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entire issue [pdf 2.79 mb] - Pitt Med - University of Pittsburgh

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lines for the first time in the organization’shistory.At the state level, a new Pennsylvanialaw covering decision-making proceduresfor terminally ill patients took effect thisFebruary. Incidentally, that was just daysbefore Governor Ed Rendell’s administrationreleased a 40-page report <strong>of</strong> recommendationsfor improving end-<strong>of</strong>-life care. The document’s160 recommendations aim to improveresearch, outreach, advance-directives policy,healthcare-fi nance structures, pr<strong>of</strong>essionaleducation, sensitivity to the needs <strong>of</strong> specialpopulations, and palliative care standards—especially in acute-care hospitals, where mostPennsylvanians die.On February 9, scholars from around theworld gathered on <strong>Pitt</strong>’s campus for a seminaron end-<strong>of</strong>-life <strong>issue</strong>s, hosted by <strong>Pitt</strong>’s CulturalStudies Program and School <strong>of</strong> <strong>Med</strong>icine.The springboard for the discussion was TheContemporary Deathbed, a book by emergency-medicinespecialist and cultural historianJohn Tercier <strong>of</strong> the <strong>University</strong> <strong>of</strong> California,San Francisco. The bookfocused on the iconicimage <strong>of</strong> death in themedia—the heroic CPRattempt that <strong>of</strong>ten takesplace after a patient’s lastbreath. Tercier questionswhy CPR has been so central to resuscitativeprocedures across a gamut <strong>of</strong> cases, eventhough it has been proven effective onlywhen administered immediately after certaintypes <strong>of</strong> cardiac arrest. “For a nu<strong>mb</strong>er <strong>of</strong> yearsnow,” he writes, “medical personnel, whilepumping on the chests <strong>of</strong> the dying, havebeen asking themselves, ‘Why are we beatinga dead horse?’”Perhaps the question now is: How do westop?It’s not news that few Americans want toend their time on earth in a hospital, withintensive—not to mention expensive—lifesustainingtreatment. Yet that’s exactly whatmost get. In the last three decades, 27 percent<strong>of</strong> the total <strong>Med</strong>icare budget has been spenton treatment during Americans’ last year <strong>of</strong>life and, <strong>of</strong> that, about 40 percent in the lastmonth.Given that so many doctors are uncomfortableeven asking patients about theirwishes, it’s not surprising that the contemporarydeathbed still has more than a few bugs.For all our dollars spent and efforts made, andall our talk <strong>of</strong> living wills and other advancedirectives, we’re <strong>of</strong>ten still missing the mark.Where do we fall short <strong>of</strong> providing thegood death, and what can we do to improve?Barnato and others at <strong>Pitt</strong> are starting toanswer these questions.<strong>Pitt</strong>’s Bob Arnold, a former president<strong>of</strong> the American Academy <strong>of</strong> Hospice andPalliative <strong>Med</strong>icine, says the good death hasremained elusive for a variety <strong>of</strong> reasons. Toname a few: Patients and families don’t knowto expect good palliative care, healthcareproviders haven’t traditionally been trainedto provide it, and health care in this countryis financed with an emphasis on acute ratherthan chronic illness.To address these <strong>issue</strong>s, Family Hospiceand Palliative Care—one <strong>of</strong> the first hospiceprograms in Pennsylvania—and <strong>Pitt</strong>’shealth sciences schools jointly established theInstitute to Enhance Palliative Care in 2003.The institute educates healthcare providersabout palliative care, raises public awarenessabout palliative care availability, advancespublic policy supporting better care for seriouslyill patients, and conducts research intobest practices.“Twenty or 30 years ago there wouldhave been no one looking at this stuff,” saysArnold. “Now there’s a whole group <strong>of</strong> juniorinvestigators and researchers at <strong>Pitt</strong> whoare all really interested in focusing on these<strong>issue</strong>s.”David Barnard, who directs the Institute toEnhance Palliative Care and palliative care educationat <strong>Pitt</strong>’s Center for Bioethics and HealthLaw, says one <strong>of</strong> the bigger problems with thecontemporary deathbed is the way prognosis is<strong>of</strong>ten communicated. Studies show that doctorstend to paint a brighter picture to patientsand their families than the doctors themselvesperceive—either consciously because they’reuncomfortable or unconsciously because thebetter doctors know their patients, the morelikely they are to be overly optimistic in theirpredictions. This leads to problems once apatient really starts to decline.As a me<strong>mb</strong>er <strong>of</strong> the UPMC EthicsCommittee, Barnard has seen it countlesstimes: The patient has multisystem failureand has been on a ventilator for two weeks.The doctor calls and says, “The family doesn’tget it.” Barnard explains: “Too much timeis spent deciding which treatments to do,rather than getting to know the patients andwhat they want. The important question theyshould be asking patients is: ‘What characteristics<strong>of</strong> life make it worth living?’”In 2001 and 2005, Barnard securedfour-year National Cancer Institute (NCI)grants—totaling about $1.75 million—toincorporate new palliative care <strong>of</strong>ferings intothe curriculum. Palliative care training is nowavailable at all levels <strong>of</strong> instruction, fromclassroom to residency to fellowship.In one course, Barnard pairs first-year studentswith patients with life-threatening illnesses.They spend time together throughout thesemester. <strong>Med</strong>ical student Yohko Shinozawa(Class <strong>of</strong> ’08), who took the class two yearsago, was assigned Mike Kolansky (not hisreal name), a bearded, tattoo-clad motorcycleenthusiast in his 60s. Kolansky had undergonea liver transplant, and, as a result <strong>of</strong> his immunosuppressantmedications, his kidneys began“<strong>Med</strong>ical personnel, while pumping on the chests <strong>of</strong> the dying,have been asking themselves, ‘Why are we beating a dead horse?’”failing 10 years after the surgery.Each Saturday, Shinozawa sat with him forone hour <strong>of</strong> his 12-hour weekly dialysis regimenat the VA hospital.To Shinozawa’s surprise, the two didn’tdiscuss his illness much. “He was laid-back,always joking around,” she says. “He was veryfocused on living and making the most <strong>of</strong> hislife.” Since her semester in Barnard’s class,she has volunteered regularly for the palliativecare program.The institute also <strong>of</strong>fers a two-year palliativecare fellowship that co<strong>mb</strong>ines researchwith clinical care. First-year fellow ElizabethWeinstein (MD ’02, Res ’05) notes that whilemany palliative care fellowship programs arerun through oncology or geriatrics divisions,<strong>Pitt</strong>’s is part <strong>of</strong> the Division <strong>of</strong> GeneralInternal <strong>Med</strong>icine. “One <strong>of</strong> the things I loveabout <strong>Pitt</strong> is that we see such a broad range<strong>of</strong> patients.”Weinstein says that a feather in the program’scap is Arnold himself. “A couple <strong>of</strong>weeks ago we were at a national meeting.Everyone was grabbing for five minutes <strong>of</strong>Bob Arnold’s time. ... But he always down-22 PITTMED

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