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Directory of medical institutions associated with - National Marfan ...

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-4-<br />

Massachusetts<br />

Children’s Hospital-Boston<br />

<strong>Marfan</strong> Syndrome, Connective Tissue, and Related Disorders Program<br />

Department <strong>of</strong> Cardiology<br />

300 Longwood Avenue<br />

Boston, MA 02115<br />

Medical Director: Ronald V. Lacro, M.D.<br />

Clinic Contact: Martha King, R.N.<br />

(617) 355-6993 Martha.King@cardio.chboston.org<br />

Appointments: 617-355-8794 for Liz Berryan<br />

Office Hours: Weekly, Fri 8:00-4:00<br />

Clinic serves adults and children<br />

Pr<strong>of</strong>essional Advisory Board Member: Ronald V. Lacro, M.D.<br />

Brigham and Women’s Hospital<br />

<strong>Marfan</strong> and Related Disorders Clinic<br />

70 Francis St.<br />

Boston, MA 02115<br />

Medical Director: Michael F. Murray, M.D.<br />

Co-Director: Michael N. Singh, M.D.<br />

Clinic Contact: Monica Giovanni, M.S. CGC<br />

(617) 525-4546 magiovanni@partners.org<br />

Appointment: 857-307 4040<br />

Office Hours: Weekly, Fridays 8am-12 pm<br />

Clinic serves ages 18 and over<br />

Minnesota<br />

Mayo Clinic<br />

<strong>Marfan</strong> and Thoracic Aorta Clinic<br />

200 First Street SW<br />

Rochester, MN 55905<br />

Medical Director: Heidi Connolly M.D and Joseph Dearani M.D. co-director<br />

Clinic Contact: Caroline Arpin, R.N.<br />

(507) 284 3681 arpin.caroline@mayo.edu<br />

Appointments: (507) 538- 8124 to speak to one <strong>of</strong> the appointment coordinators.<br />

Office Hours: Tues 12:00-5:00, other days available<br />

Clinic serves adults and children<br />

Pr<strong>of</strong>essional Advisory Board Member: Heidi Connolly M.D.<br />

Missouri<br />

Washington University School <strong>of</strong> Medicine, Barnes-Jewish Hospital<br />

<strong>Marfan</strong> Syndrome Clinic and Center for Genetically Triggered Aortic Diseases<br />

Adults: 4921 Parkview Place Suite 8A<br />

St. Louis, MO 63110<br />

Medical Director: Alan Braverman, M.D. F.A.C.C.<br />

Clinic Contact: Dana Gima RN., BSN. and Barb Stehman RN, BSN in<br />

Dr. Braverman’s <strong>of</strong>fice.<br />

(314) 362-1291 or 1-888-210-8375 dgima@dom.wustl.edu bstehman@dom.wustl.edu<br />

Appointment: (314) 362-1291 or 1-888-210-8375<br />

Office hours: Weekly Mon, Tues, Wed, Fri 9:30am to 4 pm<br />

Clinic serves 16 and older<br />

Initial patient evaluation and multidisciplinary evaluation: Fridays.<br />

Pr<strong>of</strong>essional Advisory Board Member: Alan Braverman, MD

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