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EPIRARE_Results_Domenica Taruscio.pdf - Treat-NMD

EPIRARE_Results_Domenica Taruscio.pdf - Treat-NMD

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Initial funding: All registries vs <strong>Treat</strong> <strong>NMD</strong><br />

Answe r Op tio ns<br />

No specific fund<br />

Regional Authority<br />

National Authority<br />

University/Research Institute<br />

Hospital<br />

Patients Association<br />

Foundation<br />

Industry/Industrial<br />

EU Commission/EU Agency<br />

Information not available<br />

Other (specify)<br />

a nswe re d q ue stio n<br />

skip p e d q ue stio n<br />

All re g istrie s<br />

T re a t <strong>NMD</strong><br />

Resp o nse<br />

Pe rce nt<br />

Resp o nse<br />

Co unt<br />

Resp o nse<br />

Pe rce nt<br />

Resp o nse<br />

Co unt<br />

22,8% 46 27,3% 9<br />

13,4% 27 3,0% 1<br />

27,2% 55 15,2% 5<br />

17,3% 35 24,2% 8<br />

9,4% 19 15,2% 5<br />

17,8% 36 30,3% 10<br />

10,9% 22 9,1% 3<br />

12,4% 25 3,0% 1<br />

16,3% 33 15,2% 5<br />

3,0% 6 3,0% 1<br />

14 4<br />

202 33<br />

18 1<br />

6th TREAT-<strong>NMD</strong> Curators’ & 5th TGDOC Meeting<br />

Saturday and Sunday, 29th-30th September 2012, Istanbul, Turkey

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