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FEATURED ARTICLE<br />
A-Z AUTISM:<br />
THE IMPORTANCE OF<br />
ROUTINE<br />
COUNCIL MEMBER<br />
ANDREW COHEN<br />
SAVES MILLIONS<br />
FOR AUTISM<br />
DR. ALAN KADISH<br />
SHEMA KOLAINU’S<br />
2016 HONOREE<br />
DORY’S MESSAGE<br />
FOR ASD<br />
A SALUTE TO DR. BETTY A.<br />
ROSA CHANCELLOR OF THE<br />
NYS BOARD OF REGENTS
Facts about Autism<br />
and Shema Kolainu<br />
Autism is the fastest growing disability reported<br />
today.<br />
There are 24,000 new cases each year.<br />
Only $15 million each year is dedicated to<br />
research, compared to the $500 million for childhood<br />
cancers, muscular dystrophy, juvenile diabetes<br />
and cystic fibrosis, which combined are still<br />
less common than autism.<br />
Shema Kolainu has more than 50 students<br />
enrolled in its school.<br />
Through its center-based and home and community<br />
programs, Shema Kolainu serves more than<br />
1,000 children in all five boroughs.<br />
Shema Kolainu does not charge tuition for any<br />
child.<br />
Shema Kolainu has kicked off a $12 million dollar<br />
campaign to “Raise the Roof” and add three<br />
more floors to the existing structure.<br />
With children getting diagnosed <strong>with</strong> autism every<br />
day, Shema Kolainu needs your help to support<br />
affected children and their families.<br />
2 | FACTS ABOUT AUTISM & KOLAINU
Shema Kolainu | Message from our Founder and President<br />
Greetings<br />
Another year of progress! Summer is Here!<br />
We’ve had multiple successes <strong>with</strong> our children, grand<br />
achievements <strong>with</strong> our staff, and visitors from all around. We<br />
even had a visit to our school from Governor John Kasich in<br />
the midst of his presidential campaign. Our kids had a great<br />
time and you could see the compassion he had for them.<br />
We believe that every child is unique and has the opportunity<br />
to blossom and our teachers bring out the best in them.<br />
One teacher in particular, Rivky Ismach, has done a spectacular<br />
job <strong>with</strong> her year-long curriculum that we have opted to<br />
highlight her and her curriculum in this issue. You’ll definitely<br />
find her accomplishments astounding and so did we, as we<br />
promoted her to Assistant Educational Coordinator for the<br />
coming fall semester.<br />
Showcased in our summer publication are the highlights from<br />
last year’s Annual Legislative Breakfast, and some background<br />
on our relationships <strong>with</strong> devoted public officials through the<br />
years.<br />
Also in this issue, we reflect on our recent interview <strong>with</strong> Dr.<br />
Stephen Shore after a fantastic year of monthly workshops on<br />
Autism.<br />
At Shema Kolainu- Hear Our Voices, we strive to empower<br />
each child to discover his or her own unique voice. This is<br />
done through a closely monitored and individualized set of<br />
programs, such as Art and Music Therapy, Technology Applications,<br />
and Adaptive Physical Education. We seek out the<br />
most educated staff, and we well as up-to-date therapies and<br />
facilities to provide an environment where children <strong>with</strong> ASD<br />
can thrive.<br />
This issue of Kolainu Magazine delves into most inspiring<br />
aspect of our work here - the daily challenges and marked<br />
improvements of our unique students. Through support from<br />
our caring community we are able to change the lives of children<br />
as they reach levels of achievement previously deemed<br />
impossible. Join us on our journey as we continue to raise our<br />
voices for autism awareness!<br />
Table Of Contents<br />
Remembering the 2016 Graduates 4<br />
Mark Levine & Brad Lander Visit Kolainu 6<br />
Success Stories 7<br />
Governor John Kasich Visits Kolainu 8<br />
The Importance of Routine 9<br />
Room 101 at Shema Kolainu 10<br />
Andrew Cohen 1 3<br />
Betty Rosa 14<br />
2015 Annual Legislatve<br />
Breakfast Recap 1 5<br />
Dr. Kadish: Kolainu’s 2016 Honoree 17<br />
Finding Dory’s Message for ASD 18<br />
Interviewing Dr. Stephen Shore 20<br />
Big Red Safety Box 22<br />
Invitation to Donate 24<br />
Magazine Contributors:<br />
President: Dr. Joshua Weinstein | Editor: Evangeline Joy<br />
Writer: Evangeline Joy | Graphic Design: Jessica Holguin<br />
Joshua Weinstein, Ph.D., M.B.A.<br />
GREETINGS | 3
Shema Kolainu | Graduation Class of 2016<br />
A Graduation of<br />
Growth at Shema Kolainu<br />
Graduation was a colorful event to say the very<br />
least. The children were ecstatic and proud to have<br />
their parents there. Each class had prepared a musical<br />
performance <strong>with</strong> the music therapist and as<br />
you looked around each room the work that had<br />
progressed over the year was evident.<br />
Even the most <strong>with</strong>drawn children seemed to be<br />
brought out of their shells when they heard the familiar<br />
melody and you could see their eyes light up<br />
when they heard the happy beat and sang along.<br />
Some of the children played instruments when<br />
prompted and others used a microphone to sing<br />
portions of song lyrics. One child, Zachary, chose<br />
to play the piano. He had been gearing up for this<br />
from the beginning of the ceremony and could be<br />
heard exclaiming how excited he was to play the<br />
piano.<br />
In another classroom, all the students sang along to<br />
a cover of the current pop song “The Story of My<br />
Life” in which their teacher had changed the lyrics.<br />
They all came in on the Chorus of the song to passionately<br />
shout “The story of my life: you gave me<br />
love, you raised me right, and now I’m grown and<br />
I’ll keep growing. The story of my life: my teachers’<br />
love, my friends all ‘round, oh how I’ve grown inside.<br />
I’m growing.”<br />
By the end of the ceremony, one parent had tears in<br />
her eyes as she looked on lovingly at the students<br />
and it was clear that each year, students, parents,<br />
and teachers alike, all grow a lot more together.<br />
4 | GRADUATION CLASS 2016 GRADUATION CLASS 2016 | 5
Shema Kolainu | Mark Levine and Brad Lander Visit Kolainu<br />
Shema Kolainu | Success Stories<br />
Success Stories from 2015-2016<br />
Mark Levine and Brad Lander<br />
Visit Shema Kolainu<br />
Councilmembers Brad Lander and Mark Levine<br />
Speak at Autism Workshop<br />
As part of its parents training program Shema<br />
Kolainu-Hear Our Voices hosts an annual workshop<br />
for parents and autism professionals that<br />
is funded by the NYC Council Autism Initiative.<br />
A recent workshop featured the participation<br />
of long-time friends of the school, City Councilmembers<br />
Brad Lander and Mark Levine, who<br />
witnessed the interactive nature of the workshop.<br />
Dr. Josh Weinstein expressed his appreciation<br />
to City Councilmembers Brad Lander and Mark<br />
Levine for personally taking the time to see how<br />
the workshop functions and for their overall individual<br />
steadfast support of Shema Koainu -<br />
Hear Our Voices and its various programs.<br />
A note on the acheivements of Brad Lander:<br />
“Brad Lander is extremely dedicated to the disabilities<br />
community and was instrumental in acquiring<br />
the funds to upgrade Brizzi Playground<br />
across the street from Shema Kolainu, along<br />
<strong>with</strong> many other things <strong>with</strong>in Shema Kolainu<br />
and the community that he has been directly<br />
responsible for.” - Dr. Joshua Weinstein<br />
A note on Mark Levine:<br />
“Mark Levine cares for our children and families<br />
<strong>with</strong> disabilities and is always there for them.<br />
He is a man of steadfast character.” - Dr. Joshua<br />
Weinstein<br />
“Louis (age 4) had a very hard time transitioning.<br />
He used to have a tantrum every time a transition<br />
occurred. We created an individualized visual<br />
schedule of his day for him to keep at his work<br />
station and shortly after the schedule was given to<br />
him he began to transition appropriately between<br />
activities. He understood what he had to do in order<br />
to get to the next activity and it made it easier<br />
for him to accept the changes and carry them out.<br />
Through the use of the visual schedule he was able<br />
to do what he was supposed to and the ‘transition<br />
tantrums’ became extinct - Esti<br />
“Johnny (age 4) used to take a very long time eating<br />
his breakfast. However, after we gave him a fun activity<br />
to look forward to, he knew he had to finish<br />
his first task in order to get to the second and this<br />
helped him tremendously” - Simi<br />
“With Yaakov (age 6), our activity schedule strengthened<br />
his independent play skills. We taught him<br />
how to complete an activity schedule and how to<br />
get the toys himself. We built this up <strong>with</strong> task analysis<br />
(breaking up a large task into smaller accomplishments).<br />
We started by having a teacher play<br />
next to him and give him reinforcement. Next, we<br />
introduced having the teacher at a distance while<br />
he played. The activity schedule he followed had a<br />
picture of legos, blocks, and puzzles. He must get<br />
each toy, play <strong>with</strong> it, and then clean it up, <strong>with</strong> a<br />
timer to back up the activities. Now, Yaakov cleans<br />
up and puts the toys back <strong>with</strong>out being prompted.<br />
In addition, at home he can play independently,<br />
where as before, he needed someone present at all<br />
times.” - the Teachers of Room 203<br />
“Zachary (age 7) started the year exhibiting inappropriate<br />
behaviors such as crying, throwing and<br />
hitting. He was not interested in interacting <strong>with</strong><br />
others but rather was reinforced by the negative<br />
attention he was receiving for his inappropriate<br />
behaviors . He was always having bathroom<br />
accidents because he would avoid going to the<br />
bathroom throughout the day to be in control.<br />
Behavioral toilet training was implemented to<br />
address this problem. Now, at the end of the year,<br />
he’s very independent, asking us to use the bathroom<br />
and then going by himself. He is also very<br />
social and shows emotion and affection towards<br />
his peers and teachers continuously.” - Chany<br />
The workshop was conducted by Dr. Stephen<br />
Shore, and is held monthly at the Hotel Pennsylvania<br />
which features top level professional<br />
speakers frequently.<br />
Check our website for a schedule<br />
of our monthly workshops!<br />
6 | COUNCILMEMBERS VISIT KOLAINU SUCCESS STORIES | 7
Shema Kolainu | John Kasich Visits Kolainu<br />
Shema Kolainu | Question of the Quarter<br />
The Question of the Quarter:<br />
“Is Routine Important and Why?”<br />
We asked some of our teachers what their thoughts<br />
were on the importance of a routine for children<br />
<strong>with</strong> autism and they responded as follows.<br />
“Routine is very important. The children feel<br />
a sense of security when they know what will<br />
happen next, what the schedule for the entire<br />
day is and what’s expected of them in general.”<br />
–Chaya Ruchie<br />
actual transition a fun activity so they actually<br />
want to do it.” - Esti<br />
“Routine is crucial. It is important that the students<br />
know what is going to happen so that order and<br />
structure is provided.” - Sossi<br />
Governor John Kasich<br />
Visits Shema Kolainu<br />
During his recent candidacy, John Kasich stopped<br />
by Shema Kolainu to visit our students.<br />
While he was here, all of the students couldn’t get<br />
enough of him. They had prepared letters, questions,<br />
and a painting of the White House, which,<br />
when he asked whether he could keep it, they replied,<br />
“yes!” One of the students, Yaakov, asked<br />
why Gov. Kasich wanted to be president and his<br />
reply was “So I can help you grow up and be president<br />
one day. How’s that?” Yaakov was ecstatic.<br />
Before he left the students he said that they could<br />
come visit him in the White House if he became<br />
president and they replied that they would vote for<br />
him and they loved him. As he walked away, the<br />
childrens’ chants of “Kasich! Kasich!” echoed after<br />
him into the hallway.<br />
Our founder, Dr. Joshua Weinstein commented<br />
that “he was compassionate for the kids and was<br />
genuinely interested in the different systems we<br />
used to help them”.<br />
Kasich has been a strong supporter of Autism<br />
for a long time now and during his presidential<br />
campaign he included Coverage for Autism as a<br />
necessary change when he addressed healthcare<br />
plans in the future. Though he didn’t continue in<br />
the candidacy we were proud to have him here<br />
and proud of his campaign. We know Gov. Kasich<br />
will continue to support Autism and are so glad<br />
that our students left the best impression on him<br />
as he did <strong>with</strong> them.<br />
“A daily schedule makes it easier for the children to<br />
transition largely because of the expectations that<br />
it sets. Expectations really do help the children to<br />
learn to behave appropriately. We learned quickly<br />
the importance in keeping to a routine as we once<br />
made the mistake of switching the last two activities<br />
of the day <strong>with</strong>out the proper preparation, this<br />
change affected the student’s behaviors and their<br />
ability to engage in the activities.<br />
Normally, we follow a specific transitioning proto<br />
col: we notify the children prior to an end of the<br />
activity, letting them know how much time they<br />
have left. An example would be, ‘in 5 minutes<br />
we’re going to finish arts and crafts and transition to<br />
gym… ‘Okay, in 2 minutes, we’re going to switch<br />
to gym…and so on.’ Then, we have transitional<br />
songs for the actual transition period. We also use<br />
edibles or social reinforcement as a motivational<br />
tactic for appropriate transitions. We make the<br />
8 | GOVERNOR KASICH VISITS SHEMA KOLAINU THE IMPORTANCE OF ROUTINE | 9
Shema Kolainu | A-Z A Year of Routine<br />
ROOM 101 at SHEMA KOLAINU<br />
A-Z - A YEAR of ROUTINE<br />
Meet Rivky Ismach, Master Teacher, who is also in charge<br />
of Room 101. Her bright and enthusiastic passion for<br />
teaching has changed each and every one of her students’<br />
lives.<br />
Rivky is known amongst the other teachers as being<br />
excellent at coordinating behavioral plans and having<br />
the most creative activities for her classes. She understands<br />
that the key to her students’ success is having a<br />
classroom where structure, predictability and schedules<br />
are followed. Her teaching approach is to create a safe<br />
and caring environment for her students and she was able<br />
to accomplish this by using the alphabet as the theme<br />
of the school year. Rivky divided the alphabet to be taught<br />
over the weeks of the year and familiarized her students<br />
<strong>with</strong> not only recognition and sounds of the letters but<br />
also words. For example, when learning the letter H the<br />
children engaged in written and hands-on activities that<br />
involved H words. They built and painted a house and<br />
spoke about concepts relevant to the home such as<br />
identifying name and function of the rooms and practicing<br />
functional adaptive daily living skills relevant to the<br />
home. Also, the student’s learning together in a group<br />
setting helped them increase their social awareness,<br />
appropriate behaviors and communication skills.<br />
Rivky strongly feels that “students crave structure and<br />
consistency which encourages them to feel more comfortable<br />
and reach their potential in their behavior and<br />
learning by providing a structured and stable environment<br />
students can thrive and grow.”<br />
In the beginning of the school year, the students of<br />
Room 101 were unaware of each other and did not<br />
have the basic pre-social/academic skills needed to be<br />
a part of a classroom setting. At this point of the school<br />
year, a complete transformation has taken place. One<br />
of the students, Tariq, age 5, used to throw himself on<br />
the floor if he was placed in a social situation. However,<br />
now he is more socially aware and has recently<br />
shown interest in involving his classmates during group<br />
time. These characteristics show real capabilities to empathize<br />
<strong>with</strong> his peers and develop appropriate socialization<br />
skills <strong>with</strong> others. Tariq is now able to move on<br />
to a less restrictive environment where he will use the<br />
skills he gained to learn.<br />
Another student, Isaac, age 4, now speaks in full sentences<br />
and can carry a simple spontaneous conversation<br />
<strong>with</strong> a peer. Just last year, he was not speaking at all!<br />
His parents are very excited <strong>with</strong> his progress and his<br />
ability to generalize the skills he acquired in the classroom<br />
into the home setting. Jason, age 4, used to run<br />
everywhere <strong>with</strong>out being aware of the expectations set<br />
for him in his environment but now is able to self-monitor<br />
his behavior and can focus on a task for a longer<br />
duration of time.<br />
So how did she do it?<br />
Rivky says routine is what the student’s thrive on! It<br />
is a crucial component along <strong>with</strong> appropriate activities<br />
planned for every single minute. An example of this<br />
is the daily journal the students kept. In their journal,<br />
they would complete an activity that involved the<br />
letter of that week. The students were always occupied<br />
and every minute accounted for. A daily routine was<br />
posted on the wall as well as the alphabet letters to<br />
help guide them through the year. The students had<br />
their expectations firmly set and it provided consistency<br />
and predictability that the children seek.<br />
(continued on next page)<br />
10 | ROOM 101 ROOM 101 | 11
Shema Kolainu | A-Z A Year of Routine (Continued)<br />
Shema Kolainu | Cohen Saves Millions for Autism Awareness<br />
ROOM 101 at SHEMA KOLAINU<br />
A-Z - A YEAR of ROUTINE<br />
(continued)<br />
Rivky built an environment that was safe and comforting<br />
for the students where they were able to leave<br />
their social anxiety and fears behind and grow <strong>with</strong>in<br />
the secured environment that was created for them.<br />
She introduced fun and hands-on activities that<br />
challenged them <strong>with</strong>in the structure she had built.<br />
Many of the activities incorporated multiple skills that<br />
involved social components and taught cooperation.<br />
It is through all these activities that the students are<br />
now not only aware of each other but they now truly<br />
love being together. Students now notice when a classmate<br />
is absent and are able to vocalize the fact that<br />
they miss having him in the classroom and are waiting<br />
anxiously for his return. Their social awareness<br />
increased because of the various activities and instruction<br />
that was taught. Rivky states that the point of<br />
teaching the students social interaction is to create an<br />
internal pull to be social, which will result in the students<br />
interacting <strong>with</strong> others on their own. “The whole<br />
concept is using reinforcement to encourage children to<br />
not only do what they need to do, but to turn an undesirable<br />
task into an intrinsically motivating experience<br />
that the students want to do”.<br />
Rivky began as a Teacher’s Assistant, then moved on to<br />
a Classroom Teacher, then Master Teacher earning her<br />
BCBA certification and recently promoted to an Assistant<br />
Educational Coordinator for the 2016-2017 school<br />
year. We congratulate Rivky and look forward to the<br />
wonderful changes she will make in the lives of others<br />
in the coming years.<br />
Cohen Saves Millions<br />
for Autism Awareness<br />
Council Member Andrew Cohen has been an<br />
outstanding advocate on behalf of children <strong>with</strong><br />
disabilities. His recent budget proposition he singlehandedly<br />
allocated millions of dollars to autism awareness<br />
and public schools and organizations that<br />
serve children <strong>with</strong> disabilities.<br />
In his proposed fiscal budget, he has portioned<br />
off approximately 19.8 million dollars in the<br />
coming years to mental health needs of public<br />
schools and interventions, 2 million dollars<br />
to autism awareness programs and services<br />
for children when school is closed, training<br />
seminars for families, recreational/socializa-<br />
tion, and 218.6 million dollars for the Early<br />
Intervention Program.<br />
Council Member Cohen has always been supportive<br />
of the work done for all our children and has<br />
acknowledged Shema Kolainu as the leader in the<br />
autism community. We are most grateful to have a<br />
great public servant like Andrew Cohen in office<br />
representing the needs of the children and families<br />
we work so hard to support. Shema Kolainu salutes<br />
Council Member Cohen for the awesome efforts on<br />
behalf of every citizen and especially for all those in<br />
the disabilities community.<br />
12 | ROOM 101 COHEN SAVES MILLIONS FOR AUTISM AWARENESS | 13
Shema Kolainu | Betty Rosa<br />
Shema Kolainu | Breakfast Recap<br />
Salute to Betty A. Rosa<br />
If you haven’t heard of Betty Rosa, then you have a lot<br />
to hear! Dr. Rosa has a B.A. in psychology from City<br />
College of NY, two Master of Science in Education<br />
degrees from City College of NY and Lehman College<br />
(respectively), and an Ed. M. and Ed. D in Administration<br />
Planning and Social Policy from Harvard University.<br />
Dr. Rosa has worked for the NYC Department of Education<br />
in many roles from bilingual paraprofessional<br />
to principal in special education, to community school<br />
principal. She has introduced an integrated linguistic<br />
model in developing a multilingual and multicultural<br />
school for general and special education populations.<br />
Dr. Rosa taught graduate level courses and is currently<br />
an executive coach for doctoral students.<br />
Dr. Rosa was appointed as Superintendent of Community<br />
School District 8 and later appointed as Senior<br />
Superintendent of the Bronx. One of the schools she<br />
founded as superintendent, M.S. 101, became the top<br />
ranked middle school in the City of New York based<br />
on State examination results. She has since been<br />
elected to a four-year term to the Alumni Council of<br />
Harvard University’s Graduate School of Education and<br />
also appointed to a three-year term to the Principal/<br />
Site Administrator Advisory Committee of the American<br />
Association of School Administrators.<br />
It doesn’t end there though. Dr. Rosa is currently a member<br />
of the New York Team of the National Education<br />
Policy Center’s Schools of Opportunity project. She is<br />
also the President of B.D.J. & J. Associates LLC, a company<br />
she founded in 2005 to provide consultations to<br />
large urban school districts and educational companies<br />
as well as business development assistance in sports,<br />
camps, not-for-profit enterprises, and organizations.<br />
She’s been honored <strong>with</strong> the Women of Distinction<br />
Award from the Bronx Chamber of Commerce, the<br />
Latina of the Year Award from the New York State<br />
Assembly/Senate Puerto Rican/Hispanic Task Force,<br />
the Marconi Medal from the Technical Career Institute<br />
as well as many more awards and acknowledgements.<br />
We would now like to honor her <strong>with</strong> a heartfelt thank<br />
you from our founder<br />
“Dr. Rosa is a true dedicated public servant who<br />
goes the extra mile on behalf of all members of<br />
the community and especially the community that<br />
needs her the most, those who are disabled and<br />
need more care and attention.”<br />
- Dr. Joshua Weinstein<br />
2015 Legislative<br />
Breakfast Recap<br />
Maybe you missed it, but last year’s breakfast was a<br />
sure success; so let’s recap.<br />
Last year, our co-chairs were Abe Biderman, President<br />
of Met Council on Jewish Poverty, and Abe Eisner,<br />
Chairman of HASC Center. Menachem Lubinsky and<br />
Kalman Yeger were the masters of ceremony.<br />
At our last ceremony, Dr. Merryl H. Tisch, NYC Councilmember<br />
Andrew Cohen, and Zelig Friedman, of the<br />
Tantzers, were honored.<br />
Dr. Tisch is known for her commitment to children<br />
<strong>with</strong> autism and her colleague Carmen Farina, NYC<br />
Schools Chancellor, quoted that this is her “interest<br />
above all”. As he gave Dr. Tisch the award, our founder<br />
Dr. Weinstein reported, “It’s an honor for Shema<br />
Kolainu to have someone who understands education,<br />
who understands children, but more so who understands<br />
children <strong>with</strong> disabilities and feels for their<br />
rights to become who they are and who they can be.”<br />
Dr. Tisch received the award and said, “We cannot<br />
fix what G-d has done, we must accept it. But what<br />
we can do is stand up to help every family and every<br />
child in these most challenging circumstances.” She<br />
finished <strong>with</strong> the Shema Kolainu blessing and said<br />
how important the words are to her in every day.<br />
SKHOV bestowed NYC Councilman Andrew Cohen<br />
the Appreciation Award, presented by Councilman<br />
David Greenfield, who stated that Councilman Cohen<br />
has “singlehandedly saved millions of dollars for mental<br />
health services” according to Greenfield and has allocated<br />
funding for autism awareness continuously and<br />
works tirelessly to ensure New Yorkers living <strong>with</strong> disabilities<br />
have equal rights. Councilman Cohen responded<br />
that he was “very touched”.<br />
The community based organization we featured this<br />
year was Zelig Friedman, founder of the Tantzers, which<br />
is a volunteer group of over 200 men who bring joy,<br />
14 | NYS CHANCELLOR BETTY ROSA<br />
SHEMA KOLAINU BREAKFAST RECAP | 15
Shema Kolainu | Breakfast Recap<br />
Shema Kolainu | 2016 Honoree<br />
In addition, he has been elected to prestigious scientific<br />
research and education societies including the American<br />
Association of Professors, the American Society for<br />
Clinical Investigation, and the American Society of Physicians.<br />
strength, hope, and a feeling of being cared about to<br />
all people <strong>with</strong> special needs.<br />
One of Shema Kolainu’s board members, Milton<br />
Weinstock, then introduced Public Advocate Letitia<br />
James, who highlighted Shema Kolainu’s work and<br />
said that we “allow the children to feel the sunshine.”<br />
We’re glad she noticed. She was followed by councilman<br />
Mark Levine who commended Shema Kolainu<br />
for advancing, “The notion that every child is precious,<br />
every life has dignity, every young person can learn<br />
and grow if they are given the love, care and the<br />
support that they need.”<br />
Tali Farhadian Weinstein, Assistant United States Attorney<br />
in the Eastern District NY, delivered warm greetings,<br />
and emphasized the importance of a quality education<br />
for all types of children. She was then succeeded by<br />
Assemblyman David Weprin who also stated his support<br />
for Shema Kolainu and congratulated Dr. Tisch.<br />
Other prominent elected officials in the audience included<br />
State Senator Simcha Felder and Assemblyman<br />
Steven Cymbrowitz.<br />
We were so emphatic to have garnered such a successful<br />
gathering and everyone left feeling proud of<br />
the cause that we all support together. Now it seems<br />
this year’s breakfast is upon us and we’re sure that it’s<br />
bound to be yet another success, in which we continue<br />
to grow in strength and raise our voices for autism<br />
awareness and education for children on the spectrum.<br />
“Dr. Alan Kadish is a true educator in every sense<br />
of the word, who helps all students at Touro<br />
reach their potential and is dedicated to receiving<br />
the utmost excellence in their educations.”<br />
- Dr. Joshua Weinstein<br />
Dr. Kadish Article<br />
Congratulations to this year’s Shema Kolainu honoree,<br />
Dr. Alan Kadish, President of Touro College and<br />
University System. We are thrilled to recognize Dr.<br />
Kadish for his wide-ranging commitment to people<br />
living <strong>with</strong> autism, and their families. Dr. Kadish is a<br />
prominent cardiologist, dedicated teacher, researcher,<br />
and experienced administrator.<br />
Dr. Kadish has helped in developing many successful<br />
initiatives dedicated to those <strong>with</strong> autism, including the<br />
Touro University Nevada Center for Autism and Developmental<br />
Disabilities. The center is home to a specialized<br />
multidisciplinary team, extensively trained in<br />
evidence-based assessment and treatment of developmental<br />
disabilities. In addition to providing comprehensive<br />
services and resources for children and their<br />
families, the center works to promote early detection<br />
of symptoms and intervention implementation through<br />
evaluations and treatments.<br />
Recognizing the importance of early intervention, the<br />
services offered at Touro’s Autism Center include occupational<br />
therapy, speech/language therapy, applied<br />
behavioral analysis and neuropsychological diagnosis.<br />
The center serves more than 400 patients a month<br />
ranging from 18 months to 18 years old and provides<br />
$250,000 in support to help families defray the costs of<br />
evaluation and therapy.<br />
Dr. Kadish is also committed to the education of healthcare<br />
professionals on interacting and communicating<br />
<strong>with</strong> autistic patients. Touro’s School of Health Sciences<br />
recently sponsored an Inter-Professional Education<br />
Symposium (IPE) where more than 350 students, faculty,<br />
and clinicians from the departments of Physical Therapy,<br />
Occupational Therapy, Nursing, Speech Language<br />
Pathology, and Physician Assistant gathered to assess<br />
and address the challenges health care professionals<br />
confront when treating adult patients <strong>with</strong> autism spectrum<br />
disorder (ASD). Future health care professionals<br />
were trained on best practices for treating patients<br />
<strong>with</strong> autism, especially in the acute care setting, where<br />
symptomatic characteristics such as tactile hypersensitivity<br />
and communication deficits can prevent them<br />
from receiving optimal care.<br />
Prior to joining Touro, Dr. Kadish taught at the University<br />
of Michigan and held a19-year tenure at Northwestern<br />
University. He is a past chair of the Clinical Cardiology<br />
Program Committee of the American Heart Association.<br />
We thank Dr. Kadish for hearing the voices of those <strong>with</strong><br />
autism through his ongoing support of those <strong>with</strong> autism<br />
and the health care teams who must work in collaborative,<br />
interprofessional teams to treat ASD.<br />
16 | SHEMA KOLAINU BREAKFAST RECAP DR. KADISH | 17
Finding Dory’s<br />
Message for ASD<br />
With bullying the way it is, ‘Finding Dory’ is an exceptional<br />
movie for all children. However, its message is<br />
even stronger for those on the Autism Spectrum. The<br />
film has been in theaters for less than a week and already<br />
its message has spread to tens of thousands of<br />
families and has been reviewed by dozens of people<br />
<strong>with</strong>in the autism community.<br />
The film had an underlying stress on community, individuality,<br />
and determination, all of which together left<br />
you floored - and all by a fish. That little blue fish just<br />
has a fervor and a message that grips you and won’t let<br />
you go.<br />
Dory suffers from short-term memory loss and many<br />
people <strong>with</strong> autism have faced similar challenges <strong>with</strong><br />
memory lapses. However, though she has this memory<br />
lapse that frustrates all the fish around her, they show<br />
her love and compassion. She is clearly the most-loved<br />
character in the whole film! However, while she may<br />
need support in the memory area, she inspires the others<br />
in her community <strong>with</strong> other strengths that she has.<br />
The astounding theme Disney emphasized so clearly<br />
was that we all have different strengths and weaknesses.<br />
What Dory lacked in memory, she far made up for in<br />
her courage, positive demeanor, and ability to improvise<br />
at a moment’s notice. Nemo’s dad, Martin, remarks<br />
throughout the movie that though he has always been<br />
responsible, he has a short temper at times, can’t adapt<br />
quickly, and is fast to give up.<br />
Dory is known for her expression “just keep swimming”<br />
and Disney shows us her past and the ‘psychology’<br />
behind her catchphrase and the way she behaves. For<br />
much of her life her parent’s had supported her, trying<br />
to help her remember important rules of life through<br />
various techniques while crying and worrying that she<br />
would never be able to be independent. This is something<br />
many parents <strong>with</strong> Autistic children can relate to.<br />
When Dory got lost at a young age she had to improvise<br />
constantly and trust her inner intuition because her<br />
memory continuously failed her. She quickly learned<br />
from this that there was always another way around any<br />
situation and that you can do anything if you put your<br />
mind to it (even crossing an ocean on your own <strong>with</strong>out<br />
an iPhone to keep notes…). She realized that once she<br />
accomplishes one thing she can do anything else.<br />
Dory developed the learned skills of quick adaptability<br />
because she never remembered anything. Marlin<br />
and many other fish noticed this and had to constantly<br />
remind themselves to be more like Dory and to allow<br />
themselves to embrace adventure as she did simply out<br />
of learned necessity. There’s no point in living in a confined<br />
box when you have those you love in your heart<br />
and at your side because then you’re declining opportunities<br />
furthering the journey that will make you who<br />
you are meant to be.<br />
By the end of the movie, the audience has witnessed<br />
multiple occurrences of people working together. It was<br />
only because of the support, acceptance, and love of<br />
Marlin and Nemo that Dory was able to trust herself so<br />
much and embark on the journey that helped her memory<br />
and allowed her more independence. It was everyone<br />
together who made the story and it showed how<br />
much more can be accomplished when everyone works<br />
together and how much we are strengthened by love.<br />
Disney once again reminds us of how important love<br />
is in keeping people together and helping them realize<br />
their full potential and individuality. After all, we don’t<br />
always start off being the fullest version of ourselves; it’s<br />
other peoples’ love that gets us there.<br />
18<br />
DORY’S MESSAGE FOR ASD | 19
Shema Kolainu | Interview <strong>with</strong> Dr. Shore<br />
Interviewing<br />
Dr. Stephen Shore<br />
After his latest monthly workshop <strong>with</strong> Shema Kolainu, on<br />
Bullying Prevention, Dr. Stephen Shore shared <strong>with</strong> SK-<br />
HOV the insider’s story. He told us he has autism and was<br />
diagnosed when he was very young. He stated “after 18<br />
months of typical development, I was hit <strong>with</strong> what I like<br />
to call the autism bomb, otherwise known as aggressive<br />
autism.” He started to lose the function of communication<br />
entirely and would have frequent meltdowns. This was 52<br />
years ago. Now, he has written 5 books, is a professor of<br />
Special Education at Adelphi University <strong>with</strong> a focus on<br />
Autism, and he gives frequent workshops and lectures all<br />
over the world.<br />
At the time, when Dr. Shore was diagnosed so little was<br />
known about autism. It took an entire year for his parents<br />
to find a place for diagnosis and when they did, the doctors<br />
said they’d never seen a child so sick and recommended<br />
institutionalization. You would never believe it seeing<br />
him now.<br />
His parents of course wouldn’t accept this and they convinced<br />
a nearby school to take him after they’d had a year<br />
to prepare him. During that year, his parents implemented<br />
what we now know as an intensive home-based early intervention<br />
program, emphasizing music, movement, sensory<br />
integration, narration, and imitation. However, at the<br />
time, they were forging new grounds on their own.<br />
His father, a liquor store owner, and his mother, who’d<br />
studied business and was then a stay-at-home mom tried to<br />
figure out any way that they could reach their child. They<br />
used instinctive ideas to develop a program for him and<br />
one of their tactics involved imitation. When he refused<br />
to imitate them, they opted to imitate him. The interesting<br />
thing is, all of it worked. His parents especially relied on<br />
music and would play music all the time around his home.<br />
Dr. Shore told us that people <strong>with</strong> autism develop very<br />
specific interests on various subjects that doctors or researchers<br />
will often refer to as “restricted interests”. Dr.<br />
Shore however, likes to refer to these as highly focused<br />
interests, and he stated that music became one of those<br />
interests which he took <strong>with</strong> him and ended up studying<br />
professionally in school all the way to a doctorate degree<br />
in music education. He still teaches music lessons to children<br />
on the autism spectrum.<br />
It’s been 5 years since Dr. Shore first started <strong>with</strong> ICare4Autism<br />
and he is now on the advisory board of ICARE. He<br />
focuses on employment for individuals <strong>with</strong> autism as it’s<br />
become a great frontier to be conquered. A whopping<br />
88% of people on the autism spectrum are under- or unemployed<br />
as declared by National Autistic Society in England<br />
which means that only 12% are working to their full<br />
capacity. He said that people <strong>with</strong> autism “favor routine<br />
and predictability and when that’s translated to showing<br />
up to work every day, employers would want that.” He<br />
also states that Group Homes are another important area<br />
to address as they could be very helpful for many individuals<br />
on the spectrum in adulthood having varying needs<br />
for support.<br />
Just as important as support for adults <strong>with</strong> autism is early<br />
diagnosis of children <strong>with</strong> autism. It is important to start<br />
working <strong>with</strong> the children when the brain is most “plastic”<br />
or spongelike and malleable. “The longer one remains<br />
non-speaking, there is less of a chance that person will be<br />
able to use the skill of speech,” he told us. He stated that<br />
once a child is diagnosed they can begin accessing strategies<br />
that would be of great use to them and focusing on<br />
motivating communication. He says it is a complete myth<br />
that anyone <strong>with</strong> autism who is taught other ways of communication<br />
would become too lazy to speak at all because<br />
they have found other means. On the contrary, learning<br />
sign language and using technology and vision boards<br />
help to compel speech in young children who had previously<br />
been non-verbal. He also stated that once people<br />
<strong>with</strong> autism know that they are on the spectrum, school<br />
and other endeavors will be more navigable because they<br />
will understand that they need different strategies and possibly<br />
additional time to learn. He reflected that growing up<br />
he knew he was different than all the other children, yet it<br />
explained why things were different for him. His parents<br />
used the word “autism” like any other word so this overall<br />
understanding helped him overcome a lot of challenges.<br />
So what about the hat?<br />
Many people may notice that Dr. Shore can frequently be<br />
seen sporting an Adelphi baseball cap and when we asked<br />
him whether his hat was just a favorite fashion statement,<br />
he chuckled and said yes but that was only the secondary<br />
use. The truth is that the hat is an accommodation as he<br />
tends to be more sensitive to lights. His hat is just one of<br />
the many examples of the ways he’s learned to adapt and<br />
to interact <strong>with</strong> his environment in a way that worked <strong>with</strong><br />
his individual characteristics and challenges.<br />
His last remarks were that this was important for everyone<br />
to remember and that the abilities of someone <strong>with</strong> autism<br />
can be unlimited, just as <strong>with</strong> anyone else. We have to<br />
find a way to access that potential by finding the strengths<br />
of the individual that will lead to their success in employment,<br />
education, relationships, and adult life in general.<br />
His sixth book is currently in development and explores<br />
social experiences and relationships of individuals <strong>with</strong><br />
disabilities following grade school. We certainly can’t wait<br />
to read it!<br />
20 | INTERVIEW WITH DR. STEVEN SHORE INTERVIEW WITH DR. STEVEN SHORE | 21
Shema Kolainu | Big Red Safety Box Toolkit<br />
A Free Toolkit<br />
to Prevent Wandering?<br />
Is your child prone to wandering? Well, now there’s<br />
an amazing free new toolkit assembled by the National<br />
Autism Association.<br />
You must apply for the toolkit and if you qualify<br />
you will receive a Big Red Safety Box containing<br />
the NAA’s Be REDy Booklet, 2 GE Door/Window<br />
Alarms (batteries included ;] ), 1 personalized RoadID<br />
and Engraved Shoe ID Tag, 5 adhesive stop<br />
sign visual prompts for doors and windows, 2 safety<br />
alert window clings for car or home, 1 Red safety<br />
alert wristband, and 1 child ID kit from the National<br />
Center for Missing and Exploited Children.<br />
The Be REDy Booklet can be downloaded online<br />
for free while you wait for your toolkit and additional<br />
items can be purchased on their website.<br />
This initiative is unbelievable and going to be a<br />
big help for lots of families. Though it’s absolutely<br />
free, they ask for optional donations to benefit their<br />
cause and keep it going.<br />
22<br />
BIG RED SAFETY BOX | 23
Shema Kolainu | Invitation to Donate<br />
You can now make a<br />
difference in the life of<br />
a child <strong>with</strong> autism<br />
BRIGHTEN UP THE LIFE OF A CHILD<br />
$18<br />
Our therapy and education strategies help autistic<br />
children to engage <strong>with</strong> others<br />
GIVE HOPE, GIVE HAPPINESS<br />
$180<br />
This gift will provide 6 months of specialized education<br />
and therapies for a child <strong>with</strong> autism<br />
GIVE A YEAR IN A LIFE OF A CHILD<br />
$1800<br />
Provide a full year of specialized education, therapy<br />
and family support for an autistic child<br />
By making a donation, you support Shema Kolainu’s<br />
mission to help children <strong>with</strong> autism spectrum<br />
disorder (ASD) achieve their full potential for<br />
independence, productivity and inclusion in the<br />
community.<br />
You Can Donate By<br />
Calling: 1-718-686-9600 OR Mailing a check to:<br />
4302 New Utrecht Avenue<br />
Brooklyn, NY 11219<br />
www.shemakolainu.org<br />
Make a donation, no matter how small or large. Your support<br />
will help so many in need.<br />
24 | INVITATION TO DONATE