecaModels of decision making in researchwhere people with ID are involved e.g.supported/substituted decision making; if so,who?• Models of inclusion & accessible researchmethods , participatory or emancipatoryresearch• Developing Researcher skills to ensure 21
Page 1 and 2: PARTICIPATION IN RESEARCH BY PEOPLE
Page 3 and 4: INTELLECTUAL DISABILITY & CHALLENGI
Page 5 and 6: SERVICE USER INVOLVEMENT INRESEARCH
Page 7 and 8: CONSENT TO PARTICIPATIONA key issue
Page 9 and 10: CONSENT TO PARTICPATE IN RESEARCHIS
Page 11 and 12: AREAS OF RESEARCH FOCUS1. Capacity
Page 13 and 14: RESULTS:Literature Findings• Narr
Page 15 and 16: CONSULTATIVE PROCESSIssues for cons
Page 18 and 19: CONSULTATION FINDINGSDiverse Opinio

CONSENT, ASSENT AND PARTICIPATION IN RESEARCH FOR ...

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