ALSA-EC_AnnualNewsletter_2019-2020 PAGES

ALS Association Evergreen Chapter
by the Numbers
826
total number of
patients served
in our region –
Washington,
Idaho, Montana and Alaska.
19
support group meetings
with a total of 1,497
participants were held
in 2018. No one should
have to face ALS alone. Due to the
intensity of the disease, patients and
caregivers can share tips that make
living with the disease easier, and
support one another.
1,059
pieces of
Durable Medical
Equipment were
provided free of charge. ALS is a
progressively disabling disease which
means there is an ever increasing
need for medical equipment. Even
good insurance does not cover all the
equipment needs a patient will have
throughout the course of the disease.
Our free equipment loans become a
lifeline for patients and caregivers.
1,036
personalized
face-to-face
patient care
meetings were held with our expert
Care Coordinators, averaging almost
3 a day. During these meetings,
patients were connected to
resources, provided assistance in
navigating the various governmental
agencies and medical institutions,
and offered referrals for services, like
home remodeling for accessibility.
176
patient meetings
held by the chapter’s
assistive technology
manager to provide personalized
technology support.
11
specific multi-disciplinary
clinics were attended by our
patient care coordinators
throughout Washington and
Idaho. The chapter has relationships
with other ALS providers in Alaska
and Montana. The ALS Association
Evergreen Chapter sponsored an
ALS Clinical Conference in 2018 with
more than 100 participants from
these regional clinics. Clinical Care for
people living with ALS can increase
life expectancy two years, on average.
6
meetings held by the Board
of the Evergreen Chapter
in 2018. This included a
day-long annual board retreat.
Along with providing guidance and
governance to the organization, the
Board oversees the budgeting and
monitors the finances. This ensures
that each dollar is used wisely and to
move the mission forward.
In the fiscal year ending Jan. 31, 2019, the Evergreen Chapter amassed $1,018,000 in
total revenue, and had total expenses of $1,314,331. Expenditures included $1,050,959
for chapter programs; $208,060 for fundraising and $55,312 for administrative expenses.
Net assets at year end were $462,855.
6 | 2019-2020 SUCCESS REPORT