15.08.2023 Views

State of BBSOAS Research

BBSOAS research goals, clinical trials and projects for nr2f1 gene. You can find more information on our website - https://nr2f1.org/state-of-research-2023/.

BBSOAS research goals, clinical trials and projects for nr2f1 gene. You can find more information on our website - https://nr2f1.org/state-of-research-2023/.

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COMBINEDBrain

• Mission: Consortium led by patient advocacy foundations, working with the

clinicians, researchers and pharmaceutical firms that are developing treatments for

the disorders they represent.

• Best Practices from other more mature Patient Advocacy Groups

• Resources

• Rent a Scientific Officer Program

• Patient Registry Guidance

• Intro to Research Teams

• Programs to Drive Prevalence

• Connections to Pharma

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