EPIRARE_Results_Domenica Taruscio.pdf - Treat-NMD
EPIRARE_Results_Domenica Taruscio.pdf - Treat-NMD
EPIRARE_Results_Domenica Taruscio.pdf - Treat-NMD
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Ethical scrutiny in all registries vs <strong>Treat</strong> <strong>NMD</strong><br />
All re g istrie s<br />
T re a t <strong>NMD</strong><br />
Answe r Op tio ns<br />
Resp o nse Resp o nse Resp o nse Resp o nse<br />
Pe rce nt Co unt Pe rce nt Co unt<br />
REC approval at the beginning<br />
63,4% 135 51,5% 17<br />
REC approval for every new research 9,9% 21 15,2% 5<br />
Informed consent collected 66,0% 142 84,8% 28<br />
6th TREAT-<strong>NMD</strong> Curators’ & 5th TGDOC Meeting<br />
Saturday and Sunday, 29th-30th September 2012, Istanbul, Turkey
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