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ART FOR AIDS IV - AIDS Services Foundation Orange County

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MARCH-APRIL 2005<br />

www.ocasf.org<br />

www.aidswalk.org/oc<br />

WORLD<br />

<strong>AIDS</strong><br />

1,000,000<br />

AND<br />

COUNTING…<br />

P. 8<br />

DAYP. 6<br />

<strong>ART</strong> <strong>FOR</strong> <strong>AIDS</strong> <strong>IV</strong><br />

AN EVENING WITH CYBILL SHEPHERD P. 4<br />

SOMOS<br />

Spanish<br />

outreach program P. 10


inside this issue<br />

FEATURES<br />

<strong>ART</strong> <strong>FOR</strong> <strong>AIDS</strong> <strong>IV</strong> 4<br />

An evening with Cybill Shepherd<br />

WORLD <strong>AIDS</strong> DAY 6<br />

A reminder of the continuing global crisis<br />

CLIENT ADVISORY COUNCIL 7<br />

Members sponsor a Nigerian orphan<br />

1,000,000 AND COUNTING 8<br />

H<strong>IV</strong> as a global pandemic<br />

CLIENT SURVEY RESULTS 9<br />

SOMOS 10<br />

ASF’S Spanish outreach program<br />

DEP<strong>ART</strong>MENTS<br />

INTRODUCTION 3<br />

RECENT EVENTS 7<br />

PATRON’S COUNCIL 14<br />

MEMORIALS & TRIBUTES 15<br />

SPECIAL THANKS 16<br />

BOARD OF DIRECTORS<br />

Officers<br />

Al Roberts<br />

Board President<br />

Karen Ellis<br />

Board Vice President<br />

Jorge Rodriguez, M.D.<br />

Board Secretary<br />

Mark Guillod<br />

Board Treasurer<br />

Members<br />

Frank Bianchini<br />

Hung Fan, Ph.D.<br />

Risa Groux<br />

Daniel Haspert, M.D.<br />

Arnold Henson, M.D.<br />

Dale Jenkins<br />

Ken Jillson<br />

Janice Johnson<br />

Nathan Jurczyk<br />

David Kiff<br />

Denise Lavigne<br />

James Loomis<br />

Maria Marquez, M.S., M.F.T.<br />

Mark Merhab<br />

Judith O'Dea-Morr<br />

Judith Rosenthal<br />

Alexander Wentzel<br />

As a way to cut back on production and printing costs, ASF<br />

has decided to publish the Spanish version of The Voice on<br />

our website at www.ocasf.org<br />

We want to make sure that everyone has the opportunity to<br />

read The Voice, so we would appreciate your feedback on<br />

this change.<br />

Please contact: Jamie Jaffe, Communications Coordinator at<br />

jjaffe@ocasf.org or 949-809-8763<br />

On the cover: Cybill Shepherd entertains a rapt audience at Art for <strong>AIDS</strong> <strong>IV</strong>.<br />

Editor<br />

Jamie Jaffe<br />

Design & Layout<br />

Gillian Kirkpatrick<br />

King Graphic Design<br />

Printing<br />

Ken Sakata<br />

Litho Communications


from the<br />

President of the Board<br />

& the Executive Director<br />

As Spring approaches, we should take the time to reflect on the<br />

New Year’s resolutions that we made three months ago. Most<br />

of us commit to such goals as starting a diet, joining a gym<br />

(and actually going), and attempting to quit bad habits.<br />

Resolutions are the way we reconsider how we live our lives<br />

and how we can begin to make smart changes. Some resolutions are<br />

serious commitments for change while others get deferred, year after<br />

year, until the following January. As we consider the resolutions that<br />

we made, we often reflect on our successes and failures, contemplate<br />

our hopes realized and dreams forgotten, and consider what we have<br />

learned and how we can apply it to the future.<br />

When thinking of our past, it’s hard not to remember the loved<br />

ones we’ve lost and the heroes who have been instrumental in<br />

improving lives. One such hero recently retired from her efforts.<br />

Pearl Jemison-Smith, a founding Board member and a dynamic community<br />

advocate, has left the Board of Directors. The absence of her<br />

strength and wisdom will continue to leave an enormous gap at ASF.<br />

Since the first deadly years of the epidemic, Pearl helped shape and<br />

develop ASF and H<strong>IV</strong>/<strong>AIDS</strong> services for the entire county. She advocated<br />

for quality services for H<strong>IV</strong>/<strong>AIDS</strong> patients, helped heal many<br />

ailing souls, and acted as a community leader unlike any other in<br />

<strong>Orange</strong> <strong>County</strong>. While we cannot hope to replace her, she will always<br />

be part of the ASF family.<br />

ASF has also recently lost client and board member, Denise<br />

Lavigne, who passed away in early February. Denise spent the last 15<br />

years volunteering for ASF representing and leading the fight for<br />

those living with H<strong>IV</strong>/<strong>AIDS</strong>. As chair of our Client Advisory<br />

Committee, Denise worked to improve and develop ASF programs<br />

and the lives of those facing the hardships brought on by H<strong>IV</strong>/<strong>AIDS</strong>.<br />

Denise’s immeasurable spirit, energy and passion will forever be a<br />

part of ASF. No matter the circumstance, she stood up for what she<br />

believed in and faced each obstacle head on-she would let nothing<br />

get in her way. Her laughter and humor made us sometimes forget<br />

that she was struggling to live with the discomforts brought on by<br />

H<strong>IV</strong>/<strong>AIDS</strong>. At ASF, we will use Denise’s memory to remind us why<br />

we continue to do what we do. We will remember her courage and<br />

let it be a reminder of the thousands of others that depend on the<br />

services of ASF.<br />

All things considered, it seems that the one constant in life is<br />

change. As we look forward to the future, ASF is facing its twentieth<br />

anniversary in the fall of 2005. When ASF was founded in 1985, no<br />

one could have suspected it would be around twenty years later.<br />

People thought the H<strong>IV</strong>/<strong>AIDS</strong> epidemic would be short-lived. We<br />

thought that our ultimate goal of finding a cure and a vaccination<br />

would be reached within ten years. But each year that goal has been<br />

pushed back, much like a New Year’s resolution never attained. Now<br />

researchers are suggesting that a vaccination is at best fifteen years out<br />

and a cure seems unlikely.<br />

As a result, we are always assessing our work and determining new<br />

directions and goals for the future. Some of those goals are determined<br />

by changes in the H<strong>IV</strong>/<strong>AIDS</strong> service system, such as the<br />

recent decision of UCI Medical Center to eliminate its Ryan White<br />

“ 2005, like every other year, will bring changes, challenges,<br />

and growth to ASF. We're prepared to confront the<br />

challenges and to institute changes that will make us<br />

stronger and more able to serve those who need us. As<br />

always, we welcome your thoughts and feedback. Please<br />

don't hesitate to contact us. With your support we can<br />

continue to help those living with H<strong>IV</strong>/<strong>AIDS</strong> and educate<br />

others on how to protect tomorrow's generation.”<br />

Above: Alan Witchey (left) & Al Roberts at a recent fundraising event<br />

Specialty Medical Care <strong>Services</strong>. To compensate for this, we’ll need<br />

to find new providers willing to accept our clients. As we write this,<br />

we don’t yet know how all that will turn out. Another alarming story<br />

came in the form of a new strain of H<strong>IV</strong> that surfaced in New York<br />

City and San Diego. This strain leads to an <strong>AIDS</strong> diagnosis in a few<br />

months and is resistant to all known medications. Developments<br />

such as these require us to work faster, smarter, and better than we<br />

have before.<br />

So, we must remain true to our original goal of providing health<br />

and hope for as long as we are needed. In striving to stay true to our<br />

commitment, we’ve sought feedback from clients, donors, volunteers,<br />

and other community members concerning how ASF should<br />

evolve in 2005. In the coming months we will execute the following:<br />

1) Conduct a full assessment of our current services to determine<br />

how or if we can enhance them; 2) Determine the feasibility of ASF<br />

offering medical services; 3) Explore ways to expand our services<br />

and/or our mission; and 4) Take every effort to prevent the continued<br />

spread of H<strong>IV</strong> in our community.<br />

Perhaps the most adventurous goal is the exploration of offering<br />

medical services. We’ve begun to look at this issue because so many<br />

of our impoverished clients are struggling to access medical care and<br />

recent research has suggested that when medical services are offered<br />

on-site with social services like those at ASF (case management,<br />

mental health, food, transportation, etc.), people are more likely to<br />

utilize them. Across the country, H<strong>IV</strong>/<strong>AIDS</strong> organizations are beginning<br />

to consider the option of providing medical services. While we<br />

haven’t made a decision yet, we will be evaluating the possibility over<br />

the next year.<br />

—Al Roberts, Board President & Alan Witchey, Executive Director<br />

THE VOICE MAR/APR 05 3


art for aids <strong>IV</strong><br />

an evening with Cybil Shepherd<br />

Another evening of art and elegance has passed as Art for <strong>AIDS</strong> <strong>IV</strong>, the fourth annual event<br />

benefiting <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong> <strong>Orange</strong> <strong>County</strong> (ASF) and Laguna Art Museum, took place on Saturday,<br />

February 5, 2005 in the Pacific Ballroom of The St. Regis Monarch Beach Resort and Spa in Dana Point, CA. The<br />

evening, full of glitz and glamour, spotlighted the blonde beauty herself, Cybill Shepherd, as she<br />

took center stage in the role of the evening’s celebrity guest and performer.<br />

Returning event chairs-Jack Kenefick from Laguna Art Museum, Arnie Klein, M.D.,<br />

Founding Director, American <strong>Foundation</strong> for <strong>AIDS</strong> Research (amfAR) and<br />

Founding President of ASF Al Roberts—reunited the partnership between ASF<br />

and Laguna Art Museum in an effort to sustain the important work performed by<br />

each organization. In a statement made together, the group felt it was important<br />

to express the value of the relationship.<br />

“Each year, Art for <strong>AIDS</strong> creates an opportunity for our organizations to<br />

open their doors to each other. It creates an evening where two communities<br />

can come together and demonstrate their support for the visual arts and<br />

the H<strong>IV</strong> and <strong>AIDS</strong> epidemic in <strong>Orange</strong> <strong>County</strong>.”<br />

The night’s festivities began with cocktails, conversation, and a silent<br />

auction, all which created the perfect setting for supporters of<br />

both organizations to mix and mingle. Once the crowd had<br />

taken their seats in the exclusive Pacific Ballroom, they<br />

were presented with a magnificent buffet dinner prepared<br />

by some of the finest restaurants in <strong>Orange</strong><br />

<strong>County</strong>. Places such as 5', Aqua, and Chat Noir prepared<br />

delicacies unique to their eatery’s style of cuisine<br />

and set up culinary stations around the ballroom<br />

for guests to indulge in and enjoy.<br />

After all had the opportunity to eat, drink and be<br />

merry, the excitement continued as the live auction<br />

took the stage and the bidding began. Hollywood<br />

favorite, Carrie Fisher, had a front row seat again<br />

this year and took the stage to auction off several<br />

autographed copies of the Star Wars Trilogy that<br />

went for $700 each!<br />

Television star Shirley Jones also took part in<br />

the live auction as she modeled<br />

a diamond and platinum<br />

key pendent that was<br />

donated for auction by<br />

Tiffany’s.<br />

This year it was a privilege of<br />

both ASF and Laguna Art<br />

Museum to welcome Cybill<br />

Shepherd as the evening’s<br />

celebrity guest and performer.<br />

From the minute she took to the<br />

stage, the crowd was delighted<br />

and entertained by Ms. Shepherd’s<br />

intimate lounge-style performance<br />

complete with musical numbers,<br />

comedic stand-up, and readings from<br />

her book,“Cybill Disobedience”. q<br />

4 THE VOICE MAR/APR 05


Photos by Stan Sholik Photography<br />

Al Roberts, Shirley Jones, Ken Jillson, and Shirley Jones’<br />

husband, comedian Marty Ingles<br />

John and Kathy Meek, Diane and Johno Wells<br />

Ken Jillson took the stage and acted as MC<br />

for the live auction event<br />

Carrie Fisher signs the Art for <strong>AIDS</strong> <strong>IV</strong> poster that was sold<br />

for $1000 during the live auction<br />

Art for <strong>AIDS</strong> <strong>IV</strong> chairs Arnie Klein, M.D., Al Roberts,<br />

and Jack Kenefick of Laguna Art Museum<br />

Chris Brewer and Marilyn Brewer<br />

Mark Porterfield, Santina Davies, Sasha Fedortchez<br />

Debbie Simon and friend, Cybill Shepherd,<br />

Retha and Chris Champion<br />

Dwight Spiers, Al Roberts and Gordon Cowan<br />

Shirley Jones<br />

ASF client and guest speaker, Shirley LeGrand<br />

<strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong> <strong>Orange</strong> <strong>County</strong> and Laguna Art Museum would like to thank each and every sponsor, supporter and attendee of Art for <strong>AIDS</strong> <strong>IV</strong>. With your encouragement<br />

and assistance we were able to make this year’s event another success. This year’s donations and support of Art for <strong>AIDS</strong> <strong>IV</strong> contributed to the over a million dollars that has been raised<br />

since 2002. These efforts have, and will continue to, sustain the important work performed by co-organizers <strong>AIDS</strong> Service <strong>Foundation</strong> <strong>Orange</strong> <strong>County</strong> and Laguna Art Museum. For<br />

information about <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong> <strong>Orange</strong> <strong>County</strong> visit www.ocasf.org . For more information about Laguna Art Museum, visit www.lagunaartmuseum.org. The St. Regis<br />

Monarch Beach Resort and Spa website is www.stregismb.com.<br />

We are very grateful for the generous donation of services made by the following individuals and businesses to Art for <strong>AIDS</strong> <strong>IV</strong>:<br />

RESTAURANTS: 5' - Five Feet Restaurant, Michael Kang, Executive Chef • AQUA - The St. Regis Monarch Beach Resort & Spa - Bruno Chemel, Executive Chef • David Wilhelm’s Chat Noir, Costa Mesa, Chris Reischl, Exectutive Chef,<br />

Ryan Adams, Corporate Chef • Mark’s Catering - Mark and Melinda DePalma, Proprietors; Martín Gonzalez, Executive Chef • Motif Restaurant - The St. Regis Monarch Beach Resort & Spa, Executive Chef, Azmin Ghahreman • Plum’s Café &<br />

Catering, Costa Mesa, Kim Jorgenson, Principal • Saltwater Mexican Grill, Laguna Niguel, A. Michael Wenholz, Managing Partner • Sundried Tomato Café & Catering, Laguna Beach and San Juan Capistrano, Mark Jacobi, Proprietor<br />

BEVERAGES: Young’s Market Co. / The Estates Group, Vern Underwood and Bob Paterson • Starbucks Coffee Co. • Greg Erfani<br />

MEDIA: A&U • Coast Magazine • IN Los Angeles • KJZZ-88.1 FM • Laguna Independent • OC Weekly • <strong>Orange</strong> Coast • The Blade<br />

PRODUCTS AND SERVICES: John Anderson • Bill Atkins Graphic Design, Bill Atkins • Bradford Renaissance Portraits • Clinique Ergoniqe • Ferrari & Maserati of <strong>Orange</strong> <strong>County</strong> • Hampton Productions • hush • Gerald Ishibashi and<br />

Stonebridge • Jillson & Roberts • King Graphic Design, Gillian Kirkpatrick • Lisa Lotthouse • Mark’s Catering • Pacific Coast Flower Market • Peter Blake Gallery • Presentation <strong>Services</strong> - St. Regis Monarch Beach Resort & Spa • Primal<br />

Elements • Linda Roth • Schmid’s Fine Chocolates of San Clemente • Cybill Shepherd • Stan Sholik Photography • The Showpros Group, Inc. • Signature Party Rentals • The St. Regis Monarch Beach Resort & Spa • The Redfern Gallery •<br />

Tabu Grill • TCS-Total Communication <strong>Services</strong> • Ti Amo Ristorante • Tiffany and Co. • William Merrill Gallery • Woody’s at the Beach<br />

THE VOICE MAR/APR 05 5


world <strong>AIDS</strong> day<br />

On December 1 2004, ASF united together with Laguna<br />

Beach H<strong>IV</strong> Advisory Committee commemorated<br />

World <strong>AIDS</strong> Day. Along with <strong>AIDS</strong> Care Teams In<br />

Our Neighborhoods, Laguna Beach Community<br />

Clinic, The Gay and Lesbian Center, and Shanty OC,<br />

the groups joined together to form one powerful vision of<br />

action and hope.<br />

“It is vital that <strong>Orange</strong> <strong>County</strong> acknowledge the significance<br />

of World <strong>AIDS</strong> Day”, said Ruth Peters-Pak, ASF’s former<br />

Director of Health Education. “We may only make up a small<br />

section of the world, but our community contributes to the 40<br />

million people around the globe living with H<strong>IV</strong> today. The<br />

disease has a ripple effect. If we take on the fight in our own<br />

back yard, we in turn become part of the larger battle.”<br />

ASF accepted the call to duty by becoming part of Laguna<br />

Beach H<strong>IV</strong> Advisory Committee’s World <strong>AIDS</strong> Day commemoration.<br />

Staff members, health educators, and clients<br />

made their presence and objective known in the community<br />

by providing on-site education and information to the public.<br />

ASF’s Prevention with Positives, a program available in Spanish<br />

and English, was there to educate individuals who are living<br />

with H<strong>IV</strong> on safer sex practices, risk reduction techniques,<br />

positive sexual health, and suggestions for how to cope with<br />

living with H<strong>IV</strong>. ASF’s Primary Prevention program, directed<br />

towards high risk H<strong>IV</strong> negative individuals, also had health<br />

educators in attendance to answer questions and provide<br />

guidance to the public. They provided learning materials<br />

on how to maintain a healthy lifestyle and how people can<br />

protect themselves from contracting H<strong>IV</strong> and other sexually<br />

transmitted diseases.<br />

In addition to contributing their own specialized services,<br />

ASF also came together with the other participating organizations<br />

to strengthen the messages of World <strong>AIDS</strong> day. As a mark<br />

of respect and recognition, the group tied red ribbons on trees<br />

around Laguna Beach with the names of residents who have<br />

died of <strong>AIDS</strong> during the 20 years of the epidemic. ASF also<br />

supported the presence of the Laguna Beach Clinic mobile<br />

facility on the beach, which provided free H<strong>IV</strong> rapid testing for<br />

people to come without an appointment and receive their<br />

results in 20 minutes.<br />

The City of Irvine took official action and issued a proclamation in observance<br />

of World <strong>AIDS</strong> Day, Wednesday, December 1, 2004. Mayor Larry<br />

Agran signed the proclamation which calls for “tolerance, understanding<br />

and compassion in <strong>Orange</strong> <strong>County</strong> and around the world for everyone who<br />

is impacted and affected by H<strong>IV</strong> and <strong>AIDS</strong>”.<br />

ASF is most appreciative to Irvine Commissioner Mitch Goldstone, a member<br />

of ASF’s Public Policy Committee and long time friend and corporate<br />

sponsor of ASF and <strong>AIDS</strong> Walk, for arranging for this proclamation. Irvine has<br />

been the home of <strong>AIDS</strong> Walk for 18 years, since its inception, and the home<br />

of <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong>'s offices for more than 10 years.<br />

The City of Irvine has been a dedicated and loyal supporter of <strong>AIDS</strong><br />

<strong>Services</strong> <strong>Foundation</strong> and has shown great leadership and integrity in the<br />

fight against <strong>AIDS</strong> right here in <strong>Orange</strong> <strong>County</strong>. We thank Commissioner<br />

Goldstone, Mayor Agran, and the Irvine City Council for recognizing World<br />

<strong>AIDS</strong> Day 2004.<br />

6 THE VOICE MAR/APR 05<br />

“World <strong>AIDS</strong> Day is an opportunity once a year to remember<br />

those we have lost to <strong>AIDS</strong> and remind ourselves of the continuing<br />

global crisis of H<strong>IV</strong>/<strong>AIDS</strong>”, stated Tom Peterson, ASF’s Director of<br />

Public Policy. “At the same time, it is a day to recommit ourselves<br />

to the domestic H<strong>IV</strong> epidemic, and recognize that the global<br />

epidemic begins right here, caring for those living with H<strong>IV</strong>.”<br />

The day culminated with a candle light vigil led by Reverend<br />

Ron Hyrchuk of the South Coast Medical Center at Main<br />

Beach in Laguna. “<strong>AIDS</strong> has changed our lives and taken away<br />

our loved ones,” said Reverend Hyrcuck, “but as life carries on,<br />

we must take the time to stop and remember.” As a time of<br />

reflection, remembrance, and hope, the attending crowd of 50,<br />

each holding their candles close, shared aloud the names of<br />

those that had lost the battle to <strong>AIDS</strong>.<br />

For some, World <strong>AIDS</strong> Day is a time filled with grief for<br />

those who have lost the fight with <strong>AIDS</strong>. For others it is a day<br />

to seek out strength and faith in what the future may bring.<br />

World <strong>AIDS</strong> Day is a time for the world to be reminded that<br />

there is still no cure. We cannot forget that more than 20 million<br />

people have died from <strong>AIDS</strong>-related diseases since the<br />

beginning of the epidemic, and that an estimated 40 million<br />

people around the world today are living with H<strong>IV</strong>. q


MEMBERS SPONSOR<br />

A NIGERIAN ORPHAN<br />

client advisory committee<br />

Forty million people are living with<br />

<strong>AIDS</strong> worldwide. There are 3 million<br />

people estimated to be living with<br />

H<strong>IV</strong>/<strong>AIDS</strong> in the country of Nigeria<br />

where over a million children have been<br />

orphaned because of the <strong>AIDS</strong> epidemic.<br />

Sadly, this number is on the rise due to<br />

the high number of adults living with<br />

H<strong>IV</strong>/<strong>AIDS</strong> and their lack of accessibility<br />

to antiretroviral treatment.<br />

The H<strong>IV</strong>/<strong>AIDS</strong> outbreak in Nigeria<br />

brings about unimaginable devastation to<br />

the country, affecting both young and<br />

old. Among these overwhelming effects<br />

is the dramatic number of children,<br />

ranging in age from a few months to 18<br />

years old, orphaned by <strong>AIDS</strong>. These<br />

children, coping with the emotional<br />

stress and trauma of witnessing the<br />

deterioration and death of one or both<br />

parents are also faced with the significant<br />

decrease, if not complete loss, of household<br />

income. As a result, their quality of<br />

life, health, and education is radically<br />

diminished which can lead a child to<br />

abandon his or her education in exchange<br />

for a life of child labor.<br />

In many cases, orphans are left in the<br />

care of guardians or placed in foster care.<br />

While they are technically under adult<br />

supervision and protection, these children<br />

are more often than not subjected to<br />

violence, exploitation and abuse. Their<br />

guardians do not provide emotional<br />

support and the children are often malnourished<br />

and mistreated. They are not<br />

taught adequate social and life skills and<br />

do not learn to properly thrive and<br />

advance in society. The orphans who<br />

themselves are infected with H<strong>IV</strong>/<strong>AIDS</strong><br />

have no one to support them with the<br />

physical and emotional anguish brought<br />

on by the disease. They are not able to<br />

afford the cost of treating H<strong>IV</strong>-related illnesses,<br />

and do not know how to properly<br />

seek medical attention.<br />

ASF’s Client Advisory Committee<br />

(CAC) recognized this global issue. As<br />

clients of ASF, the CAC focuses on the<br />

prioritization and establishment of ongoing<br />

improvements to ASF services. One<br />

member of the CAC, an individual born<br />

and raised in Nigeria, initiated the idea of<br />

the committee becoming actively<br />

involved in an attempt to improve the life<br />

of just one child affected by the world<br />

<strong>AIDS</strong> epidemic. Putting aside their own<br />

struggles of coping and living with<br />

H<strong>IV</strong>/<strong>AIDS</strong>, the CAC made the decision<br />

to provide assistance to a child who is not<br />

able to access the care and support of a<br />

place like ASF.<br />

The CAC members were put in contact<br />

with Dorcas Call Ministry, an organization<br />

whose mission is to help disadvantaged<br />

teenagers, women and orphaned<br />

children in Northern Nigeria. The organization’s<br />

founder, Helen Bako, was born<br />

and raised in Northern Nigeria and leads<br />

the organization from her home in<br />

Southern California. She established<br />

Dorcas Call Ministry in response to the<br />

fact that H<strong>IV</strong>/<strong>AIDS</strong> was taking over her<br />

country. “I remember returning home to<br />

my village in Northern Nigeria. I asked<br />

my parents of the whereabouts of families<br />

in my community,” tells Bako. “Reality<br />

came crashing down on me when I<br />

learned that most had died from <strong>AIDS</strong>.”<br />

Bako knew she could not sit and watch<br />

her people fall victim to this deadly epidemic.<br />

She was extremely concerned<br />

about the children who had lost one if<br />

not both parents to <strong>AIDS</strong>. She witnessed<br />

the destruction of their lives as they lived<br />

in the streets and deserted their educations.<br />

Many of these children were living<br />

with H<strong>IV</strong>/<strong>AIDS</strong> themselves but were<br />

keeping their disease a secret, afraid of<br />

what others would think.<br />

Dorcas Call Ministry develops <strong>AIDS</strong><br />

global outreach<br />

education programs targeted at the youth<br />

of Northern Nigeria. “The younger generations<br />

have been taught that H<strong>IV</strong>/<br />

<strong>AIDS</strong> is a result of sinful acts,” states<br />

Bako. “They have never been educated<br />

on the realities of the disease. They know<br />

nothing about how the disease affects a<br />

person, how it is contracted, and how it is<br />

transmitted. They are taught not to<br />

acknowledge its existence even as it<br />

destroys their world.”<br />

Through Helen Bako and Dorcas Call<br />

Ministry, ASF’s Client Advisory Committee<br />

will sponsor and correspond with<br />

Abigail, a young girl who has lost her<br />

father to <strong>AIDS</strong>. Abigail, pictured above,<br />

is 8 years old and lives with her mother<br />

and 7 siblings. It is not known if her<br />

mother is suffering from H<strong>IV</strong>/<strong>AIDS</strong>, but<br />

Abigail watches every day as her mother<br />

sweeps homes to support her family. The<br />

CAC members will each contribute $5 a<br />

month that will go towards Abigail’s education.<br />

According to Bako, if a child can<br />

obtain a basic education and acquire the<br />

fundamental skills necessary to earn a safe<br />

and healthy living, they are more likely to<br />

escape extreme poverty.<br />

It is expected that the <strong>AIDS</strong> orphan<br />

population in Africa will reach 25 million<br />

by the year 2010. It is a problem that<br />

won’t disappear on its own. ASF’s Client<br />

Advisory Committee’s selfless efforts and<br />

support will give Abigail the opportunity<br />

to attend a quality school and to gain the<br />

knowledge that she and others of the<br />

growing orphan population in Nigeria<br />

need to overcome the obstacles of a country<br />

ravaged by <strong>AIDS</strong>.q<br />

THE VOICE MAR/APR 05 7


public policy<br />

As we move farther into<br />

2005, I cannot escape the<br />

realization that we have<br />

already reached the midpoint<br />

of the first decade of<br />

the 21st century and are peering<br />

over the edge of the 24th<br />

year of the H<strong>IV</strong> epidemic. It’s<br />

hard to believe that an<br />

obscure, mysterious cancer<br />

that was first associated with a<br />

small cluster of patients in<br />

several cities 1981 would<br />

grow to become a global<br />

pandemic that has killed 20<br />

million people, orphaned 15<br />

million children and continues<br />

to spread widely across<br />

the country and around the<br />

globe. The momentum of<br />

this epidemic seems to be<br />

increasing, with nearly 5 million<br />

new H<strong>IV</strong> infections in<br />

the world last year. In 2005,<br />

the United States will observe<br />

a disturbing milestone, when<br />

an estimated 1 million people<br />

will be living with H<strong>IV</strong>. This<br />

is the enormity of the H<strong>IV</strong><br />

epidemic in 2005.<br />

Although it was just two<br />

decades ago, the early days of<br />

the H<strong>IV</strong> epidemic seem to be<br />

in the far distant past. These<br />

were times of high mortality<br />

rates, multiple opportunistic<br />

infections that ravaged people’s<br />

bodies, and one catastrophic<br />

illness after another<br />

that left patients, along with<br />

their friends and families,<br />

feeling overwhelmed, discouraged<br />

and defeated. Those<br />

were the dark ages.<br />

Breakthrough H<strong>IV</strong> medications<br />

and improved preventive<br />

care began to turn the<br />

tide of the epidemic in the<br />

late 1990s. This slowed the<br />

mortality rate and provided<br />

the first glimmers of hope for<br />

people living with H<strong>IV</strong>.<br />

Further advances in these<br />

medications have added more<br />

potency and durability to<br />

these treatments to the point<br />

that many people have recovered<br />

their health after being<br />

disabled by H<strong>IV</strong> disease.<br />

Although there is still no cure<br />

and no treatment that eliminates<br />

H<strong>IV</strong> in the body, combination<br />

therapy has shown a<br />

remarkable capacity to control<br />

the destruction of the<br />

immune system by H<strong>IV</strong>, at<br />

least for now.<br />

1,000,000 and Counting<br />

In the thirty minutes that most people spend each day drinking coffee or reading<br />

the paper, two people will become newly H<strong>IV</strong> infected in the Untied States.<br />

8 THE VOICE MAR/APR 05<br />

But the dark ages are not<br />

very far away for many people<br />

who are living with H<strong>IV</strong><br />

today. Even with so much<br />

progress to report, a person<br />

living with H<strong>IV</strong> still faces a<br />

world of uncertainty and fear.<br />

Government funded programs<br />

for health care and<br />

support services have not<br />

been funded at levels to keep<br />

pace with a growing epidemic.<br />

Stigma and isolation remain<br />

powerful co-factors of H<strong>IV</strong>.<br />

The general awareness of the<br />

H<strong>IV</strong> epidemic that was seen<br />

years ago has drifted into apathy.<br />

Red ribbons used to be a<br />

fashion statement. Now, a<br />

new generation of young<br />

people has come along with<br />

no understanding of the<br />

devastation that <strong>AIDS</strong> caused<br />

the preceding generation.<br />

Young people who are working<br />

in the H<strong>IV</strong> field today are<br />

not much older than the<br />

epidemic itself.<br />

It took an incredible outpouring<br />

of humanity to reach<br />

this point. The community of<br />

donors and volunteers extended<br />

their generosity and<br />

compassion in ways and in a<br />

magnitude that continues to<br />

inspire us. An army of volunteers<br />

at <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong><br />

and a loyal following<br />

of donors allow ASF to continue<br />

to provide the best and<br />

most extensive array of services<br />

for people living with H<strong>IV</strong><br />

anywhere in this county and<br />

region. As caseloads continue<br />

to grow and the complexity of<br />

clients’ care brings additional<br />

challenges, ASF is unparalleled<br />

in providing a comprehensive<br />

local<br />

response to the<br />

H<strong>IV</strong> epidemic.<br />

Government<br />

officials and<br />

policymakers<br />

played a crucial<br />

role in providing funding for<br />

H<strong>IV</strong> care in local communities,<br />

especially here in <strong>Orange</strong><br />

<strong>County</strong>. The Ryan White CARE<br />

Act provides $2 billion in federal<br />

funding each year for care<br />

and services across a variety of<br />

programs. This funding is<br />

intended to bring together<br />

and extend local systems of<br />

care and provide access for<br />

those who are without private<br />

healthcare or do not qualify<br />

for other government funded<br />

medical care. Now entering<br />

its 15th year, the Ryan White<br />

CARE Act is the cornerstone<br />

of the federal government’s<br />

response to H<strong>IV</strong> and <strong>AIDS</strong>,<br />

providing care for more than<br />

500,000 people each year<br />

across the country and sending<br />

more than $8 million<br />

each year to <strong>Orange</strong> <strong>County</strong>.<br />

This legislation expires on<br />

September 30, 2005 and<br />

must be reauthorized by<br />

Congress in order to continue.<br />

Other federal programs are<br />

also vital to client care. The<br />

Veterans’ Administration, for<br />

example, is the largest single<br />

provider of comprehensive<br />

H<strong>IV</strong>/<strong>AIDS</strong> care in the United<br />

States. Social Security and<br />

Medicare programs take care<br />

of disabled clients. Medicaid,<br />

which is a federal-state health<br />

plan for low income people,<br />

covers 44% of people living<br />

with H<strong>IV</strong> and covers the<br />

health costs of up to 90% of<br />

children with <strong>AIDS</strong>. H<strong>IV</strong><br />

prevention education is funded<br />

by the Centers for Disease<br />

Control and Prevention (CDC),<br />

which spends more than<br />

$600 million on H<strong>IV</strong> prevention<br />

each year. The Housing<br />

Opportunities for Persons With<br />

<strong>AIDS</strong> (HOPWA) program provides<br />

funding into local communities<br />

for housing assistance<br />

for people with H<strong>IV</strong>.<br />

Over the years, HOPWA has<br />

provided funding for Hagan<br />

Place, Emmanuel House and<br />

Casa Alegre, producing nearly<br />

100 units of dedicated H<strong>IV</strong><br />

housing.<br />

But there is considerably<br />

more work to do.<br />

In the thirty minutes that<br />

most people spend each day<br />

drinking coffee or reading the<br />

continued on next page<br />

To find out how to become<br />

involved in ASF’s Public<br />

Policy efforts, contact Tom<br />

Peterson at 949/809 - 8764<br />

or at TPeterson@ocasf.org.


Continued from previous page<br />

paper, two people will become newly H<strong>IV</strong> infected in the Untied<br />

States. One of these two will be under the age of 25. Prevention<br />

remains the only sure way to stop the spread of this disease. We<br />

must educate people about H<strong>IV</strong> and provide them with a competent,<br />

real-world understanding of their reproductive health. We<br />

must demand that government funding be maintained at levels that<br />

are necessary to provide care for those in need. We must re-engage<br />

the general awareness that H<strong>IV</strong> is a pernicious illness that continues<br />

to destroy lives. We must involve young people in a dialogue<br />

about responsible conduct and choices. We must keep alive the<br />

memory of those we have lost.<br />

And finally, we must be committed to progress, despite the discomfort<br />

that goes along with an epidemic that has an extraordinary<br />

capacity to multiply and adapt. In another five years, we will draw<br />

the first decade of the 21st century to a close and will be approaching<br />

30 years of the H<strong>IV</strong> epidemic. Whether the headlines will warn<br />

of the mounting toll of the <strong>AIDS</strong> epidemic locally and around the<br />

world or a will announce a reversal of this trend and true progress<br />

in the fight against <strong>AIDS</strong> is up to us.<br />

We have another five years to make a difference.<br />

CALLING ON FRIENDS<br />

Tom Peterson, ASF's Director of Public Policy (left) and Kay<br />

Warren of Saddleback Church chat with Senator Bill Frist<br />

about national issues that impact people living with H<strong>IV</strong>.<br />

TURNING THE TABLES<br />

ASF is very fortunate to sponsor a number of interns throughout the year from various local universities. Erica<br />

Nicholson is a fourth year student at the University of California, Irvine who spent the fall quarter doing public<br />

policy work as an intern with Tom Peterson. We decided to turn the tables and provide an opportunity for an<br />

intern to ask the questions that a young person might be thinking about when discussing H<strong>IV</strong> and <strong>AIDS</strong>.<br />

ERICA: You have been working at ASF for a long time and have been<br />

involved in the H<strong>IV</strong> community for even longer. What has changed<br />

the most and the least over the years?<br />

TOM: Without a doubt, the client profile has changed the most.<br />

Although the H<strong>IV</strong> epidemic in <strong>Orange</strong> <strong>County</strong> is still substantially an<br />

epidemic of men who have sex with men, the epidemic has spread and<br />

now impacts a broad cross section of this community, including women<br />

and Latinos. Minorities are the fastest growing component of this epidemic,<br />

locally and across the country. The dedication of ASF’s Board<br />

and volunteers to the mission of this agency and the basic needs of people<br />

living with H<strong>IV</strong> has not changed one bit over the years. And ASF’s<br />

staff is the most extraordinary group of people doing this kind of work<br />

anywhere. This combination provides a network of support and safety<br />

net that makes a real difference in the everyday lives of our clients.<br />

ERICA: H<strong>IV</strong> infections continue to increase everywhere and people<br />

are continuing to place themselves needlessly at risk at a time when<br />

everyone knows about safe sex. What do you think accounts for this?<br />

TOM: This is one of the greatest frustrations of anyone working in H<strong>IV</strong><br />

prevention today. There may be many reasons, and some of them probably<br />

compound each other. It is difficult to maintain a sense of crisis or<br />

urgency for 24 years, and this provides a natural opening for fatigue and<br />

complacency to set in. Also, many people have misunderstood the treatment<br />

advances of the past 6 or 8 years and now incorrectly consider H<strong>IV</strong><br />

to be a chronic disease which is easily managed. H<strong>IV</strong> remains an acute<br />

illness that is difficult to treat. In fact, the side-effects of most H<strong>IV</strong> treatment<br />

regimens create a separate disease syndrome of their own. All of<br />

this is complicated, and many people were so relieved that the mortality<br />

rate finally began to drop in the late 1990s that they took a well-deserved<br />

rest. We also had a loss of brainpower and talent to this epidemic from<br />

the ranks of people who were working in the H<strong>IV</strong> prevention field themselves.<br />

Those voids have been difficult to fill. And finally, we must<br />

remember that the H in H<strong>IV</strong> stands for human. Changing patterns and<br />

conduct is difficult and challenging. I still don’t understand why people<br />

smoke and don’t wear seat belts. I agree with those who feel that prevention<br />

should be our top priority, locally and across the country. This is the<br />

best hope for stopping this epidemic in the near term.<br />

ERICA: What is the role of elected officials and policy makers as we<br />

look to 2005 and beyond in combating the spread of H<strong>IV</strong> and in<br />

caring for people with H<strong>IV</strong>/<strong>AIDS</strong>?<br />

TOM: Elected officials have a duty to lead the public discussion in the<br />

direction of solutions and problem solving around the H<strong>IV</strong> epidemic.<br />

They have an equal duty to provide for those in need and to address the<br />

comprehensive needs of people with H<strong>IV</strong>, which today includes mental<br />

health care, assistance with housing, caring for children and family<br />

members, and help with the basic necessities of life. While a government<br />

response may not be the entire answer, it is the nucleus around which an<br />

organization like ASF can build a community wide response. ASF is a<br />

great model of the public-private partnership that produces results and<br />

delivers vital services. Despite the tight fiscal times we are currently facing,<br />

we cannot expect sick or disabled people to bear the burden.<br />

Government funding of H<strong>IV</strong> programs has been stagnant while the epidemic<br />

grows at 5% to 15% each year. Medical and prescription costs<br />

increase independent of the epidemic. I would call on elected officials<br />

to fund H<strong>IV</strong> programs in local communities at levels that match the<br />

growing epidemic. We need everyone to work together in 2005 for the<br />

reauthorization of the Ryan White CARE Act, which is the cornerstone<br />

of federal funding into local communities like <strong>Orange</strong> <strong>County</strong>. Above<br />

all, elected officials and policy makers have an obligation to provide<br />

funding for effective H<strong>IV</strong> prevention so that we can stop the loss of<br />

another generation to the devastation of <strong>AIDS</strong>.<br />

ERICA: Finally, what we can do to contribute to a solution to the<br />

global <strong>AIDS</strong> pandemic?<br />

TOM: I like to remind people that the international epidemic starts<br />

right here and that the 1 million people in the United States with H<strong>IV</strong><br />

are part of the global pandemic. I would ask everyone to understand<br />

that borders are artificial and oceans no longer separate continents and<br />

people. I would urge everyone to recognize that the U.S. has an enormous<br />

capacity to lead the world, both in providing funding in resource<br />

poor settings and in setting the agenda for the dialogue about H<strong>IV</strong> and<br />

<strong>AIDS</strong>. Most importantly, Americans can set an example for the world<br />

about providing compassion and caring for people with H<strong>IV</strong> and <strong>AIDS</strong><br />

in the way that we care for one another.<br />

THE VOICE MAR/APR 05 9


S8M8S<br />

O<br />

ne of <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong>’s outreach programs,<br />

SOMOS, a Spanish word meaning “We Are”, continues<br />

its commitment to Latino gay or bisexual men,<br />

ages 18-25, by providing Spanish-language H<strong>IV</strong> and<br />

substance abuse prevention programs in the <strong>Orange</strong><br />

<strong>County</strong> community. Through guest speakers, videos,<br />

pamphlets, informal "charlas" (group discussion) and outreach<br />

events, the members of SOMOS come together with<br />

the common goal of helping to improve the lives and safety<br />

of the young gay and bisexual Latino community.<br />

On October 1st - 3rd, for an audience of 150 people,<br />

seven SOMOS members showcased their original production<br />

of “Volver a Nacer” (A Second Chance), a play presented<br />

in Spanish and performed at the Centro Cultural de<br />

Mexico in Santa Ana. Osvaldo Herasque, the plays writer<br />

and director, worked in collaboration with SOMOS members<br />

to create a production that portrayed the messages and<br />

visions of the youth themselves. “Volver a Nacer” reflected<br />

issues of importance in the young gay and bisexual<br />

Latino community such as one’s sexuality, H<strong>IV</strong> and <strong>AIDS</strong>,<br />

substance abuse, and cultural issues.<br />

“The concept, a community outreach effort, was a way<br />

to present a message of prevention”, said Jorge Castañeda,<br />

ASF Health Educator (pictured above). “It was a creative<br />

way for the community to hear about a new program that<br />

may in turn benefit someone’s son, cousin, nephew,<br />

neighbor, or friend. If the funding is sufficient enough to<br />

cover the extensive production costs, we hope to do it<br />

again next year”, said Castañeda. “It turned out to be a<br />

very powerful tool of communication. We had offers<br />

from The University of California Santa Barbara and<br />

the Mexican Consulate to host additional performances.”<br />

While serving as a form of entertainment for the audience,<br />

the play’s primary function was to serve as a vehicle of<br />

communication for the underlying cause. Using the<br />

Spanish language to present topics that may otherwise be<br />

uncomfortable for some to openly discuss, the SOMOS<br />

production of “Volver a Nacer” succeeded in finding a<br />

way to expose and educate the Latino community on the<br />

realities of H<strong>IV</strong>/<strong>AIDS</strong>. q<br />

CLIENT SURVEY RESULTS<br />

Each year, ASF distributes a survey to its clients for the purpose of maintaining and improving the quality of care we provide. Because of our unwavering commitment<br />

to the health and well being of our clients, ASF evaluates the feedback acquired from these surveys with the utmost consideration.<br />

In 2004, 182 ASF clients answered the 31 question survey which resulted in an 80% increase in affirmative responses from 2003. ASF is proud to donate<br />

83 cents of every dollar to client services, and the following results demonstrate the powerful effects of that contribution:<br />

SURVEY STATEMENT<br />

% Positive Response<br />

Case Management has increased my access to medical and other needed services 81.5%<br />

The food pantry and vouchers enabled me to have food I could not have otherwise obtained 87.0%<br />

Health Education has helped me gain access to information and knowledge of H<strong>IV</strong> disease 91.0%<br />

Housing information and guidance has increased my access to available housing programs 86.5%<br />

Mental Health <strong>Services</strong> have helped me improve my quality of life 91.3%<br />

Transportation services have increased my ability to get to medical and other support services 90.9%<br />

Vitamart, ASF’s vitamin program, has enabled me to get vitamins & nutrients that I couldn’t have otherwise obtained 92.5%<br />

ASF encourages each survey participant to not only respond to the pre-written statements but to include their own personal remarks and suggestions so that<br />

we can try to modify our facilities and programs accordingly. From these comments, we were able to learn just how essential the food pantry is to our clients<br />

and how our programs, such as Kids Club and Positive Life Force, have a powerful way of making a personalized and valuable impact on the lives of individuals<br />

and families. We discovered how our organization can better serve our community in the future by developing new programs. Clients would like to see more<br />

programs created for disabled persons as well as an increase in Outreach Prevention, especially in the Latino Community.<br />

Overall, the client survey is an effective and valuable way for the staff of ASF to obtain vital information about the individuals we are assisting and how we<br />

can better serve their needs and interests. ASF’s mission is to prevent the spread of H<strong>IV</strong> and improve the lives of men, women and children affected by<br />

H<strong>IV</strong>/<strong>AIDS</strong> in <strong>Orange</strong> <strong>County</strong>. This survey helps us to support our mission by communicating with our clients directly, gathering essential information, and considering<br />

new concepts so that we can in turn develop and improve our services.<br />

10 THE VOICE MAR/APR 05


ecent events<br />

Sin City made its way to Laguna Beach at <strong>AIDS</strong><br />

<strong>Services</strong> <strong>Foundation</strong>’s (ASF) “Lost Vegas”<br />

event on Saturday, September 25, 2004.<br />

500 guests helped raise $400,000 at<br />

the Festival of Arts grounds in Laguna Beach. Co-chaired by Judy Fluor-<br />

Runels, Ken Jillson and Jorge Rodriguez M.D., attendees were transported<br />

to the “Lost Vegas” strip, complete with creative cocktails, crazy casino<br />

action, and showgirls galore!<br />

Thank you to all event attendees,<br />

sponsors, and volunteers for<br />

your support!<br />

ASF’s 2004 Holiday Gift Basket program was again<br />

a tremendous success due to the generosity and effort of<br />

ASF supporters and volunteers. This holiday program provides<br />

ASF clients with bountiful baskets of holiday goodies<br />

and other useful, much needed items. The 600 baskets,<br />

assembled and delivered by ASF volunteers, bring joy and<br />

spirit to our clients during the holiday season. Without the<br />

dedication of our wonderful volunteers this program would<br />

not be possible. Under the leadership, guidance and handson<br />

help of two of our exceptional volunteers, Shelly Virkstis<br />

and Richard Johnson, the program could not run as smoothly<br />

as it does. Shelly and Rich begin their process of organizing<br />

and planning weeks in advance - their hours of devotion<br />

led to this year’s flawless production process resulting in<br />

record time for basket assembly!<br />

The Sponsor A Bear program has also been<br />

extraordinarily successful, bringing in over $9,000 this year. A<br />

donation of $5.00 provided a plush teddy bear to each holiday<br />

basket. In addition to the cute and cuddly bears, the money<br />

raised from this program helped fund other program expenses<br />

such as baskets, ribbons, bows, wrapping paper, shrink bags,<br />

and other production items. Because of the generous donations<br />

we received we were able to contribute extra items in<br />

addition to those that were donated. Also this year, we were<br />

fortunate to obtain in-kind donations from the following<br />

companies and individuals: Au’some Candies, Inc., Barbara<br />

Garvin, Bristol-Myers Squibb, Coffee Bean & Tea Leaf, Crown<br />

Books, Disneyland Resort, Family First, Frito Lay, Galderma<br />

Labs, Genisoy, Glaxo SmithKline, John Hirano, Jetram Sales,<br />

Jillson-Roberts, Jitterbugs Toys, MAC <strong>AIDS</strong> Fund, Robert<br />

Marger, Robert Mlodzik, David Merino, Alan Miller and Mark<br />

Guillod, NCL, Niagra Water, James Rust, Starbucks, Stash<br />

Tea, Anita Weiss, Wolfgang Puck, and Wrigley.<br />

THANK YOU!! to each and every person for your kindness<br />

in participating and giving to this program. We sincerely<br />

appreciate your support.<br />

THANK YOU!! to all of the volunteers: iindividuals,<br />

groups, staff and board members who donated their time to<br />

this fun and worthy project.<br />

It should be noted that due to budget constraints, this year’s Holiday Gift<br />

Baskets and Sponsor A Bear programs relied strictly on in-kind and<br />

monetary donations.<br />

THE VOICE MAR/APR 05 11


ecent events<br />

Friends of ASF celebrated<br />

the hope of the season at<br />

the annual Mark’s<br />

Holiday Party.<br />

Attendees came together<br />

to support our Food<br />

Pantry, a facility our<br />

clients strongly rely<br />

on during the<br />

holiday season.<br />

Your contributions,<br />

totalling almost<br />

$10,000, helped<br />

to provide<br />

food and spirit<br />

to the men,<br />

women,<br />

families,<br />

and<br />

children<br />

of<br />

ASF.<br />

ASF thanks all of those who supported us throughout<br />

the year. Shown here from left to right are: Larry<br />

Tenney, Bill Attaway and friend at a recent Patron’s<br />

Council event.<br />

DID YOU KNOW?<br />

Experts believe that there are<br />

moe than 1,200 people in <strong>Orange</strong><br />

<strong>County</strong> who are H<strong>IV</strong> positive and<br />

are unaware of their status.<br />

Latinos comprise 32% of<br />

<strong>Orange</strong> <strong>County</strong>’s population,<br />

yet account for 46%<br />

of <strong>AIDS</strong> cases in 2003.<br />

Women comprised<br />

15% of <strong>Orange</strong><br />

<strong>County</strong> <strong>AIDS</strong> cases<br />

in 2003, up from<br />

8% of cases<br />

reported prior<br />

to 1998.<br />

12 THE VOICE MAR/APR 05


ASF offers its heartfelt thanks to the following donors<br />

who are part of ASF’s new major donor program.<br />

patron’s council<br />

PRESIDENT’S CIRCLE<br />

$50,000+<br />

Mark and Donna Merhab<br />

Jim and Linda Loomis<br />

EXECUT<strong>IV</strong>E CIRCLE<br />

$25,000 - $49,999<br />

Ron and Santina Davies<br />

AMBASSADOR’S CIRCLE<br />

$10,000 - $24,999<br />

Bob Crowder<br />

DIRECTOR’S CIRCLE<br />

$5,000 - $9,999<br />

Craig Benedetti and Alex Acosta<br />

Jerry and Laura Bieser<br />

Marilyn C. Brewer<br />

Rich Fiock<br />

Anthony Glenn and Bill Seay<br />

Roger and Janice Johnson<br />

Marcos Pacheco<br />

David Pennington<br />

DELEGATE’S CIRCLE<br />

$2,500 - $4,999<br />

Pam Bobit<br />

Jacques Camus<br />

Richard and Britney Weil<br />

ADVOCATE’S CIRCLE<br />

$1,200 - $2,499<br />

Wylie and Bette Aitken<br />

Gene Allsup<br />

Richard Anderson<br />

and Alex Wentzel<br />

Mike Barry<br />

Jeff Benedick and<br />

Duane Vajgrt, MD<br />

Frank Bianchini &<br />

Joseph Ramondetta<br />

Paul Blank and Francois Leclair<br />

James Bohm<br />

Robert A. Boyd<br />

Mike Bucaro<br />

Tim Byron, MD & Verneda Byro<br />

Douglas Cable, MD<br />

David Canzoneri and<br />

Eric Cortina<br />

Paul and Cathy Cimoch<br />

John Combs & Sheldon Harte<br />

Bill Deland and Mark Fleming<br />

Dona Dixon and<br />

Marilyn Blackwood<br />

Karen Ellis and Sandra Hartness<br />

Brad Engelland and Jon Stordahl<br />

Hung Fan and Michael Feldman<br />

Jerry Finster<br />

Armando Flores<br />

Leonardo Flores<br />

Dick Runels & Judy Fluor-Runels<br />

Harold Foley & John Anguiano<br />

Steve Francis<br />

Steve Frost and Gary Castaneda<br />

Gerald Giannini & Ralph Wilson<br />

Mark Guillod and Alan Miller<br />

Bob Haskell<br />

Robert Hayden<br />

Debora Hintz<br />

Arnold Henson, MD and<br />

Theresa Siaca<br />

Joe Hodulik<br />

Daniel Hovenstein<br />

Ramy Jarallah & Michael Garrit<br />

Pearl Jemison-Smith and<br />

Burton Smith, MD<br />

Dale Jenkins<br />

Kenny Jervis<br />

Nathan Jurczyk<br />

Karla Kjellin-Elder and<br />

Jeff Elder<br />

Alex Kochnuk<br />

Elliott Kornhauser, MD and<br />

Joe Baker, DMD<br />

Barry and Jan Kuppermann<br />

Charlie Lapple & Cameron Pearce<br />

Elliott Leonard & Roger Lit<br />

Tom Livermore and<br />

Scott Shadrick<br />

Maria I. Marquez<br />

Henry McCanless and<br />

Mark Coolidge<br />

Judy O’Dea Morr<br />

Bob Parisi<br />

Pat Powers<br />

Mark Puente<br />

Christopher M. Quilter<br />

George Raab<br />

Chuck Rainey<br />

Tom Ray<br />

Frank Ricchiazzi and<br />

Borden Moller<br />

Al Roberts and Ken Jillson<br />

Jorge Rodriguez, MD and<br />

Ed Olen<br />

Ty Rose<br />

Judith Rosenthal &<br />

Georgia Garrett-Norris<br />

Mario Ruiz<br />

Robin Rutherford<br />

Scott Sackin and Philip Talbert<br />

Steven Saucer & Charles Brickell<br />

David W. Schaar<br />

Max Schneider, MD and<br />

Ron Smelt<br />

Frank J. Schools<br />

Rick Silver<br />

Calvin Smith<br />

Sindee Smolowitz & Peggy Eaton<br />

Dwight Spiers and Gordon Cowan<br />

Jeff Stuckhardt and Bill Lawrence<br />

Jay Tassin and Brent Danninger<br />

Larry Tenney<br />

Bill Thomas and Luca Cecchi<br />

Chuck Walworth MD and<br />

Jud Slusser<br />

Alan Witchey and Paul Sigmund<br />

On Thursday October 14th 2004, Dwight<br />

Spiers and Gordon Cowan generously donated<br />

their home and hosted a fabulous Patron’s<br />

Council event. An evening under the stars,<br />

with food and drink provided by Mark’s<br />

Catering, served as a way for ASF to show<br />

appreciation to those who contribute year<br />

round to our cause. We gratefully acknowledge<br />

the follow Patron’s Council members<br />

who graciously underwrote the event: Juan<br />

Chacon, Dan Haspert M.D. & Gerard Curtin,<br />

Robert Hayden III, Janice & Roger Johnson,<br />

Mark Porterfield, Steven Saucer & Charles<br />

Brickell, Patti Tucker & Julie Ferrin. A warm<br />

thank you also goes out to those who attended<br />

the event and to the members of Patron’s<br />

Council, a group who continues to display<br />

their leadership and commitment to ASF.<br />

For more information on ASF’s Patron’s<br />

Council, please contact Ty Rose at<br />

949.809.8762 or trose@ocasf.org.<br />

Jeff Benedick, Jeff Stuckhardt, Bill<br />

Lawrence and Dwayne Vajgrt, MD<br />

Dwight Spiers and Gordon Cowan<br />

Mark Porterfield, Al Roberts, Juan<br />

Chacon and Michael Feldman<br />

THE VOICE MAR/APR 05 13


in memoriam<br />

by ROBIN HINCH<br />

The <strong>Orange</strong> <strong>County</strong> Register<br />

<strong>AIDS</strong> advocate was tireless<br />

Denise Lavigne, ASF client and Board Member, charmed her clients, colleagues and tout le monde.<br />

To some, Denise Lavigne was the cute little French girl who<br />

sold T-shirts at the <strong>Orange</strong> <strong>County</strong> Swap Meet each week.<br />

To others, she was a force to be reckoned with when the needs<br />

of people with H<strong>IV</strong> or <strong>AIDS</strong> were at stake.<br />

In either role, she touched the people<br />

she met - with her charm, her pronounced<br />

French accent, her warm and<br />

welcoming smile and her refusal to back<br />

down when she believed—knew—she<br />

was right.<br />

Some people were aware she had<br />

<strong>AIDS</strong>. Many others probably were not.<br />

She spent the last 15 years volunteering<br />

for <strong>AIDS</strong> <strong>Services</strong> <strong>Foundation</strong><br />

<strong>Orange</strong> <strong>County</strong> to fight for rights,<br />

services and understanding for people<br />

with H<strong>IV</strong>/<strong>AIDS</strong>.<br />

She was 51 when she died of a heart<br />

attack while visiting family in Paris.<br />

Denise knew the medication she was<br />

taking to fight the disease could lead to<br />

heart trouble. But she was willing to<br />

take the risk. It helped keep her going<br />

as the disease progressed, and better a<br />

heart attack, she thought, than the<br />

painful, prolonged final stage of <strong>AIDS</strong><br />

she’d seen others endure.<br />

She had no idea how she’d contracted<br />

the virus. Perhaps through blood<br />

transfusions she’d had in the past. She<br />

received the diagnosis in1989 when<br />

she had blood tests required for obtaining<br />

a U.S. “green card.”<br />

Denise was born in Saigon and grew<br />

up in Paris and Marseille. She met her<br />

husband, Philip Saleh, while vacationing<br />

in Africa. Philip was a bush pilot<br />

there and her brother was his best<br />

friend. They returned to Paris, had a<br />

daughter, and then moved to<br />

California in 1985 with two suitcases,<br />

$2,000 and a baby.<br />

That baby, Emilie, is now a junior at<br />

UC Berkeley.<br />

Philip and Denise married in 1987. They lived first in<br />

Huntington Beach, and then four years ago bought their first<br />

Denise Lavigne<br />

Friends and family joined together<br />

for a memorial service and celebration<br />

of Denise’s life on February 26, 2005<br />

at the Costa Mesa Neighborhood<br />

Community Center.<br />

ASF is accepting donations in<br />

honor of Denise’s memory, spirit<br />

and smile. In addition, ASF is<br />

setting up an educational fund to<br />

help Denise’s daughter, Emilie,<br />

finish her college education.<br />

Donations can be made payable<br />

to ASF and are encouraged to be<br />

designated towards Emilie’s<br />

educational fund.<br />

house in Costa Mesa.<br />

Denise worked as a waitress in a French restaurant, then she<br />

and Philip started a T-shirt business, selling sports-themed<br />

shirts at the <strong>Orange</strong> <strong>County</strong> Swap Meet. The company’s<br />

name—Titi (pronounced tee-tee) de<br />

Paris—is a slang term for people born<br />

and raised in Paris.<br />

Beyond the T-shirt business, they also<br />

branched out into selling tablecloths from<br />

Provence, the region of southern France.<br />

Denise was a fixture at the swap meet and<br />

loved the camaraderie with other vendors.<br />

In addition, she devoted many<br />

hours, without pay, to ASF, evaluating<br />

and making recommendations about the<br />

organization’s programs, interviewing<br />

clients to determine their needs, then<br />

taking those requests to the committees<br />

in charge.<br />

Denise was a dynamic advocate, full of<br />

life and full of energy and passion for what<br />

she was doing. It became her mission.<br />

She wanted to improve the community<br />

for people with H<strong>IV</strong>/<strong>AIDS</strong> and didn’t<br />

care if hers wasn’t the most popular<br />

stance on an issue.<br />

And she didn’t mince words or shy<br />

away from controversy. There was no<br />

doubt how Denise felt about matters.<br />

At the same time, she was always loving,<br />

never spiteful or angry. “You know,”<br />

she’d say, “it’s OK if we don’t agree on<br />

this. I just need you to know where<br />

clients are coming from.”<br />

She rarely complained about her illness,<br />

even though she suffered discomfort<br />

in the last year. Mostly, she was<br />

grateful that her husband and daughter<br />

tested negative for the virus.<br />

And she loved her little house. She<br />

decorated it with care and love, and filled<br />

the garden with plants and flowers.<br />

She was so happy in California, she said<br />

she didn’t miss France, and the trip earlier<br />

this month was for a big trade show in Paris. She died in<br />

her sleep the night before she was to return to Costa Mesa.<br />

14 THE VOICE MAR/APR 05


August 1 - November 18, 2004<br />

memorials & tributes<br />

IN MEMORY OF JEFF ABRAMOWITZ<br />

Abraham Abramowitz & Lila Abramowitz<br />

IN MEMORY OF DORIS BOYD<br />

Linda Leahy<br />

Charles Lennon<br />

IN MEMORY OF DINO GOMEZ<br />

Arthur Gomez & Ruby Gomez<br />

IN MEMORY OF CLAUDETTE<br />

GRAVELL<br />

Marina Ball<br />

Walter Coe & Linda Coe<br />

David Dobos & Margaret Dobos<br />

Judy Ferguson<br />

G Ivie<br />

Dale Jenkins<br />

Mark Katz<br />

Hrag Marganian & C. Amerkhanian<br />

Marganian<br />

Sharon Matthews<br />

David Medcalf & Terry Medcalf<br />

Joel Miller & Mark Schroepfer<br />

Shiba Nabipur<br />

Lisa Reig<br />

Diane Reiman<br />

William Scannell<br />

Jim Shea & Linda Shea<br />

Jeanne Sisneros<br />

Jeanmarie Smith<br />

William Towner<br />

Judith White<br />

IN MEMORY OF PETER KNOWLTON<br />

Jacques Camus<br />

IN MEMORY OF JERRY LEVREAU<br />

Eunice Mersereau<br />

IN MEMORY OF JIM PALMER<br />

Gregory and Kathleen Abel<br />

Demetrios Athanasios<br />

Gregg Barnette and Bill Harris<br />

Mr. John Benecke<br />

Berg Insurance Agency<br />

Paola and Richard Bisson<br />

Dominic Bosco, MD and Jack Reising<br />

Cindy Boyd-Young<br />

Shirley Bradshaw<br />

Louise Callus and Brandon Krechel<br />

Craig and Lecia Davis<br />

Joy E. Dittberner<br />

Dan and Jana D’Orazio<br />

Ed & Sue Eubanks<br />

Suzanne and Rod Fisher<br />

Margaret A. Fleming<br />

Sue Freeman and John Hance<br />

Cathleen Greiner and Debra Conkey<br />

Tim Haskell and Soirée Catering<br />

Jim and Susie Jaqua Fund<br />

The Kahn Family<br />

Doris Kirst, Lucille Maher, The Rynes,<br />

The Faltermans<br />

Gerald and Paula Lingelbach<br />

Bill and Romy McFarland<br />

Moms Club<br />

Hank Morgan<br />

Kevin Mundt and David Thomas<br />

Chuck and Sukeshi O'Neal & Family<br />

Mark Porterfield and Steve Chadima<br />

Al Roberts and Ken Jillson<br />

Verna Rollinger<br />

Anita May Rosenstein<br />

Rick Silver<br />

Carolyn Skenderian<br />

Rich and Gail Squar<br />

Judith Upton<br />

Duane Vajgrt, MD and Jeff Benedick<br />

M. Todd Williams<br />

Chris & Scott Woodburn and<br />

Johnny Flannagan<br />

IN MEMORY OF<br />

KYLE LUDEN & BOB SANBORN<br />

Monty Luden & Shirley Luden<br />

IN MEMORY OF JOHN THRASH<br />

Dominic Bosco & Jack Reising<br />

Paul Hengstebeck & Ulla Hengstebeck<br />

Mark Knight & Jane Knight<br />

Al Roberts & Ken Jillson<br />

Henry Sutton<br />

Ellen Woods-Hagan<br />

IN MEMORY OF<br />

DORIS THURSTON BOYD<br />

American Wind Energy<br />

IN MEMORY OF DR. FRANK WASKO<br />

Joe Matthews<br />

IN MEMORY OF KATHARINE WILM<br />

Betsy Claster<br />

On October 11, 2004 Laguna<br />

Beach lost one of its most endearing<br />

and charming residents.<br />

John Thrash, a familiar figure<br />

in his signature hats and colorful<br />

costumes, was one of the early<br />

owners of the Laguna Health<br />

Club and one of the first residents<br />

of Hagan Place. For those that<br />

knew him well, John was recognized for his colorful window<br />

displays, especially during the holidays, his unique greeting<br />

cards and his annual caroling escapades with Big Bird!<br />

His lively, loving and creative presence will be missed by<br />

all of his friends and family members who recognized and<br />

appreciated his generous spirit.<br />

A dear friend of ASF,<br />

Claudette Gravell, RNP,<br />

passed away on September 18,<br />

2004. Claudette, who was only<br />

51 years of age, was a unique<br />

person who touched the lives of<br />

countless individuals in a very<br />

positive way. As a Nurse<br />

Practitioner for Kaiser, she<br />

worked in the infectious disease area treating and supporting<br />

many clients of ASF. She was also an active member of the<br />

Southern California Kaiser Permanente Nursing Research<br />

Committee helping to shape the work of the group throughout<br />

the years.<br />

Randee Marlin, a Nurse Case Manager at ASF described<br />

Claudette as a wonderful, caring, loving individual. “She<br />

was extremely dedicated to her H<strong>IV</strong> patients at Kaiser,” said<br />

Marlin, “she was a wonderful advocate for each one of<br />

them. I only had the strongest feelings of admiration for her<br />

and I for one have already greatly missed her.”<br />

From others whose lives that she touched—<br />

”Claudette made being H<strong>IV</strong> positive a tolerable thing for me…I learned how to live<br />

again with her support and care.”<br />

“The doctors at Kaiser tended to my broken body, but Claudette tended to the repair and<br />

nurturing of my soul.”<br />

In Memory of Jim Palmer, loving<br />

partner of John O’Neil and<br />

long time supporter of ASF.<br />

Friends and family joined together<br />

at a memorial held at their home<br />

on January 13th, 2005.<br />

At their request, in lieu of flowers,<br />

donations were directed to ASF.<br />

THE VOICE MAR/APR 05 15


SPECIAL<br />

THANK YOU’S<br />

ASF would like to thank Jonathan Blitz and the Wells Fargo “Community Partners Program” for their<br />

charitable donation of $1,000 to ASF. Jonathan Blitz, who has donated his time and services to <strong>AIDS</strong><br />

Walk <strong>Orange</strong> <strong>County</strong> for many years was generous enough to extend his professional relationship with<br />

Wells Fargo to ASF. As a result of his efforts, ASF was fortunate to be the recipient of this most significant<br />

and beneficial contribution.<br />

ASF thanks Senator Joe Dunn and the Southern California Water<br />

Company for the donation of 20 turkeys for our clients during the<br />

Thanksgiving holiday.<br />

ASF would also like to thank Mark and Donna Merhab for their<br />

generous donation of 50 turkeys to our food pantry which helped<br />

bring joy to our clients on Thanksgiving.<br />

ASF would like to<br />

wish a Happy 80th<br />

to Bobbie Smith,<br />

son of Bob Metcalfe,<br />

from Al Roberts, Ken<br />

Jillson, Dwight Spiers,<br />

and Gordon Cowan<br />

Happy Birthday to our<br />

friend Joe Hodulik.<br />

Thank you for all that<br />

you do in support<br />

of ASF.<br />

On Sunday, November 14, the newly renovated<br />

Joshua Christopher Salon in<br />

Fullerton, CA organized and hosted “Cut<br />

for a Cure.” For a $20 donation to ASF, customers<br />

were invited to receive a high-end<br />

salon haircut, listen to music from live DJ’s,<br />

and enjoy complimentary refreshments.<br />

“Cut for a Cure” raised $6,000 for ASF, an<br />

amount that surpassed the projected goal by<br />

$1,000! ASF would like to give praise and<br />

appreciation to the Joshua Christopher<br />

Salon, its owner, Josh Nuñez, to the dedicated<br />

staff, and to all of the supporters for<br />

their immeasurable generosity.<br />

The Joshua Christopher Salon is located at<br />

333 Imperial Highway in Fullerton, CA.<br />

For information on ASF or any<br />

of its services, please call (949)<br />

809-5700, or visit us online at<br />

www.ocasf.org.<br />

17982 Sky Park Circle Suite J<br />

Irvine, CA 92614<br />

Non-profit<br />

US Postage<br />

PAID<br />

Permit No. 392<br />

Santa Ana, CA

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