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Analytic Research Framework Core A: Secondary Data Analysis

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<strong>Analytic</strong><strong>Research</strong><strong>Framework</strong><br />

ProjectNumber,<br />

<strong>Research</strong><br />

Questions,and<br />

P.I.<br />

<br />

Hypothesis<br />

<br />

<strong>Data</strong>Source<br />

<br />

TopicArea<br />

Projectsin<br />

Priority(b)<br />

this<br />

informs<br />

<strong>Core</strong>A:<strong>Secondary</strong><strong>Data</strong><strong>Analysis</strong><br />

R1.American<br />

HousingSurvey<br />

(AHS)(Dr.<br />

Ravesloot).<br />

1.Morethan30%ofpeoplewithdisabilitieswhoreportamobilitylimitationliveinhomesor<br />

apartmentsthathavestepsattheentry.2.Morethan30%ofpeoplewithdisabilitiesdonot<br />

haveaccesstoanytransportationincludingpublictransportation.3.Homeandtransportation<br />

accessisinverselyrelatedtoincome,ageandemployment.4.Peoplewithdisabilitiesare<br />

disproportionatelyrepresentedinhousingbuiltbefore1990(i.e.,housingnotcoveredbythe<br />

FairHousingAmendmentActthatwouldmandateminimalaccessibilitystandards).5.More<br />

peoplewithmobilityimpairmentslivinginnonmetropolitanareaswillhavestairstotheir<br />

housingentrancethanthoselivinginmetropolitanareasbecausethehousingstockisolder<br />

andfewerhousingunitsarecoveredbytheFHAA.<br />

TheAmericanHousing<br />

Survey<br />

Housing.<br />

R9.<br />

R2.American<br />

TimeUseSurvey<br />

(ATUS)(Dr.<br />

Ravesloot).<br />

1.Peoplewithdisabilitieswhoareemployedreportsignificantlymoretimeengagedin<br />

communityactivities.2.Peoplewithdisabilitieswhoarenotemployedspendsignificantlymore<br />

timeathomealonethantheiremployedcounterparts.3.Availabilityofpersonaltransportation<br />

ishighlyrelatedtotimespentincommunityactivities.4.Peoplewithdisabilitieslivinginnon<br />

metroareaswillreportmoretimeathomealonethantheirmetropolitancounterparts.<br />

TheAmericanTimeUse<br />

Survey<br />

<br />

Participation,<br />

functionalstatusand<br />

environmental<br />

factors.<br />

R9.<br />

R3.American<br />

Community<br />

Survey(ACS)(Dr.<br />

Houtenville)<br />

Examinetheassociationofcommunityparticipationandcommunitylivingwith:<br />

1. Sociodemographicfactors,includingbutnotlimitedtorace,ethnicity,income,education,<br />

householdcomposition),2.Traitsofthehousingphysicalstructure,includingbutnotlimitedto<br />

ageofthestructure,numberofstories,structure,3.Localcharacteristics,includingbutnot<br />

limitedtourban/ruralandavailabilityofpublictransportation,stateandlocalpoliciesand<br />

programs,topography,climate,and4.Thenatureofanindividual’sdisability(i.e.,disability<br />

typeandseverity).<br />

TheAmericanCommunity<br />

Survey<br />

Effectofindividual<br />

andlocation<br />

characteristicson<br />

community<br />

participationand<br />

communityliving.<br />

R9<br />

R4.Medical<br />

Expenditure<br />

PanelSurvey<br />

(MEPS)(Dr.<br />

Reichard)<br />

1.Therearedyadsandtriadsofchronicconditionsamongsubgroupsofdisabilitythatcanhelp<br />

informdesignandevaluationofmoreeffectivehealthcareforthoseexperiencingthe<br />

combinationsofchronicdisease.2.Subgroupsofdisabilityexperiencedifferencesinhow<br />

conditionsclustermostcommonly.3.Prevalenceratesforchronicconditiondyadsandtriads<br />

arehigherforallsubgroupsofdisabilitythanthosewithnodisability.4.Dyadsandtriadsof<br />

chronicconditionsamongsubgroupsofdisabilityvaryacrosssociodemographicand<br />

MedicalExpenditurePanel<br />

Survey(MEPS)<br />

Prevalenceratesof<br />

chronicconditions;<br />

accesstohealthcare<br />

andpreventive<br />

services.<br />

R7


ProjectNumber,<br />

<strong>Research</strong><br />

Questions,and<br />

P.I.<br />

<br />

Hypothesis<br />

<br />

<strong>Data</strong>Source<br />

<br />

TopicArea<br />

Projectsin<br />

Priority(b)<br />

this<br />

informs<br />

R4.Medical<br />

Expenditure<br />

PanelSurvey<br />

(MEPS)(Dr.<br />

Reichard<br />

(continued)<br />

geographicfactors.5.Dyadsandtriadsofchronicconditionsamongsubgroupsofdisability<br />

reportdifferentialaccesstohealthcareandpreventiveservices.6.Dyadsandtriadsofchronic<br />

conditionsamongsubgroupsofdisabilityreportdifferentialhealthstatus.7.Themultivariate<br />

relationshipsbetweenpredisposingcharacteristics,thehealthcaresystem,external<br />

environment,enablingcharacteristics,need,andrealizedaccessaremoderatedbydisability<br />

typeandclusters(dyadsandtriads)ofchronicconditions.8.Themultivariaterelationships<br />

betweenpredisposingcharacteristics,thehealthcaresystem,externalenvironment,enabling<br />

characteristics,need,realizedaccessandhealthstatusaremoderatedbydisabilitytypeand<br />

clusters(dyadsandtriads)ofchronicconditions.<br />

<br />

R5Vocational<br />

Rehabilitation<br />

(VR)(Dr.<br />

Balcazar)<br />

1.Whichdemographicfactors(e.g.,race,gender,age,disabilitytype,education,accessto<br />

reliabletransportation,etc.)influencesuccessfulemployment/rehabilitationoutcomesamong<br />

VRconsumersresidingininstitutions,transferringoutorresidinginthecommunity?Which<br />

demographicfactorsarerelatedtofailuretoattainrehabilitationgoals?2.Whichcaselevel<br />

characteristics(e.g.,referralsource,sourceofincomeattimeofentry,consumer’sincome<br />

level,etc.)influencesuccessfulattainmentofVRgoalsamongconsumersresidingin<br />

institutions,transferringoutorresidinginthecommunity?Whichcaselevelcharacteristicsare<br />

relatedtofailuretoattainrehabilitationgoals?3.WhichVRlevelvariables(e.g.,22typesofVR<br />

services,numberofservicesreceived,serviceprovider,caseexpenditures,etc.)influence<br />

positiveattainmentofVRgoalsamongconsumersresidingininstitutions,transferringoutor<br />

residinginthecommunity?WhichVRlevelvariablesarerelatedtofailuretoattain<br />

rehabilitationgoals?<br />

VirtualCaseManagement<br />

Files<br />

Rehabilitation.<br />

R9<br />

R11<br />

R6.SPARC/<strong>Core</strong><br />

(Dr.Gray/Dr.<br />

Dashner)<br />

Individualswithmobilityimpairmentswhousemobilityenhancingdevices,thosewhohave<br />

visualimpairmentsandthosewhoarehardofhearingwilldifferinthe:<br />

1.Frequencyofvisitingcommunitysites;2.Evaluationofcommunitysitevisits;3.Receptionat<br />

thecommunitysitestheyvisit;4.Amountofpersonalassistancetheyusetovisitcommunity<br />

sites;5.Reasonsfornotvisitingcommunitysites;6.Demographicfactorsgeographicfactors.<br />

<strong>Data</strong>setcollectedusing<br />

webbasedsurveysof<br />

peoplewithdisabilities,<br />

SPARCandCORE,in2007<br />

2010<br />

Factorsinfluencing<br />

communitylivingfor<br />

peoplewith<br />

disabilities.<br />

R8&R10<br />

<strong>Core</strong>B:Interventions<br />

<br />

Hypothesis<br />

InterventionDesign<br />

<br />

TopicArea<br />

<br />

PAR<br />

Fidelityof<br />

implementation<br />

R7.Health<br />

Navigator(Dr.<br />

Reichard)<br />

1.Afterreceivinghealthnavigatortraining,casemanagerswill<br />

valuewhattheyhavelearned.2.Afterreceivinghealthnavigator<br />

training,casemanagerswillincorporatewhattheyhavelearned<br />

Modifiedpretest<br />

posttestcontrol<br />

groupdesign.<br />

Healthnavigation<br />

Toensurethatthegoals,<br />

proceduresand<br />

outcomesof<br />

Tobedeveloped,will<br />

includeaself<br />

monitoringfidelity


Hypothesis<br />

<br />

InterventionDesign<br />

<br />

TopicArea<br />

<br />

PAR<br />

Fidelityof<br />

implementation<br />

R7.Health<br />

Navigator(Dr.<br />

Reichard)<br />

(continued)<br />

intotheservicestheyprovidetoconsumers.3.Consumers<br />

receivinghealthnavigationservicesfromtheircasemanagerwill<br />

improvetheirlevelofpatientactivation.4.Consumersreceiving<br />

healthnavigationservicesfromtheircasemanagerwillimprove<br />

theircommunityparticipation.<br />

thisprojectaremost<br />

relevanttopeoplewith<br />

isabilities,wewill<br />

establishaconsumer<br />

empoweredteam(CET).<br />

checklistforCILstaff.<br />

R8.Personal<br />

Assistant<br />

Services(PAS)<br />

(Dr.Dashner)<br />

1.InformalPASconsumersattendingtheeducationsessionswill<br />

demonstrateimprovedhealthstatus,increasedexercise<br />

participation,increasedsocialcontacts,higherreportedexposure<br />

toenvironmentalfacilitatorsinthecommunity,improved<br />

satisfactionwithPAprovidersandincreasedfrequencyof<br />

participation,improvedqualityofparticipationinthecommunity<br />

andincreasedlevelofcomfortdirectinginformalcareproviders;<br />

2.InformalPASprovidersattendingtheeducationsessionswill<br />

improvetheirapproachtopreparingconsumersforcommunity<br />

activities,reportlessdifficultywithcompletingtasks,havefewer<br />

injuriesandreportlessstressandanincreasedlevelofcomfort<br />

providingassistancethanindividualproviderswhodonotattend<br />

thetrainingintervention.<br />

Repeatedmeasures<br />

groupdesign.<br />

PAStraining<br />

1.Theproposedproject<br />

willinvolveCETsto<br />

developeducational<br />

topicsandcontentofthe<br />

trainingtobedeveloped<br />

throughfocusgroupsand<br />

apilottestofthe<br />

intervention.2.Members<br />

oftheresearchlab<br />

oratoryalsohavesevere<br />

disablingconditionsand<br />

aresensitivetobarriers<br />

tocommunity<br />

participationandthe<br />

provisionofpersonal<br />

assistanceservices.<br />

Thefidelitywillbe<br />

ensuredthrough<br />

involvementofthe<br />

PARgroupin<br />

identifyingcritical<br />

componentsand<br />

measurableindicators<br />

ofthetraining<br />

curriculum,resulting<br />

inadraftfidelity<br />

measurethatwillbe<br />

iterativelyrevisedas<br />

themodelischanged<br />

duringthe<br />

developmentphase.<br />

R9.Housing<br />

Accessibility<br />

Advocacy(Dr.<br />

Ravesloot)<br />

1.Theusabilityofhousingunitsoccupiedbypeoplewith<br />

disabilitiescanbereliablyandvalidlymeasuredwithaselfreport<br />

measurementinstrument.2.Morethan30%ofrandomlyselected<br />

residentswithdisabilitieswhodwellinmultifamilyunitscovered<br />

byfederalhousinglawswillreportusabilityproblemswiththeir<br />

housingunitandhousingcomplexcommonareas.3.Compliance<br />

withfederalhousingaccessibilitylawscanbemeasuredwitha<br />

briefonsitehousingassessmentstrategyusedbycenterfor<br />

independentlivingcenterstaff.4.Morethan30%ofhousingunits<br />

occupiedbypeoplewithdisabilitieswillbenoncompliantwith<br />

federalhousinglawsthatlimiteithertheircommunityaccessor<br />

visitability.5.AnadvocacyinterventionbasedonNew<br />

Governanceconceptswillresultingreatercompliancewith<br />

federalhousinglawsthanstandardcomplaintbasedstrategies.<br />

<br />

Truerandomized<br />

controlgroup<br />

experimentaldesign.<br />

<br />

Rapidhousing<br />

assessmentand<br />

advocacy<br />

Peoplewithdisabilities<br />

willbehiredtoprovide<br />

guidanceanddirectionto<br />

theproject,throughthe<br />

developmentofa<br />

ConsumerEmpowered<br />

TeamofAdvisors.<br />

<strong>Research</strong>staffwillbe<br />

copiedonallNew<br />

Governance(NG)<br />

advocacyand<br />

complaintbased<br />

correspondence.<br />

Fidelitywillbe<br />

assessedusing<br />

checklistsfor<br />

intervention<br />

components.<br />

Significantdeviations<br />

willbeaddressedwith<br />

CILstaff.


Hypothesis<br />

<br />

InterventionDesign<br />

<br />

TopicArea<br />

<br />

PAR<br />

Fidelityof<br />

implementation<br />

R10<br />

Community<br />

Engagement<br />

Initiative(CEI)<br />

KT(Dr.Drum)<br />

1.Willacommunityengagementtechniqueusedtoidentifyand<br />

resolvebarrierstoaccessinghealthcarebeeffectivein<br />

identifyingandresolvingbarrierstoaccessingcommunity<br />

recreationactivities,i.e.,createmoreopportunitiesfor<br />

recreationparticipation?2.WillgraduatedlevelsofKTassistance<br />

(andattendantcosts)resultindifferentialresultsinidentifying<br />

andamelioratingbarrierstoparticipatingincommunity<br />

recreationactivities?3.Willthecommunityrecreationbarrier<br />

removalresultinanincreaseinparticipation?<br />

Multisiteembedded<br />

casestudydesign.<br />

<br />

Community<br />

participation<br />

TheCEmethodologyisa<br />

classicexampleof<br />

participatoryresearch.<br />

ImplementationofCEhas<br />

beenaccomplished<br />

throughpartnerships<br />

withlocaldisability<br />

organizations,including<br />

independentliving<br />

centers.<br />

Allcommunityproject<br />

siteswillbeaskedto<br />

document<br />

modificationsor<br />

changestotheCE<br />

process.<br />

R11.<br />

Community<br />

ToolBox(CTB)<br />

(Dr.White)<br />

1.CILsthatreceivetheCPTTAwillbemoresuccessfulbringing<br />

aboutcommunityandsystemschangethanCILsthatdonot<br />

receiveCPTTA.2.CILsthatreceivetheCPTTAwillcreatemore<br />

opportunitiesforcivicengagementandcommunityparticipation<br />

forpeoplewithdisabilitiesintheircommunitythanthosewhodo<br />

not.<br />

Waitlistreplication<br />

design.<br />

Civicengagement<br />

Peoplewithdisabilities,<br />

CILsandother<br />

communitybased<br />

organizations,andother<br />

membersofthe<br />

communitywillbe<br />

activelyengagedin<br />

assessingbarriersand<br />

assetsforparticipation,<br />

indevelopingstrategic<br />

actionplans,inimple<br />

mentingthemultilevel<br />

plan,andinevaluating<br />

theorganization’sefforts.<br />

Theonline<br />

documentation<br />

approachalongwith<br />

regularTAwillalso<br />

increasethefidelityof<br />

theprocessofthe<br />

independentvariable<br />

<strong>Core</strong>C:KnowledgeTranslation:SystematicScopingReviews<br />

<br />

<br />

TitleofReview<br />

<br />

<br />

ImportanceofTopic*<br />

<br />

<br />

PARApproach<br />

Projects<br />

inPriority<br />

(b)this<br />

informs<br />

SSR1:ASystematicScopingReviewof<br />

theLiteratureonRiskFactorsfor<br />

Institutionalization<br />

Willexaminetherangeandnatureofresearchonvariablesthat<br />

contributetoinstitutionalizationforworkingagepeoplewith<br />

disabilities,andidentifygapsintheliteraturetoinformRRTC/CL<br />

interventioninvestigators<br />

Persystematicscopingreviewprotocols,aReview<br />

AdvisoryPanelcomposedofscientists,disabilityservice<br />

providers,andpolicyexpertswillbeactivelyinvolvedin<br />

thereviewtoensurerigor,transparencyandrelevance<br />

R7,R8,<br />

R9,R10,<br />

R11<br />

SSR2:ExtendingaSystematicScoping<br />

ReviewoftheLiteratureonHealthCare<br />

UseandReceiptof ClinicalPreventive<br />

ServicesbyPeoplewithDisabilities<br />

Willextendanexistingreviewfortwoyearsoncriticalhealth<br />

relatedfactorsposingbarrierstocommunitylivingforpeople<br />

withdisabilitiesandidentifygapsintheliteraturetoinform<br />

RRTC/CLinterventioninvestigators<br />

Persystematicscopingreviewprotocols,aReview<br />

AdvisoryPanelcomposedofscientists,disabilityservice<br />

providers,andpolicyexpertswillbeactivelyinvolvedin<br />

thereviewtoensurerigor,transparencyandrelevance<br />

R7,R8,<br />

R9,R10,<br />

R11

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