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Feeny D, Furlong W, Mulhern RK, Barr RD, Hudson M. “A frameworkfor assessing health-related quality of life among children with cancer.”International Journal of Cancer, Supplement 12, December, 1999, pp 2–9.Feeny D, Furlong W, Torrance GW, Goldsmith CH, Zhu Z, DePauw S et al.Multiattribute and single-attribute utility functions for the health utilities indexmark 3 system. Med Care 2002; 40(2):113–128.Feeny D, Farris K, Côté I, Johnson J, Tsuyuki R, Eng Ken (Working Paper04–02. “The construct validity of the Rand-12 and Health Utilities IndexMark 2 and Mark 3 in high-risk primary-care patients”).Feeny D, Jones A, Blanchard C, Eng K, Santana MJ, Man P, Sin D. (WorkingPaper 04-03. “Pilot studies on augmenting Health Utilities Index questionnairesto reflect positive health and limitations due to breathing difficulties”).Feeny D, Eng K. (Working Paper 04-05. “Comparing utility scores derivedfrom the Short-Form 36, Standard Gamble, and Health Utilities Index”).Finh SD, McDonell MB, Diehr P, Anderson SM, Bradley KA, Spertus JA,Burman M, Reiber GE, Kiefe CI, Cody M, Sauders KM, Whooley MA,Rosenfeld K, Baczek LA, Sauvigne A “Effects of sustained audit/feedbackon self-reported health status of primary care patients”. Am J Med. 2004;116(4):241–8.Freud S. Trauer Und Melancholie Int. Z. Psychoanal 1917, 4(6), 288–301.Furlong W, Feeny D, Torrance GW, Barr RD. The Health Utilities Index(HUI®) System for assessing health-related quality of life in clinical studies.Working Paper No. 01–02. 2001. Hamilton, ON, McMaster University, Centrefor Health Economics and Policy Analysis (CHEPA). Ref Type: ReportGreenhalgh J, Meadows K. “The effectiveness of the use of patient-basedmeasures of health in routine practice in improving the process and outcomesof patient care: a literature review”. J Eval Clin Pract 1999; 5(4):401–416.Guyatt GH, Berman LB, Townsend M, Pugsley SO, Chambers LW.“A measure of quality of life in clinical trials in chronic lung disease”.Thorax 1987; 42: 773–778.Guyatt GH, Nogradi S, Halcrow S, Singer J, Sullivan MJ, Fallen EL.“Development and testing of a new measure of health status for clinicaltrials in heart failure”. J Gen Intern Med 1989; 4(2):101–107.Guyatt GH, Feeny D, Patrick D. Measuring health-related quality of life.Ann Internal Med.1993; 118(8): 622–629.Haywood K, Marshall S, Fitzpatrick R. “Patient participation in theconsultation process: a structured review of intervention strategies”.Patient Educ Couns. 2006 Oct; 63(1-2):12–23.21The Importance of Measuring Health-related Quality of Life
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Page 1 and 2: IHE ReportThe Importance ofMeasurin
Page 4 and 5: ACKNOWLEDGMENTSThe authors acknowle
Page 6 and 7: INTRODUCTIONHealth-related quality
Page 8 and 9: What Is Health-related Quality of L
Page 10 and 11: Reliability: A measure is reliable
Page 12 and 13: Preference-based measures. Preferen
Page 14 and 15: Edelman et al. (1999) compared HUI2
Page 16 and 17: Barriers related to the properties
Page 18 and 19: Manns et al. (2002) described the f
Page 20 and 21: APPENDIXTable 1. Summary Informatio
Page 22 and 23: Table 1. Summary Information on HRQ
Page 24 and 25: Table 2. Abbreviations, full names
Page 28 and 29: Lubetkin EI, Gold MR. “Comprehens
Page 30 and 31: Ware JE. The SF-36 Health Survey. I
Page 32: Measuring Health-related Quality of

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