Kidney Matters - Issue 15 Winter 2021
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease. This issue includes features on learning to accept and embrace changes to your body, celebrating black kidney donors throughout Black History Month, fluid management, diabetes after transplantation, and an article all about how a young working mother of two children coped with her CKD diagnosis. As well as this, the Kidney Kitchen features a delicious, low potassium Christmas pudding! We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time over the past year talking to kidney patients on dialysis, asking them what we can do to address this. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world and what is available to them in terms of support and how to access it. Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease.
This issue includes features on learning to accept and embrace changes to your body, celebrating black kidney donors throughout Black History Month, fluid management, diabetes after transplantation, and an article all about how a young working mother of two children coped with her CKD diagnosis.
As well as this, the Kidney Kitchen features a delicious, low potassium Christmas pudding!
We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time over the past year talking to kidney patients on dialysis, asking them what we can do to address this. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world and what is available to them in terms of support and how to access it.
Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
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In this Winter issue
Features
6
Celebrating black kidney donors
throughout Black History Month
Article by Dela Idowu, founder, Gift of Living
Donation (GOLD) on the extraordinary
things ordinary black people do for kidney
patients.
14
Seeing something beautiful
Daz Pearson on learning to accept and
embrace changes to his body
18
I may bring sand on to the
dialysis unit
Bow Harrison on how she coped with her
diagnosis of chronic kidney disease and
dialysis through fresh-water swimming,
camping, and hiking
26
You speak my language
Tahira Mir, Cultural and Health
Improvement Officer at the Bradford NHS
Teaching Hospital, on the importance
of understanding cultural and religious
sensitivities
Food, glorious food
20
Steamed Christmas pudding
Low potassium Christmas pudding, a
tasty festive treat for everyone!
Page
20
On your side
4
NHS
24
Medical
10
16
36
Page
8
England commits to provide
transport for patients using
unit-based dialysis, thanks to
your input!
Free transport for dialysis patients
Kidney disease hasn’t stopped
because of the pandemic, and
neither have we!
How Kidney Care UK has helped the
kidney community
Kidney Clinic - not so sweet:
diabetes after transplantation
Exploring the causes of post-transplant
diabetes, and its treatment
ACCessing vascular access
research
Comparing the success of arteriovenous
fistulas created under local versus regional
anaesthetic
How much do haemodialysis
patients understand about
fluid management?
How involved are you with your
fluid management?
Page
18