13.07.2015 Views

Comprehensive Care Hemophilia

Comprehensive Care Hemophilia

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3<strong>Comprehensive</strong> <strong>Care</strong>for <strong>Hemophilia</strong>Extended MembersOther health professionals are also involved in comprehensivecare but they are not permanent members of the care team. Theyare referred to as extended members of the team. All HTCprograms must have these health professionals available tosupport the work of the core team. Extended members are usuallybased at the same hospital as the HTC — otherwise, the HTC willhave agreements will other healthcare institutions on the referralof patients.“Always haveone really goodquestion for yourdoctor. That's howyou learn.”Extended members of the comprehensive care team include:• dentist• ear/nose/throat specialist• experts in pain management• child life specialist• occupational therapist• psychologist• rheumatologist• orthopedic surgeon• geneticist/genetic counsellor• gynecologist/obstetricianThe specific roles of these health professionals and specializedhospital services are described in the next section.3-6All About<strong>Hemophilia</strong>AGuideforFamilies

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