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DISCOVER - National Alopecia Areata Foundation

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INVESTIGATE<br />

HOPE<br />

<strong>DISCOVER</strong>


The nation’s leading nonprofit watchdog group, the BBB Wise Giving<br />

Alliance, has found that NAAF operates with the utmost integrity,<br />

transparency, and accountability. NAAF is proud to be one of the few<br />

nonprofits out of the almost 1.5 million nonprofits in the United States<br />

that meets these strict standards. In addition NAAF meets all 44 of the<br />

standards required for membership in the <strong>National</strong> Health Council.<br />

HOPE<br />

INVESTIGATE<br />

<strong>DISCOVER</strong><br />

Dear Friends,<br />

We begin this annual letter to you by highlighting the most exciting discovery in the history of alopecia areata.<br />

The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> (NAAF) used your generous donations to INVESTIGATE every possible<br />

avenue that might lead to a breakthrough in the understanding and treatment of this disease, and after 13 years of<br />

investments in genetics research, we <strong>DISCOVER</strong> there are eight genes related to alopecia areata. These same genes<br />

are associated with many other autoimmune diseases. Through our research program, NAAF has given HOPE to<br />

generations of people affected by alopecia areata.<br />

Scientists throughout the world know about this finding since it was published in the prestigious medical<br />

journal, Nature. Medical professionals, including dermatologists, have contacted NAAF to praise us regarding this<br />

discovery. Patients and families who have supported NAAF for many years know that their commitment has been<br />

worthwhile. At the same time, we all realize we must continue to take steps toward the next discovery in our quest to<br />

find an effective treatment and end to this disease.<br />

While we celebrate this breakthrough in research, we also want to remember the other two parts of our mission—awareness<br />

and support—which are so important for people living today with alopecia areata. Through our<br />

support network, the <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> makes a difference in the lives of those families and individuals.<br />

We continue to investigate and discover new ways of helping people. We offer hope on a daily basis through<br />

our website, message boards and social media, informational materials, DVDs, electronic and print newsletters, the<br />

Ascot Fund, and the <strong>Alopecia</strong> <strong>Areata</strong> Marketplace.<br />

The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> strives to communicate the facts about alopecia areata to as many<br />

people as possible. Each day we discover new ways to reach more people. Through awareness and advocacy programs<br />

we educate the community so that they, in turn, are more compassionate and considerate of people with<br />

alopecia areata. We thank NBA player Charlie Villanueva and Miss Delaware, Kayla Martell, who promote awareness<br />

through their appearances.<br />

We thank you again for your support. We hope you are pleased with the report of activities and accomplishments<br />

from 2010.<br />

Brian Ter Haar,<br />

Chair, Board of Directors, 2011<br />

Vicki Kalabokes<br />

President and Chief Executive Officer


“We came to the NAAF Conference<br />

looking for a cure. When you are sitting<br />

with others, look to each side and<br />

forward and back. That is where the<br />

cure is.”<br />

— Howard Kaplan and Ernest Guenzburger<br />

“When our son saw others who had<br />

alopecia areata who got it as children<br />

who are now doctors, lawyers and<br />

emcees he became empowered.”<br />

— Phil Maniscalco<br />

“A young boy I met on the first day of<br />

the<br />

conference was at the airport going<br />

home on Sunday. He was telling me<br />

how he made so many new friends and<br />

was going to keep in touch with them. The difference<br />

in this kid from the first day to the last was just amazing<br />

and so noticeable. He was in line pointing to his mom<br />

all the other alopecians in the security line. I could tell<br />

he knew that he was not alone and it made all the<br />

difference for him. You guys are doing God’s work at<br />

NAAF, you really are.”<br />

— Matt Kelley<br />

“Our support group meeting was the<br />

best meeting ever and I just wanted to<br />

say thank you. You have no idea what<br />

you have done for so many people’s<br />

lives. Thank you from the bottom of<br />

my heart for giving me this opportunity to provide a<br />

safe place for so many people that are suffering.”<br />

— Margaret Staib, Long Island,<br />

New York Support Group Leader<br />

“It takes profound insight and wisdom<br />

to know that how you deal with being<br />

‘you’ affects everyone around you,<br />

even strangers.”<br />

— Georgia Roberts<br />

INVESTIGATE<br />

<strong>DISCOVER</strong><br />

SUPPORT: People <strong>DISCOVER</strong><br />

every day that the <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong><br />

<strong>Foundation</strong> offers the Emotional Cure through<br />

its Support Network.<br />

• NAAF held its 25th Annual International Patient Conference<br />

in Indianapolis, Indiana, in the summer of 2010, drawing 655<br />

participants from 32 states and 3 foreign countries. The conference<br />

is the key to all of NAAF’s support efforts, empowering<br />

those affected by alopecia areata to raise awareness and help<br />

others in their own communities.<br />

• 86 Conference Scholarships were awarded to people in need,<br />

enabling them to attend the conference. A total of 1,121 scholarships<br />

have been awarded since the inception of our conference<br />

scholarship program.<br />

• Our Children’s Conference Camp, which has been held in<br />

tandem with the patient conference since 1988, drew 225 children<br />

and teens.<br />

HOPE<br />

• We continue to expand NAAF’s website to serve you better. It is<br />

more interactive to help more people in real time.<br />

• We have hosted NAAF Webinars to educate everyone on topics<br />

you have requested such as Advocacy, Research, and Children<br />

Returning to School. Our most popular Webinar last year featured<br />

Dr. Christiano reporting on her genetic findings.<br />

• Our NAAF Electronic News (Beneath the Surface) quickly conveys<br />

important information to everyone.<br />

• NAAF s Facebook and Twitter pages encourage even more interaction<br />

among our alopecia areata family.<br />

• The Ascot Fund provided financial grants to 65 men, women,<br />

and children so they could purchase hair prostheses. These<br />

The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report 1<br />

grants truly make a difference in the lives of people. A total of<br />

414 people have been aided by grants from this fund since it<br />

was established in 2004.<br />

• <strong>Alopecia</strong> areata kids have many NAAF resources to help them!<br />

We offer a nine-minute DVD/video that kids can share with<br />

family, friends, and schoolmates; a school packet for use by<br />

parents and teachers; a NAAF bibliography of books for kids<br />

with alopecia areata; children’s supports groups; our Children’s<br />

Conference Camp; our Pen Pals program; secure and private<br />

message boards for children and teens; a special KidNet section<br />

of the NAAF Newsletter; and brochures for both kids and<br />

their parents.<br />

• The <strong>Alopecia</strong> <strong>Areata</strong> Marketplace helps people with alopecia<br />

areata access hard-to-find and much-needed products to ease<br />

their daily life. It now features 54 different merchants. The variety<br />

and quality of the products are exceptional.<br />

• Our International Support Network includes 130 loyal volunteers<br />

in 111 cities worldwide, organizing local support groups<br />

and providing telephone support. NAAF has started highlighting<br />

its support volunteers in each quarterly newsletter.<br />

• Our Pen Pal program now has over 1,300 participants, including<br />

adults as well as children.<br />

• NAAF responds to thousands of emails, phone calls, and fax<br />

requests for information.<br />

• NAAF is able to help more people because of the help we<br />

receive from thousands of volunteers nationwide and internationally.<br />

• Our quarterly award-winning NAAF Newsletter continues to be<br />

recognized as a model for patient newsletters.<br />

• Our NAAF brochures continue to help those with alopecia<br />

areata and educate the public.


2 The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report<br />

AWARENESS: People<br />

<strong>DISCOVER</strong> every day what alopecia areata is<br />

and its effects on people through <strong>National</strong><br />

<strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong>’s awareness<br />

efforts especially our grassroots volunteers<br />

around the world.<br />

“I feel when you educate and make others feel<br />

comfortable about alopecia areata by talking about<br />

it openly it helps avoid misunderstandings and<br />

promotes awareness.”<br />

— Maritza Stern<br />

“Beauty comes in all different kinds<br />

of packages. You can be a beauty<br />

queen and not have hair.”<br />

— Kayla Martell<br />

• Kayla Martell has been a spokesperson for NAAF. She was<br />

crowned Miss Delaware, and the <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong><br />

<strong>Foundation</strong> was chosen as her platform to promote alopecia<br />

areata awareness. We had millions of media impressions from<br />

the numerous media outlets that covered her reign as Miss<br />

Delaware. She eventually advanced to the top ten in the Miss<br />

American Pageant. We are so proud of her!<br />

• Kristen Wells, host of HGTV’s Smart Fix has also been a spokesperson<br />

for NAAF. Kristen contacted NAAF with a burning desire<br />

to give back. She wants to add HOPE because her hair did<br />

grow back and she has been patch-free ever since.<br />

• NBA player Charlie Villanueva continues to “Meet & Greet” and<br />

inspire children and adults affected by alopecia areata, but<br />

Charlie says the reverse is true: he says these Meet & Greets<br />

really inspire him. The Charlie’s Angels Program has had over<br />

4,500 children and adults participate during the past five<br />

years.<br />

• NAAF and the <strong>National</strong> Coalition of Autoimmune Patient<br />

Groups (NCAPG) worked together to produce two video Public<br />

Service Announcements (PSAs), one for all autoimmune<br />

diseases and one for alopecia areata. Charlie Villanueva was<br />

among the people featured. This was a very productive collaboration.<br />

• NAAF publicity efforts generated over 80 print, television, and<br />

web media publications with millions of media impressions<br />

during 2010. This included coverage on CBS News, Fox News,<br />

ABC News, the Today show, The New York Times, The Huffington<br />

Post, USA Today, Los Angeles Times, WebMD, AARP Bulletin, Skin<br />

and Allergy News, and Fox News Latino. [Rosalie, please scan<br />

some of the articles given to you]<br />

• Over 500 NAAF Conference participants attended an Indianapolis<br />

Indians Minor League baseball game to raise awareness of<br />

alopecia areata and cheer on Harrison Goldberg, who threw<br />

the ceremonial first pitch.<br />

• The Tortoise & Hair run/walk is growing into NAAF’s premier<br />

nationwide awareness and fundraising event. Held during our<br />

annual patient conference in Indianapolis, this event drew<br />

over 470 runners and raised over $20,000.<br />

• Volunteers like Heidi Bratt in Massachusetts continue to fight<br />

at the state level for insurance coverage for alopecia areata.<br />

“I see alopecia areata as the coolest<br />

disease ever because it’s not deadly,<br />

you get to go to conferences, meet<br />

new kids with alopecia areata too and<br />

you get to meet the coolest basketball<br />

player ever . . . Charlie Villanueva.”<br />

— A NAAF Kid<br />

“I fought my insurance company for six months and<br />

I won! A small victory, yet an important one. Insurance<br />

companies need to know that alopecia areata is an<br />

autoimmune disease, it is a real disease, it affects people<br />

greatly, and that people with alopecia areata have the<br />

right to recognition and treatment.”<br />

— Cynthia Klein


HOPE<br />

INVESTIGATE<br />

<strong>DISCOVER</strong><br />

The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report 3<br />

NAAF GRATEFULLY ACKNOWLEDGES ALL OF THE AWESOME INDIVIDUALS AND FAMILIES THAT RAISED<br />

MONEY AND SPREAD AWARENESS ON OUR BEHALF DURING 2010. TOTAL RAISED: $223,400!<br />

• NAAF continued its fight for insurance coverage on<br />

CALIFORNIA<br />

KENTUCKY<br />

NORTH CAROLINA<br />

the Federal level.<br />

• NAAF volunteers hosted fundraising and awareness<br />

events around the world, generating almost<br />

$223,400 for NAAF. All of these events are listed by<br />

state or province in this annual report. We offer our<br />

thanks to all the individuals and families who hosted—or<br />

participated in—these fantastic events!<br />

• NAAF now has an official song: “Bald is Best” by<br />

Tyree Glenn Jr, the ambassador of Rhythm and<br />

Blues. The song gets everyone dancing and singing.<br />

Tyree Glenn Jr. has over 20 years of experience<br />

on New York’s Broadway, concert tours, and television<br />

and radio shows in Italy, Portugal, England,<br />

and Germany.<br />

• NAAF, working with the Coalition<br />

of Skin Diseases, has continued<br />

to advocate for the importance of<br />

skin disease research so that all skin diseases in the<br />

coalition benefit.<br />

• NAAF takes a very active role in educating<br />

medical professionals about alopecia areata, hosting<br />

informational exhibits at key medical and<br />

scientific conferences, including the American<br />

Academy of Dermatology, the Dermatology Nurses’<br />

Association, the Society for Investigative Dermatology,<br />

and the American Academy of Pediatrics.<br />

Jillian Halloran Family & Friends<br />

Trish Kotal Family & Friends<br />

Friends at Luso-American Life Insurance<br />

Friends of the Marin Human Race<br />

San Francisco Support Group<br />

CONNECTICUT<br />

Connecticut Support Group<br />

Adriene & Robert Guerin Family & Friends<br />

Holly McDonald’s Family & Friends<br />

Jacob Offir Family & Friends<br />

Katy Swede-Taillon Family & Friends<br />

DELAWARE<br />

Deborah Pellicano Family & Friends<br />

FLORIDA<br />

Amish & Berna Parikh Family & Friends<br />

ILLINOIS<br />

Ken & Jennifer Anderson Family & Friends<br />

Baumgart/Beckman Family & Friends<br />

Rogers Elementary School<br />

INDIANA<br />

Friends of Northwood Elementary School<br />

Olivia Rusk Family & Friends<br />

NAAF Supporters of Tortoise & Hair TM<br />

Indianapolis<br />

IOWA<br />

Kelly Fineman Family & Friends<br />

Ruthy Mayfield Family & Friends<br />

LOUISIANA<br />

Abby Ter Haar Family & Friends<br />

MARYLAND<br />

Mark Sayan Family & Friends<br />

MASSACHUSETTS<br />

Friends of Westminster<br />

Elementary School<br />

MICHIGAN<br />

Mallory Crowner Friends & Family<br />

Cassie McElwain Family & Friends<br />

MISSOURI<br />

Michelle & Kurt Busse Family & Friends<br />

NEW JERSEY<br />

Tom & Laura Conklin Family & Friends<br />

Liliana Hakim Family & Friends<br />

Christopher Passarella Family & Friends<br />

Carole Rogers Family & Friends<br />

NEW YORK<br />

Harrison Goldberg Family & Friends<br />

Jack Keogh Family & Friends<br />

Lord & Taylor Do Good Campaign<br />

Erica Meilhede Family & Friends<br />

Friends of Northside School<br />

Alexandra Dest Family & Friends<br />

Samuel Lanning Family & Friends<br />

OHIO<br />

Sara Kluener Family & Friends<br />

Paige Collins Family & Friends<br />

PENNSYLVANIA<br />

Beth Breslow Family & Friends<br />

Nikola Cao Family & Friends<br />

Friends of Hallowell Elementary School<br />

Diane Gormley Family & Friends<br />

Friends of the Philadelphia, PA<br />

Support Group<br />

Emma Robbins Family & Friends<br />

Friends of the Philadephia 76’ers<br />

SOUTH CAROLINA<br />

Cindy Bondio Family & Friends<br />

TENNESSEE<br />

Shannon O’Neill Family & Friends<br />

TEXAS<br />

Jose Charqueno Family & Friends<br />

Manuel Espino Family & Friends<br />

Michael & Lise Maddux Family & Friends<br />

VIRGINIA<br />

Jeff & Sherene Gravatte Family & Friends<br />

WISCONSIN<br />

Friends of Aplington/<br />

Friends of Reuben Gittelman<br />

Kaycee & Kiah Lang Family & Friends<br />

Parkersburg School District<br />

Hebrew Day School<br />

Friends of Wedgewood Park School


4 The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report<br />

HOPE<br />

INVESTIGATE<br />

<strong>DISCOVER</strong><br />

RESEARCH: The <strong>National</strong><br />

<strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> spends a<br />

tremendous amount of its resources to<br />

INVESTIGATE alopecia areata to <strong>DISCOVER</strong> as<br />

much scientific knowledge as possible and to<br />

give HOPE to all those affected by alopecia<br />

areata.<br />

“Thank you so much for the email<br />

about Dr. Christiano’s discovery of the<br />

genes implicated in alopecia areata<br />

and the publicity. I understand there is<br />

no cure yet but this puts HOPE in the<br />

hearts of millions.”<br />

— Shawn Lintz<br />

“Finally we have the possibility of<br />

developing drugs that specifically<br />

target the mechanism behind the<br />

disease.”<br />

— Angela Christiano, PhD<br />

• NAAF’s funding of Dr. Angela Christiano at Columbia University<br />

over the past 13 years has paid off with the discovery of eight<br />

genes that contribute to alopecia areata, one of which has a possible<br />

role in the onset of the disease. Many of the genes found to<br />

be associated with alopecia areata are also associated with other<br />

autoimmune diseases with pre-existing treatments. This discovery<br />

is expected to lead to effective clinical trials. NAAF thanks the<br />

<strong>National</strong> Institutes of Arthritis and Musculoskeletal and Skin Diseases<br />

(NIAMS) for continuing Dr. Christiano’s studies and awarding<br />

her the resources to be able to make this discovery.<br />

• NAAF has now initiated an <strong>Alopecia</strong> <strong>Areata</strong> Treatment Development<br />

Program to find a successful treatment as rapidly as possible.<br />

This program, which is a direct result of recommendations<br />

from the <strong>Alopecia</strong> <strong>Areata</strong> Immunology Summit and Dr. Christiano’s<br />

discoveries is strategic and focused. We know exactly what<br />

we need to do to accomplish our goals. We have a comprehensive<br />

budget and timeline.<br />

The program focuses our efforts in two directions: Basic<br />

Immunology Research to find a treatment in the long term<br />

and Clinical Studies to find a treatment in the short term,<br />

NAAF acts much like a concierge, bringing together players<br />

from science, industry, government and patients to find a<br />

treatment.<br />

“Dr. Christiano has definitely been working on this for<br />

a very long time. I’m glad her research is finally bearing<br />

fruit. Dedication like hers is rare.”<br />

— Nick Kypriotakis<br />

“Thank you very much for such interesting news, which<br />

give us additional hopes of attaining our targets<br />

against alopecia areata.”<br />

— Jorge Sralegui Gil<br />

“Wow, this is what I have been<br />

waiting for! As an immunologist who<br />

has been following the research in the<br />

field of alopecia areata for over<br />

25 years, it was enlightening to hear<br />

the results of the work presented by Dr. Christiano at<br />

the NAAF conference in 2010. The rigorous population<br />

genetics data derived from the <strong>National</strong> <strong>Alopecia</strong><br />

<strong>Areata</strong> Registry provides the focus for new targeted<br />

immunologic, therapeutic and clinical studies.”<br />

—Howard B. Fleit, PhD.


The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report 5<br />

BASIC IMMUNOLOGY RESEARCH:<br />

NAAF has funded two research grants in Basic Immunology<br />

to date—one to find the autoantibodies involved in alopecia<br />

areata and another to determine if infectious agents are<br />

involved. These studies are ongoing and should be completed<br />

in late 2011.<br />

1. The George Eisenbarth Laboratory, located in the Barbara<br />

Davis Center for Childhood Diabetes at the University of<br />

Colorado Denver School of Medicine, is a<br />

state-of-the-art facility focused on researching the immunology<br />

and autoimmunity of Type 1 Diabetes. We believe we can<br />

benefit from all the advances and technology the diabetes<br />

community has invested in studying their disease to learn more<br />

about our own.<br />

NAAF is funding Dr. Li Zhang, a postdoctoral fellow in the<br />

Eisenbarth Laboratory, to Develop Molecular Assays for <strong>Alopecia</strong><br />

<strong>Areata</strong>–Associated Autoantibodies.<br />

Much autoimmunity research now focuses on discovering<br />

the specificity of the immune response—in other words, the<br />

specific target that the immune response is attacking.<br />

The specificity of the immune response is determined by<br />

either antibodies or T-cell receptors. Antibodies are soluble proteins<br />

that circulate through the body, seeking foreign antigens<br />

to bind and target. T-cell receptors are located on the surface of<br />

T cells, which migrate through the body seeking antigens to attack.<br />

In alopecia areata, it appears that specific T cells are attacking<br />

specific antigens in the hair follicle.<br />

Once antibody specificities are identified in alopecia<br />

areata, additional studies on the role of these antibodies in alopecia<br />

areata will be designed, and studies on T-cell specificities<br />

will be organized to determine if T cells share the same specificities<br />

as antibodies.<br />

2. Yehuda Shoenfeld, MD, FRCP, is also studying infectious<br />

agents in alopecia areata. Shoenfeld is head of the Department<br />

of Medicine B and the Zabludowicz Center for Autoimmune<br />

Diseases at Sheba Medical Center (affiliated with Tel-Aviv<br />

University) in Israel and Incumbent of the Laura Schwarz-Kipp<br />

Chair for Research of Autoimmune Diseases on the Sackler<br />

Faculty of Medicine at Tel-Aviv University, Israel.<br />

An increased prevalence of celiac autoantibodies has been<br />

found in the sera of alopecia universalis patients compared<br />

to controls. They suggest an association between anti-celiac<br />

antibodies and anti-TPO with alopecia universalis and patchy<br />

alopecia areata. The exact role of these autoantibodies and their<br />

associations with different forms of alopecia areata and other<br />

autoimmune diseases will continue to be studied.<br />

CLINICAL STUDIES:<br />

1. NAAF has formed the Corporate Leadership Council to convince<br />

companies that there is a market for drugs that may<br />

be able to be used to treat alopecia areata.<br />

2. NAAF funded a grant to Dr. Jenna O’Neill at Wake Forest<br />

University to research the 235 drugs being developed for<br />

other autoimmune diseases and to produce a spreadsheet<br />

of all pertinent information, including what stage of study<br />

the drug is in.<br />

3. NAAF held an <strong>Alopecia</strong> <strong>Areata</strong> Clinical Summit to set priorities<br />

to advance clinical studies of alopecia areata.<br />

4. NAAF is negotiating with several companies to partner on<br />

clinical studies.<br />

5. NAAF is coordinating investigators to develop a uniform<br />

protocol for alopecia areata clinical<br />

studies.<br />

6. NAAF is pursuing Quality of Life Studies so<br />

we will be prepared to appear before the Food and Drug<br />

Administration if we are successful in finding a viable<br />

treatment.<br />

7. NAAF is also pursuing current prevalence and incidence<br />

studies to present to the Food and Drug<br />

Administration.<br />

8. NAAF is coordinating alopecia areata–related grant applications<br />

to the <strong>National</strong> Institutes of Health so there aren’t<br />

competing applications.<br />

9. NAAF is pursuing the publication of the<br />

biomarkers involved in alopecia areata to advance the clinical<br />

studies.<br />

• NAAF has spent the year preparing to take over the <strong>National</strong><br />

<strong>Alopecia</strong> <strong>Areata</strong> Registry, which was established at NAAF’s<br />

urging and funded by the <strong>National</strong> Institute of Arthritis and<br />

Musculoskeletal and Skin Diseases of the <strong>National</strong> Institutes<br />

of Health. Dr. Christiano used 1,054 samples from the Registry<br />

for her important discoveries. We hope to change the<br />

Registry’s name to the <strong>Alopecia</strong> <strong>Areata</strong> Clinical Trials Registry<br />

since it will become a major part of the <strong>Alopecia</strong> <strong>Areata</strong><br />

Treatment Development Program.<br />

By the end of 2010, over 9,000 people had completed the<br />

initial registration questionnaire. Over 3,100 of these people<br />

had also completed the second phase of registration, providing<br />

blood samples and undergoing a medical exam. The more<br />

people we have in the registry, the more we learn about alopecia<br />

areata and the more clues we gain to find a possible cure.


6 The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report<br />

HOPE<br />

INVESTIGATE<br />

<strong>DISCOVER</strong><br />

STATEMENT OF ACTIVITIES FOR THE YEAR ENDED<br />

DECEMBER 31, 2010<br />

REVENUES:<br />

Unrestricted Temporarily 2010<br />

Restricted Total<br />

Donations—general $428,969 $ - $428,969<br />

Donations—stock and major donors 449,984 - 449,984<br />

Restricted grants and donations - 56,482 56,482<br />

Conference 168,605 650 169,255<br />

Special events—Links for Locks<br />

and Tortoise & Hair TM 56,995 56,995<br />

Prior year grant reimbursements 12,702 12,702<br />

Awareness campaign 130,485 7,254 137,739<br />

Newsletter income 12,550 19,000 31,550<br />

<strong>Alopecia</strong> <strong>Areata</strong> Marketplace 6,339 - 6,339<br />

Brochures and videos 816 - 816<br />

Interest and dividend income 13,320 - 13,320<br />

Net realized and unrealized gains (losses)<br />

on marketable securities 45,479 - 45,479<br />

Net assets released from restrictions 92,093 (92,093) -<br />

STATEMENT OF FINANCIAL POSITION December 31, 2010<br />

ASSETS 2010<br />

Current assets<br />

Cash and cash equivalents $ 693,226<br />

Marketable securities 417,146<br />

Accounts receivable 14,308<br />

Prepaid expenses and other current assets 77,676<br />

Total current assets 1,202,356<br />

Fixed assets,<br />

net of accumulated depreciation 8,079<br />

Total assets $1,210,435<br />

INCOME FOR FISCAL YEARS 1981-2010<br />

LIABILITIES AND NET ASSETS 2010<br />

Current liabilities<br />

Accounts payable $ 11,648<br />

Accrued vacation payable 11,477<br />

Total current liabilities 23,125<br />

Net assets:<br />

Unrestricted 1,152,136<br />

Temporarily restricted 35,174<br />

Total net assets 1,187,310<br />

Total liabilities and net assets $1,210,435<br />

SPENDING PRECENTAGE<br />

EXPENSES<br />

Total revenues 1,418,337 (8,707) 1,409,630<br />

Unrestricted Temporarily 2009<br />

Restricted Total<br />

Program services<br />

Research 187,484 - 187,484<br />

Education and support 815,906 - 815,906<br />

Support services:<br />

Fundraising 166,396 - 166,396<br />

Management and general 83,294 - 83,294<br />

1,550,000<br />

1,500,000<br />

1,450,000<br />

1,400,000<br />

1,350,000<br />

1,300,000<br />

1,250,000<br />

1,200,000<br />

1,150,000<br />

1,100,000<br />

1,050,000<br />

1,000,000<br />

950,000<br />

900,000<br />

850,000<br />

800,000<br />

750,000<br />

700,000<br />

650,000<br />

80% PROGRAM<br />

Support, Research and<br />

Awareness<br />

Total expenses 1,253,080 - 1,253,080<br />

600,000<br />

550,000<br />

500,000<br />

Change in net assets 165,257 (8,707) 156,550<br />

Net assets, beginning of period 986,879 43,881 1,030,760<br />

450,000<br />

400,000<br />

350,000<br />

300,000<br />

250,000<br />

Net assets, end of period $1,152,136 $35,174 $1,187,310<br />

The Statement of Financial Position of the <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> as of December 31, 2010, was audited by R. J.<br />

Riccardi, Certified Public Accountant. A copy of the complete report, including notes, is available for public review from the <strong>National</strong><br />

<strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong>, 14 Mitchell Boulevard, San Rafael, CA 94903 or on the website www.naaf.org.<br />

200,000<br />

150,000<br />

100,000<br />

50,000<br />

1981<br />

1982<br />

1983<br />

1984<br />

1985<br />

1986<br />

1987<br />

1988<br />

1989<br />

1990<br />

1991<br />

1992<br />

1993<br />

1994<br />

1995<br />

1996<br />

1997<br />

1998<br />

1999<br />

2000<br />

2001<br />

2002<br />

2003<br />

2004<br />

2005<br />

2006<br />

2007<br />

2008<br />

2009<br />

2010<br />

13% FUNDRAISING<br />

7% MANAGEMENT


The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report 7<br />

NAAF<br />

DONORS<br />

January 1, 2010 – December 31, 2010<br />

Editor’s note: Some of the donors listed raised all of the money for their<br />

donation, or a portion of it, by fundraising.<br />

DIAMOND BENEFACTORS<br />

$50,000 AND ABOVE<br />

Anonymous • Harris & Helen Barer • Jeffrey & Ginny Kelter • Maureen<br />

McGettigan • Wendy & Brian Ter Haar •<br />

<strong>Foundation</strong>s and Organizations<br />

Estate of Robert D Desmond<br />

GOLD BENEFACTORS<br />

$25,000 TO $49,999<br />

Jay & Peggy Bokulic • Margery & Rob Goldberg • Donna & Matt Hakim<br />

• Lilliana Hakim Family & Friends • Vicki Kalabokes • Abby Ter Haar<br />

Family & Friends<br />

Businesses<br />

Murray Hill Chiropractic, New York, NY<br />

<strong>Foundation</strong>s and Organizations<br />

Heckscher <strong>Foundation</strong> for Children, New York, NY<br />

SILVER BENEFACTORS<br />

$10,000 TO $24,999<br />

Anonymous • Caroline & David Brown • Paige Collins Family & Friends<br />

Family & Friends • Richard & Rosa Dest • Bernard & Cheryl Fineman • Dr.<br />

Gary Gordon & Marilyn Hirsch • Ann S. Hedges • Gwen & Hoy Lanning.<br />

Jr. • Samuel Lanning & Alexandra Dest Family & Friends • Alan & Kathy<br />

Pallie • Philadelphia, PA Support Group Family & Friends • Ray & Susan<br />

Simmons • Lawrence & Sandra Small<br />

<strong>Foundation</strong>s and Organizations<br />

Laffey-McHugh <strong>Foundation</strong>, Wilmington, DE<br />

GRAND BENEFACTORS<br />

$5,000 TO $9,999<br />

Beth & Stephen Breslow • Susan DeLagarza • Warren & Jinhong Deitch •<br />

Manny Espino Family & Friends • Robert & Ana Flint • Arlene & Richard<br />

Glenn • Judith Glick • Marcia Grimm • Philip & Peggy Holland • Tom &<br />

Sharon Kelley • Kaycee & Kiah Lang Family & Friends • Laurie, Randall<br />

& Cassie McElwain Family & Friends • Christopher Passarella Family &<br />

Friends • Debora & Luis Pellicano • Drs. Carol & Gary Ter Haar • Maxine<br />

& Jack Zarrow<br />

Businesses<br />

Downtown Chiropractic, New York, NY • E & J Gallo Winery, Modesto,<br />

CA • Johnson & Johnson, Morris Plains, NJ • Phyto/Ales Groupe, New<br />

York, NY<br />

<strong>Foundation</strong>s and Organizations<br />

Maxine & Jack Zarrow Family <strong>Foundation</strong>, Tulsa, OK<br />

MAJOR BENEFACTORS<br />

$2,500 TO $4,999<br />

Andrea & Robert Belford • Claire Chandler • Allison Dunlop • Thomas &<br />

Marian Gervasi • Jeffrey Goins • David & Ami Handler • Bruce & Rebecca<br />

Hollinger • Matt Kelley • Noel Kratzmann • Eugene & Shirley Levitt •<br />

Friends & Family of Ruthie Mayfield • Robert & Maureen McDonald<br />

• Jenna McNeil Family & Friends • Mindy Myers & Gary Hoover • Rita<br />

& Robert O’Connor • Shannon O’Neill Family & Friends • Kate Paley •<br />

Marcia Rimai & Daryl Diesing • Dr. Joseph & Patricia Russ • William H.<br />

Soskin • Bonnie & Scott Stern<br />

Businesses<br />

IBM, Endicott, NY • Lord & Taylor, Wilkes-Barre, PA • McDonald’s,<br />

Baton Rouge, LA • Procter & Gamble Company, Cincinnati, OH • Taglich<br />

Brothers, Huntington, NY<br />

<strong>Foundation</strong>s and Organizations<br />

Arkay <strong>Foundation</strong>, Pacific Grove, CA • Lexington Grange #2672,<br />

Alliance OH<br />

BENEFACTORS<br />

$1,000 TO $2,499<br />

Herbert & Annabel Abrams • Nancy Polley Aibel • Dr. Rex & Johnnie<br />

Amonette • Robert Amter & Bonnie MacDonald • Ken & Jennifer<br />

Anderson Family & Friends • Cynthia & Woodbury Andrews • Karen<br />

Annis & Mike Dazy • Maria Beckett • Laura Bivins • Linda & Paul<br />

Brady • Peg & Ed Breslow • Susan & Steven Burlingame • Stephen &<br />

Christine Campbell • Helen & Victor Castillo • Elizabeth Catto • Mike &<br />

Janis Chapman • Angela Charqueno Family & Friends • Carl & Suzanne<br />

Chiappa • Lynne Cianciulli • Joseph & Patricia Combs • Connecticut<br />

Support Group • Jim & Marilyn Cook • Mallory & Michael Crowner<br />

Family & Friends • Patricia Davidson • Donovan & Patricia Davis • Karen<br />

& Michael Dermo • David & Lynn Dickens • Dr. Michael Domboski • Hope<br />

& Theresa Dyre Family & Friends • Patti & James Elliott • Jennifer Eplett<br />

& Sean Reilly • Deloris Erickson • Shaila & Karl Fernandes • Jim & Carla<br />

Flug • Sandy & Carlos Frum • Bobbie & James Gates • Dr. Marc Glashofer<br />

• Andrew & Eleanor Grant • Lisa & Julian Grant • Nora & Madison Grose<br />

• Daniel & Kathleen Groszkiewicz • Adriane & Robert Guerin • Joseph<br />

& Jean Hamilton • Earl & Kay Harbaugh • Debbie & Rich Harris • Joyce<br />

Hawkins • Kandace Hawkinson • Jian He • Virginia & David Hilyard •<br />

Despina & Brian Keegan • Peter & Karen Kensicki • Jack & Henry Keogh<br />

Family & Friends • Virginia & Robert Kirkwood • Linda & David Kolifrath<br />

• Sue & Gary Kostecki • Jeremy Kramer & Becca Davies • Robert & Judy<br />

Krischker • Dr. Gerald Krueger • Fred Levin & Leslie Dumont • Irving &<br />

Lenore Levine • Susan MacMillan • Peter & Debby Magowan • Stewart<br />

& Barbara Mandell • Terre Trumble Marshall • Marie & Thomas Mason<br />

• Nancy Matthews • Marie & Terrell McElheny • Stanley Michael • T<br />

J Morris • Michael & Christine Moscato • Rose & Henry Moskowitz •<br />

Kristen Mulberry • Larry Nathanson • Lesley Nettles • Robin & David<br />

Nijankin • Tom & Pam Nix • Robert & Frances Oshiro • Hays Owen • Kathy<br />

Pauli & John Eldred • Steven Perricone • Karen Peterik • Chris Pitsaroff •<br />

Craig & Amy Powell • Dr. Vera H. Price • Jane & Paul Rittmaster • Phyllis<br />

& Sidney Rodbell • Carol & Joel Rogers • Dr. Floreene Rubin • Jillene &<br />

Mark Ryan • Elio Salvo • Linda, Fred & Marc Sayan Family & Friends •<br />

Brian & Lynn Schaezler • Collins & Gail Seitz • Kim & Bill Snyder • Debbie<br />

Socks • Anita & Todd Solomon • Jerry & Janet Solomon • Philip Spinelli<br />

• Margaret & Andrew Staib • Dr. Timothy Stanford & Family • Michelle &<br />

Butch Stidham • Sandra & Bruce Swanson • Katy Swede-Taillon Family<br />

& Friends • Patty Tager & Rami Geffner • Robert, Holly & Nicole Tassin<br />

• Josh Tenuta • Ranjit Thaker • Eric & Lynsey Vinikoff Family & Friends •<br />

Bryant & Sharron Watts • Renee Weilmann • Thomas & Carolyn Werner<br />

• Melanie & Mark Whitmore • Darlene Wisecup • Ed & Mary Wojtowicz •<br />

Vincent Wong • Dr. John & Adelaide Zabriskie • Connie & Mark Zurcher<br />

Businesses<br />

Baton Rouge Water Company, Baton Rouge, LA • C & K Healing Touch,<br />

New York, NY • CMH Flooring Products, Inc., Wadesboro, NC • Di Fazio<br />

Electric, Inc., Deer Park, NY • Galderma Laboratories, Ft. worth, TX •<br />

Horizon Wellness Group, Hicksville, NY • Iowa Dermatology Nurses<br />

Association, Ames, IA • Kahn Architecture & Design, New York, NY •<br />

Law Offices of Anthony C Donofrio, Massapequa, NY • Lifetime Physical<br />

Therapy, New York, NY • New Life Hair, LLC, Burr Ridge, IL • Patterson<br />

Companies, Inc., St. Paul, MN • True Silver Corp., Alan Thomas Designs,<br />

Pembroke Pines, FL • Wal-Mart, Fort Stockton, TX<br />

<strong>Foundation</strong>s and Organizations<br />

Alben F Bates & Clara G Bates <strong>Foundation</strong>, Elmhurst, IL • Andrew<br />

T McMains Baton Rouge Area <strong>Foundation</strong>, Baton Rouge, LA • Catto<br />

Charitable <strong>Foundation</strong>, San Antonio, TX • The Drescher <strong>Foundation</strong>,<br />

Bethesda, MD • The Krischker Family <strong>Foundation</strong>, Phoenixville, PA •<br />

Northwestern Mutual <strong>Foundation</strong>, Milwaukee, WI<br />

SPONSORS<br />

$500 TO $999<br />

Dr. Harry Agress, Jr. • Lindsay Allen • Barbara Amspoker • Tamara &<br />

Rick Baldini • David Bartash • John Barton • Nancy Black • Lindsay<br />

Boles • Charles & Teresa Boyer • Ray & Betsy Braun • Joyce Brehm •<br />

Margaret & Denis Brennan • Chris & Diane Brody • Aram & Heather<br />

Bronston • Michelle & Kurt Busse Family & Friends • Mara Caldwell •<br />

Vickie & John Camburn • Mary & Joseph Cilibrasi • Abraham Cohen •<br />

Leo Aflalo Cohen • Jill & Dan Cook • Dr. Anthony & Shirley Costrini • Dr.<br />

Willis Cottel • Denis Cuenca • Katherine Dalton • Ian & Matilda Dalziel<br />

• Robert DeSaulniers • Guerino & Julie Desimone • Dr. Richard Dosek<br />

• Needra Dulcich • Kathleen & Ed Edwards • Jennifer & John Fahey •<br />

Stephen & Jean Fey • Kelly Fineman Family & Friends • Luann Firestein<br />

• Lorraine Fowler • Brenden & Jennifer Garvey • Carol & William Gasser<br />

• Kathy & Lee Gause • Thomas E. Godfrey • Diane & Bob Goon • Andrea<br />

& Stephen Granet • Cleta Gray • Marcia & Jerry Gross • Ernest & Ellen<br />

Guenzburger • Christopher Hakim & Claire Fratello • Patty & Wayne Hall •<br />

Jillian Halloran Family & Friends • Barbara Hansen • Sally & Stephen Harr<br />

• Sylvia Heisman • Jack & Faye Herick • Alison Herman • Dr. Steven &<br />

Mary Hieronymus • Amy & Brian Hogan • David & Stephanie Honeycutt<br />

• Wayne & Cherie Hubbell • Paul & Patti Jablonski • Dawn Jeffrey • Leslie<br />

& Stephen Jerome • Deborah Johnson • Doris Johnson • Genevieve &<br />

John Kapelswski • Brian & Cindy Killough • Judith King • Dr. Lloyd E.<br />

King • Luke & Kathryn Kissam • Linda & David Kolifrath • Judith Koshiba<br />

• Raymond Kwong • Michaela Kyzekova • Dr. Kathy Laing • Donna & Cliff<br />

Lazarus • Dean Leffelman • Tracy Leopardi • Mary Longsine • Celeste<br />

Lutrario • Michael & Lise Maddux • Kris Ann & Lawrence Maestri • Elene<br />

Mahnken • Jason Malinowski • Blake Manola Family & Friends • Tricia &<br />

Jason Manola • Rick Marotta • Dr. Edward Mayland • Heather & James<br />

McCormack • Mary Lynn McDevitt • Marie & Terrell McElheny • Chad<br />

& Sharon McGee • Elizabeth & Gordon McNabb • Timothy & Adrienne<br />

McNeil • Erica Meilhede Family & Friends • Ava, Edward & Jordan<br />

Mendelson • Richard & Cheryl Metrick • Erin & Jeff Meyer • John &<br />

Kathie Miller • Stephen & Marsha Mock • Cindy Molnar Family & Friends<br />

• Dr. John & Carolyn Ann Moody • Darcy & Stephen Morrissette • Peggy<br />

Napier • Marvin Nevins • New Hampshire Support Group • Jennifer<br />

Nordstrom • Craig O’Sullivan • Marieclair Odell • Dan Odenheimer •<br />

Admiral Robert Papp • Adam Pariante • Thomas & Virginia Pollock • Kelly<br />

Pratt • Alice Price • Phillip & Bonnie Rabideau • George & Regina Raftis<br />

• John & Diane Rakocy • Sharon & Bruce Rarick • Kelly Rauen • Whitney<br />

& Carl Richmond • Tom, Caitlin & Laura Riley • Dr. Janet Roberts • Janis<br />

Roberts • Alice & Robert Ross • Judith & Robert Rubin • David Saltzberg<br />

• Kenneth Satir • Scott Schoenberg • R Gary Sexton • Christopher Skinner<br />

• Eileen Smyers • Donald Sosnowitz • Juliann Sousa • Nancy Stark &<br />

Stanley Iezman • Debbie & Eric Staubber • Denise Thornton • Carol<br />

Triest • Tucson, AZ Support Group • Susan Turner • Sheila Vega-Rogers<br />

• Margaret Veldman • Amy & Peter Viteznik • Joan Walborn • Amy & Ira<br />

Waldman • Richard Waldman • Eileen Walsh • Cory Wanatick • James<br />

Wentworth • Michelle & Ronald White • Dr. David Whiting • Dr. John B<br />

Whitley, Jr. • Lynn Wilson • Jan Wolf • Michael Wolfson • Ruth Ann Wood<br />

• Martha Worthy • Michael Zuravel<br />

Businesses<br />

Atlantis Cleaning Company, Newport Beach, CA • Bidwell Consulting<br />

Services, Inc., Chico CA • Cheryn International, Columbia, SC •<br />

Congoleum Corporation, Mercerville, NJ • DRD Medical PC, New York,<br />

NY • DermMatch, Inc., Sarasota, FL • <strong>Foundation</strong>s Associates, Passaic,<br />

NJ • Freedom Wigs Ltd., Dunedin, New Zealand • Headcovers Unlimited<br />

Inc., Kemah, TX • The Headshop Wigs, Lindale, TX • Jordan Timberlands,<br />

Inc., Mount Gilead, NC • Laing & Dimick Dermatology, Ann Arbor, MI •<br />

Lori’s Wigsite, Coconut Creek, FL • Luso-American Life Insurance Society,<br />

Dublin, CA • Mavrides Moyal & Associates, Lake Success, NY • Mc 2<br />

Enterprises, LLC, Baton Rouge, LA • Murray Hill Foot Care, New York,<br />

NY • Oasis Truck Tire Center, Fort Stockton, TX • Phillips Consulting, Inc.,<br />

Louisville, KY • Salon Kokopelli, Brielle, NJ • Shaw Environmental, Inc.,<br />

Monroeville, PA • Summers Laboratories, Collegeville, PA • The Valassis<br />

Giving Committee, Livonia, MI<br />

<strong>Foundation</strong>s and Organizations<br />

Bartash <strong>Foundation</strong>, New York, NY • Community Health Charities of<br />

California, Sacramento, CA • Galpern-Mendelson Family <strong>Foundation</strong> •<br />

The Human Race, Santa Rosa, CA • Kirkland & Ellis <strong>Foundation</strong>. Chicago,<br />

IL • NAIC/NIPR Volunteer Resource Team, Kansas City, MO • Reuben<br />

Gittelman Hebrew Day School, New City, NY • Swinerton <strong>Foundation</strong>,<br />

San Francisco, CA • Westminster Elementary School, Westminster, MA<br />

GRAND PATRONS<br />

$250 TO $499<br />

Donald & Mary Lynne Able • Tom & Jackie Ahrens • Rollie Alexander,<br />

III • Ashley & Michael Allen • Raul Amaya • Jon & Kathleen Andera •<br />

Dean & Carolyn Anderson • Glenn Auve • Kamoce Bamls • Xuemei Bao<br />

• Nan Barbas • Stephen & Rosemary Bedard • Michael Bernabeo • Dean<br />

Blake • Fran Blaustein • Suzanne Boe • Michael Bogardus • Diane Bonner<br />

• Maria Borgese • Sonya & John Bowman • Kendra & Paul Bramble<br />

• Kathleen Brennan • Theresa Bronson • Kim Bumpers • Dennis &<br />

Catherine Bye • Laurie & Robert Byren • Marie Caldaro • John Caldwell •<br />

Kimberly Campbell • Laurel & John Campbell • Danijela, Jin & Nikola Cao<br />

Family & Friends • Mary & Anthony Cefalu • Dr. Joseph & Sandra Cenac<br />

• Donald & Patricia Chambers • Suzanne & John Chartrand • Michael<br />

Chetock • Lisa & Gene Ciancio • Paula Cirtis-Carter • Nancy & Bob Clark<br />

• Susan & Roy Cleveland • Dr. Beth Colombe • Art Cooper • Mary Lou<br />

Colpoys-Wynne • Pat & Joseph Corvaia • Stacy & Brian Crain • Arlene<br />

& Donald Dahlgren • William B. Darwin, Jr. • Donald Deines • Celeste &<br />

Octavio Delgado • Ralph & Jean DeNunzio • Celeste Descoteaux • Cipa<br />

& Misha Dichter • Nenita Dudley • Mark Earley • Jackie Eris-Aczel • Ellen<br />

Enderle • Carol Eoneman • Adam Garcia Eveloff • Delores Evoe • Daniel<br />

Fahy • Dr. Steve Feldman • Edward Feldsoft • Barry & Odile Fidelman<br />

• Corie Flammia & Jim Murphy • John Floramo • Jerry & Janice Ford •<br />

Warren Forman • Michele & Tim Friedman • Patrick Gallagher • Stacy &<br />

Michael Gardner • Kathy & Lee Gause • Diana & David Gerland • Kelly<br />

Gerritis • Stephen Gervasi • Barbara & James Gilligan • Gary & Doreen<br />

Gittings • Kent & Julia Goodman • Linda & Leo Gordon • Craig Grassi •<br />

Jeff & Sherene Gravatte • Jane & Jim Graybill • Jody & Doug Greenstein<br />

• Yolanda Grisby • Robert & Pat Gruttadauria • Antonio & Dora Guastella<br />

• Yolanda Hailey • Edward & Patricia Hakim • Lisa Hakim • Mark Hakim •<br />

Harold Harms, Jr. • Sally & Stephen Harr • Carol & Timothy Hart • William<br />

Hartman • Kelly Heuer • Joanne & Sean Hogan • Paul & Jan Holtzman<br />

• Gerald Hulbert • Stephen & Leslie Isaacs • Steve Jacobson • Thomas<br />

Jeffers • Neil Johnson • Jeff Jones • Dr. Irving Katz • Bruce Kelleher • Mark<br />

& Molly Kelley • Catherine Kelly • Carla Kephart • Thomas & Margaret<br />

Kittle-Kemp • Chris Knight • Andrea & Ralph Knupp • Harold Koessner<br />

• Lisa & Daniel Kopina • Judith Kramer • Donald & Shirley Kuntzman<br />

• Jung Kwak • Milton Kyser • William Lanava • Jennifer Laurelli • John<br />

& Mary Ellen Lawlor • Harriet & Donald Levy • Caroline Lewis • Karen<br />

Linn • Justin Lockefeer • Steve Luparello & Laurie Drysdale • J. Maher •<br />

Briana Maierle Family & Friends • Christine & Alfred Maierle • Natalie<br />

Mamerow Family & Friends • Suzanne Mancuso • Cathy & Ross Manzo<br />

• Paul & Shawna Marino • Anne Mantsios • Carmen Martinez • Dawn<br />

Marvin • Mark & Priscilla Masselink • Carla Mathews • Kim Mathews •<br />

Carol Mayer • Holly McDonald Family & Friends • Richard McElwain •<br />

Robert McElwain • Christine & James McGarry • Arlene McGillis • Lorelei<br />

& Lawrence McGlynn • Karen & Darren McKinney • Timothy & Adrienne<br />

McNeil • Robert Meyer • Dr. Laurence Miller • Charles & Roberta Mohr •<br />

Ahmad Moini • Pamela Molinaro • Brian & Cheryl Molohon • Anthony<br />

Montcalmo • Stephanie Morales • Lydia Morehead • Karen Nagle •<br />

Debbie & Cliff Neese • Bruce & Joan Nordstrom • Heidi Odmark • Paul &<br />

Laurie Olmstead • Dr. Elise Olsen • Seth Orlow • David Pacheco & Greg<br />

McAllister • Robert & Jean Paine • Christina Palendrano • Gary & Susan<br />

Petrovich • Elizabeth Phillips • Stephanie Pianka • Lara & Lance Pilkerton<br />

• Karen & Christopher Pohl • Edward Pollock • Paul Prairie • Anna Marie<br />

Purisima • Donna Radford • Adam Michael Randall • Emily Renz • Bruno<br />

& Isolde Reule • Ramona Reule • R James Rich • Brian & Jill Rifkin • Steve<br />

& Cyndi Roach • Dr. Douglas Robbins • Emma Robbins Family & Friends<br />

• Sandra Rodgers • Jackie & Olivia Rogers Family & Friends • Paula &<br />

John Rohrs • Norman Rosen • Andrea Rossel • Sandy & Olivia Rusk •<br />

Patricia & Thomas Savage • John & Dawn Savona • Walter & Mary Ann<br />

Schwenk • Millicent Scott • Regina Senour • Martin Setler • Shannon<br />

& Jeff Sheldon • Dr. Jerome Shupack • Dave Singer • Winifred & Victor<br />

Sirbu • Thomas & Lisa Sisbarro • Sharon Skweres • Lee Slattery • Theresa<br />

& James Smith • Wilbur & Grace Ann Smith • James & Jackie Snook •<br />

Victor & Trina Soder • Stephanie & Jane Solterman • Dr. Janice Spalding<br />

• Edward Spruck • Ann Marie & Ken Steele • Tyra & Danny Storm • Sheila<br />

& Lenn Stout • Glenda Stroh • Lenice & John Strohmeier • Jose Luis Pena<br />

Suarez • James Sullivan • Michael Sullivan • Tim Tabler • Jacqueline &<br />

Julian Taub • Anne Taylor • Robin & Claus te Wildt • Elisabeth & Timothy<br />

Tolley • Leo Tress • Linda Tygert-Lillard • Alok & Eliz Upadahyaya • John,<br />

Laura, Isabella & Quinn Viscovich • Bryan & Becky Wade • Lola Wagner<br />

• Margaret Warga • Leslie Watson & Roger Smith • Elizabeth Weaver &<br />

Patrick Diaz • Dr. Michael Welch • George White • Dr. Timothy Wiedmann<br />

• Edith & Kawain Wilarat • Christopher & Julie Wiley • Michelle & Fred<br />

Williams • Carlaine Willis • Margaret Woeppel • Asuncion & Calvin Wong<br />

• Daisy Yanez • Cathy & Ronnie Young • Vicki & Jason Zagrodzky • Carla &<br />

Mark Zashin • June Zhao<br />

Businesses<br />

4Women, Sarasota, FL • Blinkies/Just Imagine It, LLC, Oregon City, OR •<br />

Bobcats Basketball, Charlotte, NC • Booz, Allen, Hamilton, Inc., Herndon,<br />

VA • Brookfield Police Dept., Brookfield, IL • CMC Building Supply,<br />

Cheraw, SC • CPS Railway Services, Inc., Berwyn, PA • Carl Morrow<br />

Insurance, Baton Rouge, LA • Commonwealth Bank & Trust, Louisville,<br />

KY • Compressor Elements, Monahans, TX • Confident Reflections,<br />

Norcross, GA • Conlon Exteriors, Massapequa, NY • Delaware Jaycees,<br />

Inc., Wilmington, DE • Glen Trexler & Sons Logging Inc., Wadesboro,<br />

NC • Guaranty Bond Bank, Fort Stockton, TX • It’s All About You Salon,<br />

Concord, NC • JAH Creations, Beauti-Full-Brows, Teaneck, NJ • L.A.<br />

Champagne & Co., LLP, Baton Rouge, LA • Lindbald Expeditions, New<br />

York, NY • McKernan Law Firm, Baton Rouge, LA • Metro Healthfairs,<br />

Glen Head, NY • Network Solutions & Training, East Northport, NY •<br />

Nisim International, Vaughn, Ontario, Canada • ‘N His Time, Hamburg, PA<br />

• Omni Prepaid, LLC., Pittsburgh, PA • P.G.T. Trucking, Inc., Monaca, PA •<br />

The Big Leagues of Baton Rouge, Rouge, LA • The Mail Bag Bocage, Inc.,<br />

Baton Rouge, LA • The Moran Group of Baton Rouge, Inc., Baton Rouge,<br />

LA • The Philadelphia 76ers, Philadelphia, PA • Steak House Restaurant,<br />

Fort Stockton, TX • Superior Bar & Grill, Inc., Baton Rouge, LA • Way Cool<br />

Productions, Indianapolis, IN<br />

<strong>Foundation</strong>s and Organizations<br />

Fish Family <strong>Foundation</strong> of Maine, Glenburn, ME • Anthony & Catherine<br />

Fusco Charitable <strong>Foundation</strong>, DE • Gloucester Township Education<br />

Association, Erial, NJ • Hallowell Elementary School, Horsham, PA •<br />

Holy Trinity School, Wallingford, CT • Milwaukee Spanish Immersion<br />

PTA, Milwaukee, WI • Northport Running Club, Northport, NY • Rogers<br />

Elementary School, Waterloo, IL • The Brookside School, Sea Girt, NJ •<br />

The Victor & Esther Rozen <strong>Foundation</strong>, Johnson City, NY


8 The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report<br />

PATRONS<br />

$100 TO $249<br />

Daniel & Carol Achord • Ann Adams • Nancy & Carl Adams • Sheri &<br />

Jerry Adamson • Margo & Harold Adkins • Dr. Susan Albert • Liz Albrecht<br />

• John & Susan Allen • Carol & Tom Almond • Sally Alterman • Sally Alvis<br />

• James G Anderson • Kimberly & Kyle Anderson • Rachel & Mark<br />

Anderson • William Andreopoulos • Heidi & Dominick Andriola • Mary &<br />

Dave Annis • Wendy Ansdell • Amy Arabio • Kevin & Mary Arend • Dr.<br />

Georges Arjane • Henry & Linda Asher • Jack & Patsy Atkinson • Caroline<br />

Avery • Ana Azevedo • Valerie & Stan Babb • Nancy Babcock • Ray &<br />

Susana Baca • Joanne & John Baer • Ronald & Susan Bailitz • Anne Baker<br />

• Deidre Baker • Graham Baker • Pat & Bill Baker • Cheryl & Don Ballard •<br />

Kylie Bamberger • Sarah Banck • Roger & Peggy Baneman • Leah Barr •<br />

Elizabeth Barrera • Stephanie Bartow • Frank & Gloria Basile • Otto Bayer<br />

• Joan Beach • Barbara & Roby Bearden • Martha & Douglas Beattie •<br />

Cindy Beene • Gina Marie Bellavia • Jessie Bells • Merry & Bruce Bender •<br />

Stephen & Deborah Bender • Bonnie Berard • Beth Anne Berchtold •<br />

Phillip Berger • Cynthia & Richard Bernard • Vivian & Stanley Bernstein •<br />

Karen & John Berry • Tami & Kevin Best • Michael Bevilacqua • Michelle<br />

Bhagat • Blaise Bifulco • Michele & Ed Bigos • Lynn Birks • Sheelah<br />

Strong Black • Mary Ann Blanchard • Gina & Steven Bogan • Dena &<br />

Gary Bogardus • Cindy Bondio • Carol Booth • Carol Borie • Jamie Braden<br />

• Heidi & Michael Brasch • Kristine & Mark Brennan • Susie Briggs • Mike<br />

Brill • Ellen Briscoe • Dr. Paul Brooke • Philip Schoen Brooks • Terry Brown<br />

• Nancy Brownstein • Elizabeth Brunton • Tanya Buchanan • Albert<br />

Buenrostro • Jim & Barbara Bunning • James & Madeline Burgess • Ken<br />

& Mary Jo Burnes • Steven & Pauline Burton • Erica Bush • Stuart &<br />

Lowen Bush • Roger Bushnell • Deborah Busking • Roberta Buttino •<br />

Richard Buxton • Donna Caches • Louise & Fred Cafasso • Robert &<br />

Sharon Caldwell • Karen & John Callahan • Lynn Callaghan • Robert &<br />

Catherine Cameron • Angela Campbell • Nancy & Cal Campbell • Michael<br />

Camras • John & Donna Capell • Kerry Capell • Doris Caporrino & Ted<br />

Cornell • Vanessa & Gary Cardwell • Barbara Carmichael • Jacqui Carnog •<br />

Robert Caron • Janice Carpenter • Virginia & Frank Carpenter • William &<br />

Paula Carroll • Jennifer Carsner • Sarah Cash • Larry Castro • Mary &<br />

Joseph Catanzaro • Dulce Ceron • Helen Cerulli • John Chafey • James<br />

Chagnon • Dr. Janice & Gerald Chandler • Satish Chandra • Barbara<br />

Chesarek • Beth Cheverie • Kathleen & Gary Childers • Maria & John<br />

Chomeau • Mindy Chrystal • Mary E Cid • Francesco Cifelli • Felicia<br />

Cilibrasi • Philip & Jeanette Cinelli • Michael & Carol Clarke • Judy<br />

Cleveland • Brian Closs • Loreen & James Cody • David & Judy Cohen •<br />

William & Patricia Cole • Kevin Coleman • Judy & Stephen Collier • Mary<br />

& Richard Collier • Tammy Collins • Jim Coleman • Wendy Concepcion •<br />

Tom & Laura Conklin • Denise & CJ Connelly • Eleanor & Timothy Connors<br />

• Christian Conroy • Eloisa Magpayo Contaoi • Stephen & Gayle Corbin •<br />

Richard Cordes • Gino Corona • Zachary Correa • Sunny & Marisol Cortes •<br />

Joe Corvaia • Alice & Anthony Coscia • Martha & Sam Cosco • Richard &<br />

Dianne Cota • William Coulter • John Cowperthwaite • Carol Crabb •<br />

Olivia Crayne • Irene & Philip Crosby • Lynne & Bill Crowder • Janet<br />

Cuffman • Pam & Anthony Culotta, Jr. • Liliana Cunha • Arthur & Roya<br />

Curtis • Gene & Grace Curtis • Mary Lou & Ronald Czupek • Nicole<br />

D’Amico • Carl & Marie D’Angelo • Kathleen & Daniel Dahlkemper • John<br />

& Rebecca Dailey • Jonathan Daniell • Patrick Danley • Mary, Dale & Ted<br />

Davidson • Marla & William Davis • Janis Davisson • Jessa & Douglas<br />

Dawson • Jill Dayan • Rosella De Anda • Marie De Lia • Leta DeFee •<br />

David & Nancy DeLuca • Christianne & Sam DeNardo • Jennifer DeVivo •<br />

Andree Dean • Christopher Dean • Keith & Lauri Decell • Hochi<br />

Delossantos • Michael & Jacqueline Dewey • Nancy & Chris DiBella •<br />

Mary DiNardo • Cora Diamond • Linda Diller • Thomas & Melinc Disare •<br />

Mark Dobbins • Eileen Dodd • John Dodson • Melissa Dogonniuck •<br />

Eileen F Dolan • Terry & Orlando Dominguez • Kathleen & Albert Doty •<br />

Barbara & Edward Dowski, Jr • Ronald & Dianne Drewing • Joan &<br />

Richard DuBose • Kristy DuFresne • Viola Duarte • Andrea, Rancy, &<br />

Alana Dube • Donna Dufort • Robert Dumeyer • Michael Dumont • Keith<br />

Dunlap • Geraldine Dunn • Priscilla Durkin • Kevin Durning • Scott &<br />

Debbie Eagle • Joe Ealy • Gwendolyn East • Carol Ebron • Barbara &<br />

Walter Echo • Mr. & Mrs. John Ecker • Dorothy Edelman • Susan<br />

Edmonson • Ann & Edward Egan • Mary Lou Einhorn • Pat & Steve<br />

Ellenwood • Myrna Elliott • Ruth Ellison • George & Lois Elty • Michele &<br />

Michael Emanuele • Candy & Terry Engelland • Tracy Ennels • Barbara &<br />

Michael Enos • Jackie Erickson • Dr. James Ertle • Mr. & Mrs. Billy Espino<br />

• Roxana & Gabriel Espino • Kelly & Mark Eudy • Kristine Eule • Joanne &<br />

Gregg Evangelist • William W Evenson • Pamela & Douglas Evertz •<br />

Margaret & Ignatius Fadanelli • Debra Farve • Elvera Fasano • Dwight &<br />

Anne Fawcett • Dwight, Christina, Jackson & Pete Fawcett • Jill<br />

Komorowski Fayan • LeRoy & Alma Fennimore • Neil G Ferrari • Timothy<br />

S Fetzer • Daniele Figliuolo • Andrew & Debra Filla • Gunilla & Jerry<br />

Finrow • Juan Flaim • David & Lezlee Flanders • Brian Fleischer • Harris,<br />

Andra, & Livy Footer • Darlene Foster • Tracy Foster • Christine Foti •<br />

Thomas Fowler • Glen Fowlie • David Fox • Susan & Carl Fox • Tammy<br />

Frady • Ronald & Joyce Franey • John A Frank, III • Jennifer<br />

Frankenberger • Barbara Franklin • Carol & John Fravel • Avis Frazier •<br />

Judy & Allen Freedman • Dudley & Helen Fricke • Bill & Rosanne<br />

Frickenstein • Carol & Donna Fritts • Beverly Frontero • Dr. Jan Fuerst •<br />

Regina Fuks • Debbi Fuller • Ken & Lois Furr • Antoinette & Anthony<br />

Fusco • Lois Gafford • Carol Gallagher • Bonnie Gallant • Vanessa Gallant •<br />

Thomas & Theresa Gambacorta • Janet & Dominic Gambacorto • Kathy<br />

Gappa • Omar Garcia • Kenneth & Cynthia Garni • Sally & Don Gattuso •<br />

Joan Gawdun • Dean Gekas • Susan Gelsomino • Richard Gelula • Frances<br />

Gentile • Ann Marie Germani • Martin & Jenny Gerst • Joshua Gertzog •<br />

Maria & Jay Ghazal • Robert Gibson • Brian & Cindy Gil • Lisa & Taylor<br />

Gilbert • Lilya & Yefirm Gilgur • Carla Gizzi • Rae Glassman • Mishon<br />

Glisson • Carolyn Goh • Dr. Lynne Goldberg • Donald & Terry Goldblum •<br />

Susan Goldhaber • Dr. Peter Goldman • Julie Gonsiewski • Delma &<br />

Jamie Gonzalez • Rebecca Gonzalez • Arthur & Ina Gordon • Sean<br />

Gordon • Diane & Charles Gormley • Mary & William Gormley • Svetlana<br />

Gourevitch • Helena Goworek • David Graesser • Margaret Graham •<br />

Leroy Gravatte, III • Paul McRae Green • Kim & Brian Greenwell • Mike &<br />

Amy Griebel • Chris Griffin • Gary & Mary Griffin • Barbara & Robert<br />

Griffith • Oscar John Groebl • Mason Gross • Joseph & Irene Groskiewicz •<br />

Susan Grove • Ruth Guenzburger • Carolyn Guerra • Catherine Gulati •<br />

Kelly Gustafson • Juan Gutierrez • Ralph & Sharon Gutierrez • Jean<br />

Gutman • Judith Gutow • Maureen Haeffner • Marsden Haigh • John P.<br />

Hakim • Jason Hall • Tania & Tom Hall • Thomas Halloran • Thomas &<br />

Holly Hallum • Jane & Ed Haltness • Stephanie & Raymond Hamilton •<br />

Walter & Diane Hamilton • Michael Hammond • Dr. Raymond & Arlene<br />

Handler • Kathleen Hanratty • Nancy & Edward Hardin • Carlton & Milton<br />

Harper • Edgar Harrington • Jolene Harris • Kristi & Todd Harris • Tim<br />

Harris • Dr. Takashi Hashimoto • Housria Hassouna • Daniel & Mari-Kay<br />

Haubert • Christa Haugh • Cory W Hawkins • Dana Hawkins • Geoffrey &<br />

Marin-Shawn Haynes • James Haynes • Joan Healy • Lisa & Jim Heavner<br />

• James & Lisa Heberling • Michelle & R Scott Heinl • Dennis & Marcia<br />

Heitzmann • Amy Heller • Stacie Helm • Jerri & George Helmreich • Bill<br />

Hendricks • Glen & Kathleen Hendricks • William & Catherine Hendricks •<br />

Charles Henness • Susan Henness • Dr. Ann E Hern • Nancy & Tony<br />

Hernandez • Brett Herrington • Gareth Heyman • Nancy Hibbs • Paula &<br />

Kathryn Higbee • Lisa Hight • Delmon Hodges • John & Edith Hogan •<br />

Beverly Holden • Sheri Holder • Robbi Hollister • Elizabeth Holowinski •<br />

Linda Horn • Dr. Diane Hoss • Betty Hudson • Sharla Hughes • Kathy<br />

Humbracht • Haydi & Bill Hurley • Martha Hurtado • HenryHutchinson •<br />

Thomas Hynes • Lee & Mary Ibsen • Dr. Chull-Wan Ihm • Mike & Lee-<br />

Ann Ikemoto • Carol A Imle • Caryl Ingram • Kunio Ishida • Nanci & Bob<br />

Jacobson • Lenora Jannazzo • Marie Jastrow • Lynn Jennings • Donna<br />

Jerz • Jaclyn Jerz • Emma Johns • David Johnson • Gloria Johnson • Linda<br />

Johnson • Martha Johnson • Patricia & Edward Johnson • Jill Johnston •<br />

Susan Johnston • Richard Jonas • Matthew Jones • Sheila Jones • Jeff<br />

Jordan • Debbie Jorgensen • Larry & Susan Kaasa • Dawn Kagan • Debra<br />

& David Kahn • Matthew Kahny • Allen & Susan Kallor • Heather & Brian<br />

Kannheiser • Howard & Debi Kaplan • Joan Kapstein • Wendy & Steven<br />

Kapusta • Albert & Camille Kariya • Virginia & Myron Karki • Alyson<br />

Karrington • Dina & John Keane • Mary Kelleher • Richard & Charlotte<br />

Kelley • Anya Kendell • Robert J & Kay B Kenney • Bruce & Joyce Kent •<br />

Mudasir Khan • Eindar Khant • Terry, Patricia & Keri Kight • Sandy Kim •<br />

Robert King • Hanna Kino • Cynthia & Peter Kinsella • Joan L Kistler •<br />

Steven Klein • Tom Klimala • Christopher Kline • Sunny & Dave Kline •<br />

Stephen & Lisa Kloch • Dr. Rebecca Knapp • Patricia Kodym • Harold<br />

Koessner • Rosemary & Steven Koffman • Anne Kolvo • Elissa & Marvin<br />

Kon • Joe & Takako Koplin • David Kordt • Ellen Kosmatka • Margaret<br />

Kostecki • Arline & Robert Kramer • Marian Kramer • Roger Kraynick •<br />

Edward Kreise • Douglas Kress • Poplin Koese • Mark Krueger • Susan<br />

Kuper Smith • Arlene Kurtis • Sandra Kyer • Dr. John Kyriazis • Luz &<br />

Anthony Labato • Belinda & Nathan Lader • Louis Lagana • Mary & Mark<br />

Lahey • Sylvia Laird • Ann Marie & Robert Lake • Sharon Lakin • Leona<br />

Lamanna • Nancy Lamberti • Kim Lang Renzi • Phil & Kimberly Lanning<br />

• Renata & Joseph Lantos • Barbara Larson • Ronald & Jesslyn Larson •<br />

Kathleen Latimer • Edward & Ursula Lauer • Alexandra Laurelli • Ursula<br />

Lavelle • Frances & Robert Lawrence • Brian Lawson • Dr. Joseph Laenza<br />

• Melissa & James Leder • Maria Ledger • Marcia Leinwand • J Gordon<br />

Lent • Donna Leotta • Jacqueline Lessard • Paula Leszyk-Haney • Pearl<br />

Levine • Jerome & Catherine Levinson • Howard Levitas • Harriet &<br />

Donald Levy • Claudia P Lewis • Lawrence Lewis • Dr. Lawrence M<br />

Lieblich • Alex Limanni • Candice Linder • Matthew Lindquist • Andrea<br />

Lindstrom • Sarah Beth Linn • Barbara Lino • Andrea Lipack • John &<br />

Mary Lippincott • Ryan & Lisa Lippincott • Alfred & Jere Litchenburg •<br />

Jan Litvene • Gloria Liu • Carolyn Lloyd • Lisa Lloyd-Washington •<br />

Lawrence & Doreen Logan • Glenna Loggie • Susan Lohsen • Joseph<br />

Longo • Nancy & Michael Lotto • Jennifer Lowe • Deborah Lucas •<br />

Roberta Lukowitz • Edwardo Luna • Deena Luria • Brittney Lynch •<br />

Catherine & Thomas Lynch • Claire & John Lyons • Egbert Maben •<br />

Richard MacDonald • Cheryl MacEwen • Donna MacFarlane-Franz •<br />

Robert & Michele Machion • Ken Macura • Karen & Stephen Madden •<br />

Christine, Vincent & Stephen Maefsky • Bernice Mahler • Andrew<br />

Mancini • Nancy & Phil Maniscalco • Christina, Jeffrey, Logan & Gavin<br />

Manuola • Mark Manzo • Louise Marchesi • Annette Marden • Robert &<br />

Elizabeth Maresca • Sandra Marine • Frank & Marie Marino • Dr. Leslie<br />

Alison Mark • Ernest & Marion Marola • Kelly & Scott Marshall • Jane<br />

Marsteller • Rhonda Martell • Suzette & Lawrence Martin • Cynthia &<br />

Douglas Mashburn • Ben & Vivian Mason • Marc & Rachel Mastriano •<br />

Mark Masur • Russell Mathers • Peter Mattaliano • Paula & Neil Maxwell<br />

• Keith & Susan Mayeaux • Mark Mazurek • Maggie McBennett • Dale<br />

McCarter • Linda McCoog • Jan & William McCormack • John McCurry •<br />

Patricia A McDivitt • Lynn McDonald • Donna McElwain • A L & Judi<br />

McFatter • Linda McGarry • John & Hope McGettigan • Mary McGettigan<br />

• Roy & Doreen McGillis • Bridget McGowen • Denise & Michael<br />

McKeigan • Mrs. Roy McKenzie • Anne & David McLaughlin • James<br />

McLaughlin • Steve & Christa McLellan • Chris McPartlin • Patrick<br />

McQuade • Elizabeth McTiernan • Margie & Marc Meadow • Leona<br />

Meadows • Ann & Tom Meek • Luz Mercado • Nicole Messina • David &<br />

Rebecca Mexicotte • Christie & John Miller • John & Celene Miller • Lisa<br />

Miller • Mary & Robert Miller • Susan R Miller • Barbara Mintz • Roya &<br />

Iraj Mirshahi • Helena Miskel • Jeffrey Mitchell • Leigh Anne Mitchell •<br />

Samair & Sundari Mitra • Peter & Wendy Moen • Shirley & Edward<br />

Moffett • Ranvir & Prita Mohindra • James & Fran Mollis • Carl & Patricia<br />

Monnin • Mary Ann & Monte Monson • Michael & Rhonda Montgomery<br />

• Dorothy Moore • Douglas Mopi • Robert Morgan • Julie Morreale •<br />

Karen & Dean Morrell • Lorraine Moscardini • John Motter • Dianne<br />

Moulton • Kelly Mroz • Kimberly Mueller • Dr. Sigfrid Muller • Michael<br />

Mulligan • Tom Murray • Debbie Muscatel • Michele Myers • Chris &<br />

Janice Nagy • Alana & Glenn Nahmias • Patricia Nasuti • Dr. Javier<br />

Navarro • Andrew Neary • Roger Nelson • Ann & Duane Neshek • Edwin<br />

& Alice Neuman • Susan Nevel • William O’Brien • Chris S O’Connor •<br />

Daniel O’Connor • Carol & Tim O’Keeffe • Megan O’Shaughnessy •<br />

Madelaine & John O’Shea • John Odmark • Linda & Peter Oeth • Celia &<br />

Ron Offir • Christina Oh • Dr. Cornelius Olcott • Bradley Older • John<br />

Onderdonk • Kathy & Mike Oney • Dr. David Orentreich • Dawn &<br />

Stephen Orr, Jr. • LaRaye Osborne • Rita & Stephen Osit • Azur<br />

Osmanbasic • Joy Ott • Larry Overley • Linda Owen • Grace Owens •<br />

Bonnie Pactor • Peg & Jeff Padnos • Gerald & Sharron Page • Joan<br />

Palmisano • Maryangela Pantages • Tulla Paplow • Dr. John Park • Daniel<br />

& Elaine Pasciullo • Ermina & Louis Passarella • Kari & Steve Passarella •<br />

Janet & Dirk Pasterkamp • John Patton • Sue Paulus • JoEllen Pavia •<br />

Nancy & William Payton • Aimee Pazaski • Noah & Hillary Peaches •<br />

Barbara Pejokovich • Michelle Pejokovich • Dr. Argentino Pellegrino •<br />

Emily Pelrine • Jane & Mark Perkins • Roxann Petersen • Mary Petillo •<br />

Denise Petit • Lori & James Petraglia • Adrienne Petras • Sheila & William<br />

Petrucci • Everett Pettiecord • Ruth & Alan Pfeffer • Leon & Julie Pipho •<br />

R Michael Pitt • Nicholas A Plakopitas • Linda & Andrew Platt • Gene<br />

Pletzer • Jodi Pliszka • Sharon & Larry Plonsker • Virginia & David Polley •<br />

Carol & Jules Pomerantz • Joseph Popovich • Deborah Porter • Sherry<br />

Poss • Dr. Kathleen & Ms. Alison Potter • Keith Powers • Mary Beth<br />

Powers • John Preston • Susan & Dave Price • Jennifer Prince • Tom &<br />

Marilyn Pugliese • Melissa Pusateri • Cindy & Robin Quello • Jerome<br />

Quinn • Joy Radulovic • Joanne Ramos • Marsha & Kenneth Ramsey •<br />

Jeanne Rappoport • Pamela Raque • Warren Rasmussen • Mark & Giselle<br />

Ratain • Wilma & William Rattray • Ilga & Edward Rauchut • Sharon Ray •<br />

Carl Recknagel • Marjorie Reed • Dr. Mel Reich • Judith & Gene Remaklus<br />

• Jane Remis • Diana Renna • Danielle & Nitzan Reouveni • Armeto<br />

Reynolds • Jessica Ribeiro • Barbara & Carl Rice • Joann & Keith<br />

Richardson • Dr. Jennifer Ridge • Eleanor Rieger • Stephen & Janet Roark<br />

• Charles Robin • Alison Robinson • Janet Robinson • Lidia & John Rocha<br />

• Annabel Rodabaugh • Dr. Katie Rodan • Maureen Roddy • Arlene<br />

Rodriguez • John Rodriguez • J Richard Roenigk • Stephanie Roes •<br />

Patricia Rogers • Tracy Rogers • Miguel Rodriguez Romay • Daniel & Heidi<br />

Rooney • Daniel Rosenberg • Dr. Ray H Rosenman • Steven Rosenwasser<br />

• Jill Roshto • Robert Roshto • Harvey & Christine Ross • Jerold & Lee<br />

Ross • Kim & Ron Ross • Donna Marie Rossi • Matthew Roth • George<br />

Rounsavall, Jr. • Stacy Rubio • Jay & Christine Rudolph • Laura Runyen-<br />

Janecky • James & Ann Ruochio • Ian Russell • Cindy & Raymond<br />

Sachkowsky • Daniel Sachkowsky • Linda Sakowitz • Humberto & Vernay<br />

Salas • Robin Salvatore • Natalie Samanon • James Samuels • Dr. Alain<br />

Sand • Christen Santillo • David & Susan Santini • Janis Sasaki • Martis<br />

Saunders • Sharaza Saur • George & Suzette Say • Josette Sayan •<br />

Kimberly Sayan • Loretta & Anthony Scalice • Anna Mae Schaab •<br />

Michael & Barbara Scharf • Nyra Schell • Jaclyn Schlaak • Lisa<br />

Schlossnagle • Mary Ellen & Steve Schlough • Joan Schmidt • Katitza<br />

Schmidt • Fay Schoenberger • Kathy Schreckengost • Carol Rose Schultz •<br />

Donna Sciortino • Michelle Scutieri • June & Ron Secreto • Joan Segal •<br />

Jo Ann Seidenstricker • Margaret Semblewski • Spela Seme • Trisha<br />

Seminoff • Smita Shah • Dr. William Guy Sharra • Carolyn Shea • Sally<br />

Sheahan • Richard & Claudia Shetterly • Jeffrey & Joyce Shew • Dr.<br />

Jordan Ship • Patricia & J Kipp Shrack • Irving & Gladys Siegel • Lawrence<br />

Siegel • Vaughn & Kimberly Silar • Susan Silverstein-Kaufman • • Natalie<br />

Simms • Donna & Ronald Simons • Harold & Janet Simons • Patty &<br />

Randy Simpson • L G Singmaster • Justin Skelding • Joy Slaughter •<br />

Ronald Slusky • Steve & Susan Small • Cathy Smith • Daniel Smith •<br />

George & Teruko Smith • Martin & Dannell Smith • Ross & Willa Smith •<br />

Sean Smith • Tom & Robin Smith • Adam Smoler • Jackie & Tom<br />

Smothers • Molly Snyder • Liz & Chris Sokolowski • David & Maria<br />

Solecki • George & Ruthanne Sorensen • Ellen Souchak • Janice & Robert<br />

Spalding • Lynda & Alexander Speen • Y B Spence • Dr. Len & Joanne<br />

Sperling • Beverly Spielman • Kimberly & Robert Spinelli • Ellen St. John<br />

• Jackie Stafford • Edith & Allen Staib • Jean Staib • Paul Stamour •<br />

Rebecca & Ronald Stanevich • Gerald Stankunas • Mary Stanton • Joan<br />

Staple • Kathryn & Stephen Starke • Kurt Steckel • Joseph Stein • Brooke<br />

Steinau • Larry & Denise Stewart • Anne Stile • Margaret Stillman •<br />

Norman & Phyllis Stillman • James M Stokes • Debra Hayes Stone •<br />

Andre Stott • Charlotte Strand • Josefina Sullivan • Vanessa Swain •<br />

Gregory Swillo • Dr. Carol Tabak • Denise Tai • Christine Taricani • John &<br />

Laurel Taylor • Katie Taylor • Linda Taylor • Chris Tedesco • Reina & Jay<br />

Tendler • Keri Teodori • Michael Tesner • Vikas Tewari • Tom, Eileen &<br />

Karen Terrien • Bill Thoennes • Marjorie Thoeny • Marcia Thomas • Terry<br />

Thomas • Ron & Gina Thomson • Laura Tibbals • Angela Tidwell • Susan<br />

& Ron Tilton • Joan Tinker • Stevie Tinsley • Amalia Stratakos Tio • Geroge<br />

& Vera Tkacs • Theresa Tolkinen • Stacy & Michael Tolpa • Robert Totta •<br />

Susan & Bruce Tracey • Claus Tritt • Tom Trumble • Peter Tseng • Robert &<br />

Shirley Turley • Melanie & James Turnley • Linda Tygert-Lillard • Sharon<br />

Underberg-Davis • Amy Uyechi • Mary Joan Vaccaro • Claudine Vacirca •<br />

Karen Lynn & Jim Valliere • Coleen Van Osten • Leon Van der Poel • Nancy<br />

Vance • Pratima Vardhanda • Rozann G Vartoogian • Lorette Velazquez •<br />

Genevieve & Joseph Venegas • Mary Villalobos • Rebecca & Albert<br />

Villarreal • Carol Vitale • Frank & Jacquie Viteznik • Angela Vollertsen •<br />

Fred Wahl • L Waldenmeyer • Ann Trivette Wall • Henry & Pat Wallace •<br />

Nona & Charles Wallace, Sr • John Walsh • Phyllis Walsh • Yuanyuan<br />

Wang • Allen Ward • Marne Ward • Kristine Washburn • Debbie & Neil<br />

Wasserman • Fumihiko Watanabe • J B Watson, Jr • Victoria Weessies •<br />

Karen Weiland • Barbara & J. Keith Weinlader • Kristen Welch • Jennifer<br />

Wellman • Joel & Colleen Whalen • Anne Wheeler • Jenny White • Zoe<br />

White • Marti Whittle • Dr. Richard & Cathy Wieder • Jackie Wielinga •<br />

Lauren Wiener • Debra B Wild • Jay Wilkes • Randall & Gina Wilkins •<br />

Chanderlyn Williams • Felicia Williams • Lee & Nancy Williams • Michelle<br />

Williams • Nicole & John Williams • Theresa Williams • Tom & Molly<br />

Williams • Margaret Wilson • Nancy & Ron Wilson • Joan Wipperman •<br />

Mollie Witow • Marien & Anson Wong • Marty & Pat Wood • Ben Woods<br />

• Betty Wray • Pamela & Richard Wyatt • Stuart Yaffa • Sally Yanulavich •<br />

Dr. Bayliss Yarnell • Luba Yaryna • Ginnie Yee • Eva Yee-Bach • Roberta<br />

Yocum • Bethany & Daniel Yoder • Tonya York-Dees • Sue Young • Sarah<br />

Zagaja • April Zebrowski • Susan Zimmerman • Susan Zimmermann<br />

Businesses<br />

Ace Home Center, Monahans, TX • American <strong>National</strong> Bank of Texas,<br />

Terrell, TX • Anokhi USA, Newport, NH • Atlantic Sweetner, Hammonton,<br />

NJ • Bank of America, Princeton, NJ • Brenda Kay Hair Specialities,<br />

Portland, OR • Brinker Internatioal, Dallas, TX • CDC Distributors, Inc.,<br />

Cincinnati, OH • Cabarrus Pediatric Physician, Concord, NC • Celebrity<br />

Style Wigs, Corapolis, PA • Chinafloors North America, Inc., Douglasville,<br />

GA • Confident Reflections, Norcross, GA • Dinner Done, Inc., Centreville,<br />

VA • Doma Designs, Inc., Oil City, PA • Dun-Rite Laundry & Cleaners,<br />

Albemarle, NC • Eldorado Hair Replacement, Baltimore, MD • Especially<br />

Yours/Speciality Catalog, Corp., West Bridgewater, MA • Gross Motors<br />

Inc., Neillsville, WI • Group Contractors, Baton Rouge, LA • Hats, Scarves<br />

and More, Spokane, WA • Houston Lace Eyebrows & Lashes, Houston,<br />

TX • Hupy & Abraham, Milwaukee, WI • Jenn Martino Design, Neptune,<br />

NJ • Just Ball Inc., Baton Rouge, LA • Just in Time, Inc., Philadelphia, PA<br />

• Knot It Up, Carlsbad, CA • Lee’s Towing, Zachary , LA, • Lifestyle Home<br />

Builders, Nashville, TN • Long’s Pool Center, Rockingham, NC • Longhua<br />

USA Inc., Tukwila, WA • My Trendy Place, Houston, TX • Oliver’s Hair<br />

Replacements, Dallas, TX • Park Avenue Podiatric Care, Staten Island,<br />

NY • QuadGraphics, Sussex, WI • Rexs Floor Covering, Rockingham, NC<br />

• Riviera Custom Hair Replacement, Syosset, NY • SWC, Tinton Falls, NJ<br />

• Slumbercap, San Diego, CA • Stamp Me Fabulous, Huntington Beach,<br />

CA • Susquehanna International Group, Bala Cynwyd, PA • Tabiatha<br />

Harrier Concierge, LLC, Flourtown, PA • Texas Roadhouse Holdings, LLC,<br />

Louisville, TX • Thatcher, Passarella & Thatcher, Runnemeade, NJ • Tile It<br />

Corp, Massapequa, NY • Washington Federal Savings, Seattle, WA<br />

<strong>Foundation</strong>s and Organizations<br />

Aplington/Parkersburg Schools, Parkersburg, IA • Bi-Cultural Day School,<br />

Stamford, CT • Gloucester Twp. Rotary foundation, Blackwood, NJ •<br />

Maryland Charity Campaign, Baltimore, MD • Monroe College Sunshine<br />

Fund, Bronx, NY • Northwood Elementary School, Franklin, IN • Riverside<br />

Lodge, No. 39, Riverside, IL • Thomas Edison Magnet School, Meriden,<br />

CT • Wedgewood Park International School, Milwaukee, WI


HOPE<br />

INVESTIGATE<br />

<strong>DISCOVER</strong><br />

The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report 9<br />

NATIONAL ALOPECIA AREATA<br />

FOUNDATION<br />

2010 BOARD OF DIRECTORS<br />

Harris Barer, Chair<br />

Partner, Law Firm<br />

New York, New York<br />

Brian Ter Haar, Chief Financial<br />

Officer, Chair Elect<br />

Business Owner<br />

Baton Rouge, Louisiana<br />

Jay Bokulic, Secretary<br />

Program Manager<br />

Ashburn, Virginia<br />

Richard Dest, DDS<br />

Dentist<br />

Charlotte, North Carolina<br />

Bruce Fiscus<br />

Businessman<br />

San Francisco, California<br />

Robert Flint<br />

Retired Engineer<br />

Houston, Texas<br />

Gary Gordon, MD, PhD<br />

Pharmaceutical Research<br />

Highland Park, Illinois<br />

Donna Hakim<br />

Marketing Consultant<br />

Wall, New Jersey<br />

Hoy Lanning, Jr<br />

Business Owner<br />

North Carolina<br />

Maureen McGettigan<br />

Senior Account Executive,<br />

Drug Development Company<br />

Flourtown, Pennsylvania<br />

Alan Pallie<br />

Business Owner<br />

San Rafael, California<br />

FOUNDING CHAIR<br />

Vera H. Price, MD<br />

Hair Research Center<br />

University of California,<br />

San Francisco<br />

San Francisco, California<br />

NATIONAL ALOPECIA AREATA<br />

FOUNDATION<br />

2010 CORPORATE STAFF<br />

Vicki Kalabokes<br />

President and<br />

Chief Executive Officer<br />

Jeanné Rappoport<br />

Vice President<br />

Administration and Meetings<br />

Lisa Butler<br />

Vice President Communications<br />

Laura Ralph<br />

Resource and Information<br />

Specialist<br />

Mary Cosgrove<br />

Website and Database<br />

Specialist<br />

James H. Stoppello, CPA, JD<br />

Legal and Financial Advisor<br />

NATIONAL ALOPECIA AREATA<br />

FOUNDATION<br />

2010 SCIENTIFIC ADVISORY<br />

COUNCIL<br />

Maria Hordinsky, MD, Chair<br />

University of Minnesota<br />

Minneapolis, Minnesota<br />

David Norris, MD, Past Chair<br />

University of Colorado Health<br />

Sciences Center<br />

Denver, Colorado<br />

Jerry Shapiro, MD, FRCP, Vice-<br />

Chair<br />

University of British Columbia<br />

Vancouver, BC, Canada<br />

Vicki Kalabokes,<br />

Executive Secretary<br />

President and<br />

Chief Executive Officer, NAAF<br />

Angela Christiano, PhD<br />

Columbia University<br />

New York, New York<br />

Madeleine Duvic, MD<br />

MD Anderson Cancer Center<br />

Houston, Texas<br />

Marc Glashofer, MD<br />

Island Dermatology<br />

Long Beach, New York<br />

Gary Gordon, MD, PhD<br />

NAAF Board of Directors<br />

Chicago, Illinois<br />

Lloyd E. King, MD, PhD<br />

Vanderbilt University<br />

Nashville, Tennessee<br />

Amy McMichael, MD<br />

Wake Forest University<br />

Winston-Salem,<br />

North Carolina<br />

Alan Moshell, MD<br />

George Washington University<br />

Washington DC<br />

Sigfrid A. Muller, MD<br />

Las Vegas Skin and<br />

Cancer Clinic<br />

Las Vegas, Nevada<br />

Elise A. Olsen, MD<br />

Duke University<br />

Medical Center<br />

Durham, North Carolina<br />

Anthony Oro, MD<br />

Stanford University<br />

Medical Center<br />

Palo Alto, California<br />

Len Sperling, MD<br />

Uniformed Services University<br />

Bethesda, Maryland<br />

Richard Strick, MD<br />

UCLA School of Medicine<br />

Los Angeles, California<br />

John Sundberg, DVM, PhD<br />

The Jackson Laboratory<br />

Bar Harbor, Maine<br />

David A. Whiting, MD<br />

Baylor Hair Research &<br />

Treatment Center<br />

University of Texas<br />

Southwestern Medical Center<br />

Dallas, Texas<br />

Members of the NAAF Volunteer Board of Directors at the January Planning Meeting.<br />

Front, left to right: Jay Bokulic, Harris Barer, Brian Ter Haar. Rear, left to right: Alan Pallie,<br />

Maureen McGettigan, Richard Dest, Donna Hakim, Gary Gordon, Hoy Lanning Jr., and<br />

Bob Flint (missing is Bruce Fiscus).


MISSION<br />

The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> (NAAF)<br />

supports research to find a cure or acceptable<br />

treatment for alopecia areata, supports those with the<br />

disease, and educates the public about alopecia areata.<br />

14 Mitchell Boulevard<br />

San Rafael, CA 94903<br />

Phone: 415-472-3780<br />

Fax: 415-472-5343<br />

Email: info@naaf.org<br />

Website: www.naaf.org<br />

NAAF is a private, tax-exempt, nonprofit organization<br />

pursuant to Section 501(c)(3) of the Internal Revenue<br />

Code, and all gifts and donations to NAAF are tax<br />

deductible. Tax ID number is 94-2780249.<br />

Printed on recycled paper using vegetable-based inks.<br />

© 2011 <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong>

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