Linkup February 13 - Leicestershire Autistic Society
Linkup February 13 - Leicestershire Autistic Society
Linkup February 13 - Leicestershire Autistic Society
Create successful ePaper yourself
Turn your PDF publications into a flip-book with our unique Google optimized e-Paper software.
The newsletter of the <strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong>,<br />
Charity no. 507300<br />
Issue No. 120 of the <strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong> - <strong>February</strong> 20<strong>13</strong><br />
Link~Up<br />
Contents page<br />
Autism Month 2<br />
Autism Information Hub 3<br />
LAS Membership 4/5<br />
Family Rights Project Workshops for Parents 6<br />
100 Club 7<br />
Fundraising 9<br />
Person Centred Support 10<br />
Monday Club 12<br />
New School <strong>13</strong><br />
Housemates 14<br />
Miracles to Believe In trips 16-19<br />
Face to Face 20<br />
Embrace Arts 22 & 25<br />
<strong>Leicestershire</strong> Autism Outreach Service 23-25<br />
MAC 26<br />
Sibs 33<br />
Jigsaw & Translate 37<br />
Helpline and other useful numbers 38-40<br />
LAS Website at www.leicestershireautism.org.uk<br />
Email: leicestershireautisticsociety@gmail.com
2<br />
AUTISM MONTH – April 20<strong>13</strong><br />
Just a quick reminder that now is the time to prepare for April’s<br />
Autism Month. If you are going to have a bake/cake/book/car boot<br />
sale, or other fundraising and awareness event, please contact<br />
me asap so that I can get leaflets and info out to you.<br />
We are looking for volunteers to help at a Used Children’s Toy,<br />
Clothing and Book Sale to be held in April at a Venue yet to be<br />
confirmed. If you know of any no cost, or low cost venues please<br />
contact me asap. If you are able to donate items for the sale,<br />
please contact me so that we can arrange drop off or collection.<br />
LOUGHBOROUGH SUPPORT GROUP<br />
New Leader Required!<br />
Jenny Cornwell<br />
We are a group of parents who meet on the last Monday of the month at<br />
John Storer House, Wards End. Loughborough, <strong>Leicestershire</strong>, LE11<br />
3HA at 7.30pm. We are a small friendly group who meet up for tea and<br />
coffee (lots of it!), a chat and speakers.<br />
Dates<br />
25th <strong>February</strong> 20<strong>13</strong> Ruth Howard NAS Family Rights Project<br />
25th March 20<strong>13</strong> Speaker to be confirmed<br />
After many years of running the Loughborough Support Group, I had to<br />
announce at our January meeting that I would be standing down in<br />
March. Many years ago I took over after Sue Harrison wanted to step<br />
down, despite not at the time going to the Group that was then running!<br />
Is there anyone out there who would like to step into my shoes and take<br />
over the running of the Group. The LAS will pay expenses, room hire<br />
etc. It may be that you would like to run a Group from a different location<br />
(many of our parents are from Ashby for example) - again we (the LAS)<br />
can help and support you<br />
Please contact Carole Heubeck on 01530 244790 to discuss
NEW AUTISM INFORMATION HUB TO LAUNCH<br />
IN LEICESTERSHIRE IN SPRING 20<strong>13</strong><br />
<strong>Leicestershire</strong> County Council working with the National <strong>Autistic</strong> <strong>Society</strong><br />
and other local organisations, including the Monday Club and the <strong>Leicestershire</strong><br />
<strong>Autistic</strong> <strong>Society</strong> is launching a new service for adults with <strong>Autistic</strong><br />
Spectrum Conditions, their parents, carers and families. The Hub will<br />
have two functions:<br />
An Information Service: this will be available via telephone and e-mail,<br />
Monday to Friday every week, 9am – 6pm (excluding Bank holidays).<br />
Two dedicated members of staff will deliver the service, providing a comprehensive,<br />
online information resource giving information on services<br />
across <strong>Leicestershire</strong>, for adults with <strong>Autistic</strong> Spectrum Conditions. The<br />
database will be regularly maintained and updated and include information<br />
from <strong>Leicestershire</strong> County Council, local voluntary organisations,<br />
the Health sector and national organisations and charities.<br />
Promotion of Autism Awareness: the Hub team will also work with local<br />
employers to promote autism awareness and provide autism training<br />
for employers and organisations in <strong>Leicestershire</strong> to improve opportunities<br />
for adults with <strong>Autistic</strong> Spectrum Conditions.<br />
The Hub Team<br />
We are seeking to recruit the Hub team who should ideally have a<br />
background in information provision and an excellent understanding of<br />
autistic spectrum conditions. We have 2 posts:<br />
3<br />
a full-time Information Manager, responsible for delivering the service<br />
and maintaining the information resources and,<br />
a part-time Employment Support Co-ordinator who will assist with the<br />
information service but also focus on the promotion of autism<br />
awareness for local employers and organisations.<br />
Advertisements will be placed shortly, locally and nationally, but if anyone<br />
would like further information, at this stage, please e-mail:<br />
wendy.small@nas.org.uk
Toileting Issues<br />
Some parents have mentioned at some of the support<br />
groups I attend around the City and County the toileting<br />
issues their children with a diagnosis of ASD and a<br />
Statement of Special Educational Needs, who are in<br />
mainstream schooling, are facing. Parent/carers indicated that although<br />
the child is potty trained, they still find difficulty with personal care in the<br />
toilet, and despite it noted in their SEN, schools are not helping the child,<br />
thus causing an array of problems related to the soiling of clothes<br />
(bullying, name-calling, physical problems in girls, etc). I would agree<br />
with school policy that physically & literally helping the child can be a<br />
safeguarding issue, but what parents are asking is for assessment or advice<br />
from the OT service or other services and the school on how to help<br />
the children with the actual actions while at school and at home. Parents<br />
just want to work in partnership with the schools, to maintain continuity<br />
for the child.<br />
Does anyone have or have had this problem with their child? Do you<br />
have any hints, tips on how to help these parent carers with this situation?<br />
Any ideas on what can be done at home to help teach the child?<br />
Please contact me, and I will pass on your ideas to these parent carers.<br />
Jenny Cornwell<br />
Receiving this copy of LinkUp - time to renew your membership of the<br />
<strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong>?<br />
We send out LinkUp 4 times a year which now costs £2.00 in postage to<br />
every household. Together with the cost of printing and envelopes this<br />
will amount to the £5 it costs to be a member of the <strong>Leicestershire</strong> <strong>Autistic</strong><br />
<strong>Society</strong>.<br />
We can also offer you the opportunity to just receive LinkUp by email<br />
instead of, or as well as, a hard copy.<br />
Email heubeck111@btinternet.com to request your electronic copy.<br />
As well as LinkUp we also provide a family support worker, support<br />
groups and both a children's and adults directory.<br />
Our membership form is on page 5 opposite - please fill it in and return<br />
to our membership secretary now - thank you for reading this.<br />
4
5<br />
Las Membership April 20<strong>13</strong>-March 2014<br />
I would like to receive LinkUp and become a member of<br />
the LAS and enclose a<br />
£5 (families)<br />
or £7 (Professionals)<br />
cheque or postal order made payable to the <strong>Leicestershire</strong><br />
<strong>Autistic</strong> <strong>Society</strong>.<br />
Name...................................................................<br />
Address: ...............................................................<br />
...............................................................................<br />
..............................................................................<br />
Post Code:..................Email .....................................<br />
Telephone(s):................................................................<br />
Parent/Professional (please delete what is not applicable ).<br />
Name of Child/person with<br />
ASD....................................<br />
Age...............<br />
Gift Aid Please tick if a tax payer so we can reclaim the tax you<br />
have already paid tax on<br />
Please send the application form along with your £5 cheque or<br />
postal order to the<br />
Lindy Hardcastle Membership Secretary<br />
31 Flaxfield Close , Groby , Leicester, LE6 0EZ
6<br />
Workshops for Parent/Carers<br />
and extended family members<br />
The Family Rights Project is a Department for Education-funded project<br />
for parents/carers of a child with an autism spectrum disorder, delivered<br />
by The National <strong>Autistic</strong> <strong>Society</strong>.<br />
They will provide training days for parent/carers across England that<br />
provide accurate information about you and your child's rights and entitlements<br />
in three key areas:<br />
• Education<br />
• Welfare (benefits)<br />
• Community care<br />
The project also helps parent/carers to utilise the information about their<br />
rights and entitlements to their best advantage, by starting to develop<br />
goals and plans within the sessions. You'll get an information pack to<br />
take away, and you'll also receive updated information as and when<br />
changes to legislation and guidance are introduced which may affect<br />
your rights and entitlements.<br />
Everyone would be welcome, but pre-registration is necessary.<br />
Dates are:<br />
Saturday, 23rd <strong>February</strong> - 9.30am-1.30pm incl lunch- Wigston (Venue<br />
to be confirmed)<br />
Tuesday, 5th March - 10am-2.30pm incl lunch- Loughborough (Venue<br />
to be confirmed)<br />
Thurs 7th March - 10am-2:30pm incl lunch @ BW2 (Birchwood Special<br />
School-upper school building), Burton Road, Melton Mowbray, LE<strong>13</strong><br />
1DR<br />
:<br />
Please contact Jenny Cornwell to register for the daytime sessions<br />
- 07786 626 426
7<br />
<strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong><br />
100 Club 2012-<strong>13</strong><br />
Please register me as a member of the 100 Club from April<br />
20<strong>13</strong> - March 2014 and enter me in the monthly cash prize<br />
draw.<br />
Name: …………………………………………………………………….<br />
Address: …………………………………………………………………<br />
Telephone: ………………….E-mail: ………………………………….<br />
I enclose a cheque for £12 payable to the <strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong><br />
Signed: …………………………………. Date: ………………………<br />
Return to Lindy Hardcastle 31 Flaxfield Close Groby LE6 0EZ<br />
Join the 100 Club!<br />
The 100 Club, launched seven years ago, has been a great success,<br />
providing a steady income for the <strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong>. As I<br />
am sure you all know, we are totally dependant on fundraising and donations<br />
for our income and we greatly value the support of our members.<br />
The 100 Club works like this: we ask members to pay £12 a year and a<br />
winning number is drawn each month. The lucky winner receives half<br />
that month’s subscriptions and the other half goes to the LAS – so the<br />
more members we have, the bigger the prize and the bigger the <strong>Society</strong>’s<br />
share.<br />
For new members, there is an application form above with this copy of<br />
Link-Up. !<br />
Please only use this form if you are a new member of the 100 Club<br />
or if you wish to purchase a second number. Existing members<br />
should use the tear-off slip from their renewal letter.<br />
Lindy Hardcastle<br />
Congratulations<br />
to Jane Burnsall, who is the 100 Club winner in January!
ARE YOU CONFIDENT THAT YOUR CHILDREN ARE SAFE AND<br />
HAPPY IN SCHOOL? HOW SURE ARE YOU THAT THEY ARE NOT<br />
BEING ABUSED VERBALLY,PHYSICALLY OR EMOTIONALLY?<br />
Every school morning our daughter walks over to her bus and happily (or<br />
otherwise, depending on her mood) and gets on, knowing she’s going off<br />
to her special school. For the next 7 hours or so, I have just entrusted<br />
our child to the bus driver, escort and school staff.<br />
In the past few months, I have been informed of incidents occurring in<br />
some schools, special schools, and playschemes in <strong>Leicestershire</strong>. It<br />
has been reported that staff have verbally mistreated children in their<br />
care. I was shocked to hear these reports, and am concerned about the<br />
possibility of other incidents which haven’t been reported. As a parent, I<br />
respect the staff at my daughter’s special school, and I know most parents<br />
respect their children’s teaching staff too. We appreciate the work<br />
involved in teaching and caring for our children, and we assume that all<br />
staff are properly trained to work with all children, including children with<br />
special needs.<br />
There is NO acceptable reason where a child in these settings should be<br />
subjected to any abuse, verbal or other. Children who exhibit challenging<br />
behaviours should not be seen in a negative way. These behaviours can<br />
be reduced or even eliminated, with the proper support of trained staff<br />
and service providers. These children should not be viewed as malicious,<br />
“uncontrollable” or naughty.<br />
Not too long ago I heard in the news about controversy around using<br />
CCTV in schools, and that this country was becoming into a “big brother<br />
is watching”. My personal opinion: If there is nothing to hide, and you are<br />
doing your absolute best, then why worry? I am truly concerned<br />
Jenny Cornwell<br />
8<br />
Wish to put something into the LinkUp?<br />
Email us at heubeck111@btinternet.com<br />
Remember that this Magazine belongs to you and that the articles and<br />
information in it need to be provided by you. Please send copy by Mid<br />
May 20<strong>13</strong>.<br />
The next issue being in June 20<strong>13</strong>. If you are not yet on our mailing list -<br />
please contact either myself, or Lindy Hardcastle Please note that we<br />
NEVER give this information out to anyone else<br />
Carole Heubeck, Editor.
SLIMMING WORLD COLLECTION BOXES (CLIVE MORGAN'S<br />
GROUPS)<br />
September 2012(2nd box) £91.62 (which included another clothes swop)<br />
October 2012 £49.12<br />
November 2012 £54.45<br />
December 2012. £41.49<br />
Clive's personal donation £10.00 (instead of sending Xmas cards)<br />
GRAND TOTAL FOR THE YEAR £ 596.48!!!!<br />
Once again a huge Thank you to Clive and all his members for donating<br />
their 5ps each week from weekly meeting costs.<br />
What a fantastic amount you have raised for us in a year.<br />
Please keep supporting us we need all the help we can get.<br />
PS DO YOU GO TO A WEEKLY SLIMMING CLUB OR SPORTS<br />
GROUP ? Why not ask them to do the same for the LAS and we can get<br />
you an official collection box. Jackie Hough<br />
9<br />
NEW for 20<strong>13</strong> !<br />
“DESIGN AN LAS CHRISTMAS CARD” COMPETITION<br />
As part of a fundraising idea, we would like to hold an<br />
LAS Christmas Card Design competition. This year, the<br />
LAS would like to sell their own Christmas Cards as a<br />
fundraiser. We will print the 5 winning Christmas designs<br />
done by our own loved ones who have a diagnosis of<br />
ASD/Aspergers, and have them ready for all of us to sell<br />
(and buy) from October-December. If you, your child, a<br />
friend or family member who has ASD are/is interested<br />
and would like to submit a Christmassy design, please<br />
contact me at 07775 777 524,or email:<br />
cornwells@hotmail.co.uk. There will be a prize given to<br />
each of the 5 winning designs. The deadline for submissions<br />
is 1 st May, 20<strong>13</strong>.<br />
Jenny Cornwell-Fundraising Coordinator
10<br />
PERSON CENTRED SUPPORT<br />
There’s no challenging behaviour here.....<br />
The term “challenging behaviour” is used as a way of focusing our attention<br />
on what the behaviour is telling us, and as a means of us finding out<br />
what the individual is trying to communicate, rather than labelling the person<br />
as the problem<br />
When we think about challenging behaviour and the people we support<br />
we generally understand this to include:<br />
• Aggression e.g. hitting, biting, screaming, swearing<br />
• Self - injurious behaviour e.g. head banging, eating inedible objects,<br />
hitting face or head<br />
• Damage to property e.g. Throwing furniture , breaking windows<br />
• Socially inappropriate behaviour e.g. stripping, urinating, masturbating<br />
But we often fail to recognise that it also includes other behaviours<br />
which stop, or make it very difficult for, the person to be involved in<br />
ordinary activities and relationships at home and in the community<br />
such as:<br />
• Self stimulatory behaviours e.g. finger-flicking, teeth-grinding,<br />
humming<br />
• Stereotyped or ritualistic behaviours e.g. body-rocking, arm flapping,<br />
repetitive speech<br />
• Obsessive behaviour e.g. putting together or taking apart objects,<br />
lining things up, positioning furniture and doors, checking light<br />
switches<br />
• Withdrawn behaviour e.g. pulling clothing over head or eyes, fingers<br />
in ears, closing eyes, routinely sitting or standing away from<br />
other people<br />
• Refusal or avoidance e.g. automatically saying no to requests or<br />
suggestions, avoiding opportunities to interact with others or participate<br />
in activities<br />
Recognising these behaviours as challenging prompts us to try and understand<br />
why the person behaves the way they do and places the responsibility<br />
on us to find constructive responses and solutions, as illustrated<br />
with the following example:<br />
Jane *(not her real name)<br />
Jane is a happy, fun loving and trusting person in their 20’s who attends<br />
a Community Support Service. Jane loves to greet people when they
arrive by giving them a bear hug. These interactions get very noisy and<br />
disrupt the activities. Because the Service is very busy this becomes<br />
very difficult for everyone to deal with, especially as Jane doesn’t respond<br />
to suggestions about calming things down.<br />
The team used assessment tools from Positive Behaviour Support<br />
(particularly direct observation) to help them understand what was going<br />
on. They established that the bear-hugging behaviour had the effect for<br />
Jane of gaining and maintaining interactions, but they also found variations<br />
in how much it happened in different circumstances - information<br />
which they used to develop the intervention.<br />
The intervention stressed that the role staff had in managing the noise<br />
levels in the service - by greeting Jane promptly but in a measured and<br />
calm way and in using distraction and preferred activities, helped her<br />
manage her levels of excitement. These approaches were carried out<br />
across a range of proactive and reactive strategies.<br />
As a result, Jane is much more focused on the activity she’s engaged in<br />
and less distractible - resulting in her being able to do some things on her<br />
own that previously she could only have completed with support. She<br />
always knows when people have come in and always greets them, but<br />
this no longer creates disruption for her or for anyone else.<br />
Her local Area Manager observed: “Staff didn't recognise Jane’s behaviour<br />
as challenging because it was so positive in intent - she just wanted<br />
to greet you and have fun with you. But the consequences for Jane and<br />
other people who use the Service were becoming severe and could have<br />
led to Jane not being able to attend. By seeing the behaviour as challenging<br />
and not “just the way Jane is” and looking closely at what factors<br />
affected the behaviour, the Service was able to change the ways Jane is<br />
supported.<br />
Thank you to Jackie Hough for this.<br />
11<br />
LAS AGM and Conference<br />
The LAS AGM will be coming up shortly and we will advertise it in the<br />
next LinkUp. If you are interested in joining the Committee (we only meet<br />
up a few times a year) or would like to get involved in some way with us<br />
such as fund raising etc please contact Jenny our vice chair for more information<br />
- contact details on page 40.
12<br />
Registered Charity No. 1126179<br />
Limited Company No. 6384957<br />
Job Vacancy<br />
Group Development Project Coordinator<br />
The Monday Club provides social support services to<br />
adults with Asperger Syndrome in Leicester and <strong>Leicestershire</strong><br />
to provide individuals with the condition the opportunity<br />
to meet others like themselves, to take part in<br />
normal activities, access the wider community and to develop<br />
their individual potential. The Monday Club is recognised<br />
as a National example of Service Excellence and<br />
is quoted as such in the National <strong>Autistic</strong> <strong>Society</strong> document<br />
Taking Responsibility, Good Practice guidelines for<br />
local services on how to help adults with As.<br />
We require a member of staff to develop and facilitate<br />
a c t i v i t i e s f o r o u r W e d n e s d a y G r o u p<br />
Meeting and coordinate our growing bank of volunteers<br />
in conjunction with the project manager. The Wednesday<br />
Group is an extension of the service we provide on the<br />
Monday evening and is aimed at providing more challenging<br />
activities for our service users. The post is currently<br />
for ten hours per week for one year.<br />
The successful applicant will be someone with vision, enthusiasm<br />
and energy, to join a small staff team of three<br />
and play a key role in moving this excellent project into<br />
the next phase of its development. The applicant will be<br />
required to have some understanding of the needs of<br />
people with Asperger Syndrome, experience in developing<br />
activities preferably for adult group and experience<br />
of coordinating volunteers.<br />
For more details please contact Chris Covill via email at<br />
themondayclub@hotmail.co.uk or on 07873 311 610 for<br />
further information and application packs. The closing<br />
date will be at 5pm on Friday 22 nd <strong>February</strong> 20<strong>13</strong>. Interviews<br />
will commence during the week beginning Monday<br />
25 th <strong>February</strong> 20<strong>13</strong>.
<strong>13</strong><br />
NEW SCHOOL OPENING SOON IN<br />
LEICESTERSHIRE<br />
WOODSIDE LODGE OUTDOOR LEARNING CENTRE<br />
Is an Autism specific provision,<br />
based in Quorn, <strong>Leicestershire</strong>, for<br />
children aged 11-19. We currently<br />
offer 4 places, increasing to 8 over<br />
the next 2 years.<br />
Woodside Lodge is the creation of<br />
Jonny Lakin, formerly of ASPIRE:<br />
Lifeskills. For many years it has been<br />
his dream to open his own provision<br />
and after a lot of hard work, Woodside<br />
Lodge will be ready to accept<br />
children from <strong>February</strong> 20<strong>13</strong>.<br />
Situated on a working commercial farm, our curriculum will give each<br />
child the opportunity to spend as much time outdoors, with the animals<br />
on the farm and in our own “on-site” woods, as possible.<br />
Woodside Lodge will put the needs of all our students first. From the individualised<br />
timetables with 1:1 teaching, to the individual booths for each<br />
child to work in, every aspect of a child’s school life has been thought<br />
about to help them all reach their full potential.<br />
The school is now ready for parents and professionals to look around. To<br />
arrange a visit, or to find out any more information, please email<br />
info@woodside-lodge.co.uk or call Jonny on 07903 <strong>13</strong>7 897. Alternatively,<br />
you may download our brochure by visiting www.woodsidelodge.co.uk<br />
and clicking on the BLOG tab.<br />
We look forward to seeing you soon!<br />
Carer required for a few hours a week, out of school hours, for<br />
16 year old autistic boy in Countesthorpe.<br />
Social Services funded pay £8.50 per hour.<br />
Jimmy is placid, affectionate but has little spoken language. He enjoys<br />
going for walks, doing jigsaws and simple games and watching videos<br />
(mostly Muppets). Your task is simply to be with him.<br />
Phone Victoria on 0116 2771974 for more information.
Wanted – Housemates<br />
Young People ready for more independent living<br />
Do you have a son or daughter in the<br />
late teens/early twenties who is ready for<br />
more independence?<br />
I’m not running a business but a mum<br />
looking for housemates to share a<br />
house. My son Alex is nearly 19, has<br />
Asperger’s and is currently living in<br />
‘halls’ in Loughborough College. He is<br />
coping really well, with a little bit of help,<br />
and he will be ready next year to move<br />
into a house of his own in Loughborough.<br />
We can’t be the only parents in a<br />
similar position and wondered if there<br />
were others ‘out there’ whose young people might be interested in renting<br />
out a room and sharing a house with him on a longer term basis. It’s<br />
likely to suit those who are relatively independent and ready to take that<br />
big jump away from ‘Mum & Dad’ (It seems to have been more difficult<br />
for me than for Alex!).<br />
Our plan is to have someone else living-in on reduced rent to provide<br />
‘light touch’ support for Alex: It may be that this person could be employed<br />
to undertake particular support work with your son/daughter if<br />
they need it? This would be a personal arrangement as I stress we are<br />
not providing a care setting or services.<br />
We are thinking that a group of 3 or 4 young people together would work<br />
well as if yours is anything like mine, having an immediate social network<br />
‘on site’ is likely to be attractive. Alex attended main stream school and<br />
college (with brilliant support – thank you, you know who you are!) and is<br />
friendly sociable and caring. He cooks for himself, manages his own<br />
money but we don’t like the idea of him ‘being on his own’. He is likely to<br />
get a part time job in catering when he leaves College.<br />
If you think your son or daughter might be interested in this kind of setting<br />
and you’d like to explore this with us, please give me a call on 07789<br />
967 417 or 01530 815 868 (after 6 pm) and we can arrange to meet up<br />
for a chat. Once we have a group I will be going house hunting!<br />
Alyson Hunter<br />
14
15<br />
£5 per session, 2 places left at going to press but will start a waiting list
For up-to-date details on trips with Miracles to Believe In look at the<br />
website—www.miraclestobelievein.moonfruit.com.<br />
Please note whilst the trips are low in cost to you, M2BI pay the full<br />
price. When you do not turn up we still have to pay for our bookings.<br />
You must also turn up on time i.e. Bowling at 10am please do not turn up<br />
at 10.45!<br />
We also have children on the Spectrum and they do not appreciate<br />
having to wait 45 minutes for mum and dad to organise everyone.<br />
16<br />
April 2nd Phoenix Film Show<br />
Film on a<br />
bean bag<br />
This is a opportunity to watch a large screen film, whilst relaxing with<br />
your family on bean bags so no worry about children running around or<br />
causing disruptions. An ideal start to going to the Cinema.<br />
First performance will be 10am with a second performance at either<br />
11.30 or 12 noon depending on the animated film chosen. Contact Rox<br />
via email or the form below if you are interested in attending.<br />
aysherox49@btinternet.com<br />
Parent/Carer Name .............................................................................<br />
Name of Child with ASD....................................................................<br />
Address..............................................................................................<br />
......................................................................Postcode......................<br />
Mobile number....................................................... Email:..............................................................................<br />
No of Adults in party........No of Children..........(max 6 per family)<br />
Time of film showing you prefer. 10am or<br />
11.30/12noon<br />
Send the form to Mrs Dinsdale, 49 Crane Ley Road,<br />
Groby, Leicester. LE6 0FD or email this information to<br />
aysherox49@btinternet.com<br />
Miracles to believe in
17<br />
Trip to<br />
Cadbury World<br />
Thursday 4th April 20<strong>13</strong><br />
We are running a trip to Cadbury’s World with 2<br />
coaches picking up at Loughborough, Leicester and<br />
Fosse Park. Our scheduled group time will be 9.50 so we will be arriving<br />
about 9.30. We have been told that the tours normally take about 1hr<br />
30mins to 2 hours to travel round and that there is a shop, restaurant and<br />
play area but that with it being the Easter Holidays it will be busy. There<br />
are also indoor and outdoor picnic areas.<br />
We will return from Cadbury’s World between 1pm and 1.30pm.<br />
Miracles to believe in<br />
Please note there are only 80 places available so please respond to this<br />
trip asap to ensure you have a place.<br />
Please note if you do not send a stamped addressed envelope to receive<br />
your confirmation reply you will not be allocated a place. We cannot reserve<br />
places without receipt of money.<br />
Cadburys World<br />
Parent/Carer Name:...............................................................................<br />
Name of Child/Children with ASD.........................................................<br />
Address: ......................................................................................<br />
............................................................Post code................................<br />
Email: ............................................. Mobile number.........................<br />
No of adults in party:________No of Children _______(max 6 tickets)<br />
Please indicate where you wish to pick up the coach (times to be conf)<br />
Loughborough, Amber Rooms ...................<br />
St Margarets Bus Station ....................<br />
Asda Fosse Park ....................<br />
Please send this form along with £10 cheque or postal order made out<br />
to ‘Miracles to Believe In’ to Please send this form to Carole Heubeck,<br />
5 Grey Crescent, Newtown Linford, Leicester LE6 0AA<br />
.
18<br />
Friday 31st May 20<strong>13</strong><br />
HOLLYWOOD BOWL<br />
Meridian - Leicester<br />
Friday 31st May 20<strong>13</strong><br />
£5 per family<br />
Parent/Carer Name:...............................................................................<br />
Name of Child/Children with ASD.........................................................<br />
Address: ......................................................................................<br />
............................................................Post code................................<br />
Email: .............................................Phone Number ........................<br />
Mobile number................................................................................<br />
No of adults in party:____________No of Children _______<br />
£5 enclosed - payment to be made at time of booking<br />
Miracles to believe in<br />
A Charity for Children with Autism<br />
We have booked 20 lanes for families of up to 6 - which must include<br />
the child under 19 with ASD (or waiting diagnosis). This offer will be<br />
limited to the first 20 families for 2 games each. These lanes are<br />
booked for when Hollywood Bowl opens so it will be quieter than at<br />
other times and better for our children and siblings.<br />
Please note that as we book for 9am/10am whichever is the opening<br />
time - you must be there then. Hollywood Bowl does gets very<br />
busy and they cannot reserve our lanes if we turn up late.<br />
Please reserve places by filling in and sending the form to Peter<br />
Holdridge at the address below, along with a cheque/postal order for £5.<br />
If you are not able to provide an email address on the form then please<br />
also send a stamped addressed envelope. Please do not contact by<br />
phone. If you wish to get in touch with Peter email<br />
barmyarmy@barmyarmy.free-online.co.uk<br />
or at the postal address below.<br />
Please send this form along with £5 cheque or postal order made out to<br />
‘Miracles to Believe In’ to Peter Holdridge, 25 Linden Avenue, Countesthorpe,<br />
Leicester, LE8 5PG. Please do not phone Peter.
£10 per family (max of 6)<br />
19<br />
National Space Centre<br />
Wednesday 29th May<br />
Please book places by filling in and sending the form to Mrs Dinsdale at<br />
the address below, along with a cheque/postal<br />
order for £10.<br />
10am start - families to make their own way there.<br />
Please note it is important that you are there for<br />
10am as everyone needs to go in together on the<br />
group booking. It is not fair to keep children waiting<br />
who have arrived on time.<br />
If you are not able to provide an email address on<br />
the form then please also send a stamped addressed<br />
envelope so that she can send you information.<br />
Please do not contact by phone. If you<br />
wish to get in touch with Mrs Dinsdale, email<br />
aysherox49@btinternet.com<br />
or at the postal address below.<br />
Wednesday 29th May 20<strong>13</strong><br />
Parent/Carer Name:...............................................................................<br />
Name of Child/Children with ASD.........................................................<br />
No of children and age of them............ ............ .......... .............<br />
Address: ......................................................................................<br />
............................................................Post code................................<br />
Email: .............................................Phone Number ........................<br />
Mobile number................................................................................<br />
No of adults in party:____________ No of Children _______<br />
£10 enclosed - payment to be made at time of booking<br />
Miracles to believe in<br />
A Charity for Children with Autism<br />
Please send this form along with £10 cheque or postal order made out to<br />
‘Miracles to Believe In’ to Mrs Dinsdale, 49 Crane Ley Road, Oadby,<br />
Leicester LE6 0FD .
Do you remember the feelings you had when you first discovered<br />
your child had a disability or special need?<br />
Did you need someone to talk to, was someone there to listen?<br />
Might talking to another parent have helped?<br />
Face 2 Face is a one-to-one parent befriending service developed by<br />
parents to help deal with the emotions parents feel when they discover<br />
their child has a disability or any special needs.<br />
Many parents feel confused, saddened and angry when their child is<br />
diagnosed. Although some will have access to professionals who can<br />
help, many feel the need to talk to someone who they think will truly<br />
understand – someone who has been there before – another parent.<br />
20<br />
If you have a child with special needs and are interested in becoming a<br />
Volunteer Befriender to help other parents please contact:<br />
Fiona Burton, Face 2 Face Co-ordinator - Tel: 07736 730 978<br />
email: fiona.burton@scope.org.uk<br />
Parent Participation: Your Opinion Matters!<br />
Menphys Special Outreach Service, Parent Partnership and the Parent<br />
and Carer Council are working together to ensure Parent Participation<br />
is working for families in <strong>Leicestershire</strong>.<br />
What is Parent Participation? Parent Participation has two main<br />
goals:<br />
• Making sure families receive relevant and accurate information<br />
about what is happening in the County including activities, events and<br />
consultations.<br />
• Making sure your voices are heard about services in your area. This<br />
is achieved through the <strong>Leicestershire</strong> Parent Carer Forum and Local<br />
Focus Groups.<br />
We have a regular Newsletter and email updates containing information<br />
on activities, news and consultations.<br />
If you would like receive these, please email your name and address to<br />
Kirsty.Neale@menphys.org.uk or call 0116 282 3659.
21<br />
STATEMENT ON SENSORY PROCESSING DIFFICULTIES<br />
AND SENSORY INTEGRATION THERAPY<br />
FAMILY, YOUNG PEOPLE AND CHILDREN CLINICAL SUB-GROUP<br />
The Family, Young People and Children Clinical Sub-Group has considered<br />
a request to commission sensory integration therapy from the Children’s<br />
Occupational Therapy Service within <strong>Leicestershire</strong> Partnership<br />
Trust. The Group has investigated the research evidence for this therapy<br />
and received representations from clinicians and parents.<br />
The Group has concluded that there is insufficient evidence that sensory<br />
integration therapy is a clinically effective intervention. This is based on<br />
an analysis of research evidence including analysis conducted by the<br />
American Academy of Paediatrics in 2011.<br />
Sensory integration therapy has never been commissioned by health<br />
services in Leicester City, <strong>Leicestershire</strong> or Rutland. Based on the guidance<br />
and the financial constraints facing all health services, sensory integration<br />
therapy will not be commissioned for the foreseeable future.<br />
November 2012<br />
Contact:<br />
Leon Charikar<br />
Joint Commissioner for Child and Adolescent Mental Health Services<br />
NHS Leicester City, St John’s House, 30 East Street Leicester. LE1 6NB<br />
Leon.charikar@leicestercity.nhs.uk<br />
FOR INFORMATION
Regular dance sessions for disabled<br />
children and their families!<br />
Turned on its Head<br />
Returning to Embrace Arts on Sundays<br />
once a month, these magical movement<br />
sessions will bring an inclusive<br />
approach to dance and disability by<br />
enabling families to explore and take<br />
part together.<br />
Our experienced and supportive dance<br />
artists Liz Clark and Oksana Tyminska<br />
will tailor activities to enable everyone<br />
to take part, have fun and get creative!<br />
24 <strong>February</strong> and 17 March 20<strong>13</strong><br />
Times: from 3pm-5pm.<br />
£5 per child per session, accompanying adults free<br />
To book call 0116 252 2455 or visit www.embracearts.co.uk<br />
Marianne Pape, Education and Outreach Officer, Embrace Arts<br />
Richard Attenborough Centre, Lancaster Road , Leicester LE1<br />
7HA<br />
0116 252 3037 / mp422@le.ac.uk<br />
22
23<br />
RHIANNON ROBERTS<br />
LEICESTERSHIRE<br />
AUTISM OUTREACH SERVICE<br />
INVITES YOU TO THE 20<strong>13</strong> COFFEE MORNINGS<br />
This is an event where those looking after a young person<br />
with autism can come to chat with others, ask questions<br />
and share ideas. We hope to attract people who<br />
have children in a variety of mainstream and specialist<br />
placements.<br />
DATES<br />
Monday 18 th March 20<strong>13</strong><br />
Tuesday 14 th May 20<strong>13</strong><br />
10.00am – 11.30am<br />
at<br />
The Glennister Room<br />
All Saints C of E Primary School<br />
Long Street, Wigston ,LE18 2AH<br />
Hope to see you there…<br />
Any queries please contact Rhiannon Roberts from the<br />
Autism Outreach Service – on 0116 305 9400<br />
To help us plan refreshments, e-mail or phone and leave<br />
a message to the name and address below. Thank you.<br />
Bess Gerard, Autism Outreach Admin, Room 600,<br />
Specialist Teaching Services, County Hall, Glenfield,<br />
Leics LE3 8RA<br />
Tel: 0116 305 9400 Fax: 0116 305 5184<br />
bess.gerard@leics.gov.uk
LEICESTERSHIRE EARLY YEARS<br />
24<br />
AUTISM OUTREACH SERVICE<br />
Coffee Mornings<br />
Friday 1st March<br />
Wednesday 10th April<br />
Friday 17th May<br />
9.30 - 11.30am<br />
Where: The Watson Room, Menphys Centre,<br />
Launceston Road, Wigston LE18 2FR<br />
COFFEE AFTERNOONS<br />
All Thursdays<br />
28 th <strong>February</strong> 20<strong>13</strong><br />
21 st March 20<strong>13</strong><br />
25 th April 20<strong>13</strong><br />
23 rd May 20<strong>13</strong><br />
1.00pm – 2.30pm<br />
Where: Higham Way Baptist Church, Higham Way<br />
Burbage, Hinckley, LE10 2PX<br />
You are more than welcome to bring younger siblings along<br />
Hope to see you there…<br />
If you would like to come along then please call or<br />
email Bess Gerard as soon as possible<br />
0116 305 9400 bess.gerard@leics.gov.uk<br />
For more information contact: Julie Spradbury<br />
<strong>Leicestershire</strong> Autism Outreach Service 0750 800 2986
25<br />
ASD Coffee Mornings<br />
Are you a parent, grandparent, carer or family friend<br />
of someone with Autism or Asperger Syndrome?<br />
If so … why not come and join us for a cuppa and a chat?<br />
Where? Kirby Muxloe Free Church, Main St. Kirby Muxloe<br />
When? The last Friday morning of the month during term time<br />
10-12am<br />
Fri 22nd Feb 20<strong>13</strong> - Puberty<br />
Friday 26th April 20<strong>13</strong> - Holiday Tips<br />
Friday 28th June 20<strong>13</strong> - Summer Survival Tips!<br />
There is a ‘focus’ for each meeting where parents<br />
can share their experiences and ‘top tips’!<br />
Hope you can join us ... everyone welcome!<br />
Any queries please contact Rox on 07939 253 124<br />
or Autism Outreach 0n 0116 305 9400<br />
Embrace Arts<br />
My name is Claire Tidmarsh, and I work at Embrace Arts.<br />
We are creating a Young People’s Advisory Board for young people<br />
aged 14 - 19 and young disabled people aged 14 - 26 to have a say on<br />
what they would like to see more of within the arts, and have a chance to<br />
help organise some events at our centre.<br />
We will then send them all the information along with free tickets to see<br />
our show The Flying Machine by HandMade Theatre.<br />
Our email address is arts-education@le.ac.uk,<br />
Embrace Arts, Richard Attenborough centre, Lancaster Road, Leicester<br />
LE1 7HA<br />
Direct tel & Box Office: 0116 252 2455<br />
For more information on Embrace Arts see page 22
AYLESTONE MAC is a supervised space to play<br />
sport and games and enjoy physical activity such as<br />
Trampoline, Bouncy Castle and Soft Play.<br />
On ONE monthly session trampolining will be offered<br />
and in the OTHER monthly session the bouncy castle<br />
will be offered.<br />
Disabled changing & assistance facilities are available at the<br />
pool.<br />
Day: Sundays (2X PER MONTH)<br />
Times(s): 1pm-3pm<br />
Age Range: 0-19 years old<br />
Cost: £3.00 per child/young person who attends the session.<br />
Venue: Aylestone Leisure Centre, 2 Knighton Lane East, Leicester LE2 6LU<br />
Feb 17 th 20<strong>13</strong> Bouncy Castle<br />
March 3 rd 20<strong>13</strong> Trampoline<br />
March 17 th 20<strong>13</strong> Bouncy Castle<br />
April 7 th 20<strong>13</strong> Trampoline<br />
April 21 st 20<strong>13</strong> Bouncy Castle<br />
Also, Swimming in all sessions. Small Pool 1-2pm only, and 1-3pm in large<br />
pool. There is one support worker available, but a parent per child should<br />
also be in pool.<br />
Cost: £2.50 per child with discount over 3 children. £3.00 per child with discount<br />
over 3 children for Swimming<br />
Please pass the word on about this activity.<br />
Due to lack of funding the sessions may stop after the May sessions. .<br />
PLEASE CONTACT BECKY on 07966 844 308<br />
For City and County Children- No need to book<br />
Please note there is a height and age restriction for the soft play area<br />
of approximately 4ft 9 inches /9 years old and parents will need to stay<br />
with their child/ren but we will try and ensure parents can have a refreshment<br />
break.<br />
26
Communication Matters<br />
27<br />
OUR SPACE aims to provide a caring environment for<br />
children (ages 0-12) with a range of special needs.<br />
Come and enjoy a free, friendly and relaxing atmosphere,<br />
coffee and newspapers whilst we provide a fun<br />
playtime for your child.<br />
We meet on the 1st and 3rd Sundays of each month,<br />
10.15 -12.15<br />
Come along to Crescent House on Regent Road,<br />
Leicester. There is ample parking nearby, plus three<br />
disabled spaces in the rear of the venue.<br />
For more information contact Wyn and Susan Rees<br />
0116 270 8738<br />
This initiative is run by Holy Trinity Church. Please note<br />
that one carer must remain with their child on the premises<br />
of Crescent House<br />
They have a great web-site: http://www.communicationmatters.org.uk<br />
You can join their organisation free for a year, then there is a small<br />
charge payable but that includes them sending you lots of information<br />
and their newsletter that anyone with a child with communication issues<br />
would find very useful.<br />
The parent and carer forum now has a Facebook page …<br />
https://www.facebook.com/LeicesterCityParentAndCarersForum<br />
• In the short time we have had the page it has already had far more<br />
activity than the Website. Forum events and useful information on local<br />
and national issues can be found on there for anyone who cannot make<br />
the forum in person, or if anyone has a Facebook page they can ‘Like’<br />
the site and they can then ask questions and post their own (relevant<br />
and tolerant please!) information.
Facebook Pages<br />
<strong>Leicestershire</strong> Support for Families Caring for Special Needs<br />
Young Adults.<br />
Set up by parents . “We created this Group as we felt there was a need<br />
for support for families as they go through Transition and into Adulthood."<br />
Search “<strong>Leicestershire</strong> Support for Families Caring for Special Needs<br />
Young Adults” on Facebook to post anything of interest, questions, your<br />
experiences etc..<br />
<strong>Leicestershire</strong> Support for Families Caring for Special Needs Children.<br />
This group was set up for <strong>Leicestershire</strong> families of children with<br />
special additional needs. It is used as a forum for anyone to post questions,<br />
advertise or share an event - anything which is helpful and a<br />
chance to make new friends too<br />
Miracles to Believe In facebook page - an alternative to the website -<br />
usually has info about trips and activities for children and their families -<br />
Charity for children and teenagers on the <strong>Autistic</strong> spectrum in Leics and<br />
Rutland<br />
Leicester Autism Parents Group facebook page<br />
This is a group to help parents and carers of children with Autism or<br />
suspected Autism in Leicester to connect and share stories and tips etc<br />
Support group for those with siblings on the spectrum<br />
Specturumsiblingsupport.webs.com<br />
The above site was recommended and was also originally posted and<br />
shared on the Leicester Autism Parents Group site<br />
http://talkaboutautism.org.uk/<br />
talk about Autism is an online community and discussion forum for<br />
everyone interested in autism, including parents, carers, family members,<br />
people on the spectrum, and professionals.<br />
Talk about Autism is provided by Ambitious about Autism, a national<br />
charity for children and young people with autism.<br />
28<br />
Know any good websites you want to share with us ?<br />
Send Carole the info to be posted on this page
29<br />
USEFUL WEBSITES<br />
http://www.leicestershireautism.org.uk/ LAS<br />
http://www.leatleicester.org.uk/ LEAT<br />
http://tap.leicester.gov.uk TAP<br />
http://www.themondayclub.co.uk/ MONDAY CLUB<br />
http://www.autism.org.uk/ NAS<br />
http://www.newdawnfamilysupportservice.org.uk/new/ NEW DAWN<br />
http://www.norsaca.org.uk NORSACA<br />
http://www.claspthecarerscentre.org.uk/ CLASP<br />
http://www.miracles-to-believe-in.co.uk/ M2BI<br />
http://www.translate-asc.org.uk/ TRANSLATE<br />
http://sensorysmart.co.uk/ Sensory Clothing<br />
Council for Dis-<br />
http://www.councilfordisabledchildren.org.uk/<br />
able Children<br />
CDC has a wide variety of books, tools and resources available for professionals, parents<br />
and young people. Many of these resources are available free of charge. See website<br />
above<br />
http://www.edcm.org.uk/media/8260/using_the_law_to_fight_cuts.pdf<br />
The above website is called “Using the Law to Fight the Cuts to Disabled<br />
Children’s Services” A practical guide for campaigners - parents, carers<br />
and local groups<br />
This interesting paper is intended to help campaigners – including parents<br />
and carers - understand how the law can be used to help fight cuts<br />
to valued services for disabled children in their area. Although the focus<br />
is on disabled children’s services, many of the legal principles set out in<br />
this paper will apply to services for disabled adults and other groups. The<br />
paper is intended to be read by those who do not have a legal background.<br />
This paper has been written by Steve Broach. Steve is a barrister<br />
at Doughty Street Chambers specialising in cases involving disabled<br />
children and others who need care and support from public bodies. Before<br />
becoming a barrister Steve worked for a number of organisations in<br />
the voluntary sector supporting disabled children and adults and their<br />
families and was most recently Campaign Manager of the Every Disabled<br />
Child Matters campaign. (Continued on page 30)
Useful links.<br />
http://www.mind.org.uk/assets/0000/8587/Police_Guide.pdf<br />
Really good leaflet from Mind re Police and Mental Health<br />
SEN Code of Practice (Education Act 1996)<br />
Get yourself a free copy by contacting the Department of Education<br />
on 0845 602 2260 quote ref number DCSF 581/2001<br />
Www.education.gov.uk<br />
It was reported in the Times Magazine 9.2.<strong>13</strong> that in May this year the<br />
American Diagnostic and Statistical Manual of Mental Disorders (DSM5),<br />
the go-to publication for all international clinicians, will abolish Asperger’s<br />
preferring instead to use the broad term “<strong>Autistic</strong> Spectrum Disorder”. It<br />
says Britain and Europe are set to follow with their equivalent in 2015.<br />
Meaning that effectively Asperger’s will no longer exist as a label.<br />
It was a very interesting article about “Are you on the Spectrum?”<br />
30<br />
Directory of Adult Services<br />
The Directory is available by post or online at<br />
www.leicestershireautism.org<br />
Lindy Hardcastle (Helpline 0116 2916958)<br />
www.newdawnfamilysupportservice.org.uk<br />
New Dawn is a family counselling service run by David Brindley who<br />
has worked in this field for many years before establishing this organisation<br />
to ensure ‘affordable’ ... free, advice is available to all.<br />
David explained that his service helps families understand and manage<br />
the stress in their life of having an additional needs child; it is not just<br />
available to parents/carers but can also help the siblings of the child.<br />
The contact details for this service are:<br />
Glebe House, 190 Forest Road, Loughborough, LE11 3HU<br />
Tel: 0116 287 7335 Mobile: 07887 750 890<br />
Email: davidbrindley435@btinternet.com
31<br />
Youth Club<br />
For children and young people<br />
Age 10 -18 yrs old with<br />
<strong>Autistic</strong> Spectrum Disorder<br />
The club aims to give children social opportunities away from the family<br />
and the school day. We will do our best to make the club fun and support<br />
the children to make friends with each other. The club will be<br />
geared towards the interests of the children within a safe and structured<br />
environment.<br />
The club will always be run by members of staff from the NAS, with<br />
supported volunteers who are trained to have a high level in regard to<br />
Autism. All staff and volunteers are enhanced CRB checked and have<br />
committed to this club.<br />
Venue: Grovebrook House, Brook Street, Whetstone, LE8 6LA<br />
5pm – 7pm every 1 st Tuesday Evening of the month.<br />
Cost £10 for 2 hours.<br />
PLEASE CONTACT:<br />
Zoe on 0116 284 3900/07983 883 649<br />
or Alasdair on 07766 487 933<br />
ASD Family Swimming Sessions<br />
Saturdays at Bosworth Community Sports College Desford<br />
3.30 - 5.00pm<br />
Everyone welcome<br />
Swimming Sessions every Saturday of the year;<br />
apart from Bank Holiday weekends.<br />
Sessions paid for by Miracles to Believe In<br />
New families would be most welcome to join in – just turn up.<br />
Any questions? Contact Sue Cox, the Sports College's Pool Manager,<br />
by telephone (01455 822841 ext.207) or email at<br />
suec27@boscol.leics.sch.uk for further details.
32<br />
A S D COUNTY YOUTH CLUB<br />
Also Known as<br />
THE FRIENDSHIP CLUB<br />
For young people in <strong>Leicestershire</strong> aged 11 – 19 years<br />
with ASD & moderate learning difficulties.<br />
Held at The Salvation Army, Leicester South Corps<br />
Ladysmith Road, South Wigston<br />
<strong>Leicestershire</strong>, LE18 4UZ<br />
2 nd & 4 th Tuesdays of each month<br />
Registration required as places are limited<br />
We are also asking parents if they can volunteer their help in the youth<br />
club on a rota basis<br />
Contact Diane Madelin 07722914124<br />
S.P.A.C.E.<br />
(Support and Play for <strong>Autistic</strong> Children with Energy)<br />
10am – 12noon<br />
1 st and 3 rd Saturday of the month<br />
(reduced rate for Leisure Link members)<br />
Castle Donington Community College, DE74 2LN<br />
(Tel: 0<strong>13</strong>32 810528)<br />
Come along and join us for a friendly welcome. We aim to<br />
offer support and advise along with a cup of tea, cake and a<br />
chat. For further information contact<br />
Julie Truman 07988934446<br />
Sara Goodwin 01530 461660<br />
Space also offers swimming at Ibstock community College on Sundays 3 -<br />
4pm
Siblings After School Support Groups (8-14 years)<br />
www.sibsservice.co.uk<br />
What is it?<br />
Support groups for children between 8-14 years of age who have a<br />
brother or sister with an <strong>Autistic</strong> Spectrum Disorder or Asperger’s Syndrome.<br />
The groups offer emotional and peer support through interactive,<br />
fun and relaxed group activities facilitated by qualified, friendly<br />
and enthusiastic staff.<br />
The groups are about:<br />
Fun<br />
Relieving Isolation<br />
Acknowledging Feelings<br />
Modelling Coping Strategies<br />
Enhancing Knowledge<br />
The service is provided by Ruach Care Ltd a charity that specialises in<br />
supporting individuals with an <strong>Autistic</strong> Spectrum Disorder or Asperger’s<br />
Syndrome.<br />
Why has it been set up?<br />
Sometimes it’s hard having a sibling with special needs and good to<br />
have people to talk to who have some idea what it’s like. It’s nice<br />
knowing that you’re not the only one who has a brother or sister who’s<br />
a bit different. It is widely recognized that siblings of someone with<br />
ASD can sometimes miss out on doing the things that other kids get to<br />
do because of the needs of their sibling. This is where the Siblings<br />
Support Groups come in.<br />
Where can I get involved?<br />
There are currently groups at Braunstone, Coalville, Hinckley,<br />
Loughborough, Market Harborough and Melton Mowbray.<br />
How much will it cost?<br />
There is a small charge of £2 contribute towards drinks and snacks<br />
and resources.<br />
Where can I find out more?<br />
If you would like to know more please contact us at:<br />
33<br />
siblings@ruachcare.co.uk<br />
Or telephone:<br />
Catherine Gallagher – 07980 624 494<br />
Sherralyn Coleman – 01530 245 922
REALITY<br />
Supporting Parents/Carers & Individuals with Autism<br />
C/o Leisa Smith Email: leisa_smith3@hotmail.com<br />
Tel 07912 850 517<br />
Venue:Braunstone Sure Start, Gallards Hill, Braunstone, LE3 1QR<br />
We will meet from 10.30am till 12pm. This venue has many facilities<br />
available to us including the use of a super crèche where workers will be<br />
available to look after the younger ones & use of their sensory room<br />
throughout the session.<br />
Looking forward to seeing you all Leisa<br />
34<br />
Child & Family Support Worker<br />
Our Charity is currently able to fund (part-time) a Child & Family Support<br />
Worker - Leisa Smith who acts as a resource for families of children aged<br />
0-19 yrs who are suspected of having an autistic spectrum condition or<br />
have a diagnosis of ASD. The types of support that Leisa provides include,<br />
help obtaining a diagnosis, providing guidance and information<br />
post diagnosis, help obtaining a Statement of Special Educational Needs<br />
(SEN), and being present at meetings with Schools.<br />
The Child & Family Support Worker contact number is 07958 235 015<br />
S.N.I.P.S.Hinckley<br />
Helping children to be themselves, to make new friends & try new experiences.<br />
SNIPS is a small charity in Hinckley. We provide weekly<br />
clubs and summer holiday play schemes at local schools. Our aim is to<br />
reduce isolation for disabled children by giving them a sense of belonging.<br />
By using volunteers to befriend our youngsters we create a better<br />
understanding of disability and as a consequence of our work, we reduce<br />
stress within families. Last year we celebrated our 25th birthday.<br />
Special Needs Integration Projects, Amity House, 6 Holliers Walk,<br />
Hinckley, <strong>Leicestershire</strong>, LE10 1QW, 01455 440 660,<br />
info@snipshinckley.com
LEAT<br />
Over time we have expanded our services according to the needs of<br />
young people and adults with Asperger syndrome and are now able to<br />
offer a wide range of holistic and person centred services.<br />
LEAT are looking for people interested in their charitable work to join the<br />
Management Committee<br />
We currently also have vacancies for Bank Support Staff.<br />
If you are interested in either of the above positions and would like more<br />
information please contact:<br />
Carol Hunt - Manager Direct Line: 0116 2857822<br />
LEAT<br />
186a London Road, Leicester, LE2 1ND<br />
Tel: 0116 2857822 (dir. line)<br />
Spectrum Market Harborough<br />
Spectrum is a support group for parents of autistic children that meets<br />
monthly for coffee, support and chat in Market Harborough . We also arrange<br />
occasional leisure activities for our children.<br />
We meet at the Congregational Church Hall in Market Harborough If you<br />
would like more information please contact us on 0783<strong>13</strong>49574<br />
35<br />
New Befriending Service<br />
LEAT is a local charitable organisation providing specialist support to<br />
young people aged 16 plus and adults with Asperger syndrome. A new<br />
addition to our already comprehensive range of services is the Befriending<br />
Service, funded by Lloyds TSB, Foundation for England and Wales. It<br />
complements the existing Consultancy Service and the Aspergers Aspirations<br />
project (funded by The Big Lottery Fund).<br />
The aim of the Befriending Service is to provide regular social companionship<br />
for people with Asperger syndrome and assessed with ‘moderate<br />
needs’ who are not entitled to a personal budget but still need some support.<br />
The Befrienders will have an up to date CRB check in place and be<br />
trustworthy, reliable and friendly volunteers.<br />
If the Befriending Service is of interest to you or anyone you may<br />
know please contact:<br />
Gill Keeling on 07864 267219<br />
or email Gill at gkleat@gmail.com
36<br />
RNIB College Loughborough extends services into respite care<br />
RNIB College Loughborough has announced that it will be extending its<br />
services to offer a range of respite care options for young people with<br />
disabilities. The College, which currently supports young people to access<br />
further education, independence and employment, will be utilising<br />
one of the flats in its residential facilities to provide for the growing demand<br />
for respite opportunities within the Midlands.<br />
In addition to offering a range of day time and evening activities, the<br />
residences will be available 38 weeks of the year to provide flexible<br />
respite options including, weekend and overnight stays, short and long<br />
term breaks. Operating as a full-time residential College means that the<br />
purpose-built accommodation provides the perfect mix of support and<br />
independence with plenty of activities for young people to get involved<br />
with alongside other young adults. This will provide a significant resource<br />
for carers, giving them the peace of mind to relax knowing that<br />
their young person is accessing a safe and enriching environment.<br />
Just like the College provision, the respite services are available to<br />
young people aged 16-25 with a wide range of disabilities. Staff are<br />
highly trained and experienced in supporting people with Autism, mild,<br />
moderate or severe learning difficulties, mobility problems and managed<br />
chronic illness.<br />
Graham Owen, Head of Care at the College says: “This is an exciting<br />
development which will provide much needed breaks for parents and<br />
carers, whilst ensuring that young people are safe, supported and have<br />
a good time whilst they are with us”.<br />
For more information about this service please contact our admissions<br />
team on 01509 611077 or email enquiries@rnibcollege.ac.uk
Jigsaw provides support for parents and carers and their families and<br />
activities for children with <strong>Autistic</strong> Spectrum Disorders.<br />
Parents and Carers are welcome to join us over a hot drink in the<br />
lounge at the Salvation Army Centre, Ladysmith Road, South Wigston,<br />
LE18 4UZ from 7.00 to 9.00pm alongside the A.S.D. County Youth<br />
Group held on the 2 nd and 4 th Tuesdays of the month.<br />
Monthly Informal Meetings<br />
7.30pm on the First Monday<br />
of the month<br />
Offering<br />
Talks and Tea.<br />
Support Information Advice<br />
Moira Centre, Moira Street, Loughborough LE11 1AX<br />
For further information see www.translate-asc.org.uk<br />
Or telephone Jo or Paul on 01509 554797<br />
Or email: translate_as1@ntlworld,com<br />
37<br />
For any further information on Jigsaw and its activities please contact:<br />
Dave Nutting.<br />
Tel: 07582197173<br />
E-mail: sumkindasyndrome@hotmail.co.uk<br />
For further information on the County Youth Group contact Diane;<br />
Tel: 07722914124
38<br />
Helpline<br />
<strong>Leicestershire</strong> NAS Helpline<br />
Tel: (0116) 291 6958<br />
e-mail lindy@flaxfield.demon.co.uk<br />
New NAS Phone Numbers<br />
Education Rights Service 0808 800 4102<br />
Autism Helpline 0808 800 4104<br />
Parent-to-Parent Service 0808 800 4106<br />
Help lines are now free from landlines and most mobiles: 3, O2, Orange,<br />
T-mobile, Virgin and Vodafone.<br />
AS well as the LAS & NAS helplines above, families in need of support<br />
can visit our 'Signpost' service www.autism.org.uk/signpost<br />
or contact one of the following organisations:<br />
Citizens Advice: www.citizensadvice.org.uk<br />
Contact a Family: 0808 808 3555<br />
Mencap: 0808 808 1111<br />
Mind: 0845 766 0163<br />
The Samaritans: 08457 90 90 90<br />
Young Minds: 0808 802 5544<br />
Contact a Family, New Service – Special Education Needs Advice<br />
The SEN National service is part of our integrated Helpline/Online service<br />
for families. It is now up and running with three dedicated and experienced<br />
Special Education Needs advisers. The advice line is a one<br />
stop shop for parents and other family members who are caring for a<br />
child with SEN, on all education issues.<br />
The telephone helpline will enable parents and carers to get one-toone,<br />
in-depth and personalised advice from fully-trained SEN advisers.<br />
So call our helpline today for specialised advice, just select SEN from<br />
the menu when you call:<br />
Helpline: 0808 808 355, Mon–Fri, 9:30am–5pm.<br />
The Children's Disability Helpline (formally the Specialist Health Visitor<br />
Helpline) is 0116 225 6560 open Monday to Friday 12noon to 2pm.
Useful Contacts continued from back page<br />
ICT Assessment Service Tel: 0116 305 9400<br />
Learning and Autism Support Team: Maggie Brookes Tel: 0116 225 4800<br />
Rutland Autism Outreach: Tel: 01572 758 496<br />
CLASP (Carers of <strong>Leicestershire</strong> Advocacy & Support Project)<br />
Tel: 0116 2510999 email enquiries@claspthecarerscentre.org.uk<br />
ADHD Solutions Tel: 0116 261 0711<br />
Menphys SOS Tel: 01455 899111<br />
New Dawn Family Support Service Tel: 0116 287 7335<br />
www.newdawnfamilysupportservice.org.uk<br />
Rutland Parent Partnership Service: Sue Flather, Rutland Citizens Advice Bureau, 56 High<br />
Street, Oakham, Rutland LE15 6AL Tel: 01572 757 420<br />
Parent and Carers’ Council: Tel.07968 857 598<br />
e-mail enquiries@parentcarercouncil.co.uk .<br />
Jane Hall Tel: 07870 688973<br />
Services for Adults with Autism in <strong>Leicestershire</strong>:<br />
Fosse Autism Service: Chris Howell, Leicester Frith Hospital, Groby Road,<br />
Leicester. Tel: 0116 225 5335<br />
TAP Disabled Children’s Services Enquiries for City Carers:<br />
The Access Point Tel 0116 294 6096<br />
Text 07890 320 322 email TAP@leicester.gov.uk<br />
Leicester City Parent and Carers Forum Contact Dave Nutting 07582 197173<br />
LEAT Asperger Support Services 186 London Road, Leicester, LE2 1ND<br />
e-mail: carolhunt@btconnect.com leat@btconnect.com Tel 0116 254 1664<br />
Face 2 Face: Fiona Burton Tel: 07736 730978<br />
Saturday Swimming Sessions at Bosworth Community College: Sue Cox<br />
Tel: 01455 822 841 ext 27<br />
If you have a contact you wish us to include on this page - please contact the Editor, Carole<br />
Heubeck on 01530 244790<br />
Apologies if you have been missed out of this quarters Link-Up - please get in touch and I<br />
will try to put you in the next edition. Again if you are aware of a Group folding please let me<br />
know so I can remove them - it causes great disappointment to new parents who are trying<br />
to make contact with the Groups.<br />
The next Link-Up will be published in June 20<strong>13</strong> - Anything you wish to<br />
submit for publication should be sent by Middle of May 20<strong>13</strong> to Carole<br />
Heubeck via email at<br />
heubeck111@btinternet.com & also Heubecks@googlemail.com.<br />
Alternatively please post to 5 Grey Crescent, Newtown Linford, Leicester,<br />
LE6 0AA<br />
39
40<br />
Useful Contacts<br />
<strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong><br />
Chair Vacant<br />
Vice Chair /fundraising Jenny Cornwell, 9 Kingston Way, Market Harborough LE16 7XB<br />
Email, cornwells@hotmail.co.uk, Tel: 07775 777 524<br />
Editor: Carole Heubeck, 5 Grey Crescent, Newtown Linford, Leics. LE6 0AA<br />
Email Heubeck111@btinternet.com Tel: 01530 244 790<br />
Secretary, Helpline & Membership: Lindy Hardcastle, . Tel: 0116 291 6958<br />
e-mail lindy.hardcastle@hotmail.co.uk<br />
Treasurer: Peter Holdridge, 25 Linden Avenue, Countesthorpe, Leicester, LE8 5PG.<br />
barmyarmy@barmyarmy.free-online.co.uk Tel: 0116 277 1974<br />
Family Support Worker: Leisa Smith Tel: 07958 235 015<br />
Jigsaw Contacts: Chair Dave Nutting Tel: 07954 172 9<strong>13</strong><br />
email sumkindasyndrome@hotmail.co.uk<br />
Loughborough ASD Group : Carole Heubeck, Tel: 01530 244 790<br />
Market Harborough Spectrum Support Group: Tel: 0783<strong>13</strong>49574<br />
SPACE-Castle Donington Support Group<br />
Sara Goodwin 01530 461660 and Julie Truman Tel: 07988 934 446<br />
National <strong>Autistic</strong> <strong>Society</strong> (NAS),<br />
Helpline Education rights service Tel 0808 800 4104<br />
Regional Contact. Ester Vickers, Regional Officer, East Midlands. Grovebrook House Resource<br />
Centre: Brook Street, Whetstone, Leics. LE8 6LA Tel: 07787 526 184<br />
Reality Support , Contact Leisa Smith Tel: 07912 850 517<br />
Monday Club : email themondayclub@hotmail.co.uk<br />
Contact Monday Club Project Manager Mobile 0787 3311 610<br />
Translate Adult & Partners Group - Paul & Jo Sandford Tel: 01509 554 797<br />
Miracles to Believe In.<br />
Secretary Julian Heubeck, 5 Grey Crescent, Newtown Linford , Leicester LE6 0AA<br />
Email heubeck111@btinternet.com Tel: 01530 244 790<br />
The Parent Partnership Service: Tel: 0116 275 2097<br />
County Parent Participation Coordinator-Kirsty Baylis Tel: 0116 288 5353<br />
Aspire: Email aspirelifeskills@hotmail.co.uk Tel: 07854 918 575<br />
Children’s Services<br />
<strong>Leicestershire</strong> Psychology Service: Tel: 0116 305 5100.<br />
Leicester City Educational Psychology Service: Tel: 0116 221 1200<br />
<strong>Leicestershire</strong> Autism Outreach Service: George Thomas: Tel: 0116 305 9400<br />
<strong>Leicestershire</strong> Pre-school Support Worker: Tel. 0116 305 9400<br />
Continued on previous page (39)