ART FOR AIDS IV - AIDS Services Foundation Orange County
ART FOR AIDS IV - AIDS Services Foundation Orange County
ART FOR AIDS IV - AIDS Services Foundation Orange County
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MARCH-APRIL 2005<br />
www.ocasf.org<br />
www.aidswalk.org/oc<br />
WORLD<br />
<strong>AIDS</strong><br />
1,000,000<br />
AND<br />
COUNTING…<br />
P. 8<br />
DAYP. 6<br />
<strong>ART</strong> <strong>FOR</strong> <strong>AIDS</strong> <strong>IV</strong><br />
AN EVENING WITH CYBILL SHEPHERD P. 4<br />
SOMOS<br />
Spanish<br />
outreach program P. 10
inside this issue<br />
FEATURES<br />
<strong>ART</strong> <strong>FOR</strong> <strong>AIDS</strong> <strong>IV</strong> 4<br />
An evening with Cybill Shepherd<br />
WORLD <strong>AIDS</strong> DAY 6<br />
A reminder of the continuing global crisis<br />
CLIENT ADVISORY COUNCIL 7<br />
Members sponsor a Nigerian orphan<br />
1,000,000 AND COUNTING 8<br />
H<strong>IV</strong> as a global pandemic<br />
CLIENT SURVEY RESULTS 9<br />
SOMOS 10<br />
ASF’S Spanish outreach program<br />
DEP<strong>ART</strong>MENTS<br />
INTRODUCTION 3<br />
RECENT EVENTS 7<br />
PATRON’S COUNCIL 14<br />
MEMORIALS & TRIBUTES 15<br />
SPECIAL THANKS 16<br />
BOARD OF DIRECTORS<br />
Officers<br />
Al Roberts<br />
Board President<br />
Karen Ellis<br />
Board Vice President<br />
Jorge Rodriguez, M.D.<br />
Board Secretary<br />
Mark Guillod<br />
Board Treasurer<br />
Members<br />
Frank Bianchini<br />
Hung Fan, Ph.D.<br />
Risa Groux<br />
Daniel Haspert, M.D.<br />
Arnold Henson, M.D.<br />
Dale Jenkins<br />
Ken Jillson<br />
Janice Johnson<br />
Nathan Jurczyk<br />
David Kiff<br />
Denise Lavigne<br />
James Loomis<br />
Maria Marquez, M.S., M.F.T.<br />
Mark Merhab<br />
Judith O'Dea-Morr<br />
Judith Rosenthal<br />
Alexander Wentzel<br />
As a way to cut back on production and printing costs, ASF<br />
has decided to publish the Spanish version of The Voice on<br />
our website at www.ocasf.org<br />
We want to make sure that everyone has the opportunity to<br />
read The Voice, so we would appreciate your feedback on<br />
this change.<br />
Please contact: Jamie Jaffe, Communications Coordinator at<br />
jjaffe@ocasf.org or 949-809-8763<br />
On the cover: Cybill Shepherd entertains a rapt audience at Art for <strong>AIDS</strong> <strong>IV</strong>.<br />
Editor<br />
Jamie Jaffe<br />
Design & Layout<br />
Gillian Kirkpatrick<br />
King Graphic Design<br />
Printing<br />
Ken Sakata<br />
Litho Communications
from the<br />
President of the Board<br />
& the Executive Director<br />
As Spring approaches, we should take the time to reflect on the<br />
New Year’s resolutions that we made three months ago. Most<br />
of us commit to such goals as starting a diet, joining a gym<br />
(and actually going), and attempting to quit bad habits.<br />
Resolutions are the way we reconsider how we live our lives<br />
and how we can begin to make smart changes. Some resolutions are<br />
serious commitments for change while others get deferred, year after<br />
year, until the following January. As we consider the resolutions that<br />
we made, we often reflect on our successes and failures, contemplate<br />
our hopes realized and dreams forgotten, and consider what we have<br />
learned and how we can apply it to the future.<br />
When thinking of our past, it’s hard not to remember the loved<br />
ones we’ve lost and the heroes who have been instrumental in<br />
improving lives. One such hero recently retired from her efforts.<br />
Pearl Jemison-Smith, a founding Board member and a dynamic community<br />
advocate, has left the Board of Directors. The absence of her<br />
strength and wisdom will continue to leave an enormous gap at ASF.<br />
Since the first deadly years of the epidemic, Pearl helped shape and<br />
develop ASF and H<strong>IV</strong>/<strong>AIDS</strong> services for the entire county. She advocated<br />
for quality services for H<strong>IV</strong>/<strong>AIDS</strong> patients, helped heal many<br />
ailing souls, and acted as a community leader unlike any other in<br />
<strong>Orange</strong> <strong>County</strong>. While we cannot hope to replace her, she will always<br />
be part of the ASF family.<br />
ASF has also recently lost client and board member, Denise<br />
Lavigne, who passed away in early February. Denise spent the last 15<br />
years volunteering for ASF representing and leading the fight for<br />
those living with H<strong>IV</strong>/<strong>AIDS</strong>. As chair of our Client Advisory<br />
Committee, Denise worked to improve and develop ASF programs<br />
and the lives of those facing the hardships brought on by H<strong>IV</strong>/<strong>AIDS</strong>.<br />
Denise’s immeasurable spirit, energy and passion will forever be a<br />
part of ASF. No matter the circumstance, she stood up for what she<br />
believed in and faced each obstacle head on-she would let nothing<br />
get in her way. Her laughter and humor made us sometimes forget<br />
that she was struggling to live with the discomforts brought on by<br />
H<strong>IV</strong>/<strong>AIDS</strong>. At ASF, we will use Denise’s memory to remind us why<br />
we continue to do what we do. We will remember her courage and<br />
let it be a reminder of the thousands of others that depend on the<br />
services of ASF.<br />
All things considered, it seems that the one constant in life is<br />
change. As we look forward to the future, ASF is facing its twentieth<br />
anniversary in the fall of 2005. When ASF was founded in 1985, no<br />
one could have suspected it would be around twenty years later.<br />
People thought the H<strong>IV</strong>/<strong>AIDS</strong> epidemic would be short-lived. We<br />
thought that our ultimate goal of finding a cure and a vaccination<br />
would be reached within ten years. But each year that goal has been<br />
pushed back, much like a New Year’s resolution never attained. Now<br />
researchers are suggesting that a vaccination is at best fifteen years out<br />
and a cure seems unlikely.<br />
As a result, we are always assessing our work and determining new<br />
directions and goals for the future. Some of those goals are determined<br />
by changes in the H<strong>IV</strong>/<strong>AIDS</strong> service system, such as the<br />
recent decision of UCI Medical Center to eliminate its Ryan White<br />
“ 2005, like every other year, will bring changes, challenges,<br />
and growth to ASF. We're prepared to confront the<br />
challenges and to institute changes that will make us<br />
stronger and more able to serve those who need us. As<br />
always, we welcome your thoughts and feedback. Please<br />
don't hesitate to contact us. With your support we can<br />
continue to help those living with H<strong>IV</strong>/<strong>AIDS</strong> and educate<br />
others on how to protect tomorrow's generation.”<br />
Above: Alan Witchey (left) & Al Roberts at a recent fundraising event<br />
Specialty Medical Care <strong>Services</strong>. To compensate for this, we’ll need<br />
to find new providers willing to accept our clients. As we write this,<br />
we don’t yet know how all that will turn out. Another alarming story<br />
came in the form of a new strain of H<strong>IV</strong> that surfaced in New York<br />
City and San Diego. This strain leads to an <strong>AIDS</strong> diagnosis in a few<br />
months and is resistant to all known medications. Developments<br />
such as these require us to work faster, smarter, and better than we<br />
have before.<br />
So, we must remain true to our original goal of providing health<br />
and hope for as long as we are needed. In striving to stay true to our<br />
commitment, we’ve sought feedback from clients, donors, volunteers,<br />
and other community members concerning how ASF should<br />
evolve in 2005. In the coming months we will execute the following:<br />
1) Conduct a full assessment of our current services to determine<br />
how or if we can enhance them; 2) Determine the feasibility of ASF<br />
offering medical services; 3) Explore ways to expand our services<br />
and/or our mission; and 4) Take every effort to prevent the continued<br />
spread of H<strong>IV</strong> in our community.<br />
Perhaps the most adventurous goal is the exploration of offering<br />
medical services. We’ve begun to look at this issue because so many<br />
of our impoverished clients are struggling to access medical care and<br />
recent research has suggested that when medical services are offered<br />
on-site with social services like those at ASF (case management,<br />
mental health, food, transportation, etc.), people are more likely to<br />
utilize them. Across the country, H<strong>IV</strong>/<strong>AIDS</strong> organizations are beginning<br />
to consider the option of providing medical services. While we<br />
haven’t made a decision yet, we will be evaluating the possibility over<br />
the next year.<br />
—Al Roberts, Board President & Alan Witchey, Executive Director<br />
THE VOICE MAR/APR 05 3
art for aids <strong>IV</strong><br />
an evening with Cybil Shepherd<br />
Another evening of art and elegance has passed as Art for <strong>AIDS</strong> <strong>IV</strong>, the fourth annual event<br />
benefiting <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong> <strong>Orange</strong> <strong>County</strong> (ASF) and Laguna Art Museum, took place on Saturday,<br />
February 5, 2005 in the Pacific Ballroom of The St. Regis Monarch Beach Resort and Spa in Dana Point, CA. The<br />
evening, full of glitz and glamour, spotlighted the blonde beauty herself, Cybill Shepherd, as she<br />
took center stage in the role of the evening’s celebrity guest and performer.<br />
Returning event chairs-Jack Kenefick from Laguna Art Museum, Arnie Klein, M.D.,<br />
Founding Director, American <strong>Foundation</strong> for <strong>AIDS</strong> Research (amfAR) and<br />
Founding President of ASF Al Roberts—reunited the partnership between ASF<br />
and Laguna Art Museum in an effort to sustain the important work performed by<br />
each organization. In a statement made together, the group felt it was important<br />
to express the value of the relationship.<br />
“Each year, Art for <strong>AIDS</strong> creates an opportunity for our organizations to<br />
open their doors to each other. It creates an evening where two communities<br />
can come together and demonstrate their support for the visual arts and<br />
the H<strong>IV</strong> and <strong>AIDS</strong> epidemic in <strong>Orange</strong> <strong>County</strong>.”<br />
The night’s festivities began with cocktails, conversation, and a silent<br />
auction, all which created the perfect setting for supporters of<br />
both organizations to mix and mingle. Once the crowd had<br />
taken their seats in the exclusive Pacific Ballroom, they<br />
were presented with a magnificent buffet dinner prepared<br />
by some of the finest restaurants in <strong>Orange</strong><br />
<strong>County</strong>. Places such as 5', Aqua, and Chat Noir prepared<br />
delicacies unique to their eatery’s style of cuisine<br />
and set up culinary stations around the ballroom<br />
for guests to indulge in and enjoy.<br />
After all had the opportunity to eat, drink and be<br />
merry, the excitement continued as the live auction<br />
took the stage and the bidding began. Hollywood<br />
favorite, Carrie Fisher, had a front row seat again<br />
this year and took the stage to auction off several<br />
autographed copies of the Star Wars Trilogy that<br />
went for $700 each!<br />
Television star Shirley Jones also took part in<br />
the live auction as she modeled<br />
a diamond and platinum<br />
key pendent that was<br />
donated for auction by<br />
Tiffany’s.<br />
This year it was a privilege of<br />
both ASF and Laguna Art<br />
Museum to welcome Cybill<br />
Shepherd as the evening’s<br />
celebrity guest and performer.<br />
From the minute she took to the<br />
stage, the crowd was delighted<br />
and entertained by Ms. Shepherd’s<br />
intimate lounge-style performance<br />
complete with musical numbers,<br />
comedic stand-up, and readings from<br />
her book,“Cybill Disobedience”. q<br />
4 THE VOICE MAR/APR 05
Photos by Stan Sholik Photography<br />
Al Roberts, Shirley Jones, Ken Jillson, and Shirley Jones’<br />
husband, comedian Marty Ingles<br />
John and Kathy Meek, Diane and Johno Wells<br />
Ken Jillson took the stage and acted as MC<br />
for the live auction event<br />
Carrie Fisher signs the Art for <strong>AIDS</strong> <strong>IV</strong> poster that was sold<br />
for $1000 during the live auction<br />
Art for <strong>AIDS</strong> <strong>IV</strong> chairs Arnie Klein, M.D., Al Roberts,<br />
and Jack Kenefick of Laguna Art Museum<br />
Chris Brewer and Marilyn Brewer<br />
Mark Porterfield, Santina Davies, Sasha Fedortchez<br />
Debbie Simon and friend, Cybill Shepherd,<br />
Retha and Chris Champion<br />
Dwight Spiers, Al Roberts and Gordon Cowan<br />
Shirley Jones<br />
ASF client and guest speaker, Shirley LeGrand<br />
<strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong> <strong>Orange</strong> <strong>County</strong> and Laguna Art Museum would like to thank each and every sponsor, supporter and attendee of Art for <strong>AIDS</strong> <strong>IV</strong>. With your encouragement<br />
and assistance we were able to make this year’s event another success. This year’s donations and support of Art for <strong>AIDS</strong> <strong>IV</strong> contributed to the over a million dollars that has been raised<br />
since 2002. These efforts have, and will continue to, sustain the important work performed by co-organizers <strong>AIDS</strong> Service <strong>Foundation</strong> <strong>Orange</strong> <strong>County</strong> and Laguna Art Museum. For<br />
information about <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong> <strong>Orange</strong> <strong>County</strong> visit www.ocasf.org . For more information about Laguna Art Museum, visit www.lagunaartmuseum.org. The St. Regis<br />
Monarch Beach Resort and Spa website is www.stregismb.com.<br />
We are very grateful for the generous donation of services made by the following individuals and businesses to Art for <strong>AIDS</strong> <strong>IV</strong>:<br />
RESTAURANTS: 5' - Five Feet Restaurant, Michael Kang, Executive Chef • AQUA - The St. Regis Monarch Beach Resort & Spa - Bruno Chemel, Executive Chef • David Wilhelm’s Chat Noir, Costa Mesa, Chris Reischl, Exectutive Chef,<br />
Ryan Adams, Corporate Chef • Mark’s Catering - Mark and Melinda DePalma, Proprietors; Martín Gonzalez, Executive Chef • Motif Restaurant - The St. Regis Monarch Beach Resort & Spa, Executive Chef, Azmin Ghahreman • Plum’s Café &<br />
Catering, Costa Mesa, Kim Jorgenson, Principal • Saltwater Mexican Grill, Laguna Niguel, A. Michael Wenholz, Managing Partner • Sundried Tomato Café & Catering, Laguna Beach and San Juan Capistrano, Mark Jacobi, Proprietor<br />
BEVERAGES: Young’s Market Co. / The Estates Group, Vern Underwood and Bob Paterson • Starbucks Coffee Co. • Greg Erfani<br />
MEDIA: A&U • Coast Magazine • IN Los Angeles • KJZZ-88.1 FM • Laguna Independent • OC Weekly • <strong>Orange</strong> Coast • The Blade<br />
PRODUCTS AND SERVICES: John Anderson • Bill Atkins Graphic Design, Bill Atkins • Bradford Renaissance Portraits • Clinique Ergoniqe • Ferrari & Maserati of <strong>Orange</strong> <strong>County</strong> • Hampton Productions • hush • Gerald Ishibashi and<br />
Stonebridge • Jillson & Roberts • King Graphic Design, Gillian Kirkpatrick • Lisa Lotthouse • Mark’s Catering • Pacific Coast Flower Market • Peter Blake Gallery • Presentation <strong>Services</strong> - St. Regis Monarch Beach Resort & Spa • Primal<br />
Elements • Linda Roth • Schmid’s Fine Chocolates of San Clemente • Cybill Shepherd • Stan Sholik Photography • The Showpros Group, Inc. • Signature Party Rentals • The St. Regis Monarch Beach Resort & Spa • The Redfern Gallery •<br />
Tabu Grill • TCS-Total Communication <strong>Services</strong> • Ti Amo Ristorante • Tiffany and Co. • William Merrill Gallery • Woody’s at the Beach<br />
THE VOICE MAR/APR 05 5
world <strong>AIDS</strong> day<br />
On December 1 2004, ASF united together with Laguna<br />
Beach H<strong>IV</strong> Advisory Committee commemorated<br />
World <strong>AIDS</strong> Day. Along with <strong>AIDS</strong> Care Teams In<br />
Our Neighborhoods, Laguna Beach Community<br />
Clinic, The Gay and Lesbian Center, and Shanty OC,<br />
the groups joined together to form one powerful vision of<br />
action and hope.<br />
“It is vital that <strong>Orange</strong> <strong>County</strong> acknowledge the significance<br />
of World <strong>AIDS</strong> Day”, said Ruth Peters-Pak, ASF’s former<br />
Director of Health Education. “We may only make up a small<br />
section of the world, but our community contributes to the 40<br />
million people around the globe living with H<strong>IV</strong> today. The<br />
disease has a ripple effect. If we take on the fight in our own<br />
back yard, we in turn become part of the larger battle.”<br />
ASF accepted the call to duty by becoming part of Laguna<br />
Beach H<strong>IV</strong> Advisory Committee’s World <strong>AIDS</strong> Day commemoration.<br />
Staff members, health educators, and clients<br />
made their presence and objective known in the community<br />
by providing on-site education and information to the public.<br />
ASF’s Prevention with Positives, a program available in Spanish<br />
and English, was there to educate individuals who are living<br />
with H<strong>IV</strong> on safer sex practices, risk reduction techniques,<br />
positive sexual health, and suggestions for how to cope with<br />
living with H<strong>IV</strong>. ASF’s Primary Prevention program, directed<br />
towards high risk H<strong>IV</strong> negative individuals, also had health<br />
educators in attendance to answer questions and provide<br />
guidance to the public. They provided learning materials<br />
on how to maintain a healthy lifestyle and how people can<br />
protect themselves from contracting H<strong>IV</strong> and other sexually<br />
transmitted diseases.<br />
In addition to contributing their own specialized services,<br />
ASF also came together with the other participating organizations<br />
to strengthen the messages of World <strong>AIDS</strong> day. As a mark<br />
of respect and recognition, the group tied red ribbons on trees<br />
around Laguna Beach with the names of residents who have<br />
died of <strong>AIDS</strong> during the 20 years of the epidemic. ASF also<br />
supported the presence of the Laguna Beach Clinic mobile<br />
facility on the beach, which provided free H<strong>IV</strong> rapid testing for<br />
people to come without an appointment and receive their<br />
results in 20 minutes.<br />
The City of Irvine took official action and issued a proclamation in observance<br />
of World <strong>AIDS</strong> Day, Wednesday, December 1, 2004. Mayor Larry<br />
Agran signed the proclamation which calls for “tolerance, understanding<br />
and compassion in <strong>Orange</strong> <strong>County</strong> and around the world for everyone who<br />
is impacted and affected by H<strong>IV</strong> and <strong>AIDS</strong>”.<br />
ASF is most appreciative to Irvine Commissioner Mitch Goldstone, a member<br />
of ASF’s Public Policy Committee and long time friend and corporate<br />
sponsor of ASF and <strong>AIDS</strong> Walk, for arranging for this proclamation. Irvine has<br />
been the home of <strong>AIDS</strong> Walk for 18 years, since its inception, and the home<br />
of <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong>'s offices for more than 10 years.<br />
The City of Irvine has been a dedicated and loyal supporter of <strong>AIDS</strong><br />
<strong>Services</strong> <strong>Foundation</strong> and has shown great leadership and integrity in the<br />
fight against <strong>AIDS</strong> right here in <strong>Orange</strong> <strong>County</strong>. We thank Commissioner<br />
Goldstone, Mayor Agran, and the Irvine City Council for recognizing World<br />
<strong>AIDS</strong> Day 2004.<br />
6 THE VOICE MAR/APR 05<br />
“World <strong>AIDS</strong> Day is an opportunity once a year to remember<br />
those we have lost to <strong>AIDS</strong> and remind ourselves of the continuing<br />
global crisis of H<strong>IV</strong>/<strong>AIDS</strong>”, stated Tom Peterson, ASF’s Director of<br />
Public Policy. “At the same time, it is a day to recommit ourselves<br />
to the domestic H<strong>IV</strong> epidemic, and recognize that the global<br />
epidemic begins right here, caring for those living with H<strong>IV</strong>.”<br />
The day culminated with a candle light vigil led by Reverend<br />
Ron Hyrchuk of the South Coast Medical Center at Main<br />
Beach in Laguna. “<strong>AIDS</strong> has changed our lives and taken away<br />
our loved ones,” said Reverend Hyrcuck, “but as life carries on,<br />
we must take the time to stop and remember.” As a time of<br />
reflection, remembrance, and hope, the attending crowd of 50,<br />
each holding their candles close, shared aloud the names of<br />
those that had lost the battle to <strong>AIDS</strong>.<br />
For some, World <strong>AIDS</strong> Day is a time filled with grief for<br />
those who have lost the fight with <strong>AIDS</strong>. For others it is a day<br />
to seek out strength and faith in what the future may bring.<br />
World <strong>AIDS</strong> Day is a time for the world to be reminded that<br />
there is still no cure. We cannot forget that more than 20 million<br />
people have died from <strong>AIDS</strong>-related diseases since the<br />
beginning of the epidemic, and that an estimated 40 million<br />
people around the world today are living with H<strong>IV</strong>. q
MEMBERS SPONSOR<br />
A NIGERIAN ORPHAN<br />
client advisory committee<br />
Forty million people are living with<br />
<strong>AIDS</strong> worldwide. There are 3 million<br />
people estimated to be living with<br />
H<strong>IV</strong>/<strong>AIDS</strong> in the country of Nigeria<br />
where over a million children have been<br />
orphaned because of the <strong>AIDS</strong> epidemic.<br />
Sadly, this number is on the rise due to<br />
the high number of adults living with<br />
H<strong>IV</strong>/<strong>AIDS</strong> and their lack of accessibility<br />
to antiretroviral treatment.<br />
The H<strong>IV</strong>/<strong>AIDS</strong> outbreak in Nigeria<br />
brings about unimaginable devastation to<br />
the country, affecting both young and<br />
old. Among these overwhelming effects<br />
is the dramatic number of children,<br />
ranging in age from a few months to 18<br />
years old, orphaned by <strong>AIDS</strong>. These<br />
children, coping with the emotional<br />
stress and trauma of witnessing the<br />
deterioration and death of one or both<br />
parents are also faced with the significant<br />
decrease, if not complete loss, of household<br />
income. As a result, their quality of<br />
life, health, and education is radically<br />
diminished which can lead a child to<br />
abandon his or her education in exchange<br />
for a life of child labor.<br />
In many cases, orphans are left in the<br />
care of guardians or placed in foster care.<br />
While they are technically under adult<br />
supervision and protection, these children<br />
are more often than not subjected to<br />
violence, exploitation and abuse. Their<br />
guardians do not provide emotional<br />
support and the children are often malnourished<br />
and mistreated. They are not<br />
taught adequate social and life skills and<br />
do not learn to properly thrive and<br />
advance in society. The orphans who<br />
themselves are infected with H<strong>IV</strong>/<strong>AIDS</strong><br />
have no one to support them with the<br />
physical and emotional anguish brought<br />
on by the disease. They are not able to<br />
afford the cost of treating H<strong>IV</strong>-related illnesses,<br />
and do not know how to properly<br />
seek medical attention.<br />
ASF’s Client Advisory Committee<br />
(CAC) recognized this global issue. As<br />
clients of ASF, the CAC focuses on the<br />
prioritization and establishment of ongoing<br />
improvements to ASF services. One<br />
member of the CAC, an individual born<br />
and raised in Nigeria, initiated the idea of<br />
the committee becoming actively<br />
involved in an attempt to improve the life<br />
of just one child affected by the world<br />
<strong>AIDS</strong> epidemic. Putting aside their own<br />
struggles of coping and living with<br />
H<strong>IV</strong>/<strong>AIDS</strong>, the CAC made the decision<br />
to provide assistance to a child who is not<br />
able to access the care and support of a<br />
place like ASF.<br />
The CAC members were put in contact<br />
with Dorcas Call Ministry, an organization<br />
whose mission is to help disadvantaged<br />
teenagers, women and orphaned<br />
children in Northern Nigeria. The organization’s<br />
founder, Helen Bako, was born<br />
and raised in Northern Nigeria and leads<br />
the organization from her home in<br />
Southern California. She established<br />
Dorcas Call Ministry in response to the<br />
fact that H<strong>IV</strong>/<strong>AIDS</strong> was taking over her<br />
country. “I remember returning home to<br />
my village in Northern Nigeria. I asked<br />
my parents of the whereabouts of families<br />
in my community,” tells Bako. “Reality<br />
came crashing down on me when I<br />
learned that most had died from <strong>AIDS</strong>.”<br />
Bako knew she could not sit and watch<br />
her people fall victim to this deadly epidemic.<br />
She was extremely concerned<br />
about the children who had lost one if<br />
not both parents to <strong>AIDS</strong>. She witnessed<br />
the destruction of their lives as they lived<br />
in the streets and deserted their educations.<br />
Many of these children were living<br />
with H<strong>IV</strong>/<strong>AIDS</strong> themselves but were<br />
keeping their disease a secret, afraid of<br />
what others would think.<br />
Dorcas Call Ministry develops <strong>AIDS</strong><br />
global outreach<br />
education programs targeted at the youth<br />
of Northern Nigeria. “The younger generations<br />
have been taught that H<strong>IV</strong>/<br />
<strong>AIDS</strong> is a result of sinful acts,” states<br />
Bako. “They have never been educated<br />
on the realities of the disease. They know<br />
nothing about how the disease affects a<br />
person, how it is contracted, and how it is<br />
transmitted. They are taught not to<br />
acknowledge its existence even as it<br />
destroys their world.”<br />
Through Helen Bako and Dorcas Call<br />
Ministry, ASF’s Client Advisory Committee<br />
will sponsor and correspond with<br />
Abigail, a young girl who has lost her<br />
father to <strong>AIDS</strong>. Abigail, pictured above,<br />
is 8 years old and lives with her mother<br />
and 7 siblings. It is not known if her<br />
mother is suffering from H<strong>IV</strong>/<strong>AIDS</strong>, but<br />
Abigail watches every day as her mother<br />
sweeps homes to support her family. The<br />
CAC members will each contribute $5 a<br />
month that will go towards Abigail’s education.<br />
According to Bako, if a child can<br />
obtain a basic education and acquire the<br />
fundamental skills necessary to earn a safe<br />
and healthy living, they are more likely to<br />
escape extreme poverty.<br />
It is expected that the <strong>AIDS</strong> orphan<br />
population in Africa will reach 25 million<br />
by the year 2010. It is a problem that<br />
won’t disappear on its own. ASF’s Client<br />
Advisory Committee’s selfless efforts and<br />
support will give Abigail the opportunity<br />
to attend a quality school and to gain the<br />
knowledge that she and others of the<br />
growing orphan population in Nigeria<br />
need to overcome the obstacles of a country<br />
ravaged by <strong>AIDS</strong>.q<br />
THE VOICE MAR/APR 05 7
public policy<br />
As we move farther into<br />
2005, I cannot escape the<br />
realization that we have<br />
already reached the midpoint<br />
of the first decade of<br />
the 21st century and are peering<br />
over the edge of the 24th<br />
year of the H<strong>IV</strong> epidemic. It’s<br />
hard to believe that an<br />
obscure, mysterious cancer<br />
that was first associated with a<br />
small cluster of patients in<br />
several cities 1981 would<br />
grow to become a global<br />
pandemic that has killed 20<br />
million people, orphaned 15<br />
million children and continues<br />
to spread widely across<br />
the country and around the<br />
globe. The momentum of<br />
this epidemic seems to be<br />
increasing, with nearly 5 million<br />
new H<strong>IV</strong> infections in<br />
the world last year. In 2005,<br />
the United States will observe<br />
a disturbing milestone, when<br />
an estimated 1 million people<br />
will be living with H<strong>IV</strong>. This<br />
is the enormity of the H<strong>IV</strong><br />
epidemic in 2005.<br />
Although it was just two<br />
decades ago, the early days of<br />
the H<strong>IV</strong> epidemic seem to be<br />
in the far distant past. These<br />
were times of high mortality<br />
rates, multiple opportunistic<br />
infections that ravaged people’s<br />
bodies, and one catastrophic<br />
illness after another<br />
that left patients, along with<br />
their friends and families,<br />
feeling overwhelmed, discouraged<br />
and defeated. Those<br />
were the dark ages.<br />
Breakthrough H<strong>IV</strong> medications<br />
and improved preventive<br />
care began to turn the<br />
tide of the epidemic in the<br />
late 1990s. This slowed the<br />
mortality rate and provided<br />
the first glimmers of hope for<br />
people living with H<strong>IV</strong>.<br />
Further advances in these<br />
medications have added more<br />
potency and durability to<br />
these treatments to the point<br />
that many people have recovered<br />
their health after being<br />
disabled by H<strong>IV</strong> disease.<br />
Although there is still no cure<br />
and no treatment that eliminates<br />
H<strong>IV</strong> in the body, combination<br />
therapy has shown a<br />
remarkable capacity to control<br />
the destruction of the<br />
immune system by H<strong>IV</strong>, at<br />
least for now.<br />
1,000,000 and Counting<br />
In the thirty minutes that most people spend each day drinking coffee or reading<br />
the paper, two people will become newly H<strong>IV</strong> infected in the Untied States.<br />
8 THE VOICE MAR/APR 05<br />
But the dark ages are not<br />
very far away for many people<br />
who are living with H<strong>IV</strong><br />
today. Even with so much<br />
progress to report, a person<br />
living with H<strong>IV</strong> still faces a<br />
world of uncertainty and fear.<br />
Government funded programs<br />
for health care and<br />
support services have not<br />
been funded at levels to keep<br />
pace with a growing epidemic.<br />
Stigma and isolation remain<br />
powerful co-factors of H<strong>IV</strong>.<br />
The general awareness of the<br />
H<strong>IV</strong> epidemic that was seen<br />
years ago has drifted into apathy.<br />
Red ribbons used to be a<br />
fashion statement. Now, a<br />
new generation of young<br />
people has come along with<br />
no understanding of the<br />
devastation that <strong>AIDS</strong> caused<br />
the preceding generation.<br />
Young people who are working<br />
in the H<strong>IV</strong> field today are<br />
not much older than the<br />
epidemic itself.<br />
It took an incredible outpouring<br />
of humanity to reach<br />
this point. The community of<br />
donors and volunteers extended<br />
their generosity and<br />
compassion in ways and in a<br />
magnitude that continues to<br />
inspire us. An army of volunteers<br />
at <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong><br />
and a loyal following<br />
of donors allow ASF to continue<br />
to provide the best and<br />
most extensive array of services<br />
for people living with H<strong>IV</strong><br />
anywhere in this county and<br />
region. As caseloads continue<br />
to grow and the complexity of<br />
clients’ care brings additional<br />
challenges, ASF is unparalleled<br />
in providing a comprehensive<br />
local<br />
response to the<br />
H<strong>IV</strong> epidemic.<br />
Government<br />
officials and<br />
policymakers<br />
played a crucial<br />
role in providing funding for<br />
H<strong>IV</strong> care in local communities,<br />
especially here in <strong>Orange</strong><br />
<strong>County</strong>. The Ryan White CARE<br />
Act provides $2 billion in federal<br />
funding each year for care<br />
and services across a variety of<br />
programs. This funding is<br />
intended to bring together<br />
and extend local systems of<br />
care and provide access for<br />
those who are without private<br />
healthcare or do not qualify<br />
for other government funded<br />
medical care. Now entering<br />
its 15th year, the Ryan White<br />
CARE Act is the cornerstone<br />
of the federal government’s<br />
response to H<strong>IV</strong> and <strong>AIDS</strong>,<br />
providing care for more than<br />
500,000 people each year<br />
across the country and sending<br />
more than $8 million<br />
each year to <strong>Orange</strong> <strong>County</strong>.<br />
This legislation expires on<br />
September 30, 2005 and<br />
must be reauthorized by<br />
Congress in order to continue.<br />
Other federal programs are<br />
also vital to client care. The<br />
Veterans’ Administration, for<br />
example, is the largest single<br />
provider of comprehensive<br />
H<strong>IV</strong>/<strong>AIDS</strong> care in the United<br />
States. Social Security and<br />
Medicare programs take care<br />
of disabled clients. Medicaid,<br />
which is a federal-state health<br />
plan for low income people,<br />
covers 44% of people living<br />
with H<strong>IV</strong> and covers the<br />
health costs of up to 90% of<br />
children with <strong>AIDS</strong>. H<strong>IV</strong><br />
prevention education is funded<br />
by the Centers for Disease<br />
Control and Prevention (CDC),<br />
which spends more than<br />
$600 million on H<strong>IV</strong> prevention<br />
each year. The Housing<br />
Opportunities for Persons With<br />
<strong>AIDS</strong> (HOPWA) program provides<br />
funding into local communities<br />
for housing assistance<br />
for people with H<strong>IV</strong>.<br />
Over the years, HOPWA has<br />
provided funding for Hagan<br />
Place, Emmanuel House and<br />
Casa Alegre, producing nearly<br />
100 units of dedicated H<strong>IV</strong><br />
housing.<br />
But there is considerably<br />
more work to do.<br />
In the thirty minutes that<br />
most people spend each day<br />
drinking coffee or reading the<br />
continued on next page<br />
To find out how to become<br />
involved in ASF’s Public<br />
Policy efforts, contact Tom<br />
Peterson at 949/809 - 8764<br />
or at TPeterson@ocasf.org.
Continued from previous page<br />
paper, two people will become newly H<strong>IV</strong> infected in the Untied<br />
States. One of these two will be under the age of 25. Prevention<br />
remains the only sure way to stop the spread of this disease. We<br />
must educate people about H<strong>IV</strong> and provide them with a competent,<br />
real-world understanding of their reproductive health. We<br />
must demand that government funding be maintained at levels that<br />
are necessary to provide care for those in need. We must re-engage<br />
the general awareness that H<strong>IV</strong> is a pernicious illness that continues<br />
to destroy lives. We must involve young people in a dialogue<br />
about responsible conduct and choices. We must keep alive the<br />
memory of those we have lost.<br />
And finally, we must be committed to progress, despite the discomfort<br />
that goes along with an epidemic that has an extraordinary<br />
capacity to multiply and adapt. In another five years, we will draw<br />
the first decade of the 21st century to a close and will be approaching<br />
30 years of the H<strong>IV</strong> epidemic. Whether the headlines will warn<br />
of the mounting toll of the <strong>AIDS</strong> epidemic locally and around the<br />
world or a will announce a reversal of this trend and true progress<br />
in the fight against <strong>AIDS</strong> is up to us.<br />
We have another five years to make a difference.<br />
CALLING ON FRIENDS<br />
Tom Peterson, ASF's Director of Public Policy (left) and Kay<br />
Warren of Saddleback Church chat with Senator Bill Frist<br />
about national issues that impact people living with H<strong>IV</strong>.<br />
TURNING THE TABLES<br />
ASF is very fortunate to sponsor a number of interns throughout the year from various local universities. Erica<br />
Nicholson is a fourth year student at the University of California, Irvine who spent the fall quarter doing public<br />
policy work as an intern with Tom Peterson. We decided to turn the tables and provide an opportunity for an<br />
intern to ask the questions that a young person might be thinking about when discussing H<strong>IV</strong> and <strong>AIDS</strong>.<br />
ERICA: You have been working at ASF for a long time and have been<br />
involved in the H<strong>IV</strong> community for even longer. What has changed<br />
the most and the least over the years?<br />
TOM: Without a doubt, the client profile has changed the most.<br />
Although the H<strong>IV</strong> epidemic in <strong>Orange</strong> <strong>County</strong> is still substantially an<br />
epidemic of men who have sex with men, the epidemic has spread and<br />
now impacts a broad cross section of this community, including women<br />
and Latinos. Minorities are the fastest growing component of this epidemic,<br />
locally and across the country. The dedication of ASF’s Board<br />
and volunteers to the mission of this agency and the basic needs of people<br />
living with H<strong>IV</strong> has not changed one bit over the years. And ASF’s<br />
staff is the most extraordinary group of people doing this kind of work<br />
anywhere. This combination provides a network of support and safety<br />
net that makes a real difference in the everyday lives of our clients.<br />
ERICA: H<strong>IV</strong> infections continue to increase everywhere and people<br />
are continuing to place themselves needlessly at risk at a time when<br />
everyone knows about safe sex. What do you think accounts for this?<br />
TOM: This is one of the greatest frustrations of anyone working in H<strong>IV</strong><br />
prevention today. There may be many reasons, and some of them probably<br />
compound each other. It is difficult to maintain a sense of crisis or<br />
urgency for 24 years, and this provides a natural opening for fatigue and<br />
complacency to set in. Also, many people have misunderstood the treatment<br />
advances of the past 6 or 8 years and now incorrectly consider H<strong>IV</strong><br />
to be a chronic disease which is easily managed. H<strong>IV</strong> remains an acute<br />
illness that is difficult to treat. In fact, the side-effects of most H<strong>IV</strong> treatment<br />
regimens create a separate disease syndrome of their own. All of<br />
this is complicated, and many people were so relieved that the mortality<br />
rate finally began to drop in the late 1990s that they took a well-deserved<br />
rest. We also had a loss of brainpower and talent to this epidemic from<br />
the ranks of people who were working in the H<strong>IV</strong> prevention field themselves.<br />
Those voids have been difficult to fill. And finally, we must<br />
remember that the H in H<strong>IV</strong> stands for human. Changing patterns and<br />
conduct is difficult and challenging. I still don’t understand why people<br />
smoke and don’t wear seat belts. I agree with those who feel that prevention<br />
should be our top priority, locally and across the country. This is the<br />
best hope for stopping this epidemic in the near term.<br />
ERICA: What is the role of elected officials and policy makers as we<br />
look to 2005 and beyond in combating the spread of H<strong>IV</strong> and in<br />
caring for people with H<strong>IV</strong>/<strong>AIDS</strong>?<br />
TOM: Elected officials have a duty to lead the public discussion in the<br />
direction of solutions and problem solving around the H<strong>IV</strong> epidemic.<br />
They have an equal duty to provide for those in need and to address the<br />
comprehensive needs of people with H<strong>IV</strong>, which today includes mental<br />
health care, assistance with housing, caring for children and family<br />
members, and help with the basic necessities of life. While a government<br />
response may not be the entire answer, it is the nucleus around which an<br />
organization like ASF can build a community wide response. ASF is a<br />
great model of the public-private partnership that produces results and<br />
delivers vital services. Despite the tight fiscal times we are currently facing,<br />
we cannot expect sick or disabled people to bear the burden.<br />
Government funding of H<strong>IV</strong> programs has been stagnant while the epidemic<br />
grows at 5% to 15% each year. Medical and prescription costs<br />
increase independent of the epidemic. I would call on elected officials<br />
to fund H<strong>IV</strong> programs in local communities at levels that match the<br />
growing epidemic. We need everyone to work together in 2005 for the<br />
reauthorization of the Ryan White CARE Act, which is the cornerstone<br />
of federal funding into local communities like <strong>Orange</strong> <strong>County</strong>. Above<br />
all, elected officials and policy makers have an obligation to provide<br />
funding for effective H<strong>IV</strong> prevention so that we can stop the loss of<br />
another generation to the devastation of <strong>AIDS</strong>.<br />
ERICA: Finally, what we can do to contribute to a solution to the<br />
global <strong>AIDS</strong> pandemic?<br />
TOM: I like to remind people that the international epidemic starts<br />
right here and that the 1 million people in the United States with H<strong>IV</strong><br />
are part of the global pandemic. I would ask everyone to understand<br />
that borders are artificial and oceans no longer separate continents and<br />
people. I would urge everyone to recognize that the U.S. has an enormous<br />
capacity to lead the world, both in providing funding in resource<br />
poor settings and in setting the agenda for the dialogue about H<strong>IV</strong> and<br />
<strong>AIDS</strong>. Most importantly, Americans can set an example for the world<br />
about providing compassion and caring for people with H<strong>IV</strong> and <strong>AIDS</strong><br />
in the way that we care for one another.<br />
THE VOICE MAR/APR 05 9
S8M8S<br />
O<br />
ne of <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong>’s outreach programs,<br />
SOMOS, a Spanish word meaning “We Are”, continues<br />
its commitment to Latino gay or bisexual men,<br />
ages 18-25, by providing Spanish-language H<strong>IV</strong> and<br />
substance abuse prevention programs in the <strong>Orange</strong><br />
<strong>County</strong> community. Through guest speakers, videos,<br />
pamphlets, informal "charlas" (group discussion) and outreach<br />
events, the members of SOMOS come together with<br />
the common goal of helping to improve the lives and safety<br />
of the young gay and bisexual Latino community.<br />
On October 1st - 3rd, for an audience of 150 people,<br />
seven SOMOS members showcased their original production<br />
of “Volver a Nacer” (A Second Chance), a play presented<br />
in Spanish and performed at the Centro Cultural de<br />
Mexico in Santa Ana. Osvaldo Herasque, the plays writer<br />
and director, worked in collaboration with SOMOS members<br />
to create a production that portrayed the messages and<br />
visions of the youth themselves. “Volver a Nacer” reflected<br />
issues of importance in the young gay and bisexual<br />
Latino community such as one’s sexuality, H<strong>IV</strong> and <strong>AIDS</strong>,<br />
substance abuse, and cultural issues.<br />
“The concept, a community outreach effort, was a way<br />
to present a message of prevention”, said Jorge Castañeda,<br />
ASF Health Educator (pictured above). “It was a creative<br />
way for the community to hear about a new program that<br />
may in turn benefit someone’s son, cousin, nephew,<br />
neighbor, or friend. If the funding is sufficient enough to<br />
cover the extensive production costs, we hope to do it<br />
again next year”, said Castañeda. “It turned out to be a<br />
very powerful tool of communication. We had offers<br />
from The University of California Santa Barbara and<br />
the Mexican Consulate to host additional performances.”<br />
While serving as a form of entertainment for the audience,<br />
the play’s primary function was to serve as a vehicle of<br />
communication for the underlying cause. Using the<br />
Spanish language to present topics that may otherwise be<br />
uncomfortable for some to openly discuss, the SOMOS<br />
production of “Volver a Nacer” succeeded in finding a<br />
way to expose and educate the Latino community on the<br />
realities of H<strong>IV</strong>/<strong>AIDS</strong>. q<br />
CLIENT SURVEY RESULTS<br />
Each year, ASF distributes a survey to its clients for the purpose of maintaining and improving the quality of care we provide. Because of our unwavering commitment<br />
to the health and well being of our clients, ASF evaluates the feedback acquired from these surveys with the utmost consideration.<br />
In 2004, 182 ASF clients answered the 31 question survey which resulted in an 80% increase in affirmative responses from 2003. ASF is proud to donate<br />
83 cents of every dollar to client services, and the following results demonstrate the powerful effects of that contribution:<br />
SURVEY STATEMENT<br />
% Positive Response<br />
Case Management has increased my access to medical and other needed services 81.5%<br />
The food pantry and vouchers enabled me to have food I could not have otherwise obtained 87.0%<br />
Health Education has helped me gain access to information and knowledge of H<strong>IV</strong> disease 91.0%<br />
Housing information and guidance has increased my access to available housing programs 86.5%<br />
Mental Health <strong>Services</strong> have helped me improve my quality of life 91.3%<br />
Transportation services have increased my ability to get to medical and other support services 90.9%<br />
Vitamart, ASF’s vitamin program, has enabled me to get vitamins & nutrients that I couldn’t have otherwise obtained 92.5%<br />
ASF encourages each survey participant to not only respond to the pre-written statements but to include their own personal remarks and suggestions so that<br />
we can try to modify our facilities and programs accordingly. From these comments, we were able to learn just how essential the food pantry is to our clients<br />
and how our programs, such as Kids Club and Positive Life Force, have a powerful way of making a personalized and valuable impact on the lives of individuals<br />
and families. We discovered how our organization can better serve our community in the future by developing new programs. Clients would like to see more<br />
programs created for disabled persons as well as an increase in Outreach Prevention, especially in the Latino Community.<br />
Overall, the client survey is an effective and valuable way for the staff of ASF to obtain vital information about the individuals we are assisting and how we<br />
can better serve their needs and interests. ASF’s mission is to prevent the spread of H<strong>IV</strong> and improve the lives of men, women and children affected by<br />
H<strong>IV</strong>/<strong>AIDS</strong> in <strong>Orange</strong> <strong>County</strong>. This survey helps us to support our mission by communicating with our clients directly, gathering essential information, and considering<br />
new concepts so that we can in turn develop and improve our services.<br />
10 THE VOICE MAR/APR 05
ecent events<br />
Sin City made its way to Laguna Beach at <strong>AIDS</strong><br />
<strong>Services</strong> <strong>Foundation</strong>’s (ASF) “Lost Vegas”<br />
event on Saturday, September 25, 2004.<br />
500 guests helped raise $400,000 at<br />
the Festival of Arts grounds in Laguna Beach. Co-chaired by Judy Fluor-<br />
Runels, Ken Jillson and Jorge Rodriguez M.D., attendees were transported<br />
to the “Lost Vegas” strip, complete with creative cocktails, crazy casino<br />
action, and showgirls galore!<br />
Thank you to all event attendees,<br />
sponsors, and volunteers for<br />
your support!<br />
ASF’s 2004 Holiday Gift Basket program was again<br />
a tremendous success due to the generosity and effort of<br />
ASF supporters and volunteers. This holiday program provides<br />
ASF clients with bountiful baskets of holiday goodies<br />
and other useful, much needed items. The 600 baskets,<br />
assembled and delivered by ASF volunteers, bring joy and<br />
spirit to our clients during the holiday season. Without the<br />
dedication of our wonderful volunteers this program would<br />
not be possible. Under the leadership, guidance and handson<br />
help of two of our exceptional volunteers, Shelly Virkstis<br />
and Richard Johnson, the program could not run as smoothly<br />
as it does. Shelly and Rich begin their process of organizing<br />
and planning weeks in advance - their hours of devotion<br />
led to this year’s flawless production process resulting in<br />
record time for basket assembly!<br />
The Sponsor A Bear program has also been<br />
extraordinarily successful, bringing in over $9,000 this year. A<br />
donation of $5.00 provided a plush teddy bear to each holiday<br />
basket. In addition to the cute and cuddly bears, the money<br />
raised from this program helped fund other program expenses<br />
such as baskets, ribbons, bows, wrapping paper, shrink bags,<br />
and other production items. Because of the generous donations<br />
we received we were able to contribute extra items in<br />
addition to those that were donated. Also this year, we were<br />
fortunate to obtain in-kind donations from the following<br />
companies and individuals: Au’some Candies, Inc., Barbara<br />
Garvin, Bristol-Myers Squibb, Coffee Bean & Tea Leaf, Crown<br />
Books, Disneyland Resort, Family First, Frito Lay, Galderma<br />
Labs, Genisoy, Glaxo SmithKline, John Hirano, Jetram Sales,<br />
Jillson-Roberts, Jitterbugs Toys, MAC <strong>AIDS</strong> Fund, Robert<br />
Marger, Robert Mlodzik, David Merino, Alan Miller and Mark<br />
Guillod, NCL, Niagra Water, James Rust, Starbucks, Stash<br />
Tea, Anita Weiss, Wolfgang Puck, and Wrigley.<br />
THANK YOU!! to each and every person for your kindness<br />
in participating and giving to this program. We sincerely<br />
appreciate your support.<br />
THANK YOU!! to all of the volunteers: iindividuals,<br />
groups, staff and board members who donated their time to<br />
this fun and worthy project.<br />
It should be noted that due to budget constraints, this year’s Holiday Gift<br />
Baskets and Sponsor A Bear programs relied strictly on in-kind and<br />
monetary donations.<br />
THE VOICE MAR/APR 05 11
ecent events<br />
Friends of ASF celebrated<br />
the hope of the season at<br />
the annual Mark’s<br />
Holiday Party.<br />
Attendees came together<br />
to support our Food<br />
Pantry, a facility our<br />
clients strongly rely<br />
on during the<br />
holiday season.<br />
Your contributions,<br />
totalling almost<br />
$10,000, helped<br />
to provide<br />
food and spirit<br />
to the men,<br />
women,<br />
families,<br />
and<br />
children<br />
of<br />
ASF.<br />
ASF thanks all of those who supported us throughout<br />
the year. Shown here from left to right are: Larry<br />
Tenney, Bill Attaway and friend at a recent Patron’s<br />
Council event.<br />
DID YOU KNOW?<br />
Experts believe that there are<br />
moe than 1,200 people in <strong>Orange</strong><br />
<strong>County</strong> who are H<strong>IV</strong> positive and<br />
are unaware of their status.<br />
Latinos comprise 32% of<br />
<strong>Orange</strong> <strong>County</strong>’s population,<br />
yet account for 46%<br />
of <strong>AIDS</strong> cases in 2003.<br />
Women comprised<br />
15% of <strong>Orange</strong><br />
<strong>County</strong> <strong>AIDS</strong> cases<br />
in 2003, up from<br />
8% of cases<br />
reported prior<br />
to 1998.<br />
12 THE VOICE MAR/APR 05
ASF offers its heartfelt thanks to the following donors<br />
who are part of ASF’s new major donor program.<br />
patron’s council<br />
PRESIDENT’S CIRCLE<br />
$50,000+<br />
Mark and Donna Merhab<br />
Jim and Linda Loomis<br />
EXECUT<strong>IV</strong>E CIRCLE<br />
$25,000 - $49,999<br />
Ron and Santina Davies<br />
AMBASSADOR’S CIRCLE<br />
$10,000 - $24,999<br />
Bob Crowder<br />
DIRECTOR’S CIRCLE<br />
$5,000 - $9,999<br />
Craig Benedetti and Alex Acosta<br />
Jerry and Laura Bieser<br />
Marilyn C. Brewer<br />
Rich Fiock<br />
Anthony Glenn and Bill Seay<br />
Roger and Janice Johnson<br />
Marcos Pacheco<br />
David Pennington<br />
DELEGATE’S CIRCLE<br />
$2,500 - $4,999<br />
Pam Bobit<br />
Jacques Camus<br />
Richard and Britney Weil<br />
ADVOCATE’S CIRCLE<br />
$1,200 - $2,499<br />
Wylie and Bette Aitken<br />
Gene Allsup<br />
Richard Anderson<br />
and Alex Wentzel<br />
Mike Barry<br />
Jeff Benedick and<br />
Duane Vajgrt, MD<br />
Frank Bianchini &<br />
Joseph Ramondetta<br />
Paul Blank and Francois Leclair<br />
James Bohm<br />
Robert A. Boyd<br />
Mike Bucaro<br />
Tim Byron, MD & Verneda Byro<br />
Douglas Cable, MD<br />
David Canzoneri and<br />
Eric Cortina<br />
Paul and Cathy Cimoch<br />
John Combs & Sheldon Harte<br />
Bill Deland and Mark Fleming<br />
Dona Dixon and<br />
Marilyn Blackwood<br />
Karen Ellis and Sandra Hartness<br />
Brad Engelland and Jon Stordahl<br />
Hung Fan and Michael Feldman<br />
Jerry Finster<br />
Armando Flores<br />
Leonardo Flores<br />
Dick Runels & Judy Fluor-Runels<br />
Harold Foley & John Anguiano<br />
Steve Francis<br />
Steve Frost and Gary Castaneda<br />
Gerald Giannini & Ralph Wilson<br />
Mark Guillod and Alan Miller<br />
Bob Haskell<br />
Robert Hayden<br />
Debora Hintz<br />
Arnold Henson, MD and<br />
Theresa Siaca<br />
Joe Hodulik<br />
Daniel Hovenstein<br />
Ramy Jarallah & Michael Garrit<br />
Pearl Jemison-Smith and<br />
Burton Smith, MD<br />
Dale Jenkins<br />
Kenny Jervis<br />
Nathan Jurczyk<br />
Karla Kjellin-Elder and<br />
Jeff Elder<br />
Alex Kochnuk<br />
Elliott Kornhauser, MD and<br />
Joe Baker, DMD<br />
Barry and Jan Kuppermann<br />
Charlie Lapple & Cameron Pearce<br />
Elliott Leonard & Roger Lit<br />
Tom Livermore and<br />
Scott Shadrick<br />
Maria I. Marquez<br />
Henry McCanless and<br />
Mark Coolidge<br />
Judy O’Dea Morr<br />
Bob Parisi<br />
Pat Powers<br />
Mark Puente<br />
Christopher M. Quilter<br />
George Raab<br />
Chuck Rainey<br />
Tom Ray<br />
Frank Ricchiazzi and<br />
Borden Moller<br />
Al Roberts and Ken Jillson<br />
Jorge Rodriguez, MD and<br />
Ed Olen<br />
Ty Rose<br />
Judith Rosenthal &<br />
Georgia Garrett-Norris<br />
Mario Ruiz<br />
Robin Rutherford<br />
Scott Sackin and Philip Talbert<br />
Steven Saucer & Charles Brickell<br />
David W. Schaar<br />
Max Schneider, MD and<br />
Ron Smelt<br />
Frank J. Schools<br />
Rick Silver<br />
Calvin Smith<br />
Sindee Smolowitz & Peggy Eaton<br />
Dwight Spiers and Gordon Cowan<br />
Jeff Stuckhardt and Bill Lawrence<br />
Jay Tassin and Brent Danninger<br />
Larry Tenney<br />
Bill Thomas and Luca Cecchi<br />
Chuck Walworth MD and<br />
Jud Slusser<br />
Alan Witchey and Paul Sigmund<br />
On Thursday October 14th 2004, Dwight<br />
Spiers and Gordon Cowan generously donated<br />
their home and hosted a fabulous Patron’s<br />
Council event. An evening under the stars,<br />
with food and drink provided by Mark’s<br />
Catering, served as a way for ASF to show<br />
appreciation to those who contribute year<br />
round to our cause. We gratefully acknowledge<br />
the follow Patron’s Council members<br />
who graciously underwrote the event: Juan<br />
Chacon, Dan Haspert M.D. & Gerard Curtin,<br />
Robert Hayden III, Janice & Roger Johnson,<br />
Mark Porterfield, Steven Saucer & Charles<br />
Brickell, Patti Tucker & Julie Ferrin. A warm<br />
thank you also goes out to those who attended<br />
the event and to the members of Patron’s<br />
Council, a group who continues to display<br />
their leadership and commitment to ASF.<br />
For more information on ASF’s Patron’s<br />
Council, please contact Ty Rose at<br />
949.809.8762 or trose@ocasf.org.<br />
Jeff Benedick, Jeff Stuckhardt, Bill<br />
Lawrence and Dwayne Vajgrt, MD<br />
Dwight Spiers and Gordon Cowan<br />
Mark Porterfield, Al Roberts, Juan<br />
Chacon and Michael Feldman<br />
THE VOICE MAR/APR 05 13
in memoriam<br />
by ROBIN HINCH<br />
The <strong>Orange</strong> <strong>County</strong> Register<br />
<strong>AIDS</strong> advocate was tireless<br />
Denise Lavigne, ASF client and Board Member, charmed her clients, colleagues and tout le monde.<br />
To some, Denise Lavigne was the cute little French girl who<br />
sold T-shirts at the <strong>Orange</strong> <strong>County</strong> Swap Meet each week.<br />
To others, she was a force to be reckoned with when the needs<br />
of people with H<strong>IV</strong> or <strong>AIDS</strong> were at stake.<br />
In either role, she touched the people<br />
she met - with her charm, her pronounced<br />
French accent, her warm and<br />
welcoming smile and her refusal to back<br />
down when she believed—knew—she<br />
was right.<br />
Some people were aware she had<br />
<strong>AIDS</strong>. Many others probably were not.<br />
She spent the last 15 years volunteering<br />
for <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong><br />
<strong>Orange</strong> <strong>County</strong> to fight for rights,<br />
services and understanding for people<br />
with H<strong>IV</strong>/<strong>AIDS</strong>.<br />
She was 51 when she died of a heart<br />
attack while visiting family in Paris.<br />
Denise knew the medication she was<br />
taking to fight the disease could lead to<br />
heart trouble. But she was willing to<br />
take the risk. It helped keep her going<br />
as the disease progressed, and better a<br />
heart attack, she thought, than the<br />
painful, prolonged final stage of <strong>AIDS</strong><br />
she’d seen others endure.<br />
She had no idea how she’d contracted<br />
the virus. Perhaps through blood<br />
transfusions she’d had in the past. She<br />
received the diagnosis in1989 when<br />
she had blood tests required for obtaining<br />
a U.S. “green card.”<br />
Denise was born in Saigon and grew<br />
up in Paris and Marseille. She met her<br />
husband, Philip Saleh, while vacationing<br />
in Africa. Philip was a bush pilot<br />
there and her brother was his best<br />
friend. They returned to Paris, had a<br />
daughter, and then moved to<br />
California in 1985 with two suitcases,<br />
$2,000 and a baby.<br />
That baby, Emilie, is now a junior at<br />
UC Berkeley.<br />
Philip and Denise married in 1987. They lived first in<br />
Huntington Beach, and then four years ago bought their first<br />
Denise Lavigne<br />
Friends and family joined together<br />
for a memorial service and celebration<br />
of Denise’s life on February 26, 2005<br />
at the Costa Mesa Neighborhood<br />
Community Center.<br />
ASF is accepting donations in<br />
honor of Denise’s memory, spirit<br />
and smile. In addition, ASF is<br />
setting up an educational fund to<br />
help Denise’s daughter, Emilie,<br />
finish her college education.<br />
Donations can be made payable<br />
to ASF and are encouraged to be<br />
designated towards Emilie’s<br />
educational fund.<br />
house in Costa Mesa.<br />
Denise worked as a waitress in a French restaurant, then she<br />
and Philip started a T-shirt business, selling sports-themed<br />
shirts at the <strong>Orange</strong> <strong>County</strong> Swap Meet. The company’s<br />
name—Titi (pronounced tee-tee) de<br />
Paris—is a slang term for people born<br />
and raised in Paris.<br />
Beyond the T-shirt business, they also<br />
branched out into selling tablecloths from<br />
Provence, the region of southern France.<br />
Denise was a fixture at the swap meet and<br />
loved the camaraderie with other vendors.<br />
In addition, she devoted many<br />
hours, without pay, to ASF, evaluating<br />
and making recommendations about the<br />
organization’s programs, interviewing<br />
clients to determine their needs, then<br />
taking those requests to the committees<br />
in charge.<br />
Denise was a dynamic advocate, full of<br />
life and full of energy and passion for what<br />
she was doing. It became her mission.<br />
She wanted to improve the community<br />
for people with H<strong>IV</strong>/<strong>AIDS</strong> and didn’t<br />
care if hers wasn’t the most popular<br />
stance on an issue.<br />
And she didn’t mince words or shy<br />
away from controversy. There was no<br />
doubt how Denise felt about matters.<br />
At the same time, she was always loving,<br />
never spiteful or angry. “You know,”<br />
she’d say, “it’s OK if we don’t agree on<br />
this. I just need you to know where<br />
clients are coming from.”<br />
She rarely complained about her illness,<br />
even though she suffered discomfort<br />
in the last year. Mostly, she was<br />
grateful that her husband and daughter<br />
tested negative for the virus.<br />
And she loved her little house. She<br />
decorated it with care and love, and filled<br />
the garden with plants and flowers.<br />
She was so happy in California, she said<br />
she didn’t miss France, and the trip earlier<br />
this month was for a big trade show in Paris. She died in<br />
her sleep the night before she was to return to Costa Mesa.<br />
14 THE VOICE MAR/APR 05
August 1 - November 18, 2004<br />
memorials & tributes<br />
IN MEMORY OF JEFF ABRAMOWITZ<br />
Abraham Abramowitz & Lila Abramowitz<br />
IN MEMORY OF DORIS BOYD<br />
Linda Leahy<br />
Charles Lennon<br />
IN MEMORY OF DINO GOMEZ<br />
Arthur Gomez & Ruby Gomez<br />
IN MEMORY OF CLAUDETTE<br />
GRAVELL<br />
Marina Ball<br />
Walter Coe & Linda Coe<br />
David Dobos & Margaret Dobos<br />
Judy Ferguson<br />
G Ivie<br />
Dale Jenkins<br />
Mark Katz<br />
Hrag Marganian & C. Amerkhanian<br />
Marganian<br />
Sharon Matthews<br />
David Medcalf & Terry Medcalf<br />
Joel Miller & Mark Schroepfer<br />
Shiba Nabipur<br />
Lisa Reig<br />
Diane Reiman<br />
William Scannell<br />
Jim Shea & Linda Shea<br />
Jeanne Sisneros<br />
Jeanmarie Smith<br />
William Towner<br />
Judith White<br />
IN MEMORY OF PETER KNOWLTON<br />
Jacques Camus<br />
IN MEMORY OF JERRY LEVREAU<br />
Eunice Mersereau<br />
IN MEMORY OF JIM PALMER<br />
Gregory and Kathleen Abel<br />
Demetrios Athanasios<br />
Gregg Barnette and Bill Harris<br />
Mr. John Benecke<br />
Berg Insurance Agency<br />
Paola and Richard Bisson<br />
Dominic Bosco, MD and Jack Reising<br />
Cindy Boyd-Young<br />
Shirley Bradshaw<br />
Louise Callus and Brandon Krechel<br />
Craig and Lecia Davis<br />
Joy E. Dittberner<br />
Dan and Jana D’Orazio<br />
Ed & Sue Eubanks<br />
Suzanne and Rod Fisher<br />
Margaret A. Fleming<br />
Sue Freeman and John Hance<br />
Cathleen Greiner and Debra Conkey<br />
Tim Haskell and Soirée Catering<br />
Jim and Susie Jaqua Fund<br />
The Kahn Family<br />
Doris Kirst, Lucille Maher, The Rynes,<br />
The Faltermans<br />
Gerald and Paula Lingelbach<br />
Bill and Romy McFarland<br />
Moms Club<br />
Hank Morgan<br />
Kevin Mundt and David Thomas<br />
Chuck and Sukeshi O'Neal & Family<br />
Mark Porterfield and Steve Chadima<br />
Al Roberts and Ken Jillson<br />
Verna Rollinger<br />
Anita May Rosenstein<br />
Rick Silver<br />
Carolyn Skenderian<br />
Rich and Gail Squar<br />
Judith Upton<br />
Duane Vajgrt, MD and Jeff Benedick<br />
M. Todd Williams<br />
Chris & Scott Woodburn and<br />
Johnny Flannagan<br />
IN MEMORY OF<br />
KYLE LUDEN & BOB SANBORN<br />
Monty Luden & Shirley Luden<br />
IN MEMORY OF JOHN THRASH<br />
Dominic Bosco & Jack Reising<br />
Paul Hengstebeck & Ulla Hengstebeck<br />
Mark Knight & Jane Knight<br />
Al Roberts & Ken Jillson<br />
Henry Sutton<br />
Ellen Woods-Hagan<br />
IN MEMORY OF<br />
DORIS THURSTON BOYD<br />
American Wind Energy<br />
IN MEMORY OF DR. FRANK WASKO<br />
Joe Matthews<br />
IN MEMORY OF KATHARINE WILM<br />
Betsy Claster<br />
On October 11, 2004 Laguna<br />
Beach lost one of its most endearing<br />
and charming residents.<br />
John Thrash, a familiar figure<br />
in his signature hats and colorful<br />
costumes, was one of the early<br />
owners of the Laguna Health<br />
Club and one of the first residents<br />
of Hagan Place. For those that<br />
knew him well, John was recognized for his colorful window<br />
displays, especially during the holidays, his unique greeting<br />
cards and his annual caroling escapades with Big Bird!<br />
His lively, loving and creative presence will be missed by<br />
all of his friends and family members who recognized and<br />
appreciated his generous spirit.<br />
A dear friend of ASF,<br />
Claudette Gravell, RNP,<br />
passed away on September 18,<br />
2004. Claudette, who was only<br />
51 years of age, was a unique<br />
person who touched the lives of<br />
countless individuals in a very<br />
positive way. As a Nurse<br />
Practitioner for Kaiser, she<br />
worked in the infectious disease area treating and supporting<br />
many clients of ASF. She was also an active member of the<br />
Southern California Kaiser Permanente Nursing Research<br />
Committee helping to shape the work of the group throughout<br />
the years.<br />
Randee Marlin, a Nurse Case Manager at ASF described<br />
Claudette as a wonderful, caring, loving individual. “She<br />
was extremely dedicated to her H<strong>IV</strong> patients at Kaiser,” said<br />
Marlin, “she was a wonderful advocate for each one of<br />
them. I only had the strongest feelings of admiration for her<br />
and I for one have already greatly missed her.”<br />
From others whose lives that she touched—<br />
”Claudette made being H<strong>IV</strong> positive a tolerable thing for me…I learned how to live<br />
again with her support and care.”<br />
“The doctors at Kaiser tended to my broken body, but Claudette tended to the repair and<br />
nurturing of my soul.”<br />
In Memory of Jim Palmer, loving<br />
partner of John O’Neil and<br />
long time supporter of ASF.<br />
Friends and family joined together<br />
at a memorial held at their home<br />
on January 13th, 2005.<br />
At their request, in lieu of flowers,<br />
donations were directed to ASF.<br />
THE VOICE MAR/APR 05 15
SPECIAL<br />
THANK YOU’S<br />
ASF would like to thank Jonathan Blitz and the Wells Fargo “Community Partners Program” for their<br />
charitable donation of $1,000 to ASF. Jonathan Blitz, who has donated his time and services to <strong>AIDS</strong><br />
Walk <strong>Orange</strong> <strong>County</strong> for many years was generous enough to extend his professional relationship with<br />
Wells Fargo to ASF. As a result of his efforts, ASF was fortunate to be the recipient of this most significant<br />
and beneficial contribution.<br />
ASF thanks Senator Joe Dunn and the Southern California Water<br />
Company for the donation of 20 turkeys for our clients during the<br />
Thanksgiving holiday.<br />
ASF would also like to thank Mark and Donna Merhab for their<br />
generous donation of 50 turkeys to our food pantry which helped<br />
bring joy to our clients on Thanksgiving.<br />
ASF would like to<br />
wish a Happy 80th<br />
to Bobbie Smith,<br />
son of Bob Metcalfe,<br />
from Al Roberts, Ken<br />
Jillson, Dwight Spiers,<br />
and Gordon Cowan<br />
Happy Birthday to our<br />
friend Joe Hodulik.<br />
Thank you for all that<br />
you do in support<br />
of ASF.<br />
On Sunday, November 14, the newly renovated<br />
Joshua Christopher Salon in<br />
Fullerton, CA organized and hosted “Cut<br />
for a Cure.” For a $20 donation to ASF, customers<br />
were invited to receive a high-end<br />
salon haircut, listen to music from live DJ’s,<br />
and enjoy complimentary refreshments.<br />
“Cut for a Cure” raised $6,000 for ASF, an<br />
amount that surpassed the projected goal by<br />
$1,000! ASF would like to give praise and<br />
appreciation to the Joshua Christopher<br />
Salon, its owner, Josh Nuñez, to the dedicated<br />
staff, and to all of the supporters for<br />
their immeasurable generosity.<br />
The Joshua Christopher Salon is located at<br />
333 Imperial Highway in Fullerton, CA.<br />
For information on ASF or any<br />
of its services, please call (949)<br />
809-5700, or visit us online at<br />
www.ocasf.org.<br />
17982 Sky Park Circle Suite J<br />
Irvine, CA 92614<br />
Non-profit<br />
US Postage<br />
PAID<br />
Permit No. 392<br />
Santa Ana, CA