Directory of medical institutions associated with - National Marfan ...

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-8- Texas University of Texas Physicians Medical Genetics 6410 Fannin Street, Suite 600 Houston, TX 77030 Medical Director: Dianna M. Milewicz, M.D. Ph.D. Clinic Contact: Alana Cecchi, M.S., CGC (713) 500 6865 Alana.C.Cecchi@uth.tmc.edu Appointment: (713) 500-6865 for Alana Office Hours: Weekly, Weds afternoon Clinic serves adults and children Professional Advisory Board Member: Dianna M. Milewicz, M.D. Ph.D Utah Primary Children’s Medical Center Marfan Clinic 100 N. Mario Capecchi Drive, Suite 1500 Salt Lake City, UT 84113 Medical Director: Angela Yetman, M.D. Clinic contact: Nancy M. Veit, FNP (801) 662-5462 Nancy.Veit@imail.org Appointments: (801) 662-5400 ask for appointment for Marfan syndrome Office Hours: Weekly Mon, Thurs 8:00-5:00 Clinic serves adults and children Washington University of Washington Medical Center Medical Genetics Clinic 1959 NE Pacific Street Box# 357720 Seattle, WA 98195-7720 Medical Director: Peter Byers M.D. Clinic Contact: Debbie Olson, Program Coordinator (206) 598-4030 olsondl@u.washington.edu Appointment: (206) 598-4030 option 1 for Debbie Olson Office Hours: Tues 8:00- 3:00 Clinic serves both adults and children Professional Advisory Board Member: Peter Byers, M.D. Seattle Children’s Hospital Seattle Children’s Heart Center 4800 Sandpoint Way NE Seattle, WA 98105 Medical Director: Mark Lewin M.D Clinic Contact: Camie Spieker, RN, BSN 206 987-3693 camie.spieker@seattlechildrens.org Appointments: 206 987-2015 scheduling.center@seattlechildrens.org Clinic serves children to age 21 Professional Advisory Board Member: Peter Byers, M.D.
Wisconsin Children’s Hospital of Wisconsin and The Medical College of Wisconsin Marfan and Related Connective Tissue Disorder Program 9000 W. Wisconsin Ave. Milwaukee, WI 53226 Medical Director: Michael Earing, M.D. Clinic Contact: Lindsey Katzmark, APNP 414 266-4757 lkatzmark@chw.org Appointment: 414 607-5280 Office Hours: Weekly 9am – 4 pm Clinic serves adults and children -9- DISCLAIMER The NMF has not attempted to verify the accuracy of any of the information listed hereon and has not and is not certifying, recommending, referring or warranting the quality of care provided by any of the institutions listed in this directory. THIS LISTING IS A DIRECTORY NOT A REFERRAL SERVICE. It is important to understand the difference between a Directory and a Referral Service. A Directory is simply a list of professionals or businesses, and no recommendations or guarantees are made regarding the quality of service you might expect from any of the professionals or businesses listed. The Telephone Yellow Pages is a common and well-known example of a Directory. Some businesses are listed for free, and some businesses pay an advertising fee for a larger listing or display ad. Whether the listing is free or paid, no recommendations are expressed or implied, regarding the quality of services provided. The NMF has not accepted a fee from any institution listed above. A Referral Service is a screening service, and a recommendation is being made, with at least some endorsement of the professionals or businesses listed in the service. Usually, a Referral Service will require a professional or a business to meet some quality criteria before they are accepted into the Referral Service. This might include a specific number of years of experience, passing a special test or training program not required by everyone in the profession or business, or an absence of consumer complaints about the professional or business. The National Register of Health Service Providers is a good example, or the various Board Certifications available in Medicine, which all require passing an examination, in addition to basic licensing as a healthcare professional. The NMF does not provide a referral service. We do not verify the license of anyone listed. In many instances, the only information that we have about their professional backgrounds is what they have told us. We request that you please use this directory as you would a telephone directory, to locate professionals in your community. Once you locate a professional, please investigate their background to insure that they are licensed, and that they do not have a history of complaints or disciplinary problems with their professional licensing board. Updated 07-12
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Directory of medical institutions associated with - National Marfan ...

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