FSHD Brochure_

Physiotherapy for FSHD
Acknowledgement
This brochure is the result of a collaboration
between Spierziekten Nederland and the Royal
Netherlands Society for Physiotherapy or Koninklijk
Nederlands Genootschap voor Fysiotherapie
(KNGF). This brochure is one of a number of
informative brochures for physiotherapists. These
publications can be downloaded and ordered via
www.spierziekten.nl.
Spierziekten Nederland
Spierziekten Nederland is an association for, but
especially also of, people with a neuromuscular
disorder (muscle disease). Spierziekten Nederland
stands up for people with a muscle disease. It is
about better quality of care, effective scientific
research, mutual contact and good education
and information, and is also for doctors and
other professional care providers. Spierziekten
Nederland works closely with medical specialists,
physiotherapists, occupational therapists and
researchers. There is a close relationship with
the university medical centres and specialised
rehabilitation centres. This enables bottlenecks in
healthcare to be quickly identified and resolved.
Spierziekten Nederland also plays an important
role in stimulating scientific research.
Lt. Gen. van Heutszlaan 6
3743 JN BAARN
Telephone: 035 548 04 80
E-mail: mail@spierziekten.nl
www.spierziekten.nl
Royal Netherlands Society for
Physiotherapy - Koninklijk
Nederlands Genootschap voor
Fysiotherapie (KNGF)
Editorial staff
Mrs C. van Esch MSc, medewerker kwaliteit van
zorg, Spierziekten Nederland
Mrs dr. A.M.C. Horemans, hoofd kwaliteit van
zorg, Spierziekten Nederland
Mrs C. Verwer, medewerker zorg, Spierziekten
Nederland
Mrs D. de Groot, Projectmedewerker Beleid &
Ontwikkeling, Koninklijk Nederlands Genootschap
voor Fysiotherapie
Mrs drs. M. van der Wurff, medewerker
communicatie, Spierziekten Nederland
This publication was produced with contributions
and advice from dr J.T. Groothuis, rehabilitation
docter, Radboudumc, dr J.J. den Boer, D.M. Maas
MSc, and J. IJspeert, MSc, physiotherapists from
the Department of Rehabilitation at Radboudumc,
drs. S. Knuijt, dr. B.J.M. de Swart, J. Weikamp
MA, speech therapists at Radboudumc, prof.
dr. G.W.A.M. Padberg, Emeritus Professor of
Neurology, Radboudumc, dr. P.G. Erdmann,
physiotherapist Avans Hogeschool, K. Pelger
children’s physiotherapist Mytylschool Gabriël and
core group member, F. de Ruiter, physiotherapist
Roessingh Centre for Rehabilitation and core
group member, drs. R.O. van Vliet, rehabilitation
docter at Roessingh Centre for Rehabilitation, dr.
N.B.M. Voet, rehabilitation docter at Klimmendaal,
Anke Lanser, patient representative. The text has
been commented on by various patients.
Financing
This brochure has been realised in part thanks to
the financial contribution of the Innovatiefonds
Zorgverzekeraars.
Baarn, 2017
The KNGF is the umbrella association for
physiotherapists and ensures the continuous
optimal quality and good position of
physiotherapy. The KNGF does this with a focus
on physiotherapists, but also for patients.
Stadsring 159b
3817 BA AMERSFOORT
Telephone: 033 467 29 00
E-mail: info@kngf.nl
www.kngf.nl and www.defysiotherapeut.com
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