The Arc's Self-Determination Scale: Procedural Guidelines
The Arc's Self-Determination Scale: Procedural Guidelines
The Arc's Self-Determination Scale: Procedural Guidelines
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who were unemployed or working in a sheltered setting perceiving<br />
themselves as having less control than peers in competitive settings.<br />
Wehmeyer (1992b) surveyed adults with cognitive disabilities in<br />
self-advocacy groups about employment status, job preference and<br />
amount of choice in career decisions. Of 254 respondents, a large<br />
percentage (87.5%) were employed. Most of these (95%) indicated<br />
that they were satisfied with their jobs. However, only 37% of those<br />
employed listed a job equivalent to their current one as their preferred<br />
job. Of those indicating job preferences, 73% were able to indicate<br />
the abilities necessary for those jobs. Although individuals in this<br />
sample were older (mean age = 36) and had been in the work force for<br />
several years, when asked about how they located their present job,<br />
only 8% responded that they had found it themselves. Essentially,<br />
these adults wanted other jobs, knew what was necessary to perform<br />
such work, but were waiting on someone else to locate the job.<br />
Other outcome indicators support the assumption that individuals<br />
with severe cognitive disabilities experience limited selfdetermination.<br />
Wehmeyer and Metzler (1995) analyzed the data from<br />
the National Consumer Survey (NCS), a national survey of Americans<br />
with disabilities pertaining to their satisfaction with their lives, for<br />
5,000 people with mental retardation. Only 6.3% indicated they had a<br />
choice in where they currently lived, 9.4% said they had selected their<br />
roommates and 11.3% indicated they had selected where they worked<br />
or their daytime activities. <strong>The</strong>se figures are low not only when<br />
compared with adults without disabilities, but to people with noncognitive<br />
disabilities as well. For example, of 10,000 adults with<br />
disabilities other than mental retardation, 15.3% indicated that they<br />
chose where they live. For people with mental retardation, the<br />
opportunity to exert control over their lives was a function of the<br />
relative importance of the activity. Thus, 56.3% of the respondents<br />
indicated that they determined what clothes they wore (which still<br />
leaves more than 40% who do not even have control over that aspect<br />
of daily life!) while only 17.6% indicated they provided unassisted<br />
consent for medication. While it may be prudent to request assistance<br />
in making decisions such as consent to medication for individuals with<br />
cognitive disabilities, 56.7% indicated that they had absolutely no<br />
control in the process whatsoever.<br />
Several other outcomes from this survey provide evidence of the<br />
need to address self-determination for people with severe cognitive<br />
disabilities. Only 5.8% of the respondents indicated that they owned<br />
their home and only 4.5% indicated that they were currently or ever<br />
had been married (or were living with someone). For the sample with<br />
non-cognitive disabilities, 12% were or had been married. Among<br />
non-disabled Americans, 58% are married or live with someone and<br />
20% are separated or divorced. Several other studies provide<br />
information regarding opportunities for choice. Kishi, Teelucksingh,<br />
44