Spinal Cord lnjury Centersby Gini LaurieAt long Ian, it ir being recognized again that reojonalcenters are the most effeciive and most economicalmeans 01 treating the psycholo~cal and phyriologicalproblems of catastrophic disabditiei lhsi require treatmentandby an array of ipecialinr.Befar* looking at the npw regiond rpinal cord injurycenters, glance back at the 1950's. Then, with thesuppo* of monies conhibufed by the Amencan pubk totho March of Dimes, a comprehensive system of 17regional respiratory and rehabilitation centerr for polio^myelitir pasenti was developed at teaching hospiialr ofmedical schooii. totaling over 500 beds.The centers demonrt,a,ed the ,remendo". value of anorganized network of centers. staffed by medical andparamedical rpeciaiinr.The team approach and the munificent flaw of monierenabled each cenfer to reintegrate as patients into theircommunitisi, to work with their families, to adapt theirhomer, to arrirt wi,h anendant care. to encourage educationaland vocacmnal rehab~blation, and to furnish acontinuing source of information and supportThe centerr were invaluable means of Improvingmedical management, evolving vocational and prychologicalrehabiiitation, uti1icing group therapy. and develLoping new equipmentIn the 1960's. after Salk and Sabin conquered polio^myelitis. the financial suppoll war channeled elrawhereand the center, were closed. It is hasic that the rise in thenumber of spinal cord injured did not coincide with thedecrease inthe number of polio patient3 for, if ii had. thecenterr would have been a natural hanrltion from polio tospinal cord injury (SCI]. It would not have been necarraryto "reinvent the wheel.'' to revive the center concept forSCI personsIn 1970, the US. Department of Health. Education,and Welfare Initiated the Regional Spinal Cord lnjuryResearch and Demonsiration Syrtem, which now includes11 regional systems or renters, Tho fir* center, theSouthwest Regional Syrtem for the Tieatmen1 ol SplnalCord lnjury in Phoenix, Arimnn, war established by Dr.John 5. Young. He developed a National Spinal Cordlnjury Data Research center to include "ariabias pertaining to SCI and to recnrd accurate, actual costs. Thenational data center has demonstatsd that the neatmentof parapiegir. andat. ryrtems center aved9.5% In the average iknmh of hospltaliration and anaveragecost of 18.8% ($6000 per care1 compared to thefragmented, ""systemized care thatis otherwise prevalentI6the annual cost of care was esbmated at $2.4 billion,bared on the average lifelime corir of a quadat $325.000to $400.0110 and of a paraplegic at $180.000 to$225.000. There cortr have risen, not only because ofinflation, but because SCI now live longer than previourlyand because the ratio of new paraplegics and quadri~pieglcr ir changing lo an increasing percentage of *uadti~pleglcr.Dr. Young estimates ,hat the 11 established regionalsystems are able to accept approximat~ly 750 nee SCIrefenals each year. He recommends that eventually thererhould be approximakly 100 Reguonal SCI Syrtemz Inthe United Stater. He ssfimcter that five new modalIYrtems could be erbblished over" "ear and that with .are rough ertimater." rays Dr Young. "theyruppon the need for development of a national networkof Regional SpmaI Cord Inlury Syrtems at the earliestpos~lble time. Not only can we afford this network. wecannot aHord anything else."Elmer Barieir, a C4-5 quadriplegic, who is Commirrioneiof Vocational Rshabililallan for the State ofMarrachuretfr, emphaske. that loss in human andmonetary terms ar a result of poor oc inappropriate careof SCI is a*onomical. He aduocater a system ~ ith theoveniding goal that "the injured perran rhould be able tohave a future ar a conhibuting member of rociecy andrhould be able to take his or her place back in thecommuniw !,om which he ar ah* came." He alsoadvacrfer the rlshtr of SCI to have quertions anweredhonestly, to have contact with other SCI as models. andto have funds immediately available for treatment andequipment.In the 1977 NPF Conuenbon Journml (901 ArcolaAvenue, Whaston. Maryland 20902). Bcriels compiled alist of basic functions and/or resourc=r that should be panof the SCI system:1 Prevention of iniurv . and oublic . awareness of SCI.2 t, :?,"c.< 3 e., m.., .: .*,I*? C < %> ,c 1 ".?I " lac, I,.* 1 I,,,: . I'lr i~,....lllllrl"..,,. ., ,,< ,,,,,,,?", $C :*. . ., , 0me a< :* nr,,
tatbn center providing medical care. social service.physical and occupational therapy. .ctiviti.r 01 dailyliving, urology, surgeiy. onhapedlu, nurimg, pry^chology, psychiatry, and adjustment to dliability.5. variour funding mechaniimr to pay for iervicer andequipment on a1ifetimepi.n6. Vocational rehabilitation services.7. Educational facilities.8. Transportation resources including ddver kainlng.9. Housing facilities for disabled and their families.10. Cantinulngfallow~up.11. Monitoting, documentation, and research on theperformance of the system.The proof of tho value of the team/cenfei approach isdemonstrated by the ruccerrlul careen of respiratorypoliomyelitis quadriplegics lindividualr dependent uponrespirators], who have attained higher degrees and whohave been successfully pursuing professional careers fortwenty years and mare as phyricianr. profesrorr, coun~relorr, piychologirb, lawyen, and engineerr, as well arthore in a wide variety of ofher occupation., includingthat of homemaker.The need for centers is demonstrated by the contrastbetween the "umber of theie poiiamy~lifis individualsliving independently and the number of vaumatlc quad^riplegicr who are shunted into nurung homer aitex initialhorpitaiiraiian because they have not had the benefit of!he team expertise of a SCI center. Neither the averagegeneral lhoipifai nor the auerag. rehabilltanon ho~pltal hasthe staff or ruificienf experience with SCI to offer thecreative cha8cer and guidance fhaf are now available inthe 11 regional SCI centers and that should bo availablein many more centerr.TWO excellent sources of material on SCI for bothlaymen and profersionals are the National ParaplegiaFoundation (NPFI and the Paralyzed Veterans of AmerlcaJPVA). Everyone whe ir concerned with SCI shouldsubscribe to the PVA publication. Pamplegla News. 935Coastline Drive, Seal Beach. California 90740 ($4 year].and rhould become a member of NPF and receive itspublicanon. Poiapleg8a Life, 333 North Michigan Avenue,Chicago, Illinois 60601. Both organizations will rend afree inooductory copy of their monfhly/bimonthly pubiicaiionrand the NPF will rend a lisk of bibliographies andother pubiicationr on SCI.For profesrionali. two organiranonr dfer ipecializedinformation. The Amencan Spinal lnju~ Arrociafion iscomposed of ip~clalty phyrlcianr interested in SCI clinicalcare and center deuelopment. The president ii Dr. PaulR. Meyer, Jr. Iaddresr below). The International MedicaiSociety of Paraplegia includer 600 phyricianr and otherhealth profeiibnalr involved in SCI. Dr. R. EdwardCarter (address below1 is a member of the Council, thegoverning body of ,he Society. The offfclai journal isPoroplegio. published by E. & S. Livingrtone. 43~45Annandale Street. Edinburgh EH7 4AT. Scotland.Sectlon 304lbl of the <strong>Rehabilitation</strong> Art of 1973authorizer gants to States and public or non-profitIP78,VOLUME XXIorganizations, not to exceed $250.000 per damonmation,for the pumose of paying pan or all of the coss forspecial pro/ectr and domonrtrationi land research andconnected therewith) for SCI individuals.Copier of the appiication and lnshuctions may beby writing to the Division of PIoject GrantsAdministration. Room 1427. MES Memorial Building.Warhington, DC 20201. Technical conrullation regardingprepamtion. piojecf development, and pro^gram details may be obtained from Mi, J. Paul Thomar.Exscutive secretary & Plqed Officer. Medical RarearchSiudier. Room 2328. ME5 Memorial Build8n4. Washington.DC 20201information about the SCI centers far veterans may beobtained from Emanuei Mannarino. M.D.. Director,Spini Cord Injury Service. Veterans AdministranonCentral Mfse. 810 Vermont Avenue. NW. WashingtonDC 20420marlled on the following pager.For both veteianr and civilianr, the existing SCiry*amr must be expanded ra thai all who are spinal cordinjured rece~ve acute care. rehabilitanon. and lifetimefollow~up at regional SCI centen.Regional Spinal Cord Injury SystemsI. kLRBAMA. Model Regional Spinal Cord Injury Cant-.univsrsity of Alabama in Burningham. univerrity Statla".Birmingham. Alabama 35294. Phono: 2051934~1450. Diremi:Samuel L Stover. MU.(11 NU^^., of SCI bedr and averasp dism: NO rpscinebeds for SCI: 120 bods for all fyp~r of inpatiant rehabiii~fation. Average: 20~30 paras: 20~30 quads Ruerag= coifprrdiam: $262. Room - $125, doctor = $12121 A~anmonts or facilities for indapendenf ihving praitire: No.I31 Recreatlonai iarilil>ei. Outdoor recrralionnl area including mhalf bark~fball roun(41 Dnverwaming: Yes.(51 Other iewics. and spc~ial iacilitias: Affiliated with Ldkesh~raHoip,tal, which is king developed into a vocaltonal rvalva~tion and training csntpiior xuaraly dirabled.!I ARIZONA Soufhuert Regional Sy-m for th~ Treaimant ofSpinal Injury. Good Samaritan Horpilai. 1033 E. McDoweIlRoad. P 0 Box2989. Phaanir. Rniona 85062 Phone% 6021257-2000 or 6021257.4533 Dirsdoi: David J E. Cherhsa,ME4 R S ILondl. D. Phyi Mod IEnsl. O PRM IAurtl.ill Number of SCI bad3 and average roe per diem: About 35bods for SCi, but can bo ~xpandod rinro m rlore arvciationwith 7W-bad gpneral horp#lai. In 3-4 year5 wiil have ombuilding and 100 beds. Avorage cort: S200 for room. board.nvrsing and physicianr. E*ba tor major rwgery or ,pioiratorvthnraau. Aueramo rtav: 120 davr for oarar: 140. . .. " . . .day. tor quads.(21 Aparlm~nts or fadides for indepandent iivlng practice No,but good anang*m.nt with "parby acc~~rible Holiday inn.
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