caregivers

Orientation to CaregivingA Handbook for Family Caregivers of Patients with Brain TumorsSteffanie Goodman, MPH 1 Michael Rabow, MD 2 Susan Folkman, PhD 1,2University of California, San Francisco1Osher Center for Integrative Medicine2Department of MedicineThis handbook is a product of the Caregivers Project, a collaboration between the UCSF Osher Center for IntegrativeMedicine and the UCSF Department of Neurological Surgery. The first edition, published in 2007, was funded bygenerous gifts from the Langeloth Foundation, the Mental Insight Foundation, and the Arthur Vining Davis Foundation.The second edition, published in 2013, was generously funded by the DemandHope Foundation.AcknowledgementsWe thank Susan Chang, MD; Margaretta Page MS, RN,Judy Patt Smoker, LCSW, Celi Adams, RN, and MitchelBerger, MD, Chair, UCSF Department of NeurologicalSurgery, for their careful reviews of this handbook. Weare grateful to the faculty and staff of UCSF Departmentsof Neurological Surgery and Neuro-Oncology, including:Marlene Burt, NP; Anne Fedoroff, RN; Anna Frankfurt,RN; CNRN; Kerri Keough, LCSW; Margaretta Page, MS,RN; and Jane E. Rabbitt, RN, BSN, for the informationthey provided for Chapters 3 and 4. We also gratefullyacknowledge the contributions of David Becker, MD;Meryl Botkin, PhD; J. Henry Glazer, JD; Francina Lozada-Nur, DDS, MS; Joelle Steefel, and many family andclinical caregivers who graciously gave their time andexpertise to this project. Without their personal accounts,careful review, and insightful commentary, this handbookwould not have been possible.Design by Laura Myers Design© 2013 The Regents of the University of CaliforniaUCSF Neuro-OncologyGordon Murray Caregiver Program505 Parnassus Avenue, M-779San Francisco, CA 94143-0112Phone: 415-353-7500Fax: 415-353-2880Osher Center for Integrative MedicineUniversity of California, San Francisco1701 Divisadero Street, Suite 150San Francisco, CA 94115Mailing Address:Box 1726San Francisco, CA 94143-1726Phone: 415-353-7700Fax: 415-353-7711