Kidney Matters - Issue 16 Spring 2022
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease. This issue includes features on delayed graft function, the impact of CKD on families, friends and care-partners, improving organ donation, a husband's perspective on the challenges faced from caring for someone with CKD, and an article all about a family's journey from dialysis to transplant and all the things in between. As well as this, the Kidney Kitchen features a warming pear and blackberry crumble, perfect for Valentine's Day! We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it. Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease.
This issue includes features on delayed graft function, the impact of CKD on families, friends and care-partners, improving organ donation, a husband's perspective on the challenges faced from caring for someone with CKD, and an article all about a family's journey from dialysis to transplant and all the things in between.
As well as this, the Kidney Kitchen features a warming pear and blackberry crumble, perfect for Valentine's Day!
We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it.
Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
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“National audits show that there are inequalities
and variation between units, which affect access
to treatment and patient outcomes. These include
local limitations on resources and access to novel
technologies to support organ transplantation and
increase utilisation, which varies between units.
Combined, these lead to inequities in access to
transplantation from geographic, socio-economic and
ethnicity perspectives.
“There is a need to review the organ transplantation
infrastructure, to explore how the resources already
available can be best utilised and to meet the needs of
patients.”
Tell us your views on what could be done to
improve organ donation, and the barriers to
making this happen from your viewpoint or in
your experience by writing to us or emailing us at
policy@kidneycareuk.org
Kidney Matters will keep you updated on this
programme as it develops.
Article by Fiona Loud
Policy Director, Kidney Care UK
For more information about
transplantation and the OUG go to
www.kidneycareuk.org/
transplantation
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