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FAQ on Biobanks - Genetic Alliance UK

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BBMRI<br />

A pan-European and broadly accessible network of existing and de novo biobanks and<br />

biomolecular resources. The infrastructure will include samples from patients and healthy<br />

pers<strong>on</strong>s (with links to epidemiological and health care informati<strong>on</strong>), molecular genomic<br />

resources and biocomputati<strong>on</strong>al tools to optimally exploit this resource for global biomedical<br />

research.<br />

Government<br />

Human Genome Project<br />

This site c<strong>on</strong>tains informati<strong>on</strong> <strong>on</strong> the Human Genome Project, which ended in 2003.<br />

Nati<strong>on</strong>al Cancer Institute Office of Biorepositories and Biospecimen Research<br />

The OBBR serves as the coordinating and management center for overarching biospecimenrelated<br />

policies, practices and other related issues across the NCI’s biorepositories.<br />

http://www.ethikrat.org/_english/publicati<strong>on</strong>s/Opini<strong>on</strong>_<strong>Biobanks</strong>-for-research.pdf:<br />

This is an opini<strong>on</strong> of the German Nati<strong>on</strong>al Ethics Council <strong>on</strong> biobanks for research (2004)<br />

Internati<strong>on</strong>al<br />

http://www.coe.int/T/E/Legal_Affairs/Legal_co-operati<strong>on</strong>/Bioethics/Texts_and_<br />

documents/Rec_2006_4.pdf: This is the Recommendati<strong>on</strong> Rec(2006)4 of the Council of<br />

Europe <strong>on</strong> research <strong>on</strong> biological materials of human origins<br />

All illustrati<strong>on</strong>s by Rebecca Kent www.rebeccajkent.com<br />

22 <str<strong>on</strong>g>FAQ</str<strong>on</strong>g> <strong>on</strong> <strong>Biobanks</strong>

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