The UK Biobank Ethics & Governance Council A
The UK Biobank Ethics & Governance Council A
The UK Biobank Ethics & Governance Council A
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<strong>UK</strong> <strong>Biobank</strong> <strong>Ethics</strong> and <strong>Governance</strong> <strong>Council</strong>Privacy concerns: withdrawal from <strong>UK</strong> <strong>Biobank</strong> (2/2)• “No further use": This means that, in addition to no longercontacting you or obtaining further information about you, anyinformation and samples collected previously would no longerbe available to researchers. <strong>UK</strong> <strong>Biobank</strong> would destroy yoursamples (although it may not be possible to trace all distributedsample remnants) and would only hold your information forarchival audit purposes. …• EGF and information leaflet revised• New pages on <strong>UK</strong> <strong>Biobank</strong> and EGC website
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