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Bobath Children’s Therapy Centre Wales<br />
<strong>Wave</strong><br />
Registered Charity: 1010183<br />
The<br />
Newsletter<br />
Bobath Children’s Therapy Centre Wales<br />
Spring/Summer 2016<br />
Better Start<br />
Better Future<br />
Making a difference to<br />
children in wales who have<br />
cerebral palsy<br />
Registered Charity: 1010183<br />
Our Mission<br />
‘To provide world class<br />
Bobath therapy to as many<br />
children with cerebral palsy<br />
in Wales as possible’<br />
www.bobathwales.org<br />
fundraising@bobathwales.org<br />
@bobathwales<br />
1<br />
029 20522600<br />
www.bobathwales.org facebook.com/bobathwales
Bobath Children’s Therapy Centre Wales Registered Charity: 1010183<br />
Bobath Children’s Therapy Centre Wales<br />
Bobath Wales provides specialist physiotherapy, occupational therapy and speech<br />
and language therapy to over 570 children from across Wales who have cerebral palsy.<br />
What is cerebral palsy?<br />
Cerebral palsy is a permanent disorder of posture and movement resulting from brain<br />
damage occurring in a baby or young child. Each child is affected differently, both in<br />
the type of cerebral palsy and the severity.<br />
Better Start Better Future<br />
Often, children in Wales are not referred to Bobath Children’s Therapy Centre Wales for<br />
specialist therapy until they are 2 years or older. When parents come to us they often<br />
state they wish they had found out about us earlier so that their child would have had<br />
the best start in life.<br />
As well as reaching these babies, we urgently need to raise funds to see the children<br />
on our waiting list who need our support, children like Betsi aged 2.<br />
Betsi’s story<br />
Our beautiful little girl Betsi was born 12 weeks early weighing<br />
3lb 2oz. She spent 7 weeks in the special care baby unit and came<br />
home on oxygen.<br />
As the months went by we realised that Betsi was not reaching<br />
milestones that were expected. We expressed our concern on<br />
many occasions but it wasn’t until she was 15 months old that I was<br />
told by her physiotherapist that she thought Betsi had Diplegic Cerebral Palsy, which<br />
was a major shock! We were completely heartbroken, but at the same time relieved<br />
that we finally had answers and we could start to get Betsi the help she deserved.<br />
However, it wasn’t as easy as we thought. We see an NHS Physio only once or twice a<br />
month if we are lucky.<br />
Thankfully, we found out about Bobath and asked to be referred. Bobath was able to<br />
provide us an initial consultation last summer. After just 2 hours we noticed a huge<br />
difference in Betsi, her muscles were much more relaxed and flexible and as parents<br />
we also learnt a lot. We are desperate for this to continue to help Betsi reach her full<br />
potential. In December 2015 Betsi received additional therapy at the Bobath Centre,<br />
which was amazing.<br />
Betsi’s Mum Sarah<br />
2<br />
www.bobathwales.org
Spring/Summer 2016<br />
Director’s Challenge<br />
The Better Start Better Future appeal was born out of our Centre Director, Jenny<br />
Carroll’s, aspiration to see more babies as soon as possible after birth, to ensure they get<br />
the best start in life and thereby help each child fulfil their own potential.<br />
Jenny is determined to see this happen, setting her own challenge, to raise money<br />
for the appeal. To support Jenny and help her to fulfil this challenge as well as to help<br />
Bobath Wales treat more babies giving them a Better Start Better Future please go to:<br />
http://uk.virginmoneygiving.com/JenniferCarrollBobath<br />
Starting from January 2016 until Bobath Wales’<br />
25th Birthday in 2017, Jenny has pledged to:<br />
• Run 1 mile for every child with cerebral<br />
palsy in Wales = 1260 miles<br />
• Swim 1 mile for every baby born with cerebral<br />
palsy in Wales during 2016 = 70 miles<br />
• Cycle 10 miles for every year Bobath has been<br />
open = 250 miles<br />
That’s 1580 miles<br />
worth of<br />
fundraising<br />
Jenny is looking forward to this incredible challenge although admits to some<br />
trepidation.<br />
“When I told the staff at the Centre what I was planning they thought I was mad.<br />
However, my motivation is simple, every day I treat children with cerebral palsy<br />
who would have a Better Future if they had started to receive specialist therapy as<br />
soon as possible after birth. I want every such baby born in Wales to have a Better<br />
Start and therefore a Better Future . This is why I’m asking people in Wales to help<br />
Bobath achieve this goal by making a donation or fundraising for us. So I thought<br />
I’d better put my own words into actions, but I must confess to feeling nervous.”<br />
@bobathwales<br />
facebook.com/bobathwales<br />
3
Bobath Children’s Therapy Centre Wales Registered Charity: 1010183<br />
Our fantastic families<br />
Back in April we wrote a letter to our families in the hope that they would be able to<br />
help us reach our fundraising goals by arranging their own fundraising events in their<br />
home locality. We have been really encouraged by the response and we would like to<br />
say a very special thank you to all who have helped raise much needed funds for us.<br />
So far their efforts have brought in an amazing £15,251.85, before Gift Aid.<br />
Here is just a snippet of what our fundraising families have been up to.<br />
Charlie walked around<br />
Cwmbran Boating Lake Tom & his family members aged 6 -<br />
93, together with his dog Milo walked<br />
around Tredegar Park, Cosmeston<br />
Lake and Sophia Gardens<br />
Penaluna<br />
Pedal<br />
Power - Lee<br />
Penaluna took<br />
on a Brecon<br />
to Bobath<br />
Challenge<br />
Did you know?<br />
Betsi and her family<br />
arranged a Christmas<br />
coffee morning and many<br />
other fundraising activities<br />
Rosie’s Auntie Hannah<br />
and family organised a<br />
Christmas Afternoon Tea<br />
Each year, approximately 70<br />
children will be born in Wales<br />
with cerebral palsy. Presently<br />
we have over 570 children<br />
attending the Centre for<br />
therapy.<br />
4<br />
www.bobathwales.org
Spring/Summer 2016<br />
Thank you kindly<br />
We’d like to thank all who have supported Bobath Wales since our last edition of The<br />
<strong>Wave</strong>. Your dedication and support continues to astound us and we include a few<br />
examples of your fabulous fundraising below.<br />
She’s our hero<br />
We’re so grateful to Bobath ambassador Bonnie Tyler for<br />
choosing us as one of the charities to benefit from her<br />
amazing concert back in November. It was a fantastic<br />
night in the Princess Royal Theatre in Port Talbot with<br />
fans treated to all of her amazing hits. The concert raised<br />
£2,500 for Bobath!<br />
Fashionable Fundraising<br />
This is the 6th year that the Miss Fashion vs Beauty<br />
competition has supported Bobath and we couldn’t be<br />
more grateful. This year’s competition alone raised over<br />
£2,000. Special thanks to Nyomi Lenny for her organisation<br />
of the event and continued support for Bobath Wales.<br />
A super CPAM<br />
During our cerebral palsy awareness month in October<br />
we had people throughout Wales donning their wellies<br />
and making a real splash for cash raising much needed<br />
funds and awareness of cerebral palsy and Bobath<br />
therapy. We would like to say a splashtastic thank you<br />
to those who took part and volunteered in all of our<br />
October events. A very special thank you goes to Sue<br />
Jones and the Cwm Crafters fundraising group for all of their support in organising<br />
our Aberdare Welly Walk. This event, along with all of the other amazing<br />
fundraising work that they do throughout the year has helped them reach a total<br />
of £50,000 since the fundraising group was established in 2009.<br />
@bobathwales<br />
facebook.com/bobathwales<br />
5
Bobath Children’s Therapy Centre Wales Registered Charity: 1010183<br />
Lights, Camera, Action!<br />
Bobath’s Movies and Musicals<br />
Birthday Ball<br />
Royal Welsh College<br />
of Music and Drama<br />
Friday 8th July 2016<br />
£65 per person<br />
Roll out the red carpet and take centre stage<br />
for this glamorous Movies and Musicals themed ball.<br />
Enjoy fine food and fabulous entertainment whilst making<br />
a difference to children in Wales who have cerebral palsy<br />
6<br />
www.bobathwales.org
Spring/Summer 2016<br />
Give a cheer for a volunteer!<br />
The Bobath Centre as well as our charity shops could not function without our band<br />
of loyal volunteers and we’d like to say a HUGE thank you to each and every one of<br />
them including those who have organised their own fundraising events as individuals<br />
or as part of our amazing Fundraising Groups.<br />
Could you lend<br />
a hand?<br />
We’d LOVE<br />
to hear from you!<br />
♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥<br />
♥ Emlyn Friends of Bobath<br />
♥<br />
♥<br />
♥<br />
Our wonderful fundraising group Emlyn Friends of Bobath have had yet another<br />
♥<br />
♥<br />
busy year in 2015. Their activities have included bucket collections, attending<br />
♥<br />
♥<br />
talks and cheque presentations, football tournaments, a summer fête, Cardiff Half<br />
♥<br />
♥<br />
Marathon, Velothon, parachute jumping and much more! Wow! They’re now busy<br />
♥<br />
♥<br />
planning a London to Paris cycle ride for September….phew!<br />
♥<br />
♥<br />
♥ Friends of Bobath Wales<br />
♥<br />
♥<br />
♥<br />
♥ Through an amazing range of activities the Friends of Bobath Wales fundraising ♥<br />
♥ group led by Derek Redwood and Mike Salter have once again gone above and ♥<br />
♥ beyond for Bobath. Their 2015 total is an amazing £16,123.49. The group have ♥<br />
♥ smashed the quarter of a million mark bringing in over £277k to date.<br />
♥<br />
♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥<br />
@bobathwales<br />
facebook.com/bobathwales<br />
7
Bobath Children’s Therapy Centre Wales Registered Charity: 1010183<br />
ew for 2016... New for 2016... New for 2016... New for 2016...<br />
Join our NEON party and run, walk or dance this<br />
3km fun run for Bobath Wales with your<br />
friends, family and colleagues!<br />
19 March 2016, 7pm<br />
Newport Athletics Stadium<br />
For more information and to sign up today visit<br />
www.bobathwales.org or email: fundraising@bobathwales.org<br />
8<br />
www.bobathwales.org
Spring/Summer 2016<br />
New for 2016... New for 2016... New for 2016... New for 2016..<br />
@bobathwales<br />
facebook.com/bobathwales<br />
9
Bobath Children’s Therapy Centre Wales Registered Charity: 1010183<br />
Get Active<br />
Whatever your passion be it skydiving, running, cycling or<br />
trekking, we have the challenge for you!<br />
Daredevils wanted!<br />
Experience the free fall and jump out of a<br />
plane for Bobath. That’s 12,000 feet worth of<br />
fundraising. No experience is necessary as you<br />
will receive a full day’s training and if you raise<br />
the minimum sponsorship you can jump for<br />
FREE. Dates can be arranged to suit you, so<br />
all you need to do is build up your nerve<br />
and jump. Thank<br />
you to all of our<br />
wonderful 2015<br />
daredevils including<br />
Alice Walters of our fundraising group Emlyn Friends<br />
of Bobath who took to the skies back in October. Alice<br />
says “the whole experience was beyond exhilarating. I<br />
enjoyed every minute and would do it again in a heart<br />
beat.”<br />
Trekking<br />
We offer a huge array of challenges including treks to<br />
Kilimanjaro, Jordan, Iceland, Costa Rica and China as well<br />
as cycle challenges in Vietnam and<br />
London to Paris. Following a trekking<br />
trip to Iceland, Bobath supporter Fran said<br />
“This trek really was an experience of a lifetime. I would<br />
thoroughly recommend taking on a trekking challenge<br />
for Bobath as although raising the sponsorship<br />
seems daunting at first, it was actually great fun and it is<br />
surprising how quickly it mounts up.” So the only thing left to do now is decide where<br />
you want to go for an inspirational trip of a lifetime.<br />
10<br />
www.bobathwales.org
Spring/Summer 2016<br />
Wear your green vest and<br />
know you’re making a<br />
difference<br />
Run for a reason<br />
Every year so many of our amazing<br />
supporters don their running shoes<br />
and head for the finish line at all sorts<br />
of events across the country. We have<br />
10 individuals running the 2016 London<br />
Marathon for us. This year’s runners are<br />
already hard at work fundraising as well as<br />
training of course! Do you have your own<br />
place in the London Marathon or in any other<br />
running challenges in 2016?<br />
Why not choose to run for Bobath?<br />
Pedal in the pounds<br />
We once again have places in<br />
some fantastic cycling events.<br />
Get in touch if you would like<br />
to bike for Bobath.<br />
Velothon Wales<br />
Sunday 22 May 2016<br />
Up to 18,000 riders will be able to take part in the UK’s thirdbiggest<br />
sportive along a spectacular 140km route on closed<br />
roads through South Wales.<br />
Prudential Ride London-Surrey 100<br />
Sunday 31 July 2016<br />
An iconic 100 mile Olympic legacy cycling event<br />
following in the tracks of Bradley Wiggins and Mark<br />
Cavendish. The route is on closed roads through the<br />
capital and onto Surrey’s stunning country roads and hills<br />
before finishing at the Mall.<br />
@bobathwales<br />
facebook.com/bobathwales<br />
11
Bobath Children’s Therapy Centre Wales Registered Charity: 1010183<br />
Corporates come up trumps!<br />
Our amazing corporate supporters have boosted our cash-flow and the bottom-line<br />
is we just wouldn’t be here without you. So special thanks to all those businesses who<br />
have got on-board during 2015/16. Here are just a few to mention:<br />
£ Lovells £ KK Solutions £ CircleIT £ Spindogs £ Barclays Bank £ Lloyds Bank £ DVLA £<br />
£ Capitol Centre £ Hilton Newport £ Sweet Café & Bakery £ Harding Evans £<br />
£ Panasonic £ The Diamond Centre for Wales £ CMB Engineering £<br />
How can your company help?<br />
Employees can volunteer time to help on a project at the<br />
Bobath Centre, in one of our shops or at the warehouse<br />
Sponsor one of<br />
our many events<br />
Donate via<br />
payroll giving<br />
Organise your<br />
own fundraiser<br />
Hold a donate don’t dump day, collecting unwanted<br />
items which can then be picked up and sold in our shops<br />
We asked Joy Phillips, Practice Director at Harding Evans<br />
Solicitors why they chose Bobath as their charity.<br />
“Harding Evans Solicitors have been a corporate<br />
supporter of Bobath for 3 years. The work they do is<br />
vital to those children and families that are affected<br />
by cerebral palsy, the impact of which we know only<br />
too well from the medical negligence claims we have<br />
handled for affected children over the years. As well as<br />
being a charity whose work is close to our hearts, the<br />
staff are an absolute delight to work with and it is a<br />
partnership that brings a lot of pleasure and pride to us<br />
as an organisation.”<br />
Old Post House -<br />
a new corporate<br />
partnership<br />
The Old Post House,<br />
St Fagans, have kindly<br />
adopted us as their<br />
charity for 2016. The<br />
beautiful restaurant and<br />
B&B is set in the heart of<br />
St Fagans’ village. They<br />
have exciting events<br />
planned including a<br />
Summer Ball, a Beaujolais<br />
event, a gentleman’s<br />
dinner and a ladies<br />
lunch. We look forward<br />
to working with them<br />
and keeping you up to<br />
date on their fundraising<br />
adventures.<br />
Check www.bobathwales.org/corporate-support for ways that a partnership with<br />
Bobath can be mutually beneficial!<br />
12<br />
www.bobathwales.org
Spring/Summer 2016<br />
Race the Dragon for Bobath<br />
Saturday 4th June 2016<br />
Cardiff Bay’s Atlantic Wharf<br />
We are looking for teams of 11 passionate paddlers to set sail in this amazing team<br />
building event. Anyone can get involved, whether you are a group of colleagues, a<br />
sporting team or a gathering of friends and family, you are guaranteed a fantastic and<br />
fun day out. To secure your team and boat contact the fundraising team today.<br />
All equipment including boats, paddles, life jackets and an experienced helmsman<br />
will be provided, minimum age 12 years.<br />
Bobath Charity Golf Day<br />
Thursday 12th May 2016<br />
Cardiff Golf Club<br />
Join us for a great day of golf at our annual Charity Golf Day in the beautiful<br />
setting of Cardiff Golf Club. Entry per team of four is £300 to include bacon rolls<br />
on arrival and a 2 course presentation dinner where the competition winners<br />
will be announced. Whether you choose to come along with friends, business<br />
colleagues or corporate clients, this is sure to be a great day of golfing at this<br />
prestigious golf club.<br />
@bobathwales<br />
facebook.com/bobathwales<br />
13
Bobath Children’s Therapy Centre Wales Registered Charity: 1010183<br />
Some ideas on how you can help!<br />
We understand that life is so busy and our supporters often<br />
say that they wish that they could do more. There are so many<br />
easy ways that you can help Bobath no matter how much time<br />
you have.<br />
• Donate pre-loved items to our shops<br />
• Sign up for our Sponsor a Child scheme.<br />
Regular giving means we can plan for<br />
our future<br />
• Become a member of our Unity Lottery and<br />
be in with a chance of winning £25,000 every<br />
week. We have included a sign up form on<br />
the back two pages of the <strong>Wave</strong> to make it<br />
super easy for you!<br />
• Take a collection box for spare change in your home or ask a local business or<br />
shop to take one<br />
• You can recycle your unwanted jewellery and bank notes (old and new, UK and<br />
foreign). Please visit our website for where to send them – all free post!<br />
• Help us with supermarket bucket collections in your area<br />
• Put up one of our event posters, retweet our tweets and follow us on Facebook<br />
to help us spread the word<br />
Did you know?<br />
Did you know that every time you<br />
make a donation to one our shops,<br />
if you are a UK tax payer we can<br />
claim retail gift aid. From April –<br />
October 2015 we were able to claim<br />
£7,035.80 in retail gift aid. Ask in<br />
the shops to sign up today – your<br />
donations just keep on giving!<br />
14<br />
www.bobathwales.org
Spring/Summer 2016<br />
Enjoy a cuppa<br />
and a welshcake<br />
for Bobath like<br />
Kitty here with<br />
Hollywood actor<br />
Matthew Rhys<br />
From the 1st – 8th March we will see<br />
schools, families, businesses, clubs, students,<br />
associations and many more raising some<br />
dough by holding a coffee morning, bake sale or<br />
afternoon tea for Bobath. Whether you raise £10<br />
or £100 we knead your help! Ask for your pack<br />
today and don’t forget to send in your stories and<br />
#bigupyourbake!<br />
@bobathwales<br />
facebook.com/bobathwales<br />
15
Bobath Children’s Therapy Centre Wales Registered Charity: 1010183<br />
We think all of<br />
our donors are<br />
superheroes!<br />
Whether you are dropping 50p in a bucket,<br />
taking on an intrepid trek through the<br />
Himalayas or leaving a lasting legacy with a gift<br />
in your will......you are all superheroes to us!<br />
It isn’t just the rich and famous who leave a<br />
lasting legacy. In reality this couldn’t be further<br />
from the truth. We know that without gifts left<br />
in wills by people like you we wouldn’t be able<br />
to see as many children as we do each year. We<br />
can guarantee that whatever gift you leave,<br />
however small will make a huge difference to<br />
children in Wales who have cerebral palsy. If you<br />
would like more information including a handy<br />
guide to making a will, please drop us a line.<br />
16<br />
www.bobathwales.org
Spring/Summer 2016<br />
Charitable trusts add a little magic!<br />
Many charitable trusts are experiencing an increase in applications, in light of the<br />
current financial climate and a corresponding reduction in investment returns. So<br />
we are particularly grateful for the support of several trusts and foundations for their<br />
generous donations.<br />
Travelling across the beautiful mountainous country of Wales can be a logistical<br />
nightmare for families with children needing to access Bobath’s Centre in Cardiff,<br />
therefore we are delighted that The Freemasons’ Grand Charity have granted<br />
support to enable us to provide crucial outreach Bobath therapy sessions for children<br />
living in North Wales.<br />
October saw the launch of our Better Start – Better Future initiative, aiming to ensure<br />
that babies under the age of two and a half receive therapy sessions as early as<br />
possible in their young lives. Warm thanks to the Cecil Rosen Charitable Trust, Joseph<br />
Strong Fraser Trust, D M Thomas Foundation, The Hospital Saturday Fund and<br />
Persimmon Homes East Wales for their generous support towards this project.<br />
The role of our Family Support Coordinator is invaluable, providing help, support and<br />
guidance to families coping with the challenges of bringing up a child with cerebral<br />
palsy and we are grateful to The Steel Charitable Trust for helping us to continue to<br />
sustain this important role.<br />
The Hedley Foundation and Big Lottery Awards for All have contributed to specialist<br />
toys for use in therapy and double glazed windows in our therapy rooms respectively,<br />
ensuring that therapy experiences are fun, educational and, most importantly, warm<br />
and dry for the children.<br />
One of our aims for 2016 is to provide an<br />
intensive therapy Magic Camp for 8 – 16 year<br />
olds with hemiplegia, a condition affecting one<br />
side of their body, to work with magicians and<br />
Bobath therapists culminating in a Magic Show.<br />
Our thanks to the Boshier Hinton Foundation<br />
who have kindly pledged a donation.<br />
We are grateful to all our supporters for helping<br />
to bring a little magic into the lives of children<br />
with cerebral palsy.<br />
@bobathwales<br />
facebook.com/bobathwales<br />
17
Bobath Children’s Therapy Centre Wales Registered Charity: 1010183<br />
A Christmas thank you note<br />
Dear: Festive Friends<br />
We wanted to write to say thanks to you all. We had a<br />
lovely time over Christmas and we hope you did too.<br />
You were so kind buying our Christmas cards and coming along to<br />
our festive events such as our Christmas Market, Jingle Bell Rock<br />
Christmas Party Night and our Carol Concert. We had a message<br />
from the chief elf at the North Pole to say that Santa had been very<br />
busy writing lovely letters to lots of kind Bobath supporters.<br />
Some of our families got to go to the Celtic Manor to ice skate and<br />
visit Santa with their whole family which was so special, so we would<br />
like to give extra magical hugs to our sponsors for making this possible.<br />
We’re very grateful to all who bought Christmas Prize Draw tickets<br />
and a great big well done to all of the winners. Here are the top 3<br />
winners but a full list can be found on the news page of our website or<br />
by contacting the fundraising team.<br />
1st Prize (£250 cash)<br />
2nd Prize (Tablet)<br />
3rd Prize (Blu-Ray Player)<br />
L Deacon, Aberdare<br />
P Davies, Cardiff<br />
K Pitson, Swansea<br />
Our volunteering Christmas elves worked sooo<br />
hard making this the bestest<br />
Yuletide ever so all that’s left to<br />
say is<br />
Thank you thank you thank you!<br />
From: All your friends at<br />
the Bobath Centre<br />
18<br />
www.bobathwales.org
Spring/Summer 2016<br />
@bobathwales<br />
facebook.com/bobathwales<br />
19
Bobath Children’s Therapy Centre Wales Registered Charity: 1010183<br />
20<br />
www.bobathwales.org