RuSH: Strategies from the Field - Centers for Disease Control and ...

Table of Contents
RuSH—Strategies from the Field: Data Collection
Overview 4
Strategy Field Reports 6
Case Definition 6
North Carolina: Matching Existing Government and Clinical Datasets 8
Georgia: Limitations of International Classification of Disease (ICD) Codes for Defining and
Identifying Hemoglobinopathy Cases 10
California: Obtaining and Using Medicaid Data for Hemoglobinopathy Surveillance 12
Pennsylvania: The Use of Partnerships in Creating a Hemoglobinopathy Database 14
Florida: Creating a Physician Reporting Website 16
Michigan: Creating a Statewide Hemoglobinopathy Long-Term Follow-Up Module 17
New York: Case Ascertainment of Individuals With Hemoglobinopathies Not Identified Through Newborn Screening 19
Acknowledgments 22
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