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Evaluating the Adult with Cerebral Palsy for ... - Physical Therapy

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<strong>Evaluating</strong> <strong>the</strong> <strong>Adult</strong> <strong>with</strong> <strong>Cerebral</strong> <strong>Palsy</strong> <strong>for</strong><br />

Specialized Adaptive Seating<br />

LYNDA HOLLETT HUNDERTMARK<br />

<strong>Physical</strong> <strong>the</strong>rapists may not expect to have a pronounced effect on <strong>the</strong> neurodevelopmental<br />

function of <strong>the</strong> cerebral palsied adult because <strong>the</strong> neuroplasticity<br />

of <strong>the</strong> child is no longer present in <strong>the</strong> adult. Adapting <strong>the</strong> environment to such<br />

an adult, <strong>the</strong>re<strong>for</strong>e, becomes of utmost importance. The wheelchair may be <strong>the</strong><br />

most important structure of <strong>the</strong> environment <strong>for</strong> cerebral palsied adults. I present<br />

methods <strong>for</strong> assessing <strong>the</strong> severely involved adult client and evaluating adaptations<br />

of <strong>the</strong> wheelchair <strong>for</strong> <strong>the</strong>rapeutic seating. The anterior and posterior tilt of<br />

<strong>the</strong> pelvis and <strong>the</strong> vertical angle of <strong>the</strong> backrest are emphasized in achieving<br />

<strong>the</strong>rapeutic seating <strong>for</strong> <strong>the</strong> severely multiply handicapped adult.<br />

Key Words: <strong>Adult</strong>, <strong>Cerebral</strong> palsy, Wheelchair.<br />

Adaptive seating <strong>for</strong> severely disabled cerebral palsied children<br />

has been a subject of increasing concern in recent years.<br />

The literature, however, has rarely addressed <strong>the</strong> needs of<br />

adults <strong>with</strong> cerebral palsy. As physical <strong>the</strong>rapists, we have<br />

often focused our attention on mobile and changing children<br />

<strong>with</strong> cerebral palsy. Many severely multiply handicapped<br />

adults, however, also require <strong>the</strong> knowledge and skills of<br />

physical <strong>the</strong>rapists to adapt <strong>the</strong> environment to individual<br />

needs. Adaptive seating may be <strong>the</strong> most important device<br />

available <strong>for</strong> any client who cannot be com<strong>for</strong>tably, safely,<br />

and functionally seated in a commercially available wheelchair.<br />

The adaptive wheelchair should be "<strong>the</strong>rapeutically" designed<br />

to improve <strong>the</strong> overall function of <strong>the</strong> client. Goals<br />

may include providing increased mobility <strong>for</strong> <strong>the</strong> client or<br />

improving <strong>the</strong> client's posture, muscle tone, or ability to eat,<br />

digest, and brea<strong>the</strong> properly. Interaction <strong>with</strong> <strong>the</strong> environment<br />

from <strong>the</strong> upright position may also enhance psychosocial<br />

and cognitive development of <strong>the</strong> client.<br />

In my experience, most adult clients requiring highly specialized<br />

seating have severe extensor spasticity. Nearly all <strong>the</strong>se<br />

clients have severe scoliosis <strong>with</strong> vertebral rotation, and many<br />

retain early developmental reflexes (tonic labyrinthine reflex<br />

and tonic neck reflexes) that impair or prevent normal functioning.<br />

With rare exceptions, adult clients have moderate or<br />

severe contractures that are often permanently fixed. These<br />

problems often preclude seating in commercial wheelchairs<br />

<strong>with</strong>out extensive adaptations.<br />

The <strong>the</strong>rapeutic success of <strong>the</strong> adapted seat depends on <strong>the</strong><br />

accuracy and comprehensiveness of <strong>the</strong> initial seating assessment.<br />

Sitting posture, tone, reflex patterns, and musculoskeletal<br />

limitations must be accurately assessed in <strong>the</strong> upright<br />

position. The appearance of symmetrical posture is often<br />

deceptive when <strong>the</strong> trunk, pelvis, hip, and knees are not<br />

carefully observed <strong>with</strong> clothing removed. The purpose of this<br />

Ms. Hundertmark was Program Coordinator <strong>for</strong> <strong>Physical</strong> <strong>Therapy</strong>, Wassaic<br />

Developmental Center, Wassaic, NY, at <strong>the</strong> time this article was written. She<br />

is now a consultant and educator in <strong>the</strong> field of adaptive equipment and<br />

developmental disabilities in private practice, R.D. 2, Clove Valley Rd, La-<br />

Grangeville, NY 12540 (USA).<br />

This article was submitted March 16, 1984; was <strong>with</strong> <strong>the</strong> author <strong>for</strong> revision<br />

14 weeks; and was accepted August 16, 1984.<br />

article is to suggest a method <strong>for</strong> assessing severely multiply<br />

handicapped adults <strong>for</strong> adaptive seating. I discuss observations<br />

of changes of tone, reflexes, and normal reactions as seating<br />

positions are altered. I explain <strong>the</strong> "fitting chair" and assessment<br />

of <strong>the</strong> orientation of <strong>the</strong> client in relation to gravity in<br />

<strong>the</strong> chair. Finally, I present problems inherent in wedging <strong>the</strong><br />

wheelchair seat and reclining <strong>the</strong> seat insert to overcome<br />

extensor spasticity.<br />

ASSESSMENT<br />

The <strong>the</strong>rapist working <strong>with</strong> children may assess changes of<br />

postural tone and reflexes as <strong>the</strong>y are carried, moved in <strong>the</strong><br />

lap of <strong>the</strong> <strong>the</strong>rapist, and placed in different positions. Children<br />

may often be hypotonic ra<strong>the</strong>r than spastic, are also more<br />

mobile, and will almost certainly change during <strong>the</strong> growing<br />

process. 1 <strong>Adult</strong>s, on <strong>the</strong> o<strong>the</strong>r hand, are frequently more fixed<br />

in <strong>the</strong>ir movement patterns. They may have learned to use<br />

abnormal reflexes functionally or to "fix" <strong>with</strong> spasticity<br />

against a backrest or calf panel <strong>for</strong> stability. Only a careful<br />

and precise assessment of <strong>the</strong> client can determine how <strong>the</strong><br />

client may gain or lose function <strong>with</strong> various adaptations.<br />

The client should be evaluated in <strong>the</strong> sitting position over<br />

<strong>the</strong> side of a mat table. Beginning at <strong>the</strong> pelvis, 24 particular<br />

attention must be paid to anterior and posterior tilt and to<br />

lateral symmetry because restriction in any direction will<br />

cause changes throughout <strong>the</strong> body. For <strong>the</strong> very involved<br />

client, <strong>the</strong> <strong>the</strong>rapist may assume a position behind <strong>the</strong> client,<br />

knees astride <strong>the</strong> client, and hands on <strong>the</strong> pelvic crests. An<br />

assistant may stabilize <strong>the</strong> client's feet and knees at or as near<br />

90 degrees as possible <strong>with</strong> <strong>the</strong> thighs evenly supported on <strong>the</strong><br />

mat. With this high degree of support and control at <strong>the</strong><br />

pelvis, <strong>the</strong> <strong>the</strong>rapist slowly shifts <strong>the</strong> client's weight laterally,<br />

<strong>for</strong>ward, and backward. The <strong>the</strong>rapist may need to use her<br />

own body to shift <strong>the</strong> client's entire trunk <strong>for</strong>ward from <strong>the</strong><br />

pelvis, sometimes rotating <strong>the</strong> client's trunk to encourage<br />

relaxation. The <strong>the</strong>rapist must accurately assess <strong>the</strong> position<br />

of <strong>the</strong> superior iliac spines as <strong>the</strong> trunk is moved to assure<br />

that apparent movement of <strong>the</strong> pelvis is not in fact occurring<br />

in <strong>the</strong> back. The <strong>the</strong>rapist should note if reflexes or abnormal<br />

Volume 65 / Number 2, February 1985 209<br />

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