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What Every Patient Needs to Know - UMC

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Preparing for Your TransplantSection 2Each person’s journey <strong>to</strong> transplant is unique.Some people wait for extended periods of time,hoping for the day when they will be called fora transplant. Others come <strong>to</strong> transplant withcompatible living donor candidates and movequickly <strong>to</strong> surgery and life with their new organ.No matter the circumstances, nearly everyonefinds it difficult <strong>to</strong> completely absorb that theyhave an end-stage disease that can best betreated with a transplant.The fear and anxiety that nearly every transplantcandidate feels are further compounded by thecomplex system for transplant evaluation andorgan matching. To make the process easier <strong>to</strong>understand, here’s what you can expect when yourdoc<strong>to</strong>r recommends that you be evaluated for atransplant and refers you <strong>to</strong> a transplant center.The Transplant Process1. You are evaluated for a transplant by themedical team at a transplant center.2. If accepted as a transplant candidate, you areregistered on the national organ transplantwaiting list. A living donor may also beidentified and evaluated for living donation.3. You begin organizing your support system.4. You begin developing your financial strategy.5. Your waiting period begins.6. Your transplant takes place.7. Your medical team manages your posttransplantcare.In the following sections we’ll present step-by-stepinstructions <strong>to</strong> get you started, based on experiencesof transplant recipients and their donors.Practice selfadvocacybystating, ‘I think,I feel, I need,I want.’– Transplant Social WorkerTransplant CentersA transplant center is a hospital that has staffthat specializes in transplant medicine.Your primary doc<strong>to</strong>r or organ specialist can referyou <strong>to</strong> a transplant center that:• is near your home• specializes in your medical situation• accepts your insuranceChoosing a Transplant CenterOne of the biggest decisions you will make as atransplant candidate is choosing a transplantcenter. There are nearly 250 transplant centers inthe U.S. and all of them must meet strict professionalstandards. Go <strong>to</strong> http://optn.transplant.hrsa.gov(click on Members>Member Direc<strong>to</strong>ry) <strong>to</strong> accesstransplant center listings and links. Many patientssimply choose the facility closest <strong>to</strong> them, butthere are several questions <strong>to</strong> ask when choosinga transplant center:10

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