DISCOVER - National Alopecia Areata Foundation
DISCOVER - National Alopecia Areata Foundation
DISCOVER - National Alopecia Areata Foundation
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INVESTIGATE<br />
HOPE<br />
<strong>DISCOVER</strong>
The nation’s leading nonprofit watchdog group, the BBB Wise Giving<br />
Alliance, has found that NAAF operates with the utmost integrity,<br />
transparency, and accountability. NAAF is proud to be one of the few<br />
nonprofits out of the almost 1.5 million nonprofits in the United States<br />
that meets these strict standards. In addition NAAF meets all 44 of the<br />
standards required for membership in the <strong>National</strong> Health Council.<br />
HOPE<br />
INVESTIGATE<br />
<strong>DISCOVER</strong><br />
Dear Friends,<br />
We begin this annual letter to you by highlighting the most exciting discovery in the history of alopecia areata.<br />
The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> (NAAF) used your generous donations to INVESTIGATE every possible<br />
avenue that might lead to a breakthrough in the understanding and treatment of this disease, and after 13 years of<br />
investments in genetics research, we <strong>DISCOVER</strong> there are eight genes related to alopecia areata. These same genes<br />
are associated with many other autoimmune diseases. Through our research program, NAAF has given HOPE to<br />
generations of people affected by alopecia areata.<br />
Scientists throughout the world know about this finding since it was published in the prestigious medical<br />
journal, Nature. Medical professionals, including dermatologists, have contacted NAAF to praise us regarding this<br />
discovery. Patients and families who have supported NAAF for many years know that their commitment has been<br />
worthwhile. At the same time, we all realize we must continue to take steps toward the next discovery in our quest to<br />
find an effective treatment and end to this disease.<br />
While we celebrate this breakthrough in research, we also want to remember the other two parts of our mission—awareness<br />
and support—which are so important for people living today with alopecia areata. Through our<br />
support network, the <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> makes a difference in the lives of those families and individuals.<br />
We continue to investigate and discover new ways of helping people. We offer hope on a daily basis through<br />
our website, message boards and social media, informational materials, DVDs, electronic and print newsletters, the<br />
Ascot Fund, and the <strong>Alopecia</strong> <strong>Areata</strong> Marketplace.<br />
The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> strives to communicate the facts about alopecia areata to as many<br />
people as possible. Each day we discover new ways to reach more people. Through awareness and advocacy programs<br />
we educate the community so that they, in turn, are more compassionate and considerate of people with<br />
alopecia areata. We thank NBA player Charlie Villanueva and Miss Delaware, Kayla Martell, who promote awareness<br />
through their appearances.<br />
We thank you again for your support. We hope you are pleased with the report of activities and accomplishments<br />
from 2010.<br />
Brian Ter Haar,<br />
Chair, Board of Directors, 2011<br />
Vicki Kalabokes<br />
President and Chief Executive Officer
“We came to the NAAF Conference<br />
looking for a cure. When you are sitting<br />
with others, look to each side and<br />
forward and back. That is where the<br />
cure is.”<br />
— Howard Kaplan and Ernest Guenzburger<br />
“When our son saw others who had<br />
alopecia areata who got it as children<br />
who are now doctors, lawyers and<br />
emcees he became empowered.”<br />
— Phil Maniscalco<br />
“A young boy I met on the first day of<br />
the<br />
conference was at the airport going<br />
home on Sunday. He was telling me<br />
how he made so many new friends and<br />
was going to keep in touch with them. The difference<br />
in this kid from the first day to the last was just amazing<br />
and so noticeable. He was in line pointing to his mom<br />
all the other alopecians in the security line. I could tell<br />
he knew that he was not alone and it made all the<br />
difference for him. You guys are doing God’s work at<br />
NAAF, you really are.”<br />
— Matt Kelley<br />
“Our support group meeting was the<br />
best meeting ever and I just wanted to<br />
say thank you. You have no idea what<br />
you have done for so many people’s<br />
lives. Thank you from the bottom of<br />
my heart for giving me this opportunity to provide a<br />
safe place for so many people that are suffering.”<br />
— Margaret Staib, Long Island,<br />
New York Support Group Leader<br />
“It takes profound insight and wisdom<br />
to know that how you deal with being<br />
‘you’ affects everyone around you,<br />
even strangers.”<br />
— Georgia Roberts<br />
INVESTIGATE<br />
<strong>DISCOVER</strong><br />
SUPPORT: People <strong>DISCOVER</strong><br />
every day that the <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong><br />
<strong>Foundation</strong> offers the Emotional Cure through<br />
its Support Network.<br />
• NAAF held its 25th Annual International Patient Conference<br />
in Indianapolis, Indiana, in the summer of 2010, drawing 655<br />
participants from 32 states and 3 foreign countries. The conference<br />
is the key to all of NAAF’s support efforts, empowering<br />
those affected by alopecia areata to raise awareness and help<br />
others in their own communities.<br />
• 86 Conference Scholarships were awarded to people in need,<br />
enabling them to attend the conference. A total of 1,121 scholarships<br />
have been awarded since the inception of our conference<br />
scholarship program.<br />
• Our Children’s Conference Camp, which has been held in<br />
tandem with the patient conference since 1988, drew 225 children<br />
and teens.<br />
HOPE<br />
• We continue to expand NAAF’s website to serve you better. It is<br />
more interactive to help more people in real time.<br />
• We have hosted NAAF Webinars to educate everyone on topics<br />
you have requested such as Advocacy, Research, and Children<br />
Returning to School. Our most popular Webinar last year featured<br />
Dr. Christiano reporting on her genetic findings.<br />
• Our NAAF Electronic News (Beneath the Surface) quickly conveys<br />
important information to everyone.<br />
• NAAF s Facebook and Twitter pages encourage even more interaction<br />
among our alopecia areata family.<br />
• The Ascot Fund provided financial grants to 65 men, women,<br />
and children so they could purchase hair prostheses. These<br />
The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report 1<br />
grants truly make a difference in the lives of people. A total of<br />
414 people have been aided by grants from this fund since it<br />
was established in 2004.<br />
• <strong>Alopecia</strong> areata kids have many NAAF resources to help them!<br />
We offer a nine-minute DVD/video that kids can share with<br />
family, friends, and schoolmates; a school packet for use by<br />
parents and teachers; a NAAF bibliography of books for kids<br />
with alopecia areata; children’s supports groups; our Children’s<br />
Conference Camp; our Pen Pals program; secure and private<br />
message boards for children and teens; a special KidNet section<br />
of the NAAF Newsletter; and brochures for both kids and<br />
their parents.<br />
• The <strong>Alopecia</strong> <strong>Areata</strong> Marketplace helps people with alopecia<br />
areata access hard-to-find and much-needed products to ease<br />
their daily life. It now features 54 different merchants. The variety<br />
and quality of the products are exceptional.<br />
• Our International Support Network includes 130 loyal volunteers<br />
in 111 cities worldwide, organizing local support groups<br />
and providing telephone support. NAAF has started highlighting<br />
its support volunteers in each quarterly newsletter.<br />
• Our Pen Pal program now has over 1,300 participants, including<br />
adults as well as children.<br />
• NAAF responds to thousands of emails, phone calls, and fax<br />
requests for information.<br />
• NAAF is able to help more people because of the help we<br />
receive from thousands of volunteers nationwide and internationally.<br />
• Our quarterly award-winning NAAF Newsletter continues to be<br />
recognized as a model for patient newsletters.<br />
• Our NAAF brochures continue to help those with alopecia<br />
areata and educate the public.
2 The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report<br />
AWARENESS: People<br />
<strong>DISCOVER</strong> every day what alopecia areata is<br />
and its effects on people through <strong>National</strong><br />
<strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong>’s awareness<br />
efforts especially our grassroots volunteers<br />
around the world.<br />
“I feel when you educate and make others feel<br />
comfortable about alopecia areata by talking about<br />
it openly it helps avoid misunderstandings and<br />
promotes awareness.”<br />
— Maritza Stern<br />
“Beauty comes in all different kinds<br />
of packages. You can be a beauty<br />
queen and not have hair.”<br />
— Kayla Martell<br />
• Kayla Martell has been a spokesperson for NAAF. She was<br />
crowned Miss Delaware, and the <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong><br />
<strong>Foundation</strong> was chosen as her platform to promote alopecia<br />
areata awareness. We had millions of media impressions from<br />
the numerous media outlets that covered her reign as Miss<br />
Delaware. She eventually advanced to the top ten in the Miss<br />
American Pageant. We are so proud of her!<br />
• Kristen Wells, host of HGTV’s Smart Fix has also been a spokesperson<br />
for NAAF. Kristen contacted NAAF with a burning desire<br />
to give back. She wants to add HOPE because her hair did<br />
grow back and she has been patch-free ever since.<br />
• NBA player Charlie Villanueva continues to “Meet & Greet” and<br />
inspire children and adults affected by alopecia areata, but<br />
Charlie says the reverse is true: he says these Meet & Greets<br />
really inspire him. The Charlie’s Angels Program has had over<br />
4,500 children and adults participate during the past five<br />
years.<br />
• NAAF and the <strong>National</strong> Coalition of Autoimmune Patient<br />
Groups (NCAPG) worked together to produce two video Public<br />
Service Announcements (PSAs), one for all autoimmune<br />
diseases and one for alopecia areata. Charlie Villanueva was<br />
among the people featured. This was a very productive collaboration.<br />
• NAAF publicity efforts generated over 80 print, television, and<br />
web media publications with millions of media impressions<br />
during 2010. This included coverage on CBS News, Fox News,<br />
ABC News, the Today show, The New York Times, The Huffington<br />
Post, USA Today, Los Angeles Times, WebMD, AARP Bulletin, Skin<br />
and Allergy News, and Fox News Latino. [Rosalie, please scan<br />
some of the articles given to you]<br />
• Over 500 NAAF Conference participants attended an Indianapolis<br />
Indians Minor League baseball game to raise awareness of<br />
alopecia areata and cheer on Harrison Goldberg, who threw<br />
the ceremonial first pitch.<br />
• The Tortoise & Hair run/walk is growing into NAAF’s premier<br />
nationwide awareness and fundraising event. Held during our<br />
annual patient conference in Indianapolis, this event drew<br />
over 470 runners and raised over $20,000.<br />
• Volunteers like Heidi Bratt in Massachusetts continue to fight<br />
at the state level for insurance coverage for alopecia areata.<br />
“I see alopecia areata as the coolest<br />
disease ever because it’s not deadly,<br />
you get to go to conferences, meet<br />
new kids with alopecia areata too and<br />
you get to meet the coolest basketball<br />
player ever . . . Charlie Villanueva.”<br />
— A NAAF Kid<br />
“I fought my insurance company for six months and<br />
I won! A small victory, yet an important one. Insurance<br />
companies need to know that alopecia areata is an<br />
autoimmune disease, it is a real disease, it affects people<br />
greatly, and that people with alopecia areata have the<br />
right to recognition and treatment.”<br />
— Cynthia Klein
HOPE<br />
INVESTIGATE<br />
<strong>DISCOVER</strong><br />
The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report 3<br />
NAAF GRATEFULLY ACKNOWLEDGES ALL OF THE AWESOME INDIVIDUALS AND FAMILIES THAT RAISED<br />
MONEY AND SPREAD AWARENESS ON OUR BEHALF DURING 2010. TOTAL RAISED: $223,400!<br />
• NAAF continued its fight for insurance coverage on<br />
CALIFORNIA<br />
KENTUCKY<br />
NORTH CAROLINA<br />
the Federal level.<br />
• NAAF volunteers hosted fundraising and awareness<br />
events around the world, generating almost<br />
$223,400 for NAAF. All of these events are listed by<br />
state or province in this annual report. We offer our<br />
thanks to all the individuals and families who hosted—or<br />
participated in—these fantastic events!<br />
• NAAF now has an official song: “Bald is Best” by<br />
Tyree Glenn Jr, the ambassador of Rhythm and<br />
Blues. The song gets everyone dancing and singing.<br />
Tyree Glenn Jr. has over 20 years of experience<br />
on New York’s Broadway, concert tours, and television<br />
and radio shows in Italy, Portugal, England,<br />
and Germany.<br />
• NAAF, working with the Coalition<br />
of Skin Diseases, has continued<br />
to advocate for the importance of<br />
skin disease research so that all skin diseases in the<br />
coalition benefit.<br />
• NAAF takes a very active role in educating<br />
medical professionals about alopecia areata, hosting<br />
informational exhibits at key medical and<br />
scientific conferences, including the American<br />
Academy of Dermatology, the Dermatology Nurses’<br />
Association, the Society for Investigative Dermatology,<br />
and the American Academy of Pediatrics.<br />
Jillian Halloran Family & Friends<br />
Trish Kotal Family & Friends<br />
Friends at Luso-American Life Insurance<br />
Friends of the Marin Human Race<br />
San Francisco Support Group<br />
CONNECTICUT<br />
Connecticut Support Group<br />
Adriene & Robert Guerin Family & Friends<br />
Holly McDonald’s Family & Friends<br />
Jacob Offir Family & Friends<br />
Katy Swede-Taillon Family & Friends<br />
DELAWARE<br />
Deborah Pellicano Family & Friends<br />
FLORIDA<br />
Amish & Berna Parikh Family & Friends<br />
ILLINOIS<br />
Ken & Jennifer Anderson Family & Friends<br />
Baumgart/Beckman Family & Friends<br />
Rogers Elementary School<br />
INDIANA<br />
Friends of Northwood Elementary School<br />
Olivia Rusk Family & Friends<br />
NAAF Supporters of Tortoise & Hair TM<br />
Indianapolis<br />
IOWA<br />
Kelly Fineman Family & Friends<br />
Ruthy Mayfield Family & Friends<br />
LOUISIANA<br />
Abby Ter Haar Family & Friends<br />
MARYLAND<br />
Mark Sayan Family & Friends<br />
MASSACHUSETTS<br />
Friends of Westminster<br />
Elementary School<br />
MICHIGAN<br />
Mallory Crowner Friends & Family<br />
Cassie McElwain Family & Friends<br />
MISSOURI<br />
Michelle & Kurt Busse Family & Friends<br />
NEW JERSEY<br />
Tom & Laura Conklin Family & Friends<br />
Liliana Hakim Family & Friends<br />
Christopher Passarella Family & Friends<br />
Carole Rogers Family & Friends<br />
NEW YORK<br />
Harrison Goldberg Family & Friends<br />
Jack Keogh Family & Friends<br />
Lord & Taylor Do Good Campaign<br />
Erica Meilhede Family & Friends<br />
Friends of Northside School<br />
Alexandra Dest Family & Friends<br />
Samuel Lanning Family & Friends<br />
OHIO<br />
Sara Kluener Family & Friends<br />
Paige Collins Family & Friends<br />
PENNSYLVANIA<br />
Beth Breslow Family & Friends<br />
Nikola Cao Family & Friends<br />
Friends of Hallowell Elementary School<br />
Diane Gormley Family & Friends<br />
Friends of the Philadelphia, PA<br />
Support Group<br />
Emma Robbins Family & Friends<br />
Friends of the Philadephia 76’ers<br />
SOUTH CAROLINA<br />
Cindy Bondio Family & Friends<br />
TENNESSEE<br />
Shannon O’Neill Family & Friends<br />
TEXAS<br />
Jose Charqueno Family & Friends<br />
Manuel Espino Family & Friends<br />
Michael & Lise Maddux Family & Friends<br />
VIRGINIA<br />
Jeff & Sherene Gravatte Family & Friends<br />
WISCONSIN<br />
Friends of Aplington/<br />
Friends of Reuben Gittelman<br />
Kaycee & Kiah Lang Family & Friends<br />
Parkersburg School District<br />
Hebrew Day School<br />
Friends of Wedgewood Park School
4 The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report<br />
HOPE<br />
INVESTIGATE<br />
<strong>DISCOVER</strong><br />
RESEARCH: The <strong>National</strong><br />
<strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> spends a<br />
tremendous amount of its resources to<br />
INVESTIGATE alopecia areata to <strong>DISCOVER</strong> as<br />
much scientific knowledge as possible and to<br />
give HOPE to all those affected by alopecia<br />
areata.<br />
“Thank you so much for the email<br />
about Dr. Christiano’s discovery of the<br />
genes implicated in alopecia areata<br />
and the publicity. I understand there is<br />
no cure yet but this puts HOPE in the<br />
hearts of millions.”<br />
— Shawn Lintz<br />
“Finally we have the possibility of<br />
developing drugs that specifically<br />
target the mechanism behind the<br />
disease.”<br />
— Angela Christiano, PhD<br />
• NAAF’s funding of Dr. Angela Christiano at Columbia University<br />
over the past 13 years has paid off with the discovery of eight<br />
genes that contribute to alopecia areata, one of which has a possible<br />
role in the onset of the disease. Many of the genes found to<br />
be associated with alopecia areata are also associated with other<br />
autoimmune diseases with pre-existing treatments. This discovery<br />
is expected to lead to effective clinical trials. NAAF thanks the<br />
<strong>National</strong> Institutes of Arthritis and Musculoskeletal and Skin Diseases<br />
(NIAMS) for continuing Dr. Christiano’s studies and awarding<br />
her the resources to be able to make this discovery.<br />
• NAAF has now initiated an <strong>Alopecia</strong> <strong>Areata</strong> Treatment Development<br />
Program to find a successful treatment as rapidly as possible.<br />
This program, which is a direct result of recommendations<br />
from the <strong>Alopecia</strong> <strong>Areata</strong> Immunology Summit and Dr. Christiano’s<br />
discoveries is strategic and focused. We know exactly what<br />
we need to do to accomplish our goals. We have a comprehensive<br />
budget and timeline.<br />
The program focuses our efforts in two directions: Basic<br />
Immunology Research to find a treatment in the long term<br />
and Clinical Studies to find a treatment in the short term,<br />
NAAF acts much like a concierge, bringing together players<br />
from science, industry, government and patients to find a<br />
treatment.<br />
“Dr. Christiano has definitely been working on this for<br />
a very long time. I’m glad her research is finally bearing<br />
fruit. Dedication like hers is rare.”<br />
— Nick Kypriotakis<br />
“Thank you very much for such interesting news, which<br />
give us additional hopes of attaining our targets<br />
against alopecia areata.”<br />
— Jorge Sralegui Gil<br />
“Wow, this is what I have been<br />
waiting for! As an immunologist who<br />
has been following the research in the<br />
field of alopecia areata for over<br />
25 years, it was enlightening to hear<br />
the results of the work presented by Dr. Christiano at<br />
the NAAF conference in 2010. The rigorous population<br />
genetics data derived from the <strong>National</strong> <strong>Alopecia</strong><br />
<strong>Areata</strong> Registry provides the focus for new targeted<br />
immunologic, therapeutic and clinical studies.”<br />
—Howard B. Fleit, PhD.
The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report 5<br />
BASIC IMMUNOLOGY RESEARCH:<br />
NAAF has funded two research grants in Basic Immunology<br />
to date—one to find the autoantibodies involved in alopecia<br />
areata and another to determine if infectious agents are<br />
involved. These studies are ongoing and should be completed<br />
in late 2011.<br />
1. The George Eisenbarth Laboratory, located in the Barbara<br />
Davis Center for Childhood Diabetes at the University of<br />
Colorado Denver School of Medicine, is a<br />
state-of-the-art facility focused on researching the immunology<br />
and autoimmunity of Type 1 Diabetes. We believe we can<br />
benefit from all the advances and technology the diabetes<br />
community has invested in studying their disease to learn more<br />
about our own.<br />
NAAF is funding Dr. Li Zhang, a postdoctoral fellow in the<br />
Eisenbarth Laboratory, to Develop Molecular Assays for <strong>Alopecia</strong><br />
<strong>Areata</strong>–Associated Autoantibodies.<br />
Much autoimmunity research now focuses on discovering<br />
the specificity of the immune response—in other words, the<br />
specific target that the immune response is attacking.<br />
The specificity of the immune response is determined by<br />
either antibodies or T-cell receptors. Antibodies are soluble proteins<br />
that circulate through the body, seeking foreign antigens<br />
to bind and target. T-cell receptors are located on the surface of<br />
T cells, which migrate through the body seeking antigens to attack.<br />
In alopecia areata, it appears that specific T cells are attacking<br />
specific antigens in the hair follicle.<br />
Once antibody specificities are identified in alopecia<br />
areata, additional studies on the role of these antibodies in alopecia<br />
areata will be designed, and studies on T-cell specificities<br />
will be organized to determine if T cells share the same specificities<br />
as antibodies.<br />
2. Yehuda Shoenfeld, MD, FRCP, is also studying infectious<br />
agents in alopecia areata. Shoenfeld is head of the Department<br />
of Medicine B and the Zabludowicz Center for Autoimmune<br />
Diseases at Sheba Medical Center (affiliated with Tel-Aviv<br />
University) in Israel and Incumbent of the Laura Schwarz-Kipp<br />
Chair for Research of Autoimmune Diseases on the Sackler<br />
Faculty of Medicine at Tel-Aviv University, Israel.<br />
An increased prevalence of celiac autoantibodies has been<br />
found in the sera of alopecia universalis patients compared<br />
to controls. They suggest an association between anti-celiac<br />
antibodies and anti-TPO with alopecia universalis and patchy<br />
alopecia areata. The exact role of these autoantibodies and their<br />
associations with different forms of alopecia areata and other<br />
autoimmune diseases will continue to be studied.<br />
CLINICAL STUDIES:<br />
1. NAAF has formed the Corporate Leadership Council to convince<br />
companies that there is a market for drugs that may<br />
be able to be used to treat alopecia areata.<br />
2. NAAF funded a grant to Dr. Jenna O’Neill at Wake Forest<br />
University to research the 235 drugs being developed for<br />
other autoimmune diseases and to produce a spreadsheet<br />
of all pertinent information, including what stage of study<br />
the drug is in.<br />
3. NAAF held an <strong>Alopecia</strong> <strong>Areata</strong> Clinical Summit to set priorities<br />
to advance clinical studies of alopecia areata.<br />
4. NAAF is negotiating with several companies to partner on<br />
clinical studies.<br />
5. NAAF is coordinating investigators to develop a uniform<br />
protocol for alopecia areata clinical<br />
studies.<br />
6. NAAF is pursuing Quality of Life Studies so<br />
we will be prepared to appear before the Food and Drug<br />
Administration if we are successful in finding a viable<br />
treatment.<br />
7. NAAF is also pursuing current prevalence and incidence<br />
studies to present to the Food and Drug<br />
Administration.<br />
8. NAAF is coordinating alopecia areata–related grant applications<br />
to the <strong>National</strong> Institutes of Health so there aren’t<br />
competing applications.<br />
9. NAAF is pursuing the publication of the<br />
biomarkers involved in alopecia areata to advance the clinical<br />
studies.<br />
• NAAF has spent the year preparing to take over the <strong>National</strong><br />
<strong>Alopecia</strong> <strong>Areata</strong> Registry, which was established at NAAF’s<br />
urging and funded by the <strong>National</strong> Institute of Arthritis and<br />
Musculoskeletal and Skin Diseases of the <strong>National</strong> Institutes<br />
of Health. Dr. Christiano used 1,054 samples from the Registry<br />
for her important discoveries. We hope to change the<br />
Registry’s name to the <strong>Alopecia</strong> <strong>Areata</strong> Clinical Trials Registry<br />
since it will become a major part of the <strong>Alopecia</strong> <strong>Areata</strong><br />
Treatment Development Program.<br />
By the end of 2010, over 9,000 people had completed the<br />
initial registration questionnaire. Over 3,100 of these people<br />
had also completed the second phase of registration, providing<br />
blood samples and undergoing a medical exam. The more<br />
people we have in the registry, the more we learn about alopecia<br />
areata and the more clues we gain to find a possible cure.
6 The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report<br />
HOPE<br />
INVESTIGATE<br />
<strong>DISCOVER</strong><br />
STATEMENT OF ACTIVITIES FOR THE YEAR ENDED<br />
DECEMBER 31, 2010<br />
REVENUES:<br />
Unrestricted Temporarily 2010<br />
Restricted Total<br />
Donations—general $428,969 $ - $428,969<br />
Donations—stock and major donors 449,984 - 449,984<br />
Restricted grants and donations - 56,482 56,482<br />
Conference 168,605 650 169,255<br />
Special events—Links for Locks<br />
and Tortoise & Hair TM 56,995 56,995<br />
Prior year grant reimbursements 12,702 12,702<br />
Awareness campaign 130,485 7,254 137,739<br />
Newsletter income 12,550 19,000 31,550<br />
<strong>Alopecia</strong> <strong>Areata</strong> Marketplace 6,339 - 6,339<br />
Brochures and videos 816 - 816<br />
Interest and dividend income 13,320 - 13,320<br />
Net realized and unrealized gains (losses)<br />
on marketable securities 45,479 - 45,479<br />
Net assets released from restrictions 92,093 (92,093) -<br />
STATEMENT OF FINANCIAL POSITION December 31, 2010<br />
ASSETS 2010<br />
Current assets<br />
Cash and cash equivalents $ 693,226<br />
Marketable securities 417,146<br />
Accounts receivable 14,308<br />
Prepaid expenses and other current assets 77,676<br />
Total current assets 1,202,356<br />
Fixed assets,<br />
net of accumulated depreciation 8,079<br />
Total assets $1,210,435<br />
INCOME FOR FISCAL YEARS 1981-2010<br />
LIABILITIES AND NET ASSETS 2010<br />
Current liabilities<br />
Accounts payable $ 11,648<br />
Accrued vacation payable 11,477<br />
Total current liabilities 23,125<br />
Net assets:<br />
Unrestricted 1,152,136<br />
Temporarily restricted 35,174<br />
Total net assets 1,187,310<br />
Total liabilities and net assets $1,210,435<br />
SPENDING PRECENTAGE<br />
EXPENSES<br />
Total revenues 1,418,337 (8,707) 1,409,630<br />
Unrestricted Temporarily 2009<br />
Restricted Total<br />
Program services<br />
Research 187,484 - 187,484<br />
Education and support 815,906 - 815,906<br />
Support services:<br />
Fundraising 166,396 - 166,396<br />
Management and general 83,294 - 83,294<br />
1,550,000<br />
1,500,000<br />
1,450,000<br />
1,400,000<br />
1,350,000<br />
1,300,000<br />
1,250,000<br />
1,200,000<br />
1,150,000<br />
1,100,000<br />
1,050,000<br />
1,000,000<br />
950,000<br />
900,000<br />
850,000<br />
800,000<br />
750,000<br />
700,000<br />
650,000<br />
80% PROGRAM<br />
Support, Research and<br />
Awareness<br />
Total expenses 1,253,080 - 1,253,080<br />
600,000<br />
550,000<br />
500,000<br />
Change in net assets 165,257 (8,707) 156,550<br />
Net assets, beginning of period 986,879 43,881 1,030,760<br />
450,000<br />
400,000<br />
350,000<br />
300,000<br />
250,000<br />
Net assets, end of period $1,152,136 $35,174 $1,187,310<br />
The Statement of Financial Position of the <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> as of December 31, 2010, was audited by R. J.<br />
Riccardi, Certified Public Accountant. A copy of the complete report, including notes, is available for public review from the <strong>National</strong><br />
<strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong>, 14 Mitchell Boulevard, San Rafael, CA 94903 or on the website www.naaf.org.<br />
200,000<br />
150,000<br />
100,000<br />
50,000<br />
1981<br />
1982<br />
1983<br />
1984<br />
1985<br />
1986<br />
1987<br />
1988<br />
1989<br />
1990<br />
1991<br />
1992<br />
1993<br />
1994<br />
1995<br />
1996<br />
1997<br />
1998<br />
1999<br />
2000<br />
2001<br />
2002<br />
2003<br />
2004<br />
2005<br />
2006<br />
2007<br />
2008<br />
2009<br />
2010<br />
13% FUNDRAISING<br />
7% MANAGEMENT
The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report 7<br />
NAAF<br />
DONORS<br />
January 1, 2010 – December 31, 2010<br />
Editor’s note: Some of the donors listed raised all of the money for their<br />
donation, or a portion of it, by fundraising.<br />
DIAMOND BENEFACTORS<br />
$50,000 AND ABOVE<br />
Anonymous • Harris & Helen Barer • Jeffrey & Ginny Kelter • Maureen<br />
McGettigan • Wendy & Brian Ter Haar •<br />
<strong>Foundation</strong>s and Organizations<br />
Estate of Robert D Desmond<br />
GOLD BENEFACTORS<br />
$25,000 TO $49,999<br />
Jay & Peggy Bokulic • Margery & Rob Goldberg • Donna & Matt Hakim<br />
• Lilliana Hakim Family & Friends • Vicki Kalabokes • Abby Ter Haar<br />
Family & Friends<br />
Businesses<br />
Murray Hill Chiropractic, New York, NY<br />
<strong>Foundation</strong>s and Organizations<br />
Heckscher <strong>Foundation</strong> for Children, New York, NY<br />
SILVER BENEFACTORS<br />
$10,000 TO $24,999<br />
Anonymous • Caroline & David Brown • Paige Collins Family & Friends<br />
Family & Friends • Richard & Rosa Dest • Bernard & Cheryl Fineman • Dr.<br />
Gary Gordon & Marilyn Hirsch • Ann S. Hedges • Gwen & Hoy Lanning.<br />
Jr. • Samuel Lanning & Alexandra Dest Family & Friends • Alan & Kathy<br />
Pallie • Philadelphia, PA Support Group Family & Friends • Ray & Susan<br />
Simmons • Lawrence & Sandra Small<br />
<strong>Foundation</strong>s and Organizations<br />
Laffey-McHugh <strong>Foundation</strong>, Wilmington, DE<br />
GRAND BENEFACTORS<br />
$5,000 TO $9,999<br />
Beth & Stephen Breslow • Susan DeLagarza • Warren & Jinhong Deitch •<br />
Manny Espino Family & Friends • Robert & Ana Flint • Arlene & Richard<br />
Glenn • Judith Glick • Marcia Grimm • Philip & Peggy Holland • Tom &<br />
Sharon Kelley • Kaycee & Kiah Lang Family & Friends • Laurie, Randall<br />
& Cassie McElwain Family & Friends • Christopher Passarella Family &<br />
Friends • Debora & Luis Pellicano • Drs. Carol & Gary Ter Haar • Maxine<br />
& Jack Zarrow<br />
Businesses<br />
Downtown Chiropractic, New York, NY • E & J Gallo Winery, Modesto,<br />
CA • Johnson & Johnson, Morris Plains, NJ • Phyto/Ales Groupe, New<br />
York, NY<br />
<strong>Foundation</strong>s and Organizations<br />
Maxine & Jack Zarrow Family <strong>Foundation</strong>, Tulsa, OK<br />
MAJOR BENEFACTORS<br />
$2,500 TO $4,999<br />
Andrea & Robert Belford • Claire Chandler • Allison Dunlop • Thomas &<br />
Marian Gervasi • Jeffrey Goins • David & Ami Handler • Bruce & Rebecca<br />
Hollinger • Matt Kelley • Noel Kratzmann • Eugene & Shirley Levitt •<br />
Friends & Family of Ruthie Mayfield • Robert & Maureen McDonald<br />
• Jenna McNeil Family & Friends • Mindy Myers & Gary Hoover • Rita<br />
& Robert O’Connor • Shannon O’Neill Family & Friends • Kate Paley •<br />
Marcia Rimai & Daryl Diesing • Dr. Joseph & Patricia Russ • William H.<br />
Soskin • Bonnie & Scott Stern<br />
Businesses<br />
IBM, Endicott, NY • Lord & Taylor, Wilkes-Barre, PA • McDonald’s,<br />
Baton Rouge, LA • Procter & Gamble Company, Cincinnati, OH • Taglich<br />
Brothers, Huntington, NY<br />
<strong>Foundation</strong>s and Organizations<br />
Arkay <strong>Foundation</strong>, Pacific Grove, CA • Lexington Grange #2672,<br />
Alliance OH<br />
BENEFACTORS<br />
$1,000 TO $2,499<br />
Herbert & Annabel Abrams • Nancy Polley Aibel • Dr. Rex & Johnnie<br />
Amonette • Robert Amter & Bonnie MacDonald • Ken & Jennifer<br />
Anderson Family & Friends • Cynthia & Woodbury Andrews • Karen<br />
Annis & Mike Dazy • Maria Beckett • Laura Bivins • Linda & Paul<br />
Brady • Peg & Ed Breslow • Susan & Steven Burlingame • Stephen &<br />
Christine Campbell • Helen & Victor Castillo • Elizabeth Catto • Mike &<br />
Janis Chapman • Angela Charqueno Family & Friends • Carl & Suzanne<br />
Chiappa • Lynne Cianciulli • Joseph & Patricia Combs • Connecticut<br />
Support Group • Jim & Marilyn Cook • Mallory & Michael Crowner<br />
Family & Friends • Patricia Davidson • Donovan & Patricia Davis • Karen<br />
& Michael Dermo • David & Lynn Dickens • Dr. Michael Domboski • Hope<br />
& Theresa Dyre Family & Friends • Patti & James Elliott • Jennifer Eplett<br />
& Sean Reilly • Deloris Erickson • Shaila & Karl Fernandes • Jim & Carla<br />
Flug • Sandy & Carlos Frum • Bobbie & James Gates • Dr. Marc Glashofer<br />
• Andrew & Eleanor Grant • Lisa & Julian Grant • Nora & Madison Grose<br />
• Daniel & Kathleen Groszkiewicz • Adriane & Robert Guerin • Joseph<br />
& Jean Hamilton • Earl & Kay Harbaugh • Debbie & Rich Harris • Joyce<br />
Hawkins • Kandace Hawkinson • Jian He • Virginia & David Hilyard •<br />
Despina & Brian Keegan • Peter & Karen Kensicki • Jack & Henry Keogh<br />
Family & Friends • Virginia & Robert Kirkwood • Linda & David Kolifrath<br />
• Sue & Gary Kostecki • Jeremy Kramer & Becca Davies • Robert & Judy<br />
Krischker • Dr. Gerald Krueger • Fred Levin & Leslie Dumont • Irving &<br />
Lenore Levine • Susan MacMillan • Peter & Debby Magowan • Stewart<br />
& Barbara Mandell • Terre Trumble Marshall • Marie & Thomas Mason<br />
• Nancy Matthews • Marie & Terrell McElheny • Stanley Michael • T<br />
J Morris • Michael & Christine Moscato • Rose & Henry Moskowitz •<br />
Kristen Mulberry • Larry Nathanson • Lesley Nettles • Robin & David<br />
Nijankin • Tom & Pam Nix • Robert & Frances Oshiro • Hays Owen • Kathy<br />
Pauli & John Eldred • Steven Perricone • Karen Peterik • Chris Pitsaroff •<br />
Craig & Amy Powell • Dr. Vera H. Price • Jane & Paul Rittmaster • Phyllis<br />
& Sidney Rodbell • Carol & Joel Rogers • Dr. Floreene Rubin • Jillene &<br />
Mark Ryan • Elio Salvo • Linda, Fred & Marc Sayan Family & Friends •<br />
Brian & Lynn Schaezler • Collins & Gail Seitz • Kim & Bill Snyder • Debbie<br />
Socks • Anita & Todd Solomon • Jerry & Janet Solomon • Philip Spinelli<br />
• Margaret & Andrew Staib • Dr. Timothy Stanford & Family • Michelle &<br />
Butch Stidham • Sandra & Bruce Swanson • Katy Swede-Taillon Family<br />
& Friends • Patty Tager & Rami Geffner • Robert, Holly & Nicole Tassin<br />
• Josh Tenuta • Ranjit Thaker • Eric & Lynsey Vinikoff Family & Friends •<br />
Bryant & Sharron Watts • Renee Weilmann • Thomas & Carolyn Werner<br />
• Melanie & Mark Whitmore • Darlene Wisecup • Ed & Mary Wojtowicz •<br />
Vincent Wong • Dr. John & Adelaide Zabriskie • Connie & Mark Zurcher<br />
Businesses<br />
Baton Rouge Water Company, Baton Rouge, LA • C & K Healing Touch,<br />
New York, NY • CMH Flooring Products, Inc., Wadesboro, NC • Di Fazio<br />
Electric, Inc., Deer Park, NY • Galderma Laboratories, Ft. worth, TX •<br />
Horizon Wellness Group, Hicksville, NY • Iowa Dermatology Nurses<br />
Association, Ames, IA • Kahn Architecture & Design, New York, NY •<br />
Law Offices of Anthony C Donofrio, Massapequa, NY • Lifetime Physical<br />
Therapy, New York, NY • New Life Hair, LLC, Burr Ridge, IL • Patterson<br />
Companies, Inc., St. Paul, MN • True Silver Corp., Alan Thomas Designs,<br />
Pembroke Pines, FL • Wal-Mart, Fort Stockton, TX<br />
<strong>Foundation</strong>s and Organizations<br />
Alben F Bates & Clara G Bates <strong>Foundation</strong>, Elmhurst, IL • Andrew<br />
T McMains Baton Rouge Area <strong>Foundation</strong>, Baton Rouge, LA • Catto<br />
Charitable <strong>Foundation</strong>, San Antonio, TX • The Drescher <strong>Foundation</strong>,<br />
Bethesda, MD • The Krischker Family <strong>Foundation</strong>, Phoenixville, PA •<br />
Northwestern Mutual <strong>Foundation</strong>, Milwaukee, WI<br />
SPONSORS<br />
$500 TO $999<br />
Dr. Harry Agress, Jr. • Lindsay Allen • Barbara Amspoker • Tamara &<br />
Rick Baldini • David Bartash • John Barton • Nancy Black • Lindsay<br />
Boles • Charles & Teresa Boyer • Ray & Betsy Braun • Joyce Brehm •<br />
Margaret & Denis Brennan • Chris & Diane Brody • Aram & Heather<br />
Bronston • Michelle & Kurt Busse Family & Friends • Mara Caldwell •<br />
Vickie & John Camburn • Mary & Joseph Cilibrasi • Abraham Cohen •<br />
Leo Aflalo Cohen • Jill & Dan Cook • Dr. Anthony & Shirley Costrini • Dr.<br />
Willis Cottel • Denis Cuenca • Katherine Dalton • Ian & Matilda Dalziel<br />
• Robert DeSaulniers • Guerino & Julie Desimone • Dr. Richard Dosek<br />
• Needra Dulcich • Kathleen & Ed Edwards • Jennifer & John Fahey •<br />
Stephen & Jean Fey • Kelly Fineman Family & Friends • Luann Firestein<br />
• Lorraine Fowler • Brenden & Jennifer Garvey • Carol & William Gasser<br />
• Kathy & Lee Gause • Thomas E. Godfrey • Diane & Bob Goon • Andrea<br />
& Stephen Granet • Cleta Gray • Marcia & Jerry Gross • Ernest & Ellen<br />
Guenzburger • Christopher Hakim & Claire Fratello • Patty & Wayne Hall •<br />
Jillian Halloran Family & Friends • Barbara Hansen • Sally & Stephen Harr<br />
• Sylvia Heisman • Jack & Faye Herick • Alison Herman • Dr. Steven &<br />
Mary Hieronymus • Amy & Brian Hogan • David & Stephanie Honeycutt<br />
• Wayne & Cherie Hubbell • Paul & Patti Jablonski • Dawn Jeffrey • Leslie<br />
& Stephen Jerome • Deborah Johnson • Doris Johnson • Genevieve &<br />
John Kapelswski • Brian & Cindy Killough • Judith King • Dr. Lloyd E.<br />
King • Luke & Kathryn Kissam • Linda & David Kolifrath • Judith Koshiba<br />
• Raymond Kwong • Michaela Kyzekova • Dr. Kathy Laing • Donna & Cliff<br />
Lazarus • Dean Leffelman • Tracy Leopardi • Mary Longsine • Celeste<br />
Lutrario • Michael & Lise Maddux • Kris Ann & Lawrence Maestri • Elene<br />
Mahnken • Jason Malinowski • Blake Manola Family & Friends • Tricia &<br />
Jason Manola • Rick Marotta • Dr. Edward Mayland • Heather & James<br />
McCormack • Mary Lynn McDevitt • Marie & Terrell McElheny • Chad<br />
& Sharon McGee • Elizabeth & Gordon McNabb • Timothy & Adrienne<br />
McNeil • Erica Meilhede Family & Friends • Ava, Edward & Jordan<br />
Mendelson • Richard & Cheryl Metrick • Erin & Jeff Meyer • John &<br />
Kathie Miller • Stephen & Marsha Mock • Cindy Molnar Family & Friends<br />
• Dr. John & Carolyn Ann Moody • Darcy & Stephen Morrissette • Peggy<br />
Napier • Marvin Nevins • New Hampshire Support Group • Jennifer<br />
Nordstrom • Craig O’Sullivan • Marieclair Odell • Dan Odenheimer •<br />
Admiral Robert Papp • Adam Pariante • Thomas & Virginia Pollock • Kelly<br />
Pratt • Alice Price • Phillip & Bonnie Rabideau • George & Regina Raftis<br />
• John & Diane Rakocy • Sharon & Bruce Rarick • Kelly Rauen • Whitney<br />
& Carl Richmond • Tom, Caitlin & Laura Riley • Dr. Janet Roberts • Janis<br />
Roberts • Alice & Robert Ross • Judith & Robert Rubin • David Saltzberg<br />
• Kenneth Satir • Scott Schoenberg • R Gary Sexton • Christopher Skinner<br />
• Eileen Smyers • Donald Sosnowitz • Juliann Sousa • Nancy Stark &<br />
Stanley Iezman • Debbie & Eric Staubber • Denise Thornton • Carol<br />
Triest • Tucson, AZ Support Group • Susan Turner • Sheila Vega-Rogers<br />
• Margaret Veldman • Amy & Peter Viteznik • Joan Walborn • Amy & Ira<br />
Waldman • Richard Waldman • Eileen Walsh • Cory Wanatick • James<br />
Wentworth • Michelle & Ronald White • Dr. David Whiting • Dr. John B<br />
Whitley, Jr. • Lynn Wilson • Jan Wolf • Michael Wolfson • Ruth Ann Wood<br />
• Martha Worthy • Michael Zuravel<br />
Businesses<br />
Atlantis Cleaning Company, Newport Beach, CA • Bidwell Consulting<br />
Services, Inc., Chico CA • Cheryn International, Columbia, SC •<br />
Congoleum Corporation, Mercerville, NJ • DRD Medical PC, New York,<br />
NY • DermMatch, Inc., Sarasota, FL • <strong>Foundation</strong>s Associates, Passaic,<br />
NJ • Freedom Wigs Ltd., Dunedin, New Zealand • Headcovers Unlimited<br />
Inc., Kemah, TX • The Headshop Wigs, Lindale, TX • Jordan Timberlands,<br />
Inc., Mount Gilead, NC • Laing & Dimick Dermatology, Ann Arbor, MI •<br />
Lori’s Wigsite, Coconut Creek, FL • Luso-American Life Insurance Society,<br />
Dublin, CA • Mavrides Moyal & Associates, Lake Success, NY • Mc 2<br />
Enterprises, LLC, Baton Rouge, LA • Murray Hill Foot Care, New York,<br />
NY • Oasis Truck Tire Center, Fort Stockton, TX • Phillips Consulting, Inc.,<br />
Louisville, KY • Salon Kokopelli, Brielle, NJ • Shaw Environmental, Inc.,<br />
Monroeville, PA • Summers Laboratories, Collegeville, PA • The Valassis<br />
Giving Committee, Livonia, MI<br />
<strong>Foundation</strong>s and Organizations<br />
Bartash <strong>Foundation</strong>, New York, NY • Community Health Charities of<br />
California, Sacramento, CA • Galpern-Mendelson Family <strong>Foundation</strong> •<br />
The Human Race, Santa Rosa, CA • Kirkland & Ellis <strong>Foundation</strong>. Chicago,<br />
IL • NAIC/NIPR Volunteer Resource Team, Kansas City, MO • Reuben<br />
Gittelman Hebrew Day School, New City, NY • Swinerton <strong>Foundation</strong>,<br />
San Francisco, CA • Westminster Elementary School, Westminster, MA<br />
GRAND PATRONS<br />
$250 TO $499<br />
Donald & Mary Lynne Able • Tom & Jackie Ahrens • Rollie Alexander,<br />
III • Ashley & Michael Allen • Raul Amaya • Jon & Kathleen Andera •<br />
Dean & Carolyn Anderson • Glenn Auve • Kamoce Bamls • Xuemei Bao<br />
• Nan Barbas • Stephen & Rosemary Bedard • Michael Bernabeo • Dean<br />
Blake • Fran Blaustein • Suzanne Boe • Michael Bogardus • Diane Bonner<br />
• Maria Borgese • Sonya & John Bowman • Kendra & Paul Bramble<br />
• Kathleen Brennan • Theresa Bronson • Kim Bumpers • Dennis &<br />
Catherine Bye • Laurie & Robert Byren • Marie Caldaro • John Caldwell •<br />
Kimberly Campbell • Laurel & John Campbell • Danijela, Jin & Nikola Cao<br />
Family & Friends • Mary & Anthony Cefalu • Dr. Joseph & Sandra Cenac<br />
• Donald & Patricia Chambers • Suzanne & John Chartrand • Michael<br />
Chetock • Lisa & Gene Ciancio • Paula Cirtis-Carter • Nancy & Bob Clark<br />
• Susan & Roy Cleveland • Dr. Beth Colombe • Art Cooper • Mary Lou<br />
Colpoys-Wynne • Pat & Joseph Corvaia • Stacy & Brian Crain • Arlene<br />
& Donald Dahlgren • William B. Darwin, Jr. • Donald Deines • Celeste &<br />
Octavio Delgado • Ralph & Jean DeNunzio • Celeste Descoteaux • Cipa<br />
& Misha Dichter • Nenita Dudley • Mark Earley • Jackie Eris-Aczel • Ellen<br />
Enderle • Carol Eoneman • Adam Garcia Eveloff • Delores Evoe • Daniel<br />
Fahy • Dr. Steve Feldman • Edward Feldsoft • Barry & Odile Fidelman<br />
• Corie Flammia & Jim Murphy • John Floramo • Jerry & Janice Ford •<br />
Warren Forman • Michele & Tim Friedman • Patrick Gallagher • Stacy &<br />
Michael Gardner • Kathy & Lee Gause • Diana & David Gerland • Kelly<br />
Gerritis • Stephen Gervasi • Barbara & James Gilligan • Gary & Doreen<br />
Gittings • Kent & Julia Goodman • Linda & Leo Gordon • Craig Grassi •<br />
Jeff & Sherene Gravatte • Jane & Jim Graybill • Jody & Doug Greenstein<br />
• Yolanda Grisby • Robert & Pat Gruttadauria • Antonio & Dora Guastella<br />
• Yolanda Hailey • Edward & Patricia Hakim • Lisa Hakim • Mark Hakim •<br />
Harold Harms, Jr. • Sally & Stephen Harr • Carol & Timothy Hart • William<br />
Hartman • Kelly Heuer • Joanne & Sean Hogan • Paul & Jan Holtzman<br />
• Gerald Hulbert • Stephen & Leslie Isaacs • Steve Jacobson • Thomas<br />
Jeffers • Neil Johnson • Jeff Jones • Dr. Irving Katz • Bruce Kelleher • Mark<br />
& Molly Kelley • Catherine Kelly • Carla Kephart • Thomas & Margaret<br />
Kittle-Kemp • Chris Knight • Andrea & Ralph Knupp • Harold Koessner<br />
• Lisa & Daniel Kopina • Judith Kramer • Donald & Shirley Kuntzman<br />
• Jung Kwak • Milton Kyser • William Lanava • Jennifer Laurelli • John<br />
& Mary Ellen Lawlor • Harriet & Donald Levy • Caroline Lewis • Karen<br />
Linn • Justin Lockefeer • Steve Luparello & Laurie Drysdale • J. Maher •<br />
Briana Maierle Family & Friends • Christine & Alfred Maierle • Natalie<br />
Mamerow Family & Friends • Suzanne Mancuso • Cathy & Ross Manzo<br />
• Paul & Shawna Marino • Anne Mantsios • Carmen Martinez • Dawn<br />
Marvin • Mark & Priscilla Masselink • Carla Mathews • Kim Mathews •<br />
Carol Mayer • Holly McDonald Family & Friends • Richard McElwain •<br />
Robert McElwain • Christine & James McGarry • Arlene McGillis • Lorelei<br />
& Lawrence McGlynn • Karen & Darren McKinney • Timothy & Adrienne<br />
McNeil • Robert Meyer • Dr. Laurence Miller • Charles & Roberta Mohr •<br />
Ahmad Moini • Pamela Molinaro • Brian & Cheryl Molohon • Anthony<br />
Montcalmo • Stephanie Morales • Lydia Morehead • Karen Nagle •<br />
Debbie & Cliff Neese • Bruce & Joan Nordstrom • Heidi Odmark • Paul &<br />
Laurie Olmstead • Dr. Elise Olsen • Seth Orlow • David Pacheco & Greg<br />
McAllister • Robert & Jean Paine • Christina Palendrano • Gary & Susan<br />
Petrovich • Elizabeth Phillips • Stephanie Pianka • Lara & Lance Pilkerton<br />
• Karen & Christopher Pohl • Edward Pollock • Paul Prairie • Anna Marie<br />
Purisima • Donna Radford • Adam Michael Randall • Emily Renz • Bruno<br />
& Isolde Reule • Ramona Reule • R James Rich • Brian & Jill Rifkin • Steve<br />
& Cyndi Roach • Dr. Douglas Robbins • Emma Robbins Family & Friends<br />
• Sandra Rodgers • Jackie & Olivia Rogers Family & Friends • Paula &<br />
John Rohrs • Norman Rosen • Andrea Rossel • Sandy & Olivia Rusk •<br />
Patricia & Thomas Savage • John & Dawn Savona • Walter & Mary Ann<br />
Schwenk • Millicent Scott • Regina Senour • Martin Setler • Shannon<br />
& Jeff Sheldon • Dr. Jerome Shupack • Dave Singer • Winifred & Victor<br />
Sirbu • Thomas & Lisa Sisbarro • Sharon Skweres • Lee Slattery • Theresa<br />
& James Smith • Wilbur & Grace Ann Smith • James & Jackie Snook •<br />
Victor & Trina Soder • Stephanie & Jane Solterman • Dr. Janice Spalding<br />
• Edward Spruck • Ann Marie & Ken Steele • Tyra & Danny Storm • Sheila<br />
& Lenn Stout • Glenda Stroh • Lenice & John Strohmeier • Jose Luis Pena<br />
Suarez • James Sullivan • Michael Sullivan • Tim Tabler • Jacqueline &<br />
Julian Taub • Anne Taylor • Robin & Claus te Wildt • Elisabeth & Timothy<br />
Tolley • Leo Tress • Linda Tygert-Lillard • Alok & Eliz Upadahyaya • John,<br />
Laura, Isabella & Quinn Viscovich • Bryan & Becky Wade • Lola Wagner<br />
• Margaret Warga • Leslie Watson & Roger Smith • Elizabeth Weaver &<br />
Patrick Diaz • Dr. Michael Welch • George White • Dr. Timothy Wiedmann<br />
• Edith & Kawain Wilarat • Christopher & Julie Wiley • Michelle & Fred<br />
Williams • Carlaine Willis • Margaret Woeppel • Asuncion & Calvin Wong<br />
• Daisy Yanez • Cathy & Ronnie Young • Vicki & Jason Zagrodzky • Carla &<br />
Mark Zashin • June Zhao<br />
Businesses<br />
4Women, Sarasota, FL • Blinkies/Just Imagine It, LLC, Oregon City, OR •<br />
Bobcats Basketball, Charlotte, NC • Booz, Allen, Hamilton, Inc., Herndon,<br />
VA • Brookfield Police Dept., Brookfield, IL • CMC Building Supply,<br />
Cheraw, SC • CPS Railway Services, Inc., Berwyn, PA • Carl Morrow<br />
Insurance, Baton Rouge, LA • Commonwealth Bank & Trust, Louisville,<br />
KY • Compressor Elements, Monahans, TX • Confident Reflections,<br />
Norcross, GA • Conlon Exteriors, Massapequa, NY • Delaware Jaycees,<br />
Inc., Wilmington, DE • Glen Trexler & Sons Logging Inc., Wadesboro,<br />
NC • Guaranty Bond Bank, Fort Stockton, TX • It’s All About You Salon,<br />
Concord, NC • JAH Creations, Beauti-Full-Brows, Teaneck, NJ • L.A.<br />
Champagne & Co., LLP, Baton Rouge, LA • Lindbald Expeditions, New<br />
York, NY • McKernan Law Firm, Baton Rouge, LA • Metro Healthfairs,<br />
Glen Head, NY • Network Solutions & Training, East Northport, NY •<br />
Nisim International, Vaughn, Ontario, Canada • ‘N His Time, Hamburg, PA<br />
• Omni Prepaid, LLC., Pittsburgh, PA • P.G.T. Trucking, Inc., Monaca, PA •<br />
The Big Leagues of Baton Rouge, Rouge, LA • The Mail Bag Bocage, Inc.,<br />
Baton Rouge, LA • The Moran Group of Baton Rouge, Inc., Baton Rouge,<br />
LA • The Philadelphia 76ers, Philadelphia, PA • Steak House Restaurant,<br />
Fort Stockton, TX • Superior Bar & Grill, Inc., Baton Rouge, LA • Way Cool<br />
Productions, Indianapolis, IN<br />
<strong>Foundation</strong>s and Organizations<br />
Fish Family <strong>Foundation</strong> of Maine, Glenburn, ME • Anthony & Catherine<br />
Fusco Charitable <strong>Foundation</strong>, DE • Gloucester Township Education<br />
Association, Erial, NJ • Hallowell Elementary School, Horsham, PA •<br />
Holy Trinity School, Wallingford, CT • Milwaukee Spanish Immersion<br />
PTA, Milwaukee, WI • Northport Running Club, Northport, NY • Rogers<br />
Elementary School, Waterloo, IL • The Brookside School, Sea Girt, NJ •<br />
The Victor & Esther Rozen <strong>Foundation</strong>, Johnson City, NY
8 The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report<br />
PATRONS<br />
$100 TO $249<br />
Daniel & Carol Achord • Ann Adams • Nancy & Carl Adams • Sheri &<br />
Jerry Adamson • Margo & Harold Adkins • Dr. Susan Albert • Liz Albrecht<br />
• John & Susan Allen • Carol & Tom Almond • Sally Alterman • Sally Alvis<br />
• James G Anderson • Kimberly & Kyle Anderson • Rachel & Mark<br />
Anderson • William Andreopoulos • Heidi & Dominick Andriola • Mary &<br />
Dave Annis • Wendy Ansdell • Amy Arabio • Kevin & Mary Arend • Dr.<br />
Georges Arjane • Henry & Linda Asher • Jack & Patsy Atkinson • Caroline<br />
Avery • Ana Azevedo • Valerie & Stan Babb • Nancy Babcock • Ray &<br />
Susana Baca • Joanne & John Baer • Ronald & Susan Bailitz • Anne Baker<br />
• Deidre Baker • Graham Baker • Pat & Bill Baker • Cheryl & Don Ballard •<br />
Kylie Bamberger • Sarah Banck • Roger & Peggy Baneman • Leah Barr •<br />
Elizabeth Barrera • Stephanie Bartow • Frank & Gloria Basile • Otto Bayer<br />
• Joan Beach • Barbara & Roby Bearden • Martha & Douglas Beattie •<br />
Cindy Beene • Gina Marie Bellavia • Jessie Bells • Merry & Bruce Bender •<br />
Stephen & Deborah Bender • Bonnie Berard • Beth Anne Berchtold •<br />
Phillip Berger • Cynthia & Richard Bernard • Vivian & Stanley Bernstein •<br />
Karen & John Berry • Tami & Kevin Best • Michael Bevilacqua • Michelle<br />
Bhagat • Blaise Bifulco • Michele & Ed Bigos • Lynn Birks • Sheelah<br />
Strong Black • Mary Ann Blanchard • Gina & Steven Bogan • Dena &<br />
Gary Bogardus • Cindy Bondio • Carol Booth • Carol Borie • Jamie Braden<br />
• Heidi & Michael Brasch • Kristine & Mark Brennan • Susie Briggs • Mike<br />
Brill • Ellen Briscoe • Dr. Paul Brooke • Philip Schoen Brooks • Terry Brown<br />
• Nancy Brownstein • Elizabeth Brunton • Tanya Buchanan • Albert<br />
Buenrostro • Jim & Barbara Bunning • James & Madeline Burgess • Ken<br />
& Mary Jo Burnes • Steven & Pauline Burton • Erica Bush • Stuart &<br />
Lowen Bush • Roger Bushnell • Deborah Busking • Roberta Buttino •<br />
Richard Buxton • Donna Caches • Louise & Fred Cafasso • Robert &<br />
Sharon Caldwell • Karen & John Callahan • Lynn Callaghan • Robert &<br />
Catherine Cameron • Angela Campbell • Nancy & Cal Campbell • Michael<br />
Camras • John & Donna Capell • Kerry Capell • Doris Caporrino & Ted<br />
Cornell • Vanessa & Gary Cardwell • Barbara Carmichael • Jacqui Carnog •<br />
Robert Caron • Janice Carpenter • Virginia & Frank Carpenter • William &<br />
Paula Carroll • Jennifer Carsner • Sarah Cash • Larry Castro • Mary &<br />
Joseph Catanzaro • Dulce Ceron • Helen Cerulli • John Chafey • James<br />
Chagnon • Dr. Janice & Gerald Chandler • Satish Chandra • Barbara<br />
Chesarek • Beth Cheverie • Kathleen & Gary Childers • Maria & John<br />
Chomeau • Mindy Chrystal • Mary E Cid • Francesco Cifelli • Felicia<br />
Cilibrasi • Philip & Jeanette Cinelli • Michael & Carol Clarke • Judy<br />
Cleveland • Brian Closs • Loreen & James Cody • David & Judy Cohen •<br />
William & Patricia Cole • Kevin Coleman • Judy & Stephen Collier • Mary<br />
& Richard Collier • Tammy Collins • Jim Coleman • Wendy Concepcion •<br />
Tom & Laura Conklin • Denise & CJ Connelly • Eleanor & Timothy Connors<br />
• Christian Conroy • Eloisa Magpayo Contaoi • Stephen & Gayle Corbin •<br />
Richard Cordes • Gino Corona • Zachary Correa • Sunny & Marisol Cortes •<br />
Joe Corvaia • Alice & Anthony Coscia • Martha & Sam Cosco • Richard &<br />
Dianne Cota • William Coulter • John Cowperthwaite • Carol Crabb •<br />
Olivia Crayne • Irene & Philip Crosby • Lynne & Bill Crowder • Janet<br />
Cuffman • Pam & Anthony Culotta, Jr. • Liliana Cunha • Arthur & Roya<br />
Curtis • Gene & Grace Curtis • Mary Lou & Ronald Czupek • Nicole<br />
D’Amico • Carl & Marie D’Angelo • Kathleen & Daniel Dahlkemper • John<br />
& Rebecca Dailey • Jonathan Daniell • Patrick Danley • Mary, Dale & Ted<br />
Davidson • Marla & William Davis • Janis Davisson • Jessa & Douglas<br />
Dawson • Jill Dayan • Rosella De Anda • Marie De Lia • Leta DeFee •<br />
David & Nancy DeLuca • Christianne & Sam DeNardo • Jennifer DeVivo •<br />
Andree Dean • Christopher Dean • Keith & Lauri Decell • Hochi<br />
Delossantos • Michael & Jacqueline Dewey • Nancy & Chris DiBella •<br />
Mary DiNardo • Cora Diamond • Linda Diller • Thomas & Melinc Disare •<br />
Mark Dobbins • Eileen Dodd • John Dodson • Melissa Dogonniuck •<br />
Eileen F Dolan • Terry & Orlando Dominguez • Kathleen & Albert Doty •<br />
Barbara & Edward Dowski, Jr • Ronald & Dianne Drewing • Joan &<br />
Richard DuBose • Kristy DuFresne • Viola Duarte • Andrea, Rancy, &<br />
Alana Dube • Donna Dufort • Robert Dumeyer • Michael Dumont • Keith<br />
Dunlap • Geraldine Dunn • Priscilla Durkin • Kevin Durning • Scott &<br />
Debbie Eagle • Joe Ealy • Gwendolyn East • Carol Ebron • Barbara &<br />
Walter Echo • Mr. & Mrs. John Ecker • Dorothy Edelman • Susan<br />
Edmonson • Ann & Edward Egan • Mary Lou Einhorn • Pat & Steve<br />
Ellenwood • Myrna Elliott • Ruth Ellison • George & Lois Elty • Michele &<br />
Michael Emanuele • Candy & Terry Engelland • Tracy Ennels • Barbara &<br />
Michael Enos • Jackie Erickson • Dr. James Ertle • Mr. & Mrs. Billy Espino<br />
• Roxana & Gabriel Espino • Kelly & Mark Eudy • Kristine Eule • Joanne &<br />
Gregg Evangelist • William W Evenson • Pamela & Douglas Evertz •<br />
Margaret & Ignatius Fadanelli • Debra Farve • Elvera Fasano • Dwight &<br />
Anne Fawcett • Dwight, Christina, Jackson & Pete Fawcett • Jill<br />
Komorowski Fayan • LeRoy & Alma Fennimore • Neil G Ferrari • Timothy<br />
S Fetzer • Daniele Figliuolo • Andrew & Debra Filla • Gunilla & Jerry<br />
Finrow • Juan Flaim • David & Lezlee Flanders • Brian Fleischer • Harris,<br />
Andra, & Livy Footer • Darlene Foster • Tracy Foster • Christine Foti •<br />
Thomas Fowler • Glen Fowlie • David Fox • Susan & Carl Fox • Tammy<br />
Frady • Ronald & Joyce Franey • John A Frank, III • Jennifer<br />
Frankenberger • Barbara Franklin • Carol & John Fravel • Avis Frazier •<br />
Judy & Allen Freedman • Dudley & Helen Fricke • Bill & Rosanne<br />
Frickenstein • Carol & Donna Fritts • Beverly Frontero • Dr. Jan Fuerst •<br />
Regina Fuks • Debbi Fuller • Ken & Lois Furr • Antoinette & Anthony<br />
Fusco • Lois Gafford • Carol Gallagher • Bonnie Gallant • Vanessa Gallant •<br />
Thomas & Theresa Gambacorta • Janet & Dominic Gambacorto • Kathy<br />
Gappa • Omar Garcia • Kenneth & Cynthia Garni • Sally & Don Gattuso •<br />
Joan Gawdun • Dean Gekas • Susan Gelsomino • Richard Gelula • Frances<br />
Gentile • Ann Marie Germani • Martin & Jenny Gerst • Joshua Gertzog •<br />
Maria & Jay Ghazal • Robert Gibson • Brian & Cindy Gil • Lisa & Taylor<br />
Gilbert • Lilya & Yefirm Gilgur • Carla Gizzi • Rae Glassman • Mishon<br />
Glisson • Carolyn Goh • Dr. Lynne Goldberg • Donald & Terry Goldblum •<br />
Susan Goldhaber • Dr. Peter Goldman • Julie Gonsiewski • Delma &<br />
Jamie Gonzalez • Rebecca Gonzalez • Arthur & Ina Gordon • Sean<br />
Gordon • Diane & Charles Gormley • Mary & William Gormley • Svetlana<br />
Gourevitch • Helena Goworek • David Graesser • Margaret Graham •<br />
Leroy Gravatte, III • Paul McRae Green • Kim & Brian Greenwell • Mike &<br />
Amy Griebel • Chris Griffin • Gary & Mary Griffin • Barbara & Robert<br />
Griffith • Oscar John Groebl • Mason Gross • Joseph & Irene Groskiewicz •<br />
Susan Grove • Ruth Guenzburger • Carolyn Guerra • Catherine Gulati •<br />
Kelly Gustafson • Juan Gutierrez • Ralph & Sharon Gutierrez • Jean<br />
Gutman • Judith Gutow • Maureen Haeffner • Marsden Haigh • John P.<br />
Hakim • Jason Hall • Tania & Tom Hall • Thomas Halloran • Thomas &<br />
Holly Hallum • Jane & Ed Haltness • Stephanie & Raymond Hamilton •<br />
Walter & Diane Hamilton • Michael Hammond • Dr. Raymond & Arlene<br />
Handler • Kathleen Hanratty • Nancy & Edward Hardin • Carlton & Milton<br />
Harper • Edgar Harrington • Jolene Harris • Kristi & Todd Harris • Tim<br />
Harris • Dr. Takashi Hashimoto • Housria Hassouna • Daniel & Mari-Kay<br />
Haubert • Christa Haugh • Cory W Hawkins • Dana Hawkins • Geoffrey &<br />
Marin-Shawn Haynes • James Haynes • Joan Healy • Lisa & Jim Heavner<br />
• James & Lisa Heberling • Michelle & R Scott Heinl • Dennis & Marcia<br />
Heitzmann • Amy Heller • Stacie Helm • Jerri & George Helmreich • Bill<br />
Hendricks • Glen & Kathleen Hendricks • William & Catherine Hendricks •<br />
Charles Henness • Susan Henness • Dr. Ann E Hern • Nancy & Tony<br />
Hernandez • Brett Herrington • Gareth Heyman • Nancy Hibbs • Paula &<br />
Kathryn Higbee • Lisa Hight • Delmon Hodges • John & Edith Hogan •<br />
Beverly Holden • Sheri Holder • Robbi Hollister • Elizabeth Holowinski •<br />
Linda Horn • Dr. Diane Hoss • Betty Hudson • Sharla Hughes • Kathy<br />
Humbracht • Haydi & Bill Hurley • Martha Hurtado • HenryHutchinson •<br />
Thomas Hynes • Lee & Mary Ibsen • Dr. Chull-Wan Ihm • Mike & Lee-<br />
Ann Ikemoto • Carol A Imle • Caryl Ingram • Kunio Ishida • Nanci & Bob<br />
Jacobson • Lenora Jannazzo • Marie Jastrow • Lynn Jennings • Donna<br />
Jerz • Jaclyn Jerz • Emma Johns • David Johnson • Gloria Johnson • Linda<br />
Johnson • Martha Johnson • Patricia & Edward Johnson • Jill Johnston •<br />
Susan Johnston • Richard Jonas • Matthew Jones • Sheila Jones • Jeff<br />
Jordan • Debbie Jorgensen • Larry & Susan Kaasa • Dawn Kagan • Debra<br />
& David Kahn • Matthew Kahny • Allen & Susan Kallor • Heather & Brian<br />
Kannheiser • Howard & Debi Kaplan • Joan Kapstein • Wendy & Steven<br />
Kapusta • Albert & Camille Kariya • Virginia & Myron Karki • Alyson<br />
Karrington • Dina & John Keane • Mary Kelleher • Richard & Charlotte<br />
Kelley • Anya Kendell • Robert J & Kay B Kenney • Bruce & Joyce Kent •<br />
Mudasir Khan • Eindar Khant • Terry, Patricia & Keri Kight • Sandy Kim •<br />
Robert King • Hanna Kino • Cynthia & Peter Kinsella • Joan L Kistler •<br />
Steven Klein • Tom Klimala • Christopher Kline • Sunny & Dave Kline •<br />
Stephen & Lisa Kloch • Dr. Rebecca Knapp • Patricia Kodym • Harold<br />
Koessner • Rosemary & Steven Koffman • Anne Kolvo • Elissa & Marvin<br />
Kon • Joe & Takako Koplin • David Kordt • Ellen Kosmatka • Margaret<br />
Kostecki • Arline & Robert Kramer • Marian Kramer • Roger Kraynick •<br />
Edward Kreise • Douglas Kress • Poplin Koese • Mark Krueger • Susan<br />
Kuper Smith • Arlene Kurtis • Sandra Kyer • Dr. John Kyriazis • Luz &<br />
Anthony Labato • Belinda & Nathan Lader • Louis Lagana • Mary & Mark<br />
Lahey • Sylvia Laird • Ann Marie & Robert Lake • Sharon Lakin • Leona<br />
Lamanna • Nancy Lamberti • Kim Lang Renzi • Phil & Kimberly Lanning<br />
• Renata & Joseph Lantos • Barbara Larson • Ronald & Jesslyn Larson •<br />
Kathleen Latimer • Edward & Ursula Lauer • Alexandra Laurelli • Ursula<br />
Lavelle • Frances & Robert Lawrence • Brian Lawson • Dr. Joseph Laenza<br />
• Melissa & James Leder • Maria Ledger • Marcia Leinwand • J Gordon<br />
Lent • Donna Leotta • Jacqueline Lessard • Paula Leszyk-Haney • Pearl<br />
Levine • Jerome & Catherine Levinson • Howard Levitas • Harriet &<br />
Donald Levy • Claudia P Lewis • Lawrence Lewis • Dr. Lawrence M<br />
Lieblich • Alex Limanni • Candice Linder • Matthew Lindquist • Andrea<br />
Lindstrom • Sarah Beth Linn • Barbara Lino • Andrea Lipack • John &<br />
Mary Lippincott • Ryan & Lisa Lippincott • Alfred & Jere Litchenburg •<br />
Jan Litvene • Gloria Liu • Carolyn Lloyd • Lisa Lloyd-Washington •<br />
Lawrence & Doreen Logan • Glenna Loggie • Susan Lohsen • Joseph<br />
Longo • Nancy & Michael Lotto • Jennifer Lowe • Deborah Lucas •<br />
Roberta Lukowitz • Edwardo Luna • Deena Luria • Brittney Lynch •<br />
Catherine & Thomas Lynch • Claire & John Lyons • Egbert Maben •<br />
Richard MacDonald • Cheryl MacEwen • Donna MacFarlane-Franz •<br />
Robert & Michele Machion • Ken Macura • Karen & Stephen Madden •<br />
Christine, Vincent & Stephen Maefsky • Bernice Mahler • Andrew<br />
Mancini • Nancy & Phil Maniscalco • Christina, Jeffrey, Logan & Gavin<br />
Manuola • Mark Manzo • Louise Marchesi • Annette Marden • Robert &<br />
Elizabeth Maresca • Sandra Marine • Frank & Marie Marino • Dr. Leslie<br />
Alison Mark • Ernest & Marion Marola • Kelly & Scott Marshall • Jane<br />
Marsteller • Rhonda Martell • Suzette & Lawrence Martin • Cynthia &<br />
Douglas Mashburn • Ben & Vivian Mason • Marc & Rachel Mastriano •<br />
Mark Masur • Russell Mathers • Peter Mattaliano • Paula & Neil Maxwell<br />
• Keith & Susan Mayeaux • Mark Mazurek • Maggie McBennett • Dale<br />
McCarter • Linda McCoog • Jan & William McCormack • John McCurry •<br />
Patricia A McDivitt • Lynn McDonald • Donna McElwain • A L & Judi<br />
McFatter • Linda McGarry • John & Hope McGettigan • Mary McGettigan<br />
• Roy & Doreen McGillis • Bridget McGowen • Denise & Michael<br />
McKeigan • Mrs. Roy McKenzie • Anne & David McLaughlin • James<br />
McLaughlin • Steve & Christa McLellan • Chris McPartlin • Patrick<br />
McQuade • Elizabeth McTiernan • Margie & Marc Meadow • Leona<br />
Meadows • Ann & Tom Meek • Luz Mercado • Nicole Messina • David &<br />
Rebecca Mexicotte • Christie & John Miller • John & Celene Miller • Lisa<br />
Miller • Mary & Robert Miller • Susan R Miller • Barbara Mintz • Roya &<br />
Iraj Mirshahi • Helena Miskel • Jeffrey Mitchell • Leigh Anne Mitchell •<br />
Samair & Sundari Mitra • Peter & Wendy Moen • Shirley & Edward<br />
Moffett • Ranvir & Prita Mohindra • James & Fran Mollis • Carl & Patricia<br />
Monnin • Mary Ann & Monte Monson • Michael & Rhonda Montgomery<br />
• Dorothy Moore • Douglas Mopi • Robert Morgan • Julie Morreale •<br />
Karen & Dean Morrell • Lorraine Moscardini • John Motter • Dianne<br />
Moulton • Kelly Mroz • Kimberly Mueller • Dr. Sigfrid Muller • Michael<br />
Mulligan • Tom Murray • Debbie Muscatel • Michele Myers • Chris &<br />
Janice Nagy • Alana & Glenn Nahmias • Patricia Nasuti • Dr. Javier<br />
Navarro • Andrew Neary • Roger Nelson • Ann & Duane Neshek • Edwin<br />
& Alice Neuman • Susan Nevel • William O’Brien • Chris S O’Connor •<br />
Daniel O’Connor • Carol & Tim O’Keeffe • Megan O’Shaughnessy •<br />
Madelaine & John O’Shea • John Odmark • Linda & Peter Oeth • Celia &<br />
Ron Offir • Christina Oh • Dr. Cornelius Olcott • Bradley Older • John<br />
Onderdonk • Kathy & Mike Oney • Dr. David Orentreich • Dawn &<br />
Stephen Orr, Jr. • LaRaye Osborne • Rita & Stephen Osit • Azur<br />
Osmanbasic • Joy Ott • Larry Overley • Linda Owen • Grace Owens •<br />
Bonnie Pactor • Peg & Jeff Padnos • Gerald & Sharron Page • Joan<br />
Palmisano • Maryangela Pantages • Tulla Paplow • Dr. John Park • Daniel<br />
& Elaine Pasciullo • Ermina & Louis Passarella • Kari & Steve Passarella •<br />
Janet & Dirk Pasterkamp • John Patton • Sue Paulus • JoEllen Pavia •<br />
Nancy & William Payton • Aimee Pazaski • Noah & Hillary Peaches •<br />
Barbara Pejokovich • Michelle Pejokovich • Dr. Argentino Pellegrino •<br />
Emily Pelrine • Jane & Mark Perkins • Roxann Petersen • Mary Petillo •<br />
Denise Petit • Lori & James Petraglia • Adrienne Petras • Sheila & William<br />
Petrucci • Everett Pettiecord • Ruth & Alan Pfeffer • Leon & Julie Pipho •<br />
R Michael Pitt • Nicholas A Plakopitas • Linda & Andrew Platt • Gene<br />
Pletzer • Jodi Pliszka • Sharon & Larry Plonsker • Virginia & David Polley •<br />
Carol & Jules Pomerantz • Joseph Popovich • Deborah Porter • Sherry<br />
Poss • Dr. Kathleen & Ms. Alison Potter • Keith Powers • Mary Beth<br />
Powers • John Preston • Susan & Dave Price • Jennifer Prince • Tom &<br />
Marilyn Pugliese • Melissa Pusateri • Cindy & Robin Quello • Jerome<br />
Quinn • Joy Radulovic • Joanne Ramos • Marsha & Kenneth Ramsey •<br />
Jeanne Rappoport • Pamela Raque • Warren Rasmussen • Mark & Giselle<br />
Ratain • Wilma & William Rattray • Ilga & Edward Rauchut • Sharon Ray •<br />
Carl Recknagel • Marjorie Reed • Dr. Mel Reich • Judith & Gene Remaklus<br />
• Jane Remis • Diana Renna • Danielle & Nitzan Reouveni • Armeto<br />
Reynolds • Jessica Ribeiro • Barbara & Carl Rice • Joann & Keith<br />
Richardson • Dr. Jennifer Ridge • Eleanor Rieger • Stephen & Janet Roark<br />
• Charles Robin • Alison Robinson • Janet Robinson • Lidia & John Rocha<br />
• Annabel Rodabaugh • Dr. Katie Rodan • Maureen Roddy • Arlene<br />
Rodriguez • John Rodriguez • J Richard Roenigk • Stephanie Roes •<br />
Patricia Rogers • Tracy Rogers • Miguel Rodriguez Romay • Daniel & Heidi<br />
Rooney • Daniel Rosenberg • Dr. Ray H Rosenman • Steven Rosenwasser<br />
• Jill Roshto • Robert Roshto • Harvey & Christine Ross • Jerold & Lee<br />
Ross • Kim & Ron Ross • Donna Marie Rossi • Matthew Roth • George<br />
Rounsavall, Jr. • Stacy Rubio • Jay & Christine Rudolph • Laura Runyen-<br />
Janecky • James & Ann Ruochio • Ian Russell • Cindy & Raymond<br />
Sachkowsky • Daniel Sachkowsky • Linda Sakowitz • Humberto & Vernay<br />
Salas • Robin Salvatore • Natalie Samanon • James Samuels • Dr. Alain<br />
Sand • Christen Santillo • David & Susan Santini • Janis Sasaki • Martis<br />
Saunders • Sharaza Saur • George & Suzette Say • Josette Sayan •<br />
Kimberly Sayan • Loretta & Anthony Scalice • Anna Mae Schaab •<br />
Michael & Barbara Scharf • Nyra Schell • Jaclyn Schlaak • Lisa<br />
Schlossnagle • Mary Ellen & Steve Schlough • Joan Schmidt • Katitza<br />
Schmidt • Fay Schoenberger • Kathy Schreckengost • Carol Rose Schultz •<br />
Donna Sciortino • Michelle Scutieri • June & Ron Secreto • Joan Segal •<br />
Jo Ann Seidenstricker • Margaret Semblewski • Spela Seme • Trisha<br />
Seminoff • Smita Shah • Dr. William Guy Sharra • Carolyn Shea • Sally<br />
Sheahan • Richard & Claudia Shetterly • Jeffrey & Joyce Shew • Dr.<br />
Jordan Ship • Patricia & J Kipp Shrack • Irving & Gladys Siegel • Lawrence<br />
Siegel • Vaughn & Kimberly Silar • Susan Silverstein-Kaufman • • Natalie<br />
Simms • Donna & Ronald Simons • Harold & Janet Simons • Patty &<br />
Randy Simpson • L G Singmaster • Justin Skelding • Joy Slaughter •<br />
Ronald Slusky • Steve & Susan Small • Cathy Smith • Daniel Smith •<br />
George & Teruko Smith • Martin & Dannell Smith • Ross & Willa Smith •<br />
Sean Smith • Tom & Robin Smith • Adam Smoler • Jackie & Tom<br />
Smothers • Molly Snyder • Liz & Chris Sokolowski • David & Maria<br />
Solecki • George & Ruthanne Sorensen • Ellen Souchak • Janice & Robert<br />
Spalding • Lynda & Alexander Speen • Y B Spence • Dr. Len & Joanne<br />
Sperling • Beverly Spielman • Kimberly & Robert Spinelli • Ellen St. John<br />
• Jackie Stafford • Edith & Allen Staib • Jean Staib • Paul Stamour •<br />
Rebecca & Ronald Stanevich • Gerald Stankunas • Mary Stanton • Joan<br />
Staple • Kathryn & Stephen Starke • Kurt Steckel • Joseph Stein • Brooke<br />
Steinau • Larry & Denise Stewart • Anne Stile • Margaret Stillman •<br />
Norman & Phyllis Stillman • James M Stokes • Debra Hayes Stone •<br />
Andre Stott • Charlotte Strand • Josefina Sullivan • Vanessa Swain •<br />
Gregory Swillo • Dr. Carol Tabak • Denise Tai • Christine Taricani • John &<br />
Laurel Taylor • Katie Taylor • Linda Taylor • Chris Tedesco • Reina & Jay<br />
Tendler • Keri Teodori • Michael Tesner • Vikas Tewari • Tom, Eileen &<br />
Karen Terrien • Bill Thoennes • Marjorie Thoeny • Marcia Thomas • Terry<br />
Thomas • Ron & Gina Thomson • Laura Tibbals • Angela Tidwell • Susan<br />
& Ron Tilton • Joan Tinker • Stevie Tinsley • Amalia Stratakos Tio • Geroge<br />
& Vera Tkacs • Theresa Tolkinen • Stacy & Michael Tolpa • Robert Totta •<br />
Susan & Bruce Tracey • Claus Tritt • Tom Trumble • Peter Tseng • Robert &<br />
Shirley Turley • Melanie & James Turnley • Linda Tygert-Lillard • Sharon<br />
Underberg-Davis • Amy Uyechi • Mary Joan Vaccaro • Claudine Vacirca •<br />
Karen Lynn & Jim Valliere • Coleen Van Osten • Leon Van der Poel • Nancy<br />
Vance • Pratima Vardhanda • Rozann G Vartoogian • Lorette Velazquez •<br />
Genevieve & Joseph Venegas • Mary Villalobos • Rebecca & Albert<br />
Villarreal • Carol Vitale • Frank & Jacquie Viteznik • Angela Vollertsen •<br />
Fred Wahl • L Waldenmeyer • Ann Trivette Wall • Henry & Pat Wallace •<br />
Nona & Charles Wallace, Sr • John Walsh • Phyllis Walsh • Yuanyuan<br />
Wang • Allen Ward • Marne Ward • Kristine Washburn • Debbie & Neil<br />
Wasserman • Fumihiko Watanabe • J B Watson, Jr • Victoria Weessies •<br />
Karen Weiland • Barbara & J. Keith Weinlader • Kristen Welch • Jennifer<br />
Wellman • Joel & Colleen Whalen • Anne Wheeler • Jenny White • Zoe<br />
White • Marti Whittle • Dr. Richard & Cathy Wieder • Jackie Wielinga •<br />
Lauren Wiener • Debra B Wild • Jay Wilkes • Randall & Gina Wilkins •<br />
Chanderlyn Williams • Felicia Williams • Lee & Nancy Williams • Michelle<br />
Williams • Nicole & John Williams • Theresa Williams • Tom & Molly<br />
Williams • Margaret Wilson • Nancy & Ron Wilson • Joan Wipperman •<br />
Mollie Witow • Marien & Anson Wong • Marty & Pat Wood • Ben Woods<br />
• Betty Wray • Pamela & Richard Wyatt • Stuart Yaffa • Sally Yanulavich •<br />
Dr. Bayliss Yarnell • Luba Yaryna • Ginnie Yee • Eva Yee-Bach • Roberta<br />
Yocum • Bethany & Daniel Yoder • Tonya York-Dees • Sue Young • Sarah<br />
Zagaja • April Zebrowski • Susan Zimmerman • Susan Zimmermann<br />
Businesses<br />
Ace Home Center, Monahans, TX • American <strong>National</strong> Bank of Texas,<br />
Terrell, TX • Anokhi USA, Newport, NH • Atlantic Sweetner, Hammonton,<br />
NJ • Bank of America, Princeton, NJ • Brenda Kay Hair Specialities,<br />
Portland, OR • Brinker Internatioal, Dallas, TX • CDC Distributors, Inc.,<br />
Cincinnati, OH • Cabarrus Pediatric Physician, Concord, NC • Celebrity<br />
Style Wigs, Corapolis, PA • Chinafloors North America, Inc., Douglasville,<br />
GA • Confident Reflections, Norcross, GA • Dinner Done, Inc., Centreville,<br />
VA • Doma Designs, Inc., Oil City, PA • Dun-Rite Laundry & Cleaners,<br />
Albemarle, NC • Eldorado Hair Replacement, Baltimore, MD • Especially<br />
Yours/Speciality Catalog, Corp., West Bridgewater, MA • Gross Motors<br />
Inc., Neillsville, WI • Group Contractors, Baton Rouge, LA • Hats, Scarves<br />
and More, Spokane, WA • Houston Lace Eyebrows & Lashes, Houston,<br />
TX • Hupy & Abraham, Milwaukee, WI • Jenn Martino Design, Neptune,<br />
NJ • Just Ball Inc., Baton Rouge, LA • Just in Time, Inc., Philadelphia, PA<br />
• Knot It Up, Carlsbad, CA • Lee’s Towing, Zachary , LA, • Lifestyle Home<br />
Builders, Nashville, TN • Long’s Pool Center, Rockingham, NC • Longhua<br />
USA Inc., Tukwila, WA • My Trendy Place, Houston, TX • Oliver’s Hair<br />
Replacements, Dallas, TX • Park Avenue Podiatric Care, Staten Island,<br />
NY • QuadGraphics, Sussex, WI • Rexs Floor Covering, Rockingham, NC<br />
• Riviera Custom Hair Replacement, Syosset, NY • SWC, Tinton Falls, NJ<br />
• Slumbercap, San Diego, CA • Stamp Me Fabulous, Huntington Beach,<br />
CA • Susquehanna International Group, Bala Cynwyd, PA • Tabiatha<br />
Harrier Concierge, LLC, Flourtown, PA • Texas Roadhouse Holdings, LLC,<br />
Louisville, TX • Thatcher, Passarella & Thatcher, Runnemeade, NJ • Tile It<br />
Corp, Massapequa, NY • Washington Federal Savings, Seattle, WA<br />
<strong>Foundation</strong>s and Organizations<br />
Aplington/Parkersburg Schools, Parkersburg, IA • Bi-Cultural Day School,<br />
Stamford, CT • Gloucester Twp. Rotary foundation, Blackwood, NJ •<br />
Maryland Charity Campaign, Baltimore, MD • Monroe College Sunshine<br />
Fund, Bronx, NY • Northwood Elementary School, Franklin, IN • Riverside<br />
Lodge, No. 39, Riverside, IL • Thomas Edison Magnet School, Meriden,<br />
CT • Wedgewood Park International School, Milwaukee, WI
HOPE<br />
INVESTIGATE<br />
<strong>DISCOVER</strong><br />
The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> 2010 Annual Report 9<br />
NATIONAL ALOPECIA AREATA<br />
FOUNDATION<br />
2010 BOARD OF DIRECTORS<br />
Harris Barer, Chair<br />
Partner, Law Firm<br />
New York, New York<br />
Brian Ter Haar, Chief Financial<br />
Officer, Chair Elect<br />
Business Owner<br />
Baton Rouge, Louisiana<br />
Jay Bokulic, Secretary<br />
Program Manager<br />
Ashburn, Virginia<br />
Richard Dest, DDS<br />
Dentist<br />
Charlotte, North Carolina<br />
Bruce Fiscus<br />
Businessman<br />
San Francisco, California<br />
Robert Flint<br />
Retired Engineer<br />
Houston, Texas<br />
Gary Gordon, MD, PhD<br />
Pharmaceutical Research<br />
Highland Park, Illinois<br />
Donna Hakim<br />
Marketing Consultant<br />
Wall, New Jersey<br />
Hoy Lanning, Jr<br />
Business Owner<br />
North Carolina<br />
Maureen McGettigan<br />
Senior Account Executive,<br />
Drug Development Company<br />
Flourtown, Pennsylvania<br />
Alan Pallie<br />
Business Owner<br />
San Rafael, California<br />
FOUNDING CHAIR<br />
Vera H. Price, MD<br />
Hair Research Center<br />
University of California,<br />
San Francisco<br />
San Francisco, California<br />
NATIONAL ALOPECIA AREATA<br />
FOUNDATION<br />
2010 CORPORATE STAFF<br />
Vicki Kalabokes<br />
President and<br />
Chief Executive Officer<br />
Jeanné Rappoport<br />
Vice President<br />
Administration and Meetings<br />
Lisa Butler<br />
Vice President Communications<br />
Laura Ralph<br />
Resource and Information<br />
Specialist<br />
Mary Cosgrove<br />
Website and Database<br />
Specialist<br />
James H. Stoppello, CPA, JD<br />
Legal and Financial Advisor<br />
NATIONAL ALOPECIA AREATA<br />
FOUNDATION<br />
2010 SCIENTIFIC ADVISORY<br />
COUNCIL<br />
Maria Hordinsky, MD, Chair<br />
University of Minnesota<br />
Minneapolis, Minnesota<br />
David Norris, MD, Past Chair<br />
University of Colorado Health<br />
Sciences Center<br />
Denver, Colorado<br />
Jerry Shapiro, MD, FRCP, Vice-<br />
Chair<br />
University of British Columbia<br />
Vancouver, BC, Canada<br />
Vicki Kalabokes,<br />
Executive Secretary<br />
President and<br />
Chief Executive Officer, NAAF<br />
Angela Christiano, PhD<br />
Columbia University<br />
New York, New York<br />
Madeleine Duvic, MD<br />
MD Anderson Cancer Center<br />
Houston, Texas<br />
Marc Glashofer, MD<br />
Island Dermatology<br />
Long Beach, New York<br />
Gary Gordon, MD, PhD<br />
NAAF Board of Directors<br />
Chicago, Illinois<br />
Lloyd E. King, MD, PhD<br />
Vanderbilt University<br />
Nashville, Tennessee<br />
Amy McMichael, MD<br />
Wake Forest University<br />
Winston-Salem,<br />
North Carolina<br />
Alan Moshell, MD<br />
George Washington University<br />
Washington DC<br />
Sigfrid A. Muller, MD<br />
Las Vegas Skin and<br />
Cancer Clinic<br />
Las Vegas, Nevada<br />
Elise A. Olsen, MD<br />
Duke University<br />
Medical Center<br />
Durham, North Carolina<br />
Anthony Oro, MD<br />
Stanford University<br />
Medical Center<br />
Palo Alto, California<br />
Len Sperling, MD<br />
Uniformed Services University<br />
Bethesda, Maryland<br />
Richard Strick, MD<br />
UCLA School of Medicine<br />
Los Angeles, California<br />
John Sundberg, DVM, PhD<br />
The Jackson Laboratory<br />
Bar Harbor, Maine<br />
David A. Whiting, MD<br />
Baylor Hair Research &<br />
Treatment Center<br />
University of Texas<br />
Southwestern Medical Center<br />
Dallas, Texas<br />
Members of the NAAF Volunteer Board of Directors at the January Planning Meeting.<br />
Front, left to right: Jay Bokulic, Harris Barer, Brian Ter Haar. Rear, left to right: Alan Pallie,<br />
Maureen McGettigan, Richard Dest, Donna Hakim, Gary Gordon, Hoy Lanning Jr., and<br />
Bob Flint (missing is Bruce Fiscus).
MISSION<br />
The <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong> (NAAF)<br />
supports research to find a cure or acceptable<br />
treatment for alopecia areata, supports those with the<br />
disease, and educates the public about alopecia areata.<br />
14 Mitchell Boulevard<br />
San Rafael, CA 94903<br />
Phone: 415-472-3780<br />
Fax: 415-472-5343<br />
Email: info@naaf.org<br />
Website: www.naaf.org<br />
NAAF is a private, tax-exempt, nonprofit organization<br />
pursuant to Section 501(c)(3) of the Internal Revenue<br />
Code, and all gifts and donations to NAAF are tax<br />
deductible. Tax ID number is 94-2780249.<br />
Printed on recycled paper using vegetable-based inks.<br />
© 2011 <strong>National</strong> <strong>Alopecia</strong> <strong>Areata</strong> <strong>Foundation</strong>