Kidney Matters - Issue 4, Winter 2019

spells danger
lower end of the scale. Most of my symptoms disappeared,
bar getting very cold if the ambient temperature fell. My
blood tests showed huge improvement in creatinine levels
(back down to around 430) and I have been broadly stable
for sodium, potassium, phosphates and eGFR readings. My
consultant tells me I am doing exceptionally well, but still
expects my condition to worsen again at some point. But
at least I feel as though I’m holding my own for the present
as a result of my own efforts, which gives me a significant
mental boost.
Another effect of the diet change is that I’ve lost over 22kg in
weight over the last 3 years - a slow process but a material
change and one without precedent in my life. My plan is to
carry on, hopefully to lose another 20kg or so, hoping that, if a
transplant becomes needed, I’ll be fit enough to qualify!
“I used a ‘highlights’ chart (diet
is a moving target but here’s
my current chart) to focus on a
narrow range of foods. I began
to sense how my body would
react to different foods and
drinks, and to judge how much
food to eat without needing
access to food scales”
What are you, your KPA or your unit doing for World Kidney Day to help
promote kidney health? We’d love to hear about your day and share some
of your photographs with the thousands of readers of Kidney Matters. Get in
touch with us in the Kidney Matters office at editor@kidneycareuk.org
www.kidneycareuk.org Issue 4 Winter 2019 15