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the<br />

POWER<br />

of<br />

ADVOCACY<br />

If one <strong>American</strong> CAN fight<br />

cancer, a nation CAN rise<br />

up and defeat it.<br />

2008 Advocacy Accomplishments


Daniel E. Smith<br />

President, ACS CAN<br />

Dear Friends,<br />

Congratulations to staff and volunteers nationwide on another great year. The <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> and its nonprofit, nonpartisan advocacy<br />

affiliate, the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> <strong>Cancer</strong> <strong>Action</strong> <strong>Network</strong> SM (ACS CAN), have once again worked together to demonstrate the <strong>power</strong> of<br />

advocacy in helping to enact lifesaving laws and policies that fight cancer.<br />

In 2008, advocacy hit the road with the ACS CAN Fight Back Express bus, the largest grassroots mobilization in history around cancer issues. During<br />

its six-month, 48-state, 44,000-plus mile journey, this “rolling petition” gathered more than 100,000 signatures from people who want cancer to be a<br />

national priority.<br />

After years of flat funding and outright cuts for federal cancer research and programs, the tide began to turn when new research dollars made their<br />

way into a supplemental spending package. ACS CAN also worked with the One Voice Against <strong>Cancer</strong> coalition to launch the concept of a National<br />

<strong>Cancer</strong> Fund. The fund would serve as a dedicated funding source for cancer research, prevention, early detection, and treatment.<br />

We saw several historic milestones in the fight against tobacco. A bipartisan, veto-proof majority of the U.S. House of Representatives approved a<br />

bill authorizing the Food and Drug Administration to regulate tobacco products. Adult smoking rates fell below 20 percent for the first time since<br />

the 1920s and smoke-free laws now cover nearly 70 percent of the U.S. population.<br />

The <strong>Society</strong> and ACS CAN’s joint Access to Care campaign brought new collaborations with diverse partners. Policy development continued with<br />

new policy principles on health care costs and prevention in the health care system. Efforts to expand access to care through state and federal<br />

initiatives were ongoing.<br />

The year also marked a new day in advocacy for the <strong>Society</strong>’s Great West Division when, on September 1, its advocacy program activities were<br />

transferred to ACS CAN. ACS CAN now not only represents the national <strong>Society</strong> before the federal government, but also the 12 states of the Great<br />

West Division on state and local advocacy issues.<br />

Together, we are building a movement of people united in a mission to fight back against cancer through advocacy, a movement that believes if one<br />

person can battle cancer, a nation can rise up to defeat it.<br />

Together, we are building a movement<br />

of people united in a mission to fight<br />

back against cancer through advocacy,<br />

a movement that believes if one person<br />

can battle cancer, a nation can rise up<br />

to defeat it.


ADVOCACY<br />

Accomplishments<br />

Table of Contents<br />

Mission Statements........................3<br />

Dedication ................................4<br />

Leadership . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5<br />

Advocacy Awards .........................6<br />

The Power of Advocacy ....................7<br />

National Leadership Summit/Lobby Day . . 10<br />

Advocacy and Relay for Life...............11<br />

<strong>Cancer</strong> Disparities........................12<br />

Fight Back Express .......................13<br />

<strong>Cancer</strong> Promise ..........................16<br />

Access to Care. ...........................17<br />

Michelle’s Law ............................20<br />

Federal and State Highlights ..............21<br />

State-by-State Highlights. .................26<br />

Reducing Tobacco’s Toll ...................32<br />

Donor Recognition. .......................33<br />

CAN Opener .............................36<br />

Special Thanks ...........................37<br />

2


The <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> Mission<br />

The <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> is the nationwide community-based voluntary health organization dedicated<br />

to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering<br />

from cancer through research, education, advocacy, and service.<br />

The ACS CAN Mission<br />

ACS CAN, the nonprofit, nonpartisan advocacy affiliate of the <strong>American</strong><br />

<strong>Cancer</strong> <strong>Society</strong>, supports evidence-based policy and legislative solutions designed<br />

to eliminate cancer as a major health problem. ACS CAN works to encourage<br />

elected officials and candidates to make cancer a top national priority. ACS CAN<br />

gives ordinary people extraordinary <strong>power</strong> to fight cancer with the training and<br />

tools they need to make their voices heard.<br />

3


DEDICATION<br />

Alan Mills<br />

Advocacy Accomplishments 2008 is dedicated to our friend and colleague Alan<br />

Mills, who lost his battle with cancer on February 20, 2008. All of us in advocacy<br />

stand on Alan’s shoulders, and, while his life was all too brief, his impact was<br />

truly immense.<br />

Alan’s career with the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> began in 1987 in the then-West<br />

Virginia Division. In 1990, he moved to Washington, D.C., where he was one<br />

of the founders of the <strong>Society</strong>’s National Government Relations Department.<br />

Later, he moved to the Great Lakes Division, where he served as director of<br />

Federal Government Relations. He and his team built a grassroots movement of<br />

dedicated people from all walks of life that has become an important force in<br />

Indiana and Michigan politics in recent years.<br />

Alan led by example, and in 2004 he received the prestigious Jerry Maldavir<br />

Award for Excellence in Advocacy, the highest advocacy honor given within ACS<br />

CAN and the <strong>Society</strong> to staff. He will be missed by many people but he will not<br />

be forgotten. He lives on through his beloved wife, Angie, and their children,<br />

Noah and Jenna, and through his work. His memory will motivate many others<br />

to fight every day with renewed energy and passion to eradicate cancer.<br />

4


<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong><br />

Leadership<br />

Van Velsor Wolf<br />

Chair of the Board<br />

Elizabeth T.H. Fontham,<br />

MPH, DrPH<br />

President<br />

John R. Seffrin, PhD<br />

Chief Executive Officer<br />

ACS CAN Leadership<br />

ACS CAN Board of Directors, 2007-2008 ACS CAN Board of Directors, 2008-2009<br />

Ray Bell<br />

Robert T. Brodell, MD<br />

Teri P. Cox, MBA<br />

Lewis E. Foxhall, MD<br />

Elmer Huerta, MD, MPH<br />

Robert R. Kugler, Esq.<br />

Mary Maryland, PhD<br />

Karen A. Moffitt, PhD<br />

Marion E. Morra, MA, ScD<br />

Gary M. Reedy, Secretary<br />

Christy A. Russell, MD<br />

Peter S. Sheldon, Esq.<br />

Gary Streit, Esq.<br />

Stephen L. Swanson<br />

Eric W. Taylor, MD<br />

Phylecia Wilson<br />

Robert E. Youle, Esq., Treasurer<br />

Kathleen M. Bond<br />

William H. Boykin, Jr., MD<br />

Deborah J. Cornwall<br />

Elizabeth T.H. Fontham, MPH, DrPH<br />

Lewis E. Foxhall, MD<br />

Laura J. Hilderley, RN, MS<br />

Robert R. Kugler, Esq., Treasurer<br />

Mary Maryland, PhD<br />

Karen A. Moffitt, PhD<br />

Gary M. Reedy, Secretary<br />

Christy A. Russell, MD<br />

Peter S. Sheldon, Esq.<br />

Gary Streit, Esq.<br />

Stephen L. Swanson<br />

Eric W. Taylor, MD<br />

Phylecia Wilson<br />

Van Velsor Wolf<br />

Laura J. Hilderley, RN, MS<br />

Chair<br />

Robert E. Youle, Esq.<br />

Chair<br />

John R. Seffrin, PhD<br />

Chief Executive Officer, ACS CAN<br />

5


Recognizing Excellence and Achievement:<br />

2008 ACS CAN Advocacy Awards<br />

The National Distinguished Advocacy Award*<br />

ACS CAN’s highest national advocacy award, presented to<br />

individuals who demonstrate outstanding leadership in the<br />

public policy arena<br />

Outstanding Ambassador Constituent<br />

Team Lead<br />

Presented to volunteers who demonstrate superlative abilities<br />

in the ambassador constituent team lead role<br />

Outstanding Government Relations<br />

Professional Award<br />

Presented to a <strong>Society</strong> or ACS CAN government relations<br />

professional for singular achievement in state advocacy<br />

The Honorable Barbara Mikulski<br />

United States Senate, Maryland<br />

The Honorable Rosa DeLauro<br />

United States House of Representatives, Connecticut<br />

The Honorable Jane Nelson<br />

Texas State Senate<br />

The Theodore C. Marrs Award*<br />

ACS CAN’s highest honor for volunteer advocacy, presented<br />

to individuals who consistently demonstrate excellence in<br />

public policy<br />

Gary Streit, Esq.<br />

Iowa<br />

Outstanding State Lead Ambassador<br />

Presented to a volunteer who demonstrates exemplary leadership<br />

in the state lead ambassador role<br />

Lori Bremner<br />

California<br />

Marty Crapnell<br />

Illinois<br />

Marilyn Lesher<br />

Kentucky<br />

Robianne Schultz<br />

Minnesota<br />

Outstanding Volunteer Team<br />

Presented to a group of volunteers that demonstrate strong<br />

cohesion and cooperation in fighting cancer through advocacy<br />

Ohio<br />

The Jerry Maldavir Award<br />

The highest advocacy honor for <strong>Society</strong> or ACS CAN advocacy<br />

staff, presented to the individual who best embodies the passion,<br />

dedication, and enthusiasm of the late Jerry Maldavir, a<br />

former <strong>Society</strong> staff lobbyist<br />

Angela T. Huber<br />

Ohio<br />

Russ Sciandra<br />

New York<br />

Outstanding Grassroots Professional Award<br />

Presented to a <strong>Society</strong> or ACS CAN grassroots professional<br />

for singular achievement in volunteer recruitment, education,<br />

and mobilization<br />

Sara Mannetter<br />

Minnesota<br />

Outstanding Government Relations<br />

Team Award<br />

Presented to a <strong>Society</strong> or ACS CAN team of state government<br />

relations professionals for singular achievement in state advocacy<br />

Texas<br />

*An ACS CAN volunteer workgroup selected the National Distinguished Advocacy Award and Theodore C. Marrs Award recipients.<br />

6


THE POWER<br />

of Advocacy<br />

Advocacy’s Role in the Fight Against <strong>Cancer</strong><br />

Conquering cancer is as much a matter of public policy as scientific discovery. Whether it’s increasing funding for cancer research<br />

and programs, enacting smoke-free laws and raising tobacco taxes, or paving the way for more people to access quality, affordable<br />

health care, government action is constantly required. That’s why the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> and its nonprofit, nonpartisan<br />

advocacy affiliate, the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> <strong>Cancer</strong> <strong>Action</strong> <strong>Network</strong> SM (ACS CAN), work in concert to ensure that elected<br />

officials across the country make cancer a top national priority.<br />

While the <strong>Society</strong> and ACS CAN utilize applied policy analysis, direct lobbying, grassroots action, media outreach, and litigation<br />

to accomplish advocacy goals, science remains paramount. Only evidence-based policy and legislative solutions are pursued.<br />

Together, the <strong>Society</strong> and ACS CAN support a community-based grassroots network of cancer survivors, caregivers, volunteers,<br />

staff, health care professionals, public health organizations, and other partners that provide the muscle to ensure that the cancer<br />

community’s voice is heard in the halls of government.<br />

7


Advocacy and ACS CAN<br />

In 2001, cancer advocacy took a major step forward with the creation of ACS CAN. ACS CAN is<br />

a movement uniting and em<strong>power</strong>ing cancer patients, survivors, caregivers, and their families by<br />

giving them the training and tools needed to make them truly heard. ACS CAN is the force behind<br />

legislative victories and policy successes that help save lives.<br />

The <strong>Society</strong> and ACS CAN are among the most respected sources for evidence-based cancer and health<br />

policy solutions for government officials, the media, and the public. ACS CAN is also a trusted source<br />

of information about candidate positions on cancer-related issues. During the 2008 election cycle, ACS<br />

CAN published voter guides to help citizens engage elected officials and advocate for an increased<br />

focus on cancer. The voter guides were compiled based on responses to questionnaires sent to the<br />

presidential candidates, 23 U.S. House campaigns, five U.S. Senate races, four gubernatorial contests,<br />

and 14 state legislative matchups. Questions covered cancer research and programs, access to care,<br />

prevention and early detection screenings, and tobacco control.<br />

The final responses, along with ACS CAN’s positions, were posted on www.acscan.org to help<br />

citizens learn about where their candidates stood on cancer issues. Thanks to the voter guides,<br />

ACS CAN advocates have a baseline for holding those in office accountable as new legislative<br />

sessions get under way.<br />

The Heart of the Movement<br />

As voters and constituents who care about cancer, <strong>Society</strong> and ACS CAN advocates actively engage<br />

their elected officials. They write letters and send email. They make calls and meet with legislators.<br />

They alert the media and rally for the cause. They speak out, knowing their voices are the ones that<br />

most influence local, state, and federal officials. Advocacy accomplishments at any level of government<br />

would not be possible without the muscle of a <strong>power</strong>ful grassroots movement.<br />

At the heart of ACS CAN’s movement is an enhanced volunteer structure. Working closely with<br />

Division staff partners, Ambassador Constituent Teams (ACT!) handle critical activities in each state<br />

that support advocacy campaigns.<br />

Each team member has a clearly defined role that contributes to an enhanced volunteer structure’s<br />

overall function. Fifty state lead ambassadors (SLAs) provide leadership for their states’ activities<br />

and serve as the main contact for their U.S. senators. In addition, there is a SLA representing the<br />

District of Columbia and another representing Native <strong>American</strong>s. Within each state, an ACT! Lead<br />

guides the efforts for each congressional district. Working together with their SLAs and Division<br />

staff partners, ACT! Leads recruit and support chairpersons who integrate advocacy and ACS CAN<br />

into Relay for Life ® , fundraising, media outreach, and mobilization. These positions mirror the most<br />

critical components of successful advocacy campaigns. Established in 2007, ACS CAN’s enhanced<br />

volunteer structure is energizing existing volunteers, nurturing a new generation of leaders, and<br />

inspiring others to join the ACS CAN movement.<br />

PRESIDENTIAL CANDIDATE<br />

VOTER GUIDE<br />

Where do the candidates stand on these important cancer research, prevention and treatment issues?<br />

ACCESS TO CARE<br />

What steps will you take to ensure that all <strong>American</strong>s have access to the full continuum of quality cancer care, including prevention and early detection through treatment and follow-up care?<br />

READ THE ANSWERS<br />

TOBACCO CONTROL<br />

As president, will you work with Congress to enact legislation (specifically, S. 625/H.R. 1108) to rein in the most egregious manufacturing and marketing practices of the tobacco industry,<br />

and will you substantially increase the federal tobacco tax to help improve public health, save lives, and protect children from a lifetime of smoking?<br />

READ THE ANSWERS<br />

CANCER RESEARCH<br />

In real dollars, federal funding for the National <strong>Cancer</strong> Institute and the Centers for Disease Control has been cut dramatically over the past five years. As president, will you reverse this<br />

trend and commit to a substantial increase in the budget for NCI cancer research and CDC cancer control programs during your administration?<br />

READ THE ANSWERS<br />

PREVENTION<br />

As president, will you pledge to support full funding for the National Breast and Cervical <strong>Cancer</strong> Early Detection Program (NBCCEDP) and related treatment programs, and support H.R.<br />

1738, the proposed Colorectal <strong>Cancer</strong> Early Detection Prevention and Treatment Program (CCEDPTP), both of which utilize screening tools that are known conclusively to save lives and<br />

ensure that more <strong>American</strong>s, especially the medically underserved, have greater access to cancer prevention, early detection and treatment?<br />

READ THE ANSWERS<br />

8


“Advocacy offers me an opportunity to<br />

fight back against a disease where I have<br />

otherwise felt <strong>power</strong>less.”<br />

– Aimee Belgard, State Lead Ambassador, New Jersey<br />

Knowledge Is Power<br />

Em<strong>power</strong>ment begins with skills, tools, and information. Trainings and tactical support provide<br />

the foundation on which the ACS CAN movement stands. In 2008, ACS CAN launched a virtual<br />

community – www.acscan.org/volunteerstructure – where volunteers can find information, access<br />

tools, and share best practices. Volunteers can also learn more about the issues through the site’s<br />

online training modules on ACS CAN policy priorities. In addition, a portable, interactive volunteer<br />

handbook was developed for state and district ACT! leads.<br />

In May, ACS CAN hosted what has become a premier training forum, the State Lead Ambassador<br />

Summit in Cleveland, Ohio. Sessions covered everything from health care reform to the latest cancer<br />

science. Volunteers and staff partners participated in workshops to learn how to better prepare for<br />

legislative meetings, raise funds for ACS CAN, and recruit and retain volunteers. In a first for the<br />

summit, state lead ambassadors joined staff in facilitating more than half of the sessions.<br />

New Communication Tools<br />

As <strong>American</strong>s have expanded the ways in which they communicate, ACS CAN has launched new<br />

tools to engage volunteers. ACS CAN now has active pages on social networking sites such as<br />

Facebook, MySpace, and YouTube. Volunteers use these sites not only to learn about legislative<br />

issues and take action, but also to recruit volunteers and share their cancer experience with friends<br />

and family.<br />

ACS CAN is also meeting the needs of the growing number of people text messaging with its<br />

new mobile action network. By texting “volunteer” to 73585, a person can begin receiving<br />

action alerts and legislative updates via cell phone. The ability to text is a successful tool for<br />

recruiting volunteers who may not be at a computer when they first learn about ACS CAN.<br />

Finally, ACS CAN significantly enhanced its Web site, acscan.org, to provide more information<br />

about its activities and legislative campaigns.<br />

Partnering for Success<br />

Recognizing that partnerships and collaborations are critical to ensuring success, ACS CAN engages<br />

in a variety of outreach activities that promote and leverage the organization and its mission. ACS<br />

CAN works closely with conventional allies, including other members of the cancer community,<br />

disease-specific patient-centered organizations, and public health groups. More recently, ACS CAN<br />

has broadened its scope, seeking common ground with less traditional partners, including policy<br />

institutes, professional associations, the business community, unions, health insurers, pharmaceutical<br />

companies, and others in the health care industry. As a further evolution, a Corporate Membership<br />

Program was established in 2008 to engage key corporate partners on a regular and substantive<br />

basis and build and sustain mutually beneficial relationships.<br />

Advocacy in the Courts<br />

Court cases across the nation determine a wide range of issues affecting the <strong>Society</strong> and ACS CAN’s<br />

shared mission, from the employment rights of cancer survivors to access to lifesaving therapies and<br />

tobacco control. In 2008, the <strong>Society</strong> and ACS CAN launched the Judicial Advocacy Initiative (JAI) to<br />

monitor and advocate in disputes that impact our goals. Partnering with private law firms that have<br />

donated services, JAI seeks to uphold the rights of cancer survivors to work, and ensure that they<br />

have access to medical care.<br />

The Power of the ACS CAN Movement<br />

In a world of competing policy concerns, it doesn’t matter how noble an individual cause might be;<br />

crucial issues are often overlooked in the face of pressure from a variety of active constituencies.<br />

To put cancer at the top of the nation’s agenda, only a movement that is organized and relentless<br />

in prompting lawmakers to act will succeed. ACS CAN is that movement, working to prove if one<br />

<strong>American</strong> can fight cancer, a nation can rise up to defeat it.<br />

9


The ACS CAN National<br />

Leadership Summit<br />

and Lobby Day<br />

“The feeling I had all day was that we are making a difference<br />

and we have a very loud voice. It felt great.”<br />

– Sandy Slocum, State Lead Ambassador, Minnesota<br />

The 2008 ACS CAN National Leadership Summit and Lobby Day marked the second year<br />

ACS CAN convened its enhanced volunteer structure for intensive trainings and congressional<br />

lobbying visits. More than 600 ACS CAN ambassadors, district leads, and staff partners<br />

from all 50 states, plus the District of Columbia, participated.<br />

The 2½-day National Leadership Summit consisted of briefings and training sessions<br />

that served as bookends to Lobby Day. Highlights included <strong>Society</strong> President Dr. Elmer<br />

E. Huerta’s keynote speech; remarks by Time magazine’s chief political correspondent,<br />

Karen Tumulty; and workshops to help volunteers and staff better pursue federal and<br />

state advocacy goals.<br />

On Lobby Day itself, a total of 434 congressional meetings were held, including visits to all<br />

100 U.S. Senate offices. Advocates urged members to give the Food and Drug Administration<br />

broad authority to regulate the manufacturing and marketing of tobacco products, and a strong<br />

push was also made for increased funding for cancer research and programs. Support for new<br />

legislation that would create a dedicated funding source to finance cancer research, prevention,<br />

early detection, and treatment was sought as well.<br />

Special guests at Lobby Day included five of the nation’s most successful men’s college<br />

basketball coaches who take part in Coaches vs. <strong>Cancer</strong> ® , an effort that unites the <strong>Society</strong><br />

and the National Association of Basketball Coaches in the fight against cancer. The coaches<br />

joined <strong>Society</strong> and ACS CAN CEO John R. Seffrin, PhD, and several members of Congress<br />

at a rally calling on Congress to make cancer a top national priority. Reporters from the<br />

Associated Press, Roll Call, and several local television affiliates reported on the event. The<br />

coaches later joined ACS CAN volunteers and staff for legislative meetings.<br />

10


Advocacy and Relay For Life ®<br />

The partnership between Relay For Life ® , the <strong>Society</strong>’s signature event, and advocacy continues to thrive. With each passing year, more Relays integrate advocacy into their events and<br />

more Relay volunteers embrace advocacy as another <strong>power</strong>ful means of fighting back against cancer. With more than 3.5 million participants nationwide, Relayers are the vanguard of<br />

the ACS CAN movement.<br />

• More than 30,000 electronic and handwritten Picture A Cure TM messages, in which individuals share their personal cancer stories and photos with lawmakers, were collected at<br />

Relay For Life events nationwide. The testimonials, which were delivered to members of Congress in their districts and in Washington, D.C. during ACS CAN’s 2008 National Lobby<br />

Day, also included an appeal to lawmakers to make health care reform a national priority.<br />

• Relay For Life volunteers and participants sponsored 30,000 Fight Back Express bus miles, raising a total of $300,000 for ACS CAN and the Fight Back Express. More than 15,000<br />

Relay For Life participants became members of ACS CAN.<br />

• National Relay For Life Advisory Team volunteers joined the ACS CAN State Lead Ambassador Summit in May 2008 to devise new strategies and approaches that will further their<br />

shared mission. They also took part in the Fight Back Express ribbon-cutting and launch in Cleveland, Ohio.<br />

11


CANCER<br />

Disparities<br />

Despite notable advances in cancer prevention, screening, and treatment, a number of the uninsured, minorities,<br />

and other medically underserved populations are still not benefiting from them. The nexus between disparities<br />

and advocacy, the two pillars supporting the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong>’s leadership roles, is strong. The <strong>Society</strong><br />

and ACS CAN strive to help create, change, and influence public policies that significantly reduce such disparities<br />

and promote outreach to diverse communities.<br />

Ongoing <strong>Society</strong> and ACS CAN legislative efforts include creating and funding breast, cervical, and colon<br />

cancer early detection and treatment programs for low-income, uninsured, and underinsured women and men.<br />

The <strong>Society</strong>-ACS CAN partnership is also fighting to expand Medicaid coverage for smoking cessation services,<br />

as well as increased federal support for the National Center on Minority Health and Health Disparities at the<br />

National Institutes of Health. Finally, ACS CAN continues to urge the federal government to place trained<br />

“patient navigators” in health facilities to assess individual and community needs and guide patients through<br />

our fragmented health care system.<br />

The <strong>Society</strong> and ACS CAN’s Access to Care initiative (see p. 17) figures prominently. Minorities are more likely to<br />

be inadequately insured or uninsured. Health coverage for the nation’s poorest citizens was also top of mind as<br />

the <strong>Society</strong> introduced a policy framework from which to assess Medicaid reform proposals. ACS CAN convened<br />

an expert panel to discuss issues specific to disparities in cancer care, part of ongoing efforts to educate volunteers<br />

and staff. Interactive trainings also serve this purpose and highlight how ACS CAN’s grassroots movement can<br />

be deployed most effectively.<br />

The Intercultural <strong>Cancer</strong> Council, the Congressional Black Caucus Foundation, and the National Council of La<br />

Raza are just a few of the many partners that collaborate with the <strong>Society</strong> and ACS CAN on health policy, legislative<br />

campaigns, and grassroots training. An especially close alliance has developed in recent years with the Phi Beta<br />

Sigma Fraternity, Inc., and its Sigmas Waging War Against <strong>Cancer</strong> initiative. In 2008, the <strong>Society</strong> and ACS CAN<br />

entered into new partnerships with the Zeta Phi Beta Sorority, Inc., and Alpha Phi Alpha Fraternity, Inc.<br />

12


THE ACS CAN<br />

Fight Back Express<br />

A Vehicle for Change<br />

On May 4, 2008, in Cleveland, Ohio, ACS CAN launched the largest grassroots mobilization campaign ever waged on the<br />

issue of cancer as the ACS CAN Fight Back Express bus began a six-month journey through the continental United States.<br />

The Fight Back Express was welcomed in communities large and small to educate, inspire, and unite concerned citizens<br />

across the country around a core mission to make cancer a top national priority for legislators and candidates.<br />

At 512 events in 480 communities, cancer patients, survivors, caregivers, and their families shared their experiences and<br />

voiced the need for the country to make dramatic changes in its approach to cancer. Citizens joined elected officials in<br />

adding their signatures to the sides, front, back, and top of the bus, even signing the vehicle’s lights and wheel wells. The<br />

Fight Back Express transformed into a “rolling petition” and a true vehicle for change.<br />

Each stop on the bus tour was an opportunity to educate the public, lawmakers, candidates for elective office, and the<br />

media about the importance of the government’s role as a critical partner in defeating cancer. Bus activities raised the<br />

profile of ACS CAN’s state and federal priorities for citizens and elected officials alike: access to affordable, quality health<br />

care; increased funding for prevention and early detection services; increased funding for cancer research; and stronger<br />

tobacco control policies.<br />

“I’ve signed many things as a<br />

governor, but I’ve never signed<br />

a bus!”<br />

– The Honorable John Lynch,<br />

Governor of New Hampshire<br />

13


A Vehicle for <strong>Action</strong><br />

The Fight Back Express served as a mobile action center. Bus events not only recruited new ACS<br />

CAN members, they also featured electronic Picture A Cure forms, featuring an individual’s photos<br />

and cancer story. Completed forms were sent to elected officials to emphasize their role in the<br />

fight against cancer.<br />

Event attendees were invited to email their members of Congress or to respond to state and local action<br />

alerts. There was also an opportunity for the public to use their mobile phones to text “Fight Back” to<br />

ACS CAN to sign up for mobile alerts on critical federal and state priorities. Finally, in addition to signing<br />

the bus, visitors put their names on ACS CAN’s petition to the presidential candidates, calling for access<br />

to quality health care for all <strong>American</strong>s.<br />

The bus provided valuable exposure for ACS CAN. Each day people went to great lengths to<br />

connect with the bus, literally stopping traffic on several occasions. Speaking of traffic, web<br />

traffic on www.acscan.org was up 119 percent as people followed the bus through pictures<br />

and the bus blog. And the media response was extraordinary, with stories running in 130 media<br />

markets, reaching a potential audience of more than 65 million people. <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong><br />

and ACS CAN staff and volunteers did yeoman’s work – planning bus stops, engaging elected<br />

officials, sponsoring miles, alerting the media, taking photos, speaking at events, blogging, and,<br />

of course, signing the bus itself.<br />

14


Going the Distance<br />

Fight Back Express Highlights<br />

• The Fight Back Express traveled more than 44,000 miles, visiting all 48 continental<br />

United States and Washington, D.C.<br />

From coast to coast, the bus engaged, energized, and em<strong>power</strong>ed tens of thousands of<br />

volunteers and others who care about cancer. The Fight Back Express fulfilled its promise to<br />

support the <strong>Society</strong> and ACS CAN’s shared mission by mobilizing the public to demand that<br />

lawmakers make the fight against cancer a national priority.<br />

• More than 100,000 people signed the bus, which was wrapped six times.<br />

Signatures were preserved on more than 630 panels.<br />

• A total of 512 bus events were held in 480 communities, including 46 state capitals.<br />

• More than 600 federal, state, and local legislators visited the bus.<br />

• Relay For Life ® volunteers and participants sponsored 30,000 bus miles, raising<br />

a total of $300,000 for ACS CAN and the Fight Back Express.<br />

• The Pharmaceutical Researchers and Manufacturers of America (PhRMA) served as<br />

a national bus sponsor. AstraZeneca, EMD Serono, Genentech, and Pfizer<br />

underwrote bus travel in five <strong>Society</strong> Divisions.<br />

• ACS CAN’s Access to Care petition gathered more than 70,000 signatures.<br />

• More than 3,000 personal cancer stories were sent to elected officials through<br />

the electronic Picture A Cure TM program.<br />

• Web traffic at acscan.org increased 119 percent with more than 63,000<br />

bus-related hits.<br />

• The Fight Back Express made the news in 130 media markets, generated<br />

countless radio and print stories, and saw more than 320 television reports air,<br />

reaching a potential audience of more than 65 million <strong>American</strong>s.<br />

15


CANCER<br />

Promise<br />

Introduced in 2006 and 2007, respectively, the<br />

ACS CAN Congressional <strong>Cancer</strong> Promise and<br />

<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> State <strong>Cancer</strong> Promise<br />

provide a solid foundation for advocacy<br />

achievements. Both Promises serve as rallying<br />

points, specifically urging state and federal<br />

legislators to make health system reform a<br />

priority and to elevate and enhance prevention,<br />

early detection, quality of life, and survivorship.<br />

In addition, the Congressional <strong>Cancer</strong> Promise<br />

calls for increased federal research funding.<br />

At the national and state level, the <strong>Cancer</strong><br />

Promise serves as a “conversation starter.”<br />

<strong>Cancer</strong> advocates use the Promises to educate<br />

lawmakers and gain their commitment in<br />

supporting Promise goals. Accountability comes<br />

into play as <strong>Society</strong> and ACS CAN volunteers<br />

put the force of their grassroots movement<br />

behind efforts to ensure elected officials fulfill<br />

their commitment.<br />

16


“Harry and Louise”<br />

ACCESS<br />

to Care<br />

While tremendous progress is being made in the fight against cancer, winning that fight depends on improving access to quality health care. Nearly<br />

46 million people in America are uninsured. Another 25 million people have insurance that does not provide the coverage they need to protect them<br />

from major financial burden upon a serious health diagnosis.<br />

Meanwhile, although more than 60 percent of cancer deaths can be prevented, the current health care system focuses on treating people after they<br />

get sick, rather than on keeping them well. To improve health outcomes and begin to control costs, more emphasis must be placed on wellness and<br />

disease prevention.<br />

In 2006, the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong>’s National Board of Directors formally recognized that its goals could not be realized without fundamental<br />

change in the health care system, and it articulated a vision for improving access to care. To make that vision a reality, the <strong>Society</strong> and ACS CAN<br />

launched a nationwide public education initiative that leverages a variety of enterprise-wide resources. By tackling these issues, there is enormous<br />

potential to improve access to quality health care for all <strong>American</strong>s – bringing us closer to a future where cancer is no longer a major health issue.<br />

Raising Awareness<br />

The <strong>Society</strong> has a long history of educating the public on important cancer issues. Raising public awareness about the lack of access to affordable, quality<br />

health care follows in this tradition. The <strong>Society</strong> and ACS CAN are elevating the debate by framing access to care issues through the “cancer lens,”<br />

presenting a clear picture of how pervasive and pernicious the lack of access to health care can be. Key stakeholders from the government, private, and<br />

nonprofit sectors alike have come to appreciate how the cancer lens captures and frames the issues in an easily understood manner.<br />

In 2008, the <strong>Society</strong> and ACS CAN looked to the previous year’s successes and built upon them. The ACS CAN Fight Back Express promoted the access<br />

message to the media, elected officials, and the public during its cross country journey (see p. 13). The <strong>Society</strong> also addressed access to care issues through the<br />

17


cancer lens in testimony before the U.S. House of Representatives Ways and Means Health Subcommittee<br />

on treatment barriers and financial burdens inadequately insured patients and survivors face.<br />

In promoting the issue, the <strong>Society</strong> and ACS CAN strive to be “honest brokers.” Evidence-based<br />

policy solutions are what truly matter. <strong>Society</strong> and ACS CAN CEO John Seffrin, PhD, argued that<br />

partisan politics must be set aside to accomplish true reform in an op-ed that appeared in the<br />

Atlanta Journal-Constitution, Boston Globe (signed with Don Gudaitis, CEO of the <strong>Society</strong>’s New<br />

England Division), and on the Minneapolis Star Tribune Web site.<br />

Finding Common Ground<br />

While the <strong>Society</strong> and ACS CAN’s public awareness campaign kept the concerns of the cancer<br />

community at the forefront, it also demonstrated a larger commitment to building consensus.<br />

New collaborations led to a joint ACS CAN-Families USA media briefing on state insurance protections<br />

and ACS CAN sponsorship of an oncology conference with Avalere Health, a health care strategy<br />

and policy group. ACS CAN also co-sponsored a congressional briefing on health insurance basics<br />

with the BlueCross BlueShield Association and the Alliance for Health Reform, a nonpartisan nonprofit<br />

dedicated to quality health coverage. Perhaps most significantly, ACS CAN was the sole<br />

patient advocacy group to participate in the Health Reform Dialogue, an umbrella group of 20<br />

major health care community stakeholders seeking common ground.<br />

Following the <strong>Society</strong>’s highly regarded 2007 Access to Care advertising campaign, ACS CAN<br />

joined with a small group of organizations representing a range of approaches to reform in a<br />

national television and Internet campaign aired during the Democratic and Republican national<br />

conventions. The spots reintroduced “Harry and Louise,” infamous characters first seen in 1994<br />

working to defeat health care reform legislation. But in 2008 they urged the next president and<br />

Congress to make the issue a top priority. The Associated Press, The Washington Post, ABC, CBS,<br />

NBC, and several Capitol Hill publications reported on the launch.<br />

In early 2009, ACS CAN and several nontraditional partners with a common interest in repairing<br />

the system launched a new national advertising campaign. The ads make the case that fixing<br />

health care is critical to fixing the economy and emphasize the tremendous cost to society in doing<br />

nothing. The campaign is another opportunity to urge the new president and Congress to address<br />

health care reform right away.<br />

Policy Solutions<br />

The <strong>Society</strong>’s 2007 statement of principles and supporting evaluative tools defined its view of what<br />

constituted meaningful insurance reform. The <strong>Society</strong>’s Divisions drew upon them in Division-wide task<br />

forces and in states actively considering reform. But addressing access requires a look at the full cancer<br />

continuum. In 2008 new principles addressing prevention and cost issues pushed beyond the notion that<br />

access to care is solely a function of insurance coverage.<br />

The current health care delivery system is strongly focused on treating conditions such as cancer,<br />

but more emphasis on wellness and disease prevention is needed to improve outcomes. A strong<br />

and sustained societal investment in prevention is needed at the individual, community, and system<br />

levels to change the nation’s mindset and reduce cancer incidence and mortality. To build a stronger<br />

case, a volunteer-led ACS CAN policy review group (PRG) developed principles centered on how to<br />

transform the role of prevention in the health system.<br />

A greater focus on prevention ties directly in to managing skyrocketing health care costs. Simply<br />

cutting or eliminating programs or coverage can actually exacerbate the situation. A statement<br />

of principles on the role and consideration of health care costs, also developed by a volunteer-led<br />

“The days, months, and years that<br />

screenings are not made available<br />

are the years that are stolen from<br />

someone’s life.”<br />

– George Blough, Ambassador Constituent<br />

Team Lead, West Virginia<br />

18


PRG, provides a framework to consider the problem differently. The principles affirm the <strong>Society</strong><br />

and ACS CAN’s belief that clinical and economic evidence can be used to both improve the quality<br />

of health care and reduce costs.<br />

Taken together, the new principles lay a foundation for improving health care delivery and provide<br />

a basis for using health care resources more equitably. In this way, access to care is linked to efforts<br />

to reduce health disparities. Whether stemming from race or socioeconomic status, disparities in<br />

health care are numerous. Closing these additional gaps is critical to progress (see p. 12).<br />

A Helping Hand<br />

The Health Insurance Assistance Service (HIAS) offers cancer patients who call the <strong>Society</strong>’s National<br />

<strong>Cancer</strong> Information Center a free resource that connects them with health insurance specialists.<br />

HIAS specialists handle inquiries about health insurance, coverage dynamics, and state programs – all<br />

specific to the caller’s needs.<br />

Since it began in 2005, HIAS has received more than 20,000 calls from the 36 states it serves and the<br />

District of Columbia. Information from the calls is captured in an internal database that helps identify<br />

patients whose experiences illustrate problems in the current insurance system and notes callers who<br />

consent to talk to the media so their stories reach a wider audience. Callers continue to be featured<br />

in the national media, including The New York Times, The Wall Street Journal, ABC News online,<br />

CNN online, The Washington Post, and National Public Radio’s Morning Edition.<br />

One caller of note was Karen Dove, a stage III ovarian cancer patient who struggled for two years<br />

to obtain access to care, only to see her family financially devastated as a result of her treatment.<br />

Six months after she passed away, her story was told in “Critical Condition,” a documentary that<br />

debuted on PBS stations nationwide in September 2008.<br />

Taking <strong>Action</strong><br />

For ACS CAN advocates, taking action is rooted in knowledge of the issues, personal experience<br />

with cancer, and the know-how to make their voices heard. Volunteers and staff became well<br />

versed on access issues at in-person and online training throughout the year. They paired that<br />

knowledge with skills and tools acquired through ACS CAN, and then took the message directly<br />

to legislators in Washington, D.C., on Lobby Day (see p. 10).<br />

Access to care was a constant theme throughout the ACS CAN Fight Back Express’ six-month<br />

journey, as well as the election season (see p. 13). Many voters were able to look elected officials<br />

and candidates in the eye and ask them their views at one of more than 500 local events. ACS CAN<br />

voter guides offered citizens in 12 states the chance to determine where candidates for federal<br />

and state office stood. A presidential voter guide gave every <strong>American</strong> an opportunity to learn<br />

about candidate views at the top of the ticket.<br />

Additional efforts included enhancements to the Access to Care page on acscan.org, which educates<br />

external audiences and encourages them to take action. An online petition to the presidential<br />

candidates urging them to tackle health care reform was heavily promoted throughout the Fight<br />

Back Express tour, and collected more than 70,000 signatures.<br />

Ongoing Efforts<br />

Ultimately, it will take systemwide reform to overcome many barriers to care. In the meantime,<br />

incremental steps are being taken. <strong>Society</strong> Divisions are actively engaged as states continue to<br />

move on their own to expand state health insurance programs, to create or bolster screening and<br />

treatment options for uninsured patients, and to pass new legislation or defend existing laws that<br />

guarantee lifesaving screenings and care.<br />

At the national level, ACS CAN shares its expertise with health reform proponents in Congress<br />

and advocates for interim steps that expand access. Achievements include a new law that extends<br />

eligibility for the “Welcome to Medicare” checkup for new beneficiaries from six months to a year<br />

and waives copays and deductibles for the visit. And ACS CAN and college students across the<br />

country scored a major victory with the passage of Michelle’s Law (see sidebar, p. 19).<br />

Active campaigns continue on other fronts, such as increasing funding for the National Breast and<br />

Cervical <strong>Cancer</strong> Early Detection Program (NBCCEDP), which screens low-income, underinsured,<br />

19


Michelle’s Law<br />

Signed into law on October 9, 2008, Michelle’s Law requires insurance companies to cover college students on medical<br />

leave for up to a year. The law enables ill students to focus on their recovery and not whether their insurance covers it.<br />

Michelle’s Law is named for Michelle Morse, a New Hampshire college student diagnosed with colon cancer. Her<br />

family’s health insurance would not cover her unless she was a full-time student, forcing her to take a full class<br />

schedule while undergoing chemotherapy.<br />

After Michelle passed away, her mother, <strong>Society</strong> volunteer Ann Marie Morse, decided that no other student should<br />

face the same challenge. She helped pass Michelle’s Law in her state and was a leader in seeing a federal version<br />

enacted. ACS CAN and several thousand college students and volunteers joined Michelle’s family in the fight.<br />

• ACS CAN worked with Colleges Against <strong>Cancer</strong> SM (CAC) to host student health issue forums and to lobby<br />

college presidents to write letters in support of the legislation.<br />

• In the summer of 2008, advocates were prompted to text “Michelle” to 73585 on their cell phones.<br />

Participants received follow-up information, bill status updates and frequent calls to action. Subscribers<br />

to the mobile list were the first to know about the law’s final passage.<br />

and uninsured women and offers them a gateway to treatment (see p. 24). The drive to<br />

establish a national colon cancer screening and treatment initiative modeled after NBCCEDP<br />

is gaining momentum. Substantial funding for the National Center on Minority Health<br />

and Health Disparities at the National Institutes of Health remains a priority.<br />

Moving Forward<br />

State-level activities are sure to continue in earnest and increase in volume. Furthermore,<br />

with the election of a new president and Congress, 2009 presents perhaps the best<br />

opportunity in decades to repair a broken health care system. The potential to save lives<br />

and reduce suffering through system-wide change is tremendous. As a result of the<br />

strategic and timely Access to Care initiative, the <strong>Society</strong> and ACS CAN have emerged as<br />

visible leaders in a unique position to work across the spectrum of health care interests.<br />

• In response to ACS CAN action alerts, thousands of students called and emailed their U.S. representatives<br />

and senators and joined the fight through ACS CAN’s “Michelle’s Law Cause” on Facebook. ACS CAN also<br />

sent an action alert to volunteers in states with targeted senators in advance of the Senate vote.<br />

• CAC chapters distributed and collected more than 5,000 petitions and delivered them to lawmakers during<br />

congressional recesses and on ACS CAN’s National Lobby Day.<br />

• To build support, ACS CAN partnered with a diverse group of organizations that included the cancer<br />

community, health and patient advocacy groups, health professionals, insurers, and education associations.<br />

• College newspapers across the country reported on the passage of Michelle’s Law and quoted<br />

ACS CAN spokespersons.<br />

As in all of our advocacy work, evidence-based principles and evaluative tools determine<br />

whether a legislative proposal meets or falls short of the <strong>Society</strong> and ACS CAN’s standards,<br />

and whether a bill is endorsed or opposed. As always, the <strong>Society</strong> and ACS CAN will be<br />

scrupulously nonpartisan and never endorse candidates for office, political parties, or their<br />

health plans and platforms. This approach, however, is not tantamount to passivity. Moving<br />

forward, the <strong>Society</strong> and ACS CAN will lead the way, achieve results, and make a major<br />

contribution by emphasizing the importance of quality, evidence-based care that prevents<br />

cancer, detects and treats cancer effectively, and enhances quality of life.<br />

20


Federal and State<br />

HIGHLIGHTS<br />

Advocacy’s contribution is underscored by the fact that, along with the elimination of disparities, it serves as a pillar supporting the<br />

<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong>’s nationwide leadership roles. The <strong>Society</strong> has identified the roles as areas where it can have the most<br />

impact: supporting high-impact research; preventing cancer and detecting it in its earliest stages; fostering better decision-making<br />

through information; and improving quality of life for cancer patients, caregivers and survivors. Advocacy efforts, including those<br />

funded through <strong>Society</strong> grants to ACS CAN, are targeted within these roles to achieve maximum results.<br />

Research<br />

• At the urging of ACS CAN and its partners, Congress provided the National Institutes of Health (NIH) with $150 million in<br />

supplemental funding for the 2008 fiscal year. With passage in the Senate uncertain, ACS CAN volunteers participated in a<br />

National Day of <strong>Action</strong>, sending email and making phone calls to 15 key senators asking for their support. Additional grassroots<br />

activities included Fight Back Express bus events in several of the senators’ home states, and circulating petitions at bus and<br />

Relay For Life ® events. Of the 15 targeted senators, 13 voted for the bill.<br />

• Congressional appropriators proposed $1.1 billion in new funding for NIH for the 2009 fiscal year, a nearly four percent<br />

increase and the largest jump in six years. More than 350,000 volunteers were invited to participate in a second National Day<br />

of <strong>Action</strong> around the measure. Although the 2009 spending bill was not completed before the 110th Congress adjourned,<br />

ACS CAN resumed its push for the allocation when the new Congress convened.<br />

21


• ACS CAN volunteers nationwide held a record number of watch parties during the president’s<br />

State of the Union address in January 2008. These gatherings shined a spotlight on the need<br />

for sustained increases at the NIH, the National <strong>Cancer</strong> Institute (NCI), the Centers for Disease<br />

Control and Prevention (CDC), the National Center on Minority Health and Health Disparities,<br />

and the Health Resources and Services Administration (HRSA).<br />

• ACS CAN continued to be the driving force behind One Voice Against <strong>Cancer</strong> (OVAC), a coalition<br />

of cancer-related advocacy groups supporting funding for NIH, NCI, and the CDC.<br />

• Legislation to create a National <strong>Cancer</strong> Fund, based on an idea conceived by ACS CAN and<br />

OVAC, was introduced in the U.S. House of Representatives. The fund would act as a dedicated<br />

resource for cancer research, prevention, early detection, and treatment.<br />

• ACS CAN briefed national health policy reporters on polling showing overwhelming public<br />

support for the National <strong>Cancer</strong> Fund. Stories ran in Politico, Congressional Quarterly, and<br />

Oncology Times, as well as in Media General news service outlets.<br />

Prevention and Early Detection<br />

• Congress overrode a presidential veto to enact legislation extending the availability of the<br />

“Welcome to Medicare” physical from six months to one year, and to waive copays and<br />

deductibles for the visit. The law also allows the U.S. Secretary of Health and Human Services<br />

to approve new preventive services in Medicare without congressional authorization.<br />

• For the first time, HRSA awarded almost $2.4 million in Patient Navigator Program grants<br />

nationwide to eligible organizations. ACS CAN is a longtime champion of the program, which<br />

will place trained “navigators” in health facilities to assess patient and community needs, and<br />

guide patients through the health care system.<br />

• ACS CAN persuaded Medicare to add prevention measures to its physician quality reporting<br />

program, which will improve access to colorectal and breast cancer screenings.<br />

• Through their ongoing partnership with the <strong>American</strong> Heart Association and <strong>American</strong> Diabetes<br />

Association, the <strong>Society</strong> and ACS CAN promoted quality health and physical education in<br />

schools as effective disease prevention strategies.<br />

Breast<br />

• ACS CAN continued its campaign to increase funding for the National Breast and Cervical<br />

<strong>Cancer</strong> Early Detection Program (NBCCEDP) (see p. 25).<br />

• Illinois became the first and only state to fully cover all women eligible for the NBCCEDP.<br />

• Hawaii and South Carolina provided state matching funds for the NBCCEDP for the first time.<br />

• Twenty states increased the state portion of the state-federal funding match for breast and<br />

cervical cancer screening programs.<br />

“We have to speak up at every<br />

step in the process and remind<br />

lawmakers that cancer matters<br />

to their constituents.”<br />

– Patty Avery, State Lead Ambassador, Indiana<br />

22


Colon<br />

• ACS CAN built momentum for the Colorectal <strong>Cancer</strong> Prevention, Early Detection, and Treatment<br />

Act (HR 1738), securing 161 congressional co-sponsors, attracting support from 30 partner<br />

organizations, and winning passage of a supportive resolution in the U.S. House. The bill would<br />

create a national community-based program for colorectal cancer screening and treatment,<br />

based on lessons learned from the breast and cervical cancer program.<br />

• ACS CAN’s “Pain in the Butt” ad urging support for HR 1738 ran in Capitol Hill publications.<br />

Congressional staffers surveyed as part of a study on advertising effectiveness praised the ad for<br />

its edgy and eye-catching message.<br />

• ACS CAN fought to maintain inclusion of $25 million in the U.S. Senate’s health appropriations<br />

bill for a CDC colorectal cancer screening pilot for uninsured adults. These funds will continue<br />

to prepare the CDC for passage of a national program providing colorectal cancer screening<br />

and treatment.<br />

• Four states – Colorado, Kentucky, Maine, and Pennsylvania – passed laws requiring insurers to<br />

cover colorectal screenings. Twenty-six states plus the District of Columbia now have such laws.<br />

• A growing number of states<br />

have joined Colorado, Maryland,<br />

Delaware, and New York in<br />

enacting comprehensive<br />

statewide colorectal screening and<br />

treatment for uninsured adults. In<br />

2008, Kentucky and Maine passed<br />

legislation to establish similar<br />

programs, although funding was<br />

not allocated.<br />

• ACS CAN provided Medicare<br />

officials and state insurance<br />

commissioners with information<br />

about the <strong>Society</strong>’s updated<br />

colorectal cancer screening guidelines<br />

and urged both groups to<br />

cover newly recommended tests.<br />

• In May and June, ACS CAN<br />

volunteers sent Mother’s Day and<br />

Father’s Day e-cards to family and<br />

friends, urging them to join the<br />

fight to increase access to colon<br />

cancer screenings.<br />

AS A MATTER OF FACT,<br />

WE ARE GOING TO BE A<br />

PA I N<br />

IN THE<br />

BUTT<br />

ABOUT THIS.<br />

COLON CANCER IS THE SECOND LEADING CAUSE OF CANCER DEATHS. THIS COULD BE EASILY<br />

AVOIDED WITH ROUTINE SCREENINGS. If everyone over 50 was screened, we would reduce deaths by 50<br />

percent or more and significantly reduce the $8 billion spent annually in treatment costs. Now there’s a bill that<br />

can save lives by increasing access to screenings for uninsured <strong>American</strong>s. Congress, it’s time to act. Support<br />

HR 1738 – Colorectal <strong>Cancer</strong> Prevention, Early Detection and Treatment Act.<br />

Pass HR 1738. SAVE LIVES.<br />

acscan.org<br />

Lung <strong>Cancer</strong><br />

• ACS CAN worked to pass legislation that would grant the Food and Drug Administration the<br />

authority to regulate tobacco products and how they are marketed to children. (see p. 24).<br />

• ACS CAN, <strong>Society</strong> Divisions, and their public health partners continued state and local efforts<br />

to reduce tobacco’s deadly toll through smoke-free laws, higher tobacco taxes, and strong<br />

tobacco cessation, prevention, and control policies (see p. 32).<br />

• ACS CAN continued to advocate for an increase in the federal tobacco tax, bringing the tax to<br />

more than $1, to pay for an expanded State Children’s Health Insurance Program, setting the<br />

stage for passage in the next Congress.<br />

• The <strong>Society</strong> and other health partners filed a “friend of the court” brief in Altria v. Good, a<br />

case before the U.S. Supreme Court. The Supreme Court ruled in favor of public health by<br />

allowing lawsuits filed in state courts against tobacco companies for deceptive marketing<br />

practices associated with light cigarettes to proceed.<br />

• The South Carolina State Supreme Court upheld a local smoke-free ordinance against a legal<br />

challenge. The <strong>Society</strong> and its partners filed a “friend of the court” brief on behalf of the<br />

community seeking to implement its smoke-free law.<br />

• With input from ACS CAN, the Federal Trade Commission rescinded its 40-year-old policy on<br />

labeling of supposed “reduced-risk” cigarettes, concluding that the nicotine and tar yields on<br />

tobacco product labels are misleading, thereby reducing the industry’s ability to deceive current<br />

smokers and addict youth.<br />

• The <strong>Society</strong> and other health partners continued their role as “intervenors” in the U.S.<br />

Department of Justice’s case against the tobacco industry for defrauding the <strong>American</strong> people<br />

in marketing light cigarettes.<br />

• ACS CAN convened a tobacco cessation summit, gathering medical, scientific, and health<br />

policy experts to define priority issues.<br />

23


Information<br />

• ACS CAN released the sixth annual How Do You Measure Up? report on state legislative activity. A radio media tour promoting the report<br />

reached almost 30 million listeners. Interviews were featured on stations owned by CNN, ABC, and The Wall Street Journal, in addition to<br />

stations in major media markets.<br />

• ACS CAN convened an expert panel on cancer disparities in the health care system to educate staff and volunteers and explore policy solutions.<br />

• Through the Judicial Advocacy Initiative (see p. 6), attorneys from the U.S. Equal Employment Opportunity Commission trained information<br />

specialists at the <strong>Society</strong>’s National <strong>Cancer</strong> Information Center (NCIC) on how to help cancer patients and survivors experiencing discrimination.<br />

• ACS CAN launched two newsletters: a monthly update for partner groups and others on ACS CAN activities and membership opportunities,<br />

and Policy Matters, a quarterly that highlights evidence-based health policy solutions.<br />

A Progress Report on State Legislative Activity<br />

to Reduce <strong>Cancer</strong> Incidence and Mortality<br />

July 2008<br />

• Every senator and representative in Congress received an ACS CAN cancer resource kit to assist them in discussing cancer with constituents.<br />

Quality of Life<br />

• The U.S. House unanimously passed the National Pain Care Policy Act, legislation that can help patients experiencing pain from cancer and its<br />

treatments. ACS CAN led a coalition of 130 organizations in support of the bill and ACS CAN advocates nationwide sent thousands of emails<br />

to Congress.<br />

Saving Women’s Lives<br />

The National Breast and Cervical <strong>Cancer</strong> Early Detection Program (NBCCEDP) provides low-income, uninsured, and inadequately<br />

insured women with access to lifesaving cancer screenings and offers them a gateway to treatment. Unfortunately, fewer than one<br />

in five eligible women benefit from this community-based screening program. Lack of funding means millions of women may not<br />

get diagnosed until their cancer is at an advanced and less treatable stage. The <strong>Society</strong> and ACS CAN are leading the way to fully<br />

fund the program.<br />

Someone Isn’t Getting Screened<br />

What if it<br />

were me?<br />

• Otis Brawley, MD, the <strong>Society</strong>’s chief medical officer, and <strong>Society</strong> volunteer Gail Carey, a former program participant, testified<br />

before Congress in support of NBCCEDP.<br />

• ACS CAN and Making Strides Against Breast <strong>Cancer</strong> ® partnered on a campaign in which Strides participants were given mirrors<br />

to ask themselves “What if it were me? What if I lacked the money and the opportunity to have a lifesaving cancer screening?”<br />

Because of inadequate<br />

funding, only 1 in 5 eligible<br />

women gets lifesaving<br />

breast cancer screening.<br />

• Making Strides participants nationwide demanded more funding and support in more than 60,000 postcards delivered to<br />

Congress during Breast <strong>Cancer</strong> Awareness Month.<br />

24


• The <strong>Society</strong> teamed with the Lance Armstrong Foundation and Susan G. Komen for the Cure<br />

to underwrite the third annual nationwide report card evaluating state pain policies. In the<br />

past year, seven states improved their grades, with Georgia going from a D+ to a B. Overall,<br />

33 states received a B or better and five states earned A’s.<br />

• Ohio and the District of Columbia passed laws requiring insurers to cover routine care costs in<br />

clinical trials. Twenty-four states and the District of Columbia now guarantee this coverage.<br />

• To promote more balanced pain policies, ACS CAN awarded grants to five states to support<br />

better pain management activities and also designed a prescription monitoring program<br />

toolkit for state advocates.<br />

• ACS CAN partnered with the <strong>Society</strong>’s NCIC to launch a pain education project that helps our<br />

constituents learn how to talk about pain with their health care team and also gathers stories<br />

to support federal and state pain advocacy efforts.<br />

• The <strong>Society</strong> and ACS CAN worked with the Social Security Administration to launch the<br />

Compassionate Allowances Initiative, a pilot that will enable people with certain cancers and rare<br />

diseases to obtain disability benefits within days, rather than the current average wait of weeks<br />

or months.<br />

• At the urging of ACS CAN, the Centers for Medicare and Medicaid Services added a new drug<br />

compendium to its reference tools for determining off-label cancer drug coverage. The move<br />

will give patients more treatment options.<br />

• A federal appeals court ruling on the Rehabilitation Act, the federal government’s version of<br />

the <strong>American</strong>s with Disabilities Act, strengthened protections for cancer survivors with a record<br />

of disability. The <strong>Society</strong> filed a “friend of the court” brief on behalf of the plaintiff, a cancer<br />

survivor, and was cited in the ruling.<br />

Stopping Big Tobacco<br />

ACS CAN continues to be a leader in building momentum to pass the Family Smoking Prevention and Tobacco Control Act. The act would give the Food<br />

and Drug Administration the authority to regulate tobacco products and stop tobacco companies from marketing to children. Historic milestones reached<br />

in 2008 prove the <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> and ACS CAN’s voices were heard.<br />

• The U.S. House of Representatives passed the bill by a bipartisan, veto-proof majority of 326-102. The vote marked the first time the legislation had<br />

come to the House floor in the 10 years since it was first introduced.<br />

• In another first, a filibuster-proof majority of 60 U.S. senators signed on as bill cosponsors by the end of 2008.<br />

SENATORS, IT’S<br />

TIME TO CHOOSE.<br />

It’s time for the Senate to pass FDA regulation of tobacco products and put our<br />

children first. Each day the Senate delays, 4,000 more children targeted by Big Tobacco<br />

smoke their first cigarette. By supporting FDA regulation of tobacco products, including<br />

the authority to crack down on marketing to kids, Congress can protect children from the<br />

country’s leading cause of preventable death. Our children can’t afford to wait.<br />

SENATORS, PLEASE PROTECT OUR KIDS.<br />

PASS S.625, FDA REGULATION OF TOBACCO PRODUCTS, NOW.<br />

acscan.org<br />

• In the days before the House vote, ACS CAN advocates sent thousands of email and made phone calls in support of the legislation. ACS CAN also<br />

mobilized volunteers through text messages and alerts to ACS CAN members on Facebook and MySpace for the first time.<br />

• ACS CAN utilized its volunteer structure throughout the campaign as ACS CAN and the <strong>Society</strong>’s Division staff partners notified state lead ambassadors,<br />

ambassador constituent team leads, and others to call Congress through 1-888-NOW-I-CAN.<br />

• The <strong>Society</strong> and ACS CAN were credited numerous times throughout the House debate, and the Congressional Hispanic Caucus cited the <strong>Society</strong> and<br />

its then president, Elmer Huerta, MD, MPH, for urging caucus members to vote yes.<br />

• ACS CAN ran print and online advertisements throughout the spring and summer in key Capitol Hill publications, targeted state newspapers,<br />

geographically targeted news sites, and blogs. Online advertisements generated more than six million views.<br />

25


“Our successes keep me energized. These victories<br />

remind me that targeted, organized advocacy<br />

State-by-State<br />

HIGHLIGHTS<br />

does bring about effective change.”<br />

– Bill Evans, State Lead Ambassador, Tennessee<br />

Alabama<br />

The <strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> and its partners<br />

held a breast cancer lobby day and press<br />

conference at the state capitol. As a result,<br />

$400,000 was restored to the state’s breast and<br />

cervical early detection program after being cut<br />

in the governor’s budget.*<br />

A $100,000 appropriation for prostate screenings<br />

for the underserved was leveraged into<br />

an opportunity to create a similar program<br />

offering colorectal screenings in the state’s<br />

primary care centers.*<br />

Key state House and Senate committees passed<br />

smoke-free bills, the farthest such legislation has<br />

ever moved in the state. The <strong>Society</strong> waged an<br />

intense grassroots campaign in an effort that<br />

included eight lobby days, a Relay Rally Day at<br />

the state house, petitions, and attendance at a<br />

House hearing. The governor has promised to<br />

sign the bill once the full legislature approves it.<br />

Alaska<br />

<strong>Society</strong> advocates protected $250,000 in state<br />

funding for the breast and cervical cancer early<br />

detection program.*<br />

Juneau, the state’s capital, implemented the<br />

final phase of its comprehensive smoke-free<br />

workplace law, including bars. <strong>Society</strong> volunteers<br />

were instrumental in fighting off attempts<br />

to weaken this law.<br />

Alaska’s strong and sustained tobacco control<br />

efforts led to a 20 percent drop in adult smoking<br />

since 1996, resulting in about 8,000 fewer<br />

tobacco-related deaths and $300 million in<br />

averted medical costs. Youth smoking has<br />

declined too, with rates among Alaska Native<br />

youth showing the most dramatic decrease.*<br />

Alaska invested an additional $1 million in tobacco<br />

prevention programs, for a total of $8.5 million.<br />

Arizona<br />

<strong>Society</strong> volunteers and supporters defeated<br />

legislation that would have allowed out-ofstate<br />

insurance companies to disregard coverage<br />

requirements for cancer screening tests.*<br />

Despite Arizona’s $2 billion deficit, <strong>Society</strong><br />

advocates succeeded in reducing cuts to the<br />

state’s breast and cervical cancer early detection<br />

program. In addition, the <strong>Society</strong> ensured that<br />

approximately $100,000 collected annually<br />

through the state’s breast cancer license plate<br />

program went toward the breast and cervical<br />

cancer early detection program and was not<br />

diverted for other purposes.*<br />

The state Medicaid program now covers smoking<br />

cessation medications.*<br />

The <strong>Society</strong> led the fight to prevent money from<br />

the voter-protected Tobacco Tax and Healthcare<br />

Fund and Health Education account from being<br />

transferred to other programs.<br />

Arkansas<br />

No regular legislative session in 2008.<br />

The <strong>Society</strong>, Arkansas <strong>Cancer</strong> Coalition, and<br />

Arkansas Legislative Black Caucus held a<br />

“Dialogue on <strong>Cancer</strong>” to identify gaps in access<br />

to care and recommend policy remedies.*<br />

Preliminary findings for a two-year pilot program<br />

that screened and treated 400 underserved<br />

people for colorectal cancer showed significant<br />

improvements in health outcomes as well as<br />

cost savings. The <strong>Society</strong> formed a committee to<br />

draft legislation that would create a permanent<br />

statewide program.<br />

California<br />

The <strong>Society</strong> initiated and funded community<br />

forums in 11 metropolitan areas that drew more<br />

than 1,000 community leaders to collaborate<br />

on access to care policy solutions.*<br />

* Denotes initiative addressing disparities and/or access to care.<br />

26


Oakland passed one of the nation’s most comprehensive<br />

local smoke-free ordinances banning<br />

smoking in many outdoor spaces. In addition,<br />

smoking policies must be disclosed for multi-unit<br />

housing.<br />

<strong>Society</strong> advocates thwarted a proposal to allow<br />

the California State Teachers Retirement Fund, the<br />

nation’s second largest pension fund, to reverse<br />

its policy of not investing in tobacco stocks.<br />

California became the first state in the nation<br />

to require chain restaurants to post caloric<br />

information on menus and order boards.<br />

Colorado<br />

Authorization for the state’s breast and cervical<br />

cancer program, which was set to expire, was<br />

extended five years.*<br />

A new state law requires insurance companies<br />

to cover the full range of colorectal screenings<br />

according to federal prevention guidelines, as<br />

well as for people less than 50 years of age<br />

with a family history of colorectal cancer and/or<br />

related conditions. Colorado’s law also waives<br />

deductibles for screening tests and caps consumer<br />

out-of-pocket expenses in HMOs at 10 percent<br />

of total screening costs.*<br />

The Teen Tobacco Use Prevention Act requires<br />

store clerks to ask people buying tobacco products<br />

who appear under 30 years of age for photo<br />

identification. The new law also makes youth<br />

possession of tobacco products illegal.<br />

Connecticut<br />

The state established a Minority Health Advisory<br />

Commission to explore and eliminate health<br />

disparities in minority populations.*<br />

The governor signed legislation authorizing the<br />

allocation of up to $6 million annually from the<br />

state’s Tobacco Trust Fund for prevention and<br />

cessation programs.<br />

The state Medicaid program now covers hospice<br />

services.*<br />

Legislation to ban lead, asbestos, and other harmful<br />

chemicals from children’s toys was enacted.<br />

Delaware<br />

<strong>Society</strong> volunteers defeated a bill allowing health<br />

insurers to sell “bare bones” plans that disregard<br />

cancer screening coverage guarantees.*<br />

Despite a $300 million budget shortfall, funding<br />

for the Delaware <strong>Cancer</strong> Consortium’s policy recommendations<br />

remained level at $16.2 million.*<br />

<strong>Society</strong> screening guidelines were incorporated<br />

into the state’s existing colorectal cancer coverage<br />

law.*<br />

Delaware maintained its allocation of $10.4 million<br />

for the state’s tobacco control program.<br />

District of<br />

Columbia<br />

The District’s cigarette tax increased to $2 per<br />

pack. Most of the new revenue will be used<br />

to add about 15,000 residents to the District’s<br />

public health plan. No pre-existing conditions<br />

clause applies and premiums are capped at<br />

three percent of the resident’s total income.*<br />

A total of $2.25 million was appropriated to fund<br />

obesity reduction, early detection programs,<br />

and breast, colorectal, oral, and prostate cancer<br />

outreach, and prostate cancer treatment.*<br />

The District Council unanimously approved,<br />

and the mayor signed, legislation requiring<br />

health insurers to cover all routine patient care<br />

costs for individuals in clinical trials.*<br />

Florida<br />

The state allocated $18.9 million for peerreviewed<br />

competitive research on cancer and<br />

other tobacco-related illnesses.<br />

<strong>Society</strong> advocates successfully sought $57.9<br />

million in the state budget for tobacco prevention,<br />

education, and cessation.<br />

Georgia<br />

<strong>Society</strong> advocates defeated legislation encouraging<br />

insurers to offer high-deductible,<br />

consumer-driven health plans that failed to<br />

guarantee cancer screening coverage.*<br />

The <strong>Society</strong> worked to defeat a bill that<br />

allowed health insurance products sold online<br />

to circumvent laws guaranteeing coverage of<br />

cancer screening. The bill also permitted insurers<br />

to “cherry pick” the healthiest individuals,<br />

which would result in cancer patients and<br />

survivors being denied coverage.*<br />

The <strong>Cancer</strong> State Aid program received an<br />

additional $1.4 million.*<br />

The Georgia General Assembly passed legislation<br />

to create a committee to review tobacco control<br />

program best practices and funding levels.<br />

Unfortunately, the governor vetoed the bill.<br />

Georgia’s ranking on a nationwide pain policy<br />

report card went from a D+ to a B, thanks to<br />

the <strong>Society</strong>’s work with partner organizations<br />

and the Georgia Composite State Board of<br />

Examiners to amend medical board guidelines<br />

on pain management.*<br />

Hawaii<br />

Hawaii allocated $150,000, its first contribution<br />

ever, to the breast and cervical cancer early<br />

detection program.*<br />

<strong>Society</strong> advocates defended attempts to weaken<br />

the state’s comprehensive smoke-free law<br />

which, along with the state’s high cigarette tax,<br />

and well-funded tobacco control programs,<br />

helped reduce youth smoking rates. Since<br />

2005, smoking among high school students<br />

fell from 12.6 percent to 9.7 percent and went<br />

from 4.9 percent to 4.2 percent for middle<br />

school students.<br />

The state passed legislation extending the time<br />

period that prescriptions for pain medications<br />

can be filled.*<br />

Idaho<br />

<strong>Society</strong> advocates ensured that budgets for the<br />

breast and cervical screening program, Central<br />

27 * Denotes initiative addressing disparities and/or access to care.


Tumor Registry, and <strong>Cancer</strong> Control Fund were<br />

not cut.*<br />

The <strong>Society</strong>’s concerted effort to expand colorectal<br />

screening access resulted in all state- regulated<br />

insurance carriers committing, in writing, to cover<br />

the full range of early detection tests. Reported<br />

denials of coverage decreased from an average<br />

of 15 a month to none in 2008.*<br />

In a vote of seven to one, the Senate Education<br />

Committee resoundingly rejected precedentsetting<br />

legislation to divert millions of dollars<br />

from the state’s tobacco settlement fund.<br />

The state increased tobacco control program<br />

funding from $1.4 million to $2.5 million.<br />

Illinois<br />

With an allocation of $5 million in new state<br />

funds, Illinois became the first and only state<br />

to offer all eligible women access to lifesaving<br />

breast and cervical cancer screenings.*<br />

The state legislature passed a bill to make digital<br />

mammography available through Medicaid.<br />

The bill also creates a patient navigation pilot.*<br />

The <strong>Society</strong> and its allies defeated seven separate<br />

attempts to weaken the Smoke Free Illinois Act,<br />

which went into effect on January 1, 2008, and<br />

supported legislation clarifying enforcement rules.<br />

The state House of Representatives passed<br />

legislation providing prostate and testicular<br />

cancer treatment coverage for the uninsured<br />

through Medicaid.*<br />

Indiana<br />

The city of Elkhart adopted a comprehensive<br />

smoke-free ordinance, with bars and establishments<br />

for people 21 and older covered<br />

starting in 2009.<br />

The city of Richmond rejected a flawed smoking<br />

ban.<br />

The Indiana House Ways and Means Committee<br />

voted overwhelmingly to reject a bill lowering<br />

the state cigarette tax.<br />

Indiana became the ninth state to require<br />

coverage for prosthetics.*<br />

Iowa<br />

Eligibility requirements for the state Children’s<br />

Health Insurance Program were expanded in<br />

2008, with the ultimate goal of covering all<br />

children by 2011.*<br />

The state passed and implemented a statewide<br />

smoke-free law covering all workplaces, including<br />

bars and restaurants.<br />

The <strong>Society</strong> protected more than $11 million in<br />

annual funding for the state’s comprehensive<br />

tobacco control program and $100,000 in<br />

annual funding for the breast and cervical<br />

cancer program.*<br />

The new Healthy Kids Act set nutritional standards<br />

for school meals and physical activity standards.<br />

Kansas<br />

The state authorized its breast and cervical<br />

early detection program to also conduct colon<br />

and prostate cancer screenings once additional<br />

funds are made available.*<br />

The Kansas House of Representatives approved<br />

legislation requiring insurance companies to<br />

cover the full range of colorectal screenings.*<br />

Nine municipalities enacted comprehensive<br />

smoke-free ordinances.<br />

The <strong>Society</strong> persuaded the state to cover tobacco<br />

cessation services for pregnant women<br />

in Medicaid.*<br />

Kentucky<br />

The state breast and cervical treatment program,<br />

originally established through executive order,<br />

is now operating under force of law. In addition,<br />

a new law requires “bare bones” health plans<br />

to provide mammography coverage.*<br />

Legislation creating a colon cancer screening<br />

program for the uninsured and an accompanying<br />

educational campaign was enacted.*<br />

Insurance companies are now required to cover<br />

the full range of colorectal screenings in accordance<br />

with <strong>Society</strong> screening guidelines.*<br />

The state House of Representatives approved a<br />

25-cent cigarette tax increase, and the governor<br />

announced his support for a 70-cent increase.<br />

Louisiana<br />

Despite steep cuts to other health programs,<br />

the Louisiana Breast and Cervical <strong>Cancer</strong> Early<br />

Detection Program preserved $700,000 in state<br />

funding and the state provided $1.5 million<br />

to start a colorectal cancer screening pilot for<br />

uninsured and underinsured citizens.*<br />

The <strong>Society</strong> and its public health partners not<br />

only defeated attempts to weaken the Louisiana<br />

Smoke-free Air Act, but also built momentum<br />

behind efforts to strengthen it in the 2009<br />

legislative session.*<br />

<strong>Society</strong> advocates continued to educate legislators<br />

and the public about the need for an increased<br />

tobacco tax.<br />

Maine<br />

Proceeds from a new breast cancer awareness<br />

license plate will be shared equally by the state<br />

breast and cervical program, Maine-based cancer<br />

research initiatives, and patient assistance efforts.*<br />

Insurance companies are now required to cover<br />

the full range of colorectal screenings in accordance<br />

with <strong>Society</strong> screening guidelines.*<br />

For the seventh straight year, Maine ranked<br />

first in the nation in funding tobacco prevention<br />

programs.<br />

The state became the first in the nation to pass<br />

a law banning the sale of flavored cigarettes<br />

and cigars.<br />

28


Maryland<br />

secured more than $6 million for tobacco and<br />

cancer control.*<br />

The Mississippi House of Representatives passed<br />

a $1 increase in the state cigarette tax.<br />

<strong>Society</strong> advocates secured coverage of tobacco<br />

cessation services in Medicaid.*<br />

Effective February 1, 2008, the state implemented<br />

its comprehensive smoke-free workplace law.<br />

The state cigarette tax went from $1 to $2<br />

per pack.<br />

The <strong>Society</strong> helped pass legislation that prohibits<br />

genetic information or tests from being used to<br />

deny, limit, or charge different rates for long-term<br />

care coverage.*<br />

Massachusetts<br />

A new law established guidelines for educating<br />

parents and children about cervical<br />

cancer vaccines.<br />

Minnesota<br />

Newly enacted health care reform legislation<br />

expands eligibility for MinnesotaCare, protects<br />

continuity of care, and establishes a health care<br />

home system.*<br />

Despite state budget constraints, funding for<br />

tobacco control and prevention initiatives was<br />

maintained at $20 million.<br />

Missouri<br />

The state increased funding for the breast and<br />

cervical cancer early detection program by<br />

$500,000, for a total of one million dollars.*<br />

Kansas City’s smoke-free ordinance, exempting<br />

only casinos, went into effect.<br />

Nevada<br />

No regular legislative session in 2008.<br />

The <strong>Society</strong> acted as a watchdog to rebuff<br />

tobacco industry attempts to circumvent the<br />

recently enacted Nevada Clean Indoor Air Act.<br />

<strong>Society</strong> advocates prepared legislation and<br />

recruited key lawmaker support for a bill to allow<br />

unused chemotherapy drugs to be donated to<br />

cancer patients in need.*<br />

Revenue from a $1 increase in the cigarette<br />

tax (for a total of $2.51 — the third highest<br />

in the nation) will be used to fully fund and<br />

implement its innovative health reform law.<br />

More than 425,000 state residents have obtained<br />

health insurance since the law went into effect<br />

in 2006.*<br />

The state tobacco prevention and cessation<br />

program received a total of $1.5 million.<br />

Montana<br />

No regular legislative session in 2008.<br />

New Hampshire<br />

The cigarette tax went up 25 cents, for a total<br />

of $1.33, and “small cigars” were redefined as<br />

cigarettes, subjecting these previously untaxed<br />

products to the state tobacco excise tax.<br />

The <strong>Society</strong> secured state funding for a new<br />

Office of Health Equity to ensure that reducing<br />

disparities remains a top priority.*<br />

The state Medicaid program added smoking<br />

cessation services as a permanent benefit.*<br />

The governor signed Jenny’s Law, which places<br />

the burden of proof on insurers when a life<br />

insurance company denies claims based on<br />

conditions that arise after a policy is signed.*<br />

Michigan<br />

The state Senate passed a comprehensive<br />

smoke-free workplace bill. New smoke-free<br />

workplace laws are now in effect in Gogebic,<br />

Houghton, and Keweenaw counties.<br />

The <strong>Society</strong> prevented the Healthy Michigan<br />

Fund from being cut or eliminated and instead<br />

The <strong>Society</strong> prevented the state’s breast<br />

and cervical cancer screening and youth<br />

tobacco prevention programs from being<br />

drastically cut.*<br />

<strong>Society</strong> advocates defeated an attempt to weaken<br />

the state’s comprehensive smoke-free air law and<br />

built support for stronger enforcement measures.<br />

A new state health improvement program will<br />

provide grants to local communities for tobacco<br />

prevention and obesity fighting programs.*<br />

Mississippi<br />

Six municipalities enacted smoke-free laws<br />

this year.<br />

The <strong>Society</strong> is working to ensure the state implements<br />

the final phase of its 2005 smoke-free<br />

law, which bans smoking in bars and casinos.<br />

The <strong>Society</strong> launched the Montana Pain Initiative<br />

to improve state regulations and institutional<br />

policies governing rural hospitals, in-home care<br />

providers, and long-term care facilities.*<br />

The <strong>Society</strong> led a coalition that improved a proposal<br />

for a statewide prescription monitoring<br />

program.*<br />

Nebraska<br />

The state passed a 100 percent comprehensive<br />

smoke-free law effective June 1, 2009.<br />

Nebraska’s tobacco prevention and cessation<br />

program received a $500,000 increase.<br />

The state removed restrictive limits on the<br />

amount of pain medication that can be dispersed<br />

to patients.*<br />

New Jersey<br />

The <strong>Society</strong> partnered with other leading health<br />

groups to develop a consensus around health<br />

29 * Denotes initiative addressing disparities and/or access to care.


eform, resulting in a new law that requires<br />

insurance coverage for children, expands the<br />

New Jersey FamilyCare program, and institutes<br />

improvements in the individual market.*<br />

The <strong>Society</strong> inspired a bill that will provide treatment<br />

for individuals diagnosed with colorectal<br />

or prostate cancer through the state’s screening<br />

program for the uninsured.*<br />

New Jersey became the second state with a law<br />

banning the sale of flavored cigarettes.<br />

New Mexico<br />

The state increased its allocation for the breast<br />

and cervical cancer early detection program<br />

by $500,000 for a total state appropriation of<br />

one million dollars. The program will also receive<br />

the proceeds from sales of a new breast cancer<br />

awareness license plate featuring the <strong>Society</strong>’s<br />

toll-free number.*<br />

The <strong>Society</strong> assisted Navajo tobacco control<br />

advocates in passing a ban on tobacco use in<br />

the Navajo Nation legislature. Unfortunately,<br />

the nation’s president vetoed the measure.*<br />

New Mexico will direct the bonus payments<br />

it received as part of the master settlement<br />

agreement with the tobacco companies to<br />

tobacco control and Medicaid.*<br />

New York<br />

The <strong>Society</strong> was a lead member of labor-business<br />

and patient advocacy coalitions that sponsored<br />

forums to focus public and policy-maker<br />

attention on access to care, resulting in a<br />

significant expansion of the state’s children’s<br />

health insurance program.*<br />

The <strong>Society</strong> organized and led the effort to raise<br />

the state cigarette tax from $1.50 to $2.75 per<br />

pack, the highest in the nation.<br />

Private and public college, university, and<br />

vocational school dormitories and residence<br />

halls became smoke-free effective August 2008.<br />

Municipal and school district employees may<br />

now take up to four hours of leave annually for<br />

cancer screening tests.*<br />

North Carolina<br />

<strong>Society</strong> advocates secured a $500,000 annual<br />

increase for the state tobacco cessation hotline.<br />

In addition, a new provision in the state budget<br />

authorizes the hotline to recommend nicotine<br />

replacement therapy.<br />

A new law requires state owned and operated<br />

vehicles be 100 percent smoke-free effective<br />

January 1, 2009. The law also clarifies local governments’<br />

authority to make municipally owned<br />

and operated vehicles 100 percent smoke-free.<br />

A new law em<strong>power</strong>s individual community<br />

college boards of trustees to prohibit tobacco<br />

use on campus.<br />

North Dakota<br />

No regular legislative session in 2008.<br />

Voters in Fargo approved a ballot initiative that,<br />

by expanding its smoke-free law to include<br />

stand-alone bars, truck stops, and rental halls,<br />

made the city’s law stronger than the state’s.<br />

The city of West Fargo approved a comprehensive<br />

smoke-free ordinance.<br />

Ohio<br />

Ohio’s breast and cervical cancer program received<br />

an additional $2.5 million in state funding.*<br />

The state Senate approved a bill requiring insurers<br />

to cover the full range of colorectal cancer<br />

screening tests.*<br />

A new law requires insurers to cover routine<br />

patient-care costs administered as part of a<br />

cancer clinical trial.*<br />

Legislation to raise the tax on cigars and<br />

smokeless tobacco products was introduced.<br />

The revenue would fund tobacco use prevention<br />

programs.<br />

Oklahoma<br />

The state Senate approved a bill requiring<br />

insurers to cover the full range of colorectal<br />

cancer screening tests.*<br />

The state Senate Business and Labor Committee<br />

approved a statewide smoke-free bill.<br />

The <strong>Society</strong> helped secure a $4 million increase<br />

to the state tobacco prevention and cessation<br />

program, bringing the total to $16 million.<br />

A new law increases physical education<br />

requirements for elementary school students<br />

from 60 to 120 minutes per week.<br />

Oregon<br />

No regular legislative session in 2008.<br />

<strong>Society</strong> advocates prevented $8.2 million in<br />

funds for the state tobacco and prevention<br />

education program from being cut.<br />

Pennsylvania<br />

The <strong>Society</strong> helped protect $1.7 million in<br />

funding for a Department of Health program<br />

that makes annual breast and cervical cancer<br />

screenings available to women ages 40 to 49.*<br />

A new law requires coverage for most colorectal<br />

cancer screening tests in businesses with more<br />

than 50 employees.*<br />

The Pennsylvania Clean Indoor Air Act was<br />

signed by the governor on June 13, 2008 and<br />

went into effect on September 11, 2008.<br />

Pharmacies will be able to re-dispense unused<br />

cancer drugs to patients in need under a new<br />

voluntary drug repository program.*<br />

Rhode Island<br />

Despite a deepening budget crisis, the state<br />

maintained level funding for its Women’s <strong>Cancer</strong><br />

Screening and tobacco control programs.*<br />

The tax on little cigars was raised so that it<br />

equals the cigarette tax of $2.46 per pack.<br />

The state passed legislation to allow patients to<br />

get 90 days worth of pain medications, as opposed<br />

to the previous 30 days, in accordance with<br />

new U.S. Drug Enforcement Agency guidelines.*<br />

30


Rhode Island became the fifth state in the<br />

country to create a Legislative <strong>Cancer</strong> Caucus.<br />

South Carolina<br />

The state allocated $2 million for the breast<br />

and cervical cancer early detection program, its<br />

first-ever state-federal match.*<br />

The state will invest one million dollars in a<br />

colorectal cancer screening pilot targeting<br />

the uninsured.*<br />

The state Supreme Court ruled that there is<br />

no state preemption over local smoke-free<br />

laws, permitting communities statewide to<br />

enact strong smoke-free ordinances. Seven<br />

comprehensive smoke-free local ordinances<br />

were implemented in 2008.<br />

The state House and Senate approved a 50-cent<br />

per pack increase in the cigarette tax. Although<br />

the governor vetoed the measure, momentum<br />

is growing for passage in 2009.<br />

South Dakota<br />

<strong>Society</strong> advocates persuaded the state government<br />

to preserve funding for the breast and<br />

cervical screening program and tobacco control.*<br />

The state allocated $125,000 for tuition<br />

reimbursement to health care providers that<br />

commit to serving in underserved, rural areas.*<br />

A new law requires health providers to publicize<br />

the cost of certain medical procedures<br />

so that consumers can make informed health<br />

care decisions.*<br />

Tennessee<br />

The <strong>Society</strong> launched a grassroots campaign<br />

in support of legislation that would expand<br />

breast, cervical, and colorectal cancer screenings<br />

and smoking cessation services.*<br />

Funding for Tennessee’s breast and cervical<br />

cancer program remained intact, avoiding the<br />

severe cuts made to other programs.*<br />

A successful <strong>Society</strong> grassroots campaign<br />

defeated attempts to weaken the Nonsmoker<br />

Protection Act of 2007, which allows smoking<br />

only in venues open to those 21 and over. In<br />

addition, the state reaffirmed its commitment<br />

to smoking cessation and prevention with $5<br />

million in program funding.<br />

Texas<br />

No regular legislative session in 2008.<br />

The process for implementing the new <strong>Cancer</strong><br />

Prevention and Research Institute began. The<br />

Institute, created by the legislature and ratified<br />

by the public in a 2007 ballot initiative, will<br />

invest $3 billion in state cancer prevention and<br />

research programs.<br />

Comprehensive smoke-free ordinances were<br />

approved in Alton, Corpus Christi, Dallas, Flower<br />

Mound, Nacogdoches, Pearland, Richardson,<br />

and Tyler.<br />

Utah<br />

The state approved legislation providing more<br />

than $5 million to expand children’s health<br />

insurance, increase participation in a state<br />

program that subsidizes a portion of low income<br />

individuals’ health insurance premiums, and<br />

helps low income, underserved individuals use<br />

health care resources more effectively.*<br />

A bill to create a special license plate whose<br />

proceeds would fund cancer screening awareness<br />

campaigns was introduced.<br />

Vermont<br />

The <strong>Society</strong> was a leader in enhancing access<br />

to the Catamount Health Program by securing<br />

an amnesty period for pre-existing conditions,<br />

such as cancer, and helping to pass legislation<br />

that waives the one-year eligibility waiting period<br />

for individuals in high-deductible plans of<br />

$10,000 or more.*<br />

The governor signed legislation that prohibits<br />

deductibles and copays from applying to<br />

mammograms and caps out-of-pocket expenses<br />

at $25.*<br />

The state provided $5.2 million for its tobacco<br />

control program and banned the sale of tobacco<br />

products over the Internet.<br />

Virginia<br />

Despite a $1.4 billion budget shortfall, <strong>Society</strong><br />

volunteers protected breast and cervical cancer<br />

funding for the Every Woman’s Life Program.*<br />

The state Senate passed comprehensive statewide<br />

smoke-free legislation by the widest margin<br />

to date. The proposed law also authorizes local<br />

communities to enact smoke-free ordinances that<br />

are stronger than the statewide law.<br />

Washington<br />

The <strong>Society</strong> helped to enact legislation to establish<br />

and fund, at $1.3 million, a citizen work group<br />

that will assess four major health care reform proposals<br />

and engage state residents on the issue.*<br />

The Washington Breast and Cervical Health Program<br />

received $585,000 in state funds to address reimbursement<br />

shortfalls to participating providers.*<br />

The state budget included $956,000 to start a<br />

colorectal cancer screening pilot for uninsured<br />

people in select counties.*<br />

Smoking cessation products and cessation<br />

counseling services are now available through<br />

Medicaid, with the state providing a $1.9 million<br />

match to $1.7 million in federal funds.*<br />

West Virginia<br />

For the first time, the state allocated $100,000<br />

to fund the West Virginia Comprehensive <strong>Cancer</strong><br />

Coalition, which is charged with implementing<br />

the state cancer plan. In addition, funding for the<br />

state cancer registry was reinstated.*<br />

The <strong>Society</strong> joined the Legislative Health Interim<br />

Committee, which is studying statewide health<br />

reform proposals.*<br />

31 * Denotes initiative addressing disparities and/or access to care.


Legislation that would have stripped local<br />

communities of their ability to enact strong<br />

smoke-free laws was defeated for the 16th year<br />

in a row. Twelve counties had comprehensive<br />

smoke-free laws go into effect in 2008, for a<br />

total of 21 counties with such laws.<br />

Wisconsin<br />

Despite a significant budget deficit, <strong>Society</strong><br />

advocates protected funding for the state’s<br />

breast and cervical cancer screening program.*<br />

Smoke-free ordinances passed in Eau Claire,<br />

Marshfield, Monona, and Fond du Lac.<br />

The state increased funding for its comprehensive<br />

tobacco control program by $250,000. The annual<br />

appropriation is now in excess of $15 million.<br />

Wyoming<br />

The <strong>Society</strong> became a founding member of the<br />

Coalition for Wyoming Insurance Solutions in<br />

Healthcare, formed to evaluate access to care<br />

issues such as consumer protections in insurance<br />

coverage.*<br />

<strong>Society</strong> advocates secured $1.7 million for<br />

state programs for the medically underserved,<br />

including breast, cervical, and colorectal cancer<br />

screenings and Native Sister, a collaborative<br />

initiative expanding access to breast cancer<br />

screenings for Native <strong>American</strong> women.*<br />

The state Health Labor and Social Services Joint<br />

Committee passed a comprehensive smoke-free<br />

bill on December 2, 2008. The bill will go before<br />

the full legislature in 2009.<br />

Health insurers are now required to cover<br />

routine patient care costs for individuals<br />

participating in phases two, three, and four<br />

clinical trials.*<br />

Reducing Tobacco’s Toll<br />

Smoke-Free Successes<br />

Three states – Illinois, Iowa, and Maryland – implemented statewide smoke-free laws covering workplaces,<br />

restaurants, and bars.<br />

Three states – Iowa, Nebraska, and Pennsylvania – passed statewide smoke-free laws.<br />

Twenty-nine states, the District of Columbia, and Puerto Rico now have 100 percent smoke-free laws<br />

covering workplaces and/or restaurants and/or bars.<br />

Thirteen states, the District of Columbia, and Puerto Rico have smoke-free laws covering 100 percent<br />

of all workplaces, restaurants, and bars.<br />

Sixty-nine percent of the U.S. population is now covered by smoke-free workplace and/or bar and/or<br />

restaurant laws, up from 57 percent in 2007<br />

Cigarette Tax Increases<br />

Five states – Hawaii, Massachusetts, New Hampshire, New York and Vermont – plus the District of<br />

Columbia – increased cigarette taxes.<br />

At $2.75 per pack, New York now has the nation’s highest cigarette tax. The state’s tobacco cessation<br />

hotline logged 10,000 calls the week the tax went up.<br />

Massachusetts and the District of Columbia are using part of the tax revenue to expand access to care.<br />

Twelve states and the District of Columbia have taxes of $2.00 or more.<br />

The average state tax on a pack of cigarettes is now $1.19, up from $1.11 a year ago.<br />

Prevention, Cessation, and Control Funding<br />

Six states – Alaska, Colorado, Delaware, Hawaii, Maine and Montana – funded their tobacco<br />

control programs at or above the Centers for Disease Control and Prevention’s minimum levels<br />

during the 2008 fiscal year. Maine ranked first in funding tobacco prevention programs for the<br />

seventh consecutive year.<br />

Other states that have increased funding for tobacco control include Alaska, Florida, Indiana, Iowa,<br />

Mississippi, New Hampshire, New Mexico and Tennessee, plus the District of Columbia.<br />

Sixteen states offer adequate Medicaid smoking cessation coverage, meaning at least one form of<br />

medication and one type of counseling. Oregon covers all therapies recommended by the U.S. Public<br />

Health Service.<br />

Many of these achievements were made possible by <strong>Society</strong> Mission Delivery Council grants.


DONORS<br />

Corporate Champions<br />

$100,000 and up<br />

EMD Serono, Inc.<br />

Pharmaceutical Research and<br />

Manufacturers of America<br />

Corporate Heroes<br />

$25,000 - $99,999<br />

AstraZeneca Pharmaceuticals<br />

Genentech USA<br />

Johnson & Johnson<br />

Pfizer, Inc.<br />

Major CANpaign Circle<br />

$20,000 and up<br />

Dr. John W. Hamilton<br />

Robert E. Youle<br />

Chairman’s Circle<br />

$10,000 - $19,999<br />

Fereydoun Firouz<br />

Matthew & Susan Lorber<br />

Dr. John & Mrs. Carole Seffrin<br />

Corporate Friends<br />

$10,000 - $24,999<br />

Pace Communications<br />

Home Front Communications<br />

Ironworks Consulting LLC<br />

President’s Circle<br />

$3,000 - $9,999<br />

Alliance Oncology<br />

Autodesk, Inc.<br />

Banner Health<br />

Dr. Ermilo Barrera Jr.<br />

Mr. & Mrs. R. Clifford Berg<br />

Kathleen M. Bond<br />

Greg & Karen Bontrager<br />

Dr. William H. Boykin Jr.<br />

Dr. Otis W. Brawley<br />

Dr. Robert T. Brodell<br />

Sally West Brooks &<br />

Marvin Brooks<br />

Helene G. Brown<br />

Carla Marie Bucknell<br />

Joe Cahoon<br />

Dr. Barrie R. Cassileth<br />

Cataldo Ambulance Service, Inc.<br />

Catholic Health Initiatives<br />

Children’s Community<br />

Health Plan<br />

Children’s Hospital and<br />

Medical Center<br />

Jennie R. Cook<br />

Molly A. Daniels<br />

Michael P. Dany<br />

Tina C. Datta<br />

Dean Health Systems<br />

Dr. Robert P. DeMarco<br />

Dr. Margaret Drugay<br />

Evergreen Healthcare<br />

Patricia M. Felts<br />

Firestone and Parson, Inc.<br />

First Choice Health<br />

Dr. Elizabeth T.H. Fontham<br />

Dr. Lewis E. Foxhall<br />

GMMB<br />

Nathan Grey<br />

Sheffield & Elizabeth Hale<br />

Norma J. Hayman<br />

Health Advances LLC<br />

Reuel Johnson<br />

Dr. Anna Johnson-Winegar &<br />

Lucien Winegar<br />

Dr. Douglas K. Kelsey<br />

Mr. & Mrs. Robert Kugler<br />

Grace Kurak<br />

Michael Kurak<br />

Mary Jo Langdon<br />

Dr. Robert M. Langdon<br />

Unice Lieberman &<br />

Stephan Diamond<br />

Thomas M. Lindquist<br />

Lockspot Café<br />

Martin Smith, Inc.<br />

Massachusetts Medical<br />

<strong>Society</strong> / New England<br />

Journal of Medicine<br />

Charles Matthau<br />

Ann Mau<br />

Jean B. McGill<br />

Dr. & Mrs. Raymond Melrose<br />

Pamela K. Meyerhoffer<br />

Dr. Karen A. Moffitt<br />

Moffitt <strong>Cancer</strong> Center<br />

Scarlott K. Mueller<br />

Nebraska <strong>Cancer</strong><br />

Specialists – Methodist<br />

Estabrook <strong>Cancer</strong> Center<br />

Kent C. Nelson<br />

Frank R. Nolimal<br />

Dr. Sandra A. Norman<br />

Nixon Peabody LLP<br />

Northwest Hospital and<br />

Medical Center<br />

Novartis Pharmaceuticals<br />

Oracle Corporation<br />

Overlake Hospital<br />

Medical Center<br />

Paradysz Matera Co. Inc.<br />

Joe P. Parisi<br />

Gregory A. Pizzuti<br />

Ann Marie & Arnie Pomerinke<br />

Frances Popstojanovic-Holstrom<br />

Pamela A. Ratcliff<br />

Rod J. Ratcliff<br />

Gary M. Reedy<br />

Rona Consulting<br />

Mark Rothwell<br />

Dr. Christy A. Russell<br />

Wendy & Michael Selig<br />

Dr. & Mrs. Stephen F. Sener<br />

Peter S. Sheldon<br />

Thomas Sheridan<br />

Daniel E. Smith & Lorraine Voles<br />

Richard E. Spoonemore<br />

SSM of Wisconsin<br />

Carter Steger<br />

Stephen L. Swanson<br />

Swedish Health Services<br />

Dr. Craig Tanio<br />

Dr. Eric W. Taylor<br />

Tennessee <strong>Society</strong> for<br />

Gastroenterology<br />

Dr. Alan & Mrs. Nancy Thorson<br />

Chris H. Torti<br />

University of Washington<br />

Waste Management<br />

Donald A. Webster<br />

Dr. Jeff Weinstein<br />

John F. Windham<br />

Wisconsin Education<br />

Association Council<br />

Wisconsin Hospital Association<br />

Mr. & Mrs. G. Van Velsor Wolf Jr.<br />

Dr. G. Fred Worsham Jr.<br />

Dr. Jerome Yates<br />

David L. Yeager<br />

Champion’s Circle<br />

$1,000 - $2,999<br />

Alegent Health<br />

Joseph Allen<br />

Alliant Insurance Services<br />

Amphion<br />

Andover Barbecue <strong>Society</strong><br />

Armstrong International Inc.<br />

Arnold Worldwide LLC<br />

Axley Brynelson LLP<br />

DeAnne F. Baer<br />

Dr. Larry D. Baer<br />

Michele M. Barsanti<br />

Herb Beuter<br />

Dr. Therese Bevers<br />

Barnard Griffin Winery<br />

Blue Cross Blue Shield<br />

of Minnesota<br />

Blue Cross Blue Shield<br />

of Nebraska<br />

Boston University School<br />

of Medicine<br />

Boyd Watterson Asset<br />

Management<br />

Brandeberry McKenna<br />

Public Affairs<br />

Sheila Breeding<br />

Broydrick & Associates<br />

Dr. Carolyn J. Bruzdzinski<br />

Joe Buchanan<br />

Buchanan Ingersoll Rooney,<br />

Professional Corporation<br />

Kalah R. Bumba<br />

Cynthia A. Cable<br />

Connie J. Chapman<br />

Stephanie B. Christensen<br />

Dr. Mark Clanton<br />

Christina M. Clothier<br />

Deborah J. Cornwall<br />

Commercial Cost Control Inc.<br />

Patricia J. Crome<br />

Kelley M. Daniel<br />

Jim Davis<br />

Charles W. DeGooyer<br />

Ralph A. DeVitto Jr.<br />

Dr. William Dooley<br />

Downs Rachlin Martin PLLC<br />

Dr. Stephen J. Dreyer<br />

Kimberly T. Duchossois<br />

Bryan K. Earnest<br />

Dr. W. Phil P. Evans III<br />

Pete Festerson<br />

Dr. Wanda D. Filer<br />

Shelby Fletcher<br />

John Fraser<br />

Gateway Ventures<br />

Georgetown Cupcake<br />

Thomas P. Glynn III<br />

Goff & Howard Inc.<br />

Joel T. Greer<br />

Barbara M. Grevior<br />

Steven Grossman<br />

Donald J. Gudaitis<br />

Hamilton Consulting Group<br />

Donna K. Hammack<br />

Lee Hecht Harrison<br />

Reed E. Hall<br />

Kyle D. Harris<br />

Kelly Headrick<br />

Dale Hendrix<br />

John C. Hoctor<br />

Robert Holleran<br />

Hope Group LLC<br />

Roger E. Howard<br />

Paul Hull<br />

Dr. Elaine Iuanow<br />

Johnson Timber Corp<br />

Jari J. Johnston-Allen<br />

Dr. William Karrer<br />

Key Bank<br />

Dr. Marianne B. Kipper<br />

George C. Kosmos Jr.<br />

Lisa A. Lacasse & Bruce D. Lesley<br />

Brian D. Langstraat<br />

Lehman Kelly Sadler & O’Keefe<br />

Leukemia & Lymphoma <strong>Society</strong><br />

Daniel C. Lynch<br />

William H. Lynch<br />

M & R Strategic Services Inc.<br />

Mackinaw Valley Vineyard<br />

Madison Radiologists SC<br />

Marshfield Clinic<br />

Steve Martin<br />

Stacy A. Matseas<br />

Dr. Tim Mauldin<br />

Merck & Company Inc.<br />

Meriter Health Services<br />

Methodist Estabrook<br />

<strong>Cancer</strong> Center<br />

Metro East Masters League<br />

Michelle I. Mettner<br />

MFS Investment Management<br />

33


Midlands Choice<br />

James E. Miller<br />

Minneapolis Radiation<br />

Oncology<br />

Jennifer H. Mirenda<br />

Colleen D. Mitchell<br />

Paula D. Mohan<br />

MSHC Partners Inc.<br />

Terry Music<br />

Myriad Genetic Labs<br />

The Nebraska Methodist<br />

Hospital<br />

Dawn Neiderman<br />

Pacific Gas and Electric Co.<br />

Park Bank<br />

Parkway Plastic Surgery<br />

Ruth M. Parriott<br />

Partners Healthcare System<br />

Personal Care Product Council<br />

Andrew Petersen<br />

Paul Plofchan<br />

Premera Blue Cross<br />

Thomas E. Press<br />

Puyallup Valley Flower<br />

Quatt Associates<br />

Vicki A. Rakowski<br />

Dr. Mark W. Redrow<br />

Riester Sonoran LLC<br />

LW Robbins Associates Inc.<br />

William G. Robbins<br />

Mary Rob Clarke<br />

Delia D. Roberts<br />

Diane Roberts<br />

Ropes & Gray, LLP<br />

Julie Rosen<br />

Sanofi-Aventis US Inc.<br />

Schaumburg Flyers<br />

Seim Johnson Sestak & Quist<br />

Kim R. Sevening<br />

Dr. Peter Shields<br />

Steven E. Slaughter<br />

Soapbox<br />

Russ Sobotta<br />

Gary J. Streit<br />

TAS INC<br />

TDS Telecom<br />

Pam Traxel<br />

Trivers Associates<br />

United Healthcare<br />

University of Massachusetts<br />

Medical School<br />

Michael Vander Hoek<br />

David F. Veneziano<br />

WAHU Foundation<br />

Erika Walsted<br />

Thomas J. Williams<br />

Wisconsin Restaurant<br />

Association<br />

Patricia R. Workman<br />

Bertram A. Yaffe<br />

Nancy Yaw<br />

Dr. Jackie Young<br />

Hero’s Circle<br />

$500 - $999<br />

Advantage Mail<br />

Briggs W. Andrews<br />

Dr. Andrejs E. Avots-Avotins<br />

Boston Medical Center<br />

Healthnet Plan<br />

Sharlene R. Bozack<br />

Michael A. Bozzuto<br />

Marilyn K. Broussard<br />

Heidi Brown<br />

Nicki Brown<br />

Dr. Barbara K. Bucholtz<br />

Dr. Michael J. &<br />

Mrs. Sharon R. Bukstein<br />

Stephen A. Burgess<br />

Charlotte L. Burke<br />

Valerie N. Burniece<br />

Dr. Karlynn BrintzenhofeSzoc<br />

Corinne Broderick<br />

<strong>Cancer</strong> Care Northwest Centers<br />

Dr. Mark Carlson<br />

Gail Carlson-Van Valey<br />

Central Indiana <strong>Cancer</strong> Centers<br />

City Of Huntington Park<br />

Cone Inc.<br />

Creekside Custom Homes<br />

Joseph W. Cruitt<br />

Custom Picture/Dustin Batt<br />

Aaron E. Czyzewski<br />

William J. Dalton<br />

Dr. Raymond Y. Demers<br />

Richard L. Deming<br />

Dr. M. Julian Duttera<br />

Peter E. Eckerline<br />

Mark A. Edmiaston<br />

Dr. Albert B. Einstein<br />

Hilarie Engle<br />

Mark Escobar<br />

Dr. Jack T. Evjy<br />

Guy Fischer<br />

Kathy C. Franklin<br />

Doug Frasier<br />

FSA/Kelly Chaterton<br />

Ronald B. Gartlan<br />

Georgette B. Gaskin<br />

Priscilla F. Gibbs<br />

Joy A. Ginsburg<br />

Godfather’s Pizza Inc.<br />

Gail M. Goodrich<br />

Toppy Goolsby<br />

Greater Boston Chamber<br />

of Commerce<br />

Greene Turtle<br />

Lynn A. Hancock<br />

Kathryn M. Hansen<br />

Dorothy J. Hargrove<br />

Dr. Allen H. Henderson<br />

Helen E. Hession<br />

Dr. Karen Heusinkveld<br />

Laura J. Hilderley<br />

Jill Hodges<br />

Kelly A. Howley<br />

Dr. Elmer E. Huerta<br />

Russell N. Huffer<br />

Nancy Hughes<br />

Imagers<br />

Infocision Management<br />

Corporation<br />

Ivy Pearl Foundation<br />

Katrina E. Kamm<br />

James K. Knox<br />

Ellen Israel<br />

Kazuyoshi Iwamoto<br />

Jennifer Johnson<br />

Jayne Jones<br />

Angela Kegler McDowell<br />

Robert J. Kelley<br />

Brian D. Key<br />

Dr. Howard B. Kleckner<br />

Maria J. Koumantaros<br />

Michael Kulik<br />

Lake Research Partners<br />

Martin R. Larsen<br />

Liberty Mutual<br />

Drs. Ina & Abe Lieberman<br />

Sharon P. Light<br />

Darrell A. Lindman<br />

John (Randy) Linduff<br />

Christopher Loiacono<br />

Eva Loken<br />

Dr. Dan D. Lydiatt<br />

Margaret Mary Community<br />

Hospital<br />

Brian A. Marlow<br />

Marriott International Inc.<br />

Marc J. Marotta<br />

Jeffrey A. Martin<br />

Auda T. Martinez<br />

Nancy Mathis<br />

Mary M. McDonald<br />

Anthony McLean<br />

Peter Meade<br />

Dave Mills<br />

Jazmin Miranda-Smith<br />

Robert Mitchell<br />

Wendy P. Moran<br />

Munder Capital Management<br />

National Investment<br />

Services Inc.<br />

Mary O. Nichols<br />

Noel J. Oates<br />

Margaret K. Offerman<br />

Steve Ohlenkamp<br />

Old National Bancorp<br />

Olson Hagel & Fishburn LLP<br />

Yvonne C. Pache<br />

Janet S. Parker<br />

Kim Pendarvis<br />

Brice R. Pontious<br />

Proforma<br />

Public Health Institute<br />

Qdoba Mexican Grill<br />

Ujwala Rajgopal<br />

Dr. Susan M. Rawl<br />

Desiree Roach<br />

Catherine A. Roberts<br />

Neil J. Robertson<br />

Karen M. Rouse<br />

Rob Sartin<br />

Jeff & Julie Schoenfeld<br />

Karen A. Schulz-Perez<br />

Randy H. Schwartz<br />

Allen D. Segal<br />

Side Pocket Foods Co.<br />

Sierra Health Services Inc.<br />

Michael L. Siler<br />

Burleigh L. Singleton<br />

Solari Hospice Care LLC<br />

Dr. Christopher A. Squier<br />

Alice A. Steffensen<br />

Stein Distributing Company Inc.<br />

Richard W. Stilwell<br />

Richard N. Sullivan<br />

Summitt Credit Union<br />

Gretchen H. Tegeler<br />

Terre Haute Regional Hospital<br />

Mary L. Thornhill<br />

Total Graphic Solutions<br />

Trek Bicycle Corporation<br />

Stacy L. Truax<br />

Turnkey Promotions<br />

James A. Tupper<br />

Dr. Eric Vallieres<br />

Visiting Nurse Association of<br />

the Wabash<br />

Stevie Vildibill<br />

Julia A. Wagner<br />

Liz Weisgerber<br />

Frederick J. Wenzel<br />

Dr. Gerald L. Woolam Jr.<br />

World Asset Management<br />

Leader’s Circle<br />

$250 - $499<br />

Adaptive Mediquip Inc.<br />

Jennifer L. Adzima<br />

Aetna Inc.<br />

Holly Agne<br />

Dr. Tenley E. Albright<br />

Charles H. Allen<br />

Karen P. Alexander<br />

Gregory C. Alwood<br />

<strong>American</strong> Post Shores Inc.<br />

AMGEN Inc.<br />

Dr. Richard Anderson<br />

Margaret L. Anderson Keane<br />

Anthem Blue Cross Blue Shield<br />

Cindy M. Antolik<br />

Stephen John Arkinstall<br />

David F. Arons<br />

Dr. Jameel Audeh<br />

James R. Austin<br />

Lesley K. Austin<br />

Patricia S. Avery<br />

Vic Ayers<br />

Carol L. Baker<br />

Robi Bannon<br />

Susan W. Barron<br />

Basta Mangiare of Peoria<br />

Dr. Tracy A. Battaglia<br />

Barbara B. Behal<br />

James A. Bergeron<br />

Birdie McKenna’s<br />

Joanna Bichsel<br />

Steve C. Biever<br />

Francine P. Bion<br />

Joanne C. Blos<br />

George Ann Blough<br />

Linda Blount<br />

Becky Bogard<br />

34


Mary Borrelli<br />

Jack Brandabur<br />

J.J. Bridge<br />

Patricia Brinton<br />

Dr. Samuel Britt II<br />

Dr. Bruce H. Brumm<br />

Connie Burns<br />

Nathan D. Bush<br />

Theresa A. Buster<br />

Paula J. Butler<br />

Ronald J. Butler<br />

Judith E. Calhoun<br />

James M. Cantwell<br />

Sandra C. Cassese<br />

Emilio & Helen J. Cadamagnani<br />

Dr. Blake Cady<br />

Cathryn C. Callaway<br />

Joan M. Cambray<br />

Dr. Umberto E. Capuano<br />

Jon S. Carlson<br />

Hilary E. Casillas<br />

The Catering Company<br />

Audra & Wayne Chai<br />

Gale Champion<br />

Anna Chanakas<br />

Robert T. Chapman<br />

Citizens for Jake Zimmerman<br />

Lynn M. Claudon<br />

Debra J. Cohen<br />

Chris Colbert<br />

Margaret Conlon<br />

Dr. Wil Counts<br />

Diane L. Cristina<br />

Barbara Crowe<br />

Randy J. Dahl<br />

Jim Danek<br />

John A. Daniel<br />

Dawson & Gerbic LLP<br />

Kristy E. Deaton<br />

James Delellis<br />

Steven M. Derks<br />

Diamond Jaxx Baseball<br />

Club LLC<br />

Barbara & Eric Dobkin<br />

Joyce J. Dolbec<br />

Downers Grove Junior<br />

Women’s Club<br />

Duke Energy<br />

Dr. Joel S. Dunnington<br />

Ear Nose & Throat Associates<br />

Jerry B. Edmonds<br />

Julie S. Erickson<br />

Brianna C. Evans<br />

Dr. Galen M. Eversole<br />

Exeter Country Club Inc.<br />

Margaret M. Farina<br />

Kristi E. Farver-Oaks<br />

Rollin Fatland<br />

Fead Construction Law PLC<br />

Valerie Fein-Zachary<br />

Burton R. Feldstein<br />

Tonya L. Fier<br />

Jack Fischer<br />

David Fitterer<br />

Richard L. Fitzgerrell<br />

Martin E. Flynn<br />

Rita C. Forden<br />

Forest City Enterprises<br />

Zachary A. Fortsch<br />

Kenneth C. Francis<br />

Joseph M. Franco Jr.<br />

Jane Fulgham<br />

Tonnie Furjanic<br />

Gally Public Affairs Inc.<br />

Gamestop<br />

Gas & Electric Credit Union<br />

Scott A. Gasiorek<br />

Norma J. Gecks<br />

Tina F. Gill<br />

Daniel Gorski<br />

Ann C. Gouré<br />

Carole E. Granderson<br />

Holly H. Grant<br />

Dawn Green<br />

Abby Greensfelder<br />

Jerry P. Guinane<br />

Gyn Oncology Associates PL<br />

Gregg H. Haifley<br />

Ken Hamm<br />

Adnan Hammad<br />

Trista L. Hargrove<br />

Ed Harlow<br />

Dr. Lauralee Harris<br />

Julie Hart<br />

Kevan L. Hartshorn<br />

Alissa Havens<br />

Hayden Beverage Company<br />

Ronald R. Hecht<br />

Dr. Alan C. Henderson<br />

Patricia L. Henson<br />

Mary Jo Heston<br />

H. Hirschmann Ltd.<br />

Hildebrand Tewes<br />

Consulting Inc.<br />

Robert V. Hilkemann<br />

Holland-Mark<br />

David W. Holmquist<br />

Dana B. Hopkins<br />

Jon R. Hornaday<br />

Keri R. House<br />

Scott F. Huizenga<br />

Jacqueline A. Hutchinson<br />

William Huttemann Jr.<br />

Suzanne A. Hyman<br />

Marc C. Hymovitz<br />

Steve A. Idelman<br />

Jake’s Bar & Grille<br />

Emilia H. Jankowski<br />

Helen E. Jankowksi<br />

Dr. Robert Lee Jennings<br />

Laurie L. Jensen-Wunder<br />

Norma V. Jeter<br />

John T. John<br />

Lila R. Johnson<br />

Amy J. Johnson Boyle<br />

Bernard M. Jones<br />

Pamela Kantor<br />

Wendy Kaplan<br />

Kevin T. Keane<br />

Robin N. Kelleher<br />

Carole & Morty Kessler<br />

Rebecca A. Kirch<br />

Michangelo Kittrell<br />

Calvin Knight<br />

Steven R. Kreamer<br />

John K. Kyger<br />

Martin R. Larsen<br />

Dr. Eva K. Lean<br />

Cynthia M. LeBlanc<br />

Diana C. Lehet<br />

Gary A. Leipheimer<br />

Helen P. Leipold<br />

Patricia S. Leonhard<br />

Anne L. Levine<br />

Diane M. Lewandowski<br />

Ted Lewis<br />

Wayne E. Lewis<br />

Stephen R. Litzow<br />

Richard A. Lombardi<br />

Barbra Luct-Turner<br />

Zack Lynch<br />

Joseph R. Mahoney<br />

Carol L. Maiello<br />

Rene P. Mallen<br />

Denise M. Martin<br />

Judy I. Massong<br />

Kevin Mathis<br />

Patricia B. May<br />

Charlene D. McCaskey<br />

Jan A. McCaugherty<br />

Sally McCurdy<br />

Cheri McIntosh<br />

Mr. & Mrs. Gary McMullen<br />

Mid<strong>American</strong>/Ficht Services<br />

Sheppard Miers<br />

Jay D. Miller<br />

Steve J. Miller<br />

Brian D. Monaghan<br />

Barbara C. Morgan<br />

Michael Murphy<br />

Laura E. Nathan<br />

Danell W. Nedom<br />

New Hampshire Center for<br />

<strong>Cancer</strong> Medicine<br />

Barbara C. Nickles<br />

Jessica Niles<br />

David L. Nixon<br />

Cheryl Olsen<br />

Erin C. O’Neill<br />

O’Niell’s Pub, Inc.<br />

Anne B. Palmer<br />

James R. Parker<br />

Sherry L. Parker<br />

Denise M. Passinetti<br />

Nathaniel Peniston<br />

Bruce A. Peterson<br />

Melissia Petro<br />

Edward W. Pettigrew<br />

Pick N For A Cure<br />

Sandra M. Pihos<br />

Christine C. Pidwell<br />

Rosalie C. Plechaty<br />

Cherilyn R. Pollard<br />

Ellen Prandi<br />

Phillip H. Prange<br />

Jack H. Presbury<br />

Steve Presley<br />

Kathy Psutka<br />

Skip Quint<br />

Larry Ream<br />

Erin B. Reidy<br />

David A. Reynolds<br />

Jamie Riccobono<br />

Paul K. Richards<br />

Katie Riley<br />

Phillips W. Robbins<br />

Lesa M. Robison<br />

Megan A. Roether<br />

Dr. David S. Rosenthal<br />

Dr. Frank Rotolo<br />

Marilyn P. Rouvelas<br />

Charles Royer<br />

Elisa Rudolph-Perez<br />

Cindy C. Rutherford<br />

Teresa M. Rutherford<br />

Roger Sametz<br />

Ed Sato<br />

Albert Savegnago<br />

Lisa Beyer Scanlon<br />

Nancy J. Scharfeld<br />

Deborah S. Schiro<br />

Marvin Schurgin<br />

Kristen L. Schloss<br />

Christy Schmidt<br />

Linda C. Schmidt<br />

Robianne K. Schultz<br />

Claire L. Sharp<br />

Craig H. Shaver III<br />

Christine J. Shaw<br />

Rebecca J. Sherwood<br />

Cherie K. Shoemake<br />

Dr. Timothy Sielaff<br />

Jolene C. Silbaugh<br />

Brianne Simon<br />

Debborah Smith<br />

Megan O. Smith<br />

Monica L. Smith<br />

Patrick Smith<br />

Smith Bryan & Myers Inc.<br />

Thomas R. Smothers<br />

Dawn A. Snapp<br />

Norma H. Spoonemore<br />

Glena Snow<br />

Tash R. Sogg<br />

Mark Speers<br />

Mary H. Spillane<br />

Rebecca K. Stafford<br />

Johnson L. Stambaugh<br />

Christopher C. Stead<br />

Jerry N. Stehlik<br />

Jack W. Steinmeyer<br />

Laura L. St. Germain<br />

Julie A. Strzyzewski<br />

James W. Stubner<br />

D.J. Sullivan<br />

Donald P. Sullivan<br />

Dru Szczerba<br />

Dr. Ronald Szoc<br />

Karina Tabor<br />

Patricia J. Tate<br />

Nancy M. Thornborrow<br />

Rachel J. Townshend<br />

Kristine B. Travaglini<br />

Ken P. Tupa<br />

Jaimie Vickery<br />

Mary Beth Warner &<br />

Bernhard Streitwasser<br />

Deirdra M. Ward<br />

Nancy Watkins<br />

Kristine P. Weaver<br />

Weaver Ridge Golf Course<br />

Dr. David R. Webb<br />

Steven C. Weiss<br />

Judy M. Wheat<br />

Ann E. Wheet<br />

Dr. Richard L. White<br />

Stewart E. White<br />

Suzanne S. White<br />

Wiggin & Nourie PA<br />

Scott Williams<br />

Carolyn P. Williams-Goldman<br />

Robert N. Willman<br />

Jan C. Willoughby<br />

Andrew Wilson<br />

Kristine R. Wilson<br />

Phylecia Wilson<br />

Robert Wood<br />

David P. Woodmansee<br />

Richard Woodruff<br />

Leonard A. Yerkes III<br />

Carma J. Yoder<br />

Dr. Robert C. Young<br />

Dr. Herb Zaretsky<br />

Evelyn G. Zneimer<br />

35


CAN<br />

Opener<br />

A large fundraiser held in the District of Columbia area, the annual CAN Opener brings together<br />

hundreds of activists and cancer survivors from across the country to support ACS CAN. Equal parts rally<br />

and recognition, the event gives ACS CAN an opportunity to honor leaders who have demonstrated<br />

exceptional strength in the fight against cancer. In 2008, the CAN Opener hosted the second successful<br />

“AmeriCAN Idol” competition, which showcased talent from the <strong>Society</strong>’s Divisions.<br />

36


SPECIAL<br />

Thanks<br />

Listed below are individuals and organizations that have helped to make 2008 such a successful year in advocacy. The list is by no means exhaustive,<br />

so an additional thank you is extended to those not specifically mentioned. Please know that your contributions did not go unnoticed.<br />

ACS CAN Board of Directors<br />

<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> National Board of Directors<br />

<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> Division Boards of Directors<br />

State Lead Ambassadors<br />

Ambassador Constituent Teams<br />

<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> Staff<br />

<strong>American</strong> <strong>Cancer</strong> <strong>Society</strong> Division Staff<br />

ACS CAN Staff<br />

Coaches vs. <strong>Cancer</strong> ®<br />

Jim Boeheim, Syracuse University<br />

Jim Calhoun, University of Connecticut<br />

Fran Dunphy, Temple University<br />

Mark Gottfried, University of Alabama<br />

Gary Williams, University of Maryland<br />

Colleges Against <strong>Cancer</strong> SM – for work on Michelle’s Law<br />

Making Strides Against Breast <strong>Cancer</strong> ®<br />

Relay For Life ®<br />

The Honorable Lois Capps<br />

The Honorable Steve J. Israel<br />

The Honorable Sue Myrick<br />

The Honorable Deborah Pryce<br />

The Honorable Sam Brownback<br />

The Honorable Dianne Feinstein<br />

Joseph Allen Photography<br />

Crystal City Florist<br />

K&L Gates<br />

Georgetown Cupcake<br />

Kilpatrick & Stockton, L.L.P.<br />

McKenna, Long & Aldridge, L.L.P.<br />

The AmeriCAN Idol Contestants<br />

37


Greg Bontrager<br />

Otis W. Brawley, MD<br />

The Honorable Benjamin Cardin<br />

Gail Carey<br />

Deborah J. Cornwall<br />

Wanda D. Filer, MD<br />

Thenice “Ten” Gall<br />

The Honorable Newt Gingrich<br />

The Honorable Brian Higgins<br />

Laura J. Hilderley, RN, MS<br />

Elmer E. Huerta, MD, MPH<br />

Andy Huff<br />

Christopher “CJ” Jacobson<br />

Celinda Lake<br />

Tommy McFly<br />

Karen Moffitt, PhD<br />

Marion Morra, MA, ScD<br />

The Morse Family<br />

The Honorable Jane Nelson<br />

Kelly Pavlik<br />

Gary M. Reedy<br />

Mark Rubin<br />

John R. Seffrin, PhD<br />

Frank Shoemaker<br />

Eric Taylor, MD, FACR, FACRO<br />

Alan Thorson, MD, FACS<br />

Karen Tumulty<br />

Corey Willman<br />

Tom Willner<br />

Robert E. Youle, Esq.


www.acscan.org

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