SCAN Haematology Group

SCAN Haematology Group
Monday 27 th February 2012
DCN Seminar Room, Western General
Hospital, Edinburgh with videolinks to
VHK and St John’s
MINUTES
Present
Alison Allen
Sandra Bagnall
Angus Broom
Liz Brown
Archana Chankeshwara
Kerri Davidson
John Goodlad
Rosie Jones
Kate Macdonald
Sheena Mackenzie
Christine Maguire
Angus Ogilvy
Brenda Peek
Jeff Smith
Steve Rogers
Fiona Scott (Chair)
Peter Williamson
In attendance
Tom McCarthy*
Apologies
Carolyn Bedi
Shirley Fife
Simon Jackson
Belinda Hacking
Lorna McLintock
Gillian Wilson
Frances Yuille
*For item on Wider Scan Issues
SCAN Audit Manager
SCAN Patient Involvement Manager
Consultant Haematologist, NHS Lothian
Haematology Clinical Nurse Specialist, NHS Lothian
Haematology Data Manager, NHS Lothian
Consultant Haematologist, NHS Fife
Consultant Pathologist, NHS Lothian
Consultant Haematologist, NHS Lothian (St John’s)
Network Manager, SCAN
SCAN Groups and Communications Co-ordinator
SCAN Haematology Audit Facilitator
Patient Participant
Associate Specialist, NHS Lothian
NHS Fife
Consultant Haematologist, NHS Fife
Consultant Haematologist, NHS Lothian
Consultant Haematologist, NHS Fife
SCAN Modernisation Manager
Consultant Oncologist, ECC
Macmillan Lead Cancer & Palliative Care Nurse, NHS
Lothian
Consultant Radiologist, NHS Lothian
Consultant Clinical Psychologist, NHS Lothian
Consultant Haematologist, NHS Fife
Senior Charge Nurse, NHS Fife
Consultant Oncologist, ECC
A full list of members is available on www.scan.scot.nhs.uk
SCAN Office, Pentland House, 47 Robb’s Loan, Edinburgh EH14 1TY
Tel: 0131 465 7682E: sheena.mackenzie@nhslothian.scot.nhs.uk
W: www.scan.scot.nhs.uk
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Item
Action
1 Minutes / Matters Arising
The minutes of the meeting on 28 th November 2011 were approved.
Matters arising:
2010 lymphoma comparative report – Alison Allen advised that this audit
report was about to be finalised.
Myeloid clinical management guidelines – Fiona Scott said that Huw
Roddie was still working on these guidelines.
2 Wider SCAN Issues
Regional review of non-surgical oncology – Tom McCarthy told the
Group that the review had recommended a programme of redesign to
extend the ‘shelf-life’ of oncology services and health boards were
developing local workplans to take this work forward. He suggested that,
although the review had focused on solid tumours, the themes considered
(eg team-based practice, acute oncology, patient information, telehealth)
might also be relevant to haematology.
It was agreed that there was no pressing need for a similar review in
haematology services.
Steve Rogers expressed concerns that any reduction in input from the
Oncologists might exacerbate acute oncology issues in Fife and said that
one of the Fife Physicians was leading work to draw up acute oncology
pathways.
Angus Ogilvy advised the Group that he was involved in the national
cancer information group responsible for developing the NHS Inform
service and the Tailored Information for People in Scotland (TIPS) project,
which was promoting individualised information provision. It was agreed
that Angus should be asked to give an update on these developments at
the next meeting.
3 Haematology Issues
• Teenage Cancer Trust
Liz Brown reported that the Teenage Cancer Trust unit would occupy
the space currently used by Ward 3, the day case area and part of
the MRC lab. She expected that work would start in the late summer
and be complete by April 2013. Fiona Scott said that arrangements
for staffing and service delivery remained to be agreed.
Fiona Scott said she understood that the national MCN for children
and young adults with cancer was proposing to establish a national
MDM for all young adults (up to the age of 25) and for all young
adults to be entered into trials. Group members saw practical
challenges in achieving these aims. It was agreed that Kate
Macdonald should seek an update from the national MCN for children
and young adults with cancer.
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Action: Kate Macdonald to seek an update from the national
MCN for children and young adults with cancer.
Kate Macdonald
• Review of Allogeneic Transplant Services
Steve Rogers said that presentations from Edinburgh, Glasgow and
Aberdeen had been given to the first meeting of the review group.
Preliminary options had been put forward and information was now
being gathered in relation to these. Group members were concerned
that the different parts of Scotland were not equally represented on
the review group and it was agreed that Kate Macdonald should raise
this with NHS National Services Scotland (NSS).
Fiona Scott noted that travelling for transplant treatment was
potentially very daunting for patients and queried whether there was
patient representation on the review group. Steve Rogers confirmed
that there was patient representation on the group but said that he
would recommend at the next meeting, at the beginning of March,
that patient input be broadened.
Actions:
Steve Rogers to send a copy of his email about the allogeneic
transplant review to Fiona Scott and Kate Macdonald.
Steve Rogers to recommend that patient representation on the
allogeneic transplant review group be extended.
Kate Macdonald to raise the issue about representation on the
allogeneic transplant review group with NSS.
Steve Rogers
Steve Rogers
Kate Macdonald
• Patient Issues – Update on patient survey
Sandra Bagnall noted that the interim report on the patient survey had
been circulated to the Group. She said that she had asked Kathryn
Brechin to send her the report on the inpatient survey which had been
carried out in Lothian. If the Lothian survey had covered the areas the
Haematology Group was interested in, a further SCAN survey might
be unnecessary.
Sandra said that she had met colleagues in Fife about replicating the
patient survey there. She hoped that this work, which would focus on
the day units initially, would start soon. Borders had been
preoccupied with other issues and therefore Sandra had not yet
spoken to them about undertaking survey work.
It was suggested that a survey might be undertaken at St John’s and
agreed that Sandra should liaise with Rosie Jones about this.
Action: Sandra Bagnall to liaise with Rosie Jones about
undertaking a patient survey at St John’s.
Sandra Bagnall
Rosie Jones
The Group noted the email from Peter Hutchison, Chair of the SCAN
Primary Care Group, about the findings of the patient survey.
Members of the Group confirmed that if they requested blood tests for
patients undergoing treatment they would be responsible for checking
the results and Fiona Scott suggested that a line might be added to
clinic letters to confirm this.
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Fiona Scott congratulated Sandra Bagnall, Peter McDade and Angus
Ogilvy on the work they had undertaken and suggested the following
actions:
• Provide feedback to reception staff
• Provide feedback to Kathryn Brechin on the lack of space in
Ward 1
• Brenda Peek to provide feedback to management on the
confidentiality issues in relation to the Ward 1 sign in book.
Action: Fiona Scott to provide feedback to reception staff and
Kathyrn Brechin on findings from the patient survey.
Fiona Scott
The Group agreed that it would be useful to conduct a survey about
the treatment expectations of older, frail patients. It was agreed that
Fiona Scott should work with Brenda Peek to develop a
questionnaire and seek help from Sandra Bagnall in taking the
survey forward.
Action: Fiona Scott and Brenda Peek to develop a
questionnaire for older, frail patients and seek help from
Sandra Bagnall in taking forward a survey for this patient
group.
Fiona Scott
Rosie Jones
Sandra Bagnall
• Chemotherapy Electronic Prescribing and Administration
System (CEPAS)
Brenda Peek reported that the rollout of CEPAS was progressing but
a number of teething problems had been encountered, including
delays in results on APEX being downloaded to CEPAS. As far as
haematology was concerned, Brenda said the major issue for her was
having time to work on the protocols and she said she would discuss
the possibility of taking professional leave at the next management
meeting.
4 Any other business
Lymphoma QPI Development Group – Fiona Scott advised that the
QPI Group was due to hold its first meeting on 7 th March.
Molecular Pathology Consortium Implementation Group – Fiona
Scott advised the Group that she and Ewan Brown had been nominated
to represent SCAN on a group which had been set up to discuss the
establishment of a national molecular pathology consortium. Group
members emphasised the importance of retaining the streamlined and
integrated diagnostic pathway for haematology and Fiona Scott undertook
to highlight this at the national group. It was agreed that Fiona should
report back to the Haematology Group at alternate meetings.
Cytogenetics – Peter Williamson reported that cytogenetics had agreed
to a one-month trial of email notifications. It was agreed that if the pilot
proved successful, other clinicians would also be keen to receive email
alerts.
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Christine Maguire – Fiona Scott noted that Christine Maguire was due to
retire before the next meeting and, on behalf of the Group, thanked
Christine for her sterling work, particularly on the database and the
diagnostic pathway.
5 Future meetings
Meetings will alternate between Mondays and Wednesdays.
Wed 23 rd May 2012
Mon 3 rd Sept 2012
Wed 21 st Nov 2012
Start time: 4.00pm (or 4.15pm if Fiona Scott is teaching)
Locations: Western General, Edinburgh, VHK, QMH, BGH and
St John’s.
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