1 | Information provision and support at dementia diagnosis

Figure 8 shows that:
29% (15 people) were given both written and verbal information about the condition;
17% (8 people) were given both written and verbal information about treatment;
23% (11 people) were given both written and verbal information about support
options locally;
5% (2 people) were given both written and verbal information about a personalised
care plan and;
7% (2 people) were given both written and verbal information about a carer’s
assessment respectively
7% (2 people) were offered both written and verbal information about all of these subjects.
For respondents who had been diagnosed more than 12 months ago, verbal and written
information was only provided to one person (see Figure 9).
Figure 9. Experiences of the information and support received (from 25 people diagnosed more than 12
months ago). Note: not all respondents answered each question.
Your condition
(25 people)
Your treatment
(25 people)
Support options locally
(25 people)
A personalised care plan
(25 people)
A carers assessment (for carers only)
(23 people)
Both written and verbal Verbal information only Written information only
No information given
Don't know/not sure
We wanted to know where the information that was provided at diagnosis was too much,
the right amount, or not enough. For those diagnosed in the last 12 months, 45% felt that
the amount of information received was the correct amount, and 10% and 45% felt that they
were given too much or too little information respectively. Figure 11 shows that for people
diagnosed more than 12 months ago, 77% and 23% felt that they were given too little and
too much information respectively. However we note that proportionately twice as many
people with an experience in the last 12 months are getting the right amount of information
compared to those with an experience more than 12 months ago.
17 | Information provision and support at dementia diagnosis