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<strong>Education</strong> <strong>and</strong><br />

<strong>Tra<strong>in</strong><strong>in</strong>g</strong><br />

<strong>in</strong><br />

<strong>Autism</strong><br />

<strong>and</strong><br />

<strong>Developmental</strong><br />

<strong>Disabilities</strong><br />

Focus<strong>in</strong>g on <strong>in</strong>dividuals with<br />

autism, <strong>in</strong>tellectual disabilities <strong>and</strong> other developmental disabilities<br />

Volume 46 Number 1<br />

DAD<br />

D<br />

March 2011


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

The Journal of the Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>,<br />

The Council for Exceptional Children<br />

Editor: Stanley H. Zucker<br />

Arizona State University<br />

Mary Lou Fulton Teachers College<br />

Consult<strong>in</strong>g Editors<br />

Mart<strong>in</strong> Agran<br />

Reuben Altman<br />

Phillip J. Belfiore<br />

Sharon Borthwick-Duffy<br />

Michael P. Brady<br />

Fredda Brown<br />

Mary Lynne Calhoun<br />

Sharon F. Cramer<br />

Carol<strong>in</strong>e Dunn<br />

Lise Fox<br />

David L. Gast<br />

Herbert Goldste<strong>in</strong><br />

Juliet E. Hart<br />

Carolyn Hughes<br />

Larry K. Irv<strong>in</strong><br />

James V. Kahn<br />

H. Earle Knowlton<br />

Barry W. Lavay<br />

Rena Lewis<br />

Kathleen J. Marshall<br />

Editorial Assistant: Silva Hassert<br />

Arizona State University<br />

Mary Lou Fulton Teachers College<br />

John McDonnell<br />

Gale M. Morrison<br />

Gabriel A. Nardi<br />

John Nietupski<br />

James R. Patton<br />

Edward A. Polloway<br />

Thomas G. Roberts<br />

Robert S. Rueda<br />

Diane L. Ryndak<br />

Edward J. Sabornie<br />

Laurence R. Sargent<br />

Gary M. Sasso<br />

Tom E. C. Smith<br />

Scott Sparks<br />

Fred Spooner<br />

Robert Stodden<br />

Keith Storey<br />

David L. Westl<strong>in</strong>g<br />

John J. Wheeler<br />

Mark Wolery<br />

<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong> is sent to all members of the Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong><br />

<strong>Disabilities</strong> of The Council for Exceptional Children. All Division members must first be members of The Council for Exceptional Children.<br />

Division membership dues are $25.00 for regular members <strong>and</strong> $13.00 for full time students. Membership is on a yearly basis. All <strong>in</strong>quiries<br />

concern<strong>in</strong>g membership, subscription, advertis<strong>in</strong>g, etc. should be sent to the Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2900 Crystal<br />

Drive, Suite 1000, Arl<strong>in</strong>gton, VA 22202-3557. Advertis<strong>in</strong>g rates are available upon request.<br />

Manuscripts should be typed, double spaced, <strong>and</strong> sent (five copies) to the Editor: Stanley H. Zucker, Mary Lou Fulton Teachers College, Box<br />

871811, Arizona State University, Tempe, AZ 85287-1811. Each manuscript should have a cover sheet that gives the names, affiliations, <strong>and</strong><br />

complete addresses of all authors.<br />

Edit<strong>in</strong>g policies are based on the Publication Manual, the American Psychological Association, 2009 revision. Additional <strong>in</strong>formation is<br />

provided on the <strong>in</strong>side back cover. Any signed article is the personal expression of the author; likewise, any advertisement is the responsibility<br />

of the advertiser. Neither necessarily carries Division endorsement unless specifically set forth by adopted resolution.<br />

<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong> is abstracted <strong>and</strong> <strong>in</strong>dexed <strong>in</strong> Psychological Abstracts, PsycINFO, e-psyche,<br />

Abstracts for Social Workers, International Journal of Rehabilitation Research, Current Contents/Social <strong>and</strong> Behavioral Sciences, Excerpta<br />

Medica, Social Sciences Citation Index, Adolescent Mental Health Abstracts, <strong>Education</strong>al Adm<strong>in</strong>istration Abstracts, <strong>Education</strong>al Research<br />

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H<strong>and</strong>icapped <strong>and</strong> Gifted Children for publication <strong>in</strong> the monthly pr<strong>in</strong>t <strong>in</strong>dex Current Index to Journals <strong>in</strong> <strong>Education</strong> <strong>and</strong> the quarterly <strong>in</strong>dex,<br />

Exceptional Child <strong>Education</strong> Resources.<br />

<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong> Vol. 46, No. 1, March 2011, Copyright 2011 by the Division on Austim <strong>and</strong><br />

<strong>Developmental</strong> <strong>Disabilities</strong>, The Council for Exceptional Children.<br />

Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

The Council for Exceptional Children<br />

Board of Directors<br />

Officers<br />

Past President Emily Bouck<br />

President Teresa Taber-Doughty<br />

President-Elect Richard Gargiulo<br />

Vice President Nikki Murdick<br />

Secretary Toni Merfeld<br />

Treasurer Gardner Umbarger<br />

Members<br />

Debra Cote<br />

Mark Francis<br />

Nicole Mucher<strong>in</strong>o (Student Governor)<br />

Robert S<strong>and</strong>ieson<br />

Debora Wichmanowski<br />

Dianne Zager<br />

Executive Director<br />

Tom E. C. Smith<br />

Publications Chair<br />

Michael Wehmeyer<br />

Communications Chair<br />

Darlene Perner<br />

Conference Coord<strong>in</strong>ator<br />

C<strong>in</strong>dy Perras<br />

The purposes of this organization shall be to advance the education <strong>and</strong> welfare of persons with autism <strong>and</strong> developmental disabilities, research<br />

<strong>in</strong> the education of persons with autism <strong>and</strong> developmental disabilities, competency of educators <strong>in</strong> this field, public underst<strong>and</strong><strong>in</strong>g of autism<br />

<strong>and</strong> developmental disabilities, <strong>and</strong> legislation needed to help accomplish these goals. The Division shall encourage <strong>and</strong> promote professional<br />

growth, research, <strong>and</strong> the dissem<strong>in</strong>ation <strong>and</strong> utilization of research f<strong>in</strong>d<strong>in</strong>gs.<br />

EDUCATION AND TRAINING IN AUTISM AND DEVELOPMENTAL DISABILITIES (ISSN 2154-1647) (USPS 0168-5000) is published<br />

quarterly <strong>in</strong> March, June, September, <strong>and</strong> December, by The Council for Exceptional Children, Division on <strong>Autism</strong> <strong>and</strong><br />

<strong>Developmental</strong> <strong>Disabilities</strong>, 2900 Crystal Drive, Suite 1000, Arl<strong>in</strong>gton, Virg<strong>in</strong>ia 22202-3557. Members’ dues to The Council for<br />

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<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong><br />

<strong>Disabilities</strong><br />

VOLUME 46 NUMBER 1 MARCH 2011<br />

Gan<strong>and</strong>o Confianza: Research Focus Groups with Immigrant Mexican Mothers 3<br />

CAROLINA HAUSMANN-STABILE, LUIS H. ZAYAS, SANDRA RUNES,<br />

ANNA ABENIS-CINTRON, <strong>and</strong> ESTHER CALZADA<br />

I Can Identify Saturn but I Can’t Brush My Teeth: What Happens When the<br />

Curricular Focus for Students with Severe <strong>Disabilities</strong> Shifts 11<br />

KEVIN M. AYRES, K. ALISA LOWREY, KAREN H. DOUGLAS, <strong>and</strong> COURTNEY SIEVERS<br />

Addition of Functional Content dur<strong>in</strong>g Core Content Instruction with<br />

Students with Moderate <strong>Disabilities</strong> 22<br />

BELVA C. COLLINS, KAREN L. HAGER, <strong>and</strong> CAREY CREECH GALLOWAY<br />

Teach<strong>in</strong>g Social Skills to Enhance Work Performance <strong>in</strong> a Child Care Sett<strong>in</strong>g 40<br />

SABRA GEAR, JONNA BOBZIEN, SHARON JUDGE, <strong>and</strong> SHARON A. RAVER<br />

Correspondence between Video-Based Preference Assessment <strong>and</strong> Subsequent<br />

Community Job Performance 52<br />

ROBERT L. MORGAN <strong>and</strong> ERIN L. HORROCKS<br />

A Meta-Analysis of Peer-Mediated Interventions for Young Children with<br />

<strong>Autism</strong> Spectrum Disorders 62<br />

JIE ZHANG <strong>and</strong> JOHN J. WHEELER<br />

Postsecondary <strong>Education</strong> for Transition-Age Students with Intellectual <strong>and</strong><br />

Other <strong>Developmental</strong> <strong>Disabilities</strong>: A National Survey 78<br />

CLARE K. PAPAY <strong>and</strong> LINDA M. BAMBARA<br />

Perceptions of Supported Employment Providers: What Students with<br />

<strong>Developmental</strong> <strong>Disabilities</strong>, Families, <strong>and</strong> Educators Need to Know For<br />

Transition Plann<strong>in</strong>g 94<br />

SHERRIL MOON, MONICA L. SIMONSEN, <strong>and</strong> DEBRA A. NEUBERT<br />

Mediation between Staff <strong>and</strong> Elderly Persons with Intellectual Disability with<br />

Alzheimer Disease as a Means of Enhanc<strong>in</strong>g Their Daily Function<strong>in</strong>g 106<br />

HEFZIBA LIFSHITZ <strong>and</strong> PNINA S. KLEIN<br />

Determ<strong>in</strong><strong>in</strong>g Alertness <strong>in</strong> Individuals with Profound Intellectual <strong>and</strong> Multiple<br />

<strong>Disabilities</strong>: The Reliability of an Observation List 116<br />

VERA MUNDE, CARLA VLASKAMP, WIED RUIJSSENAARS, <strong>and</strong> HAN NAKKEN<br />

Teach<strong>in</strong>g Number Identification to Students with Severe <strong>Disabilities</strong> us<strong>in</strong>g<br />

Response Cards 124<br />

HOLLY SKIBO, PAMELA MIMS, <strong>and</strong> FRED SPOONER<br />

Acquisition of Instructive Feedback: Relation to Target Stimulus 134<br />

MARGARET GESSLER WERTS, ELIN MEYERS HOFFMAN, <strong>and</strong> CYNTHIA DARCY<br />

Manuscripts Accepted for Future Publication <strong>in</strong> <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong><br />

<strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong> 2<br />

The Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong> reta<strong>in</strong>s literary property rights on copyrighted articles. Up<br />

to 100 copies of the articles <strong>in</strong> this journal may be reproduced for nonprofit distribution without permission from<br />

the publisher. All other forms of reproduction require permission from the publisher.


June 2011<br />

Manuscripts Accepted for Future Publication <strong>in</strong><br />

<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

Self-management procedures: A comparison across the <strong>Autism</strong> spectrum. C<strong>and</strong>ice Southall <strong>and</strong> David L.<br />

Gast, Department of Communication Sciences <strong>and</strong> Special <strong>Education</strong>, University of Georgia, 516 Aderhold<br />

Hall, Athens, GA 30602.<br />

Disproportionality <strong>in</strong> transition services: A descriptive study. Robert Baer, Alfred Daviso III, Rachel<br />

McMahan Queen, <strong>and</strong> Robert W. Flexer, Center for Innovation <strong>in</strong> Transition <strong>and</strong> Employment, Kent State<br />

University, 202 White Hall, Kent, OH 44242.<br />

Avoidant attachment style <strong>in</strong>dicates job adaptation of people with high functional Autistic spectrum disorders.<br />

Kenji Yokotani, 9080-8576, Miyagi Prefecture, Sendai City, Adoba District, Kawauchi 27 - 1, JAPAN.<br />

<strong>Developmental</strong> screen<strong>in</strong>g: A review of contemporary practice. Juli Pool <strong>and</strong> Jack J. Hourcade, Department of<br />

Special <strong>Education</strong> <strong>and</strong> Early Childhood Studies, MS 1725, Boise State University, Boise, ID 82725.<br />

Evaluation of an <strong>in</strong>strucitonal package us<strong>in</strong>g video prompt<strong>in</strong>g <strong>and</strong> constant time delay procedure to teach an<br />

Internet search basic skill to students with <strong>in</strong>tellectual disabilities. Dimitrios Zisimopoulos, Jeff Sigafoos, <strong>and</strong><br />

George Koutromanos, University of Patras, V. Varela Palaiopanagia, 30300 Nafpaktos, GREECE.<br />

Us<strong>in</strong>g simultaneous prompt<strong>in</strong>g to teach restaurant words <strong>and</strong> classifications as non-target <strong>in</strong>formation to<br />

secondary students with moderate to severe disabilities. Bethany Smith, John W. Schuster, Belva Coll<strong>in</strong>s, <strong>and</strong><br />

Harold Kle<strong>in</strong>ert, 13764 Rutherglen Court, Charlotte, NC 28213.<br />

Develop<strong>in</strong>g the social skills of young adult special olympics athletes. Melissa Alex<strong>and</strong>er, Gail M. Dummer,<br />

Ashley Smeltzer, <strong>and</strong> Stephen J. Denton, Montclair State University, Department of Exercise Science <strong>and</strong><br />

Physical <strong>Education</strong>, 1 Normal Ave., 4113 University Hall, Montclair, NJ 07043.<br />

Use of a h<strong>and</strong>-held personal digital assistant (PDA) to self-prompt pedestrian travel by young adults with<br />

moderate <strong>in</strong>tellectual disabilities. L<strong>in</strong>da Mechl<strong>in</strong>g <strong>and</strong> Nicole H. Seid, Department of Early Childhood <strong>and</strong><br />

Special <strong>Education</strong>, University Of North Carol<strong>in</strong>a Wilm<strong>in</strong>gton, 601 S. College Rd., Wilm<strong>in</strong>gton, NC 28403.<br />

Arithmetic operations <strong>and</strong> attention <strong>in</strong> children with <strong>in</strong>tellectual disabilities. Aleks<strong>and</strong>ra Djuric-Zdravkovic,<br />

Mirjana Japundza-Milisavljevic, <strong>and</strong> Dragana Macesic-Petrovic, Department of Oligofrenology,<br />

University of Belgrade, 2 Visokog Stevana, Belgrade, SERBIA.<br />

Teach<strong>in</strong>g generalized read<strong>in</strong>g of product warn<strong>in</strong>g labels to young adults with <strong>Autism</strong> us<strong>in</strong>g the constant time<br />

delay procedure. Maud Dogoe, Devender R. B<strong>and</strong>a, Rob<strong>in</strong> H. Lock, <strong>and</strong> Rita Fe<strong>in</strong>ste<strong>in</strong>, Department of<br />

Counsel<strong>in</strong>g <strong>and</strong> Special <strong>Education</strong>,College of <strong>Education</strong> <strong>and</strong> Human Services, 353 EHS Build<strong>in</strong>g, Central<br />

Michigan University, Mount Pleasant, MI 48859.<br />

Effects of no-no prompt<strong>in</strong>g on teach<strong>in</strong>g expressive label<strong>in</strong>g of facial expressions to children with <strong>and</strong> without a<br />

pervasive developmental disorder. Just<strong>in</strong> Leaf, Misty L. Oppenheim, Wesley H. Dotson, Valerie A. Johnson,<br />

Andrea B. Courtemanche, Jan B. Sheldon, <strong>and</strong> James A. Sherman, 8799 Old Sapp<strong>in</strong>gton Road, St. Louis, MO<br />

63126.<br />

Use of multisensory environments <strong>in</strong> schools for students with severe disabilities: Perceptions from schools.<br />

Jennifer Stephenson, <strong>and</strong> Mark Carter, Macquarie University Special <strong>Education</strong> Centre, Macquarie University<br />

Drive, NSW 2109, AUSTRALIA.<br />

Address is supplied for author <strong>in</strong> boldface type.


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 3–10<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

Gan<strong>and</strong>o Confianza: Research Focus Groups with Immigrant<br />

Mexican Mothers<br />

Carol<strong>in</strong>a Hausmann-Stabile<br />

<strong>and</strong> Luis H. Zayas<br />

Wash<strong>in</strong>gton University <strong>in</strong> St. Louis<br />

Esther Calzada<br />

New York University<br />

S<strong>and</strong>ra Runes<br />

<strong>and</strong> Anna Abenis-C<strong>in</strong>tron<br />

L<strong>in</strong>coln Medical <strong>and</strong> Mental Health Center<br />

Abstract: Immigrant families with children with developmental disabilities must be served us<strong>in</strong>g culturally<br />

sensitive approaches to service <strong>and</strong> research to maximize treatment benefits. In an effort to better underst<strong>and</strong><br />

cultural issues relevant to the provision of parent<strong>in</strong>g programs for immigrant Mexican mothers of children with<br />

developmental disabilities, we conducted susta<strong>in</strong>ed focus groups through which we could learn more about our<br />

participants <strong>and</strong> thereby improve services. This paper reports on the challenges <strong>and</strong> lessons learned from these<br />

groups. We characterize the key lessons as (a) recruitment <strong>and</strong> retention is more than agreement to participate;<br />

(b) confidentiality is not just a word but an activity; (c) the complicated nature of language; (d) cultural norms<br />

shape the group process; (e) appreciat<strong>in</strong>g the value of tak<strong>in</strong>g time; <strong>and</strong> (f) gender issues <strong>and</strong> group <strong>in</strong>teraction.<br />

Service providers <strong>and</strong> researchers who work with Mexican families may benefit from our experiences as they<br />

promote <strong>and</strong> develop programs <strong>and</strong> projects <strong>in</strong> the developmental disabilities field.<br />

In this paper, we describe the experiences of a<br />

team of researchers conduct<strong>in</strong>g a project to<br />

better underst<strong>and</strong> the cultural parent<strong>in</strong>g constructs<br />

of immigrant Mexican mothers with<br />

preschool children <strong>in</strong> an <strong>in</strong>ner-city developmental<br />

service center. The project orig<strong>in</strong>ated<br />

from our concern with provid<strong>in</strong>g the best possible<br />

services for this grow<strong>in</strong>g group <strong>in</strong> our<br />

community-based cl<strong>in</strong>ic. We recognized that<br />

to simply give services without any consideration<br />

for the unique characteristics of this<br />

group of mothers <strong>and</strong> without adaptations to<br />

exist<strong>in</strong>g services would fail to improve service<br />

utilization rates <strong>and</strong> treatment outcomes<br />

sought. What we looked for <strong>in</strong> the literature,<br />

Support for this article was provided by the Center<br />

for Lat<strong>in</strong>o Family Research, George Warren<br />

Brown School of Social Work, <strong>and</strong> by a <strong>Tra<strong>in</strong><strong>in</strong>g</strong><br />

Grant from the National Institute of Mental Health<br />

of the U.S. Public Health Service (NIMH-T32<br />

MH19960). Correspondence concern<strong>in</strong>g this article<br />

should be addressed to Carol<strong>in</strong>a Hausmann-<br />

Stabile, George Warren Brown School of Social<br />

Work, Wash<strong>in</strong>gton University <strong>in</strong> St. Louis, One<br />

Brook<strong>in</strong>gs Drive, St. Louis, MO 63130. E-mail:<br />

chausmann@gwbmail.wustl.edu<br />

<strong>and</strong> did not f<strong>in</strong>d, were recommendations that<br />

researchers <strong>and</strong> service providers could use <strong>in</strong><br />

recruit<strong>in</strong>g, engag<strong>in</strong>g, <strong>and</strong> collect<strong>in</strong>g data from<br />

immigrants who reside <strong>in</strong> the shadows of our<br />

communities <strong>and</strong> whose children are developmentally<br />

disabled. The professional literature<br />

address<strong>in</strong>g practical <strong>and</strong> methodological obstacles<br />

that underlie research with ethnic <strong>and</strong><br />

cultural m<strong>in</strong>orities was helpful. This body of<br />

writ<strong>in</strong>g provides valuable <strong>in</strong>formation on culture,<br />

language, legal status, gender, <strong>and</strong> literacy<br />

(Cauce, Coronado, & Watson, 1998; Hartley,<br />

Murira, Mwangoma, Carter & Newton,<br />

2009; Huer & Saenz, 2003), but for the relatively<br />

narrow area of Hispanics with children<br />

with disabilities, we found very little to guide<br />

us.<br />

The primary cl<strong>in</strong>ical issue that propelled<br />

our project was that the immigrant Mexican<br />

families we serve seemed to need help <strong>in</strong> deal<strong>in</strong>g<br />

with manag<strong>in</strong>g their young children’s behavior,<br />

but to assist them we needed to better<br />

underst<strong>and</strong> their parent<strong>in</strong>g practices. We<br />

wanted to learn about how children’s developmental<br />

disabilities are understood, <strong>and</strong><br />

dealt with <strong>in</strong> immigrant Mexican families.<br />

Gan<strong>and</strong>o Confianza: Research Focus Groups / 3


Thus, the purpose of this exploratory research<br />

project was to study parent<strong>in</strong>g constructs<br />

among Hispanic mothers of young children<br />

with developmental problems, from a conceptual<br />

framework of parent<strong>in</strong>g as guided by cultural<br />

childrear<strong>in</strong>g values (Harkness & Super,<br />

1996; Keller, et al., 2006; Lamm & Keller,<br />

2007) <strong>and</strong> Hispanic mothers’ value-driven behavior<br />

<strong>in</strong> different cultural contexts (Domenech<br />

Rodriguez, Davis, Rodriguez, & Bates,<br />

2006). We sought to underst<strong>and</strong> parent<strong>in</strong>g<br />

practices that might predict child behavioral<br />

<strong>and</strong> pre-academic function<strong>in</strong>g <strong>in</strong> young developmentally<br />

disabled Hispanic children. Identify<strong>in</strong>g<br />

<strong>and</strong> underst<strong>and</strong><strong>in</strong>g these values is a<br />

critical issue <strong>in</strong> the design of preventive <strong>in</strong>terventions<br />

aimed at enhanc<strong>in</strong>g the function<strong>in</strong>g<br />

of Hispanic children by promot<strong>in</strong>g healthy<br />

parent<strong>in</strong>g practices (Domenech Rodriguez, et<br />

al.; Forgatch & DeGarmo, 1999).<br />

S<strong>in</strong>ce we had very little empirical knowledge<br />

to go on <strong>and</strong> s<strong>in</strong>ce we anticipated that<br />

the parents’ views would reflect a complex<br />

array of issues related to child-rear<strong>in</strong>g beliefs<br />

<strong>and</strong> practices, religion, <strong>and</strong> preferences <strong>in</strong> <strong>in</strong>terpersonal<br />

relations, we determ<strong>in</strong>ed that an<br />

emic, or bottom up, approach would be best. A<br />

qualitative approach was the best option <strong>and</strong><br />

would give us an <strong>in</strong>sider’s view (Morse, 2003),<br />

though focus group methodologies can be<br />

complicated by the cultural norms of the participants<br />

(De la Rosa, Rahill, Rojas, & P<strong>in</strong>to,<br />

2007; Stiffman, Freedenthal, Brown, Ostmann,<br />

& Hibberler, 2005). Thus, not only<br />

were we search<strong>in</strong>g for knowledge about the<br />

children <strong>and</strong> families’ culture for service delivery,<br />

but we had to learn about the cultural<br />

nuances that would <strong>in</strong>fluence the quality of<br />

our focus groups. Throughout this process, we<br />

aimed to identify <strong>and</strong> underst<strong>and</strong> which cultural<br />

values are relevant to this population,<br />

<strong>and</strong> how those values may <strong>in</strong>crease the engagement<br />

<strong>and</strong> retention of research participants<br />

<strong>and</strong> impact the validity of f<strong>in</strong>d<strong>in</strong>gs.<br />

We made another important methodological<br />

decision: to hold multiple weekly focus<br />

group sessions with the same consented participants.<br />

Although a departure from the traditional<br />

focus group designs (Krueger & Casey,<br />

2000), we considered that a susta<strong>in</strong>ed<br />

engagement of participants (Padgett, 2008)<br />

would help get past the hurdles of cultural<br />

distances between researchers <strong>and</strong> the moth-<br />

ers <strong>in</strong> our cl<strong>in</strong>ic. None of the research team<br />

members are immigrant Mexican persons, although<br />

most of us are Hispanics, <strong>and</strong> we recognized<br />

the large gaps that existed between us<br />

<strong>and</strong> our group of mothers <strong>in</strong> areas of education,<br />

literacy, cultural heritage, <strong>and</strong> legal status.<br />

By engag<strong>in</strong>g participants over a susta<strong>in</strong>ed<br />

period of time, we expected the data to become<br />

richer as participants grew more comfortable<br />

with the research protocols <strong>and</strong> the<br />

personnel lead<strong>in</strong>g the groups. In other words,<br />

prolonged engagement helps “ameliorate reactivity<br />

<strong>and</strong> respondent bias, by dissipat<strong>in</strong>g the<br />

researcher’s presence effect” (Padgett, p.<br />

186). Moreover, several one-time focus groups<br />

with different participants provide good crosssectional<br />

data <strong>in</strong> other contexts, especially<br />

when the topics elicited are not emotionally<br />

laden <strong>and</strong> where participant trust will not be a<br />

barrier to data collection <strong>and</strong> quality. F<strong>in</strong>ally,<br />

because of the relatively small number of immigrant<br />

Mexican families with children with<br />

developmental disabilities <strong>and</strong> the unique nature<br />

of this family experience, hold<strong>in</strong>g many<br />

focus groups with the same participants was<br />

much more compell<strong>in</strong>g to our project.<br />

Focus<strong>in</strong>g on a group of mostly undocumented<br />

immigrant mothers from Mexico<br />

whose children were be<strong>in</strong>g served <strong>in</strong> a developmental<br />

disabilities cl<strong>in</strong>ic <strong>in</strong> an impoverished<br />

section of New York City was a natural<br />

response to the chang<strong>in</strong>g Hispanic demographics<br />

of the city. We refer to our clients as<br />

Mexican while us<strong>in</strong>g the term Hispanic rather<br />

than Lat<strong>in</strong>o to refer to the large cultural <strong>and</strong><br />

population bloc of Lat<strong>in</strong> Americans for whom<br />

Spanish is the common language. This immigrant<br />

group is representative of the massive<br />

changes <strong>in</strong> neighborhood’s previously reflect<strong>in</strong>g<br />

a different ethnic composition. For example,<br />

New York City’s Mexican population tripled<br />

<strong>in</strong> size between 1990 <strong>and</strong> 2000, result<strong>in</strong>g<br />

<strong>in</strong> ethnic shifts <strong>in</strong> traditionally Dom<strong>in</strong>ican <strong>and</strong><br />

Puerto Rican areas. Immigration <strong>and</strong> high fertility<br />

rates account, <strong>in</strong> part, for this transition<br />

(Lobo, Flores, & Salvo, 2002). Further, the<br />

families came to our cl<strong>in</strong>ic through New York<br />

State’s guarantee of health care to all children<br />

under the age of 19 through the Child Health<br />

Plus program. Children with developmental<br />

problems are thus assured access to early <strong>in</strong>tervention<br />

treatments regardless of their legal<br />

status or ability to pay. To put this demo-<br />

4 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


graphic profile <strong>in</strong>to context, we have to note<br />

that Hispanic families <strong>in</strong> the U.S. are grow<strong>in</strong>g<br />

<strong>in</strong> numbers. As a population group, Hispanics<br />

are the largest <strong>and</strong> fastest grow<strong>in</strong>g ethnic m<strong>in</strong>ority<br />

group <strong>in</strong> the United States <strong>and</strong> those of<br />

Mexican descent or orig<strong>in</strong> are the s<strong>in</strong>gle largest<br />

group (Passel & Cohn, 2008; U.S. Census<br />

Bureau, 2007). Seventy-three percent of all<br />

children liv<strong>in</strong>g with their unauthorized immigrant<br />

parents are U.S. citizens by birth <strong>and</strong> the<br />

number of children <strong>in</strong> mixed-status homes<br />

(i.e., unauthorized immigrant parents <strong>and</strong> citizen<br />

children) nearly doubled to 4 million<br />

between 2003 to 2008 (Fix & Zimmerman,<br />

2001; Passel & Cohn, 2009). Spanish is the<br />

primary language or a language of legacy, <strong>and</strong><br />

cultural traditions unite Hispanics as a panethnic<br />

group <strong>in</strong> the United States. It is important<br />

to note, however, that specific ethnic<br />

groups hold on to their different cultural traditions,<br />

rooted <strong>in</strong> nationalities of orig<strong>in</strong> or<br />

heritage, their migration patterns, the way <strong>in</strong><br />

which these groups perceive their reception <strong>in</strong><br />

the United States, the communities <strong>in</strong> which<br />

they settle, <strong>and</strong> their exposure to American<br />

ma<strong>in</strong>stream culture <strong>in</strong> their countries of orig<strong>in</strong><br />

(Guarnaccia et al., 2007).<br />

In organiz<strong>in</strong>g our group, we decided on a<br />

cultural homogenity, s<strong>in</strong>ce we knew of the<br />

significant ethnic <strong>and</strong> cultural diversity among<br />

Hispanics <strong>in</strong> general <strong>and</strong> Mexicans <strong>in</strong> particular.<br />

By select<strong>in</strong>g immigrant Mexican mothers,<br />

there would be a greater likelihood of<br />

congruity <strong>in</strong> nationality, language, gender,<br />

culture <strong>and</strong> experience. In turn, we hoped<br />

these cultural similarities would help to prevent<br />

the group dynamics that we had observed<br />

<strong>in</strong> the wait<strong>in</strong>g rooms of our cl<strong>in</strong>ics <strong>and</strong> the<br />

larger community <strong>in</strong> which Mexican women,<br />

who were newly arrived <strong>and</strong> of unknown legal<br />

status, tended to be more demure <strong>and</strong> private<br />

when <strong>in</strong>teract<strong>in</strong>g with people outside their<br />

social networks as compared to other Hispanic<br />

women <strong>in</strong> our community who <strong>in</strong>teract<br />

<strong>and</strong> assert themselves with fewer restra<strong>in</strong>ts.<br />

In this paper, we describe the focus group<br />

project <strong>and</strong> the lessons we learned from the<br />

many challenges we encountered. Our goal is<br />

to help guide the future use of focus groups<br />

when the participants are Mexican immigrants.<br />

We categorize the challenges <strong>and</strong> describe<br />

how we dealt with them. Ultimately, we<br />

hope to encourage the <strong>in</strong>corporation of cul-<br />

tural factors <strong>in</strong> conduct<strong>in</strong>g <strong>and</strong> adapt<strong>in</strong>g focus<br />

groups to enhance service <strong>and</strong> research endeavors.<br />

We use the Spanish term gan<strong>and</strong>o<br />

confianza (earn<strong>in</strong>g trust) <strong>in</strong> the title as it is<br />

emblematic of what we learned about engag<strong>in</strong>g<br />

this group <strong>in</strong> research.<br />

Method<br />

Our study was conducted <strong>in</strong> a developmental<br />

cl<strong>in</strong>ic located <strong>in</strong> the Bronx, New York, between<br />

October 2008 <strong>and</strong> July 2009. After provid<strong>in</strong>g<br />

<strong>in</strong>formed consent, twenty mothers participated<br />

<strong>in</strong> a series of ten one-hour focus<br />

groups (group size ranged from 3 to 9 participants).<br />

Focus groups met weekly, <strong>and</strong> were<br />

centered around discuss<strong>in</strong>g cultural childrear<strong>in</strong>g<br />

values <strong>and</strong> their relevance <strong>and</strong> application<br />

<strong>in</strong> daily parent-child <strong>in</strong>teractions. The focus<br />

groups followed a semi-structured protocol<br />

<strong>and</strong> were conducted <strong>in</strong> Spanish by a tra<strong>in</strong>ed<br />

researcher. Each session was audio recorded<br />

to allow for verbatim transcription.<br />

A purposive, convenient sample of parents<br />

was selected from the developmental cl<strong>in</strong>ic’s<br />

roster. The sampl<strong>in</strong>g was purposive s<strong>in</strong>ce we<br />

wanted parents who were new to the cl<strong>in</strong>ic’s<br />

services <strong>and</strong> who had not received parent<strong>in</strong>g<br />

tra<strong>in</strong><strong>in</strong>g prior to their participation <strong>in</strong> the<br />

project. Only parents whose developmentally<br />

disabled children were engaged <strong>in</strong> weekly<br />

group activities were selected; parents without<br />

such children were excluded.<br />

Lessons <strong>in</strong> Implement<strong>in</strong>g the Focus Groups<br />

As described above, cultural considerations<br />

played an <strong>in</strong>tegral part <strong>in</strong> the design of our<br />

project. The use of an emic approach that<br />

relied on focus group methodology was key to<br />

allow<strong>in</strong>g participants to educate us about their<br />

culture <strong>and</strong> helped us to reduce cultural barriers<br />

<strong>in</strong> work<strong>in</strong>g with this population of Mexican<br />

immigrant mothers. Other methodological<br />

decisions (e.g., the use of a susta<strong>in</strong>ed<br />

group, the cultural homogeneity of the group<br />

participants) were similarly driven by our efforts<br />

to consider culture as a central construct<br />

<strong>in</strong> our work with Mexican participants. We<br />

believe that these efforts paid off. In other<br />

words, our first lesson was that culture must be<br />

considered <strong>in</strong> research design from the <strong>in</strong>ception<br />

of a project. The rema<strong>in</strong><strong>in</strong>g lessons, de-<br />

Gan<strong>and</strong>o Confianza: Research Focus Groups / 5


scribed below, arose out of the process of conduct<strong>in</strong>g<br />

focus groups.<br />

Recruitment <strong>and</strong> retention is more than agreement<br />

to participate. We were well aware of the<br />

challenge <strong>in</strong> engag<strong>in</strong>g <strong>in</strong>dividuals who are liv<strong>in</strong>g<br />

<strong>in</strong> the U.S. as the result of cl<strong>and</strong>est<strong>in</strong>e<br />

immigration processes (Cavazos-Rehg, Zayas,<br />

& Spitznagel, 2007). Any hesitation to participate<br />

<strong>in</strong> focus groups needed to be assessed<br />

with<strong>in</strong> the context of the women’s experiences,<br />

such as fear of deportation comb<strong>in</strong>ed<br />

with their isolation from social <strong>in</strong>stitutions.<br />

Be<strong>in</strong>g on the fr<strong>in</strong>ge of society provides some<br />

level of safety. Mistrust together with lack of<br />

<strong>in</strong>formation is a core component <strong>in</strong> the lives<br />

of undocumented people (Cavazos-Rehg et<br />

al.).<br />

Although we did not <strong>in</strong>quire about the immigration<br />

status of participants, we were cognizant<br />

of the uncerta<strong>in</strong>ties <strong>and</strong> fears faced by<br />

undocumented immigrants <strong>and</strong> addressed<br />

these fears openly with participants dur<strong>in</strong>g the<br />

consent<strong>in</strong>g process. When we described the<br />

project to the prospective participants, we<br />

stated that the <strong>in</strong>formation collected would<br />

never be shared with “immigration.” We also<br />

developed strategies to ensure that the participants<br />

would not feel frightened when first<br />

approached by the research team. For this, we<br />

established partnerships with key staff at the<br />

cl<strong>in</strong>ic, all of whom were well known to our<br />

participants. Before we met with prospective<br />

participants, our collaborators spoke to them<br />

about the team <strong>and</strong> our project. We encouraged<br />

the mothers to speak with the cl<strong>in</strong>ic staff<br />

to clarify any issues they had, but especially to<br />

assure them of the legitimacy of our project.<br />

We learned later that many women did <strong>in</strong>deed<br />

contact staff seek<strong>in</strong>g reassurance about the<br />

safety of their <strong>in</strong>volvement. Cumulatively,<br />

these efforts helped us to ga<strong>in</strong> participants’<br />

trust <strong>and</strong> to ensure high levels of participation.<br />

Confidentiality is not just a word but an activity.<br />

In work<strong>in</strong>g with a population that is vulnerable<br />

due to immigration status, educational<br />

background <strong>and</strong> health status, verbal assurances<br />

that confidentiality protects participants<br />

are not enough. We must actively educate research<br />

participants about confidentiality. Our<br />

approach was to reiterate that participants<br />

were both data providers <strong>and</strong> guardians of the<br />

<strong>in</strong>formation shared dur<strong>in</strong>g each research en-<br />

counter. This education of participants took<br />

the form of an ongo<strong>in</strong>g process that went<br />

beyond the consent<strong>in</strong>g stage <strong>and</strong> cont<strong>in</strong>ued<br />

well <strong>in</strong>to each focus group series. For example,<br />

dur<strong>in</strong>g the <strong>in</strong>dividualized consent<strong>in</strong>g process,<br />

<strong>and</strong> <strong>in</strong> later focus group sessions, we<br />

described confidentiality breaks us<strong>in</strong>g cultural<br />

expressions such as chisme, boch<strong>in</strong>che (gossip),<br />

<strong>and</strong> cotorreo (idle talk). When subjects described<br />

talk<strong>in</strong>g about the focus group experience<br />

with non-participants, we dist<strong>in</strong>guished<br />

what could be shared outside the focus groups<br />

session (schedule, research nature, <strong>and</strong><br />

goals), <strong>and</strong> what should rema<strong>in</strong> confidential<br />

(the content of our conversations <strong>and</strong> the<br />

participant names).<br />

The complicated nature of language. In collect<strong>in</strong>g<br />

basic demographics, we asked participants<br />

for their language of preference. All of<br />

them reported that Spanish was their first language,<br />

<strong>and</strong> stated be<strong>in</strong>g proficient <strong>in</strong> it. None<br />

reported speak<strong>in</strong>g English. However, it was<br />

only after we had conducted several sessions<br />

that some of the participants disclosed that<br />

their first languages were <strong>in</strong>digenous dialects<br />

(specifically, Mixteca <strong>and</strong> Náhuatl). First they<br />

shared this <strong>in</strong>formation <strong>in</strong> private with the<br />

moderator, <strong>and</strong> then spoke about it <strong>in</strong> the<br />

group sett<strong>in</strong>g. Some later stated that their ability<br />

to communicate <strong>in</strong> Spanish was limited,<br />

<strong>and</strong> expla<strong>in</strong>ed that their lack of participation<br />

<strong>in</strong> the group discussions was sometimes related<br />

to their poor Spanish proficiency. Interest<strong>in</strong>gly,<br />

two participants did not <strong>in</strong>form their<br />

own service providers about this language barrier,<br />

due perhaps to the stigmazation of <strong>in</strong>digenous<br />

cultures <strong>in</strong> Mexico. We learned that<br />

mothers’ <strong>in</strong>itial self-reports may reflect a social<br />

desirability bias that may be less likely<br />

after a more personal relationship has been<br />

established between mother <strong>and</strong> research<br />

staff.<br />

More generally, researchers, even those<br />

who share a broad culture with participants,<br />

can f<strong>in</strong>d themselves puzzled when conduct<strong>in</strong>g<br />

focus groups with participants of an unfamiliar<br />

sub-culture. Even with<strong>in</strong> the Mexican population,<br />

there is great diversity based on participants’<br />

place of orig<strong>in</strong> (e.g., urban vs rural)<br />

<strong>and</strong> as mentioned above, language (i.e., Spanish<br />

vs <strong>in</strong>digenous). It is <strong>in</strong>cumbent upon researchers<br />

<strong>and</strong> service providers to create cultural<br />

bridges to effectively communicate with<br />

6 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


participants. In our focus groups, the moderator’s<br />

national orig<strong>in</strong> became clear when<br />

speak<strong>in</strong>g Spanish because of cultural expressions<br />

<strong>and</strong> accents, which elicited curiosity<br />

among the participants. We found it useful to<br />

answer questions c<strong>and</strong>idly regard<strong>in</strong>g nation of<br />

orig<strong>in</strong>, year of immigration, <strong>and</strong> acculturation.<br />

We believe that the moderator’s disclosures<br />

fomented personalismo among the group,<br />

contribut<strong>in</strong>g to the build<strong>in</strong>g of confianza. Contrary<br />

to more conventional notions of boundaries<br />

<strong>in</strong> research <strong>and</strong> service sett<strong>in</strong>gs, we<br />

found that our Mexican participants expected<br />

a certa<strong>in</strong> level of openness from the researchers,<br />

especially because they were expected to<br />

disclose their own personal <strong>and</strong> private <strong>in</strong>formation.<br />

Part of the learn<strong>in</strong>g experience with our<br />

population was to become familiar with the<br />

terms <strong>and</strong> cultural schemes our participants<br />

used to conceptualize constructs of <strong>in</strong>terest.<br />

This was an issue that would affect the face<br />

validity of our questions, <strong>and</strong> could ultimately<br />

compromise our data <strong>in</strong>tegrity. In order to<br />

ensure the comprehensiveness of our questions,<br />

the moderator used as many localisms<br />

<strong>and</strong> cultural expressions as possible. We asked<br />

participants <strong>and</strong> cl<strong>in</strong>ical staff work<strong>in</strong>g with this<br />

population to provide us with an appropriate<br />

vocabulary to use <strong>in</strong> ask<strong>in</strong>g questions. For <strong>in</strong>stance,<br />

we used the words caprichos, berr<strong>in</strong>ches<br />

<strong>and</strong> pataletas for temper tantrums. When we<br />

found that certa<strong>in</strong> words did not elicit answers,<br />

we role-played the behavior we were<br />

<strong>in</strong>quir<strong>in</strong>g about <strong>and</strong> asked the participants to<br />

describe how they would name it. Ultimately,<br />

our experience <strong>in</strong> runn<strong>in</strong>g the focus groups<br />

underscored the notion of language as a complex<br />

tool of communication <strong>and</strong> challenged<br />

our assumption that speak<strong>in</strong>g Spanish, <strong>in</strong> <strong>and</strong><br />

of itself, was sufficient <strong>in</strong> elim<strong>in</strong>at<strong>in</strong>g all communication<br />

barriers with this population of<br />

Mexican immigrants.<br />

Cultural norms shape the group process. The<br />

focus group sett<strong>in</strong>g allowed us to take advantage<br />

of the norms of sociability common <strong>in</strong><br />

the cultures of Hispanics, namely the cultural<br />

values of personalismo <strong>and</strong> confianza. Both personalismo<br />

(personalism) <strong>and</strong> confianza (trust,<br />

confidence <strong>in</strong>) are relevant to the <strong>in</strong>terpersonal<br />

commerce between <strong>in</strong>dividuals <strong>and</strong> are<br />

essential <strong>in</strong> reduc<strong>in</strong>g hierarchical or power<br />

dynamics. After all, the advantage of focus<br />

groups is their sensitivity to patterns of <strong>in</strong>terpersonal<br />

<strong>and</strong> group dynamics (Kamberelis &<br />

Dimitriadis, 2005). Personalismo implies the<br />

creation <strong>and</strong> ma<strong>in</strong>tenance of warm, friendly<br />

<strong>and</strong> respectful <strong>in</strong>teractions (Bachrach &<br />

Mawr, 1958). Confianza grows as a result of a<br />

reciprocity born of the repetition of positive<br />

personal <strong>in</strong>teractions <strong>in</strong> which genu<strong>in</strong>e respeto<br />

(respect) is conveyed. Through confianza, <strong>in</strong>dividuals<br />

feel a mutuality with<strong>in</strong> which they<br />

extend favorable treatment to one other. Confianza<br />

provides <strong>in</strong>teractions with a “special<br />

quality of openness” (Lewis-Fern<strong>and</strong>ez &<br />

Kle<strong>in</strong>man, 1994, p. 69), thus exceed<strong>in</strong>g <strong>and</strong>,<br />

at the same time, encompass<strong>in</strong>g familiarity,<br />

confidence, <strong>and</strong> trust. Respeto promotes deference<br />

towards others <strong>and</strong> aligns with the Hispanic<br />

cultural emphasis on l<strong>in</strong>eality <strong>and</strong><br />

power differentials (Bracero, 1998). For example,<br />

the moderator always used the formal<br />

usted rather than the <strong>in</strong>formal tu that if used<br />

too early <strong>in</strong> an encounter can be seen as <strong>in</strong>dicative<br />

of disrespect.<br />

Given that confianza develops over time, <strong>and</strong><br />

<strong>in</strong> spite of our determ<strong>in</strong>ed efforts to be guided<br />

by these cultural scripts to help participants<br />

feel comfortable <strong>in</strong> the first focus group sessions,<br />

participants rema<strong>in</strong>ed mostly silent dur<strong>in</strong>g<br />

the <strong>in</strong>itial phase of the project. We addressed<br />

this challenge through our persistent<br />

efforts to embody personalismo <strong>and</strong> earn confianza<br />

by build<strong>in</strong>g a positive relationship between<br />

the participants <strong>and</strong> moderators. We<br />

began to call participants <strong>in</strong> advance of meet<strong>in</strong>gs<br />

to rem<strong>in</strong>d them of the com<strong>in</strong>g focus<br />

group sessions, socializ<strong>in</strong>g lightly on the telephone<br />

call. We engaged <strong>in</strong> social conventions<br />

<strong>and</strong> mild banter as the mothers arrived at the<br />

cl<strong>in</strong>ic, <strong>and</strong> sent personalized Spanish greet<strong>in</strong>g<br />

cards on holidays <strong>and</strong> other special occasions.<br />

When tak<strong>in</strong>g to the mothers <strong>in</strong> the wait<strong>in</strong>g<br />

room, we spoke about topics that could highlight<br />

common <strong>in</strong>terests, like Spanish recipies,<br />

music, <strong>and</strong> crafts. This paid off <strong>in</strong> the form of<br />

enhanc<strong>in</strong>g the mothers’ own <strong>in</strong>vestment <strong>in</strong><br />

the groups.<br />

As time went on, we also asked for recommendations<br />

for how we could build confianza<br />

with participants. The mothers requested that<br />

the moderator be “patient to expla<strong>in</strong>” (tener<br />

paciencia para explicar) <strong>and</strong> “show a will<strong>in</strong>gness<br />

to learn” (parecer <strong>in</strong>teresada). They were concerned<br />

with how to parecer buena (look good,<br />

Gan<strong>and</strong>o Confianza: Research Focus Groups / 7


compliant) to the moderator. At the end of<br />

one focus group series, several participants<br />

stated that lett<strong>in</strong>g the moderator know that<br />

they could not underst<strong>and</strong> her questions<br />

would have made the moderator look “dumb”<br />

(tonta) which would have implied disrespect.<br />

By rema<strong>in</strong><strong>in</strong>g silent, they protected the moderator<br />

from feel<strong>in</strong>g as if she could not communicate<br />

with them. Throughout, this process<br />

of acclimat<strong>in</strong>g to one another was imbued<br />

with the importance of dignidad (dignity) <strong>and</strong><br />

respeto, both which reduce the potential loss of<br />

face <strong>and</strong> allowed mothers to ma<strong>in</strong>ta<strong>in</strong> a dignified<br />

posture <strong>in</strong> the face of this uncerta<strong>in</strong> experience<br />

that they had embarked on with us.<br />

Appreciat<strong>in</strong>g the value of tak<strong>in</strong>g time. As<br />

noted above, time was an important factor <strong>in</strong><br />

help<strong>in</strong>g to build the positive rapport that had<br />

eluded the researcher-subject relationship<br />

dur<strong>in</strong>g the first weeks of focus group sessions.<br />

This was only possible because our research<br />

design allowed for plenty of time to generate<br />

a positive environment favor<strong>in</strong>g personalismo<br />

<strong>and</strong> the build<strong>in</strong>g of confianza between researchers<br />

<strong>and</strong> participants. In addition, we<br />

found it necessary to follow the participants’<br />

pace with<strong>in</strong> each group. Oftentimes, they<br />

were slow to respond to our questions, which<br />

seemed to reflect several factors <strong>in</strong>clud<strong>in</strong>g a<br />

lack of underst<strong>and</strong><strong>in</strong>g of some questions, a<br />

desire to be thoughtful <strong>in</strong> their response, <strong>and</strong><br />

a response style that was <strong>in</strong>direct. To address a<br />

potential lack of underst<strong>and</strong><strong>in</strong>g, questions<br />

had to be reworded multiple times, until we<br />

were able to f<strong>in</strong>d a path that encouraged responses.<br />

This process was frustrat<strong>in</strong>g at times<br />

because participants became silent <strong>and</strong> their<br />

attention drifted occasionally.<br />

In addition, questions that were too open<br />

ended failed to elicit answers. Instead, present<strong>in</strong>g<br />

“scenarios” as a way to illustrate our<br />

queries elicited more discussion. Likewise, we<br />

learned that our participants preferred to respond<br />

to questions through stories. As part of<br />

a culturally based deferential approach to<br />

communication that tries to avoid any <strong>in</strong>dication<br />

of confrontation, disrespect, or disagreement,<br />

consistent with the emphasis on personalismo<br />

<strong>and</strong> respeto, many of our participants<br />

spoke <strong>in</strong> a circular, non-direct manner. This<br />

meant that deliver<strong>in</strong>g their message depended<br />

on descriptions of multiple subtopics<br />

that were <strong>in</strong>tegrated <strong>in</strong> a mean<strong>in</strong>gful manner<br />

at the end of the story. As participants used<br />

personal stories to illustrate their po<strong>in</strong>ts, we<br />

found it necessary to adjust our timel<strong>in</strong>e <strong>and</strong><br />

reduce the number of questions posed <strong>in</strong> each<br />

session.<br />

Gender def<strong>in</strong>itions affect group <strong>in</strong>teraction.<br />

When conduct<strong>in</strong>g focus groups with Mexican<br />

women, we took <strong>in</strong>to consideration the construct<br />

of marianismo. The term marianismo refers<br />

to gender roles expectations <strong>in</strong> the Hispanic<br />

culture that women’s roles are deeply<br />

<strong>in</strong>fluenced by the qualities ascribed to the<br />

Virg<strong>in</strong> Mary (Virgen María). These qualities<br />

<strong>in</strong>clude self-sacrifice, chastity <strong>and</strong> virtue, modesty,<br />

<strong>and</strong> obedience (Ramos-McKay, Comas-<br />

Diaz, & Rivera, 1988). This translates <strong>in</strong>to traditional<br />

socialization practices, <strong>in</strong> which<br />

women are expected to be passive, demure,<br />

<strong>and</strong> hyper-responsible for family obligations,<br />

unity <strong>and</strong> harmony (Gil & Vasquez, 1997).<br />

One quality of marianismo that we may have<br />

observed <strong>in</strong> our groups was the traditional<br />

Mexican norm, controlarse (self-control).<br />

Women are expected to ensure harmony <strong>in</strong><br />

the context of <strong>in</strong>terpersonal <strong>in</strong>teractions by<br />

dissociat<strong>in</strong>g from any negative emotions<br />

(Bracero, 1998), <strong>and</strong> express<strong>in</strong>g disagreement<br />

<strong>in</strong> subtle ways. When participants <strong>in</strong> our<br />

groups opposed someth<strong>in</strong>g presented by the<br />

moderator, they either did not express their<br />

disagreement, or expressed it through the use<br />

of non-verbal cues. Only because our design<br />

allowed us the time needed to learn some of<br />

the participants’ idiosyncrasies, were we able<br />

to recognize <strong>and</strong> address them. For <strong>in</strong>stance,<br />

after several groups, when personal relationships<br />

had been formed, the moderator felt<br />

free to make direct observations such as, “You<br />

are mak<strong>in</strong>g a funny face; please tell me what<br />

you are th<strong>in</strong>k<strong>in</strong>g!” These <strong>in</strong>teractions generated<br />

a personal, relax<strong>in</strong>g environment for the<br />

participants <strong>and</strong> thereby improved the quality<br />

of our data.<br />

Conclusion<br />

In sett<strong>in</strong>g out to conduct focus groups with<br />

immigrant Mexican mothers of young children<br />

with developmental problems to learn<br />

more about their parent<strong>in</strong>g <strong>and</strong> cultural values,<br />

we learned several valuable lessons related<br />

to the design <strong>and</strong> process of the focus<br />

groups themselves. On several levels, we<br />

8 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


found it necessary to make culturally <strong>in</strong>formed<br />

adaptations given barriers related to<br />

language, legal status <strong>and</strong> cultural beliefs,<br />

norms <strong>and</strong> scripts. Specifically, we paid close<br />

attention to the Hispanic cultural constructs<br />

relevant to <strong>in</strong>terpersonal <strong>and</strong> socialization<br />

practices, such as personalismo, confianza, <strong>and</strong><br />

respeto, as well as gender roles, such as marianismo.<br />

We were able to develop a research<br />

protocol that provided ample opportunities<br />

to <strong>in</strong>teract with the participants generat<strong>in</strong>g<br />

confianza with <strong>and</strong> among participants. The<br />

team found that be<strong>in</strong>g cognizant of the uncerta<strong>in</strong>ties<br />

<strong>and</strong> fears faced by undocumented<br />

immigrants <strong>and</strong> stress<strong>in</strong>g the confidential<br />

<strong>and</strong> voluntary nature of their<br />

participation eased their <strong>in</strong>volvement <strong>in</strong>to<br />

the project. Actively approach<strong>in</strong>g the participants<br />

<strong>in</strong> Spanish, be<strong>in</strong>g open to new ways of<br />

communicat<strong>in</strong>g <strong>in</strong> Spanish that were most<br />

congruent with the Mexican culture, helped<br />

to create an environment <strong>in</strong> which participants<br />

recognized our <strong>in</strong>terest <strong>in</strong> learn<strong>in</strong>g<br />

from them. F<strong>in</strong>ally, by coupl<strong>in</strong>g effective research<br />

methods with cultural-centered strategies,<br />

we sought to ma<strong>in</strong>ta<strong>in</strong> fidelity to the<br />

focus group’s core components while enhanc<strong>in</strong>g<br />

the validity of our f<strong>in</strong>d<strong>in</strong>gs. Given<br />

the lack of empirical data to support our<br />

cl<strong>in</strong>ical impressions, we are unsure about<br />

the generalizability of our f<strong>in</strong>d<strong>in</strong>gs to other<br />

Mexicans. Still, we encourage the field to<br />

acknowledge culture as a central construct<br />

<strong>in</strong> all phases of research <strong>and</strong> services endeavors<br />

<strong>and</strong> advocate for the use of an emic<br />

approach to maximize opportunities to<br />

learn directly from the Mexican families we<br />

serve.<br />

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2009.<br />

Received: 23 July 2009<br />

Initial Acceptance: 20 September 2009<br />

F<strong>in</strong>al Acceptance: 18 November 2009<br />

10 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 11–21<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

I Can Identify Saturn but I Can’t Brush My Teeth: What<br />

Happens When the Curricular Focus for Students with Severe<br />

<strong>Disabilities</strong> Shifts<br />

Kev<strong>in</strong> M. Ayres<br />

The University of Georgia<br />

Karen H. Douglas<br />

The University of Georgia<br />

K. Alisa Lowrey<br />

Louisiana State University Health Science<br />

Center<br />

Courtney Sievers<br />

Gw<strong>in</strong>net County Public Schools<br />

Abstract: Determ<strong>in</strong><strong>in</strong>g the most effective curricula for students with severe disabilities requires <strong>in</strong>creased<br />

attention as legislation <strong>and</strong> curricular changes are be<strong>in</strong>g made <strong>in</strong> the field of special education. This article a)<br />

reviews the legislation m<strong>and</strong>ates from the 2004 Individuals with <strong>Disabilities</strong> <strong>Education</strong> Improvement Act<br />

(IDEIA) <strong>and</strong> the 2001 No Child Left Beh<strong>in</strong>d Act (NCLB), b) discusses evidence-based practices for a<br />

st<strong>and</strong>ards-based curriculum <strong>and</strong> functional curriculum, <strong>and</strong> c) exam<strong>in</strong>es longitud<strong>in</strong>al outcomes for students<br />

with severe disabilities. The research suggests that students work<strong>in</strong>g on functional skills provided through a<br />

mean<strong>in</strong>gful curriculum leads to a more <strong>in</strong>dependent life. Recommendations for future research <strong>and</strong> discussion<br />

are also presented.<br />

Develop<strong>in</strong>g curriculum for students with severe<br />

disabilities has been a topic that has been<br />

widely addressed s<strong>in</strong>ce the <strong>in</strong>ception of the<br />

field of special education. ‘What’ <strong>and</strong> ‘how’ to<br />

teach are topics that are addressed regularly<br />

<strong>in</strong> the literature (Dymond & Orelove, 2001).<br />

Over time, those topics have cycled through<br />

select<strong>in</strong>g from the broad categories of developmentally<br />

appropriate curricula, functional<br />

curricula, <strong>and</strong> currently, general education<br />

st<strong>and</strong>ards-based curricula (Bricker, Siebert, &<br />

Casuso, 1980; Brown et al., 1979; Hitchcock,<br />

Meyer, Rose, & Jackson, 2002; Wehmeyer, Latt<strong>in</strong>,<br />

& Agran, 2001). Currently, a focus on<br />

functional curriculum for students with severe<br />

disabilities is be<strong>in</strong>g reexam<strong>in</strong>ed <strong>and</strong> to a large<br />

extent altered if not ab<strong>and</strong>oned <strong>in</strong> favor of a<br />

more general education or st<strong>and</strong>ards-based<br />

curriculum. St<strong>and</strong>ards-based curriculum has<br />

an outcome of grade-level achievement that<br />

may or may not lead to more <strong>in</strong>dependent<br />

Correspondence concern<strong>in</strong>g this article should<br />

be addressed to Kev<strong>in</strong> Ayres, Department of Special<br />

<strong>Education</strong>, The University of Georgia, 557 Aderhold<br />

Hall, Athens, GA 30602.<br />

function<strong>in</strong>g. Functional curriculum has outcomes<br />

of improv<strong>in</strong>g a student’s <strong>in</strong>dependent<br />

function<strong>in</strong>g <strong>in</strong> their current <strong>and</strong> future environments<br />

(Snell & Brown, 2006; Westl<strong>in</strong>g &<br />

Fox, 2004). These two curricula approaches<br />

are not <strong>and</strong> should not be exclusive, however,<br />

current prioritiz<strong>in</strong>g of st<strong>and</strong>ards-based curricula<br />

seems to set them up as such.<br />

Evidence presented <strong>in</strong> this article suggests<br />

that students with severe disabilities can learn<br />

objectives related to grade-level st<strong>and</strong>ards.<br />

The question of whether or not students can<br />

learn st<strong>and</strong>ards is not the question we seek to<br />

answer—we know they can. The imperative<br />

question to be answered is ‘at what cost do<br />

they learn these st<strong>and</strong>ards?’ Will these skills<br />

help the students get a job? Choose where to<br />

live? Actively participate <strong>in</strong> their community?<br />

All educators should have high expectations<br />

for their students <strong>and</strong> seek to challenge their<br />

students at appropriate levels, but learn<strong>in</strong>g<br />

fragments of higher level academic skills<br />

should not be achieved at the cost of learn<strong>in</strong>g<br />

how to function <strong>in</strong>dependently <strong>in</strong> society.<br />

One of the authors, while seated <strong>in</strong> an IEP<br />

meet<strong>in</strong>g as a consultant witnessed a frustrated<br />

parent of a child with severe <strong>in</strong>tellectual dis-<br />

Establish<strong>in</strong>g Mean<strong>in</strong>gful Curriculum / 11


abilities say “My son can identify Saturn but he<br />

still can’t request a snack or even wipe his ass.”<br />

This is the qu<strong>in</strong>tessential po<strong>in</strong>t that begs discussion<br />

by the entire field of severe disabilities.<br />

At what po<strong>in</strong>t does work<strong>in</strong>g toward fragmented,<br />

watered down academic st<strong>and</strong>ards<br />

become less important than work<strong>in</strong>g toward<br />

mean<strong>in</strong>gful <strong>in</strong>dividualized curricula directly<br />

tied to <strong>in</strong>creas<strong>in</strong>g <strong>in</strong>dependence <strong>in</strong> identified<br />

current <strong>and</strong> future environments. It is our<br />

position to cont<strong>in</strong>ue to <strong>in</strong>crease real outcomes<br />

for students by focus<strong>in</strong>g on students as <strong>in</strong>dividuals<br />

with specific preferences <strong>and</strong> needs<br />

result<strong>in</strong>g <strong>in</strong> mean<strong>in</strong>gful curriculum for each<br />

<strong>and</strong> every student. The purpose of this paper<br />

is to exam<strong>in</strong>e the evidence on st<strong>and</strong>ards-based<br />

curricula <strong>and</strong> to exam<strong>in</strong>e the evidence-base<br />

support<strong>in</strong>g the achievement of functional<br />

skills for students with severe disabilities. We<br />

will also review current legislation as it applies<br />

to curricula development. By compar<strong>in</strong>g these<br />

two bodies of literature, we will demonstrate<br />

the need to ma<strong>in</strong>ta<strong>in</strong> a functional curricular<br />

approach as the priority when develop<strong>in</strong>g curricula<br />

for <strong>in</strong>dividuals with severe disabilities.<br />

Legislation<br />

When determ<strong>in</strong><strong>in</strong>g how to develop mean<strong>in</strong>gful<br />

outcomes for students with severe disabilities,<br />

the field of special education is <strong>in</strong>formed<br />

by several different sources. M<strong>and</strong>ates from<br />

legislation, evidence-based practices, <strong>and</strong> <strong>in</strong>formation<br />

on longitud<strong>in</strong>al outcomes for students<br />

should all impact the decisions we make<br />

for students with severe disabilities. This leads<br />

to our primary determ<strong>in</strong>ates <strong>in</strong> develop<strong>in</strong>g<br />

mean<strong>in</strong>gful curricula for students with severe<br />

disabilities: comb<strong>in</strong><strong>in</strong>g what we are required<br />

to do, what we know works educationally, <strong>and</strong><br />

what we know is a priority for students’ lives<br />

after school.<br />

IDEIA<br />

Legislation m<strong>and</strong>ates what we must do to develop<br />

mean<strong>in</strong>gful outcomes from the educational<br />

programs for students with disabilities.<br />

First, the Individuals with <strong>Disabilities</strong> <strong>Education</strong><br />

Improvement Act of 2004 cont<strong>in</strong>ues to<br />

emphasize the connection between mean<strong>in</strong>gful,<br />

<strong>in</strong>dividualized curriculum for students<br />

with disabilities <strong>and</strong> post-school outcomes.<br />

IDEIA requires that students be given access<br />

to general education curriculum to the maximum<br />

extent appropriate. Access to general<br />

education is provided “<strong>in</strong> order to (i) meet<br />

developmental goals <strong>and</strong>, to the maximum<br />

extent possible, the challeng<strong>in</strong>g expectations<br />

that have been established for all children;<br />

<strong>and</strong> (ii) be prepared to lead productive <strong>and</strong><br />

<strong>in</strong>dependent adult lives, to the maximum extent<br />

possible” (118, Stat. 2651). Lowrey, Drasgow,<br />

Renzaglia, <strong>and</strong> Chezan (2007) <strong>in</strong>terpret<br />

this statement to mean that ‘appropriateness’<br />

<strong>and</strong> ‘mean<strong>in</strong>gfulness’ <strong>in</strong> a child’s educational<br />

program can be measured by whether or not<br />

the educational ga<strong>in</strong>s of the student actually<br />

prepare that student to lead an <strong>in</strong>dependent<br />

<strong>and</strong> productive adult life to the maximum<br />

extent possible. IDEIA requires that educational<br />

targets be based on what students can<br />

currently do, both academically <strong>and</strong> functionally,<br />

by <strong>in</strong>clud<strong>in</strong>g a statement describ<strong>in</strong>g students<br />

Present Levels of Academic Achievement<br />

<strong>and</strong> Functional Performance (PLAAFP)<br />

(Yell & Drasgow, 2007). Accord<strong>in</strong>g to Yell <strong>and</strong><br />

Drasgow, these PLAAFP statements should directly<br />

l<strong>in</strong>k to Individualized <strong>Education</strong> Program<br />

(IEP) goals <strong>and</strong> objectives to create a<br />

cycle of mean<strong>in</strong>gful outcomes-based targets,<br />

appropriate teach<strong>in</strong>g, <strong>and</strong> progress monitor<strong>in</strong>g.<br />

IDEIA’s focus on transition <strong>in</strong>creases this<br />

connection. In addition to mean<strong>in</strong>gful educational<br />

goals, mean<strong>in</strong>gful transition plans are<br />

required. Transition plans are developed by “a<br />

results-oriented process, that is focused on improv<strong>in</strong>g<br />

the academic <strong>and</strong> functional achievement<br />

of the child with a disability” (118, Stat.<br />

2658). The plans prepare students for postschool<br />

education, employment, <strong>in</strong>dependent<br />

liv<strong>in</strong>g, <strong>and</strong> community <strong>in</strong>volvement by assess<strong>in</strong>g<br />

their needs, <strong>in</strong>terests, preferences, <strong>and</strong><br />

strengths <strong>in</strong> order to create objectives to help<br />

students’ achieve their goals. Through transition<br />

plans, PLAAFP statements, <strong>and</strong> <strong>in</strong>dividualization,<br />

IDEIA provides a direct connection<br />

between a student’s educational targets <strong>and</strong> a<br />

student’s <strong>in</strong>dependence <strong>in</strong> their adult life follow<strong>in</strong>g<br />

school. The No Child Left Beh<strong>in</strong>d Act<br />

of 2001 may h<strong>in</strong>der this direct connection.<br />

NCLB<br />

Follow<strong>in</strong>g the passage of the No Child Left<br />

Beh<strong>in</strong>d Act of 2001, state education agencies<br />

12 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


(SEA) began to <strong>in</strong>terpret <strong>and</strong> react to stipulations<br />

that all students’ (<strong>in</strong>clud<strong>in</strong>g those with<br />

severe cognitive disabilities) educational program<br />

be tied to grade level st<strong>and</strong>ards (Kohl,<br />

McLaughl<strong>in</strong>, & Nagle, 2006). The No Child<br />

Left Beh<strong>in</strong>d Act of 2001 requires that students<br />

with severe cognitive disabilities be part of the<br />

systemic accountability measures of NCLB as<br />

well as <strong>in</strong>volv<strong>in</strong>g them <strong>in</strong> the general education<br />

curriculum. “All students with disabilities<br />

should have access to, participate <strong>in</strong>, <strong>and</strong><br />

make progress <strong>in</strong>, the general curriculum.<br />

Thus, all students with disabilities must be<br />

<strong>in</strong>cluded <strong>in</strong> the measurement of AYP toward<br />

meet<strong>in</strong>g the State’s st<strong>and</strong>ards” (p. 68698). Regardless<br />

of assessment practices, this process<br />

begs the question of whether or not the curriculum<br />

for students with severe cognitive disabilities<br />

should be focused on the same topics<br />

<strong>and</strong> skills as all other students. NCLB does not<br />

require curriculum development for <strong>in</strong>dividuals<br />

with severe cognitive disabilities (or any<br />

disability) beg<strong>in</strong> with <strong>and</strong> be limited to the<br />

st<strong>and</strong>ards, only that it be l<strong>in</strong>ked to the st<strong>and</strong>ards<br />

<strong>in</strong> order for students to participate <strong>and</strong><br />

progress. Thus, the impetus for where one<br />

beg<strong>in</strong>s <strong>and</strong> exp<strong>and</strong>s educational curriculum<br />

development for students with disabilities is<br />

better <strong>in</strong>formed by the provisions of IDEIA<br />

discussed above.<br />

Although much can be made of the potential<br />

conflict between the seem<strong>in</strong>gly separate<br />

aims of these two laws, we propose that <strong>in</strong>deed,<br />

students with severe disabilities can be<br />

<strong>in</strong>cluded <strong>in</strong> generalized systemic assessment<br />

<strong>and</strong> still have <strong>in</strong>dividualized curriculum that<br />

leads to mean<strong>in</strong>gful adult outcomes. The key<br />

component <strong>in</strong> address<strong>in</strong>g this curriculum development<br />

is the beg<strong>in</strong>n<strong>in</strong>g po<strong>in</strong>t---identify<strong>in</strong>g<br />

<strong>in</strong>dividualized needs that <strong>in</strong>crease <strong>in</strong>dependence<br />

<strong>in</strong> the natural environment rather than<br />

look<strong>in</strong>g directly at grade level academic outcomes<br />

<strong>and</strong> work<strong>in</strong>g backward. Because functional<br />

skills are not identified as priority skills<br />

under NCLB, they are not assessed toward<br />

AYP. Therefore, they may potentially be<br />

moved to lower <strong>in</strong>structional priority even if a<br />

teacher acknowledges the need for <strong>in</strong>struction<br />

<strong>in</strong> a functional area. We are not argu<strong>in</strong>g that<br />

students with severe disabilities cannot learn<br />

some of these grade level st<strong>and</strong>ards <strong>in</strong> the<br />

general education curriculum. Evidence presented<br />

below suggests they can. Our concern<br />

is on whether or not the learn<strong>in</strong>g of grade<br />

level st<strong>and</strong>ards <strong>in</strong>creases <strong>in</strong>dependence <strong>in</strong><br />

post-school environments thereby <strong>in</strong>creas<strong>in</strong>g<br />

an <strong>in</strong>dividual’s quality of life. In a public statement<br />

at the Council for Exceptional Children<br />

national convention <strong>in</strong> Louisville, KY, 2007, a<br />

very prom<strong>in</strong>ent <strong>and</strong> well respected researcher<br />

<strong>in</strong> our field who was <strong>in</strong> the audience of the<br />

presentation (McDonnell, Hunt, Kle<strong>in</strong>ert, &<br />

Renzaglia, 2007), publically argued that this<br />

shift is a moral <strong>and</strong> ethical shift. But on whose<br />

ethical grounds should this change be based?<br />

Unless a student’s curriculum is developed<br />

us<strong>in</strong>g outcomes that are essential for postschool<br />

success, we argue that many of the<br />

general education st<strong>and</strong>ards may not be beneficial<br />

for <strong>in</strong>creas<strong>in</strong>g a student’s quality of life<br />

as an adult. This at least follows logic <strong>and</strong> is<br />

not an ambiguous values based decision.<br />

F<strong>in</strong>d<strong>in</strong>gs from empirically supported practice<br />

give us much evidence to underst<strong>and</strong> the<br />

pedagogy to use when teach<strong>in</strong>g students with<br />

severe disabilities. In addition, that same body<br />

of research has given us many <strong>in</strong>sights <strong>in</strong>to<br />

skills that students can <strong>and</strong> do achieve when<br />

good pedagogy is implemented with these students.<br />

A closer exam<strong>in</strong>ation of that literature<br />

helps us discern educational programs that<br />

are mean<strong>in</strong>gful <strong>and</strong> those that are not.<br />

Empirically Supported Practice<br />

There are varied ways to parse research about<br />

learn<strong>in</strong>g. One of the simplest approaches is to<br />

separate basic research from applied research.<br />

One can do this by discrim<strong>in</strong>at<strong>in</strong>g between<br />

those experiments that seek to identify socially<br />

important <strong>in</strong>terventions <strong>and</strong> those that are<br />

pursued for the pure science of see<strong>in</strong>g what is<br />

possible (Baer, Wolf, & Risley, 1968). Both<br />

have a valid <strong>and</strong> important place <strong>in</strong> underst<strong>and</strong><strong>in</strong>g<br />

how <strong>in</strong>dividuals learn <strong>and</strong> often, basic<br />

research is a stepp<strong>in</strong>g stone to applied<br />

research. By look<strong>in</strong>g at both types of research,<br />

we can potentially ga<strong>in</strong> better underst<strong>and</strong><strong>in</strong>g<br />

of where we should head as a field. We have to<br />

be cautious though <strong>in</strong> our <strong>in</strong>terpretation of<br />

this research <strong>and</strong> be sure that our decisions<br />

for our field are based on the best empiricism<br />

of applied research <strong>and</strong> how we can make<br />

differences <strong>in</strong> the lives of <strong>in</strong>dividuals with disabilities<br />

<strong>and</strong> their families.<br />

Establish<strong>in</strong>g Mean<strong>in</strong>gful Curriculum / 13


St<strong>and</strong>ards-based Focus<br />

Currently, the field of special education has<br />

seen several experimental studies that seek to<br />

underst<strong>and</strong> the boundaries of what is possible<br />

<strong>in</strong> terms of modern <strong>in</strong>structional technology<br />

<strong>and</strong> the potential for learners with cognitive<br />

impairments (e.g. Mechl<strong>in</strong>g, Gast, & Krupa,<br />

2007; Stock, Davies, Davies, & Wehmeyer,<br />

2006; Davies, Stock, & Wehmeyer, 2001). Multiple<br />

literature reviews cite studies that demonstrate<br />

students with severe cognitive disabilities<br />

can learn academic skills <strong>in</strong> read<strong>in</strong>g<br />

(Browder, Wakeman, Spooner, Ahlgrim-Delzell,<br />

& Algozz<strong>in</strong>e, 2006), math (Browder,<br />

Spooner, Ahlgrim-Delzell, Harris, & Wakeman,<br />

2008), <strong>and</strong> science (Courtade, Spooner,<br />

& Browder, 2007). Currently, much of the<br />

research has that focused on teach<strong>in</strong>g gradelevel<br />

academic st<strong>and</strong>ards to students with severe<br />

cognitive disabilities has shown some impressive<br />

results. Jimenez, Browder, <strong>and</strong><br />

Courtade (2008) taught three high school students<br />

with moderate <strong>in</strong>tellectual disabilities<br />

how to solve an algebraic equation. But, our<br />

questions rema<strong>in</strong>: Do learn<strong>in</strong>g these skills<br />

help <strong>in</strong>dividuals with severe disabilities become<br />

more <strong>in</strong>dependent <strong>and</strong> successful <strong>in</strong><br />

their lives? Are teach<strong>in</strong>g these st<strong>and</strong>ards an<br />

efficient use of <strong>in</strong>struction time? In Jimenez et<br />

al., it took one student n<strong>in</strong>e sessions, another<br />

student 17 sessions, <strong>and</strong> the third student required<br />

multiple modifications throughout the<br />

<strong>in</strong>tervention to achieve eight out of n<strong>in</strong>e by<br />

the 31 st lesson (no <strong>in</strong>formation was provided<br />

about how many days or weeks it required to<br />

schedule these sessions). It is also important<br />

to consider these results <strong>in</strong> the larger context<br />

of empirically supported practice. The authors<br />

rightly identify that their results need<br />

social validation. Just because students are access<strong>in</strong>g<br />

the general education st<strong>and</strong>ards <strong>and</strong><br />

participat<strong>in</strong>g to an extent <strong>in</strong> general education<br />

classrooms, does not mean students are<br />

learn<strong>in</strong>g (Wehmeyer, 2006). Cihak <strong>and</strong> Foust<br />

(2008) compared us<strong>in</strong>g a number l<strong>in</strong>e <strong>and</strong><br />

touch po<strong>in</strong>t strategies to teach the acquisition<br />

of solv<strong>in</strong>g s<strong>in</strong>gle-digit addition problems to<br />

three elementary students with autism with IQ<br />

equivalence scores between 40 <strong>and</strong> 50. Students<br />

reached the criteria with touch po<strong>in</strong>ts<br />

more quickly after 10 to 16 sessions, but generalization<br />

across materials or environments<br />

was not assessed. The achievement of general<br />

education st<strong>and</strong>ards may be the most appropriate<br />

target for some students with severe<br />

disabilities, however, one cannot know that<br />

for certa<strong>in</strong> without assess<strong>in</strong>g each student’s<br />

<strong>in</strong>dividualized needs <strong>in</strong> order to create a<br />

mean<strong>in</strong>gful <strong>in</strong>dividualized curriculum that addresses<br />

those needs not only <strong>in</strong> the present,<br />

but <strong>in</strong> the long-term.<br />

Functional Focus<br />

As we shift our focus to the larger body of<br />

literature on curriculum <strong>in</strong>terventions related<br />

to functional life schools, it is important<br />

to recognize that to completely summarize<br />

this literature base would require<br />

volumes. Therefore, the summary that follows<br />

will attempt to highlight only a portion<br />

of studies focused on functional or mean<strong>in</strong>gful<br />

skills. Certa<strong>in</strong>ly, general education<br />

st<strong>and</strong>ards can lead students to functional<br />

outcomes. It is important to determ<strong>in</strong>e however,<br />

before they are chosen as a target, if<br />

<strong>in</strong>deed the outcome projected (e.g. learn<strong>in</strong>g<br />

the planets) is, <strong>in</strong> fact, a functional outcome.<br />

One litmus test for determ<strong>in</strong><strong>in</strong>g functionality<br />

of a skill that Lou Brown popularized<br />

was to ask whether someone else would<br />

have to perform a task for a student if the<br />

student themselves could not do it (Brown<br />

et al., 1979). To ultimately determ<strong>in</strong>e the<br />

utility of a particular skill he suggested that<br />

we ask whether or not “students could function<br />

as adults if they did not acquire the<br />

skill?” (Brown, Nietupski, & Hamre-Nietupski,<br />

1976, p. 9). Consider<strong>in</strong>g the range of<br />

environments where students live <strong>and</strong> the<br />

need to provide students options so that<br />

they can make choices for themselves, the<br />

broad category of functional curriculum encompasses<br />

<strong>in</strong>numerable skills that are important<br />

for community participation. Researchers<br />

have identified a range of<br />

<strong>in</strong>structional techniques to teach these<br />

skills. Without summariz<strong>in</strong>g all of the <strong>in</strong>structional<br />

techniques, <strong>and</strong> because our focus<br />

is on curriculum, it seems most appropriate<br />

to highlight some of the functional<br />

skill areas where researchers have successfully<br />

taught <strong>in</strong>dividuals with severe cognitive<br />

impairments to participate more <strong>in</strong>dependently<br />

<strong>in</strong> their environments.<br />

14 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Consumer skills. Beg<strong>in</strong>n<strong>in</strong>g with shopp<strong>in</strong>g<br />

or consumer skills, a range of <strong>in</strong>terventions<br />

have been used to teach skills such as mak<strong>in</strong>g<br />

payments with cash (Ayres & Langone, 2002;<br />

Ayres, Langone, Boon, & Norman, 2006),<br />

mak<strong>in</strong>g payments with debit cards (Mechl<strong>in</strong>g,<br />

Gast, & Barthold, 2003), locat<strong>in</strong>g items<br />

(Hutcherson, Langone, Ayres, & Clees, 2004;<br />

Langone, Shade, Clees, & Day, 1999; Mechl<strong>in</strong>g,<br />

Gast, & Langone, 2002; Mechl<strong>in</strong>g & Gast,<br />

2003; Mechl<strong>in</strong>g, 2004), <strong>and</strong> as well as the entire<br />

process of f<strong>in</strong>d<strong>in</strong>g an item <strong>and</strong> then pay<strong>in</strong>g<br />

for it (Alacantara, 1994; Bates, Cuvo,<br />

M<strong>in</strong>er, & Korbek, 2001; Har<strong>in</strong>g, Breen,<br />

We<strong>in</strong>er, Kennedy, & Bednersh, 1995; Har<strong>in</strong>g,<br />

Kennedy, Adams & Pitts-Conway, 1987; Wissick,<br />

Lloyd, & K<strong>in</strong>zie, 1992). Beyond shopp<strong>in</strong>g,<br />

others have successfully taught other money<br />

related skills <strong>in</strong>clud<strong>in</strong>g order<strong>in</strong>g <strong>and</strong> pay<strong>in</strong>g <strong>in</strong><br />

restaurants (Donnell & Ferguson, 1988; Mechl<strong>in</strong>g<br />

& Cron<strong>in</strong>, 2006; Mechl<strong>in</strong>g, Pridgen &<br />

Cron<strong>in</strong>, 2005), us<strong>in</strong>g a pay phone (Coll<strong>in</strong>s,<br />

St<strong>in</strong>son & L<strong>and</strong>, 1993), us<strong>in</strong>g a vend<strong>in</strong>g mach<strong>in</strong>e<br />

(Browder, Snell, & Wildonger, 1988),<br />

cash<strong>in</strong>g a check (Branham, Coll<strong>in</strong>s, Schuster,<br />

& Kle<strong>in</strong>ert, 1999), <strong>and</strong> us<strong>in</strong>g an ATM card<br />

(Alberto, Cihak, & Gama, 2005).<br />

Other community skills. Beyond be<strong>in</strong>g a<br />

consumer, there are several other activities<br />

<strong>in</strong> the community <strong>in</strong> which <strong>in</strong>dividuals may<br />

desire to participate. Researchers have documented<br />

successful <strong>in</strong>terventions for teach<strong>in</strong>g<br />

a variety of office <strong>and</strong> vocational skills<br />

(Branham et al., 1999; Cihak, Alberto,<br />

Kessler, & Taber, 2004; Hillier, Fish, Cloppert,<br />

& Beversdorf, 2007; Mechl<strong>in</strong>g & Ortega-Hurndeon,<br />

2007), <strong>and</strong> street cross<strong>in</strong>g<br />

skills (Branham et al.; Coll<strong>in</strong>s et al., 1993).<br />

Domestic <strong>and</strong> self-help skills. If an <strong>in</strong>dividual<br />

is go<strong>in</strong>g to live <strong>in</strong>dependently or achieve the<br />

criterion of ultimate function<strong>in</strong>g, they must<br />

know how to take care of themselves <strong>in</strong> their<br />

home. Researchers have demonstrated effective<br />

<strong>in</strong>terventions for teach<strong>in</strong>g multiple domestic<br />

skills <strong>in</strong>clud<strong>in</strong>g putt<strong>in</strong>g away groceries<br />

(Ayres & Langone, 2007; Cannella-Malone et<br />

al., 2006), prepar<strong>in</strong>g food (Fiscus, Schuster,<br />

Morse, & Coll<strong>in</strong>s, 2002; Graves, Coll<strong>in</strong>s, Schuster,<br />

& Kle<strong>in</strong>ert, 2005; Griffen, Wolery, &<br />

Schuster, 1992; Johnson & Cuvo, 1981; Jones<br />

& Coll<strong>in</strong>s, 1997; Lasater & Brady, 1995; Mart<strong>in</strong>,<br />

Rusch,, James, Decker, & Trtol, 1982; Norman,<br />

Coll<strong>in</strong>s, & Schuster, 2001; Rehfeldt, Dah-<br />

man, Young, Cherry, & Davis, 2003; Rob<strong>in</strong>son-<br />

Wilson, 1977; Schleien, Ash, Kiernan, &<br />

Wehman, 1981; Shipley, Benamou, Lutzker, &<br />

Taubman, 2002; Van Laarhoven & Van Laarhoven-Myers,<br />

2006), laundry skills (Bates et<br />

al., 2001; Lasater & Brady, 1995; Morrow &<br />

Bates, 1987; Neef, Lensbower, Hockersmith,<br />

DePalma, & Gray, 1990), dress<strong>in</strong>g (Norman et<br />

al.; Hughes, Schuster, & Nelson, 1993), <strong>and</strong><br />

hygiene (Stokes, Cameron, Dorsey, & Flem<strong>in</strong>g,<br />

2004; Parrot, Schuster, Coll<strong>in</strong>s, & Gassaway,<br />

2000; Snell, Lewis, & Houghton, 1989).<br />

Functional skill summary. While the assembly<br />

of studies above is not an exhaustive account<strong>in</strong>g<br />

of empirically based <strong>in</strong>terventions<br />

for teach<strong>in</strong>g functional skills, it should provide<br />

ample illustration of the extant literature<br />

on teach<strong>in</strong>g functional skills to students with<br />

severe developmental disabilities. These are<br />

socially significant changes if the student is<br />

able to complete the task for themselves <strong>and</strong><br />

no longer needs to depend on others. Aside<br />

from shar<strong>in</strong>g an emphasis on teach<strong>in</strong>g students<br />

skills for <strong>in</strong>dependence, the studies<br />

above share a common element: the <strong>in</strong>terventions<br />

are not “<strong>in</strong>stant,” they take an <strong>in</strong>vestment<br />

<strong>in</strong> time from the teacher as well as the<br />

student. Accord<strong>in</strong>g to IDEIA (2004) students<br />

must exit special education services by the age<br />

of 21. Services provided through IDEIA provide<br />

the most comprehensive <strong>in</strong>vestment of<br />

time <strong>and</strong> resources <strong>in</strong> a student with disabilities<br />

educational achievement. A student has<br />

only a f<strong>in</strong>ite amount of time <strong>in</strong> school to learn<br />

the critical skills that they will need to achieve<br />

the criterion of ultimate function<strong>in</strong>g (approximately<br />

3,780 hours if attend<strong>in</strong>g school from<br />

age 3–21, 180 days per year, 7 hours per day).<br />

Whether the time is spent address<strong>in</strong>g academic,<br />

social or life skills, the decision needs<br />

to be <strong>in</strong>dividualized to the learner to reap the<br />

maximum return on the time <strong>in</strong>vested. Time<br />

spent address<strong>in</strong>g the general curriculum (e.g.,<br />

the solar system, Shakespeare) without prioritiz<strong>in</strong>g<br />

the focus to mean<strong>in</strong>gful, <strong>in</strong>dividualized<br />

outcomes is time lost <strong>in</strong> ga<strong>in</strong><strong>in</strong>g mean<strong>in</strong>gful<br />

outcomes that directly improve a student’s<br />

adult function<strong>in</strong>g. There is no reasonable way<br />

to <strong>in</strong>tegrate Chaucer or volcanoes <strong>in</strong>to a community<br />

based <strong>in</strong>structional lesson related to<br />

pay<strong>in</strong>g for a meal at a restaurant. Address<strong>in</strong>g<br />

general education st<strong>and</strong>ards simply because<br />

they are the general education st<strong>and</strong>ard does<br />

Establish<strong>in</strong>g Mean<strong>in</strong>gful Curriculum / 15


not end <strong>in</strong> mean<strong>in</strong>gful achievement towards<br />

adult outcomes for most students with severe<br />

disabilities. This is a simple zero sum formula<br />

that threatens to imp<strong>in</strong>ge on a student’s opportunity<br />

to learn valuable life skills.<br />

Skills <strong>in</strong> context. Accord<strong>in</strong>g to the National<br />

Transition Longitud<strong>in</strong>al Survey (Cameto,<br />

Lev<strong>in</strong>e, & Wagner, 2004), almost half<br />

of the students with <strong>in</strong>tellectual disabilities,<br />

57% of those with autism <strong>and</strong> 58% of those<br />

with multiple disabilities had goals related<br />

to maximiz<strong>in</strong>g <strong>in</strong>dependence. From this,<br />

one may <strong>in</strong>fer that achiev<strong>in</strong>g the criterion of<br />

ultimate function<strong>in</strong>g (Brown et al., 1976)<br />

was important to the students <strong>and</strong> their families.<br />

Prepar<strong>in</strong>g students for the future requires<br />

help<strong>in</strong>g them to develop the skill sets<br />

that will be needed <strong>in</strong> their future environments.<br />

Learn<strong>in</strong>g generalizable work skills,<br />

how to balance a checkbook, prepare a<br />

meal, <strong>and</strong> navigate public transit, are <strong>in</strong>tegral<br />

to meet<strong>in</strong>g the criterion of ultimate<br />

function<strong>in</strong>g depend<strong>in</strong>g on a student’s future<br />

environments. Wagner, Newman, Cameto,<br />

Gazza, <strong>and</strong> Lev<strong>in</strong>e (2005) reported<br />

from NTLS data that students with <strong>in</strong>tellectual<br />

disabilities participate <strong>in</strong> work <strong>and</strong> work<br />

preparation activities <strong>in</strong> preparation for<br />

post-high school transition at rates lower<br />

than other disability groups <strong>and</strong> yet lack<br />

many of the skills required for <strong>in</strong>dependence.<br />

While one may argue that learn<strong>in</strong>g<br />

<strong>in</strong>dividual letters, differentiat<strong>in</strong>g types of<br />

rocks, <strong>and</strong> the order of the planets may be<br />

identified as important for some students,<br />

the reality is that many of these activities are<br />

not directly l<strong>in</strong>ked to <strong>in</strong>creas<strong>in</strong>g <strong>in</strong>dependence<br />

<strong>in</strong> the adult environment. It is the<br />

lack of <strong>in</strong>tegration or the lack of connection<br />

between the general education curriculum<br />

<strong>and</strong> the mean<strong>in</strong>gful life skills that so many<br />

students with severe disabilities need that<br />

creates the problem. The st<strong>and</strong>ards themselves<br />

are not harmful, the lack of focus on<br />

<strong>in</strong>dividualized outcomes relative to mean<strong>in</strong>gful<br />

<strong>in</strong>dividualized needs that is the problem.<br />

The data clearly show that we possess<br />

the <strong>in</strong>structional technology to teach these<br />

skills, yet we are mov<strong>in</strong>g toward teach<strong>in</strong>g<br />

other skills that do not have as direct of a<br />

l<strong>in</strong>k to <strong>in</strong>dependence. Is this the path special<br />

education should take <strong>and</strong> if so, at what<br />

cost?<br />

Longitud<strong>in</strong>al Outcomes<br />

The move towards st<strong>and</strong>ardized general education<br />

curriculum for all students may, on the<br />

surface, seem benign. However there is a lack<br />

of empiricism on long term (post school) outcomes<br />

for students with severe cognitive disabilities<br />

whose curriculum has been focused<br />

on learn<strong>in</strong>g academic tasks that do not relate<br />

directly to improv<strong>in</strong>g post school outcomes.<br />

Absent that empiricism, there is not even a<br />

cogent, logical argument for prioritiz<strong>in</strong>g curriculum<br />

around skills <strong>and</strong> <strong>in</strong>formation that<br />

will not help students achieve greater <strong>in</strong>dependence.<br />

If a wholesale adoption of modified<br />

general education st<strong>and</strong>ards becomes the<br />

gold st<strong>and</strong>ard for program plann<strong>in</strong>g for all<br />

students, many parents of students with severe<br />

disabilities (as well as their children) will be<br />

left with out Free Appropriate Public <strong>Education</strong>.<br />

Parents have reported less satisfaction<br />

with their child’s <strong>in</strong>volvement <strong>in</strong> an <strong>in</strong>clusive<br />

sett<strong>in</strong>g <strong>and</strong> participat<strong>in</strong>g <strong>in</strong> the alternate assessment<br />

process as their child got older<br />

(Kasari, Freeman, Baum<strong>in</strong>ger, & Alk<strong>in</strong>, 2004,<br />

Roach, 2006). Address<strong>in</strong>g 6–10 general education<br />

st<strong>and</strong>ards a year does not equal a functional<br />

educational program—especially if<br />

those st<strong>and</strong>ards are chosen outside of the context<br />

of <strong>in</strong>dividual student needs. Students that<br />

experience that type of educational programm<strong>in</strong>g<br />

will not have access to a curriculum that<br />

meets their <strong>in</strong>dividual needs; therefore parents<br />

will have to rely on their own ability <strong>and</strong><br />

outside resources to provide students with the<br />

education they need <strong>and</strong> deserve.<br />

Recommendations<br />

We propose develop<strong>in</strong>g a mean<strong>in</strong>gful educational<br />

curriculum that is <strong>in</strong>dividualized<br />

<strong>and</strong> <strong>in</strong>clusive of each student’s needs (both<br />

academic <strong>and</strong> daily function<strong>in</strong>g) <strong>and</strong> <strong>in</strong>terests.<br />

The research above demonstrates students<br />

with severe disabilities can make<br />

progress <strong>in</strong> all areas. Atta<strong>in</strong>ment of mean<strong>in</strong>gful<br />

skills l<strong>in</strong>ked to current <strong>and</strong> future<br />

environments directly impact an <strong>in</strong>dividual’s<br />

ability to function <strong>in</strong>dependently <strong>in</strong><br />

their future hous<strong>in</strong>g, work, community participation,<br />

<strong>and</strong> relationships. Perceptions of<br />

ma<strong>in</strong>stream society are also affected positively<br />

when students with severe disabilities<br />

16 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


learn to operate <strong>in</strong>dependently <strong>in</strong> the ma<strong>in</strong>stream<br />

world. This type of role valorization<br />

could lead to enhanced community opportunity.<br />

While students with severe cognitive<br />

disabilities can make progress <strong>in</strong> grade level<br />

<strong>and</strong> those st<strong>and</strong>ards can be taught us<strong>in</strong>g<br />

empirically valid teach<strong>in</strong>g procedures, if<br />

those st<strong>and</strong>ards have not been targeted because<br />

they directly meet an established <strong>in</strong>dividual<br />

need, those skills may not be reta<strong>in</strong>ed<br />

<strong>and</strong> used <strong>in</strong> everyday life. Students with severe<br />

cognitive disabilities need to learn skills<br />

that will <strong>in</strong>crease their job opportunities,<br />

<strong>in</strong>dependent liv<strong>in</strong>g opportunities, social <strong>in</strong>tegration<br />

<strong>and</strong> community <strong>in</strong>dependence.<br />

Special education that ab<strong>and</strong>ons <strong>in</strong>dividualized<br />

curriculum <strong>and</strong> moves toward a s<strong>in</strong>gle<br />

curriculum (i.e. grade level competencies)<br />

that may then be watered down to<br />

mere fragmented spl<strong>in</strong>ter skills, neglects a<br />

student’s right to an appropriate education.<br />

While students without disabilities are be<strong>in</strong>g<br />

prepared to attend college, technical<br />

school, or enter the work force, students<br />

with disabilities are m<strong>and</strong>ated to attend to<br />

that same curriculum that is not <strong>in</strong>dividually<br />

designed. These students are not be<strong>in</strong>g prepared<br />

for <strong>in</strong>dependence <strong>in</strong> the same way<br />

that students without disabilities are. Rather<br />

than look<strong>in</strong>g at generalized academic st<strong>and</strong>ards<br />

which are <strong>in</strong> part based on the knowledge<br />

that is required for post-secondary education,<br />

curriculum designed for students<br />

with disabilities should more closely reflect<br />

the ecology of the <strong>in</strong>dividual environments<br />

<strong>in</strong> which these students live <strong>and</strong> will live.<br />

This would mean comprehensive local level<br />

plans to identify those skills that would provide<br />

a student with the greatest opportunities<br />

to access the least restrictive services<br />

(e.g., competitive or supported employment,<br />

<strong>in</strong>dependent or group liv<strong>in</strong>g, community<br />

leisure activities). A cont<strong>in</strong>ual focus on<br />

teach<strong>in</strong>g students a curriculum that is not<br />

mean<strong>in</strong>gful <strong>and</strong> helpful <strong>in</strong> their lives, such<br />

as teach<strong>in</strong>g Romeo <strong>and</strong> Juliet with no preassessed<br />

identified <strong>in</strong>dividual targets, is<br />

about as helpful <strong>and</strong> useful as teach<strong>in</strong>g a<br />

student to pay for tickets at a movie theatre<br />

when their town does not have a theatre.<br />

In conclusion, IDEIA (2004) provides the<br />

right for every student to achieve educational<br />

progress <strong>in</strong> a curriculum that is spe-<br />

cially designed to meet their unique learn<strong>in</strong>g<br />

needs (2004). Progress is not the<br />

acquisition of useless knowledge <strong>and</strong>/or<br />

skills; rather educational progress is the acquisition<br />

of knowledge <strong>and</strong> skills toward the<br />

eventual outcome of mastery. We must assess<br />

our students’ progress so that we know<br />

they are learn<strong>in</strong>g their prioritized outcomes;<br />

so their parents can be assured that the<br />

student is gett<strong>in</strong>g what they have a legal<br />

right to, <strong>and</strong> so the student’s educational<br />

program can cont<strong>in</strong>ually be adjusted to<br />

meet that student’s needs as they learn. A<br />

universal grade level st<strong>and</strong>ard does not support<br />

this def<strong>in</strong>ition of progress. In order to<br />

develop mean<strong>in</strong>gful curriculum that supports<br />

educational progress, we must beg<strong>in</strong><br />

with a thorough assessment of <strong>in</strong>dividualized<br />

student needs. Once student needs are<br />

determ<strong>in</strong>ed, those needs must be prioritized<br />

so that each student has his/her most press<strong>in</strong>g<br />

needs addressed. At this po<strong>in</strong>t <strong>in</strong> curriculum<br />

development, we should then review<br />

the st<strong>and</strong>ards for appropriate mean<strong>in</strong>gful<br />

matches as well as determ<strong>in</strong><strong>in</strong>g what functional<br />

daily liv<strong>in</strong>g skills are needed. By develop<strong>in</strong>g<br />

curricula targets <strong>in</strong> this way, we can<br />

know that students are mak<strong>in</strong>g progress towards<br />

mean<strong>in</strong>gful outcomes. If we beg<strong>in</strong><br />

with the st<strong>and</strong>ards, we may miss important<br />

priorities <strong>in</strong> other areas (Dymond & Orelove,<br />

2001; McDonnell et al., 2007). When<br />

develop<strong>in</strong>g curriculum, we must focus on<br />

localized rather than state or national goals<br />

if we expect these students to live as <strong>in</strong>dependently<br />

as possible <strong>in</strong> that locale (Brown<br />

et al., 1979). Systematically, we need to hold<br />

each of these students, as well as their teachers,<br />

to high educational st<strong>and</strong>ards. This was<br />

the <strong>in</strong>tent of NCLB 2001. However, high<br />

st<strong>and</strong>ards should not be <strong>in</strong>terpreted directly<br />

as general education st<strong>and</strong>ards. St<strong>and</strong>ards<br />

that are benchmarked to academic, grade<br />

level goals may not be appropriate for all<br />

students. As our technology of teach<strong>in</strong>g has<br />

shown us, we have learned a tremendous<br />

amount about how to educate students with<br />

the most severe learn<strong>in</strong>g problems. If we<br />

aim this technology toward achiev<strong>in</strong>g <strong>in</strong>dependence<br />

<strong>and</strong> <strong>in</strong>tegration through targeted<br />

mean<strong>in</strong>gful curriculum, we advance one<br />

step closer to help<strong>in</strong>g realize a society that<br />

Establish<strong>in</strong>g Mean<strong>in</strong>gful Curriculum / 17


values <strong>in</strong>dividuals for what they can do<br />

rather than what they can’t.<br />

Conclusion<br />

Throughout the course of this paper we<br />

st<strong>and</strong> by the position that we, as special<br />

educators, should cont<strong>in</strong>ue to <strong>in</strong>crease real<br />

outcomes for students by focus<strong>in</strong>g on students<br />

as <strong>in</strong>dividuals with specific preferences<br />

<strong>and</strong> needs result<strong>in</strong>g <strong>in</strong> a mean<strong>in</strong>gful<br />

curricular development for each <strong>and</strong> every<br />

student. The purpose of this article was to<br />

exam<strong>in</strong>e the evidence on st<strong>and</strong>ards-based<br />

curricula <strong>and</strong> to exam<strong>in</strong>e the evidence-base<br />

support<strong>in</strong>g the achievement of functional<br />

skills for students with severe disabilities. We<br />

also reviewed current legislation as it applied<br />

to curricula development. By compar<strong>in</strong>g<br />

these two bodies of literature, we demonstrated<br />

the need to ma<strong>in</strong>ta<strong>in</strong> a functional<br />

curricular approach as the priority when develop<strong>in</strong>g<br />

curricula for <strong>in</strong>dividuals with severe<br />

disabilities. We posit that it is only<br />

through this <strong>in</strong>dividualized approach that<br />

students with severe disabilities will make<br />

progress towards mean<strong>in</strong>gful targets that<br />

will positively affect their current <strong>and</strong> future<br />

<strong>in</strong>dependence <strong>in</strong> their localized environments.<br />

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Received: 25 June 2009<br />

Initial Acceptance: 19 August 2009<br />

F<strong>in</strong>al Acceptance: 30 October 2009<br />

Establish<strong>in</strong>g Mean<strong>in</strong>gful Curriculum / 21


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 22–39<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

Addition of Functional Content dur<strong>in</strong>g Core Content<br />

Instruction with Students with Moderate <strong>Disabilities</strong><br />

Belva C. Coll<strong>in</strong>s <strong>and</strong> Karen L. Hager<br />

University of Kentucky<br />

Carey Creech Galloway<br />

Clark County Schools<br />

Abstract: The purpose of this <strong>in</strong>vestigation was to add functional content dur<strong>in</strong>g core content <strong>in</strong>struction of<br />

language arts, science, <strong>and</strong> math. The <strong>in</strong>vestigation <strong>in</strong>volved three middle school students with moderate<br />

disabilities who participated <strong>in</strong> the state’s alternate assessment. Dur<strong>in</strong>g <strong>in</strong>struction us<strong>in</strong>g a constant time delay<br />

procedure to teach required grade level core content, the special education <strong>in</strong>structor added functional content<br />

as follows: (a) language arts–<strong>in</strong>formation found <strong>in</strong> the news added to grade level sight word vocabulary, (b)<br />

science–cook<strong>in</strong>g skills or appropriate dress for weather conditions added to the properties of elements <strong>in</strong> the<br />

periodic table, <strong>and</strong> (c) math–computation of sales tax for items appear<strong>in</strong>g <strong>in</strong> advertisements added to order of<br />

operations. The results showed that students could learn, ma<strong>in</strong>ta<strong>in</strong>, <strong>and</strong> generalize both types of content<br />

presented with<strong>in</strong> the same lesson.<br />

The No Child Left Beh<strong>in</strong>d Act (NCLB) <strong>and</strong><br />

the Individuals with <strong>Disabilities</strong> <strong>Education</strong> Act<br />

(IDEA) both m<strong>and</strong>ate that all students, <strong>in</strong>clud<strong>in</strong>g<br />

those with moderate-severe disabilities<br />

(MSD) receive access to the general curriculum.<br />

Among researchers <strong>and</strong> practitioners<br />

<strong>in</strong> the field of special education, however,<br />

there is not an agreed upon def<strong>in</strong>ition of<br />

access to the general curriculum (Dymond,<br />

Renzaglia, Gilson, & Slagor, 2007). While<br />

questions rema<strong>in</strong> regard<strong>in</strong>g what exactly constitutes<br />

the general curriculum as well as what<br />

access means, often the discussion focuses on<br />

learn<strong>in</strong>g st<strong>and</strong>ards <strong>and</strong> the academic components<br />

of the general curriculum (Dymond et<br />

al.). This may be due, at least <strong>in</strong> part, to NCLB<br />

accountability measures that require states to<br />

report academic achievement for all students<br />

<strong>in</strong> the specific content areas of read<strong>in</strong>g/language<br />

arts, math, <strong>and</strong> science. Students who<br />

are unable, even with appropriate accommodations,<br />

to participate <strong>in</strong> these tests are also<br />

assessed on these academic content areas but<br />

do so through participat<strong>in</strong>g <strong>in</strong> alternate assess-<br />

Correspondence concern<strong>in</strong>g this article should<br />

be addressed to Belva C. Coll<strong>in</strong>s, University of Kentucky,<br />

Department of Special <strong>Education</strong> <strong>and</strong> Rehabilitation<br />

Counsel<strong>in</strong>g, 229 Taylor <strong>Education</strong> Build<strong>in</strong>g,<br />

Lex<strong>in</strong>gton, KY 40506-0001. Email: bcoll01@<br />

uky.edu<br />

ments (Browder & Cooper-Duffy, 2003). Many<br />

students with MSD are eligible to participate<br />

<strong>in</strong> these alternate assessments that may be<br />

aligned with alternate academic achievement<br />

st<strong>and</strong>ards but still based on grade level<br />

achievement st<strong>and</strong>ards.<br />

A particular challenge for teachers of students<br />

with MSD is provid<strong>in</strong>g <strong>in</strong>struction on<br />

the grade level general curriculum as well as<br />

address<strong>in</strong>g other needs the students may have<br />

that are not addressed <strong>in</strong> the general curriculum.<br />

IDEA requires that IEP goals address<br />

both academic <strong>and</strong> functional needs. While<br />

students with MSD can <strong>and</strong> should have access<br />

to content presented <strong>in</strong> general education sett<strong>in</strong>gs,<br />

they often require substantially more<br />

time to reach criterion on skills targeted for<br />

<strong>in</strong>struction than is allowed <strong>in</strong> the unit approach<br />

used <strong>in</strong> most general education sett<strong>in</strong>gs<br />

(Helmstetter, Curry, Brennan, & Sampson-Saul,<br />

1998; Logan & Malone, 1998;<br />

McDonnell, Thorson, & McQuivey, 2000; Mc-<br />

Donnell, Thorson, & McQuivey, 1998). Thus,<br />

special education teachers may f<strong>in</strong>d themselves<br />

<strong>in</strong> the position of need<strong>in</strong>g to provide<br />

additional direct <strong>in</strong>struction on core content<br />

<strong>in</strong> addition to what is received <strong>in</strong> the general<br />

education sett<strong>in</strong>g if students are to master the<br />

content. Given the f<strong>in</strong>ite amount of <strong>in</strong>structional<br />

time available, two critical issues must<br />

be acknowledged <strong>and</strong> addressed. One is to<br />

22 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


provide <strong>in</strong>struction as effectively <strong>and</strong> efficiently<br />

as possible, <strong>and</strong> the other is to establish<br />

<strong>in</strong>structional priorities.<br />

Regard<strong>in</strong>g the first issue, effective <strong>and</strong> efficient<br />

<strong>in</strong>structional procedures, a large body of<br />

research has provided evidence that systematic<br />

<strong>in</strong>struction us<strong>in</strong>g response prompt<strong>in</strong>g<br />

procedures is an effective strategy to teach<br />

skills to students with MSD <strong>and</strong> other special<br />

needs (Coll<strong>in</strong>s, 2007; Wolery & Schuster,<br />

1997). For example, the time delay procedure<br />

is an evidence-based response prompt<strong>in</strong>g procedure<br />

that has a long history of be<strong>in</strong>g effective<br />

<strong>in</strong> teach<strong>in</strong>g both discrete skills <strong>and</strong><br />

cha<strong>in</strong>ed tasks to students with MSD across<br />

sett<strong>in</strong>gs (Coll<strong>in</strong>s; Schuster et al., 1998; Wolery,<br />

Ault, & Doyle, 1992). The time delay procedure<br />

systematically <strong>in</strong>creases the delay <strong>in</strong>terval<br />

that students have to perform a correct response<br />

prior to be<strong>in</strong>g prompted, thus transferr<strong>in</strong>g<br />

stimulus control from the prompt to<br />

the natural stimulus. The progressive time delay<br />

(PTD) procedure <strong>in</strong>creases the delay <strong>in</strong>terval<br />

by small <strong>in</strong>crements (e.g., 0 s, 1 s, 2 s, 3 s)<br />

while the constant time delay (CTD) procedure<br />

beg<strong>in</strong>s with a0sdelay <strong>in</strong>terval <strong>and</strong> then<br />

<strong>in</strong>creases the delay to a set number of seconds<br />

(e.g., 3 s) for all rema<strong>in</strong><strong>in</strong>g <strong>in</strong>structional trials.<br />

This procedure has been implemented by<br />

classroom teachers with a high degree of fidelity<br />

(Coll<strong>in</strong>s & Schuster, 2001).<br />

Research-based strategies are thus available<br />

to <strong>in</strong>crease the effectiveness of <strong>in</strong>struction,<br />

<strong>and</strong> there is also evidence to support teach<strong>in</strong>g<br />

core content <strong>and</strong> functional content together,<br />

which addresses some of the issues of <strong>in</strong>structional<br />

priorities. IDEA requires that <strong>in</strong>structional<br />

priorities be established on an <strong>in</strong>dividual<br />

basis for students with disabilities, while<br />

also requir<strong>in</strong>g that both academic <strong>and</strong> functional<br />

educational needs be targeted. Teach<strong>in</strong>g<br />

core content <strong>and</strong> functional content together<br />

is one strategy to address these needs.<br />

While grade level core content is targeted,<br />

functional content based on <strong>in</strong>dividual needs<br />

is addressed with<strong>in</strong> the same <strong>in</strong>structional sett<strong>in</strong>g.<br />

In an <strong>in</strong>vestigation with students with moderate<br />

disabilities across age levels, Coll<strong>in</strong>s,<br />

Evans, Galloway, Karl, <strong>and</strong> Miller (2007) provided<br />

evidence that the students could acquire<br />

both functional <strong>and</strong> core content sight words<br />

when these were paired across sett<strong>in</strong>gs <strong>and</strong><br />

<strong>in</strong>structional formats. While their <strong>in</strong>vestigation<br />

targeted both functional <strong>and</strong> core content<br />

for <strong>in</strong>struction, other <strong>in</strong>vestigations with<br />

students with MSD have added functional <strong>in</strong>formation<br />

as nontargeted <strong>in</strong>formation, hop<strong>in</strong>g<br />

that students would acquire at least some<br />

of the extra <strong>in</strong>formation to which they were<br />

exposed dur<strong>in</strong>g systematic <strong>in</strong>struction. For example,<br />

Falkenst<strong>in</strong>e, Coll<strong>in</strong>s, Schuster, <strong>and</strong><br />

Kle<strong>in</strong>ert (2009) added the nontargeted <strong>in</strong>formation<br />

of how to set a wristwatch dur<strong>in</strong>g <strong>in</strong>struction<br />

on tell<strong>in</strong>g time <strong>and</strong> how to look up a<br />

word <strong>in</strong> the dictionary dur<strong>in</strong>g <strong>in</strong>struction on<br />

identify<strong>in</strong>g arts <strong>and</strong> humanities sight words.<br />

Instruction took place <strong>in</strong> a small group format<br />

with the nontargeted <strong>in</strong>formation presented<br />

as <strong>in</strong>structive feedback dur<strong>in</strong>g the consequence<br />

portion of each <strong>in</strong>structional trial.<br />

Each of the students with MSD who participated<br />

<strong>in</strong> the <strong>in</strong>vestigation was able to acquire<br />

the targeted skills as well as much of the nontargeted<br />

<strong>in</strong>formation presented dur<strong>in</strong>g the <strong>in</strong>structional<br />

trials. In addition, they acquired<br />

much of the targeted <strong>and</strong> nontargeted <strong>in</strong>formation<br />

presented to other students <strong>in</strong> the<br />

group through observational learn<strong>in</strong>g.<br />

It is clear that a more efficient use of <strong>in</strong>structional<br />

time is to focus on more than one<br />

skill dur<strong>in</strong>g <strong>in</strong>struction. The drawbacks to rely<strong>in</strong>g<br />

on presentation of skills as nontargeted<br />

<strong>in</strong>formation are that <strong>in</strong>structors do not collect<br />

formative data on this <strong>in</strong>formation <strong>in</strong> order to<br />

assess learn<strong>in</strong>g, they do not set specific criteria<br />

for mastery, <strong>and</strong> they do not make <strong>in</strong>structional<br />

modifications if students fail to acquire<br />

the extra <strong>in</strong>formation. Therefore, the best way<br />

to ensure that students master both core content<br />

<strong>and</strong> functional content is to target both<br />

for direct <strong>in</strong>struction <strong>and</strong> to collect formative<br />

data on student progress on both across <strong>in</strong>structional<br />

sessions.<br />

In the present <strong>in</strong>vestigation, a special education<br />

teacher (the third author) <strong>and</strong> a paraprofessional<br />

implemented a CTD procedure<br />

to teach both functional <strong>and</strong> core content to<br />

middle school students with moderate disabilities<br />

who participated <strong>in</strong> the state alternate<br />

assessment. While the selected core content<br />

was required, the addition of related functional<br />

content provided a framework for present<strong>in</strong>g<br />

core content <strong>in</strong> a mean<strong>in</strong>gful context.<br />

The research literature has shown that mean<strong>in</strong>gful<br />

skills are likely to ma<strong>in</strong>ta<strong>in</strong> <strong>and</strong> to gen-<br />

Functional Core Content / 23


eralize (Wolery et al., 1992) s<strong>in</strong>ce mean<strong>in</strong>gful<br />

skills are more likely to be needed <strong>in</strong> natural<br />

environments. In addition, <strong>in</strong>struction on<br />

content that is mean<strong>in</strong>gful also may be more<br />

re<strong>in</strong>forc<strong>in</strong>g to students, thus <strong>in</strong>creas<strong>in</strong>g appropriate<br />

behavior dur<strong>in</strong>g <strong>in</strong>struction (Horner,<br />

Alb<strong>in</strong>, Todd, & Sprague, 2006). Specifically,<br />

the research questions were (a) Will middle<br />

school students with moderate disabilities acquire<br />

both core content <strong>and</strong> a functional application<br />

through direct <strong>in</strong>struction? <strong>and</strong> (b)<br />

Will the students generalize that content<br />

across probe trials us<strong>in</strong>g novel materials <strong>and</strong><br />

activities?<br />

Method<br />

Participants<br />

Students. Three middle school students<br />

identified with functional mental disabilities<br />

(i.e., moderate to severe disabilities) participated<br />

<strong>in</strong> the <strong>in</strong>vestigation. The special education<br />

teacher selected these students because<br />

they would be participat<strong>in</strong>g <strong>in</strong> the state’s alternate<br />

assessment dur<strong>in</strong>g the school year <strong>and</strong>,<br />

thus, would need alternate portfolio entries<br />

document<strong>in</strong>g the acquisition of required<br />

grade level core content <strong>in</strong> language arts,<br />

math, <strong>and</strong> science. In addition, she selected<br />

the students because they had a dependable<br />

record of school attendance <strong>and</strong> she anticipated<br />

that they had the ability to master targeted<br />

content with<strong>in</strong> the 7-month timeframe<br />

for the <strong>in</strong>vestigation. The timeframe co<strong>in</strong>cided<br />

with the beg<strong>in</strong>n<strong>in</strong>g of the academic<br />

school year <strong>and</strong> the f<strong>in</strong>al date for submission<br />

of the state’s alternate assessment portfolios.<br />

Each of the students selected to participate<br />

had good receptive communication skills for<br />

follow<strong>in</strong>g directions whether or not they had<br />

adequate expressive verbal communication<br />

for respond<strong>in</strong>g. In addition, all had a history<br />

with systematic direct <strong>in</strong>struction us<strong>in</strong>g response-prompt<strong>in</strong>g<br />

procedures, although this<br />

was not a prerequisite for <strong>in</strong>clusion <strong>in</strong> the<br />

<strong>in</strong>vestigation.<br />

The middle school participants were Jason,<br />

Morgan, <strong>and</strong> Rena. Jason was a 14-yr old male<br />

with a reported IQ score of 55 on the WISC III<br />

(Wechsler, 1997) <strong>and</strong> a score of 56 on the<br />

Adaptive Behavior Assessment System (Harrison &<br />

Oakl<strong>and</strong>, 2003). His IEP objectives <strong>in</strong>cluded<br />

read<strong>in</strong>g survival words, food <strong>and</strong> recipe words,<br />

<strong>and</strong> core content vocabulary; answer<strong>in</strong>g comprehension<br />

questions; typ<strong>in</strong>g documents <strong>and</strong><br />

personal <strong>in</strong>formation; us<strong>in</strong>g touch math for<br />

addition, subtraction, <strong>and</strong> multiplication;<br />

ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g the ability to count co<strong>in</strong>s <strong>and</strong> use<br />

a next dollar strategy; <strong>and</strong> perform<strong>in</strong>g selected<br />

vocational tasks. Jason spent approximately<br />

50–60% of his day <strong>in</strong> general education<br />

classes (e.g., science, social studies).<br />

Morgan was a 14-yr old male with autism<br />

<strong>and</strong> a reported IQ score of 47 on the Universal<br />

Nonverbal Test of Intelligence (Bracken & McCallum,<br />

1998). His IEP objectives <strong>in</strong>cluded us<strong>in</strong>g<br />

a calculator to work with money, us<strong>in</strong>g touch<br />

math to count co<strong>in</strong>s, follow<strong>in</strong>g picture recipes,<br />

read<strong>in</strong>g survival words, <strong>and</strong> ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g the<br />

ability to use a schedule <strong>and</strong> follow 2- to 3-step<br />

directions. Morgan spent approximately 40%<br />

of his day <strong>in</strong> general education classes.<br />

Rena was a 15-yr old female with Down syndrome<br />

<strong>and</strong> an IQ score of 41 on the Universal<br />

Nonverbal Test of Intelligence (Bracken & McCallum,<br />

1998). Her IEP objectives <strong>in</strong>cluded wash<strong>in</strong>g<br />

her h<strong>and</strong>s, feet, <strong>and</strong> face; us<strong>in</strong>g a picture<br />

list to locate grocery items; follow<strong>in</strong>g a picture<br />

recipe; us<strong>in</strong>g touch math to count co<strong>in</strong>s;<br />

check<strong>in</strong>g her schedule <strong>and</strong> mak<strong>in</strong>g choices;<br />

read<strong>in</strong>g food <strong>and</strong> recipe words, survival words,<br />

personal <strong>in</strong>formation, <strong>and</strong> core content; <strong>and</strong><br />

identify<strong>in</strong>g personal <strong>in</strong>formation. Rena spent<br />

approximately 40% of her day <strong>in</strong> general education<br />

classes.<br />

Staff. A special education teacher conducted<br />

all <strong>in</strong>structional sessions <strong>in</strong> a special<br />

education resource room until she left for<br />

maternity leave at the end of the fifth month<br />

of the <strong>in</strong>vestigation. At that time, an experienced<br />

paraprofessional <strong>in</strong> the resource room<br />

who had participated <strong>in</strong> a previous study with<br />

the teacher (Coll<strong>in</strong>s et al., 2007) began conduct<strong>in</strong>g<br />

all <strong>in</strong>structional sessions. The special<br />

education teacher returned to school <strong>in</strong> time<br />

to conduct the f<strong>in</strong>al sessions with two of the<br />

students. The <strong>in</strong>structors also graphed <strong>and</strong><br />

monitored all <strong>in</strong>structional data. The special<br />

education teacher had three years of teach<strong>in</strong>g<br />

experience <strong>in</strong> the classroom as well as several<br />

years of experience as a paraprofessional <strong>in</strong> a<br />

secondary special education resource room<br />

for students with MSD. In addition, she was<br />

enrolled <strong>in</strong> a master’s degree program <strong>in</strong> MSD<br />

at the time of the <strong>in</strong>vestigation. The special<br />

24 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


education teacher was responsible for tra<strong>in</strong><strong>in</strong>g<br />

the paraprofessional to cont<strong>in</strong>ue the <strong>in</strong>vestigation<br />

dur<strong>in</strong>g her maternity leave. <strong>Tra<strong>in</strong><strong>in</strong>g</strong><br />

for the paraprofessional consisted of expla<strong>in</strong><strong>in</strong>g<br />

the procedures, check<strong>in</strong>g to make sure<br />

data collection procedures were clear, <strong>and</strong> observ<strong>in</strong>g<br />

dur<strong>in</strong>g actual <strong>in</strong>struction to make sure<br />

the paraprofessional could conduct sessions<br />

<strong>and</strong> collect data with high fidelity.<br />

Skill Selection<br />

The special education teacher was responsible<br />

for screen<strong>in</strong>g <strong>and</strong> select<strong>in</strong>g the core content<br />

that would be taught dur<strong>in</strong>g the <strong>in</strong>vestigation.<br />

S<strong>in</strong>ce all of the participants were participat<strong>in</strong>g<br />

<strong>in</strong> the state’s alternate assessment, the teacher<br />

selected required grade level core content<br />

aligned to state st<strong>and</strong>ards <strong>in</strong> language arts,<br />

science, <strong>and</strong> math. We (first <strong>and</strong> second authors)<br />

bra<strong>in</strong>stormed with the teacher (third<br />

author) to identify functional applications for<br />

each of the selected st<strong>and</strong>ards. Once we identified<br />

both core content <strong>and</strong> functional applications<br />

for <strong>in</strong>struction, the teacher screened<br />

the students to identify specific items for <strong>in</strong>struction.<br />

In language arts, the teacher selected the<br />

st<strong>and</strong>ard to identify mean<strong>in</strong>gs of words/<br />

phrases from a grade level passage. Specifically,<br />

she chose to teach read<strong>in</strong>g grade level<br />

words found <strong>in</strong> the newspaper. While this content<br />

could be considered functional (i.e., useful<br />

<strong>and</strong> mean<strong>in</strong>gful to the students), we decided<br />

to teach <strong>in</strong>formation related to the<br />

words as a functional application. The rationale<br />

was that the words were mean<strong>in</strong>gless unless<br />

the students had a reference for apply<strong>in</strong>g<br />

them <strong>in</strong> the context of current events. The<br />

core content objective for Jason was to orally<br />

read the words president, representative, <strong>and</strong> governor,<br />

<strong>and</strong> the functional application objective<br />

was to verbally identify each (e.g., “The president<br />

of the United States is George Bush”).<br />

The core content objective for Morgan was to<br />

read <strong>and</strong> receptively identify (i.e., po<strong>in</strong>t to)<br />

the words mayor, county, <strong>and</strong> district. The functional<br />

application objective was to receptively<br />

identify correspond<strong>in</strong>g <strong>in</strong>formation about<br />

each by po<strong>in</strong>t<strong>in</strong>g to the correct sight word<br />

card from a choice of three cards (e.g., po<strong>in</strong>t<br />

to the mayor’s when presented with a choice<br />

of three names). The core content objective<br />

for Rena was to read <strong>and</strong> receptively identify<br />

(i.e., po<strong>in</strong>t to) the words country, state, <strong>and</strong> city,<br />

<strong>and</strong> the functional application objective was to<br />

receptively identify correspond<strong>in</strong>g <strong>in</strong>formation<br />

about each by po<strong>in</strong>t<strong>in</strong>g to the correct<br />

sight word card from a choice of three cards<br />

(e.g., po<strong>in</strong>t to United States of America when<br />

presented with a choice of three names of<br />

countries). The criterion for each of these<br />

objectives was 100% accuracy for three sessions.<br />

In science, the teacher selected the st<strong>and</strong>ard<br />

to identify chemical <strong>and</strong> physical properties<br />

of elements <strong>and</strong> compounds <strong>and</strong> to categorize<br />

them by their properties. Specifically,<br />

she chose to teach three basic properties of<br />

elements <strong>in</strong> the Periodic Table: (a) gas, (b)<br />

liquid, <strong>and</strong> (c) solid. As a functional application,<br />

we decided to teach Jason to identify<br />

ways to change properties dur<strong>in</strong>g cook<strong>in</strong>g<br />

s<strong>in</strong>ce objectives related to cook<strong>in</strong>g were listed<br />

on his IEP. The core content objective for<br />

Jason was, when presented with the real items,<br />

to verbally state the properties of items used<br />

for cook<strong>in</strong>g breakfast (i.e., butter is a solid,<br />

milk is a liquid, <strong>and</strong> the steam from boil<strong>in</strong>g<br />

water is a gas). The objective for his functional<br />

application was to state ways to change the<br />

properties of these items (e.g., melt butter to<br />

change it from a solid to liquid, freeze milk to<br />

change it from liquid to solid, boil water to<br />

change it from liquid to gas). The objectives<br />

for Morgan <strong>and</strong> Rena were based on weather<br />

conditions rather than cook<strong>in</strong>g s<strong>in</strong>ce the<br />

teacher believed this knowledge would make<br />

them more <strong>in</strong>dependent. Specifically, their<br />

core content objective was, when presented<br />

with three choices, to po<strong>in</strong>t to pictures of<br />

elements of the weather that were solid (i.e.,<br />

ice), liquid (i.e., ra<strong>in</strong>), or neither (i.e., sunsh<strong>in</strong>e).<br />

In addition, their functional application<br />

objective was, when present with three<br />

choices, to po<strong>in</strong>t to pictures of cloth<strong>in</strong>g appropriate<br />

to each type of weather (i.e., ice–coat<br />

<strong>and</strong> mittens, ra<strong>in</strong>–ra<strong>in</strong> coat <strong>and</strong> umbrella, sunsh<strong>in</strong>e–swim<br />

suit). The criterion for each of<br />

these objectives was 100% accuracy for three<br />

sessions.<br />

In math, the teacher selected the st<strong>and</strong>ard<br />

to apply the order of operations us<strong>in</strong>g addition<br />

<strong>and</strong> multiplication. Specifically, she chose<br />

to teach order of operations while teach<strong>in</strong>g<br />

students to compute sales tax. While this core<br />

Functional Core Content / 25


content is functional, we decided to make it<br />

more applied by hav<strong>in</strong>g students compute the<br />

sales tax for real items found <strong>in</strong> newspaper<br />

ads. The task analysis for Jason was to enter<br />

the amount of the item, press X, press 6, press<br />

%, write amount on paper, press clear, enter<br />

1 st amount, press , enter amount of tax,<br />

press , <strong>and</strong> write total amount on paper. The<br />

teacher adapted the task analysis for Morgan<br />

<strong>and</strong> Rena so they would not have to write.<br />

Their task analysis was to enter the amount of<br />

the item, press X, press 6, press %, press M,<br />

press , press , <strong>and</strong> use a B<strong>in</strong>go dabber to<br />

select the correct amount from three choices<br />

presented on a piece of paper. The criterion<br />

for each of these objectives was 100% accuracy<br />

for three sessions.<br />

Instructional Sett<strong>in</strong>g <strong>and</strong> Arrangement<br />

The special education teacher or paraprofessional<br />

conducted all <strong>in</strong>structional sessions <strong>in</strong><br />

the special education resource room designated<br />

for students with functional mental disabilities<br />

(i.e., MSD) <strong>in</strong> a 1:1 format dur<strong>in</strong>g the<br />

first hour of the school day before the students<br />

left for their <strong>in</strong>clusive classes. On most<br />

days, the special education teacher, two paraprofessionals,<br />

<strong>and</strong> four students were <strong>in</strong> the<br />

classroom dur<strong>in</strong>g this time. Dur<strong>in</strong>g <strong>in</strong>struction,<br />

the <strong>in</strong>structor called one student at a<br />

time to a semi-circular table; the student took<br />

a seat opposite the <strong>in</strong>structor.<br />

The teacher used a CTD procedure for <strong>in</strong>struction<br />

<strong>and</strong> conducted one trial per stimulus<br />

per session. She taught each subject area to<br />

criterion before proceed<strong>in</strong>g to the next <strong>in</strong> the<br />

follow<strong>in</strong>g sequence: (a) language arts, (b) science,<br />

<strong>and</strong> (c) math.<br />

Materials <strong>and</strong> Equipment<br />

As shown <strong>in</strong> Table 1, the teacher prepared two<br />

sets of materials: (a) one for <strong>in</strong>struction <strong>and</strong><br />

(b) one for generalization assessment. For language<br />

arts, the core content <strong>in</strong>structional materials<br />

consisted of 3 <strong>in</strong> 5 <strong>in</strong> white unl<strong>in</strong>ed<br />

flash cards with the sight words pr<strong>in</strong>ted by<br />

h<strong>and</strong> <strong>in</strong> lower case letters with a black marker.<br />

The functional application <strong>in</strong>structional materials<br />

consisted of 5 <strong>in</strong> 7 <strong>in</strong> white unl<strong>in</strong>ed<br />

cards with black computed-pr<strong>in</strong>ted sight<br />

words. The sight word cards for Morgan <strong>and</strong><br />

Rena also conta<strong>in</strong>ed computer-generated<br />

color pictures paired with the words (e.g., a<br />

map of the United States <strong>and</strong> an American<br />

flag above America). Along with each target<br />

word card, the teacher presented two additional<br />

cards dur<strong>in</strong>g each trial that conta<strong>in</strong>ed<br />

distracters that had been selected at r<strong>and</strong>om<br />

from an array of choices (e.g., Canada, Japan,<br />

Philipp<strong>in</strong>es, Australia). To facilitate generalization,<br />

the teacher tuned over flashcards dur<strong>in</strong>g<br />

trials to show abbreviated forms of words,<br />

as appropriate. For example, the abbreviation<br />

for representative was pr<strong>in</strong>ted on the back of<br />

that card s<strong>in</strong>ce the abbreviation was often<br />

used <strong>in</strong> newspaper articles when referr<strong>in</strong>g to<br />

the state representative. Generalization materials<br />

for Jason consisted of local newspapers<br />

on which the teacher had highlighted the target<br />

words with a p<strong>in</strong>k marker. For example,<br />

one article showed a picture of the mayor with<br />

his name <strong>and</strong> title written <strong>in</strong> the picture’s<br />

caption. Generalization materials for Morgan<br />

<strong>and</strong> Rena consisted of 5 <strong>in</strong> 7 <strong>in</strong> white unl<strong>in</strong>ed<br />

cards on which the teacher had pasted<br />

newspaper cutt<strong>in</strong>gs of the targeted words.<br />

For science, the <strong>in</strong>structional materials<br />

consisted of real cook<strong>in</strong>g <strong>in</strong>gredients for Jason<br />

(i.e., cup of milk, stick of butter, cup of<br />

steam<strong>in</strong>g water). For Morgan <strong>and</strong> Rena, the<br />

core content <strong>in</strong>structional materials consisted<br />

of 5 <strong>in</strong> 7 <strong>in</strong> unl<strong>in</strong>ed white cards on<br />

which the words solid, liquid, <strong>and</strong> neither had<br />

been pr<strong>in</strong>ted <strong>in</strong> lower case letters with a<br />

black marker; 5 <strong>in</strong> 7 <strong>in</strong> unl<strong>in</strong>ed white<br />

cards with computer-generated l<strong>in</strong>e draw<strong>in</strong>gs<br />

of ice cycles, ra<strong>in</strong> fall<strong>in</strong>g from a cloud,<br />

<strong>and</strong> the sun with the correspond<strong>in</strong>g words<br />

(i.e., ice, ra<strong>in</strong>y, sunny) written <strong>in</strong> lower case<br />

letters under each picture with a black marker;<br />

<strong>and</strong> 3 <strong>in</strong> 5 <strong>in</strong> unl<strong>in</strong>ed white cards with<br />

computer-generated l<strong>in</strong>e draw<strong>in</strong>gs of cloth<strong>in</strong>g<br />

appropriate to the weather conditions<br />

(i.e., bath<strong>in</strong>g suits, coat <strong>and</strong> mittens, ra<strong>in</strong><br />

coat <strong>and</strong> umbrella). Generalization materials<br />

consisted 5 <strong>in</strong> 7 <strong>in</strong> unl<strong>in</strong>ed white cards<br />

conta<strong>in</strong><strong>in</strong>g computer-pr<strong>in</strong>ted target words<br />

<strong>in</strong> upper <strong>and</strong> lower case black letters with<br />

correspond<strong>in</strong>g computer-generated color<br />

pictures (i.e., Solid with stack of blocks, Liquid<br />

with ra<strong>in</strong>drops, Gas with gas tanks, Neither<br />

with symbol); 5 <strong>in</strong> 7 <strong>in</strong> white unl<strong>in</strong>ed<br />

cards with color photographs of weather<br />

(i.e., icicles, ra<strong>in</strong> puddles on the ground,<br />

26 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


TABLE 1<br />

Instructional Objectives <strong>and</strong> Materials for Each Participant Across Content Areas<br />

Student Core Content Objective/Materials Functional Application/Materials Generalization/Materials<br />

Jason Orally read president,<br />

representative, governor<br />

Morgan Po<strong>in</strong>t to mayor, county, district<br />

from choice of three<br />

Rena Po<strong>in</strong>t to country, state, city<br />

from choice of three<br />

Jason Verbally state property when<br />

presented with actual<br />

<strong>in</strong>gredients (e.g., butter is<br />

a solid)<br />

Morgan Po<strong>in</strong>t to l<strong>in</strong>e drawl<strong>in</strong>g of<br />

elements of weather that<br />

were solid (i.e., ice), liquid<br />

Rena (i.e., ra<strong>in</strong>), or neither (i.e.,<br />

sunsh<strong>in</strong>e) from choice of<br />

three<br />

sunsh<strong>in</strong>e peer<strong>in</strong>g through clouds, snow on<br />

trees, ice on highway); <strong>and</strong> 5 <strong>in</strong> 7 <strong>in</strong><br />

unl<strong>in</strong>ed white cards with color photographs<br />

of cloth<strong>in</strong>g appropriate to the weather conditions.<br />

For math, the <strong>in</strong>structional materials consisted<br />

of a calculator <strong>and</strong> 3 <strong>in</strong> 5 <strong>in</strong> white<br />

unl<strong>in</strong>ed cards conta<strong>in</strong><strong>in</strong>g color ads cut from<br />

the newspaper (e.g., picture of jacket with<br />

$11.99 pr<strong>in</strong>ted under it <strong>in</strong> black letters followed<br />

by a description of the item). In addition,<br />

the teacher presented Morgan <strong>and</strong> Rena<br />

with8½<strong>in</strong> 11 <strong>in</strong> sheets of white unl<strong>in</strong>ed<br />

paper on which three prices had been written<br />

so they could use a B<strong>in</strong>go dabber to <strong>in</strong>dicate<br />

the appropriate price once sales tax was calculated.<br />

Language Arts: Grade Level Vocabulary<br />

Verbally identify each (e.g.,<br />

George Bush <strong>in</strong> response to<br />

“Who is the president of<br />

the United States?”)<br />

Po<strong>in</strong>t to correspond<strong>in</strong>g<br />

<strong>in</strong>formation (e.g., 6th <strong>in</strong><br />

response to “What is your<br />

district?”) from choice of<br />

three<br />

Po<strong>in</strong>t to correspond<strong>in</strong>g<br />

<strong>in</strong>formation (e.g., United<br />

States <strong>in</strong> response to “What<br />

country do you live <strong>in</strong>?”)<br />

from choice of three<br />

Science: Properties of Elements (Gas, Liquid, Solid)<br />

Identify ways to change<br />

properties of these<br />

<strong>in</strong>gredients (e.g., melt<br />

butter to make it a liquid)<br />

Po<strong>in</strong>t to l<strong>in</strong>e draw<strong>in</strong>g of<br />

cloth<strong>in</strong>g appropriate to<br />

each weather type (e.g.,<br />

ra<strong>in</strong>–ra<strong>in</strong>coat <strong>and</strong><br />

umbrella) from choice of<br />

three<br />

Jason Use a calculator to compute<br />

Math: Order of Operations<br />

Compute price with sales tax<br />

Morgan<br />

Rena<br />

sales tax<br />

for items <strong>in</strong> newspaper ads<br />

Basel<strong>in</strong>e/Probe Procedures<br />

Orally read the target words<br />

<strong>in</strong> the context of a<br />

newspaper article<br />

Po<strong>in</strong>t to target words from<br />

newspaper pasted on<br />

cards from choice of<br />

three<br />

Po<strong>in</strong>t to target words from<br />

newspaper pasted on<br />

cards from choice of<br />

three<br />

Verbally state property<br />

when presented with<br />

photographs of<br />

<strong>in</strong>gredients<br />

Po<strong>in</strong>t to photograph of<br />

elements of weather that<br />

were solid, liquid, or<br />

neither from choice of<br />

three<br />

Compute price with sales<br />

tax us<strong>in</strong>g different ads/<br />

prices<br />

The <strong>in</strong>structor conducted a m<strong>in</strong>imum of three<br />

1:1 basel<strong>in</strong>e/probe sessions with the participants<br />

prior to <strong>in</strong>tervention. For language arts<br />

<strong>and</strong> science basel<strong>in</strong>e/probe sessions, she always<br />

followed the three probe trials for core<br />

content with three probe trials for functional<br />

applications. Dur<strong>in</strong>g probe trials, the teacher<br />

first obta<strong>in</strong>ed the student’s attention. This was<br />

a general attentional cue for Jason (e.g.,<br />

“Look”) <strong>and</strong> a specific attentional cue for<br />

Morgan <strong>and</strong> Rena (e.g., po<strong>in</strong>ted to each of<br />

three choices <strong>and</strong> waited for student to focus<br />

on each). She then gave the task direction <strong>and</strong><br />

waited 3 s for the student to respond. She<br />

asked Jason to give an expressive verbal response,<br />

while she asked Morgan <strong>and</strong> Rena to<br />

Functional Core Content / 27


give a receptive response by po<strong>in</strong>t<strong>in</strong>g to the<br />

correct card out of three choices placed at<br />

r<strong>and</strong>om (e.g., unspecified order <strong>in</strong> a horizontal<br />

row or <strong>in</strong> a vertical row) on the table. For<br />

math, the teacher gave a general attentional<br />

cue to all students followed by the task direction.<br />

When a student made an <strong>in</strong>correct response<br />

or failed to respond on a step of the<br />

task analysis, she ended the session (i.e., s<strong>in</strong>gle<br />

opportunity trial). At the end of each session,<br />

she praised the student for work<strong>in</strong>g hard,<br />

whether or not there was a correct response.<br />

Dur<strong>in</strong>g basel<strong>in</strong>e/probe trials, the <strong>in</strong>structor<br />

recorded a “” for each correct response, a<br />

“” for each <strong>in</strong>correct response, <strong>and</strong> a “0” for<br />

each failure to respond. She also recorded a<br />

“0” for each of the steps of the math task<br />

analysis that students did not have the opportunity<br />

to perform.<br />

Instructional Procedures<br />

The <strong>in</strong>structor used a CTD procedure to teach<br />

the targeted tasks. She used the same attentional<br />

cues <strong>and</strong> task directions dur<strong>in</strong>g <strong>in</strong>struction<br />

that she used dur<strong>in</strong>g basel<strong>in</strong>e/probe session.<br />

Dur<strong>in</strong>g the first session, she immediately<br />

prompted the student (0-s delay trial) through<br />

the correct response (i.e., identify<strong>in</strong>g sight<br />

words, identify<strong>in</strong>g properties of elements,<br />

comput<strong>in</strong>g sales tax, perform<strong>in</strong>g correspond<strong>in</strong>g<br />

functional applications). Dur<strong>in</strong>g all subsequent<br />

sessions, she waited a 3-s delay <strong>in</strong>terval<br />

before deliver<strong>in</strong>g a prompt. The controll<strong>in</strong>g<br />

prompt for Jason consisted of verbal models<br />

for language arts <strong>and</strong> science content <strong>and</strong><br />

verbal directions for steps of the math task<br />

analysis. The controll<strong>in</strong>g prompts for Morgan<br />

<strong>and</strong> Rena consisted of verbal models paired<br />

with gestures (e.g., po<strong>in</strong>t<strong>in</strong>g to the correct<br />

card choice) dur<strong>in</strong>g language arts <strong>and</strong> science<br />

sessions, <strong>and</strong> verbal directions paired with a<br />

model on an additional calculator dur<strong>in</strong>g<br />

math sessions. For each correct response, the<br />

<strong>in</strong>structor delivered praise, <strong>and</strong>, for each <strong>in</strong>correct<br />

or no response, the <strong>in</strong>structor provided<br />

a model of the correct response. Dur<strong>in</strong>g<br />

<strong>in</strong>struction, the <strong>in</strong>structor recorded a “” for<br />

all unprompted <strong>and</strong> prompted correct responses,<br />

a “” for all unprompted <strong>and</strong><br />

prompted <strong>in</strong>correct responses, <strong>and</strong> a “0” for<br />

all failures to respond follow<strong>in</strong>g the prompt.<br />

Diagrams of typical session sequences for each<br />

of the tasks can be found <strong>in</strong> Table 2.<br />

Ma<strong>in</strong>tenance Procedures<br />

Once the participants reached criterion of a<br />

m<strong>in</strong>imum of 3 sessions of 100% accuracy on a<br />

task, the <strong>in</strong>structor conducted <strong>in</strong>termittent<br />

ma<strong>in</strong>tenance trials on that word <strong>in</strong> the same<br />

manner as basel<strong>in</strong>e probe/trials for the rema<strong>in</strong>der<br />

of the <strong>in</strong>vestigation.<br />

Generalization Procedures<br />

The state alternate assessment required that<br />

each participat<strong>in</strong>g student complete probe trials<br />

on each st<strong>and</strong>ard prior to <strong>and</strong> follow<strong>in</strong>g<br />

<strong>in</strong>struction. These probe trials could not be<br />

conducted <strong>in</strong> the same manner as <strong>in</strong>struction<br />

s<strong>in</strong>ce the purpose was to assess conceptual<br />

underst<strong>and</strong><strong>in</strong>g. (The alternate assessment also<br />

required that teachers submit work samples<br />

from <strong>in</strong>struction to provide evidence that the<br />

probe trial format was different.) Because<br />

these alternate assessment trials consisted of<br />

different materials or applications than those<br />

used dur<strong>in</strong>g <strong>in</strong>struction, we considered them<br />

to be probes for generalization. The <strong>in</strong>structor<br />

conducted these generalization sessions<br />

for the three content areas <strong>in</strong> the fall prior to<br />

conduct<strong>in</strong>g basel<strong>in</strong>e/probe sessions <strong>and</strong> aga<strong>in</strong><br />

<strong>in</strong> the spr<strong>in</strong>g follow<strong>in</strong>g <strong>in</strong>struction on each of<br />

the content areas. Dur<strong>in</strong>g each 1:1 probe for<br />

generalization, the <strong>in</strong>structor delivered an attentional<br />

cue (i.e., student’s name), delivered<br />

the task direction (i.e., What word?), <strong>and</strong><br />

waited 5 s for a response. She did not provide<br />

a consequence s<strong>in</strong>ce the state alternate assessment<br />

does not allow teachers to re<strong>in</strong>force or<br />

correct responses dur<strong>in</strong>g probe trials. The <strong>in</strong>structor<br />

conducted one generalization trial<br />

per content area at the beg<strong>in</strong>n<strong>in</strong>g of the <strong>in</strong>vestigation<br />

<strong>and</strong> three trials per content area at<br />

the end of the <strong>in</strong>vestigation.<br />

Experimental Design<br />

The experimental design employed dur<strong>in</strong>g<br />

the <strong>in</strong>vestigation was a multiple probe design<br />

across behaviors (i.e., tasks) replicated across<br />

participants (Holcombe, Wolery, & Gast,<br />

1994; Tawney & Gast, 1984). While the language<br />

arts <strong>and</strong> science tasks conta<strong>in</strong>ed trials<br />

28 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


TABLE 2<br />

Instructional Components for Each Participant Across Content Areas<br />

Trial Component Language Arts Science Math<br />

Attentional Cue<br />

Jason General cue (“Look”) General cue (“Look”) General cue<br />

Morgan <strong>and</strong> Rena Specific cue (“Look” Specific cue (“Look” General cue<br />

while po<strong>in</strong>t<strong>in</strong>g to<br />

while po<strong>in</strong>t<strong>in</strong>g to<br />

Task Direction<br />

choices)<br />

choices)<br />

Jason “Tell me. . .”<br />

“Tell me. . .”<br />

“Compute the sales tax<br />

(expressive task)<br />

(expressive task)<br />

for. . .”<br />

Morgan <strong>and</strong> Rena “Show me. . .”<br />

“Show me. . .” “Compute the sales tax<br />

Delay Interval<br />

(receptive tasks)<br />

(receptive tasks)<br />

for. . .”<br />

Jason, Morgan, 0 s dur<strong>in</strong>g 1<br />

<strong>and</strong> Rena<br />

st session 0 s dur<strong>in</strong>g 1<br />

<strong>and</strong> 3 s dur<strong>in</strong>g<br />

subsequent sessions<br />

st session 0 s dur<strong>in</strong>g 1<br />

<strong>and</strong> 3 s dur<strong>in</strong>g<br />

subsequent sessions<br />

st session<br />

<strong>and</strong> 3 s dur<strong>in</strong>g<br />

Controll<strong>in</strong>g Prompt<br />

subsequent sessions<br />

Jason Verbal model Verbal model Verbal directions<br />

Morgan <strong>and</strong> Rena Verbal model with Verbal model with Verbal directions with<br />

Consequence<br />

gesture<br />

gesture<br />

model<br />

Jason, Morgan, Praise correct<br />

Praise correct<br />

Praise correct response<br />

<strong>and</strong> Rena<br />

response or<br />

response or<br />

or provide model<br />

provide model for provide model for for <strong>in</strong>correct or no<br />

<strong>in</strong>correct or no<br />

<strong>in</strong>correct or no<br />

response<br />

response<br />

response<br />

on both core content <strong>and</strong> functional applications,<br />

the math task comb<strong>in</strong>ed functional <strong>and</strong><br />

core content <strong>in</strong> each trial. Thus, two separate<br />

data paths appear on the first two tiers of the<br />

graph while a s<strong>in</strong>gle data path appears on the<br />

third tier (see Figures 1–3).<br />

Reliability<br />

Once per week per condition (i.e., total of 70<br />

sessions), we (the first <strong>and</strong> second authors)<br />

collected reliability data on both the dependent<br />

<strong>and</strong> <strong>in</strong>dependent variables. We collected<br />

reliability data at the same time dur<strong>in</strong>g 32.9%<br />

of the reliability sessions; otherwise, we took<br />

turns collect<strong>in</strong>g reliability data. The overall<br />

reliability agreement between reliability data<br />

collectors was 100% for the dependent variable<br />

<strong>and</strong> 99.8% (range 95–100%) for the<br />

<strong>in</strong>dependent variable.<br />

We used a po<strong>in</strong>t-by-po<strong>in</strong>t method (Tawney<br />

& Gast, 1984) to calculate <strong>in</strong>terobserver reliability<br />

agreement with the follow<strong>in</strong>g formula:<br />

number of agreements divided by number of<br />

agreements plus disagreements multiplied by<br />

100. We calculated procedural reliability<br />

agreement (Bill<strong>in</strong>gsley, White, & Munson,<br />

1980) with the follow<strong>in</strong>g formula: number of<br />

observed behaviors divided by number of<br />

planned behaviors multiplied by 100. The specific<br />

procedural behaviors <strong>in</strong>cluded (a) us<strong>in</strong>g<br />

the correct materials for the task, (b) provid<strong>in</strong>g<br />

an <strong>in</strong>itial attentional cue, (c) deliver<strong>in</strong>g<br />

the task direction, (d) wait<strong>in</strong>g the proper <strong>in</strong>terval<br />

for a response, (e) provid<strong>in</strong>g a controll<strong>in</strong>g<br />

prompt (dur<strong>in</strong>g <strong>in</strong>tervention trials only),<br />

<strong>and</strong> (f) deliver<strong>in</strong>g the appropriate consequence.<br />

Overall reliability agreement dur<strong>in</strong>g the <strong>in</strong>vestigation<br />

was 99.1% (range 81.8–100%)<br />

on the dependent variable <strong>and</strong> 99.3%<br />

(range 95–100%) on the <strong>in</strong>dependent variable.<br />

Specifically, dependent variable reliability<br />

was 99.5% (range 83–100%) dur<strong>in</strong>g<br />

basel<strong>in</strong>e <strong>and</strong> ma<strong>in</strong>tenance probe sessions,<br />

98.5% (range 83–100%) dur<strong>in</strong>g <strong>in</strong>struc-<br />

Functional Core Content / 29


Figure 1. Graphic data for Jason. Closed circles <strong>in</strong>dicate functional content <strong>and</strong> open circles <strong>in</strong>dicate core<br />

content. Closed triangles <strong>in</strong>dicate generalized functional content <strong>and</strong> open triangles <strong>in</strong>dicate<br />

generalized core content. Unconnected data po<strong>in</strong>ts <strong>in</strong>dicate unscheduled breaks <strong>in</strong> <strong>in</strong>struction due<br />

to absences or scheduled breaks for ma<strong>in</strong>tenance.<br />

tional sessions, <strong>and</strong> 100% dur<strong>in</strong>g generalization<br />

sessions; <strong>in</strong>dependent variable reliability<br />

was 99.7% (range 96–100%) dur<strong>in</strong>g basel<strong>in</strong>e<br />

<strong>and</strong> ma<strong>in</strong>tenance probe sessions; 99.4%<br />

(range 95.5–100%) dur<strong>in</strong>g <strong>in</strong>structional<br />

sessions, <strong>and</strong> 99% (range 95–100%) dur<strong>in</strong>g<br />

generalization sessions. Overall dependent<br />

variable reliability agreement was 100% for<br />

Jason, 99.5% (range 90.9–100%) for Morgan,<br />

<strong>and</strong> 98.7% (range 83–100%) for Rena;<br />

overall <strong>in</strong>dependent variable reliability agreement<br />

was 99.6% (range 96.8–100%) for<br />

Jason, 99.5% (range 95.5–100%) for Mor-<br />

gan, <strong>and</strong> 99.6% (range 96.8–100%) for<br />

Rena.<br />

Results<br />

This <strong>in</strong>vestigation paired functional <strong>and</strong> core<br />

content dur<strong>in</strong>g <strong>in</strong>struction us<strong>in</strong>g a CTD procedure<br />

with three students with moderate disabilities.<br />

As shown <strong>in</strong> Figures 1–3, all three<br />

students acquired the language arts <strong>and</strong> science<br />

core content. One student also acquired<br />

math content, while the two rema<strong>in</strong><strong>in</strong>g stu-<br />

30 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Figure 2. Graphic data for Morgan. Closed circles <strong>in</strong>dicate functional content <strong>and</strong> open circles <strong>in</strong>dicate core<br />

content. Closed triangles <strong>in</strong>dicate generalized functional content <strong>and</strong> open triangles <strong>in</strong>dicate<br />

generalized core content. Unconnected data po<strong>in</strong>ts <strong>in</strong>dicate unscheduled breaks <strong>in</strong> <strong>in</strong>struction due<br />

to absences or scheduled breaks for ma<strong>in</strong>tenance.<br />

dents had made m<strong>in</strong>imal progress <strong>in</strong> math<br />

before the <strong>in</strong>vestigation ended due to time<br />

constra<strong>in</strong>ts. Although all three students were<br />

labeled as hav<strong>in</strong>g moderate disabilities <strong>and</strong><br />

qualified for the state’s alternate assessment,<br />

their learn<strong>in</strong>g curves were different <strong>in</strong> the<br />

amount of <strong>in</strong>structional time required <strong>and</strong> the<br />

types of modification needed to meet criterion.<br />

Jason, whose reported IQ score placed him<br />

at the upper edge of the moderate disability<br />

range, mastered the target skills across all<br />

three content areas <strong>in</strong> the least amount of<br />

time. While Jason could not perform the target<br />

math skill prior to <strong>in</strong>struction, his data<br />

<strong>in</strong>dicated that he was able to give correct responses<br />

dur<strong>in</strong>g some of the trials on language<br />

arts <strong>and</strong> science content dur<strong>in</strong>g basel<strong>in</strong>e condition.<br />

He could not read the target core content<br />

newspaper words <strong>in</strong> language arts, but he<br />

could state 2 out of 3 of the functional pieces<br />

of <strong>in</strong>formation related to those words prior to<br />

<strong>in</strong>tervention. In addition, he could identify an<br />

average of 75% of the core content <strong>in</strong> science<br />

although he could apply this to a functional<br />

activity with only 33% accuracy. Once <strong>in</strong>struction<br />

was implemented, Jason met criterion on<br />

language arts content <strong>in</strong> an average of 12.5<br />

sessions, on science content <strong>in</strong> an average of 4<br />

sessions, <strong>and</strong> on math content <strong>in</strong> an average of<br />

19 sessions (gr<strong>and</strong> mean 11.8 sessions). The<br />

only difference <strong>in</strong> the acquisition of functional<br />

versus core content was <strong>in</strong> language arts<br />

where it took 4 additional sessions to acquire<br />

the core content read<strong>in</strong>g words, which is not<br />

surpris<strong>in</strong>g s<strong>in</strong>ce he had demonstrated that he<br />

already knew some of the functional content<br />

prior to <strong>in</strong>struction. Because Jason met criterion<br />

so quickly across content areas, his <strong>in</strong>structor<br />

chose to cont<strong>in</strong>ue <strong>in</strong>struction while<br />

she th<strong>in</strong>ned re<strong>in</strong>forcement to a schedule of<br />

VR3 for 2 days at 100% criterion, a practice<br />

Functional Core Content / 31


Figure 3. Graphic data for Rena. Closed circles <strong>in</strong>dicate functional content <strong>and</strong> open circles <strong>in</strong>dicate core<br />

content. Closed triangles <strong>in</strong>dicate generalized functional content <strong>and</strong> open triangles <strong>in</strong>dicate<br />

generalized core content. Unconnected data po<strong>in</strong>ts <strong>in</strong>dicate unscheduled breaks <strong>in</strong> <strong>in</strong>struction due<br />

to absences or scheduled breaks for ma<strong>in</strong>tenance.<br />

that may have <strong>in</strong>fluenced ma<strong>in</strong>tenance data.<br />

Jason ma<strong>in</strong>ta<strong>in</strong>ed language arts content with a<br />

mean of 92.5% accuracy (functional content<br />

88.3%, core content 96.7%), he<br />

ma<strong>in</strong>ta<strong>in</strong>ed science content with 99% accuracy<br />

(functional content 100%, core content<br />

98%), <strong>and</strong> he ma<strong>in</strong>ta<strong>in</strong>ed math content<br />

with 96.4% accuracy. Dur<strong>in</strong>g the<br />

generalization probes that Jason’s <strong>in</strong>structor<br />

conducted for his alternate assessment, Jason<br />

<strong>in</strong>creased his ability to identify language arts<br />

core content from 0% to a mean of 88.7%,<br />

science core content from 27% to a mean of<br />

100%, <strong>and</strong> math core content from 0% to a<br />

mean of 100%. Although functional content<br />

was not required <strong>in</strong> the alternate assessment,<br />

Jason <strong>in</strong>creased his ability to identify language<br />

arts functional content from 66.6% to a mean<br />

of 100%, science functional content from<br />

33.3% to a mean of 100%, <strong>and</strong> math functional<br />

content from 0% to a mean of 100%.<br />

Unlike Jason, Morgan struggled to acquire<br />

the targeted content across curricular areas.<br />

While Morgan could not perform the target<br />

language arts or math skills prior to <strong>in</strong>struction,<br />

his data <strong>in</strong>dicated that he was able to give<br />

correct responses dur<strong>in</strong>g some of the trials on<br />

science content dur<strong>in</strong>g basel<strong>in</strong>e condition<br />

(functional content 62.9%, core content <br />

11.1%). Once <strong>in</strong>struction was implemented,<br />

Morgan met criterion on language arts content<br />

<strong>in</strong> an average of 30 sessions (functional<br />

content 24 sessions, core content 36 sessions)<br />

<strong>and</strong> on science content <strong>in</strong> an average of<br />

32 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


36.5 sessions (functional content 4 sessions,<br />

core content 69 sessions). When Morgan<br />

struggled over time to reach criterion on core<br />

content <strong>in</strong> language arts <strong>and</strong> science, his <strong>in</strong>structor<br />

made modifications to the <strong>in</strong>structional<br />

procedure. In language arts, she began<br />

us<strong>in</strong>g differential re<strong>in</strong>forcement by deliver<strong>in</strong>g<br />

praise for correct responses before the<br />

prompt only <strong>and</strong> ignor<strong>in</strong>g correct responses<br />

follow<strong>in</strong>g the prompt. After this modification<br />

was implemented for four days, Morgan began<br />

to <strong>in</strong>crease the number of correct responses<br />

before the prompt. In science, she added tokens<br />

to be exchanged for m<strong>in</strong>utes of computer<br />

time <strong>in</strong> addition to praise as part of the<br />

differential re<strong>in</strong>forcement procedure when<br />

he failed to reach a third session of criterion<br />

after an extended period of <strong>in</strong>struction. After<br />

this modification was implemented for 14<br />

days, Morgan f<strong>in</strong>ally reached criterion. Morgan’s<br />

<strong>in</strong>structor also cont<strong>in</strong>ued <strong>in</strong>struction <strong>in</strong><br />

language arts <strong>and</strong> science beyond criterion<br />

because she hoped that he would eventually<br />

meet three consecutive days of correct respond<strong>in</strong>g<br />

<strong>in</strong> both functional <strong>and</strong> core content<br />

dur<strong>in</strong>g the same sessions.<br />

Due to time constra<strong>in</strong>ts, we decided to beg<strong>in</strong><br />

<strong>in</strong>struction <strong>in</strong> a new area of content before<br />

<strong>in</strong>struction ended on a previous area of<br />

content. Even with this modification to the<br />

experimental design, Morgan failed to meet<br />

criterion <strong>in</strong> math prior to the end of the <strong>in</strong>vestigation,<br />

although his correct responses <strong>in</strong>creased<br />

from 0% to 49% before <strong>in</strong>struction<br />

ended. Because of Morgan’s erratic performance<br />

dur<strong>in</strong>g <strong>in</strong>struction, his <strong>in</strong>structor did<br />

not th<strong>in</strong> re<strong>in</strong>forcement once criterion was<br />

met. Morgan ma<strong>in</strong>ta<strong>in</strong>ed language arts content<br />

with a mean of 75% accuracy (functional<br />

content 76.2%, core content 73.7%), <strong>and</strong><br />

he ma<strong>in</strong>ta<strong>in</strong>ed science content with 72.2% accuracy<br />

(functional content 100%, core content<br />

44.4%). Dur<strong>in</strong>g generalization probes<br />

that Morgan’s <strong>in</strong>structor conducted for his<br />

alternate assessment, he <strong>in</strong>creased his ability<br />

to identify language arts core content from<br />

0% to a mean of 100% <strong>and</strong> science core content<br />

from 0% to a mean of 77.7%, but he<br />

failed to <strong>in</strong>crease his math core content from<br />

0%. Although functional content was not required<br />

<strong>in</strong> the alternate assessment, Morgan<br />

<strong>in</strong>creased his ability to identify both language<br />

arts <strong>and</strong> science functional content from 0%<br />

to a mean of 100% dur<strong>in</strong>g the alternate assessment<br />

probes.<br />

Like Jason, Rena quickly acquired targeted<br />

content <strong>in</strong> language arts; but, like Morgan,<br />

she also struggled to acquire the targeted content<br />

<strong>in</strong> science. Dur<strong>in</strong>g basel<strong>in</strong>e condition,<br />

Rena identified one piece of functional <strong>in</strong>formation<br />

dur<strong>in</strong>g a s<strong>in</strong>gle session <strong>in</strong> language<br />

arts, she was able to give correct responses<br />

dur<strong>in</strong>g some of the trials on science content<br />

(functional content 58.3%, core content <br />

20.8%), <strong>and</strong> she failed to make any correct<br />

responses on math content. Once <strong>in</strong>struction<br />

was implemented, Rena met criterion on language<br />

arts content <strong>in</strong> an average of 9 sessions<br />

(functional content 10 sessions, core content<br />

8 sessions) <strong>and</strong> on science content <strong>in</strong><br />

an average of 22 sessions (functional content<br />

32 sessions, core content 12 sessions).<br />

Although the <strong>in</strong>structor cont<strong>in</strong>ued <strong>in</strong>struction<br />

<strong>in</strong> language arts long enough to th<strong>in</strong><br />

re<strong>in</strong>forcement to VR3 for two days, she cont<strong>in</strong>ued<br />

<strong>in</strong>struction on science content without<br />

th<strong>in</strong>n<strong>in</strong>g re<strong>in</strong>forcement, hop<strong>in</strong>g that Rena<br />

would reach criterion on both functional <strong>and</strong><br />

core content on the same day; when this failed<br />

to occur after 18 additional sessions, she discont<strong>in</strong>ued<br />

<strong>in</strong>struction <strong>in</strong> science <strong>and</strong> began<br />

<strong>in</strong>struction <strong>in</strong> math s<strong>in</strong>ce the deadl<strong>in</strong>e for submission<br />

of alternate assessment portfolios was<br />

draw<strong>in</strong>g near. When Rena failed to show<br />

progress <strong>in</strong> math over 13 sessions, the <strong>in</strong>structor<br />

discont<strong>in</strong>ued <strong>in</strong>struction <strong>and</strong> conducted<br />

the alternate portfolio assessment probes.<br />

Rena ma<strong>in</strong>ta<strong>in</strong>ed language arts content with a<br />

mean of 90.8% accuracy (functional content<br />

86.6%, core content 95%), <strong>and</strong> she<br />

ma<strong>in</strong>ta<strong>in</strong>ed science content (one session) with<br />

66.6% accuracy (functional content 33.3%,<br />

core content 100%). Dur<strong>in</strong>g the generalization<br />

probes that Rena’s <strong>in</strong>structor conducted<br />

for her alternate assessment, Rena <strong>in</strong>creased<br />

her ability to identify both language<br />

arts <strong>and</strong> science core content from 33.3% to a<br />

mean of 88.9%. In addition, she <strong>in</strong>creased her<br />

ability to identify language arts functional content<br />

from 0% to a mean of 88.9% <strong>and</strong> her<br />

ability to identify science functional content<br />

from 33.3% to a mean of 100%. Although<br />

Rena was unable to perform any correct responses<br />

<strong>in</strong> math dur<strong>in</strong>g the basel<strong>in</strong>e probe<br />

session <strong>and</strong> showed no progress dur<strong>in</strong>g <strong>in</strong>tervention,<br />

she performed 22% percent of the<br />

Functional Core Content / 33


correct responses dur<strong>in</strong>g a s<strong>in</strong>gle post-<strong>in</strong>tervention<br />

generalization probe session (mean <br />

7.3%).<br />

Discussion<br />

The purpose of this <strong>in</strong>vestigation was to teach<br />

both core <strong>and</strong> functional content simultaneously<br />

<strong>in</strong> a mean<strong>in</strong>gful context. We did not<br />

seek to compare the acquisition of core content<br />

<strong>and</strong> functional content, but rather to<br />

teach them together so that the participants<br />

would (a) learn core content required for all<br />

students <strong>in</strong> the school, as well as (b) learn<br />

skills related to the required core content that<br />

would be mean<strong>in</strong>gful to their lives. We made<br />

the assumption that learn<strong>in</strong>g core content<br />

would result <strong>in</strong> positive outcomes <strong>in</strong> the students’<br />

alternate assessment. In the past, teachers<br />

of students with MSD often targeted functional<br />

academic skills for <strong>in</strong>struction based an<br />

ecological assessment. In this study, we took<br />

another approach, beg<strong>in</strong>n<strong>in</strong>g with grade level<br />

core content st<strong>and</strong>ards required <strong>in</strong> the state’s<br />

alternate assessment <strong>and</strong> then add<strong>in</strong>g correspond<strong>in</strong>g<br />

functional content <strong>in</strong> an effort to<br />

make the identified core content more mean<strong>in</strong>gful<br />

to the students. Although students cont<strong>in</strong>ued<br />

to have access to core content <strong>in</strong> the<br />

general education academic classes <strong>in</strong> which<br />

they were <strong>in</strong>cluded, they received supplementary<br />

direct <strong>in</strong>struction on the skills targeted<br />

for this study <strong>in</strong> the special education resource<br />

room.<br />

We sought to teach core content <strong>and</strong> functional<br />

content together <strong>in</strong> response to personal<br />

observations we have made s<strong>in</strong>ce the<br />

state’s current alternate assessment, which targets<br />

core content, was m<strong>and</strong>ated. These observations<br />

were made <strong>in</strong> multiple schools across<br />

the dozen districts <strong>in</strong> which we supervise student<br />

field experiences. S<strong>in</strong>ce the alternate assessment<br />

of core content st<strong>and</strong>ards identified<br />

by the state has become high stakes, we have<br />

repeatedly observed teachers teach<strong>in</strong>g isolated<br />

bits of core content <strong>in</strong>formation out of<br />

context. Often students have been taught to<br />

make responses without be<strong>in</strong>g able to demonstrate<br />

that they have acquired underst<strong>and</strong><strong>in</strong>g<br />

of an underly<strong>in</strong>g concept. For example, one<br />

st<strong>and</strong>ard assessed requires the students to use<br />

the Pythagorean Theorem to solve a problem.<br />

We observed students as they were given a<br />

series of steps to follow (presented through<br />

pictures <strong>and</strong> symbols) that required them to<br />

put numbers <strong>in</strong>to a calculator, press the correct<br />

symbol, <strong>and</strong> then match the number on<br />

the calculator to one of three choices. In<br />

other words, they were given the formula<br />

(a 2 b 2 c 2 ), given the amount of the first<br />

two variables, <strong>and</strong> directed to put them <strong>in</strong>to<br />

the calculator <strong>in</strong> the correct order to solve for<br />

the third variable. In essence, this is a match<strong>in</strong>g<br />

<strong>and</strong> a sequenc<strong>in</strong>g task. Students could<br />

successfully complete it even with no conceptual<br />

underst<strong>and</strong><strong>in</strong>g of the Pythagorean Theorem.<br />

Many of these students had no conceptual<br />

underst<strong>and</strong><strong>in</strong>g of the numbers, they<br />

simply followed the steps <strong>in</strong> order <strong>and</strong><br />

matched the number on the calculator with<br />

one on the sheet. We observed daily <strong>in</strong>structional<br />

sessions target<strong>in</strong>g this isolated skill of<br />

solv<strong>in</strong>g for c 2 that utilized a great deal of<br />

<strong>in</strong>structional time across the school year for<br />

what ultimately appeared to be little ga<strong>in</strong>. Students<br />

clearly can learn to follow a series of<br />

<strong>in</strong>structions, but, if they cannot apply knowledge<br />

for practical purposes, the skill is of little<br />

use. The students were taught a response that<br />

would earn po<strong>in</strong>ts on the assessment, but<br />

which is of no use <strong>in</strong> any other circumstance.<br />

While this is clearly not the <strong>in</strong>tent of the alternate<br />

assessment, this is what we have observed<br />

<strong>and</strong> cont<strong>in</strong>ue to observe <strong>in</strong> classrooms;<br />

therefore, it seems important to ensure that<br />

core content is taught <strong>in</strong> a mean<strong>in</strong>gful context.<br />

In addition, because many students with<br />

MSD have not been able to acquire the required<br />

core content as it is presented <strong>in</strong> general<br />

education classes (e.g., large group lectures,<br />

discovery learn<strong>in</strong>g) <strong>and</strong> because they<br />

need longer periods of <strong>in</strong>tensive <strong>in</strong>struction<br />

than is typically provided <strong>in</strong> general education<br />

classes, we have observed teachers pull<strong>in</strong>g students<br />

out of <strong>in</strong>clusive classes to provide daily<br />

<strong>in</strong>struction <strong>in</strong> a resource sett<strong>in</strong>g. In some<br />

cases, entire days across months have been<br />

devoted to <strong>in</strong>struction of s<strong>in</strong>gle pieces of required<br />

core content. There is a f<strong>in</strong>ite amount<br />

of time available for <strong>in</strong>struction, <strong>and</strong> spend<strong>in</strong>g<br />

a large amount of it for <strong>in</strong>struction on isolated<br />

pieces of core content may prevent teachers<br />

from devot<strong>in</strong>g time to functional skills that<br />

might be useful or important to the students’<br />

34 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


daily lives when they transition out of the<br />

school sett<strong>in</strong>g.<br />

F<strong>in</strong>ally, we have received first-h<strong>and</strong> reports<br />

of adm<strong>in</strong>istrators dictat<strong>in</strong>g that IEPs be written<br />

to conta<strong>in</strong> core content only or that functional<br />

skills on IEPs be given m<strong>in</strong>imal <strong>in</strong>struction<br />

time (e.g., 30 m<strong>in</strong> once per week).<br />

Although the state <strong>in</strong> which we conducted this<br />

<strong>in</strong>vestigation may not represent national<br />

trends, the volume of classrooms <strong>in</strong> which we<br />

have observed has conv<strong>in</strong>ced us that we need<br />

to develop a way to provide more mean<strong>in</strong>gful<br />

<strong>in</strong>struction on core content.<br />

We struggled <strong>in</strong> <strong>in</strong>dentify<strong>in</strong>g functional applications<br />

of the core content targeted for this<br />

<strong>in</strong>vestigation. For this reason, we ruled out<br />

<strong>in</strong>clud<strong>in</strong>g some of the content <strong>in</strong> the <strong>in</strong>vestigation<br />

that the <strong>in</strong>structor was required to<br />

teach dur<strong>in</strong>g the same year (i.e., identify<strong>in</strong>g<br />

elements of short stories, us<strong>in</strong>g persuasive<br />

writ<strong>in</strong>g techniques, identify<strong>in</strong>g the effects of<br />

straight l<strong>in</strong>e motion, identify<strong>in</strong>g components<br />

of ecosystems).<br />

For the language arts st<strong>and</strong>ard, we selected<br />

grade level sight words found <strong>in</strong> the newspaper<br />

for the follow<strong>in</strong>g reasons: (a) the words<br />

would be useful <strong>in</strong> the social studies classes the<br />

students attended, (b) the students might encounter<br />

these words <strong>in</strong> their everyday lives; (c)<br />

the words might make them more aware of<br />

current events <strong>in</strong> their community; <strong>and</strong> (d)<br />

the words might allow them to engage <strong>in</strong> <strong>in</strong>teractions<br />

with peers, family members, <strong>and</strong><br />

community members. In select<strong>in</strong>g words from<br />

the news, we noted that general education<br />

classrooms <strong>in</strong> the region receive daily newspapers<br />

as part the educational mission of the<br />

local major newspaper <strong>and</strong> that teachers often<br />

use the newspaper to facilitate discussion of<br />

current events. Because we believed that recognition<br />

of the sight words out of context was<br />

mean<strong>in</strong>gless, we added <strong>in</strong>formation related to<br />

the words as functional content. One of the<br />

problems encountered dur<strong>in</strong>g the <strong>in</strong>vestigation<br />

was that the <strong>in</strong>formation changed as current<br />

events changed. For example, the governor<br />

was replaced by the opposition dur<strong>in</strong>g the<br />

fall election. To address this, we began present<strong>in</strong>g<br />

nontargeted <strong>in</strong>formation as <strong>in</strong>structive<br />

feedback dur<strong>in</strong>g the consequence of each<br />

trial. For example, the <strong>in</strong>structor would say,<br />

“Yes, Ernie Fletcher used to be the correct<br />

answer because he used to be the governor.<br />

S<strong>in</strong>ce the election, our new governor is Steve<br />

Beshear.” This proved to be an effective <strong>in</strong>tervention<br />

s<strong>in</strong>ce the students began respond<strong>in</strong>g<br />

with the new <strong>in</strong>formation over time. Thus, we<br />

urge teachers to consider the dynamic nature<br />

of <strong>in</strong>structional targets that may be similar <strong>in</strong><br />

nature <strong>and</strong> to make plans to use strategies to<br />

address such changes when they are necessary.<br />

The science st<strong>and</strong>ard, although we did not<br />

anticipate this, proved more difficult to l<strong>in</strong>k to<br />

functional content. When we identified properties<br />

of the elements of the Periodic Table as<br />

the required middle school content to address<br />

<strong>in</strong> this <strong>in</strong>vestigation, we struggled to make this<br />

<strong>in</strong>formation relevant to the students. In time,<br />

we decided to use different functional applications<br />

across students. S<strong>in</strong>ce Jason had cook<strong>in</strong>g<br />

identified for <strong>in</strong>struction on his IEP, we<br />

decided to l<strong>in</strong>k the properties of solid, liquid,<br />

<strong>and</strong> gas to this activity <strong>and</strong> to teach how these<br />

properties can be changed. S<strong>in</strong>ce the rema<strong>in</strong><strong>in</strong>g<br />

participants did not engage <strong>in</strong> cook<strong>in</strong>g, we<br />

selected weather conditions as examples of<br />

properties with which the rema<strong>in</strong><strong>in</strong>g students<br />

might be more familiar. Instead of discuss<strong>in</strong>g<br />

how the properties of weather changes (e.g.,<br />

ra<strong>in</strong> turns to sleet, ice, or snow), we decided to<br />

l<strong>in</strong>k the weather to appropriate dress. This<br />

focus allowed us to teach only the two properties<br />

of solid <strong>and</strong> liquid. S<strong>in</strong>ce the alternate<br />

assessment required that students have three<br />

options dur<strong>in</strong>g probes to decrease the likelihood<br />

of gett<strong>in</strong>g a correct answer by chance,<br />

we added a third response of “neither” <strong>and</strong><br />

l<strong>in</strong>ked this to sunsh<strong>in</strong>e, allow<strong>in</strong>g us to add<br />

additional options for dress<strong>in</strong>g for sunny<br />

weather. In addition, while we required Jason<br />

to make an expressive verbal response, we<br />

chose to allow the rema<strong>in</strong><strong>in</strong>g students to make<br />

receptive responses. Once <strong>in</strong>struction was designed,<br />

the targets for science differed as to<br />

whether the students were presented with concrete<br />

objects (e.g., cook<strong>in</strong>g <strong>in</strong>gredients) versus<br />

pictures <strong>and</strong> as to the type of response<br />

(i.e., verbally state response versus make a<br />

choice from a selection of possible responses).<br />

In mak<strong>in</strong>g functional l<strong>in</strong>ks to core content, we<br />

recommend that teachers consider student<br />

differences <strong>and</strong> student IEP objectives, as well<br />

as what might be most mean<strong>in</strong>gful for each<br />

student given their backgrounds <strong>and</strong> abilities,<br />

as well as their current <strong>and</strong> future environments.<br />

Functional Core Content / 35


F<strong>in</strong>ally, although we anticipated that the<br />

math st<strong>and</strong>ard would be the most difficult skill<br />

to teach <strong>in</strong> a functional manner, this proved<br />

false. When we selected order of operations as<br />

the required core content, we found that it<br />

had many useful applications <strong>and</strong> that peers<br />

often learn math through solv<strong>in</strong>g word problems<br />

based on real world applications. Thus,<br />

<strong>in</strong>stead of teach<strong>in</strong>g core content <strong>and</strong> functional<br />

content as two separate targets for <strong>in</strong>struction,<br />

we were able to comb<strong>in</strong>e the two by<br />

teach<strong>in</strong>g order of operations with<strong>in</strong> the mean<strong>in</strong>gful<br />

task of comput<strong>in</strong>g sales tax on items for<br />

purchase. Comput<strong>in</strong>g sales tax, however,<br />

proved to be more difficult than the other two<br />

identified tasks, likely because it was a cha<strong>in</strong>ed<br />

task rather than a discrete task. To master the<br />

cha<strong>in</strong>ed task, the students had to learn a sequence<br />

of l<strong>in</strong>ked responses <strong>in</strong>stead of six s<strong>in</strong>gle<br />

responses, <strong>and</strong> some of the steps of the<br />

task changed with each application (e.g., enter<strong>in</strong>g<br />

the price) s<strong>in</strong>ce the price changed with<br />

each trial. Due to snow days, absences, <strong>and</strong> the<br />

extended time needed to master science content,<br />

we ran out of <strong>in</strong>structional time before<br />

two of the students mastered the math task. If<br />

<strong>in</strong>struction had not been limited by the time<br />

lag requirement of the experimental design, it<br />

is possible that these students might have mastered<br />

the math task. There are, however, no<br />

data to support this. The <strong>in</strong>structor was forced<br />

to conduct the alternate assessment probes<br />

without hav<strong>in</strong>g devoted sufficient time to <strong>in</strong>struction<br />

<strong>in</strong> math for two of the students.<br />

When cha<strong>in</strong>ed tasks are targeted, we recommend<br />

that teachers beg<strong>in</strong> <strong>in</strong>struction early <strong>in</strong><br />

the academic year so that there will be sufficient<br />

time for mastery.<br />

The current <strong>in</strong>vestigation began <strong>in</strong> September<br />

<strong>and</strong> ended <strong>in</strong> April. We assumed that this<br />

timeframe would allow enough time to teach<br />

three sets of content across the three required<br />

subject areas by the time the alternate assessment<br />

portfolios were due. In the case of Jason,<br />

this timeframe was adequate. Jason, however,<br />

was at the upper end of eligibility for the<br />

alternate assessment. He quickly mastered<br />

both the functional <strong>and</strong> core content that was<br />

presented to him <strong>and</strong> ma<strong>in</strong>ta<strong>in</strong>ed this with a<br />

high degree of accuracy over time.<br />

Morgan <strong>and</strong> Rena had more difficulty master<strong>in</strong>g<br />

the content that was presented to them.<br />

Morgan, <strong>in</strong> particular, struggled with both lan-<br />

guage arts <strong>and</strong> science content. Dur<strong>in</strong>g <strong>in</strong>struction,<br />

he often watched the face of the<br />

<strong>in</strong>structor for feedback as his h<strong>and</strong> hovered<br />

over each potential response before he would<br />

po<strong>in</strong>t to a f<strong>in</strong>al choice. The <strong>in</strong>structor was<br />

careful to withhold smiles or praise until he<br />

made a f<strong>in</strong>al choice <strong>and</strong> to redirect his attention<br />

to look<strong>in</strong>g at the choice <strong>in</strong>stead look<strong>in</strong>g<br />

at facial expressions. In addition, Morgan often<br />

waited for the prompt <strong>in</strong>stead of mak<strong>in</strong>g a<br />

choice. For this reason, we decided to use<br />

differential re<strong>in</strong>forcement. Thus, dur<strong>in</strong>g language<br />

arts, the <strong>in</strong>structor began to praise Morgan<br />

for correct responses before the prompt<br />

only <strong>and</strong> to withhold praise for correct responses<br />

follow<strong>in</strong>g the prompt. This resulted <strong>in</strong><br />

an <strong>in</strong>crease <strong>in</strong> correct responses before the<br />

prompt, although it still took several weeks for<br />

Morgan to reach criterion on both functional<br />

<strong>and</strong> core content. When Morgan demonstrated<br />

the same behavior <strong>in</strong> mak<strong>in</strong>g correct<br />

responses on core content <strong>in</strong> science, we<br />

added tokens that could be traded for computer<br />

time to differential re<strong>in</strong>forcement.<br />

Aga<strong>in</strong>, it took several weeks for Morgan to<br />

reach criterion. Even then, Morgan proved to<br />

be <strong>in</strong>consistent <strong>in</strong> mak<strong>in</strong>g correct responses<br />

on core content dur<strong>in</strong>g subsequent sessions.<br />

Hop<strong>in</strong>g to make his responses more consistent,<br />

the <strong>in</strong>structor tried mak<strong>in</strong>g the task more<br />

concrete for Morgan by hav<strong>in</strong>g him feel an ice<br />

cube to see that it was a solid <strong>and</strong> to put his<br />

h<strong>and</strong> is water to feel that it was a liquid at the<br />

beg<strong>in</strong>n<strong>in</strong>g of <strong>in</strong>structional sessions. Even with<br />

this addition to <strong>in</strong>struction, Morgan failed to<br />

consistently make the connection between a<br />

picture of ice <strong>and</strong> the word solid <strong>and</strong> a picture<br />

of ra<strong>in</strong> <strong>and</strong> the word liquid.<br />

Although Rena quickly mastered language<br />

arts content, she also struggled with science.<br />

Unlike Morgan, however, she had difficulty<br />

acquir<strong>in</strong>g both functional <strong>and</strong> core content.<br />

As time passed, her ability to identify correct<br />

responses on core content <strong>in</strong>creased while her<br />

ability to identify correct functional content<br />

decreased. The only variable that that we<br />

could identify that seemed to affect her performance<br />

was her erratic attendance <strong>in</strong><br />

school. In addition to miss<strong>in</strong>g days for snow,<br />

Rena also had 12 absences for illnesses while<br />

Morgan <strong>and</strong> Jason only had one absence each.<br />

Although Rena did not show progress dur<strong>in</strong>g<br />

several weeks of math <strong>in</strong>struction, she per-<br />

36 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


formed a few steps of the task correctly dur<strong>in</strong>g<br />

generalization probes, which <strong>in</strong>dicates that,<br />

given cont<strong>in</strong>ued <strong>in</strong>struction, she eventually<br />

may have mastered this task.<br />

A limitation of this <strong>in</strong>vestigation is that it<br />

used 1:1 <strong>in</strong>struction that prevented students<br />

from learn<strong>in</strong>g through observation, a practice<br />

that has been effective <strong>in</strong> the past (e.g.,<br />

Palmer, Coll<strong>in</strong>s, & Schuster, 1999; Smith, Coll<strong>in</strong>s,<br />

Schuster, & Kle<strong>in</strong>ert, 1999; Stonecipher,<br />

Schuster, Coll<strong>in</strong>s, & Grisham-Brown, 1999).<br />

Another limitation to this study is that it relied<br />

on <strong>in</strong>struction conducted <strong>in</strong> a segregated sett<strong>in</strong>g<br />

(i.e., the special education resource<br />

room). Balanc<strong>in</strong>g the need for direct <strong>in</strong>struction<br />

on required content <strong>and</strong> the benefits of<br />

participat<strong>in</strong>g <strong>in</strong> <strong>in</strong>clusive sett<strong>in</strong>gs (e.g.,<br />

Kennedy, Shukla, & Fryxell, 1997) is a difficult<br />

task for teachers. To keep <strong>in</strong>struction m<strong>in</strong>imal<br />

so that students would not miss time <strong>in</strong> their<br />

<strong>in</strong>clusive classes, the <strong>in</strong>structors conducted<br />

sessions as soon as students arrived each<br />

morn<strong>in</strong>g <strong>and</strong> limited sessions to only three<br />

trials <strong>in</strong> language arts <strong>and</strong> science <strong>and</strong> only<br />

one trial <strong>in</strong> math. Thus, <strong>in</strong>structional sessions<br />

rarely, if ever, lasted more than 5 m<strong>in</strong> each. It<br />

is possible that longer sessions with more <strong>in</strong>structional<br />

trials, as well as teach<strong>in</strong>g <strong>in</strong> a small<br />

group format, would have decreased the number<br />

of sessions to criterion.<br />

Often, teachers must decide which is more<br />

important–to score well on the alternate assessment<br />

or to be exposed to the social <strong>and</strong><br />

communicative benefits of participation <strong>in</strong> <strong>in</strong>clusion<br />

even if students fail to acquire required<br />

academic content <strong>in</strong> those sett<strong>in</strong>gs. Indeed,<br />

more research is needed to f<strong>in</strong>d ways to<br />

facilitate acquisition of core content for students<br />

with MSD <strong>in</strong> <strong>in</strong>clusive sett<strong>in</strong>gs. For example,<br />

Coll<strong>in</strong>s et al. (2007) <strong>and</strong> Coll<strong>in</strong>s, Hall,<br />

Branson, <strong>and</strong> Holder (1999) found that ensur<strong>in</strong>g<br />

that there is systematic daily exposure<br />

to targeted <strong>in</strong>formation <strong>in</strong> <strong>in</strong>clusive sett<strong>in</strong>gs<br />

can result <strong>in</strong> acquisition even if direct <strong>in</strong>struction<br />

is not used. In addition, <strong>in</strong> some studies<br />

students learned core content (e.g., science<br />

vocabulary <strong>and</strong> core content) us<strong>in</strong>g direct <strong>in</strong>struction<br />

<strong>in</strong> <strong>in</strong>clusive sett<strong>in</strong>gs (Jameson, Mc-<br />

Donnell, Johnson, Riesen, & Polychronis,<br />

2007; McDonnell et al., 2006); however, the<br />

<strong>in</strong>structional trials tended to be dur<strong>in</strong>g transitions<br />

or breaks with<strong>in</strong> the general education<br />

sett<strong>in</strong>g rather than dur<strong>in</strong>g adapted general<br />

education activities. Other studies address<strong>in</strong>g<br />

<strong>in</strong>struction of students with MSD <strong>in</strong> <strong>in</strong>clusive<br />

sett<strong>in</strong>gs reported positive outcomes, but they<br />

were for social <strong>and</strong> communication skills, not<br />

core content (e.g., Carter, Sisco, Melekoglu, &<br />

Kurkowski, 2007; Dymond et al., 2006). These<br />

are important outcomes, but it is also important<br />

to be clear regard<strong>in</strong>g exactly what skills<br />

<strong>and</strong> knowledge students are acquir<strong>in</strong>g <strong>in</strong> <strong>in</strong>clusive<br />

sett<strong>in</strong>gs. It should be noted that the<br />

students who participated <strong>in</strong> this study also<br />

participated <strong>in</strong> academic classes (e.g., science,<br />

social studies) with their same age peers. The<br />

teacher, however, found it necessary to conduct<br />

direct <strong>in</strong>struction on core content identified<br />

for the alternate assessment <strong>in</strong> the resource<br />

room <strong>in</strong> addition to what the students<br />

received <strong>in</strong> the general education sett<strong>in</strong>gs for<br />

the students to reach mastery.<br />

Perhaps the major implication of this <strong>in</strong>vestigation<br />

is that it is possible, although challeng<strong>in</strong>g,<br />

to comb<strong>in</strong>e the <strong>in</strong>struction of core<br />

content with the <strong>in</strong>struction of functional<br />

skills. The data, however, show that we cannot<br />

assume the l<strong>in</strong>k between these two without<br />

<strong>in</strong>tentional plann<strong>in</strong>g <strong>and</strong> <strong>in</strong>struction. It also is<br />

important to note that we only selected three<br />

pieces of the state’s required core content for<br />

alternate assessment to address <strong>in</strong> this <strong>in</strong>vestigation.<br />

The <strong>in</strong>structor also taught 12 additional<br />

targets for the alternate assessment to<br />

each of these students dur<strong>in</strong>g the year that<br />

they participated <strong>in</strong> the <strong>in</strong>vestigation. At the<br />

same time, as noted <strong>in</strong> the overviews of the<br />

students’ IEP objectives, she also rout<strong>in</strong>ely<br />

taught functional skills as part of the students’<br />

curriculum. This was possible because she was<br />

responsible for only four students dur<strong>in</strong>g the<br />

academic year that this <strong>in</strong>vestigation was conducted.<br />

Dur<strong>in</strong>g the previous year, she had had<br />

7 students on her caseload (a total of 95 alternate<br />

assessment st<strong>and</strong>ards to teach), which<br />

made it more difficult to address both functional<br />

<strong>and</strong> core content. S<strong>in</strong>ce teachers now<br />

are required to teach core content, it seems<br />

critical to ensure that it is relevant to the<br />

students who will be spend<strong>in</strong>g hours, days,<br />

<strong>and</strong> even months learn<strong>in</strong>g it, especially when<br />

some are likely to master only a few skills <strong>in</strong> an<br />

entire year, even with <strong>in</strong>tensive <strong>in</strong>struction.<br />

Several literature reviews have focused<br />

teach<strong>in</strong>g core content to students with moderate<br />

<strong>and</strong> severe disabilities (i.e., significant<br />

Functional Core Content / 37


cognitive disabilities). Browder <strong>and</strong> X<strong>in</strong><br />

(1998) reviewed 48 studies on sight word <strong>in</strong>struction<br />

<strong>and</strong> recommended that further <strong>in</strong>vestigations<br />

needed to focus on teach<strong>in</strong>g functional<br />

read<strong>in</strong>g that students could apply <strong>in</strong><br />

their daily rout<strong>in</strong>e. More recently, Browder,<br />

Wakeman, Spooner, Ahlgrim-Delzill, <strong>and</strong> Algozz<strong>in</strong>e<br />

(2006) reviewed 128 studies on read<strong>in</strong>g<br />

<strong>in</strong>struction <strong>and</strong> recommended that further<br />

<strong>in</strong>vestigation is needed on the types of<br />

<strong>in</strong>struction that is needed to teacher a<br />

broader range of literacy skills than sight word<br />

recognition (e.g., comprehension). Courtade,<br />

Spooner, <strong>and</strong> Browder (2007) reviewed 11<br />

studies on science <strong>in</strong>struction <strong>and</strong> recommended<br />

that further <strong>in</strong>vestigation needed to<br />

focus on teach<strong>in</strong>g a broader scope of content<br />

l<strong>in</strong>ked to state st<strong>and</strong>ards. Browder, Spooner,<br />

Ahlgrim-Delzell, Harris, <strong>and</strong> Wakeman (2008)<br />

reviewed 54 studies on math <strong>in</strong>struction <strong>and</strong><br />

recommended that further <strong>in</strong>vestigations<br />

needed to focus on teach<strong>in</strong>g all components<br />

of math skills <strong>and</strong> ensur<strong>in</strong>g that these skills<br />

generalize to real life applications.<br />

The current <strong>in</strong>vestigation extends the literature<br />

reviewed by these authors while address<strong>in</strong>g<br />

their recommendations for future research.<br />

In summary, this <strong>in</strong>vestigation was<br />

successful <strong>in</strong> comb<strong>in</strong><strong>in</strong>g functional <strong>and</strong> core<br />

content <strong>in</strong> teach<strong>in</strong>g skills to students with<br />

MSD. Cont<strong>in</strong>ued research, however, is needed<br />

on this topic, especially s<strong>in</strong>ce we encountered<br />

a number of challenges as the <strong>in</strong>struction cont<strong>in</strong>ued<br />

across the academic year. All students,<br />

whether they have disabilities or not, can benefit<br />

from learn<strong>in</strong>g functional applications of<br />

core content that have relevance <strong>in</strong> their daily<br />

lives, thus, teach<strong>in</strong>g core content <strong>in</strong> a more<br />

mean<strong>in</strong>gful context was the purpose of this<br />

<strong>in</strong>vestigation.<br />

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Received: 18 August 2009<br />

Initial Acceptance: 20 October 2009<br />

F<strong>in</strong>al Acceptance: 7 January 2010<br />

Functional Core Content / 39


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 40–51<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

Teach<strong>in</strong>g Social Skills to Enhance Work Performance <strong>in</strong> a<br />

Child Care Sett<strong>in</strong>g<br />

Sabra Gear, Jonna Bobzien, Sharon Judge, <strong>and</strong> Sharon A. Raver<br />

Old Dom<strong>in</strong>ion University<br />

Abstract: Adults with <strong>in</strong>tellectual disabilities face difficulty seek<strong>in</strong>g employment <strong>in</strong> the community workforce.<br />

Us<strong>in</strong>g a s<strong>in</strong>gle-subject design, this study exam<strong>in</strong>ed the utility of role play<strong>in</strong>g <strong>and</strong> self-management strategies to<br />

enhance work performance by promot<strong>in</strong>g the social skills of a young woman with Down syndrome work<strong>in</strong>g <strong>in</strong><br />

a community child care sett<strong>in</strong>g. Social behaviors taught <strong>in</strong>cluded: (a) establish<strong>in</strong>g <strong>and</strong> ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g eye contact<br />

with adults dur<strong>in</strong>g conversation, (b) wait<strong>in</strong>g to speak until adults f<strong>in</strong>ished speak<strong>in</strong>g, <strong>and</strong> (c) giv<strong>in</strong>g<br />

appropriate verbal responses to directions, feedback, or criticism. Results <strong>in</strong>dicated moderate-to-large <strong>in</strong>creases <strong>in</strong><br />

target behaviors dur<strong>in</strong>g <strong>in</strong>tervention, with these changes ma<strong>in</strong>ta<strong>in</strong>ed for three months follow<strong>in</strong>g tra<strong>in</strong><strong>in</strong>g. The<br />

tra<strong>in</strong><strong>in</strong>g protocol was effective <strong>in</strong> teach<strong>in</strong>g prosocial behaviors which improved work performance. Implications<br />

for practice are discussed.<br />

It has long been understood that <strong>in</strong>dividuals<br />

with <strong>in</strong>tellectual disabilities seek<strong>in</strong>g employment<br />

have functional difficulties beyond obvious<br />

cognitive or physical limitations (Foy, Massey,<br />

Duer, Ross, & Wooten, 1979). Weaknesses<br />

<strong>in</strong> verbal skills such as limited language repertoires<br />

<strong>and</strong> atypical speech patterns (Kroeger<br />

& Nelson, 2006; Nientimp & Cole, 1992),<br />

emotional <strong>and</strong> behavioral deficits such as social<br />

withdrawal (Mastropieri & Scruggs, 1985–<br />

1986), absent or delayed smile <strong>and</strong> eye contact,<br />

as well as deficits <strong>in</strong> cooperation, turntak<strong>in</strong>g<br />

(Reeve, Townsend, & Poulson, 2007),<br />

<strong>and</strong> poor generalization may result <strong>in</strong> many<br />

<strong>in</strong>dividuals with <strong>in</strong>tellectual disabilities work<strong>in</strong>g<br />

<strong>in</strong> noncommunity or supported work situations<br />

only.<br />

To support the acquisition of appropriate<br />

work behaviors by <strong>in</strong>dividuals with disabilities,<br />

professionals have used a variety of job coach<strong>in</strong>g<br />

<strong>and</strong> workplace support methods. Customized<br />

employment (Griff<strong>in</strong>, Hammis, Geary, &<br />

Sullivan, 2008; Lueck<strong>in</strong>g, Cuozzo, Leedy, &<br />

Seleznow, 2008), self-management <strong>in</strong>terven-<br />

Correspondence concern<strong>in</strong>g this article should<br />

be addressed to Sabra Gear, Department of Communication<br />

Disorders <strong>and</strong> Special <strong>Education</strong>, Old<br />

Dom<strong>in</strong>ion University, Virg<strong>in</strong>ia Beach Higher <strong>Education</strong><br />

Center, 1881 University Drive, Room 243-C,<br />

Virg<strong>in</strong>ia Beach, VA 23453. Email: sgear@odu.edu<br />

tions (Ganz & Sigafoos, 2005), simulated<br />

workplace tra<strong>in</strong><strong>in</strong>g comb<strong>in</strong>ed with direct work<br />

experience (Lattimore & Parsons, 2006), job<br />

coach<strong>in</strong>g (Mautz, Storey, & Certo, 2001;<br />

Ohtake & Chadsey, 2003), team (Gill, 2007;<br />

Hogansen, Powers, Geenem Gil-Kashiwabara,<br />

& Powers, 2008) <strong>and</strong> community-based approaches<br />

(Carter et al., 2009), <strong>and</strong> social skills<br />

tra<strong>in</strong><strong>in</strong>g (Foy et al., 1979; Mautz et al., 2001;<br />

Storey & Provost, 1996) have been used, with<br />

vary<strong>in</strong>g degrees of success, depend<strong>in</strong>g on the<br />

needs of the potential employee <strong>and</strong> the dem<strong>and</strong>s<br />

of the workplace (Duran, 1984;<br />

Hughes, Alberto, & Fredrick, 2006; Lattimore,<br />

& Parsons, 2006; Mautz et al., 2001).<br />

Recently, self-management strategies have<br />

been used to assist <strong>in</strong>dividuals as they are transition<strong>in</strong>g<br />

to community workplace sett<strong>in</strong>gs.<br />

Self-management techniques rely on cognitive-behavioral<br />

theory which <strong>in</strong>volves the process<br />

of chang<strong>in</strong>g one’s th<strong>in</strong>k<strong>in</strong>g or private verbal<br />

behavior to impact overt behavior (Ganz &<br />

Sigafoos, 2005). Researchers <strong>in</strong> self-management<br />

with <strong>in</strong>dividuals with <strong>in</strong>tellectual disabilities<br />

have reported improvements <strong>in</strong> work-related<br />

social skills <strong>in</strong>clud<strong>in</strong>g conversation,<br />

shar<strong>in</strong>g, peer <strong>in</strong>teractions, <strong>and</strong> task completion,<br />

as well as reductions <strong>in</strong> stereotypic behaviors<br />

<strong>and</strong> other nonproductive behaviors<br />

(Browder & M<strong>in</strong>arovic, 2000; Ganz & Sigafoos;<br />

Hughes et al., 2006).<br />

40 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Lattimore <strong>and</strong> Parsons (2006) found that<br />

direct tra<strong>in</strong><strong>in</strong>g <strong>in</strong> the workplace comb<strong>in</strong>ed<br />

with tra<strong>in</strong><strong>in</strong>g <strong>in</strong> an adult education vocational<br />

program with a simulated work sett<strong>in</strong>g, assisted<br />

four workers with autism or <strong>in</strong>tellectual<br />

disabilities to be more successful <strong>in</strong> a supported<br />

employment situation. These workers<br />

displayed more rapid acquisition of job skills<br />

when work skills were practiced at both the<br />

simulated workplace <strong>and</strong> <strong>in</strong> the real workplace.<br />

Consequently, us<strong>in</strong>g a tra<strong>in</strong><strong>in</strong>g strategy<br />

outside of the immediate job sett<strong>in</strong>g may offer<br />

promise <strong>in</strong> acquir<strong>in</strong>g social skills.<br />

Although job coaches have historically been<br />

valued partners <strong>in</strong> community workplaces, some<br />

researchers (Ohtake & Chadsey, 2003; Storey &<br />

Provost, 1996) suggest that job coaches may<br />

sometimes become a barrier to social <strong>in</strong>teractions<br />

between workers with disabilities <strong>and</strong> their<br />

co-workers without disabilities. When job<br />

coaches were <strong>in</strong> the community workplace, supported<br />

workers were observed to <strong>in</strong>teract more<br />

with the job coaches than with their co-workers,<br />

lessen<strong>in</strong>g the opportunity for social <strong>in</strong>tegration.<br />

Storey <strong>and</strong> Provost used a social skills <strong>in</strong>tervention<br />

to decrease social <strong>in</strong>teractions between job<br />

coaches <strong>and</strong> supported workers, <strong>and</strong> <strong>in</strong>crease<br />

social <strong>in</strong>teractions between supported workers<br />

<strong>and</strong> their co-workers. Ohtake <strong>and</strong> Chadsey cited<br />

a number of supported worker problems requir<strong>in</strong>g<br />

more <strong>in</strong>trusive job coach facilitation strategies<br />

such as challeng<strong>in</strong>g behaviors, poor social<br />

skills, lack of job completion, <strong>and</strong> <strong>in</strong>appropriate<br />

verbal comments <strong>in</strong> the community workplace.<br />

For these reasons, professionals need alternative<br />

ways to tra<strong>in</strong> <strong>and</strong> ma<strong>in</strong>ta<strong>in</strong> appropriate social<br />

<strong>in</strong>teraction behaviors for <strong>in</strong>dividuals with <strong>in</strong>tellectual<br />

disabilities <strong>and</strong> their co-workers.<br />

Foster<strong>in</strong>g productive social <strong>in</strong>teractions between<br />

supported employees <strong>and</strong> co-workers<br />

without disabilities is critical for success <strong>in</strong> any<br />

community work site (Johnson, Mellard, &<br />

Lancaster, 2007). Role play<strong>in</strong>g is one of the<br />

most common ways to assess social skills (Bielecki<br />

& Swender, 2004). Role play<strong>in</strong>g techniques<br />

have also been used to <strong>in</strong>crease appropriate<br />

social skills <strong>in</strong> both school <strong>and</strong><br />

workplace sett<strong>in</strong>gs (Foy et al., 1979; Shepherd,<br />

2009). For example, Shepherd describes role<br />

play<strong>in</strong>g as a component of a direct model<strong>in</strong>g<br />

approach to <strong>in</strong>creas<strong>in</strong>g opportunities for students<br />

to <strong>in</strong>teract appropriately with peers <strong>and</strong><br />

authority personnel, recognize social cues,<br />

<strong>and</strong> develop social competence <strong>in</strong> school sett<strong>in</strong>gs.<br />

In a community work program, Foy et<br />

al. used role play<strong>in</strong>g to <strong>in</strong>crease eye contact,<br />

speech duration, overall assertiveness, <strong>and</strong> to<br />

request a behavior change (e.g., f<strong>in</strong>d someone<br />

else to stay late on the job) <strong>in</strong> four adults with<br />

<strong>in</strong>terpersonal social skill deficits. Hav<strong>in</strong>g reliable<br />

tra<strong>in</strong><strong>in</strong>g methods for teach<strong>in</strong>g effective<br />

responses to difficult <strong>in</strong>terpersonal situations<br />

is essential s<strong>in</strong>ce <strong>in</strong>clusive work sett<strong>in</strong>gs may<br />

not provide sufficient natural re<strong>in</strong>forcement<br />

for <strong>in</strong>dividuals with disabilities to foster the<br />

development of positive <strong>and</strong> appropriate community<br />

workplace behaviors (Alber, Heward,<br />

& Hippler, 1999).<br />

Often, <strong>in</strong>dividuals with <strong>in</strong>tellectual disabilities<br />

have to learn to elicit re<strong>in</strong>forcement <strong>in</strong><br />

<strong>in</strong>clusive sett<strong>in</strong>gs by behav<strong>in</strong>g <strong>in</strong> a manner<br />

that promotes positive attention <strong>and</strong> praise<br />

from co-workers. Consequently, develop<strong>in</strong>g<br />

desirable social behaviors should aid an employee’s<br />

acceptance <strong>in</strong> a workplace. Professionals<br />

need a strategy to promote work behaviors<br />

that is non-<strong>in</strong>trusive <strong>and</strong> yet powerful<br />

enough to ma<strong>in</strong>ta<strong>in</strong> changes with<strong>in</strong> the actual<br />

work sett<strong>in</strong>g. Therefore, the present study<br />

used structured role play<strong>in</strong>g that promoted<br />

the development of self-management skills to<br />

improve the social skills of a young woman<br />

with moderate <strong>in</strong>tellectual disability work<strong>in</strong>g<br />

as a volunteer <strong>in</strong> a community child care sett<strong>in</strong>g.<br />

Specifically, this study exam<strong>in</strong>ed if this<br />

tra<strong>in</strong><strong>in</strong>g protocol would be effective <strong>in</strong> tra<strong>in</strong><strong>in</strong>g,<br />

<strong>and</strong> ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g, the follow<strong>in</strong>g prosocial<br />

behaviors: (a) establish<strong>in</strong>g <strong>and</strong> ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g<br />

eye contact with adults dur<strong>in</strong>g conversation<br />

<strong>and</strong> feedback, (b) wait<strong>in</strong>g to speak until adults<br />

were f<strong>in</strong>ished speak<strong>in</strong>g, <strong>and</strong> (c) giv<strong>in</strong>g appropriate<br />

verbal responses to directions, feedback<br />

or criticism from adults.<br />

Method<br />

Sett<strong>in</strong>g<br />

The present study took place at a large public<br />

university <strong>in</strong> a metropolitan area on the Eastern<br />

seaboard of Virg<strong>in</strong>ia. It was conducted <strong>in</strong> the<br />

university’s child care sett<strong>in</strong>g which served<br />

young children from 8 weeks through 3-yearsold,<br />

with <strong>and</strong> without disabilities. The tra<strong>in</strong><strong>in</strong>g<br />

was conducted <strong>in</strong> a conference room outside<br />

the child care classroom for 2-year-olds <strong>in</strong> which<br />

the subject was work<strong>in</strong>g. The participant worked<br />

Social Skills <strong>Tra<strong>in</strong><strong>in</strong>g</strong> / 41


morn<strong>in</strong>gs, except for federal <strong>and</strong> state holidays,<br />

as a volunteer, without wages dur<strong>in</strong>g the five<br />

months of the study.<br />

Participant<br />

The participant was a 20-year-old Anglo-American<br />

female with Down syndrome who was identified<br />

early <strong>in</strong> the public school sett<strong>in</strong>g as hav<strong>in</strong>g<br />

moderate <strong>in</strong>tellectual disability. She completed<br />

high school with a special diploma, document<strong>in</strong>g<br />

that she had met her <strong>in</strong>dividualized educational<br />

program goals. As an adult, her expressive<br />

verbal behaviors consisted of fairly well-articulated<br />

sentences of approximately 5–10 words.<br />

She <strong>in</strong>teracted adequately with the preschool<br />

children <strong>in</strong> their activities at the child care center;<br />

however, she required frequent redirection<br />

by her supervisor to complete assigned tasks <strong>in</strong> a<br />

timely manner. Throughout the study, the participant<br />

did not receive any post-secondary<br />

school or disability services.<br />

Social <strong>in</strong>teractions between the participant,<br />

her supervisor, <strong>and</strong> co-workers were limited by<br />

her <strong>in</strong>frequent eye contact <strong>and</strong> her <strong>in</strong>appropriate<br />

verbal <strong>and</strong> nonverbal behaviors. In<br />

work performance evaluations, the participant’s<br />

supervisor <strong>in</strong>dicated that participant<br />

frequently tried to engage co-workers <strong>in</strong> conversation<br />

about personal issues while they<br />

were perform<strong>in</strong>g work tasks <strong>and</strong> that she did<br />

not respond appropriately to constructive criticism.<br />

For example, it was noted that when she<br />

was given negative feedback about her work<br />

performance, she hung her head <strong>and</strong> typically<br />

hit her forehead with the palm of her h<strong>and</strong><br />

<strong>and</strong> said, “I’m so stupid,” or someth<strong>in</strong>g similar<br />

to this statement. Despite these negative responses<br />

from her supervisor <strong>and</strong> co-workers,<br />

when the participant was questioned dur<strong>in</strong>g<br />

performance evaluations about her overall<br />

feel<strong>in</strong>gs regard<strong>in</strong>g her work, she stated that<br />

the volunteer work was her “dream job” <strong>and</strong><br />

she strongly wanted to cont<strong>in</strong>ue. Based on<br />

weekly evaluations, it was determ<strong>in</strong>ed that she<br />

was at-risk to lose her volunteer work due to<br />

her <strong>in</strong>appropriate behaviors, low-rate of<br />

prosocial behaviors, <strong>and</strong> a pattern of erratic<br />

work performance.<br />

Design<br />

A s<strong>in</strong>gle-subject, alternat<strong>in</strong>g treatments design<br />

(ATD) design (Kennedy, 2005) was used to<br />

determ<strong>in</strong>e the effectiveness of two tra<strong>in</strong><strong>in</strong>g<br />

protocols upon three specific sets of social<br />

skills. The basel<strong>in</strong>e phase covered two or three<br />

daily sessions over three days of data collection.<br />

The implementation of the first tra<strong>in</strong><strong>in</strong>g<br />

protocol (Intervention I) consisted of a m<strong>in</strong>imum<br />

of 18 days of <strong>in</strong>tervention, followed by<br />

the second tra<strong>in</strong><strong>in</strong>g protocol (Intervention<br />

II), which consisted of an additional 12 days of<br />

<strong>in</strong>tervention. Dur<strong>in</strong>g the ma<strong>in</strong>tenance phase,<br />

which consisted of 14 days at a m<strong>in</strong>imum, no<br />

<strong>in</strong>tervention tra<strong>in</strong><strong>in</strong>g was conducted but the<br />

supervisor <strong>and</strong> co-workers were encouraged to<br />

give appropriate feedback to the participant<br />

whenever target behaviors were displayed.<br />

The follow-up phase began five weeks after<br />

conclusion of the ma<strong>in</strong>tenance phase. Dur<strong>in</strong>g<br />

this follow-up phase, the supervisor <strong>and</strong> coworkers<br />

were given no guidance <strong>in</strong> their <strong>in</strong>teractions<br />

with the participant <strong>and</strong> were aware<br />

that the tra<strong>in</strong><strong>in</strong>g was concluded.<br />

Dependent Variables: Prosocial Skill Behaviors<br />

Dependent variables were eye contact, wait<strong>in</strong>g<br />

to respond, <strong>and</strong> appropriate verbal response<br />

to directions, feedback, or criticism. Eye contact<br />

was operationally def<strong>in</strong>ed as the participant<br />

ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g her eyes on the face of the<br />

supervisor or co-worker with whom she was<br />

speak<strong>in</strong>g throughout the conversation. A conversation<br />

was considered to beg<strong>in</strong> when the<br />

participant, a supervisor, or co-worker <strong>in</strong>itiated<br />

a verbal statement toward the participant.<br />

A conversation was considered to end<br />

when the participant, a supervisor, or coworker<br />

broke off the conversation, or when<br />

there was a five-second lapse <strong>in</strong> the conversation<br />

(e.g., latency). Eye contact dur<strong>in</strong>g directions,<br />

feedback, or criticism was def<strong>in</strong>ed as<br />

ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g eyes <strong>in</strong> the direction of the<br />

speaker when receiv<strong>in</strong>g direction, feedback,<br />

or criticism. Observers used a digital timer to<br />

measure duration <strong>and</strong> latency of time <strong>in</strong> seconds<br />

<strong>and</strong> m<strong>in</strong>utes.<br />

Wait<strong>in</strong>g to respond <strong>and</strong> provid<strong>in</strong>g appropriate<br />

verbal response were def<strong>in</strong>ed as follows:<br />

When a supervisor or co-worker <strong>in</strong>itiated a<br />

verbal exchange by giv<strong>in</strong>g either directions,<br />

feedback or criticism, the participant ma<strong>in</strong>ta<strong>in</strong>ed<br />

her eyes on that <strong>in</strong>dividual’s face<br />

throughout this verbal exchange; wait<strong>in</strong>g<br />

42 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


until the <strong>in</strong>dividual was f<strong>in</strong>ished speak<strong>in</strong>g,<br />

<strong>and</strong> then provided an appropriate verbal<br />

response to the co-worker or supervisor.<br />

The participant was tra<strong>in</strong>ed to answer with<br />

the follow<strong>in</strong>g responses, or successive approximations,<br />

which were def<strong>in</strong>ed as appropriate<br />

verbal response: (a) thank you for<br />

shar<strong>in</strong>g that with me, (b) that’s a good idea,<br />

<strong>and</strong> (c) I’ll work on that.<br />

Observation <strong>and</strong> Record<strong>in</strong>g<br />

Dur<strong>in</strong>g all phases of the study, the rates of<br />

occurrence of the dependent variables were<br />

measured us<strong>in</strong>g a frequency count. Us<strong>in</strong>g<br />

time-sampled event record<strong>in</strong>g, the frequency<br />

of these target behaviors were counted dur<strong>in</strong>g<br />

an observation session of 10 m<strong>in</strong>utes measured<br />

with a digital timer <strong>and</strong> manually recorded<br />

on pencil <strong>and</strong> paper data collection<br />

sheets. When an opportunity for a target behavior<br />

occurred, observers notated a “1” on<br />

the data sheet when the participant responded<br />

as def<strong>in</strong>ed <strong>and</strong> a “0” when the participant<br />

did not respond as def<strong>in</strong>ed <strong>in</strong> the<br />

study. If there were no opportunities for the<br />

participant to exhibit any of the target behaviors<br />

dur<strong>in</strong>g an observation time (e.g. no supervisor<br />

or co-worker <strong>in</strong>teraction occurred<br />

dur<strong>in</strong>g the observation period), observers notated<br />

“no opportunity,” <strong>and</strong> then waited at<br />

least 10 m<strong>in</strong>utes before another observation<br />

session was begun. Data were collected at r<strong>and</strong>om<br />

<strong>in</strong>tervals between 9:00 am <strong>and</strong> 12:00<br />

noon, Monday through Friday, through a twoway<br />

mirror <strong>in</strong> the participant’s childcare observation<br />

room.<br />

Dur<strong>in</strong>g the <strong>in</strong>tervention phases of the study,<br />

two tra<strong>in</strong>ers/observers took the participant<br />

out of her child care classroom daily to a small<br />

conference room located with<strong>in</strong> the childcare<br />

center for approximately 20 m<strong>in</strong>utes to teach<br />

her the target behaviors us<strong>in</strong>g a tra<strong>in</strong><strong>in</strong>g protocol<br />

script. Immediately follow<strong>in</strong>g this tra<strong>in</strong><strong>in</strong>g<br />

session, when the participant returned to<br />

work <strong>in</strong> the classroom, an observation session<br />

was normally conducted. Intervention phases<br />

cont<strong>in</strong>ued until the data showed a clear reversal<br />

<strong>in</strong> trend from the basel<strong>in</strong>e data, for four<br />

consecutive observation sessions. Follow<strong>in</strong>g<br />

the <strong>in</strong>tervention phases, data collection was<br />

cont<strong>in</strong>ued on the dependent variables for the<br />

ma<strong>in</strong>tenance <strong>and</strong> follow-up phases, although<br />

no tra<strong>in</strong><strong>in</strong>g was provided.<br />

Interobserver Reliability<br />

Inter-observer agreement was collected <strong>and</strong><br />

recorded on 20% of all observation sessions <strong>in</strong><br />

each experimental condition. Overall <strong>in</strong>terobserver<br />

agreement was calculated by divid<strong>in</strong>g<br />

the total number of agreements by the number<br />

of agreements plus disagreements, <strong>and</strong><br />

then multiply<strong>in</strong>g by 100 percent (Kazd<strong>in</strong>,<br />

1982). An agreement was scored when both<br />

observers recorded the occurrence of the<br />

presence of a target behavior <strong>and</strong> a response<br />

when it was relevant to the target behavior.<br />

Prior to the study, observation <strong>and</strong> data collection<br />

tra<strong>in</strong><strong>in</strong>g cont<strong>in</strong>ued until the observers<br />

achieved 90 percent agreement for three consecutive<br />

observation sessions. The <strong>in</strong>ter-observer<br />

agreement ranges <strong>and</strong> means are as<br />

follows per each target behavior: a) eye contact<br />

(range 82%–98%, mean 90%), wait<strong>in</strong>g<br />

to respond (range 80% - 100%, mean <br />

90%), <strong>and</strong> appropriate verbal respond<strong>in</strong>g to<br />

directions, feedback, or criticism (range <br />

80%–100%, mean 90%).<br />

Social Validity Data<br />

The social validity of teach<strong>in</strong>g the targeted<br />

prosocial behaviors was determ<strong>in</strong>ed by the use<br />

of a five-item pre-post questionnaire adm<strong>in</strong>istered<br />

to one supervisor <strong>and</strong> two co-workers of<br />

the participant. Questionnaire items <strong>in</strong>cluded<br />

closed-ended questions us<strong>in</strong>g a Likert-type 10po<strong>in</strong>t<br />

scale [e.g., “learns new tasks with great<br />

difficulty” (1) to “learns tasks easily” (10)] <strong>and</strong><br />

one open-ended question which asked respondents<br />

to describe specific social <strong>in</strong>teractions<br />

the participant needed to improve <strong>in</strong> the<br />

workplace. The questionnaire was designed to<br />

provide qualitative <strong>and</strong> quantitative <strong>in</strong>formation<br />

regard<strong>in</strong>g co-workers’ experiences <strong>and</strong><br />

perceptions about work<strong>in</strong>g with a co-worker<br />

with disabilities. The questionnaire was pilottested,<br />

prior to the study, with a selected<br />

group of three co-workers to determ<strong>in</strong>e the<br />

ease of use, clarity of questions, <strong>and</strong> relevance<br />

of questions to the <strong>in</strong>tent of the study. The<br />

pilot-test determ<strong>in</strong>ed that the questionnaire<br />

needed revision which was completed prior to<br />

its implementation <strong>in</strong> the study.<br />

Social Skills <strong>Tra<strong>in</strong><strong>in</strong>g</strong> / 43


Procedure<br />

<strong>Tra<strong>in</strong><strong>in</strong>g</strong> protocols. The <strong>in</strong>dependent variable<br />

<strong>in</strong>cluded two tra<strong>in</strong><strong>in</strong>g protocols that used<br />

role-play<strong>in</strong>g <strong>and</strong> focused <strong>in</strong>structional <strong>in</strong>terventions<br />

conducted outside the immediate<br />

workspace by two tra<strong>in</strong>ers/observers. Both<br />

tra<strong>in</strong><strong>in</strong>g protocols <strong>in</strong>volved written scripts <strong>in</strong><br />

which the participant <strong>and</strong> tra<strong>in</strong>ers alternately<br />

role-played the participant’s role as worker<br />

<strong>and</strong> the role of the participant’s supervisor.<br />

The scripts specified who played which role,<br />

what the situation would be, when roles were<br />

to be alternated, <strong>and</strong> what each <strong>in</strong>dividual<br />

would do <strong>and</strong> say as a function of her role.<br />

The scripts were updated on a daily basis,<br />

based on the supervisor’s daily feedback about<br />

the participant’s work performance <strong>and</strong> areas<br />

of concern. The scripts simulated work-related<br />

social <strong>in</strong>teractions between the participant, supervisor<br />

<strong>and</strong>/or co-workers that had actually<br />

happened or those that were likely to occur<br />

on the job. Each scripted tra<strong>in</strong><strong>in</strong>g session <strong>in</strong>cluded<br />

several (4–6) role-play<strong>in</strong>g opportunities<br />

for the participant to respond to simulated<br />

social <strong>in</strong>teractions that required the use<br />

of the target behaviors. For example, the participant<br />

was given directed <strong>in</strong>struction on how<br />

to establish <strong>and</strong> ma<strong>in</strong>ta<strong>in</strong> eye contact dur<strong>in</strong>g<br />

conversations <strong>and</strong> <strong>in</strong>teractions, how to wait to<br />

respond until the other speaker was f<strong>in</strong>ished,<br />

<strong>and</strong> how to provide appropriate verbal responses<br />

to criticism, feedback or when given<br />

directions while establish<strong>in</strong>g eye contact. An<br />

abbreviated excerpt of one of these scripted<br />

sessions follows. A full protocol of the participant’s<br />

<strong>and</strong> tra<strong>in</strong>ers’ scripted dialogue is available<br />

upon request from the first author.<br />

Tra<strong>in</strong>er 1: “We are here to role-play social<br />

skills. One of the skills is ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g eye<br />

contact. Let’s role-play how we pay attention<br />

by focus<strong>in</strong>g our eyes on each other’s<br />

faces when we talk.”<br />

Tra<strong>in</strong>er 2: [supervisor role] “The way you<br />

model songs <strong>and</strong> h<strong>and</strong> motions helps children<br />

participate <strong>in</strong> music activities.”<br />

Participant: [<strong>in</strong> her own role] “Thank you.”<br />

(while look<strong>in</strong>g at the tra<strong>in</strong>er)<br />

Tra<strong>in</strong>er 2: “Good job! Three appropriate responses<br />

we want to role-play with you are,<br />

‘Thank you for shar<strong>in</strong>g that with me. That is<br />

a good idea. I will work on that.’ Now, let’s<br />

practice show<strong>in</strong>g how we ma<strong>in</strong>ta<strong>in</strong> eye contact,<br />

wait<strong>in</strong>g until the person is f<strong>in</strong>ished<br />

speak<strong>in</strong>g, <strong>and</strong> respond<strong>in</strong>g.”<br />

Tra<strong>in</strong>er 1: [supervisor role] “I need for you<br />

to f<strong>in</strong>ish all your duties for the children, like<br />

clean<strong>in</strong>g the tables at snack time, before<br />

you take a break.”<br />

Participant: [<strong>in</strong> her own role] “That is a<br />

good idea. I will work on that.”<br />

Tra<strong>in</strong>er 1: “You did a nice job! Professionals<br />

follow directions, listen to feedback, or accept<br />

criticism by keep<strong>in</strong>g their eyes on the<br />

person talk<strong>in</strong>g, wait<strong>in</strong>g <strong>and</strong> respond<strong>in</strong>g appropriately<br />

as you just did.”<br />

Interventions I <strong>and</strong> II were differentiated by<br />

the script content <strong>and</strong> subsequent role play<strong>in</strong>g<br />

dialogue between participant <strong>and</strong> tra<strong>in</strong>ers,<br />

<strong>and</strong> focus<strong>in</strong>g <strong>in</strong>struction upon teach<strong>in</strong>g specific<br />

prosocial targeted behaviors. The <strong>in</strong>structional<br />

focus of Intervention I was <strong>in</strong>itially on<br />

establish<strong>in</strong>g <strong>and</strong> ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g conversational<br />

eye contact, while the focus of Intervention II<br />

also <strong>in</strong>cluded wait<strong>in</strong>g to respond, <strong>and</strong> provid<strong>in</strong>g<br />

appropriate verbal responses to directions,<br />

feedback, or criticism.<br />

Fidelity of implementation. Data of fidelity of<br />

implementation were collected daily dur<strong>in</strong>g<br />

the <strong>in</strong>tervention phase us<strong>in</strong>g a checklist developed<br />

directly from the tra<strong>in</strong><strong>in</strong>g protocol. The<br />

occurrence or non-occurrence of each step on<br />

the checklist was noted for 20% of the <strong>in</strong>tervention<br />

sessions. Fidelity of implementation<br />

was ma<strong>in</strong>ta<strong>in</strong>ed at 90% throughout the study<br />

(range 80%–100%, Mean 90%). The<br />

scripts were crosschecked with the procedural<br />

checklist to verify fidelity of implementation<br />

data.<br />

Results<br />

Results revealed positive changes <strong>in</strong> the occurrence<br />

of all target behaviors from basel<strong>in</strong>e<br />

levels follow<strong>in</strong>g <strong>in</strong>tervention. The outcome of<br />

each target behavior will be discussed separately.<br />

Conversational Eye Contact<br />

Figure 1 shows the data po<strong>in</strong>t values measur<strong>in</strong>g<br />

conversational eye contact behavior when<br />

the participant, a supervisor, or a co-worker<br />

44 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


<strong>in</strong>itiated conversation. Dur<strong>in</strong>g the basel<strong>in</strong>e<br />

phase, six data po<strong>in</strong>ts were collected on the<br />

percentage of conversational eye contact to<br />

the number of opportunities provided dur<strong>in</strong>g<br />

an observation session (M 45.56%). Dur<strong>in</strong>g<br />

the <strong>in</strong>tervention phases, 18 data po<strong>in</strong>ts were<br />

collected (M 62.70%). For the ma<strong>in</strong>tenance<br />

phase, 15 data po<strong>in</strong>ts were collected (M <br />

77.07%); <strong>and</strong> four data po<strong>in</strong>ts were gathered<br />

dur<strong>in</strong>g the follow-up phase (M 97.75%).<br />

Figure 1 reveals moderate to large ga<strong>in</strong>s <strong>in</strong><br />

the mean levels of conversational eye contact<br />

behavior occurred between basel<strong>in</strong>e <strong>and</strong> the<br />

ma<strong>in</strong>tenance phase (31.51%), <strong>and</strong> the <strong>in</strong>itial<br />

basel<strong>in</strong>e <strong>and</strong> the follow-up phase (52.19%).<br />

Small ga<strong>in</strong>s <strong>in</strong> the mean levels of conversational<br />

eye contact behavior occurred between<br />

the <strong>in</strong>tervention <strong>and</strong> the ma<strong>in</strong>tenance phases<br />

(14.37%), <strong>and</strong> between the <strong>in</strong>itial basel<strong>in</strong>e<br />

<strong>and</strong> <strong>in</strong>tervention phases (17.14%).<br />

A best-fit-l<strong>in</strong>e approach (least squares regression)<br />

found a small negative trend with<strong>in</strong><br />

the <strong>in</strong>itial basel<strong>in</strong>e phase (slope 0.10) <strong>and</strong><br />

a small to moderate positive trend with<strong>in</strong> the<br />

<strong>in</strong>tervention phase (slope 1.62). A small<br />

positive trend was revealed from the <strong>in</strong>itial<br />

Figure 1. Percentage Conversational Eye Contact<br />

basel<strong>in</strong>e to the <strong>in</strong>tervention phases (slope <br />

1.49). A small positive trend was revealed from<br />

the <strong>in</strong>itial basel<strong>in</strong>e to the follow-up phase<br />

(slope 1.15). An overall reversal <strong>in</strong> trend for<br />

this target behavior was found. The stability of<br />

data based on a criterion of plus or m<strong>in</strong>us<br />

50% of the mean found the data values to be<br />

stable dur<strong>in</strong>g the ma<strong>in</strong>tenance <strong>and</strong> follow-up<br />

phases. The <strong>in</strong>itial basel<strong>in</strong>e <strong>and</strong> <strong>in</strong>tervention<br />

phases showed only mild variability <strong>in</strong> data.<br />

Eye Contact dur<strong>in</strong>g Directions, Feedback,<br />

or Criticism<br />

Figure 2 presents the data po<strong>in</strong>t values measur<strong>in</strong>g<br />

participant’s eye contact behavior dur<strong>in</strong>g<br />

directions, feedback, or criticism. Dur<strong>in</strong>g<br />

basel<strong>in</strong>e, n<strong>in</strong>e data po<strong>in</strong>ts were collected on<br />

the percentage of eye contact displayed when<br />

given an opportunity to receive directions,<br />

feedback, or criticism given by a supervisor or<br />

co-worker (M 41.66%). Dur<strong>in</strong>g <strong>in</strong>terventions,<br />

30 data po<strong>in</strong>ts were collected (M <br />

61.89%). For the ma<strong>in</strong>tenance phase, two<br />

data po<strong>in</strong>ts were collected (M 100%) while<br />

Social Skills <strong>Tra<strong>in</strong><strong>in</strong>g</strong> / 45


Figure 2. Percentage Eye Contact dur<strong>in</strong>g Directions, Feedback, or Criticism<br />

<strong>in</strong> the follow-up phase, two were collected<br />

(M 100%).<br />

Figure 2 shows moderate ga<strong>in</strong>s <strong>in</strong> eye contact<br />

occurred dur<strong>in</strong>g directions, feedback, or<br />

criticism between basel<strong>in</strong>e <strong>and</strong> the ma<strong>in</strong>tenance<br />

phase (58.34%). There was a 58.34%<br />

change between basel<strong>in</strong>e <strong>and</strong> the follow-up<br />

phase <strong>and</strong> <strong>in</strong>tervention <strong>and</strong> a 38.11% change<br />

between the ma<strong>in</strong>tenance phases. Similar to<br />

the results found for appropriate verbal response<br />

behavior, the smallest ga<strong>in</strong> <strong>in</strong> eye contact<br />

occurred dur<strong>in</strong>g directions, feedback, or<br />

criticism between the <strong>in</strong>itial basel<strong>in</strong>e <strong>and</strong> the<br />

<strong>in</strong>tervention phases (20.23%), although these<br />

still represent a socially valuable behavioral<br />

change.<br />

A best-fit-l<strong>in</strong>e approach (least squares regression)<br />

revealed a high positive trend with<strong>in</strong><br />

the basel<strong>in</strong>e phase (slope 10.91) <strong>and</strong> a low<br />

negative trend with<strong>in</strong> the <strong>in</strong>tervention phase<br />

(slope 1.11). A small positive trend was<br />

revealed from the basel<strong>in</strong>e to the follow-up<br />

phase (slope .61). In general, these results<br />

represent an overall trend reversal. The stability<br />

of data based on a criterion of plus or<br />

m<strong>in</strong>us 50% of the mean showed the data val-<br />

ues to be stable dur<strong>in</strong>g the ma<strong>in</strong>tenance <strong>and</strong><br />

follow-up phases. The basel<strong>in</strong>e <strong>and</strong> <strong>in</strong>tervention<br />

phases showed variability <strong>in</strong> data.<br />

Wait<strong>in</strong>g to Respond<br />

Figure 3 summarizes the data po<strong>in</strong>t values<br />

measur<strong>in</strong>g the participant’s wait<strong>in</strong>g to respond<br />

behavior. Dur<strong>in</strong>g the basel<strong>in</strong>e, eight<br />

data po<strong>in</strong>ts were collected on the percentage<br />

of participant’s wait<strong>in</strong>g to respond to the<br />

number of opportunities given for directions,<br />

feedback or criticism by a supervisor or coworker<br />

(M 19.79%). Dur<strong>in</strong>g the <strong>in</strong>tervention<br />

phases, 30 data po<strong>in</strong>ts were collected<br />

(M 56.39%). In the ma<strong>in</strong>tenance phase, two<br />

data po<strong>in</strong>ts were collected (M 100%), <strong>and</strong><br />

dur<strong>in</strong>g follow-up, two data po<strong>in</strong>ts were collected<br />

(M 100%).<br />

Large ga<strong>in</strong>s <strong>in</strong> the mean levels of the participant’s<br />

wait<strong>in</strong>g to respond behavior, shown<br />

<strong>in</strong> Figure 3, occurred between the basel<strong>in</strong>e<br />

<strong>and</strong> the ma<strong>in</strong>tenance phase (80.79%) <strong>and</strong> the<br />

basel<strong>in</strong>e <strong>and</strong> follow-up phase (80.79%). Moderate<br />

ga<strong>in</strong>s occurred between the <strong>in</strong>tervention<br />

<strong>and</strong> the ma<strong>in</strong>tenance phases (43.61%), <strong>and</strong><br />

46 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Figure 3. Percentage Participant Wait<strong>in</strong>g to Respond to Directions, Feedback, or Criticism<br />

between the basel<strong>in</strong>e <strong>and</strong> <strong>in</strong>tervention phases<br />

(36.60%).<br />

A best-fit-l<strong>in</strong>e approach (least squares regression)<br />

to estimat<strong>in</strong>g trends <strong>in</strong> the slope of<br />

the data with<strong>in</strong> <strong>and</strong> between phases found<br />

moderately high positive trend with<strong>in</strong> the <strong>in</strong>itial<br />

basel<strong>in</strong>e phase (slope 6.05) <strong>and</strong> a small<br />

positive trend with<strong>in</strong> the <strong>in</strong>tervention phase<br />

(slope 1.40). A small to moderate positive<br />

trend was revealed from the <strong>in</strong>itial basel<strong>in</strong>e to<br />

the <strong>in</strong>tervention phases (slope 1.67). A<br />

small to moderate positive trend was revealed<br />

from the basel<strong>in</strong>e to the follow-up phase<br />

(slope 1.89). These results demonstrate an<br />

overall reversal <strong>in</strong> trend, as well as small to<br />

moderate ga<strong>in</strong>s <strong>in</strong> this target behavior. The<br />

stability of data based on a criterion of plus or<br />

m<strong>in</strong>us 50% of the mean found the data values<br />

to be stable dur<strong>in</strong>g the ma<strong>in</strong>tenance <strong>and</strong> follow-up<br />

phases. The <strong>in</strong>itial basel<strong>in</strong>e <strong>and</strong> <strong>in</strong>tervention<br />

phases showed variability <strong>in</strong> data.<br />

Appropriate Verbal Response to Directions,<br />

Feedback, or Criticism<br />

The data po<strong>in</strong>t values measur<strong>in</strong>g the appropriate<br />

verbal response behavior are shown <strong>in</strong><br />

Figure 4. Dur<strong>in</strong>g basel<strong>in</strong>e, eight data po<strong>in</strong>ts<br />

were collected on the percentage of appropriate<br />

verbal responses to opportunities to respond<br />

to directions, feedback, or criticism<br />

from a supervisor or co-worker dur<strong>in</strong>g 10m<strong>in</strong>ute<br />

sessions (M 0%). Dur<strong>in</strong>g the <strong>in</strong>terventions,<br />

29 data po<strong>in</strong>ts were collected (M <br />

34.44%). For the ma<strong>in</strong>tenance phase, two<br />

data po<strong>in</strong>ts were collected (M 100%) while<br />

dur<strong>in</strong>g the follow-up phase, two data po<strong>in</strong>ts<br />

were also collected (M 87.50%). The percentage<br />

of appropriate verbal response with<br />

slope l<strong>in</strong>e is shown <strong>in</strong> Figure 4.<br />

As shown <strong>in</strong> Figure 4, large ga<strong>in</strong>s <strong>in</strong> the<br />

mean levels of appropriate verbal response<br />

were found between the basel<strong>in</strong>e <strong>and</strong> the<br />

ma<strong>in</strong>tenance phases (100%) <strong>and</strong> the basel<strong>in</strong>e<br />

<strong>and</strong> follow-up phase (87.50%). A best-fit-l<strong>in</strong>e<br />

approach (least squares regression) to estimat<strong>in</strong>g<br />

trends <strong>in</strong> the slope of the data with<strong>in</strong><br />

<strong>and</strong> between phases found high positive<br />

trends between the <strong>in</strong>itial basel<strong>in</strong>e (slope <br />

0), <strong>and</strong> the ma<strong>in</strong>tenance (slope 9.70) <strong>and</strong><br />

follow-up phases (slope 8.64). On the other<br />

h<strong>and</strong>, a more moderate positive trend was<br />

found between the basel<strong>in</strong>e (slope 0) <strong>and</strong><br />

Social Skills <strong>Tra<strong>in</strong><strong>in</strong>g</strong> / 47


Figure 4. Percentage of Appropriate Verbal Response to Directions, Feedback, or Criticism<br />

<strong>in</strong>tervention phases (slope 2.13). In sum,<br />

these f<strong>in</strong>d<strong>in</strong>gs show clear reversals <strong>in</strong> trends,<br />

as well as, consistent ga<strong>in</strong>s from basel<strong>in</strong>e to the<br />

follow-up phase (slope 3.00), <strong>and</strong> from the<br />

<strong>in</strong>tervention phase extend<strong>in</strong>g to the follow-up<br />

phase (slope 2.37).<br />

The stability of data based on a criterion of<br />

plus or m<strong>in</strong>us 50% of the mean found the<br />

data values to be stable dur<strong>in</strong>g the <strong>in</strong>itial basel<strong>in</strong>e,<br />

ma<strong>in</strong>tenance, <strong>and</strong> follow-up phases. The<br />

<strong>in</strong>tervention phases showed variability <strong>in</strong> the<br />

target behavior data. There were adequate<br />

lengths of data po<strong>in</strong>ts collected across all<br />

phases of this behavior, <strong>and</strong> those described<br />

above. One possible explanation for <strong>in</strong>creased<br />

variability <strong>in</strong> data may be that the data po<strong>in</strong>ts<br />

represented percentages. Us<strong>in</strong>g the multiplier<br />

of 100%, may have exp<strong>and</strong>ed the range of<br />

data by a factor of 100, thus <strong>in</strong>creas<strong>in</strong>g the<br />

overall variability. Additionally, this outcome<br />

was represented <strong>in</strong> the other target behaviors<br />

previously described.<br />

Social Validity Data<br />

The social validity data from the pre- <strong>and</strong> post<strong>in</strong>tervention<br />

questionnaires (answered by one<br />

supervisor <strong>and</strong> two co-workers) were collected<br />

<strong>and</strong> analyzed us<strong>in</strong>g both quantitative as well as<br />

qualitative measures, such as content analysis<br />

(Kennedy, 2005). Results suggested the respondents<br />

perceived that the social skill target<br />

behaviors were improved follow<strong>in</strong>g <strong>in</strong>tervention.<br />

Accord<strong>in</strong>g to the anonymously answered<br />

questionnaires (N 3), the participant’s abilities<br />

to learn new tasks easily <strong>and</strong> to accept<br />

verbal directives were rated as 30% higher<br />

post-<strong>in</strong>tervention. The participant’s ability to<br />

accept feedback was rated as 20% higher post<strong>in</strong>tervention,<br />

<strong>and</strong> her ability to accept criticism<br />

was rated as 7% higher post-<strong>in</strong>tervention.<br />

However, some concerns about the participant’s<br />

discussion of personal topics dur<strong>in</strong>g<br />

work cont<strong>in</strong>ued to be an issue of need <strong>in</strong> the<br />

workplace as <strong>in</strong>dicated by written responses to<br />

the survey’s open-ended question.<br />

Discussion<br />

The present study used a structured role play<strong>in</strong>g<br />

strategy that supported the promotion of<br />

self-management skills for improv<strong>in</strong>g the social<br />

skills of a young woman with moderate<br />

48 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


<strong>in</strong>tellectual disability work<strong>in</strong>g as a volunteer <strong>in</strong><br />

a community child care sett<strong>in</strong>g. The results<br />

revealed improvement <strong>in</strong> all target social behaviors<br />

<strong>and</strong> a perceived positive change <strong>in</strong> the<br />

participant’s work performance <strong>in</strong>volv<strong>in</strong>g<br />

these skills by her supervisor <strong>and</strong> co-workers<br />

after the study was concluded. Analyses<br />

showed a clear trend reversal <strong>in</strong> the data when<br />

basel<strong>in</strong>e <strong>and</strong> post-<strong>in</strong>tervention phases were<br />

compared. Specifically, the study found that<br />

this type of tra<strong>in</strong><strong>in</strong>g protocol which was given<br />

outside the immediate workspace, was efficacious<br />

<strong>in</strong> tra<strong>in</strong><strong>in</strong>g the follow<strong>in</strong>g prosocial behaviors:<br />

(a) establish<strong>in</strong>g <strong>and</strong> ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g eye<br />

contact with adults dur<strong>in</strong>g conversation, <strong>and</strong><br />

directions, feedback, or criticism, (b) wait<strong>in</strong>g<br />

to respond until adults were f<strong>in</strong>ished speak<strong>in</strong>g,<br />

<strong>and</strong> (c) giv<strong>in</strong>g appropriate verbal response<br />

to directions, feedback, or criticism<br />

from a supervisor or co-worker.<br />

Results of this study are consistent with previous<br />

research (Ganz & Sigafoos, 2005) that<br />

found that teach<strong>in</strong>g self-management skills to<br />

young adults with <strong>in</strong>tellectual disabilities<br />

could promote the use of cognitive strategies<br />

which students appeared to be able to use<br />

<strong>in</strong>dependently at a later time to <strong>in</strong>crease target<br />

tra<strong>in</strong>ed behaviors. The role-play<strong>in</strong>g <strong>and</strong><br />

focused <strong>in</strong>struction of the tra<strong>in</strong><strong>in</strong>g protocol<br />

had four components which appeared to have<br />

positively <strong>in</strong>fluenced the outcomes of this<br />

study. First, the tra<strong>in</strong><strong>in</strong>g protocol relied<br />

heavily on encourag<strong>in</strong>g the participant to use<br />

cognitive strategies to th<strong>in</strong>k about the behaviors<br />

she was attempt<strong>in</strong>g to learn <strong>and</strong> how<br />

those new responses might impact those<br />

around her. She was required to tell the tra<strong>in</strong>ers<br />

how she would feel if someone displayed<br />

the target behavior with her <strong>and</strong> how she felt<br />

when she displayed them. Because the participant’s<br />

communication skills were good, this<br />

strategy appeared to be a reasonable <strong>and</strong> effective<br />

choice for her. This technique also<br />

appeared to re<strong>in</strong>force for the participant that<br />

she did <strong>in</strong>deed have control over these behaviors<br />

herself. However, <strong>in</strong>formal discussion<br />

with the participant’s supervisor <strong>and</strong> <strong>in</strong>formal<br />

observations of the participant follow<strong>in</strong>g the<br />

study suggested that she cont<strong>in</strong>ued to have<br />

some difficulty recogniz<strong>in</strong>g that she needed to<br />

use the target behaviors with co-workers, especially<br />

when co-workers were close <strong>in</strong> age to the<br />

participant <strong>and</strong> she viewed them as a peer.<br />

Second, the tra<strong>in</strong><strong>in</strong>g placed an emphasis on<br />

develop<strong>in</strong>g the skills that were described to<br />

the participant as those that “professionals<br />

use.” That is, dur<strong>in</strong>g tra<strong>in</strong><strong>in</strong>g the tra<strong>in</strong>er<br />

might say someth<strong>in</strong>g like: “Professionals keep<br />

their eyes on the person talk<strong>in</strong>g to them”<br />

when <strong>in</strong>troduc<strong>in</strong>g <strong>and</strong> rehears<strong>in</strong>g this skill.<br />

Third, the participant was given a role-play<br />

sequence each tra<strong>in</strong><strong>in</strong>g which varied <strong>in</strong> some<br />

way. In the role-play, the participant might<br />

first take her own role, <strong>and</strong> then assume the<br />

role of her supervisor. The repeated rehearsal<br />

of the target behaviors <strong>in</strong> a number of workspecific<br />

situations was undoubtedly useful for<br />

this participant. Situations which had already<br />

occurred (<strong>and</strong> she had reacted <strong>in</strong> a way that<br />

her supervisor communicated was <strong>in</strong>appropriate<br />

or unacceptable to the sett<strong>in</strong>g) were used.<br />

Additionally, the participant role-played situations<br />

that had not occurred but were likely to<br />

occur. These situations were recommended by<br />

her supervisor <strong>and</strong>/or co-workers. Every effort<br />

was made to keep the tra<strong>in</strong><strong>in</strong>g as “authentic”<br />

as possible. As tra<strong>in</strong><strong>in</strong>g progressed, the tra<strong>in</strong>ers<br />

gradually removed the number of verbal<br />

prompts offered to support the participant’s<br />

target behaviors. And fourth, the participant<br />

was very committed to cont<strong>in</strong>u<strong>in</strong>g her work as<br />

a volunteer <strong>in</strong> the sett<strong>in</strong>g. Her personal desire<br />

may have strengthened the impact of the<br />

tra<strong>in</strong><strong>in</strong>g.<br />

The <strong>in</strong>tervention data showed variability <strong>in</strong><br />

the target behaviors that were measured,<br />

which may be partially due to changes <strong>in</strong> personnel<br />

assignments unique to this workplace<br />

sett<strong>in</strong>g. For example, the child care center<br />

used for this study sett<strong>in</strong>g is also a teacherpreparation<br />

practicum site that has a new cohort<br />

of teacher-c<strong>and</strong>idates rotat<strong>in</strong>g through<br />

the classrooms on a bi-monthly basis. These<br />

personnel changes, while representative of<br />

real workplace situations, posed an additional<br />

challenge for the participant requir<strong>in</strong>g her to<br />

<strong>in</strong>teract with new people on a regular basis.<br />

The challenge posed by changes <strong>in</strong> personnel<br />

affect<strong>in</strong>g variability <strong>in</strong> target behaviors would<br />

need to be addressed <strong>in</strong> future studies conducted<br />

at this child care center.<br />

Although the data demonstrated considerable<br />

variability, there rema<strong>in</strong>ed a clear trend<br />

toward acquisition of the target behaviors at<br />

the conclusion of <strong>in</strong>tervention. In addition,<br />

target behaviors cont<strong>in</strong>ued to occur at a rate<br />

Social Skills <strong>Tra<strong>in</strong><strong>in</strong>g</strong> / 49


of 87%–100% of the time dur<strong>in</strong>g observation<br />

sessions conducted dur<strong>in</strong>g the ma<strong>in</strong>tenance<br />

<strong>and</strong> follow-up phases of the study, suggest<strong>in</strong>g<br />

that the natural <strong>in</strong>teractional consequences<br />

which the target behaviors tended to draw<br />

(such as smiles, words of thanks, <strong>and</strong> a decrease<br />

<strong>in</strong> criticism from the supervisor) were<br />

sufficient <strong>in</strong> ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g these skills for the<br />

three months follow<strong>in</strong>g tra<strong>in</strong><strong>in</strong>g. The results<br />

of this study are promis<strong>in</strong>g <strong>in</strong> that they may<br />

offer professionals who support <strong>in</strong>dividuals<br />

with moderate <strong>in</strong>tellectual disabilities an additional<br />

option for improv<strong>in</strong>g work-related skills<br />

without the potential <strong>in</strong>trusion <strong>and</strong> social dependence<br />

that may occur with the use of job<br />

coaches accord<strong>in</strong>g to Mautz <strong>and</strong> colleagues<br />

(2001).<br />

Of the target behaviors tra<strong>in</strong>ed, eye contact<br />

dur<strong>in</strong>g directions, feedback <strong>and</strong>/or criticism<br />

<strong>and</strong> provid<strong>in</strong>g appropriate responses<br />

seemed to be the most challeng<strong>in</strong>g for the<br />

participant. This too appears consistent with<br />

the evidence that task-oriented conversations<br />

are more challeng<strong>in</strong>g for <strong>in</strong>dividuals<br />

with <strong>in</strong>tellectual disabilities than sociallyoriented<br />

conversations (Hughes, Carter,<br />

Hughes, Bradford, & Copel<strong>and</strong>, 2002). But<br />

the reality is that any workplace presents a<br />

high rate of task-oriented conversations so<br />

potential workers must develop competence<br />

<strong>in</strong> manag<strong>in</strong>g this style of verbal <strong>in</strong>teraction<br />

to be <strong>in</strong>tegrated successfully, particularly <strong>in</strong><br />

community-based work sites. Similarly, the<br />

participant of this study appeared more at<br />

ease with socially-oriented conversations<br />

than task-oriented <strong>in</strong>teractions. That is, she<br />

seemed to believe that if she used sociallyoriented<br />

conversations, she was less at-risk<br />

for receiv<strong>in</strong>g nonpositive feedback on her<br />

work performance. Ironically, this is the opposite<br />

of the case <strong>in</strong> this work site <strong>and</strong> others.<br />

Several limitations of the present study<br />

merit comment. First, only a small, discrete set<br />

of target behaviors were identified <strong>and</strong><br />

tra<strong>in</strong>ed. There were several other behaviors,<br />

such as child-directed conversations, that<br />

could have been addressed to maximize the<br />

participant’s job skill repertoire. Second, implement<strong>in</strong>g<br />

the tra<strong>in</strong><strong>in</strong>g fidelity proved to be a<br />

challenge at times. There were times <strong>in</strong> which<br />

the tra<strong>in</strong>ers found it difficult to br<strong>in</strong>g the<br />

tra<strong>in</strong><strong>in</strong>g back to the script when the partici-<br />

pant asked a question that was relevant but<br />

not an assigned component of the tra<strong>in</strong><strong>in</strong>g<br />

protocol. Third, the child care center used<br />

was established as a tra<strong>in</strong><strong>in</strong>g site for pre-service<br />

teachers so it was equipped with observation<br />

rooms from which the observers could<br />

collect data unobtrusively. Others might f<strong>in</strong>d<br />

this impossible <strong>and</strong> may have to be visually<br />

available to the subject which may <strong>in</strong>fluence<br />

the outcomes. Fourth, as noted the participant<br />

had good communication skills, was a<br />

fairly <strong>in</strong>dependent worker, <strong>and</strong> may have required<br />

less direction from her supervisor <strong>and</strong><br />

co-workers than others who may be classified<br />

with the same level of <strong>in</strong>tellectual disability.<br />

This <strong>in</strong>crease <strong>in</strong> <strong>in</strong>dependence frequently led<br />

to a decrease <strong>in</strong> verbal respond<strong>in</strong>g opportunities,<br />

<strong>and</strong> a number of observation sessions <strong>in</strong><br />

which no opportunities were recorded. Consequently,<br />

these sessions were omitted from<br />

the reported data. A f<strong>in</strong>al limitation of the<br />

study was that the tra<strong>in</strong>ers <strong>and</strong> data collectors<br />

were the same <strong>in</strong>dividuals which exposed the<br />

study to the threat of researcher bias. However,<br />

when <strong>in</strong>terrater reliability <strong>and</strong> fidelity of<br />

treatment were determ<strong>in</strong>ed, two non-tra<strong>in</strong>ers<br />

were used.<br />

Despite these limitations, the present s<strong>in</strong>gle<br />

subject study demonstrates the efficacy of us<strong>in</strong>g<br />

a structured role play<strong>in</strong>g tra<strong>in</strong><strong>in</strong>g protocol<br />

outside the immediate workspace to promote<br />

the development of self-management skills<br />

<strong>and</strong> prosocial behaviors for improved performance<br />

<strong>in</strong> a workplace. Future research should<br />

replicate this study to help develop an evidence<br />

base for practical application, as well as<br />

extend it to <strong>in</strong>clude <strong>in</strong>dividuals with a variety<br />

of disabilities, such as autism to determ<strong>in</strong>e<br />

generalization of the tra<strong>in</strong><strong>in</strong>g strategy. In addition,<br />

research <strong>in</strong> community sett<strong>in</strong>gs that<br />

differ from this one would be useful. Recently,<br />

develop<strong>in</strong>g a community-based partnership<br />

<strong>in</strong>volv<strong>in</strong>g employers, high schools, vocational<br />

tra<strong>in</strong><strong>in</strong>g programs, <strong>and</strong> similar organizations<br />

has also been shown to improve work opportunities<br />

for youth with disabilities (Carter et<br />

al., 2009). As the hope for community-based<br />

work for <strong>in</strong>dividuals with <strong>in</strong>tellectual disabilities<br />

<strong>in</strong>creases, it becomes even more critical<br />

for professionals to identify time-effective<br />

methods to better support the work performance<br />

of these youth <strong>and</strong> adults.<br />

50 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


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Received: 8 September 2009<br />

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F<strong>in</strong>al Acceptance: 1 March 2010<br />

Social Skills <strong>Tra<strong>in</strong><strong>in</strong>g</strong> / 51


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 52–61<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

Correspondence between Video-Based Preference Assessment<br />

<strong>and</strong> Subsequent Community Job Performance<br />

Robert L. Morgan <strong>and</strong> Er<strong>in</strong> L. Horrocks<br />

Utah State University<br />

Abstract: Researchers identified high <strong>and</strong> low preference jobs us<strong>in</strong>g a video web-based assessment program with<br />

three young adults ages 18 to 19 with <strong>in</strong>tellectual disabilities. Individual participants were then taught to<br />

perform high <strong>and</strong> low preference jobs <strong>in</strong> community locations. The order of 25-m<strong>in</strong> high <strong>and</strong> low preference job<br />

sessions was r<strong>and</strong>omized. A third session allowed participants to choose which job they wanted to perform. Two<br />

data collectors, who were unaware of high <strong>and</strong> low preference jobs, recorded observations of on-task behavior.<br />

Us<strong>in</strong>g an alternat<strong>in</strong>g treatments design, researchers found participants (a) were engaged <strong>in</strong> tasks at generally<br />

higher rates on high preference versus low preference jobs, (b) usually selected high preference jobs <strong>in</strong> the choice<br />

session, <strong>and</strong> (c) identified high preference jobs as the favored one at the conclusion of the research. Results were<br />

consistent with selections on the video web-based assessment program.<br />

Assessment of job preferences for <strong>in</strong>dividuals<br />

with significant <strong>in</strong>tellectual disabilities is important<br />

for three reasons. First, it aligns with<br />

the philosophy of self-determ<strong>in</strong>ation which<br />

states that an <strong>in</strong>dividual acts “as a primary<br />

causal agent <strong>in</strong> one’s life <strong>and</strong> (makes) decisions<br />

regard<strong>in</strong>g one’s quality of life free from<br />

undue <strong>in</strong>fluence <strong>and</strong> <strong>in</strong>terference” (Wehmeyer,<br />

1996). Baer (1998) describes self-determ<strong>in</strong>ation<br />

as presentation of two or more conditions<br />

with a request for a response to<br />

<strong>in</strong>dicate the preferred one based on relative<br />

frequency of choice. Second, assessment of<br />

preferences is required by the Individuals with<br />

<strong>Disabilities</strong> <strong>Education</strong>al Improvement Act<br />

(IDEIA, 2004) which states that a student’s<br />

<strong>in</strong>terests <strong>and</strong> preferences should be assessed<br />

<strong>in</strong> transition from school to adult roles. Third,<br />

work<strong>in</strong>g <strong>in</strong> preferred sett<strong>in</strong>gs <strong>in</strong>creases job<br />

performance (Bambara, Ager, & Koger, 1994;<br />

Parsons, Reid, Reynolds, & Bumgarner, 1990;<br />

Reid, Parsons, & Green, 1998). Parsons et al.<br />

assessed work preferences of four adults with<br />

The authors wish to thank the participants, their<br />

teachers, the data collectors, <strong>and</strong> the Logan City<br />

<strong>and</strong> Cache School Districts. Correspondence concern<strong>in</strong>g<br />

this article should be addressed to Robert<br />

L. Morgan, Ph.D., Department of Special <strong>Education</strong><br />

<strong>and</strong> Rehabilitation, Utah State University, Logan,<br />

UT. 84322-2865. Email: bob.morgan@usu.edu<br />

developmental disabilities then arranged work<br />

on a high preference task, a low preference<br />

task, <strong>and</strong> a choice of tasks. Tasks <strong>in</strong>cluded five<br />

woodwork<strong>in</strong>g activities <strong>in</strong> a sheltered workshop.<br />

Task preferences were assessed <strong>in</strong>dividually<br />

as researchers placed two tasks <strong>in</strong> the<br />

participant’s view, requested a choice, recorded<br />

responses, provided 10 m<strong>in</strong> of work<br />

opportunity on the chosen task, <strong>and</strong> repeated<br />

the assessment. In subsequent work periods,<br />

researchers recorded participants’ on-task behavior.<br />

Us<strong>in</strong>g an alternat<strong>in</strong>g treatments design,<br />

high preference <strong>and</strong> choice tasks were<br />

associated with <strong>in</strong>creased levels of on-task behavior<br />

compared to low preference tasks.<br />

Bambara et al. systematically replicated the<br />

Parsons et al. study with three adults with developmental<br />

disabilities <strong>and</strong> found similar results.<br />

In a second study, Bambara et al. found<br />

choice of task was associated with higher levels<br />

of on-task behavior than no choice.<br />

Previous research <strong>in</strong> job preference has <strong>in</strong>volved<br />

assessment <strong>and</strong> subsequent measurement<br />

of job performance on vocational tasks<br />

or portions of jobs (e.g., Mithaug & Hanawalt,<br />

1978). Video-based job preference assessment<br />

may serve as an efficient <strong>and</strong> economical alternative<br />

prior to plac<strong>in</strong>g youth or adults <strong>in</strong>to<br />

community employment. In recent years,<br />

three video-based assessments for <strong>in</strong>dividuals<br />

with <strong>in</strong>tellectual disabilities have been re-<br />

52 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


searched (Ellerd, Morgan, & Salzberg, 2006;<br />

Mart<strong>in</strong> et al., 2005; Stock, Davies, Secor, &<br />

Wehmeyer, 2003). One assessment entitled<br />

Your Employment Selections (YES: Morgan,<br />

Ellerd, Gerity, & Tullis, 2001) presents 2–4<br />

m<strong>in</strong> of video on up to 120 different entry-level<br />

jobs identified as common placements for <strong>in</strong>dividuals<br />

with <strong>in</strong>tellectual disabilities (Morgan,<br />

Ellerd, & Jensen, 2000). The video assessment<br />

program allows a participant to select<br />

preferred work conditions, <strong>and</strong> then watch<br />

video of jobs match<strong>in</strong>g selected characteristics.<br />

The outcome is a list of five to eight<br />

preferred jobs to be used for (a) consideration<br />

by the job seeker <strong>and</strong>/or support team,<br />

(b) identification of tra<strong>in</strong><strong>in</strong>g priorities, <strong>and</strong><br />

(c) job development <strong>and</strong> placement. Ellerd et<br />

al. exam<strong>in</strong>ed the correspondence between<br />

video job preferences <strong>and</strong> selections made after<br />

community tours of employment sites. The<br />

video assessment first identified one high preference<br />

<strong>and</strong> one low preference job followed<br />

by community visits to the same jobs. Results<br />

from 20 participants, ages 18–22 with <strong>in</strong>tellectual<br />

disabilities, <strong>in</strong>dicated 34 of 40 jobs selected<br />

as preferred <strong>in</strong> the video CD-ROM program<br />

were selected as preferred after<br />

community visits.<br />

Although previous research identified a relationship<br />

between preferences for video stimuli<br />

<strong>and</strong> preferences for community employment,<br />

it did not <strong>in</strong>vestigate the potential<br />

relationship between preferences <strong>and</strong> subsequent<br />

job performance. That is, the relationship<br />

between preference <strong>and</strong> job performance<br />

found <strong>in</strong> previous research (Bambara et al.,<br />

1994; Parsons et al., 1990) has not been exam<strong>in</strong>ed<br />

with video stimuli <strong>and</strong> community jobs.<br />

There is a need to determ<strong>in</strong>e whether a videobased<br />

job assessment is predictive of high levels<br />

of performance on a job (e.g., engagement<br />

with the task, acceptable levels of productivity,<br />

<strong>in</strong>creased production over time) because such<br />

an assessment may be useful <strong>in</strong> identify<strong>in</strong>g<br />

preferred jobs for tra<strong>in</strong><strong>in</strong>g <strong>and</strong> placement.<br />

However, given the complexity of community<br />

jobs, a highly preferred video may evidence no<br />

relationship to high job performance. Conversely,<br />

a low preference video may not predict<br />

low job performance. Individuals may respond<br />

to stimuli <strong>in</strong> actual job sett<strong>in</strong>gs <strong>in</strong> ways<br />

that alter preferences <strong>and</strong> affect their performance<br />

of job tasks. Additionally, video selec-<br />

tions may not predict future preferences after<br />

an <strong>in</strong>dividual has performed tasks related to<br />

the job. Research is needed to determ<strong>in</strong>e<br />

whether job preferences identified on video<br />

correspond with high levels of performance<br />

on the job. One way to <strong>in</strong>vestigate such a<br />

relationship is to exam<strong>in</strong>e differences <strong>in</strong> high<br />

<strong>and</strong> low preference job performance follow<strong>in</strong>g<br />

video selection. The purpose of the<br />

present study was to <strong>in</strong>vestigate whether jobs<br />

identified as high <strong>and</strong> low preference <strong>in</strong> a<br />

video assessment were associated with high<br />

<strong>and</strong> low levels of performance on the jobs.<br />

Method<br />

Participants<br />

Participants were three <strong>in</strong>dividuals participat<strong>in</strong>g<br />

<strong>in</strong> a post-high school special education<br />

program on a university campus. Goals <strong>and</strong><br />

objectives <strong>in</strong> Individual <strong>Education</strong> Plans<br />

(IEPs) focused on develop<strong>in</strong>g employmentrelated<br />

skills.<br />

Diego was an 18-year-old Hispanic male<br />

with Down Syndrome whose scores on the<br />

Leiter International Performance Scale (i.e., a<br />

nonverbal <strong>in</strong>telligence test) <strong>and</strong> V<strong>in</strong>el<strong>and</strong><br />

Adaptive Behavior Scale <strong>in</strong>dicated performance<br />

<strong>in</strong> the moderate range of <strong>in</strong>tellectual<br />

disability. Diego verbally stated basic <strong>in</strong>formation<br />

(e.g., first/last name, address, school),<br />

read 2 nd grade sentences at 60 words per<br />

m<strong>in</strong>ute, <strong>and</strong> identified the value of common<br />

co<strong>in</strong>s <strong>and</strong> bills. He performed one-digit addition/subtraction.<br />

Diego’s employment tra<strong>in</strong><strong>in</strong>g<br />

experience <strong>in</strong>cluded perform<strong>in</strong>g tasks for<br />

two hours per day for 12 weeks <strong>in</strong> a kitchen<br />

(food preparation) <strong>and</strong> a department store<br />

(stock<strong>in</strong>g).<br />

Kyle was an 18-year-old male with Williams<br />

Syndrome whose <strong>in</strong>telligence <strong>and</strong> adaptive behavior<br />

scale scores <strong>in</strong>dicated performance <strong>in</strong><br />

the moderate range of <strong>in</strong>tellectual disability.<br />

Kyle verbally identified simple one <strong>and</strong> twosyllable<br />

words, sounds correspond<strong>in</strong>g to letter<br />

names, <strong>and</strong> names of letters. He verbalized<br />

numbers up to 20, identified numbers correspond<strong>in</strong>g<br />

with up to 20 objects, <strong>and</strong> physically<br />

grouped objects by size. Kyle’s employment<br />

experience <strong>in</strong>cluded part-time tra<strong>in</strong><strong>in</strong>g <strong>in</strong> a<br />

fast food restaurant (clean<strong>in</strong>g tables), kitchen<br />

Job Preference Assessment / 53


(mopp<strong>in</strong>g floors <strong>and</strong> clean<strong>in</strong>g), <strong>and</strong> supermarket<br />

(stock<strong>in</strong>g).<br />

Tasha was a 19-year-old female with mild<br />

cerebral palsy whose <strong>in</strong>telligence <strong>and</strong> adaptive<br />

behavior scale scores <strong>in</strong>dicated performance<br />

<strong>in</strong> the mild-to-moderate range of <strong>in</strong>tellectual<br />

disability. Tasha read newspaper articles, used<br />

a calculator to add/subtract, verbally identified<br />

clock time to 5-m<strong>in</strong> <strong>in</strong>crements, <strong>and</strong><br />

spoke <strong>in</strong> complex sentences. Her employment<br />

experience <strong>in</strong>cluded part-time tra<strong>in</strong><strong>in</strong>g <strong>in</strong> a<br />

bus garage (wash<strong>in</strong>g vehicles), retail store<br />

(clean<strong>in</strong>g surfaces), <strong>and</strong> elementary school<br />

(mak<strong>in</strong>g materials for student activities). She<br />

received daily medication for agitation, depression,<br />

<strong>and</strong> anxiety.<br />

These participants were selected because of<br />

nom<strong>in</strong>ation from their post-high school<br />

teacher <strong>in</strong>dicat<strong>in</strong>g they (a) verbally identified<br />

preferences, (b) possessed adequate expressive<br />

<strong>and</strong> receptive English language, (c) demonstrated<br />

basic vocational skills, <strong>and</strong> (d) attended<br />

on a regular basis.<br />

Sett<strong>in</strong>gs<br />

Video preference assessment. Individual participants<br />

<strong>and</strong> one of the researchers met <strong>in</strong> a<br />

5 m by 4 m office on a university campus to<br />

conduct the assessment. The room <strong>in</strong>cluded a<br />

desk, chairs, <strong>and</strong> laptop computer with Internet<br />

access.<br />

Job locations <strong>and</strong> tasks. Sett<strong>in</strong>gs <strong>and</strong> tasks<br />

<strong>in</strong>cluded (a) stock<strong>in</strong>g c<strong>and</strong>y at a supermarket<br />

<strong>in</strong> a shopp<strong>in</strong>g center, (b) cutt<strong>in</strong>g 22-gauge<br />

phone wires at an assistive technology lab on a<br />

university campus, (c) restock<strong>in</strong>g DVDs at a<br />

video rental center, (d) sort<strong>in</strong>g bolts, screws,<br />

nuts, washers, <strong>and</strong> other items at an agricultural<br />

systems technology center, (e) feed<strong>in</strong>g<br />

chickens <strong>and</strong> other animals, brush<strong>in</strong>g horses,<br />

<strong>and</strong> clean<strong>in</strong>g facilities at a farm; <strong>and</strong> (f) dust<strong>in</strong>g/sweep<strong>in</strong>g<br />

shelves <strong>and</strong> recreational vehicles<br />

at a repair facility. All jobs were <strong>in</strong> <strong>in</strong>tegrated<br />

community sett<strong>in</strong>gs.<br />

Procedure<br />

This study began with a video preference assessment<br />

session with each participant. Participants<br />

then performed high <strong>and</strong> low preference<br />

job tasks <strong>in</strong> community locations. The<br />

study concluded with a brief <strong>in</strong>terview of each<br />

participant. All sessions were conducted with<br />

<strong>in</strong>dividual participants. Procedures are described<br />

below.<br />

Video preference assessment. The first author<br />

adm<strong>in</strong>istered the video assessment to <strong>in</strong>dividual<br />

participants to identify high preference<br />

jobs. At the beg<strong>in</strong>n<strong>in</strong>g of the session, the first<br />

author stated:<br />

This is a web site that shows video of jobs.<br />

We are go<strong>in</strong>g to pick jobs you are <strong>in</strong>terested<br />

<strong>in</strong> <strong>and</strong> jobs you are not <strong>in</strong>terested <strong>in</strong>. This is<br />

not a test; it’s just a way to f<strong>in</strong>d out more<br />

about jobs <strong>and</strong> what you like. It takes about<br />

an hour. We can take a break at any time.<br />

The program presented four screens, each<br />

with four icons represent<strong>in</strong>g types of work <strong>and</strong><br />

job tasks (e.g., automotive, computer use, retail<br />

sales). Participants selected <strong>in</strong>dividual<br />

icons represent<strong>in</strong>g types of preferred work<br />

tasks. Given four screens with four icons each,<br />

up to 16 icons could have been selected. A<br />

computer program matched tasks to jobs<br />

based on <strong>in</strong>formation from O*Net (Department<br />

of Labor, 2008). The program recorded<br />

jobs associated with each selected icon. Jobs<br />

associated with all comb<strong>in</strong>ed icons were then<br />

listed (e.g., automotive computer use <br />

retail auto parts sales person). Participants<br />

then watched 2–4 m<strong>in</strong> of video on these jobs.<br />

The videos showed actual employees perform<strong>in</strong>g<br />

jobs <strong>in</strong> community sett<strong>in</strong>gs. After watch<strong>in</strong>g<br />

the video, a selection screen appeared. On the<br />

selection screen, the participant pressed a<br />

“thumbs up” button to reta<strong>in</strong> the job or a<br />

“thumbs down” button to discard it. A “More<br />

Information” l<strong>in</strong>k was available if the participant<br />

wanted additional job-specific data such<br />

as tra<strong>in</strong><strong>in</strong>g, qualifications, typical wages, <strong>and</strong><br />

other factors. If requested by the participant,<br />

the researcher read <strong>in</strong>formation from the<br />

“More Information” page. The outcome was a<br />

list of reta<strong>in</strong>ed jobs (out of 120 possible jobs).<br />

If more than three jobs were reta<strong>in</strong>ed, the<br />

researcher presented side-by-side screens<br />

show<strong>in</strong>g the open<strong>in</strong>g video frame of two jobs<br />

<strong>and</strong> asked “Which one do you like better: (Job<br />

A) or (Job B).” The participant could choose<br />

Job A, Job B, or both. The researcher proceeded<br />

through pairs of jobs <strong>in</strong> r<strong>and</strong>omized<br />

order. The process cont<strong>in</strong>ued until all jobs<br />

were discarded except for three. The three<br />

54 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


ema<strong>in</strong><strong>in</strong>g jobs were assumed to represent<br />

high preference ones.<br />

In a separate session on a different day, the<br />

researcher met with <strong>in</strong>dividual participants to<br />

identify low preference jobs. The session was<br />

conducted <strong>in</strong> a manner similar to the high<br />

preference session, except the researcher stated:<br />

This time, identify jobs you are not <strong>in</strong>terested<br />

<strong>in</strong>. Show me the jobs that you would<br />

not want to do.<br />

The outcome was a list of three low preference<br />

jobs. Sessions lasted 20 to 40 m<strong>in</strong>.<br />

Identification of community locations for high<br />

<strong>and</strong> low preference job tasks. Us<strong>in</strong>g the lists of<br />

three high <strong>and</strong> three low preference jobs for<br />

each participant, researchers contacted community<br />

employers to request opportunities to<br />

perform job tasks. The research was described<br />

<strong>and</strong> employers were assured that participants<br />

would be supervised. Employers were told the<br />

work sessions were for the purpose of “provid<strong>in</strong>g<br />

<strong>in</strong>dividuals the opportunity to perform<br />

jobs <strong>in</strong> community sett<strong>in</strong>gs.” Given agreement<br />

by employers, one high preference job site<br />

<strong>and</strong> one low preference job site was established<br />

for each participant.<br />

Pre-assessment. Prior to the first session,<br />

researchers conducted a brief assessment at<br />

each job site. After the researchers set up tasks<br />

<strong>and</strong> an <strong>in</strong>formal task analysis list<strong>in</strong>g steps to be<br />

performed, researchers observed as each participant<br />

carried out the primary tasks of each<br />

job. Researchers scored performance on each<br />

step as <strong>in</strong>dependent or requir<strong>in</strong>g a prompt. If<br />

a prompt was required, researchers repeated<br />

the pre-assessment process. All participants<br />

performed steps <strong>in</strong>dependently prior to the<br />

first session of job performance.<br />

Job performance assessment. Two data collectors,<br />

unaware of participants’ preferences, recorded<br />

performance at job sites. The primary<br />

data collector recorded participant performance,<br />

wrote narrative notes, <strong>and</strong> organized<br />

files. The secondary data collector drove the<br />

vehicle to community jobs, developed the job<br />

tasks, <strong>and</strong> served as <strong>in</strong>ter-observer agreement<br />

recorder. The first author checked procedural<br />

fidelity. The second author scheduled work<br />

sessions at each site. The daily schedule consisted<br />

of three 25-m<strong>in</strong> sessions at job sites: (a)<br />

high preference, (b) low preference, <strong>and</strong> (c)<br />

participant choice. Job sites were r<strong>and</strong>omly<br />

assigned to first, second, or third sessions to<br />

avoid sequence effects. On the first day, the<br />

“choice” session was scheduled last so that<br />

participants first received experience work<strong>in</strong>g<br />

at the other two job sites. Data were collected<br />

on on-task performance <strong>and</strong> choice of job<br />

us<strong>in</strong>g procedures described below.<br />

Dependent Variables<br />

On-task performance was def<strong>in</strong>ed as engagement<br />

<strong>in</strong> activities necessary to complete the<br />

job task, such as manipulat<strong>in</strong>g or mak<strong>in</strong>g eye<br />

contact with materials, physically position<strong>in</strong>g<br />

oneself <strong>in</strong> the assigned work location or walk<strong>in</strong>g<br />

to the location, ask<strong>in</strong>g questions of the<br />

secondary data collector or employer regard<strong>in</strong>g<br />

the task, or receiv<strong>in</strong>g <strong>in</strong>struction from the<br />

secondary data collector or employer regard<strong>in</strong>g<br />

the task.<br />

Choice of job was def<strong>in</strong>ed as a response to<br />

the question “Which one (job) do you want to<br />

do?” when presented with two 3 cm by 5 cm<br />

cards show<strong>in</strong>g photos of each job. Participants<br />

responded by verbally identify<strong>in</strong>g or po<strong>in</strong>t<strong>in</strong>g<br />

to one particular photo. The secondary data<br />

collector presented photos for choice mak<strong>in</strong>g<br />

while <strong>in</strong> the vehicle, not at a job site. Additionally,<br />

the secondary data collector asked each<br />

participant two questions follow<strong>in</strong>g the last<br />

session: (a) “which job did you like best” <strong>and</strong><br />

(b) “which job did you do (perform) best”?<br />

Job Performance Procedures<br />

Data collectors received the schedule of jobs<br />

upon arrival at the post-high school location<br />

each day. They were <strong>in</strong>structed to avoid conversation<br />

with participants about job preference<br />

or performance, but <strong>in</strong>stead, to talk<br />

about other topics. Upon arrival, one data<br />

collector verbally identified for the participant<br />

the job to be performed <strong>and</strong> the name of the<br />

bus<strong>in</strong>ess or organization. For example, the<br />

data collector stated “this is the stock<strong>in</strong>g clerk<br />

job at XYZ Supermarket.” Additionally, the<br />

data collector presented the photo card of the<br />

job to associate the card with the task. After<br />

greet<strong>in</strong>g the employer <strong>and</strong> arrang<strong>in</strong>g the job<br />

task, the secondary data collector delivered<br />

the follow<strong>in</strong>g <strong>in</strong>struction to the participant:<br />

Job Preference Assessment / 55


Here’s the job called (job name). Please<br />

start the job now. Do it yourself. Start work<br />

now <strong>and</strong> keep work<strong>in</strong>g until I tell you to<br />

stop. If you want to take a break, let me<br />

know by say<strong>in</strong>g “I need a break please.” If<br />

you want to stop work<strong>in</strong>g, let me know by<br />

say<strong>in</strong>g “I want to stop.” Any questions?<br />

In anticipation that some participants may<br />

request to stop work, researchers arranged<br />

performance of math worksheets as “neutral<br />

tasks” for the rema<strong>in</strong>der of the 25-m<strong>in</strong> work<br />

period. The rationale for this procedure was<br />

that although work on a job task could be<br />

escaped, other forms of work (math) would be<br />

substituted <strong>and</strong> carried out <strong>in</strong> the same location.<br />

Data collectors gathered worksheets<br />

from the teachers represent<strong>in</strong>g previously<br />

mastered math lessons <strong>and</strong> made them available<br />

after work was stopped. Participants filled<br />

out the math worksheets <strong>in</strong> the vehicle at the<br />

site where work was stopped.<br />

The secondary data collector served as a job<br />

coach supervis<strong>in</strong>g work while the primary data<br />

collector recorded performance. Food,<br />

dr<strong>in</strong>ks, <strong>and</strong> music were not available dur<strong>in</strong>g<br />

work sessions, however, they were offered en<br />

route between jobs. For outdoor jobs, a coat<br />

<strong>and</strong> gloves were available to participants upon<br />

request. After 25 m<strong>in</strong>, the job coach stopped<br />

the work session <strong>and</strong> the group traveled to the<br />

next job site or returned to the post high<br />

school.<br />

Research Design<br />

An alternat<strong>in</strong>g treatments design (Cooper,<br />

Heron, & Heward, 2007) was used to <strong>in</strong>vestigate<br />

the effects of high <strong>and</strong> low preference<br />

video selections on job performance <strong>and</strong><br />

choice of job. This design is one type of s<strong>in</strong>glesubject<br />

design <strong>in</strong>volv<strong>in</strong>g rapidly alternat<strong>in</strong>g exposure<br />

to different treatments (i.e., high <strong>and</strong><br />

low preference jobs) to determ<strong>in</strong>e whether<br />

differences emerge <strong>in</strong> the dependent measure<br />

(i.e., on-task behavior).<br />

Response Measurement<br />

Data collectors received eight hours of tra<strong>in</strong><strong>in</strong>g<br />

from the researchers by discuss<strong>in</strong>g def<strong>in</strong>itions<br />

of on-task performance, observ<strong>in</strong>g simu-<br />

lations, <strong>and</strong> record<strong>in</strong>g behaviors of employees<br />

<strong>in</strong> community job sett<strong>in</strong>gs.<br />

On-task performance. Data collectors used<br />

signal devices to record momentary time samples<br />

of on-task behavior at 30 s <strong>in</strong>tervals on a<br />

fixed schedule. The signal device was concealed<br />

<strong>in</strong> a pocket of cloth<strong>in</strong>g. On/off task<br />

behaviors were recorded on data sheets <strong>and</strong><br />

compiled to produce percentage of observations<br />

with on-task behavior.<br />

Inter-Observer Agreement<br />

Interobserver agreement (IOA) required that<br />

both data collectors carry signal devices <strong>and</strong><br />

simultaneously record on-task or off-task performance.<br />

IOA record<strong>in</strong>g was conducted <strong>in</strong><br />

33.8% of total sessions <strong>and</strong> was computed as<br />

the percent of agreements (i.e., on or off task)<br />

divided by agreements plus disagreements<br />

times 100. An “<strong>in</strong>terval-by-<strong>in</strong>terval” computation<br />

was used, i.e., the observers’ records were<br />

compared for each <strong>in</strong>terval. IOA for on-task<br />

performance was 94.8% (Diego91.1%,<br />

Kyle99%, Tasha93.8%) <strong>and</strong> ranged from<br />

81.8% to 100%.<br />

Procedural Fidelity<br />

Researchers recorded whether the job coach<br />

adhered to a set of procedures <strong>in</strong> carry<strong>in</strong>g out<br />

work sessions, <strong>in</strong>clud<strong>in</strong>g the follow<strong>in</strong>g: (a)<br />

ma<strong>in</strong>ta<strong>in</strong>ed daily schedules with<strong>in</strong> 10 m<strong>in</strong>, (b)<br />

carried out transportation without discomfort<br />

to the participant, (c) accurately read a script<br />

to start work <strong>and</strong> identified each job for the<br />

participant, (d) accurately read a script if a<br />

participant asked to stop work, (e) accurately<br />

read a script to present the choice session <strong>and</strong><br />

displayed the two photo cards, (f) arranged<br />

the chosen work, (g) <strong>in</strong>tervened when work<br />

stopped due to participant request for assistance<br />

or a question about the task, (h) refra<strong>in</strong>ed<br />

from praise statements or recognition<br />

of work accomplished, <strong>and</strong> (i) offered<br />

prompts only when the participant requested<br />

<strong>and</strong> used the least prompt necessary. Scor<strong>in</strong>g<br />

each item “yes” or “no,” the first researcher<br />

recorded procedural fidelity <strong>in</strong> 18 of 71 total<br />

sessions (25.3%). Overall procedural fidelity<br />

was 95.5%, rang<strong>in</strong>g from 67% on “refra<strong>in</strong>ed<br />

from praise statements” to 100% on most<br />

other procedures.<br />

56 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Figure 1. Percentage of observations on-task for Diego <strong>in</strong> high preference (supermarket), low preference (AT<br />

lab), <strong>and</strong> choice conditions.<br />

Results<br />

Video job preference assessment results for<br />

Diego <strong>in</strong>dicated the high preference job was<br />

stock<strong>in</strong>g c<strong>and</strong>y <strong>in</strong> a supermarket <strong>and</strong> the low<br />

preference job was electrician, i.e., cutt<strong>in</strong>g<br />

wires. Figure 1 presents on-task performance<br />

for Diego across high <strong>and</strong> low preference jobs.<br />

In all 10 choice sessions, Diego selected the<br />

high preference job. On-task performance at<br />

the high preference job ranged from 72% to<br />

96% (Mean 87.4%). On-task performance<br />

at the low preference job ranged from 29% to<br />

90% (Mean 63.9%). Choice session performance<br />

ranged from 80% to 98% (Mean <br />

88.9%). Four data po<strong>in</strong>ts for low preference<br />

sessions overlapped the lowest data po<strong>in</strong>t for<br />

high preference sessions. The last three high<br />

preference sessions were higher than low preference<br />

sessions. The data collector noted Diego<br />

occasionally had difficulty locat<strong>in</strong>g items<br />

<strong>in</strong> the supermarket c<strong>and</strong>y display <strong>and</strong> would<br />

ask for help. At the conclusion of research,<br />

Diego identified the high preference job as<br />

the one he liked better <strong>and</strong> the one he performed<br />

better.<br />

Video job preference assessment results for<br />

Kyle <strong>in</strong>dicated the high preference job was<br />

stock<strong>in</strong>g videos <strong>in</strong> a video rental center <strong>and</strong><br />

the low preference job was sort<strong>in</strong>g objects.<br />

Figure 2 presents on-task performance for<br />

Kyle across high <strong>and</strong> low preference jobs. Four<br />

choice sessions were conducted at the high<br />

preference site; four were conducted at the<br />

low preference site. Three of the first four<br />

Job Preference Assessment / 57


Figure 2. Percentage of observations on-task for Kyle <strong>in</strong> high preference (video rental center), low preference<br />

(agricultural center), <strong>and</strong> choice conditions (both video rental center <strong>and</strong> agricultural center).<br />

choice sessions <strong>in</strong>volved selection of the high<br />

preference job, while three of the next four<br />

choice sessions occurred at the low preference<br />

job. On-task performance at the high preference<br />

job ranged from 96% to 100% (Mean <br />

98.8%). On-task performance at the low preference<br />

job ranged from 45% to 100%<br />

(Mean 73.4%). Three data po<strong>in</strong>ts for low<br />

preference sessions overlapped the lowest<br />

data po<strong>in</strong>t for high preference sessions. The<br />

last five high preference sessions were higher<br />

than low preference sessions. Four choice sessions<br />

at the high preference job resulted <strong>in</strong><br />

performance rang<strong>in</strong>g from 80% to 100%<br />

(Mean 94.5%). Four choice sessions at low<br />

preference job resulted <strong>in</strong> performance rang<strong>in</strong>g<br />

from 62% to 98% (Mean 89%). Gener-<br />

ally, higher <strong>and</strong> more stable on-task performance<br />

was evidenced at the video rental<br />

center (high-preference job). The data collector<br />

noted that Kyle occasionally had difficulty<br />

locat<strong>in</strong>g videos <strong>in</strong> the display area. The video<br />

cases used at this rental center did not <strong>in</strong>clude<br />

graphics, only text, thus requir<strong>in</strong>g Kyle to read<br />

<strong>and</strong> match text labels. Although he sometimes<br />

required considerable time f<strong>in</strong>d<strong>in</strong>g video displays,<br />

he rarely asked for assistance. At the<br />

conclusion of the study, Kyle identified the<br />

high preference job (stock<strong>in</strong>g videos) as the<br />

one he liked better but <strong>in</strong>dicated he performed<br />

better at the low preference job (sort<strong>in</strong>g<br />

objects).<br />

Video job preference assessment results<br />

for Tasha <strong>in</strong>dicated the high preference job<br />

58 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Figure 3. Percentage of observations on-task for Tasha <strong>in</strong> high preference (farm), low preference (recreational<br />

vehicle repair center), <strong>and</strong> choice conditions.<br />

was feed<strong>in</strong>g animals at a farm <strong>and</strong> the low<br />

preference job was dust<strong>in</strong>g shelves/vehicles<br />

at a recreational vehicle repair center. Figure<br />

3 presents on-task performance for<br />

Tasha across high <strong>and</strong> low preference jobs.<br />

In all 5 choice sessions, Tasha selected the<br />

high preference job. On-task performance<br />

at the high preference job ranged from 92%<br />

to 98% (Mean 95%). On-task performance<br />

at the low preference job was 38% on<br />

Session 2. After Session 2, Tasha refused to<br />

work at the low preference job, stat<strong>in</strong>g “it<br />

gives me headaches” or “the dust makes it so<br />

I can’t breathe.” In Session 4 at the low<br />

preference job, the secondary data collector<br />

encouraged Tasha to “try dust<strong>in</strong>g for 10<br />

m<strong>in</strong>” <strong>and</strong> gave her a dust mask. Subse-<br />

quently, she dusted shelves for approximately<br />

10 s but then refused to cont<strong>in</strong>ue.<br />

The same request <strong>and</strong> refusal were repeated<br />

<strong>in</strong> each successive session. Upon refusal,<br />

Tasha <strong>and</strong> data collectors returned to the<br />

vehicle <strong>in</strong> the repair center park<strong>in</strong>g lot,<br />

where one data collector <strong>in</strong>structed Tasha to<br />

perform math worksheets for 25 m<strong>in</strong>. The<br />

primary data collector recorded Tasha’s<br />

statements at the low preference job such as<br />

“get me out of here” <strong>and</strong> “I won’t even go <strong>in</strong><br />

there” (the repair center). In contrast, statements<br />

at the high preference job <strong>in</strong>cluded “I<br />

like work<strong>in</strong>g here” <strong>and</strong> “animals are fun.”<br />

Five choice sessions at the high preference<br />

job resulted <strong>in</strong> performance rang<strong>in</strong>g from<br />

86% to 92% (Mean 90%). At the conclu-<br />

Job Preference Assessment / 59


sion of research, Tasha identified the high<br />

preference job as the one she liked better<br />

<strong>and</strong> the one she performed better.<br />

Discussion<br />

Results of this study <strong>in</strong>dicate jobs identified<br />

as high <strong>and</strong> low preference <strong>in</strong> a video assessment<br />

were generally associated with high<br />

<strong>and</strong> low job performance, respectively. To<br />

this extent, results were similar to those reported<br />

<strong>in</strong> previous research (Bambara et al.,<br />

1994; Parsons et al., 1990; Reid et al., 1998).<br />

However, job performance relative to preference<br />

varied across participants. Diego performed<br />

at relatively high levels of on-task<br />

behavior <strong>and</strong> chose the high preference job<br />

at each opportunity. Kyle performed at relatively<br />

high levels of on-task behavior with<br />

fair consistency on the high preference job,<br />

but when given a choice, selected the low<br />

preference job as many times as the high<br />

preference job. Data collectors <strong>and</strong> researchers<br />

noted that Kyle appeared highly<br />

challenged by the requirements of the high<br />

preference job (video stock<strong>in</strong>g). Tasha performed<br />

at a high level of on-task behavior <strong>in</strong><br />

the high preference job <strong>and</strong> refused to perform<br />

the low preference job after the first<br />

session. Although her preference was clear<br />

from her remarks, her refusals prevented<br />

comparison of on-task behavior across sett<strong>in</strong>gs.<br />

Results <strong>in</strong> this study must be considered <strong>in</strong><br />

the context of at least two limitations. First,<br />

measures of productivity on the job were not<br />

recorded. Productivity <strong>in</strong> community employment<br />

sett<strong>in</strong>gs may be more important<br />

than on-task behavior because it assesses<br />

work completion rate comparable to other<br />

employees. Measurement of productivity on<br />

high <strong>and</strong> low preference jobs was not undertaken<br />

<strong>in</strong> this study. Def<strong>in</strong><strong>in</strong>g productivity<br />

will require address<strong>in</strong>g company or <strong>in</strong>dustry<br />

st<strong>and</strong>ards or employer expectations. Future<br />

researchers should <strong>in</strong>clude measures of productivity<br />

<strong>and</strong> determ<strong>in</strong>e if productivity <strong>in</strong>creases<br />

as preference <strong>in</strong>creases. Second, the<br />

pre-assessment <strong>in</strong> this study needed to be<br />

more extensive. In the current study, researchers<br />

conducted only a cursory assessment<br />

of job tasks <strong>and</strong> did not perform a<br />

comprehensive measurement of all tasks<br />

without prompts, nor did they consider a<br />

large sample of situations that might be encountered<br />

on jobs by participants. In the<br />

absence of comprehensive pre-assessment,<br />

highly challeng<strong>in</strong>g situations encountered<br />

on jobs may compete with previously identified<br />

preferences to produce a confound<strong>in</strong>g<br />

variable affect<strong>in</strong>g job performance.<br />

Both Diego <strong>and</strong> Kyle appeared highly<br />

challenged by their high preference job<br />

tasks. High preference jobs that are complex<br />

<strong>and</strong> highly challeng<strong>in</strong>g produce three<br />

issues. First, the video assessment must<br />

present the expected rate of task performance<br />

by a video model. Speed <strong>and</strong> accuracy<br />

of performance must be clearly demonstrated.<br />

Second, an estimate of the extent to<br />

which a participant’s performance matches<br />

the expected rate of task performance<br />

should accompany job preference assessment.<br />

Follow<strong>in</strong>g this research, a job-match<strong>in</strong>g<br />

component was added to the video assessment<br />

program (Morgan, 2008).<br />

Although future research is needed, a comb<strong>in</strong>ation<br />

of preference plus match<strong>in</strong>g assessment<br />

may be an accurate predictor of job<br />

performance. Fourth, although a job may be<br />

chosen from a video assessment as highly<br />

preferred, preference may change over time<br />

as a function of dem<strong>and</strong>s of the work environment.<br />

Job preference is likely to be a<br />

variable that fluctuates depend<strong>in</strong>g on degree<br />

of difficulty, duration of the session,<br />

probability of solv<strong>in</strong>g a problem, <strong>and</strong> other<br />

factors. These issues should be def<strong>in</strong>ed <strong>and</strong><br />

<strong>in</strong>vestigated <strong>in</strong> future research.<br />

Results of this study provide evidence that<br />

video assessment used to identify high <strong>and</strong> low<br />

preference jobs may, to some extent, correspond<br />

with subsequent job performance. Although<br />

results were variable <strong>and</strong> limited to<br />

three participants, the present f<strong>in</strong>d<strong>in</strong>gs support<br />

the need for future research on video<br />

assessment of job preferences. If preference<br />

for certa<strong>in</strong> jobs can be ascerta<strong>in</strong>ed from a<br />

video assessment <strong>and</strong> if preference affects performance<br />

as suggested by current results, transition<br />

teachers <strong>and</strong> rehabilitation counselors<br />

may use such a program as an efficient alternative<br />

to placement <strong>in</strong> community job samples<br />

or other methods.<br />

60 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


References<br />

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self-determ<strong>in</strong>ation. Journal of the Association<br />

for Persons with Severe H<strong>and</strong>icaps, 23, 50–52.<br />

Bambara, L. M., Ager, C., & Koger, F. (1994). The<br />

effects of choice <strong>and</strong> task preference on the work<br />

performance of adults with severe disabilities.<br />

Journal of Applied Behavior Analysis, 27, 555–556.<br />

Cooper, J., Heron, T., & Heward, W., (2007). Applied<br />

behavior analysis (2 nd ed.). Upper Saddle<br />

River, NJ: Pearson Merrill Prentice Hall.<br />

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Retrieved December 20, 2008 from http://<br />

www.onetcenter.org/IP.html.<br />

Ellerd, D. A., Morgan, R. L., & Salzberg, C. L.<br />

(2006). Correspondence between video CD-ROM<br />

<strong>and</strong> community-based job preferences for <strong>in</strong>dividuals<br />

with developmental disabilities. <strong>Education</strong> <strong>and</strong><br />

<strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 41, 81–90.<br />

Individuals with <strong>Disabilities</strong> <strong>Education</strong> Improvement<br />

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Mart<strong>in</strong>, J. E., Huber Marshall, L., Wray, D., O’Brien,<br />

J., Wells, L., & Hesl<strong>in</strong>-Olvey, G. (2005). Choose <strong>and</strong><br />

take action. Longmont, CO: Sopris West.<br />

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of a web-based <strong>in</strong>strument to assess degree of<br />

match among employment preferences. Journal of<br />

Vocational Rehabilitation, 29 (1), 29–38.<br />

Morgan, R. L., Ellerd, D. A., Gerity, B., & Tullis, M.<br />

(2001). Your employment selections. Logan, UT:<br />

Technology, Research, <strong>and</strong> Innovation <strong>in</strong> Special<br />

<strong>Education</strong>.<br />

Morgan, R. L., Ellerd, D. A., & Jensen, K. (2000). A<br />

survey of community employment placements:<br />

Where are youth <strong>and</strong> adults with disabilities work<strong>in</strong>g?<br />

Career Development of Exceptional Individuals,<br />

23, 73–86.<br />

Parsons, M. B., Reid, D. H., Reynolds, J., & Bumgarner,<br />

M. (1990). Effects of chosen versus assigned<br />

jobs on the work performance of persons with<br />

severe h<strong>and</strong>icaps. Journal of Applied Behavior Analysis,<br />

23, 253–258.<br />

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Identify<strong>in</strong>g work preferences prior to supported<br />

work for an <strong>in</strong>dividual with multiple severe disabilities<br />

<strong>in</strong>clud<strong>in</strong>g deaf-bl<strong>in</strong>dness. Journal of the<br />

Association for Persons with Severe H<strong>and</strong>icaps, 23,<br />

329–333.<br />

Stock, S. E., Davies, D. K., Secor, R. R., & Wehmeyer,<br />

M. L. (2003). Self-directed career preference selection<br />

for <strong>in</strong>dividuals with <strong>in</strong>tellectual disabilities:<br />

Computer technology to enhance self-determ<strong>in</strong>ation.<br />

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Exceptional Children, 63, 245–255.<br />

Received:4 June 2009<br />

Initial Acceptance: 10 August 2009<br />

F<strong>in</strong>al Acceptance: 7 October 2009<br />

Job Preference Assessment / 61


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 62–77<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

A Meta-Analysis of Peer-Mediated Interventions for Young<br />

Children with <strong>Autism</strong> Spectrum Disorders<br />

Jie Zhang<br />

The College at Brockport, SUNY<br />

John J. Wheeler<br />

Western Michigan University<br />

Abstract: This meta-analysis <strong>in</strong>vestigated the efficacy of peer-mediated <strong>in</strong>terventions for promot<strong>in</strong>g social<br />

<strong>in</strong>teractions among children from birth to eight years of age diagnosed with ASD. Forty-five s<strong>in</strong>gle-subject design<br />

studies were analyzed <strong>and</strong> the effect sizes were calculated by the regression model developed by Allison <strong>and</strong><br />

Gorman (1993). The overall effect sizes suggest that peer-mediated <strong>in</strong>terventions were highly effective. Further<br />

categorical comparisons suggest that these <strong>in</strong>terventions were more effective <strong>in</strong> enhanc<strong>in</strong>g social responses <strong>in</strong><br />

younger boys, when older male sibl<strong>in</strong>gs served as <strong>in</strong>terventionists, when the <strong>in</strong>terventions took place <strong>in</strong> the home,<br />

when peer model<strong>in</strong>g was used, <strong>and</strong> when consideration was given to ma<strong>in</strong>tenance <strong>and</strong> generalization across<br />

participants, behaviors <strong>and</strong> activities, <strong>and</strong> <strong>in</strong> <strong>in</strong>volv<strong>in</strong>g collaboration among all researchers, peers/sibl<strong>in</strong>gs,<br />

school staff, <strong>and</strong> parents/families.<br />

Evidence-based practice <strong>in</strong> the education <strong>and</strong><br />

treatment of children <strong>and</strong> youth with autism<br />

enables special education professionals to validate<br />

their practices <strong>in</strong> accordance with the<br />

exist<strong>in</strong>g body of scientific evidence found <strong>in</strong><br />

the literature (Wheeler, 2007). Yet this is a<br />

challenge for the field given the heterogeneity<br />

of the participants <strong>and</strong> the vary<strong>in</strong>g educational<br />

contexts that serve children diagnosed<br />

with <strong>Autism</strong> Spectrum Disorders (ASD)<br />

(Odom et al., 2005; Wheeler). Given that the<br />

prevalence of ASD is <strong>in</strong>creas<strong>in</strong>g at a dramatic<br />

rate, <strong>and</strong> that social <strong>in</strong>teraction is a core deficit<br />

associated with ASD, the urgency for validat<strong>in</strong>g<br />

evidence-based practice <strong>in</strong> the study of<br />

social competence among young children<br />

with autism is critically important. The field of<br />

special education has embraced the concept<br />

of evidence-based practice yet researchers <strong>and</strong><br />

practitioners have failed to operationalize this<br />

construct with<strong>in</strong> the practice of research <strong>and</strong><br />

delivery of educational services <strong>and</strong> supports.<br />

Thus, it is vital for professionals to systemati-<br />

Correspondence concern<strong>in</strong>g this article should<br />

be addressed to Jie Zhang, <strong>Education</strong> <strong>and</strong> Human<br />

Development, The College at Brockport, State University<br />

of New York, 350 New Campus Drive, Brockport,<br />

NY 14420. E-mail: jzhang@brockport.edu<br />

cally synthesize extant research with<strong>in</strong> an evidence-based<br />

framework, so that basic <strong>and</strong> applied<br />

research can be translated to applied<br />

practice to better assist practitioners <strong>in</strong> the<br />

design <strong>and</strong> delivery of efficacious <strong>in</strong>terventions<br />

<strong>and</strong> supports to children with ASD <strong>and</strong><br />

their families (Wheeler).<br />

Evidence-based Practices<br />

The gap between research to practice <strong>in</strong> the<br />

field of education has been a source of debate<br />

for many decades as policy makers have argued<br />

that many practices lack the empirical<br />

efficacy needed to substantiate their claim.<br />

The most recent legislation, the No Child Left<br />

Beh<strong>in</strong>d Act (NCLB), draws attention to the<br />

need for greater levels of accountability thus<br />

requir<strong>in</strong>g teachers to use scientifically proven<br />

practices <strong>in</strong> their classrooms (Odom et al.,<br />

2005; U.S. Department of <strong>Education</strong>, 2003).<br />

In spite of this recent m<strong>and</strong>ate, there cont<strong>in</strong>ues<br />

to be a disparity with<strong>in</strong> the field of special<br />

education as to the fidelity of how these practices<br />

are implemented with<strong>in</strong> classrooms<br />

among learners with disabilities. This is perhaps<br />

due <strong>in</strong> part to the complexity of this<br />

field, <strong>in</strong>clud<strong>in</strong>g the variability of the participants<br />

<strong>and</strong> the vary<strong>in</strong>g degrees of educational<br />

62 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


contexts that serve children with disabilities<br />

(Odom et al.; Wheeler, 2007). Odom <strong>and</strong> colleagues<br />

assert that the field of special education<br />

needs to develop specific guidel<strong>in</strong>es for<br />

specify<strong>in</strong>g types <strong>and</strong> levels of evidence needed<br />

to identify a practice as evidence-based <strong>and</strong><br />

effective. These have yet to be fully operationalized<br />

<strong>in</strong> the literature. Until professionals<br />

have agreed on st<strong>and</strong>ards for determ<strong>in</strong><strong>in</strong>g evidence-based<br />

practices there will cont<strong>in</strong>ue to<br />

be problems caused by mis<strong>in</strong>formed practice.<br />

Researchers can assist <strong>in</strong> m<strong>in</strong>imiz<strong>in</strong>g these irregularities<br />

through the systematic synthesis<br />

of extant research to ascerta<strong>in</strong> the exist<strong>in</strong>g<br />

knowledge base <strong>and</strong> the gaps that exist between<br />

research <strong>and</strong> practice (Odom et al.;<br />

Wheeler). Furthermore, the knowledge from<br />

the current literature can be used to <strong>in</strong>form<br />

practice <strong>and</strong> scientifically proven evidence can<br />

be adopted as the appropriate basis for select<strong>in</strong>g<br />

these practices (Odom et al.).<br />

Meta-Analysis for S<strong>in</strong>gle-Subject Studies<br />

S<strong>in</strong>gle-subject research is a rigorous, scientific<br />

methodology used to def<strong>in</strong>e basic pr<strong>in</strong>ciples<br />

of behavior <strong>and</strong> to establish evidence-based<br />

practices by document<strong>in</strong>g functional relationships<br />

between <strong>in</strong>dependent <strong>and</strong> dependent<br />

variables (Horner et al., 2005). It provides<br />

systematic <strong>and</strong> detailed analysis of <strong>in</strong>dividuals<br />

<strong>and</strong> has proven especially relevant for def<strong>in</strong><strong>in</strong>g<br />

educational practices at the <strong>in</strong>dividual<br />

learner level (Horner et al.). Thus, it plays an<br />

important role <strong>in</strong> identify<strong>in</strong>g evidence-based<br />

practice <strong>in</strong> the field of special education. However,<br />

the criticism often leveled aga<strong>in</strong>st s<strong>in</strong>gle<br />

subject methodology is that the sample sizes<br />

used <strong>in</strong> these studies are often too small to be<br />

generalized to a larger population (Wellen,<br />

1998). Synthesis of s<strong>in</strong>gle-subject studies is<br />

one way to overcome this generalization problem<br />

s<strong>in</strong>ce the procedures help determ<strong>in</strong>e<br />

whether a specific <strong>in</strong>tervention is consistently<br />

effective <strong>in</strong> the change of the target behavior(s).<br />

In addition, if employed appropriately,<br />

the <strong>in</strong>formation from the synthesis of s<strong>in</strong>glesubject<br />

studies can contribute potentially to<br />

the field of special education (Scruggs, Mastropieri,<br />

& Casto, 1987).<br />

Meta-analyses for s<strong>in</strong>gle-subject studies can<br />

be used to develop guidel<strong>in</strong>es for evidencebased<br />

practice <strong>and</strong> to design new studies be-<br />

cause of the follow<strong>in</strong>g reasons: (a) The aggregation<br />

of f<strong>in</strong>d<strong>in</strong>gs from a large number of<br />

s<strong>in</strong>gle-subject studies can get a large enough<br />

sample to strengthen the conclusions about<br />

the practical implications to practitioners<br />

(G<strong>in</strong>gerich, 1984). (b) Information is taken<br />

from graphs <strong>and</strong> an unbiased synthesis of the<br />

empirical data can produce a more accurate<br />

estimation of the impact of the <strong>in</strong>tervention<br />

(Davies & Crombie, 2001; Wellen, 1998). (c)<br />

The compilation of f<strong>in</strong>d<strong>in</strong>gs can identify factors<br />

contribut<strong>in</strong>g to the effectiveness, so that<br />

an <strong>in</strong>tervention can be tailored more specifically<br />

to the unique characteristics of the participants<br />

<strong>and</strong> situation (G<strong>in</strong>gerich; Wheeler,<br />

2007). (d) The method of cod<strong>in</strong>g can po<strong>in</strong>t<br />

up the failure to report some important variables<br />

<strong>in</strong> some studies (White, Rusch, Kazd<strong>in</strong>,<br />

& Hartmann, 1989) <strong>and</strong> also identify gaps <strong>in</strong><br />

the exist<strong>in</strong>g research literature (Wheeler).<br />

<strong>Autism</strong> Spectrum Disorders<br />

Perhaps the greatest area of need for conduct<strong>in</strong>g<br />

such critical analyses of exist<strong>in</strong>g research<br />

lies <strong>in</strong> the area of ASD due to its dramatically<br />

<strong>in</strong>creas<strong>in</strong>g prevalence. Once believed to be a<br />

low-<strong>in</strong>cidence disorder, ASD was estimated to<br />

occur <strong>in</strong> 4–5 children out of 10,000 prior to<br />

1985 (Byrd et al., 2002). However, it is far<br />

more common than previously thought. It was<br />

estimated that the prevalence of ASD <strong>in</strong>creased<br />

approximately four times <strong>in</strong> one decade,<br />

from 1 <strong>in</strong> 1,333 children (7.5 per 10,000<br />

children) among children born <strong>in</strong> the mid-<br />

1980s to 1 <strong>in</strong> 323 children (31.2 per 10,000<br />

children) among children born <strong>in</strong> the late-<br />

1990s (California Health <strong>and</strong> Human Services<br />

Agency, 2003). In 2004, the Department of<br />

Health <strong>and</strong> Human Services <strong>and</strong> the American<br />

Academy of Pediatrics issued an “<strong>Autism</strong><br />

ALARM” claim<strong>in</strong>g that 1 <strong>in</strong> 166 children (60<br />

per 10,000 children) had ASD. Nowadays, the<br />

prevalence rates of children with ASD have<br />

reached 1 <strong>in</strong> 150 children (66 per 10,000 children)<br />

(Centers for Disease Control <strong>and</strong> Prevention,<br />

2007). Accord<strong>in</strong>gly, the number of<br />

children receiv<strong>in</strong>g services for ASD is reportedly<br />

on the rise. ASD is now recognized to be<br />

more prevalent <strong>in</strong> childhood than diabetes,<br />

cancer, sp<strong>in</strong>a bifida, <strong>and</strong> Down syndrome<br />

(Filipek et al., 1999).<br />

Given that the prevalence of ASD is <strong>in</strong>creas-<br />

Meta-Analysis of Peer-Mediated Interventions / 63


<strong>in</strong>g at a dramatic rate, the urgency for validat<strong>in</strong>g<br />

evidence-based practice is critically important.<br />

One area of vital importance is social<br />

competence. S<strong>in</strong>ce social <strong>in</strong>teraction is a core<br />

deficit associated with ASD, requests on the<br />

effectiveness of the <strong>in</strong>terventions aimed at <strong>in</strong>creas<strong>in</strong>g<br />

social <strong>in</strong>teractions among young children<br />

with ASD have been quite strik<strong>in</strong>g (Goldste<strong>in</strong>,<br />

2002). There is, however, a question on<br />

whether professionals have enough data to<br />

validate their practices as effectiveness<br />

(Wheeler, 2007). Furthermore, challenges exist<br />

<strong>in</strong> the implementation of evidence-based<br />

practice concern<strong>in</strong>g the service for children<br />

with ASD because of: (a) the irregularities <strong>in</strong><br />

the ability of special education to adopt the<br />

evidence-based practice, (b) a broad range of<br />

practices across educational sett<strong>in</strong>gs exists <strong>in</strong><br />

the delivery of services to these children <strong>in</strong>clud<strong>in</strong>g<br />

those which are not evidence-based,<br />

untested, <strong>in</strong>effectual, <strong>and</strong> sometimes even<br />

harmful practices (Bell<strong>in</strong>i & Akullian, 2007;<br />

Wheeler), (c) the heterogeneity of the participants<br />

<strong>and</strong> the educational contexts that serve<br />

these children, <strong>and</strong> (d) limited sample size<br />

result<strong>in</strong>g <strong>in</strong> an <strong>in</strong>ability to generalize f<strong>in</strong>d<strong>in</strong>gs<br />

(Wheeler). As a result, there is an urgent need<br />

for meta-analyses of the exist<strong>in</strong>g literature on<br />

the effectiveness of various treatments for children<br />

with ASD, <strong>in</strong> this case <strong>in</strong>terventions directed<br />

towards <strong>in</strong>creas<strong>in</strong>g social competence<br />

<strong>in</strong> young children with ASD.<br />

Peer-Mediated Interventions for Children<br />

with <strong>Autism</strong><br />

Peer-mediated <strong>in</strong>terventions provide typically<br />

develop<strong>in</strong>g peers with such activities as social<br />

skills tra<strong>in</strong><strong>in</strong>g, prompts <strong>and</strong> praise <strong>in</strong> social<br />

play situations which are designed to model,<br />

re<strong>in</strong>force, <strong>and</strong> promote appropriate social <strong>in</strong>teractions<br />

<strong>and</strong> social skills for children with<br />

disabilities (McConnell, 2002). In peer-mediated<br />

<strong>in</strong>terventions, adults may facilitate <strong>and</strong><br />

monitor the <strong>in</strong>tervention from close by although<br />

they never <strong>in</strong>tervene directly with the<br />

target children (Odom & Stra<strong>in</strong>, 1984). Unlike<br />

adult-mediated approaches, peer-mediated<br />

<strong>in</strong>terventions facilitate learn<strong>in</strong>g <strong>in</strong> natural<br />

social contexts with peers or sibl<strong>in</strong>gs by<br />

preclud<strong>in</strong>g the additional steps required to<br />

transfer learn<strong>in</strong>g from adults to peers <strong>in</strong> natural<br />

social contexts (McConnell).<br />

Utley, Mortweet, <strong>and</strong> Greenwood (1997)<br />

classify peer-mediated <strong>in</strong>terventions <strong>in</strong>to six<br />

categories. They state that peer-mediated <strong>in</strong>terventions<br />

consist of (a) peer model<strong>in</strong>g, (b)<br />

peer <strong>in</strong>itiation tra<strong>in</strong><strong>in</strong>g, (c) peer monitor<strong>in</strong>g,<br />

(d) peer network<strong>in</strong>g, (e) peer tutor<strong>in</strong>g, <strong>and</strong><br />

(f) group-oriented cont<strong>in</strong>gencies. Peer model<strong>in</strong>g<br />

<strong>in</strong>cludes peer-proximity <strong>and</strong> peer-pair<strong>in</strong>g,<br />

which rely on the <strong>in</strong>clusion of a socially<br />

competent peer to demonstrate appropriate<br />

behavior for a child with ASD to imitate. Peer<br />

model<strong>in</strong>g also <strong>in</strong>cludes video model<strong>in</strong>g, which<br />

shows a video with a socially competent peer<br />

teach<strong>in</strong>g appropriate behaviors to a child with<br />

ASD (Utley et al.). Peer <strong>in</strong>itiation tra<strong>in</strong><strong>in</strong>g<br />

typically requires a teacher to tra<strong>in</strong> peers how<br />

to evoke <strong>and</strong> ma<strong>in</strong>ta<strong>in</strong> desired social behaviors<br />

from a child with ASD by establish<strong>in</strong>g eye<br />

contact, suggest<strong>in</strong>g play activities, <strong>in</strong>itiat<strong>in</strong>g<br />

conversation, offer<strong>in</strong>g or ask<strong>in</strong>g for help, describ<strong>in</strong>g<br />

ongo<strong>in</strong>g social <strong>in</strong>teractions, exp<strong>and</strong><strong>in</strong>g<br />

the content of the target child’s speech, or<br />

demonstrat<strong>in</strong>g affection (Utley et al.). Peer<br />

monitor<strong>in</strong>g uses a buddy system or role-play<strong>in</strong>g<br />

to m<strong>in</strong>imize teachers’ discipl<strong>in</strong>ary <strong>and</strong> supervisory<br />

responsibilities. With peer monitor<strong>in</strong>g,<br />

children with ASD are taught to function<br />

<strong>in</strong>dependently from teacher’s monitor<strong>in</strong>g <strong>and</strong><br />

management (Utley et al.). Peer network<strong>in</strong>g<br />

aims to create a support system of friends for<br />

children with ASD <strong>in</strong> a natural social context.<br />

Socially competent peers are <strong>in</strong>structed to<br />

prompt <strong>and</strong> encourage social responses from<br />

target children, <strong>in</strong> addition to model <strong>and</strong> re<strong>in</strong>force<br />

appropriate social behaviors (Utley et<br />

al.). Peer tutor<strong>in</strong>g uses peers as one-on-one<br />

teachers to provide <strong>in</strong>dividualized <strong>in</strong>struction,<br />

practice, repetition, <strong>and</strong> concept clarification.<br />

It is used to <strong>in</strong>crease opportunities to respond,<br />

academic engagement, <strong>and</strong> relevant academic<br />

behaviors for specific academic tasks (Utley et<br />

al.). With group-oriented cont<strong>in</strong>gencies, peers<br />

are tra<strong>in</strong>ed as social change agents <strong>in</strong> a natural<br />

educational environment. When work<strong>in</strong>g for a<br />

common goal or reward, children <strong>in</strong> groups<br />

provide one another with natural social<br />

prompts <strong>and</strong> consequences. They distribute<br />

po<strong>in</strong>ts or re<strong>in</strong>forcers, record data, give <strong>in</strong>structions,<br />

impose cont<strong>in</strong>gencies, provide assistance<br />

through cooperative re<strong>in</strong>forcement<br />

cont<strong>in</strong>gencies, <strong>and</strong> earn re<strong>in</strong>forcers depend<strong>in</strong>g<br />

to some extent on their behavior (Utley et<br />

al.).<br />

64 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


DiSalvo <strong>and</strong> Oswald (2002) po<strong>in</strong>t out that<br />

<strong>in</strong>tegrated play groups, peer buddy <strong>and</strong> peer<br />

tutor<strong>in</strong>g, <strong>and</strong> group-oriented cont<strong>in</strong>gencies<br />

arrange the situation or cont<strong>in</strong>gencies, enhance<br />

the likelihood of attention to peer models<br />

from children with autism <strong>and</strong> thereby,<br />

promote peer <strong>in</strong>teractions. Peer networks, pivotal<br />

response tra<strong>in</strong><strong>in</strong>g, <strong>and</strong> peer <strong>in</strong>itiation<br />

tra<strong>in</strong><strong>in</strong>g teach peers specific social skills, <strong>and</strong><br />

make it easier <strong>and</strong> more reward<strong>in</strong>g for peers<br />

to <strong>in</strong>teract with children with autism (DiSalvo<br />

& Oswald). McConnell (2002) reviewed 55<br />

experimental research articles on <strong>in</strong>terventions<br />

to facilitate social <strong>in</strong>teraction for children<br />

with autism younger than n<strong>in</strong>e years of<br />

age through 2000. Among the 55 studies,<br />

about thirty peer-mediated <strong>in</strong>terventions were<br />

reviewed: (a) <strong>in</strong>terventions to <strong>in</strong>crease peer<br />

social <strong>in</strong>itiations, (b) <strong>in</strong>terventions to <strong>in</strong>crease<br />

social <strong>and</strong> communicative <strong>in</strong>teractions, <strong>and</strong><br />

(c) peer-mediated <strong>in</strong>cidental teach<strong>in</strong>g <strong>and</strong><br />

more structured peer tutor<strong>in</strong>g (McConnell).<br />

Hwang <strong>and</strong> Hughes (2000) assessed 16 empirical<br />

studies from 1981 through 1997 to <strong>in</strong>vestigate<br />

the effects of social <strong>in</strong>teractive <strong>in</strong>terventions<br />

on early social communicative skills of<br />

young children with autism, aged two to<br />

twelve, by <strong>in</strong>creas<strong>in</strong>g their role as <strong>in</strong>itiator of<br />

social <strong>in</strong>teractions. Two studies used peer-mediated<br />

<strong>in</strong>tervention. Results <strong>in</strong>dicated prolonged<br />

social <strong>in</strong>teractions (McGee, Almeida,<br />

Sulzer-Azaroff, & Feldman, 1992; Pierce &<br />

Schreibman, 1995) <strong>and</strong> <strong>in</strong>creased engagement<br />

<strong>in</strong> jo<strong>in</strong>t attention (Hwang & Hughes;<br />

Pierce & Schreibman). Odom <strong>and</strong> his colleagues<br />

(2003) exam<strong>in</strong>ed 37 s<strong>in</strong>gle-subject design<br />

studies from 1990 to 2002 to <strong>in</strong>vestigate<br />

the scientific evidence of <strong>in</strong>tervention effectiveness<br />

for young children with autism. As the<br />

result of this review, peer-mediated <strong>in</strong>terventions<br />

were categorized as emerg<strong>in</strong>g <strong>and</strong> effective<br />

practices (Odom et al.).<br />

The purpose of this study was to determ<strong>in</strong>e<br />

whether peer-mediated <strong>in</strong>terventions were effective<br />

<strong>in</strong> improv<strong>in</strong>g the social <strong>in</strong>teractions<br />

among young children with ASD. In addition,<br />

the study was to provide an analysis of the<br />

effects of the <strong>in</strong>terventions by treatment variables:<br />

(a) target children’s characteristics; (b)<br />

<strong>in</strong>terventionists’ characteristics; <strong>and</strong> (c) features<br />

of <strong>in</strong>terventions. This study provides a<br />

better underst<strong>and</strong><strong>in</strong>g concern<strong>in</strong>g the utility of<br />

peer-mediated <strong>in</strong>terventions among children<br />

under eight years of age, who were diagnosed<br />

with autism, for promot<strong>in</strong>g social <strong>in</strong>teractions.<br />

This study also ref<strong>in</strong>es evidence-based peermediated<br />

<strong>in</strong>tervention practices for these children<br />

by provid<strong>in</strong>g detailed <strong>in</strong>tegrated f<strong>in</strong>d<strong>in</strong>gs<br />

through meta-analysis of <strong>in</strong>dividual s<strong>in</strong>gle-subject<br />

studies.<br />

Method<br />

Criteria for Inclusion<br />

Studies selected met six <strong>in</strong>clusion criteria as<br />

follows:<br />

1. The study used peer-mediated <strong>in</strong>terventions;<br />

2. One of the purposes of the study was to<br />

enhance social <strong>in</strong>teractions for children<br />

with ASD;<br />

3. The target children were under eight<br />

years of age diagnosed with ASD;<br />

4. The study employed s<strong>in</strong>gle-subject designs<br />

that provided at least three data po<strong>in</strong>ts for<br />

pre-<strong>in</strong>tervention <strong>and</strong> three data po<strong>in</strong>ts for<br />

post-<strong>in</strong>tervention phases via detailed<br />

graphs;<br />

5. Dependent variables <strong>in</strong>cluded observed<br />

social <strong>in</strong>teractions between young children<br />

with ASD <strong>and</strong> their peers; <strong>and</strong><br />

6. All the articles were published <strong>in</strong> peerreviewed<br />

English language journals between<br />

1977 <strong>and</strong> 2006.<br />

Search Procedure<br />

Searches were carried out to obta<strong>in</strong> articles for<br />

<strong>in</strong>clusion <strong>in</strong> this meta-analysis. First, an electronic<br />

search was conducted among all peerreviewed<br />

English language journals published<br />

from 1977 to 2006 us<strong>in</strong>g ERIC <strong>and</strong> PsycINFO<br />

search database. With one keyword from each<br />

of the three categories, comb<strong>in</strong>ations of three<br />

keyword entries were used to select studies for<br />

the present meta-analysis: (a) autism, autistic;<br />

(b) social development, social <strong>in</strong>teraction, social<br />

behavior, social competence, social skills,<br />

peer relationship, peer relation, socialization,<br />

friendship, friend; <strong>and</strong> (c) children, young<br />

children, early <strong>in</strong>tervention. The total number<br />

of comb<strong>in</strong>ed keyword sets was 60 (2x10x3).<br />

The search process resulted 2,670 articles. After<br />

elim<strong>in</strong>at<strong>in</strong>g 2,045 duplicates <strong>and</strong> exclud-<br />

Meta-Analysis of Peer-Mediated Interventions / 65


<strong>in</strong>g all irrelevant articles (e.g., reviews <strong>and</strong><br />

position papers), a total number of 94 studies<br />

were reta<strong>in</strong>ed.<br />

Second, a h<strong>and</strong> search started with journal<br />

articles published <strong>in</strong> 1977 or with the first<br />

issue if the journal was founded more recently.<br />

The journals <strong>in</strong>cluded Journal of Applied<br />

Behavior Analysis, Focus on <strong>Autism</strong> <strong>and</strong> Other<br />

<strong>Developmental</strong> <strong>Disabilities</strong>, <strong>and</strong> Topics <strong>in</strong> Early<br />

Childhood Special <strong>Education</strong>. Additionally, relevant<br />

studies found <strong>in</strong> the reference section of<br />

the reviewed articles were located <strong>and</strong> chosen<br />

accord<strong>in</strong>g to the selection criteria. The second<br />

search resulted <strong>in</strong> 45 articles, 118 children,<br />

190 graphs of observations, <strong>and</strong> 6152<br />

observation data po<strong>in</strong>ts from 19 journals.<br />

Data Cod<strong>in</strong>g<br />

A cod<strong>in</strong>g sheet was developed <strong>and</strong> used dur<strong>in</strong>g<br />

both the data cod<strong>in</strong>g <strong>and</strong> double-cod<strong>in</strong>g<br />

procedures by the two authors. Relevant data<br />

from each selected study were coded us<strong>in</strong>g a<br />

systematic set of rules <strong>and</strong> procedures across<br />

the follow<strong>in</strong>g categories: (a) target children’s<br />

characteristics, <strong>in</strong>clud<strong>in</strong>g age, gender, <strong>and</strong> diagnosis;<br />

(b) <strong>in</strong>terventionists’ characteristics,<br />

<strong>in</strong>clud<strong>in</strong>g relative age, gender, <strong>and</strong> relation<br />

with the target children; <strong>and</strong> (c) features of<br />

the <strong>in</strong>terventions, <strong>in</strong>clud<strong>in</strong>g sett<strong>in</strong>gs, <strong>in</strong>tervention<br />

types, target behaviors, with the consideration<br />

of ma<strong>in</strong>tenance or not, with the consideration<br />

of generalization or not, length of<br />

<strong>in</strong>tervention, <strong>in</strong>tensity of <strong>in</strong>tervention, <strong>and</strong> <strong>in</strong>volvement<br />

of researchers, peers/sibl<strong>in</strong>gs,<br />

school staff <strong>and</strong> parents/families. Length of<br />

<strong>in</strong>tervention was calculated by the length of<br />

<strong>in</strong>tervention per session multiplied by the total<br />

number of sessions, while <strong>in</strong>tensity of <strong>in</strong>tervention<br />

was calculated by the length of <strong>in</strong>tervention<br />

per session multiplied by the<br />

number of sessions per week. If a study reported<br />

the actual length of the <strong>in</strong>tervention,<br />

the data was recorded. If, however, the length<br />

of the <strong>in</strong>tervention was not reported <strong>in</strong> a<br />

study, it was calculated by us<strong>in</strong>g the length of<br />

the observational sample from the graphs.<br />

Data were transferred from cod<strong>in</strong>g sheets to<br />

Excel <strong>and</strong> then SPSS data sheets.<br />

Inter-Rater Reliability<br />

Inter-rater reliability for the cod<strong>in</strong>g procedure<br />

was determ<strong>in</strong>ed through double-cod<strong>in</strong>g by the<br />

two authors of this meta-analysis. Twenty studies<br />

(44%) from the selected articles were r<strong>and</strong>omly<br />

chosen <strong>and</strong> <strong>in</strong>dependently doublecoded<br />

by the secondary author, Professor of<br />

Special <strong>Education</strong> <strong>and</strong> the primary author’s<br />

doctoral advisor. Additionally, given the complex<br />

nature of Allison <strong>and</strong> Gorman’s (1993)<br />

regression model, <strong>in</strong>ter-rater reliability for the<br />

effect sizes analysis was determ<strong>in</strong>ed through<br />

<strong>in</strong>dependent calculation by the primary author’s<br />

colleague, a senior graduate student of<br />

Special <strong>Education</strong>. The regression model was<br />

<strong>in</strong>itially reviewed <strong>and</strong> then the effect sizes<br />

were computed <strong>in</strong>dependently for all 45 studies.<br />

Inter-rater reliability was calculated by divid<strong>in</strong>g<br />

the number of agreements by the total<br />

number of agreements <strong>and</strong> disagreements<br />

<strong>and</strong> multiplied by 100%. The mean <strong>in</strong>ter-rater<br />

reliabilities were 97.6% for the cod<strong>in</strong>g procedure<br />

<strong>and</strong> 100% for the effect size calculation.<br />

Analyses of Data<br />

Descriptive data of the selected studies were<br />

analyzed by calculat<strong>in</strong>g both the frequency<br />

<strong>and</strong> percentage for each of the variables from<br />

the cod<strong>in</strong>g sheet. The percentages were calculated<br />

by divid<strong>in</strong>g the number of items <strong>in</strong> a<br />

subset by the total number of items <strong>in</strong> that<br />

variable. The regression model ref<strong>in</strong>ed by Allison<br />

<strong>and</strong> Gorman (1993) was used to calculate<br />

the effect sizes. That model was chosen<br />

because it accounts for the natural trend of<br />

change by time <strong>in</strong> observations, i.e., it takes<br />

<strong>in</strong>to account improvement <strong>in</strong> the basel<strong>in</strong>e<br />

phase to avoid overestimat<strong>in</strong>g the effects of<br />

treatment (Allison & Gorman). To produce<br />

an effect size that excludes any improvement<br />

that may occur without <strong>in</strong>tervention, it uses<br />

the trend of basel<strong>in</strong>e observations while adjusts<br />

the treatment observations by subtract<strong>in</strong>g<br />

the predicted values from the actual values <strong>in</strong><br />

the treatment. It also considers the need to<br />

represent negative effects with a negative<br />

value of the correlation. In addition, it addresses<br />

the problem posed by changes <strong>in</strong> level<br />

<strong>and</strong> slope that occur <strong>in</strong> opposite directions<br />

(Allison & Gorman; Wellen, 1998). Thus, if<br />

the trend toward improvement <strong>in</strong> the basel<strong>in</strong>e<br />

phase <strong>in</strong>creases <strong>in</strong> the treatment phase, or the<br />

upward slop<strong>in</strong>g l<strong>in</strong>e <strong>in</strong> the basel<strong>in</strong>e phase gets<br />

steeper <strong>in</strong> the treatment phase, the method<br />

66 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


considers that change <strong>and</strong> calculates a greater<br />

effect size, <strong>and</strong> vice versa (Wellen).<br />

Each usable graph of every selected child <strong>in</strong><br />

the <strong>in</strong>cluded studies was analyzed:<br />

1. AB designs: the observations <strong>in</strong> the<br />

basel<strong>in</strong>e A were compared to observations<br />

<strong>in</strong> the <strong>in</strong>tervention phase B;<br />

2. A1B1A2 designs: only the observations<br />

<strong>in</strong> the first basel<strong>in</strong>e A1 were compared<br />

to observations <strong>in</strong> the <strong>in</strong>tervention<br />

phase B1;<br />

3. A1B1A2B2 designs: only the observations<br />

<strong>in</strong> the first basel<strong>in</strong>e A1 were compared<br />

to observations <strong>in</strong> the last <strong>in</strong>tervention<br />

phase B2.<br />

As Allison <strong>and</strong> Gorman (1993) state, typically,<br />

researchers term<strong>in</strong>ate their first treatment<br />

B1 before achiev<strong>in</strong>g maximum effects<br />

with the concern that the behavior will not<br />

return to the basel<strong>in</strong>e A1 if treatment is carried<br />

“too far.” Thus, the maximum effects attempt<br />

to be achieved <strong>in</strong> the last <strong>in</strong>tervention<br />

phase B2. In addition, the second basel<strong>in</strong>e A2<br />

always returns to the first basel<strong>in</strong>e level of<br />

performance. Accord<strong>in</strong>gly, the comparison of<br />

A1 <strong>and</strong> B2 is thought to yield the most valid<br />

estimate of treatment effects (Allison & Gorman);<br />

4. Multiple basel<strong>in</strong>e designs across behaviors:<br />

only the graph with the social <strong>in</strong>teractions<br />

with peers as the target behavior<br />

was used;<br />

5. Multiple basel<strong>in</strong>e designs across sett<strong>in</strong>gs:<br />

all data po<strong>in</strong>ts from all of the<br />

graphs were used;<br />

6. Multiple basel<strong>in</strong>e designs across participants:<br />

every young child with autism<br />

was regarded as a separate AB design;<br />

7. Multiple probe designs: similar to the<br />

multiple basel<strong>in</strong>e designs;<br />

8. Basel<strong>in</strong>e followed by alternat<strong>in</strong>g treatments<br />

designs, basel<strong>in</strong>e followed by alternat<strong>in</strong>g<br />

treatments <strong>and</strong> a f<strong>in</strong>al treatment<br />

phase designs, <strong>and</strong> adapted<br />

alternat<strong>in</strong>g treatments designs: the observations<br />

<strong>in</strong> the basel<strong>in</strong>e A were compared<br />

to observations <strong>in</strong> the peer-mediated<br />

<strong>in</strong>tervention phase;<br />

9. Simultaneous treatment designs: the<br />

observations <strong>in</strong> the basel<strong>in</strong>e A were<br />

compared to observations <strong>in</strong> the peermediated<br />

<strong>in</strong>tervention phase;<br />

10. Chang<strong>in</strong>g criterion designs: only the<br />

observations <strong>in</strong> the first <strong>and</strong> only basel<strong>in</strong>e<br />

A were compared to observations<br />

<strong>in</strong> the last <strong>in</strong>tervention phase.<br />

After collect<strong>in</strong>g the data from each selected<br />

graph, the effect sizes were calculated. First,<br />

among all the selected graphs, the <strong>in</strong>tervention<br />

effect sizes (IES) by the measure of frequency<br />

were calculated between the basel<strong>in</strong>e<br />

phase <strong>and</strong> the <strong>in</strong>tervention phase for each<br />

selected child <strong>in</strong> every <strong>in</strong>cluded study. Then,<br />

the overall <strong>in</strong>tervention effect size (OIES) for<br />

frequency was averaged based on the IESs of<br />

the <strong>in</strong>dividual target children. Similarly, the<br />

follow-up effect sizes (FES) <strong>and</strong> generalization<br />

effect sizes (GES) by the measure of frequency<br />

were calculated between the basel<strong>in</strong>e phase<br />

<strong>and</strong> the follow-up phase, or between the basel<strong>in</strong>e<br />

phase <strong>and</strong> generalization phase, respectively,<br />

for each selected child. The overall follow-up<br />

effect size (OFES) <strong>and</strong> overall<br />

generalization effect size (OGES) for frequency<br />

was averaged based on FESs <strong>and</strong> GESs<br />

of the <strong>in</strong>dividual target children <strong>in</strong> all selected<br />

studies. Likewise, OIES, OFES, <strong>and</strong> OGES by<br />

the measure of duration were averaged based<br />

on IESs, FESs, <strong>and</strong> GESs for duration of the<br />

<strong>in</strong>dividual target children. In addition, the<br />

<strong>in</strong>tervention effect sizes (IES) for frequency<br />

due to each variable from the cod<strong>in</strong>g sheet<br />

were used to calculate for each child <strong>in</strong> every<br />

selected study for further categorical comparisons.<br />

The effect sizes were weighted by the<br />

number of observation data po<strong>in</strong>ts n <strong>in</strong> each<br />

graph (Wellen, 1998). When the predicted<br />

values went beyond the possible limits, they<br />

were set back at the natural limits (Campbell,<br />

2003). For example, when the predicted<br />

values of frequency were negative,<br />

they were set at 0. Similarly, when the predicted<br />

values of frequency were above 100,<br />

they were set at 100. If two or more sets of<br />

data were collected for one child <strong>in</strong> a selected<br />

study, only the set with the largest<br />

number of data po<strong>in</strong>ts was used to guarantee<br />

one effect size for each selected child<br />

<strong>and</strong> also to avoid the average of the effect<br />

sizes for the child. If one target child had<br />

more than one pair of largest number of<br />

Meta-Analysis of Peer-Mediated Interventions / 67


TABLE 1<br />

Frequency of Reviewed Articles by Journal<br />

Number Journal Frequency Percent (%)<br />

1 Journal of Applied Behavior Analysis 12 26.7<br />

2 Journal of <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong> 5 11.1<br />

3 Journal of the Association for Persons with Severe H<strong>and</strong>icaps 4 8.9<br />

4 <strong>Autism</strong>: The International Journal of Research <strong>and</strong> Practice 2 4.4<br />

5 Behavior Modification 2 4.4<br />

6 Behavioral Disorders 2 4.4<br />

7 Child & Family Behavior Therapy 2 4.4<br />

8 Focus on <strong>Autism</strong> & Other <strong>Developmental</strong> <strong>Disabilities</strong> 2 4.4<br />

9 Journal of Early Intervention 2 4.4<br />

10 Journal of Positive Behavior Interventions 2 4.4<br />

11 Topics <strong>in</strong> Early Childhood Special <strong>Education</strong> 2 4.4<br />

12 <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Developmental</strong> <strong>Disabilities</strong> 1 2.2<br />

13 Journal of <strong>Autism</strong> & <strong>Developmental</strong> Disorders 1 2.2<br />

14 Journal of Behavioral <strong>Education</strong> 1 2.2<br />

15 Journal of <strong>Developmental</strong> <strong>and</strong> Physical <strong>Disabilities</strong> 1 2.2<br />

16 Journal of Emotional & Behavioral Disorders 1 2.2<br />

17 Journal of Intellectual <strong>and</strong> <strong>Developmental</strong> Disability 1 2.2<br />

18 Journal of Special <strong>Education</strong> 1 2.2<br />

19 Journal of Speech, Language, <strong>and</strong> Hear<strong>in</strong>g Research 1 2.2<br />

Sum 45 100<br />

observation data po<strong>in</strong>ts <strong>in</strong> the basel<strong>in</strong>e <strong>and</strong><br />

<strong>in</strong>tervention phases, the pair was r<strong>and</strong>omly<br />

chosen. For example, if the <strong>in</strong>tervention<br />

used multiple basel<strong>in</strong>e design across sett<strong>in</strong>gs<br />

<strong>and</strong> was conducted for one child across<br />

three different sett<strong>in</strong>gs with the same number<br />

of data po<strong>in</strong>ts <strong>in</strong> the three basel<strong>in</strong>es <strong>and</strong><br />

the same number of data po<strong>in</strong>ts <strong>in</strong> the three<br />

<strong>in</strong>tervention phases, then the pair was r<strong>and</strong>omly<br />

chosen. Furthermore, means <strong>and</strong><br />

st<strong>and</strong>ard deviations were calculated, <strong>and</strong> the<br />

effect sizes over three st<strong>and</strong>ard deviations<br />

were elim<strong>in</strong>ated as outliers.<br />

The one-sample t test was used to determ<strong>in</strong>e<br />

whether or not the overall effect sizes were<br />

significantly different from zero. In addition, a<br />

one-way ANOVA was used to see whether<br />

there was any significant difference with<strong>in</strong> different<br />

variables. Once statistical significance<br />

was found, multiple comparisons were conducted<br />

to determ<strong>in</strong>e whether there were significant<br />

contrasts. Effect sizes of this metaanalysis<br />

were def<strong>in</strong>ed accord<strong>in</strong>g to Cohen’s d<br />

(1988) st<strong>and</strong>ard: (a) ES .2 is considered as<br />

a small effect; (b) ES .5 a medium effect;<br />

<strong>and</strong> (c) ES .8 a large effect.<br />

Results<br />

Articles Selected for Inclusion<br />

The selected studies were published from<br />

1978 to 2006. Among them, twenty studies<br />

(40%) were published between 1992 <strong>and</strong><br />

1997. Furthermore, the 45 studies selected <strong>in</strong><br />

this meta-analysis were published <strong>in</strong> 19 journals.<br />

Twelve studies (26.7%) were published<br />

<strong>in</strong> the Journal of Applied Behavior Analysis, five<br />

studies (11.1%) <strong>in</strong> the Journal of <strong>Autism</strong> <strong>and</strong><br />

<strong>Developmental</strong> <strong>Disabilities</strong>, <strong>and</strong> four studies<br />

(8.9%) <strong>in</strong> the Journal of the Association for Persons<br />

with Sever H<strong>and</strong>icaps. Table 1 presents the<br />

frequency <strong>and</strong> percentage of the selected<br />

studies published by journal.<br />

Overall Effect Sizes<br />

Table 2 presents the overall effect sizes. Results<br />

suggest that peer-mediated <strong>in</strong>terventions<br />

for promot<strong>in</strong>g social <strong>in</strong>teractions among<br />

young children with ASD were highly effective;<br />

<strong>and</strong> this effectiveness lasted across time,<br />

different sett<strong>in</strong>gs, participants, target behaviors,<br />

or activities (p .01).<br />

68 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


TABLE 2<br />

Overall Effect Sizes<br />

Overall Effect Sizes N ES<br />

Overall IES for Frequency 1880 1.46**<br />

Overall FES for Frequency 446 1.49**<br />

Overall GES for Frequency 219 1.51**<br />

Overall IES for Duration 401 1.27**<br />

Overall FES for Duration 79 2.44**<br />

Note: ** <strong>in</strong>dicates ES is significantly different<br />

from 0 (p .01).<br />

Analyses by Participants’ Characteristics<br />

The total number of studies analyzed by the<br />

target children’s age was larger than 45 because<br />

some studies <strong>in</strong>cluded children at different<br />

age level. Twenty-six studies <strong>in</strong>cluded<br />

target children from 72 to 97 months<br />

(42.6%), while one study <strong>in</strong>cluded a target<br />

child under three years of age (1.6%). Fortyfour<br />

studies <strong>in</strong>cluded boys as the target children<br />

(78.6%), compared to 12 studies that<br />

<strong>in</strong>cluded girls (21.4%). Forty-four studies <strong>in</strong>cluded<br />

target children diagnosed with autism<br />

(88%). No study <strong>in</strong>cluded target children diagnosed<br />

with Rett Syndrome or Childhood<br />

Dis<strong>in</strong>tegrative Disorder (CDD). Interventionists’<br />

age was coded relatively compared to the<br />

target children’s age. Twenty-one studies <strong>in</strong>cluded<br />

<strong>in</strong>terventionists older (32.8%). Eighteen<br />

studies did not specify the gender of the<br />

<strong>in</strong>terventionists (35.3%). The majority of the<br />

selected studies (n 39) <strong>in</strong>cluded peers as<br />

<strong>in</strong>terventionists (84.8%).<br />

The IES by age 0–35 months was not calculated<br />

due to the constant variables <strong>in</strong> the basel<strong>in</strong>e<br />

phase. S<strong>in</strong>ce the number of data of the<br />

IES by autism was much larger than those of<br />

IES by Asperger’s or by PDD-NOS, these three<br />

IESs were not compared. Likewise, the IES by<br />

both sibl<strong>in</strong>gs <strong>and</strong> peers as the <strong>in</strong>terventionists<br />

was not compared due to the large difference<br />

between the number of data.<br />

Results of the effect sizes suggest that peermediated<br />

<strong>in</strong>terventions for promot<strong>in</strong>g social<br />

<strong>in</strong>teractions among young children with ASD<br />

were highly effective across target children’s:<br />

(a) age, (b) gender, <strong>and</strong> (c) diagnosis. They<br />

were also highly effective: (d) when hav<strong>in</strong>g<br />

<strong>in</strong>terventionists older, at the same age, or with<br />

the comb<strong>in</strong>ed age levels; (e) across different<br />

genders of the <strong>in</strong>terventionists; <strong>and</strong> (f) across<br />

different relation between the <strong>in</strong>terventionists<br />

<strong>and</strong> the target children. The <strong>in</strong>tervention was<br />

more effective (a) <strong>in</strong> younger children (p <br />

.01), (b) <strong>in</strong> boys (p .01); or if the <strong>in</strong>terventionists<br />

were (c) older or at different age levels<br />

(p .01), (d) boys (p .01), <strong>and</strong> (e) sibl<strong>in</strong>gs<br />

(p .01). Table 3 provides data related to the<br />

participants’ characteristics, such as the target<br />

children’s age, gender, diagnosis, <strong>in</strong> addition<br />

to the <strong>in</strong>terventionists’ relative age, gender,<br />

<strong>and</strong> their relation with the target children.<br />

Analyses by Features of the Interventions<br />

Twenty-two studies were carried out <strong>in</strong> <strong>in</strong>tegrated<br />

classrooms (44.9%), while one study<br />

was conducted <strong>in</strong> a cl<strong>in</strong>ical sett<strong>in</strong>g (2%). Thirteen<br />

studies used more than one <strong>in</strong>tervention<br />

(27.2%). More than half of the studies (n <br />

37) studied social <strong>in</strong>teractions comb<strong>in</strong>ed with<br />

both <strong>in</strong>itiation <strong>and</strong> response (62.7%). Eighteen<br />

studies reported ma<strong>in</strong>tenance (38.3%),<br />

sixteen studies reported generalization across<br />

sett<strong>in</strong>gs (34.8%), <strong>and</strong> all 45 studies (100%)<br />

carried out generalization across participants:<br />

some <strong>in</strong>terventions were implemented to<br />

different target children, <strong>and</strong> others with different<br />

<strong>in</strong>terventionists. Twenty-four studies<br />

reported generalization across behaviors<br />

(53.3%), twenty-one studies reported generalization<br />

across activities (46.7%), <strong>and</strong> more<br />

than a half of the studies (n 30) <strong>in</strong>volved<br />

researchers, peers/sibl<strong>in</strong>gs, <strong>and</strong> school staff <strong>in</strong><br />

the <strong>in</strong>tervention (63.8%). The length of <strong>in</strong>tervention<br />

was calculated by the length of <strong>in</strong>tervention<br />

per session multiplied by the total<br />

number of sessions. Twenty-one studies performed<br />

the <strong>in</strong>tervention for less than one<br />

hour (22.6%) <strong>and</strong> another 21 studies between<br />

one <strong>and</strong> two hours (22.6%). The <strong>in</strong>tensity of<br />

<strong>in</strong>tervention was calculated by the length of<br />

<strong>in</strong>tervention per session multiplied by the<br />

number of sessions per week. Thirteen studies<br />

performed the <strong>in</strong>tervention less than half an<br />

hour a week (28.9%), while twelve studies did<br />

not specify the <strong>in</strong>tensity of the <strong>in</strong>tervention<br />

(26.7%).<br />

The IES by cl<strong>in</strong>ics was negatively high. It<br />

could not, however, be generalized s<strong>in</strong>ce only<br />

one study occurred <strong>in</strong> a cl<strong>in</strong>ical sett<strong>in</strong>g. There<br />

was no statistical significant difference be-<br />

Meta-Analysis of Peer-Mediated Interventions / 69


TABLE 3<br />

Data Related to the Participants’ Characteristics<br />

Variables Frequency Percent (%) N ES<br />

Target Children’s Age<br />

0–35 months 1 1.6 – –<br />

36–59 months 20 32.8 758 1.78**<br />

60–71 months 14 23.0 296 1.39<br />

72–97 months 26 42.6 826 1.20<br />

Target Children’s Gender<br />

Boy 44 78.6 1635 1.53**<br />

Girl 12 21.4 245 1.02<br />

Target Children’s Diagnosis<br />

<strong>Autism</strong> 44 88.0 1778 1.46<br />

Pervasive <strong>Developmental</strong> Disorder—Not<br />

Otherwise Specified (PDD-NOS) 3 6.0 48 1.93<br />

Asperger’s Syndrome 3 6.0 54 0.97<br />

Interventionists’ Age<br />

Younger 10 15.6 226 0.17<br />

Same 15 23.4 527 1.20<br />

Older 21 32.8 618 1.80**<br />

Comb<strong>in</strong>ation 18 28.1 509 1.90**<br />

Interventionists’ Gender<br />

Boy 11 21.6 329 2.14**<br />

Girl 9 17.6 289 1.36<br />

Not Specified 18 35.3 684 1.63<br />

Comb<strong>in</strong>ation 13 25.5 578 0.93<br />

Interventionists’ Relation with the Target Children<br />

Peers 39 84.8 1591 1.33<br />

Sibl<strong>in</strong>gs 5 10.9 273 2.16**<br />

Comb<strong>in</strong>ation 2 4.3 16 2.46<br />

Note: ** <strong>in</strong>dicates that all the effect sizes with<strong>in</strong> the category are significantly different from each other<br />

(p .01).<br />

tween the efficacy with <strong>and</strong> without the consideration<br />

of generalization across sett<strong>in</strong>gs<br />

(p .05). The IES by the <strong>in</strong>volvement of<br />

researchers, peers/sibl<strong>in</strong>gs, <strong>and</strong> parents/families<br />

was not compared, due to the limited<br />

number of studies <strong>and</strong> limited number of observation<br />

data. All ten IESs by the <strong>in</strong>tervention<br />

length were compared, <strong>and</strong> the IES by 7–8<br />

hours duration was significant different from<br />

other IES (p .01). When compar<strong>in</strong>g cont<strong>in</strong>uously,<br />

however, there was no bivariate correlation<br />

between the IES <strong>and</strong> length of <strong>in</strong>tervention<br />

(p .05). Similarly, all six IESs by the<br />

<strong>in</strong>tervention <strong>in</strong>tensity were compared, <strong>and</strong><br />

there were significantly differences between<br />

some of them (p .05). There was, however,<br />

no bivariate correlation between the IES <strong>and</strong><br />

cont<strong>in</strong>uous <strong>in</strong>tensity duration (p .05).<br />

Results of the effect sizes by the character-<br />

istics of the <strong>in</strong>terventions from this study suggest<br />

that peer-mediated <strong>in</strong>terventions among<br />

young children with ASD were highly effective:<br />

(a) across the sett<strong>in</strong>gs, except cl<strong>in</strong>ics; (b)<br />

across different <strong>in</strong>tervention types except for<br />

peer network<strong>in</strong>g; (c) for promot<strong>in</strong>g social responses<br />

<strong>and</strong> social <strong>in</strong>teractions; (d) whether<br />

or not with the consideration of ma<strong>in</strong>tenance;<br />

(e) whether or not with the consideration of<br />

generalization; (f) across different <strong>in</strong>volvement<br />

of participants; (g) across different<br />

length of <strong>in</strong>tervention except for 4–5 hours<br />

duration; <strong>and</strong> (h) across all the <strong>in</strong>tensity of<br />

the <strong>in</strong>tervention. Furthermore, the <strong>in</strong>tervention<br />

was more effective if the <strong>in</strong>tervention: (a)<br />

took place at home (p .01); (b) used peer<br />

model<strong>in</strong>g (p .01); (c) aimed to enhance<br />

social response (p .01); (d) considered<br />

ma<strong>in</strong>tenance (p .05); (e) considered gener-<br />

70 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


alization across participants, across behaviors,<br />

or across activities (p .01); <strong>and</strong> (f) <strong>in</strong>volved<br />

all researchers, peers/sibl<strong>in</strong>gs, school staff,<br />

<strong>and</strong> parents/families (p .01). Table 4 provides<br />

data related to the sett<strong>in</strong>gs, <strong>in</strong>tervention<br />

types, <strong>and</strong> target behaviors, ma<strong>in</strong>tenance, generalization,<br />

collaboration, the length <strong>and</strong> <strong>in</strong>tensity<br />

of <strong>in</strong>tervention.<br />

Conclusions<br />

A meta-analysis was conducted <strong>in</strong> 45 s<strong>in</strong>glesubject<br />

design studies from 19 journals between<br />

1977 <strong>and</strong> 2006. The overall effect sizes<br />

suggest that peer-mediated <strong>in</strong>terventions were<br />

highly effective among children under eight<br />

years of age diagnosed with ASD for promot<strong>in</strong>g<br />

social <strong>in</strong>teractions. Further categorical<br />

comparisons suggest that these <strong>in</strong>terventions<br />

were more effective <strong>in</strong> enhanc<strong>in</strong>g social responses<br />

<strong>in</strong> younger boys, when older male<br />

sibl<strong>in</strong>gs served as <strong>in</strong>terventionists, when the<br />

<strong>in</strong>terventions took place <strong>in</strong> the home, when<br />

peer model<strong>in</strong>g was used, <strong>and</strong> when consideration<br />

was given to ma<strong>in</strong>tenance <strong>and</strong> generalization<br />

across participants, behaviors <strong>and</strong> activities,<br />

<strong>and</strong> <strong>in</strong> <strong>in</strong>volv<strong>in</strong>g collaboration among all<br />

researchers, peers/sibl<strong>in</strong>gs, school staff, <strong>and</strong><br />

parents/families.<br />

Limitations<br />

One limitation of the presented meta-analysis<br />

stems from the <strong>in</strong>clusion/exclusion criteria<br />

used to select the studies. Only the studies<br />

published <strong>in</strong> peer-reviewed journals were <strong>in</strong>cluded.<br />

Accord<strong>in</strong>gly, this meta-analysis was biased<br />

<strong>in</strong> favor of published research compared<br />

to unpublished studies. Horner, Carr, Stra<strong>in</strong>,<br />

Todd, <strong>and</strong> Reed (2002) state that due to a<br />

potential bias imposed by publication procedures,<br />

studies with positive results are more<br />

likely to be published than studies without or<br />

with negative effects. Such practices lead to a<br />

possible <strong>in</strong>flated estimate of effect size represented<br />

by published studies (Horner et al.).<br />

Therefore, the submission <strong>and</strong> publication of<br />

studies with negative or <strong>in</strong>effective f<strong>in</strong>d<strong>in</strong>gs<br />

should be encouraged.<br />

Allison <strong>and</strong> Gorman’s (1993) regression<br />

model was used to perform this meta-analysis.<br />

The model accounts for the natural trend of<br />

change <strong>in</strong> basel<strong>in</strong>e to adjust the treatment<br />

observations, so it may rely too heavily on the<br />

estimation of trends from the basel<strong>in</strong>e phase.<br />

Thus, the method may lead to <strong>in</strong>accurate calculations<br />

of effect sizes when the number of<br />

data po<strong>in</strong>ts <strong>in</strong> basel<strong>in</strong>e is limited (Wellen,<br />

1998).<br />

Cohen’s d st<strong>and</strong>ards were used to def<strong>in</strong>e the<br />

effect sizes of this meta-analysis. However, <strong>in</strong>stead<br />

of with<strong>in</strong> subject comparisons <strong>in</strong> s<strong>in</strong>glesubject<br />

design studies, they were meant for<br />

between group comparisons <strong>in</strong> group designs.<br />

In many meta-analyses us<strong>in</strong>g s<strong>in</strong>gle-subject design<br />

studies, effect sizes usually occurred<br />

larger than those <strong>in</strong> group design studies.<br />

Thus, the <strong>in</strong>terpretation of the results of this<br />

study may change if the st<strong>and</strong>ards of the effect<br />

sizes change.<br />

Another limitation derives from the use of a<br />

ruler to measure data po<strong>in</strong>ts from the selected<br />

graphs dur<strong>in</strong>g the process of data collection.<br />

The value of each data po<strong>in</strong>t <strong>in</strong> some selected<br />

studies had to be estimated because the<br />

graphs were too small to read exactly. To<br />

make the process of meta-analyses more efficient<br />

<strong>and</strong> to obta<strong>in</strong> more accurate <strong>in</strong>formation,<br />

s<strong>in</strong>gle-subject studies <strong>in</strong> the future<br />

should provide more complete <strong>in</strong>formation:<br />

the orig<strong>in</strong>al data <strong>in</strong> the form of graphs <strong>and</strong> <strong>in</strong><br />

numbers, the number of basel<strong>in</strong>e <strong>and</strong> treatment<br />

observation data po<strong>in</strong>ts, <strong>and</strong> a more detailed<br />

description of the <strong>in</strong>tervention variables.<br />

Even though the effect sizes suggested that<br />

the <strong>in</strong>tervention was more effective if the <strong>in</strong>terventionists<br />

were sibl<strong>in</strong>gs of the target children<br />

<strong>and</strong> if the <strong>in</strong>tervention took place at<br />

home, consideration should be given regard<strong>in</strong>g<br />

the confound between the sibl<strong>in</strong>gs as <strong>in</strong>terventionists<br />

<strong>and</strong> home-based <strong>in</strong>tervention,<br />

s<strong>in</strong>ce most home-based <strong>in</strong>terventions <strong>in</strong>cluded<br />

sibl<strong>in</strong>gs’ participation. For example,<br />

among the five studies which took place at<br />

home, only one child, Huang, <strong>in</strong> one study by<br />

Yang, Wolfberg, Wu, <strong>and</strong> Hwu (2003) had<br />

both peer <strong>and</strong> sibl<strong>in</strong>gs as the <strong>in</strong>terventionists.<br />

Similarly, among the five studies which sibl<strong>in</strong>gs<br />

served as the <strong>in</strong>terventionists, only one<br />

study by Baker (2000) took place <strong>in</strong> playrooms<br />

at the university <strong>in</strong>stead of home. The other<br />

four studies took place at home while had<br />

sibl<strong>in</strong>g serv<strong>in</strong>g as the <strong>in</strong>terventionists (Coe,<br />

Matson, Craigie, & Gossesn, 1991; Stra<strong>in</strong> &<br />

Meta-Analysis of Peer-Mediated Interventions / 71


TABLE 4<br />

Data Related to the Features of the Interventions<br />

Variables Frequency Percent (%) N ES<br />

Intervention Sett<strong>in</strong>g<br />

Integrated Class 22 44.9 987 1.13<br />

Segregated Class 6 12.2 192 1.86<br />

Home 5 10.2 197 2.23**<br />

Cl<strong>in</strong>ic 1 2.0 19 -1.56<br />

Other 15 30.6 485 1.78<br />

Independent Variables<br />

Peer Model<strong>in</strong>g 6 12.8 127 3.16**<br />

Peer Initiation <strong>Tra<strong>in</strong><strong>in</strong>g</strong> 10 21.3 322 0.97<br />

Peer Monitor<strong>in</strong>g 3 6.4 204 1.45<br />

Peer Network<strong>in</strong>g 3 6.4 133 0.62<br />

Peer Tutor<strong>in</strong>g 3 6.4 50 1.37<br />

Group-Oriented Cont<strong>in</strong>gency 9 19.1 435 1.00<br />

Comb<strong>in</strong>ation 13 27.7 609 1.89<br />

Dependent Variables<br />

Social Initiation 13 22.0 265 0.71<br />

Social Response 9 15.3 220 3.23**<br />

Comb<strong>in</strong>ation of Social Interaction 37 62.7 1395 1.33<br />

Intervention Ma<strong>in</strong>tenance<br />

Yes 18 38.3 789 1.54*<br />

No 29 61.7 1091 1.41<br />

Intervention Generalization Across Sett<strong>in</strong>gs<br />

Yes 16 34.8 577 1.37<br />

No 30 65.2 1303 1.50<br />

Intervention Generalization Across Participants<br />

Yes 45 100.0 1880 1.46▪▪<br />

Intervention Generalization Across Behaviors<br />

Yes 24 53.3 954 1.76**<br />

No 21 46.7 926 1.16<br />

Intervention Generalization Across Activities<br />

Yes 21 46.7 986 1.67**<br />

No 24 53.3 894 1.25<br />

Involvement of Researchers, Peers/Sibl<strong>in</strong>gs, School Staff <strong>and</strong> Parents/Families<br />

Researchers & Peers/Sibl<strong>in</strong>gs 7 14.9 186 1.98<br />

Researchers & Peers/Sibl<strong>in</strong>gs, & School Staff 30 63.8 1376 1.31<br />

Researchers & Peers/Sibl<strong>in</strong>gs, & Parents/Families 2 4.3 57 0.63<br />

Researchers & Peers/Sibl<strong>in</strong>gs, School Staff, & Parents/Families 8 17.0 261 2.06**<br />

Length of Intervention (m<strong>in</strong>utes)<br />

10–60 21 22.6 443 1.75<br />

61–120 21 22.6 358 1.82<br />

121–180 13 14.0 195 0.90<br />

181–240 8 8.6 152 1.23<br />

241–300 5 5.4 146 0.33<br />

301–360 3 3.2 64 0.92<br />

361–420 6 6.5 164 0.95<br />

421–480 3 3.2 69 4.02**<br />

481–540 5 5.4 143 1.46<br />

540 8 8.6 146 1.44<br />

72 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


TABLE 4—(Cont<strong>in</strong>ued)<br />

Danko, 1995; Taylor, Lev<strong>in</strong>, & Jasper, 1999;<br />

<strong>and</strong> Tsao & Odom, 2006).<br />

Implications<br />

More <strong>in</strong>terventions should be conducted as<br />

early as possible s<strong>in</strong>ce less time is wasted to<br />

reduce the impact of ASD (Rogers, 1998). In<br />

addition, <strong>in</strong>creased social <strong>in</strong>teractions can set<br />

the stage for other developments such as generalized<br />

use of newly acquired language skills,<br />

<strong>in</strong>clusion <strong>in</strong> more <strong>in</strong>clusive educational sett<strong>in</strong>gs,<br />

<strong>and</strong> development of more positive <strong>and</strong><br />

long-last<strong>in</strong>g relationships with peers <strong>and</strong> other<br />

people (Goldste<strong>in</strong>, Kaczmarek, Penn<strong>in</strong>gton, &<br />

Shafer 1992). Results of the present metaanalysis<br />

corroborated the belief of the importance<br />

of early <strong>in</strong>tervention for children with<br />

autism.<br />

More <strong>in</strong>terventions need to be conducted<br />

with girls as well as with children diagnosed<br />

with Rett Syndrome, CDD, PDD-NOS, <strong>and</strong><br />

Asperger’s Syndrome. Only 12 studies<br />

(21.4%) <strong>in</strong>cluded 14 girls (11.9%), compared<br />

to 44 studies (88.1%) that <strong>in</strong>cluded<br />

104 boys (78.6%). One hundred <strong>and</strong> n<strong>in</strong>e<br />

children (92.4%) were diagnosed with autism,<br />

while three studies <strong>in</strong>cluded five children<br />

(4.2%) with Asperger’s Syndrome,<br />

three studies <strong>in</strong>cluded four children (3.4%)<br />

with PDD-NOS, <strong>and</strong> no study reported any<br />

child diagnosed with Rett Syndrome or<br />

CDD. The number of girls as the target children<br />

was limited, so was the number of children<br />

diagnosed with Asperger’s Syndrome<br />

or PDD-NOS, partly because of the selection<br />

criteria, <strong>and</strong> partly because of the different<br />

Variables Frequency Percent (%) N ES<br />

Intensity of Intervention (m<strong>in</strong>utes/week)<br />

5–30 13 28.9 671 1.34<br />

31–60 9 20.0 315 1.06<br />

61–90 7 15.6 391 0.83<br />

91–120 3 6.7 78 1.16<br />

660 1 2.2 55 1.47<br />

Not Specified 12 26.7 370 2.76<br />

Note: ▪▪ <strong>in</strong>dicates ES is significantly different from 0 (p .01).<br />

* <strong>in</strong>dicates that the effect sizes with<strong>in</strong> the category are significantly different from each other (p .05).<br />

** <strong>in</strong>dicates that the effect sizes with<strong>in</strong> the category are significantly different from each other (p .01).<br />

prevalence among different genders or different<br />

diagnoses.<br />

Future studies need to be conducted us<strong>in</strong>g<br />

peer-model<strong>in</strong>g for young children with autism<br />

to improve their social <strong>in</strong>teractions. Peer model<strong>in</strong>g<br />

was most effective because it provides<br />

visually cued <strong>in</strong>struction with model<strong>in</strong>g for<br />

children with autism, who demonstrate a preference<br />

for visual learn<strong>in</strong>g such as the use of<br />

visual support <strong>in</strong>structional strategies (Bell<strong>in</strong>i<br />

& Akullian, 2007). Video model<strong>in</strong>g us<strong>in</strong>g<br />

peers is one way of peer model<strong>in</strong>g. This<br />

method has the advantage of remov<strong>in</strong>g irrelevant<br />

stimuli of the modeled behavior<br />

through video edit<strong>in</strong>g so that the child with<br />

autism is able to focus better on the target<br />

behavior. In addition, video model<strong>in</strong>g us<strong>in</strong>g<br />

peers m<strong>in</strong>imizes human <strong>in</strong>teractions at the<br />

stage of acquisition of a new skill <strong>and</strong> helps<br />

reduce the distress <strong>and</strong> anxiety related to social<br />

<strong>in</strong>teractions (Bell<strong>in</strong>i & Akullian). Despite<br />

the high efficacy of the peer-model<strong>in</strong>g <strong>in</strong>tervention,<br />

however, only six studies (12.8%)<br />

used it.<br />

Results of the analyses <strong>in</strong>dicate that peermediated<br />

<strong>in</strong>terventions appeared to be moderately<br />

effective for improv<strong>in</strong>g social <strong>in</strong>itiation.<br />

On the other h<strong>and</strong>, the <strong>in</strong>tervention was<br />

highly effective for promot<strong>in</strong>g social responses<br />

among young children with ASD.<br />

More studies need to be conducted to improve<br />

social response s<strong>in</strong>ce only n<strong>in</strong>e studies<br />

studied it (15.3%). Thirteen studies studied<br />

social <strong>in</strong>itiation (22%), yet more studies need<br />

to be done to <strong>in</strong>vestigate how to effectively<br />

promote positive social <strong>in</strong>itiations for children<br />

with autism.<br />

Meta-Analysis of Peer-Mediated Interventions / 73


More studies need to consider ma<strong>in</strong>tenance<br />

<strong>and</strong> generalization. Results of this meta-analysis<br />

demonstrate that the studies reported<br />

ma<strong>in</strong>tenance <strong>and</strong> generalization had higher<br />

effect sizes than the studies without report<strong>in</strong>g<br />

ma<strong>in</strong>tenance <strong>and</strong> generalization. In addition,<br />

there was a statistically significant difference<br />

between the effect sizes. However, the number<br />

of studies consider<strong>in</strong>g follow-ups <strong>and</strong> generalization<br />

was limited. Eighteen studies reported<br />

ma<strong>in</strong>tenance (38.3%), 16 studies reported<br />

generalization across sett<strong>in</strong>gs (34.8%), 24<br />

studies reported generalization across behaviors<br />

(53.3%), <strong>and</strong> 21 studies reported generalization<br />

across activities (46.7%). The studies<br />

consider<strong>in</strong>g ma<strong>in</strong>tenance or generalization<br />

did not occur until the 1990s. The higher<br />

effect sizes may be the result of a stronger<br />

design <strong>and</strong> a stronger <strong>in</strong>tervention with ma<strong>in</strong>tenance<br />

<strong>and</strong> generalization. However, without<br />

the report of the efficacy of follow-ups <strong>and</strong><br />

generalization, it is unclear how susta<strong>in</strong>able<br />

the <strong>in</strong>tervention is or how feasible <strong>and</strong> realistic<br />

it is to expect school staff, parents/families<br />

<strong>and</strong> other practitioners to carry out <strong>in</strong>terventions<br />

once researchers have left (Wheeler,<br />

2007).<br />

Results of this study <strong>in</strong>dicate that the <strong>in</strong>tervention<br />

was more effective if the <strong>in</strong>terventionists<br />

were sibl<strong>in</strong>gs. Despite the significance between<br />

the effect sizes of peers <strong>and</strong> sibl<strong>in</strong>gs,<br />

more studies (n 39) <strong>in</strong>cluded peers as <strong>in</strong>terventionists<br />

(84.8%), compared to five studies<br />

(10.9%) which <strong>in</strong>cluded sibl<strong>in</strong>gs as <strong>in</strong>terventionists.<br />

Results of the present study also<br />

suggest the <strong>in</strong>tervention was more effective if<br />

it took place at home. Many more studies (n <br />

28) took place <strong>in</strong> either <strong>in</strong>tegrated or segregated<br />

classrooms (57.1%), compared to five<br />

studies (10.2%) that took place at home. Additionally,<br />

eight studies <strong>in</strong>volved researchers,<br />

peers/sibl<strong>in</strong>gs, school staff, <strong>and</strong> parents/families<br />

(17%), compared to the majority of the<br />

studies (n 37) which excluded parents/<br />

families <strong>in</strong> the <strong>in</strong>tervention (78.7%). Similar<br />

to the studies consider<strong>in</strong>g ma<strong>in</strong>tenance <strong>and</strong><br />

generalization, the studies with the <strong>in</strong>volvement<br />

of all participants did not occur until the<br />

1990s. Researchers have paid attention to the<br />

importance of family <strong>in</strong>volvement <strong>in</strong> the process<br />

of <strong>in</strong>tervention for a long time. As early as<br />

the 1970s, Lovaas, Koegel, Simmons, <strong>and</strong><br />

Long (1973) po<strong>in</strong>t out that parents of chil-<br />

dren with autism were critical components of<br />

the habilitation process. They demonstrate<br />

that it is unlikely to ma<strong>in</strong>ta<strong>in</strong> the ga<strong>in</strong>s of<br />

<strong>in</strong>terventions without parents’ participation<br />

(Lovaas et al.). Given the f<strong>in</strong>d<strong>in</strong>gs of this metaanalysis<br />

that the studies were more effective<br />

with the <strong>in</strong>volvement of all participants (e.g.,<br />

the researchers, peers/sibl<strong>in</strong>gs, school staff,<br />

<strong>and</strong> parents/families) <strong>and</strong> the importance of<br />

families <strong>in</strong> promot<strong>in</strong>g learn<strong>in</strong>g <strong>and</strong> the value<br />

of ongo<strong>in</strong>g <strong>in</strong>teractions with the natural context<br />

(Wheeler, 2007), more studies need to be<br />

conducted <strong>in</strong> home <strong>and</strong> community sett<strong>in</strong>gs,<br />

with sibl<strong>in</strong>gs as <strong>in</strong>terventionists, <strong>and</strong> with an<br />

active <strong>in</strong>volvement of parents <strong>and</strong> families.<br />

It is urgent to validate evidence-based practice<br />

<strong>in</strong> the study of social competence among<br />

young children with autism given (a) the dramatically<br />

<strong>in</strong>creas<strong>in</strong>g prevalence of ASD, (b)<br />

social <strong>in</strong>teraction as a core deficit, (c) the<br />

heterogeneity of the participants, <strong>and</strong> (d)<br />

vary<strong>in</strong>g degree of the educational contexts<br />

that serve children with ASD. Results of the<br />

meta-analysis <strong>in</strong>dicate the high efficacy of<br />

peer-mediated <strong>in</strong>terventions as a method for<br />

promot<strong>in</strong>g social <strong>in</strong>teractions among children<br />

from birth to eight years of age with ASD. The<br />

study also provides <strong>in</strong>tegrated f<strong>in</strong>d<strong>in</strong>gs <strong>in</strong> detail<br />

<strong>and</strong> thus ref<strong>in</strong>es evidence-based peer-mediated<br />

<strong>in</strong>tervention practices for young children<br />

with ASD. Future studies need to<br />

<strong>in</strong>vestigate the factors that contribute to more<br />

benefits <strong>and</strong> greater impact for young children<br />

with ASD.<br />

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Received: 18 August 2009<br />

Initial Acceptance: 12 October 2009<br />

F<strong>in</strong>al Acceptance: 21 November 2009<br />

Meta-Analysis of Peer-Mediated Interventions / 77


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 78–93<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

Postsecondary <strong>Education</strong> for Transition-Age Students with<br />

Intellectual <strong>and</strong> Other <strong>Developmental</strong> <strong>Disabilities</strong>:<br />

A National Survey<br />

Clare K. Papay <strong>and</strong> L<strong>in</strong>da M. Bambara<br />

Lehigh University<br />

Abstract: Transition programs based on college campuses for students with <strong>in</strong>tellectual <strong>and</strong> other developmental<br />

disabilities (IDD) ages 18–21 provide an opportunity for age-appropriate <strong>in</strong>clusion when peers without<br />

disabilities graduate from high school at age 18. The purpose of the present study was to exam<strong>in</strong>e the general<br />

characteristics of postsecondary education (PSE) programs for students with IDD <strong>and</strong> the extent to which<br />

students with IDD are participat<strong>in</strong>g <strong>in</strong> college classes through a national survey. Results suggest that (a)<br />

opportunities for students with IDD to participate <strong>in</strong> PSE programs may be limited to those students who are<br />

enrolled <strong>in</strong> school districts that fund <strong>and</strong> operate PSE programs <strong>and</strong> not open to all students, <strong>and</strong> (b) although<br />

many students with IDD are participat<strong>in</strong>g <strong>in</strong> college classes, the types of classes <strong>and</strong> the manner <strong>in</strong> which<br />

students participate appear to be l<strong>in</strong>ked to the level of students’ academic abilities <strong>and</strong> the type of postsecondary<br />

education <strong>in</strong>stitution at which the program is located. Implications for future research <strong>and</strong> practice are<br />

discussed.<br />

In recent years, <strong>in</strong>terest has grown <strong>in</strong> provid<strong>in</strong>g<br />

postsecondary education experiences as<br />

part of the transition to adulthood for students<br />

with <strong>in</strong>tellectual <strong>and</strong> other developmental<br />

disabilities (IDD). Many students with <strong>in</strong>tellectual<br />

disabilities (synonymous with<br />

mental retardation, Schalock, Luckasson, &<br />

Shogren, 2007) or developmental disabilities<br />

(<strong>in</strong>clud<strong>in</strong>g autism <strong>and</strong> Asperger’s syndrome)<br />

have pervasive support needs <strong>and</strong> tend to stay<br />

<strong>in</strong> school until they age out of eligibility for<br />

special education services at age 21 or 22<br />

(Wagner, Newman, Cameto, Garza, & Lev<strong>in</strong>e,<br />

2005). These <strong>in</strong>dividuals may receive an alternative<br />

high school diploma, participate <strong>in</strong> alternative<br />

high-stakes assessments, <strong>and</strong> have an<br />

<strong>in</strong>dividualized education plan (IEP) that focuses<br />

on functional life skills, communitybased<br />

<strong>in</strong>struction, <strong>and</strong> job tra<strong>in</strong><strong>in</strong>g (Grigal,<br />

Neubert, & Moon, 2001). These youth are the<br />

least likely of all youth with disabilities to en-<br />

Correspondence regard<strong>in</strong>g this article should be<br />

addressed to Clare K. Papay, College of <strong>Education</strong>,<br />

L111 Iacocca Hall, 111 Research Drive, Lehigh University,<br />

Bethlehem, PA 18015. Email: ckb3@lehigh.<br />

edu<br />

roll <strong>in</strong> postsecondary education with<strong>in</strong> 2 years<br />

of graduat<strong>in</strong>g from high school (Wagner et<br />

al., 2005), most likely because they typically do<br />

not meet college entrance criteria for academic<br />

performance. However, <strong>in</strong> a review of<br />

the literature on postsecondary educational<br />

practices for <strong>in</strong>dividuals with IDD, Neubert,<br />

Moon, Grigal, <strong>and</strong> Redd (2001) found that<br />

opportunities for educational, vocational, <strong>and</strong><br />

recreational activities on college campuses<br />

have been provided to <strong>in</strong>dividuals with IDD<br />

s<strong>in</strong>ce the 1970s <strong>and</strong> that these opportunities<br />

are now be<strong>in</strong>g <strong>in</strong>creas<strong>in</strong>gly extended to students<br />

who are still enrolled <strong>in</strong> high school.<br />

Transition programs housed on college<br />

campuses <strong>and</strong> <strong>in</strong> other community locations<br />

(e.g., offices, storefronts, <strong>and</strong> bus<strong>in</strong>esses)<br />

emerged <strong>in</strong> the 1970s as alternatives to provid<strong>in</strong>g<br />

<strong>in</strong>struction on transition goals for students<br />

with IDD <strong>in</strong> high school sett<strong>in</strong>gs (Neubert<br />

et al., 2001). These programs were<br />

considered to provide a more age-appropriate<br />

context for functional skill <strong>in</strong>struction for students<br />

with IDD ages 18–21 who were still eligible<br />

for special education services, but who<br />

exceeded the typical age of high school students.<br />

This approach recognized the need to<br />

make a dist<strong>in</strong>ction between the high school ex-<br />

78 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


periences that should be provided to students<br />

with IDD up to age 18 <strong>and</strong> postsecondary education<br />

experiences that should be provided to<br />

students ages 18–21 (Fisher & Sax, 1999). The<br />

focus of <strong>in</strong>struction <strong>in</strong> these programs was on<br />

vocational tra<strong>in</strong><strong>in</strong>g, functional skills development,<br />

<strong>and</strong> work adjustment skills. Although<br />

some programs were housed on college campuses,<br />

<strong>in</strong>struction was largely segregated <strong>and</strong><br />

offered few opportunities for <strong>in</strong>teraction with<br />

same-age peers (Neubert et al.).<br />

Beg<strong>in</strong>n<strong>in</strong>g <strong>in</strong> the 1990s, <strong>in</strong>creased emphasis<br />

was placed by the IDEA of 1990 <strong>and</strong> the IDEA<br />

Amendments of 1997 on postsecondary education<br />

for all students, <strong>in</strong>clud<strong>in</strong>g students with<br />

IDD. This emphasis, along with the logical<br />

expectations of families <strong>and</strong> teachers that <strong>in</strong>clusion<br />

with peers without disabilities would<br />

cont<strong>in</strong>ue <strong>in</strong> postsecondary educational sett<strong>in</strong>gs,<br />

led to a greater focus on creat<strong>in</strong>g <strong>in</strong>clusive<br />

postsecondary education options for students<br />

with IDD (Neubert et al., 2001). The<br />

Division on Mental Retardation <strong>and</strong> <strong>Developmental</strong><br />

<strong>Disabilities</strong> of the Council for Exceptional<br />

Children advocated for the provision of<br />

services for students with IDD ages 18–21 <strong>in</strong><br />

an age-appropriate sett<strong>in</strong>g such as a college<br />

campus (Smith & Pucc<strong>in</strong>i, 1995). The movement<br />

toward provid<strong>in</strong>g special education services<br />

to students with IDD ages 18–21 through<br />

postsecondary education (PSE) programs has<br />

grown to <strong>in</strong>clude opportunities for students<br />

with IDD to participate <strong>in</strong> college classes <strong>and</strong><br />

activities with peers without disabilities.<br />

Professionals <strong>in</strong> the field have categorized<br />

PSE programs for students with IDD as separate,<br />

mixed, or <strong>in</strong>dividualized program models<br />

(see Hart, Mele-McCarthy, Pasternack,<br />

Zimbrich, & Parker, 2004; Neubert & Moon,<br />

2006; <strong>and</strong> Stodden & Whelley, 2004). Separate<br />

model programs, also referred to as substantially<br />

separate or segregated programs, are<br />

based on college campuses but offer no opportunities<br />

for <strong>in</strong>clusive activities with peers<br />

without disabilities. The focus of the curriculum<br />

<strong>in</strong> these programs is on life skills <strong>in</strong>struction,<br />

community-based <strong>in</strong>struction, <strong>and</strong> vocational<br />

tra<strong>in</strong><strong>in</strong>g. Mixed model programs,<br />

sometimes called hybrid programs, offer opportunities<br />

for students with IDD to participate<br />

<strong>in</strong> <strong>in</strong>clusive activities <strong>in</strong>clud<strong>in</strong>g college<br />

classes with college students without disabilities<br />

<strong>and</strong> also <strong>in</strong>volve some life skills or voca-<br />

tional <strong>in</strong>struction <strong>in</strong> a separate location or<br />

classroom on the college campus. Individualized<br />

model programs, or <strong>in</strong>clusive or <strong>in</strong>dividualized<br />

services, represent the highest level of<br />

<strong>in</strong>clusion for students with IDD as each student’s<br />

entire day is planned around his or her<br />

postschool goals <strong>and</strong> no <strong>in</strong>struction <strong>in</strong> selfconta<strong>in</strong>ed<br />

classrooms occurs. In this model,<br />

students may be participat<strong>in</strong>g or matriculated<br />

<strong>in</strong>to a course of study relat<strong>in</strong>g to their employment<br />

goals. Regardless of model, PSE programs<br />

can be located on the campuses of fouryear<br />

colleges or universities or two-year or<br />

community colleges <strong>and</strong> have been referred<br />

to as transition programs on college campuses,<br />

dual enrollment programs, or college<br />

campus-based <strong>in</strong>clusion programs. For students<br />

who are receiv<strong>in</strong>g special education services<br />

through their local school districts, PSE<br />

programs may provide <strong>in</strong>struction <strong>and</strong> experiences<br />

for transition goals <strong>in</strong> the areas of<br />

employment, postsecondary education, <strong>and</strong><br />

<strong>in</strong>dependent liv<strong>in</strong>g.<br />

As PSE programs for students with IDD who<br />

are still enrolled <strong>in</strong> high school are a relatively<br />

new concept, published reports have largely<br />

consisted of program descriptions, although<br />

one study exam<strong>in</strong>ed the perspectives of multiple<br />

stakeholders on the <strong>in</strong>clusion of a transition-age<br />

student with IDD <strong>in</strong> a university<br />

course (Casale-Giannola & Kamens, 2006)<br />

<strong>and</strong> one study attempted to document the<br />

effectiveness of PSE programs for improv<strong>in</strong>g<br />

the postschool outcomes of youth with IDD<br />

through quantitative analysis (Zafft, Hart, &<br />

Zimbrich, 2004). To date, only three studies<br />

have conducted surveys across PSE programs<br />

with the purpose of document<strong>in</strong>g the characteristics<br />

of programs <strong>and</strong> the activities <strong>in</strong><br />

which students are <strong>in</strong>volved. Grigal et al.<br />

(2001) <strong>in</strong>terviewed teachers <strong>in</strong> 13 PSE programs<br />

for students with IDD <strong>in</strong> Maryl<strong>and</strong>. This<br />

study provided an overview of student characteristics<br />

as well as program locations, staff<strong>in</strong>g,<br />

fund<strong>in</strong>g, referral <strong>and</strong> admission practices, <strong>and</strong><br />

program components <strong>in</strong> programs <strong>in</strong> this<br />

state. Build<strong>in</strong>g on this <strong>in</strong>itial study, Neubert,<br />

Moon, <strong>and</strong> Grigal (2004) surveyed 11 of these<br />

same PSE programs <strong>in</strong> Maryl<strong>and</strong> to identify<br />

the types of activities <strong>in</strong> which students participate.<br />

In this survey, participation <strong>in</strong> employment<br />

tra<strong>in</strong><strong>in</strong>g was found to be occurr<strong>in</strong>g for<br />

almost all students <strong>in</strong> these programs, but op-<br />

Postsecondary <strong>Education</strong> Survey / 79


portunities for participation <strong>in</strong> college classes<br />

were limited. Approximately one third of students<br />

were reported to have enrolled <strong>in</strong> a<br />

college class but only 2% of all students <strong>in</strong><br />

programs <strong>in</strong> the sample had taken a college<br />

class for credit. Other students had taken noncredit<br />

classes or audited college classes. The<br />

majority of classes that students with IDD had<br />

participated <strong>in</strong> were health <strong>and</strong> fitness classes,<br />

although some students had also participated<br />

<strong>in</strong> comput<strong>in</strong>g or remedial read<strong>in</strong>g <strong>and</strong> math<br />

classes. In another study, Hart et al. (2004)<br />

provided a national perspective on the characteristics<br />

of programs based on college campuses<br />

through a survey of 25 programs <strong>and</strong> a<br />

detailed description of six programs. Characteristics<br />

<strong>in</strong>clud<strong>in</strong>g length of time <strong>in</strong> operation<br />

<strong>and</strong> program enrollment were described for<br />

each type of model (<strong>in</strong>dividualized, mixed,<br />

separate), <strong>and</strong> other characteristics <strong>in</strong>clud<strong>in</strong>g<br />

types of disability served, use of school district<br />

funds, <strong>and</strong> barriers to postsecondary education<br />

were described across the sample. The<br />

f<strong>in</strong>d<strong>in</strong>gs of this survey suggested that students<br />

with a wide range of disabilities may be served<br />

<strong>in</strong> PSE programs <strong>and</strong> that differences may<br />

exist <strong>in</strong> length of time <strong>in</strong> operation <strong>and</strong> program<br />

enrollment between <strong>in</strong>dividualized,<br />

mixed, <strong>and</strong> separate model programs.<br />

As research on PSE programs is still evolv<strong>in</strong>g,<br />

descriptive studies are needed to address<br />

two critical gaps <strong>in</strong> our knowledge. First, as<br />

most reports have been program descriptions<br />

<strong>and</strong> surveys that were limited either geographically<br />

(Grigal et al., 2001; Neubert et al., 2004)<br />

or by small sample size (Hart et al., 2004)<br />

there rema<strong>in</strong>s a paucity of <strong>in</strong>formation on the<br />

general characteristics of PSE programs from<br />

a national perspective. As these types of programs<br />

have developed <strong>in</strong> isolation through<br />

the efforts of family members <strong>and</strong> practitioners<br />

(Hart et al.) <strong>in</strong>formation on the program<br />

enrollment, admissions criteria, responsibilities<br />

for fund<strong>in</strong>g <strong>and</strong> operation, <strong>and</strong> the purpose<br />

of PSE programs is needed. Second,<br />

more <strong>in</strong>formation is needed on the extent to<br />

which students with IDD are participat<strong>in</strong>g <strong>in</strong><br />

college classes. Although Neubert et al. found<br />

that approximately one third of students with<br />

IDD <strong>in</strong> PSE programs <strong>in</strong> Maryl<strong>and</strong> were participat<strong>in</strong>g<br />

<strong>in</strong> college classes, there rema<strong>in</strong>s a<br />

need to exam<strong>in</strong>e the extent to which this is<br />

occurr<strong>in</strong>g on a national level. Given the rela-<br />

tively recent philosophical shift from segregated<br />

programs to programs that provide opportunities<br />

for students with IDD to<br />

participate <strong>in</strong> <strong>in</strong>clusive college classes <strong>and</strong><br />

given claims that transition-age students with<br />

IDD are attend<strong>in</strong>g college through these programs,<br />

an exam<strong>in</strong>ation of the extent to which<br />

students with IDD are participat<strong>in</strong>g <strong>in</strong> college<br />

classes <strong>and</strong> the types of classes <strong>in</strong> which they<br />

are participat<strong>in</strong>g is needed to provide a realistic<br />

picture of the postsecondary education<br />

opportunities provided through PSE programs.<br />

The purpose of the present study was to<br />

address some of the questions that rema<strong>in</strong><br />

about the nature of PSE programs <strong>and</strong> access<br />

to college classes through a national survey of<br />

these types of programs. Two broad research<br />

questions were targeted by the survey:<br />

1. What are the overall characteristics of PSE<br />

programs that serve students with IDD<br />

who are ages 18–21 <strong>and</strong> still receiv<strong>in</strong>g<br />

special education services? Specifically,<br />

this survey focused on answer<strong>in</strong>g questions<br />

about the prevalence of each type of<br />

program model <strong>and</strong> location, responsibilities<br />

for operation <strong>and</strong> fund<strong>in</strong>g, <strong>and</strong><br />

whether programs were time-limited<br />

based on grant fund<strong>in</strong>g or were funded<br />

through susta<strong>in</strong>able sources. Additionally,<br />

the survey targeted questions about program<br />

enrollment, admissions criteria, <strong>and</strong><br />

the purpose of participat<strong>in</strong>g <strong>in</strong> a PSE program.<br />

2. To what extent are students with IDD participat<strong>in</strong>g<br />

<strong>in</strong> college classes? Specifically,<br />

this survey focused on describ<strong>in</strong>g the percentage<br />

of students <strong>in</strong> PSE programs tak<strong>in</strong>g<br />

college classes, the prevalence of each<br />

method of participation <strong>in</strong> college classes<br />

(e.g., formally enroll<strong>in</strong>g <strong>in</strong> a class for<br />

credit or audit or <strong>in</strong>formally tak<strong>in</strong>g a class<br />

by sitt<strong>in</strong>g <strong>in</strong>), <strong>and</strong> whether this differs either<br />

by students’ academic abilities or disabilities.<br />

F<strong>in</strong>ally, the survey focused on<br />

questions regard<strong>in</strong>g the types of college<br />

classes taken by students with IDD <strong>and</strong> the<br />

extent to which students with IDD are<br />

provided with modifications <strong>and</strong> accommodations<br />

to participate <strong>in</strong> college<br />

classes.<br />

Across all research questions, differences<br />

80 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


etween types of models (<strong>in</strong>dividualized,<br />

mixed, <strong>and</strong> separate) <strong>and</strong> program locations<br />

(four-year college or university <strong>and</strong> two-year<br />

or community college) were exam<strong>in</strong>ed.<br />

Method<br />

Survey Development<br />

A web survey format was chosen to <strong>in</strong>crease<br />

the ease with which participants could access<br />

the survey <strong>and</strong> to reduce the costs of conduct<strong>in</strong>g<br />

a national survey. Survey questions were<br />

developed based on the research questions<br />

<strong>and</strong> an onl<strong>in</strong>e survey was constructed <strong>in</strong> l<strong>in</strong>e<br />

with the pr<strong>in</strong>ciples for web survey design proposed<br />

by Dillman (1999) us<strong>in</strong>g the Survey<br />

Monkey website. The web survey was reviewed<br />

by two experts who had conducted previous<br />

surveys of PSE programs <strong>and</strong> revisions were<br />

made based on their feedback. The survey was<br />

then piloted with eight program coord<strong>in</strong>ators<br />

from PSE programs to ensure that the survey<br />

questions would solicit targeted <strong>in</strong>formation.<br />

The f<strong>in</strong>al survey consisted of 11 questions relat<strong>in</strong>g<br />

to general characteristics followed by 8<br />

questions relat<strong>in</strong>g to college classes. The format<br />

of responses to questions <strong>in</strong>cluded open<br />

ended responses, yes/no/don’t know responses,<br />

or selection of responses from a list<br />

either through drop down menus allow<strong>in</strong>g<br />

s<strong>in</strong>gle responses or check boxes allow<strong>in</strong>g multiple<br />

responses.<br />

Survey Implementation <strong>and</strong> Procedures<br />

The survey was submitted to coord<strong>in</strong>ators of<br />

PSE programs nationwide between August<br />

<strong>and</strong> December, 2008. A national database of<br />

PSE programs for <strong>in</strong>dividuals with IDD, Th<strong>in</strong>k<br />

College (www.th<strong>in</strong>kcollege.net), was used to<br />

locate programs for the survey. The Th<strong>in</strong>k<br />

College database was developed by the Institute<br />

for Community Inclusion at the University<br />

of Massachusetts <strong>in</strong> Boston through a<br />

grant from the U.S. Department of <strong>Education</strong>,<br />

Office of Special <strong>Education</strong> Programs <strong>and</strong> is<br />

updated regularly. This database comprised<br />

the most recent <strong>in</strong>formation on programs<br />

known to researchers who had conducted previous<br />

surveys (D. Hart, personal communication,<br />

August 26, 2008). All programs listed <strong>in</strong><br />

this database provided access to postsecondary<br />

education for <strong>in</strong>dividuals with IDD. However,<br />

it was clear from an <strong>in</strong>itial exam<strong>in</strong>ation of<br />

programs listed <strong>in</strong> the database that many of<br />

these programs were not exclusively for transition-age<br />

youth with IDD as some programs<br />

served both adults <strong>and</strong> transition-age youth<br />

with IDD <strong>and</strong> some programs served <strong>in</strong>dividuals<br />

with other disabilities as well as those with<br />

IDD. Furthermore, some programs that offered<br />

opportunities for postsecondary education<br />

were part of larger programs that may not<br />

have been located on a college campus. For<br />

these reasons, clear guidel<strong>in</strong>es for select<strong>in</strong>g<br />

programs from the database <strong>in</strong> l<strong>in</strong>e with the<br />

purpose of the survey were developed. Programs<br />

were deemed to be eligible for <strong>in</strong>clusion<br />

<strong>in</strong> the study if they (a) provided access to<br />

the campus of a postsecondary education <strong>in</strong>stitution<br />

(e.g., four-year or two-year university<br />

or college or community college), (b) served<br />

students with IDD, (c) served students who<br />

were ages 18–21 <strong>and</strong> who were still receiv<strong>in</strong>g<br />

special education services, <strong>and</strong> (d) were located<br />

<strong>in</strong> the United States. Programs were<br />

excluded if they did not provide access to a<br />

college campus, did not serve students with<br />

IDD, or served only adults who had already<br />

graduated from high school. A total of 87<br />

programs <strong>in</strong> the database were identified as<br />

eligible for <strong>in</strong>clusion.<br />

Program coord<strong>in</strong>ators who were knowledgeable<br />

about both the structure <strong>and</strong> operation<br />

of programs <strong>and</strong> the activities of <strong>in</strong>dividual<br />

students were targeted to provide<br />

<strong>in</strong>formation for the study. Coord<strong>in</strong>ators of all<br />

eligible programs were contacted via e-mail to<br />

expla<strong>in</strong> the purpose of the study, provide <strong>in</strong>structions<br />

for complet<strong>in</strong>g the survey, <strong>and</strong> provide<br />

a l<strong>in</strong>k to the survey website. Follow-up<br />

e-mails were sent three times to coord<strong>in</strong>ators<br />

who did not respond to <strong>in</strong>itial <strong>and</strong> subsequent<br />

e-mail requests. A total of 58 responses to the<br />

survey were completed. However, six survey<br />

responses were excluded from analyses because<br />

coord<strong>in</strong>ators reported that these programs<br />

either did not provide access to a college<br />

campus, did not serve students who were<br />

still receiv<strong>in</strong>g special education services (i.e.,<br />

only served adults with disabilities), or did not<br />

serve students with IDD (i.e., served only students<br />

with learn<strong>in</strong>g disabilities). After remov<strong>in</strong>g<br />

these responses, 52 program coord<strong>in</strong>ators<br />

Postsecondary <strong>Education</strong> Survey / 81


completed the survey for a response rate of<br />

64% out of 81 eligible programs.<br />

Analyses<br />

Descriptive methods were employed to analyze<br />

responses to survey questions. When calculation<br />

of mean scores was necessary, the<br />

data package SPSS was used to look for outliers<br />

<strong>in</strong> the data. Median scores were also calculated<br />

when outliers were found. Qualitative<br />

analysis was used to categorize the types of<br />

college classes reported by the program coord<strong>in</strong>ators.<br />

Results<br />

Research Question 1: Characteristics of Programs<br />

Program model type, location, operation <strong>and</strong><br />

fund<strong>in</strong>g structure, <strong>and</strong> susta<strong>in</strong>ability. General<br />

characteristics of programs are provided <strong>in</strong><br />

Table 1. The majority of programs were mixed<br />

model (n 40) with fewer programs of the<br />

<strong>in</strong>dividualized <strong>and</strong> separate model types (n <br />

6 of each type). More programs were located<br />

on two-year or community college campuses<br />

than four-year college/university campuses<br />

(57.7% vs. 42.3% of programs respectively).<br />

No difference <strong>in</strong> the type of program model<br />

by the location of the program was discernible,<br />

with approximately equal proportions of<br />

<strong>in</strong>dividualized, mixed, <strong>and</strong> separate models<br />

across two-year college <strong>and</strong> four-year college/<br />

university campuses.<br />

The majority of programs (55.8%) were operated<br />

by school districts but may also have<br />

been operated by the college (21.2%), an outside<br />

organization (17.3%), or through a collaborative<br />

partnership between the school district<br />

<strong>and</strong> the college (7.7% overall but 50% of<br />

<strong>in</strong>dividualized model programs). Almost all<br />

programs were funded by school districts<br />

(86.5%). Student tuition was the second most<br />

frequently cited fund<strong>in</strong>g source after school<br />

district funds (25%), with the exception of<br />

<strong>in</strong>dividual programs <strong>in</strong> which student tuition<br />

was not a source of fund<strong>in</strong>g. Federal grants<br />

were relatively rare across the sample (13.5%).<br />

Other fund<strong>in</strong>g sources <strong>in</strong>clud<strong>in</strong>g vocational<br />

rehabilitation or Medicaid funds, other grants<br />

(e.g., National Down Syndrome Society<br />

grant), <strong>and</strong> fundrais<strong>in</strong>g were used by 13.5% of<br />

programs. To assess whether programs were<br />

susta<strong>in</strong>able based on the present fund<strong>in</strong>g<br />

structure, program respondents were asked if<br />

programs were time-limited based on grant<br />

fund<strong>in</strong>g or if the program was anticipated to<br />

cont<strong>in</strong>ue given the present fund<strong>in</strong>g structure.<br />

Almost all program respondents <strong>in</strong>dicated<br />

that their programs were susta<strong>in</strong>able given the<br />

present fund<strong>in</strong>g structure: only two programs<br />

<strong>in</strong> this sample were time-limited based on<br />

fund<strong>in</strong>g.<br />

Program enrollment. Program respondents<br />

were asked to provide the number of students<br />

enrolled <strong>in</strong> their program who spent time on<br />

a college campus (some programs <strong>in</strong>cluded<br />

students who did not participate on campus).<br />

The average number of students enrolled <strong>in</strong><br />

PSE programs overall is shown <strong>in</strong> Table 1. As<br />

these numbers varied greatly, both means <strong>and</strong><br />

medians are reported as well as the range <strong>in</strong><br />

responses. Across all programs, median program<br />

enrollment was only 12 students, although<br />

a h<strong>and</strong>ful of programs with much<br />

larger enrollment resulted <strong>in</strong> a higher average<br />

number of students enrolled (M 24.9).<br />

Greater numbers of students were enrolled on<br />

average by separate model (M 24, Mdn <br />

20) <strong>and</strong> mixed model (M 26.9, Mdn 12)<br />

programs than <strong>in</strong>dividualized model (M <br />

13.4, Mdn 7) programs.<br />

Admission <strong>in</strong>to PSE programs. The criteria<br />

used by PSE programs for admitt<strong>in</strong>g students<br />

with disabilities are shown <strong>in</strong> Table 2. Program<br />

respondents were asked to <strong>in</strong>dicate the<br />

admissions criteria they used as well as any<br />

criteria that were used to exclude students<br />

from their programs. Overall, the ma<strong>in</strong> criteria<br />

for admission were that the student must<br />

be over a specified age (87% of programs),<br />

have <strong>in</strong>dicated a desire to be on a college<br />

campus (52%), <strong>and</strong> be <strong>in</strong> a particular school<br />

district (46%). Mixed <strong>and</strong> separate model programs<br />

also considered other criteria such as<br />

completion of a specified number of years of<br />

high school (38% of mixed model <strong>and</strong> 67% of<br />

separate model programs) or prerequisite experiences<br />

(18% <strong>and</strong> 50%), demonstration of<br />

prerequisite skills (38% <strong>and</strong> 33%), <strong>and</strong> the<br />

student’s ability to navigate to <strong>and</strong> around<br />

campus (35% <strong>and</strong> 33%; <strong>and</strong> 33% <strong>and</strong> 17%<br />

respectively). The majority of mixed <strong>and</strong> separate<br />

programs excluded students who exhibit<br />

challeng<strong>in</strong>g behavior (60% <strong>and</strong> 67% respec-<br />

82 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


TABLE 1<br />

Characteristics of Programs<br />

Characteristic Overall Individualized Mixed Separate<br />

Number of programs <strong>in</strong> survey 52 6 40 6<br />

Location of program:<br />

2-year college 30 (57.7%) 3 (50%) 24 (60%) 3 (50%)<br />

4-year college/university 22 (42.3%) 3 (50%) 16 (40%) 3 (50%)<br />

Operated by:<br />

School district 29 (55.8%) 2 (33.3%) 24 (60%) 3 (50%)<br />

College 11 (21.2%) 1 (16.7%) 10 (25%) 0<br />

Other 9 (17.3%) 0 7 (17.5%) 2 (33%)<br />

Collaboration: school <strong>and</strong> college 4 (7.7%) 3 (50%) 0 1 (16.7%)<br />

Funded by:<br />

School district funds 45 (86.5%) 5 (83.3%) 35 (87.5%) 5 (83.3%)<br />

Student tuition 13 (25%) 0 12 (30%) 1 (16.7%)<br />

Federal grant 7 (13.5%) 2 (33.3%) 4 (10%) 1 (16.7%)<br />

Other fund<strong>in</strong>g source 7 (13.5%) 0 6 (15%) 1 (16.7%)<br />

Private donation 5 (9.6%) 1 (16.7%) 3 (7.5%) 1 (16.7%)<br />

Don’t know 1 (1.9%) 0 0 1 (16.7%)<br />

Given the present fund<strong>in</strong>g structure:<br />

Program will cont<strong>in</strong>ue 49 (94.2%) 5 (83.3%) 38 (95%) 6 (100%)<br />

Program is time limited 2 (3.8%) 1 (16.7%) 1 (2.5%) 0<br />

Don’t know 1 (1.9%) 0 1 (2.5%) 0<br />

Average number of students enrolled:<br />

M 24.9 13.4 26.9 24<br />

Mdn 12 7 12 20<br />

(range) (1–160) (4–25) (1–160) (17–35)<br />

Note. Percentages for operation <strong>and</strong> fund<strong>in</strong>g do not total 100 as program respondents could choose more<br />

than one response.<br />

tively) <strong>and</strong> at least a third of these programs<br />

also excluded students who lack safety skills<br />

(33% <strong>and</strong> 50%). No <strong>in</strong>dividualized programs<br />

reported exclud<strong>in</strong>g students on the basis of<br />

challeng<strong>in</strong>g behavior or a lack of safety skills.<br />

A higher proportion of <strong>in</strong>dividualized programs<br />

than mixed or separate programs stated<br />

that they have no criteria for exclud<strong>in</strong>g students<br />

(67% vs. 28% <strong>and</strong> 17% respectively).<br />

Purpose of PSE programs. Program respondents<br />

were asked to select all purposes of their<br />

programs from a list of four specified options.<br />

The most frequently stated purpose of be<strong>in</strong>g<br />

on a college campus was for employment or<br />

opportunities for vocational tra<strong>in</strong><strong>in</strong>g (90% of<br />

all programs). Follow<strong>in</strong>g this, <strong>in</strong>clusion with<br />

same age peers (75%) <strong>and</strong> development of<br />

<strong>in</strong>dependent liv<strong>in</strong>g skills (75%) were the next<br />

most frequently stated purposes of be<strong>in</strong>g on a<br />

college campus. Postsecondary education was<br />

listed as a purpose of be<strong>in</strong>g on a college campus<br />

by 100% of <strong>in</strong>dividualized programs <strong>and</strong><br />

67.5% of mixed model programs. No differences<br />

<strong>in</strong> the purpose of be<strong>in</strong>g on a college<br />

campus were perceived between programs located<br />

at two-year college <strong>and</strong> four-year college/university<br />

campuses.<br />

Research Question 2: Participation <strong>in</strong><br />

College Classes<br />

Percentage of students with IDD tak<strong>in</strong>g college<br />

classes. Program respondents were asked to<br />

provide the number of students who were par-<br />

Postsecondary <strong>Education</strong> Survey / 83


TABLE 2<br />

Admissions <strong>and</strong> Exclusion Criteria<br />

Criterion Overall Individualized Mixed Separate<br />

Admission criteria<br />

Age of student 45 (87%) 5 (83%) 36 (90%) 4 (67%)<br />

Student <strong>in</strong>dicated desire to be on campus 27 (52%) 5 (83%) 20 (50%) 2 (33%)<br />

Student must be <strong>in</strong> particular school district 24 (46%) 5 (83%) 16 (40%) 3 (50%)<br />

Completed number of years of high school 20 (38%) 1 (17%) 15 (38%) 4 (67%)<br />

Demonstrate prerequisite skills 18 (35%) 1 (17%) 15 (38%) 2 (33%)<br />

Travel to campus <strong>in</strong>dependently 16 (31%) 0 14 (35%) 2 (33%)<br />

Navigate around campus <strong>in</strong>dependently 16 (31%) 0 15 (38%) 1 (17%)<br />

Completion of prerequisite experiences 11 (21%) 1 (17%) 7 (18%) 3 (50%)<br />

We do not have admission criteria 2 (4%) 0 2 (5%) 0<br />

Other 11 (21%) 3 (50%) 6 (15%) 2 (33%)<br />

Don’t know 1 (2%) 0 0 1 (17%)<br />

Exclusion criteria<br />

Student exhibits challeng<strong>in</strong>g behavior 27 (52%) 0 24 (60%) 4 (67%)<br />

Student lacks safety skills 15 (29%) 0 13 (33%) 3 (50%)<br />

We do not have exclusionary criteria 15 (29%) 4 (67%) 11 (28%) 1 (17%)<br />

Student is unmotivated 14 (27%) 2 (33%) 11 (28%) 3 (50%)<br />

Other 5 (10%) 0 5 (13%) 0<br />

Don’t know 1 (2%) 0 1 (3%) 0<br />

Note. Percentages do not total 100 as program respondents could choose more than one response.<br />

ticipat<strong>in</strong>g <strong>in</strong> college classes. The percentage of<br />

students tak<strong>in</strong>g college classes was calculated<br />

by divid<strong>in</strong>g the total number of students reported<br />

to be tak<strong>in</strong>g college classes by the total<br />

number of students enrolled <strong>in</strong> all 52 PSE<br />

programs <strong>and</strong> multiply<strong>in</strong>g by 100. This percentage<br />

was then calculated by type of model<br />

<strong>and</strong> location of program. Approximately one<br />

quarter (23.7%) of all students enrolled <strong>in</strong><br />

PSE programs were tak<strong>in</strong>g college classes. The<br />

percentage of students <strong>in</strong> PSE programs who<br />

were participat<strong>in</strong>g <strong>in</strong> college classes was<br />

higher <strong>in</strong> <strong>in</strong>dividualized programs compared<br />

to mixed model programs (97.2% vs. 21%)<br />

but little difference <strong>in</strong> the percentage of students<br />

participat<strong>in</strong>g <strong>in</strong> college classes was perceived<br />

between programs located at two-year<br />

or community college campuses compared to<br />

four-year college/university campuses (19.9%<br />

vs. 21.8%). (Note that, by def<strong>in</strong>ition, separate<br />

model programs do not offer access to <strong>in</strong>clusive<br />

college activities <strong>in</strong>clud<strong>in</strong>g college<br />

classes). Interest<strong>in</strong>gly, 100% of <strong>in</strong>dividualized<br />

model <strong>and</strong> 85% (n 34) of mixed model<br />

programs, reported that at least one student<br />

was tak<strong>in</strong>g a college class.<br />

Prevalence of each method of class participation.<br />

For each student enrolled <strong>in</strong> a PSE program<br />

who took a college class <strong>in</strong> the 2007-8 school<br />

year, program respondents were asked to provide<br />

(a) a rat<strong>in</strong>g of the student’s academic<br />

ability, (b) the primary disability classification<br />

of the student, <strong>and</strong> (c) the method <strong>in</strong> which<br />

the student was participat<strong>in</strong>g <strong>in</strong> each college<br />

class. To ascerta<strong>in</strong> an underst<strong>and</strong><strong>in</strong>g of the<br />

academic abilities of students with disabilities<br />

participat<strong>in</strong>g <strong>in</strong> college classes, program respondents<br />

were also asked to rate the academic<br />

ability of each student tak<strong>in</strong>g a college<br />

<strong>in</strong> their program us<strong>in</strong>g the follow<strong>in</strong>g scale:<br />

● Advanced: Read<strong>in</strong>g, writ<strong>in</strong>g, or math ability<br />

is sufficient for the student to be able to take<br />

college level academic classes with no accommodations.<br />

● Sufficient: Read<strong>in</strong>g, writ<strong>in</strong>g, or math ability<br />

is sufficient for the student to be able to take<br />

academic classes with necessary accommodations.<br />

● Limited: Read<strong>in</strong>g, writ<strong>in</strong>g, or math ability is<br />

at the K-3rd grade level, student has limited<br />

84 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Figure 1. Methods of Participat<strong>in</strong>g <strong>in</strong> Classes by Students at each Academic Ability Level across Programs.<br />

or emerg<strong>in</strong>g academic skills or has only<br />

functional use of these skills.<br />

● No academic skills: Student has no read<strong>in</strong>g,<br />

writ<strong>in</strong>g, or math skills.<br />

Program respondents were asked to select<br />

one academic ability level for each student<br />

from a drop down list of these four options.<br />

However, as a previous survey by Hart et al.<br />

(2004) found that some PSE programs report<br />

serv<strong>in</strong>g students with learn<strong>in</strong>g disabilities or<br />

mental health disabilities, it was possible that<br />

analyses of the method by which students with<br />

IDD were participat<strong>in</strong>g <strong>in</strong> college classes<br />

could be skewed by the <strong>in</strong>clusion of students<br />

who would not typically be considered as hav<strong>in</strong>g<br />

IDD. For this reason the disability classification<br />

of each student was requested even<br />

though programs had to serve students with<br />

IDD to be <strong>in</strong>cluded <strong>in</strong> the survey <strong>and</strong> program<br />

respondents were asked throughout to consider<br />

only students with IDD when respond<strong>in</strong>g.<br />

For each student, program respondents<br />

then selected the method (or methods if more<br />

than one was applicable) by which the student<br />

was tak<strong>in</strong>g classes from a list of specified options:<br />

matriculated <strong>in</strong>to a degree program,<br />

tak<strong>in</strong>g a college class for credit, audit<strong>in</strong>g a<br />

college class, <strong>in</strong>formally tak<strong>in</strong>g a college class<br />

by sitt<strong>in</strong>g <strong>in</strong> a class without be<strong>in</strong>g enrolled<br />

through the college, or tak<strong>in</strong>g a noncredit/<br />

cont<strong>in</strong>u<strong>in</strong>g/adult education class either formally<br />

or <strong>in</strong>formally. The methods of participat<strong>in</strong>g<br />

<strong>in</strong> college classes were then analyzed to<br />

determ<strong>in</strong>e if there were differences by academic<br />

ability rat<strong>in</strong>g, disability, or program location.<br />

The number of students rated at each academic<br />

ability level participat<strong>in</strong>g <strong>in</strong> college<br />

classes by each method was totaled across all<br />

survey responses <strong>and</strong> results are presented <strong>in</strong><br />

Figure 1. Overall, this figure shows that more<br />

students were tak<strong>in</strong>g college classes for credit<br />

(n 97) than audit<strong>in</strong>g classes (n 71), tak<strong>in</strong>g<br />

classes <strong>in</strong>formally (n 89), or tak<strong>in</strong>g noncredit<br />

classes (n 25). More students rated<br />

with advanced or sufficient academic skills<br />

Postsecondary <strong>Education</strong> Survey / 85


TABLE 3<br />

Methods of Participat<strong>in</strong>g <strong>in</strong> College Classes by Students with each Type of Disability across Programs<br />

Disability Matriculated Credit Audit Informally Noncredit<br />

Learn<strong>in</strong>g disability 0 39 8 1 6<br />

Mild mental retardation 0 16 29 24 4<br />

Moderate mental retardation 0 7 4 31 4<br />

Severe mental retardation 0 0 0 0 2<br />

<strong>Autism</strong> 0 9 11 18 6<br />

Asperger’s Syndrome 0 12 3 1 0<br />

Traumatic bra<strong>in</strong> <strong>in</strong>jury 0 3 3 1 1<br />

Other health impairment 0 3 4 0 2<br />

Emotional/behavioral disorder 0 6 2 3 0<br />

Other 0 2 7 6 0<br />

were reported to be tak<strong>in</strong>g college classes either<br />

for credit or audit than tak<strong>in</strong>g college<br />

classes <strong>in</strong>formally, whereas more students with<br />

limited academic skills were reported to be<br />

tak<strong>in</strong>g college classes <strong>in</strong>formally than enrolled<br />

<strong>in</strong> classes for credit or audit.<br />

The methods of participat<strong>in</strong>g <strong>in</strong> college<br />

classes by students with each type of disability<br />

are shown <strong>in</strong> Table 3. The number of students<br />

with each disability tak<strong>in</strong>g each type of class<br />

was totaled across all survey responses. For<br />

example, across all responses, 39 students<br />

listed as hav<strong>in</strong>g a learn<strong>in</strong>g disability (LD) were<br />

tak<strong>in</strong>g a college class for credit. Note that<br />

students could be participat<strong>in</strong>g <strong>in</strong> classes by<br />

more than one method so these numbers cannot<br />

be totaled across columns to give the total<br />

number of students with each type of disability.<br />

Of students who were tak<strong>in</strong>g college<br />

classes for credit, the majority were classified<br />

as hav<strong>in</strong>g LD (n 39) but only a small number<br />

of students were classified as hav<strong>in</strong>g IDD<br />

such as mild mental retardation (n 16),<br />

moderate mental retardation (n 7), autism<br />

(n 9), <strong>and</strong> Asperger’s (n 12). However,<br />

the majority of students audit<strong>in</strong>g classes were<br />

students with mild mental retardation (n <br />

29) <strong>and</strong> the majority of students listed as <strong>in</strong>formally<br />

tak<strong>in</strong>g college classes were those with<br />

mild or moderate mental retardation or autism<br />

(n 24, 31, <strong>and</strong> 18 respectively). Few<br />

students with severe mental retardation were<br />

listed as tak<strong>in</strong>g college classes (n 2 for noncredit/<br />

cont<strong>in</strong>u<strong>in</strong>g/ adult education classes).<br />

No students with IDD were listed as be<strong>in</strong>g<br />

matriculated <strong>in</strong>to a college degree program.<br />

Further analysis of the methods of participat<strong>in</strong>g<br />

<strong>in</strong> college classes by location of programs<br />

suggested that more programs located<br />

at community colleges (n 11) reported that<br />

students were tak<strong>in</strong>g college classes for credit<br />

than that students were audit<strong>in</strong>g classes (n <br />

7), tak<strong>in</strong>g classes <strong>in</strong>formally (n 3), or tak<strong>in</strong>g<br />

noncredit classes (n 7). However, more programs<br />

located at four-year college/university<br />

campuses reported that students were tak<strong>in</strong>g<br />

classes <strong>in</strong>formally (n 9) than tak<strong>in</strong>g college<br />

classes for credit (n 3), audit<strong>in</strong>g classes (n <br />

5) or tak<strong>in</strong>g noncredit classes (n 3).<br />

Types of college classes. Program respondents<br />

were asked to provide examples of the<br />

types of classes that students take for each<br />

method of participat<strong>in</strong>g <strong>in</strong> college classes.<br />

Content analysis was then conducted to cluster<br />

examples of similar courses <strong>in</strong>to common<br />

categories to obta<strong>in</strong> counts of the relative frequencies<br />

of each type of class. This analysis<br />

suggested that the types of classes fell <strong>in</strong>to<br />

seven categories as shown <strong>in</strong> Table 4. The<br />

types of classes <strong>in</strong> which students with IDD<br />

were reported to be participat<strong>in</strong>g varied<br />

greatly, from nonacademic classes such as<br />

health <strong>and</strong> fitness, arts, <strong>and</strong> leisure classes, to<br />

pre-college level <strong>and</strong> college-level academic<br />

classes, <strong>and</strong> vocational classes designed to prepare<br />

students for a specific career. The number<br />

of examples provided by program respondents<br />

<strong>in</strong> each category was then counted to<br />

look for differences <strong>in</strong> the method of participat<strong>in</strong>g<br />

<strong>in</strong> college classes across categories. Results<br />

are shown <strong>in</strong> Table 5. Two patterns were<br />

suggested through this analysis. First, classes<br />

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TABLE 4<br />

Categories of Classes taken by Students<br />

Category Def<strong>in</strong>ition Examples Primary method<br />

Vocational Preparation for a specific trade,<br />

occupation, or vocation<br />

Remedial <strong>and</strong> college<br />

preparation<br />

Preparation for college through<br />

acquisition of basic skills/<br />

knowledge<br />

Comput<strong>in</strong>g Instruction <strong>in</strong> general/ specific<br />

computer skills<br />

Health <strong>and</strong> fitness Instruction <strong>in</strong> sport skills/<br />

opportunities for exercise<br />

Arts Instruction <strong>in</strong> arts (drama,<br />

music, <strong>and</strong> visual arts)<br />

Academic Instruction <strong>in</strong> specific subject<br />

areas<br />

Leisure/home Instruction <strong>in</strong> skills for use <strong>in</strong><br />

the home/ for leisure<br />

reported as be<strong>in</strong>g taken for credit largely consisted<br />

of vocational <strong>and</strong> remedial classes,<br />

whereas classes reported as be<strong>in</strong>g taken <strong>in</strong>formally<br />

or audited largely consisted of academic,<br />

health <strong>and</strong> fitness, <strong>and</strong> arts classes. Few<br />

examples of classes fell <strong>in</strong>to the leisure/home<br />

category. Second, the majority of examples of<br />

classes taken for credit were provided by coord<strong>in</strong>ators<br />

of programs located at two-year or<br />

community colleges, whereas the majority of<br />

examples of classes taken <strong>in</strong>formally were provided<br />

by coord<strong>in</strong>ators of programs located at<br />

four-year college/university campuses. Examples<br />

of classes that were audited were listed<br />

approximately equally by coord<strong>in</strong>ators of programs<br />

located at two-year college <strong>and</strong> fouryear<br />

college/university campuses. No patterns<br />

were detected <strong>in</strong> the examples of noncredit/<br />

cont<strong>in</strong>u<strong>in</strong>g/adult education classes.<br />

Modifications <strong>and</strong> accommodations. To assess<br />

to what extent college classes are the same<br />

Automotive Credit<br />

Child care<br />

Basic read<strong>in</strong>g<br />

Basic math<br />

Introduction to computers<br />

Keyboard<strong>in</strong>g<br />

Credit<br />

Credit<br />

Swimm<strong>in</strong>g Audit/Informally<br />

Dance<br />

Act<strong>in</strong>g Audit/Informally<br />

Draw<strong>in</strong>g<br />

Early childhood education Audit/Informally<br />

History<br />

Cook<strong>in</strong>g NA<br />

Bak<strong>in</strong>g<br />

for students with IDD as for all college students,<br />

program coord<strong>in</strong>ators were asked<br />

about modifications <strong>and</strong> accommodations<br />

that are typically made for students with IDD<br />

tak<strong>in</strong>g college classes. Accommodations that<br />

aid students to access the curriculum of a class<br />

or demonstrate mastery of content but that do<br />

not fundamentally alter what is to be learned<br />

or assessed are permissible under the Americans<br />

with <strong>Disabilities</strong> Act (ADA) of 1990 for<br />

students tak<strong>in</strong>g postsecondary education<br />

classes. Modifications that change the requirements<br />

for participation <strong>in</strong> postsecondary education<br />

classes are not permissible under ADA<br />

for classes that are taken for credit. It was<br />

therefore hypothesized that for college classes<br />

taken by students with IDD to <strong>in</strong>clude the<br />

same level of content <strong>and</strong> assessment as for all<br />

college students, these classes would need to<br />

be offered with accommodations only <strong>and</strong><br />

without modifications. Modifications were de-<br />

Postsecondary <strong>Education</strong> Survey / 87


TABLE 5<br />

Number of Examples of Classes <strong>in</strong> each Category <strong>and</strong> <strong>in</strong> each Program Location by Method of<br />

Participation<br />

f<strong>in</strong>ed as changes to the curriculum or requirements<br />

for participation <strong>in</strong> a college class <strong>and</strong><br />

accommodations were def<strong>in</strong>ed as alterations<br />

of environment, curriculum format, or equipment<br />

that allow students to ga<strong>in</strong> access to<br />

content <strong>and</strong> complete assigned tasks but that<br />

do not fundamentally alter what is to be<br />

learned or assessed. Program respondents<br />

were first asked if modifications or accommodations<br />

were provided to students <strong>in</strong> their program<br />

<strong>and</strong> then asked to <strong>in</strong>dicate which spe-<br />

Credit Audit Informally Noncredit<br />

Category of class<br />

Vocational 21 7 4 11<br />

Remedial <strong>and</strong> college preparation 20 6 3 2<br />

Comput<strong>in</strong>g 10 4 2 9<br />

Health <strong>and</strong> fitness 10 9 19 2<br />

Arts 6 7 17 3<br />

Academic 13 28 28 1<br />

Leisure/home 2 0 1 1<br />

Location of program<br />

2-year or community college 71 34 4 21<br />

4-year college/university 11 27 70 8<br />

TABLE 6<br />

cific modifications or accommodations were<br />

made from a list of options. About half of all<br />

programs (52.5%) reported mak<strong>in</strong>g modifications<br />

to college classes. Very few programs<br />

reported that modifications were made to<br />

classes taken for credit; more programs reported<br />

mak<strong>in</strong>g modifications to classes that<br />

were either taken <strong>in</strong>formally or audited (see<br />

Table 6). The most common modifications to<br />

classes that were audited or taken <strong>in</strong>formally<br />

were modifications to assignments. Many<br />

Number of Programs Report<strong>in</strong>g each Type of Modification or Accommodation for each Method of<br />

Participation<br />

Credit Audit or <strong>in</strong>formally Noncredit<br />

Modifications<br />

Modifications to curriculum 1 11 2<br />

Modifications to assignments 3 13 4<br />

Reduced number of assignments 1 10 1<br />

Assignments not required 0 7 1<br />

Accommodations<br />

Accommodations available to all 14 16 9<br />

Accommodations made by <strong>in</strong>structor 7 14 8<br />

Accommodations made by PSE program 6 18 8<br />

Changes to <strong>in</strong>structional delivery 2 6 5<br />

Changes to assessment format 4 12 3<br />

Support by program teacher/ aide 6 16 6<br />

Support provided by peer mentor 7 12 3<br />

Other 1 1 0<br />

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more programs reported mak<strong>in</strong>g accommodations<br />

than modifications, with only one program<br />

report<strong>in</strong>g that accommodations were<br />

not made. The most frequently stated accommodation<br />

for credit classes was the use of<br />

accommodations that are available to all students<br />

by law (n 14). A greater number of<br />

programs reported that accommodations<br />

were made by their program for college<br />

classes that were audited or taken <strong>in</strong>formally<br />

than for credit classes <strong>and</strong> noncredit classes<br />

(n 18 vs. 6 <strong>and</strong> 8 respectively). The least<br />

frequently cited accommodation across all<br />

types of college classes was chang<strong>in</strong>g <strong>in</strong>structional<br />

delivery.<br />

Discussion<br />

The results of this survey provide important<br />

<strong>in</strong>formation on the extent to which students<br />

with IDD are <strong>in</strong>volved <strong>in</strong> PSE programs on<br />

college campuses <strong>and</strong> provided with the opportunity<br />

to participate <strong>in</strong> college classes. Sixtyfour<br />

percent of the 81 PSE programs that met<br />

the study’s <strong>in</strong>clusion criteria responded to the<br />

survey, result<strong>in</strong>g <strong>in</strong> the highest number of<br />

programs surveyed over previous studies. A<br />

number of important f<strong>in</strong>d<strong>in</strong>gs <strong>in</strong> regard to the<br />

characteristics of programs <strong>and</strong> participation<br />

of students with IDD <strong>in</strong> college classes are<br />

apparent.<br />

General Characteristics<br />

Several characteristics of these programs are<br />

of <strong>in</strong>terest. The majority of programs were<br />

operated <strong>and</strong> funded by school districts, yet<br />

many other approaches to operation <strong>and</strong><br />

fund<strong>in</strong>g were reported, <strong>in</strong>dicat<strong>in</strong>g that there<br />

is no s<strong>in</strong>gle approach to the organization of<br />

these programs. Although many programs<br />

may have been <strong>in</strong>itiated through federal or<br />

state grants, susta<strong>in</strong>able sources of fund<strong>in</strong>g<br />

have developed with almost all programs now<br />

<strong>in</strong>dicat<strong>in</strong>g that they are not time limited based<br />

on grant fund<strong>in</strong>g. The average number of<br />

students enrolled <strong>in</strong> PSE programs varied<br />

widely across programs, although <strong>in</strong>dividualized<br />

model programs had smaller enrollment<br />

than mixed <strong>and</strong> separate model programs.<br />

The relatively low enrollment sizes across all<br />

types of programs (Mdn 12) suggest that<br />

PSE programs may not be an option for all<br />

students with IDD <strong>in</strong> a particular school district<br />

but may be reserved for particular types<br />

of students. Taken together, these f<strong>in</strong>d<strong>in</strong>gs<br />

<strong>in</strong>dicate that although the majority of programs<br />

are funded <strong>and</strong> operated by school districts,<br />

use a mixed model approach, <strong>and</strong> enroll<br />

a small number of students, there are<br />

some programs that do not fit this description.<br />

In regards to admissions criteria for PSE<br />

programs, the most frequently stated criterion<br />

for admission was the age of the student, <strong>in</strong>dicat<strong>in</strong>g<br />

that these programs may be reserved<br />

for students ages 18–21 <strong>in</strong> l<strong>in</strong>e with age-appropriate<br />

<strong>in</strong>clusion. In addition to meet<strong>in</strong>g age<br />

criterion, additional criteria that are considered<br />

are that the student has <strong>in</strong>dicated a desire<br />

to be on campus, suggest<strong>in</strong>g that students<br />

must be motivated to participate <strong>in</strong> a collegebased<br />

experience, <strong>and</strong> that the student must<br />

be from a particular school district. Mixed <strong>and</strong><br />

separate model programs also consider other<br />

admissions criteria <strong>and</strong> many exclude students<br />

who exhibit challeng<strong>in</strong>g behavior or who lack<br />

safety skills or the ability to travel to <strong>and</strong><br />

around campus <strong>in</strong>dependently. These factors<br />

are not considered by <strong>in</strong>dividualized programs,<br />

suggest<strong>in</strong>g that <strong>in</strong>dividualized programs<br />

can be more flexible <strong>in</strong> whom they<br />

choose to support. Indeed, one coord<strong>in</strong>ator of<br />

an <strong>in</strong>dividualized model program expla<strong>in</strong>ed<br />

that the student’s motivation to participate <strong>in</strong><br />

postsecondary education was of greater importance<br />

<strong>and</strong> stated, “We have not excluded<br />

students with challeng<strong>in</strong>g behavior if this<br />

other criteria of <strong>in</strong>tellectual curiosity is satisfied.”<br />

Taken together, these f<strong>in</strong>d<strong>in</strong>gs suggest<br />

that the majority of programs admit only<br />

those students who are motivated to be on a<br />

college campus <strong>and</strong> do not admit students<br />

who may present a higher level of need for<br />

support with appropriate behavior, safety, or<br />

mobility skills, but that there are certa<strong>in</strong> programs,<br />

particularly <strong>in</strong>dividualized model programs,<br />

that may be will<strong>in</strong>g or able to provide<br />

this level of support. Furthermore, as school<br />

districts are responsible for fund<strong>in</strong>g <strong>and</strong> operat<strong>in</strong>g<br />

the majority of PSE programs, it is important<br />

to note that opportunities for students<br />

with IDD to participate <strong>in</strong> PSE programs may<br />

be limited to those students who are enrolled<br />

<strong>in</strong> school districts that fund <strong>and</strong> operate PSE<br />

programs <strong>and</strong> not open to all students as a<br />

college would be.<br />

Postsecondary <strong>Education</strong> Survey / 89


A greater level of consensus was found <strong>in</strong><br />

the purpose of be<strong>in</strong>g on a college campus.<br />

Almost all program coord<strong>in</strong>ators responded<br />

that the purpose of students be<strong>in</strong>g on a college<br />

campus was for opportunities for employment<br />

or vocational tra<strong>in</strong><strong>in</strong>g <strong>and</strong> three-quarters<br />

cited additional purposes of <strong>in</strong>clusion<br />

with same-age peers <strong>and</strong> opportunities for development<br />

of <strong>in</strong>dependent liv<strong>in</strong>g skills. Interest<strong>in</strong>gly,<br />

participation <strong>in</strong> college classes was<br />

cited less frequently than all three of these<br />

purposes with the exception of <strong>in</strong>dividualized<br />

model programs <strong>in</strong> which postsecondary education<br />

was unanimously stated as a purpose of<br />

be<strong>in</strong>g on a college campus. This f<strong>in</strong>d<strong>in</strong>g suggests<br />

that we could perhaps refer more accurately<br />

to programs based on college campuses<br />

as employment programs based <strong>in</strong> age-appropriate<br />

sett<strong>in</strong>gs rather than as postsecondary education<br />

programs.<br />

Participation <strong>in</strong> College Classes<br />

A number of approaches were taken to exam<strong>in</strong>e<br />

the extent to which students with IDD<br />

participate <strong>in</strong> college classes. Although a high<br />

percentage of programs reported that at least<br />

one student was tak<strong>in</strong>g a college class, only<br />

about one quarter of all students <strong>in</strong> PSE programs<br />

were participat<strong>in</strong>g <strong>in</strong> college classes.<br />

Differences were perceived <strong>in</strong> the percentage<br />

of students <strong>in</strong> mixed model programs compared<br />

to <strong>in</strong>dividualized model programs who<br />

were provided with this opportunity. Students<br />

<strong>in</strong> mixed model programs were much less<br />

likely than students <strong>in</strong> <strong>in</strong>dividualized model<br />

programs to be participat<strong>in</strong>g <strong>in</strong> college<br />

classes. No differences were perceived between<br />

two-year or community colleges <strong>and</strong><br />

four-year colleges/universities <strong>in</strong> the percentage<br />

of students participat<strong>in</strong>g <strong>in</strong> classes.<br />

Further exam<strong>in</strong>ation of the participation <strong>in</strong><br />

college classes by students of vary<strong>in</strong>g academic<br />

ability levels <strong>and</strong> disabilities also revealed differences<br />

<strong>in</strong> methods of participation. Students<br />

with less significant disabilities <strong>and</strong> higher academic<br />

ability levels were more likely to be<br />

participat<strong>in</strong>g <strong>in</strong> college classes <strong>in</strong> which they<br />

were formally enrolled either for credit or<br />

audit, whereas students with more significant<br />

disabilities <strong>and</strong> lower academic ability levels,<br />

<strong>in</strong> other words, those with IDD, were more<br />

likely to be <strong>in</strong>formally participat<strong>in</strong>g <strong>in</strong> college<br />

classes. Differences were also found <strong>in</strong> the<br />

method of participat<strong>in</strong>g <strong>in</strong> college classes<br />

based on the location of the program. More<br />

programs located at two-year or community<br />

colleges reported that students were tak<strong>in</strong>g<br />

college classes for credit than for audit or<br />

<strong>in</strong>formally, whereas more programs located at<br />

four-year college/university campuses reported<br />

that students were tak<strong>in</strong>g classes <strong>in</strong>formally<br />

than tak<strong>in</strong>g college classes for credit or<br />

audit. In sum, it appears that the extent to<br />

which students with IDD are provided with the<br />

opportunity to participate <strong>in</strong> college classes<br />

<strong>and</strong> the method used to participate <strong>in</strong> classes<br />

may depend on several factors <strong>in</strong>clud<strong>in</strong>g the<br />

type of program model, the location of the<br />

program, <strong>and</strong> the level of academic ability of<br />

the student. This f<strong>in</strong>d<strong>in</strong>g also suggests that the<br />

term “dual enrollment,” as has been used <strong>in</strong><br />

previous studies to describe students with IDD<br />

participat<strong>in</strong>g <strong>in</strong> PSE programs (e.g., Hart et<br />

al., 2004) may be used <strong>in</strong>correctly if the majority<br />

of students with IDD who are still enrolled<br />

<strong>in</strong> their school districts are not formally<br />

enrolled <strong>in</strong> postsecondary education classes.<br />

The types of college classes taken by students<br />

with disabilities appeared to differ based<br />

on the location of the PSE program <strong>and</strong> the<br />

method of participat<strong>in</strong>g <strong>in</strong> college classes.<br />

Programs based on two-year or community<br />

college campuses appear to be more likely to<br />

offer students the opportunity to participate<br />

<strong>in</strong> classes for credit than programs based on<br />

four-year college/university campuses where<br />

students may be more likely to take classes<br />

<strong>in</strong>formally. The majority of classes taken for<br />

credit fell <strong>in</strong>to the categories of vocational <strong>and</strong><br />

remedial classes whereas the majority of<br />

classes taken <strong>in</strong>formally or audited were academic,<br />

health <strong>and</strong> fitness, <strong>and</strong> arts classes.<br />

Comb<strong>in</strong>ed with the f<strong>in</strong>d<strong>in</strong>gs regard<strong>in</strong>g the factors<br />

that <strong>in</strong>fluence the participation <strong>in</strong> college<br />

classes, these f<strong>in</strong>d<strong>in</strong>gs suggest that (a) the<br />

most academically able students or those students<br />

<strong>in</strong> programs located at two-year or community<br />

colleges are the most likely to be tak<strong>in</strong>g<br />

classes for credit <strong>and</strong> these classes are most<br />

likely to be vocational or remedial classes <strong>in</strong><br />

which they have the skills to participate or that<br />

match their transition goals, <strong>and</strong> (b) the less<br />

academically able students or those students<br />

<strong>in</strong> programs located at four-year colleges/universities<br />

are more likely to be tak<strong>in</strong>g classes<br />

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<strong>in</strong>formally <strong>and</strong> these classes are most likely to<br />

be health <strong>and</strong> fitness or arts classes based on<br />

their <strong>in</strong>terests or academic classes based on<br />

what is available to students <strong>in</strong> the program.<br />

Interest<strong>in</strong>gly, a number of examples of academic<br />

classes reported by program respondents<br />

were education classes, suggest<strong>in</strong>g that<br />

students who are less academically able may<br />

be <strong>in</strong>vited <strong>in</strong>to education-oriented classes by<br />

professors of education. This opportunity may<br />

arise from the <strong>in</strong>volvement of professors of<br />

education <strong>in</strong> the <strong>in</strong>itiation <strong>and</strong> operation of<br />

PSE programs or from an underst<strong>and</strong><strong>in</strong>g <strong>and</strong><br />

desire to support the goal of age-appropriate<br />

<strong>in</strong>clusion that may be more common among<br />

professors of education than other college<br />

professors.<br />

To assess to what extent college classes are<br />

the same for students with IDD as for all college<br />

students, program coord<strong>in</strong>ators were<br />

asked about modifications <strong>and</strong> accommodations<br />

that are typically made for students with<br />

IDD tak<strong>in</strong>g college classes. The f<strong>in</strong>d<strong>in</strong>gs of the<br />

survey <strong>in</strong>dicate an <strong>in</strong>terest<strong>in</strong>g pattern: few programs<br />

reported mak<strong>in</strong>g modifications to<br />

credit or noncredit classes <strong>in</strong> which students<br />

were formally enrolled; the majority of reported<br />

modifications were made to classes<br />

that were either audited or taken <strong>in</strong>formally.<br />

From this f<strong>in</strong>d<strong>in</strong>g we can <strong>in</strong>fer that classes <strong>in</strong><br />

which students are formally enrolled may look<br />

the same for students with IDD as for all college<br />

students, whereas classes <strong>in</strong> which students<br />

are “sitt<strong>in</strong>g <strong>in</strong>” may be modified to <strong>in</strong>clude<br />

fewer requirements or a reduced<br />

amount of content. This may be due to the<br />

requirements of the law that do not allow for<br />

significant changes to the curriculum or assessments<br />

to be made for students who are<br />

enrolled <strong>in</strong> a class through the college or<br />

university. Such changes may be permissible<br />

when students are unofficially tak<strong>in</strong>g the class.<br />

We can build further on this f<strong>in</strong>d<strong>in</strong>g to <strong>in</strong>corporate<br />

results regard<strong>in</strong>g the level of academic<br />

ability <strong>and</strong> the types of classes <strong>and</strong> method of<br />

participat<strong>in</strong>g <strong>in</strong> college class <strong>and</strong> make the<br />

follow<strong>in</strong>g postulation: As the most academically<br />

able students or those students <strong>in</strong> programs<br />

located at two-year or community colleges<br />

are the most likely to be tak<strong>in</strong>g classes<br />

for credit <strong>and</strong> as these classes are most likely<br />

to be vocational or remedial classes <strong>in</strong> which<br />

they have the skills to participate, modifica-<br />

tions to curriculum or assessment are not<br />

needed or permissible. However, as the less academically<br />

able students or those students <strong>in</strong><br />

programs located at four-year colleges/universities<br />

are more likely to be tak<strong>in</strong>g classes <strong>in</strong>formally<br />

<strong>and</strong> as these classes are most likely to be<br />

health <strong>and</strong> fitness or arts classes based on their<br />

<strong>in</strong>terests or academic classes based on what is<br />

available to students <strong>in</strong> the program, modifications<br />

to curriculum or assessment are most<br />

likely needed for students to be able to participate <strong>in</strong><br />

classes <strong>and</strong> are permissible. Given that students<br />

enrolled <strong>in</strong> classes for credit tended to be<br />

those with LD, one wonders whether students<br />

with IDD, <strong>in</strong> other words those with actual<br />

cognitive disabilities <strong>and</strong> low academic abilities,<br />

are <strong>in</strong>deed attend<strong>in</strong>g college as we currently<br />

def<strong>in</strong>e college to be. This raises several<br />

questions regard<strong>in</strong>g the nature, purpose, <strong>and</strong><br />

benefits of participation <strong>in</strong> college classes for<br />

students with IDD. If classes are modified to<br />

allow students with IDD to participate, how<br />

useful are these classes after modification? Are<br />

the skills <strong>and</strong> knowledge that are important to<br />

college students watered down or removed for<br />

students with IDD? If classes are not taken to<br />

help students reach their postschool education<br />

or employment goals, then what it the<br />

purpose of tak<strong>in</strong>g classes? Furthermore, how<br />

do students with IDD benefit from tak<strong>in</strong>g<br />

classes based on their <strong>in</strong>terests or based on<br />

which professors are open to this idea? Are<br />

there real opportunities for social <strong>in</strong>clusion <strong>in</strong><br />

these classes or are students just sitt<strong>in</strong>g <strong>in</strong><br />

classes without support for academic learn<strong>in</strong>g<br />

or <strong>in</strong>clusion with same-age peers? These questions<br />

rema<strong>in</strong> to be addressed through future<br />

research.<br />

Limitations of the Study<br />

Several limitations to the study are apparent<br />

<strong>and</strong> must be acknowledged. First, a number of<br />

problems were encountered <strong>in</strong> select<strong>in</strong>g eligible<br />

programs. The term “IDD” can be <strong>in</strong>terpreted<br />

<strong>in</strong> different ways <strong>and</strong>, although a def<strong>in</strong>ition<br />

was provided <strong>in</strong> the <strong>in</strong>structions for the<br />

survey, many programs responded that they<br />

served students with LD <strong>and</strong> other disabilities<br />

that would not typically be def<strong>in</strong>ed as IDD.<br />

Additionally, the underst<strong>and</strong><strong>in</strong>g of the term<br />

“graduated” is not clear for students who have<br />

completed all requirements for graduation<br />

Postsecondary <strong>Education</strong> Survey / 91


<strong>and</strong> have walked with their graduat<strong>in</strong>g class<br />

but who may cont<strong>in</strong>ue to receive special education<br />

services until age 21. The difficulties <strong>in</strong><br />

target<strong>in</strong>g only those programs who serve students<br />

with IDD ages 18–21 who are still receiv<strong>in</strong>g<br />

special education services are highlighted<br />

by the exclusion of six survey responses from<br />

programs that appeared to meet these clearly<br />

def<strong>in</strong>ed criteria but that, <strong>in</strong> reality, did not.<br />

For this reason, programs that did not appear<br />

to meet the criteria for <strong>in</strong>clusion <strong>in</strong> the study<br />

or that had not been <strong>in</strong>cluded <strong>in</strong> the Th<strong>in</strong>k<br />

College database may have been excluded unnecessarily.<br />

Second, an <strong>in</strong>herent limitation exists <strong>in</strong> report<strong>in</strong>g<br />

the frequency of responses across respondents.<br />

Differences <strong>in</strong> characteristics <strong>and</strong><br />

<strong>in</strong> approaches to operat<strong>in</strong>g programs on college<br />

campuses do appear to exist between<br />

certa<strong>in</strong> subgroups, such as two-year or community<br />

colleges <strong>and</strong> four-year colleges/universities<br />

or between <strong>in</strong>dividualized, mixed,<br />

<strong>and</strong> separate model types. However, it is possible<br />

that further subgroups exist with<strong>in</strong> these<br />

categories, <strong>and</strong> report<strong>in</strong>g only the frequency<br />

of responses may cause some important <strong>in</strong>formation<br />

on these subgroups to be lost. Indeed,<br />

it is possible that the most frequent responses<br />

to survey items are not characteristic of any<br />

one program <strong>in</strong> reality. Identification of these<br />

trends <strong>in</strong> survey responses is difficult due to<br />

the small number of programs, <strong>and</strong> a different<br />

approach may be necessary to describe the<br />

true nature of subgroups of these programs.<br />

Third, although the response rate of 64% is<br />

good for a typical survey, it may not be sufficient<br />

here. As there are relatively few programs<br />

that fit the criteria for participation <strong>in</strong><br />

the survey, a response rate of less than 100%<br />

may mean that the f<strong>in</strong>d<strong>in</strong>gs are not representative<br />

of all programs. F<strong>in</strong>d<strong>in</strong>gs of differences<br />

between <strong>in</strong>dividualized <strong>and</strong> mixed model programs<br />

must be <strong>in</strong>terpreted with additional<br />

caution given that only six programs of all the<br />

respondents were <strong>in</strong>dividualized model programs.<br />

F<strong>in</strong>ally, the analysis of the types of college<br />

classes has many limitations. Program respondents<br />

were asked to list examples of the types<br />

of classes taken by students with IDD for each<br />

method of participation (e.g., examples of<br />

classes taken for credit, examples of classes<br />

that were audited, <strong>and</strong> so on). Ask<strong>in</strong>g pro-<br />

gram respondents to list the classes taken by<br />

each <strong>in</strong>dividual student along with disability,<br />

academic level, <strong>and</strong> method of participation<br />

<strong>in</strong> classes was deemed to be too cumbersome<br />

<strong>and</strong> may have resulted <strong>in</strong> a lower response rate<br />

on this item. However, <strong>in</strong> order to obta<strong>in</strong> a<br />

measure of the relative frequency of each category<br />

of class, the number of examples had to<br />

be counted. As some program respondents<br />

provided only one example for each method<br />

of participation whereas others provided a<br />

long list of examples for each method, counts<br />

of these examples may not accurately reflect<br />

the actual distribution of the categories of<br />

classes taken by students with IDD.<br />

Despite these limitations, this study makes<br />

an important contribution to our underst<strong>and</strong><strong>in</strong>g<br />

of the nature of PSE transition programs<br />

for students with IDD from a national perspective.<br />

Increas<strong>in</strong>g our underst<strong>and</strong><strong>in</strong>g of how<br />

these programs operate is important if these<br />

programs cont<strong>in</strong>ue to grow <strong>in</strong> number <strong>and</strong><br />

become a widely available option along the<br />

cont<strong>in</strong>uum of services for students with IDD.<br />

It is important that we have a realistic underst<strong>and</strong><strong>in</strong>g<br />

of the opportunities provided to students<br />

with IDD, particularly <strong>in</strong> relation to access<br />

to college classes, to aid persons<br />

<strong>in</strong>terested <strong>in</strong> <strong>in</strong>itiat<strong>in</strong>g new programs <strong>and</strong> address<br />

the objections that may be held by<br />

school district <strong>and</strong> postsecondary education<br />

professionals.<br />

Future Directions<br />

Future research should cont<strong>in</strong>ue to enhance<br />

our underst<strong>and</strong><strong>in</strong>g of these programs, particularly<br />

<strong>in</strong> relation to the other PSE activities <strong>in</strong><br />

which students with IDD are participat<strong>in</strong>g <strong>and</strong><br />

the benefits of participat<strong>in</strong>g <strong>in</strong> both these activities<br />

<strong>and</strong> college classes with students without<br />

disabilities. Further exam<strong>in</strong>ation of the<br />

nature <strong>and</strong> purpose of participation <strong>in</strong> college<br />

classes for students with IDD is warranted,<br />

particularly <strong>in</strong> relation to the purpose of participation<br />

<strong>in</strong> classes that are modified substantially<br />

or the purpose <strong>and</strong> benefits of participation<br />

<strong>in</strong> classes that are taken for other reasons<br />

than to help students reach their postschool<br />

education or employment goals. Exploration<br />

of the opportunities for social <strong>in</strong>clusion <strong>in</strong><br />

college classes <strong>and</strong> the methods of provid<strong>in</strong>g<br />

support for academic learn<strong>in</strong>g <strong>and</strong> social <strong>in</strong>-<br />

92 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


tegration are needed. A case study approach<br />

may address some of the limitations of the<br />

survey by provid<strong>in</strong>g an <strong>in</strong>-depth analysis of a<br />

small number of PSE programs that are representative<br />

of the population. This approach<br />

could be used to further exam<strong>in</strong>e the differences<br />

<strong>in</strong> opportunities available at programs<br />

located at two-year or community colleges<br />

compared to four-year college/university campuses<br />

or <strong>in</strong> the differences <strong>in</strong> the on-campus<br />

activities of students with higher academic<br />

abilities compared to those with lower academic<br />

abilities.<br />

Although many questions rema<strong>in</strong> to be addressed<br />

through research, this should not prohibit<br />

schools <strong>and</strong> postsecondary education <strong>in</strong>stitutions<br />

from form<strong>in</strong>g partnerships to beg<strong>in</strong><br />

provid<strong>in</strong>g access to postsecondary education<br />

us<strong>in</strong>g whatever model <strong>and</strong> supports fit their<br />

<strong>in</strong>dividual students’ needs. Regardless of the<br />

approach taken for provid<strong>in</strong>g supports on a<br />

college campus or the opportunities provided<br />

by a particular program for students with IDD<br />

to participate <strong>in</strong> activities with peers without<br />

disabilities, PSE programs for students with<br />

IDD ages 18–21 offer a promis<strong>in</strong>g opportunity<br />

to promote lifelong <strong>in</strong>clusion <strong>and</strong> self-determ<strong>in</strong>ation.<br />

In order to explore the benefits that<br />

these programs may offer efforts should cont<strong>in</strong>ue<br />

to <strong>in</strong>crease awareness <strong>and</strong> development<br />

of these valuable opportunities.<br />

References<br />

Casale-Giannola, D., & Kamens, M. W. (2006). Inclusion<br />

at a university: Experiences of a young<br />

woman with Down syndrome. Mental Retardation,<br />

44, 344–352.<br />

Dillman, D. A. (1999). Mail <strong>and</strong> <strong>in</strong>ternet surveys: The<br />

tailored design method. New York: John Wiley <strong>and</strong><br />

Sons.<br />

Fisher, D., & Sax, C. (1999). Notic<strong>in</strong>g differences<br />

between secondary <strong>and</strong> postsecondary education:<br />

Extend<strong>in</strong>g Agran, Snow, <strong>and</strong> Swaner’s discussion.<br />

Journal of the Association for Persons with Severe H<strong>and</strong>icaps,<br />

24, 303–305.<br />

Grigal, M., Neubert, D. A., & Moon, M. S. (2001).<br />

Public school programs for students with signifi-<br />

cant disabilities <strong>in</strong> postsecondary sett<strong>in</strong>gs. <strong>Education</strong><br />

<strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> Mental Retardation <strong>and</strong> <strong>Developmental</strong><br />

<strong>Disabilities</strong>, 36, 244–254.<br />

Hart, D., Mele-McCarthy, J., Pasternack, R. H., Zimbrich,<br />

K., & Parker, D. R. (2004). Community<br />

college: A pathway to success for youth with learn<strong>in</strong>g,<br />

cognitive, <strong>and</strong> <strong>in</strong>tellectual disabilities <strong>in</strong> secondary<br />

sett<strong>in</strong>gs. <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Developmental</strong><br />

<strong>Disabilities</strong>, 39, 54–66.<br />

Neubert, D. A., & Moon, M. S. (2006). Postsecondary<br />

sett<strong>in</strong>gs <strong>and</strong> transition services for students<br />

with IDD: Models <strong>and</strong> research. Focus on Exceptional<br />

Children, 39(4), 1–8.<br />

Neubert, D. A., Moon, M. S., & Grigal, M. (2004).<br />

Activities of students with significant disabilities <strong>in</strong><br />

postsecondary sett<strong>in</strong>gs. <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong><br />

<strong>Developmental</strong> <strong>Disabilities</strong>, 39, 16–25.<br />

Neubert, D. A., Moon, M. S., Grigal, M., & Redd, V.<br />

(2001). Post-secondary educational practices for<br />

<strong>in</strong>dividuals with mental retardation <strong>and</strong> other significant<br />

disabilities: A review of the literature.<br />

Journal of Vocational Rehabilitation, 16, 155–168.<br />

Schalock, R. L., Luckasson, R. A., & Shogren, K. A.<br />

(2007). The renam<strong>in</strong>g of mental retardation: Underst<strong>and</strong><strong>in</strong>g<br />

the change to the term <strong>in</strong>tellectual<br />

disability. Intellectual <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>,<br />

45, 116–124.<br />

Smith, T. E. C., & Pucc<strong>in</strong>i, I. K. (1995). Position<br />

statement: Secondary curricula <strong>and</strong> policy issues<br />

for students with mental retardation. <strong>Education</strong><br />

<strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> Mental Retardation <strong>and</strong> <strong>Developmental</strong><br />

<strong>Disabilities</strong>, 30, 275–282.<br />

Stodden, R. A., & Whelley, T. (2004). Postsecondary<br />

education <strong>and</strong> persons with <strong>in</strong>tellectual disabilities:<br />

An <strong>in</strong>troduction. <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong><br />

<strong>Developmental</strong> <strong>Disabilities</strong>, 39, 6–15.<br />

Wagner, M., Newman, L., Cameto, R., Garza, N., &<br />

Lev<strong>in</strong>e, P. (2005). After high school: A first look at the<br />

postschool experiences of youth with disabilities. A report<br />

from the National Longitud<strong>in</strong>al Transition Study-2<br />

(NLTS2). Menlo Park, CA: SRI International.<br />

Zafft, C., Hart, D., & Zimbrich, K. (2004). College<br />

career connection: A study of youth with IDD <strong>and</strong><br />

the impact of postsecondary education. <strong>Education</strong><br />

<strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 39, 45–<br />

53.<br />

Received: 18 August 2009<br />

Initial Acceptance: 25 October 2009<br />

F<strong>in</strong>al Acceptance: 9 January 2010<br />

Postsecondary <strong>Education</strong> Survey / 93


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 94–105<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

Perceptions of Supported Employment Providers: What<br />

Students with <strong>Developmental</strong> <strong>Disabilities</strong>, Families, <strong>and</strong><br />

Educators Need to Know For Transition Plann<strong>in</strong>g<br />

Sherril Moon, Monica L. Simonsen, <strong>and</strong> Debra A. Neubert<br />

University of Maryl<strong>and</strong><br />

Abstract: The purpose of this exploratory study was to survey community rehabilitation providers (CRPs) to<br />

determ<strong>in</strong>e their perceptions of the skills, experiences, <strong>and</strong> <strong>in</strong>formation that transition<strong>in</strong>g youth with developmental<br />

disabilities (DD) <strong>and</strong> their families need to access supported employment (SE) services. Supervisors of SE<br />

from 12 CRPs across one state provided their perceptions of eligibility requirements for SE services. Results<br />

related to the skill requirements <strong>and</strong> work experiences needed by transition<strong>in</strong>g youth support previous research<br />

f<strong>in</strong>d<strong>in</strong>gs <strong>in</strong>clud<strong>in</strong>g paid work experiences, <strong>in</strong>struction <strong>in</strong> self-management <strong>and</strong> advocacy skills, <strong>and</strong> transition<br />

assessments that document employment preferences, <strong>in</strong>terests, <strong>and</strong> needs. Other f<strong>in</strong>d<strong>in</strong>gs support the need for<br />

educators to teach transition<strong>in</strong>g youth <strong>and</strong> families about gett<strong>in</strong>g long-term fund<strong>in</strong>g through the state DD<br />

agency <strong>and</strong> Medicaid Waivers, <strong>and</strong> to prepare families for changes as CRPs cont<strong>in</strong>ue to phase out facility based<br />

work options <strong>and</strong> provide only SE. CRP staff strongly encouraged transition<strong>in</strong>g youth, not families, to<br />

communicate their own employment preferences <strong>and</strong> skills at <strong>in</strong>take <strong>in</strong>terviews.<br />

Secondary practices <strong>and</strong> experiences that facilitate<br />

students’ transition from high school<br />

to college or work is a topic that cont<strong>in</strong>ues to<br />

capture public attention (<strong>Education</strong> Week,<br />

2008). For secondary students with disabilities,<br />

education <strong>and</strong> transition practices that<br />

ease this transition <strong>and</strong> lead to optimal post<br />

school outcomes have been researched s<strong>in</strong>ce<br />

the 1980’s. Recommended <strong>and</strong> evidencebased<br />

secondary practices have been documented<br />

through reviews of the literature (Allwell<br />

& Cobb, 2006; Cobb, Lehmann, Newman-<br />

Gonchar, & Alwell, 2009; Kohler & Field,<br />

2003); surveys of special educators ( Agran,<br />

Snow, & Swaner, 1999; Noonan, Morn<strong>in</strong>gstar,<br />

& Erickson, 2008; Zhang, Ivester, Chen, &<br />

Katsiyannis, 2005); qualitative case studies<br />

(Collett-Kl<strong>in</strong>ger, 1998; Neubert & Redd,<br />

2008); follow-up studies (Benz, L<strong>in</strong>dstrom, &<br />

Yovanoff, 2000; Blackorby & Wagner, 1996;<br />

Heal & Rusch, 1995; Wagner, Newman, Cameto,<br />

Lev<strong>in</strong>e, & Garz, 2006); <strong>and</strong> analysis of<br />

Correspondence concern<strong>in</strong>g this article should<br />

be addressed to Dr. Sherril Moon, Department of<br />

Special <strong>Education</strong>, University of Maryl<strong>and</strong>, 1308<br />

Benjam<strong>in</strong> Build<strong>in</strong>g, College Park, MD 20742.<br />

large-scale data bases (Katsiyannis, Zhang,<br />

Woodruff, & Dixon, 2005).<br />

In general, this literature po<strong>in</strong>ts to enhanced<br />

outcomes for youth with disabilities<br />

who have participated <strong>in</strong> paid employment<br />

experiences, career <strong>and</strong> technology courses,<br />

self-determ<strong>in</strong>ation <strong>in</strong>struction, transition assessments,<br />

<strong>and</strong> transition plann<strong>in</strong>g processes<br />

that target <strong>in</strong>teragency l<strong>in</strong>ks <strong>and</strong> family participation.<br />

However, post school outcomes <strong>and</strong><br />

secondary practices differ for students with<br />

high <strong>in</strong>cidence disabilities (learn<strong>in</strong>g disabilities,<br />

attention deficit disabilities) <strong>and</strong> for<br />

those with low <strong>in</strong>cidence disabilities (mental<br />

retardation, autism, traumatic bra<strong>in</strong> <strong>in</strong>jury,<br />

<strong>and</strong> multiple disabilities) especially <strong>in</strong> terms of<br />

employment (Wagner et al., 2006; Wehman,<br />

2006). Additionally, employment supports<br />

<strong>and</strong> resources vary greatly for <strong>in</strong>dividuals with<br />

low-<strong>in</strong>cidence disabilities (W<strong>in</strong>sor & Butterworth,<br />

2008).<br />

Transition<strong>in</strong>g youth with developmental<br />

disabilities that <strong>in</strong>clude low-<strong>in</strong>cidence disabilities<br />

are likely to need on-go<strong>in</strong>g, <strong>in</strong>dividualized<br />

supports <strong>in</strong> order to participate <strong>in</strong> <strong>in</strong>clusive<br />

work experiences as adults (U.S. Equal<br />

Employment Opportunity Commission,<br />

2004). These <strong>in</strong>dividuals often attend public<br />

94 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


school until age 21 <strong>and</strong> are likely to receive a<br />

certificate of attendance or completion rather<br />

than a diploma as they exit public school.<br />

Eligible transition<strong>in</strong>g youth may receive longterm<br />

fund<strong>in</strong>g through their state’s developmental<br />

disabilities agency. This fund<strong>in</strong>g is often<br />

disbursed to adult agencies, known as<br />

community rehabilitation providers (CRPs),<br />

who have provided a cont<strong>in</strong>uum of employment<br />

services, <strong>in</strong>clud<strong>in</strong>g SE <strong>and</strong> facility-based<br />

options.<br />

While a recent study found transition<strong>in</strong>g<br />

youth with developmental disabilities (DD)<br />

<strong>and</strong> their families prefer <strong>in</strong>tegrated or SE outcomes<br />

(Neubert & Redd, 2008), studies of<br />

adults with DD document the prevalence of<br />

work <strong>in</strong> segregated sett<strong>in</strong>gs, despite paradigm<br />

shifts to provide SE opportunities (Rusch &<br />

Braddock, 2004; W<strong>in</strong>sor & Butterworth,<br />

2008). These f<strong>in</strong>d<strong>in</strong>gs are particularly troublesome<br />

as CRPs are faced with streaml<strong>in</strong><strong>in</strong>g services<br />

<strong>and</strong> provid<strong>in</strong>g SE options only (W<strong>in</strong>sor &<br />

Butterworth). Therefore, transition<strong>in</strong>g youth<br />

with DD, families <strong>and</strong> educators need to underst<strong>and</strong><br />

eligibility requirements for CRPs <strong>and</strong><br />

secondary practices that will assist transition<strong>in</strong>g<br />

youth prepare for SE.<br />

Recommended secondary practices for students<br />

with low-<strong>in</strong>cidence disabilities currently<br />

emphasize the need to balance strategies for<br />

access<strong>in</strong>g general education classes with provid<strong>in</strong>g<br />

functional <strong>and</strong> community-based <strong>in</strong>struction,<br />

teach<strong>in</strong>g self-determ<strong>in</strong>ation skills,<br />

<strong>and</strong> us<strong>in</strong>g assessment <strong>and</strong> plann<strong>in</strong>g practices<br />

that <strong>in</strong>crease <strong>in</strong>teragency collaboration between<br />

schools, families <strong>and</strong> adult agencies<br />

(Inge & Moon, 2006). Researchers have identified<br />

some practices that may impact employment<br />

outcomes for transition<strong>in</strong>g youth with<br />

DD or low-<strong>in</strong>cidence disabilities. For example,<br />

White <strong>and</strong> We<strong>in</strong>er (2004) found a positive<br />

relationship between post- school <strong>in</strong>tegrated<br />

employment outcomes (SE) <strong>and</strong> the follow<strong>in</strong>g:<br />

(a) <strong>in</strong>tegration <strong>in</strong> environments with<br />

same age peers who do not have disabilities,<br />

(b) community-based <strong>in</strong>struction, <strong>and</strong> (c)<br />

paid work experience while <strong>in</strong> school. Cunn<strong>in</strong>gham<br />

<strong>and</strong> Altman (1993) <strong>and</strong> Heal <strong>and</strong><br />

Rusch (1995) found a relationship between<br />

self-management skills (e.g. hygiene, toilet<strong>in</strong>g)<br />

<strong>and</strong> employment outcomes.<br />

Descriptive data on the outcomes of 50<br />

workers with low-<strong>in</strong>cidence disabilities who re-<br />

ceived SE services (Brown, Shiraga, & Kessler,<br />

2006) also re<strong>in</strong>forced the importance of <strong>in</strong>clusive<br />

experiences, community-based <strong>in</strong>struction,<br />

<strong>and</strong> work-based experiences. Based on<br />

these f<strong>in</strong>d<strong>in</strong>gs, Brown <strong>and</strong> his colleagues recommended<br />

that educators employ the follow<strong>in</strong>g<br />

secondary practices: (a) conduct <strong>and</strong> summarize<br />

authentic vocational assessments on<br />

the students for adult providers, (b) f<strong>in</strong>d paid<br />

employment sites for students before graduation,<br />

(c) decrease the amount of one on one<br />

<strong>in</strong>struction students receive <strong>in</strong> the community,<br />

<strong>and</strong> (d) teach skills, <strong>in</strong>clud<strong>in</strong>g transportation,<br />

to students 14 <strong>and</strong> older <strong>in</strong> community<br />

sett<strong>in</strong>gs.<br />

While we have evidence of secondary practices<br />

<strong>and</strong> <strong>in</strong>teragency l<strong>in</strong>kages that may impact<br />

employment outcomes from follow<strong>in</strong>g up students<br />

with disabilities or survey<strong>in</strong>g special educators,<br />

we do not have research that documents<br />

the secondary practices <strong>and</strong><br />

experiences that staff from CRPs perceive as<br />

most valuable for transition<strong>in</strong>g youth with DD.<br />

Thus, we surveyed staff <strong>in</strong> CRPs to determ<strong>in</strong>e<br />

the skills <strong>and</strong> experiences they perceived as<br />

most important <strong>in</strong> prepar<strong>in</strong>g transition<strong>in</strong>g<br />

youth with DD to access SE services from<br />

CRPs. We sought descriptive <strong>in</strong>formation that<br />

would provide answers to the follow<strong>in</strong>g questions:<br />

1. What do transition<strong>in</strong>g youth with DD,<br />

families <strong>and</strong> educators need to know<br />

about eligibility <strong>and</strong> acceptance to CRPs<br />

that provide SE services?<br />

2. What skills do transition<strong>in</strong>g youth with<br />

DD need to acquire <strong>in</strong> school <strong>in</strong> order to<br />

participate <strong>in</strong> SE?<br />

3. What assessments <strong>and</strong> work experiences<br />

do CRP staff perceive as important for<br />

transition<strong>in</strong>g youth with a post-school goal<br />

of SE?<br />

4. What suggestions does CRP staff have for<br />

transition<strong>in</strong>g youth with DD who have a<br />

post-school goal of SE?<br />

Method<br />

Sett<strong>in</strong>g<br />

This exploratory study was conducted <strong>in</strong> one<br />

Mid-Atlantic state with a population of<br />

5,633,597 (U.S. Census Bureau, n.d.). The<br />

Perceptions of Supported Employment Providers / 95


state is racially <strong>and</strong> ethnically diverse <strong>and</strong> most<br />

densely populated <strong>in</strong> the central, urban part<br />

of the state. A state developmental disability<br />

(DD) agency provides long-term fund<strong>in</strong>g for<br />

<strong>in</strong>dividuals (known as consumers) with DD <strong>and</strong><br />

services are managed through four geographic<br />

regional offices. In 2009, this agency<br />

provided fund<strong>in</strong>g for day services for 10,000<br />

consumers with DD <strong>in</strong>clud<strong>in</strong>g day habilitation<br />

(facility-based, non-work), day vocational (facility-based<br />

work related activities), <strong>and</strong> supported<br />

employment (<strong>in</strong>tegrated or community<br />

based employment <strong>in</strong>clud<strong>in</strong>g enclaves<br />

<strong>and</strong> crews).<br />

Despite a long wait<strong>in</strong>g list for state DD fund<strong>in</strong>g,<br />

some transition<strong>in</strong>g youth who exit school<br />

at age 21 are eligible for earmarked fund<strong>in</strong>g<br />

<strong>and</strong> guaranteed services <strong>in</strong> day habilitation,<br />

day vocational, <strong>and</strong> SE. The DD agency anticipates<br />

fund<strong>in</strong>g 650 transition<strong>in</strong>g youth <strong>in</strong> SE<br />

<strong>and</strong> other day services for the 2010 fiscal year<br />

(C. Garuder, personal communication, May<br />

13, 2009).<br />

Once transition<strong>in</strong>g youth (or consumers)<br />

are determ<strong>in</strong>ed eligible for DD fund<strong>in</strong>g, a<br />

resource coord<strong>in</strong>ator assists the consumer <strong>and</strong><br />

family select a CRP to provide the services.<br />

The CRP develops <strong>and</strong> submits a service-fund<strong>in</strong>g<br />

plan to the DD agency outl<strong>in</strong><strong>in</strong>g services<br />

<strong>and</strong> supports it will provide to the consumer;<br />

the DD agency then provides the funds to the<br />

CRP to support a consumer’s goals.<br />

Survey Instrument<br />

A survey was developed by the authors <strong>and</strong><br />

revised <strong>in</strong>itially based on feedback from 15<br />

special educators at a statewide forum on the<br />

needs of transition<strong>in</strong>g youth ages 18- 21.<br />

These special educators were <strong>in</strong>volved <strong>in</strong> provid<strong>in</strong>g<br />

community based work experiences<br />

<strong>and</strong> <strong>in</strong> assist<strong>in</strong>g transition<strong>in</strong>g youth access<br />

adult services. An executive director <strong>and</strong> SE<br />

director of a CRP then reviewed the survey.<br />

Their feedback regard<strong>in</strong>g the clarity <strong>and</strong> usefulness<br />

of the items was <strong>in</strong>corporated <strong>in</strong>to the<br />

survey. The revised survey was then adm<strong>in</strong>istered<br />

<strong>in</strong> person to two other CRP staff who<br />

provid<strong>in</strong>g SE services <strong>and</strong> then f<strong>in</strong>al revisions<br />

were made to the survey.<br />

The survey <strong>in</strong>cluded questions about the<br />

CRP’s practices for recruit<strong>in</strong>g <strong>and</strong> accept<strong>in</strong>g<br />

potential <strong>in</strong>dividuals for services. Several<br />

open-ended questions <strong>and</strong> a rat<strong>in</strong>g matrix<br />

were used to identify the skills that participants<br />

perceived to be most important for access<strong>in</strong>g<br />

supported employment services. Participants<br />

were asked open-ended questions on<br />

the type of assessments <strong>and</strong> work experiences<br />

they perceived to be most important as transition<strong>in</strong>g<br />

youth applied for services from the<br />

CRP. The survey also <strong>in</strong>cluded two openended<br />

questions regard<strong>in</strong>g suggestions that<br />

transition<strong>in</strong>g youth, families <strong>and</strong> educators<br />

should consider dur<strong>in</strong>g transition plann<strong>in</strong>g.<br />

The survey also <strong>in</strong>cluded a rat<strong>in</strong>g matrix<br />

titled “Checklist of Skills for Individuals Interested<br />

<strong>in</strong> Your Agency” for participants to rate<br />

a list of 59 skills that they perceived as important<br />

for transition<strong>in</strong>g youth. The skills were<br />

identified through a review of the literature<br />

on secondary special education <strong>and</strong> transition<br />

practices for students with DD (Inge & Moon,<br />

2006; Noonan et al., 2008; Brown et al., 2006)<br />

<strong>and</strong> exist<strong>in</strong>g functional life skills curricula<br />

(Ford et al., 1989). The skills were arranged by<br />

the six doma<strong>in</strong>s from the Syracuse Curriculum<br />

Guide (Ford et al.). These <strong>in</strong>cluded: vocational,<br />

general community function<strong>in</strong>g, selfmanagement/<br />

home liv<strong>in</strong>g, social <strong>and</strong> communication,<br />

recreation, <strong>and</strong> academic. Skills<br />

related to self-determ<strong>in</strong>ation were <strong>in</strong>cluded<br />

under the social <strong>and</strong> communication doma<strong>in</strong>.<br />

Participants rated each skill on a three po<strong>in</strong>t<br />

Likert scale (1- critically important; 2- helpful<br />

but not essential; or 3- does not make a difference).<br />

Participants <strong>and</strong> Procedure<br />

Participants were staff members from CRPs<br />

who were <strong>in</strong>volved <strong>in</strong> the agency’s recruitment<br />

<strong>and</strong> <strong>in</strong>take process of consumers <strong>and</strong> <strong>in</strong> provid<strong>in</strong>g<br />

SE services. To identify potential participants,<br />

the authors reviewed a list of all<br />

CRPs that were organized by the four geographical<br />

regions on the state DD agency’s<br />

website. We used the <strong>in</strong>ternet l<strong>in</strong>ks to each<br />

CRP to determ<strong>in</strong>e if SE services were provided<br />

at the CRP. We then chose four CRPs from<br />

each region that provided supported employment<br />

<strong>and</strong> contacted the staff by phone to see<br />

if they would participate <strong>in</strong> our survey. Twelve<br />

CRP staff agreed to participate <strong>in</strong> the survey.<br />

At least two participants were from each of the<br />

96 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


four state DD geographic regions were <strong>in</strong>terviewed.<br />

The survey was adm<strong>in</strong>istered to the participants<br />

at each CRP by the first two authors <strong>and</strong><br />

took approximately one to two hours to complete.<br />

Responses to the open ended questions<br />

were recorded on the <strong>in</strong>strument by the <strong>in</strong>terviewer.<br />

Each CRP participant then <strong>in</strong>dependently<br />

completed the rat<strong>in</strong>g matrix along with<br />

demographic <strong>in</strong>formation on the CRP.<br />

Data Analysis<br />

Responses to the survey questions were tallied<br />

by the frequency of responses to each question.<br />

We then looked for common themes or<br />

additional topics that were brought up by the<br />

respondent dur<strong>in</strong>g the open-ended questions.<br />

These comments were grouped together by<br />

themes by one author <strong>and</strong> then checked for<br />

accuracy by the other two authors.<br />

The rat<strong>in</strong>g matrix required the participants<br />

to rate the importance of 59 skills <strong>in</strong> terms of<br />

importance to successfully transition<strong>in</strong>g to a<br />

CRP that provided SE options. In order to<br />

identify the skills <strong>and</strong> the doma<strong>in</strong>s that were<br />

considered most important to the respondents,<br />

descriptive statistics were used. First,<br />

the mean scores for each of the 59 skills across<br />

all participants were calculated <strong>and</strong> put <strong>in</strong><br />

rank order from those rated as a “1” (most<br />

critical) to “3” (does not make a difference).<br />

After calculat<strong>in</strong>g the mean scores for each of<br />

the 59 skills <strong>and</strong> rank<strong>in</strong>g them <strong>in</strong> order from<br />

most to least critical, the top 29 skills (those<br />

with a mean score above the median of 1.83)<br />

were identified. Next, we comb<strong>in</strong>ed the mean<br />

scores for all of the skills with<strong>in</strong> each of the six<br />

doma<strong>in</strong>s to calculate a mean score for each<br />

doma<strong>in</strong> to determ<strong>in</strong>e which was considered<br />

the most critical doma<strong>in</strong>. F<strong>in</strong>ally, we wanted to<br />

see which skills with<strong>in</strong> each doma<strong>in</strong> were considered<br />

most critical. We identified the three<br />

skills that were rated as most critical (with the<br />

lowest mean scores) with<strong>in</strong> each doma<strong>in</strong>.<br />

Results<br />

The results of the survey are reported accord<strong>in</strong>g<br />

to the research questions that guided this<br />

study of perceptions of CRP staff regard<strong>in</strong>g<br />

transition<strong>in</strong>g youth with DD.<br />

Eligibility <strong>and</strong> Recruitment<br />

To address what transition<strong>in</strong>g youth with DD,<br />

their families, <strong>and</strong> educators need to know<br />

about recruitment <strong>and</strong> eligibility for SE services<br />

at CRPs, we asked participants what type<br />

of fund<strong>in</strong>g their consumers generally had<br />

prior to be<strong>in</strong>g accepted at a CRP, how transition<strong>in</strong>g<br />

youth <strong>and</strong> their families learned about<br />

the CRP, <strong>and</strong> what types of secondary vocational<br />

or work experiences were important for<br />

access<strong>in</strong>g SE services.<br />

All participants <strong>in</strong>dicated that the state DD<br />

agency provided primary fund<strong>in</strong>g for consumers<br />

at the CRPs. Several mentioned that this<br />

was, <strong>in</strong> fact, the only real requirement for<br />

determ<strong>in</strong><strong>in</strong>g a person’s eligibility for services.<br />

All participants <strong>in</strong>dicated that fund<strong>in</strong>g from<br />

vocational rehabilitation was not critical to be<br />

accepted by the CRP. If a consumer did receive<br />

services through vocational rehabilitation,<br />

these monies were often used to pay for<br />

assessments <strong>and</strong> job development. One participant<br />

said, “[Vocational rehabilitation] fund<strong>in</strong>g<br />

is too short-term, we can’t count on it.”<br />

Participants also <strong>in</strong>dicated that consumers<br />

could obta<strong>in</strong> funds for services through a state<br />

Medicaid Waiver. Consumers <strong>and</strong> their families<br />

had to apply for such a waiver through the<br />

DD agency. When asked how fund<strong>in</strong>g impacted<br />

service delivery at the CRP, participants<br />

<strong>in</strong>dicated that the scope of services they<br />

offered to consumers were largely determ<strong>in</strong>ed<br />

by fund<strong>in</strong>g levels.<br />

In terms of secondary work experiences, all<br />

participants <strong>in</strong>dicated that work experience<br />

was not essential for a transition<strong>in</strong>g youth to<br />

be<strong>in</strong>g accepted for services at the CRP. However,<br />

most participants (83%) said that previous<br />

work experience did impact <strong>in</strong>itial employment<br />

placement once a consumer was<br />

accepted to the CRP. More than half of the<br />

participants <strong>in</strong>dicated concern regard<strong>in</strong>g parent’s<br />

expectations of the actual types of supports<br />

that were available to transition<strong>in</strong>g<br />

youth after they left the school system. One<br />

participant stated: “Some [families] do not<br />

want sheltered sett<strong>in</strong>gs but the students don’t<br />

have any <strong>in</strong>dependent experiences.”<br />

Five of the 12 participants stated that transition<strong>in</strong>g<br />

youth needed to underst<strong>and</strong> that unacceptable<br />

behavior or poor personal hygiene<br />

dur<strong>in</strong>g an <strong>in</strong>terview was viewed negatively <strong>in</strong><br />

Perceptions of Supported Employment Providers / 97


terms of accept<strong>in</strong>g consumers for services. Another<br />

participant mentioned that families <strong>and</strong><br />

educators needed to underst<strong>and</strong> that once<br />

accepted to a CRP, excessive absences or noncompliance<br />

by the consumer could result <strong>in</strong> a<br />

loss of services.<br />

Skills Critical for Supported Employment<br />

Participants were first asked to identify essential<br />

skills that transition<strong>in</strong>g youth with DD<br />

should acquire before leav<strong>in</strong>g school through<br />

open-ended questions. Responses <strong>in</strong>cluded<br />

self-advocacy, self-determ<strong>in</strong>ation, safety awareness,<br />

social skills, hygiene, communication,<br />

<strong>and</strong> travel tra<strong>in</strong><strong>in</strong>g skills. Participants were<br />

also asked if there are specific behaviors that<br />

would keep an <strong>in</strong>dividual from receiv<strong>in</strong>g supported<br />

employment services from their respective<br />

CRPs. Responses <strong>in</strong>cluded negative<br />

behavior, poor hygiene, poor safety skills, <strong>and</strong><br />

toilet<strong>in</strong>g issues.<br />

Participants were then asked to rate the<br />

importance specific skills us<strong>in</strong>g the rat<strong>in</strong>g matrix<br />

<strong>in</strong> the survey. The skill ranked most critical<br />

was “avoids/reports sexual abuse,” with a<br />

mean score of 1.17. The seven highest ranked<br />

skills were all from the self-management doma<strong>in</strong><br />

that <strong>in</strong>cluded items such as “uses public<br />

<strong>and</strong> private toilets <strong>in</strong>dependently” <strong>and</strong> “has<br />

acceptable hygiene habits” (see Table 1). The<br />

29 skills with a mean score above 1.83 (the<br />

median score for all skills) <strong>in</strong>cluded skills<br />

from the self-management, general community<br />

function<strong>in</strong>g, social/self-determ<strong>in</strong>ation/<br />

communication, <strong>and</strong> vocational doma<strong>in</strong>s (see<br />

Table 1) with no skills from the academic or<br />

recreation doma<strong>in</strong>s. Six of lowest ranked skills<br />

were from the recreation doma<strong>in</strong>.<br />

The two doma<strong>in</strong>s rated most critical were<br />

self-management, with a mean score of 1.51,<br />

<strong>and</strong> social/self determ<strong>in</strong>ation/communication,<br />

with a mean score of 1.54. The doma<strong>in</strong>s<br />

for general community function<strong>in</strong>g <strong>and</strong> vocational<br />

both had a mean of 1.78. The doma<strong>in</strong>s<br />

rated as least critical were academic, with a<br />

mean of 2.04, followed by recreation, with a<br />

mean score of 2.42. The three highest rated<br />

skills <strong>in</strong> each of the six doma<strong>in</strong>s are listed <strong>in</strong><br />

Table 2.<br />

Secondary Assessments <strong>and</strong> Work Experiences<br />

We were <strong>in</strong>terested <strong>in</strong> the types of assessments<br />

<strong>and</strong> <strong>in</strong>formation that CRP staff perceived as<br />

important when accept<strong>in</strong>g <strong>and</strong> provid<strong>in</strong>g SE<br />

services to transition<strong>in</strong>g youth with DD. In<br />

terms of assessments, ten of the 12 participants<br />

<strong>in</strong>dicated that it was most important to<br />

know <strong>in</strong>dividual employment <strong>in</strong>terests <strong>and</strong><br />

preferences. One participant said, “Each<br />

agency provides better <strong>in</strong> some areas than<br />

others, so if we know preferences, we can<br />

make a better match- we need to know preferences<br />

to make a good employment match!”<br />

However, only three participants reported<br />

that they received this <strong>in</strong>formation from the<br />

school or the family.<br />

None of the participants had heard of or<br />

received a copy a summary of performance<br />

(SOP) document on transition<strong>in</strong>g youth exit<strong>in</strong>g<br />

the school system. The SOP document,<br />

m<strong>and</strong>ated by the Individuals with <strong>Disabilities</strong><br />

<strong>Education</strong> Act (IDEA) of 2004, is supposed to<br />

summarize a student’s previous assessment <strong>in</strong>formation,<br />

goals, supports, <strong>and</strong> needs for the<br />

future.<br />

In terms of collaborat<strong>in</strong>g with school personnel,<br />

participants reported they typically received<br />

copies of Individual <strong>Education</strong> Programs<br />

(IEPs) from schools as students<br />

transitioned to the CRP. All <strong>in</strong>dicated a will<strong>in</strong>gness<br />

to attend a student’s IEP meet<strong>in</strong>g if<br />

<strong>in</strong>vited by school personnel.<br />

Participants were more <strong>in</strong>terested <strong>in</strong> <strong>in</strong>dividual<br />

<strong>in</strong>terests <strong>and</strong> employment preferences<br />

than <strong>in</strong> formal assessment reports or files.<br />

N<strong>in</strong>e of the 12 participants stated that they did<br />

not use formal assessments. Over half <strong>in</strong>dicated<br />

that family members were more likely to<br />

report <strong>in</strong>terests <strong>and</strong> employment preferences<br />

<strong>in</strong>stead of hear<strong>in</strong>g it directly from the transition<strong>in</strong>g<br />

youth. In terms of work history, eight<br />

participants <strong>in</strong>dicated that they were aware of<br />

the employment history for some consumers.<br />

Two participants <strong>in</strong>dicated this <strong>in</strong>formation<br />

was often “disjo<strong>in</strong>ted”; one <strong>in</strong>dicated that they<br />

could sometimes “f<strong>in</strong>d the <strong>in</strong>formation <strong>in</strong> the<br />

records.”<br />

Participants were asked how they assessed<br />

consumers’ <strong>in</strong>terests, preferences, <strong>and</strong><br />

strengths once accepted to the CRP. Four <strong>in</strong>dicated<br />

through formal assessments while one<br />

<strong>in</strong>dicated that this happened only if they ob-<br />

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TABLE 1<br />

Skills Rated as Most Important for Supported Employment<br />

ta<strong>in</strong>ed funds from vocational rehabilitation<br />

for this specific person. Two mentioned they<br />

used job trials or situational assessments to<br />

determ<strong>in</strong>e a consumer’s <strong>in</strong>terests, preferences,<br />

strengths, <strong>and</strong> needs.<br />

The participants’ perceptions of unpaid<br />

work experiences dur<strong>in</strong>g the secondary varied.<br />

Two participants <strong>in</strong>dicated that unpaid<br />

work experiences assisted transition<strong>in</strong>g youth<br />

identify <strong>in</strong>terests <strong>and</strong> preferences while expos<strong>in</strong>g<br />

students to the realities of the workplace.<br />

One participant said, “The more experiences<br />

the better. Especially if someone has skills <strong>in</strong><br />

Skill (Doma<strong>in</strong>) Mean a<br />

Avoids/reports sexual abuse (SM) 1.17 1<br />

Uses public <strong>and</strong> private toilets <strong>in</strong>dependently (SM) 1.21 2<br />

Has acceptable hygiene habits (SM) 1.25 3<br />

Manages menstrual care (SM) 1.25 3<br />

Informs others when sick or <strong>in</strong>jured (SM) 1.25 3<br />

Washes h<strong>and</strong>s at appropriate times (SM) 1.25 3<br />

Avoids drugs/alcohol (SM) 1.33 4<br />

Uses caution with strangers (GCF) 1.33 4<br />

Responds to relevant environmental cues (SSDC) 1.36 5<br />

Follows rules, guidel<strong>in</strong>es, <strong>and</strong> rout<strong>in</strong>es (SSDC) 1.41 6<br />

Crosses street safely (GCF) 1.42 7<br />

Manages own behavior without <strong>in</strong>struction (SSDC) 1.46 8<br />

Expresses preferences (SSDC) 1.46 8<br />

Expresses needs (SSDC) 1.46 8<br />

Expresses needs (SSDC) 1.46 8<br />

Expresses needs (SSDC) 1.46 8<br />

Expresses needs (SSDC) 1.46 8<br />

Can problem solve or use ID if lost (GCF) 1.46 8<br />

Can express work preferences (V) 1.50 9<br />

Participates <strong>in</strong> person-centered plann<strong>in</strong>g activities (SSDC) 1.55 10<br />

Can use cell phone or pay phone (GCF) 1.58 11<br />

Uses phone <strong>in</strong> emergency situations (SM) 1.58 11<br />

Exhibits alt. strategies to cope with negative situations (SSDC) 1.59 12<br />

Takes care of personal belong<strong>in</strong>gs (SM) 1.63 13<br />

Makes choices from several alternatives (SSDC) 1.64 14<br />

Has alternative communication system if unable to speak (SSDC) 1.64 14<br />

Has had several real work experiences (V) 1.67 15<br />

Term<strong>in</strong>ates/withdraws from others appropriately (SSDC) 1.73 16<br />

Takes medications <strong>in</strong>dependently (SM) 1.75 17<br />

Shops for desired item at mall or department store (GCF) 1.75 17<br />

Initiates <strong>in</strong>teraction with others (SSDC) 1.77 18<br />

Note. SM Self-Management, SSDC Social/Self-Determ<strong>in</strong>ation/Communication, GCF General Community<br />

Function<strong>in</strong>g, V Vocational, A Academic, R Recreation<br />

a<br />

Mean scores on a 3 po<strong>in</strong>t Scale <strong>in</strong>clude 1 critically important, 2 helps but is not critical, 3 does not<br />

make a difference<br />

Rank<br />

the type of job they are <strong>in</strong>terested <strong>in</strong>.” Several<br />

participants <strong>in</strong>dicated that unpaid work experience<br />

should be used to help determ<strong>in</strong>e <strong>in</strong>dividual<br />

job preferences <strong>and</strong> that transition<strong>in</strong>g<br />

youth should be able to express these<br />

preferences when apply<strong>in</strong>g for services at the<br />

CRP. Three participants discussed their views<br />

on the limitations of work experiences that<br />

<strong>in</strong>volved a “paid stipend” by the school system.<br />

They ma<strong>in</strong>ta<strong>in</strong>ed that only pay from an employer<br />

was authentic <strong>and</strong> a good measure of<br />

the person’s ability to work <strong>in</strong> the community.<br />

The importance of realistic work experi-<br />

Perceptions of Supported Employment Providers / 99


TABLE 2<br />

Rank Order of Doma<strong>in</strong>s <strong>and</strong> Highest Rated Skills with<strong>in</strong> each Doma<strong>in</strong><br />

ences for pay dur<strong>in</strong>g the secondary years <strong>and</strong><br />

the ability for transition<strong>in</strong>g youth to express<br />

work preferences was re<strong>in</strong>forced throughout<br />

the <strong>in</strong>terviews. Ten of the 12 participants <strong>in</strong>dicated<br />

that previous paid work experience<br />

impacted <strong>in</strong>itial placement at the CRP (SE<br />

versus facility based work). They <strong>in</strong>dicated<br />

that transition<strong>in</strong>g youth who had paid work<br />

experience were more likely to be placed <strong>in</strong><br />

paid employment positions upon acceptance<br />

to the CRP. These participants also <strong>in</strong>dicated<br />

a will<strong>in</strong>gness to keep transition<strong>in</strong>g youth <strong>in</strong> a<br />

paid employment position that had been obta<strong>in</strong>ed<br />

<strong>in</strong> school if: (a) the person <strong>in</strong>dicated a<br />

preference for the particular job; <strong>and</strong> (b)<br />

transportation from the CRP or home to the<br />

employment site could be ma<strong>in</strong>ta<strong>in</strong>ed or reconfigured<br />

easily. All participants <strong>in</strong>dicated<br />

that transition<strong>in</strong>g youth with paid work experience<br />

were easier to place <strong>in</strong> community employment<br />

opportunities.<br />

Mean a<br />

Self-Management Doma<strong>in</strong><br />

Avoids/reports sexual abuse 1.17 1<br />

Uses public <strong>and</strong> private toilets <strong>in</strong>dependently 1.21 2<br />

Has acceptable hygiene habits 1.25 3<br />

Social/Self-Determ<strong>in</strong>ation/Communication Doma<strong>in</strong><br />

Responds to relevant environmental cues 1.36 5<br />

Follows rules, guidel<strong>in</strong>es, <strong>and</strong> rout<strong>in</strong>es 1.41 6<br />

Manages own behavior without <strong>in</strong>struction 1.46 8<br />

General Community Function<strong>in</strong>g Doma<strong>in</strong><br />

Uses caution with strangers 1.33 4<br />

Crosses street safely 1.41 7<br />

Can problem solve or use ID if lost 1.46 8<br />

Vocational Doma<strong>in</strong><br />

Can express work preferences 1.50 10<br />

Has had several real world work experiences 1.67 16<br />

Has had a paid job 2.17 25<br />

Academic Doma<strong>in</strong><br />

Can follow a comm<strong>and</strong>/ environmental cue to transition 1.83 20<br />

Can read functional words such as “women, men, exit” 1.92 21<br />

Uses predeterm<strong>in</strong>ed amount of money to make a purchase 2.00 23<br />

Recreation Doma<strong>in</strong><br />

Can do a variety of activities alone (such as listen music) 2.17 25<br />

Can use community recreation facilities 2.33 26<br />

Can play games, cards, or has hobby such as arts <strong>and</strong> crafts 2.33 26<br />

a Mean scores on a 3 po<strong>in</strong>t Scale <strong>in</strong>clude 1 critically important, 2 helps but is not critical, 3 does not<br />

make a difference; Rank rank order of the 59 skills on the rat<strong>in</strong>g matrix<br />

Suggestions for Transition<strong>in</strong>g Youth, Their<br />

Families, <strong>and</strong> Educators<br />

Rank<br />

When asked to generate suggestions for transition<strong>in</strong>g<br />

youth with DD, families <strong>and</strong> educators<br />

to underst<strong>and</strong> the realities of CRP services<br />

<strong>and</strong> SE, we found themes related to the differences<br />

between school <strong>and</strong> adult service systems,<br />

the importance of work experience, <strong>and</strong><br />

the need to fade supports for transition<strong>in</strong>g<br />

youth dur<strong>in</strong>g the f<strong>in</strong>al years of public school.<br />

All participants discussed the importance of<br />

underst<strong>and</strong><strong>in</strong>g the scope <strong>and</strong> limitations of<br />

the services available through a CRP. Several<br />

mentioned the importance of families underst<strong>and</strong><strong>in</strong>g<br />

the differences between special education<br />

<strong>and</strong> adult services, especially transportation<br />

<strong>and</strong> schedul<strong>in</strong>g. Specifically, they felt<br />

families needed to be open to discuss<strong>in</strong>g options<br />

for transportation <strong>and</strong> to be flexible with<br />

work schedules once their son or daughter<br />

100 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


was employed <strong>in</strong> the community. This generally<br />

meant the consumer would not necessarily<br />

work dur<strong>in</strong>g “school day hours.”<br />

Three participants re<strong>in</strong>forced the importance<br />

of underst<strong>and</strong><strong>in</strong>g the difference between<br />

unpaid (or stipend) work <strong>in</strong> school versus<br />

paid work experience <strong>in</strong> the community.<br />

One participant <strong>in</strong>dicated that transition<strong>in</strong>g<br />

youth often came to the CRP with only enclave<br />

work experience so “parents come <strong>in</strong> <strong>and</strong><br />

th<strong>in</strong>k that the consumer is ready for more<br />

than he/she is.” Another participant felt families<br />

should underst<strong>and</strong> that “consumers will<br />

not automatically make m<strong>in</strong>imum wage; they<br />

should underst<strong>and</strong> the concept of sub m<strong>in</strong>imum<br />

wage.”<br />

In terms of suggestions for school system<br />

personnel, participants felt teachers needed<br />

to be knowledgeable about adult services <strong>and</strong><br />

their fund<strong>in</strong>g sources <strong>and</strong> <strong>in</strong>form families<br />

about differences between special education<br />

<strong>and</strong> adult services. Specifically, the role of the<br />

parent needed to change as special education<br />

ends for the transition<strong>in</strong>g youth. Participants<br />

expected transition<strong>in</strong>g youth (not their parents)<br />

to identify employment <strong>in</strong>terests <strong>and</strong><br />

preferences, have transportation skills, <strong>and</strong><br />

take charge of their plann<strong>in</strong>g process at the<br />

CRP. Ten participants also emphasized the<br />

importance of schools shar<strong>in</strong>g authentic, realistic<br />

<strong>in</strong>formation about transition<strong>in</strong>g youth<br />

through resumes or a document that described<br />

work experience <strong>and</strong> preferences <strong>in</strong><br />

detail (e.g., number of hours worked, amount<br />

of support needed, skills, paid versus unpaid<br />

placements).<br />

Four participants also mentioned the need<br />

for transition<strong>in</strong>g youth <strong>and</strong> families to underst<strong>and</strong><br />

guardianship issues <strong>and</strong> suggested that<br />

educators needed to address this issue <strong>in</strong><br />

greater detail at secondary transition plann<strong>in</strong>g<br />

meet<strong>in</strong>gs. Overall, participants suggested that<br />

educators assist families underst<strong>and</strong> the expectations<br />

of adult services <strong>and</strong> teach transition<strong>in</strong>g<br />

youth to advocate <strong>and</strong> speak for themselves<br />

dur<strong>in</strong>g the <strong>in</strong>terview process as they<br />

select a CRP.<br />

Discussion<br />

This exploratory study provides <strong>in</strong>sight <strong>in</strong>to<br />

the types of skills <strong>and</strong> experiences CRP perceive<br />

as valuable for transition<strong>in</strong>g youth with a<br />

post school goal of SE. The results contribute<br />

to our knowledge base on how to best prepare<br />

secondary <strong>and</strong> transition<strong>in</strong>g youth with DD<br />

for adult <strong>in</strong>tegrated employment experiences.<br />

This perspective from adult service providers<br />

is largely absent from the secondary <strong>and</strong> transition<br />

literature <strong>and</strong> can serve as basis for future<br />

research.<br />

Due to the small number of participants<br />

from only one state, the generalization of the<br />

results is limited. As well, the validity of the<br />

survey items was not established as it represented<br />

the ideas of the authors <strong>and</strong> teachers<br />

from one state that provided transition services<br />

to students with DD ages 18–21. However,<br />

survey items were based on a review of<br />

practices <strong>in</strong> the literature on <strong>in</strong>teragency collaboration,<br />

employment options, <strong>and</strong> transition<br />

services to young adults with DD. The<br />

survey was also piloted <strong>and</strong> revised based on<br />

<strong>in</strong>put from special education transition teachers<br />

along with CRP directors <strong>and</strong> SE staff.<br />

Eligibility <strong>and</strong> Recruitment for CRPs<br />

All participants emphasized that potential<br />

consumers needed to have long-term fund<strong>in</strong>g<br />

from the state DD agency or a Medicaid<br />

Waiver to receive services at CRPs. This f<strong>in</strong>d<strong>in</strong>g<br />

is unique to our study <strong>and</strong> po<strong>in</strong>ts to the<br />

need for educators <strong>and</strong> families to underst<strong>and</strong><br />

specific eligibility requirements for adult services<br />

<strong>and</strong> also to dist<strong>in</strong>guish between fund<strong>in</strong>g<br />

from vocational rehabilitation (time-limited)<br />

<strong>and</strong> DD (on-go<strong>in</strong>g). In this state, educators<br />

<strong>and</strong> families had the benefit of a state funded<br />

m<strong>and</strong>ate to provide seamless services to transition<strong>in</strong>g<br />

youth with developmental disabilities<br />

as they exited the school system. It was not<br />

clear from the literature review or our <strong>in</strong>ternet<br />

search how many states provide this opportunity<br />

for transition<strong>in</strong>g youth. However, it<br />

was important to note that hav<strong>in</strong>g this seamless<br />

fund<strong>in</strong>g did not guarantee that a CRP<br />

would accept the transition<strong>in</strong>g youth for services<br />

or provide supported employment services.<br />

The need for transition<strong>in</strong>g youth, rather<br />

than their parents, to express employment<br />

<strong>in</strong>terests <strong>and</strong> preferences, have paid work experience<br />

<strong>in</strong> school, underst<strong>and</strong> employer expectations,<br />

possess good hygiene, <strong>and</strong> be able<br />

to use public or private transportation options<br />

Perceptions of Supported Employment Providers / 101


was strongly considered <strong>in</strong> determ<strong>in</strong><strong>in</strong>g which<br />

consumers would be accepted at a CRP.<br />

In terms of transition<strong>in</strong>g youth, families,<br />

<strong>and</strong> educators underst<strong>and</strong><strong>in</strong>g the differences<br />

among CRPs, it is notable that the participants<br />

emphasized that fund<strong>in</strong>g levels determ<strong>in</strong>ed<br />

the services available for an <strong>in</strong>dividual. It is<br />

also important to note seven respondents reported<br />

their CRP was <strong>in</strong> the process of chang<strong>in</strong>g<br />

the type of services provided from facility<br />

based work <strong>and</strong> community based work to<br />

only supported (or community based) employment<br />

services. It is crucial that families<br />

<strong>and</strong> secondary educators underst<strong>and</strong> that<br />

transition<strong>in</strong>g with DD who are not adequately<br />

be<strong>in</strong>g prepared for community employment<br />

may not receive services from some CRPs. We<br />

believe that many educators <strong>and</strong> families are<br />

not aware of this chang<strong>in</strong>g service paradigm as<br />

they participate <strong>in</strong> secondary transition<strong>in</strong>g<br />

plann<strong>in</strong>g.<br />

Skills, Assessments, <strong>and</strong> Experiences for Supported<br />

Employment<br />

In terms of how to best prepare transition<strong>in</strong>g<br />

youth for adult SE services, the participants<br />

identified self-management <strong>and</strong> advocacy<br />

skills along with authentic work experiences,<br />

<strong>and</strong> mean<strong>in</strong>gful assessments documented on<br />

a resume. These f<strong>in</strong>d<strong>in</strong>gs validate other studies<br />

that have identified practices that enhance<br />

employment outcomes for <strong>in</strong>dividuals with<br />

low-<strong>in</strong>cidence disabilities (Brown et al., 2006;<br />

Cunn<strong>in</strong>gham & Altman, 1993; Heal & Rusch,<br />

1995; Noonan et al., 2008; White & We<strong>in</strong>er,<br />

2004; W<strong>in</strong>sor & Butterworth, 2006). F<strong>in</strong>d<strong>in</strong>gs<br />

from this study also highlight the importance<br />

of teach<strong>in</strong>g transition<strong>in</strong>g youth self-management<br />

skills (e.g., avoids/reports sexual abuse,<br />

hygiene, toilet<strong>in</strong>g) <strong>and</strong> are similar to studies<br />

that have explored the relationship between<br />

self-management <strong>and</strong> employment outcomes<br />

(Cunn<strong>in</strong>gham & Altman; Heal & Rusch).<br />

The importance of teach<strong>in</strong>g functional,<br />

community based skills <strong>and</strong> self-advocacy skills<br />

to transition<strong>in</strong>g youth were also supported by<br />

this study. This f<strong>in</strong>d<strong>in</strong>g is important as schools<br />

are currently focused on content st<strong>and</strong>ards<br />

<strong>and</strong> assessments to comply with the No Child<br />

Left Beh<strong>in</strong>d Act of 2001. For students, ages<br />

18–21, with DD or low-<strong>in</strong>cidence disabilities, it<br />

is important to reth<strong>in</strong>k the experiences, skills,<br />

<strong>and</strong> delivery of <strong>in</strong>struction dur<strong>in</strong>g their f<strong>in</strong>al<br />

years of public school. Our f<strong>in</strong>d<strong>in</strong>gs on the<br />

skills needed by transition<strong>in</strong>g youth provide<br />

support for those who have long advocated for<br />

age-appropriate, <strong>in</strong>tegrated community based<br />

experiences rather than academic <strong>in</strong>struction<br />

<strong>in</strong>side a classroom dur<strong>in</strong>g students’ f<strong>in</strong>al years<br />

of public education (Gaumer, Morn<strong>in</strong>gstar, &<br />

Clark, 2004; Grigal, Neubert, & Moon, 2005;<br />

Neubert & Moon, 2006; Smith & Pucc<strong>in</strong>i,<br />

1995; Tashie, Malloy, & Lichtenste<strong>in</strong>, 1998).<br />

Participants <strong>in</strong> this study re<strong>in</strong>forced the importance<br />

of transition<strong>in</strong>g youth obta<strong>in</strong><strong>in</strong>g<br />

paid employment before leav<strong>in</strong>g the school<br />

system <strong>and</strong> learn<strong>in</strong>g transportation modes<br />

that can be ma<strong>in</strong>ta<strong>in</strong>ed after exit<strong>in</strong>g school<br />

(Brown et al., 2006; Eisenman et al., 2009). A<br />

f<strong>in</strong>d<strong>in</strong>g unique to this study was the impact of<br />

unpaid secondary work experience, a practice<br />

often used <strong>in</strong> secondary programs for students<br />

with low-<strong>in</strong>cidence disabilities. Participants<br />

viewed unpaid work as valuable for <strong>in</strong>itially<br />

identify<strong>in</strong>g vocational <strong>in</strong>terests <strong>and</strong> preferences.<br />

However, it was clear that they did not<br />

value work with pay from school stipends as a<br />

f<strong>in</strong>al or s<strong>in</strong>gle work experience before transition<strong>in</strong>g<br />

youth exited school.<br />

Participants expressed a desire for records<br />

such as a resume that summarized skills <strong>and</strong><br />

work experiences succ<strong>in</strong>ctly. N<strong>in</strong>e out 12 participants<br />

felt the <strong>in</strong>formation or transition assessments<br />

received from the schools were <strong>in</strong>adequate.<br />

Def<strong>in</strong><strong>in</strong>g <strong>and</strong> plann<strong>in</strong>g a student’s<br />

post school outcomes based on age-appropriate<br />

transition assessments is now a requirement<br />

of IDEA 2004. We need to underst<strong>and</strong>,<br />

through future research, the barriers educators<br />

encounter when undertak<strong>in</strong>g this process<br />

<strong>and</strong> how transition<strong>in</strong>g youth can present this<br />

<strong>in</strong>formation when they <strong>in</strong>terview with adult<br />

providers.<br />

An <strong>in</strong>terest<strong>in</strong>g f<strong>in</strong>d<strong>in</strong>g was that none of participants<br />

were aware of the SOP that each<br />

student exits the school system with <strong>in</strong> this<br />

state. The SOP document, accord<strong>in</strong>g to IDEA<br />

2004 (<strong>and</strong> <strong>in</strong> this state), is supposed to document<br />

a student’s <strong>in</strong>terests, strengths, preferences,<br />

needs <strong>and</strong> post-school goals. This document<br />

is meant to follow the transition<strong>in</strong>g<br />

student to the next provider (e.g., adult services,<br />

college) <strong>and</strong> to enhance communication<br />

between the school, families, transition<strong>in</strong>g<br />

youth, <strong>and</strong> adult providers (Izzo &<br />

102 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Kochhar-Bryant, 2006). Mak<strong>in</strong>g this document<br />

useful <strong>and</strong> accessible to adult providers<br />

who work with transition<strong>in</strong>g youth should be<br />

explored through future research. Us<strong>in</strong>g <strong>in</strong>formation<br />

ga<strong>in</strong>ed through on-go<strong>in</strong>g transition<br />

assessments should serve as the basis for educators<br />

charged with construct<strong>in</strong>g <strong>and</strong> updat<strong>in</strong>g<br />

the SOP document (Sitl<strong>in</strong>gton, Neubert,<br />

Begun, Lombard, & Leconte, 2007).<br />

Suggestions from CRP Staff<br />

Suggestions from our participants on how to<br />

better prepare transition<strong>in</strong>g youth for adult<br />

SE services are not new. Suggested practices<br />

support the literature on educat<strong>in</strong>g <strong>and</strong> empower<strong>in</strong>g<br />

families <strong>and</strong> youth dur<strong>in</strong>g the secondary<br />

years (Brown et al., 2006, Eisenman et<br />

al., 2009; Inge & Moon, 2006). Despite the<br />

focus on transition plann<strong>in</strong>g <strong>and</strong> <strong>in</strong>teragency<br />

efforts <strong>in</strong> IDEA s<strong>in</strong>ce 1990, our participants<br />

<strong>in</strong>dicated that families of transition<strong>in</strong>g youth<br />

with DD generally do not underst<strong>and</strong> the differences<br />

between special education services<br />

(entitlement) <strong>and</strong> adult services (eligibility<br />

<strong>and</strong> fund<strong>in</strong>g). CRP staff expressed a strong<br />

desire for secondary educators to teach transition<strong>in</strong>g<br />

youth with DD <strong>and</strong> their families the<br />

follow<strong>in</strong>g: (a) the requirements for eligibility<br />

from DD agencies that fund services provided<br />

by the CRPs; (b) the chang<strong>in</strong>g <strong>and</strong> dim<strong>in</strong>ished<br />

role that parents should play as their son or<br />

daughter moves from special education to<br />

adult services; <strong>and</strong> (c) the need for transition<strong>in</strong>g<br />

youth to advocate for <strong>and</strong> choose services<br />

<strong>and</strong> employment options they desire as they<br />

transition from school to the community.<br />

Aga<strong>in</strong>, the literature <strong>and</strong> research on evidence-based<br />

practices on secondary special<br />

education <strong>and</strong> transition services has supported<br />

these recommendations for over 20<br />

years, but our results br<strong>in</strong>g <strong>in</strong>to question their<br />

practice.<br />

As half the participants noted that their<br />

respective CRPs may provide only SE services<br />

<strong>in</strong> the future, it is even more crucial that<br />

transition<strong>in</strong>g youth with DD, their families,<br />

<strong>and</strong> educators underst<strong>and</strong> which behaviors<br />

<strong>and</strong> skills <strong>in</strong>crease the likelihood of receiv<strong>in</strong>g<br />

services at particular CRPs. These skills <strong>in</strong>clude<br />

h<strong>and</strong>l<strong>in</strong>g menstrual care, <strong>in</strong>dependent<br />

toilet<strong>in</strong>g, <strong>and</strong> h<strong>and</strong> wash<strong>in</strong>g, <strong>and</strong> avoid<strong>in</strong>g sexual<br />

abuse, drugs <strong>and</strong> alcohol. While these<br />

skills have been targeted <strong>in</strong> functional curricula<br />

for some time (Ford et al., 1989) this study<br />

is unique <strong>in</strong> not<strong>in</strong>g that a lack of self-management,social/self-determ<strong>in</strong>ation/communication<br />

skills, <strong>and</strong> general community function<strong>in</strong>g<br />

skills may actually keep transition<strong>in</strong>g<br />

youth from receiv<strong>in</strong>g services at some CRPs.<br />

This may be an unspoken expectation on the<br />

part of CRPs or it could be that educators <strong>and</strong><br />

families are not aware of the importance of<br />

these skills <strong>in</strong> light of the current academic<br />

dem<strong>and</strong>s due to the No Child Left Beh<strong>in</strong>d<br />

Act.<br />

Our participants ranked the <strong>in</strong>struction of<br />

academic skills as m<strong>in</strong>imally important to access<strong>in</strong>g<br />

CRPs <strong>and</strong> supported employment services.<br />

This f<strong>in</strong>d<strong>in</strong>g is important for teachers<br />

<strong>and</strong> families who often are <strong>in</strong>sistent that academic<br />

<strong>in</strong>struction be the primary focus of a<br />

student’s <strong>in</strong>dividualized education program<br />

dur<strong>in</strong>g the f<strong>in</strong>al public school years. As Brown<br />

et al. (2006) asserted, we need to reth<strong>in</strong>k how<br />

academics are blended with <strong>in</strong>struction of<br />

functional skills <strong>and</strong> focus on community employment<br />

beg<strong>in</strong>n<strong>in</strong>g at age 14. The older the<br />

student is, the more this <strong>in</strong>struction must take<br />

the place of classroom-based academic <strong>in</strong>struction.<br />

The functional <strong>and</strong> age appropriate<br />

skills rated as important <strong>in</strong> our rat<strong>in</strong>g matrix<br />

certa<strong>in</strong>ly provide a place to start. Even more<br />

helpful to teachers <strong>and</strong> families is the fact that<br />

they are primarily derived from the Syracuse<br />

Curriculum (Ford et al., 1989) that can be<br />

used across all age groups for communitybased<br />

<strong>in</strong>struction <strong>in</strong> conjunction with regular<br />

education st<strong>and</strong>ards <strong>and</strong> goals.<br />

As SE services are primarily funded by state<br />

DD agencies <strong>and</strong> provided by CRPs, it is essential<br />

that transition<strong>in</strong>g youth with DD who have<br />

employment post-school goals, their families,<br />

<strong>and</strong> educators underst<strong>and</strong> the eligibility criteria<br />

<strong>and</strong> the skills, assessments, <strong>and</strong> experiences<br />

that CRP staff perceive as important.<br />

Armed with this knowledge, students, families<br />

<strong>and</strong> educators can better prioritize what to<br />

<strong>in</strong>clude <strong>in</strong> the IEP for <strong>in</strong>struction that will best<br />

facilitate a smooth transition to adult SE services.<br />

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Perceptions of Supported Employment Providers / 103


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25.<br />

Received: 23 July 2009<br />

Initial Acceptance: 20 September 2009<br />

F<strong>in</strong>al Acceptance: 25 January 2010<br />

Perceptions of Supported Employment Providers / 105


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 106–115<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

Mediation between Staff <strong>and</strong> Elderly Persons with Intellectual<br />

Disability with Alzheimer Disease as a Means of Enhanc<strong>in</strong>g<br />

Their Daily Function<strong>in</strong>g<br />

Hefziba Lifshitz <strong>and</strong> Pn<strong>in</strong>a S. Kle<strong>in</strong><br />

Bar-Ilan University<br />

Abstract: This study presents a new way of mediation between staff <strong>and</strong> elderly persons with <strong>in</strong>tellectual<br />

disability (ID) <strong>and</strong> Alzheimer type dementia (AD), i.e., the MISC (Mediational Intervention for Sensitiz<strong>in</strong>g<br />

Caregivers (Kle<strong>in</strong>, 1988, 2003) model. The MISC was adopted for <strong>in</strong>teractions between staff <strong>and</strong> adults with<br />

ID <strong>and</strong> AD based on observations of <strong>in</strong>teractions between staff <strong>and</strong> adults with ID. The overall objective is to<br />

help caregivers <strong>and</strong> direct staff relate to their dependents <strong>in</strong> a way that will enhance their cognitive, emotional,<br />

<strong>and</strong> behavioral function<strong>in</strong>g. It is based on the <strong>in</strong>tegration of the person-centered approach, the cognitive<br />

rehabilitation approach (Clare, Wilson, Carter, & Hodges, 2003) <strong>and</strong> the mediational approach (Feuerste<strong>in</strong><br />

& R<strong>and</strong>, 1979; Feuerste<strong>in</strong>, 2003). The five mediational parameters can be applied dur<strong>in</strong>g daily activity: meal<br />

<strong>and</strong> medication time, work sessions <strong>and</strong> leisure activities. The cognitive, emotional, <strong>and</strong> behavioral parameters<br />

of the MISC, <strong>in</strong>clud<strong>in</strong>g their rationale, aim, strategies, <strong>and</strong> examples of their implementation <strong>in</strong> a population<br />

of adults with ID <strong>and</strong> AD, are <strong>in</strong>cluded. A case study describ<strong>in</strong>g the efficacy of the MISC as applied to a person<br />

with ID/AD is presented.<br />

Israel mirrors the worldwide trend of an <strong>in</strong>creas<strong>in</strong>g<br />

number of adults with <strong>in</strong>tellectual<br />

disability (ID) who survive to old age. Of the<br />

6,122 persons with ID <strong>in</strong> residential care centers,<br />

42.65% are aged 21–39; 37.5% are over<br />

40 <strong>and</strong> 6.38% are 60 years or older. Of those<br />

who are 40 <strong>and</strong> above, 16.3% have Down syndrome.<br />

Of these, 5% suffer from dementia<br />

(Merrick, 2009).<br />

One of the serious problems result<strong>in</strong>g from<br />

the <strong>in</strong>crease <strong>in</strong> lifespan is a concomitant rise<br />

<strong>in</strong> cases of dementia of the Alzheimer type<br />

(DAT) among adults with/without Down syndrome.<br />

Estimates of the age-specific prevalence<br />

of dementia <strong>in</strong> adults with Down syndrome<br />

have varied widely, from under 10% to<br />

over 75% (Zigman, Schupf, Sersen & Silverman,<br />

1996). Virtually all adults with Down<br />

syndrome over 35 to 40 years of age who have<br />

been autopsied exhibited key neuropathological<br />

changes characteristic of Alzheimer’s dis-<br />

Correspondence concern<strong>in</strong>g this article should<br />

be addressed to Hefziba Lifshitz, School of <strong>Education</strong>,<br />

Bar-Ilan University, Ramat-Gan, Israel. Email:<br />

lifshih1@netvision.net.il<br />

ease, <strong>in</strong>clud<strong>in</strong>g deposition of beta-amyloid <strong>in</strong><br />

diffuse <strong>and</strong> neuritic plaques <strong>and</strong> neurofibrillary<br />

tangles (Frasher & Chung, 1996; Holl<strong>and</strong>,<br />

Hon, Huppert, Stevens, & Watson, 1998; Malamud,<br />

1972; Mann, Yates, & Marcyniuk, 1984;<br />

Wisniewski, Wisniewski, & Wen, 1985). This<br />

association appears to be due to a triplication<br />

of the gene for the beta-amyloid precursor<br />

prote<strong>in</strong> (-APP) which is located on the proximal<br />

part of the long arm of chromosome 21<br />

(Goldgaber, Lerman, McBride, Saffiotti, & Gajdusek,<br />

1987; Robakis et al., 1987; Rumble et<br />

al., 1989).<br />

Alzheimer’s disease presents three stages<br />

(Schapiro, 1988). At first, only cognitive functions<br />

decrease, manifested as senility. Later<br />

there is deterioration <strong>in</strong> rout<strong>in</strong>e <strong>and</strong> vocational<br />

activities <strong>and</strong> behavior, characterized by<br />

dementia. F<strong>in</strong>ally, there is deterioration <strong>in</strong><br />

ADL skills function<strong>in</strong>g.<br />

Most studies deal<strong>in</strong>g with elderly persons<br />

with ID <strong>and</strong> AD focus on estimates of dementia<br />

<strong>in</strong> populations with ID, detect<strong>in</strong>g the signs<br />

of dementia, the age of the onset of the disease<br />

(Janicki & Dalton, 2000) <strong>and</strong> the biological<br />

signs of dementia (Goldgaber et al.,1987;<br />

Robakis et al., 1987; Rumble et al., 1989).<br />

106 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Another issue that has been at the center of<br />

research <strong>in</strong>terest is the development of diagnostic<br />

tools for identification of the disease<br />

(Burt & Aylward, 2000; Evenhuis, Kengen, &<br />

Eurl<strong>in</strong>gs, 1990; Frasher & Chung, 1996; Janicki,<br />

Heller, Seltzer & Hogg, 1996). Other<br />

studies focus on the stressors of the family<br />

caregivers or staff who take care of elderly<br />

persons with ID <strong>and</strong> AD (McCallion, McCarron,<br />

& Force, 2005). As far as we know there<br />

have been no attempts to relate to <strong>in</strong>tervention<br />

or <strong>in</strong>teraction between caregivers for persons<br />

with ID <strong>and</strong> AD <strong>in</strong> daily life. Our study<br />

aims to fill this void.<br />

Cognitive Rehabilitation for People<br />

with Dementia<br />

The concept of rehabilitation means ‘enabl<strong>in</strong>g<br />

people who are disabled by <strong>in</strong>jury or<br />

disease to achieve their optimum physical, psychological,<br />

social <strong>and</strong> vocational well-be<strong>in</strong>g’<br />

(Clare et al., 2003). This concept can be applied<br />

to people at different life stages <strong>and</strong> with<br />

different types of problems or disorders <strong>in</strong>clud<strong>in</strong>g<br />

people with dementia, especially <strong>in</strong><br />

the early stages where changes <strong>in</strong> memory <strong>and</strong><br />

cognitive function<strong>in</strong>g have a prom<strong>in</strong>ent impact<br />

on well-be<strong>in</strong>g.<br />

Rehabilitation can focus on a range of different<br />

areas of need, <strong>and</strong> goals can be adjusted<br />

flexibly <strong>in</strong> response to chang<strong>in</strong>g needs.<br />

This is based on the underst<strong>and</strong><strong>in</strong>g that despite<br />

difficulties with memory <strong>and</strong> other cognitive<br />

functions, people with dementia still<br />

have the ability to learn new associations <strong>and</strong><br />

<strong>in</strong>formation, <strong>and</strong> to adjust their behavior <strong>and</strong><br />

responses.<br />

Cognitive rehabilitation aims to ‘enable clients<br />

or patients, <strong>and</strong> their families, to live<br />

with, manage, by-pass, reduce or come to<br />

terms with deficits precipitated by <strong>in</strong>jury to<br />

the bra<strong>in</strong>’ (Claire et al., 2003). Cognitive rehabilitation<br />

for people with dementia does<br />

not typically aim to cure or reduce impairment<br />

at the neurological level. Rather, it aims<br />

to f<strong>in</strong>d ways of deal<strong>in</strong>g with the problems that<br />

arise as a result of cognitive changes, so as to<br />

enable the persons to participate <strong>in</strong> <strong>in</strong>teractions<br />

<strong>and</strong> engage <strong>in</strong> desired activities as best<br />

they can, with<strong>in</strong> their own personal <strong>and</strong> social<br />

context. This means that cognitive rehabilitation<br />

needs to identify specific strategies<br />

for deal<strong>in</strong>g with difficulties result<strong>in</strong>g from<br />

changes <strong>in</strong> memory or other cognitive doma<strong>in</strong>s.<br />

A key strength of the cognitive rehabilitation<br />

approach is that <strong>in</strong>terventions are <strong>in</strong>dividually<br />

tailored <strong>and</strong> focus directly on real<br />

everyday situations <strong>and</strong> difficulties <strong>in</strong> a collaborative<br />

manner. The start<strong>in</strong>g po<strong>in</strong>t <strong>in</strong>volves<br />

identify<strong>in</strong>g desired outcomes. This means that<br />

<strong>in</strong>terventions focus on th<strong>in</strong>gs that cause concern<br />

to the person with dementia <strong>and</strong> his or<br />

her family members or staff, <strong>and</strong> goals relevant<br />

to improv<strong>in</strong>g their quality of life. Specific<br />

<strong>in</strong>terventions are then devised, based on an<br />

underst<strong>and</strong><strong>in</strong>g of the profile of cognitive function<strong>in</strong>g<br />

that <strong>in</strong>dicates both strengths <strong>and</strong> difficulties,<br />

tak<strong>in</strong>g <strong>in</strong>to account the person’s preferred<br />

cop<strong>in</strong>g styles, other psychological <strong>and</strong><br />

emotional needs, <strong>and</strong> support system.<br />

Cognitive rehabilitation is also associated<br />

with the cognitive reserve concept. This term<br />

is def<strong>in</strong>ed as the ability to optimize performance<br />

by ‘recruit<strong>in</strong>g’ alternative bra<strong>in</strong> networks<br />

<strong>and</strong> reflect<strong>in</strong>g the use of different cognitive<br />

strategies (Corral, Rodrguez, Amenedo,<br />

Snchez, & Daz, 2006; Katzman, 1993; Scarmeas<br />

& Stern, 2003). This bra<strong>in</strong> reserve capacity<br />

is def<strong>in</strong>ed <strong>in</strong> terms of the synapse count or<br />

bra<strong>in</strong> volume. Recent studies show a positive<br />

relationship between bra<strong>in</strong> size <strong>and</strong> cognitive<br />

function<strong>in</strong>g <strong>in</strong> pathological <strong>and</strong> healthy samples<br />

(Katzman).<br />

Interaction between Caregivers <strong>and</strong> Persons<br />

with AD<br />

Caregiver <strong>in</strong>tervention studies among the general<br />

population have been conducted to address<br />

multiple negative outcomes such as<br />

emotional distress, burden <strong>and</strong> depression experienced<br />

by caregivers of adults with Alzheimer<br />

disease (Brodaty, Green, & Koschera,<br />

2003). Most of these studies focused on the<br />

psychological emotional stress or skills needed<br />

for daily liv<strong>in</strong>g (with only modest success, see<br />

Sorensen, P<strong>in</strong>quart, & Duerste<strong>in</strong>, 2002). Research<br />

on family caregiv<strong>in</strong>g of persons with ID<br />

has been strongly <strong>in</strong>fluenced by stress <strong>and</strong><br />

cop<strong>in</strong>g models (Lazarus & Folkman, 1984)<br />

which recognize that there are subjective as<br />

well as objective stress factors, that a variety of<br />

cop<strong>in</strong>g mechanisms may be effective, <strong>and</strong> that<br />

appraisals <strong>and</strong> resources may mediate. These<br />

Mediation between Caregivers <strong>and</strong> Adults with ID <strong>and</strong> AD / 107


studies were anchored <strong>in</strong> the “Pearl<strong>in</strong> Model”<br />

(Pearl<strong>in</strong>, Mullan, Semple, & Skaff, 1990),<br />

which has emerged as most prom<strong>in</strong>ent <strong>in</strong><br />

fram<strong>in</strong>g suggestions for avenues to assist families<br />

to cope more effectively. This model has<br />

supported the development of <strong>in</strong>terventions<br />

to deal with behavioral problems, environmental<br />

modification to address the issues of<br />

<strong>in</strong>creased dependency, <strong>and</strong> safety needs <strong>and</strong><br />

outside support <strong>and</strong> education for reduc<strong>in</strong>g<br />

physical dem<strong>and</strong>s of care tasks (Schneider,<br />

Murray, Banerjee, & Mann, 1999). McCallion<br />

et al. (2005) adapted the Pearl<strong>in</strong> model for<br />

measur<strong>in</strong>g stress <strong>and</strong> burden among caregivers<br />

of elderly persons with ID. It was found<br />

that staff caregivers experienced greater subjective<br />

burden than burden that has been reported<br />

for family caregivers.<br />

A literature search <strong>in</strong> ERIC <strong>and</strong> PsycINFO<br />

(1995-2004) yielded attempts to implement<br />

<strong>in</strong>tervention programs designed to improve<br />

the quality of the staff/residents’ <strong>in</strong>teractions<br />

<strong>in</strong> facilities adm<strong>in</strong>ister<strong>in</strong>g to adults with ID.<br />

These <strong>in</strong>terventions focused on three major<br />

aspects: emotional components that could promote<br />

the residents’ emotional well-be<strong>in</strong>g<br />

(Golden & Reese, 1996; Leidy, 2004; S<strong>in</strong>gh et<br />

al. 2004); social <strong>in</strong>teraction, with a special focus<br />

on conversation between staff <strong>and</strong> residents<br />

(Kuder & Bryne, 1993); <strong>and</strong> strategies, aimed at<br />

improv<strong>in</strong>g the <strong>in</strong>volvement of residents <strong>in</strong><br />

daily activities (Felce et al. 1996).<br />

The above <strong>in</strong>terventions lack a holistic approach<br />

which encompasses emotional, behavioral,<br />

<strong>and</strong> cognitive components of the<br />

<strong>in</strong>teraction. Furthermore, they focus on <strong>in</strong>teraction<br />

between staff <strong>and</strong> adults with ID but<br />

not on elderly persons with ID, especially<br />

those suffer<strong>in</strong>g from Alzheimer type dementia.<br />

However, these <strong>in</strong>terventions lack operative<br />

strategies, <strong>in</strong>clud<strong>in</strong>g mediation <strong>and</strong> <strong>in</strong>teraction<br />

between staff <strong>and</strong> participants with ID<br />

<strong>and</strong> AD <strong>in</strong> daily life activities. This led us to<br />

advocate the MISC model: A new way of mediation<br />

between staff-adults with ID, <strong>and</strong> between<br />

staff-elderly persons with ID with <strong>and</strong><br />

without dementia.<br />

MISC—Mediational Intervention for<br />

Sensitiz<strong>in</strong>g Caregivers<br />

The overall objective of the MISC (Kle<strong>in</strong>,<br />

1988, 2003) is to help direct staff or caregivers<br />

relate to their dependents <strong>in</strong> a way that will<br />

enhance their cognitive, emotional, <strong>and</strong> behavioral<br />

function<strong>in</strong>g. The MISC aims to provide<br />

caregivers with operative strategies, <strong>in</strong>clud<strong>in</strong>g<br />

mediations that are implemented<br />

dur<strong>in</strong>g daily life activities. Based on the efficacy<br />

of the MISC among younger <strong>in</strong>dividuals<br />

(Greenspan & Weider, 1996; Kle<strong>in</strong>, 1992,<br />

2003), it has been applied to children with DS<br />

(Sobleman-Rosenthal & Kle<strong>in</strong>, 2003) <strong>and</strong><br />

PDD (Greenspan & Weider).<br />

The essence of the MISC is sensitization <strong>and</strong><br />

rais<strong>in</strong>g consciousness of key issues <strong>in</strong> the caregivers-adults<br />

with ID <strong>and</strong> AD relationship, i.e.<br />

try<strong>in</strong>g to raise the caregivers’ awareness of<br />

their perceptions of the persons with ID, of<br />

themselves as caregivers <strong>and</strong> of the person’s<br />

emotional <strong>and</strong> cognitive needs. The five mediational<br />

parameters can be implemented<br />

dur<strong>in</strong>g daily activity, i.e. meal <strong>and</strong> medication<br />

time, vocational time <strong>and</strong> leisure activities<br />

(Kle<strong>in</strong>, 1992, 2003).<br />

The MISC is an <strong>in</strong>tegration of three major<br />

theoretical frameworks:<br />

Person-centered cultural approaches which emphasize<br />

<strong>in</strong>dividual identity <strong>and</strong> selfhood: The<br />

<strong>in</strong>teraction with demented persons plays an<br />

important role by empower<strong>in</strong>g their sense of<br />

self-identity <strong>and</strong> enhanc<strong>in</strong>g their feel<strong>in</strong>gs of<br />

be<strong>in</strong>g <strong>in</strong> control. Cultural attitud<strong>in</strong>al differences<br />

towards Alzheimer’s disease are taken<br />

<strong>in</strong>to consideration when design<strong>in</strong>g <strong>in</strong>terventions<br />

between caregivers <strong>and</strong> persons with dementia.<br />

Rehabilitation approach: The MISC adopted<br />

the cognitive rehabilitation approach (Clare<br />

et al., 2003) which aims to f<strong>in</strong>d ways to deal<br />

with the problems that arise as a result of<br />

cognitive changes of persons with AD, <strong>and</strong> to<br />

f<strong>in</strong>d strategies that would help these persons<br />

compensate <strong>and</strong> overcome memory loss <strong>and</strong><br />

deterioration.<br />

Mediational approaches (Feuerste<strong>in</strong> & R<strong>and</strong>,<br />

1974; Feuerste<strong>in</strong>, 2003): Kle<strong>in</strong>’s (1992) mediational<br />

program is an outgrowth of Feuerste<strong>in</strong>’s<br />

theories of structural-cognitive modifiability<br />

<strong>and</strong> of mediated learn<strong>in</strong>g (Feuerste<strong>in</strong> &<br />

R<strong>and</strong>; Vygotsky, 1978), emphasiz<strong>in</strong>g the importance<br />

of reciprocal relations between both<br />

parties <strong>in</strong> any <strong>in</strong>teraction. Mediated learn<strong>in</strong>g,<br />

as dist<strong>in</strong>ct from direct learn<strong>in</strong>g through the<br />

senses, occurs when the environment is <strong>in</strong>terpreted<br />

for an <strong>in</strong>dividual by another person.<br />

108 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


The mediator is tra<strong>in</strong>ed to take an active role<br />

<strong>in</strong> structur<strong>in</strong>g mean<strong>in</strong>gful components of that<br />

environment, as well as of past <strong>and</strong> future<br />

experiences. The above theories assume that<br />

the human organism is a system open to its<br />

environment <strong>and</strong> accessible to change, even<br />

<strong>in</strong> the presence of three obstacles believed to<br />

prevent change: age, etiology, severity of limitation<br />

(Feuerste<strong>in</strong> & R<strong>and</strong>).<br />

Kle<strong>in</strong> (1992) identified five teach<strong>in</strong>g parameters<br />

relat<strong>in</strong>g to cognitive, emotional <strong>and</strong> behavioral<br />

components necessary for creat<strong>in</strong>g<br />

experiences of mediated learn<strong>in</strong>g. These parameters<br />

were adapted by Lifshitz <strong>and</strong> Kle<strong>in</strong><br />

(2007) for <strong>in</strong>teraction between staff <strong>and</strong><br />

adults with ID with Alzheimer’s disease. The<br />

cognitive, emotional, <strong>and</strong> behavioral parameters<br />

will be presented, <strong>in</strong>clud<strong>in</strong>g their rationale,<br />

aim, strategies, <strong>and</strong> examples of their<br />

implementation <strong>in</strong> a population of adults with<br />

ID with/without AD.<br />

The Cognitive Component<br />

The cognitive component <strong>in</strong>cludes two parameters:<br />

focus<strong>in</strong>g <strong>and</strong> cognitive expansion.<br />

Focus<strong>in</strong>g: Acts of the mediator directed toward<br />

affect<strong>in</strong>g <strong>in</strong>dividuals’ perceptions or behavior<br />

referr<strong>in</strong>g to explicit or declarative<br />

memory (Cohen & Squire, 1980; Schacter &<br />

Tulv<strong>in</strong>g, 1994), i.e., remember<strong>in</strong>g new events<br />

<strong>and</strong> facts becomes more difficult <strong>and</strong> even<br />

impossible for <strong>in</strong>dividuals with Alzheimer’s<br />

disease. Mediation plays an important role <strong>in</strong><br />

help<strong>in</strong>g them remember <strong>and</strong> recognize people,<br />

objects <strong>and</strong> events. Focus<strong>in</strong>g <strong>in</strong>cludes select<strong>in</strong>g,<br />

accentuat<strong>in</strong>g, emphasiz<strong>in</strong>g, schedul<strong>in</strong>g,<br />

group<strong>in</strong>g, organiz<strong>in</strong>g, sequenc<strong>in</strong>g, <strong>and</strong><br />

nam<strong>in</strong>g <strong>in</strong> relation to objects, people, as well<br />

as time <strong>and</strong> space orientation.<br />

Objects should be named <strong>and</strong> activities<br />

should be scheduled accord<strong>in</strong>g to a def<strong>in</strong>ite<br />

<strong>and</strong> not a relative time. Rooms should be<br />

mapped us<strong>in</strong>g draw<strong>in</strong>gs (kitchen, bedroom,<br />

etc.) with precise directions, fixed location of<br />

objects such as watch, calendar, keys <strong>in</strong> ADL<br />

(activity daily liv<strong>in</strong>g skills), leisure or other<br />

activities.<br />

Exp<strong>and</strong><strong>in</strong>g-Transcendence<br />

Rationale: Behavior directed toward exp<strong>and</strong><strong>in</strong>g<br />

cognitive awareness beyond what is neces-<br />

sary to satisfy the immediate need that triggered<br />

the <strong>in</strong>teraction. This parameter is<br />

expressed by clarify<strong>in</strong>g processes, attribut<strong>in</strong>g<br />

past <strong>and</strong> future needs to the present situation,<br />

critical <strong>in</strong>terpretation, <strong>in</strong>ductive/deductive<br />

reason<strong>in</strong>g.<br />

Follow<strong>in</strong>g the theory of cognitive reserve,<br />

cognitive enrichment among adults with ID<br />

cannot be reduced to one or two hours a<br />

week, but needs to be <strong>in</strong>tegrated <strong>in</strong> all daily<br />

activities. The aim is thus to <strong>in</strong>sert literacy<br />

dur<strong>in</strong>g daily life activities, i.e. mealtime, work<br />

session, leisure activities, etc even <strong>in</strong> a population<br />

with ID <strong>and</strong> AD.<br />

Example: When persons with typical development<br />

sit <strong>in</strong> café or restaurant, the first part of<br />

the meal is devoted to read<strong>in</strong>g the menu,<br />

talk<strong>in</strong>g about the nutritional composition, the<br />

contribution of the foods to health, the cook<strong>in</strong>g<br />

<strong>and</strong> bak<strong>in</strong>g process <strong>and</strong> choos<strong>in</strong>g the desired<br />

food. Experienc<strong>in</strong>g knowledge of the<br />

food is an important part of the pleasure <strong>and</strong><br />

the <strong>in</strong>dividual’s quality of life. Even when eat<strong>in</strong>g<br />

alone at home, a person is <strong>in</strong>terested <strong>in</strong><br />

the foods s/he is offered. However, observ<strong>in</strong>g<br />

a meal among adults with ID shows that there<br />

is no verbal <strong>in</strong>teraction between the participants<br />

<strong>and</strong> between staff <strong>and</strong> their charges. On<br />

the contrary, the staff encourages them to eat<br />

quietly. Are we prevent<strong>in</strong>g our charges from<br />

do<strong>in</strong>g what we do? Do we act contrary to the<br />

pr<strong>in</strong>ciple of normalization <strong>and</strong> the quality of<br />

life? Are we aware of the learn<strong>in</strong>g opportunity<br />

which our charges thus miss dur<strong>in</strong>g daily activity?<br />

Cognitive expansion is therefore derived<br />

from Wolfensberger’s (2002) pr<strong>in</strong>cipal of normalization<br />

<strong>and</strong> Schalock’s (1996) concept of<br />

life quality. It relates to exp<strong>and</strong><strong>in</strong>g the knowledge<br />

of the current activity beyond the immediate<br />

need whether at mealtime (you are eat<strong>in</strong>g<br />

a tomato, a cucumber), dur<strong>in</strong>g leisure<br />

activity (go<strong>in</strong>g to the sports club), relat<strong>in</strong>g to<br />

basic mathematical <strong>and</strong> scientific concepts<br />

(the pasta is round <strong>and</strong> shaped like the sun,<br />

the taste is sweet <strong>and</strong> sour). The staff should<br />

talk with the people with ID <strong>and</strong> AD, <strong>and</strong><br />

should verbally or visually mediate these components<br />

for those who lack expressive language<br />

us<strong>in</strong>g pictures, word signs, <strong>and</strong> give<br />

them the opprtunity to choose their preference<br />

from a written menu or from pictures.<br />

Mediation between Caregivers <strong>and</strong> Adults with ID <strong>and</strong> AD / 109


Exp<strong>and</strong><strong>in</strong>g the Communication Cha<strong>in</strong> between<br />

Adults with ID <strong>and</strong> Their Staff<br />

Rationale: A communication cha<strong>in</strong> is def<strong>in</strong>ed<br />

as units of communication (verbal/nonverbal)<br />

that take place <strong>in</strong> one reciprocal sequence.<br />

Alzheimer’s patients have impaired<br />

declarative <strong>and</strong> episodic memory of recent<br />

facts, people, <strong>and</strong> events, while memories of<br />

the past are preserved (Fleischman, Wilson,<br />

Gabreili, Bienias, & Bennett, 2004). One of<br />

the causes of emotional burden for the caregivers<br />

of Alzheimer’s patients is the patients’<br />

tendency to talk extensively of past events.<br />

The caretakers tend to stop the discourse with<br />

their loved ones.<br />

Example: An attempt should be made by staff<br />

to exp<strong>and</strong> the communication cha<strong>in</strong>. This can<br />

be done by us<strong>in</strong>g the topic that was chosen by<br />

the <strong>in</strong>dividual for conversation, associate it to<br />

the past <strong>and</strong> to those of the present, <strong>and</strong> to<br />

exp<strong>and</strong> the content of the discourse <strong>in</strong> terms<br />

of op<strong>in</strong>ions, ideas, <strong>and</strong> world knowledge.<br />

The Emotional Component<br />

The emotional component <strong>in</strong>cludes three sub-parameters:<br />

Provid<strong>in</strong>g mediation of mean<strong>in</strong>g (affect<strong>in</strong>g),<br />

provid<strong>in</strong>g opportunities of choice mak<strong>in</strong>g,<br />

<strong>and</strong> encourag<strong>in</strong>g with explanation.<br />

Provid<strong>in</strong>g mediation of affect relates to behaviors<br />

that express excitement, appreciation<br />

or affect <strong>in</strong> relation to the person <strong>in</strong> the <strong>in</strong>teraction,<br />

other people, objects or processes. Kazui<br />

et al. (2000) found that emotional arousal<br />

may enhance declarative memory <strong>in</strong> patients<br />

with AD. Instructions <strong>and</strong> guidance given to<br />

patients with AD may therefore be easier to<br />

remember if emotionally aroused devices are<br />

used <strong>in</strong> <strong>in</strong>tonation or other forms of expression.<br />

Provid<strong>in</strong>g opportunities for choice mak<strong>in</strong>g: Selfdeterm<strong>in</strong>ation<br />

fulfills a basic human right <strong>and</strong><br />

enhances the quality of life (Schalock, 1996).<br />

LeBlanc, Cherup, Feliciano, & Sidener,<br />

(2006) showed that choice preference for<br />

identify<strong>in</strong>g items <strong>and</strong> activities <strong>in</strong>crease engagement<br />

levels among clients <strong>in</strong> an adult<br />

daycare program. Provid<strong>in</strong>g opportunities for<br />

choice-mak<strong>in</strong>g may contribute to the activities<br />

<strong>and</strong> behavior of <strong>in</strong>dividuals with dementia,<br />

would afford mean<strong>in</strong>g to their life <strong>and</strong> would<br />

enrich their quality of life.<br />

Encourag<strong>in</strong>g or mediat<strong>in</strong>g feel<strong>in</strong>gs of competence<br />

relates to verbal/nonverbal behavior<br />

that expresses satisfaction with the <strong>in</strong>dividual’s<br />

behavior <strong>and</strong> identifies components of behavior<br />

contribut<strong>in</strong>g to that success. There are two<br />

ways of reward<strong>in</strong>g. One is to provide reward<br />

without explanation. This relates to careful<br />

tim<strong>in</strong>g of a gesture/verbal expression of satisfaction<br />

when the <strong>in</strong>dividual successfully completes<br />

a task or part of it, tell<strong>in</strong>g the reason for<br />

success (ADL, vocational, leisure activity).<br />

Exp<strong>and</strong><strong>in</strong>g <strong>and</strong> encourag<strong>in</strong>g with explanation<br />

were found to be most predictive of cognitive<br />

performance of children with/without<br />

special needs such as Down syndrome (Kle<strong>in</strong>,<br />

1992, 1993; Sobleman-Rosenthal & Kle<strong>in</strong>,<br />

2002) <strong>and</strong> PDD (Greenspan & Wieder, 1996).<br />

The absence of this parameter from the staffresidents<br />

with ID <strong>in</strong>teraction provides a poor<br />

“mental diet” for adults with ID <strong>and</strong> may prevent<br />

their benefit<strong>in</strong>g from any learn<strong>in</strong>g experience.<br />

The Behavioral Component: Regulation<br />

of Behavior<br />

Rationale: Regulation of behavior relates to<br />

mediation of task perform<strong>in</strong>g through all<br />

stages of task analysis. A different pattern of<br />

performance emerges among persons with<br />

AD <strong>in</strong> implicit or procedural memory, when<br />

memory is assessed by performance of particular<br />

skills or acquir<strong>in</strong>g new skills after tra<strong>in</strong><strong>in</strong>g<br />

(Fleischman et al., 2004). Our observations of<br />

the <strong>in</strong>teraction between caregivers <strong>and</strong> adults<br />

with ID <strong>and</strong> Alzheimer’s disease <strong>in</strong>dicate that<br />

when patients tackle simple ADL or leisure<br />

skills, the caregivers give them physical assistance<br />

<strong>in</strong>stead of guid<strong>in</strong>g them on how to perform<br />

the task through the four stages of task<br />

analysis. This way of <strong>in</strong>teraction prevents them<br />

from hav<strong>in</strong>g the opportunity to <strong>in</strong>ternalize<br />

<strong>and</strong> assimilate the strategies of problem solv<strong>in</strong>g<br />

<strong>and</strong> transfer these strategies to similar<br />

tasks <strong>in</strong> the future.<br />

We based the regulation of behavior on<br />

Gold’s (1978) four stages of task analysis: verbal<br />

<strong>in</strong>struction (i.e. “Use the spoon”), model<strong>in</strong>g<br />

(show<strong>in</strong>g participants how to br<strong>in</strong>g the<br />

spoon to the mouth with verbal <strong>in</strong>struction),<br />

practice (participants imitat<strong>in</strong>g the moderator)<br />

so that the behavior will be assimilated,<br />

110 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


physical assistance (palm, h<strong>and</strong>, arm without<br />

imitation of the moderator).<br />

In the light of the above, the questions<br />

posed by the present study were: (a) Are the<br />

MISC mediation parameters applicable <strong>in</strong> <strong>in</strong>teractions<br />

between caregivers <strong>and</strong> persons<br />

with ID <strong>and</strong> AD? (b) What effects will us<strong>in</strong>g<br />

these parameters have on the quality of <strong>in</strong>teraction<br />

between the caregivers <strong>and</strong> their relatives,<br />

on the cognitive, emotional <strong>and</strong> behavioral<br />

measures of the patients with dementia?<br />

An example of implement<strong>in</strong>g the parameters<br />

with a person with ID who exhibits early signs<br />

of AD dementia is presented herewith.<br />

Implementation of the MISC with a person with<br />

ID <strong>and</strong> AD<br />

Jacob (54 years old), is a person with Down<br />

syndrome who was diagnosed with early-stage<br />

Alzheimer’s disease four years ago. He lived <strong>in</strong><br />

an apartment with another four persons with<br />

ID for 10 years. However, when signs of deterioration<br />

appeared, he moved to a sheltered<br />

residence (hostel). He was <strong>in</strong>dependent <strong>in</strong><br />

ADL skills, used to read <strong>and</strong> write, worked <strong>in</strong><br />

supported employment <strong>and</strong> used to travel on<br />

a bus <strong>in</strong>dependently.<br />

We used the Dementia Questionnaire for<br />

Mentally Retarded Persons (DMR) (Evenhuise<br />

et al. 1990) <strong>in</strong> order to determ<strong>in</strong>e the<br />

signs of dementia. The scale, which is based<br />

on DSM 3-R, <strong>in</strong>cludes 50 items <strong>in</strong> seven sections.<br />

The answers on each item are ranked<br />

on a 0–2 scale (0—exhibited no change <strong>in</strong><br />

behavior <strong>in</strong> relation to the past <strong>and</strong> reflects<br />

<strong>in</strong>dependence, 2—exhibits great deterioration).<br />

The higher the score the greater the<br />

deterioration exhibited by the participant. Jacob’s<br />

profile <strong>in</strong> the seven sections of the DMR<br />

is presented below.<br />

Short term memory: Jacob’s score <strong>in</strong> short-term<br />

memory was 3 out of 14. He tends to forget<br />

where he put someth<strong>in</strong>g a m<strong>in</strong>ute ago, tends<br />

to forget where he put his personal th<strong>in</strong>gs<br />

such as his glasses, watch, etc <strong>and</strong> does not<br />

remember special events that occurred last<br />

week.<br />

Long-term memory: In this section his score<br />

was seven out of 16 (i.e. he does remember<br />

family members that he has not seen for a<br />

long time).<br />

Orientation <strong>in</strong> time <strong>and</strong> space: His score was 6<br />

out of 14. He forgets the days of the week <strong>and</strong><br />

does not know which day it is today. He confuses<br />

the toilet <strong>and</strong> the bath. When walk<strong>in</strong>g on<br />

the streets he is <strong>in</strong> danger s<strong>in</strong>ce he forgets to<br />

look at the traffic lights <strong>and</strong> crosses the street<br />

on red lights. The staff has a dilemma, s<strong>in</strong>ce<br />

they are afraid to let him out on his own from<br />

the hostel.<br />

Speech: His score was 1 out of 8, i.e. he<br />

functions well <strong>in</strong> this section <strong>and</strong> does not<br />

exhibit deterioration <strong>in</strong> this area.<br />

Practical skills: His score was 3 out of 16.<br />

When tak<strong>in</strong>g a shower he sometimes puts his<br />

bathrobe over his clothes. He confuses between<br />

the hot <strong>and</strong> cold water taps <strong>and</strong> has<br />

become dependent <strong>in</strong> this area.<br />

Mood: His score was 2 out of 12. From time<br />

to time he was readily upset, gloomy <strong>and</strong> sad.<br />

Activities <strong>and</strong> <strong>in</strong>terest: His score was five out of<br />

12: he lost <strong>in</strong>terest <strong>in</strong> outdoor activities such as<br />

parties, leisure activities, friends, etc. He has<br />

become more passive <strong>in</strong> the last years. He does<br />

not talk much <strong>and</strong> prefers to do th<strong>in</strong>gs alone<br />

rather than with friends.<br />

Behavioral disturbance: Accord<strong>in</strong>g to the scale<br />

he does not exhibit behavioral disturbances.<br />

However, the staff reported that when they<br />

went on their annual trip, he left the group<br />

<strong>and</strong> ran away.<br />

In conclusion, accord<strong>in</strong>g to the DMR, Jacob<br />

exhibits early signs of Alzheimer type dementia.<br />

Follow<strong>in</strong>g Jacob’s deterioration, the staff<br />

exhibited a pessimistic approach dubbed by<br />

Feuerste<strong>in</strong> <strong>and</strong> R<strong>and</strong> (1974) “passive acceptance,”<br />

accord<strong>in</strong>g to which Jacob’s situation is<br />

irreversible <strong>and</strong> noth<strong>in</strong>g can be done <strong>in</strong> order<br />

to change his function.<br />

Based on the cognitive rehabilitation theory<br />

(Clare et al., 2003), a tailored program with<br />

the five parameters of the MISC was constructed<br />

<strong>in</strong> order to overcome Jacob’s weaknesses.<br />

Focus<strong>in</strong>g: This parameter was used to cope<br />

with Jacob’s deterioration <strong>in</strong> orientation <strong>in</strong><br />

time <strong>and</strong> space <strong>and</strong> short-term memory.<br />

Time focus<strong>in</strong>g: We <strong>in</strong>troduced Jacob to a calendar<br />

that he could consult whenever he<br />

wanted to know what day it was. A central part<br />

of the <strong>in</strong>tervention <strong>in</strong>volved gett<strong>in</strong>g Jacob <strong>in</strong>to<br />

the habit of us<strong>in</strong>g his calendar. Follow<strong>in</strong>g<br />

Clare et al. (2003), we positioned the calendar<br />

<strong>in</strong> a prom<strong>in</strong>ent place <strong>and</strong> the director of the<br />

community residence agreed to rem<strong>in</strong>d him<br />

Mediation between Caregivers <strong>and</strong> Adults with ID <strong>and</strong> AD / 111


to look at his calendar twice each day <strong>and</strong> f<strong>in</strong>d<br />

out what day it was. We marked the date <strong>and</strong><br />

time of our meet<strong>in</strong>gs (every Sunday at 4 PM)<br />

<strong>in</strong> his calendar. His score on orientation <strong>in</strong><br />

time on the DMR <strong>in</strong>creased by two po<strong>in</strong>ts.<br />

Orientation <strong>in</strong> space: The close surround<strong>in</strong>gs<br />

near Jacob’s room, i.e. the shower, toilet, d<strong>in</strong><strong>in</strong>g<br />

room, <strong>and</strong> <strong>in</strong>firmary were <strong>in</strong>dicated by<br />

word signs accompanied by pictures. After two<br />

weeks he no longer confused between the<br />

bath <strong>and</strong> the toilet <strong>and</strong> knew the location of<br />

these places. We set aside a drawer <strong>in</strong> his<br />

closet for his watch <strong>and</strong> labeled it. His score <strong>in</strong><br />

this section <strong>in</strong>creased by two po<strong>in</strong>ts.<br />

As stated, Jacob tends to forget to look at<br />

the lights when walk<strong>in</strong>g <strong>in</strong> the streets. When<br />

walk<strong>in</strong>g together the first author realized that<br />

he tends to look at his watch very often. Based<br />

on this observation it was decided to use this<br />

habit as a strategy <strong>in</strong> order to rem<strong>in</strong>d him to<br />

look at the traffic lights. A little sticker was<br />

pasted on his watch with the word “Light” <strong>in</strong><br />

red. Look<strong>in</strong>g at the watch rem<strong>in</strong>ds him that<br />

he has to look at the traffic lights.<br />

Cognitive expansion: In the past Jacob could<br />

read <strong>and</strong> write his name. This was not the case<br />

now. We decided to re-teach him to read <strong>and</strong><br />

write his name. We wrote his name several<br />

times <strong>in</strong> thick magic marker <strong>and</strong> asked him to<br />

go over the name, then to go over dashed l<strong>in</strong>e,<br />

then copy his name. After three weeks he<br />

could aga<strong>in</strong> write his name.<br />

Exp<strong>and</strong><strong>in</strong>g the communication cha<strong>in</strong>: It was difficult<br />

to exp<strong>and</strong> the communication cha<strong>in</strong><br />

with Jacob. The length of conversation with<br />

him lasted a few seconds. Based on the MISC<br />

approach it was decided to f<strong>in</strong>d his favorite<br />

conversation topics <strong>and</strong> keep the conversation<br />

for 3–4 m<strong>in</strong>utes. He liked to talk about the<br />

security <strong>and</strong> political situation <strong>in</strong> Israel. We<br />

asked questions <strong>and</strong> developed the conversation.<br />

When the cha<strong>in</strong> was <strong>in</strong>terrupted, we directed<br />

the conversation, associated it to the<br />

past <strong>and</strong> the present <strong>and</strong> succeeded <strong>in</strong> draw<strong>in</strong>g<br />

out the conversation for 3–4 m<strong>in</strong>utes. His<br />

second favorite topic was money. We spoke<br />

about money, uses of money, open<strong>in</strong>g a bank<br />

account, etc. We succeed <strong>in</strong> exp<strong>and</strong><strong>in</strong>g the<br />

conversation to five m<strong>in</strong>utes, then to 10 m<strong>in</strong>utes.<br />

Mediation of mean<strong>in</strong>g—provid<strong>in</strong>g opportunity<br />

for mak<strong>in</strong>g choices: We gave Jacob an opportunity<br />

to choose the activities we would do to-<br />

gether, <strong>in</strong>clud<strong>in</strong>g walk<strong>in</strong>g to the nearest coffee<br />

shop, hav<strong>in</strong>g a dr<strong>in</strong>k, <strong>and</strong> sitt<strong>in</strong>g together<br />

for half an hour, then walk<strong>in</strong>g back to the<br />

hostel, work<strong>in</strong>g on his name, talk<strong>in</strong>g, arrang<strong>in</strong>g<br />

his family album together. He chose the<br />

schedule. Furthermore, when Jacob wanted to<br />

walk alone without company we respected his<br />

wish <strong>and</strong> enabled him do so.<br />

Reward<strong>in</strong>g with explanation: We taught the<br />

staff to expla<strong>in</strong> verbally, the reason for reward<strong>in</strong>g.<br />

We realized that positive behaviors were<br />

repeated.<br />

Regulation of behavior: To overcome his confus<strong>in</strong>g<br />

the stages of shower<strong>in</strong>g, we made a<br />

flowchart of the wash<strong>in</strong>g (tak<strong>in</strong>g a shower)<br />

stages accompanied by pictures <strong>and</strong> words<br />

signs. We also put signs on the hot <strong>and</strong> cold<br />

taps. We <strong>in</strong>structed the direct staff to go over<br />

these stages with him before wash<strong>in</strong>g. After<br />

two weeks he stopped the habit of putt<strong>in</strong>g on<br />

the robe after the shower <strong>and</strong> put on his<br />

clothes.<br />

As stated, we wrote his name on a card <strong>and</strong><br />

wanted to paste it on his bedroom door. He<br />

did not know how to paste the scotch tape. We<br />

went through the stages of task analysis, expla<strong>in</strong><strong>in</strong>g<br />

the task <strong>and</strong> asked him to pull the<br />

scotch tape, cut it from its st<strong>and</strong>, hold it with<br />

both h<strong>and</strong>s on the two edges, <strong>and</strong> paste it. He<br />

did not succeed. We modeled the task <strong>and</strong><br />

only then gave him physical assistance. After<br />

three times he could perform the task <strong>in</strong>dependently.<br />

We regulated his behavior <strong>in</strong> other<br />

tasks as well.<br />

In conclusion, the efficacy of the MISC<br />

among adults with ID <strong>and</strong> Alzheimer’s disease<br />

that is currently available is drawn ma<strong>in</strong>ly<br />

from case reports <strong>and</strong> supports our claim that<br />

persons with ID <strong>and</strong> AD behavior can be modified<br />

<strong>and</strong> can re-learn skills that had been <strong>in</strong><br />

their repertoire previously before the deterioration.<br />

Although Jacob’s memory difficulties<br />

rema<strong>in</strong>ed, his daily life became a little easier<br />

<strong>and</strong> less stressful. Jacob was cop<strong>in</strong>g with the<br />

onset of dementia by fac<strong>in</strong>g up to its impact<br />

<strong>and</strong> try<strong>in</strong>g to adapt. As described above, he<br />

showed numerous important strengths, <strong>in</strong>clud<strong>in</strong>g<br />

the capacity <strong>and</strong> motivation for learn<strong>in</strong>g<br />

new skills. This suggested that he was able<br />

to learn new strategies that compensate for his<br />

deterioration <strong>in</strong> short-term memory, orientation<br />

<strong>in</strong> time <strong>and</strong> space.<br />

Follow<strong>in</strong>g the MISC <strong>in</strong>tervention, Jacob’s<br />

112 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


score on the DMR <strong>in</strong>creased by only four<br />

po<strong>in</strong>ts. However, not all of these achievements<br />

can be measured. Clare et al. (2003) assert: “It<br />

cannot be assumed that any ga<strong>in</strong>s that might<br />

result from tra<strong>in</strong><strong>in</strong>g would have any cl<strong>in</strong>ically<br />

significant impact.” The MISC is a holistic approach<br />

relat<strong>in</strong>g to areas that are not covered<br />

<strong>in</strong> the DMR. However, we succeeded <strong>in</strong> improv<strong>in</strong>g<br />

his function <strong>and</strong> enrich<strong>in</strong>g his quality<br />

of life. Follow<strong>in</strong>g Clare et al., our aim was to<br />

modify Jacob’s function<strong>in</strong>g <strong>and</strong> improve his<br />

quality of life <strong>in</strong> the cognitive, emotional <strong>and</strong><br />

behavioral perspective.<br />

Limitations, Implications <strong>and</strong> Future Research<br />

The limited evidence currently available on<br />

the efficacy of the MISC approach among persons<br />

with ID <strong>and</strong> AD is drawn ma<strong>in</strong>ly from<br />

case reports. Experimental designs will enable<br />

exam<strong>in</strong>ation of the effect of the MISC approach<br />

on the behavioral, cognitive, <strong>and</strong> emotional<br />

skills of adults with ID <strong>and</strong> AD.<br />

In his Social Role Valorization theory,<br />

Wolfensberger (2002) asserts that “SRV relies<br />

on educational <strong>and</strong> persuasive strategies that<br />

change people’s perceptions <strong>and</strong> expectations”<br />

(p. 253). Interventions aim<strong>in</strong>g at alter<strong>in</strong>g<br />

the attitudes of professionals <strong>and</strong> paraprofessionals<br />

towards the modifiability of adults<br />

with ID should be implemented <strong>in</strong> all facilities<br />

of persons with ID.<br />

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Zigman, W. B., Schupf, N., Urv, T., Zigman, A., &<br />

Silverman, W. (2002) Incidence <strong>and</strong> temporal<br />

patterns of adaptive behavior change <strong>in</strong> adults<br />

with mental retardation. American Journal on Mental<br />

Retardation, 107, 161–174.<br />

Received: 23 July 2009<br />

Initial Acceptance: 22 September 2009<br />

F<strong>in</strong>al Acceptance: 5 March 2010<br />

Mediation between Caregivers <strong>and</strong> Adults with ID <strong>and</strong> AD / 115


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 116–123<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

Determ<strong>in</strong><strong>in</strong>g Alertness <strong>in</strong> Individuals with Profound<br />

Intellectual <strong>and</strong> Multiple <strong>Disabilities</strong>:<br />

The Reliability of an Observation List<br />

Vera Munde, Carla Vlaskamp, Wied Ruijssenaars, <strong>and</strong> Han Nakken<br />

University of Gron<strong>in</strong>gen, the Netherl<strong>and</strong>s<br />

Abstract: In the support of <strong>in</strong>dividuals with profound <strong>in</strong>tellectual <strong>and</strong> multiple disabilities (PIMD), assess<strong>in</strong>g<br />

the level of alertness is a recurr<strong>in</strong>g issue for parents <strong>and</strong> other direct support persons. Although observations<br />

show clear advantages above <strong>and</strong> beyond other assessment methods, there are problems related to this method as<br />

well. Subjectivity of <strong>in</strong>terpretation <strong>and</strong> low reliability results have been described as the ma<strong>in</strong> problems. In the<br />

present study, our aim was to estimate the reliability of the Alertness Observation List (AOL) while, at the same<br />

time, m<strong>in</strong>imiz<strong>in</strong>g the problems entailed <strong>in</strong> observations. We calculated both the <strong>in</strong>ter-observer agreement <strong>and</strong><br />

<strong>in</strong>tra-observer agreement for 39 situations. S<strong>in</strong>ce the results exceeded the formulated 80%-criterion, we<br />

concluded that the AOL was a reliable <strong>in</strong>strument. However, the large range found <strong>in</strong> the results was strik<strong>in</strong>g.<br />

Moreover, observers with different <strong>in</strong>formation about the observed <strong>in</strong>dividuals came up with different reliability<br />

scores. To determ<strong>in</strong>e the value of observation of <strong>in</strong>dividuals with PIMD, it might well be necessary to judge the<br />

actual usefulness that the <strong>in</strong>strument has <strong>in</strong> cl<strong>in</strong>ical practice, besides the reliability of the results.<br />

While stimulation to promote communication<br />

<strong>and</strong> learn<strong>in</strong>g is essential for the support of<br />

<strong>in</strong>dividuals with profound <strong>in</strong>tellectual <strong>and</strong><br />

multiple disabilities (PIMD) (Guess et al.,<br />

1993), direct support persons (DSPs) regularly<br />

wonder how to determ<strong>in</strong>e the “right moment”<br />

for start<strong>in</strong>g such stimulat<strong>in</strong>g activities.<br />

By the same token, it is important for an activity<br />

to be started at the “right moment” so as<br />

to allow time for the stimuli that are presented<br />

to enter the consciousness of the <strong>in</strong>dividual<br />

with PIMD (Nelson, van Dijk, McDonnell, &<br />

Thompson, 2002). The “right moment” has<br />

also been described as “be<strong>in</strong>g focused on the<br />

environment” or as “be<strong>in</strong>g alert” (Munde,<br />

Vlaskamp, Ruijssenaars, & Nakken, 2009).<br />

The questions that arise, then, refer to a number<br />

of topics: How does an <strong>in</strong>dividual show<br />

that he or she is focused on the environment?<br />

We would like to thank the children <strong>and</strong> teachers<br />

who agreed to participate <strong>in</strong> this study. Special<br />

thanks are owed to the observers for their time <strong>and</strong><br />

effort. Correspondence concern<strong>in</strong>g this article<br />

should be addressed to Vera Munde, Department of<br />

Special <strong>Education</strong>, University of Gron<strong>in</strong>gen, Grote<br />

Rozenstraat 38, 9712 TJ Gron<strong>in</strong>gen, the NETHER-<br />

LANDS. E-mail: V.S.Munde@rug.nl<br />

How can <strong>in</strong>dividual differences <strong>in</strong> alertness<br />

signals be <strong>in</strong>terpreted? Can we determ<strong>in</strong>e an<br />

optimal moment dur<strong>in</strong>g the day for stimulation<br />

of an <strong>in</strong>dividual with PIMD? There is an<br />

additional problem <strong>in</strong> that research shows<br />

that reduced levels of alertness <strong>and</strong> quick,<br />

irregular changes <strong>in</strong> alertness levels over time<br />

are common for <strong>in</strong>dividuals <strong>in</strong> the target<br />

group (Guess, Roberts, & Guy, 1999). These<br />

factors may even aggravate the problem of<br />

determ<strong>in</strong><strong>in</strong>g alertness reliably <strong>in</strong> <strong>in</strong>dividuals<br />

with PIMD.<br />

Despite agreement about the importance of<br />

determ<strong>in</strong><strong>in</strong>g alertness for the support of <strong>in</strong>dividuals<br />

<strong>in</strong> the target group, it is not obvious<br />

how different alertness levels ought to be determ<strong>in</strong>ed.<br />

S<strong>in</strong>ce <strong>in</strong>dividuals with PIMD do not<br />

express their needs by means of spoken language,<br />

self-report cannot be used (Vlaskamp,<br />

2005). Similarly, physiological measurements<br />

often show unusual patterns <strong>and</strong> do not reveal<br />

the necessary <strong>in</strong>formation about the complex<br />

behavior of <strong>in</strong>dividuals <strong>in</strong> the target group<br />

(Mudford, Hogg, & Roberts, 1997). In contrast,<br />

most authors do agree that alertness can<br />

be described <strong>in</strong> terms of observable behavior.<br />

Consequently, most <strong>in</strong>struments used to <strong>in</strong>vestigate<br />

<strong>and</strong> determ<strong>in</strong>e alertness <strong>in</strong> <strong>in</strong>dividuals<br />

116 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


with PIMD are based on observations (Munde<br />

et al., 2009).<br />

Observations clearly have a number of advantages<br />

above <strong>and</strong> beyond other assessment<br />

methods for <strong>in</strong>dividuals with PIMD. As a consequence<br />

of the severity of their disabilities,<br />

<strong>in</strong>dividuals with PIMD are not able to use<br />

spoken language, <strong>and</strong> so they express themselves<br />

by means of body language. Consequently,<br />

<strong>in</strong>dividuals <strong>in</strong> the target group often<br />

cannot fulfill the requirements of st<strong>and</strong>ardized<br />

assessment <strong>in</strong>struments <strong>in</strong> terms of motor<br />

<strong>and</strong> speech abilities (Vlaskamp, 2005). The<br />

communication of <strong>in</strong>dividuals with PIMD<br />

mostly consists of subtle signals that are difficult<br />

to detect for DSPs (Wilder & Granlund,<br />

2003). The same signal may have a different<br />

mean<strong>in</strong>g for different <strong>in</strong>dividuals (Vlaskamp).<br />

While physiological measurements can help<br />

to register these subtle signals, the results do<br />

not reveal the necessary <strong>in</strong>formation about<br />

the mean<strong>in</strong>g of these signals for <strong>in</strong>dividuals <strong>in</strong><br />

the target group (Mudford et al., 1997). Look<strong>in</strong>g<br />

at the <strong>in</strong>dividual’s reactions <strong>in</strong> different<br />

situations, DSPs can learn to <strong>in</strong>terpret the different<br />

k<strong>in</strong>ds of behavior (Grove, Bunn<strong>in</strong>g,<br />

Porter, & Olsson, 1999). Only observations<br />

allow DSPs to take the mean<strong>in</strong>g of the <strong>in</strong>dividual’s<br />

behavior <strong>in</strong>to account. Detailed registration<br />

of the behavior <strong>and</strong>, at the same time, of<br />

the <strong>in</strong>fluenc<strong>in</strong>g factors are especially important<br />

when observ<strong>in</strong>g <strong>in</strong>dividuals with PIMD.<br />

However, general problems are related to<br />

observations <strong>in</strong> <strong>in</strong>dividuals with PIMD as well.<br />

Observations often lack an unambiguous description<br />

of their focus. When observations<br />

are based on theoretical concepts, these cannot<br />

be directly l<strong>in</strong>ked to visible behavior. Consequently,<br />

observers are forced to <strong>in</strong>terpret<br />

the visible behavior, <strong>and</strong> ascrib<strong>in</strong>g mean<strong>in</strong>g<br />

to behavior is, <strong>in</strong> turn, always <strong>in</strong>terpretation<br />

(Vlaskamp, 2005). Interpretation, then, can<br />

be specified as yet another problem to do with<br />

observations. While it is important for DSPs to<br />

take the mean<strong>in</strong>g of the behavior of their<br />

clients <strong>in</strong>to account, several factors can bias<br />

the <strong>in</strong>terpretation. DSPs <strong>in</strong>terpret the behavior<br />

of the <strong>in</strong>dividual with PIMD based on their<br />

knowledge of the <strong>in</strong>dividual <strong>and</strong> previous experiences<br />

with the <strong>in</strong>dividual <strong>in</strong> similar situations.<br />

S<strong>in</strong>ce this knowledge differs for each<br />

DSP, observations of the same situation may<br />

result <strong>in</strong> different scores (Grove et al., 1999).<br />

Additionally, general expectations of reactions<br />

<strong>and</strong> contextual factors <strong>in</strong> a specific situation<br />

can also <strong>in</strong>fluence the DSP’s judgment<br />

(Hogg, Reeves, Roberts, & Mudford, 2001).<br />

While DSPs’ overall judgments rema<strong>in</strong> similar<br />

<strong>in</strong> situations with <strong>and</strong> without contextual <strong>in</strong>formation,<br />

DSPs judge the <strong>in</strong>dividual’s expressions<br />

more positively when they expect the<br />

<strong>in</strong>dividual with PIMD to enjoy an activity than<br />

when they do not know about the content of<br />

the activity. Furthermore, <strong>and</strong> as a consequence<br />

of the subjectivity of the <strong>in</strong>terpretations,<br />

observations of <strong>in</strong>dividuals with PIMD<br />

regularly result <strong>in</strong> low reliability. As a result,<br />

researchers f<strong>in</strong>d themselves still <strong>in</strong>volved <strong>in</strong><br />

discussions about <strong>in</strong>fluenc<strong>in</strong>g factors <strong>and</strong> explanations<br />

(Vlaskamp).<br />

The general problems that we experience<br />

<strong>in</strong> observations of <strong>in</strong>dividuals with PIMD also<br />

become apparent <strong>in</strong> the alertness observations<br />

of <strong>in</strong>dividuals <strong>in</strong> the target group. In the literature,<br />

no unambiguous description of alertness<br />

has been found (Munde et al., 2009).<br />

Although the authors all agreed that it was<br />

possible to observe alertness <strong>in</strong> the behavior of<br />

<strong>in</strong>dividuals with PIMD, different terms with<br />

different descriptions were found to have<br />

been <strong>in</strong>troduced. Additionally, different scor<strong>in</strong>g<br />

categories were used to determ<strong>in</strong>e alertness<br />

levels. Another po<strong>in</strong>t of discussion is scor<strong>in</strong>g<br />

frequency. Because of quick <strong>and</strong> irregular<br />

changes <strong>in</strong> alertness levels, some authors<br />

plead the case for cont<strong>in</strong>uous scor<strong>in</strong>g (Guess<br />

et al., 1999; Mudford et al., 1997). However,<br />

the difference <strong>in</strong> content <strong>in</strong>formation based<br />

on <strong>in</strong>terval scor<strong>in</strong>g is not yet made evident<br />

here, <strong>and</strong>, above all else, it should be remembered<br />

that <strong>in</strong>terval scor<strong>in</strong>g is actually more<br />

useful <strong>in</strong> cl<strong>in</strong>ical practice. To measure <strong>and</strong><br />

compare the impact of these differences, researchers<br />

found themselves obliged to determ<strong>in</strong>e<br />

the reliability of their observations. For<br />

a number of the studies, reliability did not<br />

exceed the formulated criterion (Mudford et<br />

al.; Woodyatt, Mar<strong>in</strong>ac, Darnell, Sigafoos, &<br />

Halle, 2004). Although different explanations<br />

for these results have been discussed (Arthur,<br />

2000; Guess, Roberts, Behrens, & Rues, 1998;<br />

Mudford, Hogg, & Roberts, 1999), no solution<br />

for the problem of low reliability <strong>in</strong> alertness<br />

observations has been offered.<br />

Tak<strong>in</strong>g the above-mentioned problems <strong>in</strong>to<br />

account, the Alertness Observation List (AOL)<br />

Determ<strong>in</strong><strong>in</strong>g Alertness / 117


has been developed accord<strong>in</strong>gly (Vlaskamp,<br />

Fonte<strong>in</strong>e, & Tadema, 2005). With<strong>in</strong> the AOL,<br />

a clear description of alertness is employed.<br />

Alertness is described as the “level” of be<strong>in</strong>g<br />

open to the environment. DSPs are thus able<br />

to use the AOL to formulate an <strong>in</strong>dividual<br />

alertness profile. Alertness is scored on four<br />

different “levels” <strong>in</strong> order to search for alertness<br />

patterns over the period of a day <strong>and</strong> to<br />

f<strong>in</strong>d out about changes <strong>in</strong> alertness based on<br />

the impact of different stimuli. Thereby, scor<strong>in</strong>g<br />

frequency <strong>in</strong>creases for each of the three<br />

subsequent scor<strong>in</strong>g forms of the AOL.<br />

The aim of the present study was to estimate<br />

the reliability of the AOL. In a previous<br />

study, the AOL was proved to be reliable <strong>in</strong><br />

five cases (Petitiaux, Els<strong>in</strong>ga, Cuppen-Fonte<strong>in</strong>e,<br />

& Vlaskamp, 2006). In the present<br />

study, we determ<strong>in</strong>ed the general reliability of<br />

the <strong>in</strong>strument for a larger sample. In do<strong>in</strong>g<br />

so, we strived to reach adequate reliability results<br />

while, at the same time, m<strong>in</strong>imiz<strong>in</strong>g the<br />

problems with observations mentioned above.<br />

Method<br />

Participants <strong>and</strong> Sett<strong>in</strong>g<br />

A Dutch school for special education volunteered<br />

to use the <strong>in</strong>strument. In this school,<br />

four classes were r<strong>and</strong>omly selected. All 23<br />

students of the four classes (12 girls <strong>and</strong> 11<br />

boys) were <strong>in</strong>cluded <strong>in</strong> the study. The children’s<br />

ages ranged from 6 to 16 years (M <br />

11, 57, SD 3, 25). All the children could be<br />

described as <strong>in</strong>dividuals with PIMD. In addition<br />

to profound <strong>in</strong>tellectual <strong>and</strong> profound<br />

motor disabilities (Nakken & Vlaskamp,<br />

2007), <strong>in</strong>dividuals <strong>in</strong> the target group suffer<br />

from additional sensory impairments <strong>and</strong> a<br />

broad range of health problems (e.g., epilepsy,<br />

dysphagia, constipation, gastro-oesophageal<br />

reflux, Arvio & Sillanpää, 2003; Kapell et<br />

al., 1998; Van Schrojenste<strong>in</strong> Lantman-de Valk,<br />

van den Akker, Maaskant, & Haveman, 1997;<br />

Van Splunder, Stilma, Bernsen, & Evenhuis,<br />

2006). For the children <strong>in</strong>volved <strong>in</strong> the<br />

present study, the diagnoses <strong>in</strong>cluded a number<br />

of different syndromes such as West’s syndrome<br />

<strong>and</strong> Battered Child Syndrome. For<br />

60% of the children, no clear medical diagnosis<br />

had been formulated. Visual <strong>and</strong> auditory<br />

impairments were assessed <strong>in</strong> 57% <strong>and</strong> 13%<br />

of the children, respectively. Additionally, 22%<br />

of the participants suffered from epilepsy. For<br />

all the children, <strong>in</strong>formed consent to take part<br />

<strong>in</strong> this study was obta<strong>in</strong>ed from their parents<br />

or legal representative.<br />

To take <strong>in</strong>to account the possible impact<br />

the observers’ knowledge might have <strong>and</strong>, as a<br />

result, to determ<strong>in</strong>e reliability as objectively as<br />

possible, the observations were conducted by<br />

three types of observers: teachers, an external<br />

observer who had received additional <strong>in</strong>formation<br />

about the children <strong>and</strong> an external<br />

observer who did not know the children with<br />

PIMD at all. All the observers were familiar<br />

with the AOL <strong>and</strong> were aware of the aim of the<br />

research.<br />

Instrument<br />

The Alertness Observation List was used to<br />

determ<strong>in</strong>e alertness. In the AOL, four “levels”<br />

of alertness are dist<strong>in</strong>guished: 1) active, focused<br />

on the environment; 2) <strong>in</strong>active, withdrawn;<br />

3) sleep<strong>in</strong>g, drowsy; <strong>and</strong> 4) agitated,<br />

discontented. Each “level” is assigned a color:<br />

green, orange, red <strong>and</strong> blue, respectively.<br />

More detailed descriptions of the different<br />

“levels” are given <strong>in</strong> Table 1. Four different<br />

forms are used to develop a complete alertness<br />

profile. The first form was completed<br />

before start<strong>in</strong>g the observations. The overall<br />

state of the <strong>in</strong>dividual on the day before the<br />

planned observation <strong>and</strong> on the day of the<br />

observation itself was determ<strong>in</strong>ed. If the <strong>in</strong>dividual<br />

had recently been ill or had had an<br />

unusual epileptic seizure the same day, observations<br />

were not conducted. The second form<br />

was used to observe an <strong>in</strong>dividual for three<br />

days, scor<strong>in</strong>g alertness every 15 m<strong>in</strong>utes, start<strong>in</strong>g<br />

when the <strong>in</strong>dividual entered the school<br />

<strong>and</strong> stopp<strong>in</strong>g when he or she left. Before<br />

us<strong>in</strong>g the third form, DSPs first chose the<br />

optimal moment <strong>in</strong> a day for offer<strong>in</strong>g an<br />

educational activity to the <strong>in</strong>dividual. The<br />

stimulation was then presented for 15 m<strong>in</strong>utes<br />

with the precondition that the score had to<br />

have been green or orange, thus that the <strong>in</strong>dividual<br />

had been awake dur<strong>in</strong>g the preced<strong>in</strong>g<br />

15 m<strong>in</strong>utes. The alertness “level” was<br />

scored every five m<strong>in</strong>utes dur<strong>in</strong>g the activity<br />

<strong>and</strong> for 15 m<strong>in</strong>utes follow<strong>in</strong>g that (Form 3).<br />

The fourth form was similar to the third one,<br />

except that the observer scored every 20 sec-<br />

118 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


TABLE 1<br />

Descriptions of the Different Alertness “levels” Accord<strong>in</strong>g to the AOL (Vlaskamp, Fonte<strong>in</strong>e, & Tadema,<br />

2005)<br />

Alertness “level” Color Description Examples of behavior<br />

Active, focused<br />

on the<br />

environment<br />

Inactive,<br />

withdrawn<br />

Sleep<strong>in</strong>g,<br />

drowsy<br />

Agitated,<br />

discontented<br />

onds for a period of five m<strong>in</strong>utes, dur<strong>in</strong>g<br />

which the child was offered the activity. F<strong>in</strong>ally,<br />

us<strong>in</strong>g all the <strong>in</strong>formation gathered on<br />

the observation forms, an alertness profile<br />

could be formulated <strong>and</strong> written down <strong>in</strong> a<br />

“traffic light.” This overall description of all<br />

the alertness categories of the <strong>in</strong>dividual was<br />

complemented with concrete examples of behavior<br />

for each category (Vlaskamp et al.,<br />

2005).<br />

Procedure<br />

Green The <strong>in</strong>dividual is engaged <strong>in</strong> sensory<br />

activities. That means he or she is<br />

look<strong>in</strong>g, listen<strong>in</strong>g, touch<strong>in</strong>g or<br />

smell<strong>in</strong>g. These activities are<br />

directed toward the environment.<br />

As a result, the <strong>in</strong>dividual is able to<br />

be focused on other <strong>in</strong>dividuals or<br />

on materials <strong>in</strong> the room.<br />

Orange The <strong>in</strong>dividual may be engaged <strong>in</strong><br />

sensory or motor activities. These<br />

activities are not directed to the<br />

environment. Activities can be<br />

focused on the <strong>in</strong>dividual him/<br />

herself or without any focus.<br />

Red The <strong>in</strong>dividual is sleep<strong>in</strong>g. Movements<br />

<strong>and</strong> sounds correspond to sleep.<br />

The AOL was completed for all 23 children.<br />

S<strong>in</strong>ce the first three forms of the AOL are<br />

conditional relative to Form 4, the fourth<br />

form is the one that is expected to reveal the<br />

most relevant <strong>in</strong>formation. Consequently, we<br />

have only <strong>in</strong>cluded the observations of the<br />

fourth form <strong>in</strong> the present study. All observations<br />

us<strong>in</strong>g this form were videotaped. The<br />

Open eyes, focus<strong>in</strong>g with the eyes,<br />

turn<strong>in</strong>g the head or the eyes <strong>in</strong><br />

the direction of a stimulus, the<br />

body is tensed, the <strong>in</strong>dividual is<br />

reach<strong>in</strong>g or grasp<strong>in</strong>g an object,<br />

the <strong>in</strong>dividual is eat<strong>in</strong>g or<br />

dr<strong>in</strong>k<strong>in</strong>g.<br />

Look<strong>in</strong>g at one’s h<strong>and</strong>s,<br />

stereotypical movements,<br />

sens<strong>in</strong>g one’s clothes, star<strong>in</strong>g,<br />

fiddl<strong>in</strong>g with one’s body, the<br />

head down or turned aside,<br />

thumb-suck<strong>in</strong>g, groan<strong>in</strong>g softly,<br />

rubb<strong>in</strong>g the eyes, roll<strong>in</strong>g the<br />

head, rock<strong>in</strong>g him/herself.<br />

Sleep<strong>in</strong>g, eyelids are shut, eyes are<br />

open<strong>in</strong>g <strong>and</strong> clos<strong>in</strong>g slowly,<br />

snor<strong>in</strong>g, limbs are limp <strong>and</strong><br />

loose.<br />

Blue The <strong>in</strong>dividual expresses discomfort. Shout<strong>in</strong>g, cry<strong>in</strong>g, scream<strong>in</strong>g,<br />

hitt<strong>in</strong>g or kick<strong>in</strong>g materials or<br />

persons, bang<strong>in</strong>g with the head,<br />

hitt<strong>in</strong>g, bit<strong>in</strong>g, scratch<strong>in</strong>g, or<br />

kick<strong>in</strong>g himself or herself.<br />

observations were conducted <strong>in</strong> the classroom<br />

<strong>and</strong> <strong>in</strong> a multisensory room. In these two different<br />

sett<strong>in</strong>gs, five <strong>and</strong> two observations, respectively,<br />

were completed for each child. A<br />

number of videotapes were excluded from the<br />

study because of the low quality of the record<strong>in</strong>gs.<br />

The rema<strong>in</strong><strong>in</strong>g pool of observations consisted<br />

of 120 situations.<br />

To <strong>in</strong>vestigate the reliability of the AOL, 39<br />

situations were r<strong>and</strong>omly selected from the<br />

pool of 120 observations. For every situation,<br />

we asked two observers to score alertness for<br />

the <strong>in</strong>dividual with PIMD. Us<strong>in</strong>g the general<br />

formula for agreement, we estimated the <strong>in</strong>ter-observer<br />

agreement. S<strong>in</strong>ce we <strong>in</strong>vestigated<br />

an <strong>in</strong>dividual judgment, a m<strong>in</strong>imum value of<br />

80% was applied <strong>in</strong> order to <strong>in</strong>terpret the<br />

results (Mudford et al., 1997).<br />

Additionally, the <strong>in</strong>tra-observer agreement<br />

was calculated for another 39 situations. The<br />

situations were aga<strong>in</strong> selected at r<strong>and</strong>om from<br />

Determ<strong>in</strong><strong>in</strong>g Alertness / 119


the pool of 120 observations. Observers were<br />

asked to complete the observation form twice<br />

for the same situation, six weeks apart. The<br />

same formula <strong>and</strong> the same <strong>in</strong>terpretation criteria<br />

as for the <strong>in</strong>ter-observer agreement were<br />

used to estimate <strong>and</strong> <strong>in</strong>terpret agreement percentages.<br />

Results<br />

All 78 situations were scored us<strong>in</strong>g the fourth<br />

form of the AOL. Employ<strong>in</strong>g the general formula<br />

for agreement <strong>in</strong> order to calculate the<br />

<strong>in</strong>ter-observer reliability for 39 of the situations,<br />

we found r 81% (Mdn 81.44; M <br />

81.46; SD 13.88). The <strong>in</strong>tra-observer reliability<br />

for the other half of the situations was<br />

r 87% (Mdn 86.79; M 85.23; SD <br />

11.75). Although the median exceeded the<br />

formulated criterion of 80%, <strong>in</strong>dividual results<br />

showed large differences. Inter-observer<br />

reliability ranged from 50% to 100% with a<br />

st<strong>and</strong>ard deviation of 13.88. These results<br />

were similar to those for the <strong>in</strong>tra-observer<br />

reliability that had a range from 61.11% to<br />

100% <strong>and</strong> a st<strong>and</strong>ard deviation of 11.75. In<br />

addition, those observers who received more<br />

<strong>in</strong>formation about the children scored higher<br />

results for the <strong>in</strong>ter-observer reliability,<br />

whereas the scores of the observer who did<br />

not know the children at all were higher for<br />

the <strong>in</strong>tra-observer reliability. An overview of all<br />

the results <strong>in</strong>clud<strong>in</strong>g the percentages for each<br />

situation <strong>and</strong> each type of observer is presented<br />

<strong>in</strong> Tables 2 <strong>and</strong> 3.<br />

Conclusion <strong>and</strong> Discussion<br />

The present study does show that the AOL is a<br />

reliable <strong>in</strong>strument for determ<strong>in</strong><strong>in</strong>g alertness<br />

<strong>in</strong> <strong>in</strong>dividuals with PIMD. However, a number<br />

of details need to be discussed. Although the<br />

overall results of the present study are sufficient,<br />

the large range of results for the different<br />

situations is strik<strong>in</strong>g. The differences can<br />

be partially expla<strong>in</strong>ed by the severity of the<br />

disabilities of the target group. One example<br />

of this is that visual impairments are common<br />

<strong>in</strong> people with PIMD, <strong>and</strong> so those <strong>in</strong> the<br />

target group with visual impairments most<br />

likely will not show their focus on the environment<br />

by direct<strong>in</strong>g their eyes or head. It is<br />

therefore difficult to determ<strong>in</strong>e their alertness<br />

levels. Another example is that uncontrolled<br />

movements of <strong>in</strong>dividuals with spasticity also<br />

aggravate alertness observations. When <strong>in</strong>dividuals<br />

are not able to show their focus by<br />

po<strong>in</strong>t<strong>in</strong>g or grasp<strong>in</strong>g, DSPs might well <strong>in</strong>terpret<br />

the <strong>in</strong>dividual’s behavior as be<strong>in</strong>g “not<br />

alert.” The frequency of changes <strong>in</strong> alertness<br />

“levels” is another explanation for the large<br />

<strong>in</strong>dividual differences <strong>in</strong> reliability. When the<br />

<strong>in</strong>dividual with PIMD showed a clear focus<br />

dur<strong>in</strong>g the entire observation, reliability was<br />

always 100%. In contrast, frequent changes <strong>in</strong><br />

alertness “levels” were associated with lower<br />

reliability. As Guess et al. (1999) <strong>and</strong> Mudford<br />

et al. (1997) found <strong>in</strong> previous studies, the<br />

differentiation between orange <strong>and</strong> green<br />

alertness “levels” was especially difficult.<br />

Therefore, observations concern<strong>in</strong>g situations<br />

with numerous changes between these two<br />

“levels” can lead to low reliability results.<br />

Individual differences <strong>in</strong> terms of alertness<br />

expressions may also have an impact on the<br />

reliability of the results. Although observers<br />

are expected to take these differences <strong>in</strong>to<br />

account, idiosyncratic behavior can aggravate<br />

observations of <strong>in</strong>dividuals <strong>in</strong> the target group<br />

(Hogg et al., 2001). Turn<strong>in</strong>g away the head<br />

may be an <strong>in</strong>dication of dislike for the stimulus<br />

presented, but, by the same token, an <strong>in</strong>dividual<br />

with visual impairments may also express<br />

his or her <strong>in</strong>terest <strong>in</strong> this way, especially<br />

as a reaction to an auditory stimulus. In such<br />

situations, the proxies’ knowledge of the children<br />

may be seen as an advantage <strong>in</strong> <strong>in</strong>terpretation<br />

of their behavior. However, look<strong>in</strong>g at<br />

the higher <strong>in</strong>tra-observer reliability for the observer<br />

who did not know the children at all,<br />

we are obliged to amend this statement. S<strong>in</strong>ce<br />

external observers were not <strong>in</strong>fluenced by<br />

their knowledge about the child <strong>and</strong> recent<br />

experiences with the child, their observations<br />

were ma<strong>in</strong>ly based on the observable behavior<br />

<strong>and</strong> their <strong>in</strong>terpretations were actually more<br />

consistent. However, there is no real st<strong>and</strong>ard<br />

for judg<strong>in</strong>g the correctness of the <strong>in</strong>terpretations.<br />

Consequently, observations by proxies<br />

<strong>and</strong> external observers might well be used to<br />

greater advantage as complementary sources<br />

of <strong>in</strong>formation (Petry & Maes, 2006).<br />

The present study has confirmed that observ<strong>in</strong>g<br />

<strong>in</strong>dividuals with PIMD reliably is an<br />

endur<strong>in</strong>g challenge for DSPs <strong>and</strong> researchers.<br />

The subjectivity of the <strong>in</strong>terpretations rema<strong>in</strong>s<br />

120 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


TABLE 2<br />

Results for Inter-Observer Reliability<br />

Situations<br />

M Mdn SD<br />

1 2 3 4 5 6 7 8 9 10 11 12 13<br />

Observers<br />

T <strong>and</strong> E 83.33 75.00 87.50 75.17 80.00 100.00 75.00 62.50 100.00 87.50 62.50 100.00 87.50 82.77 83.33 12.80<br />

T <strong>and</strong> E 50.00 75.00 70.83 79.17 83.33 91.67 100.00 100.00 87.50 91.67 79.16 66.67 75.00 80.77 79.17 13.98<br />

E <strong>and</strong> E 83.33 80.00 86.67 75.86 93.33 100.00 50.00 64.86 81.82 94.74 64.44 100.00 76.00 80.85 81.82 14.86<br />

TOTAL 81.46 81.44 13.88<br />

Note: The letters refer to the different types of observers. Teachers are designated by a “T,” the external observer who received additional <strong>in</strong>formation about the<br />

children is designated by an “E” <strong>and</strong> the external observer who did not know the children at all is designated by an “E.” The situations were not similar for the<br />

different observers.<br />

TABLE 3<br />

Results for Intra-Observer Reliability<br />

Situations<br />

M Mdn SD<br />

1 2 3 4 5 6 7 8 9 10 11 12 13<br />

Observers<br />

T 70.83 70.83 91.67 100.00 79.17 83.33 70.83 70.83 100.00 70.83 100.00 91.67 83.33 83.33 83.33 12.15<br />

E 95.83 66.67 76.67 93.10 93.55 100.00 88.89 61.11 87.10 78.95 86.36 100.00 85.00 85.63 87.10 12.02<br />

E 91.07 96.77 63.64 72.88 95.16 82.98 100.00 90.48 91.53 86.05 97.73 86.84 72.22 86.72 90.48 11.09<br />

TOTAL 85.23 86.97 11.75<br />

Note: The letters refer to the different types of observers. Teachers are designated by a “T,” the external observer who received additional <strong>in</strong>formation about the<br />

children is designated by an “E” <strong>and</strong> the external observer who did not know the children at all is designated by an “E.” The situations were not similar for the<br />

different observers.<br />

Determ<strong>in</strong><strong>in</strong>g Alertness / 121


a threat to their reliability. Additionally, several<br />

practical problems aggravate the implementation<br />

of alertness observations for <strong>in</strong>dividuals<br />

<strong>in</strong> the target group. The scor<strong>in</strong>g<br />

systems are experienced as be<strong>in</strong>g too complex<br />

for use <strong>in</strong> cl<strong>in</strong>ical practice. The observations<br />

themselves are found to be time-consum<strong>in</strong>g as<br />

well <strong>and</strong>, therefore, often not practicable <strong>in</strong><br />

day-to-day situations (Petry et al., 2006). However,<br />

based on the example of the AOL, we<br />

can conclude that reliable observations are <strong>in</strong><br />

fact possible. While alertness observations rema<strong>in</strong><br />

an effort, DSPs also confirmed the importance<br />

of determ<strong>in</strong><strong>in</strong>g alertness <strong>in</strong> their clients.<br />

Furthermore, <strong>in</strong>vestigat<strong>in</strong>g the value of<br />

the results of the “traffic light” for DSPs may<br />

reveal additional <strong>in</strong>formation about the usefulness<br />

of the AOL <strong>in</strong> cl<strong>in</strong>ical practice.<br />

References<br />

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glass: A response to Mudford, Hogg, <strong>and</strong> Roberts.<br />

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511.<br />

Arvio, M., & Sillanpää, M. (2003). Prevalence, etiology<br />

<strong>and</strong> comorbidity of severe <strong>and</strong> profound <strong>in</strong>tellectual<br />

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to effective support (pp. 338–394). Belmont: Wadsworth.<br />

Guess, D., Roberts, S., Behrens, G. A., & Rues, J.<br />

(1998). ’Interobserver agreement <strong>and</strong> disagreement<br />

<strong>in</strong> cont<strong>in</strong>uous record<strong>in</strong>g exemplified by<br />

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Journal on Mental Retardation, 103, 75–79.<br />

Guess, D., Roberts, S., Siegel-Causey, E., Ault, M.,<br />

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97, 634–653.<br />

Hogg, J., Reeves, D., Roberts, J., & Mudford, O. C.<br />

(2001). Consistency, context <strong>and</strong> confidence <strong>in</strong><br />

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18–29.<br />

Kapell, D., Night<strong>in</strong>gale, B., Rodriguez, A., Lee, J. H.,<br />

Zigman, W. B., & Schupf, N. (1998). Prevalence<br />

of chronic medical conditions <strong>in</strong> adults with mental<br />

retardation: Comparison with the general population.<br />

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Behavior States: Now You See Them, Now You<br />

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& Nakken, H. (2009). Alertness <strong>in</strong> <strong>in</strong>dividuals<br />

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a literature review. Research <strong>in</strong> <strong>Developmental</strong><br />

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Nakken, H., & Vlaskamp, C. (2007). A need for a<br />

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Nelson, C., van Dijk, J., McDonnell, A. P., & Thompson,<br />

K. (2002). A framework for underst<strong>and</strong><strong>in</strong>g<br />

young children with severe multiple disabilities:<br />

The van Dijk approach to assessment. Research <strong>and</strong><br />

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children with profound <strong>in</strong>tellectual <strong>and</strong> multiple<br />

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122 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Manual of the list ’Alertness <strong>in</strong> children with profound<br />

<strong>in</strong>tellectual <strong>and</strong> multiple disabilities’. [H<strong>and</strong>leid<strong>in</strong>g bij<br />

de lijst ‘Alertheid van k<strong>in</strong>deren met zeer ernstige verst<strong>and</strong>elijke<br />

en meervoudige beperk<strong>in</strong>gen’]. Gron<strong>in</strong>gen:<br />

Sticht<strong>in</strong>g K<strong>in</strong>derstudies.<br />

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<strong>and</strong> <strong>in</strong>teraction between seven children with multiple<br />

disabilities <strong>and</strong> their caregivers. Child: Care,<br />

Health <strong>and</strong> Development, 29, 559–567.<br />

Woodyatt, G., Mar<strong>in</strong>ac, J., Darnell, R., Sigafoos, J., &<br />

Halle, J. (2004). Behaviour State Analysis <strong>in</strong> Rett<br />

Syndrome: Cont<strong>in</strong>uous data reliability measurement.<br />

International Journal of Disability, Development<br />

<strong>and</strong> <strong>Education</strong>, 51, 383–400.<br />

Received: 18 August 2009<br />

Initial Acceptance: 16 October 2009<br />

F<strong>in</strong>al Acceptance: 4 December 2009<br />

Determ<strong>in</strong><strong>in</strong>g Alertness / 123


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 124–133<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

Teach<strong>in</strong>g Number Identification to Students with Severe<br />

<strong>Disabilities</strong> us<strong>in</strong>g Response Cards<br />

Holly Skibo, Pamela Mims, <strong>and</strong> Fred Spooner<br />

University of North Carol<strong>in</strong>a at Charlotte<br />

Abstract: Active student respond<strong>in</strong>g (ASR) has been shown to be an effective way to improve the mathematical<br />

skills of students. One specific method of ASR is the use of response cards. In this study, a system of least prompts<br />

comb<strong>in</strong>ed with response cards was used to <strong>in</strong>crease mathematical knowledge, <strong>and</strong> number identification, of three<br />

elementary students with significant disabilities (age range, 7–10 years, IQ range, 20-44) via a multiple<br />

probe design across participants. A functional relationship was demonstrated between student respond<strong>in</strong>g<br />

(<strong>in</strong>creased number identification) <strong>and</strong> the implementation of the least to most prompt<strong>in</strong>g system. Ma<strong>in</strong>tenance<br />

checks, after the <strong>in</strong>tervention was concluded, demonstrated that the skill level was susta<strong>in</strong>ed. Limitations <strong>and</strong><br />

future research are discussed.<br />

Students’ learn<strong>in</strong>g academic skills is a priority<br />

among all populations of students. F<strong>in</strong>d<strong>in</strong>g<br />

the educational experiences that are appropriate<br />

for each student is very important for<br />

educators (National Commission on Excellence<br />

<strong>in</strong> <strong>Education</strong>, 1983). In fact, Spooner,<br />

Dymond, Smith, <strong>and</strong> Kennedy (2006) suggest<br />

that over the past decade, access<strong>in</strong>g the general<br />

curriculum has become a major focus of<br />

<strong>in</strong>vestigators try<strong>in</strong>g to build more effective educational<br />

systems for students with significant<br />

cognitive disabilities. Historically, students<br />

with severe disabilities have attended school<br />

with an emphasis on learn<strong>in</strong>g functional liv<strong>in</strong>g<br />

skills (Browder et al., 2003; Brown, Nietupski,<br />

& Hamre-Nietupski, 1976). Until recently, the<br />

need for students to learn academic skills was<br />

not considered an important part of the curriculum<br />

(Browder et al.; Browder & Spooner,<br />

2003; Browder, Spooner, Wakeman, Trela, &<br />

Baker, 2006). With the reauthorization of the<br />

Individuals with <strong>Disabilities</strong> Act (IDEA, 2004)<br />

all students with disabilities, no matter the<br />

severity of their disability, are required to have<br />

access to the general curriculum (IDEA). Not<br />

only is access required, but also students with<br />

Correspondence concern<strong>in</strong>g this article should<br />

be addressed to Fred Spooner, UNC Charlotte, College<br />

of <strong>Education</strong>, Department of Special <strong>Education</strong><br />

<strong>and</strong> Child Development, 9201 University City Blvd.,<br />

Charlotte, NC 28223.<br />

severe disabilities must be assessed <strong>in</strong> grade<br />

level extensions of read<strong>in</strong>g, mathematics, <strong>and</strong><br />

science. Mathematics skills can often be complex<br />

to learn <strong>and</strong> for educators it is important<br />

that the right method of teach<strong>in</strong>g be used.<br />

One way that teachers attempt to <strong>in</strong>crease a<br />

student’s knowledge <strong>in</strong> mathematical skills is<br />

through active student respond<strong>in</strong>g (ASR).<br />

Active student respond<strong>in</strong>g <strong>in</strong>volves participat<strong>in</strong>g<br />

<strong>in</strong> class by ask<strong>in</strong>g <strong>and</strong> answer<strong>in</strong>g questions<br />

(Maheady, Michielli-Pendl, Harper, &<br />

Mallette, 2006). Jerome <strong>and</strong> Barbetta (2005)<br />

consider an “active student response as an<br />

observable, measurable student response to<br />

an <strong>in</strong>structional antecedent” (p. 13). This is a<br />

method of teach<strong>in</strong>g that is used mostly by the<br />

general education teachers, but has started to<br />

be used by others. It is used to <strong>in</strong>crease student<br />

learn<strong>in</strong>g <strong>in</strong> the general education classroom<br />

<strong>and</strong> has started to carry over to the<br />

special education classroom sett<strong>in</strong>g. Berrong,<br />

Schuster, Morse, <strong>and</strong> Coll<strong>in</strong>s (2007) demonstrated<br />

this by us<strong>in</strong>g response cards <strong>in</strong> selfconta<strong>in</strong>ed<br />

special education to <strong>in</strong>crease ASR.<br />

This is an easy method for the teachers to<br />

engage students <strong>in</strong> their learn<strong>in</strong>g. It also allows<br />

for an alternative form of answer<strong>in</strong>g for<br />

students that may be less <strong>in</strong>cl<strong>in</strong>ed to respond<br />

when answer<strong>in</strong>g <strong>in</strong> front of groups. Hav<strong>in</strong>g<br />

students to actively respond to questions<br />

opens many doors of learn<strong>in</strong>g for all students<br />

<strong>in</strong> the sett<strong>in</strong>g. Dur<strong>in</strong>g active student respond-<br />

124 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


<strong>in</strong>g, it is important to look at methods of<br />

respond<strong>in</strong>g to <strong>in</strong>clude all students. The<br />

method <strong>in</strong> which a student responds also will<br />

play a key role <strong>in</strong> their academic success<br />

(Horn, Schuster, & Coll<strong>in</strong>s, 2006). One<br />

method of <strong>in</strong>creas<strong>in</strong>g ASR <strong>in</strong> students who are<br />

either nonverbal or who are severely limited<br />

<strong>in</strong> this regard is response cards (Berrong et<br />

al.).<br />

Response cards are a teach<strong>in</strong>g strategy that<br />

creates a non-judgmental learn<strong>in</strong>g environment<br />

for students. Heward et al. (1996) describe<br />

response cards as cards, signs, or other<br />

low tech items that are simultaneously held up<br />

by students <strong>in</strong> the class to display their response<br />

to questions when presented by the<br />

teacher. Several studies have been conducted<br />

us<strong>in</strong>g response cards to <strong>in</strong>crease ASR (Cavanaugh,<br />

Heward, & Donelson, 1996; Gardner,<br />

Heward, & Grossi, 1994; Heward et al.;<br />

Narayn, Heward, Gardner, Courson, & Omness,<br />

1990). These studies report on the effects<br />

of response card use <strong>in</strong> the classroom. In<br />

addition, response cards have been used to<br />

<strong>in</strong>crease academic respond<strong>in</strong>g for students<br />

with disabilities (Berrong et al., 2007).<br />

One study that exam<strong>in</strong>ed us<strong>in</strong>g response<br />

cards with <strong>in</strong>dividuals with disabilities was conducted<br />

by Horn et al. (2006). Specifically, the<br />

authors looked at us<strong>in</strong>g response cards to<br />

teach tell<strong>in</strong>g time to students with moderate<br />

<strong>and</strong> severe disabilities. The study was conducted<br />

with three middle school participants<br />

<strong>and</strong> took place <strong>in</strong> the student’s self-conta<strong>in</strong>ed<br />

classroom where each student was given a lam<strong>in</strong>ated<br />

flip board that resembled a clock. The<br />

authors used an ABAB design to report the<br />

effectiveness of the students’ use of response<br />

cards. The results showed that response cards<br />

greatly <strong>in</strong>fluenced active student respond<strong>in</strong>g<br />

<strong>and</strong> also <strong>in</strong>creased the student’s acquisition of<br />

tell<strong>in</strong>g time. Increas<strong>in</strong>g ASR through response<br />

cards is one effective way to teach math skills,<br />

although <strong>in</strong>vestigators <strong>in</strong>dicate the need to<br />

teach items systematically to students with severe<br />

disabilities.<br />

One way to systematically teach students<br />

with severe disabilities is to use a system of<br />

least prompts. This strategy is beneficial when<br />

teach<strong>in</strong>g concepts or skills. System of least<br />

prompts is a strategy that consists of a target<br />

stimulus, hierarchy of at least two prompts,<br />

<strong>and</strong> an opportunity for the student to respond<br />

<strong>in</strong>dependently (Ault, Wolery, Doyle, & Gast,<br />

1989; Coll<strong>in</strong>s, 2007; Doyle, Wolery, Ault, &<br />

Gast, 1988). System of least prompts has been<br />

used to teach cha<strong>in</strong>ed <strong>and</strong> discrete task to<br />

students with severe disabilities (Ault et al.;<br />

Coll<strong>in</strong>s; Doyle et al.).<br />

One study conducted by Taber-Doughty<br />

(2005) focused on us<strong>in</strong>g a system of least<br />

prompts to teach the skills needed to use a<br />

copy mach<strong>in</strong>e <strong>and</strong> a debit mach<strong>in</strong>e. Participants<br />

<strong>in</strong>cluded five high school students with<br />

mild to moderate mental retardation, although<br />

student attrition occurred with two<br />

students dur<strong>in</strong>g the pre-tra<strong>in</strong><strong>in</strong>g phase for various<br />

reasons. The study took place <strong>in</strong> the student’s<br />

domestic liv<strong>in</strong>g area of their high<br />

school. Dependent variables <strong>in</strong> the study were<br />

student use of a debit mach<strong>in</strong>e to make a<br />

purchase <strong>and</strong> students ability to operate a<br />

large copy mach<strong>in</strong>e. The <strong>in</strong>dependent variable<br />

used to complete the purchas<strong>in</strong>g <strong>and</strong><br />

cop<strong>in</strong>g tasks were the system of least prompts,<br />

a self operated picture prompt<strong>in</strong>g system, <strong>and</strong><br />

a self-operate auditory prompt<strong>in</strong>g system. An<br />

alternat<strong>in</strong>g treatment design was used to report<br />

the effectiveness of the prompt<strong>in</strong>g systems<br />

on skill acquisition. Results of the study<br />

<strong>in</strong>dicated that all prompt<strong>in</strong>g systems were effective<br />

<strong>and</strong> efficient <strong>in</strong> the student’s ability to<br />

complete the two novel task <strong>and</strong> all students<br />

<strong>in</strong>creased <strong>in</strong>dependence. In addition, outcomes<br />

showed that when the student had a<br />

choice they also <strong>in</strong>creased <strong>in</strong> acquisition <strong>and</strong><br />

decreased <strong>in</strong> duration for time to complete<br />

the task. Although this study used a system of<br />

least prompts to teach a functional skill, the<br />

system of least prompts also has been used to<br />

teach academic skills <strong>in</strong> the area of mathematics.<br />

In another study, Colyer <strong>and</strong> Coll<strong>in</strong>s (1996)<br />

used natural cues with<strong>in</strong> a system of least<br />

prompts to effectively teach us<strong>in</strong>g the next<br />

dollar strategy to four students with mild to<br />

moderate <strong>in</strong>tellectual disabilities ages 12 to<br />

15. The study took place <strong>in</strong> the coaches office<br />

of the students’ high school gym, with some<br />

sessions conducted <strong>in</strong> the classroom. The authors<br />

used a multiple probe across participants<br />

design to report the percentage of student’s<br />

correct response us<strong>in</strong>g the next dollar<br />

method. The method was taught us<strong>in</strong>g the<br />

system of least prompts by natural cues for<br />

prompt<strong>in</strong>g. The results of the study show that<br />

Teach<strong>in</strong>g Number Identification us<strong>in</strong>g Response Cards / 125


there was a functional relationship between the<br />

system of least prompts <strong>and</strong> acquisition of the<br />

next dollar strategy for three of the four students.<br />

The three students were also able to generalize<br />

<strong>and</strong> ma<strong>in</strong>ta<strong>in</strong> the next dollar skill. This<br />

study helps to effectively show that the system of<br />

least prompts can be used to <strong>in</strong>crease money<br />

skills <strong>in</strong> a student with cognitive disabilities.<br />

Even with all of the studies conducted on the<br />

effectiveness of response cards with students <strong>and</strong><br />

the use of a system of least prompts when teach<strong>in</strong>g<br />

a skill, research is limited <strong>in</strong> us<strong>in</strong>g a system of<br />

least prompts to teach us<strong>in</strong>g response cards for<br />

academic skills <strong>in</strong> students with severe disabilities.<br />

The majority of studies completed on response<br />

cards to <strong>in</strong>crease active student respond<strong>in</strong>g<br />

have been with general education students.<br />

For example, Gardner et al. (1994) <strong>and</strong> Narayn<br />

et al. (1990) looked at us<strong>in</strong>g response cards <strong>in</strong><br />

the general education classroom to <strong>in</strong>crease the<br />

student’s participation <strong>and</strong> knowledge of a subject<br />

on the student’s daily quizzes. Currently,<br />

there is a lack of research us<strong>in</strong>g response cards<br />

specifically targeted to <strong>in</strong>creas<strong>in</strong>g math skills<br />

with students with severe disabilities. There are<br />

many studies look<strong>in</strong>g at the effectiveness of us<strong>in</strong>g<br />

the system of least prompts to <strong>in</strong>crease a<br />

students learn<strong>in</strong>g <strong>in</strong> academic areas; however,<br />

not many have focused specifically on math. For<br />

example, Karsh, Repp, <strong>and</strong> Lenz (1990) looked<br />

at us<strong>in</strong>g a system of least prompts to teach a<br />

word recognition skill to students with considerable<br />

cognitive deficits. In addition, Colyer <strong>and</strong><br />

Coll<strong>in</strong>s (1996) did look at us<strong>in</strong>g a system of least<br />

prompts to <strong>in</strong>crease math skills; however, it was<br />

with middle school age students <strong>and</strong> did not<br />

employ the use of response cards. To date, no<br />

research has comb<strong>in</strong>ed the use of system of least<br />

prompts <strong>and</strong> response cards to <strong>in</strong>crease mathematics<br />

skills <strong>in</strong> elementary students with significant<br />

cognitive disabilities. Therefore, the purpose<br />

of this study will be to address the paucity<br />

of research <strong>in</strong> this area by exam<strong>in</strong><strong>in</strong>g effects of<br />

response cards <strong>and</strong> a system of least prompts on<br />

numeral identification with elementary grade<br />

students with severe disabilities.<br />

Method<br />

Participants<br />

Participants were three students with severe<br />

disabilities. Allison <strong>and</strong> Vicki attended the<br />

same class <strong>in</strong> one classroom for students with<br />

severe disabilities. The teacher of this classroom<br />

was appropriately licensed to teach students<br />

with significant disabilities. Two teacher<br />

assistants are also assigned to this classroom.<br />

Josh attended class <strong>in</strong> a similar classroom <strong>in</strong><br />

the same school. This classroom also had a<br />

teacher with a license <strong>in</strong> severe disabilities <strong>and</strong><br />

two teacher assistants. Classrooms are housed<br />

<strong>in</strong> a separate educational environment at a<br />

separate public school for students with severe<br />

disabilities. Allison was a 10 year old female<br />

with severe <strong>in</strong>tellectual disabilities, <strong>and</strong> has an<br />

IQ of less than 20 with scattered skills. Josh was<br />

a 7 year old male student with multiple disabilities<br />

that has an IQ of 44. Vicki was an 8<br />

year old female with multiple disabilities that<br />

has an IQ of less than 20. Students were aware<br />

that the numerals were numbers but could<br />

not <strong>in</strong>dependently identify the numerals presented<br />

on a consistent basis before the study<br />

took place. All students were able to make a<br />

dist<strong>in</strong>ct choice of two cards for answer<strong>in</strong>g of<br />

questions.<br />

Sett<strong>in</strong>g<br />

The sett<strong>in</strong>g was a separate public school <strong>in</strong> an<br />

urban area <strong>in</strong> the Southeastern United States.<br />

The <strong>in</strong>tervention took place <strong>in</strong> the each student’s<br />

separate learn<strong>in</strong>g environment classroom.<br />

Allison <strong>and</strong> Vicki were <strong>in</strong> the same classrooms<br />

that consisted of small class sett<strong>in</strong>g with<br />

eight students. There were teacher assistants<br />

<strong>in</strong> each classroom to assist dur<strong>in</strong>g the <strong>in</strong>tervention.<br />

There was a section <strong>in</strong> each room<br />

with a table separate from other learn<strong>in</strong>g areas.<br />

This area of the rooms was set up to be<br />

less distract<strong>in</strong>g than play areas <strong>in</strong> the room.<br />

Materials<br />

Materials used <strong>in</strong> the study consisted of response<br />

cards <strong>and</strong> were the same <strong>in</strong> the basel<strong>in</strong>e<br />

<strong>and</strong> the <strong>in</strong>tervention. Response cards for<br />

the students were prepr<strong>in</strong>ted. They were<br />

made on 5 <strong>in</strong>. 7 <strong>in</strong>. cardstock paper. Numbers<br />

on the cards were pr<strong>in</strong>ted <strong>in</strong> large black<br />

<strong>in</strong>k with noth<strong>in</strong>g else on the card. They were<br />

lam<strong>in</strong>ated for durability dur<strong>in</strong>g the study. The<br />

presenter’s cards were pr<strong>in</strong>ted on a white 8.5<br />

<strong>in</strong>. x 11 <strong>in</strong>. sheet of cardstock paper. Cards<br />

were also pr<strong>in</strong>ted <strong>in</strong> large black <strong>in</strong>k <strong>in</strong> the<br />

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same font type as on the student’s cards. They<br />

also had symbols on them to represent numbers<br />

(e.g., three balloons, two hearts, etc) <strong>in</strong><br />

addition to the number. These cards were also<br />

lam<strong>in</strong>ated for durability dur<strong>in</strong>g the study.<br />

Experimenters<br />

Both classroom teachers served as the two experimenters<br />

that conducted this study. Both<br />

experimenters are highly qualified classroom<br />

teachers of each of the participants <strong>in</strong>volved.<br />

Each teacher holds a teach<strong>in</strong>g licensure <strong>in</strong><br />

Special <strong>Education</strong>. The experimenters have<br />

had seven or more years of experience work<strong>in</strong>g<br />

with students with significant cognitive disabilities.<br />

Each experimenter was tra<strong>in</strong>ed to<br />

mastery <strong>in</strong> the prompt<strong>in</strong>g system used <strong>in</strong> the<br />

<strong>in</strong>tervention.<br />

Data Collection Procedures<br />

Dependent variable. The dependent variable<br />

was the number of correct response us<strong>in</strong>g response<br />

cards to answer mathematics questions<br />

on number identification for numerals 1–5. The<br />

participants had three cards each with a different<br />

numeral ly<strong>in</strong>g <strong>in</strong> front of them. The teacher<br />

said “show me number X (e.g., 4)” (the teacher<br />

did not hold up the card until the students have<br />

had a chance to respond). An <strong>in</strong>dependent response<br />

was coded as an “I” on the data sheet.<br />

The dependent variable was counted as <strong>in</strong>correct<br />

if the student did not make a choice or<br />

picked the wrong number. In addition the<br />

prompt<strong>in</strong>g level required was recorded on the<br />

data sheet (i.e., V verbal prompt, M model<br />

prompt, PP partial physical prompt, <strong>and</strong> FP<br />

full physical prompt). Any prompt required was<br />

considered a prompted correct response <strong>and</strong><br />

was not counted <strong>in</strong> the f<strong>in</strong>al total of correct<br />

responses. There was no prompt<strong>in</strong>g or assistance<br />

offered to the student <strong>in</strong> basel<strong>in</strong>e as the<br />

prompt<strong>in</strong>g system used is the <strong>in</strong>dependent variable.<br />

The dependent variable was measured by<br />

us<strong>in</strong>g an event record<strong>in</strong>g procedure. The experimenter<br />

marked the correct <strong>and</strong> <strong>in</strong>correct responses<br />

for each session. The dependent variable<br />

was measured across all participants (see<br />

Table 1).<br />

Inter-observer reliability. Inter-observer reliability<br />

took place dur<strong>in</strong>g the basel<strong>in</strong>e <strong>and</strong> the<br />

<strong>in</strong>tervention phases. One of the researchers<br />

recorded participants performance every<br />

third session. The observers were tra<strong>in</strong>ed to<br />

mastery <strong>in</strong> underst<strong>and</strong><strong>in</strong>g what a correct,<br />

prompted, <strong>and</strong> <strong>in</strong>correct response looked like<br />

<strong>and</strong> how to code each. Inter-observer reliability<br />

will be set at 90% or above. The gross<br />

method was used to calculate the reliability by<br />

divid<strong>in</strong>g the number of agreements <strong>in</strong> a session<br />

by the number of agreements plus disagreements<br />

<strong>and</strong> multiply<strong>in</strong>g by 100% (Tawney<br />

& Gast, 1984).<br />

Social validity data. Social validity data<br />

were collected to measure the sound acceptability<br />

of the procedures <strong>and</strong> outcomes of the<br />

<strong>in</strong>tervention. It was measured by a teacher <strong>and</strong><br />

student survey. The teachers completed a<br />

questionnaire based on a rat<strong>in</strong>g scale at the<br />

completion of the study. The student also answered<br />

a very simple questionnaire by respond<strong>in</strong>g<br />

yes or no to each question <strong>in</strong><br />

method that is familiar to the student (e.g., yes<br />

<strong>and</strong> no response cards on slant board).<br />

Experimental Design<br />

The experimental design was a multiple probe<br />

across participants (Horner & Baer, 1978;<br />

Tawney & Gast, 1984). Participants all started<br />

<strong>in</strong> basel<strong>in</strong>e at the same time. Basel<strong>in</strong>e data<br />

were collected for three sessions for Allison,<br />

with probes after the third session for Josh <strong>and</strong><br />

Vicki. A session consisted of 3 trials; each trial<br />

presented the numbers 1–5 <strong>in</strong> r<strong>and</strong>om orders<br />

each time. There was a short wait time of 2 to<br />

5 seconds depend<strong>in</strong>g on participants <strong>in</strong> between<br />

each trial. The participant who had the<br />

lowest amount of responses given <strong>and</strong> a stable<br />

basel<strong>in</strong>e was the first one to receive the <strong>in</strong>tervention.<br />

The <strong>in</strong>tervention did not beg<strong>in</strong> on<br />

the second participant until the first participant,<br />

already <strong>in</strong> the <strong>in</strong>tervention, completed 3<br />

consecutive sessions of at least 9 out of 15<br />

correct responses. This was repeated for the<br />

next participant, <strong>and</strong> so on, until all participants<br />

were <strong>in</strong> the <strong>in</strong>tervention stage. Students<br />

stayed <strong>in</strong> the <strong>in</strong>tervention stage until they had<br />

successfully had four sessions of 11 out of 15<br />

correct responses. Ma<strong>in</strong>tenance data was collected<br />

two weeks after the <strong>in</strong>tervention phase<br />

ends. This was done by ask<strong>in</strong>g the student to<br />

use response cards to identify a number without<br />

any prompt<strong>in</strong>g.<br />

Teach<strong>in</strong>g Number Identification us<strong>in</strong>g Response Cards / 127


TABLE 1<br />

Data Collection for Math Response Cards<br />

Student ID_____________________________ Assessor _________________________________ Date___________<br />

_____1. Independently identifies first number after number is presented ( correctly identifies; - does<br />

not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____2. Independently identifies second number after number is presented ( correctly identifies; - <br />

does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____3. Independently identifies third number after number is presented ( correctly identifies; - <br />

does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____4. Independently identifies fourth number after number is presented ( correctly identifies; - <br />

does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____5. Independently identifies fifth number after number is presented ( correctly identifies; - does<br />

not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____6. Independently identifies sixth number after number is presented for a second time ( correctly<br />

identifies; - does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____7. Independently identifies seventh number after number is presented for a second time ( <br />

correctly identifies; - does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____8. Independently identifies eighth number after number is presented for a second time ( <br />

correctly identifies; - does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____9. Independently identifies n<strong>in</strong>th number after number is presented for a second time ( correctly<br />

identifies; - does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____10. Independently identifies tenth number after number is presented for a second time ( <br />

correctly identifies; - does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____11. Independently identifies 11th number after number is presented for a third time ( correctly<br />

identifies; - does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____12. Independently identifies 12th number after number is presented for a third time ( correctly<br />

identifies; - does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____13. Independently identifies 13th number after number is presented for a third time ( correctly<br />

identifies; - does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____14. Independently identifies 14th number after number is presented for a third time ( correctly<br />

identifies; - does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

_____15. Independently identifies 15th number after number is presented for a third time ( correctly<br />

identifies; - does not correctly identify, NOno opportunity)<br />

Prompt level used: Verbal Model Physical <strong>and</strong> number presented<br />

Procedure<br />

Basel<strong>in</strong>e. Dur<strong>in</strong>g basel<strong>in</strong>e, data were taken<br />

every day for a m<strong>in</strong>imum of three days. All<br />

participants entered basel<strong>in</strong>e at the same<br />

time. Each teacher conducted two teach<strong>in</strong>g<br />

groups <strong>in</strong> two separate environments consist-<br />

<strong>in</strong>g of 2 to 3 students each. Data was only<br />

taken on the participants. Allison was <strong>in</strong> group<br />

one with teacher one <strong>and</strong> 1 to 2 other students<br />

not participat<strong>in</strong>g <strong>in</strong> the study. Josh was <strong>in</strong><br />

group two with teacher two <strong>and</strong> 1 to 2 other<br />

students also <strong>in</strong> room two who were not par-<br />

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ticipat<strong>in</strong>g <strong>in</strong> the study. Vicki was <strong>in</strong> group one<br />

with teacher one <strong>and</strong> 1 to 2 students <strong>in</strong> room<br />

one who were not participat<strong>in</strong>g <strong>in</strong> the study.<br />

The participants were asked to come to a table<br />

<strong>and</strong> sit down with their group or taken by the<br />

teacher to the table. Each group participant<br />

had three response cards ly<strong>in</strong>g on the table <strong>in</strong><br />

front of them. The teacher was directly <strong>in</strong><br />

front of the students. The teacher <strong>in</strong>formed<br />

the students that they would be asked to identify<br />

a number by hold<strong>in</strong>g up the card with the<br />

correspond<strong>in</strong>g number, said by the teacher.<br />

The teacher said, “Show me number 4.” The<br />

students were given no more than five seconds<br />

to attempt an answer. No prompt or corrective<br />

feedback was given dur<strong>in</strong>g basel<strong>in</strong>e. Praise was<br />

offered after 5 seconds for any effort made<br />

dur<strong>in</strong>g the trials. Basel<strong>in</strong>e cont<strong>in</strong>ued for all<br />

students until student one had stable data for<br />

3 consecutive sessions. Each session consisted<br />

of 15 trials offer<strong>in</strong>g numerals 1–5 three times<br />

each to the targeted student.<br />

Intervention. The <strong>in</strong>tervention was the use<br />

of a least-to-most prompt<strong>in</strong>g system to teach<br />

students to make the correct response with<br />

the response cards. The teacher told them, “I<br />

will tell you a number <strong>and</strong> you need to hold<br />

up the card with a correct number 1–5 on it.<br />

The teacher would ask all of the students <strong>in</strong><br />

the group “show me number 4.” The target<br />

student was given 5 seconds to make an attempt<br />

to answer the question by rais<strong>in</strong>g the<br />

correct card with the same number as the<br />

teacher has presented. When a student answered<br />

the question correctly the teacher<br />

would praise the target student. If the student<br />

started head<strong>in</strong>g to a wrong response the<br />

teacher would block student’s response <strong>and</strong><br />

redirect the student to the correct answer. If<br />

the student offered no response with<strong>in</strong> the 5<br />

seconds the teacher would move to a verbal<br />

prompt of “f<strong>in</strong>d the number that matches<br />

m<strong>in</strong>e” <strong>and</strong> aga<strong>in</strong> wait another 5 seconds. If the<br />

student <strong>in</strong>dicated the correct response after<br />

the verbal prompt the student was praised. If<br />

the student still provided no response the<br />

teacher would model “Which number<br />

matches m<strong>in</strong>e?” <strong>and</strong> po<strong>in</strong>t to the correct answer<br />

<strong>and</strong> aga<strong>in</strong> wait five seconds for the students<br />

to respond. If there was still no answer<br />

from the student than the teacher would give<br />

the student a full physical prompt while say<strong>in</strong>g<br />

“The number that matches m<strong>in</strong>e is this one”<br />

while provid<strong>in</strong>g a descriptive response about<br />

the correct answer (e.g., “see my card has two<br />

balloons, one, two, <strong>and</strong> this card you have the<br />

number two, so this is the correct answer”).<br />

The wait time between each trail varied for<br />

each student. The <strong>in</strong>tervention cont<strong>in</strong>ued until<br />

the students have 11 out of 15 correct responses<br />

for 4 consecutive sessions.<br />

Ma<strong>in</strong>tenance. Ma<strong>in</strong>tenance data were<br />

gathered two weeks after the students <strong>in</strong> the<br />

<strong>in</strong>tervention phase had consecutive sessions of<br />

11 out of 15 correct responses. The students<br />

were asked to respond to math questions of<br />

identify<strong>in</strong>g numbers us<strong>in</strong>g response cards.<br />

They were not given any verbal or physical<br />

refreshers to help them recall the <strong>in</strong>formation.<br />

Procedural fidelity. Procedural fidelity was<br />

gathered by one of the researchers each time<br />

<strong>in</strong>ter-rater reliability was collected. A procedural<br />

reliability checklist was used to collect<br />

data on the exact steps the teacher used to<br />

teach the <strong>in</strong>tervention <strong>in</strong> order to monitor the<br />

teacher’s steps <strong>in</strong> the <strong>in</strong>tervention. In addition,<br />

procedural reliability was taken dur<strong>in</strong>g<br />

the teacher tra<strong>in</strong><strong>in</strong>g for the least-to-most<br />

prompt system.<br />

Results<br />

Agreement. Procedural fidelity for the implementation<br />

of the teacher tra<strong>in</strong><strong>in</strong>g session<br />

was 100%. Teacher 1 had 95% procedural<br />

fidelity for implementation of the system of<br />

least prompts. Teacher 2 had 97% procedural<br />

fidelity for implementation of the system of<br />

least prompts of 97%. Interobserver agreement<br />

for the students’ respond<strong>in</strong>g was 95%<br />

for Allison, 97% for Josh, <strong>and</strong> 97% for Vicki.<br />

Student data. Figure 1 shows each student’s<br />

<strong>in</strong>dependent correct responses for the<br />

numerical identification. Dur<strong>in</strong>g basel<strong>in</strong>e, Allison<br />

correctly responded <strong>in</strong>dependently to<br />

the numerical identification with a mean of<br />

4.6 correct out of 15 responses <strong>and</strong> a range of<br />

4 to 6. After <strong>in</strong>tervention, the responses <strong>in</strong>creased<br />

(M 8.4, range of 5 to 13). Dur<strong>in</strong>g<br />

basel<strong>in</strong>e, Josh correctly responded <strong>in</strong>dependently<br />

to the numerical identification with a<br />

mean of 4.3 correct responses <strong>and</strong> a range of<br />

3 to 5. After <strong>in</strong>tervention, the responses <strong>in</strong>creased<br />

(M 10.5, range of 6 to 14). Dur<strong>in</strong>g<br />

basel<strong>in</strong>e, Vicki correctly responded <strong>in</strong>depen-<br />

Teach<strong>in</strong>g Number Identification us<strong>in</strong>g Response Cards / 129


Figure 1. Independent responses across students.<br />

130 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


dently to the numerical identification with a<br />

mean of 4 correct responses <strong>and</strong> a range of 1<br />

to 6. After <strong>in</strong>tervention, the responses <strong>in</strong>creased<br />

(M 9, range of 4 to 12; see Figure<br />

1).<br />

Ma<strong>in</strong>tenance. Figure 1 shows each participant’s<br />

ma<strong>in</strong>tenance for the numeral identification.<br />

All three participants ma<strong>in</strong>ta<strong>in</strong>ed their<br />

data dur<strong>in</strong>g ma<strong>in</strong>tenance (i.e., M 11.5 for<br />

Allison, M 12 for Josh, <strong>and</strong> M 11 for<br />

Vicki).<br />

Social validity. The classroom teachers<br />

completed a social validity questionnaire. Results<br />

<strong>in</strong>dicated that all teachers strongly<br />

agreed the teach<strong>in</strong>g strategy improved the<br />

participant’s ability to answer without hav<strong>in</strong>g a<br />

verbal response. In addition, teachers reported<br />

the study offered adequate preparation<br />

of presentation materials to students<br />

which created more consistent <strong>and</strong> correct<br />

answers. F<strong>in</strong>ally, both teachers <strong>in</strong>dicated that<br />

they would use this teach<strong>in</strong>g strategy for other<br />

students <strong>in</strong> their class. One suggestion mentioned<br />

the desire for the response cards to be<br />

colorful <strong>and</strong> excit<strong>in</strong>g to students.<br />

Participants also contributed to the social<br />

validity outcomes. Overall participants reported<br />

that they enjoyed us<strong>in</strong>g the response<br />

cards. They all stated that they would enjoy<br />

us<strong>in</strong>g the response cards <strong>in</strong> other subject areas<br />

be<strong>in</strong>g taught.<br />

Discussion<br />

Participant data compiled from this study <strong>in</strong>dicated<br />

that the effect of response cards <strong>and</strong> a<br />

system of least prompts <strong>in</strong>creased overall numeral<br />

identification among students with severe<br />

disabilities. This is the first study to comb<strong>in</strong>e<br />

the method of ASR <strong>and</strong> the system of<br />

least prompts to exhibit <strong>in</strong>creased numeral<br />

identification. In addition, this is one of the<br />

few studies to look at us<strong>in</strong>g a response card<br />

method with students with severe disabilities<br />

(e.g., Horn et al., 2006). Although, <strong>in</strong>vestigations<br />

of the effects of response cards on student<br />

respond<strong>in</strong>g are abundant, students with<br />

severe disabilities have been largely left out of<br />

this research. Additionally, this is one of the<br />

few studies to look at teach<strong>in</strong>g a specific math<br />

skill to elementary students us<strong>in</strong>g both methods.<br />

The f<strong>in</strong>d<strong>in</strong>gs of this study could be ex-<br />

pla<strong>in</strong>ed by the fact that the students were<br />

systematically taught the numeral identification<br />

through a system of least prompts while<br />

respond<strong>in</strong>g through the use of response<br />

cards. Colyer <strong>and</strong> Coll<strong>in</strong>s (1996) demonstrated<br />

<strong>in</strong> their study that students could effectively<br />

be taught mathematics skills through<br />

a system of least prompts. They successfully<br />

taught money skills to students by focus<strong>in</strong>g on<br />

the system of prompts. As <strong>in</strong> this study, students<br />

were given the opportunity to answer<br />

with prompt<strong>in</strong>g when needed until the student<br />

could <strong>in</strong>dependently answer the task direction<br />

(i.e., presentation of the numeral <strong>and</strong><br />

comm<strong>and</strong> to “f<strong>in</strong>d the one that looks like<br />

m<strong>in</strong>e”) <strong>and</strong> the prompts were systematically<br />

faded over teach<strong>in</strong>g trials result<strong>in</strong>g <strong>in</strong> skill<br />

acquisition. Students also demonstrated improvement<br />

<strong>in</strong> answer<strong>in</strong>g with the response<br />

cards, which is consistent with Berrong et al.<br />

(2007) when the authors suggest “response<br />

cards have positive effects not only <strong>in</strong> terms of<br />

<strong>in</strong>creased students’ respond<strong>in</strong>g <strong>and</strong> accuracy<br />

of student’s respond<strong>in</strong>g, but also <strong>in</strong> an <strong>in</strong>creased<br />

student academic learn<strong>in</strong>g” (p. 189).<br />

It is important to note the possible limitations<br />

of the study. First, it only focused on a<br />

limited amount of numerals be<strong>in</strong>g taught. Students<br />

were only given the numerals 1 to 5 to<br />

learn with no addition of other numerals dur<strong>in</strong>g<br />

the study. Teachers stated that students<br />

became satiated with exposure to the numerals<br />

after a period of time, which resulted <strong>in</strong> a<br />

decreased <strong>in</strong>terest <strong>in</strong> the activity. Dur<strong>in</strong>g a<br />

teach<strong>in</strong>g session, typically the students would<br />

be actively engaged <strong>in</strong> the activity, but engagement<br />

decreased after the fourth or fifth presentation<br />

of the teach<strong>in</strong>g trail. Future research<br />

is needed that looks at the effects of<br />

this teach<strong>in</strong>g strategy on additional numerals<br />

(e.g., 1–10) be<strong>in</strong>g presented to the students.<br />

Research is also needed on the use of this<br />

teach<strong>in</strong>g strategy <strong>in</strong> other areas of math (e.g.,<br />

greater than, less than; decimals) <strong>and</strong> other<br />

content areas such as sight words <strong>and</strong> sentence<br />

build<strong>in</strong>g.<br />

A second limitation of the study was that<br />

there were only a limited number of students<br />

<strong>and</strong>, therefore, additional replications are<br />

necessary. Third, Allison had an extended absence<br />

due to illness <strong>and</strong> all students had a<br />

school production that <strong>in</strong>terfered with consistent<br />

teach<strong>in</strong>g of numerals. Fourth, the study<br />

Teach<strong>in</strong>g Number Identification us<strong>in</strong>g Response Cards / 131


only took place <strong>in</strong> one particular sett<strong>in</strong>g of the<br />

student’s classroom. Future research is<br />

needed that allows for generalization of the<br />

skills that are be<strong>in</strong>g targeted to other <strong>in</strong>structors,<br />

other sett<strong>in</strong>gs, <strong>and</strong> other types of response<br />

cards. In addition, this study also could<br />

be replicated us<strong>in</strong>g students with severe disabilities<br />

<strong>in</strong> grades other than elementary, focus<strong>in</strong>g<br />

on the comb<strong>in</strong>ation of response cards<br />

<strong>and</strong> a system of least prompts.<br />

In conclusion this study adds to the limited<br />

research on the use response cards <strong>and</strong> systems<br />

of least prompts for students with significant<br />

cognitive disabilities. It offers <strong>in</strong>sight to<br />

teach<strong>in</strong>g students with severe disabilities specific<br />

academic skills through a system of least<br />

prompts. It also offers support to practitioners<br />

by provid<strong>in</strong>g a method of <strong>in</strong>struction that allowed<br />

students a new way of display<strong>in</strong>g their<br />

knowledge through active student respond<strong>in</strong>g<br />

(i.e., response cards). As more research is<br />

needed to susta<strong>in</strong> the strategy of comb<strong>in</strong><strong>in</strong>g<br />

the two methods to teach academic skills to<br />

students with significant cognitive disabilities,<br />

the results of this study should provide practitioners<br />

the <strong>in</strong>formation needed to use a system<br />

of least prompts comb<strong>in</strong>ed with response<br />

cards <strong>in</strong> their classrooms to teach a variety of<br />

academic skills.<br />

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Received: 15 September 2009<br />

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Teach<strong>in</strong>g Number Identification us<strong>in</strong>g Response Cards / 133


<strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>, 2011, 46(1), 134–149<br />

© Division on <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong><br />

Acquisition of Instructive Feedback:<br />

Relation to Target Stimulus<br />

Margaret Gessler Werts <strong>and</strong> El<strong>in</strong> Meyers Hoffman<br />

Appalachian State University<br />

Cynthia Darcy<br />

Watauga County School District<br />

Abstract: We evaluated the addition of stimuli after the praise statement of a trial (<strong>in</strong>structive feedback) <strong>in</strong><br />

which the stimuli were not attached sequentially to the target stimuli. All students reached criterion level<br />

respond<strong>in</strong>g of target behaviors despite the extra <strong>in</strong>formation presented, <strong>and</strong> three of four high school students<br />

with disabilities acquired many <strong>in</strong>structive feedback responses despite the presentation of the stimuli follow<strong>in</strong>g<br />

any, rather than a given, target stimulus. The data leads to several conclusions: (a) The addition of unrelated<br />

<strong>in</strong>structive feedback revolv<strong>in</strong>g among the target stimuli did not impede the acquisition of the target behaviors,<br />

(b) The addition of unrelated <strong>in</strong>structive feedback revolv<strong>in</strong>g among the target stimuli did not preclude the<br />

acquisition of the <strong>in</strong>structive feedback <strong>in</strong>formation, (c) More <strong>in</strong>formation was acquired when more was<br />

presented after the praise statement of the <strong>in</strong>structional trial.<br />

In recent years, there have been over 50 published<br />

studies on <strong>in</strong>structive feedback, a procedure<br />

designed to <strong>in</strong>crease the efficiency of<br />

<strong>in</strong>struction by enabl<strong>in</strong>g students to learn more<br />

without an <strong>in</strong>crease <strong>in</strong> <strong>in</strong>structional time. Us<strong>in</strong>g<br />

this procedure, a teacher will add extra<br />

<strong>in</strong>formation to the consequent event of an<br />

<strong>in</strong>structional trial (generally praise or another<br />

re<strong>in</strong>forcer). The student is not required to<br />

respond to the <strong>in</strong>structive feedback <strong>and</strong> if<br />

there is a response, the teacher ignores it. This<br />

addition to an <strong>in</strong>structional trial has been<br />

shown to be effective (Werts, Wolery, Gast, &<br />

Holcombe, 1995) with many direct <strong>in</strong>structional<br />

strategies.<br />

A trial with <strong>in</strong>structive feedback may occur<br />

as follows: The teacher secures the student’s<br />

attention, presents the target stimulus <strong>and</strong><br />

task direction, <strong>and</strong> provides a response <strong>in</strong>terval.<br />

If the student responds correctly, the<br />

teacher re<strong>in</strong>forces the student <strong>and</strong> presents a<br />

second stimulus (i.e. the <strong>in</strong>structive feedback<br />

stimulus). Students are not expected to re-<br />

Correspondence concern<strong>in</strong>g this article should<br />

be addressed to Margaret Gessler Werts, Appalachian<br />

State University, 124 Edw<strong>in</strong> Duncan Hall, Department<br />

of Language, Read<strong>in</strong>g, <strong>and</strong> Exceptionalities,<br />

Boone, NC 28608.<br />

spond to this second stimulus <strong>and</strong> are not<br />

re<strong>in</strong>forced if they do. The stimulus presented<br />

is <strong>in</strong>structive feedback. F<strong>in</strong>d<strong>in</strong>gs <strong>in</strong>dicate that<br />

students taught us<strong>in</strong>g <strong>in</strong>structive feedback,<br />

when used <strong>in</strong> conjunction with a strategy of<br />

direct <strong>in</strong>struction with identified re<strong>in</strong>forcers<br />

<strong>and</strong> with multiple target behaviors be<strong>in</strong>g<br />

taught simultaneously, acquired a percentage<br />

of the behaviors presented. These results have<br />

been shown for preschoolers with disabilities,<br />

elementary-aged children with disabilities<br />

(learn<strong>in</strong>g disabilities, behavior disorders, mild<br />

<strong>and</strong> moderate <strong>in</strong>tellectual disability, speech<br />

<strong>and</strong> language delays, other health impairments,<br />

<strong>and</strong> autism), <strong>and</strong> with typical development,<br />

<strong>and</strong> adolescents with <strong>in</strong>tellectual disability<br />

<strong>and</strong> behavioral disorders. Teachers<br />

have been able to implement the procedure<br />

of deliver<strong>in</strong>g <strong>in</strong>structive feedback reliably <strong>in</strong> a<br />

variety of <strong>in</strong>structional group<strong>in</strong>gs: one to one<br />

(Colyer & Coll<strong>in</strong>s, 1996; Werts, Wolery, Holcombe,<br />

Vassilaros, & Bill<strong>in</strong>gs, 1992), small<br />

group <strong>in</strong>struction (Anthony, Wolery, & Werts,<br />

1996; Johnson, Schuster, & Bell, 1996; Wolery,<br />

Alig-Cybriwsky, Gast, & Boyle-Gast, 1991),<br />

whole class <strong>in</strong>struction (Werts, Wolery, Venn,<br />

Demblowski, & Doren, 1994), <strong>and</strong> computerassisted<br />

<strong>in</strong>struction (Campbell & Mechl<strong>in</strong>g,<br />

2009; Edwards, 1989). Instructive feedback<br />

134 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


has been presented verbally, visually, <strong>and</strong> <strong>in</strong><br />

comb<strong>in</strong>ation (Caldwell, Wolery, Werts, &<br />

Caldwell, 1996).<br />

The use of <strong>in</strong>structive feedback does not<br />

appear to <strong>in</strong>terfere with the rapidity with<br />

which the target behaviors are acquired, nor<br />

does it substantially <strong>in</strong>crease the length of the<br />

<strong>in</strong>structional sessions. Additionally, if used to<br />

teach <strong>in</strong>formation that is then taught <strong>in</strong> a<br />

future session, it results <strong>in</strong> a sav<strong>in</strong>gs of time<br />

(Holcombe, Wolery, Werts, & Hrenkevich,<br />

1993; Wolery, Schuster, & Coll<strong>in</strong>s, 2000). Students<br />

have acquired the <strong>in</strong>formation when (a)<br />

one stimulus is presented for each target behavior,<br />

(b) two stimuli are presented for each<br />

target behavior either simultaneously or on<br />

alternat<strong>in</strong>g trials (Wolery, Werts, Holcombe,<br />

Bill<strong>in</strong>gs, & Vassalaros, 1993), <strong>and</strong> (c) when the<br />

stimuli are related <strong>and</strong> when they are unrelated<br />

to the target stimulus (Fiscus, Schuster,<br />

& Morse, 2002; Werts, Wolery, Holcombe, &<br />

Frederick, 1993). In small group <strong>in</strong>struction,<br />

students sometimes acquired some of their<br />

peers’ target <strong>and</strong> <strong>in</strong>structive feedback stimuli<br />

(Campbell & Mechl<strong>in</strong>g, 2009; Gast, Doyle,<br />

Wolery, Ault, & Baklarz, 1991; Gast, Wolery,<br />

Morris, Doyle, & Meyer, 1990; Keel & Gast,<br />

1992). Use of specific attend<strong>in</strong>g cues (ask<strong>in</strong>g<br />

the children to repeat the task direction) appears<br />

to <strong>in</strong>crease the probability of student<br />

learn<strong>in</strong>g their peers’ <strong>in</strong>structive feedback behaviors<br />

(Gast, Doyle, Wolery, Ault, & Baklarz,<br />

1991). When <strong>in</strong>structive feedback is structured<br />

so that equivalent relationships can be<br />

tested, stimulus classes are sometimes formed.<br />

When acquisition of <strong>in</strong>structive feedback stimuli<br />

is less than 100%, students can learn the<br />

behavior more rapidly than behaviors not <strong>in</strong>troduced<br />

<strong>in</strong> <strong>in</strong>structive feedback (Holcombe<br />

et al., 1993).<br />

To this po<strong>in</strong>t, there have been few studies to<br />

<strong>in</strong>dicate why the technique works. The <strong>in</strong>structor<br />

does not require <strong>and</strong> ignores any repetition<br />

of the <strong>in</strong>structive feedback stimuli.<br />

One might th<strong>in</strong>k that the response or acquisition<br />

of the behaviors would lessen or ext<strong>in</strong>guish,<br />

but it does not appear to be the case.<br />

Several explanations have been proposed as<br />

reasons for the acquisition of <strong>in</strong>structive feedback<br />

behaviors. Among these are teacher dem<strong>and</strong><br />

qualities, observational learn<strong>in</strong>g, <strong>and</strong><br />

the attachment of a target to a specific <strong>in</strong>structive<br />

feedback stimulus or stimuli. One study<br />

(Werts, Caldwell, & Wolery, 2003) looked at<br />

hav<strong>in</strong>g <strong>in</strong>structive feedback stimuli revolve<br />

among target stimuli. Three <strong>in</strong>structive feedback<br />

behaviors revolved among three target<br />

behaviors with<strong>in</strong> each set. The authors concluded<br />

students acquired <strong>in</strong>structive feedback<br />

responses although the stimuli were not assigned<br />

to a given target behavior/stimulus—<br />

<strong>in</strong>dicat<strong>in</strong>g it is not necessary to assign each<br />

<strong>in</strong>structive feedback stimulus to a given target<br />

stimulus. However, <strong>in</strong> the Werts et al. study,<br />

three state outl<strong>in</strong>es were assigned to three<br />

related sight words for read<strong>in</strong>g. The related<br />

nature of the stimuli may have contributed to<br />

the acquisition of behaviors. In this study, we<br />

explored the feasibility of a greater number of<br />

<strong>in</strong>structive feedback stimuli that were unrelated<br />

to <strong>and</strong> revolv<strong>in</strong>g among the target stimuli<br />

across sets.<br />

The research questions <strong>in</strong>cluded (a) Will<br />

students acquire target behaviors if there is<br />

extra <strong>in</strong>formation <strong>in</strong> the consequent event of<br />

the trial? (In this study, there is three times<br />

the number of <strong>in</strong>structive feedback behaviors<br />

as target behaviors). (b) Will students acquire<br />

the behaviors presented as <strong>in</strong>structive feedback<br />

if the behaviors are not attached procedurally<br />

to the target behaviors? (c) Will students<br />

acquire behaviors presented as<br />

<strong>in</strong>structive feedback when given one exposure<br />

to the stimuli per session <strong>and</strong> given a different<br />

stimulus on each trial?<br />

Method<br />

Participants <strong>and</strong> Sett<strong>in</strong>g<br />

Students <strong>in</strong>volved <strong>in</strong> the study were four high<br />

school students <strong>in</strong> a rural county school. Each<br />

of the selected students had a different category<br />

label, but all were participat<strong>in</strong>g <strong>in</strong> an<br />

occupational course of study, which <strong>in</strong>cluded<br />

an alternate assessment for graduation requirements.<br />

Jackson was 18 years <strong>and</strong> 2 months of age<br />

<strong>and</strong> had been diagnosed with Down syndrome<br />

<strong>and</strong> an <strong>in</strong>tellectual disability. A recent IQ test<br />

(WAIS-III) resulted <strong>in</strong> a full scale IQ of 57.<br />

Jackson’s WRAT-III scores yielded a read<strong>in</strong>g<br />

score of 63 (grade equivalent 2), a spell<strong>in</strong>g<br />

score of 61 (grade equivalent 2) <strong>and</strong> a math<br />

score of 45 (grade equivalent 1). His IEP<br />

goals reflect a focus on occupational skill de-<br />

Instructive Feedback / 135


velopment, <strong>in</strong>clud<strong>in</strong>g goals such as assignment<br />

completion, money identification, forms<br />

<strong>and</strong> application completion, <strong>and</strong> learn<strong>in</strong>g vocational<br />

words. He currently spends all of his<br />

academic day <strong>in</strong> special educational programm<strong>in</strong>g.<br />

Maddox was 17 years <strong>and</strong> 5 months of age<br />

with a diagnosis of autism. His IEP states he<br />

can read words at a third to fourth grade level,<br />

<strong>and</strong> his goals focus primarily on <strong>in</strong>creased use<br />

of language <strong>and</strong> vocabulary. Additional goals<br />

call for respond<strong>in</strong>g to requests <strong>and</strong> questions,<br />

ask<strong>in</strong>g for clarification when needed, <strong>and</strong> present<strong>in</strong>g<br />

appropriate amounts of money to a<br />

cashier. He participates <strong>in</strong> <strong>in</strong>clusive general<br />

education only for music <strong>and</strong> art classes.<br />

Madelyne was 17 years <strong>and</strong> 10 months of<br />

age with diagnoses of developmental delay as<br />

well as speech/language impairment. Her<br />

health history <strong>in</strong>cludes a bra<strong>in</strong> abscess, <strong>and</strong><br />

test<strong>in</strong>g with the Griffiths Mental Development<br />

Scales (Griffiths, 1970) dur<strong>in</strong>g preschool <strong>in</strong>dicated<br />

a 25% delay <strong>in</strong> Madelyne’s developmental<br />

trajectory. She was placed <strong>in</strong> special education<br />

<strong>in</strong> 1995, but was served <strong>in</strong> the general<br />

education classroom until the current school<br />

year. In grade 10, she failed the end of grade<br />

exams <strong>in</strong> math, English, algebra, biology, <strong>and</strong><br />

writ<strong>in</strong>g which resulted <strong>in</strong> a full-time placement<br />

<strong>in</strong> classes <strong>in</strong> the Occupational Course of<br />

Study (OCS). Her communication skills as<br />

measured by a recent V<strong>in</strong>el<strong>and</strong> Behavior Scale<br />

suggest that Madelyne’s communication skills<br />

are <strong>in</strong> the borderl<strong>in</strong>e range. As a result, her<br />

current IEP goals focus on <strong>in</strong>creas<strong>in</strong>g her underst<strong>and</strong><strong>in</strong>g<br />

<strong>and</strong> use of vocabulary <strong>and</strong> language<br />

<strong>in</strong> all environments.<br />

Wyatt was 16 years <strong>and</strong> 11 months of age<br />

with a diagnosis of a specific learn<strong>in</strong>g disability.<br />

He also has a history of seizure disorders.<br />

Wyatt began his education <strong>in</strong> public school,<br />

but was home-schooled for two years dur<strong>in</strong>g<br />

his middle school years. Prior to entry <strong>in</strong>to<br />

high school, he was referred for special education<br />

test<strong>in</strong>g by his parent, who <strong>in</strong>dicated<br />

that Wyatt had difficulty acquir<strong>in</strong>g knowledge.<br />

He was adm<strong>in</strong>istered the Wechsler Intelligence<br />

Scale for Children-IV (WISC-IV) result<strong>in</strong>g<br />

<strong>in</strong> a full scale IQ of 74. (VIQ 69, PSI <br />

78, WMI 80, PRI 92). He is <strong>in</strong> special<br />

education classes with the exception of his<br />

horticulture <strong>and</strong> construction classes. Wyatt’s<br />

records <strong>in</strong>dicate that he struggles with poor<br />

short term memory <strong>and</strong> has difficulty generaliz<strong>in</strong>g<br />

skills. His IEP goals are primarily related<br />

to the development of functional literacy<br />

skills <strong>and</strong> functional writ<strong>in</strong>g skills.<br />

Entry level skills for participant selection<br />

<strong>in</strong>cluded (a) parental or guardian permission,<br />

(b) adequate visual <strong>and</strong> auditory skills to attend<br />

to stimuli, (c) verbal <strong>and</strong> imitative ability<br />

sufficient to participate <strong>in</strong> class, (d) ability to<br />

follow directions, <strong>and</strong> (e) ability to wait up to<br />

5 seconds for a verbal prompt. None of the<br />

selected participants had experience with constant<br />

time delay or <strong>in</strong>structive feedback.<br />

The sessions were conducted <strong>in</strong> a classroom<br />

<strong>in</strong> a rural high school by the classroom<br />

teacher or an <strong>in</strong>vestigator. The students were<br />

enrolled <strong>in</strong> a special education social sciences<br />

class with five students, a teacher, <strong>and</strong> an assistant.<br />

The <strong>in</strong>structor stood at the front or<br />

side of the desk area <strong>and</strong> the students were<br />

seated <strong>in</strong> <strong>in</strong>dividual desks dur<strong>in</strong>g sessions.<br />

Wyatt was not <strong>in</strong>cluded <strong>in</strong> data collection at<br />

the beg<strong>in</strong>n<strong>in</strong>g of the sessions. He was added<br />

later when his attendance improved. The fifth<br />

student opted out of participation <strong>in</strong> the study<br />

but participated <strong>in</strong> the group when he attended.<br />

He was assigned different stimuli, <strong>and</strong><br />

his data were not collected. Time for <strong>in</strong>struction<br />

<strong>in</strong>cluded all students so it is <strong>in</strong>flated reflect<strong>in</strong>g<br />

the time for all five students.<br />

Targeted Skills <strong>and</strong> Materials<br />

Target stimuli were def<strong>in</strong>itions of vocabulary<br />

words from the students’ textbook (Pacemaker<br />

Skills, 2002). Def<strong>in</strong>itions from the text<br />

were taken verbatim. The def<strong>in</strong>itions were<br />

written on white 5 <strong>in</strong> 7 <strong>in</strong> <strong>in</strong>dex cards. The<br />

teacher read the def<strong>in</strong>ition to the student with<br />

the last word (target) omitted. The student<br />

then f<strong>in</strong>ished the sentence with the target<br />

word. No visual prompt was used. The stimuli<br />

for each student are shown <strong>in</strong> Table 1. For<br />

<strong>in</strong>structive feedback stimuli, students heard a<br />

fact from the study materials for the citizenship<br />

test from the U.S. Citizenship <strong>and</strong> Immigration<br />

Services (USCIS) http://www.uscis.<br />

gov/files/nativedocuments/M-623_reversed_<br />

colors.pdf. The sentences were pr<strong>in</strong>ted on 5 <strong>in</strong><br />

7 <strong>in</strong> white <strong>in</strong>dex cards. On the reverse, so it<br />

could be seen by the student, was a word<br />

written that summarized the response. For <strong>in</strong>stance,<br />

the sentence read by the teacher was<br />

136 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


TABLE 1<br />

Target Stimuli<br />

Jackson Set 1 Money everyone who works pays to the government is . . . <strong>in</strong>come tax<br />

An order for medic<strong>in</strong>e a doctor provides is a . . . prescription<br />

Set 2 A report of whether you have paid your bills on time is a . . . credit report<br />

A list of times to do th<strong>in</strong>gs is a . . . schedule<br />

Set 3 A letter to <strong>in</strong>troduce you to an employer is a . . . cover letter<br />

A fee you pay to borrow money is . . . <strong>in</strong>terest<br />

Madelyne Set 1 A summary of your education <strong>and</strong> work experience is called a . . . resume<br />

An extra charge paid when a bill is not paid on time is a . . . late fee<br />

Set 2 A company policy on what employees can wear is called a . . . dress code<br />

A rat<strong>in</strong>g of how well you are do<strong>in</strong>g on your job is a . . . job review<br />

Set 3 Money that renters pay <strong>in</strong> case they damage the hous<strong>in</strong>g is called a . . . security<br />

deposit<br />

A person who agrees to pay for someone else’s bill is a . . . co-signer<br />

Maddox Set 1 When you write your name on the back of a check you . . . endorse it<br />

To sign up to vote is to . . . register<br />

Set 2 Money you pay an owner to live a certa<strong>in</strong> place is called . . . rent<br />

Money borrowed from a bank <strong>and</strong> paid back <strong>in</strong> regular payments is a . . . loan<br />

Set 3 Someone who buys th<strong>in</strong>gs is a . . . consumer<br />

People who know you well <strong>and</strong> will tell employers that you are a good worker are<br />

called . . . references<br />

Wyatt Set 1 A written promise that a product will work for a certa<strong>in</strong> amount of time is a . . .<br />

warranty<br />

A bus<strong>in</strong>ess that puts together credit reports is a . . . credit bureau<br />

Set 2 A department of a certa<strong>in</strong> office that works on issues is an . . . agency<br />

A legal request is a . . . summons<br />

Set 3 Food that provides your body with what it needs to stay healthy is a . . . balanced<br />

diet<br />

A sign of illness or disorder is a . . . symptom<br />

“John Roberts is the Chief Justice of the Supreme<br />

Court.” The reverse of the card, seen<br />

by the student, read, “John Roberts” pr<strong>in</strong>ted<br />

<strong>in</strong> black <strong>in</strong>k <strong>in</strong> Times New Roman type <strong>in</strong> 36<br />

po<strong>in</strong>t font. The sentences <strong>and</strong> the student<br />

stimuli are shown <strong>in</strong> Table 2.<br />

Response Def<strong>in</strong>itions <strong>and</strong> Data Collection<br />

Dur<strong>in</strong>g probe sessions, the <strong>in</strong>structors recorded<br />

the responses of the study participants<br />

to the words follow<strong>in</strong>g statement of the def<strong>in</strong>itions<br />

<strong>and</strong> the civics questions with three<br />

types of responses: a) unprompted corrects,<br />

b) unprompted <strong>in</strong>corrects, <strong>and</strong> c) no responses.<br />

Responses were recorded verbatim.<br />

Dur<strong>in</strong>g <strong>in</strong>structional sessions, the responses<br />

for each trial were collected <strong>in</strong> five categories:<br />

a) prompted corrects, b) unprompted corrects,<br />

c) prompted <strong>in</strong>corrects, d) unprompted<br />

<strong>in</strong>corrects, <strong>and</strong> e) no response.<br />

Screen<strong>in</strong>g <strong>and</strong> Probe Procedures<br />

Prior to <strong>in</strong>struction, all students were<br />

screened to ensure they had the prerequisite<br />

skills for the study. The classroom<br />

teacher probed students <strong>in</strong>dividually for<br />

knowledge of 50 selected vocabulary words<br />

<strong>and</strong> responses to 100 civics questions. For<br />

the target material, the teacher read the<br />

word <strong>and</strong> asked the def<strong>in</strong>ition <strong>and</strong> waited<br />

for the student to respond. For the <strong>in</strong>structive<br />

feedback material, she read the question<br />

<strong>and</strong> waited for the student to respond.<br />

Verbal praise was given for correct answers<br />

<strong>and</strong> <strong>in</strong>correct answers were ignored. After<br />

the <strong>in</strong>itial screen<strong>in</strong>g, the <strong>in</strong>vestigators chose<br />

def<strong>in</strong>itions <strong>and</strong> civics questions unknown by<br />

<strong>in</strong>dividual students <strong>and</strong> re-screened each<br />

student to determ<strong>in</strong>e a list of six words <strong>and</strong><br />

18 civics questions whose correct responses<br />

were unknown. A behavior was selected for<br />

Instructive Feedback / 137


TABLE 2<br />

Instructive Feedback Stimuli<br />

Stimulus statement Visual for student<br />

The Electoral College<br />

elects the president<br />

of the US<br />

Changes to the<br />

Constitution are<br />

amendments<br />

Congress makes federal<br />

laws<br />

There are 100 senators<br />

<strong>in</strong> Congress<br />

Senators are elected for<br />

6 years<br />

John Roberts is the<br />

Chief Justice of the<br />

Supreme Court<br />

There are 27<br />

amendments to the<br />

constitution<br />

There are 435<br />

representatives <strong>in</strong> the<br />

House<br />

Patrick Henry said,<br />

“Give me liberty or<br />

give me death”<br />

Thomas Jefferson wrote<br />

the Declaration of<br />

Independence<br />

The Cab<strong>in</strong>et advises the<br />

President<br />

The Constitution was<br />

ratified <strong>in</strong> 1787<br />

The Governor of North<br />

Carol<strong>in</strong>a is Beverly<br />

Perdue<br />

The <strong>in</strong>troduction to the<br />

constitution is the<br />

Preamble<br />

The Bill of Rights is the<br />

first 10 amendments<br />

You must be 35 years<br />

old to run for<br />

President.<br />

Francis Scott Key wrote<br />

the Star Spangled<br />

Banner<br />

The most important<br />

right granted to<br />

citizens is to vote<br />

The speaker of the<br />

House of<br />

Representatives is<br />

Nancy Pelosi<br />

Electoral College<br />

Amendments<br />

Congress<br />

100 Senators<br />

6 years<br />

John Roberts<br />

27 Amendments<br />

435 representatives<br />

Patrick Henry<br />

Thomas Jefferson<br />

Cab<strong>in</strong>et<br />

1787<br />

Beverly Perdue<br />

Preamble<br />

10 Amendments<br />

35 years old<br />

Francis Scott Key<br />

To vote<br />

Nancy Pelosi<br />

<strong>in</strong>clusion as stimuli if the student had performance<br />

at 0% correct respond<strong>in</strong>g.<br />

The <strong>in</strong>vestigators conducted three 1:1 target<br />

sessions <strong>and</strong> three 1:1 <strong>in</strong>structive feedback<br />

sessions with each student dur<strong>in</strong>g each probe<br />

condition to determ<strong>in</strong>e acquisition of vocabulary<br />

words <strong>and</strong> civics <strong>in</strong>formation. Full probe<br />

conditions occurred prior to teach<strong>in</strong>g each<br />

vocabulary set <strong>and</strong> after each student met criterion<br />

<strong>in</strong> a set. The <strong>in</strong>vestigator orally stated<br />

the def<strong>in</strong>ition for the vocabulary word (e.g.,<br />

“An order for medic<strong>in</strong>e a doctor provides is a<br />

. . .), <strong>and</strong> waited 4 seconds for the student to<br />

respond. Correct responses with<strong>in</strong> 4 s were<br />

re<strong>in</strong>forced with verbal praise. Incorrect responses<br />

or no responses with<strong>in</strong> 4 s were ignored<br />

<strong>and</strong> the teacher presented the next<br />

trial. The targeted vocabulary words were queried<br />

three times each.<br />

Probes for <strong>in</strong>structive feedback material<br />

were separate from the target probes but the<br />

two probes were given sequentially <strong>and</strong> counterbalanced<br />

for order. The items <strong>in</strong>troduced<br />

<strong>in</strong> the consequent event for the trials <strong>in</strong> the<br />

current set <strong>and</strong> taught sets were tested three<br />

times per probe session. Others were probed<br />

once per probe session. Each <strong>in</strong>structive feedback<br />

probe session was conducted as follows:<br />

the <strong>in</strong>vestigator had the questions ready <strong>and</strong><br />

alerted the student to the task (i.e., Are you<br />

ready for the questions?), orally stated the<br />

question (e.g., “Who is the Chief Justice of the<br />

Supreme Court?”), <strong>and</strong> waited 4 s for the student<br />

to respond. Correct responses with<strong>in</strong> 4 s<br />

were re<strong>in</strong>forced with verbal praise. Incorrect<br />

responses or no responses with<strong>in</strong> 4 s were<br />

ignored <strong>and</strong> the teacher presented the next<br />

trial. Students’ attention <strong>and</strong> cooperation<br />

were verbally re<strong>in</strong>forced <strong>in</strong>termittently<br />

throughout the session <strong>and</strong> at the end of each<br />

session.<br />

General Procedure<br />

A 4 s delay constant time delay (CTD) procedure<br />

was used to teach four high school aged<br />

students vocabulary from their social studies<br />

curriculum. Each student was exposed to civics<br />

<strong>in</strong>formation as <strong>in</strong>structive feedback. The<br />

teacher <strong>and</strong> the <strong>in</strong>vestigators conducted the<br />

sessions <strong>in</strong> a group format with<strong>in</strong> the class. A<br />

fifth student was <strong>in</strong>cluded <strong>in</strong> the teach<strong>in</strong>g sessions.<br />

One massed trial tra<strong>in</strong><strong>in</strong>g session oc-<br />

138 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


curred each day school was <strong>in</strong> session <strong>and</strong> the<br />

students were <strong>in</strong> class. Probes were conducted<br />

before tra<strong>in</strong><strong>in</strong>g on the first set of stimuli <strong>and</strong><br />

after each student reached criterion (three of<br />

four sessions at 100% correct respond<strong>in</strong>g).<br />

Instructive feedback was added <strong>in</strong> the consequent<br />

event (praise statement) of trials that<br />

resulted <strong>in</strong> correct student respond<strong>in</strong>g either<br />

before or after a prompt. Incorrect responses<br />

were ignored.<br />

Instruction<br />

Each student was taught three sets of vocabulary<br />

words (two words at a time). Each student<br />

had six trials per session (3 per word) with the<br />

addition of <strong>in</strong>structive feedback <strong>in</strong>formation<br />

on each trial. Six separate pieces of <strong>in</strong>structive<br />

feedback <strong>in</strong>formation were added per session<br />

per student). The <strong>in</strong>structive feedback <strong>in</strong>formation<br />

rotated among the target stimuli so<br />

that it was not attached to any stimulus. Therefore,<br />

each student heard his or her <strong>in</strong>structive<br />

feedback <strong>in</strong>formation once dur<strong>in</strong>g a session.<br />

The first three sessions of each vocabulary<br />

word set were at 0 s delay for three of the<br />

students. Because Wyatt started later <strong>in</strong> the<br />

school year, the first two, <strong>in</strong>stead of three,<br />

sessions <strong>in</strong> each set were at 0 s delay.<br />

After <strong>in</strong>itial sessions, all sessions were conducted<br />

witha4sdelay <strong>in</strong>terval. The <strong>in</strong>structor<br />

called the student’s name, delivered the task<br />

direction (the def<strong>in</strong>ition of the word) <strong>and</strong><br />

waited for the response of the vocabulary<br />

word. If the student responded correctly, it<br />

was scored as an unprompted correct, if the<br />

student waited for assistance <strong>and</strong> then responded<br />

correctly, it was scored as prompted<br />

correct, if there was an error, it was scored as<br />

<strong>in</strong>correct either before or after the prompt. If<br />

the student did not respond, it was scored as a<br />

non response. Follow<strong>in</strong>g correct responses,<br />

the <strong>in</strong>structor praised the student, delivered<br />

the <strong>in</strong>structive feedback <strong>in</strong>formation, <strong>and</strong><br />

then proceeded to the next trial. Follow<strong>in</strong>g<br />

<strong>in</strong>correct responses, the <strong>in</strong>structor ignored<br />

the response <strong>and</strong> proceeded to the next trial.<br />

Criterion level respond<strong>in</strong>g was def<strong>in</strong>ed as<br />

three out of four days at 100% unprompted<br />

correct respond<strong>in</strong>g. Because tra<strong>in</strong><strong>in</strong>g sessions<br />

were conducted with<strong>in</strong> the group <strong>and</strong> <strong>in</strong>dividual<br />

criteria were used, students were <strong>in</strong> different<br />

conditions at different times.<br />

For the first set of vocabulary words, the<br />

<strong>in</strong>structive feedback <strong>in</strong>formation was the same<br />

for three of the students. After the first set, the<br />

<strong>in</strong>formation differed. For Wyatt, the <strong>in</strong>formation<br />

was different for all three of his sets because<br />

he was present dur<strong>in</strong>g occasional sessions<br />

prior to <strong>in</strong>itiat<strong>in</strong>g his experimental<br />

sessions.<br />

Experimental Design<br />

A multiple probe design across social studies<br />

vocabulary sets <strong>and</strong> replicated across three students<br />

was used to assess the effectiveness of<br />

constant time delay for teach<strong>in</strong>g expressive<br />

identification of a word when given the def<strong>in</strong>ition.<br />

Percent of correct responses dur<strong>in</strong>g<br />

<strong>in</strong>structional sessions <strong>and</strong> probes acted as the<br />

dependent variable. Constant time delay with<br />

the addition of <strong>in</strong>structive feedback not tied to<br />

a target stimulus was the <strong>in</strong>dependent variable.<br />

Experimental control was established<br />

when the student, who was respond<strong>in</strong>g at or<br />

near to zero dur<strong>in</strong>g full probe conditions before<br />

the <strong>in</strong>tervention, reached criterion level<br />

respond<strong>in</strong>g <strong>in</strong> the <strong>in</strong>tervention sessions (Wolery,<br />

Bailey, & Sugai, 1988). Reliability data<br />

were collected for 32% of the sessions by an<br />

<strong>in</strong>vestigator (first or second author). Dependent<br />

measure reliability was calculated us<strong>in</strong>g a<br />

po<strong>in</strong>t by po<strong>in</strong>t method (Tawny & Gast, 1984)<br />

<strong>and</strong> was 100% across all sessions. Data on<br />

procedural fidelity (Bill<strong>in</strong>gsley, White, & Munson,<br />

1980) was collected dur<strong>in</strong>g 71% of the<br />

sessions <strong>and</strong> was calculated by divid<strong>in</strong>g the<br />

number of expected teacher behaviors by the<br />

number of planned teacher behaviors <strong>and</strong><br />

multiply<strong>in</strong>g by 100 result<strong>in</strong>g <strong>in</strong> a percentage.<br />

The specific behaviors were deliver<strong>in</strong>g an attention<br />

cue, present<strong>in</strong>g the stimulus, deliver<strong>in</strong>g<br />

the task direction, wait<strong>in</strong>g the planned<br />

latency, deliver<strong>in</strong>g the prompt, deliver<strong>in</strong>g the<br />

consequence, present<strong>in</strong>g the <strong>in</strong>structive feedback<br />

stimulus, <strong>and</strong> wait<strong>in</strong>g the <strong>in</strong>ter-trial <strong>in</strong>terval.<br />

Average agreement was 99.8%.<br />

Results<br />

Percentages of correct responses for each target<br />

behavior set are shown <strong>in</strong> Figures 1<br />

through 4 for Jackson, Madelyne, Maddox,<br />

<strong>and</strong> Wyatt. Prior to <strong>in</strong>struction, student performance<br />

for each student was at 0% correct.<br />

Instructive Feedback / 139


Figure 1. Percent of unprompted (closed triangles) <strong>and</strong> prompted (open circles) correct responses for<br />

Jackson dur<strong>in</strong>g probe <strong>and</strong> <strong>in</strong>tervention sessions. Closed diamonds mark review trials.<br />

All students met criteria levels for target behaviors<br />

after <strong>in</strong>struction <strong>in</strong>dicat<strong>in</strong>g that constant<br />

time delay with the addition of a different<br />

stimulus of <strong>in</strong>structive feedback for each<br />

trial was effective. Three students ma<strong>in</strong>ta<strong>in</strong>ed<br />

the level of performance through three sets of<br />

target behaviors. Maddox had less than 100%<br />

performance for Sets 2 <strong>and</strong> 3 dur<strong>in</strong>g probes.<br />

One additional session of <strong>in</strong>struction on Set 2<br />

target behaviors boosted his probe performance<br />

to 100 percent. Review sessions for Set<br />

1 behaviors were used for Jackson because he<br />

consistently missed one of the target behaviors<br />

<strong>in</strong> the probe sessions follow<strong>in</strong>g Set 1 <strong>in</strong>struction.<br />

The number of sessions <strong>and</strong> percentage<br />

of errors for each student are shown <strong>in</strong> Table<br />

3. The mean number of sessions per word pair<br />

for all four students was 7.4. The sessions took<br />

140 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Figure 2. Percent of unprompted (closed triangles) <strong>and</strong> prompted (open circles) correct responses for<br />

Madelyne dur<strong>in</strong>g probe <strong>and</strong> <strong>in</strong>tervention sessions.<br />

an average of 3 m<strong>in</strong>utes 40 seconds with a total<br />

<strong>in</strong>structional time of 5 hours <strong>and</strong> 53 m<strong>in</strong>utes.<br />

The number of errors made dur<strong>in</strong>g <strong>in</strong>struction<br />

was m<strong>in</strong>imal with 12 for all four students<br />

<strong>in</strong> 96 sessions (576 trials) or 3.125%. Maddox<br />

had 6 errors (4%), Jackson committed 6 errors<br />

(6.3%). Wyatt <strong>and</strong> Madelyne were error<br />

free.<br />

The percentage of correct responses for <strong>in</strong>-<br />

dividual <strong>in</strong>structive feedback behaviors are<br />

shown <strong>in</strong> Table 4 <strong>and</strong> Figures 5 through 8.<br />

Before <strong>in</strong>struction, the students had no correct<br />

responses. After <strong>in</strong>struction, mean correct<br />

performance for Jackson, Madelyne, <strong>and</strong><br />

Wyatt dur<strong>in</strong>g probe conditions was 46.4%,<br />

64.7%, <strong>and</strong> 84.3% respectively. This level of<br />

respond<strong>in</strong>g is consistent with respond<strong>in</strong>g levels<br />

(approximately 58% overall) reported <strong>in</strong><br />

Instructive Feedback / 141


Figure 3. Percent of unprompted (closed triangles) <strong>and</strong> prompted (open circles) correct responses for<br />

Maddox dur<strong>in</strong>g probe <strong>and</strong> <strong>in</strong>tervention sessions.<br />

Werts et al. (1995). For Maddox, performance<br />

was below 10%.<br />

Discussion<br />

In this study, a multiple probe design was used<br />

to evaluate the effectiveness of teach<strong>in</strong>g def<strong>in</strong>itions<br />

for vocabulary words to high school<br />

students enrolled <strong>in</strong> an occupational course of<br />

study. The research questions <strong>in</strong>cluded (a)<br />

Will students acquire target behaviors if there<br />

is extra <strong>in</strong>formation <strong>in</strong> the consequent event<br />

of the trial? (b) Will students acquire the behaviors<br />

presented as <strong>in</strong>structive feedback if<br />

the behaviors are not attached procedurally to<br />

the target behaviors? (c) Will students acquire<br />

142 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Figure 4. Percent of unprompted (closed triangles) <strong>and</strong> prompted (open circles) correct responses for Wyatt<br />

dur<strong>in</strong>g probe <strong>and</strong> <strong>in</strong>tervention sessions.<br />

behaviors presented as <strong>in</strong>structive feedback<br />

when given one exposure to the stimuli per<br />

session <strong>and</strong> given a different stimulus on each<br />

trial?<br />

Several conclusions can be drawn from the<br />

results. First, <strong>in</strong> agreement with prior <strong>in</strong>vesti-<br />

gations <strong>in</strong> the research literature, the CTD<br />

procedure appears to be effective for teach<strong>in</strong>g<br />

students a discrete skill, (Campbell & Mechl<strong>in</strong>g,<br />

2009; Coll<strong>in</strong>s, Branson, & Hall, 1995;<br />

Werts et al., 2003; Whalen, Schuster, & Hemmeter,<br />

1996; Wolery et al., 2000) <strong>in</strong> this case,<br />

Instructive Feedback / 143


TABLE 3<br />

Number of Sessions, <strong>and</strong> Percentage of Trials with Errors on Target Behaviors Through Criterion<br />

Student Set<br />

Number of<br />

Sessions<br />

to state a word when given the def<strong>in</strong>ition. All<br />

students acquired the behaviors taught. The<br />

teacher implemented the task with a high degree<br />

of procedural fidelity, <strong>and</strong>, as <strong>in</strong> similar<br />

studies, the error rate was m<strong>in</strong>imal. The na-<br />

Number of<br />

Errors<br />

Percent of<br />

Errors<br />

M<strong>in</strong>utes <strong>in</strong><br />

Instruction<br />

Jackson 1 7 0 0% 25.39<br />

Review 7 4 7.4% 34.29<br />

2 9 5 8.9% 31.54<br />

3 9 3 5.6% 14.02<br />

Total 32 12 5.8%<br />

Madelyne 1 7 0 0% 29.55<br />

2 6 0 0% 27.27<br />

3 7 0 0% 30.25<br />

Total 20 0 0%<br />

Maddox 1 11 4 6.1% 32.15<br />

2 6 2 5.6% 27.27<br />

3 8 0 0% 35.45<br />

Total 25 6 4.0%<br />

Wyatt 1 7 0 0% 12.51<br />

2 6 0 0% 7.48<br />

3 6 0 0% 5.41<br />

Total 19 0 0%<br />

Overall Means 24 4 3.02% 24.17<br />

ture of the <strong>in</strong>structive feedback (unrelated) to<br />

the target was not a h<strong>in</strong>drance to acquisition<br />

of the target <strong>in</strong>formation. This is to be expected<br />

follow<strong>in</strong>g studies that show similar results<br />

with unrelated or novel stimuli (Fiscus et<br />

Figure 5. Percent of acquisition of <strong>in</strong>structive feedback by stimulus for Jackson.<br />

144 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


Figure 6. Percent of acquisition of <strong>in</strong>structive feedback by stimulus for Madelyne.<br />

Figure 7. Percent of acquisition of <strong>in</strong>structive feedback by stimulus for Maddox.<br />

Instructive Feedback / 145


al., 2002; Whalen et al., 1996; Werts et al.,<br />

1993; Werts et al., 1992; Wolery et al.). In the<br />

present study, as <strong>in</strong> the five earlier studies<br />

us<strong>in</strong>g unrelated stimuli, students learned the<br />

target behaviors. This study adds to the literature<br />

on <strong>in</strong>structive feedback because the students<br />

acquired the target behaviors even<br />

though there was a large amount of material<br />

presented <strong>in</strong> the consequent event for each<br />

trial.<br />

The students <strong>in</strong> the Werts, Caldwell, <strong>and</strong><br />

Wolery (2003) study also acquired behaviors<br />

that were presented unattached to targets, but<br />

the stimuli <strong>in</strong> that study were related to the<br />

target stimuli <strong>and</strong> they revolved among the<br />

three target stimuli with<strong>in</strong> one set. In this<br />

study, the <strong>in</strong>formation presented as <strong>in</strong>structive<br />

feedback was unrelated to the target stimuli.<br />

TABLE 4<br />

Figure 8. Percent of acquisition of <strong>in</strong>structive feedback by stimulus for Wyatt.<br />

Percentage of Acquisition of Instructive Feedback Stimuli<br />

Further, the students received a different stimulus<br />

on each trial (<strong>in</strong>termittent presentation)<br />

<strong>and</strong> each piece of <strong>in</strong>formation was presented<br />

only once per day (m<strong>in</strong>imal exposure). All<br />

four students acquired the targets to criterion<br />

level. Maddox had difficulty ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g this<br />

level of respond<strong>in</strong>g to Set 2. Jackson needed a<br />

review session for Set 1 behaviors—but he was<br />

ill dur<strong>in</strong>g probes <strong>and</strong> this may have contributed<br />

to a decreased level of correct respond<strong>in</strong>g.<br />

Second, three of these students acquired<br />

many <strong>in</strong>structive feedback responses despite<br />

the presentation of the stimuli follow<strong>in</strong>g any,<br />

rather than a given, target behavior/response,<br />

re<strong>in</strong>forc<strong>in</strong>g the concept from Werts et al.<br />

(2003) that it is not necessary to assign each<br />

<strong>in</strong>structive feedback stimulus to a given target<br />

Student Probe 1 Review Probe 2 Probe 3 Total<br />

Jackson 16.7 16.7 53.9 68.0 46.4<br />

Madelyne 80.0 – 57.0 58.0 64.7<br />

Maddox 0.0 – 5.6 7.4 4.3<br />

Wyatt 88.9 – 80.8 83.3 84.3<br />

146 / <strong>Education</strong> <strong>and</strong> <strong>Tra<strong>in</strong><strong>in</strong>g</strong> <strong>in</strong> <strong>Autism</strong> <strong>and</strong> <strong>Developmental</strong> <strong>Disabilities</strong>-March 2011


stimulus. This f<strong>in</strong>d<strong>in</strong>g further dim<strong>in</strong>ishes the<br />

notion that students acquire responses for <strong>in</strong>structive<br />

feedback stimuli because of a built<br />

relationship with target stimuli (Wolery et al.,<br />

1993) or that the build<strong>in</strong>g of a relationship<br />

between the stimuli is required for learn<strong>in</strong>g. It<br />

does not abuse the notion that the built relationship<br />

or the sequential proximity may be<br />

helpful.<br />

Third, students acquired the <strong>in</strong>structive<br />

feedback responses despite hav<strong>in</strong>g a different<br />

stimulus attached to each trial <strong>in</strong> the session<br />

result<strong>in</strong>g <strong>in</strong> two situations: expos<strong>in</strong>g them to<br />

three times the number of <strong>in</strong>structive feedback<br />

behaviors than are usually taught, <strong>and</strong><br />

present<strong>in</strong>g the <strong>in</strong>structive feedback stimuli <strong>in</strong>termittently<br />

<strong>and</strong> a m<strong>in</strong>imal number of times.<br />

In several studies, there have been more than<br />

one stimuli added to a target (Anthony et al.,<br />

1996; Falkenste<strong>in</strong>, Coll<strong>in</strong>s, Schuster, & Kle<strong>in</strong>ert,<br />

2009; Gast, Doyle, Wolery, Ault, & Kolenda,<br />

1994; Wolery et al., 1993). In these<br />

studies us<strong>in</strong>g discrete targets <strong>and</strong> <strong>in</strong>structive<br />

feedback stimuli, two stimuli per target were<br />

delivered. In the current study, six stimuli<br />

were delivered <strong>in</strong> concert with two target stimuli.<br />

In addition, the <strong>in</strong>structive feedback <strong>in</strong>formation<br />

used <strong>in</strong> this study was more complex<br />

than that used <strong>in</strong> other studies <strong>and</strong> as students<br />

acquired the behaviors, more were added to<br />

subsequent sets. Under the conditions of this<br />

study, it was possible to acquire all the presented<br />

behaviors. No student learned all of<br />

the <strong>in</strong>formation presented, but three of the<br />

four acquired more “pieces” of <strong>in</strong>formation<br />

than are generally acquired when the <strong>in</strong>structive<br />

feedback <strong>in</strong>formation is attached <strong>and</strong> limited<br />

to the number of target stimuli. Students<br />

may learn more as they are exposed to more<br />

stimuli <strong>in</strong> <strong>in</strong>structive feedback, but we cannot<br />

know when we reach the po<strong>in</strong>t of dim<strong>in</strong>ish<strong>in</strong>g<br />

returns. Future studies should explore the relative<br />

efficiency of the addition of more stimuli.<br />

Although some <strong>in</strong>structive feedback was delivered<br />

on each trial, it was different on each<br />

trial. Griffen, Schuster, <strong>and</strong> Morse (1998)<br />

found that there was little difference <strong>in</strong> efficiency<br />

of <strong>in</strong>struction when deliver<strong>in</strong>g <strong>in</strong>structive<br />

feedback on every fourth trial compared<br />

to delivery of the stimulus on every trial <strong>in</strong><br />

which the target was presented. In this study,<br />

the gap was extended so that the stimulus was<br />

presented every 6 th trial with only one presentation<br />

per day for each student. For three of<br />

the students, this results <strong>in</strong> more efficacious<br />

<strong>in</strong>struction (learn<strong>in</strong>g more <strong>in</strong> the allotted<br />

time).<br />

The question of why <strong>in</strong>clusion of extra <strong>in</strong>formation<br />

with the praise statement of a trial<br />

is effective is still open. With this study, we<br />

present evidence that the relationship between<br />

the target <strong>and</strong> the stimulus does not<br />

appear to be necessary, but we do not yet<br />

know whether it is a salient factor. Other theories<br />

are still untested. Effectiveness of the<br />

procedure may be due to repetition, implied<br />

praise, behavioral momentum or observational<br />

learn<strong>in</strong>g (Werts et al., 2003). Clearly,<br />

more research is needed to determ<strong>in</strong>e the<br />

saliency of any of these factors.<br />

Limitations<br />

Results should be viewed cautiously due to<br />

several factors. Unanticipated <strong>in</strong>terruptions<br />

dur<strong>in</strong>g the course of this <strong>in</strong>vestigation may<br />

have <strong>in</strong>fluenced the rates of acquisition for<br />

some students–notably Jackson <strong>and</strong> Maddox.<br />

These disruptions <strong>in</strong>cluded school holidays,<br />

but <strong>in</strong> addition, there were <strong>in</strong>termittent <strong>and</strong><br />

extended cancellations of classes due to <strong>in</strong>clement<br />

weather. A total of 18 days were cancelled<br />

due to snow <strong>and</strong> many others were<br />

delayed so that class was shorter <strong>and</strong>, due to<br />

limited bus routes, some students did not<br />

come to school on those days. Although <strong>in</strong>termittent<br />

but systematic <strong>in</strong>struction has been<br />

shown to be effective <strong>in</strong> situations when it is<br />

systematic (Venn, Wolery, & Greco, 1996),<br />

lack of systematic <strong>in</strong>struction may have contributed<br />

to lower performance for some of<br />

these students. Although the number of sessions<br />

to criterion was similar with most of the<br />

students for most sets of target behaviors, the<br />

lack of consistent days of <strong>in</strong>struction contributed<br />

to students be<strong>in</strong>g <strong>in</strong> different conditions<br />

at different times. Many times one to two students<br />

were <strong>in</strong> probe conditions when others<br />

were receiv<strong>in</strong>g <strong>in</strong>struction. This created unequal<br />

opportunities to observe target or <strong>in</strong>structive<br />

feedback <strong>in</strong>formation presented to<br />

other students. The use of this configuration<br />

of direct <strong>in</strong>struction <strong>and</strong> <strong>in</strong>structive feedback<br />

should be exam<strong>in</strong>ed for its utility <strong>in</strong> lead<strong>in</strong>g to<br />

Instructive Feedback / 147


observation learn<strong>in</strong>g of peers target <strong>and</strong> <strong>in</strong>structive<br />

feedback stimuli.<br />

In some studies, students have vocalized the<br />

material presented as <strong>in</strong>structive feedback<br />

even though it is not required or requested,<br />

<strong>and</strong> if it occurs, it is ignored. Three of these<br />

students did not repeat the <strong>in</strong>formation.<br />

Madelyne did sub-vocalize some of the sentences<br />

presented <strong>in</strong> some cases. It was not a<br />

consistent behavior for her. Because we cannot<br />

know whether there was a non-vocal response<br />

to the <strong>in</strong>structive feedback, it is unclear<br />

whether a language mediator was<br />

used—or would be <strong>in</strong>strumental <strong>in</strong> acquisition<br />

of behaviors. Future research could explore<br />

this as a possible enhancement of efficiency.<br />

This study adds to the literature on <strong>in</strong>structive<br />

feedback <strong>in</strong> several important ways: (a)<br />

The addition of unrelated <strong>in</strong>structive feedback<br />

revolv<strong>in</strong>g among the target stimuli did<br />

not impede the acquisition of the target behaviors,<br />

(b) The addition of unrelated <strong>in</strong>structive<br />

feedback revolv<strong>in</strong>g among the target stimuli<br />

did not preclude the acquisition of the<br />

<strong>in</strong>structive feedback <strong>in</strong>formation, (c) More <strong>in</strong>formation<br />

was acquired when more was presented<br />

<strong>in</strong> the consequent event (the praise<br />

statement of the <strong>in</strong>structional trial). Based on<br />

these <strong>and</strong> other f<strong>in</strong>d<strong>in</strong>gs regard<strong>in</strong>g <strong>in</strong>structive<br />

feedback, teachers may be encouraged to use<br />

the procedure to <strong>in</strong>crease the efficiency of<br />

learn<strong>in</strong>g <strong>and</strong> the acquisition of behaviors.<br />

References<br />

Anthony, L., Wolery, M., Werts, M. G., Caldwell,<br />

N. K., & Snyder, E. D. (1996). Effects of daily<br />

prob<strong>in</strong>g on acquisition of <strong>in</strong>structive feedback<br />

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Bill<strong>in</strong>gsley, F. F., White, O. R., & Munson, R. (1980).<br />

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Edwards, B. J. (1989). The effects of a computer assisted<br />

<strong>in</strong>struction program us<strong>in</strong>g the constant time delay procedure<br />

to teach spell<strong>in</strong>g of abbreviations to adolescents<br />

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Received: 30 June 2009<br />

Initial Acceptance: 7 September 2009<br />

F<strong>in</strong>al Acceptance: 24 January 2010<br />

Instructive Feedback / 149


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