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FEATURED ARTICLE<br />

A-Z AUTISM:<br />

THE IMPORTANCE OF<br />

ROUTINE<br />

COUNCIL MEMBER<br />

ANDREW COHEN<br />

SAVES MILLIONS<br />

FOR AUTISM<br />

DR. ALAN KADISH<br />

SHEMA KOLAINU’S<br />

2016 HONOREE<br />

DORY’S MESSAGE<br />

FOR ASD<br />

A SALUTE TO DR. BETTY A.<br />

ROSA CHANCELLOR OF THE<br />

NYS BOARD OF REGENTS


Facts about Autism<br />

and Shema Kolainu<br />

Autism is the fastest growing disability reported<br />

today.<br />

There are 24,000 new cases each year.<br />

Only $15 million each year is dedicated to<br />

research, compared to the $500 million for childhood<br />

cancers, muscular dystrophy, juvenile diabetes<br />

and cystic fibrosis, which combined are still<br />

less common than autism.<br />

Shema Kolainu has more than 50 students<br />

enrolled in its school.<br />

Through its center-based and home and community<br />

programs, Shema Kolainu serves more than<br />

1,000 children in all five boroughs.<br />

Shema Kolainu does not charge tuition for any<br />

child.<br />

Shema Kolainu has kicked off a $12 million dollar<br />

campaign to “Raise the Roof” and add three<br />

more floors to the existing structure.<br />

With children getting diagnosed <strong>with</strong> autism every<br />

day, Shema Kolainu needs your help to support<br />

affected children and their families.<br />

2 | FACTS ABOUT AUTISM & KOLAINU


Shema Kolainu | Message from our Founder and President<br />

Greetings<br />

Another year of progress! Summer is Here!<br />

We’ve had multiple successes <strong>with</strong> our children, grand<br />

achievements <strong>with</strong> our staff, and visitors from all around. We<br />

even had a visit to our school from Governor John Kasich in<br />

the midst of his presidential campaign. Our kids had a great<br />

time and you could see the compassion he had for them.<br />

We believe that every child is unique and has the opportunity<br />

to blossom and our teachers bring out the best in them.<br />

One teacher in particular, Rivky Ismach, has done a spectacular<br />

job <strong>with</strong> her year-long curriculum that we have opted to<br />

highlight her and her curriculum in this issue. You’ll definitely<br />

find her accomplishments astounding and so did we, as we<br />

promoted her to Assistant Educational Coordinator for the<br />

coming fall semester.<br />

Showcased in our summer publication are the highlights from<br />

last year’s Annual Legislative Breakfast, and some background<br />

on our relationships <strong>with</strong> devoted public officials through the<br />

years.<br />

Also in this issue, we reflect on our recent interview <strong>with</strong> Dr.<br />

Stephen Shore after a fantastic year of monthly workshops on<br />

Autism.<br />

At Shema Kolainu- Hear Our Voices, we strive to empower<br />

each child to discover his or her own unique voice. This is<br />

done through a closely monitored and individualized set of<br />

programs, such as Art and Music Therapy, Technology Applications,<br />

and Adaptive Physical Education. We seek out the<br />

most educated staff, and we well as up-to-date therapies and<br />

facilities to provide an environment where children <strong>with</strong> ASD<br />

can thrive.<br />

This issue of Kolainu Magazine delves into most inspiring<br />

aspect of our work here - the daily challenges and marked<br />

improvements of our unique students. Through support from<br />

our caring community we are able to change the lives of children<br />

as they reach levels of achievement previously deemed<br />

impossible. Join us on our journey as we continue to raise our<br />

voices for autism awareness!<br />

Table Of Contents<br />

Remembering the 2016 Graduates 4<br />

Mark Levine & Brad Lander Visit Kolainu 6<br />

Success Stories 7<br />

Governor John Kasich Visits Kolainu 8<br />

The Importance of Routine 9<br />

Room 101 at Shema Kolainu 10<br />

Andrew Cohen 1 3<br />

Betty Rosa 14<br />

2015 Annual Legislatve<br />

Breakfast Recap 1 5<br />

Dr. Kadish: Kolainu’s 2016 Honoree 17<br />

Finding Dory’s Message for ASD 18<br />

Interviewing Dr. Stephen Shore 20<br />

Big Red Safety Box 22<br />

Invitation to Donate 24<br />

Magazine Contributors:<br />

President: Dr. Joshua Weinstein | Editor: Evangeline Joy<br />

Writer: Evangeline Joy | Graphic Design: Jessica Holguin<br />

Joshua Weinstein, Ph.D., M.B.A.<br />

GREETINGS | 3


Shema Kolainu | Graduation Class of 2016<br />

A Graduation of<br />

Growth at Shema Kolainu<br />

Graduation was a colorful event to say the very<br />

least. The children were ecstatic and proud to have<br />

their parents there. Each class had prepared a musical<br />

performance <strong>with</strong> the music therapist and as<br />

you looked around each room the work that had<br />

progressed over the year was evident.<br />

Even the most <strong>with</strong>drawn children seemed to be<br />

brought out of their shells when they heard the familiar<br />

melody and you could see their eyes light up<br />

when they heard the happy beat and sang along.<br />

Some of the children played instruments when<br />

prompted and others used a microphone to sing<br />

portions of song lyrics. One child, Zachary, chose<br />

to play the piano. He had been gearing up for this<br />

from the beginning of the ceremony and could be<br />

heard exclaiming how excited he was to play the<br />

piano.<br />

In another classroom, all the students sang along to<br />

a cover of the current pop song “The Story of My<br />

Life” in which their teacher had changed the lyrics.<br />

They all came in on the Chorus of the song to passionately<br />

shout “The story of my life: you gave me<br />

love, you raised me right, and now I’m grown and<br />

I’ll keep growing. The story of my life: my teachers’<br />

love, my friends all ‘round, oh how I’ve grown inside.<br />

I’m growing.”<br />

By the end of the ceremony, one parent had tears in<br />

her eyes as she looked on lovingly at the students<br />

and it was clear that each year, students, parents,<br />

and teachers alike, all grow a lot more together.<br />

4 | GRADUATION CLASS 2016 GRADUATION CLASS 2016 | 5


Shema Kolainu | Mark Levine and Brad Lander Visit Kolainu<br />

Shema Kolainu | Success Stories<br />

Success Stories from 2015-2016<br />

Mark Levine and Brad Lander<br />

Visit Shema Kolainu<br />

Councilmembers Brad Lander and Mark Levine<br />

Speak at Autism Workshop<br />

As part of its parents training program Shema<br />

Kolainu-Hear Our Voices hosts an annual workshop<br />

for parents and autism professionals that<br />

is funded by the NYC Council Autism Initiative.<br />

A recent workshop featured the participation<br />

of long-time friends of the school, City Councilmembers<br />

Brad Lander and Mark Levine, who<br />

witnessed the interactive nature of the workshop.<br />

Dr. Josh Weinstein expressed his appreciation<br />

to City Councilmembers Brad Lander and Mark<br />

Levine for personally taking the time to see how<br />

the workshop functions and for their overall individual<br />

steadfast support of Shema Koainu -<br />

Hear Our Voices and its various programs.<br />

A note on the acheivements of Brad Lander:<br />

“Brad Lander is extremely dedicated to the disabilities<br />

community and was instrumental in acquiring<br />

the funds to upgrade Brizzi Playground<br />

across the street from Shema Kolainu, along<br />

<strong>with</strong> many other things <strong>with</strong>in Shema Kolainu<br />

and the community that he has been directly<br />

responsible for.” - Dr. Joshua Weinstein<br />

A note on Mark Levine:<br />

“Mark Levine cares for our children and families<br />

<strong>with</strong> disabilities and is always there for them.<br />

He is a man of steadfast character.” - Dr. Joshua<br />

Weinstein<br />

“Louis (age 4) had a very hard time transitioning.<br />

He used to have a tantrum every time a transition<br />

occurred. We created an individualized visual<br />

schedule of his day for him to keep at his work<br />

station and shortly after the schedule was given to<br />

him he began to transition appropriately between<br />

activities. He understood what he had to do in order<br />

to get to the next activity and it made it easier<br />

for him to accept the changes and carry them out.<br />

Through the use of the visual schedule he was able<br />

to do what he was supposed to and the ‘transition<br />

tantrums’ became extinct - Esti<br />

“Johnny (age 4) used to take a very long time eating<br />

his breakfast. However, after we gave him a fun activity<br />

to look forward to, he knew he had to finish<br />

his first task in order to get to the second and this<br />

helped him tremendously” - Simi<br />

“With Yaakov (age 6), our activity schedule strengthened<br />

his independent play skills. We taught him<br />

how to complete an activity schedule and how to<br />

get the toys himself. We built this up <strong>with</strong> task analysis<br />

(breaking up a large task into smaller accomplishments).<br />

We started by having a teacher play<br />

next to him and give him reinforcement. Next, we<br />

introduced having the teacher at a distance while<br />

he played. The activity schedule he followed had a<br />

picture of legos, blocks, and puzzles. He must get<br />

each toy, play <strong>with</strong> it, and then clean it up, <strong>with</strong> a<br />

timer to back up the activities. Now, Yaakov cleans<br />

up and puts the toys back <strong>with</strong>out being prompted.<br />

In addition, at home he can play independently,<br />

where as before, he needed someone present at all<br />

times.” - the Teachers of Room 203<br />

“Zachary (age 7) started the year exhibiting inappropriate<br />

behaviors such as crying, throwing and<br />

hitting. He was not interested in interacting <strong>with</strong><br />

others but rather was reinforced by the negative<br />

attention he was receiving for his inappropriate<br />

behaviors . He was always having bathroom<br />

accidents because he would avoid going to the<br />

bathroom throughout the day to be in control.<br />

Behavioral toilet training was implemented to<br />

address this problem. Now, at the end of the year,<br />

he’s very independent, asking us to use the bathroom<br />

and then going by himself. He is also very<br />

social and shows emotion and affection towards<br />

his peers and teachers continuously.” - Chany<br />

The workshop was conducted by Dr. Stephen<br />

Shore, and is held monthly at the Hotel Pennsylvania<br />

which features top level professional<br />

speakers frequently.<br />

Check our website for a schedule<br />

of our monthly workshops!<br />

6 | COUNCILMEMBERS VISIT KOLAINU SUCCESS STORIES | 7


Shema Kolainu | John Kasich Visits Kolainu<br />

Shema Kolainu | Question of the Quarter<br />

The Question of the Quarter:<br />

“Is Routine Important and Why?”<br />

We asked some of our teachers what their thoughts<br />

were on the importance of a routine for children<br />

<strong>with</strong> autism and they responded as follows.<br />

“Routine is very important. The children feel<br />

a sense of security when they know what will<br />

happen next, what the schedule for the entire<br />

day is and what’s expected of them in general.”<br />

–Chaya Ruchie<br />

actual transition a fun activity so they actually<br />

want to do it.” - Esti<br />

“Routine is crucial. It is important that the students<br />

know what is going to happen so that order and<br />

structure is provided.” - Sossi<br />

Governor John Kasich<br />

Visits Shema Kolainu<br />

During his recent candidacy, John Kasich stopped<br />

by Shema Kolainu to visit our students.<br />

While he was here, all of the students couldn’t get<br />

enough of him. They had prepared letters, questions,<br />

and a painting of the White House, which,<br />

when he asked whether he could keep it, they replied,<br />

“yes!” One of the students, Yaakov, asked<br />

why Gov. Kasich wanted to be president and his<br />

reply was “So I can help you grow up and be president<br />

one day. How’s that?” Yaakov was ecstatic.<br />

Before he left the students he said that they could<br />

come visit him in the White House if he became<br />

president and they replied that they would vote for<br />

him and they loved him. As he walked away, the<br />

childrens’ chants of “Kasich! Kasich!” echoed after<br />

him into the hallway.<br />

Our founder, Dr. Joshua Weinstein commented<br />

that “he was compassionate for the kids and was<br />

genuinely interested in the different systems we<br />

used to help them”.<br />

Kasich has been a strong supporter of Autism<br />

for a long time now and during his presidential<br />

campaign he included Coverage for Autism as a<br />

necessary change when he addressed healthcare<br />

plans in the future. Though he didn’t continue in<br />

the candidacy we were proud to have him here<br />

and proud of his campaign. We know Gov. Kasich<br />

will continue to support Autism and are so glad<br />

that our students left the best impression on him<br />

as he did <strong>with</strong> them.<br />

“A daily schedule makes it easier for the children to<br />

transition largely because of the expectations that<br />

it sets. Expectations really do help the children to<br />

learn to behave appropriately. We learned quickly<br />

the importance in keeping to a routine as we once<br />

made the mistake of switching the last two activities<br />

of the day <strong>with</strong>out the proper preparation, this<br />

change affected the student’s behaviors and their<br />

ability to engage in the activities.<br />

Normally, we follow a specific transitioning proto<br />

col: we notify the children prior to an end of the<br />

activity, letting them know how much time they<br />

have left. An example would be, ‘in 5 minutes<br />

we’re going to finish arts and crafts and transition to<br />

gym… ‘Okay, in 2 minutes, we’re going to switch<br />

to gym…and so on.’ Then, we have transitional<br />

songs for the actual transition period. We also use<br />

edibles or social reinforcement as a motivational<br />

tactic for appropriate transitions. We make the<br />

8 | GOVERNOR KASICH VISITS SHEMA KOLAINU THE IMPORTANCE OF ROUTINE | 9


Shema Kolainu | A-Z A Year of Routine<br />

ROOM 101 at SHEMA KOLAINU<br />

A-Z - A YEAR of ROUTINE<br />

Meet Rivky Ismach, Master Teacher, who is also in charge<br />

of Room 101. Her bright and enthusiastic passion for<br />

teaching has changed each and every one of her students’<br />

lives.<br />

Rivky is known amongst the other teachers as being<br />

excellent at coordinating behavioral plans and having<br />

the most creative activities for her classes. She understands<br />

that the key to her students’ success is having a<br />

classroom where structure, predictability and schedules<br />

are followed. Her teaching approach is to create a safe<br />

and caring environment for her students and she was able<br />

to accomplish this by using the alphabet as the theme<br />

of the school year. Rivky divided the alphabet to be taught<br />

over the weeks of the year and familiarized her students<br />

<strong>with</strong> not only recognition and sounds of the letters but<br />

also words. For example, when learning the letter H the<br />

children engaged in written and hands-on activities that<br />

involved H words. They built and painted a house and<br />

spoke about concepts relevant to the home such as<br />

identifying name and function of the rooms and practicing<br />

functional adaptive daily living skills relevant to the<br />

home. Also, the student’s learning together in a group<br />

setting helped them increase their social awareness,<br />

appropriate behaviors and communication skills.<br />

Rivky strongly feels that “students crave structure and<br />

consistency which encourages them to feel more comfortable<br />

and reach their potential in their behavior and<br />

learning by providing a structured and stable environment<br />

students can thrive and grow.”<br />

In the beginning of the school year, the students of<br />

Room 101 were unaware of each other and did not<br />

have the basic pre-social/academic skills needed to be<br />

a part of a classroom setting. At this point of the school<br />

year, a complete transformation has taken place. One<br />

of the students, Tariq, age 5, used to throw himself on<br />

the floor if he was placed in a social situation. However,<br />

now he is more socially aware and has recently<br />

shown interest in involving his classmates during group<br />

time. These characteristics show real capabilities to empathize<br />

<strong>with</strong> his peers and develop appropriate socialization<br />

skills <strong>with</strong> others. Tariq is now able to move on<br />

to a less restrictive environment where he will use the<br />

skills he gained to learn.<br />

Another student, Isaac, age 4, now speaks in full sentences<br />

and can carry a simple spontaneous conversation<br />

<strong>with</strong> a peer. Just last year, he was not speaking at all!<br />

His parents are very excited <strong>with</strong> his progress and his<br />

ability to generalize the skills he acquired in the classroom<br />

into the home setting. Jason, age 4, used to run<br />

everywhere <strong>with</strong>out being aware of the expectations set<br />

for him in his environment but now is able to self-monitor<br />

his behavior and can focus on a task for a longer<br />

duration of time.<br />

So how did she do it?<br />

Rivky says routine is what the student’s thrive on! It<br />

is a crucial component along <strong>with</strong> appropriate activities<br />

planned for every single minute. An example of this<br />

is the daily journal the students kept. In their journal,<br />

they would complete an activity that involved the<br />

letter of that week. The students were always occupied<br />

and every minute accounted for. A daily routine was<br />

posted on the wall as well as the alphabet letters to<br />

help guide them through the year. The students had<br />

their expectations firmly set and it provided consistency<br />

and predictability that the children seek.<br />

(continued on next page)<br />

10 | ROOM 101 ROOM 101 | 11


Shema Kolainu | A-Z A Year of Routine (Continued)<br />

Shema Kolainu | Cohen Saves Millions for Autism Awareness<br />

ROOM 101 at SHEMA KOLAINU<br />

A-Z - A YEAR of ROUTINE<br />

(continued)<br />

Rivky built an environment that was safe and comforting<br />

for the students where they were able to leave<br />

their social anxiety and fears behind and grow <strong>with</strong>in<br />

the secured environment that was created for them.<br />

She introduced fun and hands-on activities that<br />

challenged them <strong>with</strong>in the structure she had built.<br />

Many of the activities incorporated multiple skills that<br />

involved social components and taught cooperation.<br />

It is through all these activities that the students are<br />

now not only aware of each other but they now truly<br />

love being together. Students now notice when a classmate<br />

is absent and are able to vocalize the fact that<br />

they miss having him in the classroom and are waiting<br />

anxiously for his return. Their social awareness<br />

increased because of the various activities and instruction<br />

that was taught. Rivky states that the point of<br />

teaching the students social interaction is to create an<br />

internal pull to be social, which will result in the students<br />

interacting <strong>with</strong> others on their own. “The whole<br />

concept is using reinforcement to encourage children to<br />

not only do what they need to do, but to turn an undesirable<br />

task into an intrinsically motivating experience<br />

that the students want to do”.<br />

Rivky began as a Teacher’s Assistant, then moved on to<br />

a Classroom Teacher, then Master Teacher earning her<br />

BCBA certification and recently promoted to an Assistant<br />

Educational Coordinator for the 2016-2017 school<br />

year. We congratulate Rivky and look forward to the<br />

wonderful changes she will make in the lives of others<br />

in the coming years.<br />

Cohen Saves Millions<br />

for Autism Awareness<br />

Council Member Andrew Cohen has been an<br />

outstanding advocate on behalf of children <strong>with</strong><br />

disabilities. His recent budget proposition he singlehandedly<br />

allocated millions of dollars to autism awareness<br />

and public schools and organizations that<br />

serve children <strong>with</strong> disabilities.<br />

In his proposed fiscal budget, he has portioned<br />

off approximately 19.8 million dollars in the<br />

coming years to mental health needs of public<br />

schools and interventions, 2 million dollars<br />

to autism awareness programs and services<br />

for children when school is closed, training<br />

seminars for families, recreational/socializa-<br />

tion, and 218.6 million dollars for the Early<br />

Intervention Program.<br />

Council Member Cohen has always been supportive<br />

of the work done for all our children and has<br />

acknowledged Shema Kolainu as the leader in the<br />

autism community. We are most grateful to have a<br />

great public servant like Andrew Cohen in office<br />

representing the needs of the children and families<br />

we work so hard to support. Shema Kolainu salutes<br />

Council Member Cohen for the awesome efforts on<br />

behalf of every citizen and especially for all those in<br />

the disabilities community.<br />

12 | ROOM 101 COHEN SAVES MILLIONS FOR AUTISM AWARENESS | 13


Shema Kolainu | Betty Rosa<br />

Shema Kolainu | Breakfast Recap<br />

Salute to Betty A. Rosa<br />

If you haven’t heard of Betty Rosa, then you have a lot<br />

to hear! Dr. Rosa has a B.A. in psychology from City<br />

College of NY, two Master of Science in Education<br />

degrees from City College of NY and Lehman College<br />

(respectively), and an Ed. M. and Ed. D in Administration<br />

Planning and Social Policy from Harvard University.<br />

Dr. Rosa has worked for the NYC Department of Education<br />

in many roles from bilingual paraprofessional<br />

to principal in special education, to community school<br />

principal. She has introduced an integrated linguistic<br />

model in developing a multilingual and multicultural<br />

school for general and special education populations.<br />

Dr. Rosa taught graduate level courses and is currently<br />

an executive coach for doctoral students.<br />

Dr. Rosa was appointed as Superintendent of Community<br />

School District 8 and later appointed as Senior<br />

Superintendent of the Bronx. One of the schools she<br />

founded as superintendent, M.S. 101, became the top<br />

ranked middle school in the City of New York based<br />

on State examination results. She has since been<br />

elected to a four-year term to the Alumni Council of<br />

Harvard University’s Graduate School of Education and<br />

also appointed to a three-year term to the Principal/<br />

Site Administrator Advisory Committee of the American<br />

Association of School Administrators.<br />

It doesn’t end there though. Dr. Rosa is currently a member<br />

of the New York Team of the National Education<br />

Policy Center’s Schools of Opportunity project. She is<br />

also the President of B.D.J. & J. Associates LLC, a company<br />

she founded in 2005 to provide consultations to<br />

large urban school districts and educational companies<br />

as well as business development assistance in sports,<br />

camps, not-for-profit enterprises, and organizations.<br />

She’s been honored <strong>with</strong> the Women of Distinction<br />

Award from the Bronx Chamber of Commerce, the<br />

Latina of the Year Award from the New York State<br />

Assembly/Senate Puerto Rican/Hispanic Task Force,<br />

the Marconi Medal from the Technical Career Institute<br />

as well as many more awards and acknowledgements.<br />

We would now like to honor her <strong>with</strong> a heartfelt thank<br />

you from our founder<br />

“Dr. Rosa is a true dedicated public servant who<br />

goes the extra mile on behalf of all members of<br />

the community and especially the community that<br />

needs her the most, those who are disabled and<br />

need more care and attention.”<br />

- Dr. Joshua Weinstein<br />

2015 Legislative<br />

Breakfast Recap<br />

Maybe you missed it, but last year’s breakfast was a<br />

sure success; so let’s recap.<br />

Last year, our co-chairs were Abe Biderman, President<br />

of Met Council on Jewish Poverty, and Abe Eisner,<br />

Chairman of HASC Center. Menachem Lubinsky and<br />

Kalman Yeger were the masters of ceremony.<br />

At our last ceremony, Dr. Merryl H. Tisch, NYC Councilmember<br />

Andrew Cohen, and Zelig Friedman, of the<br />

Tantzers, were honored.<br />

Dr. Tisch is known for her commitment to children<br />

<strong>with</strong> autism and her colleague Carmen Farina, NYC<br />

Schools Chancellor, quoted that this is her “interest<br />

above all”. As he gave Dr. Tisch the award, our founder<br />

Dr. Weinstein reported, “It’s an honor for Shema<br />

Kolainu to have someone who understands education,<br />

who understands children, but more so who understands<br />

children <strong>with</strong> disabilities and feels for their<br />

rights to become who they are and who they can be.”<br />

Dr. Tisch received the award and said, “We cannot<br />

fix what G-d has done, we must accept it. But what<br />

we can do is stand up to help every family and every<br />

child in these most challenging circumstances.” She<br />

finished <strong>with</strong> the Shema Kolainu blessing and said<br />

how important the words are to her in every day.<br />

SKHOV bestowed NYC Councilman Andrew Cohen<br />

the Appreciation Award, presented by Councilman<br />

David Greenfield, who stated that Councilman Cohen<br />

has “singlehandedly saved millions of dollars for mental<br />

health services” according to Greenfield and has allocated<br />

funding for autism awareness continuously and<br />

works tirelessly to ensure New Yorkers living <strong>with</strong> disabilities<br />

have equal rights. Councilman Cohen responded<br />

that he was “very touched”.<br />

The community based organization we featured this<br />

year was Zelig Friedman, founder of the Tantzers, which<br />

is a volunteer group of over 200 men who bring joy,<br />

14 | NYS CHANCELLOR BETTY ROSA<br />

SHEMA KOLAINU BREAKFAST RECAP | 15


Shema Kolainu | Breakfast Recap<br />

Shema Kolainu | 2016 Honoree<br />

In addition, he has been elected to prestigious scientific<br />

research and education societies including the American<br />

Association of Professors, the American Society for<br />

Clinical Investigation, and the American Society of Physicians.<br />

strength, hope, and a feeling of being cared about to<br />

all people <strong>with</strong> special needs.<br />

One of Shema Kolainu’s board members, Milton<br />

Weinstock, then introduced Public Advocate Letitia<br />

James, who highlighted Shema Kolainu’s work and<br />

said that we “allow the children to feel the sunshine.”<br />

We’re glad she noticed. She was followed by councilman<br />

Mark Levine who commended Shema Kolainu<br />

for advancing, “The notion that every child is precious,<br />

every life has dignity, every young person can learn<br />

and grow if they are given the love, care and the<br />

support that they need.”<br />

Tali Farhadian Weinstein, Assistant United States Attorney<br />

in the Eastern District NY, delivered warm greetings,<br />

and emphasized the importance of a quality education<br />

for all types of children. She was then succeeded by<br />

Assemblyman David Weprin who also stated his support<br />

for Shema Kolainu and congratulated Dr. Tisch.<br />

Other prominent elected officials in the audience included<br />

State Senator Simcha Felder and Assemblyman<br />

Steven Cymbrowitz.<br />

We were so emphatic to have garnered such a successful<br />

gathering and everyone left feeling proud of<br />

the cause that we all support together. Now it seems<br />

this year’s breakfast is upon us and we’re sure that it’s<br />

bound to be yet another success, in which we continue<br />

to grow in strength and raise our voices for autism<br />

awareness and education for children on the spectrum.<br />

“Dr. Alan Kadish is a true educator in every sense<br />

of the word, who helps all students at Touro<br />

reach their potential and is dedicated to receiving<br />

the utmost excellence in their educations.”<br />

- Dr. Joshua Weinstein<br />

Dr. Kadish Article<br />

Congratulations to this year’s Shema Kolainu honoree,<br />

Dr. Alan Kadish, President of Touro College and<br />

University System. We are thrilled to recognize Dr.<br />

Kadish for his wide-ranging commitment to people<br />

living <strong>with</strong> autism, and their families. Dr. Kadish is a<br />

prominent cardiologist, dedicated teacher, researcher,<br />

and experienced administrator.<br />

Dr. Kadish has helped in developing many successful<br />

initiatives dedicated to those <strong>with</strong> autism, including the<br />

Touro University Nevada Center for Autism and Developmental<br />

Disabilities. The center is home to a specialized<br />

multidisciplinary team, extensively trained in<br />

evidence-based assessment and treatment of developmental<br />

disabilities. In addition to providing comprehensive<br />

services and resources for children and their<br />

families, the center works to promote early detection<br />

of symptoms and intervention implementation through<br />

evaluations and treatments.<br />

Recognizing the importance of early intervention, the<br />

services offered at Touro’s Autism Center include occupational<br />

therapy, speech/language therapy, applied<br />

behavioral analysis and neuropsychological diagnosis.<br />

The center serves more than 400 patients a month<br />

ranging from 18 months to 18 years old and provides<br />

$250,000 in support to help families defray the costs of<br />

evaluation and therapy.<br />

Dr. Kadish is also committed to the education of healthcare<br />

professionals on interacting and communicating<br />

<strong>with</strong> autistic patients. Touro’s School of Health Sciences<br />

recently sponsored an Inter-Professional Education<br />

Symposium (IPE) where more than 350 students, faculty,<br />

and clinicians from the departments of Physical Therapy,<br />

Occupational Therapy, Nursing, Speech Language<br />

Pathology, and Physician Assistant gathered to assess<br />

and address the challenges health care professionals<br />

confront when treating adult patients <strong>with</strong> autism spectrum<br />

disorder (ASD). Future health care professionals<br />

were trained on best practices for treating patients<br />

<strong>with</strong> autism, especially in the acute care setting, where<br />

symptomatic characteristics such as tactile hypersensitivity<br />

and communication deficits can prevent them<br />

from receiving optimal care.<br />

Prior to joining Touro, Dr. Kadish taught at the University<br />

of Michigan and held a19-year tenure at Northwestern<br />

University. He is a past chair of the Clinical Cardiology<br />

Program Committee of the American Heart Association.<br />

We thank Dr. Kadish for hearing the voices of those <strong>with</strong><br />

autism through his ongoing support of those <strong>with</strong> autism<br />

and the health care teams who must work in collaborative,<br />

interprofessional teams to treat ASD.<br />

16 | SHEMA KOLAINU BREAKFAST RECAP DR. KADISH | 17


Finding Dory’s<br />

Message for ASD<br />

With bullying the way it is, ‘Finding Dory’ is an exceptional<br />

movie for all children. However, its message is<br />

even stronger for those on the Autism Spectrum. The<br />

film has been in theaters for less than a week and already<br />

its message has spread to tens of thousands of<br />

families and has been reviewed by dozens of people<br />

<strong>with</strong>in the autism community.<br />

The film had an underlying stress on community, individuality,<br />

and determination, all of which together left<br />

you floored - and all by a fish. That little blue fish just<br />

has a fervor and a message that grips you and won’t let<br />

you go.<br />

Dory suffers from short-term memory loss and many<br />

people <strong>with</strong> autism have faced similar challenges <strong>with</strong><br />

memory lapses. However, though she has this memory<br />

lapse that frustrates all the fish around her, they show<br />

her love and compassion. She is clearly the most-loved<br />

character in the whole film! However, while she may<br />

need support in the memory area, she inspires the others<br />

in her community <strong>with</strong> other strengths that she has.<br />

The astounding theme Disney emphasized so clearly<br />

was that we all have different strengths and weaknesses.<br />

What Dory lacked in memory, she far made up for in<br />

her courage, positive demeanor, and ability to improvise<br />

at a moment’s notice. Nemo’s dad, Martin, remarks<br />

throughout the movie that though he has always been<br />

responsible, he has a short temper at times, can’t adapt<br />

quickly, and is fast to give up.<br />

Dory is known for her expression “just keep swimming”<br />

and Disney shows us her past and the ‘psychology’<br />

behind her catchphrase and the way she behaves. For<br />

much of her life her parent’s had supported her, trying<br />

to help her remember important rules of life through<br />

various techniques while crying and worrying that she<br />

would never be able to be independent. This is something<br />

many parents <strong>with</strong> Autistic children can relate to.<br />

When Dory got lost at a young age she had to improvise<br />

constantly and trust her inner intuition because her<br />

memory continuously failed her. She quickly learned<br />

from this that there was always another way around any<br />

situation and that you can do anything if you put your<br />

mind to it (even crossing an ocean on your own <strong>with</strong>out<br />

an iPhone to keep notes…). She realized that once she<br />

accomplishes one thing she can do anything else.<br />

Dory developed the learned skills of quick adaptability<br />

because she never remembered anything. Marlin<br />

and many other fish noticed this and had to constantly<br />

remind themselves to be more like Dory and to allow<br />

themselves to embrace adventure as she did simply out<br />

of learned necessity. There’s no point in living in a confined<br />

box when you have those you love in your heart<br />

and at your side because then you’re declining opportunities<br />

furthering the journey that will make you who<br />

you are meant to be.<br />

By the end of the movie, the audience has witnessed<br />

multiple occurrences of people working together. It was<br />

only because of the support, acceptance, and love of<br />

Marlin and Nemo that Dory was able to trust herself so<br />

much and embark on the journey that helped her memory<br />

and allowed her more independence. It was everyone<br />

together who made the story and it showed how<br />

much more can be accomplished when everyone works<br />

together and how much we are strengthened by love.<br />

Disney once again reminds us of how important love<br />

is in keeping people together and helping them realize<br />

their full potential and individuality. After all, we don’t<br />

always start off being the fullest version of ourselves; it’s<br />

other peoples’ love that gets us there.<br />

18<br />

DORY’S MESSAGE FOR ASD | 19


Shema Kolainu | Interview <strong>with</strong> Dr. Shore<br />

Interviewing<br />

Dr. Stephen Shore<br />

After his latest monthly workshop <strong>with</strong> Shema Kolainu, on<br />

Bullying Prevention, Dr. Stephen Shore shared <strong>with</strong> SK-<br />

HOV the insider’s story. He told us he has autism and was<br />

diagnosed when he was very young. He stated “after 18<br />

months of typical development, I was hit <strong>with</strong> what I like<br />

to call the autism bomb, otherwise known as aggressive<br />

autism.” He started to lose the function of communication<br />

entirely and would have frequent meltdowns. This was 52<br />

years ago. Now, he has written 5 books, is a professor of<br />

Special Education at Adelphi University <strong>with</strong> a focus on<br />

Autism, and he gives frequent workshops and lectures all<br />

over the world.<br />

At the time, when Dr. Shore was diagnosed so little was<br />

known about autism. It took an entire year for his parents<br />

to find a place for diagnosis and when they did, the doctors<br />

said they’d never seen a child so sick and recommended<br />

institutionalization. You would never believe it seeing<br />

him now.<br />

His parents of course wouldn’t accept this and they convinced<br />

a nearby school to take him after they’d had a year<br />

to prepare him. During that year, his parents implemented<br />

what we now know as an intensive home-based early intervention<br />

program, emphasizing music, movement, sensory<br />

integration, narration, and imitation. However, at the<br />

time, they were forging new grounds on their own.<br />

His father, a liquor store owner, and his mother, who’d<br />

studied business and was then a stay-at-home mom tried to<br />

figure out any way that they could reach their child. They<br />

used instinctive ideas to develop a program for him and<br />

one of their tactics involved imitation. When he refused<br />

to imitate them, they opted to imitate him. The interesting<br />

thing is, all of it worked. His parents especially relied on<br />

music and would play music all the time around his home.<br />

Dr. Shore told us that people <strong>with</strong> autism develop very<br />

specific interests on various subjects that doctors or researchers<br />

will often refer to as “restricted interests”. Dr.<br />

Shore however, likes to refer to these as highly focused<br />

interests, and he stated that music became one of those<br />

interests which he took <strong>with</strong> him and ended up studying<br />

professionally in school all the way to a doctorate degree<br />

in music education. He still teaches music lessons to children<br />

on the autism spectrum.<br />

It’s been 5 years since Dr. Shore first started <strong>with</strong> ICare4Autism<br />

and he is now on the advisory board of ICARE. He<br />

focuses on employment for individuals <strong>with</strong> autism as it’s<br />

become a great frontier to be conquered. A whopping<br />

88% of people on the autism spectrum are under- or unemployed<br />

as declared by National Autistic Society in England<br />

which means that only 12% are working to their full<br />

capacity. He said that people <strong>with</strong> autism “favor routine<br />

and predictability and when that’s translated to showing<br />

up to work every day, employers would want that.” He<br />

also states that Group Homes are another important area<br />

to address as they could be very helpful for many individuals<br />

on the spectrum in adulthood having varying needs<br />

for support.<br />

Just as important as support for adults <strong>with</strong> autism is early<br />

diagnosis of children <strong>with</strong> autism. It is important to start<br />

working <strong>with</strong> the children when the brain is most “plastic”<br />

or spongelike and malleable. “The longer one remains<br />

non-speaking, there is less of a chance that person will be<br />

able to use the skill of speech,” he told us. He stated that<br />

once a child is diagnosed they can begin accessing strategies<br />

that would be of great use to them and focusing on<br />

motivating communication. He says it is a complete myth<br />

that anyone <strong>with</strong> autism who is taught other ways of communication<br />

would become too lazy to speak at all because<br />

they have found other means. On the contrary, learning<br />

sign language and using technology and vision boards<br />

help to compel speech in young children who had previously<br />

been non-verbal. He also stated that once people<br />

<strong>with</strong> autism know that they are on the spectrum, school<br />

and other endeavors will be more navigable because they<br />

will understand that they need different strategies and possibly<br />

additional time to learn. He reflected that growing up<br />

he knew he was different than all the other children, yet it<br />

explained why things were different for him. His parents<br />

used the word “autism” like any other word so this overall<br />

understanding helped him overcome a lot of challenges.<br />

So what about the hat?<br />

Many people may notice that Dr. Shore can frequently be<br />

seen sporting an Adelphi baseball cap and when we asked<br />

him whether his hat was just a favorite fashion statement,<br />

he chuckled and said yes but that was only the secondary<br />

use. The truth is that the hat is an accommodation as he<br />

tends to be more sensitive to lights. His hat is just one of<br />

the many examples of the ways he’s learned to adapt and<br />

to interact <strong>with</strong> his environment in a way that worked <strong>with</strong><br />

his individual characteristics and challenges.<br />

His last remarks were that this was important for everyone<br />

to remember and that the abilities of someone <strong>with</strong> autism<br />

can be unlimited, just as <strong>with</strong> anyone else. We have to<br />

find a way to access that potential by finding the strengths<br />

of the individual that will lead to their success in employment,<br />

education, relationships, and adult life in general.<br />

His sixth book is currently in development and explores<br />

social experiences and relationships of individuals <strong>with</strong><br />

disabilities following grade school. We certainly can’t wait<br />

to read it!<br />

20 | INTERVIEW WITH DR. STEVEN SHORE INTERVIEW WITH DR. STEVEN SHORE | 21


Shema Kolainu | Big Red Safety Box Toolkit<br />

A Free Toolkit<br />

to Prevent Wandering?<br />

Is your child prone to wandering? Well, now there’s<br />

an amazing free new toolkit assembled by the National<br />

Autism Association.<br />

You must apply for the toolkit and if you qualify<br />

you will receive a Big Red Safety Box containing<br />

the NAA’s Be REDy Booklet, 2 GE Door/Window<br />

Alarms (batteries included ;] ), 1 personalized RoadID<br />

and Engraved Shoe ID Tag, 5 adhesive stop<br />

sign visual prompts for doors and windows, 2 safety<br />

alert window clings for car or home, 1 Red safety<br />

alert wristband, and 1 child ID kit from the National<br />

Center for Missing and Exploited Children.<br />

The Be REDy Booklet can be downloaded online<br />

for free while you wait for your toolkit and additional<br />

items can be purchased on their website.<br />

This initiative is unbelievable and going to be a<br />

big help for lots of families. Though it’s absolutely<br />

free, they ask for optional donations to benefit their<br />

cause and keep it going.<br />

22<br />

BIG RED SAFETY BOX | 23


Shema Kolainu | Invitation to Donate<br />

You can now make a<br />

difference in the life of<br />

a child <strong>with</strong> autism<br />

BRIGHTEN UP THE LIFE OF A CHILD<br />

$18<br />

Our therapy and education strategies help autistic<br />

children to engage <strong>with</strong> others<br />

GIVE HOPE, GIVE HAPPINESS<br />

$180<br />

This gift will provide 6 months of specialized education<br />

and therapies for a child <strong>with</strong> autism<br />

GIVE A YEAR IN A LIFE OF A CHILD<br />

$1800<br />

Provide a full year of specialized education, therapy<br />

and family support for an autistic child<br />

By making a donation, you support Shema Kolainu’s<br />

mission to help children <strong>with</strong> autism spectrum<br />

disorder (ASD) achieve their full potential for<br />

independence, productivity and inclusion in the<br />

community.<br />

You Can Donate By<br />

Calling: 1-718-686-9600 OR Mailing a check to:<br />

4302 New Utrecht Avenue<br />

Brooklyn, NY 11219<br />

www.shemakolainu.org<br />

Make a donation, no matter how small or large. Your support<br />

will help so many in need.<br />

24 | INVITATION TO DONATE

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