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the<br />
POWER<br />
of<br />
ADVOCACY<br />
If one <strong>American</strong> CAN fight<br />
cancer, a nation CAN rise<br />
up and defeat it.<br />
2008 Advocacy Accomplishments
Daniel E. Smith<br />
President, ACS CAN<br />
Dear Friends,<br />
Congratulations to staff and volunteers nationwide on another great year. The <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> and its nonprofit, nonpartisan advocacy<br />
affiliate, the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> <strong>Cancer</strong> <strong>Action</strong> <strong>Network</strong> SM (ACS CAN), have once again worked together to demonstrate the <strong>power</strong> of<br />
advocacy in helping to enact lifesaving laws and policies that fight cancer.<br />
In 2008, advocacy hit the road with the ACS CAN Fight Back Express bus, the largest grassroots mobilization in history around cancer issues. During<br />
its six-month, 48-state, 44,000-plus mile journey, this “rolling petition” gathered more than 100,000 signatures from people who want cancer to be a<br />
national priority.<br />
After years of flat funding and outright cuts for federal cancer research and programs, the tide began to turn when new research dollars made their<br />
way into a supplemental spending package. ACS CAN also worked with the One Voice Against <strong>Cancer</strong> coalition to launch the concept of a National<br />
<strong>Cancer</strong> Fund. The fund would serve as a dedicated funding source for cancer research, prevention, early detection, and treatment.<br />
We saw several historic milestones in the fight against tobacco. A bipartisan, veto-proof majority of the U.S. House of Representatives approved a<br />
bill authorizing the Food and Drug Administration to regulate tobacco products. Adult smoking rates fell below 20 percent for the first time since<br />
the 1920s and smoke-free laws now cover nearly 70 percent of the U.S. population.<br />
The <strong>Society</strong> and ACS CAN’s joint Access to Care campaign brought new collaborations with diverse partners. Policy development continued with<br />
new policy principles on health care costs and prevention in the health care system. Efforts to expand access to care through state and federal<br />
initiatives were ongoing.<br />
The year also marked a new day in advocacy for the <strong>Society</strong>’s Great West Division when, on September 1, its advocacy program activities were<br />
transferred to ACS CAN. ACS CAN now not only represents the national <strong>Society</strong> before the federal government, but also the 12 states of the Great<br />
West Division on state and local advocacy issues.<br />
Together, we are building a movement of people united in a mission to fight back against cancer through advocacy, a movement that believes if one<br />
person can battle cancer, a nation can rise up to defeat it.<br />
Together, we are building a movement<br />
of people united in a mission to fight<br />
back against cancer through advocacy,<br />
a movement that believes if one person<br />
can battle cancer, a nation can rise up<br />
to defeat it.
ADVOCACY<br />
Accomplishments<br />
Table of Contents<br />
Mission Statements........................3<br />
Dedication ................................4<br />
Leadership . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5<br />
Advocacy Awards .........................6<br />
The Power of Advocacy ....................7<br />
National Leadership Summit/Lobby Day . . 10<br />
Advocacy and Relay for Life...............11<br />
<strong>Cancer</strong> Disparities........................12<br />
Fight Back Express .......................13<br />
<strong>Cancer</strong> Promise ..........................16<br />
Access to Care. ...........................17<br />
Michelle’s Law ............................20<br />
Federal and State Highlights ..............21<br />
State-by-State Highlights. .................26<br />
Reducing Tobacco’s Toll ...................32<br />
Donor Recognition. .......................33<br />
CAN Opener .............................36<br />
Special Thanks ...........................37<br />
2
The <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> Mission<br />
The <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> is the nationwide community-based voluntary health organization dedicated<br />
to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering<br />
from cancer through research, education, advocacy, and service.<br />
The ACS CAN Mission<br />
ACS CAN, the nonprofit, nonpartisan advocacy affiliate of the <strong>American</strong><br />
<strong>Cancer</strong> <strong>Society</strong>, supports evidence-based policy and legislative solutions designed<br />
to eliminate cancer as a major health problem. ACS CAN works to encourage<br />
elected officials and candidates to make cancer a top national priority. ACS CAN<br />
gives ordinary people extraordinary <strong>power</strong> to fight cancer with the training and<br />
tools they need to make their voices heard.<br />
3
DEDICATION<br />
Alan Mills<br />
Advocacy Accomplishments 2008 is dedicated to our friend and colleague Alan<br />
Mills, who lost his battle with cancer on February 20, 2008. All of us in advocacy<br />
stand on Alan’s shoulders, and, while his life was all too brief, his impact was<br />
truly immense.<br />
Alan’s career with the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> began in 1987 in the then-West<br />
Virginia Division. In 1990, he moved to Washington, D.C., where he was one<br />
of the founders of the <strong>Society</strong>’s National Government Relations Department.<br />
Later, he moved to the Great Lakes Division, where he served as director of<br />
Federal Government Relations. He and his team built a grassroots movement of<br />
dedicated people from all walks of life that has become an important force in<br />
Indiana and Michigan politics in recent years.<br />
Alan led by example, and in 2004 he received the prestigious Jerry Maldavir<br />
Award for Excellence in Advocacy, the highest advocacy honor given within ACS<br />
CAN and the <strong>Society</strong> to staff. He will be missed by many people but he will not<br />
be forgotten. He lives on through his beloved wife, Angie, and their children,<br />
Noah and Jenna, and through his work. His memory will motivate many others<br />
to fight every day with renewed energy and passion to eradicate cancer.<br />
4
<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong><br />
Leadership<br />
Van Velsor Wolf<br />
Chair of the Board<br />
Elizabeth T.H. Fontham,<br />
MPH, DrPH<br />
President<br />
John R. Seffrin, PhD<br />
Chief Executive Officer<br />
ACS CAN Leadership<br />
ACS CAN Board of Directors, 2007-2008 ACS CAN Board of Directors, 2008-2009<br />
Ray Bell<br />
Robert T. Brodell, MD<br />
Teri P. Cox, MBA<br />
Lewis E. Foxhall, MD<br />
Elmer Huerta, MD, MPH<br />
Robert R. Kugler, Esq.<br />
Mary Maryland, PhD<br />
Karen A. Moffitt, PhD<br />
Marion E. Morra, MA, ScD<br />
Gary M. Reedy, Secretary<br />
Christy A. Russell, MD<br />
Peter S. Sheldon, Esq.<br />
Gary Streit, Esq.<br />
Stephen L. Swanson<br />
Eric W. Taylor, MD<br />
Phylecia Wilson<br />
Robert E. Youle, Esq., Treasurer<br />
Kathleen M. Bond<br />
William H. Boykin, Jr., MD<br />
Deborah J. Cornwall<br />
Elizabeth T.H. Fontham, MPH, DrPH<br />
Lewis E. Foxhall, MD<br />
Laura J. Hilderley, RN, MS<br />
Robert R. Kugler, Esq., Treasurer<br />
Mary Maryland, PhD<br />
Karen A. Moffitt, PhD<br />
Gary M. Reedy, Secretary<br />
Christy A. Russell, MD<br />
Peter S. Sheldon, Esq.<br />
Gary Streit, Esq.<br />
Stephen L. Swanson<br />
Eric W. Taylor, MD<br />
Phylecia Wilson<br />
Van Velsor Wolf<br />
Laura J. Hilderley, RN, MS<br />
Chair<br />
Robert E. Youle, Esq.<br />
Chair<br />
John R. Seffrin, PhD<br />
Chief Executive Officer, ACS CAN<br />
5
Recognizing Excellence and Achievement:<br />
2008 ACS CAN Advocacy Awards<br />
The National Distinguished Advocacy Award*<br />
ACS CAN’s highest national advocacy award, presented to<br />
individuals who demonstrate outstanding leadership in the<br />
public policy arena<br />
Outstanding Ambassador Constituent<br />
Team Lead<br />
Presented to volunteers who demonstrate superlative abilities<br />
in the ambassador constituent team lead role<br />
Outstanding Government Relations<br />
Professional Award<br />
Presented to a <strong>Society</strong> or ACS CAN government relations<br />
professional for singular achievement in state advocacy<br />
The Honorable Barbara Mikulski<br />
United States Senate, Maryland<br />
The Honorable Rosa DeLauro<br />
United States House of Representatives, Connecticut<br />
The Honorable Jane Nelson<br />
Texas State Senate<br />
The Theodore C. Marrs Award*<br />
ACS CAN’s highest honor for volunteer advocacy, presented<br />
to individuals who consistently demonstrate excellence in<br />
public policy<br />
Gary Streit, Esq.<br />
Iowa<br />
Outstanding State Lead Ambassador<br />
Presented to a volunteer who demonstrates exemplary leadership<br />
in the state lead ambassador role<br />
Lori Bremner<br />
California<br />
Marty Crapnell<br />
Illinois<br />
Marilyn Lesher<br />
Kentucky<br />
Robianne Schultz<br />
Minnesota<br />
Outstanding Volunteer Team<br />
Presented to a group of volunteers that demonstrate strong<br />
cohesion and cooperation in fighting cancer through advocacy<br />
Ohio<br />
The Jerry Maldavir Award<br />
The highest advocacy honor for <strong>Society</strong> or ACS CAN advocacy<br />
staff, presented to the individual who best embodies the passion,<br />
dedication, and enthusiasm of the late Jerry Maldavir, a<br />
former <strong>Society</strong> staff lobbyist<br />
Angela T. Huber<br />
Ohio<br />
Russ Sciandra<br />
New York<br />
Outstanding Grassroots Professional Award<br />
Presented to a <strong>Society</strong> or ACS CAN grassroots professional<br />
for singular achievement in volunteer recruitment, education,<br />
and mobilization<br />
Sara Mannetter<br />
Minnesota<br />
Outstanding Government Relations<br />
Team Award<br />
Presented to a <strong>Society</strong> or ACS CAN team of state government<br />
relations professionals for singular achievement in state advocacy<br />
Texas<br />
*An ACS CAN volunteer workgroup selected the National Distinguished Advocacy Award and Theodore C. Marrs Award recipients.<br />
6
THE POWER<br />
of Advocacy<br />
Advocacy’s Role in the Fight Against <strong>Cancer</strong><br />
Conquering cancer is as much a matter of public policy as scientific discovery. Whether it’s increasing funding for cancer research<br />
and programs, enacting smoke-free laws and raising tobacco taxes, or paving the way for more people to access quality, affordable<br />
health care, government action is constantly required. That’s why the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> and its nonprofit, nonpartisan<br />
advocacy affiliate, the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> <strong>Cancer</strong> <strong>Action</strong> <strong>Network</strong> SM (ACS CAN), work in concert to ensure that elected<br />
officials across the country make cancer a top national priority.<br />
While the <strong>Society</strong> and ACS CAN utilize applied policy analysis, direct lobbying, grassroots action, media outreach, and litigation<br />
to accomplish advocacy goals, science remains paramount. Only evidence-based policy and legislative solutions are pursued.<br />
Together, the <strong>Society</strong> and ACS CAN support a community-based grassroots network of cancer survivors, caregivers, volunteers,<br />
staff, health care professionals, public health organizations, and other partners that provide the muscle to ensure that the cancer<br />
community’s voice is heard in the halls of government.<br />
7
Advocacy and ACS CAN<br />
In 2001, cancer advocacy took a major step forward with the creation of ACS CAN. ACS CAN is<br />
a movement uniting and em<strong>power</strong>ing cancer patients, survivors, caregivers, and their families by<br />
giving them the training and tools needed to make them truly heard. ACS CAN is the force behind<br />
legislative victories and policy successes that help save lives.<br />
The <strong>Society</strong> and ACS CAN are among the most respected sources for evidence-based cancer and health<br />
policy solutions for government officials, the media, and the public. ACS CAN is also a trusted source<br />
of information about candidate positions on cancer-related issues. During the 2008 election cycle, ACS<br />
CAN published voter guides to help citizens engage elected officials and advocate for an increased<br />
focus on cancer. The voter guides were compiled based on responses to questionnaires sent to the<br />
presidential candidates, 23 U.S. House campaigns, five U.S. Senate races, four gubernatorial contests,<br />
and 14 state legislative matchups. Questions covered cancer research and programs, access to care,<br />
prevention and early detection screenings, and tobacco control.<br />
The final responses, along with ACS CAN’s positions, were posted on www.acscan.org to help<br />
citizens learn about where their candidates stood on cancer issues. Thanks to the voter guides,<br />
ACS CAN advocates have a baseline for holding those in office accountable as new legislative<br />
sessions get under way.<br />
The Heart of the Movement<br />
As voters and constituents who care about cancer, <strong>Society</strong> and ACS CAN advocates actively engage<br />
their elected officials. They write letters and send email. They make calls and meet with legislators.<br />
They alert the media and rally for the cause. They speak out, knowing their voices are the ones that<br />
most influence local, state, and federal officials. Advocacy accomplishments at any level of government<br />
would not be possible without the muscle of a <strong>power</strong>ful grassroots movement.<br />
At the heart of ACS CAN’s movement is an enhanced volunteer structure. Working closely with<br />
Division staff partners, Ambassador Constituent Teams (ACT!) handle critical activities in each state<br />
that support advocacy campaigns.<br />
Each team member has a clearly defined role that contributes to an enhanced volunteer structure’s<br />
overall function. Fifty state lead ambassadors (SLAs) provide leadership for their states’ activities<br />
and serve as the main contact for their U.S. senators. In addition, there is a SLA representing the<br />
District of Columbia and another representing Native <strong>American</strong>s. Within each state, an ACT! Lead<br />
guides the efforts for each congressional district. Working together with their SLAs and Division<br />
staff partners, ACT! Leads recruit and support chairpersons who integrate advocacy and ACS CAN<br />
into Relay for Life ® , fundraising, media outreach, and mobilization. These positions mirror the most<br />
critical components of successful advocacy campaigns. Established in 2007, ACS CAN’s enhanced<br />
volunteer structure is energizing existing volunteers, nurturing a new generation of leaders, and<br />
inspiring others to join the ACS CAN movement.<br />
PRESIDENTIAL CANDIDATE<br />
VOTER GUIDE<br />
Where do the candidates stand on these important cancer research, prevention and treatment issues?<br />
ACCESS TO CARE<br />
What steps will you take to ensure that all <strong>American</strong>s have access to the full continuum of quality cancer care, including prevention and early detection through treatment and follow-up care?<br />
READ THE ANSWERS<br />
TOBACCO CONTROL<br />
As president, will you work with Congress to enact legislation (specifically, S. 625/H.R. 1108) to rein in the most egregious manufacturing and marketing practices of the tobacco industry,<br />
and will you substantially increase the federal tobacco tax to help improve public health, save lives, and protect children from a lifetime of smoking?<br />
READ THE ANSWERS<br />
CANCER RESEARCH<br />
In real dollars, federal funding for the National <strong>Cancer</strong> Institute and the Centers for Disease Control has been cut dramatically over the past five years. As president, will you reverse this<br />
trend and commit to a substantial increase in the budget for NCI cancer research and CDC cancer control programs during your administration?<br />
READ THE ANSWERS<br />
PREVENTION<br />
As president, will you pledge to support full funding for the National Breast and Cervical <strong>Cancer</strong> Early Detection Program (NBCCEDP) and related treatment programs, and support H.R.<br />
1738, the proposed Colorectal <strong>Cancer</strong> Early Detection Prevention and Treatment Program (CCEDPTP), both of which utilize screening tools that are known conclusively to save lives and<br />
ensure that more <strong>American</strong>s, especially the medically underserved, have greater access to cancer prevention, early detection and treatment?<br />
READ THE ANSWERS<br />
8
“Advocacy offers me an opportunity to<br />
fight back against a disease where I have<br />
otherwise felt <strong>power</strong>less.”<br />
– Aimee Belgard, State Lead Ambassador, New Jersey<br />
Knowledge Is Power<br />
Em<strong>power</strong>ment begins with skills, tools, and information. Trainings and tactical support provide<br />
the foundation on which the ACS CAN movement stands. In 2008, ACS CAN launched a virtual<br />
community – www.acscan.org/volunteerstructure – where volunteers can find information, access<br />
tools, and share best practices. Volunteers can also learn more about the issues through the site’s<br />
online training modules on ACS CAN policy priorities. In addition, a portable, interactive volunteer<br />
handbook was developed for state and district ACT! leads.<br />
In May, ACS CAN hosted what has become a premier training forum, the State Lead Ambassador<br />
Summit in Cleveland, Ohio. Sessions covered everything from health care reform to the latest cancer<br />
science. Volunteers and staff partners participated in workshops to learn how to better prepare for<br />
legislative meetings, raise funds for ACS CAN, and recruit and retain volunteers. In a first for the<br />
summit, state lead ambassadors joined staff in facilitating more than half of the sessions.<br />
New Communication Tools<br />
As <strong>American</strong>s have expanded the ways in which they communicate, ACS CAN has launched new<br />
tools to engage volunteers. ACS CAN now has active pages on social networking sites such as<br />
Facebook, MySpace, and YouTube. Volunteers use these sites not only to learn about legislative<br />
issues and take action, but also to recruit volunteers and share their cancer experience with friends<br />
and family.<br />
ACS CAN is also meeting the needs of the growing number of people text messaging with its<br />
new mobile action network. By texting “volunteer” to 73585, a person can begin receiving<br />
action alerts and legislative updates via cell phone. The ability to text is a successful tool for<br />
recruiting volunteers who may not be at a computer when they first learn about ACS CAN.<br />
Finally, ACS CAN significantly enhanced its Web site, acscan.org, to provide more information<br />
about its activities and legislative campaigns.<br />
Partnering for Success<br />
Recognizing that partnerships and collaborations are critical to ensuring success, ACS CAN engages<br />
in a variety of outreach activities that promote and leverage the organization and its mission. ACS<br />
CAN works closely with conventional allies, including other members of the cancer community,<br />
disease-specific patient-centered organizations, and public health groups. More recently, ACS CAN<br />
has broadened its scope, seeking common ground with less traditional partners, including policy<br />
institutes, professional associations, the business community, unions, health insurers, pharmaceutical<br />
companies, and others in the health care industry. As a further evolution, a Corporate Membership<br />
Program was established in 2008 to engage key corporate partners on a regular and substantive<br />
basis and build and sustain mutually beneficial relationships.<br />
Advocacy in the Courts<br />
Court cases across the nation determine a wide range of issues affecting the <strong>Society</strong> and ACS CAN’s<br />
shared mission, from the employment rights of cancer survivors to access to lifesaving therapies and<br />
tobacco control. In 2008, the <strong>Society</strong> and ACS CAN launched the Judicial Advocacy Initiative (JAI) to<br />
monitor and advocate in disputes that impact our goals. Partnering with private law firms that have<br />
donated services, JAI seeks to uphold the rights of cancer survivors to work, and ensure that they<br />
have access to medical care.<br />
The Power of the ACS CAN Movement<br />
In a world of competing policy concerns, it doesn’t matter how noble an individual cause might be;<br />
crucial issues are often overlooked in the face of pressure from a variety of active constituencies.<br />
To put cancer at the top of the nation’s agenda, only a movement that is organized and relentless<br />
in prompting lawmakers to act will succeed. ACS CAN is that movement, working to prove if one<br />
<strong>American</strong> can fight cancer, a nation can rise up to defeat it.<br />
9
The ACS CAN National<br />
Leadership Summit<br />
and Lobby Day<br />
“The feeling I had all day was that we are making a difference<br />
and we have a very loud voice. It felt great.”<br />
– Sandy Slocum, State Lead Ambassador, Minnesota<br />
The 2008 ACS CAN National Leadership Summit and Lobby Day marked the second year<br />
ACS CAN convened its enhanced volunteer structure for intensive trainings and congressional<br />
lobbying visits. More than 600 ACS CAN ambassadors, district leads, and staff partners<br />
from all 50 states, plus the District of Columbia, participated.<br />
The 2½-day National Leadership Summit consisted of briefings and training sessions<br />
that served as bookends to Lobby Day. Highlights included <strong>Society</strong> President Dr. Elmer<br />
E. Huerta’s keynote speech; remarks by Time magazine’s chief political correspondent,<br />
Karen Tumulty; and workshops to help volunteers and staff better pursue federal and<br />
state advocacy goals.<br />
On Lobby Day itself, a total of 434 congressional meetings were held, including visits to all<br />
100 U.S. Senate offices. Advocates urged members to give the Food and Drug Administration<br />
broad authority to regulate the manufacturing and marketing of tobacco products, and a strong<br />
push was also made for increased funding for cancer research and programs. Support for new<br />
legislation that would create a dedicated funding source to finance cancer research, prevention,<br />
early detection, and treatment was sought as well.<br />
Special guests at Lobby Day included five of the nation’s most successful men’s college<br />
basketball coaches who take part in Coaches vs. <strong>Cancer</strong> ® , an effort that unites the <strong>Society</strong><br />
and the National Association of Basketball Coaches in the fight against cancer. The coaches<br />
joined <strong>Society</strong> and ACS CAN CEO John R. Seffrin, PhD, and several members of Congress<br />
at a rally calling on Congress to make cancer a top national priority. Reporters from the<br />
Associated Press, Roll Call, and several local television affiliates reported on the event. The<br />
coaches later joined ACS CAN volunteers and staff for legislative meetings.<br />
10
Advocacy and Relay For Life ®<br />
The partnership between Relay For Life ® , the <strong>Society</strong>’s signature event, and advocacy continues to thrive. With each passing year, more Relays integrate advocacy into their events and<br />
more Relay volunteers embrace advocacy as another <strong>power</strong>ful means of fighting back against cancer. With more than 3.5 million participants nationwide, Relayers are the vanguard of<br />
the ACS CAN movement.<br />
• More than 30,000 electronic and handwritten Picture A Cure TM messages, in which individuals share their personal cancer stories and photos with lawmakers, were collected at<br />
Relay For Life events nationwide. The testimonials, which were delivered to members of Congress in their districts and in Washington, D.C. during ACS CAN’s 2008 National Lobby<br />
Day, also included an appeal to lawmakers to make health care reform a national priority.<br />
• Relay For Life volunteers and participants sponsored 30,000 Fight Back Express bus miles, raising a total of $300,000 for ACS CAN and the Fight Back Express. More than 15,000<br />
Relay For Life participants became members of ACS CAN.<br />
• National Relay For Life Advisory Team volunteers joined the ACS CAN State Lead Ambassador Summit in May 2008 to devise new strategies and approaches that will further their<br />
shared mission. They also took part in the Fight Back Express ribbon-cutting and launch in Cleveland, Ohio.<br />
11
CANCER<br />
Disparities<br />
Despite notable advances in cancer prevention, screening, and treatment, a number of the uninsured, minorities,<br />
and other medically underserved populations are still not benefiting from them. The nexus between disparities<br />
and advocacy, the two pillars supporting the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong>’s leadership roles, is strong. The <strong>Society</strong><br />
and ACS CAN strive to help create, change, and influence public policies that significantly reduce such disparities<br />
and promote outreach to diverse communities.<br />
Ongoing <strong>Society</strong> and ACS CAN legislative efforts include creating and funding breast, cervical, and colon<br />
cancer early detection and treatment programs for low-income, uninsured, and underinsured women and men.<br />
The <strong>Society</strong>-ACS CAN partnership is also fighting to expand Medicaid coverage for smoking cessation services,<br />
as well as increased federal support for the National Center on Minority Health and Health Disparities at the<br />
National Institutes of Health. Finally, ACS CAN continues to urge the federal government to place trained<br />
“patient navigators” in health facilities to assess individual and community needs and guide patients through<br />
our fragmented health care system.<br />
The <strong>Society</strong> and ACS CAN’s Access to Care initiative (see p. 17) figures prominently. Minorities are more likely to<br />
be inadequately insured or uninsured. Health coverage for the nation’s poorest citizens was also top of mind as<br />
the <strong>Society</strong> introduced a policy framework from which to assess Medicaid reform proposals. ACS CAN convened<br />
an expert panel to discuss issues specific to disparities in cancer care, part of ongoing efforts to educate volunteers<br />
and staff. Interactive trainings also serve this purpose and highlight how ACS CAN’s grassroots movement can<br />
be deployed most effectively.<br />
The Intercultural <strong>Cancer</strong> Council, the Congressional Black Caucus Foundation, and the National Council of La<br />
Raza are just a few of the many partners that collaborate with the <strong>Society</strong> and ACS CAN on health policy, legislative<br />
campaigns, and grassroots training. An especially close alliance has developed in recent years with the Phi Beta<br />
Sigma Fraternity, Inc., and its Sigmas Waging War Against <strong>Cancer</strong> initiative. In 2008, the <strong>Society</strong> and ACS CAN<br />
entered into new partnerships with the Zeta Phi Beta Sorority, Inc., and Alpha Phi Alpha Fraternity, Inc.<br />
12
THE ACS CAN<br />
Fight Back Express<br />
A Vehicle for Change<br />
On May 4, 2008, in Cleveland, Ohio, ACS CAN launched the largest grassroots mobilization campaign ever waged on the<br />
issue of cancer as the ACS CAN Fight Back Express bus began a six-month journey through the continental United States.<br />
The Fight Back Express was welcomed in communities large and small to educate, inspire, and unite concerned citizens<br />
across the country around a core mission to make cancer a top national priority for legislators and candidates.<br />
At 512 events in 480 communities, cancer patients, survivors, caregivers, and their families shared their experiences and<br />
voiced the need for the country to make dramatic changes in its approach to cancer. Citizens joined elected officials in<br />
adding their signatures to the sides, front, back, and top of the bus, even signing the vehicle’s lights and wheel wells. The<br />
Fight Back Express transformed into a “rolling petition” and a true vehicle for change.<br />
Each stop on the bus tour was an opportunity to educate the public, lawmakers, candidates for elective office, and the<br />
media about the importance of the government’s role as a critical partner in defeating cancer. Bus activities raised the<br />
profile of ACS CAN’s state and federal priorities for citizens and elected officials alike: access to affordable, quality health<br />
care; increased funding for prevention and early detection services; increased funding for cancer research; and stronger<br />
tobacco control policies.<br />
“I’ve signed many things as a<br />
governor, but I’ve never signed<br />
a bus!”<br />
– The Honorable John Lynch,<br />
Governor of New Hampshire<br />
13
A Vehicle for <strong>Action</strong><br />
The Fight Back Express served as a mobile action center. Bus events not only recruited new ACS<br />
CAN members, they also featured electronic Picture A Cure forms, featuring an individual’s photos<br />
and cancer story. Completed forms were sent to elected officials to emphasize their role in the<br />
fight against cancer.<br />
Event attendees were invited to email their members of Congress or to respond to state and local action<br />
alerts. There was also an opportunity for the public to use their mobile phones to text “Fight Back” to<br />
ACS CAN to sign up for mobile alerts on critical federal and state priorities. Finally, in addition to signing<br />
the bus, visitors put their names on ACS CAN’s petition to the presidential candidates, calling for access<br />
to quality health care for all <strong>American</strong>s.<br />
The bus provided valuable exposure for ACS CAN. Each day people went to great lengths to<br />
connect with the bus, literally stopping traffic on several occasions. Speaking of traffic, web<br />
traffic on www.acscan.org was up 119 percent as people followed the bus through pictures<br />
and the bus blog. And the media response was extraordinary, with stories running in 130 media<br />
markets, reaching a potential audience of more than 65 million people. <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong><br />
and ACS CAN staff and volunteers did yeoman’s work – planning bus stops, engaging elected<br />
officials, sponsoring miles, alerting the media, taking photos, speaking at events, blogging, and,<br />
of course, signing the bus itself.<br />
14
Going the Distance<br />
Fight Back Express Highlights<br />
• The Fight Back Express traveled more than 44,000 miles, visiting all 48 continental<br />
United States and Washington, D.C.<br />
From coast to coast, the bus engaged, energized, and em<strong>power</strong>ed tens of thousands of<br />
volunteers and others who care about cancer. The Fight Back Express fulfilled its promise to<br />
support the <strong>Society</strong> and ACS CAN’s shared mission by mobilizing the public to demand that<br />
lawmakers make the fight against cancer a national priority.<br />
• More than 100,000 people signed the bus, which was wrapped six times.<br />
Signatures were preserved on more than 630 panels.<br />
• A total of 512 bus events were held in 480 communities, including 46 state capitals.<br />
• More than 600 federal, state, and local legislators visited the bus.<br />
• Relay For Life ® volunteers and participants sponsored 30,000 bus miles, raising<br />
a total of $300,000 for ACS CAN and the Fight Back Express.<br />
• The Pharmaceutical Researchers and Manufacturers of America (PhRMA) served as<br />
a national bus sponsor. AstraZeneca, EMD Serono, Genentech, and Pfizer<br />
underwrote bus travel in five <strong>Society</strong> Divisions.<br />
• ACS CAN’s Access to Care petition gathered more than 70,000 signatures.<br />
• More than 3,000 personal cancer stories were sent to elected officials through<br />
the electronic Picture A Cure TM program.<br />
• Web traffic at acscan.org increased 119 percent with more than 63,000<br />
bus-related hits.<br />
• The Fight Back Express made the news in 130 media markets, generated<br />
countless radio and print stories, and saw more than 320 television reports air,<br />
reaching a potential audience of more than 65 million <strong>American</strong>s.<br />
15
CANCER<br />
Promise<br />
Introduced in 2006 and 2007, respectively, the<br />
ACS CAN Congressional <strong>Cancer</strong> Promise and<br />
<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> State <strong>Cancer</strong> Promise<br />
provide a solid foundation for advocacy<br />
achievements. Both Promises serve as rallying<br />
points, specifically urging state and federal<br />
legislators to make health system reform a<br />
priority and to elevate and enhance prevention,<br />
early detection, quality of life, and survivorship.<br />
In addition, the Congressional <strong>Cancer</strong> Promise<br />
calls for increased federal research funding.<br />
At the national and state level, the <strong>Cancer</strong><br />
Promise serves as a “conversation starter.”<br />
<strong>Cancer</strong> advocates use the Promises to educate<br />
lawmakers and gain their commitment in<br />
supporting Promise goals. Accountability comes<br />
into play as <strong>Society</strong> and ACS CAN volunteers<br />
put the force of their grassroots movement<br />
behind efforts to ensure elected officials fulfill<br />
their commitment.<br />
16
“Harry and Louise”<br />
ACCESS<br />
to Care<br />
While tremendous progress is being made in the fight against cancer, winning that fight depends on improving access to quality health care. Nearly<br />
46 million people in America are uninsured. Another 25 million people have insurance that does not provide the coverage they need to protect them<br />
from major financial burden upon a serious health diagnosis.<br />
Meanwhile, although more than 60 percent of cancer deaths can be prevented, the current health care system focuses on treating people after they<br />
get sick, rather than on keeping them well. To improve health outcomes and begin to control costs, more emphasis must be placed on wellness and<br />
disease prevention.<br />
In 2006, the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong>’s National Board of Directors formally recognized that its goals could not be realized without fundamental<br />
change in the health care system, and it articulated a vision for improving access to care. To make that vision a reality, the <strong>Society</strong> and ACS CAN<br />
launched a nationwide public education initiative that leverages a variety of enterprise-wide resources. By tackling these issues, there is enormous<br />
potential to improve access to quality health care for all <strong>American</strong>s – bringing us closer to a future where cancer is no longer a major health issue.<br />
Raising Awareness<br />
The <strong>Society</strong> has a long history of educating the public on important cancer issues. Raising public awareness about the lack of access to affordable, quality<br />
health care follows in this tradition. The <strong>Society</strong> and ACS CAN are elevating the debate by framing access to care issues through the “cancer lens,”<br />
presenting a clear picture of how pervasive and pernicious the lack of access to health care can be. Key stakeholders from the government, private, and<br />
nonprofit sectors alike have come to appreciate how the cancer lens captures and frames the issues in an easily understood manner.<br />
In 2008, the <strong>Society</strong> and ACS CAN looked to the previous year’s successes and built upon them. The ACS CAN Fight Back Express promoted the access<br />
message to the media, elected officials, and the public during its cross country journey (see p. 13). The <strong>Society</strong> also addressed access to care issues through the<br />
17
cancer lens in testimony before the U.S. House of Representatives Ways and Means Health Subcommittee<br />
on treatment barriers and financial burdens inadequately insured patients and survivors face.<br />
In promoting the issue, the <strong>Society</strong> and ACS CAN strive to be “honest brokers.” Evidence-based<br />
policy solutions are what truly matter. <strong>Society</strong> and ACS CAN CEO John Seffrin, PhD, argued that<br />
partisan politics must be set aside to accomplish true reform in an op-ed that appeared in the<br />
Atlanta Journal-Constitution, Boston Globe (signed with Don Gudaitis, CEO of the <strong>Society</strong>’s New<br />
England Division), and on the Minneapolis Star Tribune Web site.<br />
Finding Common Ground<br />
While the <strong>Society</strong> and ACS CAN’s public awareness campaign kept the concerns of the cancer<br />
community at the forefront, it also demonstrated a larger commitment to building consensus.<br />
New collaborations led to a joint ACS CAN-Families USA media briefing on state insurance protections<br />
and ACS CAN sponsorship of an oncology conference with Avalere Health, a health care strategy<br />
and policy group. ACS CAN also co-sponsored a congressional briefing on health insurance basics<br />
with the BlueCross BlueShield Association and the Alliance for Health Reform, a nonpartisan nonprofit<br />
dedicated to quality health coverage. Perhaps most significantly, ACS CAN was the sole<br />
patient advocacy group to participate in the Health Reform Dialogue, an umbrella group of 20<br />
major health care community stakeholders seeking common ground.<br />
Following the <strong>Society</strong>’s highly regarded 2007 Access to Care advertising campaign, ACS CAN<br />
joined with a small group of organizations representing a range of approaches to reform in a<br />
national television and Internet campaign aired during the Democratic and Republican national<br />
conventions. The spots reintroduced “Harry and Louise,” infamous characters first seen in 1994<br />
working to defeat health care reform legislation. But in 2008 they urged the next president and<br />
Congress to make the issue a top priority. The Associated Press, The Washington Post, ABC, CBS,<br />
NBC, and several Capitol Hill publications reported on the launch.<br />
In early 2009, ACS CAN and several nontraditional partners with a common interest in repairing<br />
the system launched a new national advertising campaign. The ads make the case that fixing<br />
health care is critical to fixing the economy and emphasize the tremendous cost to society in doing<br />
nothing. The campaign is another opportunity to urge the new president and Congress to address<br />
health care reform right away.<br />
Policy Solutions<br />
The <strong>Society</strong>’s 2007 statement of principles and supporting evaluative tools defined its view of what<br />
constituted meaningful insurance reform. The <strong>Society</strong>’s Divisions drew upon them in Division-wide task<br />
forces and in states actively considering reform. But addressing access requires a look at the full cancer<br />
continuum. In 2008 new principles addressing prevention and cost issues pushed beyond the notion that<br />
access to care is solely a function of insurance coverage.<br />
The current health care delivery system is strongly focused on treating conditions such as cancer,<br />
but more emphasis on wellness and disease prevention is needed to improve outcomes. A strong<br />
and sustained societal investment in prevention is needed at the individual, community, and system<br />
levels to change the nation’s mindset and reduce cancer incidence and mortality. To build a stronger<br />
case, a volunteer-led ACS CAN policy review group (PRG) developed principles centered on how to<br />
transform the role of prevention in the health system.<br />
A greater focus on prevention ties directly in to managing skyrocketing health care costs. Simply<br />
cutting or eliminating programs or coverage can actually exacerbate the situation. A statement<br />
of principles on the role and consideration of health care costs, also developed by a volunteer-led<br />
“The days, months, and years that<br />
screenings are not made available<br />
are the years that are stolen from<br />
someone’s life.”<br />
– George Blough, Ambassador Constituent<br />
Team Lead, West Virginia<br />
18
PRG, provides a framework to consider the problem differently. The principles affirm the <strong>Society</strong><br />
and ACS CAN’s belief that clinical and economic evidence can be used to both improve the quality<br />
of health care and reduce costs.<br />
Taken together, the new principles lay a foundation for improving health care delivery and provide<br />
a basis for using health care resources more equitably. In this way, access to care is linked to efforts<br />
to reduce health disparities. Whether stemming from race or socioeconomic status, disparities in<br />
health care are numerous. Closing these additional gaps is critical to progress (see p. 12).<br />
A Helping Hand<br />
The Health Insurance Assistance Service (HIAS) offers cancer patients who call the <strong>Society</strong>’s National<br />
<strong>Cancer</strong> Information Center a free resource that connects them with health insurance specialists.<br />
HIAS specialists handle inquiries about health insurance, coverage dynamics, and state programs – all<br />
specific to the caller’s needs.<br />
Since it began in 2005, HIAS has received more than 20,000 calls from the 36 states it serves and the<br />
District of Columbia. Information from the calls is captured in an internal database that helps identify<br />
patients whose experiences illustrate problems in the current insurance system and notes callers who<br />
consent to talk to the media so their stories reach a wider audience. Callers continue to be featured<br />
in the national media, including The New York Times, The Wall Street Journal, ABC News online,<br />
CNN online, The Washington Post, and National Public Radio’s Morning Edition.<br />
One caller of note was Karen Dove, a stage III ovarian cancer patient who struggled for two years<br />
to obtain access to care, only to see her family financially devastated as a result of her treatment.<br />
Six months after she passed away, her story was told in “Critical Condition,” a documentary that<br />
debuted on PBS stations nationwide in September 2008.<br />
Taking <strong>Action</strong><br />
For ACS CAN advocates, taking action is rooted in knowledge of the issues, personal experience<br />
with cancer, and the know-how to make their voices heard. Volunteers and staff became well<br />
versed on access issues at in-person and online training throughout the year. They paired that<br />
knowledge with skills and tools acquired through ACS CAN, and then took the message directly<br />
to legislators in Washington, D.C., on Lobby Day (see p. 10).<br />
Access to care was a constant theme throughout the ACS CAN Fight Back Express’ six-month<br />
journey, as well as the election season (see p. 13). Many voters were able to look elected officials<br />
and candidates in the eye and ask them their views at one of more than 500 local events. ACS CAN<br />
voter guides offered citizens in 12 states the chance to determine where candidates for federal<br />
and state office stood. A presidential voter guide gave every <strong>American</strong> an opportunity to learn<br />
about candidate views at the top of the ticket.<br />
Additional efforts included enhancements to the Access to Care page on acscan.org, which educates<br />
external audiences and encourages them to take action. An online petition to the presidential<br />
candidates urging them to tackle health care reform was heavily promoted throughout the Fight<br />
Back Express tour, and collected more than 70,000 signatures.<br />
Ongoing Efforts<br />
Ultimately, it will take systemwide reform to overcome many barriers to care. In the meantime,<br />
incremental steps are being taken. <strong>Society</strong> Divisions are actively engaged as states continue to<br />
move on their own to expand state health insurance programs, to create or bolster screening and<br />
treatment options for uninsured patients, and to pass new legislation or defend existing laws that<br />
guarantee lifesaving screenings and care.<br />
At the national level, ACS CAN shares its expertise with health reform proponents in Congress<br />
and advocates for interim steps that expand access. Achievements include a new law that extends<br />
eligibility for the “Welcome to Medicare” checkup for new beneficiaries from six months to a year<br />
and waives copays and deductibles for the visit. And ACS CAN and college students across the<br />
country scored a major victory with the passage of Michelle’s Law (see sidebar, p. 19).<br />
Active campaigns continue on other fronts, such as increasing funding for the National Breast and<br />
Cervical <strong>Cancer</strong> Early Detection Program (NBCCEDP), which screens low-income, underinsured,<br />
19
Michelle’s Law<br />
Signed into law on October 9, 2008, Michelle’s Law requires insurance companies to cover college students on medical<br />
leave for up to a year. The law enables ill students to focus on their recovery and not whether their insurance covers it.<br />
Michelle’s Law is named for Michelle Morse, a New Hampshire college student diagnosed with colon cancer. Her<br />
family’s health insurance would not cover her unless she was a full-time student, forcing her to take a full class<br />
schedule while undergoing chemotherapy.<br />
After Michelle passed away, her mother, <strong>Society</strong> volunteer Ann Marie Morse, decided that no other student should<br />
face the same challenge. She helped pass Michelle’s Law in her state and was a leader in seeing a federal version<br />
enacted. ACS CAN and several thousand college students and volunteers joined Michelle’s family in the fight.<br />
• ACS CAN worked with Colleges Against <strong>Cancer</strong> SM (CAC) to host student health issue forums and to lobby<br />
college presidents to write letters in support of the legislation.<br />
• In the summer of 2008, advocates were prompted to text “Michelle” to 73585 on their cell phones.<br />
Participants received follow-up information, bill status updates and frequent calls to action. Subscribers<br />
to the mobile list were the first to know about the law’s final passage.<br />
and uninsured women and offers them a gateway to treatment (see p. 24). The drive to<br />
establish a national colon cancer screening and treatment initiative modeled after NBCCEDP<br />
is gaining momentum. Substantial funding for the National Center on Minority Health<br />
and Health Disparities at the National Institutes of Health remains a priority.<br />
Moving Forward<br />
State-level activities are sure to continue in earnest and increase in volume. Furthermore,<br />
with the election of a new president and Congress, 2009 presents perhaps the best<br />
opportunity in decades to repair a broken health care system. The potential to save lives<br />
and reduce suffering through system-wide change is tremendous. As a result of the<br />
strategic and timely Access to Care initiative, the <strong>Society</strong> and ACS CAN have emerged as<br />
visible leaders in a unique position to work across the spectrum of health care interests.<br />
• In response to ACS CAN action alerts, thousands of students called and emailed their U.S. representatives<br />
and senators and joined the fight through ACS CAN’s “Michelle’s Law Cause” on Facebook. ACS CAN also<br />
sent an action alert to volunteers in states with targeted senators in advance of the Senate vote.<br />
• CAC chapters distributed and collected more than 5,000 petitions and delivered them to lawmakers during<br />
congressional recesses and on ACS CAN’s National Lobby Day.<br />
• To build support, ACS CAN partnered with a diverse group of organizations that included the cancer<br />
community, health and patient advocacy groups, health professionals, insurers, and education associations.<br />
• College newspapers across the country reported on the passage of Michelle’s Law and quoted<br />
ACS CAN spokespersons.<br />
As in all of our advocacy work, evidence-based principles and evaluative tools determine<br />
whether a legislative proposal meets or falls short of the <strong>Society</strong> and ACS CAN’s standards,<br />
and whether a bill is endorsed or opposed. As always, the <strong>Society</strong> and ACS CAN will be<br />
scrupulously nonpartisan and never endorse candidates for office, political parties, or their<br />
health plans and platforms. This approach, however, is not tantamount to passivity. Moving<br />
forward, the <strong>Society</strong> and ACS CAN will lead the way, achieve results, and make a major<br />
contribution by emphasizing the importance of quality, evidence-based care that prevents<br />
cancer, detects and treats cancer effectively, and enhances quality of life.<br />
20
Federal and State<br />
HIGHLIGHTS<br />
Advocacy’s contribution is underscored by the fact that, along with the elimination of disparities, it serves as a pillar supporting the<br />
<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong>’s nationwide leadership roles. The <strong>Society</strong> has identified the roles as areas where it can have the most<br />
impact: supporting high-impact research; preventing cancer and detecting it in its earliest stages; fostering better decision-making<br />
through information; and improving quality of life for cancer patients, caregivers and survivors. Advocacy efforts, including those<br />
funded through <strong>Society</strong> grants to ACS CAN, are targeted within these roles to achieve maximum results.<br />
Research<br />
• At the urging of ACS CAN and its partners, Congress provided the National Institutes of Health (NIH) with $150 million in<br />
supplemental funding for the 2008 fiscal year. With passage in the Senate uncertain, ACS CAN volunteers participated in a<br />
National Day of <strong>Action</strong>, sending email and making phone calls to 15 key senators asking for their support. Additional grassroots<br />
activities included Fight Back Express bus events in several of the senators’ home states, and circulating petitions at bus and<br />
Relay For Life ® events. Of the 15 targeted senators, 13 voted for the bill.<br />
• Congressional appropriators proposed $1.1 billion in new funding for NIH for the 2009 fiscal year, a nearly four percent<br />
increase and the largest jump in six years. More than 350,000 volunteers were invited to participate in a second National Day<br />
of <strong>Action</strong> around the measure. Although the 2009 spending bill was not completed before the 110th Congress adjourned,<br />
ACS CAN resumed its push for the allocation when the new Congress convened.<br />
21
• ACS CAN volunteers nationwide held a record number of watch parties during the president’s<br />
State of the Union address in January 2008. These gatherings shined a spotlight on the need<br />
for sustained increases at the NIH, the National <strong>Cancer</strong> Institute (NCI), the Centers for Disease<br />
Control and Prevention (CDC), the National Center on Minority Health and Health Disparities,<br />
and the Health Resources and Services Administration (HRSA).<br />
• ACS CAN continued to be the driving force behind One Voice Against <strong>Cancer</strong> (OVAC), a coalition<br />
of cancer-related advocacy groups supporting funding for NIH, NCI, and the CDC.<br />
• Legislation to create a National <strong>Cancer</strong> Fund, based on an idea conceived by ACS CAN and<br />
OVAC, was introduced in the U.S. House of Representatives. The fund would act as a dedicated<br />
resource for cancer research, prevention, early detection, and treatment.<br />
• ACS CAN briefed national health policy reporters on polling showing overwhelming public<br />
support for the National <strong>Cancer</strong> Fund. Stories ran in Politico, Congressional Quarterly, and<br />
Oncology Times, as well as in Media General news service outlets.<br />
Prevention and Early Detection<br />
• Congress overrode a presidential veto to enact legislation extending the availability of the<br />
“Welcome to Medicare” physical from six months to one year, and to waive copays and<br />
deductibles for the visit. The law also allows the U.S. Secretary of Health and Human Services<br />
to approve new preventive services in Medicare without congressional authorization.<br />
• For the first time, HRSA awarded almost $2.4 million in Patient Navigator Program grants<br />
nationwide to eligible organizations. ACS CAN is a longtime champion of the program, which<br />
will place trained “navigators” in health facilities to assess patient and community needs, and<br />
guide patients through the health care system.<br />
• ACS CAN persuaded Medicare to add prevention measures to its physician quality reporting<br />
program, which will improve access to colorectal and breast cancer screenings.<br />
• Through their ongoing partnership with the <strong>American</strong> Heart Association and <strong>American</strong> Diabetes<br />
Association, the <strong>Society</strong> and ACS CAN promoted quality health and physical education in<br />
schools as effective disease prevention strategies.<br />
Breast<br />
• ACS CAN continued its campaign to increase funding for the National Breast and Cervical<br />
<strong>Cancer</strong> Early Detection Program (NBCCEDP) (see p. 25).<br />
• Illinois became the first and only state to fully cover all women eligible for the NBCCEDP.<br />
• Hawaii and South Carolina provided state matching funds for the NBCCEDP for the first time.<br />
• Twenty states increased the state portion of the state-federal funding match for breast and<br />
cervical cancer screening programs.<br />
“We have to speak up at every<br />
step in the process and remind<br />
lawmakers that cancer matters<br />
to their constituents.”<br />
– Patty Avery, State Lead Ambassador, Indiana<br />
22
Colon<br />
• ACS CAN built momentum for the Colorectal <strong>Cancer</strong> Prevention, Early Detection, and Treatment<br />
Act (HR 1738), securing 161 congressional co-sponsors, attracting support from 30 partner<br />
organizations, and winning passage of a supportive resolution in the U.S. House. The bill would<br />
create a national community-based program for colorectal cancer screening and treatment,<br />
based on lessons learned from the breast and cervical cancer program.<br />
• ACS CAN’s “Pain in the Butt” ad urging support for HR 1738 ran in Capitol Hill publications.<br />
Congressional staffers surveyed as part of a study on advertising effectiveness praised the ad for<br />
its edgy and eye-catching message.<br />
• ACS CAN fought to maintain inclusion of $25 million in the U.S. Senate’s health appropriations<br />
bill for a CDC colorectal cancer screening pilot for uninsured adults. These funds will continue<br />
to prepare the CDC for passage of a national program providing colorectal cancer screening<br />
and treatment.<br />
• Four states – Colorado, Kentucky, Maine, and Pennsylvania – passed laws requiring insurers to<br />
cover colorectal screenings. Twenty-six states plus the District of Columbia now have such laws.<br />
• A growing number of states<br />
have joined Colorado, Maryland,<br />
Delaware, and New York in<br />
enacting comprehensive<br />
statewide colorectal screening and<br />
treatment for uninsured adults. In<br />
2008, Kentucky and Maine passed<br />
legislation to establish similar<br />
programs, although funding was<br />
not allocated.<br />
• ACS CAN provided Medicare<br />
officials and state insurance<br />
commissioners with information<br />
about the <strong>Society</strong>’s updated<br />
colorectal cancer screening guidelines<br />
and urged both groups to<br />
cover newly recommended tests.<br />
• In May and June, ACS CAN<br />
volunteers sent Mother’s Day and<br />
Father’s Day e-cards to family and<br />
friends, urging them to join the<br />
fight to increase access to colon<br />
cancer screenings.<br />
AS A MATTER OF FACT,<br />
WE ARE GOING TO BE A<br />
PA I N<br />
IN THE<br />
BUTT<br />
ABOUT THIS.<br />
COLON CANCER IS THE SECOND LEADING CAUSE OF CANCER DEATHS. THIS COULD BE EASILY<br />
AVOIDED WITH ROUTINE SCREENINGS. If everyone over 50 was screened, we would reduce deaths by 50<br />
percent or more and significantly reduce the $8 billion spent annually in treatment costs. Now there’s a bill that<br />
can save lives by increasing access to screenings for uninsured <strong>American</strong>s. Congress, it’s time to act. Support<br />
HR 1738 – Colorectal <strong>Cancer</strong> Prevention, Early Detection and Treatment Act.<br />
Pass HR 1738. SAVE LIVES.<br />
acscan.org<br />
Lung <strong>Cancer</strong><br />
• ACS CAN worked to pass legislation that would grant the Food and Drug Administration the<br />
authority to regulate tobacco products and how they are marketed to children. (see p. 24).<br />
• ACS CAN, <strong>Society</strong> Divisions, and their public health partners continued state and local efforts<br />
to reduce tobacco’s deadly toll through smoke-free laws, higher tobacco taxes, and strong<br />
tobacco cessation, prevention, and control policies (see p. 32).<br />
• ACS CAN continued to advocate for an increase in the federal tobacco tax, bringing the tax to<br />
more than $1, to pay for an expanded State Children’s Health Insurance Program, setting the<br />
stage for passage in the next Congress.<br />
• The <strong>Society</strong> and other health partners filed a “friend of the court” brief in Altria v. Good, a<br />
case before the U.S. Supreme Court. The Supreme Court ruled in favor of public health by<br />
allowing lawsuits filed in state courts against tobacco companies for deceptive marketing<br />
practices associated with light cigarettes to proceed.<br />
• The South Carolina State Supreme Court upheld a local smoke-free ordinance against a legal<br />
challenge. The <strong>Society</strong> and its partners filed a “friend of the court” brief on behalf of the<br />
community seeking to implement its smoke-free law.<br />
• With input from ACS CAN, the Federal Trade Commission rescinded its 40-year-old policy on<br />
labeling of supposed “reduced-risk” cigarettes, concluding that the nicotine and tar yields on<br />
tobacco product labels are misleading, thereby reducing the industry’s ability to deceive current<br />
smokers and addict youth.<br />
• The <strong>Society</strong> and other health partners continued their role as “intervenors” in the U.S.<br />
Department of Justice’s case against the tobacco industry for defrauding the <strong>American</strong> people<br />
in marketing light cigarettes.<br />
• ACS CAN convened a tobacco cessation summit, gathering medical, scientific, and health<br />
policy experts to define priority issues.<br />
23
Information<br />
• ACS CAN released the sixth annual How Do You Measure Up? report on state legislative activity. A radio media tour promoting the report<br />
reached almost 30 million listeners. Interviews were featured on stations owned by CNN, ABC, and The Wall Street Journal, in addition to<br />
stations in major media markets.<br />
• ACS CAN convened an expert panel on cancer disparities in the health care system to educate staff and volunteers and explore policy solutions.<br />
• Through the Judicial Advocacy Initiative (see p. 6), attorneys from the U.S. Equal Employment Opportunity Commission trained information<br />
specialists at the <strong>Society</strong>’s National <strong>Cancer</strong> Information Center (NCIC) on how to help cancer patients and survivors experiencing discrimination.<br />
• ACS CAN launched two newsletters: a monthly update for partner groups and others on ACS CAN activities and membership opportunities,<br />
and Policy Matters, a quarterly that highlights evidence-based health policy solutions.<br />
A Progress Report on State Legislative Activity<br />
to Reduce <strong>Cancer</strong> Incidence and Mortality<br />
July 2008<br />
• Every senator and representative in Congress received an ACS CAN cancer resource kit to assist them in discussing cancer with constituents.<br />
Quality of Life<br />
• The U.S. House unanimously passed the National Pain Care Policy Act, legislation that can help patients experiencing pain from cancer and its<br />
treatments. ACS CAN led a coalition of 130 organizations in support of the bill and ACS CAN advocates nationwide sent thousands of emails<br />
to Congress.<br />
Saving Women’s Lives<br />
The National Breast and Cervical <strong>Cancer</strong> Early Detection Program (NBCCEDP) provides low-income, uninsured, and inadequately<br />
insured women with access to lifesaving cancer screenings and offers them a gateway to treatment. Unfortunately, fewer than one<br />
in five eligible women benefit from this community-based screening program. Lack of funding means millions of women may not<br />
get diagnosed until their cancer is at an advanced and less treatable stage. The <strong>Society</strong> and ACS CAN are leading the way to fully<br />
fund the program.<br />
Someone Isn’t Getting Screened<br />
What if it<br />
were me?<br />
• Otis Brawley, MD, the <strong>Society</strong>’s chief medical officer, and <strong>Society</strong> volunteer Gail Carey, a former program participant, testified<br />
before Congress in support of NBCCEDP.<br />
• ACS CAN and Making Strides Against Breast <strong>Cancer</strong> ® partnered on a campaign in which Strides participants were given mirrors<br />
to ask themselves “What if it were me? What if I lacked the money and the opportunity to have a lifesaving cancer screening?”<br />
Because of inadequate<br />
funding, only 1 in 5 eligible<br />
women gets lifesaving<br />
breast cancer screening.<br />
• Making Strides participants nationwide demanded more funding and support in more than 60,000 postcards delivered to<br />
Congress during Breast <strong>Cancer</strong> Awareness Month.<br />
24
• The <strong>Society</strong> teamed with the Lance Armstrong Foundation and Susan G. Komen for the Cure<br />
to underwrite the third annual nationwide report card evaluating state pain policies. In the<br />
past year, seven states improved their grades, with Georgia going from a D+ to a B. Overall,<br />
33 states received a B or better and five states earned A’s.<br />
• Ohio and the District of Columbia passed laws requiring insurers to cover routine care costs in<br />
clinical trials. Twenty-four states and the District of Columbia now guarantee this coverage.<br />
• To promote more balanced pain policies, ACS CAN awarded grants to five states to support<br />
better pain management activities and also designed a prescription monitoring program<br />
toolkit for state advocates.<br />
• ACS CAN partnered with the <strong>Society</strong>’s NCIC to launch a pain education project that helps our<br />
constituents learn how to talk about pain with their health care team and also gathers stories<br />
to support federal and state pain advocacy efforts.<br />
• The <strong>Society</strong> and ACS CAN worked with the Social Security Administration to launch the<br />
Compassionate Allowances Initiative, a pilot that will enable people with certain cancers and rare<br />
diseases to obtain disability benefits within days, rather than the current average wait of weeks<br />
or months.<br />
• At the urging of ACS CAN, the Centers for Medicare and Medicaid Services added a new drug<br />
compendium to its reference tools for determining off-label cancer drug coverage. The move<br />
will give patients more treatment options.<br />
• A federal appeals court ruling on the Rehabilitation Act, the federal government’s version of<br />
the <strong>American</strong>s with Disabilities Act, strengthened protections for cancer survivors with a record<br />
of disability. The <strong>Society</strong> filed a “friend of the court” brief on behalf of the plaintiff, a cancer<br />
survivor, and was cited in the ruling.<br />
Stopping Big Tobacco<br />
ACS CAN continues to be a leader in building momentum to pass the Family Smoking Prevention and Tobacco Control Act. The act would give the Food<br />
and Drug Administration the authority to regulate tobacco products and stop tobacco companies from marketing to children. Historic milestones reached<br />
in 2008 prove the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> and ACS CAN’s voices were heard.<br />
• The U.S. House of Representatives passed the bill by a bipartisan, veto-proof majority of 326-102. The vote marked the first time the legislation had<br />
come to the House floor in the 10 years since it was first introduced.<br />
• In another first, a filibuster-proof majority of 60 U.S. senators signed on as bill cosponsors by the end of 2008.<br />
SENATORS, IT’S<br />
TIME TO CHOOSE.<br />
It’s time for the Senate to pass FDA regulation of tobacco products and put our<br />
children first. Each day the Senate delays, 4,000 more children targeted by Big Tobacco<br />
smoke their first cigarette. By supporting FDA regulation of tobacco products, including<br />
the authority to crack down on marketing to kids, Congress can protect children from the<br />
country’s leading cause of preventable death. Our children can’t afford to wait.<br />
SENATORS, PLEASE PROTECT OUR KIDS.<br />
PASS S.625, FDA REGULATION OF TOBACCO PRODUCTS, NOW.<br />
acscan.org<br />
• In the days before the House vote, ACS CAN advocates sent thousands of email and made phone calls in support of the legislation. ACS CAN also<br />
mobilized volunteers through text messages and alerts to ACS CAN members on Facebook and MySpace for the first time.<br />
• ACS CAN utilized its volunteer structure throughout the campaign as ACS CAN and the <strong>Society</strong>’s Division staff partners notified state lead ambassadors,<br />
ambassador constituent team leads, and others to call Congress through 1-888-NOW-I-CAN.<br />
• The <strong>Society</strong> and ACS CAN were credited numerous times throughout the House debate, and the Congressional Hispanic Caucus cited the <strong>Society</strong> and<br />
its then president, Elmer Huerta, MD, MPH, for urging caucus members to vote yes.<br />
• ACS CAN ran print and online advertisements throughout the spring and summer in key Capitol Hill publications, targeted state newspapers,<br />
geographically targeted news sites, and blogs. Online advertisements generated more than six million views.<br />
25
“Our successes keep me energized. These victories<br />
remind me that targeted, organized advocacy<br />
State-by-State<br />
HIGHLIGHTS<br />
does bring about effective change.”<br />
– Bill Evans, State Lead Ambassador, Tennessee<br />
Alabama<br />
The <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> and its partners<br />
held a breast cancer lobby day and press<br />
conference at the state capitol. As a result,<br />
$400,000 was restored to the state’s breast and<br />
cervical early detection program after being cut<br />
in the governor’s budget.*<br />
A $100,000 appropriation for prostate screenings<br />
for the underserved was leveraged into<br />
an opportunity to create a similar program<br />
offering colorectal screenings in the state’s<br />
primary care centers.*<br />
Key state House and Senate committees passed<br />
smoke-free bills, the farthest such legislation has<br />
ever moved in the state. The <strong>Society</strong> waged an<br />
intense grassroots campaign in an effort that<br />
included eight lobby days, a Relay Rally Day at<br />
the state house, petitions, and attendance at a<br />
House hearing. The governor has promised to<br />
sign the bill once the full legislature approves it.<br />
Alaska<br />
<strong>Society</strong> advocates protected $250,000 in state<br />
funding for the breast and cervical cancer early<br />
detection program.*<br />
Juneau, the state’s capital, implemented the<br />
final phase of its comprehensive smoke-free<br />
workplace law, including bars. <strong>Society</strong> volunteers<br />
were instrumental in fighting off attempts<br />
to weaken this law.<br />
Alaska’s strong and sustained tobacco control<br />
efforts led to a 20 percent drop in adult smoking<br />
since 1996, resulting in about 8,000 fewer<br />
tobacco-related deaths and $300 million in<br />
averted medical costs. Youth smoking has<br />
declined too, with rates among Alaska Native<br />
youth showing the most dramatic decrease.*<br />
Alaska invested an additional $1 million in tobacco<br />
prevention programs, for a total of $8.5 million.<br />
Arizona<br />
<strong>Society</strong> volunteers and supporters defeated<br />
legislation that would have allowed out-ofstate<br />
insurance companies to disregard coverage<br />
requirements for cancer screening tests.*<br />
Despite Arizona’s $2 billion deficit, <strong>Society</strong><br />
advocates succeeded in reducing cuts to the<br />
state’s breast and cervical cancer early detection<br />
program. In addition, the <strong>Society</strong> ensured that<br />
approximately $100,000 collected annually<br />
through the state’s breast cancer license plate<br />
program went toward the breast and cervical<br />
cancer early detection program and was not<br />
diverted for other purposes.*<br />
The state Medicaid program now covers smoking<br />
cessation medications.*<br />
The <strong>Society</strong> led the fight to prevent money from<br />
the voter-protected Tobacco Tax and Healthcare<br />
Fund and Health Education account from being<br />
transferred to other programs.<br />
Arkansas<br />
No regular legislative session in 2008.<br />
The <strong>Society</strong>, Arkansas <strong>Cancer</strong> Coalition, and<br />
Arkansas Legislative Black Caucus held a<br />
“Dialogue on <strong>Cancer</strong>” to identify gaps in access<br />
to care and recommend policy remedies.*<br />
Preliminary findings for a two-year pilot program<br />
that screened and treated 400 underserved<br />
people for colorectal cancer showed significant<br />
improvements in health outcomes as well as<br />
cost savings. The <strong>Society</strong> formed a committee to<br />
draft legislation that would create a permanent<br />
statewide program.<br />
California<br />
The <strong>Society</strong> initiated and funded community<br />
forums in 11 metropolitan areas that drew more<br />
than 1,000 community leaders to collaborate<br />
on access to care policy solutions.*<br />
* Denotes initiative addressing disparities and/or access to care.<br />
26
Oakland passed one of the nation’s most comprehensive<br />
local smoke-free ordinances banning<br />
smoking in many outdoor spaces. In addition,<br />
smoking policies must be disclosed for multi-unit<br />
housing.<br />
<strong>Society</strong> advocates thwarted a proposal to allow<br />
the California State Teachers Retirement Fund, the<br />
nation’s second largest pension fund, to reverse<br />
its policy of not investing in tobacco stocks.<br />
California became the first state in the nation<br />
to require chain restaurants to post caloric<br />
information on menus and order boards.<br />
Colorado<br />
Authorization for the state’s breast and cervical<br />
cancer program, which was set to expire, was<br />
extended five years.*<br />
A new state law requires insurance companies<br />
to cover the full range of colorectal screenings<br />
according to federal prevention guidelines, as<br />
well as for people less than 50 years of age<br />
with a family history of colorectal cancer and/or<br />
related conditions. Colorado’s law also waives<br />
deductibles for screening tests and caps consumer<br />
out-of-pocket expenses in HMOs at 10 percent<br />
of total screening costs.*<br />
The Teen Tobacco Use Prevention Act requires<br />
store clerks to ask people buying tobacco products<br />
who appear under 30 years of age for photo<br />
identification. The new law also makes youth<br />
possession of tobacco products illegal.<br />
Connecticut<br />
The state established a Minority Health Advisory<br />
Commission to explore and eliminate health<br />
disparities in minority populations.*<br />
The governor signed legislation authorizing the<br />
allocation of up to $6 million annually from the<br />
state’s Tobacco Trust Fund for prevention and<br />
cessation programs.<br />
The state Medicaid program now covers hospice<br />
services.*<br />
Legislation to ban lead, asbestos, and other harmful<br />
chemicals from children’s toys was enacted.<br />
Delaware<br />
<strong>Society</strong> volunteers defeated a bill allowing health<br />
insurers to sell “bare bones” plans that disregard<br />
cancer screening coverage guarantees.*<br />
Despite a $300 million budget shortfall, funding<br />
for the Delaware <strong>Cancer</strong> Consortium’s policy recommendations<br />
remained level at $16.2 million.*<br />
<strong>Society</strong> screening guidelines were incorporated<br />
into the state’s existing colorectal cancer coverage<br />
law.*<br />
Delaware maintained its allocation of $10.4 million<br />
for the state’s tobacco control program.<br />
District of<br />
Columbia<br />
The District’s cigarette tax increased to $2 per<br />
pack. Most of the new revenue will be used<br />
to add about 15,000 residents to the District’s<br />
public health plan. No pre-existing conditions<br />
clause applies and premiums are capped at<br />
three percent of the resident’s total income.*<br />
A total of $2.25 million was appropriated to fund<br />
obesity reduction, early detection programs,<br />
and breast, colorectal, oral, and prostate cancer<br />
outreach, and prostate cancer treatment.*<br />
The District Council unanimously approved,<br />
and the mayor signed, legislation requiring<br />
health insurers to cover all routine patient care<br />
costs for individuals in clinical trials.*<br />
Florida<br />
The state allocated $18.9 million for peerreviewed<br />
competitive research on cancer and<br />
other tobacco-related illnesses.<br />
<strong>Society</strong> advocates successfully sought $57.9<br />
million in the state budget for tobacco prevention,<br />
education, and cessation.<br />
Georgia<br />
<strong>Society</strong> advocates defeated legislation encouraging<br />
insurers to offer high-deductible,<br />
consumer-driven health plans that failed to<br />
guarantee cancer screening coverage.*<br />
The <strong>Society</strong> worked to defeat a bill that<br />
allowed health insurance products sold online<br />
to circumvent laws guaranteeing coverage of<br />
cancer screening. The bill also permitted insurers<br />
to “cherry pick” the healthiest individuals,<br />
which would result in cancer patients and<br />
survivors being denied coverage.*<br />
The <strong>Cancer</strong> State Aid program received an<br />
additional $1.4 million.*<br />
The Georgia General Assembly passed legislation<br />
to create a committee to review tobacco control<br />
program best practices and funding levels.<br />
Unfortunately, the governor vetoed the bill.<br />
Georgia’s ranking on a nationwide pain policy<br />
report card went from a D+ to a B, thanks to<br />
the <strong>Society</strong>’s work with partner organizations<br />
and the Georgia Composite State Board of<br />
Examiners to amend medical board guidelines<br />
on pain management.*<br />
Hawaii<br />
Hawaii allocated $150,000, its first contribution<br />
ever, to the breast and cervical cancer early<br />
detection program.*<br />
<strong>Society</strong> advocates defended attempts to weaken<br />
the state’s comprehensive smoke-free law<br />
which, along with the state’s high cigarette tax,<br />
and well-funded tobacco control programs,<br />
helped reduce youth smoking rates. Since<br />
2005, smoking among high school students<br />
fell from 12.6 percent to 9.7 percent and went<br />
from 4.9 percent to 4.2 percent for middle<br />
school students.<br />
The state passed legislation extending the time<br />
period that prescriptions for pain medications<br />
can be filled.*<br />
Idaho<br />
<strong>Society</strong> advocates ensured that budgets for the<br />
breast and cervical screening program, Central<br />
27 * Denotes initiative addressing disparities and/or access to care.
Tumor Registry, and <strong>Cancer</strong> Control Fund were<br />
not cut.*<br />
The <strong>Society</strong>’s concerted effort to expand colorectal<br />
screening access resulted in all state- regulated<br />
insurance carriers committing, in writing, to cover<br />
the full range of early detection tests. Reported<br />
denials of coverage decreased from an average<br />
of 15 a month to none in 2008.*<br />
In a vote of seven to one, the Senate Education<br />
Committee resoundingly rejected precedentsetting<br />
legislation to divert millions of dollars<br />
from the state’s tobacco settlement fund.<br />
The state increased tobacco control program<br />
funding from $1.4 million to $2.5 million.<br />
Illinois<br />
With an allocation of $5 million in new state<br />
funds, Illinois became the first and only state<br />
to offer all eligible women access to lifesaving<br />
breast and cervical cancer screenings.*<br />
The state legislature passed a bill to make digital<br />
mammography available through Medicaid.<br />
The bill also creates a patient navigation pilot.*<br />
The <strong>Society</strong> and its allies defeated seven separate<br />
attempts to weaken the Smoke Free Illinois Act,<br />
which went into effect on January 1, 2008, and<br />
supported legislation clarifying enforcement rules.<br />
The state House of Representatives passed<br />
legislation providing prostate and testicular<br />
cancer treatment coverage for the uninsured<br />
through Medicaid.*<br />
Indiana<br />
The city of Elkhart adopted a comprehensive<br />
smoke-free ordinance, with bars and establishments<br />
for people 21 and older covered<br />
starting in 2009.<br />
The city of Richmond rejected a flawed smoking<br />
ban.<br />
The Indiana House Ways and Means Committee<br />
voted overwhelmingly to reject a bill lowering<br />
the state cigarette tax.<br />
Indiana became the ninth state to require<br />
coverage for prosthetics.*<br />
Iowa<br />
Eligibility requirements for the state Children’s<br />
Health Insurance Program were expanded in<br />
2008, with the ultimate goal of covering all<br />
children by 2011.*<br />
The state passed and implemented a statewide<br />
smoke-free law covering all workplaces, including<br />
bars and restaurants.<br />
The <strong>Society</strong> protected more than $11 million in<br />
annual funding for the state’s comprehensive<br />
tobacco control program and $100,000 in<br />
annual funding for the breast and cervical<br />
cancer program.*<br />
The new Healthy Kids Act set nutritional standards<br />
for school meals and physical activity standards.<br />
Kansas<br />
The state authorized its breast and cervical<br />
early detection program to also conduct colon<br />
and prostate cancer screenings once additional<br />
funds are made available.*<br />
The Kansas House of Representatives approved<br />
legislation requiring insurance companies to<br />
cover the full range of colorectal screenings.*<br />
Nine municipalities enacted comprehensive<br />
smoke-free ordinances.<br />
The <strong>Society</strong> persuaded the state to cover tobacco<br />
cessation services for pregnant women<br />
in Medicaid.*<br />
Kentucky<br />
The state breast and cervical treatment program,<br />
originally established through executive order,<br />
is now operating under force of law. In addition,<br />
a new law requires “bare bones” health plans<br />
to provide mammography coverage.*<br />
Legislation creating a colon cancer screening<br />
program for the uninsured and an accompanying<br />
educational campaign was enacted.*<br />
Insurance companies are now required to cover<br />
the full range of colorectal screenings in accordance<br />
with <strong>Society</strong> screening guidelines.*<br />
The state House of Representatives approved a<br />
25-cent cigarette tax increase, and the governor<br />
announced his support for a 70-cent increase.<br />
Louisiana<br />
Despite steep cuts to other health programs,<br />
the Louisiana Breast and Cervical <strong>Cancer</strong> Early<br />
Detection Program preserved $700,000 in state<br />
funding and the state provided $1.5 million<br />
to start a colorectal cancer screening pilot for<br />
uninsured and underinsured citizens.*<br />
The <strong>Society</strong> and its public health partners not<br />
only defeated attempts to weaken the Louisiana<br />
Smoke-free Air Act, but also built momentum<br />
behind efforts to strengthen it in the 2009<br />
legislative session.*<br />
<strong>Society</strong> advocates continued to educate legislators<br />
and the public about the need for an increased<br />
tobacco tax.<br />
Maine<br />
Proceeds from a new breast cancer awareness<br />
license plate will be shared equally by the state<br />
breast and cervical program, Maine-based cancer<br />
research initiatives, and patient assistance efforts.*<br />
Insurance companies are now required to cover<br />
the full range of colorectal screenings in accordance<br />
with <strong>Society</strong> screening guidelines.*<br />
For the seventh straight year, Maine ranked<br />
first in the nation in funding tobacco prevention<br />
programs.<br />
The state became the first in the nation to pass<br />
a law banning the sale of flavored cigarettes<br />
and cigars.<br />
28
Maryland<br />
secured more than $6 million for tobacco and<br />
cancer control.*<br />
The Mississippi House of Representatives passed<br />
a $1 increase in the state cigarette tax.<br />
<strong>Society</strong> advocates secured coverage of tobacco<br />
cessation services in Medicaid.*<br />
Effective February 1, 2008, the state implemented<br />
its comprehensive smoke-free workplace law.<br />
The state cigarette tax went from $1 to $2<br />
per pack.<br />
The <strong>Society</strong> helped pass legislation that prohibits<br />
genetic information or tests from being used to<br />
deny, limit, or charge different rates for long-term<br />
care coverage.*<br />
Massachusetts<br />
A new law established guidelines for educating<br />
parents and children about cervical<br />
cancer vaccines.<br />
Minnesota<br />
Newly enacted health care reform legislation<br />
expands eligibility for MinnesotaCare, protects<br />
continuity of care, and establishes a health care<br />
home system.*<br />
Despite state budget constraints, funding for<br />
tobacco control and prevention initiatives was<br />
maintained at $20 million.<br />
Missouri<br />
The state increased funding for the breast and<br />
cervical cancer early detection program by<br />
$500,000, for a total of one million dollars.*<br />
Kansas City’s smoke-free ordinance, exempting<br />
only casinos, went into effect.<br />
Nevada<br />
No regular legislative session in 2008.<br />
The <strong>Society</strong> acted as a watchdog to rebuff<br />
tobacco industry attempts to circumvent the<br />
recently enacted Nevada Clean Indoor Air Act.<br />
<strong>Society</strong> advocates prepared legislation and<br />
recruited key lawmaker support for a bill to allow<br />
unused chemotherapy drugs to be donated to<br />
cancer patients in need.*<br />
Revenue from a $1 increase in the cigarette<br />
tax (for a total of $2.51 — the third highest<br />
in the nation) will be used to fully fund and<br />
implement its innovative health reform law.<br />
More than 425,000 state residents have obtained<br />
health insurance since the law went into effect<br />
in 2006.*<br />
The state tobacco prevention and cessation<br />
program received a total of $1.5 million.<br />
Montana<br />
No regular legislative session in 2008.<br />
New Hampshire<br />
The cigarette tax went up 25 cents, for a total<br />
of $1.33, and “small cigars” were redefined as<br />
cigarettes, subjecting these previously untaxed<br />
products to the state tobacco excise tax.<br />
The <strong>Society</strong> secured state funding for a new<br />
Office of Health Equity to ensure that reducing<br />
disparities remains a top priority.*<br />
The state Medicaid program added smoking<br />
cessation services as a permanent benefit.*<br />
The governor signed Jenny’s Law, which places<br />
the burden of proof on insurers when a life<br />
insurance company denies claims based on<br />
conditions that arise after a policy is signed.*<br />
Michigan<br />
The state Senate passed a comprehensive<br />
smoke-free workplace bill. New smoke-free<br />
workplace laws are now in effect in Gogebic,<br />
Houghton, and Keweenaw counties.<br />
The <strong>Society</strong> prevented the Healthy Michigan<br />
Fund from being cut or eliminated and instead<br />
The <strong>Society</strong> prevented the state’s breast<br />
and cervical cancer screening and youth<br />
tobacco prevention programs from being<br />
drastically cut.*<br />
<strong>Society</strong> advocates defeated an attempt to weaken<br />
the state’s comprehensive smoke-free air law and<br />
built support for stronger enforcement measures.<br />
A new state health improvement program will<br />
provide grants to local communities for tobacco<br />
prevention and obesity fighting programs.*<br />
Mississippi<br />
Six municipalities enacted smoke-free laws<br />
this year.<br />
The <strong>Society</strong> is working to ensure the state implements<br />
the final phase of its 2005 smoke-free<br />
law, which bans smoking in bars and casinos.<br />
The <strong>Society</strong> launched the Montana Pain Initiative<br />
to improve state regulations and institutional<br />
policies governing rural hospitals, in-home care<br />
providers, and long-term care facilities.*<br />
The <strong>Society</strong> led a coalition that improved a proposal<br />
for a statewide prescription monitoring<br />
program.*<br />
Nebraska<br />
The state passed a 100 percent comprehensive<br />
smoke-free law effective June 1, 2009.<br />
Nebraska’s tobacco prevention and cessation<br />
program received a $500,000 increase.<br />
The state removed restrictive limits on the<br />
amount of pain medication that can be dispersed<br />
to patients.*<br />
New Jersey<br />
The <strong>Society</strong> partnered with other leading health<br />
groups to develop a consensus around health<br />
29 * Denotes initiative addressing disparities and/or access to care.
eform, resulting in a new law that requires<br />
insurance coverage for children, expands the<br />
New Jersey FamilyCare program, and institutes<br />
improvements in the individual market.*<br />
The <strong>Society</strong> inspired a bill that will provide treatment<br />
for individuals diagnosed with colorectal<br />
or prostate cancer through the state’s screening<br />
program for the uninsured.*<br />
New Jersey became the second state with a law<br />
banning the sale of flavored cigarettes.<br />
New Mexico<br />
The state increased its allocation for the breast<br />
and cervical cancer early detection program<br />
by $500,000 for a total state appropriation of<br />
one million dollars. The program will also receive<br />
the proceeds from sales of a new breast cancer<br />
awareness license plate featuring the <strong>Society</strong>’s<br />
toll-free number.*<br />
The <strong>Society</strong> assisted Navajo tobacco control<br />
advocates in passing a ban on tobacco use in<br />
the Navajo Nation legislature. Unfortunately,<br />
the nation’s president vetoed the measure.*<br />
New Mexico will direct the bonus payments<br />
it received as part of the master settlement<br />
agreement with the tobacco companies to<br />
tobacco control and Medicaid.*<br />
New York<br />
The <strong>Society</strong> was a lead member of labor-business<br />
and patient advocacy coalitions that sponsored<br />
forums to focus public and policy-maker<br />
attention on access to care, resulting in a<br />
significant expansion of the state’s children’s<br />
health insurance program.*<br />
The <strong>Society</strong> organized and led the effort to raise<br />
the state cigarette tax from $1.50 to $2.75 per<br />
pack, the highest in the nation.<br />
Private and public college, university, and<br />
vocational school dormitories and residence<br />
halls became smoke-free effective August 2008.<br />
Municipal and school district employees may<br />
now take up to four hours of leave annually for<br />
cancer screening tests.*<br />
North Carolina<br />
<strong>Society</strong> advocates secured a $500,000 annual<br />
increase for the state tobacco cessation hotline.<br />
In addition, a new provision in the state budget<br />
authorizes the hotline to recommend nicotine<br />
replacement therapy.<br />
A new law requires state owned and operated<br />
vehicles be 100 percent smoke-free effective<br />
January 1, 2009. The law also clarifies local governments’<br />
authority to make municipally owned<br />
and operated vehicles 100 percent smoke-free.<br />
A new law em<strong>power</strong>s individual community<br />
college boards of trustees to prohibit tobacco<br />
use on campus.<br />
North Dakota<br />
No regular legislative session in 2008.<br />
Voters in Fargo approved a ballot initiative that,<br />
by expanding its smoke-free law to include<br />
stand-alone bars, truck stops, and rental halls,<br />
made the city’s law stronger than the state’s.<br />
The city of West Fargo approved a comprehensive<br />
smoke-free ordinance.<br />
Ohio<br />
Ohio’s breast and cervical cancer program received<br />
an additional $2.5 million in state funding.*<br />
The state Senate approved a bill requiring insurers<br />
to cover the full range of colorectal cancer<br />
screening tests.*<br />
A new law requires insurers to cover routine<br />
patient-care costs administered as part of a<br />
cancer clinical trial.*<br />
Legislation to raise the tax on cigars and<br />
smokeless tobacco products was introduced.<br />
The revenue would fund tobacco use prevention<br />
programs.<br />
Oklahoma<br />
The state Senate approved a bill requiring<br />
insurers to cover the full range of colorectal<br />
cancer screening tests.*<br />
The state Senate Business and Labor Committee<br />
approved a statewide smoke-free bill.<br />
The <strong>Society</strong> helped secure a $4 million increase<br />
to the state tobacco prevention and cessation<br />
program, bringing the total to $16 million.<br />
A new law increases physical education<br />
requirements for elementary school students<br />
from 60 to 120 minutes per week.<br />
Oregon<br />
No regular legislative session in 2008.<br />
<strong>Society</strong> advocates prevented $8.2 million in<br />
funds for the state tobacco and prevention<br />
education program from being cut.<br />
Pennsylvania<br />
The <strong>Society</strong> helped protect $1.7 million in<br />
funding for a Department of Health program<br />
that makes annual breast and cervical cancer<br />
screenings available to women ages 40 to 49.*<br />
A new law requires coverage for most colorectal<br />
cancer screening tests in businesses with more<br />
than 50 employees.*<br />
The Pennsylvania Clean Indoor Air Act was<br />
signed by the governor on June 13, 2008 and<br />
went into effect on September 11, 2008.<br />
Pharmacies will be able to re-dispense unused<br />
cancer drugs to patients in need under a new<br />
voluntary drug repository program.*<br />
Rhode Island<br />
Despite a deepening budget crisis, the state<br />
maintained level funding for its Women’s <strong>Cancer</strong><br />
Screening and tobacco control programs.*<br />
The tax on little cigars was raised so that it<br />
equals the cigarette tax of $2.46 per pack.<br />
The state passed legislation to allow patients to<br />
get 90 days worth of pain medications, as opposed<br />
to the previous 30 days, in accordance with<br />
new U.S. Drug Enforcement Agency guidelines.*<br />
30
Rhode Island became the fifth state in the<br />
country to create a Legislative <strong>Cancer</strong> Caucus.<br />
South Carolina<br />
The state allocated $2 million for the breast<br />
and cervical cancer early detection program, its<br />
first-ever state-federal match.*<br />
The state will invest one million dollars in a<br />
colorectal cancer screening pilot targeting<br />
the uninsured.*<br />
The state Supreme Court ruled that there is<br />
no state preemption over local smoke-free<br />
laws, permitting communities statewide to<br />
enact strong smoke-free ordinances. Seven<br />
comprehensive smoke-free local ordinances<br />
were implemented in 2008.<br />
The state House and Senate approved a 50-cent<br />
per pack increase in the cigarette tax. Although<br />
the governor vetoed the measure, momentum<br />
is growing for passage in 2009.<br />
South Dakota<br />
<strong>Society</strong> advocates persuaded the state government<br />
to preserve funding for the breast and<br />
cervical screening program and tobacco control.*<br />
The state allocated $125,000 for tuition<br />
reimbursement to health care providers that<br />
commit to serving in underserved, rural areas.*<br />
A new law requires health providers to publicize<br />
the cost of certain medical procedures<br />
so that consumers can make informed health<br />
care decisions.*<br />
Tennessee<br />
The <strong>Society</strong> launched a grassroots campaign<br />
in support of legislation that would expand<br />
breast, cervical, and colorectal cancer screenings<br />
and smoking cessation services.*<br />
Funding for Tennessee’s breast and cervical<br />
cancer program remained intact, avoiding the<br />
severe cuts made to other programs.*<br />
A successful <strong>Society</strong> grassroots campaign<br />
defeated attempts to weaken the Nonsmoker<br />
Protection Act of 2007, which allows smoking<br />
only in venues open to those 21 and over. In<br />
addition, the state reaffirmed its commitment<br />
to smoking cessation and prevention with $5<br />
million in program funding.<br />
Texas<br />
No regular legislative session in 2008.<br />
The process for implementing the new <strong>Cancer</strong><br />
Prevention and Research Institute began. The<br />
Institute, created by the legislature and ratified<br />
by the public in a 2007 ballot initiative, will<br />
invest $3 billion in state cancer prevention and<br />
research programs.<br />
Comprehensive smoke-free ordinances were<br />
approved in Alton, Corpus Christi, Dallas, Flower<br />
Mound, Nacogdoches, Pearland, Richardson,<br />
and Tyler.<br />
Utah<br />
The state approved legislation providing more<br />
than $5 million to expand children’s health<br />
insurance, increase participation in a state<br />
program that subsidizes a portion of low income<br />
individuals’ health insurance premiums, and<br />
helps low income, underserved individuals use<br />
health care resources more effectively.*<br />
A bill to create a special license plate whose<br />
proceeds would fund cancer screening awareness<br />
campaigns was introduced.<br />
Vermont<br />
The <strong>Society</strong> was a leader in enhancing access<br />
to the Catamount Health Program by securing<br />
an amnesty period for pre-existing conditions,<br />
such as cancer, and helping to pass legislation<br />
that waives the one-year eligibility waiting period<br />
for individuals in high-deductible plans of<br />
$10,000 or more.*<br />
The governor signed legislation that prohibits<br />
deductibles and copays from applying to<br />
mammograms and caps out-of-pocket expenses<br />
at $25.*<br />
The state provided $5.2 million for its tobacco<br />
control program and banned the sale of tobacco<br />
products over the Internet.<br />
Virginia<br />
Despite a $1.4 billion budget shortfall, <strong>Society</strong><br />
volunteers protected breast and cervical cancer<br />
funding for the Every Woman’s Life Program.*<br />
The state Senate passed comprehensive statewide<br />
smoke-free legislation by the widest margin<br />
to date. The proposed law also authorizes local<br />
communities to enact smoke-free ordinances that<br />
are stronger than the statewide law.<br />
Washington<br />
The <strong>Society</strong> helped to enact legislation to establish<br />
and fund, at $1.3 million, a citizen work group<br />
that will assess four major health care reform proposals<br />
and engage state residents on the issue.*<br />
The Washington Breast and Cervical Health Program<br />
received $585,000 in state funds to address reimbursement<br />
shortfalls to participating providers.*<br />
The state budget included $956,000 to start a<br />
colorectal cancer screening pilot for uninsured<br />
people in select counties.*<br />
Smoking cessation products and cessation<br />
counseling services are now available through<br />
Medicaid, with the state providing a $1.9 million<br />
match to $1.7 million in federal funds.*<br />
West Virginia<br />
For the first time, the state allocated $100,000<br />
to fund the West Virginia Comprehensive <strong>Cancer</strong><br />
Coalition, which is charged with implementing<br />
the state cancer plan. In addition, funding for the<br />
state cancer registry was reinstated.*<br />
The <strong>Society</strong> joined the Legislative Health Interim<br />
Committee, which is studying statewide health<br />
reform proposals.*<br />
31 * Denotes initiative addressing disparities and/or access to care.
Legislation that would have stripped local<br />
communities of their ability to enact strong<br />
smoke-free laws was defeated for the 16th year<br />
in a row. Twelve counties had comprehensive<br />
smoke-free laws go into effect in 2008, for a<br />
total of 21 counties with such laws.<br />
Wisconsin<br />
Despite a significant budget deficit, <strong>Society</strong><br />
advocates protected funding for the state’s<br />
breast and cervical cancer screening program.*<br />
Smoke-free ordinances passed in Eau Claire,<br />
Marshfield, Monona, and Fond du Lac.<br />
The state increased funding for its comprehensive<br />
tobacco control program by $250,000. The annual<br />
appropriation is now in excess of $15 million.<br />
Wyoming<br />
The <strong>Society</strong> became a founding member of the<br />
Coalition for Wyoming Insurance Solutions in<br />
Healthcare, formed to evaluate access to care<br />
issues such as consumer protections in insurance<br />
coverage.*<br />
<strong>Society</strong> advocates secured $1.7 million for<br />
state programs for the medically underserved,<br />
including breast, cervical, and colorectal cancer<br />
screenings and Native Sister, a collaborative<br />
initiative expanding access to breast cancer<br />
screenings for Native <strong>American</strong> women.*<br />
The state Health Labor and Social Services Joint<br />
Committee passed a comprehensive smoke-free<br />
bill on December 2, 2008. The bill will go before<br />
the full legislature in 2009.<br />
Health insurers are now required to cover<br />
routine patient care costs for individuals<br />
participating in phases two, three, and four<br />
clinical trials.*<br />
Reducing Tobacco’s Toll<br />
Smoke-Free Successes<br />
Three states – Illinois, Iowa, and Maryland – implemented statewide smoke-free laws covering workplaces,<br />
restaurants, and bars.<br />
Three states – Iowa, Nebraska, and Pennsylvania – passed statewide smoke-free laws.<br />
Twenty-nine states, the District of Columbia, and Puerto Rico now have 100 percent smoke-free laws<br />
covering workplaces and/or restaurants and/or bars.<br />
Thirteen states, the District of Columbia, and Puerto Rico have smoke-free laws covering 100 percent<br />
of all workplaces, restaurants, and bars.<br />
Sixty-nine percent of the U.S. population is now covered by smoke-free workplace and/or bar and/or<br />
restaurant laws, up from 57 percent in 2007<br />
Cigarette Tax Increases<br />
Five states – Hawaii, Massachusetts, New Hampshire, New York and Vermont – plus the District of<br />
Columbia – increased cigarette taxes.<br />
At $2.75 per pack, New York now has the nation’s highest cigarette tax. The state’s tobacco cessation<br />
hotline logged 10,000 calls the week the tax went up.<br />
Massachusetts and the District of Columbia are using part of the tax revenue to expand access to care.<br />
Twelve states and the District of Columbia have taxes of $2.00 or more.<br />
The average state tax on a pack of cigarettes is now $1.19, up from $1.11 a year ago.<br />
Prevention, Cessation, and Control Funding<br />
Six states – Alaska, Colorado, Delaware, Hawaii, Maine and Montana – funded their tobacco<br />
control programs at or above the Centers for Disease Control and Prevention’s minimum levels<br />
during the 2008 fiscal year. Maine ranked first in funding tobacco prevention programs for the<br />
seventh consecutive year.<br />
Other states that have increased funding for tobacco control include Alaska, Florida, Indiana, Iowa,<br />
Mississippi, New Hampshire, New Mexico and Tennessee, plus the District of Columbia.<br />
Sixteen states offer adequate Medicaid smoking cessation coverage, meaning at least one form of<br />
medication and one type of counseling. Oregon covers all therapies recommended by the U.S. Public<br />
Health Service.<br />
Many of these achievements were made possible by <strong>Society</strong> Mission Delivery Council grants.
DONORS<br />
Corporate Champions<br />
$100,000 and up<br />
EMD Serono, Inc.<br />
Pharmaceutical Research and<br />
Manufacturers of America<br />
Corporate Heroes<br />
$25,000 - $99,999<br />
AstraZeneca Pharmaceuticals<br />
Genentech USA<br />
Johnson & Johnson<br />
Pfizer, Inc.<br />
Major CANpaign Circle<br />
$20,000 and up<br />
Dr. John W. Hamilton<br />
Robert E. Youle<br />
Chairman’s Circle<br />
$10,000 - $19,999<br />
Fereydoun Firouz<br />
Matthew & Susan Lorber<br />
Dr. John & Mrs. Carole Seffrin<br />
Corporate Friends<br />
$10,000 - $24,999<br />
Pace Communications<br />
Home Front Communications<br />
Ironworks Consulting LLC<br />
President’s Circle<br />
$3,000 - $9,999<br />
Alliance Oncology<br />
Autodesk, Inc.<br />
Banner Health<br />
Dr. Ermilo Barrera Jr.<br />
Mr. & Mrs. R. Clifford Berg<br />
Kathleen M. Bond<br />
Greg & Karen Bontrager<br />
Dr. William H. Boykin Jr.<br />
Dr. Otis W. Brawley<br />
Dr. Robert T. Brodell<br />
Sally West Brooks &<br />
Marvin Brooks<br />
Helene G. Brown<br />
Carla Marie Bucknell<br />
Joe Cahoon<br />
Dr. Barrie R. Cassileth<br />
Cataldo Ambulance Service, Inc.<br />
Catholic Health Initiatives<br />
Children’s Community<br />
Health Plan<br />
Children’s Hospital and<br />
Medical Center<br />
Jennie R. Cook<br />
Molly A. Daniels<br />
Michael P. Dany<br />
Tina C. Datta<br />
Dean Health Systems<br />
Dr. Robert P. DeMarco<br />
Dr. Margaret Drugay<br />
Evergreen Healthcare<br />
Patricia M. Felts<br />
Firestone and Parson, Inc.<br />
First Choice Health<br />
Dr. Elizabeth T.H. Fontham<br />
Dr. Lewis E. Foxhall<br />
GMMB<br />
Nathan Grey<br />
Sheffield & Elizabeth Hale<br />
Norma J. Hayman<br />
Health Advances LLC<br />
Reuel Johnson<br />
Dr. Anna Johnson-Winegar &<br />
Lucien Winegar<br />
Dr. Douglas K. Kelsey<br />
Mr. & Mrs. Robert Kugler<br />
Grace Kurak<br />
Michael Kurak<br />
Mary Jo Langdon<br />
Dr. Robert M. Langdon<br />
Unice Lieberman &<br />
Stephan Diamond<br />
Thomas M. Lindquist<br />
Lockspot Café<br />
Martin Smith, Inc.<br />
Massachusetts Medical<br />
<strong>Society</strong> / New England<br />
Journal of Medicine<br />
Charles Matthau<br />
Ann Mau<br />
Jean B. McGill<br />
Dr. & Mrs. Raymond Melrose<br />
Pamela K. Meyerhoffer<br />
Dr. Karen A. Moffitt<br />
Moffitt <strong>Cancer</strong> Center<br />
Scarlott K. Mueller<br />
Nebraska <strong>Cancer</strong><br />
Specialists – Methodist<br />
Estabrook <strong>Cancer</strong> Center<br />
Kent C. Nelson<br />
Frank R. Nolimal<br />
Dr. Sandra A. Norman<br />
Nixon Peabody LLP<br />
Northwest Hospital and<br />
Medical Center<br />
Novartis Pharmaceuticals<br />
Oracle Corporation<br />
Overlake Hospital<br />
Medical Center<br />
Paradysz Matera Co. Inc.<br />
Joe P. Parisi<br />
Gregory A. Pizzuti<br />
Ann Marie & Arnie Pomerinke<br />
Frances Popstojanovic-Holstrom<br />
Pamela A. Ratcliff<br />
Rod J. Ratcliff<br />
Gary M. Reedy<br />
Rona Consulting<br />
Mark Rothwell<br />
Dr. Christy A. Russell<br />
Wendy & Michael Selig<br />
Dr. & Mrs. Stephen F. Sener<br />
Peter S. Sheldon<br />
Thomas Sheridan<br />
Daniel E. Smith & Lorraine Voles<br />
Richard E. Spoonemore<br />
SSM of Wisconsin<br />
Carter Steger<br />
Stephen L. Swanson<br />
Swedish Health Services<br />
Dr. Craig Tanio<br />
Dr. Eric W. Taylor<br />
Tennessee <strong>Society</strong> for<br />
Gastroenterology<br />
Dr. Alan & Mrs. Nancy Thorson<br />
Chris H. Torti<br />
University of Washington<br />
Waste Management<br />
Donald A. Webster<br />
Dr. Jeff Weinstein<br />
John F. Windham<br />
Wisconsin Education<br />
Association Council<br />
Wisconsin Hospital Association<br />
Mr. & Mrs. G. Van Velsor Wolf Jr.<br />
Dr. G. Fred Worsham Jr.<br />
Dr. Jerome Yates<br />
David L. Yeager<br />
Champion’s Circle<br />
$1,000 - $2,999<br />
Alegent Health<br />
Joseph Allen<br />
Alliant Insurance Services<br />
Amphion<br />
Andover Barbecue <strong>Society</strong><br />
Armstrong International Inc.<br />
Arnold Worldwide LLC<br />
Axley Brynelson LLP<br />
DeAnne F. Baer<br />
Dr. Larry D. Baer<br />
Michele M. Barsanti<br />
Herb Beuter<br />
Dr. Therese Bevers<br />
Barnard Griffin Winery<br />
Blue Cross Blue Shield<br />
of Minnesota<br />
Blue Cross Blue Shield<br />
of Nebraska<br />
Boston University School<br />
of Medicine<br />
Boyd Watterson Asset<br />
Management<br />
Brandeberry McKenna<br />
Public Affairs<br />
Sheila Breeding<br />
Broydrick & Associates<br />
Dr. Carolyn J. Bruzdzinski<br />
Joe Buchanan<br />
Buchanan Ingersoll Rooney,<br />
Professional Corporation<br />
Kalah R. Bumba<br />
Cynthia A. Cable<br />
Connie J. Chapman<br />
Stephanie B. Christensen<br />
Dr. Mark Clanton<br />
Christina M. Clothier<br />
Deborah J. Cornwall<br />
Commercial Cost Control Inc.<br />
Patricia J. Crome<br />
Kelley M. Daniel<br />
Jim Davis<br />
Charles W. DeGooyer<br />
Ralph A. DeVitto Jr.<br />
Dr. William Dooley<br />
Downs Rachlin Martin PLLC<br />
Dr. Stephen J. Dreyer<br />
Kimberly T. Duchossois<br />
Bryan K. Earnest<br />
Dr. W. Phil P. Evans III<br />
Pete Festerson<br />
Dr. Wanda D. Filer<br />
Shelby Fletcher<br />
John Fraser<br />
Gateway Ventures<br />
Georgetown Cupcake<br />
Thomas P. Glynn III<br />
Goff & Howard Inc.<br />
Joel T. Greer<br />
Barbara M. Grevior<br />
Steven Grossman<br />
Donald J. Gudaitis<br />
Hamilton Consulting Group<br />
Donna K. Hammack<br />
Lee Hecht Harrison<br />
Reed E. Hall<br />
Kyle D. Harris<br />
Kelly Headrick<br />
Dale Hendrix<br />
John C. Hoctor<br />
Robert Holleran<br />
Hope Group LLC<br />
Roger E. Howard<br />
Paul Hull<br />
Dr. Elaine Iuanow<br />
Johnson Timber Corp<br />
Jari J. Johnston-Allen<br />
Dr. William Karrer<br />
Key Bank<br />
Dr. Marianne B. Kipper<br />
George C. Kosmos Jr.<br />
Lisa A. Lacasse & Bruce D. Lesley<br />
Brian D. Langstraat<br />
Lehman Kelly Sadler & O’Keefe<br />
Leukemia & Lymphoma <strong>Society</strong><br />
Daniel C. Lynch<br />
William H. Lynch<br />
M & R Strategic Services Inc.<br />
Mackinaw Valley Vineyard<br />
Madison Radiologists SC<br />
Marshfield Clinic<br />
Steve Martin<br />
Stacy A. Matseas<br />
Dr. Tim Mauldin<br />
Merck & Company Inc.<br />
Meriter Health Services<br />
Methodist Estabrook<br />
<strong>Cancer</strong> Center<br />
Metro East Masters League<br />
Michelle I. Mettner<br />
MFS Investment Management<br />
33
Midlands Choice<br />
James E. Miller<br />
Minneapolis Radiation<br />
Oncology<br />
Jennifer H. Mirenda<br />
Colleen D. Mitchell<br />
Paula D. Mohan<br />
MSHC Partners Inc.<br />
Terry Music<br />
Myriad Genetic Labs<br />
The Nebraska Methodist<br />
Hospital<br />
Dawn Neiderman<br />
Pacific Gas and Electric Co.<br />
Park Bank<br />
Parkway Plastic Surgery<br />
Ruth M. Parriott<br />
Partners Healthcare System<br />
Personal Care Product Council<br />
Andrew Petersen<br />
Paul Plofchan<br />
Premera Blue Cross<br />
Thomas E. Press<br />
Puyallup Valley Flower<br />
Quatt Associates<br />
Vicki A. Rakowski<br />
Dr. Mark W. Redrow<br />
Riester Sonoran LLC<br />
LW Robbins Associates Inc.<br />
William G. Robbins<br />
Mary Rob Clarke<br />
Delia D. Roberts<br />
Diane Roberts<br />
Ropes & Gray, LLP<br />
Julie Rosen<br />
Sanofi-Aventis US Inc.<br />
Schaumburg Flyers<br />
Seim Johnson Sestak & Quist<br />
Kim R. Sevening<br />
Dr. Peter Shields<br />
Steven E. Slaughter<br />
Soapbox<br />
Russ Sobotta<br />
Gary J. Streit<br />
TAS INC<br />
TDS Telecom<br />
Pam Traxel<br />
Trivers Associates<br />
United Healthcare<br />
University of Massachusetts<br />
Medical School<br />
Michael Vander Hoek<br />
David F. Veneziano<br />
WAHU Foundation<br />
Erika Walsted<br />
Thomas J. Williams<br />
Wisconsin Restaurant<br />
Association<br />
Patricia R. Workman<br />
Bertram A. Yaffe<br />
Nancy Yaw<br />
Dr. Jackie Young<br />
Hero’s Circle<br />
$500 - $999<br />
Advantage Mail<br />
Briggs W. Andrews<br />
Dr. Andrejs E. Avots-Avotins<br />
Boston Medical Center<br />
Healthnet Plan<br />
Sharlene R. Bozack<br />
Michael A. Bozzuto<br />
Marilyn K. Broussard<br />
Heidi Brown<br />
Nicki Brown<br />
Dr. Barbara K. Bucholtz<br />
Dr. Michael J. &<br />
Mrs. Sharon R. Bukstein<br />
Stephen A. Burgess<br />
Charlotte L. Burke<br />
Valerie N. Burniece<br />
Dr. Karlynn BrintzenhofeSzoc<br />
Corinne Broderick<br />
<strong>Cancer</strong> Care Northwest Centers<br />
Dr. Mark Carlson<br />
Gail Carlson-Van Valey<br />
Central Indiana <strong>Cancer</strong> Centers<br />
City Of Huntington Park<br />
Cone Inc.<br />
Creekside Custom Homes<br />
Joseph W. Cruitt<br />
Custom Picture/Dustin Batt<br />
Aaron E. Czyzewski<br />
William J. Dalton<br />
Dr. Raymond Y. Demers<br />
Richard L. Deming<br />
Dr. M. Julian Duttera<br />
Peter E. Eckerline<br />
Mark A. Edmiaston<br />
Dr. Albert B. Einstein<br />
Hilarie Engle<br />
Mark Escobar<br />
Dr. Jack T. Evjy<br />
Guy Fischer<br />
Kathy C. Franklin<br />
Doug Frasier<br />
FSA/Kelly Chaterton<br />
Ronald B. Gartlan<br />
Georgette B. Gaskin<br />
Priscilla F. Gibbs<br />
Joy A. Ginsburg<br />
Godfather’s Pizza Inc.<br />
Gail M. Goodrich<br />
Toppy Goolsby<br />
Greater Boston Chamber<br />
of Commerce<br />
Greene Turtle<br />
Lynn A. Hancock<br />
Kathryn M. Hansen<br />
Dorothy J. Hargrove<br />
Dr. Allen H. Henderson<br />
Helen E. Hession<br />
Dr. Karen Heusinkveld<br />
Laura J. Hilderley<br />
Jill Hodges<br />
Kelly A. Howley<br />
Dr. Elmer E. Huerta<br />
Russell N. Huffer<br />
Nancy Hughes<br />
Imagers<br />
Infocision Management<br />
Corporation<br />
Ivy Pearl Foundation<br />
Katrina E. Kamm<br />
James K. Knox<br />
Ellen Israel<br />
Kazuyoshi Iwamoto<br />
Jennifer Johnson<br />
Jayne Jones<br />
Angela Kegler McDowell<br />
Robert J. Kelley<br />
Brian D. Key<br />
Dr. Howard B. Kleckner<br />
Maria J. Koumantaros<br />
Michael Kulik<br />
Lake Research Partners<br />
Martin R. Larsen<br />
Liberty Mutual<br />
Drs. Ina & Abe Lieberman<br />
Sharon P. Light<br />
Darrell A. Lindman<br />
John (Randy) Linduff<br />
Christopher Loiacono<br />
Eva Loken<br />
Dr. Dan D. Lydiatt<br />
Margaret Mary Community<br />
Hospital<br />
Brian A. Marlow<br />
Marriott International Inc.<br />
Marc J. Marotta<br />
Jeffrey A. Martin<br />
Auda T. Martinez<br />
Nancy Mathis<br />
Mary M. McDonald<br />
Anthony McLean<br />
Peter Meade<br />
Dave Mills<br />
Jazmin Miranda-Smith<br />
Robert Mitchell<br />
Wendy P. Moran<br />
Munder Capital Management<br />
National Investment<br />
Services Inc.<br />
Mary O. Nichols<br />
Noel J. Oates<br />
Margaret K. Offerman<br />
Steve Ohlenkamp<br />
Old National Bancorp<br />
Olson Hagel & Fishburn LLP<br />
Yvonne C. Pache<br />
Janet S. Parker<br />
Kim Pendarvis<br />
Brice R. Pontious<br />
Proforma<br />
Public Health Institute<br />
Qdoba Mexican Grill<br />
Ujwala Rajgopal<br />
Dr. Susan M. Rawl<br />
Desiree Roach<br />
Catherine A. Roberts<br />
Neil J. Robertson<br />
Karen M. Rouse<br />
Rob Sartin<br />
Jeff & Julie Schoenfeld<br />
Karen A. Schulz-Perez<br />
Randy H. Schwartz<br />
Allen D. Segal<br />
Side Pocket Foods Co.<br />
Sierra Health Services Inc.<br />
Michael L. Siler<br />
Burleigh L. Singleton<br />
Solari Hospice Care LLC<br />
Dr. Christopher A. Squier<br />
Alice A. Steffensen<br />
Stein Distributing Company Inc.<br />
Richard W. Stilwell<br />
Richard N. Sullivan<br />
Summitt Credit Union<br />
Gretchen H. Tegeler<br />
Terre Haute Regional Hospital<br />
Mary L. Thornhill<br />
Total Graphic Solutions<br />
Trek Bicycle Corporation<br />
Stacy L. Truax<br />
Turnkey Promotions<br />
James A. Tupper<br />
Dr. Eric Vallieres<br />
Visiting Nurse Association of<br />
the Wabash<br />
Stevie Vildibill<br />
Julia A. Wagner<br />
Liz Weisgerber<br />
Frederick J. Wenzel<br />
Dr. Gerald L. Woolam Jr.<br />
World Asset Management<br />
Leader’s Circle<br />
$250 - $499<br />
Adaptive Mediquip Inc.<br />
Jennifer L. Adzima<br />
Aetna Inc.<br />
Holly Agne<br />
Dr. Tenley E. Albright<br />
Charles H. Allen<br />
Karen P. Alexander<br />
Gregory C. Alwood<br />
<strong>American</strong> Post Shores Inc.<br />
AMGEN Inc.<br />
Dr. Richard Anderson<br />
Margaret L. Anderson Keane<br />
Anthem Blue Cross Blue Shield<br />
Cindy M. Antolik<br />
Stephen John Arkinstall<br />
David F. Arons<br />
Dr. Jameel Audeh<br />
James R. Austin<br />
Lesley K. Austin<br />
Patricia S. Avery<br />
Vic Ayers<br />
Carol L. Baker<br />
Robi Bannon<br />
Susan W. Barron<br />
Basta Mangiare of Peoria<br />
Dr. Tracy A. Battaglia<br />
Barbara B. Behal<br />
James A. Bergeron<br />
Birdie McKenna’s<br />
Joanna Bichsel<br />
Steve C. Biever<br />
Francine P. Bion<br />
Joanne C. Blos<br />
George Ann Blough<br />
Linda Blount<br />
Becky Bogard<br />
34
Mary Borrelli<br />
Jack Brandabur<br />
J.J. Bridge<br />
Patricia Brinton<br />
Dr. Samuel Britt II<br />
Dr. Bruce H. Brumm<br />
Connie Burns<br />
Nathan D. Bush<br />
Theresa A. Buster<br />
Paula J. Butler<br />
Ronald J. Butler<br />
Judith E. Calhoun<br />
James M. Cantwell<br />
Sandra C. Cassese<br />
Emilio & Helen J. Cadamagnani<br />
Dr. Blake Cady<br />
Cathryn C. Callaway<br />
Joan M. Cambray<br />
Dr. Umberto E. Capuano<br />
Jon S. Carlson<br />
Hilary E. Casillas<br />
The Catering Company<br />
Audra & Wayne Chai<br />
Gale Champion<br />
Anna Chanakas<br />
Robert T. Chapman<br />
Citizens for Jake Zimmerman<br />
Lynn M. Claudon<br />
Debra J. Cohen<br />
Chris Colbert<br />
Margaret Conlon<br />
Dr. Wil Counts<br />
Diane L. Cristina<br />
Barbara Crowe<br />
Randy J. Dahl<br />
Jim Danek<br />
John A. Daniel<br />
Dawson & Gerbic LLP<br />
Kristy E. Deaton<br />
James Delellis<br />
Steven M. Derks<br />
Diamond Jaxx Baseball<br />
Club LLC<br />
Barbara & Eric Dobkin<br />
Joyce J. Dolbec<br />
Downers Grove Junior<br />
Women’s Club<br />
Duke Energy<br />
Dr. Joel S. Dunnington<br />
Ear Nose & Throat Associates<br />
Jerry B. Edmonds<br />
Julie S. Erickson<br />
Brianna C. Evans<br />
Dr. Galen M. Eversole<br />
Exeter Country Club Inc.<br />
Margaret M. Farina<br />
Kristi E. Farver-Oaks<br />
Rollin Fatland<br />
Fead Construction Law PLC<br />
Valerie Fein-Zachary<br />
Burton R. Feldstein<br />
Tonya L. Fier<br />
Jack Fischer<br />
David Fitterer<br />
Richard L. Fitzgerrell<br />
Martin E. Flynn<br />
Rita C. Forden<br />
Forest City Enterprises<br />
Zachary A. Fortsch<br />
Kenneth C. Francis<br />
Joseph M. Franco Jr.<br />
Jane Fulgham<br />
Tonnie Furjanic<br />
Gally Public Affairs Inc.<br />
Gamestop<br />
Gas & Electric Credit Union<br />
Scott A. Gasiorek<br />
Norma J. Gecks<br />
Tina F. Gill<br />
Daniel Gorski<br />
Ann C. Gouré<br />
Carole E. Granderson<br />
Holly H. Grant<br />
Dawn Green<br />
Abby Greensfelder<br />
Jerry P. Guinane<br />
Gyn Oncology Associates PL<br />
Gregg H. Haifley<br />
Ken Hamm<br />
Adnan Hammad<br />
Trista L. Hargrove<br />
Ed Harlow<br />
Dr. Lauralee Harris<br />
Julie Hart<br />
Kevan L. Hartshorn<br />
Alissa Havens<br />
Hayden Beverage Company<br />
Ronald R. Hecht<br />
Dr. Alan C. Henderson<br />
Patricia L. Henson<br />
Mary Jo Heston<br />
H. Hirschmann Ltd.<br />
Hildebrand Tewes<br />
Consulting Inc.<br />
Robert V. Hilkemann<br />
Holland-Mark<br />
David W. Holmquist<br />
Dana B. Hopkins<br />
Jon R. Hornaday<br />
Keri R. House<br />
Scott F. Huizenga<br />
Jacqueline A. Hutchinson<br />
William Huttemann Jr.<br />
Suzanne A. Hyman<br />
Marc C. Hymovitz<br />
Steve A. Idelman<br />
Jake’s Bar & Grille<br />
Emilia H. Jankowski<br />
Helen E. Jankowksi<br />
Dr. Robert Lee Jennings<br />
Laurie L. Jensen-Wunder<br />
Norma V. Jeter<br />
John T. John<br />
Lila R. Johnson<br />
Amy J. Johnson Boyle<br />
Bernard M. Jones<br />
Pamela Kantor<br />
Wendy Kaplan<br />
Kevin T. Keane<br />
Robin N. Kelleher<br />
Carole & Morty Kessler<br />
Rebecca A. Kirch<br />
Michangelo Kittrell<br />
Calvin Knight<br />
Steven R. Kreamer<br />
John K. Kyger<br />
Martin R. Larsen<br />
Dr. Eva K. Lean<br />
Cynthia M. LeBlanc<br />
Diana C. Lehet<br />
Gary A. Leipheimer<br />
Helen P. Leipold<br />
Patricia S. Leonhard<br />
Anne L. Levine<br />
Diane M. Lewandowski<br />
Ted Lewis<br />
Wayne E. Lewis<br />
Stephen R. Litzow<br />
Richard A. Lombardi<br />
Barbra Luct-Turner<br />
Zack Lynch<br />
Joseph R. Mahoney<br />
Carol L. Maiello<br />
Rene P. Mallen<br />
Denise M. Martin<br />
Judy I. Massong<br />
Kevin Mathis<br />
Patricia B. May<br />
Charlene D. McCaskey<br />
Jan A. McCaugherty<br />
Sally McCurdy<br />
Cheri McIntosh<br />
Mr. & Mrs. Gary McMullen<br />
Mid<strong>American</strong>/Ficht Services<br />
Sheppard Miers<br />
Jay D. Miller<br />
Steve J. Miller<br />
Brian D. Monaghan<br />
Barbara C. Morgan<br />
Michael Murphy<br />
Laura E. Nathan<br />
Danell W. Nedom<br />
New Hampshire Center for<br />
<strong>Cancer</strong> Medicine<br />
Barbara C. Nickles<br />
Jessica Niles<br />
David L. Nixon<br />
Cheryl Olsen<br />
Erin C. O’Neill<br />
O’Niell’s Pub, Inc.<br />
Anne B. Palmer<br />
James R. Parker<br />
Sherry L. Parker<br />
Denise M. Passinetti<br />
Nathaniel Peniston<br />
Bruce A. Peterson<br />
Melissia Petro<br />
Edward W. Pettigrew<br />
Pick N For A Cure<br />
Sandra M. Pihos<br />
Christine C. Pidwell<br />
Rosalie C. Plechaty<br />
Cherilyn R. Pollard<br />
Ellen Prandi<br />
Phillip H. Prange<br />
Jack H. Presbury<br />
Steve Presley<br />
Kathy Psutka<br />
Skip Quint<br />
Larry Ream<br />
Erin B. Reidy<br />
David A. Reynolds<br />
Jamie Riccobono<br />
Paul K. Richards<br />
Katie Riley<br />
Phillips W. Robbins<br />
Lesa M. Robison<br />
Megan A. Roether<br />
Dr. David S. Rosenthal<br />
Dr. Frank Rotolo<br />
Marilyn P. Rouvelas<br />
Charles Royer<br />
Elisa Rudolph-Perez<br />
Cindy C. Rutherford<br />
Teresa M. Rutherford<br />
Roger Sametz<br />
Ed Sato<br />
Albert Savegnago<br />
Lisa Beyer Scanlon<br />
Nancy J. Scharfeld<br />
Deborah S. Schiro<br />
Marvin Schurgin<br />
Kristen L. Schloss<br />
Christy Schmidt<br />
Linda C. Schmidt<br />
Robianne K. Schultz<br />
Claire L. Sharp<br />
Craig H. Shaver III<br />
Christine J. Shaw<br />
Rebecca J. Sherwood<br />
Cherie K. Shoemake<br />
Dr. Timothy Sielaff<br />
Jolene C. Silbaugh<br />
Brianne Simon<br />
Debborah Smith<br />
Megan O. Smith<br />
Monica L. Smith<br />
Patrick Smith<br />
Smith Bryan & Myers Inc.<br />
Thomas R. Smothers<br />
Dawn A. Snapp<br />
Norma H. Spoonemore<br />
Glena Snow<br />
Tash R. Sogg<br />
Mark Speers<br />
Mary H. Spillane<br />
Rebecca K. Stafford<br />
Johnson L. Stambaugh<br />
Christopher C. Stead<br />
Jerry N. Stehlik<br />
Jack W. Steinmeyer<br />
Laura L. St. Germain<br />
Julie A. Strzyzewski<br />
James W. Stubner<br />
D.J. Sullivan<br />
Donald P. Sullivan<br />
Dru Szczerba<br />
Dr. Ronald Szoc<br />
Karina Tabor<br />
Patricia J. Tate<br />
Nancy M. Thornborrow<br />
Rachel J. Townshend<br />
Kristine B. Travaglini<br />
Ken P. Tupa<br />
Jaimie Vickery<br />
Mary Beth Warner &<br />
Bernhard Streitwasser<br />
Deirdra M. Ward<br />
Nancy Watkins<br />
Kristine P. Weaver<br />
Weaver Ridge Golf Course<br />
Dr. David R. Webb<br />
Steven C. Weiss<br />
Judy M. Wheat<br />
Ann E. Wheet<br />
Dr. Richard L. White<br />
Stewart E. White<br />
Suzanne S. White<br />
Wiggin & Nourie PA<br />
Scott Williams<br />
Carolyn P. Williams-Goldman<br />
Robert N. Willman<br />
Jan C. Willoughby<br />
Andrew Wilson<br />
Kristine R. Wilson<br />
Phylecia Wilson<br />
Robert Wood<br />
David P. Woodmansee<br />
Richard Woodruff<br />
Leonard A. Yerkes III<br />
Carma J. Yoder<br />
Dr. Robert C. Young<br />
Dr. Herb Zaretsky<br />
Evelyn G. Zneimer<br />
35
CAN<br />
Opener<br />
A large fundraiser held in the District of Columbia area, the annual CAN Opener brings together<br />
hundreds of activists and cancer survivors from across the country to support ACS CAN. Equal parts rally<br />
and recognition, the event gives ACS CAN an opportunity to honor leaders who have demonstrated<br />
exceptional strength in the fight against cancer. In 2008, the CAN Opener hosted the second successful<br />
“AmeriCAN Idol” competition, which showcased talent from the <strong>Society</strong>’s Divisions.<br />
36
SPECIAL<br />
Thanks<br />
Listed below are individuals and organizations that have helped to make 2008 such a successful year in advocacy. The list is by no means exhaustive,<br />
so an additional thank you is extended to those not specifically mentioned. Please know that your contributions did not go unnoticed.<br />
ACS CAN Board of Directors<br />
<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> National Board of Directors<br />
<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> Division Boards of Directors<br />
State Lead Ambassadors<br />
Ambassador Constituent Teams<br />
<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> Staff<br />
<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> Division Staff<br />
ACS CAN Staff<br />
Coaches vs. <strong>Cancer</strong> ®<br />
Jim Boeheim, Syracuse University<br />
Jim Calhoun, University of Connecticut<br />
Fran Dunphy, Temple University<br />
Mark Gottfried, University of Alabama<br />
Gary Williams, University of Maryland<br />
Colleges Against <strong>Cancer</strong> SM – for work on Michelle’s Law<br />
Making Strides Against Breast <strong>Cancer</strong> ®<br />
Relay For Life ®<br />
The Honorable Lois Capps<br />
The Honorable Steve J. Israel<br />
The Honorable Sue Myrick<br />
The Honorable Deborah Pryce<br />
The Honorable Sam Brownback<br />
The Honorable Dianne Feinstein<br />
Joseph Allen Photography<br />
Crystal City Florist<br />
K&L Gates<br />
Georgetown Cupcake<br />
Kilpatrick & Stockton, L.L.P.<br />
McKenna, Long & Aldridge, L.L.P.<br />
The AmeriCAN Idol Contestants<br />
37
Greg Bontrager<br />
Otis W. Brawley, MD<br />
The Honorable Benjamin Cardin<br />
Gail Carey<br />
Deborah J. Cornwall<br />
Wanda D. Filer, MD<br />
Thenice “Ten” Gall<br />
The Honorable Newt Gingrich<br />
The Honorable Brian Higgins<br />
Laura J. Hilderley, RN, MS<br />
Elmer E. Huerta, MD, MPH<br />
Andy Huff<br />
Christopher “CJ” Jacobson<br />
Celinda Lake<br />
Tommy McFly<br />
Karen Moffitt, PhD<br />
Marion Morra, MA, ScD<br />
The Morse Family<br />
The Honorable Jane Nelson<br />
Kelly Pavlik<br />
Gary M. Reedy<br />
Mark Rubin<br />
John R. Seffrin, PhD<br />
Frank Shoemaker<br />
Eric Taylor, MD, FACR, FACRO<br />
Alan Thorson, MD, FACS<br />
Karen Tumulty<br />
Corey Willman<br />
Tom Willner<br />
Robert E. Youle, Esq.
www.acscan.org