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4 The <strong>IRIS</strong> Magazine<br />
Steps Towards Freedom<br />
21 year old Nathan Edge, from<br />
Mansfield, is the picture of health<br />
and happiness and regularly<br />
attends long distance running<br />
events with the help of a<br />
“My Guide” guide runner from<br />
the charity Guide Dogs. Here<br />
Nathan tells us how losing his<br />
sight changed his life, and how his<br />
guide dog, Hudson, led him out of<br />
the darkness.<br />
At five years old I woke up one morning<br />
to find my left knee had locked at a 90<br />
degree angle and swollen to twice the<br />
size. I was soon diagnosed with a fairly<br />
rare form of Arthritis and would undergo<br />
a year of treatment and surgery to<br />
regain movement in the joint.<br />
A year on much of the Arthritis had<br />
cleared up and I was able to walk<br />
properly again.<br />
However the next year my vision went<br />
blurred – seemingly for no reason.<br />
Unbelievably the inflammation from the<br />
knee had moved to the back of the eyes<br />
and I was left with around 20% vision<br />
with a condition called Uveitis.<br />
Eventually the sight loss was stabilized<br />
but I was left with reduced vision for<br />
some time. I was able to have a fairly<br />
normal childhood however - if you ignore<br />
the regular hospital trips, large glasses<br />
and the occasional bumping into things!<br />
I had plenty of friends, enjoyed<br />
watching and playing sport, over<br />
achieved at school and the future was<br />
looking bright… but shortly after my<br />
18th birthday things started to<br />
go wrong.<br />
When I returned from the end of season<br />
break I noticed something wasn’t quite<br />
right as I couldn’t see anywhere near<br />
as much.<br />
My family and I assumed I may need a<br />
change of contact lenses or glasses but<br />
we took the trip to the hospital anyway<br />
and this is where I knew things weren’t<br />
quite right.<br />
When you get passed from one doctor to<br />
another, then to another, then another,<br />
you know something is wrong… but I<br />
wasn’t prepared when the news came -<br />
I had a severe bleed at the back of the<br />
right eye and I was told the sight would<br />
slowly deteriorate.<br />
Nathan, Hudson and My Guide runner Pete<br />
The more my vision disappeared, the<br />
more and more I became isolated from<br />
the world.<br />
I was struggling to get out and do the<br />
things I loved, I was losing friends and<br />
my confidence had just evaporated into<br />
thin air.<br />
It was time to act.<br />
At the time I knew very little about<br />
Guide Dogs and I just couldn’t imagine<br />
how a dog could possibly help someone<br />
but they arranged for me to speak to<br />
owners who shared their stories and<br />
assured me that it would be a life<br />
changing decision.<br />
In September 2013, I started training<br />
with my guide dog Hudson.<br />
Soon enough I was able to understand<br />
everything that those guide dog owners<br />
were telling me as, after we both put<br />
in some work, my confidence started<br />
picking up and I was able to finally take<br />
that big step towards freedom.<br />
That first walk Hudson and I were able<br />
to do together completely on our own<br />
was just incredible.<br />
However just four months after<br />
qualifying with Hudson things once again<br />
took a turn for the worse. Instead of<br />
having a gradual deterioration over an<br />
estimated five or six years, I instead<br />
woke up one Saturday morning in<br />
complete darkness.<br />
Overnight the bleed had significantly<br />
worsened, causing the retina to detach<br />
and take all of my sight in an instant.<br />
At just 19 it was it devastating for me<br />
but it also affected so many loved ones<br />
around me and I had some very difficult<br />
weeks where I really struggled to come<br />
to terms with the sight loss; where I felt<br />
I had lost everything and believed I had<br />
no future.<br />
I shut myself off from the world and I<br />
was no longer myself but luckily for me I<br />
already had Hudson by my side.<br />
He made me realise that I can still have<br />
a good life, that I don’t have to let sight<br />
loss beat me and that I can still go and<br />
do the things I enjoy.<br />
It was as if he knew what I was going<br />
through and he never once left my side<br />
during those difficult weeks and before<br />
I knew it I was back out there and my<br />
confidence was returning.<br />
I took on volunteering opportunities<br />
with Guide Dogs as a public speaker and<br />
a fundraiser which gave me so many<br />
incredible experiences and also helped<br />
me develop as a person.<br />
I was out meeting all sorts of people and<br />
making all kinds of new friends.<br />
I was catching trains to places like<br />
London and starting to experience<br />
life outside of my own town. I was<br />
presenting a radio show, starting up<br />
a business and making a couple of<br />
TV appearances along the way… and<br />
this is all thanks to Guide Dogs, for<br />
bringing Hudson in to my life as well as<br />
introducing me to my My Guide Pete.<br />
For more information about Guide Dogs<br />
and its My Guide service visit<br />
www.guidedogs.org.uk