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<strong>Parents</strong><br />
Your Child Could Be On Our Cover! P.71<br />
Autism:<br />
The Story<br />
behind<br />
raising an<br />
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The story of a mother raising an autistic child<br />
By:Sofia Alejo<br />
M yrna sat in the<br />
doctor's office next to her husband,<br />
waiting for the doctor to<br />
come in with some type of explanation<br />
as to what was going on<br />
with her youngest child, Jose. She<br />
breathed heavily while counting<br />
every individual stitch on the maroon<br />
chair that supported her<br />
heavy soul. She sat there thinking<br />
about all of the other mothers<br />
who sat in that chair, wondering<br />
if they felt as ill as she did at that<br />
very moment. She wondered if all<br />
the other mothers felt their chest<br />
slowly tighten, being compressed<br />
by worry and fear. Her only son,<br />
her little baby, her newest joy--<br />
there was something wrong with<br />
him and she knew it. Myrna, who<br />
also happens to be my mother,<br />
has never been the type of person<br />
to give up easily. My mom is<br />
a warrior. Time and again she's<br />
had to deal with many difficult<br />
battles, specifically raising my<br />
brother, but she’s made it. She’s
come out wounded, but alive.It<br />
was in 2004 when Myrna received<br />
the news that her two<br />
year old son was autistic (Alejo).<br />
Autism is a developmental disorder<br />
that is characterized by social<br />
interaction and communication<br />
deficiencies, and restricted<br />
and repetitive behavior patterns<br />
(Ekas and Whitman 1). It is considered<br />
by many to be the most<br />
severe childhood behavioral disorder<br />
with the most complex developmental<br />
pattern (Altiere and<br />
Von Kluge 1). Doctors, along<br />
with internet findings, bombarded<br />
her with devastating predicaments<br />
of what her future as a<br />
mother raising an autistic child<br />
would hold. She was told that<br />
her and her husband’s relationships<br />
with friends and family<br />
would suffer due to the nature of<br />
their child’s disorder. Their social<br />
life would be restricted in order<br />
to cater their child’s needs. They<br />
even told her that in some cases<br />
parents could eventually be<br />
stuck in a vicious cycle, as the<br />
more severe the symptoms of a<br />
child’s autism, the more stress is<br />
placed on a parent (Glazzard<br />
and Overall 3). Myrna was completely<br />
taken aback with all of<br />
this newly discovered information.<br />
She tried lying to herself<br />
saying that everything would be<br />
okay, but she knew it wouldn’t.<br />
Her son’s life would not be okay<br />
and neither would hers. She felt<br />
like her world was crumbling at<br />
her feet. And all she could think<br />
about out was the hell that her<br />
baby boy would have to go<br />
through (Alejo).
Over the course of the next<br />
few years I saw my family hang<br />
on by a thread. My brother’s diagnosis<br />
did not only change his<br />
life, but changed the lives of the<br />
ones who loved him as well. Every<br />
day was a challenge for my family<br />
that we surely did not embrace.<br />
Going out with my brother<br />
was a dreaded nightmare accompanied<br />
by the intense judgment<br />
of strangers. Whether it<br />
would be to go out to eat or<br />
simply go grocery shopping, we<br />
knew it would be a struggle. Extreme<br />
meltdowns in the middle of<br />
the aisles or loud screams and<br />
sobs at the restaurants along with<br />
dirty looks from others were all we<br />
could ever expect. I could see<br />
my dad’s genuine smile slowly<br />
deteriorate day by day. There<br />
were countless nights where I<br />
heard my mom’s almost silent<br />
sobs through her cracked bedroom<br />
door. My mom, the one<br />
person that always held her head<br />
up high letting nothing stand in<br />
her way, was slowly being consumed.<br />
All the strength I had ever<br />
seen in her was fading away. At<br />
first it seemed like we had lost my<br />
brother, like he would be stuck in<br />
his own little world forever. But<br />
soon I realized that it was my par-
ents who were the ones that<br />
were no longer with me. I had lost<br />
them, my brother and any ounce<br />
of joy that used to fill our home.<br />
Even if Jose was given the best<br />
treatments by experts every single<br />
hour of the day, it would still be difficult.<br />
It would always be difficult<br />
because here was a boy who<br />
would have to depend 100% on<br />
someone else for the rest of his life<br />
(Alejo).<br />
The functioning of a family<br />
with a special needs child is subject<br />
to the biggest change social<br />
and somatic areas (Ślifirczyk et al.<br />
8). Myrna’s life along with the lives<br />
of her husband and children had<br />
changed drastically. But once she<br />
was thoroughly aware of everything<br />
having to do with her son’s<br />
condition she decided to get her<br />
family back to normal and started<br />
getting in action (Alejo). Positive<br />
emotions can act as a buffer to<br />
psychological stress and can help<br />
individuals find positive meaning in<br />
stressful situations (Kayfitz et al. 1).<br />
Myrna took that into consideration<br />
and started seeing her son’s disorder<br />
not as a bad thing, but as<br />
something that would strengthen<br />
and motivate her to become a<br />
better mother. Along with her newly<br />
found positive attitude, Myrna<br />
like many mothers in her position<br />
went to go seek help from professionals.<br />
Every person that she met<br />
along the way was kind and bighearted.<br />
Every single doctor,<br />
speech therapist and teacher<br />
helped Jose ultimately better his<br />
life (Alejo). Not only was professional<br />
help important in coping with Jose’s<br />
disorder, but family support<br />
was a key element as well.<br />
“Support is key, especially family<br />
support. That is number<br />
one” (Alejo).
“Despite the hardships that may<br />
be experienced raising a child<br />
with autism, families survive”<br />
(Altiere and Von Kluge 1).<br />
And indeed my family survived.<br />
Once again I finally saw the<br />
strongest woman I have ever<br />
known turn back into a warrior. “It<br />
may seem overwhelming and<br />
many times it will be, but you cannot<br />
get scared. Yes it is an emotionally<br />
bombarding diagnosis,<br />
but you cannot let it scare<br />
you” (Alejo). The first thing a mother<br />
does when receiving her child’s<br />
diagnosis is look up autism on the<br />
internet. The videos, articles and<br />
images that first appear are of<br />
quite possibly the strongest most<br />
severe cases out there. But in reality<br />
every child with autism, every<br />
single one, is different (Alejo).<br />
There are many parents with autistic<br />
children, but all of their expe-
iences raising their children are<br />
very different from<br />
one another (Glazzard and Overall<br />
1). Every autistic child might<br />
have similar characteristics but<br />
they are all different so there are<br />
many different methods, in which<br />
they can learn, from a very common<br />
method to a very specific<br />
one. With long hours of work every<br />
day, it is very much possible to<br />
give an autistic child the opportunity<br />
to move forward in their<br />
lives (Alejo). With the support of<br />
health professionals, family members<br />
and most importantly a positive<br />
attitude, raising a child with<br />
autism and providing them a<br />
better future is something that<br />
can surely be attained. My family<br />
is living proof that no disease or<br />
disorder is strong enough to<br />
break a family apart. A disorder<br />
like this can pull and tug but will<br />
never be able to destroy something<br />
as strong as a family bond.<br />
It has not been an easy journey<br />
and I highly doubt that my brother<br />
will ever be 100% cured, but<br />
we are fighting through it. We<br />
are fighting for a better life for<br />
him and we are getting there.