No decision about me, without me - Department of Health

Shared Decision-Making programme
5.18 The Right Care Shared Decision Making Programme 34 is run as part of the
QIPP programme, hosted by the East of England SHA. The programme works
to embed the practice of shared decision making among patients and the wider
public and among health professionals and their educators.
5.19 The programme is working to establish shared decision-making as a part of
education and training resources for healthcare staff and commissioners. It is
also providing training and other resources for advocates within the voluntary
sector to raise awareness amongst and promote demand from patients, their
family and carers. Another workstream includes developing 36 patient decision
aids to help patients understand and consider the pros and cons of possible
treatment options. These will also encourage communication between patients
and their healthcare professionals.
Care and support
5.20 Caring for our future, the Government's White Paper for care and support, set
out the ambition to reform adult social care and transform people’s experience
of care and support. Central to this vision is the need to put people in control of
their own care, including the public money available to them and provide them
with the ability to choose how their needs should be met. The White Paper
focuses on personalising care and support so that it is built around the needs,
goals and outcomes of people, not around institutions.
5.21 The draft Care and Support Bill continues this focus to embed personalisation in
legislation. The draft Bill enshrines new legal principles to promote the
person's well-being, including the control they have over their day-to-day life
and the care and support they receive. It also creates a new entitlement to a care
and support plan (or a support plan, in the case of a carer), and places clear
duties on local authorities to help the adult decide how they want their needs to
be met, so that they are at the heart of the planning process.
5.22 The care and support plan will also include, as a standard element, the adult’s
personal budget, which is created in law for the first time. This new entitlement
to a personal budget will be a key factor in empowering people to take more
control over how their care and support is provided, by giving them knowledge
of the money available to meet their needs. The personal budget will be linked
to existing rights to take a direct payment from the local authority to access that
money, where the person chooses.
34 http://www.rightcare.nhs.uk/shareddecisions/
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