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Linkup February 13 - Leicestershire Autistic Society

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The newsletter of the <strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong>,<br />

Charity no. 507300<br />

Issue No. 120 of the <strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong> - <strong>February</strong> 20<strong>13</strong><br />

Link~Up<br />

Contents page<br />

Autism Month 2<br />

Autism Information Hub 3<br />

LAS Membership 4/5<br />

Family Rights Project Workshops for Parents 6<br />

100 Club 7<br />

Fundraising 9<br />

Person Centred Support 10<br />

Monday Club 12<br />

New School <strong>13</strong><br />

Housemates 14<br />

Miracles to Believe In trips 16-19<br />

Face to Face 20<br />

Embrace Arts 22 & 25<br />

<strong>Leicestershire</strong> Autism Outreach Service 23-25<br />

MAC 26<br />

Sibs 33<br />

Jigsaw & Translate 37<br />

Helpline and other useful numbers 38-40<br />

LAS Website at www.leicestershireautism.org.uk<br />

Email: leicestershireautisticsociety@gmail.com


2<br />

AUTISM MONTH – April 20<strong>13</strong><br />

Just a quick reminder that now is the time to prepare for April’s<br />

Autism Month. If you are going to have a bake/cake/book/car boot<br />

sale, or other fundraising and awareness event, please contact<br />

me asap so that I can get leaflets and info out to you.<br />

We are looking for volunteers to help at a Used Children’s Toy,<br />

Clothing and Book Sale to be held in April at a Venue yet to be<br />

confirmed. If you know of any no cost, or low cost venues please<br />

contact me asap. If you are able to donate items for the sale,<br />

please contact me so that we can arrange drop off or collection.<br />

LOUGHBOROUGH SUPPORT GROUP<br />

New Leader Required!<br />

Jenny Cornwell<br />

We are a group of parents who meet on the last Monday of the month at<br />

John Storer House, Wards End. Loughborough, <strong>Leicestershire</strong>, LE11<br />

3HA at 7.30pm. We are a small friendly group who meet up for tea and<br />

coffee (lots of it!), a chat and speakers.<br />

Dates<br />

25th <strong>February</strong> 20<strong>13</strong> Ruth Howard NAS Family Rights Project<br />

25th March 20<strong>13</strong> Speaker to be confirmed<br />

After many years of running the Loughborough Support Group, I had to<br />

announce at our January meeting that I would be standing down in<br />

March. Many years ago I took over after Sue Harrison wanted to step<br />

down, despite not at the time going to the Group that was then running!<br />

Is there anyone out there who would like to step into my shoes and take<br />

over the running of the Group. The LAS will pay expenses, room hire<br />

etc. It may be that you would like to run a Group from a different location<br />

(many of our parents are from Ashby for example) - again we (the LAS)<br />

can help and support you<br />

Please contact Carole Heubeck on 01530 244790 to discuss


NEW AUTISM INFORMATION HUB TO LAUNCH<br />

IN LEICESTERSHIRE IN SPRING 20<strong>13</strong><br />

<strong>Leicestershire</strong> County Council working with the National <strong>Autistic</strong> <strong>Society</strong><br />

and other local organisations, including the Monday Club and the <strong>Leicestershire</strong><br />

<strong>Autistic</strong> <strong>Society</strong> is launching a new service for adults with <strong>Autistic</strong><br />

Spectrum Conditions, their parents, carers and families. The Hub will<br />

have two functions:<br />

An Information Service: this will be available via telephone and e-mail,<br />

Monday to Friday every week, 9am – 6pm (excluding Bank holidays).<br />

Two dedicated members of staff will deliver the service, providing a comprehensive,<br />

online information resource giving information on services<br />

across <strong>Leicestershire</strong>, for adults with <strong>Autistic</strong> Spectrum Conditions. The<br />

database will be regularly maintained and updated and include information<br />

from <strong>Leicestershire</strong> County Council, local voluntary organisations,<br />

the Health sector and national organisations and charities.<br />

Promotion of Autism Awareness: the Hub team will also work with local<br />

employers to promote autism awareness and provide autism training<br />

for employers and organisations in <strong>Leicestershire</strong> to improve opportunities<br />

for adults with <strong>Autistic</strong> Spectrum Conditions.<br />

The Hub Team<br />

We are seeking to recruit the Hub team who should ideally have a<br />

background in information provision and an excellent understanding of<br />

autistic spectrum conditions. We have 2 posts:<br />

3<br />

a full-time Information Manager, responsible for delivering the service<br />

and maintaining the information resources and,<br />

a part-time Employment Support Co-ordinator who will assist with the<br />

information service but also focus on the promotion of autism<br />

awareness for local employers and organisations.<br />

Advertisements will be placed shortly, locally and nationally, but if anyone<br />

would like further information, at this stage, please e-mail:<br />

wendy.small@nas.org.uk


Toileting Issues<br />

Some parents have mentioned at some of the support<br />

groups I attend around the City and County the toileting<br />

issues their children with a diagnosis of ASD and a<br />

Statement of Special Educational Needs, who are in<br />

mainstream schooling, are facing. Parent/carers indicated that although<br />

the child is potty trained, they still find difficulty with personal care in the<br />

toilet, and despite it noted in their SEN, schools are not helping the child,<br />

thus causing an array of problems related to the soiling of clothes<br />

(bullying, name-calling, physical problems in girls, etc). I would agree<br />

with school policy that physically & literally helping the child can be a<br />

safeguarding issue, but what parents are asking is for assessment or advice<br />

from the OT service or other services and the school on how to help<br />

the children with the actual actions while at school and at home. Parents<br />

just want to work in partnership with the schools, to maintain continuity<br />

for the child.<br />

Does anyone have or have had this problem with their child? Do you<br />

have any hints, tips on how to help these parent carers with this situation?<br />

Any ideas on what can be done at home to help teach the child?<br />

Please contact me, and I will pass on your ideas to these parent carers.<br />

Jenny Cornwell<br />

Receiving this copy of LinkUp - time to renew your membership of the<br />

<strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong>?<br />

We send out LinkUp 4 times a year which now costs £2.00 in postage to<br />

every household. Together with the cost of printing and envelopes this<br />

will amount to the £5 it costs to be a member of the <strong>Leicestershire</strong> <strong>Autistic</strong><br />

<strong>Society</strong>.<br />

We can also offer you the opportunity to just receive LinkUp by email<br />

instead of, or as well as, a hard copy.<br />

Email heubeck111@btinternet.com to request your electronic copy.<br />

As well as LinkUp we also provide a family support worker, support<br />

groups and both a children's and adults directory.<br />

Our membership form is on page 5 opposite - please fill it in and return<br />

to our membership secretary now - thank you for reading this.<br />

4


5<br />

Las Membership April 20<strong>13</strong>-March 2014<br />

I would like to receive LinkUp and become a member of<br />

the LAS and enclose a<br />

£5 (families)<br />

or £7 (Professionals)<br />

cheque or postal order made payable to the <strong>Leicestershire</strong><br />

<strong>Autistic</strong> <strong>Society</strong>.<br />

Name...................................................................<br />

Address: ...............................................................<br />

...............................................................................<br />

..............................................................................<br />

Post Code:..................Email .....................................<br />

Telephone(s):................................................................<br />

Parent/Professional (please delete what is not applicable ).<br />

Name of Child/person with<br />

ASD....................................<br />

Age...............<br />

Gift Aid Please tick if a tax payer so we can reclaim the tax you<br />

have already paid tax on<br />

Please send the application form along with your £5 cheque or<br />

postal order to the<br />

Lindy Hardcastle Membership Secretary<br />

31 Flaxfield Close , Groby , Leicester, LE6 0EZ


6<br />

Workshops for Parent/Carers<br />

and extended family members<br />

The Family Rights Project is a Department for Education-funded project<br />

for parents/carers of a child with an autism spectrum disorder, delivered<br />

by The National <strong>Autistic</strong> <strong>Society</strong>.<br />

They will provide training days for parent/carers across England that<br />

provide accurate information about you and your child's rights and entitlements<br />

in three key areas:<br />

• Education<br />

• Welfare (benefits)<br />

• Community care<br />

The project also helps parent/carers to utilise the information about their<br />

rights and entitlements to their best advantage, by starting to develop<br />

goals and plans within the sessions. You'll get an information pack to<br />

take away, and you'll also receive updated information as and when<br />

changes to legislation and guidance are introduced which may affect<br />

your rights and entitlements.<br />

Everyone would be welcome, but pre-registration is necessary.<br />

Dates are:<br />

Saturday, 23rd <strong>February</strong> - 9.30am-1.30pm incl lunch- Wigston (Venue<br />

to be confirmed)<br />

Tuesday, 5th March - 10am-2.30pm incl lunch- Loughborough (Venue<br />

to be confirmed)<br />

Thurs 7th March - 10am-2:30pm incl lunch @ BW2 (Birchwood Special<br />

School-upper school building), Burton Road, Melton Mowbray, LE<strong>13</strong><br />

1DR<br />

:<br />

Please contact Jenny Cornwell to register for the daytime sessions<br />

- 07786 626 426


7<br />

<strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong><br />

100 Club 2012-<strong>13</strong><br />

Please register me as a member of the 100 Club from April<br />

20<strong>13</strong> - March 2014 and enter me in the monthly cash prize<br />

draw.<br />

Name: …………………………………………………………………….<br />

Address: …………………………………………………………………<br />

Telephone: ………………….E-mail: ………………………………….<br />

I enclose a cheque for £12 payable to the <strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong><br />

Signed: …………………………………. Date: ………………………<br />

Return to Lindy Hardcastle 31 Flaxfield Close Groby LE6 0EZ<br />

Join the 100 Club!<br />

The 100 Club, launched seven years ago, has been a great success,<br />

providing a steady income for the <strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong>. As I<br />

am sure you all know, we are totally dependant on fundraising and donations<br />

for our income and we greatly value the support of our members.<br />

The 100 Club works like this: we ask members to pay £12 a year and a<br />

winning number is drawn each month. The lucky winner receives half<br />

that month’s subscriptions and the other half goes to the LAS – so the<br />

more members we have, the bigger the prize and the bigger the <strong>Society</strong>’s<br />

share.<br />

For new members, there is an application form above with this copy of<br />

Link-Up. !<br />

Please only use this form if you are a new member of the 100 Club<br />

or if you wish to purchase a second number. Existing members<br />

should use the tear-off slip from their renewal letter.<br />

Lindy Hardcastle<br />

Congratulations<br />

to Jane Burnsall, who is the 100 Club winner in January!


ARE YOU CONFIDENT THAT YOUR CHILDREN ARE SAFE AND<br />

HAPPY IN SCHOOL? HOW SURE ARE YOU THAT THEY ARE NOT<br />

BEING ABUSED VERBALLY,PHYSICALLY OR EMOTIONALLY?<br />

Every school morning our daughter walks over to her bus and happily (or<br />

otherwise, depending on her mood) and gets on, knowing she’s going off<br />

to her special school. For the next 7 hours or so, I have just entrusted<br />

our child to the bus driver, escort and school staff.<br />

In the past few months, I have been informed of incidents occurring in<br />

some schools, special schools, and playschemes in <strong>Leicestershire</strong>. It<br />

has been reported that staff have verbally mistreated children in their<br />

care. I was shocked to hear these reports, and am concerned about the<br />

possibility of other incidents which haven’t been reported. As a parent, I<br />

respect the staff at my daughter’s special school, and I know most parents<br />

respect their children’s teaching staff too. We appreciate the work<br />

involved in teaching and caring for our children, and we assume that all<br />

staff are properly trained to work with all children, including children with<br />

special needs.<br />

There is NO acceptable reason where a child in these settings should be<br />

subjected to any abuse, verbal or other. Children who exhibit challenging<br />

behaviours should not be seen in a negative way. These behaviours can<br />

be reduced or even eliminated, with the proper support of trained staff<br />

and service providers. These children should not be viewed as malicious,<br />

“uncontrollable” or naughty.<br />

Not too long ago I heard in the news about controversy around using<br />

CCTV in schools, and that this country was becoming into a “big brother<br />

is watching”. My personal opinion: If there is nothing to hide, and you are<br />

doing your absolute best, then why worry? I am truly concerned<br />

Jenny Cornwell<br />

8<br />

Wish to put something into the LinkUp?<br />

Email us at heubeck111@btinternet.com<br />

Remember that this Magazine belongs to you and that the articles and<br />

information in it need to be provided by you. Please send copy by Mid<br />

May 20<strong>13</strong>.<br />

The next issue being in June 20<strong>13</strong>. If you are not yet on our mailing list -<br />

please contact either myself, or Lindy Hardcastle Please note that we<br />

NEVER give this information out to anyone else<br />

Carole Heubeck, Editor.


SLIMMING WORLD COLLECTION BOXES (CLIVE MORGAN'S<br />

GROUPS)<br />

September 2012(2nd box) £91.62 (which included another clothes swop)<br />

October 2012 £49.12<br />

November 2012 £54.45<br />

December 2012. £41.49<br />

Clive's personal donation £10.00 (instead of sending Xmas cards)<br />

GRAND TOTAL FOR THE YEAR £ 596.48!!!!<br />

Once again a huge Thank you to Clive and all his members for donating<br />

their 5ps each week from weekly meeting costs.<br />

What a fantastic amount you have raised for us in a year.<br />

Please keep supporting us we need all the help we can get.<br />

PS DO YOU GO TO A WEEKLY SLIMMING CLUB OR SPORTS<br />

GROUP ? Why not ask them to do the same for the LAS and we can get<br />

you an official collection box. Jackie Hough<br />

9<br />

NEW for 20<strong>13</strong> !<br />

“DESIGN AN LAS CHRISTMAS CARD” COMPETITION<br />

As part of a fundraising idea, we would like to hold an<br />

LAS Christmas Card Design competition. This year, the<br />

LAS would like to sell their own Christmas Cards as a<br />

fundraiser. We will print the 5 winning Christmas designs<br />

done by our own loved ones who have a diagnosis of<br />

ASD/Aspergers, and have them ready for all of us to sell<br />

(and buy) from October-December. If you, your child, a<br />

friend or family member who has ASD are/is interested<br />

and would like to submit a Christmassy design, please<br />

contact me at 07775 777 524,or email:<br />

cornwells@hotmail.co.uk. There will be a prize given to<br />

each of the 5 winning designs. The deadline for submissions<br />

is 1 st May, 20<strong>13</strong>.<br />

Jenny Cornwell-Fundraising Coordinator


10<br />

PERSON CENTRED SUPPORT<br />

There’s no challenging behaviour here.....<br />

The term “challenging behaviour” is used as a way of focusing our attention<br />

on what the behaviour is telling us, and as a means of us finding out<br />

what the individual is trying to communicate, rather than labelling the person<br />

as the problem<br />

When we think about challenging behaviour and the people we support<br />

we generally understand this to include:<br />

• Aggression e.g. hitting, biting, screaming, swearing<br />

• Self - injurious behaviour e.g. head banging, eating inedible objects,<br />

hitting face or head<br />

• Damage to property e.g. Throwing furniture , breaking windows<br />

• Socially inappropriate behaviour e.g. stripping, urinating, masturbating<br />

But we often fail to recognise that it also includes other behaviours<br />

which stop, or make it very difficult for, the person to be involved in<br />

ordinary activities and relationships at home and in the community<br />

such as:<br />

• Self stimulatory behaviours e.g. finger-flicking, teeth-grinding,<br />

humming<br />

• Stereotyped or ritualistic behaviours e.g. body-rocking, arm flapping,<br />

repetitive speech<br />

• Obsessive behaviour e.g. putting together or taking apart objects,<br />

lining things up, positioning furniture and doors, checking light<br />

switches<br />

• Withdrawn behaviour e.g. pulling clothing over head or eyes, fingers<br />

in ears, closing eyes, routinely sitting or standing away from<br />

other people<br />

• Refusal or avoidance e.g. automatically saying no to requests or<br />

suggestions, avoiding opportunities to interact with others or participate<br />

in activities<br />

Recognising these behaviours as challenging prompts us to try and understand<br />

why the person behaves the way they do and places the responsibility<br />

on us to find constructive responses and solutions, as illustrated<br />

with the following example:<br />

Jane *(not her real name)<br />

Jane is a happy, fun loving and trusting person in their 20’s who attends<br />

a Community Support Service. Jane loves to greet people when they


arrive by giving them a bear hug. These interactions get very noisy and<br />

disrupt the activities. Because the Service is very busy this becomes<br />

very difficult for everyone to deal with, especially as Jane doesn’t respond<br />

to suggestions about calming things down.<br />

The team used assessment tools from Positive Behaviour Support<br />

(particularly direct observation) to help them understand what was going<br />

on. They established that the bear-hugging behaviour had the effect for<br />

Jane of gaining and maintaining interactions, but they also found variations<br />

in how much it happened in different circumstances - information<br />

which they used to develop the intervention.<br />

The intervention stressed that the role staff had in managing the noise<br />

levels in the service - by greeting Jane promptly but in a measured and<br />

calm way and in using distraction and preferred activities, helped her<br />

manage her levels of excitement. These approaches were carried out<br />

across a range of proactive and reactive strategies.<br />

As a result, Jane is much more focused on the activity she’s engaged in<br />

and less distractible - resulting in her being able to do some things on her<br />

own that previously she could only have completed with support. She<br />

always knows when people have come in and always greets them, but<br />

this no longer creates disruption for her or for anyone else.<br />

Her local Area Manager observed: “Staff didn't recognise Jane’s behaviour<br />

as challenging because it was so positive in intent - she just wanted<br />

to greet you and have fun with you. But the consequences for Jane and<br />

other people who use the Service were becoming severe and could have<br />

led to Jane not being able to attend. By seeing the behaviour as challenging<br />

and not “just the way Jane is” and looking closely at what factors<br />

affected the behaviour, the Service was able to change the ways Jane is<br />

supported.<br />

Thank you to Jackie Hough for this.<br />

11<br />

LAS AGM and Conference<br />

The LAS AGM will be coming up shortly and we will advertise it in the<br />

next LinkUp. If you are interested in joining the Committee (we only meet<br />

up a few times a year) or would like to get involved in some way with us<br />

such as fund raising etc please contact Jenny our vice chair for more information<br />

- contact details on page 40.


12<br />

Registered Charity No. 1126179<br />

Limited Company No. 6384957<br />

Job Vacancy<br />

Group Development Project Coordinator<br />

The Monday Club provides social support services to<br />

adults with Asperger Syndrome in Leicester and <strong>Leicestershire</strong><br />

to provide individuals with the condition the opportunity<br />

to meet others like themselves, to take part in<br />

normal activities, access the wider community and to develop<br />

their individual potential. The Monday Club is recognised<br />

as a National example of Service Excellence and<br />

is quoted as such in the National <strong>Autistic</strong> <strong>Society</strong> document<br />

Taking Responsibility, Good Practice guidelines for<br />

local services on how to help adults with As.<br />

We require a member of staff to develop and facilitate<br />

a c t i v i t i e s f o r o u r W e d n e s d a y G r o u p<br />

Meeting and coordinate our growing bank of volunteers<br />

in conjunction with the project manager. The Wednesday<br />

Group is an extension of the service we provide on the<br />

Monday evening and is aimed at providing more challenging<br />

activities for our service users. The post is currently<br />

for ten hours per week for one year.<br />

The successful applicant will be someone with vision, enthusiasm<br />

and energy, to join a small staff team of three<br />

and play a key role in moving this excellent project into<br />

the next phase of its development. The applicant will be<br />

required to have some understanding of the needs of<br />

people with Asperger Syndrome, experience in developing<br />

activities preferably for adult group and experience<br />

of coordinating volunteers.<br />

For more details please contact Chris Covill via email at<br />

themondayclub@hotmail.co.uk or on 07873 311 610 for<br />

further information and application packs. The closing<br />

date will be at 5pm on Friday 22 nd <strong>February</strong> 20<strong>13</strong>. Interviews<br />

will commence during the week beginning Monday<br />

25 th <strong>February</strong> 20<strong>13</strong>.


<strong>13</strong><br />

NEW SCHOOL OPENING SOON IN<br />

LEICESTERSHIRE<br />

WOODSIDE LODGE OUTDOOR LEARNING CENTRE<br />

Is an Autism specific provision,<br />

based in Quorn, <strong>Leicestershire</strong>, for<br />

children aged 11-19. We currently<br />

offer 4 places, increasing to 8 over<br />

the next 2 years.<br />

Woodside Lodge is the creation of<br />

Jonny Lakin, formerly of ASPIRE:<br />

Lifeskills. For many years it has been<br />

his dream to open his own provision<br />

and after a lot of hard work, Woodside<br />

Lodge will be ready to accept<br />

children from <strong>February</strong> 20<strong>13</strong>.<br />

Situated on a working commercial farm, our curriculum will give each<br />

child the opportunity to spend as much time outdoors, with the animals<br />

on the farm and in our own “on-site” woods, as possible.<br />

Woodside Lodge will put the needs of all our students first. From the individualised<br />

timetables with 1:1 teaching, to the individual booths for each<br />

child to work in, every aspect of a child’s school life has been thought<br />

about to help them all reach their full potential.<br />

The school is now ready for parents and professionals to look around. To<br />

arrange a visit, or to find out any more information, please email<br />

info@woodside-lodge.co.uk or call Jonny on 07903 <strong>13</strong>7 897. Alternatively,<br />

you may download our brochure by visiting www.woodsidelodge.co.uk<br />

and clicking on the BLOG tab.<br />

We look forward to seeing you soon!<br />

Carer required for a few hours a week, out of school hours, for<br />

16 year old autistic boy in Countesthorpe.<br />

Social Services funded pay £8.50 per hour.<br />

Jimmy is placid, affectionate but has little spoken language. He enjoys<br />

going for walks, doing jigsaws and simple games and watching videos<br />

(mostly Muppets). Your task is simply to be with him.<br />

Phone Victoria on 0116 2771974 for more information.


Wanted – Housemates<br />

Young People ready for more independent living<br />

Do you have a son or daughter in the<br />

late teens/early twenties who is ready for<br />

more independence?<br />

I’m not running a business but a mum<br />

looking for housemates to share a<br />

house. My son Alex is nearly 19, has<br />

Asperger’s and is currently living in<br />

‘halls’ in Loughborough College. He is<br />

coping really well, with a little bit of help,<br />

and he will be ready next year to move<br />

into a house of his own in Loughborough.<br />

We can’t be the only parents in a<br />

similar position and wondered if there<br />

were others ‘out there’ whose young people might be interested in renting<br />

out a room and sharing a house with him on a longer term basis. It’s<br />

likely to suit those who are relatively independent and ready to take that<br />

big jump away from ‘Mum & Dad’ (It seems to have been more difficult<br />

for me than for Alex!).<br />

Our plan is to have someone else living-in on reduced rent to provide<br />

‘light touch’ support for Alex: It may be that this person could be employed<br />

to undertake particular support work with your son/daughter if<br />

they need it? This would be a personal arrangement as I stress we are<br />

not providing a care setting or services.<br />

We are thinking that a group of 3 or 4 young people together would work<br />

well as if yours is anything like mine, having an immediate social network<br />

‘on site’ is likely to be attractive. Alex attended main stream school and<br />

college (with brilliant support – thank you, you know who you are!) and is<br />

friendly sociable and caring. He cooks for himself, manages his own<br />

money but we don’t like the idea of him ‘being on his own’. He is likely to<br />

get a part time job in catering when he leaves College.<br />

If you think your son or daughter might be interested in this kind of setting<br />

and you’d like to explore this with us, please give me a call on 07789<br />

967 417 or 01530 815 868 (after 6 pm) and we can arrange to meet up<br />

for a chat. Once we have a group I will be going house hunting!<br />

Alyson Hunter<br />

14


15<br />

£5 per session, 2 places left at going to press but will start a waiting list


For up-to-date details on trips with Miracles to Believe In look at the<br />

website—www.miraclestobelievein.moonfruit.com.<br />

Please note whilst the trips are low in cost to you, M2BI pay the full<br />

price. When you do not turn up we still have to pay for our bookings.<br />

You must also turn up on time i.e. Bowling at 10am please do not turn up<br />

at 10.45!<br />

We also have children on the Spectrum and they do not appreciate<br />

having to wait 45 minutes for mum and dad to organise everyone.<br />

16<br />

April 2nd Phoenix Film Show<br />

Film on a<br />

bean bag<br />

This is a opportunity to watch a large screen film, whilst relaxing with<br />

your family on bean bags so no worry about children running around or<br />

causing disruptions. An ideal start to going to the Cinema.<br />

First performance will be 10am with a second performance at either<br />

11.30 or 12 noon depending on the animated film chosen. Contact Rox<br />

via email or the form below if you are interested in attending.<br />

aysherox49@btinternet.com<br />

Parent/Carer Name .............................................................................<br />

Name of Child with ASD....................................................................<br />

Address..............................................................................................<br />

......................................................................Postcode......................<br />

Mobile number....................................................... Email:..............................................................................<br />

No of Adults in party........No of Children..........(max 6 per family)<br />

Time of film showing you prefer. 10am or<br />

11.30/12noon<br />

Send the form to Mrs Dinsdale, 49 Crane Ley Road,<br />

Groby, Leicester. LE6 0FD or email this information to<br />

aysherox49@btinternet.com<br />

Miracles to believe in


17<br />

Trip to<br />

Cadbury World<br />

Thursday 4th April 20<strong>13</strong><br />

We are running a trip to Cadbury’s World with 2<br />

coaches picking up at Loughborough, Leicester and<br />

Fosse Park. Our scheduled group time will be 9.50 so we will be arriving<br />

about 9.30. We have been told that the tours normally take about 1hr<br />

30mins to 2 hours to travel round and that there is a shop, restaurant and<br />

play area but that with it being the Easter Holidays it will be busy. There<br />

are also indoor and outdoor picnic areas.<br />

We will return from Cadbury’s World between 1pm and 1.30pm.<br />

Miracles to believe in<br />

Please note there are only 80 places available so please respond to this<br />

trip asap to ensure you have a place.<br />

Please note if you do not send a stamped addressed envelope to receive<br />

your confirmation reply you will not be allocated a place. We cannot reserve<br />

places without receipt of money.<br />

Cadburys World<br />

Parent/Carer Name:...............................................................................<br />

Name of Child/Children with ASD.........................................................<br />

Address: ......................................................................................<br />

............................................................Post code................................<br />

Email: ............................................. Mobile number.........................<br />

No of adults in party:________No of Children _______(max 6 tickets)<br />

Please indicate where you wish to pick up the coach (times to be conf)<br />

Loughborough, Amber Rooms ...................<br />

St Margarets Bus Station ....................<br />

Asda Fosse Park ....................<br />

Please send this form along with £10 cheque or postal order made out<br />

to ‘Miracles to Believe In’ to Please send this form to Carole Heubeck,<br />

5 Grey Crescent, Newtown Linford, Leicester LE6 0AA<br />

.


18<br />

Friday 31st May 20<strong>13</strong><br />

HOLLYWOOD BOWL<br />

Meridian - Leicester<br />

Friday 31st May 20<strong>13</strong><br />

£5 per family<br />

Parent/Carer Name:...............................................................................<br />

Name of Child/Children with ASD.........................................................<br />

Address: ......................................................................................<br />

............................................................Post code................................<br />

Email: .............................................Phone Number ........................<br />

Mobile number................................................................................<br />

No of adults in party:____________No of Children _______<br />

£5 enclosed - payment to be made at time of booking<br />

Miracles to believe in<br />

A Charity for Children with Autism<br />

We have booked 20 lanes for families of up to 6 - which must include<br />

the child under 19 with ASD (or waiting diagnosis). This offer will be<br />

limited to the first 20 families for 2 games each. These lanes are<br />

booked for when Hollywood Bowl opens so it will be quieter than at<br />

other times and better for our children and siblings.<br />

Please note that as we book for 9am/10am whichever is the opening<br />

time - you must be there then. Hollywood Bowl does gets very<br />

busy and they cannot reserve our lanes if we turn up late.<br />

Please reserve places by filling in and sending the form to Peter<br />

Holdridge at the address below, along with a cheque/postal order for £5.<br />

If you are not able to provide an email address on the form then please<br />

also send a stamped addressed envelope. Please do not contact by<br />

phone. If you wish to get in touch with Peter email<br />

barmyarmy@barmyarmy.free-online.co.uk<br />

or at the postal address below.<br />

Please send this form along with £5 cheque or postal order made out to<br />

‘Miracles to Believe In’ to Peter Holdridge, 25 Linden Avenue, Countesthorpe,<br />

Leicester, LE8 5PG. Please do not phone Peter.


£10 per family (max of 6)<br />

19<br />

National Space Centre<br />

Wednesday 29th May<br />

Please book places by filling in and sending the form to Mrs Dinsdale at<br />

the address below, along with a cheque/postal<br />

order for £10.<br />

10am start - families to make their own way there.<br />

Please note it is important that you are there for<br />

10am as everyone needs to go in together on the<br />

group booking. It is not fair to keep children waiting<br />

who have arrived on time.<br />

If you are not able to provide an email address on<br />

the form then please also send a stamped addressed<br />

envelope so that she can send you information.<br />

Please do not contact by phone. If you<br />

wish to get in touch with Mrs Dinsdale, email<br />

aysherox49@btinternet.com<br />

or at the postal address below.<br />

Wednesday 29th May 20<strong>13</strong><br />

Parent/Carer Name:...............................................................................<br />

Name of Child/Children with ASD.........................................................<br />

No of children and age of them............ ............ .......... .............<br />

Address: ......................................................................................<br />

............................................................Post code................................<br />

Email: .............................................Phone Number ........................<br />

Mobile number................................................................................<br />

No of adults in party:____________ No of Children _______<br />

£10 enclosed - payment to be made at time of booking<br />

Miracles to believe in<br />

A Charity for Children with Autism<br />

Please send this form along with £10 cheque or postal order made out to<br />

‘Miracles to Believe In’ to Mrs Dinsdale, 49 Crane Ley Road, Oadby,<br />

Leicester LE6 0FD .


Do you remember the feelings you had when you first discovered<br />

your child had a disability or special need?<br />

Did you need someone to talk to, was someone there to listen?<br />

Might talking to another parent have helped?<br />

Face 2 Face is a one-to-one parent befriending service developed by<br />

parents to help deal with the emotions parents feel when they discover<br />

their child has a disability or any special needs.<br />

Many parents feel confused, saddened and angry when their child is<br />

diagnosed. Although some will have access to professionals who can<br />

help, many feel the need to talk to someone who they think will truly<br />

understand – someone who has been there before – another parent.<br />

20<br />

If you have a child with special needs and are interested in becoming a<br />

Volunteer Befriender to help other parents please contact:<br />

Fiona Burton, Face 2 Face Co-ordinator - Tel: 07736 730 978<br />

email: fiona.burton@scope.org.uk<br />

Parent Participation: Your Opinion Matters!<br />

Menphys Special Outreach Service, Parent Partnership and the Parent<br />

and Carer Council are working together to ensure Parent Participation<br />

is working for families in <strong>Leicestershire</strong>.<br />

What is Parent Participation? Parent Participation has two main<br />

goals:<br />

• Making sure families receive relevant and accurate information<br />

about what is happening in the County including activities, events and<br />

consultations.<br />

• Making sure your voices are heard about services in your area. This<br />

is achieved through the <strong>Leicestershire</strong> Parent Carer Forum and Local<br />

Focus Groups.<br />

We have a regular Newsletter and email updates containing information<br />

on activities, news and consultations.<br />

If you would like receive these, please email your name and address to<br />

Kirsty.Neale@menphys.org.uk or call 0116 282 3659.


21<br />

STATEMENT ON SENSORY PROCESSING DIFFICULTIES<br />

AND SENSORY INTEGRATION THERAPY<br />

FAMILY, YOUNG PEOPLE AND CHILDREN CLINICAL SUB-GROUP<br />

The Family, Young People and Children Clinical Sub-Group has considered<br />

a request to commission sensory integration therapy from the Children’s<br />

Occupational Therapy Service within <strong>Leicestershire</strong> Partnership<br />

Trust. The Group has investigated the research evidence for this therapy<br />

and received representations from clinicians and parents.<br />

The Group has concluded that there is insufficient evidence that sensory<br />

integration therapy is a clinically effective intervention. This is based on<br />

an analysis of research evidence including analysis conducted by the<br />

American Academy of Paediatrics in 2011.<br />

Sensory integration therapy has never been commissioned by health<br />

services in Leicester City, <strong>Leicestershire</strong> or Rutland. Based on the guidance<br />

and the financial constraints facing all health services, sensory integration<br />

therapy will not be commissioned for the foreseeable future.<br />

November 2012<br />

Contact:<br />

Leon Charikar<br />

Joint Commissioner for Child and Adolescent Mental Health Services<br />

NHS Leicester City, St John’s House, 30 East Street Leicester. LE1 6NB<br />

Leon.charikar@leicestercity.nhs.uk<br />

FOR INFORMATION


Regular dance sessions for disabled<br />

children and their families!<br />

Turned on its Head<br />

Returning to Embrace Arts on Sundays<br />

once a month, these magical movement<br />

sessions will bring an inclusive<br />

approach to dance and disability by<br />

enabling families to explore and take<br />

part together.<br />

Our experienced and supportive dance<br />

artists Liz Clark and Oksana Tyminska<br />

will tailor activities to enable everyone<br />

to take part, have fun and get creative!<br />

24 <strong>February</strong> and 17 March 20<strong>13</strong><br />

Times: from 3pm-5pm.<br />

£5 per child per session, accompanying adults free<br />

To book call 0116 252 2455 or visit www.embracearts.co.uk<br />

Marianne Pape, Education and Outreach Officer, Embrace Arts<br />

Richard Attenborough Centre, Lancaster Road , Leicester LE1<br />

7HA<br />

0116 252 3037 / mp422@le.ac.uk<br />

22


23<br />

RHIANNON ROBERTS<br />

LEICESTERSHIRE<br />

AUTISM OUTREACH SERVICE<br />

INVITES YOU TO THE 20<strong>13</strong> COFFEE MORNINGS<br />

This is an event where those looking after a young person<br />

with autism can come to chat with others, ask questions<br />

and share ideas. We hope to attract people who<br />

have children in a variety of mainstream and specialist<br />

placements.<br />

DATES<br />

Monday 18 th March 20<strong>13</strong><br />

Tuesday 14 th May 20<strong>13</strong><br />

10.00am – 11.30am<br />

at<br />

The Glennister Room<br />

All Saints C of E Primary School<br />

Long Street, Wigston ,LE18 2AH<br />

Hope to see you there…<br />

Any queries please contact Rhiannon Roberts from the<br />

Autism Outreach Service – on 0116 305 9400<br />

To help us plan refreshments, e-mail or phone and leave<br />

a message to the name and address below. Thank you.<br />

Bess Gerard, Autism Outreach Admin, Room 600,<br />

Specialist Teaching Services, County Hall, Glenfield,<br />

Leics LE3 8RA<br />

Tel: 0116 305 9400 Fax: 0116 305 5184<br />

bess.gerard@leics.gov.uk


LEICESTERSHIRE EARLY YEARS<br />

24<br />

AUTISM OUTREACH SERVICE<br />

Coffee Mornings<br />

Friday 1st March<br />

Wednesday 10th April<br />

Friday 17th May<br />

9.30 - 11.30am<br />

Where: The Watson Room, Menphys Centre,<br />

Launceston Road, Wigston LE18 2FR<br />

COFFEE AFTERNOONS<br />

All Thursdays<br />

28 th <strong>February</strong> 20<strong>13</strong><br />

21 st March 20<strong>13</strong><br />

25 th April 20<strong>13</strong><br />

23 rd May 20<strong>13</strong><br />

1.00pm – 2.30pm<br />

Where: Higham Way Baptist Church, Higham Way<br />

Burbage, Hinckley, LE10 2PX<br />

You are more than welcome to bring younger siblings along<br />

Hope to see you there…<br />

If you would like to come along then please call or<br />

email Bess Gerard as soon as possible<br />

0116 305 9400 bess.gerard@leics.gov.uk<br />

For more information contact: Julie Spradbury<br />

<strong>Leicestershire</strong> Autism Outreach Service 0750 800 2986


25<br />

ASD Coffee Mornings<br />

Are you a parent, grandparent, carer or family friend<br />

of someone with Autism or Asperger Syndrome?<br />

If so … why not come and join us for a cuppa and a chat?<br />

Where? Kirby Muxloe Free Church, Main St. Kirby Muxloe<br />

When? The last Friday morning of the month during term time<br />

10-12am<br />

Fri 22nd Feb 20<strong>13</strong> - Puberty<br />

Friday 26th April 20<strong>13</strong> - Holiday Tips<br />

Friday 28th June 20<strong>13</strong> - Summer Survival Tips!<br />

There is a ‘focus’ for each meeting where parents<br />

can share their experiences and ‘top tips’!<br />

Hope you can join us ... everyone welcome!<br />

Any queries please contact Rox on 07939 253 124<br />

or Autism Outreach 0n 0116 305 9400<br />

Embrace Arts<br />

My name is Claire Tidmarsh, and I work at Embrace Arts.<br />

We are creating a Young People’s Advisory Board for young people<br />

aged 14 - 19 and young disabled people aged 14 - 26 to have a say on<br />

what they would like to see more of within the arts, and have a chance to<br />

help organise some events at our centre.<br />

We will then send them all the information along with free tickets to see<br />

our show The Flying Machine by HandMade Theatre.<br />

Our email address is arts-education@le.ac.uk,<br />

Embrace Arts, Richard Attenborough centre, Lancaster Road, Leicester<br />

LE1 7HA<br />

Direct tel & Box Office: 0116 252 2455<br />

For more information on Embrace Arts see page 22


AYLESTONE MAC is a supervised space to play<br />

sport and games and enjoy physical activity such as<br />

Trampoline, Bouncy Castle and Soft Play.<br />

On ONE monthly session trampolining will be offered<br />

and in the OTHER monthly session the bouncy castle<br />

will be offered.<br />

Disabled changing & assistance facilities are available at the<br />

pool.<br />

Day: Sundays (2X PER MONTH)<br />

Times(s): 1pm-3pm<br />

Age Range: 0-19 years old<br />

Cost: £3.00 per child/young person who attends the session.<br />

Venue: Aylestone Leisure Centre, 2 Knighton Lane East, Leicester LE2 6LU<br />

Feb 17 th 20<strong>13</strong> Bouncy Castle<br />

March 3 rd 20<strong>13</strong> Trampoline<br />

March 17 th 20<strong>13</strong> Bouncy Castle<br />

April 7 th 20<strong>13</strong> Trampoline<br />

April 21 st 20<strong>13</strong> Bouncy Castle<br />

Also, Swimming in all sessions. Small Pool 1-2pm only, and 1-3pm in large<br />

pool. There is one support worker available, but a parent per child should<br />

also be in pool.<br />

Cost: £2.50 per child with discount over 3 children. £3.00 per child with discount<br />

over 3 children for Swimming<br />

Please pass the word on about this activity.<br />

Due to lack of funding the sessions may stop after the May sessions. .<br />

PLEASE CONTACT BECKY on 07966 844 308<br />

For City and County Children- No need to book<br />

Please note there is a height and age restriction for the soft play area<br />

of approximately 4ft 9 inches /9 years old and parents will need to stay<br />

with their child/ren but we will try and ensure parents can have a refreshment<br />

break.<br />

26


Communication Matters<br />

27<br />

OUR SPACE aims to provide a caring environment for<br />

children (ages 0-12) with a range of special needs.<br />

Come and enjoy a free, friendly and relaxing atmosphere,<br />

coffee and newspapers whilst we provide a fun<br />

playtime for your child.<br />

We meet on the 1st and 3rd Sundays of each month,<br />

10.15 -12.15<br />

Come along to Crescent House on Regent Road,<br />

Leicester. There is ample parking nearby, plus three<br />

disabled spaces in the rear of the venue.<br />

For more information contact Wyn and Susan Rees<br />

0116 270 8738<br />

This initiative is run by Holy Trinity Church. Please note<br />

that one carer must remain with their child on the premises<br />

of Crescent House<br />

They have a great web-site: http://www.communicationmatters.org.uk<br />

You can join their organisation free for a year, then there is a small<br />

charge payable but that includes them sending you lots of information<br />

and their newsletter that anyone with a child with communication issues<br />

would find very useful.<br />

The parent and carer forum now has a Facebook page …<br />

https://www.facebook.com/LeicesterCityParentAndCarersForum<br />

• In the short time we have had the page it has already had far more<br />

activity than the Website. Forum events and useful information on local<br />

and national issues can be found on there for anyone who cannot make<br />

the forum in person, or if anyone has a Facebook page they can ‘Like’<br />

the site and they can then ask questions and post their own (relevant<br />

and tolerant please!) information.


Facebook Pages<br />

<strong>Leicestershire</strong> Support for Families Caring for Special Needs<br />

Young Adults.<br />

Set up by parents . “We created this Group as we felt there was a need<br />

for support for families as they go through Transition and into Adulthood."<br />

Search “<strong>Leicestershire</strong> Support for Families Caring for Special Needs<br />

Young Adults” on Facebook to post anything of interest, questions, your<br />

experiences etc..<br />

<strong>Leicestershire</strong> Support for Families Caring for Special Needs Children.<br />

This group was set up for <strong>Leicestershire</strong> families of children with<br />

special additional needs. It is used as a forum for anyone to post questions,<br />

advertise or share an event - anything which is helpful and a<br />

chance to make new friends too<br />

Miracles to Believe In facebook page - an alternative to the website -<br />

usually has info about trips and activities for children and their families -<br />

Charity for children and teenagers on the <strong>Autistic</strong> spectrum in Leics and<br />

Rutland<br />

Leicester Autism Parents Group facebook page<br />

This is a group to help parents and carers of children with Autism or<br />

suspected Autism in Leicester to connect and share stories and tips etc<br />

Support group for those with siblings on the spectrum<br />

Specturumsiblingsupport.webs.com<br />

The above site was recommended and was also originally posted and<br />

shared on the Leicester Autism Parents Group site<br />

http://talkaboutautism.org.uk/<br />

talk about Autism is an online community and discussion forum for<br />

everyone interested in autism, including parents, carers, family members,<br />

people on the spectrum, and professionals.<br />

Talk about Autism is provided by Ambitious about Autism, a national<br />

charity for children and young people with autism.<br />

28<br />

Know any good websites you want to share with us ?<br />

Send Carole the info to be posted on this page


29<br />

USEFUL WEBSITES<br />

http://www.leicestershireautism.org.uk/ LAS<br />

http://www.leatleicester.org.uk/ LEAT<br />

http://tap.leicester.gov.uk TAP<br />

http://www.themondayclub.co.uk/ MONDAY CLUB<br />

http://www.autism.org.uk/ NAS<br />

http://www.newdawnfamilysupportservice.org.uk/new/ NEW DAWN<br />

http://www.norsaca.org.uk NORSACA<br />

http://www.claspthecarerscentre.org.uk/ CLASP<br />

http://www.miracles-to-believe-in.co.uk/ M2BI<br />

http://www.translate-asc.org.uk/ TRANSLATE<br />

http://sensorysmart.co.uk/ Sensory Clothing<br />

Council for Dis-<br />

http://www.councilfordisabledchildren.org.uk/<br />

able Children<br />

CDC has a wide variety of books, tools and resources available for professionals, parents<br />

and young people. Many of these resources are available free of charge. See website<br />

above<br />

http://www.edcm.org.uk/media/8260/using_the_law_to_fight_cuts.pdf<br />

The above website is called “Using the Law to Fight the Cuts to Disabled<br />

Children’s Services” A practical guide for campaigners - parents, carers<br />

and local groups<br />

This interesting paper is intended to help campaigners – including parents<br />

and carers - understand how the law can be used to help fight cuts<br />

to valued services for disabled children in their area. Although the focus<br />

is on disabled children’s services, many of the legal principles set out in<br />

this paper will apply to services for disabled adults and other groups. The<br />

paper is intended to be read by those who do not have a legal background.<br />

This paper has been written by Steve Broach. Steve is a barrister<br />

at Doughty Street Chambers specialising in cases involving disabled<br />

children and others who need care and support from public bodies. Before<br />

becoming a barrister Steve worked for a number of organisations in<br />

the voluntary sector supporting disabled children and adults and their<br />

families and was most recently Campaign Manager of the Every Disabled<br />

Child Matters campaign. (Continued on page 30)


Useful links.<br />

http://www.mind.org.uk/assets/0000/8587/Police_Guide.pdf<br />

Really good leaflet from Mind re Police and Mental Health<br />

SEN Code of Practice (Education Act 1996)<br />

Get yourself a free copy by contacting the Department of Education<br />

on 0845 602 2260 quote ref number DCSF 581/2001<br />

Www.education.gov.uk<br />

It was reported in the Times Magazine 9.2.<strong>13</strong> that in May this year the<br />

American Diagnostic and Statistical Manual of Mental Disorders (DSM5),<br />

the go-to publication for all international clinicians, will abolish Asperger’s<br />

preferring instead to use the broad term “<strong>Autistic</strong> Spectrum Disorder”. It<br />

says Britain and Europe are set to follow with their equivalent in 2015.<br />

Meaning that effectively Asperger’s will no longer exist as a label.<br />

It was a very interesting article about “Are you on the Spectrum?”<br />

30<br />

Directory of Adult Services<br />

The Directory is available by post or online at<br />

www.leicestershireautism.org<br />

Lindy Hardcastle (Helpline 0116 2916958)<br />

www.newdawnfamilysupportservice.org.uk<br />

New Dawn is a family counselling service run by David Brindley who<br />

has worked in this field for many years before establishing this organisation<br />

to ensure ‘affordable’ ... free, advice is available to all.<br />

David explained that his service helps families understand and manage<br />

the stress in their life of having an additional needs child; it is not just<br />

available to parents/carers but can also help the siblings of the child.<br />

The contact details for this service are:<br />

Glebe House, 190 Forest Road, Loughborough, LE11 3HU<br />

Tel: 0116 287 7335 Mobile: 07887 750 890<br />

Email: davidbrindley435@btinternet.com


31<br />

Youth Club<br />

For children and young people<br />

Age 10 -18 yrs old with<br />

<strong>Autistic</strong> Spectrum Disorder<br />

The club aims to give children social opportunities away from the family<br />

and the school day. We will do our best to make the club fun and support<br />

the children to make friends with each other. The club will be<br />

geared towards the interests of the children within a safe and structured<br />

environment.<br />

The club will always be run by members of staff from the NAS, with<br />

supported volunteers who are trained to have a high level in regard to<br />

Autism. All staff and volunteers are enhanced CRB checked and have<br />

committed to this club.<br />

Venue: Grovebrook House, Brook Street, Whetstone, LE8 6LA<br />

5pm – 7pm every 1 st Tuesday Evening of the month.<br />

Cost £10 for 2 hours.<br />

PLEASE CONTACT:<br />

Zoe on 0116 284 3900/07983 883 649<br />

or Alasdair on 07766 487 933<br />

ASD Family Swimming Sessions<br />

Saturdays at Bosworth Community Sports College Desford<br />

3.30 - 5.00pm<br />

Everyone welcome<br />

Swimming Sessions every Saturday of the year;<br />

apart from Bank Holiday weekends.<br />

Sessions paid for by Miracles to Believe In<br />

New families would be most welcome to join in – just turn up.<br />

Any questions? Contact Sue Cox, the Sports College's Pool Manager,<br />

by telephone (01455 822841 ext.207) or email at<br />

suec27@boscol.leics.sch.uk for further details.


32<br />

A S D COUNTY YOUTH CLUB<br />

Also Known as<br />

THE FRIENDSHIP CLUB<br />

For young people in <strong>Leicestershire</strong> aged 11 – 19 years<br />

with ASD & moderate learning difficulties.<br />

Held at The Salvation Army, Leicester South Corps<br />

Ladysmith Road, South Wigston<br />

<strong>Leicestershire</strong>, LE18 4UZ<br />

2 nd & 4 th Tuesdays of each month<br />

Registration required as places are limited<br />

We are also asking parents if they can volunteer their help in the youth<br />

club on a rota basis<br />

Contact Diane Madelin 07722914124<br />

S.P.A.C.E.<br />

(Support and Play for <strong>Autistic</strong> Children with Energy)<br />

10am – 12noon<br />

1 st and 3 rd Saturday of the month<br />

(reduced rate for Leisure Link members)<br />

Castle Donington Community College, DE74 2LN<br />

(Tel: 0<strong>13</strong>32 810528)<br />

Come along and join us for a friendly welcome. We aim to<br />

offer support and advise along with a cup of tea, cake and a<br />

chat. For further information contact<br />

Julie Truman 07988934446<br />

Sara Goodwin 01530 461660<br />

Space also offers swimming at Ibstock community College on Sundays 3 -<br />

4pm


Siblings After School Support Groups (8-14 years)<br />

www.sibsservice.co.uk<br />

What is it?<br />

Support groups for children between 8-14 years of age who have a<br />

brother or sister with an <strong>Autistic</strong> Spectrum Disorder or Asperger’s Syndrome.<br />

The groups offer emotional and peer support through interactive,<br />

fun and relaxed group activities facilitated by qualified, friendly<br />

and enthusiastic staff.<br />

The groups are about:<br />

Fun<br />

Relieving Isolation<br />

Acknowledging Feelings<br />

Modelling Coping Strategies<br />

Enhancing Knowledge<br />

The service is provided by Ruach Care Ltd a charity that specialises in<br />

supporting individuals with an <strong>Autistic</strong> Spectrum Disorder or Asperger’s<br />

Syndrome.<br />

Why has it been set up?<br />

Sometimes it’s hard having a sibling with special needs and good to<br />

have people to talk to who have some idea what it’s like. It’s nice<br />

knowing that you’re not the only one who has a brother or sister who’s<br />

a bit different. It is widely recognized that siblings of someone with<br />

ASD can sometimes miss out on doing the things that other kids get to<br />

do because of the needs of their sibling. This is where the Siblings<br />

Support Groups come in.<br />

Where can I get involved?<br />

There are currently groups at Braunstone, Coalville, Hinckley,<br />

Loughborough, Market Harborough and Melton Mowbray.<br />

How much will it cost?<br />

There is a small charge of £2 contribute towards drinks and snacks<br />

and resources.<br />

Where can I find out more?<br />

If you would like to know more please contact us at:<br />

33<br />

siblings@ruachcare.co.uk<br />

Or telephone:<br />

Catherine Gallagher – 07980 624 494<br />

Sherralyn Coleman – 01530 245 922


REALITY<br />

Supporting Parents/Carers & Individuals with Autism<br />

C/o Leisa Smith Email: leisa_smith3@hotmail.com<br />

Tel 07912 850 517<br />

Venue:Braunstone Sure Start, Gallards Hill, Braunstone, LE3 1QR<br />

We will meet from 10.30am till 12pm. This venue has many facilities<br />

available to us including the use of a super crèche where workers will be<br />

available to look after the younger ones & use of their sensory room<br />

throughout the session.<br />

Looking forward to seeing you all Leisa<br />

34<br />

Child & Family Support Worker<br />

Our Charity is currently able to fund (part-time) a Child & Family Support<br />

Worker - Leisa Smith who acts as a resource for families of children aged<br />

0-19 yrs who are suspected of having an autistic spectrum condition or<br />

have a diagnosis of ASD. The types of support that Leisa provides include,<br />

help obtaining a diagnosis, providing guidance and information<br />

post diagnosis, help obtaining a Statement of Special Educational Needs<br />

(SEN), and being present at meetings with Schools.<br />

The Child & Family Support Worker contact number is 07958 235 015<br />

S.N.I.P.S.Hinckley<br />

Helping children to be themselves, to make new friends & try new experiences.<br />

SNIPS is a small charity in Hinckley. We provide weekly<br />

clubs and summer holiday play schemes at local schools. Our aim is to<br />

reduce isolation for disabled children by giving them a sense of belonging.<br />

By using volunteers to befriend our youngsters we create a better<br />

understanding of disability and as a consequence of our work, we reduce<br />

stress within families. Last year we celebrated our 25th birthday.<br />

Special Needs Integration Projects, Amity House, 6 Holliers Walk,<br />

Hinckley, <strong>Leicestershire</strong>, LE10 1QW, 01455 440 660,<br />

info@snipshinckley.com


LEAT<br />

Over time we have expanded our services according to the needs of<br />

young people and adults with Asperger syndrome and are now able to<br />

offer a wide range of holistic and person centred services.<br />

LEAT are looking for people interested in their charitable work to join the<br />

Management Committee<br />

We currently also have vacancies for Bank Support Staff.<br />

If you are interested in either of the above positions and would like more<br />

information please contact:<br />

Carol Hunt - Manager Direct Line: 0116 2857822<br />

LEAT<br />

186a London Road, Leicester, LE2 1ND<br />

Tel: 0116 2857822 (dir. line)<br />

Spectrum Market Harborough<br />

Spectrum is a support group for parents of autistic children that meets<br />

monthly for coffee, support and chat in Market Harborough . We also arrange<br />

occasional leisure activities for our children.<br />

We meet at the Congregational Church Hall in Market Harborough If you<br />

would like more information please contact us on 0783<strong>13</strong>49574<br />

35<br />

New Befriending Service<br />

LEAT is a local charitable organisation providing specialist support to<br />

young people aged 16 plus and adults with Asperger syndrome. A new<br />

addition to our already comprehensive range of services is the Befriending<br />

Service, funded by Lloyds TSB, Foundation for England and Wales. It<br />

complements the existing Consultancy Service and the Aspergers Aspirations<br />

project (funded by The Big Lottery Fund).<br />

The aim of the Befriending Service is to provide regular social companionship<br />

for people with Asperger syndrome and assessed with ‘moderate<br />

needs’ who are not entitled to a personal budget but still need some support.<br />

The Befrienders will have an up to date CRB check in place and be<br />

trustworthy, reliable and friendly volunteers.<br />

If the Befriending Service is of interest to you or anyone you may<br />

know please contact:<br />

Gill Keeling on 07864 267219<br />

or email Gill at gkleat@gmail.com


36<br />

RNIB College Loughborough extends services into respite care<br />

RNIB College Loughborough has announced that it will be extending its<br />

services to offer a range of respite care options for young people with<br />

disabilities. The College, which currently supports young people to access<br />

further education, independence and employment, will be utilising<br />

one of the flats in its residential facilities to provide for the growing demand<br />

for respite opportunities within the Midlands.<br />

In addition to offering a range of day time and evening activities, the<br />

residences will be available 38 weeks of the year to provide flexible<br />

respite options including, weekend and overnight stays, short and long<br />

term breaks. Operating as a full-time residential College means that the<br />

purpose-built accommodation provides the perfect mix of support and<br />

independence with plenty of activities for young people to get involved<br />

with alongside other young adults. This will provide a significant resource<br />

for carers, giving them the peace of mind to relax knowing that<br />

their young person is accessing a safe and enriching environment.<br />

Just like the College provision, the respite services are available to<br />

young people aged 16-25 with a wide range of disabilities. Staff are<br />

highly trained and experienced in supporting people with Autism, mild,<br />

moderate or severe learning difficulties, mobility problems and managed<br />

chronic illness.<br />

Graham Owen, Head of Care at the College says: “This is an exciting<br />

development which will provide much needed breaks for parents and<br />

carers, whilst ensuring that young people are safe, supported and have<br />

a good time whilst they are with us”.<br />

For more information about this service please contact our admissions<br />

team on 01509 611077 or email enquiries@rnibcollege.ac.uk


Jigsaw provides support for parents and carers and their families and<br />

activities for children with <strong>Autistic</strong> Spectrum Disorders.<br />

Parents and Carers are welcome to join us over a hot drink in the<br />

lounge at the Salvation Army Centre, Ladysmith Road, South Wigston,<br />

LE18 4UZ from 7.00 to 9.00pm alongside the A.S.D. County Youth<br />

Group held on the 2 nd and 4 th Tuesdays of the month.<br />

Monthly Informal Meetings<br />

7.30pm on the First Monday<br />

of the month<br />

Offering<br />

Talks and Tea.<br />

Support Information Advice<br />

Moira Centre, Moira Street, Loughborough LE11 1AX<br />

For further information see www.translate-asc.org.uk<br />

Or telephone Jo or Paul on 01509 554797<br />

Or email: translate_as1@ntlworld,com<br />

37<br />

For any further information on Jigsaw and its activities please contact:<br />

Dave Nutting.<br />

Tel: 07582197173<br />

E-mail: sumkindasyndrome@hotmail.co.uk<br />

For further information on the County Youth Group contact Diane;<br />

Tel: 07722914124


38<br />

Helpline<br />

<strong>Leicestershire</strong> NAS Helpline<br />

Tel: (0116) 291 6958<br />

e-mail lindy@flaxfield.demon.co.uk<br />

New NAS Phone Numbers<br />

Education Rights Service 0808 800 4102<br />

Autism Helpline 0808 800 4104<br />

Parent-to-Parent Service 0808 800 4106<br />

Help lines are now free from landlines and most mobiles: 3, O2, Orange,<br />

T-mobile, Virgin and Vodafone.<br />

AS well as the LAS & NAS helplines above, families in need of support<br />

can visit our 'Signpost' service www.autism.org.uk/signpost<br />

or contact one of the following organisations:<br />

Citizens Advice: www.citizensadvice.org.uk<br />

Contact a Family: 0808 808 3555<br />

Mencap: 0808 808 1111<br />

Mind: 0845 766 0163<br />

The Samaritans: 08457 90 90 90<br />

Young Minds: 0808 802 5544<br />

Contact a Family, New Service – Special Education Needs Advice<br />

The SEN National service is part of our integrated Helpline/Online service<br />

for families. It is now up and running with three dedicated and experienced<br />

Special Education Needs advisers. The advice line is a one<br />

stop shop for parents and other family members who are caring for a<br />

child with SEN, on all education issues.<br />

The telephone helpline will enable parents and carers to get one-toone,<br />

in-depth and personalised advice from fully-trained SEN advisers.<br />

So call our helpline today for specialised advice, just select SEN from<br />

the menu when you call:<br />

Helpline: 0808 808 355, Mon–Fri, 9:30am–5pm.<br />

The Children's Disability Helpline (formally the Specialist Health Visitor<br />

Helpline) is 0116 225 6560 open Monday to Friday 12noon to 2pm.


Useful Contacts continued from back page<br />

ICT Assessment Service Tel: 0116 305 9400<br />

Learning and Autism Support Team: Maggie Brookes Tel: 0116 225 4800<br />

Rutland Autism Outreach: Tel: 01572 758 496<br />

CLASP (Carers of <strong>Leicestershire</strong> Advocacy & Support Project)<br />

Tel: 0116 2510999 email enquiries@claspthecarerscentre.org.uk<br />

ADHD Solutions Tel: 0116 261 0711<br />

Menphys SOS Tel: 01455 899111<br />

New Dawn Family Support Service Tel: 0116 287 7335<br />

www.newdawnfamilysupportservice.org.uk<br />

Rutland Parent Partnership Service: Sue Flather, Rutland Citizens Advice Bureau, 56 High<br />

Street, Oakham, Rutland LE15 6AL Tel: 01572 757 420<br />

Parent and Carers’ Council: Tel.07968 857 598<br />

e-mail enquiries@parentcarercouncil.co.uk .<br />

Jane Hall Tel: 07870 688973<br />

Services for Adults with Autism in <strong>Leicestershire</strong>:<br />

Fosse Autism Service: Chris Howell, Leicester Frith Hospital, Groby Road,<br />

Leicester. Tel: 0116 225 5335<br />

TAP Disabled Children’s Services Enquiries for City Carers:<br />

The Access Point Tel 0116 294 6096<br />

Text 07890 320 322 email TAP@leicester.gov.uk<br />

Leicester City Parent and Carers Forum Contact Dave Nutting 07582 197173<br />

LEAT Asperger Support Services 186 London Road, Leicester, LE2 1ND<br />

e-mail: carolhunt@btconnect.com leat@btconnect.com Tel 0116 254 1664<br />

Face 2 Face: Fiona Burton Tel: 07736 730978<br />

Saturday Swimming Sessions at Bosworth Community College: Sue Cox<br />

Tel: 01455 822 841 ext 27<br />

If you have a contact you wish us to include on this page - please contact the Editor, Carole<br />

Heubeck on 01530 244790<br />

Apologies if you have been missed out of this quarters Link-Up - please get in touch and I<br />

will try to put you in the next edition. Again if you are aware of a Group folding please let me<br />

know so I can remove them - it causes great disappointment to new parents who are trying<br />

to make contact with the Groups.<br />

The next Link-Up will be published in June 20<strong>13</strong> - Anything you wish to<br />

submit for publication should be sent by Middle of May 20<strong>13</strong> to Carole<br />

Heubeck via email at<br />

heubeck111@btinternet.com & also Heubecks@googlemail.com.<br />

Alternatively please post to 5 Grey Crescent, Newtown Linford, Leicester,<br />

LE6 0AA<br />

39


40<br />

Useful Contacts<br />

<strong>Leicestershire</strong> <strong>Autistic</strong> <strong>Society</strong><br />

Chair Vacant<br />

Vice Chair /fundraising Jenny Cornwell, 9 Kingston Way, Market Harborough LE16 7XB<br />

Email, cornwells@hotmail.co.uk, Tel: 07775 777 524<br />

Editor: Carole Heubeck, 5 Grey Crescent, Newtown Linford, Leics. LE6 0AA<br />

Email Heubeck111@btinternet.com Tel: 01530 244 790<br />

Secretary, Helpline & Membership: Lindy Hardcastle, . Tel: 0116 291 6958<br />

e-mail lindy.hardcastle@hotmail.co.uk<br />

Treasurer: Peter Holdridge, 25 Linden Avenue, Countesthorpe, Leicester, LE8 5PG.<br />

barmyarmy@barmyarmy.free-online.co.uk Tel: 0116 277 1974<br />

Family Support Worker: Leisa Smith Tel: 07958 235 015<br />

Jigsaw Contacts: Chair Dave Nutting Tel: 07954 172 9<strong>13</strong><br />

email sumkindasyndrome@hotmail.co.uk<br />

Loughborough ASD Group : Carole Heubeck, Tel: 01530 244 790<br />

Market Harborough Spectrum Support Group: Tel: 0783<strong>13</strong>49574<br />

SPACE-Castle Donington Support Group<br />

Sara Goodwin 01530 461660 and Julie Truman Tel: 07988 934 446<br />

National <strong>Autistic</strong> <strong>Society</strong> (NAS),<br />

Helpline Education rights service Tel 0808 800 4104<br />

Regional Contact. Ester Vickers, Regional Officer, East Midlands. Grovebrook House Resource<br />

Centre: Brook Street, Whetstone, Leics. LE8 6LA Tel: 07787 526 184<br />

Reality Support , Contact Leisa Smith Tel: 07912 850 517<br />

Monday Club : email themondayclub@hotmail.co.uk<br />

Contact Monday Club Project Manager Mobile 0787 3311 610<br />

Translate Adult & Partners Group - Paul & Jo Sandford Tel: 01509 554 797<br />

Miracles to Believe In.<br />

Secretary Julian Heubeck, 5 Grey Crescent, Newtown Linford , Leicester LE6 0AA<br />

Email heubeck111@btinternet.com Tel: 01530 244 790<br />

The Parent Partnership Service: Tel: 0116 275 2097<br />

County Parent Participation Coordinator-Kirsty Baylis Tel: 0116 288 5353<br />

Aspire: Email aspirelifeskills@hotmail.co.uk Tel: 07854 918 575<br />

Children’s Services<br />

<strong>Leicestershire</strong> Psychology Service: Tel: 0116 305 5100.<br />

Leicester City Educational Psychology Service: Tel: 0116 221 1200<br />

<strong>Leicestershire</strong> Autism Outreach Service: George Thomas: Tel: 0116 305 9400<br />

<strong>Leicestershire</strong> Pre-school Support Worker: Tel. 0116 305 9400<br />

Continued on previous page (39)

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